I had almost the exact treatment and drug changes. I just went to the
Oncologist, Dr. Talpaz, U of M and he has taken me off the Sprycel and I am
now about to start on 100 mg of Bosulif. Is there anyone else on Bosulif?
I would really like to know what I am about to be faced with.
On Thu, Jan 25
em...
>>
>> Take good care..
>>
>> 18's hope and love,
>>
>>
>> Beth
>>
>>
>> -Original Message-
>> From: Jamie Tufariello
>> To: cmlhope
>> Sent: Thu, Jan 25, 2018 10:44 am
>> Subject: Re: [CMLH
osutinib and it has
> worked for them...
>
> Take good care..
>
> 18's hope and love,
>
>
> Beth
>
>
> -Original Message-----
> From: Jamie Tufariello
> To: cmlhope
> Sent: Thu, Jan 25, 2018 10:44 am
> Subject: Re: [CMLHope] off Sprycel
>
ubject: Re: [CMLHope] off Sprycel
On Tuesday, June 9, 2015, Choi wrote:
Hi, this is Choi from South Korea. One of my CML friends had some problems and
I just wonder who had a similar experience.
He was diagnosed with CML chronic phase on july 2012 and started Gleevec 400mg
for 16 months and s
On Tuesday, June 9, 2015, Choi wrote:
> Hi, this is Choi from South Korea. One of my CML friends had some problems
> and I just wonder who had a similar experience.
>
> He was diagnosed with CML chronic phase on july 2012 and started Gleevec
> 400mg for 16 months and switched to Sprycel due to E3
Thanks John. I am surprised that I have not seen anything about that drug
before. Been researching in this CML department since 2008.
Joyce in IL
On Jun 9, 2015, at 10:32 PM, John Barrons wrote:
> Hi Joyce: if you go to drugs.com and type in name omacetaxine is well
> explained. It
Choi,
Dr. Druker's email is: druk...@ohsu.edu
hope this helps you.. Take good care, 18's Beth
-Original Message-
From: Choi
To: cmlhope
Sent: Wed, Jun 10, 2015 6:05 am
Subject: Re: [CMLHope] off Sprycel
It's too far away from here South Korea. Do you know Dr,
Hi Choi: I don't have mutation 315I. I think I still have 355G but I don't know
that. I went on ponatinib because the other drugs were not working anymore. I
am receiving ponatinib on compassionate grounds and I have had cml for over 15
years. I have never been without Philadelphia chromosomes.
I think you developed mutant after 5 years of Gleevec. Were you on PCRU when
developed mutation? T315I? So switched to Tasigna, Sprycel and finally
Ponatinib?
--
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message bec
It's too far away from here South Korea. Do you know Dr, Druker's e mail
address? I just want to talk with him via e mail.
--
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google
Thanks John, so Gleevec, Tasigna, Sprycel didn't work for E355G? That's why you
are on Ponatinib right now?
--
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHop
Hi Joyce: if you go to drugs.com and type in name omacetaxine is well
explained. It requires an injection twice a day, which I did. I was on it about
two years. I have been 100% Phillies until I started ponatinib and this drug
reduced my phone Phillies to about 50%. I am very sensitive to ponati
John,
When you were on sprycel did you get to PCRU? My husband was on sprycel for 3
years and then, just as you, had to go off because of pleural effusion. He was
undetectable for 2 years and lost his PCRU in 2 months. He is now on
bosulif.first 100 mg which was not working.then on 20
Hi Choi
Yes I developed mutants for gleevec tasigna and sprycel. I was recently put
on ponatinib and it is supposed to be mutant resistant. He could talk to his
onc about it. I am doing pretty good so far.
Prayers & Blessings Jeanie 🐟🐟18,s
Dx 1/2004
Started Gleevec 2/2004
Started Tasigna
Hi Choi I solid also mention that I have or had the mutation E355
Sent from my iPad
> On Jun 9, 2015, at 6:47 AM, Choi wrote:
>
> Hi, this is Choi from South Korea. One of my CML friends had some problems
> and I just wonder who had a similar experience.
>
> He was diagnosed with CML chronic
Hi Choi I was on sprycel and to go off it because of pleural effusion. I then
went on omacetaxine for a couple of years and finally am on ponatinib. I only
take normally one pill a week it is a strong drug so I am off it for three
weeks. John B
Sent from my iPad
> On Jun 9, 2015, at
Hi Choi,
Pleural Effusions are quite common to people that are using Sprycel
sometimes even on low doses. Since he also has the E55G mutation he or you
may want to get in touch with Dr. Brian Druker and Dr. Moshie Talpaz.
Both of these doctors are the CML experts Dr. Druker was the one that made
S
Hi, this is Choi from South Korea. One of my CML friends had some problems
and I just wonder who had a similar experience.
He was diagnosed with CML chronic phase on july 2012 and started Gleevec
400mg for 16 months and switched to Sprycel due to E355G mutation.
At that time his PCR was 1.89.
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