Thank you for your kind letter, Giora. I remember you from years back. You live
in Tel Aviv? I am so happy to hear that you are doing so well. I feel
encouraged.Angie
From: Giora Sharf <gio...@inter.net.il>
To: cmlhope@googlegroups.com
Sent: Wednesday, June 17, 2015 2:35 AM
Subject: RE: [CMLHope] Stopping Gleevec
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div.yiv1061552755WordSection1 {}#yiv1061552755 Hi AngieWe have similar story. I
started Glivec on 14.2.2001 and was on 400 mg till 10.6.2014 when I agreed to
my Dr's advise to stop. I am now 1 year without treatment doing very well,
monthly PCR are all in deep MR4.5 response.I fully understand your concern, I
had the same issues and didn’t agree to stop for couple of years. When I saw
the data indicating that all the patients who stop and relapse (about 50-60 %)
respond well when they restart treatment, I agreed to stop. I also didn’t have
severe side effects on Glivec, but I am happy to be drug free and do very
strict monthly or 6 weeks monitoring. Please remember if you decide to stop-
the most important thing is a very strict monthly PCR on international scale.
(IS)Good luck whatever you decideGiora
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of
ANGELYN ESDERS
Sent: Wednesday, June 17, 2015 4:03 AM
To: cmlhope@googlegroups.com
Subject: [CMLHope] Stopping Gleevec I just received an email from my
oncologist telling me that it is safe for me to stop Gleevec for 3 months.I
started Gleevec in January 2001, and reached cytogenic remission in July 2001.
I've continued on 300mg per day.I was in the study for 12 years.I feel like it
is my safety net between wellness and reoccurrence of CML.I am almost afraid to
stop it. I no longer have any side effects from it.Who has stopped Gleevec, and
what have you experienced as a result of doing so?Thanking you all for your
input...Angie in Canada--
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