Kk happy 4th get better My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center
> On Jul 3, 2015, at 8:45 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > > i am at home getting rehabilitation. > > 18's > > Marty > >> On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Hi Marty. >> Are you in the hospital? >> >> My Motto: Faith and Pills >> Jeanie 🐟🐟18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >>> On Jul 3, 2015, at 3:19 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>> >>> Hi, everyone, >>> >>> I did have a stroke on Friday the 26 i am slowly getting better. >>> just affected my speech but still working through it. >>> >>> 18's >>> >>> Marty >>> >>>> On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> Marty, when did that happen? I hope you are feeling well and I'll be >>>> saying prayers for you. Please take good care. Hugs to you. >>>> >>>> 18s >>>> >>>> Marcie >>>> >>>> Sent from my iPad >>>> >>>>> On Jul 2, 2015, at 9:47 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>>> >>>>> Hi. Susan >>>>> >>>>> unfortunately i had a stroke. getting better. >>>>> >>>>> 18's >>>>> >>>>> Marty >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>>> On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope >>>>>> <cmlhope@googlegroups.com> wrote: >>>>>> Pete, >>>>>> When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He >>>>>> is GREAT!!! >>>>>> >>>>>> 18'S, >>>>>> Susan F. Zimmerman >>>>>> >>>>>> >>>>>> -----Original Message----- >>>>>> From: Pete Pabon <nyc...@hotmail.com> >>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>> Sent: Mon, Jun 15, 2015 12:36 am >>>>>> Subject: RE: [CMLHope] Platelets >>>>>> >>>>>> Jeanie,who do you see at Moffitt? >>>>>> >>>>>> >>>>>> >>>>>> Date: Sun, 14 Jun 2015 20:23:18 -0700 >>>>>> From: rbhuffm...@gmail.com >>>>>> To: cmlhope@googlegroups.com >>>>>> Subject: Re: [CMLHope] Platelets >>>>>> >>>>>> I do understand Skip. I have a sister that has been anemic all her >>>>>> life, and she is doing fine at 5. I have been having problems every >>>>>> time I get close 7.9. Just again shows how we each find our spot that >>>>>> works for us. >>>>>> >>>>>> Richard H. >>>>>> >>>>>> On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: >>>>>> >>>>>> I have had very low platelets and ANC and RBC and plus some others plus >>>>>> high Ferritin counts over 7000 most weeks I have critical platelets and >>>>>> white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 >>>>>> log reduction. I fell fine been doing this for 37 years I tell you this >>>>>> as I want all to know Low counts should looked but not to spoil your day >>>>>> Zevie was astounded when I send him on of my blood reports with 1.0 >>>>>> white 88 RBC 0zero platelets ANC of 0.20 >>>>>> hooe this helps >>>>>> Skip Dx 1977 >>>>>> Sent from Yahoo Mail on Android >>>>>> From:"'Icandoallttc' via CMLHope" < cml...@googlegroups.com> >>>>>> Date:Tue, May 19, 2015 at 9:01 AM >>>>>> Subject:Re: [CMLHope] Platelets >>>>>> >>>>>> I also have problems with platelets and WBC. They go way too high. >>>>>> Only on Tasigna did they drop too Lowe. Go figure. We are all unique >>>>>> in how we respond to the tkis. >>>>>> Moffitt tomorrow. I am hoping for good results. >>>>>> 5 months on ponatinib. >>>>>> >>>>>> Prayers & Blessings Jeanie 18,s >>>>>> Dx 1/2004 >>>>>> Started Gleevec 2/2004 >>>>>> Started Tasigna 9/2009 >>>>>> Started Sprycel 11/2009 >>>>>> Started Ponatinib January 2015 >>>>>> >>>>>> On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < graga...@gmail.com> >>>>>> wrote: >>>>>> >>>>>> I have problems with platelet count. Diagnosed in 2012 Started with >>>>>> Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. >>>>>> Started with 140mg per day and now taking 50mg per day. One moth of >>>>>> Sprycel medication and two months rest for platelet recovery. This is >>>>>> how current medication is going on. I take papaya leaf tea everyday to >>>>>> improve platelets. >>>>>> >>>>>> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <esd...@rogers.com> >>>>>> wrote: >>>>>> Does anyone have problems maintaining their platelet level? >>>>>> Mine fall down to almost ZERO, which is a dangerous place to be. I am >>>>>> covered with big purple bruises and petechiae and look like I have been >>>>>> in a bar fight. Even a light scratch on my skin brings the blood to the >>>>>> surface. It is called Thrombocytopenia. My red cells also plummet and I >>>>>> had 6 blood transfusions last week. >>>>>> My confidence waivers a little as it seems they don't really know what >>>>>> to do about me. I have lots of complications. More specialists on the >>>>>> horizon, but every step forward is followed by 3 steps back. I am on >>>>>> massive prednisone for the moment. >>>>>> Can anyone share info on this? >>>>>> Angie in Canada.... >>>>>> Gleevec pioneer since 2001 >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------ ------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>> To unsubscribe from this group, send email to >>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>>> 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this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] 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