Happy Monday everyone. Healing energy to all. ❤️❤️ My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center
> On Jul 6, 2015, at 1:50 PM, bkbarney via CMLHope <[email protected]> > wrote: > > Marty, > > I just read this..oh my goodness.....sending you and your wife... I am sure > she is worried about you..lots of love, and healing energy...I know your > spirit, and your resiliency, and I trust you will get through this and heal > with time...just so not what you needed post your kidney transplant... > > > we love you..... > > keep the faith, and the good fight going.. > > 18's Beth. > > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Sat, Jul 4, 2015 10:27 am > Subject: Re: [CMLHope] Platelets > > Kk happy 4th get better > > My Motto: Faith and Pills > Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Jul 3, 2015, at 8:45 PM, Marty Gartenberg < [email protected]> wrote: > > > i am at home getting rehabilitation. > > 18's > > Marty > >> On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> Hi Marty. >> Are you in the hospital? >> >> My Motto: Faith and Pills >> Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> On Jul 3, 2015, at 3:19 PM, Marty Gartenberg < [email protected]> wrote: >> >> Hi, everyone, >> >> I did have a stroke on Friday the 26 i am slowly getting better. >> just affected my speech but still working through it. >> >> 18's >> >> Marty >> >>> On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope >>> <[email protected]> wrote: >>> Marty, when did that happen? I hope you are feeling well and I'll be >>> saying prayers for you. Please take good care. Hugs to you. >>> >>> 18s >>> >>> Marcie >>> >>> Sent from my iPad >>> >>> On Jul 2, 2015, at 9:47 PM, Marty Gartenberg < [email protected]> wrote: >>> >>> >>> Hi. Susan >>> >>> unfortunately i had a stroke. getting better. >>> >>> 18's >>> >>> Marty >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>>> On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope >>>> <[email protected]> wrote: >>>> Pete, >>>> When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is >>>> GREAT!!! >>>> >>>> 18'S, >>>> Susan F. Zimmerman >>>> >>>> >>>> -----Original Message----- >>>> From: Pete Pabon < [email protected]> >>>> To: cmlhope < [email protected]> >>>> Sent: Mon, Jun 15, 2015 12:36 am >>>> Subject: RE: [CMLHope] Platelets >>>> >>>> Jeanie,who do you see at Moffitt? >>>> >>>> >>>> >>>> Date: Sun, 14 Jun 2015 20:23:18 -0700 >>>> From: [email protected] >>>> To: [email protected] >>>> Subject: Re: [CMLHope] Platelets >>>> >>>> I do understand Skip. I have a sister that has been anemic all her life, >>>> and she is doing fine at 5. I have been having problems every time I get >>>> close 7.9. Just again shows how we each find our spot that works for us. >>>> >>>> Richard H. >>>> >>>> On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: >>>> >>>> I have had very low platelets and ANC and RBC and plus some others plus >>>> high Ferritin counts over 7000 most weeks I have critical platelets and >>>> white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 >>>> log reduction. I fell fine been doing this for 37 years I tell you this as >>>> I want all to know Low counts should looked but not to spoil your day >>>> Zevie was astounded when I send him on of my blood reports with 1.0 white >>>> 88 RBC 0zero platelets ANC of 0.20 >>>> hooe this helps >>>> Skip Dx 1977 >>>> Sent from Yahoo Mail on Android >>>> From:"'Icandoallttc' via CMLHope" < [email protected]> >>>> Date:Tue, May 19, 2015 at 9:01 AM >>>> Subject:Re: [CMLHope] Platelets >>>> >>>> I also have problems with platelets and WBC. They go way too high. Only >>>> on Tasigna did they drop too Lowe. Go figure. We are all unique in how >>>> we respond to the tkis. >>>> Moffitt tomorrow. I am hoping for good results. >>>> 5 months on ponatinib. >>>> >>>> Prayers & Blessings Jeanie 18,s >>>> Dx 1/2004 >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib January 2015 >>>> >>>> On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < [email protected]> >>>> wrote: >>>> >>>> I have problems with platelet count. Diagnosed in 2012 Started with >>>> Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started >>>> with 140mg per day and now taking 50mg per day. One moth of Sprycel >>>> medication and two months rest for platelet recovery. This is how current >>>> medication is going on. I take papaya leaf tea everyday to improve >>>> platelets. >>>> >>>> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <[email protected]> wrote: >>>> Does anyone have problems maintaining their platelet level? >>>> Mine fall down to almost ZERO, which is a dangerous place to be. I am >>>> covered with big purple bruises and petechiae and look like I have been in >>>> a bar fight. Even a light scratch on my skin brings the blood to the >>>> surface. It is called Thrombocytopenia. My red cells also plummet and I >>>> had 6 blood transfusions last week. >>>> My confidence waivers a little as it seems they don't really know what to >>>> do about me. I have lots of complications. More specialists on the >>>> horizon, but every step forward is followed by 3 steps back. I am on >>>> massive prednisone for the moment. >>>> Can anyone share info on this? >>>> Angie in Canada.... >>>> Gleevec pioneer since 2001 >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------ ------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> 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unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> 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