----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: liltrubin Message 7 in Discussion Dear Willard: Apathy syndrome is much more common with Pit patients then depression but often misdiagnosed at depression. Treatment for Depression will not work for people with Apathy syndrome. Everyone has their own thing. For me, the on-line support group is the BEST. It will not work for everyone. Last year before my tumor was removed I could barely walk and could not drive at all so not everyone has access to a face to face group. You need to do what is going to work for you and if that means doing both then so be it...do both!!!! My dissertation topic is regarding Quality of Life issue in Pit patients during that period where we all get misdiagnosed or go undiagnosed. So I spend a great deal of my life researching this condition!!!! I must be nuts...LOL!!!! These stories both good and bad keep my drive to make a change through my research to benefit all of us. It works for me-:) HUGS, Tina On Wed, Mar 26, 2008 at 10:42 AM, Willard1H <[EMAIL PROTECTED]> wrote: New Message on Pituitary Chat Support Group says Pituitary Chat board is too depressing Reply Reply to Sender Recommend Message 1 in Discussion From: Willard1H Hi, guys, I just attended my first meeting of the local Brain Tumor Support Group. It was wonderful, finally meeting other tumor patients face-to-face. Previously it's been very fulfilling to communicate with all of you on PitChat, "meeting" people like me who may be on the other side of the world. I realize that depression comes with pituitary tumors, and can be a side effect of our medications. My friends worry that I'm getting depressed by this board. Now the Support Group leader says they warn members to stay away from internet message boards. It is devastating to read of some of your horrendous experiences. My tumor is being treated with a tiny Dostinex pill twice a week. No surgery. No powerful chemo. No radiation. I still work and have plenty of energy. Headaches are mild, but lurking there all day long. I feel guilty that my lemon-sized prolatinoma is less of a problem than some micros are to many of you. I'm blessed, but I still wept all the way to Easter Sunday services and through church. Generally negative emotions don't plague me -- I tell friends I've been surfing on a tidal wave of JOY. I just worry that I may "wipe out" before I make it safe to shore. Am I spending 'way too much time on this board? How long do the rest of you spend browsing the message titles, or diving deep into a discussion topic? How often do you check in? One friend says, "You need to get out more." Any thoughts? Willard in Alabama View other groups in this category. To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. Remove my e-mail address from Pituitary Chat. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
