Marty,
I just read this..oh my goodness.....sending you and your wife... I am sure she is worried about you..lots of love, and healing energy...I know your spirit, and your resiliency, and I trust you will get through this and heal with time...just so not what you needed post your kidney transplant... we love you..... keep the faith, and the good fight going.. 18's Beth. -----Original Message----- From: 'Icandoallttc' via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Sat, Jul 4, 2015 10:27 am Subject: Re: [CMLHope] Platelets Kk happy 4th get better My Motto: Faith and Pills Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 8:45 PM, Marty Gartenberg < [email protected]> wrote: i am at home getting rehabilitation. 18's Marty On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope <[email protected]> wrote: Hi Marty. Are you in the hospital? My Motto: Faith and Pills Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 3:19 PM, Marty Gartenberg < [email protected]> wrote: Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through it. 18's Marty On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope <[email protected]> wrote: Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg < [email protected]> wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope <[email protected]> wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -----Original Message----- From: Pete Pabon < [email protected]> To: cmlhope < [email protected]> Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: [email protected] To: [email protected] Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9. Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:"'Icandoallttc' via CMLHope" < [email protected]> Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers & Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < [email protected]> wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <[email protected]> wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada.... Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------ ------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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