----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: APorpoise Message 16 in Discussion Williard1H I was diagnosed with my prolactinoma in 1983, before there were computer support groups and a few years after they came up with the Transphonnoidal surgery, prior to that they cut you ear to ear. I went to one of the first meetings of the Pituitary Network Assn (formerly the Pituitary Tumor Network Assn) meetings in No California, which was just forming. They are one of the largest networks of information regarding Pituitary tumors and can be found at http://www.pituitary.org But I too checked out the National Brain Tumor Foundation, which is huge, but doesn't do a lot of networking on Pituitary Tumors. Also, one of your comments was that you didn't have chemo. I would think it is rare if ever used on a Pituitary tumor unless it was cancerous, which happens, but is rare. As far as the benefit of Support Groups such as this one. It is here 24/7, and there is no requirement that you be too. Its just like everything, moderation. I have had a lot of years dealing with this and another cancer, and I will tell you that I find this MSN Pit Chat to be a very excellent Support Group. I posted the link for the article on Apathy probably a year ago, so you can find it here too. And I also listed the book ManMade by Ken Baker, which you may find very interesting and helpful. I will continue to read the stories here on occassion. And sometimes I'm blown away at how many MRIs people have for these slow growing tumors...........but there is a lot to be learned here. When I had my surgery there was only one drug Parlodel's Bromocriptine, so I read a lot of people's experiences and have learned tons here. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
