Re: [QUAD-L] Question about lockdown systems.

[SHIRLEY BELL]

I have a manual chair with ez lock

> On 02/19/2024 5:53 PM EST wheelch...@aol.com  wrote:
>  
>  
>  
> Greetings,
> I've never seen a manual wheelchair, using a single post on an EZ Lock 
> System, for driving or riding.   I have seen double wheel securement for 
> riding wheelchairs.  The design of an EZ lock system was designed for drivers 
> and riders using powered chairs.  I would consider going directly to EZ Lock 
> Securement and getting an answer directly from them rather than a dealer.
> Best Wishes.
>  
>  
> On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
>  wrote:
>  
>  
> Hi Shelly, are you in the new England area? 
> 
> > On 02/19/2024 2:40 PM EST Shelly Kerchner  wrote:
> >  
> >  
> > hi to all ! Past two years been having health issues/skin breakdown, 
> > rotator cuff surgery, recovery, etc. so I have been absent from this group! 
> > I hope everyone is well! 
> >  
> > Currently, I’m driving my motorized chair using the easy lock system. 
> >  
> > I want to be able to use my manual chair and was advised that I would need 
> > the new Q straint lock down system ( state agreed to install and pay for 
> > the pin for my manual chair. ) the reason being because the easy lock does 
> > not make a pin for my manual chair.
> >  
> > One last thought, the salesman/company who recommended the new lock down 
> > system at First told me it be no problem for me to use my current motorized 
> > chair with the new system( qstraint) 
> >  
> > Then weeks later flipped on me and said because of liability the only chair 
> > I could drive from would be my manual chair, and could no longer  use the 
> > motorized chair……….
> >  
> > ( many months ago also he told me this is just between you and I, but we 
> > looked at the pins and there’s no difference between the pens except colors 
> > and the only trouble I may run into is if I had an accident and tried to 
> > come back on the company who made the pin because I had did not have the 
> > pin the manufacturer requires us to use.
> >  
> > It’s a cumbersome process to navigate so I would appreciate any one willing 
> > to share their experience and would appreciate some assistance!
> >  
> > Thanks ahead of time !!
> >  
> > Shelly Kerchner
> >  
> > 
> > 
> > Sent from Yahoo Mail for iPad 
> > https://mail.onelink.me/107872968?pid=nativeplacement=Global_Acquisition_YMktg_315_Internal_EmailSignature_sub1=Acquisition_sub2=Global_YMktg_sub3=_sub4=10604_sub5=EmailSignature__Static_
> > 
> 

Re: [QUAD-L] Question about lockdown systems.

[Don Price]

 Hi everyone!
Invacare is in business again and has released a rear-wheel drive Storm model. 
I have one and so far it has worked well for me (I've been using it about a 
year now.)It's probably very different from the old Storm model, but if you're 
an Invacare fan it's worth looking into.
Mine has been equipped with an EZ-Lock system and it is working just fine. I 
rarely have clearance issues going over speedbump or door thresholds.
Best wishes,Don.Invacare AVIVA STORM RX Power Wheelchair - Invacare


| 
| 
|  | 
Invacare AVIVA STORM RX Power Wheelchair - Invacare


 |

 |

 |




On Tuesday, February 20, 2024 at 01:36:15 PM MST, wheelch...@aol.com 
 wrote:  
 
  Invacare is still in business Worldwide and continues to make some excellent 
electric wheelchairs.Second, Dealers should not advise you of which brand and 
model is best for you.  They have an agenda to sell YOU something, to make a 
profit.  Same as a car dealer, trying to telling YOU to buy a Ford at a Chevy 
Dealership.Before you purchase anything, you should be evaluated by a licensed 
and certified Occupational Therapist.  An Occupational Therapy will properly 
measure you and help determine YOUR mobility and physical needs to achieve 
mobility.  They are trained to determine, along with your primary doctor and 
YOU the best, for your indoor and outdoor needs.  Will your chair be used 
indoor mostly or outdoors?   Do you need a lift to reach higher places?  Can 
you operate a chair by yourself or do you need assistance.  Will you be driving 
in your chair or just riding.  Will you need to recline for pressure relief?  
Salespeople are not certified to make those decision for YOU.What medical 
mobility special needs will you need.  Lastly, if you are going to drive, will 
YOUR chair be able to be upgraded?Yes, you are correct, InvaCare quit making 
the Storm Series.  It was a great rear wheel drive unit.  Unless it is 
necessary, stay away from those 6 wheel, center load electric chair.  Same 
applies to the Front Wheel Drive chairs, unless specified by a licensed and 
certified Occupational Therapist.Best WishesOn Tuesday, February 20, 2024 
at 01:11:25 PM CST,  wrote:  
 
  I am going through process of getting new electric wheelchair and trying to 
get a model that has an ezlock for it. I have invacare storm series but 
invacare went bankrupt, and dealer wants me to switch to Quantum R-TRAK rear 
wheel drive.Does anybody with ezlock have one for quantum chair? 
  I heard that ezlock is making one for R-TRAK  but I do not see it on their 
list of wheelchairs. 
  Here is list from Ezlock.
  
https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf
 
  Shelly, you can check out their list of wheelchairs on list at the link above.
  
  Derrick W in cold ass PA.
  
  On 2/19/24 5:53 PM, wheelch...@aol.com wrote:
  
 
 Greetings, I've never seen a manual wheelchair, using a single post on an EZ 
Lock System, for driving or riding.   I have seen double wheel securement for 
riding wheelchairs.  The design of an EZ lock system was designed for drivers 
and riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer. Best 
Wishes. 
  
  On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
 wrote:
  
  Hi Shelly, are you in the new England area?   
  On 02/19/2024 2:40 PM EST Shelly Kerchner  wrote:  
        
hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well! 
 
 
 
Currently, I’m driving my motorized chair using the easy lock system. 
 
 
 
I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.
 
 
 
One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint) 
 
 
 
Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….
 
 
 
( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.
 
 
 
It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!
 
 
 
Thanks ahead of time !!
 
 
 
Shelly Kerchner
 
 
 
 
  Sent from Yahoo Mail for iPad  
  

 
 

Re: [QUAD-L] Question about lockdown systems.

[Edward Tessier]

I've been using permobile wheelchairs and they have been very dependable, and 
work well with my EZ lock systems in my vans

ed

From: Shelly Kerchner 
Sent: Tuesday, February 20, 2024 3:01 PM
To: wheel...@centurylink.net ; quad-list@eskimo.com 
; Nichole Rohling 
Subject: Re: [QUAD-L] Question about lockdown systems.

Thank you Nicki & EVERYONE ! All input is very much appreciated!

Shelly
c5-c6-c7

On Tuesday, February 20, 2024 at 05:52:11 PM EST, Nichole Rohling 
 wrote:



I’ve had 3 Invacare chairs over over 25 years….I refuse to change to any other 
brand.

https://pro.invacare.com/Mobility/Powered-Wheelchairs/Rear-Wheel-Drive/c/Rear-Wheel-Drive



Nicki

C5/6



From: wheel...@centurylink.net [mailto:wheel...@centurylink.net]
Sent: Tuesday, February 20, 2024 1:11 PM
To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL
Subject: Re: [QUAD-L] Question about lockdown systems.



I am going through process of getting new electric wheelchair and trying to get 
a model that has an ezlock for it.

I have invacare storm series but invacare went bankrupt, and dealer wants me to 
switch to Quantum R-TRAK rear wheel drive.Does anybody with ezlock have one for 
quantum chair?



I heard that ezlock is making one for R-TRAK  but I do not see it on their list 
of wheelchairs.

Here is list from Ezlock.

https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf



Shelly, you can check out their list of wheelchairs on list at the link above.



Derrick W in cold ass PA.



On 2/19/24 5:53 PM, wheelch...@aol.com<mailto:wheelch...@aol.com> wrote:

Greetings,

I've never seen a manual wheelchair, using a single post on an EZ Lock System, 
for driving or riding.   I have seen double wheel securement for riding 
wheelchairs.  The design of an EZ lock system was designed for drivers and 
riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer.

Best Wishes.





On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
<mailto:sbell...@cox.net> wrote:





Hi Shelly, are you in the new England area?

On 02/19/2024 2:40 PM EST Shelly Kerchner 
<mailto:shelly.kerch...@yahoo.com> wrote:





hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well!



Currently, I’m driving my motorized chair using the easy lock system.



I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.



One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint)



Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….



( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.



It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!



Thanks ahead of time !!



Shelly Kerchner





Sent from Yahoo Mail for 
iPad<https://mail.onelink.me/107872968?pid=nativeplacement=Global_Acquisition_YMktg_315_Internal_EmailSignature_sub1=Acquisition_sub2=Global_YMktg_sub3=_sub4=10604_sub5=EmailSignature__Static_>

Re: [QUAD-L] Question about lockdown systems.

[wheelsdw]

wheelchair reminded me the need to "understand" why dealers(salesman) 
recommend certain chairs.
I have had Invacare all my life too. He brought the new Aviva and R-Trak 
for me to look at.  I liked them both but I could not test drive them. 
He kept saying that Invacare not reliable and various issues.


Does anybody have either of these chairs and use Ezlock?

Invacare® AVIVA® STORM RX

Quantum R-Trak

Thanks,
Derrick W

On 2/20/24 6:01 PM, Shelly Kerchner wrote:

Thank you Nicki & EVERYONE ! All input is very much appreciated!

Shelly
c5-c6-c7

On Tuesday, February 20, 2024 at 05:52:11 PM EST, Nichole Rohling 
 wrote:



I’ve had 3 Invacare chairs over over 25 years….I refuse to change to 
any other brand.


https://pro.invacare.com/Mobility/Powered-Wheelchairs/Rear-Wheel-Drive/c/Rear-Wheel-Drive

Nicki

C5/6

*From:*wheel...@centurylink.net [mailto:wheel...@centurylink.net]
*Sent:* Tuesday, February 20, 2024 1:11 PM
*To:* wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL
*Subject:* Re: [QUAD-L] Question about lockdown systems.

I am going through process of getting new electric wheelchair and 
trying to get a model that has an ezlock for it.


I have invacare storm series but invacare went bankrupt, and dealer 
wants me to switch to Quantum R-TRAK rear wheel drive.Does anybody 
with ezlock have one for quantum chair?


I heard that ezlock is making one for R-TRAK  but I do not see it on 
their list of wheelchairs.


Here is list from Ezlock.

https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf

Shelly, you can check out their list of wheelchairs on list at the 
link above.


Derrick W in cold ass PA.

On 2/19/24 5:53 PM, wheelch...@aol.com wrote:

Greetings,

I've never seen a manual wheelchair, using a single post on an EZ
Lock System, for driving or riding.   I have seen double wheel
securement for riding wheelchairs. The design of an EZ lock system
was designed for drivers and riders using powered chairs.  I would
consider going directly to EZ Lock Securement and getting an
answer directly from them rather than a dealer.

Best Wishes.

On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL
 <mailto:sbell...@cox.net> wrote:

Hi Shelly, are you in the new England area?

On 02/19/2024 2:40 PM EST Shelly Kerchner
 <mailto:shelly.kerch...@yahoo.com>
wrote:

hi to all ! Past two years been having health issues/skin
breakdown, rotator cuff surgery, recovery, etc. so I have been
absent from this group! I hope everyone is well!

Currently, I’m driving my motorized chair using the easy lock
system.

I want to be able to use my manual chair and was advised that
I would need the new Q straint lock down system ( state agreed
to install and pay for the pin for my manual chair. ) the
reason being because the easy lock does not make a pin for my
manual chair.

One last thought, the salesman/company who recommended the new
lock down system at First told me it be no problem for me to
use my current motorized chair with the new system( qstraint)

Then weeks later flipped on me and said because of liability
the only chair I could drive from would be my manual chair,
and could no longer  use the motorized chair……….

( many months ago also he told me this is just between you and
I, but we looked at the pins and there’s no difference between
the pens except colors and the only trouble I may run into is
if I had an accident and tried to come back on the company who
made the pin because I had did not have the pin the
manufacturer requires us to use.

It’s a cumbersome process to navigate so I would appreciate
any one willing to share their experience and would appreciate
some assistance!

Thanks ahead of time !!

Shelly Kerchner

Sent from Yahoo Mail for iPad

<https://mail.onelink.me/107872968?pid=nativeplacement=Global_Acquisition_YMktg_315_Internal_EmailSignature_sub1=Acquisition_sub2=Global_YMktg_sub3=_sub4=10604_sub5=EmailSignature__Static_>

Re: [QUAD-L] Question about lockdown systems.

[Shelly Kerchner]

 Thank you Nicki & EVERYONE ! All input is very much appreciated!
Shellyc5-c6-c7
On Tuesday, February 20, 2024 at 05:52:11 PM EST, Nichole Rohling 
 wrote:  
 
 
I’ve had 3 Invacare chairs over over 25 years….I refuse to change to any other 
brand.

https://pro.invacare.com/Mobility/Powered-Wheelchairs/Rear-Wheel-Drive/c/Rear-Wheel-Drive

  

Nicki 

C5/6

  

From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] 
Sent: Tuesday, February 20, 2024 1:11 PM
To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL
Subject: Re: [QUAD-L] Question about lockdown systems.

  

I am going through process of getting new electric wheelchair and trying to get 
a model that has an ezlock for it.

I have invacare storm series but invacare went bankrupt, and dealer wants me to 
switch to Quantum R-TRAK rear wheel drive.Does anybody with ezlock have one for 
quantum chair?

  

I heard that ezlock is making one for R-TRAK  but I do not see it on their list 
of wheelchairs. 

Here is list from Ezlock.

https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf

  

Shelly, you can check out their list of wheelchairs on list at the link above.

  

Derrick W in cold ass PA.

  

On 2/19/24 5:53 PM, wheelch...@aol.com wrote:


Greetings,

I've never seen a manual wheelchair, using a single post on an EZ Lock System, 
for driving or riding.   I have seen double wheel securement for riding 
wheelchairs.  The design of an EZ lock system was designed for drivers and 
riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer.

Best Wishes.

  

  

On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
 wrote:

  

  

Hi Shelly, are you in the new England area?  


On 02/19/2024 2:40 PM EST Shelly Kerchner  wrote: 

  

  

hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well! 

 

Currently, I’m driving my motorized chair using the easy lock system. 

 

I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.

 

One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint) 

 

Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….

 

( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.

 

It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!

 

Thanks ahead of time !!

 

Shelly Kerchner

 

  

Sent from Yahoo Mail for iPad 



  
  

RE: [QUAD-L] Question about lockdown systems.

[Nichole Rohling]

I’ve had 3 Invacare chairs over over 25 years….I refuse to change to any other 
brand.

https://pro.invacare.com/Mobility/Powered-Wheelchairs/Rear-Wheel-Drive/c/Rear-Wheel-Drive

 

Nicki 

C5/6

 

From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] 
Sent: Tuesday, February 20, 2024 1:11 PM
To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL
Subject: Re: [QUAD-L] Question about lockdown systems.

 

I am going through process of getting new electric wheelchair and trying to get 
a model that has an ezlock for it.

I have invacare storm series but invacare went bankrupt, and dealer wants me to 
switch to Quantum R-TRAK rear wheel drive.Does anybody with ezlock have one for 
quantum chair?

 

I heard that ezlock is making one for R-TRAK  but I do not see it on their list 
of wheelchairs. 

Here is list from Ezlock.

https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf

 

Shelly, you can check out their list of wheelchairs on list at the link above.

 

Derrick W in cold ass PA.

 

On 2/19/24 5:53 PM, wheelch...@aol.com wrote:

Greetings,

I've never seen a manual wheelchair, using a single post on an EZ Lock System, 
for driving or riding.   I have seen double wheel securement for riding 
wheelchairs.  The design of an EZ lock system was designed for drivers and 
riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer.

Best Wishes.

 

 

On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL  
<mailto:sbell...@cox.net>  wrote:

 

 

Hi Shelly, are you in the new England area?  

On 02/19/2024 2:40 PM EST Shelly Kerchner  <mailto:shelly.kerch...@yahoo.com> 
 wrote: 

  

  

hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well! 

 

Currently, I’m driving my motorized chair using the easy lock system. 

 

I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.

 

One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint) 

 

Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….

 

( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.

 

It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!

 

Thanks ahead of time !!

 

Shelly Kerchner

 

 

 
<https://mail.onelink.me/107872968?pid=nativeplacement=Global_Acquisition_YMktg_315_Internal_EmailSignature_sub1=Acquisition_sub2=Global_YMktg_sub3=_sub4=10604_sub5=EmailSignature__Static_>
 Sent from Yahoo Mail for iPad 

 

Re: [QUAD-L] Question about lockdown systems.

[wheelch...@aol.com]

 Invacare is still in business Worldwide and continues to make some excellent 
electric wheelchairs.Second, Dealers should not advise you of which brand and 
model is best for you.  They have an agenda to sell YOU something, to make a 
profit.  Same as a car dealer, trying to telling YOU to buy a Ford at a Chevy 
Dealership.Before you purchase anything, you should be evaluated by a licensed 
and certified Occupational Therapist.  An Occupational Therapy will properly 
measure you and help determine YOUR mobility and physical needs to achieve 
mobility.  They are trained to determine, along with your primary doctor and 
YOU the best, for your indoor and outdoor needs.  Will your chair be used 
indoor mostly or outdoors?   Do you need a lift to reach higher places?  Can 
you operate a chair by yourself or do you need assistance.  Will you be driving 
in your chair or just riding.  Will you need to recline for pressure relief?  
Salespeople are not certified to make those decision for YOU.What medical 
mobility special needs will you need.  Lastly, if you are going to drive, will 
YOUR chair be able to be upgraded?Yes, you are correct, InvaCare quit making 
the Storm Series.  It was a great rear wheel drive unit.  Unless it is 
necessary, stay away from those 6 wheel, center load electric chair.  Same 
applies to the Front Wheel Drive chairs, unless specified by a licensed and 
certified Occupational Therapist.Best WishesOn Tuesday, February 20, 2024 
at 01:11:25 PM CST,  wrote:  
 
  I am going through process of getting new electric wheelchair and trying to 
get a model that has an ezlock for it. I have invacare storm series but 
invacare went bankrupt, and dealer wants me to switch to Quantum R-TRAK rear 
wheel drive.Does anybody with ezlock have one for quantum chair? 
  I heard that ezlock is making one for R-TRAK  but I do not see it on their 
list of wheelchairs. 
  Here is list from Ezlock.
  
https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf
 
  Shelly, you can check out their list of wheelchairs on list at the link above.
  
  Derrick W in cold ass PA.
  
  On 2/19/24 5:53 PM, wheelch...@aol.com wrote:
  
 
 Greetings, I've never seen a manual wheelchair, using a single post on an EZ 
Lock System, for driving or riding.   I have seen double wheel securement for 
riding wheelchairs.  The design of an EZ lock system was designed for drivers 
and riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer. Best 
Wishes. 
  
  On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
 wrote:
  
  Hi Shelly, are you in the new England area?   
  On 02/19/2024 2:40 PM EST Shelly Kerchner  wrote:  
        
hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well! 
 
 
 
Currently, I’m driving my motorized chair using the easy lock system. 
 
 
 
I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.
 
 
 
One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint) 
 
 
 
Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….
 
 
 
( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.
 
 
 
It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!
 
 
 
Thanks ahead of time !!
 
 
 
Shelly Kerchner
 
 
 
 
  Sent from Yahoo Mail for iPad  
  

 
   

Re: [QUAD-L] Question about lockdown systems.

[wheelsdw]

I am going through process of getting new electric wheelchair and trying 
to get a model that has an ezlock for it.
I have invacare storm series but invacare went bankrupt, and dealer 
wants me to switch to Quantum R-TRAK rear wheel drive.Does anybody with 
ezlock have one for quantum chair?


I heard that ezlock is making one for R-TRAK  but I do not see it on 
their list of wheelchairs.

Here is list from Ezlock.
https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf

Shelly, you can check out their list of wheelchairs on list at the link 
above.


Derrick W in cold ass PA.

On 2/19/24 5:53 PM, wheelch...@aol.com wrote:

Greetings,
I've never seen a manual wheelchair, using a single post on an EZ Lock 
System, for driving or riding.   I have seen double wheel securement 
for riding wheelchairs.  The design of an EZ lock system was designed 
for drivers and riders using powered chairs.  I would consider going 
directly to EZ Lock Securement and getting an answer directly from 
them rather than a dealer.

Best Wishes.


On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
 wrote:



Hi Shelly, are you in the new England area?
On 02/19/2024 2:40 PM EST Shelly Kerchner  
wrote:


hi to all ! Past two years been having health issues/skin breakdown, 
rotator cuff surgery, recovery, etc. so I have been absent from this 
group! I hope everyone is well!


Currently, I’m driving my motorized chair using the easy lock system.

I want to be able to use my manual chair and was advised that I would 
need the new Q straint lock down system ( state agreed to install and 
pay for the pin for my manual chair. ) the reason being because the 
easy lock does not make a pin for my manual chair.


One last thought, the salesman/company who recommended the new lock 
down system at First told me it be no problem for me to use my 
current motorized chair with the new system( qstraint)


Then weeks later flipped on me and said because of liability the only 
chair I could drive from would be my manual chair, and could no 
longer  use the motorized chair……….


( many months ago also he told me this is just between you and I, but 
we looked at the pins and there’s no difference between the pens 
except colors and the only trouble I may run into is if I had an 
accident and tried to come back on the company who made the pin 
because I had did not have the pin the manufacturer requires us to use.


It’s a cumbersome process to navigate so I would appreciate any one 
willing to share their experience and would appreciate some assistance!


Thanks ahead of time !!

Shelly Kerchner



Sent from Yahoo Mail for iPad 
 

Re: [QUAD-L] Question about lockdown systems.

[Jeffrey Gaede]

 I have a power wheelchair and an EZ lock system in my van. The one thing I 
would warn about is to make sure they don't install that "single post" so low 
on your chair, manual or not, that it interferes with bumps, curb cuts or 
anything else. That's an issue I'm dealing with now.Jeff
On Monday, February 19, 2024 at 03:24:45 PM PST, Shelly Kerchner 
 wrote:  
 
  Thank you! So very much! I no longer feel so very alone!


On Monday, February 19, 2024 at 05:53:18 PM EST, wheelch...@aol.com 
 wrote:  
 
  Greetings,I've never seen a manual wheelchair, using a single post on an EZ 
Lock System, for driving or riding.   I have seen double wheel securement for 
riding wheelchairs.  The design of an EZ lock system was designed for drivers 
and riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer.Best 
Wishes.

On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
 wrote: 
 
Hi Shelly, are you in the new England area?   
  On 02/19/2024 2:40 PM EST Shelly Kerchner  wrote:  
        
hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well! 
 
 
 
Currently, I’m driving my motorized chair using the easy lock system. 
 
 
 
I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.
 
 
 
One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint) 
 
 
 
Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….
 
 
 
( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.
 
 
 
It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!
 
 
 
Thanks ahead of time !!
 
 
 
Shelly Kerchner
 
 
 
 
  Sent from Yahoo Mail for iPad  
   

Re: [QUAD-L] Question about lockdown systems.

[Shelly Kerchner]

 Thank you! So very much! I no longer feel so very alone!


On Monday, February 19, 2024 at 05:53:18 PM EST, wheelch...@aol.com 
 wrote:  
 
  Greetings,I've never seen a manual wheelchair, using a single post on an EZ 
Lock System, for driving or riding.   I have seen double wheel securement for 
riding wheelchairs.  The design of an EZ lock system was designed for drivers 
and riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer.Best 
Wishes.

On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
 wrote: 
 
Hi Shelly, are you in the new England area?   
  On 02/19/2024 2:40 PM EST Shelly Kerchner  wrote:  
        
hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well! 
 
 
 
Currently, I’m driving my motorized chair using the easy lock system. 
 
 
 
I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.
 
 
 
One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint) 
 
 
 
Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….
 
 
 
( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.
 
 
 
It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!
 
 
 
Thanks ahead of time !!
 
 
 
Shelly Kerchner
 
 
 
 
  Sent from Yahoo Mail for iPad  
 

Re: [QUAD-L] Question about lockdown systems.

[wheelch...@aol.com]

 Greetings,I've never seen a manual wheelchair, using a single post on an EZ 
Lock System, for driving or riding.   I have seen double wheel securement for 
riding wheelchairs.  The design of an EZ lock system was designed for drivers 
and riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer.Best 
Wishes.

On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
 wrote: 
 
Hi Shelly, are you in the new England area?   
  On 02/19/2024 2:40 PM EST Shelly Kerchner  wrote:  
        
hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well! 
 
 
 
Currently, I’m driving my motorized chair using the easy lock system. 
 
 
 
I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.
 
 
 
One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint) 
 
 
 
Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….
 
 
 
( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.
 
 
 
It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!
 
 
 
Thanks ahead of time !!
 
 
 
Shelly Kerchner
 
 
 
 
  Sent from Yahoo Mail for iPad  
   

Re: [QUAD-L] Question about lockdown systems.

[SHIRLEY BELL]

Hi Shelly, are you in the new England area? 

> On 02/19/2024 2:40 PM EST Shelly Kerchner  wrote:
>  
>  
> hi to all ! Past two years been having health issues/skin breakdown, rotator 
> cuff surgery, recovery, etc. so I have been absent from this group! I hope 
> everyone is well! 
>  
> Currently, I’m driving my motorized chair using the easy lock system. 
>  
> I want to be able to use my manual chair and was advised that I would need 
> the new Q straint lock down system ( state agreed to install and pay for the 
> pin for my manual chair. ) the reason being because the easy lock does not 
> make a pin for my manual chair.
>  
> One last thought, the salesman/company who recommended the new lock down 
> system at First told me it be no problem for me to use my current motorized 
> chair with the new system( qstraint) 
>  
> Then weeks later flipped on me and said because of liability the only chair I 
> could drive from would be my manual chair, and could no longer  use the 
> motorized chair……….
>  
> ( many months ago also he told me this is just between you and I, but we 
> looked at the pins and there’s no difference between the pens except colors 
> and the only trouble I may run into is if I had an accident and tried to come 
> back on the company who made the pin because I had did not have the pin the 
> manufacturer requires us to use.
>  
> It’s a cumbersome process to navigate so I would appreciate any one willing 
> to share their experience and would appreciate some assistance!
>  
> Thanks ahead of time !!
>  
> Shelly Kerchner
>  
> 
> 
> Sent from Yahoo Mail for iPad 
> https://mail.onelink.me/107872968?pid=nativeplacement=Global_Acquisition_YMktg_315_Internal_EmailSignature_sub1=Acquisition_sub2=Global_YMktg_sub3=_sub4=10604_sub5=EmailSignature__Static_
> 

Re: [QUAD-L] question about transferring from wheelchair to a car without injury

[Aaron Mann]

Have you tried qualifying for a chair lift?  Sometimes there are programs
for this.

https://101mobility.com/products/for-auto/turning-automotive-seats/

Aaron Mann


On Fri, Mar 15, 2019 at 11:09 AM DEBRA DEW  wrote:

> Question about transferring from wheelchair to a car without injury –
> chronically injured when transferring even by professional nurses because
> paralyzed limbs just flop around, and are impossible to control without
> being secured somehow.
>
> I broke another toe yesterday and transferred from my wheelchair into the
> front seat of a car.
>
> And I had a sprained ankle previously from the same maneuver.
>
> Does anyone have any suggestions on how to make it easier for someone to
> lift me from the wheelchair into the front seat? The problem is my hands
> and feet just flop all over the place and get squished.
>
> I'm looking on the Internet at mobile hoist cranes, but they are too large
> for convenience and mobility.
>
> Please advise. I'm also thinking about a type of Velcro strapping to put
> around my wrists and ankles to try to stabilize the flopping appendages.
>
>
>
>
>
>
> *Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
> Formerly: Homeschooling mom of 9 and pvt. pilot Currently: tetrapeligic due
> to advanced MS and living in a nursing home hell 18 years Phone: 561-58
> 6-9399 SC student 20yrs  … can not brag about my love for YHVH God because
> I fail Him daily, but I can brag about His love for me because He never
> fails me. ROMANS 8:28… Kindness is the language the deaf can hear and the
> blind can see – Mark Twain*
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
> THE FACT THAT THERE IS A HIGHWAY TO HELL AND ONLY A STAIRWAY TO HEAVEN
> SAYS A LOT ABOUT ANTICIPATED TRAFFIC NUMBERS
> *Jesus is the living word*
>

Re: [QUAD-L] Question for those with SP catheters

[Eric Olson]

  
  
I haven't had any problems with resistance, but have had some
  blood in my urine after a change.  I usually also have a fair
  amount of blood on the catheter dressing after changes 


On 11/8/2018 3:49 PM, Lori Michaelson
  wrote:


  
  
I had a suprapubic catheter
  put in in June of 2017 (last year). Only 5 later a growth or
  polyp shut up against my bladder wall. I had a bladder biopsy
  done in February of  THIS year & it turned out to be
  superficial or low-grade cancer so it was removed.  The last
  time I had a cystoscopy for my urologist to look in my urine
  everything looked fine. That was August 31st of this year.


I have also had back-to-back
  nosocomial infections (the two big superbugs to make matters
  worse) that are commonly found in hospitals or clinics and
  that is when they began to appear... the first one was after
  my urologist wanted to be the first to change my catheter the
  first 3 months after switching to an SP catheter and then they
  have just continued. They cause severe bladder and kidney
  pain. They are also multi-drug-resistant. The symptomatic
  bacteria (2 superbugs present at the same time) were treated
  with antibiotic injections of Rocephin but the pain did not go
  away so I had another urine culture done last Friday and just
  got the results today. Enterococcus species and Staphylococcus
  Aureus - MRSA is what was found. It is sensitive to very
  little drugs. 


I am currently awaiting
  'what to do' from my urologist.. I just called them to see if
  they got the results also and they have but the urologist has
  yet to tell me what to do when he is not seeing patients and
  for his nurse to get back with me.


Just about every website
  says that SP catheters are supposed to cut down on infections
  but I have had just the opposite happen.  The catheter changes
  are done with extreme cleanliness and sterility. My home
  health agency nurse who does them has done many catheter
  changes and my live-in caregiver watches her and sees that she
  is doing everything correctly.


My question is:


Has anyone experienced some
  resistance when trying to insert their suprapubic catheter
  and/or had a tiny blood clot or tiny tiny blood flakes (that
  quickly disappear) after a catheter change?


Thank you!


~Lori
C4/5 complete quad, 39 years
  post


-- 

  

  "Petting, scratching and cuddling a dog
could be soothing to the mind and heart and deep
meditation and almost as good for the soul as prayer."
~Dean Koontz
  

  

  


  

	

		Virus-free. www.avast.com
		
	
 

Re: [QUAD-L] Question for those with SP catheters

[Lori Michaelson]

Thanks for responding Danny! I *never ever *ask for my urine to be tested
for treatment unless the symptoms are so bad I can't stand it. I don't know
as I have any stones or not. I had some sediment (very little) in my
catheter that was taken out this morning which is very good for me. I have
never had a kidney stone.

Severe symptoms like chills and sweats usually indicate that you have a
fever which means that whatever bacteria you have that is causing it went
into the bloodstream (systemic). I am thankful that I do not have those but
the pain since October 11th has not let up very much & the Rocephin
injections is what they gave me for what they found on October 21st for
Proteus Mirabilis, MRSA & Acinetobacter Baumannii hoping that would work.
There were some days and nights that the pain was not fair but  more than
enough days and nights that the severe bladder and lower back pain (that I
am familiar with and always indicative of bladder infections that have not
gone systemic) is beyond nightmarish.

I just looked at the results and what is in there and what the bacteria is
sensitive to (when antibiotics) and while I understand some of it I don't
understand all of it. In other words, it says that "Enterococcus Species"
(which is in my bladder) is sensitive to Cipro, Ampicillin and
Nitrofurantoin while *Staphylococcus aureus*  is sensitive to Tetracycline,
Gentamicin & Cipro. But nitrofurantoin and vancomycin are also listed. WHAT
I DON'T UNDERSTAND is the less than sign (<) or the right-hand sign (>) in
front of numbers.  I do understand that S stands for sensitive and R stands
for resistance.

I just have to wait for them to get back to me which I was hoping was going
to happen before the day is over today but it did not.

~Lori

On Thu, Nov 8, 2018 at 4:10 PM Danny Hearn  wrote:

> Lori, We never really have any resistance but a bit of blood flakes or red
> colored urine can happen right after the cath change but that is nothing to
> worry about if it clears up a while later.I know when I get my urine
> tested or a culture- mine usually has about 3 types of bacteria but they
> told me this can be normal and will not treat unless i'm having severe
> symptoms such as chills, sweats or etc. Hope things get better for
> you..You don't think you can have any stones do you? AS for the MRSA,
> I'm not sure what may help with that OR if any type pic line drugs can help
> that.   Dan H.***
>
> On Thursday, November 8, 2018, 3:49:59 PM CST, Lori Michaelson <
> lorilivin...@gmail.com> wrote:
>
>
> I had a suprapubic catheter put in in June of 2017 (last year). Only 5
> later a growth or polyp shut up against my bladder wall. I had a bladder
> biopsy done in February of  THIS year & it turned out to be superficial or
> low-grade cancer so it was removed.  The last time I had a cystoscopy for
> my urologist to look in my urine everything looked fine. That was August
> 31st of this year.
>
> I have also had back-to-back nosocomial infections (the two big superbugs
> to make matters worse) that are commonly found in hospitals or clinics and
> that is when they began to appear... the first one was after my urologist
> wanted to be the first to change my catheter the first 3 months after
> switching to an SP catheter and then they have just continued. They cause
> severe bladder and kidney pain. They are also multi-drug-resistant. The
> symptomatic bacteria (2 superbugs present at the same time) were treated
> with antibiotic injections of Rocephin but the pain did not go away so I
> had another urine culture done last Friday and just got the results today.
> Enterococcus species and Staphylococcus Aureus - MRSA is what was found. It
> is sensitive to very little drugs.
>
> I am currently awaiting 'what to do' from my urologist.. I just called
> them to see if they got the results also and they have but the urologist
> has yet to tell me what to do when he is not seeing patients and for his
> nurse to get back with me.
>
> Just about every website says that SP catheters are supposed to cut down
> on infections but I have had just the opposite happen.  The catheter
> changes are done with extreme cleanliness and sterility. My home health
> agency nurse who does them has done many catheter changes and my live-in
> caregiver watches her and sees that she is doing everything correctly.
>
> My question is:
>
> Has anyone experienced some resistance when trying to insert their
> suprapubic catheter and/or had a tiny blood clot or tiny tiny blood flakes
> (that quickly disappear) after a catheter change?
>
> Thank you!
>
> ~Lori
> C4/5 complete quad, 39 years post
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>


-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Re: [QUAD-L] Question for those with SP catheters

[Danny Hearn]

 Lori, We never really have any resistance but a bit of blood flakes or red 
colored urine can happen right after the cath change but that is nothing to 
worry about if it clears up a while later.I know when I get my urine tested 
or a culture- mine usually has about 3 types of bacteria but they told me this 
can be normal and will not treat unless i'm having severe symptoms such as 
chills, sweats or etc. Hope things get better for you..You don't think you 
can have any stones do you? AS for the MRSA, I'm not sure what may help with 
that OR if any type pic line drugs can help that.   Dan H.***
On Thursday, November 8, 2018, 3:49:59 PM CST, Lori Michaelson 
 wrote:  
 
 I had a suprapubic catheter put in in June of 2017 (last year). Only 5 later a 
growth or polyp shut up against my bladder wall. I had a bladder biopsy done in 
February of  THIS year & it turned out to be superficial or low-grade cancer so 
it was removed.  The last time I had a cystoscopy for my urologist to look in 
my urine everything looked fine. That was August 31st of this year.
I have also had back-to-back nosocomial infections (the two big superbugs to 
make matters worse) that are commonly found in hospitals or clinics and that is 
when they began to appear... the first one was after my urologist wanted to be 
the first to change my catheter the first 3 months after switching to an SP 
catheter and then they have just continued. They cause severe bladder and 
kidney pain. They are also multi-drug-resistant. The symptomatic bacteria (2 
superbugs present at the same time) were treated with antibiotic injections of 
Rocephin but the pain did not go away so I had another urine culture done last 
Friday and just got the results today. Enterococcus species and Staphylococcus 
Aureus - MRSA is what was found. It is sensitive to very little drugs. 
I am currently awaiting 'what to do' from my urologist.. I just called them to 
see if they got the results also and they have but the urologist has yet to 
tell me what to do when he is not seeing patients and for his nurse to get back 
with me.
Just about every website says that SP catheters are supposed to cut down on 
infections but I have had just the opposite happen.  The catheter changes are 
done with extreme cleanliness and sterility. My home health agency nurse who 
does them has done many catheter changes and my live-in caregiver watches her 
and sees that she is doing everything correctly.
My question is:
Has anyone experienced some resistance when trying to insert their suprapubic 
catheter and/or had a tiny blood clot or tiny tiny blood flakes (that quickly 
disappear) after a catheter change?
Thank you!
~LoriC4/5 complete quad, 39 years post
-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
  

Re: [QUAD-L] question

[Amy Elizabeth Baldwin]

Have you tried taking a stool softner, such as Dulcolax?On the day that I have 
to do it, I put about 10 pounds of weights, on my tummy for about 2 hours.  [ 
rocks in a little bag that my mom made for me! ]Even more importantly, I 
started drinking a Atkins at night.

•  • LittleQuad •  •
 
 
  On Mon, Feb 26, 2018 at 7:35 PM, Val Cleroux wrote:   

I am a C5/6 quadriplegic due to a motor vehicle accident in 2000.
I am wondering what other quads d take as a stool softener the night before 
about treatment? I have been taking milk of magnesium pills, three at 5 PM, 
three at 8 PM and a 30 mL of liquid at that time. I am looking for another 
solution as this has created kidney stones as the pills have a high percentage 
of calcium.
Thanks in advance for anyone who can help me out. Val Cleroux "Communication is 
the key to success"    

Re: [QUAD-L] question

[Greg]

I just did Magic Bullets to start, then digit stim.
But finely "bagged" the whole thing. No more worries, hours of sweating, 
etc. About 30 seconds a day, 60 seconds when doing a complete change. 
Life changing for me. I was living my life around that schedule. So much 
less worry, less embarrassing, faster, cleaner, no leaking, etc. I know 
we all prefer things differnt, but I just can't see why its not done 
from day one of injury.

Greg

On 2/26/2018 7:01 PM, Danny Hearn wrote:
I used to take a stool softener a night or 2 before, usually ducolax 
brand, but most times now I just eat about 5 or 6 prunes the night 
before and seems to work for me, Dan H***



On Monday, February 26, 2018 7:48 PM, Lissette Whitehead 
 wrote:



Hi Val, have you ever tried without taking anything? Do you use a 
suppository? I took sennekot and other similar stuff for years but I 
felt they were hurting me. I decided to just stop taking them and just 
change my diet (I'm a vegetarian so that helps a lot) and started 
drinking more water. I haven't taken any laxatives or stool softeners 
in about 3 years. I used to go every other day, now I try to go every 
day and that works well for me. I hate taking any kind of pills so I'm 
happy I don't have to take anything. I just use the suppository.


Lissette Whitehead
416 W. San Ysidro Blvd.
San Ysidro, CA 92173
www.lwgripgloves.com


 



*From:* Val Cleroux 
*Sent:* Monday, February 26, 2018 5:35 PM
*To:* Quad List
*Subject:* [QUAD-L] question


I am a C5/6 quadriplegic due to a motor vehicle accident in 2000.

I am wondering what other quads d take as a stool softener the night 
before about treatment? I have been taking milk of magnesium pills, 
three at 5 PM, three at 8 PM and a 30 mL of liquid at that time. I am 
looking for another solution as this has created kidney stones as the 
pills have a high percentage of calcium.


Thanks in advance for anyone who can help me out.
Val Cleroux
"Communication is the key to success"

Re: [QUAD-L] question

[Danny Hearn]

I used to take a stool softener a night or 2 before, usually ducolax brand, but 
most times now I just eat about 5 or 6 prunes the night before and seems to 
work for me, Dan H*** 

On Monday, February 26, 2018 7:48 PM, Lissette Whitehead 
 wrote:
 

 #yiv7479423737 #yiv7479423737 -- P 
{margin-top:0;margin-bottom:0;}#yiv7479423737 Hi Val, have you ever tried 
without taking anything? Do you use a suppository? I took sennekot and other 
similar stuff for years but I felt they were hurting me. I decided to just stop 
taking them and just change my diet (I'm a vegetarian so that helps a lot) and 
started drinking more water. I haven't taken any laxatives or stool softeners 
in about 3 years. I used to go every other day, now I try to go every day and 
that works well for me. I hate taking any kind of pills so I'm happy I don't 
have to take anything. I just use the suppository.   
Lissette Whitehead
416 W. San Ysidro Blvd.San Ysidro, CA 92173www.lwgripgloves.com
  

From: Val Cleroux 
Sent: Monday, February 26, 2018 5:35 PM
To: Quad List
Subject: [QUAD-L] question 

I am a C5/6 quadriplegic due to a motor vehicle accident in 2000.
I am wondering what other quads d take as a stool softener the night before 
about treatment? I have been taking milk of magnesium pills, three at 5 PM, 
three at 8 PM and a 30 mL of liquid at that time. I am looking for another 
solution as this has created kidney stones as the pills have a high percentage 
of calcium.
Thanks in advance for anyone who can help me out. Val Cleroux"Communication is 
the key to success" 

   

Re: [QUAD-L] question

[Lissette Whitehead]

Hi Val, have you ever tried without taking anything? Do you use a suppository? 
I took sennekot and other similar stuff for years but I felt they were hurting 
me. I decided to just stop taking them and just change my diet (I'm a 
vegetarian so that helps a lot) and started drinking more water. I haven't 
taken any laxatives or stool softeners in about 3 years. I used to go every 
other day, now I try to go every day and that works well for me. I hate taking 
any kind of pills so I'm happy I don't have to take anything. I just use the 
suppository.




Lissette Whitehead

416 W. San Ysidro Blvd.

San Ysidro, CA 92173

www.lwgripgloves.com




[http://i157.photobucket.com/albums/t79/LISSW/webpages/LW%20GRIP%20GLOVES/LWGG-Logo62_zps5924741a.png~original]
  
[http://i157.photobucket.com/albums/t79/LISSW/7d95ed0a-10f3-4bc9-858a-4333495379e4_zps20254f73.png~original]
 



From: Val Cleroux 
Sent: Monday, February 26, 2018 5:35 PM
To: Quad List
Subject: [QUAD-L] question



I am a C5/6 quadriplegic due to a motor vehicle accident in 2000.

I am wondering what other quads d take as a stool softener the night before 
about treatment? I have been taking milk of magnesium pills, three at 5 PM, 
three at 8 PM and a 30 mL of liquid at that time. I am looking for another 
solution as this has created kidney stones as the pills have a high percentage 
of calcium.

Thanks in advance for anyone who can help me out.

Val Cleroux
"Communication is the key to success"

RE: [QUAD-L] question

[poajoan]

Hi

C4 here since 1990

I do bowel care every day, and take Miralax, Benefiber and a Probiotic 
everyday.  Pretty clear sailing most of the time.  Recommended by my Internist 
nine years ago. 

Joan

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn

 

 

 

 

From: Val Cleroux [mailto:vcler...@rogers.com] 
Sent: Monday, February 26, 2018 5:35 PM
To: Quad List 
Subject: [QUAD-L] question

 

 

 

I am a C5/6 quadriplegic due to a motor vehicle accident in 2000.

 

I am wondering what other quads d take as a stool softener the night before 
about treatment? I have been taking milk of magnesium pills, three at 5 PM, 
three at 8 PM and a 30 mL of liquid at that time. I am looking for another 
solution as this has created kidney stones as the pills have a high percentage 
of calcium.

 

Thanks in advance for anyone who can help me out.

 

Val Cleroux

"Communication is the key to success"

 

RE: [QUAD-L] question about the Alexa

[Danny Espinoza]

Physical accessories or to add more "skills" to her? -Danny


 Original Message 
Subject: [QUAD-L] question about the Alexa
From: "john owens" 
Date: Tue, December 26, 2017 9:16 am
To: "Quad-list Post" 

Who here has an Alexa? I have one that I from a dear friend GAIL H. but I need to know all the accessories I can get it and how they work?

Re: [QUAD-L] question about the Alexa

[john owens]

 I just spoke with my friend Gail Holmes and she lives by you is there a way 
that I can come speak with you  in person because I'm not really good on 
computers?
On Tuesday, December 26, 2017, 11:28:40 AM CST, Jim Lubin 
 wrote:  
 
 I have the Harmony Home Hub for controlling the tvhttps://smile.amazon.com/gp/ 
product/B00N3RFC4Q/

For lights, I went with the Lifx lights which do not use a hub. Each light bulb 
connects to your wifi router. Each light can be controlled separately or setup 
in groups. They can also change to any color. I seem to use the Echo the most 
to control the lights. https://smile.amazon.com/gp/ product/B01KY02MS8/

I didn't have a lamp or light fixture that uses standard A19 light bulb so I 
got this one to use with the Lifx A19 lightshttps://smile.amazon.com/gp/ 
product/B003B7G6CK/

and these light stripshttps://smile.amazon.com/LIFX- Adjustable-Multicolor- 
Dimmable-Assistant/dp/ B073168F4Y/
On Tue, Dec 26, 2017 at 9:16 AM, john owens  wrote:

Who here has an Alexa? I have one that I from a dear friend GAIL H. but I need 
to know all the accessories I can get it and how they work?


  

Re: [QUAD-L] question about the Alexa

[Jim Lubin]

I have the Harmony Home Hub for controlling the tv
https://smile.amazon.com/gp/product/B00N3RFC4Q/

For lights, I went with the Lifx lights which do not use a hub. Each light
bulb connects to your wifi router. Each light can be controlled separately
or setup in groups. They can also change to any color. I seem to use the
Echo the most to control the lights.
https://smile.amazon.com/gp/product/B01KY02MS8/

I didn't have a lamp or light fixture that uses standard A19 light bulb so
I got this one to use with the Lifx A19 lights
https://smile.amazon.com/gp/product/B003B7G6CK/

and these light strips
https://smile.amazon.com/LIFX-Adjustable-Multicolor-Dimmable-Assistant/dp/
B073168F4Y/

On Tue, Dec 26, 2017 at 9:16 AM, john owens  wrote:

> Who here has an Alexa? I have one that I from a dear friend GAIL H. but I
> need to know all the accessories I can get it and how they work?
>

Re: [QUAD-L] question about the Alexis

[Bobbie Humphreys]

Greg,
   I have an Echo and you don't need special bulbs just a hub for each 
device.
Bobbie 

"Be the change you want to see in the world". Gandhi

> On Dec 9, 2017, at 10:17 AM, Greg  wrote:
> 
> I have an Echo, pretty cool, but not great yet. In order to work well, you 
> need extra stuff. Receivers for each device like light switches, or special 
> bulbs. A Harmony Hub to set your tv up.
> 
>  I can:
> turn lights on/off
> 
> turn ceiling fan on/off
> 
> turn tv on/off, volume, channel
> 
> Drop-in on the 3 other Echos in the house. Use as hands free intercom. 
> 
> I do have 1 problem. I can call any of the Echos, but if I try calling one 
> upstairs, it calls the last one that called me, not the one I called. Yet 
> when they are down stairs they work fine.
> 
> I know houses are weird in sections, but that should be it, since you are 
> supposed to be able to call “drop-in” on anyone in your contacts
> 
> Greg
> 
>> On 12/8/2017 10:11 PM, john owens wrote:
>> Who else has an Alexis? what are some of the + and - of it? What all does it 
>> operate and how well does it operate it? if you don't get a reply back from 
>> me on here try me on  Facebook I really want to find out more about this 
>> product my name is John Raymond Owens my profile picture is just my face and 
>> my background picture is a pit bull and a baby. I have 2 Facebook but one is 
>> so old I don't even knows the password.
> 

Re: [QUAD-L] question about the Alexis

[Greg]

I have an Echo, pretty cool, but not great yet. In order to work well, 
you need extra stuff. Receivers for each device like light switches, or 
special bulbs. A Harmony Hub to set your tv up.


 I can:

turn lights on/off

turn ceiling fan on/off

turn tv on/off, volume, channel

Drop-in on the 3 other Echos in the house. Use as hands free intercom.

I do have 1 problem. I can call any of the Echos, but if I try calling 
one upstairs, it calls the last one that called me, not the one I 
called. Yet when they are down stairs they work fine.


I know houses are weird in sections, but that should be it, since you 
are supposed to be able to call “drop-in” on anyone in your contacts


Greg

On 12/8/2017 10:11 PM, john owens wrote:
Who else has an Alexis? what are some of the + and - of it? What all 
does it operate and how well does it operate it? if you don't get a 
reply back from me on here try me on  Facebook I really want to find 
out more about this product my name is John Raymond Owens my profile 
picture is just my face and my background picture is a pit bull and a 
baby. I have 2 Facebook but one is so old I don't even knows the password.

Re: [QUAD-L] question about contracting muscles atrophying, etc.

[Bryce Willis]

About the best treatment is exercise/movement that keeps the joints and muscles 
from becoming stiff. The hard part is finding someone to do this everyday. It 
has to begin before the stiffness sets in. It's very hard to reverse the 
process.

Sent from my iPad

On Jun 11, 2017, at 6:06 PM, Dave Krehbiel 
> wrote:

Regarding contraction, while in a nursing home, I had a similar problem to a 
lesser extent. In order to straighten my arms, they attached some sort of a 
pillow or a brace to each arm to try to straighten each arm and to help hold it 
straight. This sounds to me like a job for a physical therapist or occupational 
therapist. It helped me. After using the device, I have become a better 
extending and straightening my arms while in bed.

In the long-term, you might consider e-stim. If your biceps are contracted, 
that means that your triceps are extending and lengthening. You can 
electrically stimulate your triceps, and other muscles, to help them contract 
and strengthen. If you have partial control over your triceps, this can help 
you increase that control.

If you Google estim, unfortunately, you will find a number of sexually related 
devices.

But here is a place you can start: http://www.lgmedsupply.com/tensproducts.html

after the system has been selected and configured and placed on the appropriate 
muscles, is relatively easy for people who are not physical therapists to 
attach the pads and device.

Has anyone else tried this? How did this work for you?

Take care,

Dave Krehbiel
Olney, MD


From: DEBRA DEW [mailto:n14...@hotmail.com]
Sent: Sunday, June 11, 2017 11:01 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] question about contracting muscles atrophying, etc.


my arms and legs are contracted at about a   45° angle,, which makes sitting in 
a wheelchair rather awkward with my legs..





I've seen pictures of long-term paralysis patients, aand eventually their knees 
are touching their bottom and there hands are touching their chin. Looks very 
uncomfortable and like a pretzel. Years ago I inquired about what could be done 
 to stop the progression, and I was told they would have to put braces on me 
that are very bulky and uncomfortable, so I  decided not to do that. It's hard 
enough to maintain comfort now without that, on top of it.



My life expectancy is about another 20 years, and I really do wonder what's 
going to happen to my body with these contractions  of my muscles. Please share 
whatever knowledge you possess about this.  And I wonder if I had physical 
therapy, If it would have done anything  to make me more comfortable.  I have 
one CNA that moves my arms  ggently to open them  and it does feel good while 
she is doing it.  I had physical therapy for a few months, that my insurance 
stopped paying for it quite quickly  (Medicaid).. Is there any way to force 
Medicaid to provide for physical therapy?





I found this in an encyclopedia:Even with "complete" injuries, in some rare 
cases, through intensive rehabilitation, slight movement can be regained 
through "rewiring" neural 
connections, as in the case 
of the late actor Christopher 
Reeve.[9]







Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs
ROMANS 8:28
B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH

[https://ipmcdn.avast.com/images/icons/icon-envelope-tick-round-orange-animated-no-repeat-v1.gif]
Virus-free. 
www.avast.com

Re: [QUAD-L] question about contracting muscles atrophying, etc.

[wheelchair]

Were they called or referred to as BFOs?
 
Best Wishes
 
 
In a message dated 6/11/2017 5:05:58 P.M. Central Daylight Time,  
davekrehb...@earthlink.net writes:

 
Regarding  contraction, while in a nursing home, I had a similar problem to 
a lesser  extent. In order to straighten my arms, they attached some sort 
of a pillow or  a brace to each arm to try to straighten each arm and to help 
hold it  straight. This sounds to me like a job for a physical therapist or 
 occupational therapist. It helped me. After using the device, I have 
become a  better extending and straightening my arms while in bed. 
In  the long-term, you might consider e-stim. If your biceps are 
contracted, that  means that your triceps are extending and lengthening. You 
can 
electrically  stimulate your triceps, and other muscles, to help them contract 
and  strengthen. If you have partial control over your triceps, this can help 
you  increase that control. 
If  you Google estim, unfortunately, you will find a number of sexually 
related  devices. 
But  here is a place you can start: 
http://www.lgmedsupply.com/tensproducts.html 
after  the system has been selected and configured and placed on the 
appropriate  muscles, is relatively easy for people who are not physical 
therapists to  attach the pads and device. 
Has  anyone else tried this? How did this work for you? 
Take  care, 
Dave  Krehbiel 
Olney,  MD 
 
 
From: DEBRA DEW  [mailto:n14...@hotmail.com] 
Sent: Sunday, June 11, 2017 11:01  AM
To: quad-list@eskimo.com
Subject: [QUAD-L] question  about contracting muscles atrophying, etc.

 
my arms and  legs are contracted at about a   45° angle,, which makes 
sitting in a  wheelchair rather awkward with my legs.. 
I've seen  pictures of long-term paralysis patients, aand  eventually their 
knees are touching their bottom and there hands are  touching their chin. 
Looks very uncomfortable and like a pretzel. Years ago I  inquired about what 
could be done  to stop the progression, and I was  told they would have to 
put braces on me that are very bulky and  uncomfortable, so I  decided not 
to do that. It's hard enough to maintain  comfort now without that, on top of 
it. 
My life  expectancy is about another 20 years, and I really do wonder 
what's going to  happen to my body with these contractions  of my muscles. 
Please 
share  whatever knowledge you possess about this.  And I wonder if I had  
physical therapy, If it would have done anything  to make me  more 
comfortable.  I have one CNA that moves my arms  ggently  to open them  and it 
does 
feel good while she is doing it.  I had  physical therapy for a few months, 
that my insurance stopped paying for it  quite quickly  (Medicaid).. Is there 
any way to force Medicaid to provide  for physical therapy? 
I found  this in an encyclopedia:Even  with "complete" injuries, in some 
rare cases, through intensive  rehabilitation, slight movement can be regained 
through _"rewiring" neural connections_ 
(https://en.wikipedia.org/wiki/Synaptic_plasticity) ,  as in the case of the 
late actor _Christopher Reeve_ 
(https://en.wikipedia.org/wiki/Christopher_Reeve) ._[9]_ 
(https://en.wikipedia.org/wiki/Tetraplegia#cite_note-9)  
Debra Scruggs-Scruggs  phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9 
 
 
Formerly: Homeschooling  mom of 9 and pvt. pilot
Currently: Quadrapeligic due to  advanced MS and living in a nursing home
Phone:  561-588-4333
SC student 20yrs   
ROMANS  8:28   
 
B.I.B.L.E.-BASIC  INSTRUCTIONS BEFORE LEAVING  EARTH 





 
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RE: [QUAD-L] question about contracting muscles atrophying, etc.

[Dave Krehbiel]

Regarding contraction, while in a nursing home, I had a similar problem to a
lesser extent. In order to straighten my arms, they attached some sort of a
pillow or a brace to each arm to try to straighten each arm and to help hold
it straight. This sounds to me like a job for a physical therapist or
occupational therapist. It helped me. After using the device, I have become
a better extending and straightening my arms while in bed.



In the long-term, you might consider e-stim. If your biceps are contracted,
that means that your triceps are extending and lengthening. You can
electrically stimulate your triceps, and other muscles, to help them
contract and strengthen. If you have partial control over your triceps, this
can help you increase that control.



If you Google estim, unfortunately, you will find a number of sexually
related devices.



But here is a place you can start:
http://www.lgmedsupply.com/tensproducts.html



after the system has been selected and configured and placed on the
appropriate muscles, is relatively easy for people who are not physical
therapists to attach the pads and device.



Has anyone else tried this? How did this work for you?



Take care,



Dave Krehbiel

Olney, MD





From: DEBRA DEW [mailto:n14...@hotmail.com]
Sent: Sunday, June 11, 2017 11:01 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] question about contracting muscles atrophying, etc.



my arms and legs are contracted at about a   45° angle,, which makes sitting
in a wheelchair rather awkward with my legs..





I've seen pictures of long-term paralysis patients, aand eventually their
knees are touching their bottom and there hands are touching their chin.
Looks very uncomfortable and like a pretzel. Years ago I inquired about what
could be done  to stop the progression, and I was told they would have to
put braces on me that are very bulky and uncomfortable, so I  decided not to
do that. It's hard enough to maintain comfort now without that, on top of
it.



My life expectancy is about another 20 years, and I really do wonder what's
going to happen to my body with these contractions  of my muscles. Please
share whatever knowledge you possess about this.  And I wonder if I had
physical therapy, If it would have done anything  to make me more
comfortable.  I have one CNA that moves my arms  ggently to open them  and
it does feel good while she is doing it.  I had physical therapy for a few
months, that my insurance stopped paying for it quite quickly  (Medicaid)..
Is there any way to force Medicaid to provide for physical therapy?





I found this in an encyclopedia:Even with "complete" injuries, in some rare
cases, through intensive rehabilitation, slight movement can be regained
through   "rewiring"
neural connections, as in the case of the late actor
 Christopher Reeve.
 [9]







Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9

Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs
ROMANS 8:28

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH



---
This email has been checked for viruses by Avast antivirus software.
https://www.avast.com/antivirus

RE: [QUAD-L] Question about headset for Dragon NaturallySpeaking and listening to videos

[Dave Krehbiel]

I have had pretty good luck using Google home and Chromecast (plugged into
an HDMI port of a TV). I can access video playlists. I would like to find a
way to set up my own playlists using my PC and access them via voice. I've
also used this technology to connect Netflix. The search function using
Google home is not as powerful or precise as www.google.com

 

One big advantage of watching videos using Google Home and Chromecast is
that you can use your voice to pause and rewind videos. after it is set up
(which requires a smart phone or tablet) you don't need a PC or microphone
or headset. You need a Google account, WiFI access, Google Chromecast ($25),
Google Home ($114), access to a TV or monitor with an HDMI port, and someone
to configure it using a tablet or smartphone. One advantage is, since the
video is not running on the computer, it doesn't seem to interfere us much
with running Dragon NaturallySpeaking at the same time.

 

I had been using an external "shotgun" microphone on a microphone stand,
attached to a very large and heavy duty rolling cart I use as a rolling
computer table for my all in one computer. I was using the computers
speakers, and that worked okay. I did not need to wear a headset, and I was
not connected by any wires to the computer mouse up in the chair, but it was
difficult to watch YouTube videos because the sound from the computer
speakers was picked up by my microphone.

 

recently my microphone stand broke, and so I have begun using the internal
microphone on my computer. After some retraining with Dragon
NaturallySpeaking, it works pretty well for applications without audio. If I
want to watch YouTube videos on the computer, or go to websites with audio,
or make phone calls using Skype, I can ask someone to plug in and put on an
audio headset. if I am surfing the web, I will often plug in the headset
even though I am not wearing it, so that Dragon does not get confused if I
end up in a website with audio text.

 

I'm at home, and not a nursing home, and I have my own private TV. If I were
in a nursing home, I would probably buy another microphone stand and attach
it to my rolling table, since this is much easier for aides to understand
and position. The microphone worked best when it was positioned about 1 inch
away from my mouth. You will need a heavy-duty table, a microphone stand, a
set of wired headsets, and a shotgun microphone.

 

My biggest headache with these various options is voicemail. It is very easy
to use Skype to make phone calls, but I find it very difficult to navigate
voicemail. I think the solution is to set up a Dragon macro which will
initiate a call and then bring up the Skype keypad to navigate voicemail by
voice.

 

Good luck, and take care,

 

Dave Krehbiel

C4/5 quad since 8/2007

Olney, MD

 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: Monday, May 8, 2017 7:37 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Question about headset for Dragon NaturallySpeaking and
listening to videos

 

My headset and microphone I use for Dragon NaturallySpeaking is giving me
difficulties because a nurse moved it earlier today and I told her not to
(98% of the people in nursing homes are mentally demented, and I am treated
like one of them sometimes)  because it is so difficult to get it put back
on to my ears in a position where I can hear the sound. It is now 6 hours
later and I've had 3 people try to adjust them without hitting the sweet
spot. It is a game of chance just to hit the right spot and I'm tired of
playing it. It is especially aggravating to me because I study something
using YouTube videos and obviously I cannot hear them without my headset
being positioned properly. It would be all right if I could use my arms to
position them myself and not be dependent on other people to help me; as it
is, I am in a nursing home in Florida and they are chronically understaffed
and caring for a quadriplegic is really overextending what they have time to
do. I had no difficulties when I just had paralyzed legs but when my arms
became paralyzed and I needed someone to do everything I was doing with my
hands, private nursing care is really required, and unless one of my
children marries a billionaire I don't suppose I'll be receiving private
care in this lifetime, unless I could move to another state. Florida is the
worst place to get crippled in because they spend the least money on
handicap people.

 

Anyway back to the problem at hand. I am using a


Sennheiser PC 8 USB - Stereo USB Headset for PC and MAC with In-line Volume
and Mute Control


headset currently and it is lightweight and doesn't cause any pain when I
must wear it 24 7 which my original headset did, And actually put blisters
on my ears. The problem is I have it positioned exactly, or I cannot hear
with it. I was wondering if anyone else is using something that they can
hear with whenever it is put back on their head without a lot of adjusting
and moving around. Please tell me if you 

Re: [QUAD-L] Question for everyone!

[Ed Tessier]

>
> ** Name *
> *Ed Tessier*
>


>
> ** Age*
> * 48*
>


> ** Date of injury*
> *August 1984, age 16*
>


> ** Town and state where you are from (unless you would just like to state
> the state you are living in).*
> *Pomona/Claremont California*
>


> ** Are you a quad or a para? If you are a quad ... what level of injury
> are you? *
> *Quad, C-5  – 6*
> ** Complete or incomplete injury? *
>
started incomplete but a transfer accident at the hospital delivered a
second  SCI, complete ever since

  was very active in ADAPT and work for years on ADA legislation and
enforcement

>
> *And any other information you would like to offer. Thanks a bunch in
> advance!*
>

Married 15 years, four  sons ages 5 to 12

Real estate developer, mostly save historic buildings and turn them into
art and food clusters

Started two independent charter schools, we now have 800 students

Love science fiction, hate that anybody with a disability dies off the
moment the since

>
> Best to you all!
>
>
>


Regards,

Ed Tessier - Mobile: (909) 994-5900

Jeved Management, Inc.
 | 281 S. Thomas St. Ste. #505 Ph  909-623-0535 | Fax  909-623-2082 | 
www.jeved.com

Re: [QUAD-L] Question for everyone! Update on Nancy

[Lori Michaelson]

Hey Ron - they refuse to give me a round of antibiotics until another urine
specimen is done. People are just not doing their job and/or getting the
runaround. When you become a seasoned quad for 36 1/2 years... you get to
know things as you yourself know.

I would go to my "new" primary care physician or call her but she does not
know me very well at all since I just saw her once, she is 45 minutes away
and I told her what I did see her that the only problems I have are
secondary SCI issues and that is what I contact my urologist so I can see
her/hear her doing just that. Now, of course, it is a weekend. And I never
foresaw any of this coming.

On Fri, May 6, 2016 at 7:43 PM, RONALD L PRACHT 
wrote:

> Its really troubling that a doctor cant properly organize getting a urine
> specimen back in a timely manner. I would feel like they were giving me the
> run around or not taking me seriously. Think about it...if a young
> mother brought her little daughter in to get a specimen checkeddo
> you think they would run her around? I would just go in and ask the doc to
> give me around of antibiotics then you could doctor yourself when need me.
>
> Ron
>
>
> On Friday, May 6, 2016 8:22 PM, "wheelch...@aol.com" 
> wrote:
>
>
> 'There are a couple of OTC meds for UTI's.  Call your doctor's office and
> leave a message that if he doesn't get back to you in 12-24 hours, you will
> take several OTC meds .  This way, the ball is in HIS court.
>
> Best Wishes
>
> In a message dated 5/6/2016 4:42:37 P.M. Central Daylight Time,
> quadjkin...@gmail.com writes:
>
> Nothing but competence on their part something
> terrible. Hope you all feel better soon. And God bless!!!
>
> On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson 
> wrote:
>
> I have known Nancy for a couple of decades also and if you get this
> Nancy... you are definitely in my thoughts! Because of a sore I spent that
> many months in bed and then a total of, statistically speaking, 3 years in
> bed by only being able to get up 3 to 5 hours a day because it was a Stage
> III wound and any pressure or bumps or any type of "internal shearing"
> would open it back up.
>
> I thank everyone else who has responded to my inquiry! starting this past
> Monday I began to be UTIs symptomatic and the pain has gotten worse. My
> doctors office keeps claiming they can't get the results from the
> laboratory or the home health agency who took the urine specimen over 3
> weeks ago! I have been calling them every single week but they keep saying
> they can't find the results. My home health agency nurse who got the
> results finally had to call my doctor's office yesterday but now I need to
> wait for my doctors office to call me to get on an antibiotic of some type
> because my bladder pain and my flank pain is so very bad. No fever but I do
> not want it to get to that stage [systemic] which he could easily do if not
> treated. And here we are going into a weekend!
>
> Incompetence is running rampant in this country.
>
> ~Lori
> C4/5 complete quad, 36 1/2 years post
> Tucson Arizona
>
> On Fri, May 6, 2016 at 5:54 AM,  wrote:
>
> Thanks for the update on Nancy.  I've known her since the early 90's when
> we would chat in AOL disAbility Chats.
>
> Best Wishes
>
> In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time,
> daano...@gmail.com writes:
>
>
> [image: https://www.facebook.com/nancy.davisgillen]
> 
> Nancy Davis Gillen  8:06am
> May 5
> I'm feeling much better, but im going on 7 months in bed because of a
> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
> me in your thoughts.
>
> View Conversation on Facebook
> 
> This message was sent to daanoo2...@yahoo.com. If you don't want to
> receive these emails from Facebook in the future, please unsubscribe
> 
> .
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
> from my iPhone
>
> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
> wrote:
>
> Greetings my quad list friends and friends [since 1995 for me],
>
> Sometimes after so much time goes by and either we are kept busy doing
> happy things or are stuck in bed with a wound... we often lose track of
> each other and exactly who is who and what is about that person.
>
> I know we have lost one of the most wonderful contributors here [Dave
> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told
> us of his wishes. This was back in 2009.
>
> Having said that, here is what I would like from each one of you to
> 

Re: [QUAD-L] Question for everyone! Update on Nancy

[RONALD L PRACHT]

Its really troubling that a doctor cant properly organize getting a urine 
specimen back in a timely manner. I would feel like they were giving me the run 
around or not taking me seriously. Think about it...if a young mother 
brought her little daughter in to get a specimen checkeddo you think 
they would run her around? I would just go in and ask the doc to give me around 
of antibiotics then you could doctor yourself when need me.
Ron  

On Friday, May 6, 2016 8:22 PM, "wheelch...@aol.com"  
wrote:
 

 'There are a couple of OTC meds for UTI's.  Call your doctor's office and 
leave a message that if he doesn't get back to you in 12-24 hours, you will 
take several OTC meds .  This way, the ball is in HIS court. Best Wishes In a 
message dated 5/6/2016 4:42:37 P.M. Central Daylight Time, 
quadjkin...@gmail.com writes:
 Nothing but competence on their part something 
terrible. Hope you all feel better soon. And God bless!!!  
 On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson  wrote:
 
  I have known Nancy for a couple of decades also and if you get this Nancy... 
you are definitely in my thoughts! Because of a sore I spent that many months 
in bed and then a total of, statistically speaking, 3 years in bed by only 
being able to get up 3 to 5 hours a day because it was a Stage III wound and 
any pressure or bumps or any type of "internal shearing" would open it back up. 
 I thank everyone else who has responded to my inquiry! starting this past 
Monday I began to be UTIs symptomatic and the pain has gotten worse. My doctors 
office keeps claiming they can't get the results from the laboratory or the 
home health agency who took the urine specimen over 3 weeks ago! I have been 
calling them every single week but they keep saying they can't find the 
results. My home health agency nurse who got the results finally had to call my 
doctor's office yesterday but now I need to wait for my doctors office to call 
me to get on an antibiotic of some type because my bladder pain and my flank 
pain is so very bad. No fever but I do not want it to get to that stage 
[systemic] which he could easily do if not treated. And here we are going into 
a weekend! 
 Incompetence is running rampant in this country. 
 ~Lori C4/5 complete quad, 36 1/2 years post Tucson Arizona   
 On Fri, May 6, 2016 at 5:54 AM,  wrote:
 
  Thanks for the update on Nancy.  I've known her since the early 90's when we 
would chat in AOL disAbility Chats.   Best Wishes    In a message dated 
5/5/2016 10:29:40 P.M. Central Daylight Time, daano...@gmail.com writes: 
 
 
|  
|  
|   
|  |  
| Nancy Davis Gillen | 8:06am May 5  |

 I'm feeling much better, but im going on 7 months in bed because of a sore. 
I'm going crazy! Please pass on to the quad list. Thanks for keeping me in your 
thoughts.  |

 |


 |
| View Conversation on Facebook
This message was sent to daanoo2...@yahoo.com. If you don't want to receive 
these emails from Facebook in the future, please unsubscribe.
Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025 |

 |

Sent from my iPhone   
On Apr 30, 2016, at 4:33 PM, Lori Michaelson  wrote:

 
   Greetings my quad list friends and friends [since 1995 for me], 
 Sometimes after so much time goes by and either we are kept busy doing happy 
things or are stuck in bed with a wound... we often lose track of each other 
and exactly who is who and what is about that person. 
 I know we have lost one of the most wonderful contributors here [Dave Kelmer] 
and I believe that Bill Jenkins (in Florida) was the one who told us of his 
wishes. This was back in 2009. 
 Having said that, here is what I would like from each one of you to refresh my 
old lady mind.  I feel like I have aged a lifetime over the last 4 years after 
losing my husband and unable to live with family any longer. 
 * Name  
 * Age
 
 * Date of injury 
 * Town and state where you are from (unless you would just like to state the 
state you are living in). 
 * Are you a quad or a para? If you are a quad ... what level of injury are 
you?  
 * Complete or incomplete injury?  
 And any other information you would like to offer. Thanks a bunch in advance! 
 Best to you all! 
 Lori Michaelson - age 51. How did that happen?!?!!! C4/5 complete quad, 36 1/2 
years post. Unable to drive. 
 I can feed myself if prepared and placed in front of me. Food needs to be cut 
up if necessary. 
 Grew up in a small town in New York State and lived there for 36 years but 
after meeting my husband he got transferred a couple times which first took us 
to Virginia and then to Tucson Arizona. I was devastated with his unexpected 
passing at only 63 years old on June 11, 2012 and over 90% of me went with him. 
Went to live with sister and brother-in-law in northeastern Pennsylvania for 3 
years but, despite hiring morning and evening caregivers ... my sister 

Re: [QUAD-L] Question for everyone! Update on Nancy

[wheelchair]

'There are a couple of OTC meds for UTI's.  Call your doctor's office  and 
leave a message that if he doesn't get back to you in 12-24 hours, you will  
take several OTC meds .  This way, the ball is in HIS court.
 
Best Wishes
 
 
In a message dated 5/6/2016 4:42:37 P.M. Central Daylight Time,  
quadjkin...@gmail.com writes:

Nothing but competence on their part  something 
terrible. Hope you all feel better soon. And God  bless!!! 

On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson <_lorilivingon@gmail.com_ 
(mailto:lorilivin...@gmail.com) > wrote:


I have known Nancy for a  couple of decades also and if you get this 
Nancy... you are definitely in my  thoughts! Because of a sore I spent that 
many 
months in bed and then a total  of, statistically speaking, 3 years in bed by 
only being able to get up 3 to  5 hours a day because it was a Stage III 
wound and any pressure or bumps or  any type of "internal shearing" would open 
it back up.


I thank everyone else who  has responded to my inquiry! starting this past 
Monday I began to be UTIs  symptomatic and the pain has gotten worse. My 
doctors office keeps claiming  they can't get the results from the laboratory 
or the home health agency who  took the urine specimen over 3 weeks ago! I 
have been calling them every  single week but they keep saying they can't find 
the results. My home health  agency nurse who got the results finally had 
to call my doctor's office  yesterday but now I need to wait for my doctors 
office to call me to get on  an antibiotic of some type because my bladder 
pain and my flank pain is so  very bad. No fever but I do not want it to get 
to that stage [systemic]  which he could easily do if not treated. And here 
we are going into a  weekend!


Incompetence is running  rampant in this country.


~Lori
C4/5 complete quad, 36 1/2  years post
Tucson Arizona

 
 

On Fri, May 6, 2016 at 5:54 AM, <_wheelchair@aol.com_ 
(mailto:wheelch...@aol.com) > wrote:


Thanks for the update on Nancy.  I've known her since the early  90's when 
we would chat in AOL disAbility Chats.
 
Best Wishes
 
 
In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time, 
_daanoo53@gmail.com_ (mailto:daano...@gmail.com)  writes:


(https://www.facebook.com/nancy.davisgillen)  _Nancy Davis  Gillen_ 
(https://www.facebook.com/nancy.davisgillen)  8:06am May  5  
I'm feeling  much better, but im going on 7 months in bed  because of a 
sore. I'm going crazy! Please pass  on to the quad list. Thanks for keeping me 
in  your thoughts.



_View Conversation on Facebook_ 
(https://www.facebook.com/n/?messages/=read=10356803640=email=53218248e42d4G3127d423G0G0G7c090
b17=1.1462455392.AbmMgfHXUzxks3eU_m=daanoo2...@yahoo.com) 
This  message was sent to _daanoo2003@yahoo.com_ 
(mailto:daanoo2...@yahoo.com) . If you don't want to  receive these emails from 
Facebook in the 
future,  please _unsubscribe_ 
(https://www.facebook.com/o.php?k=AS3JH33Dz_PpGGkF=824693795=53218248e42d4G3127d423G0G0G7c090b17)
 .
Facebook, Inc., Attention:  Community Support, Menlo Park, CA  94025Sent  
from my iPhone
 
 

On Apr 30, 2016, at 4:33 PM, Lori Michaelson <_lorilivingon@gmail.com_ 
(mailto:lorilivin...@gmail.com) > wrote:




 
Greetings my quad  list friends and friends [since 1995 for me],


Sometimes after so  much time goes by and either we are kept busy doing 
happy things or  are stuck in bed with a wound... we often lose track of each 
other and  exactly who is who and what is about that person.


I know we have lost  one of the most wonderful contributors here [Dave 
Kelmer] and I  believe that Bill Jenkins (in Florida) was the one who told us 
of 
his  wishes. This was back in 2009.


Having said that,  here is what I would like from each one of you to 
refresh my old lady  mind.  I feel like I have aged a lifetime over the last 4 
years  after losing my husband and unable to live with family any  longer.


* Name 


* Age



* Date of injury


* Town and state where you are from (unless you would  just like to state 
the state you are living in).


* Are you a quad or a para? If you are a quad ...  what level of injury are 
you? 


* Complete or incomplete  injury? 


And any other information you would like to offer.  Thanks a bunch in 
advance!


Best to you  all!


Lori Michaelson -  age 51. How did that happen?!?!!!
C4/5 complete quad,  36 1/2 years post. Unable to drive.


I can feed myself if  prepared and placed in front of me. Food needs to be 
cut up if  necessary.


Grew up in a small  town in New York State and lived there for 36 years but 
after meeting  my husband he got transferred a couple times which first 
took us to  Virginia and then to Tucson Arizona.
I was devastated  with his unexpected passing at only 63 years old on June 
11, 2012 and  over 90% of me went with him.
Went to live with  sister and brother-in-law in northeastern Pennsylvania 
for 3 years  but, despite hiring morning and evening caregivers 

Re: [QUAD-L] Question for everyone! Update on Nancy

[Johnny Cammon]

Nothing but competence on their part something
terrible. Hope you all feel better soon. And God bless!!!

On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson 
wrote:

> I have known Nancy for a couple of decades also and if you get this
> Nancy... you are definitely in my thoughts! Because of a sore I spent that
> many months in bed and then a total of, statistically speaking, 3 years in
> bed by only being able to get up 3 to 5 hours a day because it was a Stage
> III wound and any pressure or bumps or any type of "internal shearing"
> would open it back up.
>
> I thank everyone else who has responded to my inquiry! starting this past
> Monday I began to be UTIs symptomatic and the pain has gotten worse. My
> doctors office keeps claiming they can't get the results from the
> laboratory or the home health agency who took the urine specimen over 3
> weeks ago! I have been calling them every single week but they keep saying
> they can't find the results. My home health agency nurse who got the
> results finally had to call my doctor's office yesterday but now I need to
> wait for my doctors office to call me to get on an antibiotic of some type
> because my bladder pain and my flank pain is so very bad. No fever but I do
> not want it to get to that stage [systemic] which he could easily do if not
> treated. And here we are going into a weekend!
>
> Incompetence is running rampant in this country.
>
> ~Lori
> C4/5 complete quad, 36 1/2 years post
> Tucson Arizona
>
> On Fri, May 6, 2016 at 5:54 AM,  wrote:
>
>> Thanks for the update on Nancy.  I've known her since the early 90's when
>> we would chat in AOL disAbility Chats.
>>
>> Best Wishes
>>
>> In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time,
>> daano...@gmail.com writes:
>>
>>
>> [image: https://www.facebook.com/nancy.davisgillen]
>> 
>> Nancy Davis Gillen  8:06am
>> May 5
>> I'm feeling much better, but im going on 7 months in bed because of a
>> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
>> me in your thoughts.
>>
>> View Conversation on Facebook
>> 
>> This message was sent to daanoo2...@yahoo.com. If you don't want to
>> receive these emails from Facebook in the future, please unsubscribe
>> 
>> .
>> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
>> from my iPhone
>>
>> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
>> wrote:
>>
>> Greetings my quad list friends and friends [since 1995 for me],
>>
>> Sometimes after so much time goes by and either we are kept busy doing
>> happy things or are stuck in bed with a wound... we often lose track of
>> each other and exactly who is who and what is about that person.
>>
>> I know we have lost one of the most wonderful contributors here [Dave
>> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told
>> us of his wishes. This was back in 2009.
>>
>> Having said that, here is what I would like from each one of you to
>> refresh my old lady mind.  I feel like I have aged a lifetime over the last
>> 4 years after losing my husband and unable to live with family any longer.
>>
>> ** Name *
>>
>>
>> ** Age*
>>
>> ** Date of injury*
>>
>> ** Town and state where you are from (unless you would just like to state
>> the state you are living in).*
>>
>> ** Are you a quad or a para? If you are a quad ... what level of injury
>> are you? *
>>
>> ** Complete or incomplete injury? *
>>
>> *And any other information you would like to offer. Thanks a bunch in
>> advance!*
>>
>> Best to you all!
>>
>> Lori Michaelson - age 51. How did that happen?!?!!!
>> C4/5 complete quad, 36 1/2 years post. Unable to drive.
>>
>> I can feed myself if prepared and placed in front of me. Food needs to be
>> cut up if necessary.
>>
>> Grew up in a small town in New York State and lived there for 36 years
>> but after meeting my husband he got transferred a couple times which first
>> took us to Virginia and then to Tucson Arizona.
>> I was devastated with his unexpected passing at only 63 years old on June
>> 11, 2012 and over 90% of me went with him.
>> Went to live with sister and brother-in-law in northeastern Pennsylvania
>> for 3 years but, despite hiring morning and evening caregivers ... my
>> sister and brother-in-law wanted me to move on for a myriad of reasons but
>> primarily because my sister began having venous stasis and my
>> brother-in-law wanted his house back without people coming and going.
>>
>> Needless to say I am very disappointed in them because they very well
>> could have taken me on longer. I had 

Re: [QUAD-L] Question for everyone! Update on Nancy

[Lori Michaelson]

I have known Nancy for a couple of decades also and if you get this
Nancy... you are definitely in my thoughts! Because of a sore I spent that
many months in bed and then a total of, statistically speaking, 3 years in
bed by only being able to get up 3 to 5 hours a day because it was a Stage
III wound and any pressure or bumps or any type of "internal shearing"
would open it back up.

I thank everyone else who has responded to my inquiry! starting this past
Monday I began to be UTIs symptomatic and the pain has gotten worse. My
doctors office keeps claiming they can't get the results from the
laboratory or the home health agency who took the urine specimen over 3
weeks ago! I have been calling them every single week but they keep saying
they can't find the results. My home health agency nurse who got the
results finally had to call my doctor's office yesterday but now I need to
wait for my doctors office to call me to get on an antibiotic of some type
because my bladder pain and my flank pain is so very bad. No fever but I do
not want it to get to that stage [systemic] which he could easily do if not
treated. And here we are going into a weekend!

Incompetence is running rampant in this country.

~Lori
C4/5 complete quad, 36 1/2 years post
Tucson Arizona

On Fri, May 6, 2016 at 5:54 AM,  wrote:

> Thanks for the update on Nancy.  I've known her since the early 90's when
> we would chat in AOL disAbility Chats.
>
> Best Wishes
>
> In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time,
> daano...@gmail.com writes:
>
>
> [image: https://www.facebook.com/nancy.davisgillen]
> 
> Nancy Davis Gillen  8:06am
> May 5
> I'm feeling much better, but im going on 7 months in bed because of a
> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
> me in your thoughts.
>
> View Conversation on Facebook
> 
> This message was sent to daanoo2...@yahoo.com. If you don't want to
> receive these emails from Facebook in the future, please unsubscribe
> 
> .
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
> from my iPhone
>
> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
> wrote:
>
> Greetings my quad list friends and friends [since 1995 for me],
>
> Sometimes after so much time goes by and either we are kept busy doing
> happy things or are stuck in bed with a wound... we often lose track of
> each other and exactly who is who and what is about that person.
>
> I know we have lost one of the most wonderful contributors here [Dave
> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told
> us of his wishes. This was back in 2009.
>
> Having said that, here is what I would like from each one of you to
> refresh my old lady mind.  I feel like I have aged a lifetime over the last
> 4 years after losing my husband and unable to live with family any longer.
>
> ** Name *
>
>
> ** Age*
>
> ** Date of injury*
>
> ** Town and state where you are from (unless you would just like to state
> the state you are living in).*
>
> ** Are you a quad or a para? If you are a quad ... what level of injury
> are you? *
>
> ** Complete or incomplete injury? *
>
> *And any other information you would like to offer. Thanks a bunch in
> advance!*
>
> Best to you all!
>
> Lori Michaelson - age 51. How did that happen?!?!!!
> C4/5 complete quad, 36 1/2 years post. Unable to drive.
>
> I can feed myself if prepared and placed in front of me. Food needs to be
> cut up if necessary.
>
> Grew up in a small town in New York State and lived there for 36 years but
> after meeting my husband he got transferred a couple times which first took
> us to Virginia and then to Tucson Arizona.
> I was devastated with his unexpected passing at only 63 years old on June
> 11, 2012 and over 90% of me went with him.
> Went to live with sister and brother-in-law in northeastern Pennsylvania
> for 3 years but, despite hiring morning and evening caregivers ... my
> sister and brother-in-law wanted me to move on for a myriad of reasons but
> primarily because my sister began having venous stasis and my
> brother-in-law wanted his house back without people coming and going.
>
> Needless to say I am very disappointed in them because they very well
> could have taken me on longer. I had I known it was only going to be for 3
> years (even though was an emergency situation as I had nowhere to go) I
> wish I had found a live-in caregiver in Tucson where my husband and I have
> been living for 11 years.
>
> Landed back in Tucson Arizona with a live-in caregiver in January 2016.
>
> My story is a long one but I will stop there.
>

Re: [QUAD-L] Question for everyone! Update on Nancy

[Johnny Cammon]

Johnny Cammon, 41 years old date of injury May 24, 1991 quadriplegic
C45/from a gunshot wound

On Thu, May 5, 2016 at 11:23 PM,  wrote:

> Dana Wray 62 years old, date of injury July 26, 1974, C4-5 come plate I
> have a tracheostomy that requires suctioning throughout my days and
> currently has been going through chemotherapy after colon cancer and
> frequent UTIs. I have been in ER twice this week. The first antibiotic gave
> me diarrhea and now they have me on a different one. I had to get Bloodwork
> and and cultures for my Elio conduit . There was some little spot and my
> long for the second time that they don't know what it means.
>
> Sent from my iPhone
>
> On May 5, 2016, at 10:29 PM, daano...@gmail.com wrote:
>
>
> [image: Nancy Davis Gillen] 
> Nancy Davis Gillen  8:06am
> May 5
> I'm feeling much better, but im going on 7 months in bed because of a
> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
> me in your thoughts.
>
> View Conversation on Facebook
> 
> This message was sent to daanoo2...@yahoo.com. If you don't want to
> receive these emails from Facebook in the future, please unsubscribe
> 
> .
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
> from my iPhone
>
> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
> wrote:
>
> Greetings my quad list friends and friends [since 1995 for me],
>
> Sometimes after so much time goes by and either we are kept busy doing
> happy things or are stuck in bed with a wound... we often lose track of
> each other and exactly who is who and what is about that person.
>
> I know we have lost one of the most wonderful contributors here [Dave
> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told
> us of his wishes. This was back in 2009.
>
> Having said that, here is what I would like from each one of you to
> refresh my old lady mind.  I feel like I have aged a lifetime over the last
> 4 years after losing my husband and unable to live with family any longer.
>
> ** Name *
>
>
> ** Age*
>
> ** Date of injury*
>
> ** Town and state where you are from (unless you would just like to state
> the state you are living in).*
>
> ** Are you a quad or a para? If you are a quad ... what level of injury
> are you? *
>
> ** Complete or incomplete injury? *
>
> *And any other information you would like to offer. Thanks a bunch in
> advance!*
>
> Best to you all!
>
> Lori Michaelson - age 51. How did that happen?!?!!!
> C4/5 complete quad, 36 1/2 years post. Unable to drive.
>
> I can feed myself if prepared and placed in front of me. Food needs to be
> cut up if necessary.
>
> Grew up in a small town in New York State and lived there for 36 years but
> after meeting my husband he got transferred a couple times which first took
> us to Virginia and then to Tucson Arizona.
> I was devastated with his unexpected passing at only 63 years old on June
> 11, 2012 and over 90% of me went with him.
> Went to live with sister and brother-in-law in northeastern Pennsylvania
> for 3 years but, despite hiring morning and evening caregivers ... my
> sister and brother-in-law wanted me to move on for a myriad of reasons but
> primarily because my sister began having venous stasis and my
> brother-in-law wanted his house back without people coming and going.
>
> Needless to say I am very disappointed in them because they very well
> could have taken me on longer. I had I known it was only going to be for 3
> years (even though was an emergency situation as I had nowhere to go) I
> wish I had found a live-in caregiver in Tucson where my husband and I have
> been living for 11 years.
>
> Landed back in Tucson Arizona with a live-in caregiver in January 2016.
>
> My story is a long one but I will stop there.
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>
>

Re: [QUAD-L] Question for everyone! Update on Nancy

[daanoo53]

Dana Wray 62 years old, date of injury July 26, 1974, C4-5 come plate I have a 
tracheostomy that requires suctioning throughout my days and currently has been 
going through chemotherapy after colon cancer and frequent UTIs. I have been in 
ER twice this week. The first antibiotic gave me diarrhea and now they have me 
on a different one. I had to get Bloodwork and and cultures for my Elio conduit 
. There was some little spot and my long for the second time that they don't 
know what it means.

Sent from my iPhone

> On May 5, 2016, at 10:29 PM, daano...@gmail.com wrote:
> 
> 
>   
> Nancy Davis Gillen8:06am May 5 
> I'm feeling much better, but im going on 7 months in bed because of a sore. 
> I'm going crazy! Please pass on to the quad list. Thanks for keeping me in 
> your thoughts.
> 
> View Conversation on Facebook
> This message was sent to daanoo2...@yahoo.com. If you don't want to receive 
> these emails from Facebook in the future, please unsubscribe.
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025
> Sent from my iPhone
> 
>> On Apr 30, 2016, at 4:33 PM, Lori Michaelson  wrote:
>> 
>> Greetings my quad list friends and friends [since 1995 for me],
>> 
>> Sometimes after so much time goes by and either we are kept busy doing happy 
>> things or are stuck in bed with a wound... we often lose track of each other 
>> and exactly who is who and what is about that person.
>> 
>> I know we have lost one of the most wonderful contributors here [Dave 
>> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told us 
>> of his wishes. This was back in 2009.
>> 
>> Having said that, here is what I would like from each one of you to refresh 
>> my old lady mind.  I feel like I have aged a lifetime over the last 4 years 
>> after losing my husband and unable to live with family any longer.
>> 
>> * Name 
>> 
>> * Age
>> 
>> * Date of injury
>> 
>> * Town and state where you are from (unless you would just like to state the 
>> state you are living in).
>> 
>> * Are you a quad or a para? If you are a quad ... what level of injury are 
>> you? 
>> 
>> * Complete or incomplete injury? 
>> 
>> And any other information you would like to offer. Thanks a bunch in advance!
>> 
>> Best to you all!
>> 
>> Lori Michaelson - age 51. How did that happen?!?!!!
>> C4/5 complete quad, 36 1/2 years post. Unable to drive.
>> 
>> I can feed myself if prepared and placed in front of me. Food needs to be 
>> cut up if necessary.
>> 
>> Grew up in a small town in New York State and lived there for 36 years but 
>> after meeting my husband he got transferred a couple times which first took 
>> us to Virginia and then to Tucson Arizona.
>> I was devastated with his unexpected passing at only 63 years old on June 
>> 11, 2012 and over 90% of me went with him.
>> Went to live with sister and brother-in-law in northeastern Pennsylvania for 
>> 3 years but, despite hiring morning and evening caregivers ... my sister and 
>> brother-in-law wanted me to move on for a myriad of reasons but primarily 
>> because my sister began having venous stasis and my brother-in-law wanted 
>> his house back without people coming and going. 
>> 
>> Needless to say I am very disappointed in them because they very well could 
>> have taken me on longer. I had I known it was only going to be for 3 years 
>> (even though was an emergency situation as I had nowhere to go) I wish I had 
>> found a live-in caregiver in Tucson where my husband and I have been living 
>> for 11 years.
>> 
>> Landed back in Tucson Arizona with a live-in caregiver in January 2016.
>> 
>> My story is a long one but I will stop there.
>> 
>> -- 
>> "Petting, scratching and cuddling a dog could be soothing to the mind and 
>> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
>> Koontz

Re: [QUAD-L] Question for everyone! Update on Nancy

[daanoo53]

Nancy Davis Gillen  8:06am May 5 
I'm feeling much better, but im going on 7 months in bed because of a sore. I'm 
going crazy! Please pass on to the quad list. Thanks for keeping me in your 
thoughts.

View Conversation on Facebook
This message was sent to daanoo2...@yahoo.com. If you don't want to receive 
these emails from Facebook in the future, please unsubscribe.
Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025
Sent from my iPhone

> On Apr 30, 2016, at 4:33 PM, Lori Michaelson  wrote:
> 
> Greetings my quad list friends and friends [since 1995 for me],
> 
> Sometimes after so much time goes by and either we are kept busy doing happy 
> things or are stuck in bed with a wound... we often lose track of each other 
> and exactly who is who and what is about that person.
> 
> I know we have lost one of the most wonderful contributors here [Dave Kelmer] 
> and I believe that Bill Jenkins (in Florida) was the one who told us of his 
> wishes. This was back in 2009.
> 
> Having said that, here is what I would like from each one of you to refresh 
> my old lady mind.  I feel like I have aged a lifetime over the last 4 years 
> after losing my husband and unable to live with family any longer.
> 
> * Name 
> 
> * Age
> 
> * Date of injury
> 
> * Town and state where you are from (unless you would just like to state the 
> state you are living in).
> 
> * Are you a quad or a para? If you are a quad ... what level of injury are 
> you? 
> 
> * Complete or incomplete injury? 
> 
> And any other information you would like to offer. Thanks a bunch in advance!
> 
> Best to you all!
> 
> Lori Michaelson - age 51. How did that happen?!?!!!
> C4/5 complete quad, 36 1/2 years post. Unable to drive.
> 
> I can feed myself if prepared and placed in front of me. Food needs to be cut 
> up if necessary.
> 
> Grew up in a small town in New York State and lived there for 36 years but 
> after meeting my husband he got transferred a couple times which first took 
> us to Virginia and then to Tucson Arizona.
> I was devastated with his unexpected passing at only 63 years old on June 11, 
> 2012 and over 90% of me went with him.
> Went to live with sister and brother-in-law in northeastern Pennsylvania for 
> 3 years but, despite hiring morning and evening caregivers ... my sister and 
> brother-in-law wanted me to move on for a myriad of reasons but primarily 
> because my sister began having venous stasis and my brother-in-law wanted his 
> house back without people coming and going. 
> 
> Needless to say I am very disappointed in them because they very well could 
> have taken me on longer. I had I known it was only going to be for 3 years 
> (even though was an emergency situation as I had nowhere to go) I wish I had 
> found a live-in caregiver in Tucson where my husband and I have been living 
> for 11 years.
> 
> Landed back in Tucson Arizona with a live-in caregiver in January 2016.
> 
> My story is a long one but I will stop there.
> 
> -- 
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz

Re: [QUAD-L] Question

[Eric Olson]

My mom is actually allergic to some metals.  She has to wear earrings 
with gold or plastic posts.  Earrings with metal posts cause her ears to 
get red and inflamed.


On 3/18/2016 7:06 PM, Larry Willis wrote:

Hey peeps. As you know, I have been fighting a weird ailment called burning 
mouth syndrome for several months now. For the last few days it has been awful. 
It feels like my tongue and lips have been sandpapered. Anything even a bit 
spicy brings me to tears. My question -- I have been holding a metal stylus 
between my teeth in order to type. Could this metal possibly be the problem? My 
other suspect is ditropan. All thoughts welcome.

Larry Willis
Retired and proud of it





---
This email has been checked for viruses by Avast antivirus software.
https://www.avast.com/antivirus

Re: [QUAD-L] Question

[Gah17582]

Hello Larry,

Burning mouth syndrome is also caused by using  Ditropan. I find that if I 
take my Ditropan three times a day, 10 mg at a time  my mouth will do the 
same. I have spaced out the time that I take Ditropan to  every four hours but 
only take 5 mg tablets.

Something that works for me  is Xlimelts, which helps produce saliva and 
keeps the mouth  moist.

Another thing that I do is keep a small Dixie cup of peanut butter  by the 
bed and put a small bit in my mouth. The oil in the peanut butter helps  
things.

When it happens it hurts, good luck.
 
 
In a message dated 3/18/2016 7:09:45 P.M. Central Daylight Time,  
lwillis82...@gmail.com writes:

Hey  peeps. As you know, I have been fighting a weird ailment called 
burning mouth  syndrome for several months now. For the last few days it has 
been 
awful. It  feels like my tongue and lips have been sandpapered. Anything 
even a bit spicy  brings me to tears. My question -- I have been holding a 
metal stylus between  my teeth in order to type. Could this metal possibly be 
the problem? My other  suspect is ditropan. All thoughts welcome.

Larry Willis
Retired and  proud of it

Re: [QUAD-L] Question

[Danny Hearn]

Yes, Larry as wheel said try wood,teak or bamboo.Also as I suggested 
once before if you have not tried  it yetgo to a drugstore and buy a bottle 
of BIOTENE  dry mouth oral rinse, a lot of people say that really helps.   Dan 
H** 

On Friday, March 18, 2016 7:50 PM, "wheelch...@aol.com" 
 wrote:
 

 Yes.  That is why teak or bamboo is used for the mouth piece.Best Wishes In a 
message dated 3/18/2016 7:09:45 P.M. Central Daylight Time, 
lwillis82...@gmail.com writes:
Hey peeps. As you know, I have been fighting a weird ailment called burning 
mouth syndrome for several months now. For the last few days it has been awful. 
It feels like my tongue and lips have been sandpapered. Anything even a bit 
spicy brings me to tears. My question -- I have been holding a metal stylus 
between my teeth in order to type. Could this metal possibly be the problem? My 
other suspect is ditropan. All thoughts welcome.

Larry Willis
Retired and proud of it



  

Re: [QUAD-L] Question

[wheelchair]

Yes.  That is why teak or bamboo is used for the mouth piece.
Best Wishes
 
 
In a message dated 3/18/2016 7:09:45 P.M. Central Daylight Time,  
lwillis82...@gmail.com writes:

Hey  peeps. As you know, I have been fighting a weird ailment called 
burning mouth  syndrome for several months now. For the last few days it has 
been 
awful. It  feels like my tongue and lips have been sandpapered. Anything 
even a bit spicy  brings me to tears. My question -- I have been holding a 
metal stylus between  my teeth in order to type. Could this metal possibly be 
the problem? My other  suspect is ditropan. All thoughts welcome.

Larry Willis
Retired and  proud of it

Re: [QUAD-L] Question

[lindakrn]

Thanks Bob. 
lindaf 

- Original Message -

From: "Robert Vogel" <rhvsh...@me.com> 
To: "Larry Willis" <lwillis82...@gmail.com> 
Cc: "quad-list" <quad-list@eskimo.com> 
Sent: Monday, September 14, 2015 2:42:19 PM 
Subject: Re: [QUAD-L] Question 

Here is a link to my article in New Mobility on Dry Mouth, Tooth Decay and ways 
to prevent it:   
http://www.newmobility.com/2013/09/sci-medication-dry-mouth-and-tooth-decay/ 

Bob V 




On Sep 14, 2015, at 12:39 PM, Robert Vogel < rhvsh...@me.com > wrote: 

If you have dry mouth syndrome and/or constant dry mouth be sure to mention it 
to your dentist.  I developed dry mouth at night—mouth breathing— 
and within 6-months went from 50 years of perfect teeth and dental care to 
requiring 3-root canals +caps.  Very expensive!!!  If I had known I could 
have gotten on a prescription fluoride toothpaste and avoided the problem. 

Bob V 



On Sep 14, 2015, at 12:26 PM, Larry Willis < lwillis82...@gmail.com > wrote: 

Any of you guys heard of burning mouth syndrome? Experienced it? 

Larry Willis 
Retired and proud of it 

Re: [QUAD-L] Question

[wheelchair]

Thanks Bob.
 
 
Best Wishes
 
 
In a message dated 9/14/2015 2:42:29 P.M. Central Daylight Time,  
rhvsh...@me.com writes:

Here is  a link to my article in New Mobility on Dry Mouth, Tooth Decay and 
ways to  prevent it:  
http://www.newmobility.com/2013/09/sci-medication-dry-mouth-and-tooth-decay/   


Bob V

Re: [QUAD-L] Question

[Robert Vogel]

If you have dry mouth syndrome and/or constant dry mouth be sure to mention it 
to your dentist.  I developed dry mouth at night—mouth breathing—
and within 6-months went from 50 years of perfect teeth and dental care to 
requiring 3-root canals +caps.  Very expensive!!!  If I had known I could
have gotten on a prescription fluoride toothpaste and avoided the problem.

Bob V

> On Sep 14, 2015, at 12:26 PM, Larry Willis  wrote:
> 
> Any of you guys heard of burning mouth syndrome? Experienced it?
> 
> Larry Willis
> Retired and proud of it
> 

Re: [QUAD-L] Question

[Robert Vogel]

Here is a link to my article in New Mobility on Dry Mouth, Tooth Decay and ways 
to prevent it:  
http://www.newmobility.com/2013/09/sci-medication-dry-mouth-and-tooth-decay/ 


Bob V

> On Sep 14, 2015, at 12:39 PM, Robert Vogel  wrote:
> 
> If you have dry mouth syndrome and/or constant dry mouth be sure to mention 
> it to your dentist.  I developed dry mouth at night—mouth breathing—
> and within 6-months went from 50 years of perfect teeth and dental care to 
> requiring 3-root canals +caps.  Very expensive!!!  If I had known I could
> have gotten on a prescription fluoride toothpaste and avoided the problem.
> 
> Bob V
> 
>> On Sep 14, 2015, at 12:26 PM, Larry Willis  wrote:
>> 
>> Any of you guys heard of burning mouth syndrome? Experienced it?
>> 
>> Larry Willis
>> Retired and proud of it
>> 
> 

Re: [QUAD-L] Question

[Danny Hearn]

Hi Larry, I've heard of it but I have not had much trouble with that 
IssueHowever with my meds Dry mouth is a constant problem, especially at 
night have to drink water every half hour to an hour all night long. Dan H.** 


 On Monday, September 14, 2015 2:26 PM, Larry Willis 
 wrote:
   

 Any of you guys heard of burning mouth syndrome? Experienced it?

Larry Willis
Retired and proud of it



   

Re: [QUAD-L] Question

[diannal767]

we were considering a cruise to mexico, via miami. we looked at the rooms on a 
norwegian cruise line with a balcony and i saw nowhere that there was room to 
fit a wheelchair through. a regular room offered much less of course. it looked 
like once transferred. turn around, sit in one spot for grooming. we didn't 
check any further on accessible rooms when we found a round trip airline fare 
was $600.00 ea (bulk-head, coach) from cleveland to miami. round trip so we 
wouldn't have to worry about the chair on connecting flights. plus extra 
transfers as my husband is getting older and i no lighter in weight. i used an 
aisle chair to the bahamas 20 yrs ago. they insisted they had to maneuver me. 
they lost me going down the stairs.
dianna c6/7  not going.


   

Cruise ships especially the new ones, are wonderful in handicap accommodations. 
Handicapped rooms are half again the size of a regular room allowing for room 
to maneuver the wheelchair. Get a room with a balcony. The newer ships allow 
you access to a balcony so you can actually look at the flying Fish. Elevators 
are large enough for a power chair to enter and turn around to exit.





-Original Message-
From: Nan nlg52...@yahoo.com
To: Quad-list Post quad-list@eskimo.com; Larry Willis lwillis82...@gmail.com
Sent: Sun, Jun 7, 2015 10:28 pm
Subject: Re: [QUAD-L] Question


 
  
   I'd go for it in a heartbeat!!!  Have FUN!  
   
  
   
   
  
  

 
  
On Saturday, June 6, 2015 10:55 PM, Gail Holmes fgdhol...@cox.net 
wrote:
   
  
 
  
  
   

Also detailed  written   instructions attached to the chair.
 

 


 


 
 
Sent from my iPhone

 
On Jun 6, 2015, at 8:21 PM, Don Smith  scamper2...@gmail.com wrote:   
  
 


 
  
Show them how to lower the backrest and take your cushion, headrest, joystick 
and footrest and put them in overhead storage.  Tell them not to put the chair 
on it's side,the batteries may move and create issues you don't want or need.   
Also be at the boarding gate 45 minutes before boarding time, you well be first 
on and last off.  Enjoy the flight, look out the windows when you can.  
 
  
  
   
   
On Sat, Jun 6, 2015 at 5:02 PM, wheelch...@aol.com wrote: 
   

   
  
Wheelchair passengers transfer out of their chair at the boarding gate, into an 
aisle chair and transferred to their seat in the Jet.  Your chair should be 
in free wheel as it is loaded into the belly of the jet and may be set on its 
side.  Once you arrive at your destination, the aisle chair will be used 
again, from the jet to the arrival gate, where your chair should be.
   

Best Wishes   



 
In a message dated 6/6/2015 2:59:43 P.M. Central Daylight Time, 
 lwillis82...@gmail.com writes:
 
 Billy, great info, my friend. I appreciate you taking the time 
and effort to enlighten me. Very helpful! And how did you get off that plane?

-- Forwarded message --
From: William Lang III blan...@icloud.com
Date: Saturday, June 6, 2015
Subject: Re: [QUAD-L] Question
To: Larry Willis lwillis82...@gmail.com
Cc: quad-list quad-list@eskimo.com


   
Larry,

   

I am my C5 25 years post, and I been on cruises many times. I would like to 
think that the airlines have gotten better in caring for power chairs and their 
passengers. Sadly, it is an adventure in and of itself.   


   

Cruise ships especially the new ones, are wonderful in handicap accommodations. 
Handicapped rooms are half again the size of a regular room allowing for room 
to maneuver the wheelchair. Get a room with a balcony. The newer ships allow 
you access to a balcony so you can actually look at the flying Fish. Elevators 
are large enough for a power chair to enter and turn around to exit.
   


   

I recommend you Google to find instructions on how to get the most out of 
flying. Do not read posts older than two years because I don’t think they’ll be 
relevant.   


   

A caveat: I have had nightmarish experiences with airlines. Breaking chairs, 
leaving chairs at places of embarkation (I once flew from Vancouver

Re: [QUAD-L] Question

[Nan]

I'd go for it in a heartbeat!!!  Have FUN! 


 On Saturday, June 6, 2015 10:55 PM, Gail Holmes fgdhol...@cox.net wrote:
   

 Also detailed written  instructions attached to the chair. 



Sent from my iPhone
On Jun 6, 2015, at 8:21 PM, Don Smith scamper2...@gmail.com wrote:


Show them how to lower the backrest and take your cushion, headrest, joystick 
and footrest and put them in overhead storage.  Tell them not to put the chair 
on it's side,the batteries may move and create issues you don't want or need.   
Also be at the boarding gate 45 minutes before boarding time, you well be first 
on and last off.  Enjoy the flight, look out the windows when you can.

On Sat, Jun 6, 2015 at 5:02 PM, wheelch...@aol.com wrote:

Wheelchair passengers transfer out of their chair at the boarding gate, into an 
aisle chair and transferred to their seat in the Jet.  Your chair should be 
in free wheel as it is loaded into the belly of the jet and may be set on its 
side.  Once you arrive at your destination, the aisle chair will be used 
again, from the jet to the arrival gate, where your chair should be.Best Wishes 
In a message dated 6/6/2015 2:59:43 P.M. Central Daylight Time, 
lwillis82...@gmail.com writes:
Billy, great info, my friend. I appreciate you taking the time and effort to 
enlighten me. Very helpful! And how did you get off that plane?

-- Forwarded message --
From: William Lang III blan...@icloud.com
Date: Saturday, June 6, 2015
Subject: Re: [QUAD-L] Question
To: Larry Willis lwillis82...@gmail.com
Cc: quad-list quad-list@eskimo.com


 Larry, 
 I am my C5 25 years post, and I been on cruises many times. I would like to 
think that the airlines have gotten better in caring for power chairs and their 
passengers. Sadly, it is an adventure in and of itself. 
 Cruise ships especially the new ones, are wonderful in handicap 
accommodations. Handicapped rooms are half again the size of a regular room 
allowing for room to maneuver the wheelchair. Get a room with a balcony. The 
newer ships allow you access to a balcony so you can actually look at the 
flying Fish. Elevators are large enough for a power chair to enter and turn 
around to exit. 
 I recommend you Google to find instructions on how to get the most out of 
flying. Do not read posts older than two years because I don’t think they’ll be 
relevant. 
 A caveat: I have had nightmarish experiences with airlines. Breaking chairs, 
leaving chairs at places of embarkation (I once flew from Vancouver to Newark, 
first-class bulkhead seats). My wife exited the plane and was told that my 
Permobil did not make the flight! There I sat on the empty plane in a 
first-class seat while the cleaning crew was preparing the flight to England. 
On second thought, I should have just stayed on the plane. It worked out and I 
got my $13K back from Continental for my family group’s round-trip airfare by 
writing they had ruined my Alaskan vacation. Boo-hoo boo-hoo. 
 You have time. Detailed planning and understanding what to do on each leg of 
the itinerary should allay your fears and help you to enjoy the trip of a 
lifetime. 
 Bon voyage 
 
   
 On Jun 5, 2015, at 8:07 AM, Larry Willis lwillis82...@gmail.com wrote:
   The plan -- make payments for one year (till next June) then hit the high 
seas with a parrot and a bottle of rum. (And a case of Dramamine)... And the 
professor and Mary Ann.

Larry Willis Retired and proud of it 
 
Begin forwarded message:

 
 From: Gail Holmes fgdhol...@cox.net
Date: June 5, 2015 at 2:51:31 AM EDT
To: Larry Willis lwillis82...@gmail.com
Subject: Re: [QUAD-L] Question


 
 A particular time or month set? 







Sent from my iPhone

 
On Jun 3, 2015, at 3:16 PM, Larry Willis lwillis82...@gmail.com wrote:

 


 
Got a question for everyone. My sister-in-law who lives in Houston insists that 
I and family meet her in New Orleans to go on a cruise. That's a two hour 
flight with power chair, accommodations of some sort, five day cruise, and 
flight home. I have never been on a ship or a jet. I don't know what to say. 
What do you guys think? Are the difficulties too great?

 


 
Larry Willis

 
Retired and proud of it

 







   Don’t  let what you cannot do interfere with what you can do! Billy Lang 
blan...@icloud.com 










  

Re: [QUAD-L] Question

[Don Smith]

Show them how to lower the backrest and take your cushion, headrest,
joystick and footrest and put them in overhead storage.  Tell them not to
put the chair on it's side,the batteries may move and create issues you
don't want or need.   Also be at the boarding gate 45 minutes before
boarding time, you well be first on and last off.  Enjoy the flight, look
out the windows when you can.

On Sat, Jun 6, 2015 at 5:02 PM, wheelch...@aol.com wrote:

  Wheelchair passengers transfer out of their chair at the boarding gate,
 into an aisle chair and transferred to their seat in the Jet.  Your chair
 should be in free wheel as it is loaded into the belly of the jet and may
 be set on its side.  Once you arrive at your destination, the aisle chair
 will be used again, from the jet to the arrival gate, where your chair
 should be.
 Best Wishes

  In a message dated 6/6/2015 2:59:43 P.M. Central Daylight Time,
 lwillis82...@gmail.com writes:

 Billy, great info, my friend. I appreciate you taking the time and effort
 to enlighten me. Very helpful! And how did you get off that plane?

 -- Forwarded message --
 From: *William Lang III* blan...@icloud.com
 Date: Saturday, June 6, 2015
 Subject: Re: [QUAD-L] Question
 To: Larry Willis lwillis82...@gmail.com
 Cc: quad-list quad-list@eskimo.com


 Larry,

 I am my C5 25 years post, and I been on cruises many times. I would like
 to think that the airlines have gotten better in caring for power chairs
 and their passengers. Sadly, it is an adventure in and of itself.

 Cruise ships especially the new ones, are wonderful in handicap
 accommodations. Handicapped rooms are half again the size of a regular room
 allowing for room to maneuver the wheelchair. Get a room with a balcony.
 The newer ships allow you access to a balcony so you can actually look at
 the flying Fish. Elevators are large enough for a power chair to enter and
 turn around to exit.

 I recommend you Google to find instructions on how to get the most out of
 flying. Do not read posts older than two years because I don’t think
 they’ll be relevant.

 A caveat: I have had nightmarish experiences with airlines. Breaking
 chairs, leaving chairs at places of embarkation (I once flew from Vancouver
 to Newark, first-class bulkhead seats). My wife exited the plane and was
 told that my Permobil did not make the flight! There I sat on the empty
 plane in a first-class seat while the cleaning crew was preparing the
 flight to England. On second thought, I should have just stayed on the
 plane. It worked out and I got my $13K back from Continental for my family
 group’s round-trip airfare by writing they had ruined my Alaskan vacation.
 Boo-hoo boo-hoo.

 You have time. Detailed planning and understanding what to do on each leg
 of the itinerary should allay your fears and help you to enjoy the trip of
 a lifetime.

 Bon voyage


   On Jun 5, 2015, at 8:07 AM, Larry Willis lwillis82...@gmail.com wrote:

  The plan -- make payments for one year (till next June) then hit the
 high seas with a parrot and a bottle of rum. (And a case of Dramamine)...
 And the professor and Mary Ann.

 Larry Willis
 Retired and proud of it


 Begin forwarded message:

  *From:* Gail Holmes fgdhol...@cox.net
 *Date:* June 5, 2015 at 2:51:31 AM EDT
 *To:* Larry Willis lwillis82...@gmail.com
 *Subject:* *Re: [QUAD-L] Question*

  A particular time or month set?







 Sent from my iPhone

 On Jun 3, 2015, at 3:16 PM, Larry Willis lwillis82...@gmail.com wrote:


 Got a question for everyone. My sister-in-law who lives in Houston insists
 that I and family meet her in New Orleans to go on a cruise. That's a two
 hour flight with power chair, accommodations of some sort, five day cruise,
 and flight home. I have never been on a ship or a jet. I don't know what to
 say. What do you guys think? Are the difficulties too great?


 Larry Willis

 Retired and proud of it





  Don’t  let what you cannot do interfere with what you can do!
 Billy Lang
 blan...@icloud.com

Re: [QUAD-L] Question

[wheelchair]

Wheelchair passengers transfer out of their chair at the boarding gate,  
into an aisle chair and transferred to their seat in the Jet.  Your chair  
should be in free wheel as it is loaded into the belly of the jet and may be 
set  on its side.  Once you arrive at your destination, the aisle chair 
will  be used again, from the jet to the arrival gate, where your chair should 
 be.
Best Wishes
 
 
In a message dated 6/6/2015 2:59:43 P.M. Central Daylight Time,  
lwillis82...@gmail.com writes:

Billy,  great info, my friend. I appreciate you taking the time and effort 
to  enlighten me. Very helpful! And how did you get off that  plane?

-- Forwarded message --
From: William Lang  III _blang33@icloud.com_ (mailto:blan...@icloud.com) 
Date: Saturday,  June 6, 2015
Subject: Re: [QUAD-L] Question
To: Larry Willis _lwillis82153@gmail.com_ (mailto:lwillis82...@gmail.com) 
Cc:  quad-list _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 


Larry,  


I am my C5 25 years post, and I been on cruises many times. I would like  
to think that the airlines have gotten better in caring for power chairs and  
their passengers. Sadly, it is an adventure in and of itself.


Cruise ships especially the new ones, are wonderful in handicap  
accommodations. Handicapped rooms are half again the size of a regular room  
allowing 
for room to maneuver the wheelchair. Get a room with a balcony. The  newer 
ships allow you access to a balcony so you can actually look at the  flying 
Fish. Elevators are large enough for a power chair to enter and turn  around 
to exit.


I recommend you Google to find instructions on how to get the most out of  
flying. Do not read posts older than two years because I don’t think they’
ll  be relevant.


A caveat: I have had nightmarish experiences with airlines. Breaking  
chairs, leaving chairs at places of embarkation (I once flew from Vancouver to  
Newark, first-class bulkhead seats). My wife exited the plane and was told  
that my Permobil did not make the flight! There I sat on the empty plane in a 
 first-class seat while the cleaning crew was preparing the flight to 
England.  On second thought, I should have just stayed on the plane. It worked 
out and I  got my $13K back from Continental for my family group’s round-trip 
airfare by  writing they had ruined my Alaskan vacation. Boo-hoo boo-hoo.


You have time. Detailed planning and understanding what to do on each leg  
of the itinerary should allay your fears and help you to enjoy the trip of a 
 lifetime.


Bon voyage





 
On Jun 5, 2015, at 8:07 AM, Larry Willis _lwillis82153@gmail.com_ 
(javascript:_e({},'cvml','lwillis82...@gmail.com');)  wrote:


 
The plan -- make payments for one year (till next June) then hit the  high 
seas with a parrot and a bottle of rum. (And a case of Dramamine)...  And 
the professor and Mary Ann.

Larry Willis  
Retired and proud of it




Begin forwarded message:



From: Gail Holmes _fgdholmes@cox.net_ 
(javascript:_e({},'cvml','fgdhol...@cox.net');) 
Date: June 5, 2015 at  2:51:31 AM EDT
To: Larry Willis _lwillis82153@gmail.com_ 
(javascript:_e({},'cvml','lwillis82...@gmail.com');) 
Subject: Re:  [QUAD-L] Question




A particular time or month set?  







Sent  from my iPhone


On Jun 3, 2015, at 3:16 PM, Larry Willis  _lwillis82153@gmail.com_ 
(javascript:_e({},'cvml','lwillis82...@gmail.com');)   wrote:





Got a question for everyone. My  sister-in-law who lives in Houston insists 
that I and family meet her in  New Orleans to go on a cruise. That's a two 
hour flight with power  chair, accommodations of some sort, five day cruise, 
and flight home. I  have never been on a ship or a jet. I don't know what 
to say. What do  you guys think? Are the difficulties too great?





Larry Willis


Retired and proud of  it















 
Don’t  let what you cannot do interfere with what you can do!
Billy  Lang
_blang33@icloud.com_ (javascript:_e({},'cvml','blan...@icloud.com');) 

Re: [QUAD-L] Question

[Gail Holmes]

Also detailed written  instructions attached to the chair. 




Sent from my iPhone

 On Jun 6, 2015, at 8:21 PM, Don Smith scamper2...@gmail.com wrote:
 
 Show them how to lower the backrest and take your cushion, headrest, joystick 
 and footrest and put them in overhead storage.  Tell them not to put the 
 chair on it's side,the batteries may move and create issues you don't want or 
 need.   Also be at the boarding gate 45 minutes before boarding time, you 
 well be first on and last off.  Enjoy the flight, look out the windows when 
 you can.
 
 On Sat, Jun 6, 2015 at 5:02 PM, wheelch...@aol.com wrote:
 Wheelchair passengers transfer out of their chair at the boarding gate, into 
 an aisle chair and transferred to their seat in the Jet.  Your chair 
 should be in free wheel as it is loaded into the belly of the jet and may be 
 set on its side.  Once you arrive at your destination, the aisle chair 
 will be used again, from the jet to the arrival gate, where your chair 
 should be.
 Best Wishes
  
 In a message dated 6/6/2015 2:59:43 P.M. Central Daylight Time, 
 lwillis82...@gmail.com writes:
 Billy, great info, my friend. I appreciate you taking the time and effort to 
 enlighten me. Very helpful! And how did you get off that plane?
 
 -- Forwarded message --
 From: William Lang III blan...@icloud.com
 Date: Saturday, June 6, 2015
 Subject: Re: [QUAD-L] Question
 To: Larry Willis lwillis82...@gmail.com
 Cc: quad-list quad-list@eskimo.com
 
 
 Larry,
 
 I am my C5 25 years post, and I been on cruises many times. I would like to 
 think that the airlines have gotten better in caring for power chairs and 
 their passengers. Sadly, it is an adventure in and of itself.
 
 Cruise ships especially the new ones, are wonderful in handicap 
 accommodations. Handicapped rooms are half again the size of a regular room 
 allowing for room to maneuver the wheelchair. Get a room with a balcony. The 
 newer ships allow you access to a balcony so you can actually look at the 
 flying Fish. Elevators are large enough for a power chair to enter and turn 
 around to exit.
 
 I recommend you Google to find instructions on how to get the most out of 
 flying. Do not read posts older than two years because I don’t think they’ll 
 be relevant.
 
 A caveat: I have had nightmarish experiences with airlines. Breaking chairs, 
 leaving chairs at places of embarkation (I once flew from Vancouver to 
 Newark, first-class bulkhead seats). My wife exited the plane and was told 
 that my Permobil did not make the flight! There I sat on the empty plane in 
 a first-class seat while the cleaning crew was preparing the flight to 
 England. On second thought, I should have just stayed on the plane. It 
 worked out and I got my $13K back from Continental for my family group’s 
 round-trip airfare by writing they had ruined my Alaskan vacation. Boo-hoo 
 boo-hoo.
 
 You have time. Detailed planning and understanding what to do on each leg of 
 the itinerary should allay your fears and help you to enjoy the trip of a 
 lifetime.
 
 Bon voyage
 
 
 On Jun 5, 2015, at 8:07 AM, Larry Willis lwillis82...@gmail.com wrote:
 
 The plan -- make payments for one year (till next June) then hit the high 
 seas with a parrot and a bottle of rum. (And a case of Dramamine)...  
 And the professor and Mary Ann.
 
 Larry Willis
 Retired and proud of it
 
 
 Begin forwarded message:
 
 From: Gail Holmes fgdhol...@cox.net
 Date: June 5, 2015 at 2:51:31 AM EDT
 To: Larry Willis lwillis82...@gmail.com
 Subject: Re: [QUAD-L] Question
 A particular time or month set? 
 
 
 
 
 
 
 
 Sent from my iPhone
 
 On Jun 3, 2015, at 3:16 PM, Larry Willis lwillis82...@gmail.com wrote:
 Got a question for everyone. My sister-in-law who lives in Houston 
 insists that I and family meet her in New Orleans to go on a cruise. 
 That's a two hour flight with power chair, accommodations of some sort, 
 five day cruise, and flight home. I have never been on a ship or a jet. I 
 don't know what to say. What do you guys think? Are the difficulties too 
 great?
 Larry Willis
 Retired and proud of it
 
 
 
 Don’t  let what you cannot do interfere with what you can do!
 Billy Lang
 blan...@icloud.com
 

Re: [QUAD-L] Question

[William Lang III]

Larry,

I am my C5 25 years post, and I been on cruises many times. I would like to 
think that the airlines have gotten better in caring for power chairs and their 
passengers. Sadly, it is an adventure in and of itself.

Cruise ships especially the new ones, are wonderful in handicap accommodations. 
Handicapped rooms are half again the size of a regular room allowing for room 
to maneuver the wheelchair. Get a room with a balcony. The newer ships allow 
you access to a balcony so you can actually look at the flying Fish. Elevators 
are large enough for a power chair to enter and turn around to exit.

I recommend you Google to find instructions on how to get the most out of 
flying. Do not read posts older than two years because I don’t think they’ll be 
relevant.

A caveat: I have had nightmarish experiences with airlines. Breaking chairs, 
leaving chairs at places of embarkation (I once flew from Vancouver to Newark, 
first-class bulkhead seats). My wife exited the plane and was told that my 
Permobil did not make the flight! There I sat on the empty plane in a 
first-class seat while the cleaning crew was preparing the flight to England. 
On second thought, I should have just stayed on the plane. It worked out and I 
got my $13K back from Continental for my family group’s round-trip airfare by 
writing they had ruined my Alaskan vacation. Boo-hoo boo-hoo.

You have time. Detailed planning and understanding what to do on each leg of 
the itinerary should allay your fears and help you to enjoy the trip of a 
lifetime.

Bon voyage


 On Jun 5, 2015, at 8:07 AM, Larry Willis lwillis82...@gmail.com wrote:
 
 The plan -- make payments for one year (till next June) then hit the high 
 seas with a parrot and a bottle of rum. (And a case of Dramamine)... And the 
 professor and Mary Ann.
 
 Larry Willis
 Retired and proud of it
 
 
 Begin forwarded message:
 
 From: Gail Holmes fgdhol...@cox.net mailto:fgdhol...@cox.net
 Date: June 5, 2015 at 2:51:31 AM EDT
 To: Larry Willis lwillis82...@gmail.com mailto:lwillis82...@gmail.com
 Subject: Re: [QUAD-L] Question
 
 A particular time or month set? 
 
 
 
 
 
 
 
 Sent from my iPhone
 
 On Jun 3, 2015, at 3:16 PM, Larry Willis lwillis82...@gmail.com 
 mailto:lwillis82...@gmail.com wrote:
 
 Got a question for everyone. My sister-in-law who lives in Houston insists 
 that I and family meet her in New Orleans to go on a cruise. That's a two 
 hour flight with power chair, accommodations of some sort, five day cruise, 
 and flight home. I have never been on a ship or a jet. I don't know what to 
 say. What do you guys think? Are the difficulties too great?
 
 Larry Willis
 Retired and proud of it
 



Don’t  let what you cannot do interfere with what you can do!
Billy Lang
blan...@icloud.com

Re: [QUAD-L] Question

[Danny Hearn]

how did you get off the plane and get around? did your chair come or did they 
have to put you into a manual chair?? thanks, Dan* 


 On Saturday, June 6, 2015 2:28 PM, William Lang III blan...@icloud.com 
wrote:
   

 Larry,
I am my C5 25 years post, and I been on cruises many times. I would like to 
think that the airlines have gotten better in caring for power chairs and their 
passengers. Sadly, it is an adventure in and of itself.
Cruise ships especially the new ones, are wonderful in handicap accommodations. 
Handicapped rooms are half again the size of a regular room allowing for room 
to maneuver the wheelchair. Get a room with a balcony. The newer ships allow 
you access to a balcony so you can actually look at the flying Fish. Elevators 
are large enough for a power chair to enter and turn around to exit.
I recommend you Google to find instructions on how to get the most out of 
flying. Do not read posts older than two years because I don’t think they’ll be 
relevant.
A caveat: I have had nightmarish experiences with airlines. Breaking chairs, 
leaving chairs at places of embarkation (I once flew from Vancouver to Newark, 
first-class bulkhead seats). My wife exited the plane and was told that my 
Permobil did not make the flight! There I sat on the empty plane in a 
first-class seat while the cleaning crew was preparing the flight to England. 
On second thought, I should have just stayed on the plane. It worked out and I 
got my $13K back from Continental for my family group’s round-trip airfare by 
writing they had ruined my Alaskan vacation. Boo-hoo boo-hoo.
You have time. Detailed planning and understanding what to do on each leg of 
the itinerary should allay your fears and help you to enjoy the trip of a 
lifetime.
Bon voyage


On Jun 5, 2015, at 8:07 AM, Larry Willis lwillis82...@gmail.com wrote:

The plan -- make payments for one year (till next June) then hit the high seas 
with a parrot and a bottle of rum. (And a case of Dramamine)... And the 
professor and Mary Ann.

Larry WillisRetired and proud of it

Begin forwarded message:


From: Gail Holmes fgdhol...@cox.net
Date: June 5, 2015 at 2:51:31 AM EDT
To: Larry Willis lwillis82...@gmail.com
Subject: Re: [QUAD-L] Question



A particular time or month set? 







Sent from my iPhone


On Jun 3, 2015, at 3:16 PM, Larry Willis lwillis82...@gmail.com wrote:





Got a question for everyone. My sister-in-law who lives in Houston insists that 
I and family meet her in New Orleans to go on a cruise. That's a two hour 
flight with power chair, accommodations of some sort, five day cruise, and 
flight home. I have never been on a ship or a jet. I don't know what to say. 
What do you guys think? Are the difficulties too great?





Larry Willis


Retired and proud of it








Don’t  let what you cannot do interfere with what you can do!Billy 
langblan...@icloud.com





  

Re: [QUAD-L] Question

[lindakrn]

Go for it, sounds like an exciting trip. Good luck on your decision. 
Lindaf 

Re: [QUAD-L] Question

[wheelchair]

I think you are wasting your time here.  Go for the Cruise and enjoy  
yourself.  Just make sure its not a cruise with a  history.Remember those 
ships that broke down at sea last  year and the year before that and the year 
before that and  on and on.
 
Make sure the cruise line knows your physical and medical  needs.   You are 
not, nor will you be the last to travel by ship on  the high seas.
 
Best Wishes
 
 
In a message dated 6/3/2015 3:16:22 P.M. Central Daylight Time,  
lwillis82...@gmail.com writes:

Got a  question for everyone. My sister-in-law who lives in Houston insists 
that I  and family meet her in New Orleans to go on a cruise. That's a two 
hour flight  with power chair, accommodations of some sort, five day cruise, 
and flight  home. I have never been on a ship or a jet. I don't know what 
to say. What do  you guys think? Are the difficulties too great?

Larry Willis
Retired  and proud of it

Re: [QUAD-L] Question

[Don Price]

Go! Go! Go!
Flying can be a tad stressful, but it's very doable.
Cruises are VERY accessible and relaxing.
Don't miss this opportunity or you'll regret it.
That's my opinion.
Don.Tempe, AZ
  From: Larry Willis lwillis82...@gmail.com
 To: quad-list@eskimo.com 
 Sent: Wednesday, June 3, 2015 1:16 PM
 Subject: [QUAD-L] Question
   
Got a question for everyone. My sister-in-law who lives in Houston insists that 
I and family meet her in New Orleans to go on a cruise. That's a two hour 
flight with power chair, accommodations of some sort, five day cruise, and 
flight home. I have never been on a ship or a jet. I don't know what to say. 
What do you guys think? Are the difficulties too great?

Larry Willis
Retired and proud of it


   

RE: [QUAD-L] Question

[John S.]

Honestly, you'll kick your self for missing it.Best WishesJohn s.

 Original message 
From: Larry Willis lwillis82...@gmail.com 
Date: 06/03/2015  4:16 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Question 

Got a question for everyone. My sister-in-law who lives in Houston insists that 
I and family meet her in New Orleans to go on a cruise. That's a two hour 
flight with power chair, accommodations of some sort, five day cruise, and 
flight home. I have never been on a ship or a jet. I don't know what to say. 
What do you guys think? Are the difficulties too great?

Larry Willis
Retired and proud of it

Re: [QUAD-L] Question

[Gmail]

Work it out. Do it! Do it! Do it!Bobbie

Smile Everyday

 On Jun 3, 2015, at 4:16 PM, Larry Willis lwillis82...@gmail.com wrote:
 
 Got a question for everyone. My sister-in-law who lives in Houston insists 
 that I and family meet her in New Orleans to go on a cruise. That's a two 
 hour flight with power chair, accommodations of some sort, five day cruise, 
 and flight home. I have never been on a ship or a jet. I don't know what to 
 say. What do you guys think? Are the difficulties too great?
 
 Larry Willis
 Retired and proud of it
 

Re: [QUAD-L] Question

[Billy Yahoo]

Guys,

I'm retired (65) this year. Since I left work in 2000 on disability at 70% tax 
free pay. My Insurance was paid with after tax dollars which made the payments 
to me tax free. So, if my pay was $100,000 I receive $70,000 tax free, for 
example.

You can take any 401k money without penalty as long as you file as disabled. 
You will still be subjected to regular tax on the money as income. Your Soc. 
Sec. Also is taxed as income if it falls beyond the threshold for the tax year.
You are disabled automatically if you are receiving SSD. You can save into a 
401K anytime. By gov't do you mean state? Do they want money back from you from 
an award or settlement from a lawsuit? That they can and will do.

I received a settlement from a suit brought against property owners of the pier 
I got hurt on. At that  time I worked for Chase Manhattan bank. It took five 
years to bring the suit to fruition. I used $250k in medical expenses from 
insurance. The bank was self insured for their employees ergo it was my 
employer who wanted the $250k back. I argued that they were not part of the 
suit, had no steak in arguing the suit nor any downside if I had lost in court. 
Nope, by law they were entitled to that money back. Now, through arduous debate 
back and forth ( they knocked it down to $100k) 



Sent from my iPad

 On Oct 24, 2014, at 19:23, ntpgrn...@aol.com wrote:
 
 Anyone have luck saving in a 401k without the government declaring it an 
 assist. For services/care. Although not accessible until a certain age.
 Please advise...
 
 
 Nancy Pritchard 
 802-355-3449
 Pall Spera Company Realtors, LLC
 PO Box 507
 Morrisville, Vermont 05661
 nancy.pritch...@pallspera.com
 
 
 
 On Oct 24, 2014, at 7:19 PM, Larry Willis lwillis82...@gmail.com wrote:
 
 Yes, but I am not classified as disabled as long as I qualify for regular 
 retirement. Crazy, I know, but true.
 
 Sent from my iPad
 
 Begin forwarded message:
 
 Resent-From: quad-list@eskimo.com
 From: jume9...@comcast.net
 Date: October 24, 2014 at 6:35:43 PM EDT
 To: Larry Willis lwillis82...@gmail.com, quad-list quad-list@eskimo.com
 Subject: Re: [QUAD-L] Question
 
 You qualify for Medicare no matter your age if you are disabled.
 
 Meredith
 
 From: Larry Willis lwillis82...@gmail.com
 To: quad-list quad-list@eskimo.com
 Sent: Friday, October 24, 2014 3:29:03 PM
 Subject: [QUAD-L] Question
 
 I have a serious insurance question for you guys. I have private health 
 insurance through the Kentucky Retired Teachers Assoc. I just learned that 
 it will pay only 70% for 2015. That leaves a whopping 30% to come from me. 
 Is it possible or even worthwhile to get a supplemental policy to cover the 
 30%? Or do those only apply to Medicare? At age 65 I will switch to 
 Medicare automatically. I am 62 now. My peeps got any wisdom on this?
 

Re: [QUAD-L] Question

[Jim Lubin]

http://www.ssa.gov/dibplan/dqualify10.htm#age22

Adults Disabled Before Age 22

An adult disabled before age 22 may be eligible for child's benefits if a
parent is deceased or starts receiving retirement or disability benefits.
We consider this a child's benefit because it is paid on a parent's
Social Security earnings record.

The adult child—including an adopted child, or, in some cases, a
stepchild, grandchild, or step grandchild—must be unmarried, age 18 or
older, and have a disability that started before age 22.

On Sun, Oct 26, 2014 at 12:57 PM, greg g...@eskimo.com wrote:

 Not always, unless the new rules changed it.
 I was 16, and when I tried to get Medicare they said I did not have enough
 work credits to qualify.
 But, because I was under 18 (maybe 21), when my father passed away, I
 qualified under his Medicare.
 If both parents pass away, be sure to check which parent gets more
 Medicare. You can switch.

 And if your on Medicare, look into a Medicare Replacement program. I
 switched to Secure Horizons AARP, name changed to United Healthcare AARP.
 (AARP has nothing to do with your age.) Every state has different options,
 But they cover quite a bit more stuff.

 Greg

  You qualify for Medicare no matter your age if you are disabled.
 
 
  Meredith
 
 
  From: Larry Willis lwillis82...@gmail.com
  To: quad-list quad-list@eskimo.com
  Sent: Friday, October 24, 2014 3:29:03 PM
  Subject: [QUAD-L] Question
 
 
  I have a serious insurance question for you guys. I have private
  health insurance through the Kentucky Retired Teachers Assoc. I
  just learned that it will pay only 70% for 2015. That leaves a
  whopping 30% to come from me. Is it possible or even worthwhile to
  get a supplemental policy to cover the 30%? Or do those only apply
  to Medicare? At age 65 I will switch to Medicare automatically. I
  am 62 now. My peeps got any wisdom on this?

RE: [QUAD-L] Question

[Joan Anglin]

You’re absolutely right Greg

I had to wait several years after I broke my neck to qualify for Medicare. I 
did not have enough work quarters to qualify (I was only short two) and had to 
wait until I was 65. Best birthday ever! It took me five more years to pay off 
all of the doctors Et cetera for my medical treatment during those years. Have 
a great day everyone.

 

From: greg [mailto:g...@eskimo.com] 
Sent: Sunday, October 26, 2014 12:58 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Question

 

Not always, unless the new rules changed it.

I was 16, and when I tried to get Medicare they said I did not have enough work 
credits to qualify.

But, because I was under 18 (maybe 21), when my father passed away, I qualified 
under his Medicare.

If both parents pass away, be sure to check which parent gets more Medicare. 
You can switch.

 

And if your on Medicare, look into a Medicare Replacement program. I switched 
to Secure Horizons AARP, name changed to United Healthcare AARP. (AARP has 
nothing to do with your age.) Every state has different options, But they cover 
quite a bit more stuff. 

 

Greg

 You qualify for Medicare no matter your age if you are disabled.

 

 

 Meredith

 

 

 From: Larry Willis lwillis82...@gmail.com

 To: quad-list quad-list@eskimo.com

 Sent: Friday, October 24, 2014 3:29:03 PM

 Subject: [QUAD-L] Question

 

 

 I have a serious insurance question for you guys. I have private

 health insurance through the Kentucky Retired Teachers Assoc. I

 just learned that it will pay only 70% for 2015. That leaves a

 whopping 30% to come from me. Is it possible or even worthwhile to

 get a supplemental policy to cover the 30%? Or do those only apply

 to Medicare? At age 65 I will switch to Medicare automatically. I

 am 62 now. My peeps got any wisdom on this?

Re: [QUAD-L] Question

[greg]

Not always, unless the new rules changed it.
I was 16, and when I tried to get Medicare they said I did not have enough work credits to qualify.
But, because I was under 18 (maybe 21), when my father passed away, I qualified under his Medicare.
If both parents pass away, be sure to check which parent gets more Medicare. You can switch.

And if your on Medicare, look into a Medicare Replacement program. I switched to Secure Horizons AARP, name changed to United Healthcare AARP. (AARP has nothing to do with your age.) Every state has different options, But they cover quite a bit more stuff. 

Greg
 You qualify for Medicare no matter your age if you are disabled.


 Meredith


 From: "Larry Willis" lwillis82...@gmail.com
 To: "quad-list" quad-list@eskimo.com
 Sent: Friday, October 24, 2014 3:29:03 PM
 Subject: [QUAD-L] Question


 I have a serious insurance question for you guys. I have private
 health insurance through the Kentucky Retired Teachers Assoc. I
 just learned that it will pay only 70% for 2015. That leaves a
 whopping 30% to come from me. Is it possible or even worthwhile to
 get a supplemental policy to cover the 30%?Or do those only apply
 to Medicare? At age 65 Iwill switch to Medicare automatically. I
 am 62 now. My peeps got any wisdom on this?

Re: [QUAD-L] Question

[jume9999]

You qualify for Medicare no matter your age if you are disabled. 

Meredith 

- Original Message -

From: Larry Willis lwillis82...@gmail.com 
To: quad-list quad-list@eskimo.com 
Sent: Friday, October 24, 2014 3:29:03 PM 
Subject: [QUAD-L] Question 

I have a serious insurance question for you guys. I have private health 
insurance through the Kentucky Retired Teachers Assoc. I just learned that it 
will pay only 70% for 2015. That leaves a whopping 30% to come from me. Is it 
possible or even worthwhile to get a supplemental policy to cover the 30%? Or 
do those only apply to Medicare? At age 65 I will switch to Medicare 
automatically. I am 62 now. My peeps got any wisdom on this? 

Re: [QUAD-L] Question

[ntpgrnmtn]

Anyone have luck saving in a 401k without the government declaring it an 
assist. For services/care. Although not accessible until a certain age.
Please advise...


Nancy Pritchard 
802-355-3449
Pall Spera Company Realtors, LLC
PO Box 507
Morrisville, Vermont 05661
nancy.pritch...@pallspera.com



 On Oct 24, 2014, at 7:19 PM, Larry Willis lwillis82...@gmail.com wrote:
 
 Yes, but I am not classified as disabled as long as I qualify for regular 
 retirement. Crazy, I know, but true.
 
 Sent from my iPad
 
 Begin forwarded message:
 
 Resent-From: quad-list@eskimo.com
 From: jume9...@comcast.net
 Date: October 24, 2014 at 6:35:43 PM EDT
 To: Larry Willis lwillis82...@gmail.com, quad-list quad-list@eskimo.com
 Subject: Re: [QUAD-L] Question
 
 You qualify for Medicare no matter your age if you are disabled.
 
 Meredith
 
 From: Larry Willis lwillis82...@gmail.com
 To: quad-list quad-list@eskimo.com
 Sent: Friday, October 24, 2014 3:29:03 PM
 Subject: [QUAD-L] Question
 
 I have a serious insurance question for you guys. I have private health 
 insurance through the Kentucky Retired Teachers Assoc. I just learned that 
 it will pay only 70% for 2015. That leaves a whopping 30% to come from me. 
 Is it possible or even worthwhile to get a supplemental policy to cover the 
 30%? Or do those only apply to Medicare? At age 65 I will switch to Medicare 
 automatically. I am 62 now. My peeps got any wisdom on this?
 

RE: [QUAD-L] Question

[Joan Anglin]

Check out AARP, they do have supplemental Health Care plans for insurance other 
than Medicare. They are pricey as my supplemental plan for Medicare is $292 a 
month. Plus I have to also have a prescription plan. Joan

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Friday, October 24, 2014 3:29 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Question

 

I have a serious insurance question for you guys. I have private health 
insurance through the Kentucky Retired Teachers Assoc. I just learned that it 
will pay only 70% for 2015. That leaves a whopping 30% to come from me. Is it 
possible or even worthwhile to get a supplemental policy to cover the 30%? Or 
do those only apply to Medicare? At age 65 I will switch to Medicare 
automatically. I am 62 now. My peeps got any wisdom on this? 

Re: [QUAD-L] Question!!

[wheelchair]

I mix the vinegar with salad oils.
 
Best Wishes
 
 
In a message dated 5/29/2013 8:39:50 P.M. Central Daylight Time,  
kkba...@yahoo.com writes:

Too  much vinegar burns like crazy.

KK
 

 From: nichole rohling  zoocr...@windstream.net
To: cviewe...@aol.com;  quad-list@eskimo.com
Sent:  Wed, May 29, 2013 7:37:51 PM
Subject: RE: [QUAD-L]  Question!!


CT  scan showed no stones in kidneys, ureters or bladder (though I’m not  
convinced) 
Nicki 
 
 
From:  cviewe...@aol.com [mailto:cviewe...@aol.com] 
Sent: Wednesday, May  29, 2013 7:04 PM
To: zoocr...@windstream.net
Subject: Re:  [QUAD-L] Question!!

 
I  had that and it was a kidney stone that dissolved.  Rose
 

 
 
In a  message dated 5/29/2013 4:00:00 P.M. Eastern Daylight Time, 
_zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net)   writes:

 
I  have a call into dr to see if I can go up a size until we figure out what
’s  going on……..I still think I have a bladder stone 
 
From:  Don Smith [mailto:scamper2...@att.net]  
Sent: Wednesday, May 29, 2013 2:49 PM
To: nichole  rohling
Subject: Re: [QUAD-L] Question!!
I used to have the same issiue with a 14 french  (size) and  my urologist 
changed me to 16 french. I'm not sure if  the sizing is the same for women as 
it is for men.  Anyway since  I switched I've had no problems.  As for the 
white sediment, I'm  not sure what causes it but I've heard of several 
quads/paras that  have it.

Good luck and hope this helps.

Don
c5/6  incomp 25 years post.

--- On Wed, 5/29/13, nichole rohling  _zoocrew1@windstream.net_ 
(mailto:zoocr...@windstream.net)   wrote: 

From: nichole  rohling _zoocrew1@windstream.net_ 
(mailto:zoocr...@windstream.net) 
Subject:  [QUAD-L] Question!!
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Date:  Wednesday, May 29, 2013, 5:31 PM 
 
 
 
WOOHOO!  I haven’t been able to send the quad list an e-mail for  weeks! 
My  indwelling catheter is stopping up about every week now. Started out  
changing every 3 weeks and over the past few months it’s gradually  gotten 
down to about a week.  
Urologist  recommended flushing with Renacidin (which is not available from 
the  manufacturer until late July) 
I’ve  been using vinegar and sterile water but to no avail! My daughter cut 
 the used catheter that stopped up yesterday and is was coated with a  fine 
sandy grit. 
CT  scan in April showed everything was fine………..no bladder  stone. 
Any  suggestions? 
Nicki 
 
 
From: _wheelchair@aol.com_ (mailto:wheelch...@aol.com)  
[mailto:wheelch...@aol.com]  
Sent: Wednesday, May 29, 2013 11:38 AM
To: _zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net) ;  
_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Re: [QUAD-L] test

 
One could  attest that your test message was received loud n  clear.
 
Best  Wishes
 

 
 
In a message  dated 5/29/2013 11:14:05 A.M. Central Daylight Time, 
zoocr...@windstream.net writes:

RE: [QUAD-L] Question!!

[nichole rohling]

I took cranberry pills for a long time and my past urologist had a coronary 
when I said I was taking them…….he said it causes urine to be too acidic………I 
think I might try them again  to see if it helps.

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 7:36 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Question!!

 

I think I've heard of vinegar pills.

Best Wishes

 

In a message dated 5/29/2013 7:33:31 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

oh no……..I can’t even stand to smell vinegar…….lol

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 7:25 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Question!!

 

Have you considered increasing your vinegar input?  Vinegar and Oil is a great 
way to start.  The sandy grit is minerals.

 

Best Wishes

 

In a message dated 5/29/2013 12:31:34 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

WOOHOO! I haven’t been able to send the quad list an e-mail for weeks!

 

My indwelling catheter is stopping up about every week now. Started out 
changing every 3 weeks and over the past few months it’s gradually gotten down 
to about a week. 

Urologist recommended flushing with Renacidin (which is not available from the 
manufacturer until late July)

I’ve been using vinegar and sterile water but to no avail! My daughter cut the 
used catheter that stopped up yesterday and is was coated with a fine sandy 
grit.

CT scan in April showed everything was fine………..no bladder stone.

 

Any suggestions?

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 11:38 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] test

 

One could attest that your test message was received loud n clear.

Best Wishes

 

In a message dated 5/29/2013 11:14:05 A.M. Central Daylight Time, 
zoocr...@windstream.net writes:

 

RE: [QUAD-L] Question!!

[Bob Vogel]

I took cranberry pills for a long time and my past urologist had a coronary 
when I said I was taking them…….he said it causes urine to be too acidic………I 
think I might try them again  to see if it helps.

What the heck?  I would VERY SERIOUSLY question this urologist and ask what
he/she means by too acidic as in What does 'too acidic' mean.  What problems 
can/would it cause? Curious what problems 'too acidic' could cause. I've never 
heard this from a urologist before,and I would seek a 2nd opinion.

Bob V

--- On Thu, 5/30/13, nichole rohling zoocr...@windstream.net wrote:

 From: nichole rohling zoocr...@windstream.net
 Subject: RE: [QUAD-L] Question!!
 To: wheelch...@aol.com, quad-list@eskimo.com
 Date: Thursday, May 30, 2013, 9:01 AM
 I took cranberry pills for a
 long time and my past urologist had a coronary when I said I
 was taking them…….he said it causes urine to be too
 acidic………I think I might try them again  to see if it
 helps.  From: wheelch...@aol.com
 [mailto:wheelch...@aol.com] 
 Sent: Wednesday, May 29, 2013 7:36 PM
 To: zoocr...@windstream.net; quad-list@eskimo.com
 Subject: Re: [QUAD-L]
 Question!!  I
 think I've heard of vinegar
 pills.Best
 Wishes In a
 message dated 5/29/2013 7:33:31 P.M. Central Daylight Time,
 zoocr...@windstream.net
 writes:oh no……..I can’t even
 stand to smell vinegar…….lol  From: wheelch...@aol.com
 [mailto:wheelch...@aol.com]
 
 Sent: Wednesday, May 29, 2013 7:25 PM
 To: zoocr...@windstream.net;
 quad-list@eskimo.com
 Subject: Re: [QUAD-L]
 Question!!  Have
 you considered increasing your vinegar input?  Vinegar
 and Oil is a great way to start.  The sandy grit is
 minerals. Best
 Wishes In a
 message dated 5/29/2013 12:31:34 P.M. Central Daylight Time,
 zoocr...@windstream.net
 writes:WOOHOO! I haven’t been able
 to send the quad list an e-mail for weeks!  My indwelling catheter is
 stopping up about every week now. Started out changing every
 3 weeks and over the past few months it’s gradually gotten
 down to about a week. Urologist recommended flushing
 with Renacidin (which is not available from the manufacturer
 until late July)I’ve been using vinegar and
 sterile water but to no avail! My daughter cut the used
 catheter that stopped up yesterday and is was coated with a
 fine sandy grit.CT scan in April showed
 everything was fine………..no bladder stone.  Any suggestions?  Nicki  From: 
 wheelch...@aol.com [mailto:wheelch...@aol.com]
 
 Sent: Wednesday, May 29, 2013 11:38 AM
 To: zoocr...@windstream.net;
 quad-list@eskimo.com
 Subject: Re: [QUAD-L] test  One
 could attest that your test message was received loud n
 clear.Best
 Wishes In a
 message dated 5/29/2013 11:14:05 A.M. Central Daylight Time,
 zoocr...@windstream.net
 writes:
  

RE: [QUAD-L] Question!!

[nichole rohling]

I don't use this urologist anymore. I was having bladder spasms and he said 
acidic urine can cause them


-Original Message-
From: Bob Vogel [mailto:rhvsh...@pacbell.net] 
Sent: Thursday, May 30, 2013 3:03 PM
To: wheelch...@aol.com; quad-list@eskimo.com; nichole rohling
Subject: RE: [QUAD-L] Question!!


I took cranberry pills for a long time and my past urologist had a coronary 
when I said I was taking them  .he said it causes urine to be too acidic   I 
think I might try them again  to see if it helps.

What the heck?  I would VERY SERIOUSLY question this urologist and ask what 
he/she means by too acidic as in What does 'too acidic' mean.  What problems 
can/would it cause? Curious what problems 'too acidic' could cause. I've never 
heard this from a urologist before,and I would seek a 2nd opinion.

Bob V

--- On Thu, 5/30/13, nichole rohling zoocr...@windstream.net wrote:

 From: nichole rohling zoocr...@windstream.net
 Subject: RE: [QUAD-L] Question!!
 To: wheelch...@aol.com, quad-list@eskimo.com
 Date: Thursday, May 30, 2013, 9:01 AM
 I took cranberry pills for a
 long time and my past urologist had a coronary when I said I was 
 taking them  .he said it causes urine to be too acidic   I think I 
 might try them again  to see if it helps.  From: wheelch...@aol.com 
 [mailto:wheelch...@aol.com]
 Sent: Wednesday, May 29, 2013 7:36 PM
 To: zoocr...@windstream.net; quad-list@eskimo.com
 Subject: Re: [QUAD-L]
 Question!!  I
 think I've heard of vinegar
 pills.Best
 Wishes In a
 message dated 5/29/2013 7:33:31 P.M. Central Daylight Time, 
 zoocr...@windstream.net writes:oh no  ..I can t even stand to smell 
 vinegar  .lol  From: wheelch...@aol.com [mailto:wheelch...@aol.com]
 
 Sent: Wednesday, May 29, 2013 7:25 PM
 To: zoocr...@windstream.net;
 quad-list@eskimo.com
 Subject: Re: [QUAD-L]
 Question!!  Have
 you considered increasing your vinegar input?  Vinegar and Oil is a 
 great way to start.  The sandy grit is minerals. Best Wishes In a 
 message dated 5/29/2013 12:31:34 P.M. Central Daylight Time, 
 zoocr...@windstream.net writes:WOOHOO! I haven t been able to send the 
 quad list an e-mail for weeks!  My indwelling catheter is stopping up 
 about every week now. Started out changing every
 3 weeks and over the past few months it s gradually gotten down to 
 about a week. Urologist recommended flushing with Renacidin (which is 
 not available from the manufacturer until late July)I ve been using 
 vinegar and sterile water but to no avail! My daughter cut the used 
 catheter that stopped up yesterday and is was coated with a fine sandy 
 grit.CT scan in April showed everything was fine   ..no bladder stone. 
  Any suggestions?  Nicki  From: wheelch...@aol.com 
 [mailto:wheelch...@aol.com]
 
 Sent: Wednesday, May 29, 2013 11:38 AM
 To: zoocr...@windstream.net;
 quad-list@eskimo.com
 Subject: Re: [QUAD-L] test  One
 could attest that your test message was received loud n clear.Best 
 Wishes In a message dated 5/29/2013 11:14:05 A.M. Central Daylight 
 Time, zoocr...@windstream.net
 writes:
  

Re: [QUAD-L] Question!!

[Derrick Winegardner]

my uro recommended taking cranberry pills instead of juice because of 
the sugar in juice.

i take 1,000 mg of vitamin c with it to up my acid.
no germs can live in acid
Derrick
On 5/30/2013 4:02 PM, Bob Vogel wrote:

I took cranberry pills for a long time and my past urologist had a coronary when I 
said I was taking them…….he said it causes urine to be too acidic………I think I might try 
them again  to see if it helps.

What the heck?  I would VERY SERIOUSLY question this urologist and ask what
he/she means by too acidic as in What does 'too acidic' mean.  What problems 
can/would it cause? Curious what problems 'too acidic' could cause. I've never heard this 
from a urologist before,and I would seek a 2nd opinion.

Bob V

--- On Thu, 5/30/13, nichole rohling zoocr...@windstream.net wrote:


From: nichole rohling zoocr...@windstream.net
Subject: RE: [QUAD-L] Question!!
To: wheelch...@aol.com, quad-list@eskimo.com
Date: Thursday, May 30, 2013, 9:01 AM
I took cranberry pills for a
long time and my past urologist had a coronary when I said I
was taking them…….he said it causes urine to be too
acidic………I think I might try them again  to see if it
helps.  From: wheelch...@aol.com
[mailto:wheelch...@aol.com]
Sent: Wednesday, May 29, 2013 7:36 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L]
Question!!  I
think I've heard of vinegar
pills.Best
Wishes In a
message dated 5/29/2013 7:33:31 P.M. Central Daylight Time,
zoocr...@windstream.net
writes:oh no……..I can’t even
stand to smell vinegar…….lol  From: wheelch...@aol.com
[mailto:wheelch...@aol.com]

Sent: Wednesday, May 29, 2013 7:25 PM
To: zoocr...@windstream.net;
quad-list@eskimo.com
Subject: Re: [QUAD-L]
Question!!  Have
you considered increasing your vinegar input?  Vinegar
and Oil is a great way to start.  The sandy grit is
minerals. Best
Wishes In a
message dated 5/29/2013 12:31:34 P.M. Central Daylight Time,
zoocr...@windstream.net
writes:WOOHOO! I haven’t been able
to send the quad list an e-mail for weeks!  My indwelling catheter is
stopping up about every week now. Started out changing every
3 weeks and over the past few months it’s gradually gotten
down to about a week. Urologist recommended flushing
with Renacidin (which is not available from the manufacturer
until late July)I’ve been using vinegar and
sterile water but to no avail! My daughter cut the used
catheter that stopped up yesterday and is was coated with a
fine sandy grit.CT scan in April showed
everything was fine………..no bladder stone.  Any suggestions?  Nicki  From: 
wheelch...@aol.com [mailto:wheelch...@aol.com]

Sent: Wednesday, May 29, 2013 11:38 AM
To: zoocr...@windstream.net;
quad-list@eskimo.com
Subject: Re: [QUAD-L] test  One
could attest that your test message was received loud n
clear.Best
Wishes In a
message dated 5/29/2013 11:14:05 A.M. Central Daylight Time,
zoocr...@windstream.net
writes:
  

Re: [QUAD-L] Question!!

[Quadius]

At first I thought stones, but then I read the last line. This happened to
me about eight or nine years ago and to the best of my memory, which isn't
what it used to be, it didn't really get under control until I developed a
UTI and required some antibiotics.

If you have good irrigation kits and some Toomes (I don't know how to spell
that, but it's basically a 50 or 60 mm syringe) I would recommend doing
some irrigation that way. You're able to clear out more with the syringe
than with a normal irrigation kit.

I have also found that if you can drink too large lemonades in an
afternoon, you will put out an enormous amount of junk that was in your
bladder. Unfortunately it can clog if you're not using irrigation all the
junk out proactively.

Good luck, I wish I could help more.


On Wed, May 29, 2013 at 1:31 PM, nichole rohling zoocr...@windstream.netwrote:

 WOOHOO! I haven’t been able to send the quad list an e-mail for weeks!

 ** **

 My indwelling catheter is stopping up about every week now. Started out
 changing every 3 weeks and over the past few months it’s gradually gotten
 down to about a week. 

 Urologist recommended flushing with Renacidin (which is not available from
 the manufacturer until late July)

 I’ve been using vinegar and sterile water but to no avail! My daughter cut
 the used catheter that stopped up yesterday and is was coated with a fine
 sandy grit.

 CT scan in April showed everything was fine………..no bladder stone.

 ** **

 Any suggestions?

 ** **

 Nicki

 ** **

 *From:* wheelch...@aol.com [mailto:wheelch...@aol.com]
 *Sent:* Wednesday, May 29, 2013 11:38 AM
 *To:* zoocr...@windstream.net; quad-list@eskimo.com
 *Subject:* Re: [QUAD-L] test

 ** **

 One could attest that your test message was received loud n clear.

 Best Wishes

  

 In a message dated 5/29/2013 11:14:05 A.M. Central Daylight Time,
 zoocr...@windstream.net writes:

 ** **

RE: [QUAD-L] Question!!

[nichole rohling]

that is interesting.i drink about 10oz of cranberry juice a day because 
I mix my liquid potassium with iti guess I need to look at sugar content

nicki

-Original Message-
From: Derrick Winegardner [mailto:whe...@cvn.net] 
Sent: Thursday, May 30, 2013 4:17 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Question!!

my uro recommended taking cranberry pills instead of juice because of the sugar 
in juice.
i take 1,000 mg of vitamin c with it to up my acid.
no germs can live in acid
Derrick
On 5/30/2013 4:02 PM, Bob Vogel wrote:
 I took cranberry pills for a long time and my past urologist had a coronary 
 when I said I was taking them  .he said it causes urine to be too acidic   I 
 think I might try them again  to see if it helps.

 What the heck?  I would VERY SERIOUSLY question this urologist and ask 
 what he/she means by too acidic as in What does 'too acidic' mean.  What 
 problems can/would it cause? Curious what problems 'too acidic' could cause. 
 I've never heard this from a urologist before,and I would seek a 2nd opinion.

 Bob V

 --- On Thu, 5/30/13, nichole rohling zoocr...@windstream.net wrote:

 From: nichole rohling zoocr...@windstream.net
 Subject: RE: [QUAD-L] Question!!
 To: wheelch...@aol.com, quad-list@eskimo.com
 Date: Thursday, May 30, 2013, 9:01 AM I took cranberry pills for a 
 long time and my past urologist had a coronary when I said I was 
 taking them  .he said it causes urine to be too acidic   I think I 
 might try them again  to see if it helps.  From: wheelch...@aol.com 
 [mailto:wheelch...@aol.com]
 Sent: Wednesday, May 29, 2013 7:36 PM
 To: zoocr...@windstream.net; quad-list@eskimo.com
 Subject: Re: [QUAD-L]
 Question!!  I
 think I've heard of vinegar
 pills.Best
 Wishes In a
 message dated 5/29/2013 7:33:31 P.M. Central Daylight Time, 
 zoocr...@windstream.net writes:oh no  ..I can t even stand to smell 
 vinegar  .lol  From: wheelch...@aol.com [mailto:wheelch...@aol.com]

 Sent: Wednesday, May 29, 2013 7:25 PM
 To: zoocr...@windstream.net;
 quad-list@eskimo.com
 Subject: Re: [QUAD-L]
 Question!!  Have
 you considered increasing your vinegar input?  Vinegar and Oil is a 
 great way to start.  The sandy grit is minerals. Best Wishes In a 
 message dated 5/29/2013 12:31:34 P.M. Central Daylight Time, 
 zoocr...@windstream.net writes:WOOHOO! I haven t been able to send 
 the quad list an e-mail for weeks!  My indwelling catheter is 
 stopping up about every week now. Started out changing every
 3 weeks and over the past few months it s gradually gotten down to 
 about a week. Urologist recommended flushing with Renacidin (which is 
 not available from the manufacturer until late July)I ve been using 
 vinegar and sterile water but to no avail! My daughter cut the used 
 catheter that stopped up yesterday and is was coated with a fine 
 sandy grit.CT scan in April showed everything was fine   ..no bladder 
 stone.  Any suggestions?  Nicki  From: wheelch...@aol.com 
 [mailto:wheelch...@aol.com]

 Sent: Wednesday, May 29, 2013 11:38 AM
 To: zoocr...@windstream.net;
 quad-list@eskimo.com
 Subject: Re: [QUAD-L] test  One
 could attest that your test message was received loud n clear.Best 
 Wishes In a message dated 5/29/2013 11:14:05 A.M. Central Daylight 
 Time, zoocr...@windstream.net
 writes:
   

RE: [QUAD-L] Question!!

[nichole rohling]

I have cipro on hand and have considered taking it to see if it helps.  5
teaspoons of vinegar to 1 pint of water and I irrigate once a day...30ml and
clamp cath off for 10 minutes (longer if possible) and then let it drain

 

nicki

 

From: Quadius [mailto:quad...@gmail.com] 
Sent: Thursday, May 30, 2013 5:56 PM
To: nichole rohling
Cc: quad-list
Subject: Re: [QUAD-L] Question!!

 

 

At first I thought stones, but then I read the last line. This happened to
me about eight or nine years ago and to the best of my memory, which isn't
what it used to be, it didn't really get under control until I developed a
UTI and required some antibiotics.

If you have good irrigation kits and some Toomes (I don't know how to spell
that, but it's basically a 50 or 60 mm syringe) I would recommend doing some
irrigation that way. You're able to clear out more with the syringe than
with a normal irrigation kit.

I have also found that if you can drink too large lemonades in an afternoon,
you will put out an enormous amount of junk that was in your bladder.
Unfortunately it can clog if you're not using irrigation all the junk out
proactively.

Good luck, I wish I could help more.

 

On Wed, May 29, 2013 at 1:31 PM, nichole rohling zoocr...@windstream.net
wrote:

WOOHOO! I haven't been able to send the quad list an e-mail for weeks!

 

My indwelling catheter is stopping up about every week now. Started out
changing every 3 weeks and over the past few months it's gradually gotten
down to about a week. 

Urologist recommended flushing with Renacidin (which is not available from
the manufacturer until late July)

I've been using vinegar and sterile water but to no avail! My daughter cut
the used catheter that stopped up yesterday and is was coated with a fine
sandy grit.

CT scan in April showed everything was fine.no bladder stone.

 

Any suggestions?

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 11:38 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] test

 

One could attest that your test message was received loud n clear.

Best Wishes

 

In a message dated 5/29/2013 11:14:05 A.M. Central Daylight Time,
zoocr...@windstream.net writes:

 

 

RE: [QUAD-L] Question!!

[nichole rohling]

kidneys, etc. clear per CT scan

Nicki

-Original Message-
From: Gail Holmes [mailto:fgdhol...@cox.net] 
Sent: Thursday, May 30, 2013 7:26 PM
To: nichole rohling
Subject: Re: [QUAD-L] Question!!

Maybe kidney stones.


Sent from my iPhone

On May 30, 2013, at 6:50 PM, nichole rohling zoocr...@windstream.net
wrote:

 that is interesting.i drink about 10oz of cranberry juice a 
 day because I mix my liquid potassium with iti guess I need to 
 look at sugar content
 
 nicki
 
 -Original Message-
 From: Derrick Winegardner [mailto:whe...@cvn.net]
 Sent: Thursday, May 30, 2013 4:17 PM
 To: quad-list@eskimo.com
 Subject: Re: [QUAD-L] Question!!
 
 my uro recommended taking cranberry pills instead of juice because of the
sugar in juice.
 i take 1,000 mg of vitamin c with it to up my acid.
 no germs can live in acid
 Derrick
 On 5/30/2013 4:02 PM, Bob Vogel wrote:
 I took cranberry pills for a long time and my past urologist had a
coronary when I said I was taking them  .he said it causes urine to be too
acidic   I think I might try them again  to see if it helps.
 
 What the heck?  I would VERY SERIOUSLY question this urologist and 
 ask what he/she means by too acidic as in What does 'too acidic' mean.
What problems can/would it cause? Curious what problems 'too acidic' could
cause. I've never heard this from a urologist before,and I would seek a 2nd
opinion.
 
 Bob V
 
 --- On Thu, 5/30/13, nichole rohling zoocr...@windstream.net wrote:
 
 From: nichole rohling zoocr...@windstream.net
 Subject: RE: [QUAD-L] Question!!
 To: wheelch...@aol.com, quad-list@eskimo.com
 Date: Thursday, May 30, 2013, 9:01 AM I took cranberry pills for a 
 long time and my past urologist had a coronary when I said I was
 taking them  .he said it causes urine to be too acidic   I think I 
 might try them again  to see if it helps.  From: wheelch...@aol.com 
 [mailto:wheelch...@aol.com]
 Sent: Wednesday, May 29, 2013 7:36 PM
 To: zoocr...@windstream.net; quad-list@eskimo.com
 Subject: Re: [QUAD-L]
 Question!!  I
 think I've heard of vinegar
 pills.Best
 Wishes In a
 message dated 5/29/2013 7:33:31 P.M. Central Daylight Time, 
 zoocr...@windstream.net writes:oh no  ..I can t even stand to smell 
 vinegar  .lol  From: wheelch...@aol.com [mailto:wheelch...@aol.com]
 
 Sent: Wednesday, May 29, 2013 7:25 PM
 To: zoocr...@windstream.net;
 quad-list@eskimo.com
 Subject: Re: [QUAD-L]
 Question!!  Have
 you considered increasing your vinegar input?  Vinegar and Oil is a 
 great way to start.  The sandy grit is minerals. Best Wishes In a 
 message dated 5/29/2013 12:31:34 P.M. Central Daylight Time, 
 zoocr...@windstream.net writes:WOOHOO! I haven t been able to send 
 the quad list an e-mail for weeks!  My indwelling catheter is 
 stopping up about every week now. Started out changing every
 3 weeks and over the past few months it s gradually gotten down to 
 about a week. Urologist recommended flushing with Renacidin (which 
 is not available from the manufacturer until late July)I ve been 
 using vinegar and sterile water but to no avail! My daughter cut the 
 used catheter that stopped up yesterday and is was coated with a fine
 sandy grit.CT scan in April showed everything was fine   ..no bladder 
 stone.  Any suggestions?  Nicki  From: wheelch...@aol.com 
 [mailto:wheelch...@aol.com]
 
 Sent: Wednesday, May 29, 2013 11:38 AM
 To: zoocr...@windstream.net;
 quad-list@eskimo.com
 Subject: Re: [QUAD-L] test  One
 could attest that your test message was received loud n clear.Best 
 Wishes In a message dated 5/29/2013 11:14:05 A.M. Central Daylight 
 Time, zoocr...@windstream.net
 writes:
 
 
 
 
 
 

RE: [QUAD-L] Question!!

[nichole rohling]

no shirley...not at all

 

 

 

From: shirley bell [mailto:sbell...@cox.net] 
Sent: Wednesday, May 29, 2013 2:23 PM
To: nichole rohling
Subject: Re: [QUAD-L] Question!!

 

has your diet changed?

Best,
Shirley Bell

 

www.ShirleyBellDesigns.com

- Original Message - 

From: nichole rohling mailto:zoocr...@windstream.net  

To: quad-list@eskimo.com 

Sent: Wednesday, May 29, 2013 1:31 PM

Subject: [QUAD-L] Question!!

 

WOOHOO! I haven't been able to send the quad list an e-mail for weeks!

 

My indwelling catheter is stopping up about every week now. Started out
changing every 3 weeks and over the past few months it's gradually gotten
down to about a week. 

Urologist recommended flushing with Renacidin (which is not available from
the manufacturer until late July)

I've been using vinegar and sterile water but to no avail! My daughter cut
the used catheter that stopped up yesterday and is was coated with a fine
sandy grit.

CT scan in April showed everything was fine.no bladder stone.

 

Any suggestions?

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 11:38 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] test

 

One could attest that your test message was received loud n clear.

Best Wishes

 

In a message dated 5/29/2013 11:14:05 A.M. Central Daylight Time,
zoocr...@windstream.net writes:

 

RE: [QUAD-L] Question!!

[nichole rohling]

I have a call into dr to see if I can go up a size until we figure out what’s 
going on……..I still think I have a bladder stone

 

From: Don Smith [mailto:scamper2...@att.net] 
Sent: Wednesday, May 29, 2013 2:49 PM
To: nichole rohling
Subject: Re: [QUAD-L] Question!!

 


I used to have the same issiue with a 14 french (size) and  my urologist 
changed me to 16 french. I'm not sure if the sizing is the same for women as it 
is for men.  Anyway since I switched I've had no problems.  As for the white 
sediment, I'm not sure what causes it but I've heard of several quads/paras 
that have it.

Good luck and hope this helps.

Don
c5/6 incomp 25 years post.

--- On Wed, 5/29/13, nichole rohling zoocr...@windstream.net wrote:


From: nichole rohling zoocr...@windstream.net
Subject: [QUAD-L] Question!!
To: quad-list@eskimo.com
Date: Wednesday, May 29, 2013, 5:31 PM

WOOHOO! I haven’t been able to send the quad list an e-mail for weeks!

 

My indwelling catheter is stopping up about every week now. Started out 
changing every 3 weeks and over the past few months it’s gradually gotten down 
to about a week. 

Urologist recommended flushing with Renacidin (which is not available from the 
manufacturer until late July)

I’ve been using vinegar and sterile water but to no avail! My daughter cut the 
used catheter that stopped up yesterday and is was coated with a fine sandy 
grit.

CT scan in April showed everything was fine………..no bladder stone.

 

Any suggestions?

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 11:38 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] test

 

One could attest that your test message was received loud n clear.

Best Wishes

 

In a message dated 5/29/2013 11:14:05 A.M. Central Daylight Time, 
zoocr...@windstream.net writes:

 

 

Re: [QUAD-L] Question!!

[wheelchair]

Have you considered increasing your vinegar input?  Vinegar and Oil is  a 
great way to start.  The sandy grit is minerals.
 
Best Wishes
 
 
In a message dated 5/29/2013 12:31:34 P.M. Central Daylight Time,  
zoocr...@windstream.net writes:

 
WOOHOO!  I haven’t been able to send the quad list an e-mail for  weeks! 
My  indwelling catheter is stopping up about every week now. Started out 
changing  every 3 weeks and over the past few months it’s gradually gotten 
down to about  a week.  
Urologist  recommended flushing with Renacidin (which is not available from 
the  manufacturer until late July) 
I’ve  been using vinegar and sterile water but to no avail! My daughter cut 
the used  catheter that stopped up yesterday and is was coated with a fine 
sandy  grit. 
CT  scan in April showed everything was fine………..no bladder  stone. 
Any  suggestions? 
Nicki 
 
 
From:  wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May  29, 2013 11:38 AM
To: zoocr...@windstream.net;  quad-list@eskimo.com
Subject: Re: [QUAD-L]  test

 
One could attest that  your test message was received loud n clear.
 
Best  Wishes
 

 
 
In a message dated  5/29/2013 11:14:05 A.M. Central Daylight Time, 
_zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net)   writes:

RE: [QUAD-L] Question!!

[nichole rohling]

oh no……..I can’t even stand to smell vinegar…….lol

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 7:25 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Question!!

 

Have you considered increasing your vinegar input?  Vinegar and Oil is a great 
way to start.  The sandy grit is minerals.

 

Best Wishes

 

In a message dated 5/29/2013 12:31:34 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

WOOHOO! I haven’t been able to send the quad list an e-mail for weeks!

 

My indwelling catheter is stopping up about every week now. Started out 
changing every 3 weeks and over the past few months it’s gradually gotten down 
to about a week. 

Urologist recommended flushing with Renacidin (which is not available from the 
manufacturer until late July)

I’ve been using vinegar and sterile water but to no avail! My daughter cut the 
used catheter that stopped up yesterday and is was coated with a fine sandy 
grit.

CT scan in April showed everything was fine………..no bladder stone.

 

Any suggestions?

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 11:38 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] test

 

One could attest that your test message was received loud n clear.

Best Wishes

 

In a message dated 5/29/2013 11:14:05 A.M. Central Daylight Time, 
zoocr...@windstream.net writes:

 

RE: [QUAD-L] Question!!

[nichole rohling]

CT scan showed no stones in kidneys, ureters or bladder (though I’m not 
convinced)

 

Nicki

 

From: cviewe...@aol.com [mailto:cviewe...@aol.com] 
Sent: Wednesday, May 29, 2013 7:04 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] Question!!

 

I had that and it was a kidney stone that dissolved.  Rose

 

In a message dated 5/29/2013 4:00:00 P.M. Eastern Daylight Time, 
zoocr...@windstream.net writes:

I have a call into dr to see if I can go up a size until we figure out what’s 
going on……..I still think I have a bladder stone

 

From: Don Smith [mailto:scamper2...@att.net] 
Sent: Wednesday, May 29, 2013 2:49 PM
To: nichole rohling
Subject: Re: [QUAD-L] Question!!

 


I used to have the same issiue with a 14 french (size) and  my urologist 
changed me to 16 french. I'm not sure if the sizing is the same for women as it 
is for men.  Anyway since I switched I've had no problems.  As for the white 
sediment, I'm not sure what causes it but I've heard of several quads/paras 
that have it.

Good luck and hope this helps.

Don
c5/6 incomp 25 years post.

--- On Wed, 5/29/13, nichole rohling zoocr...@windstream.net wrote:


From: nichole rohling zoocr...@windstream.net
Subject: [QUAD-L] Question!!
To: quad-list@eskimo.com
Date: Wednesday, May 29, 2013, 5:31 PM

WOOHOO! I haven’t been able to send the quad list an e-mail for weeks!

 

My indwelling catheter is stopping up about every week now. Started out 
changing every 3 weeks and over the past few months it’s gradually gotten down 
to about a week. 

Urologist recommended flushing with Renacidin (which is not available from the 
manufacturer until late July)

I’ve been using vinegar and sterile water but to no avail! My daughter cut the 
used catheter that stopped up yesterday and is was coated with a fine sandy 
grit.

CT scan in April showed everything was fine………..no bladder stone.

 

Any suggestions?

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 11:38 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] test

 

One could attest that your test message was received loud n clear.

Best Wishes

 

In a message dated 5/29/2013 11:14:05 A.M. Central Daylight Time, 
zoocr...@windstream.net mip://06774ae0/mc/compose?to=zoocr...@windstream.net  
writes:

 

 

Re: [QUAD-L] Question!!

[wheelchair]

I think I've heard of vinegar pills.
Best Wishes
 
 
In a message dated 5/29/2013 7:33:31 P.M. Central Daylight Time,  
zoocr...@windstream.net writes:

 
oh  no……..I can’t even stand to smell vinegar…….lol 
 
 
From:  wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May  29, 2013 7:25 PM
To: zoocr...@windstream.net;  quad-list@eskimo.com
Subject: Re: [QUAD-L]  Question!!

 
Have you considered  increasing your vinegar input?  Vinegar and Oil is a 
great way to  start.  The sandy grit is minerals.
 

 
Best  Wishes
 

 
 
In a message dated  5/29/2013 12:31:34 P.M. Central Daylight Time, 
_zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net)   writes:

 
WOOHOO!  I haven’t been able to send the quad list an e-mail for  weeks! 
My  indwelling catheter is stopping up about every week now. Started out  
changing every 3 weeks and over the past few months it’s gradually gotten  
down to about a week.  
Urologist  recommended flushing with Renacidin (which is not available from 
the  manufacturer until late July) 
I’ve  been using vinegar and sterile water but to no avail! My daughter cut 
the  used catheter that stopped up yesterday and is was coated with a fine 
sandy  grit. 
CT  scan in April showed everything was fine………..no bladder  stone. 
Any  suggestions? 
Nicki 
 
 
From:  _wheelchair@aol.com_ (mailto:wheelch...@aol.com)  
[mailto:wheelch...@aol.com]  
Sent: Wednesday, May 29, 2013 11:38 AM
To: _zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net) ; 
_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Re: [QUAD-L] test

 
One could attest  that your test message was received loud n  clear.
 
Best  Wishes
 

 
 
In a message dated  5/29/2013 11:14:05 A.M. Central Daylight Time, 
_zoocrew1@windstream.net_ (mailto:zoocr...@windstream.net)   writes:

Re: [QUAD-L] Question!!

[KK]

Too much vinegar burns like crazy.

KK



From: nichole rohling zoocr...@windstream.net
To: cviewe...@aol.com; quad-list@eskimo.com
Sent: Wed, May 29, 2013 7:37:51 PM
Subject: RE: [QUAD-L] Question!!


CT scan showed no stones in kidneys, ureters or bladder (though I’m not 
convinced)
 
Nicki
 
From:cviewe...@aol.com [mailto:cviewe...@aol.com] 
Sent: Wednesday, May 29, 2013 7:04 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] Question!!
 
I had that and it was a kidney stone that dissolved.  Rose
 
In a message dated 5/29/2013 4:00:00 P.M. Eastern Daylight Time, 
zoocr...@windstream.net writes:
I have a call into dr to see if I can go up a size until we figure out what’s 
going on……..I still think I have a bladder stone
 
From:Don Smith [mailto:scamper2...@att.net] 
Sent: Wednesday, May 29, 2013 2:49 PM
To: nichole rohling
Subject: Re: [QUAD-L] Question!!
 
I used to have the same issiue with a 14 french (size) and  my urologist 
changed 
me to 16 french. I'm not sure if the sizing is the same for women as it is for 
men.  Anyway since I switched I've had no problems.  As for the white 
sediment, 
I'm not sure what causes it but I've heard of several quads/paras that have it.

Good luck and hope this helps.

Don
c5/6 incomp 25 years post.

--- On Wed, 5/29/13, nichole rohling zoocr...@windstream.net wrote:

From: nichole rohling zoocr...@windstream.net
Subject: [QUAD-L] Question!!
To: quad-list@eskimo.com
Date: Wednesday, May 29, 2013, 5:31 PM
WOOHOO! I haven’t been able to send the quad list an e-mail for weeks!
 
My indwelling catheter is stopping up about every week now. Started out 
changing 
every 3 weeks and over the past few months it’s gradually gotten down to about 
a 
week. 

Urologist recommended flushing with Renacidin (which is not available from the 
manufacturer until late July)
I’ve been using vinegar and sterile water but to no avail! My daughter cut the 
used catheter that stopped up yesterday and is was coated with a fine sandy 
grit.
CT scan in April showed everything was fine………..no bladder stone.
 
Any suggestions?
 
Nicki
 
From:wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, May 29, 2013 11:38 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] test
 
One could attest that your test message was received loud n clear.
Best Wishes
 
In a message dated 5/29/2013 11:14:05 A.M. Central Daylight Time, 
zoocr...@windstream.net writes:
  
 

RE: [QUAD-L] question

[nichole rohling]

thank you so much for the info ……. I’ve had 2 spinal blocks after my sci and 
will certainly be educating them all about ad 

 

From: Derrick Winegardner [mailto:whe...@cvn.net] 
Sent: Monday, November 12, 2012 3:21 PM
To: nichole rohling
Subject: Re: [QUAD-L] question

 

they put packing in ur butt afterwards while in hospital. something gave me ad 
-then the nurse gave me pills to lower blood pressure too much. i felt really 
weird{floating} -my blood pressure was so low, they gave me pills to push back 
up.
so, tell them about a.d

it was all worth it. i was bleeding so bad that i had to have sugery.
they cut 2 out. left 1 small.

i was worried about losing sphincter and leaking but it never happened. i had 
good surgeon but he as a asshole of bedside dr.

i did use eneemez after sugery instead of bullet for bc.
now back to bullet, using mirlax, and no more digi stim. been 3 years now. 
it was such a big relief to get them cut out.easier fr my nurse aid 
too.

On 11/11/2012 8:17. PM, nichole rohling wrote:

did they put you out or do a spinal block?

 

 

 

From: Derrick Winegardner [mailto:whe...@cvn.net] 
Sent: Sunday, November 11, 2012 12:51 PM
To: nichole rohling
Subject: Re: [QUAD-L] question

 

I HAD SUGERY IN HOSPITAL. STAYED OVER NIGHT.
DID BC IN SHOWER CHAIR THE NEXT DAY.
KEDP STOOL SOFT

On 11/11/2012 1:24 PM, nichole rohling wrote:

Thanks……….I have put it off long enough and am to the point of having to do 
something. I have an appointment in December.  It just scares me to have to go 
off blood thinner.

 

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Sunday, November 11, 2012 10:39 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] question

 

Nickie, for your friend I would recommend that you or they contact the local 
Center For Independent Living (CIL).  The centers are Federally Funded and the 
info is free for the asking.

 

Regarding you.  Today there is a simple procedure that is performed in doctor's 
office that eliminates roids.  For most its a 15-30 procedure.  Ask you doctor.

 

Best Wishes

 

In a message dated 11/11/2012 10:34:39 A.M. Central Standard Time, 
zoocr...@windstream.net writes:

Dear friends

 

I have a friend who has been battling cancer for several years and is losing 
her healthcare coverage dec 31.  she asked if I knew anything about the 
President’s healthcare plan but I do not.  Does anyone know any info I could 
pass along? we tried looking it up but have found mainly opinions and we need 
facts.

 

also, i’ve asked before if any of you have had to have surgery for hemorrhoids. 
 I am to the point of having to have my caregiver push 2 back in every day and 
they are only getting worse.  they are causing major sweating.  would 
appreciate feedback on recovery time, how long would I have to stay in bed and 
not use my shower chair, etc

 

thank you all so much

nicki

 

 

Re: [QUAD-L] question

[wheelchair]

Nickie, for your friend I would recommend that you or they contact the  
local Center For Independent Living (CIL).  The centers are Federally  Funded 
and the info is free for the asking.
 
Regarding you.  Today there is a simple procedure that is performed in  
doctor's office that eliminates roids.  For most its a 15-30  procedure.  Ask 
you doctor.
 
Best Wishes
 
 
In a message dated 11/11/2012 10:34:39 A.M. Central Standard Time,  
zoocr...@windstream.net writes:

 
Dear friends 
I have a friend who has been battling cancer for several  years and is 
losing her healthcare coverage dec 31.  she asked if I knew  anything about the 
President’s healthcare plan but I do not.  Does anyone  know any info I 
could pass along? we tried looking it up but have found mainly  opinions and we 
need facts. 
also, i’ve asked before if any of you have had to have  surgery for 
hemorrhoids.  I am to the point of having to have my  caregiver push 2 back in 
every day and they are only getting worse.  they  are causing major sweating.  
would appreciate feedback on recovery time,  how long would I have to stay in 
bed and not use my shower chair,  etc 
thank you all so much 
nicki

RE: [QUAD-L] question

[nichole rohling]

Thanks……….I have put it off long enough and am to the point of having to do 
something. I have an appointment in December.  It just scares me to have to go 
off blood thinner.

 

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Sunday, November 11, 2012 10:39 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] question

 

Nickie, for your friend I would recommend that you or they contact the local 
Center For Independent Living (CIL).  The centers are Federally Funded and the 
info is free for the asking.

 

Regarding you.  Today there is a simple procedure that is performed in doctor's 
office that eliminates roids.  For most its a 15-30 procedure.  Ask you doctor.

 

Best Wishes

 

In a message dated 11/11/2012 10:34:39 A.M. Central Standard Time, 
zoocr...@windstream.net writes:

Dear friends

 

I have a friend who has been battling cancer for several years and is losing 
her healthcare coverage dec 31.  she asked if I knew anything about the 
President’s healthcare plan but I do not.  Does anyone know any info I could 
pass along? we tried looking it up but have found mainly opinions and we need 
facts.

 

also, i’ve asked before if any of you have had to have surgery for hemorrhoids. 
 I am to the point of having to have my caregiver push 2 back in every day and 
they are only getting worse.  they are causing major sweating.  would 
appreciate feedback on recovery time, how long would I have to stay in bed and 
not use my shower chair, etc

 

thank you all so much

nicki

RE: [QUAD-L] question

[nichole rohling]

did they put you out or do a spinal block?

 

 

 

From: Derrick Winegardner [mailto:whe...@cvn.net] 
Sent: Sunday, November 11, 2012 12:51 PM
To: nichole rohling
Subject: Re: [QUAD-L] question

 

I HAD SUGERY IN HOSPITAL. STAYED OVER NIGHT.
DID BC IN SHOWER CHAIR THE NEXT DAY.
KEDP STOOL SOFT

On 11/11/2012 1:24 PM, nichole rohling wrote:

Thanks……….I have put it off long enough and am to the point of having to do 
something. I have an appointment in December.  It just scares me to have to go 
off blood thinner.

 

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Sunday, November 11, 2012 10:39 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] question

 

Nickie, for your friend I would recommend that you or they contact the local 
Center For Independent Living (CIL).  The centers are Federally Funded and the 
info is free for the asking.

 

Regarding you.  Today there is a simple procedure that is performed in doctor's 
office that eliminates roids.  For most its a 15-30 procedure.  Ask you doctor.

 

Best Wishes

 

In a message dated 11/11/2012 10:34:39 A.M. Central Standard Time, 
zoocr...@windstream.net writes:

Dear friends

 

I have a friend who has been battling cancer for several years and is losing 
her healthcare coverage dec 31.  she asked if I knew anything about the 
President’s healthcare plan but I do not.  Does anyone know any info I could 
pass along? we tried looking it up but have found mainly opinions and we need 
facts.

 

also, i’ve asked before if any of you have had to have surgery for hemorrhoids. 
 I am to the point of having to have my caregiver push 2 back in every day and 
they are only getting worse.  they are causing major sweating.  would 
appreciate feedback on recovery time, how long would I have to stay in bed and 
not use my shower chair, etc

 

thank you all so much

nicki

 

RE: [QUAD-L] question

[nichole rohling]

Tried Prep H, even prescription strength and it didn’t help L  I sure dread it 
but something has to give!

 

From: lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] 
Sent: Sunday, November 11, 2012 12:22 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] question

 

Wow, Nicki. I wish I could answer both questions for you, but I can't. I have a 
bout with 'roids every now and then. Some Prep H usually helps a great deal. I 
wish you and your friend the best. God bless.

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: nichole rohling zoocr...@windstream.net
Date: November 11, 2012 11:19:21 AM EST
To: Quad-List@Eskimo. Com mailto:Quad-List@Eskimo.%20Com  
quad-list@eskimo.com
Subject: [QUAD-L] question

Dear friends

 

I have a friend who has been battling cancer for several years and is losing 
her healthcare coverage dec 31.  she asked if I knew anything about the 
President’s healthcare plan but I do not.  Does anyone know any info I could 
pass along? we tried looking it up but have found mainly opinions and we need 
facts.

 

also, i’ve asked before if any of you have had to have surgery for hemorrhoids. 
 I am to the point of having to have my caregiver push 2 back in every day and 
they are only getting worse.  they are causing major sweating.  would 
appreciate feedback on recovery time, how long would I have to stay in bed and 
not use my shower chair, etc

 

thank you all so much

nicki

Re: [QUAD-L] Question

[diannal767]

I've noticed I lean to the left myself, especially in pictures. You can have 
lateral supports installed on your chair that will help for support.
Dianna


Hey guys. For the last year I have noticed that I am leaning to the left. In 
the past month it has got worse. Now I have to physically hold myself 
upright or I go tumbling leftward. As you might expect, it is really 
affecting my ability to drive, or to do anything for that matter. Anyone 
have an idea what the cause might be? I sleep on my left side as well. 
Thanks.





-Original Message-
From: DAANOO daa...@aol.com
To: sbell137 sbell...@cox.net; quad-list quad-list@eskimo.com
Sent: Sat, Oct 13, 2012 12:31 am
Subject: Re: [QUAD-L] Question


I also lean to the left, because of a broken hip could not have surgery on 
because of osteoporosis.
What is the solution to remain straight. My caregivers put a towel to the right 
of my left side pad. What are some other ideas other quad list members have 
tried.
Dana

a message dated 10/9/2012 5:03:29 P.M. Central Daylight Time, sbell...@cox.net 
writes:
hi Larry, I lean to, the last 2 yrs it has affected my driving as well. It 
seems to be the norm for us. they say it is scoliosis. I am having an x-ray 
to see if that's true, I will let you know.
Best,
Shirley Bell

www.ShirleyBellDesigns.com
- Original Message - 
From: Larry Willis lwillis82...@msn.com
To: quad-list@eskimo.com
Sent: Tuesday, October 09, 2012 4:17 PM
Subject: [QUAD-L] Question


Hey guys. For the last year I have noticed that I am leaning to the left. In 
the past month it has got worse. Now I have to physically hold myself 
upright or I go tumbling leftward. As you might expect, it is really 
affecting my ability to drive, or to do anything for that matter. Anyone 
have an idea what the cause might be? I sleep on my left side as well. 
Thanks.

Sent from my iPad 

Re: [QUAD-L] Question

[Danny Hearn]

Bob mine used to wear out fast too and was hard on my elbows, I started 
ordering 
medical sheepskin wheelchair arm rest covers and they really help mei get 
mine from 1shop4u.com a furniture type store that sells medical sheepskin 
products also--They can be ordered in like 10 or more different colors, just 
tell them the size and they custom make them to fit--I get mine in charcoal 
grey because that goes good with my black powerchair.     Dan H.





From: bob quinn kult...@yahoo.com
To: daa...@aol.com daa...@aol.com; sbell...@cox.net sbell...@cox.net; 
quad-list@eskimo.com quad-list@eskimo.com
Sent: Sat, October 13, 2012 1:10:43 AM
Subject: Re: [QUAD-L] Question


Wow, I thought it was just me.  I pull left also, always have!  It wears-out my 
left elbow in anything long-sleeved, as well as my left-armrest, and even the 
left thigh on my pants (from pushing/holding myself upright all the time).  In 
bed, it's hard to sit-up straight without pillows to hold me up, or side-rail 
to 
push-off of (or trapeze to grab to adjust my torso.

In my chair(s) I have a Jay Jay2 Deep-Contour Back, which helps A LOT to stay 
upright while sitting.  See http://bit.ly/REoIQC

Still, it's tricky trying to lean forward with something in my hands sometimes: 
I'll veer off to the side and have to upright myself, and try again.  Mostly I 
counter the tendency by leaning way right, before and as I lean forward.

bob quinn




From: daa...@aol.com daa...@aol.com
To: sbell...@cox.net; quad-list@eskimo.com 
Sent: Saturday, October 13, 2012 12:29 AM
Subject: Re: [QUAD-L] Question


I also lean to the left, because of a broken hip could not have surgery on 
because of osteoporosis.
What is the solution to remain straight. My caregivers put a towel to the 
right 
of my left side pad. What are some other ideas other quad list members have 
tried.
Dana
a message dated 10/9/2012 5:03:29 P.M. Central Daylight Time, sbell...@cox.net 
writes:
hi Larry, I lean to, the last 2 yrs it has affected my driving as well. It 
seems to be the norm for us. they say it is scoliosis. I am having an x-ray 
to see if that's true, I will let you know.
Best,
Shirley Bell

www.ShirleyBellDesigns.com
- Original Message - 
From: Larry Willis lwillis82...@msn.com
To: quad-list@eskimo.com
Sent: Tuesday, October 09, 2012 4:17 PM
Subject: [QUAD-L] Question


Hey guys. For the last year I have noticed that I am leaning to the left. In 
the past month it has got worse. Now I have to physically hold myself 
upright or I go tumbling leftward. As you might expect, it is really 
affecting my ability to drive, or to do anything for that matter. Anyone 
have an idea what the cause might be? I sleep on my left side as well. 
Thanks.

Sent from my iPad 

Re: [QUAD-L] Question

[DAANOO]

I also lean to the left, because of a broken hip could not have surgery on  
because of osteoporosis.
What is the solution to remain straight. My caregivers put a towel to the  
right of my left side pad. What are some other ideas other quad list members 
 have tried.
Dana
 
a message dated 10/9/2012 5:03:29 P.M. Central Daylight Time,  
sbell...@cox.net writes:

hi  Larry, I lean to, the last 2 yrs it has affected my driving as well. It 
 
seems to be the norm for us. they say it is scoliosis. I am having an  
x-ray 
to see if that's true, I will let you know.
Best,
Shirley  Bell

www.ShirleyBellDesigns.com
- Original Message -  
From: Larry Willis lwillis82...@msn.com
To:  quad-list@eskimo.com
Sent: Tuesday, October 09, 2012 4:17  PM
Subject: [QUAD-L] Question


Hey guys. For the last year I have  noticed that I am leaning to the left. 
In 
the past month it has got worse.  Now I have to physically hold myself 
upright or I go tumbling leftward. As  you might expect, it is really 
affecting my ability to drive, or to do  anything for that matter. Anyone 
have an idea what the cause might be? I  sleep on my left side as well. 
Thanks.

Sent from my iPad  

Re: [QUAD-L] Question

[Candle]

I have my crooked days when I am unable to be straight. I tend to lean to the 
left. My doctor said it is caused by pain, pinched nerve, or muscle weakness. 
He thinks that I wear myself out. I have to sit on a heating pad because the 
spot is low on my back. I take Advil to help with pain and inflamation and that 
seems to help me.
 
Your situation sounds much more severe than what I have to deal with, so it may 
be something totally different. 

Candle 
http://community.webshots.com/user/Candle850
Scars remind of us where we’ve been, they don’t have to dictate where we are 
going. ~David Rossi of Criminal Minds
***
 


 From: Larry Willis lwillis82...@msn.com  
Hey guys. For the last year I have noticed that I am leaning to the left. In 
the past month it has got worse. Now I have to physically hold myself upright 
or I go tumbling leftward. As you might expect, it is really affecting my 
ability to drive, or to do anything for that matter. Anyone have an idea what 
the cause might be? I sleep on my left side as well. Thanks.

Sent from my iPad

Re: [QUAD-L] Question

[shirley bell]

hi Larry, I lean to, the last 2 yrs it has affected my driving as well. It 
seems to be the norm for us. they say it is scoliosis. I am having an x-ray 
to see if that's true, I will let you know.

Best,
Shirley Bell

www.ShirleyBellDesigns.com
- Original Message - 
From: Larry Willis lwillis82...@msn.com

To: quad-list@eskimo.com
Sent: Tuesday, October 09, 2012 4:17 PM
Subject: [QUAD-L] Question


Hey guys. For the last year I have noticed that I am leaning to the left. In 
the past month it has got worse. Now I have to physically hold myself 
upright or I go tumbling leftward. As you might expect, it is really 
affecting my ability to drive, or to do anything for that matter. Anyone 
have an idea what the cause might be? I sleep on my left side as well. 
Thanks.


Sent from my iPad 

Re: [QUAD-L] Question

[Bobbie Humphreys]

I've been leaning to the left for about 10 years. Got an X-Ray of my spine and 
, for me, it confirmed I have scoliosis. I even went to brace clinic at Kessler 
and they said . What are you doing here? I told them about my leaning and had 
my X-Ray in hand and said … I just don't want my scoliosis to get worse and 
thought a brace might help to prevent it from getting worse. They, the 
professionals, told me … you'll be fine,, no need for a brace … not for a 
long, long time.. Bobbie
 

Sent from my iPad

On Oct 9, 2012, at 4:17 PM, Larry Willis lwillis82...@msn.com wrote:

 Hey guys. For the last year I have noticed that I am leaning to the left. In 
 the past month it has got worse. Now I have to physically hold myself upright 
 or I go tumbling leftward. As you might expect, it is really affecting my 
 ability to drive, or to do anything for that matter. Anyone have an idea what 
 the cause might be? I sleep on my left side as well. Thanks.
 
 Sent from my iPad

Re: [QUAD-L] Question

[Quadius]

Lateral supports would be your best bet. I had been leaning to the right
for the last 16 years, but I make sure I have the lateral support properly
positioned so that it set up really straight.

It's also important to make sure your hips are properly aligned.
I know this sounds like 101, but it is pretty important.

Quadius

On Tue, Oct 9, 2012 at 4:17 PM, Larry Willis lwillis82...@msn.com wrote:

 Hey guys. For the last year I have noticed that I am leaning to the left.
 In the past month it has got worse. Now I have to physically hold myself
 upright or I go tumbling leftward. As you might expect, it is really
 affecting my ability to drive, or to do anything for that matter. Anyone
 have an idea what the cause might be? I sleep on my left side as well.
 Thanks.

 Sent from my iPad

Re: [QUAD-L] question

[wheelchair]

Have you considered calling the manufacturer of the product to determine if 
 they can look at it.  Is it a warranted product?
Best Wishes
 
In a message dated 2/29/2012 8:53:43 P.M. Central Standard Time,  
ismael.cava...@att.net writes:

Hi guys,  how are you doing, my question to you any of you guys are 
connected
to  Ventilator and how often they check your machine.  The reason I'm  
asking
today.  I had problems with mine I'd call that company to come  and check 
the
machine and they told me they couldn't check the machine and  the reason was
according to them they only renting.  The machine they  got only one
respiratory, 24 hoursrespiratory white they can't check it  according to
them.  Medicare doesn't pay, the company to check it it  what's going on
nobody to come and check it.  That's why I was  asking.  Thank you and God
bless you with it.  The company it  got

Re: [QUAD-L] question

[Eric W Rudd]

This varies greatly.  A medical assistant, whom works for the doc, answers 
to the doc.  Kinda like a)pushed ya down the hall too fast or b)drew blood 
carelessly


Eric W Rudd
c5sc...@gmail.com
- Original Message - 
From: Ismael Cavazos ismael.cava...@att.net

To: quad-list@eskimo.com
Sent: Wednesday, August 03, 2011 9:22 PM
Subject: [QUAD-L] question



I have a question for you guys, do you know, where you could put a complain
on medical assistant.  That works in the doctors office.  I already spoke 
to

the doctor and put to complain on that person and a doctor owned he said
okay.  I have even called nursing board, and they told me they couldn't do 
a

anything to reason was because it's not a nurse.  I was wondering you guys
have any ideas.  I'll will appreciate it.  What ever ideas you have, let 
me

know please and God bless you

Re: [QUAD-L] Question for the ladies

[wheelchair]

Hopefully Diannal. I just took it another mile in a different direction. I  
hope I didn't confuse.  I also hope you agree that often two bodies are not 
 the same and so form of protection should be used to prevent passing an  
infection or causing abrasion.  Great Female Topic!
Best Wishes
 
 
 
In a message dated 7/8/2011 11:36:16 P.M. Central Daylight Time,  
diannal...@aol.com writes:

 
In a message dated 7/9/2011 12:06:42 AM Eastern Daylight Time,  
wheelch...@aol.com writes:

Thanks Dianna.  I've had a few discussions with OB/GYN and  Fertility 
Specialist and some theory of pregnancy with a bacteria infection  or UTI.  
Somehow, it still happens.  I don't understand, but  accept that which was 
offered.
Best Wishes



I meant sex hasn't caused me to have a uti. Infections are surley  possible 
w/the foley. Are we on the same page!??!  :-) At any rate, I  hope the 
poster finds her  answer.

Re: [QUAD-L] Question for the ladies

[wheelchair]

For a limited few,(and I mean few) it can be done. But consider all the  
bacteria in that area plus and friction causing internal abrasion and further  
infections.  Surprising, you are not the first to ask or inquire.   I've 
heard of partners catching an infection from a partner or spouse who had a  
budding infection and didn't realize it.
A SP, helps with having sex as it clears the way with no  obstructions.
 
Best Wishes
 
 
In a message dated 7/8/2011 11:06:41 A.M. Central Daylight Time,  
scaryide...@yahoo.com writes:

How hard is it for any of you ladies to have sex with a Foley still  in? 
I'm getting quite  discouraged.

Re: [QUAD-L] Question for the ladies

[DiannaL767]

 
In a message dated 7/9/2011 12:06:42 AM Eastern Daylight Time,  
wheelch...@aol.com writes:

Thanks Dianna.  I've had a few discussions with OB/GYN and Fertility  
Specialist and some theory of pregnancy with a bacteria infection or  UTI.  
Somehow, it still happens.  I don't understand, but accept  that which was 
offered.
Best Wishes



I meant sex hasn't caused me to have a uti. Infections are surley possible  
w/the foley. Are we on the same page!??!  :-) At any rate, I hope the  
poster finds her answer.