--- On Thu, 8/6/09, [email protected] <[email protected]> wrote:
From: [email protected] <[email protected]> Subject: Re: [QUAD-L] Syrinx To: [email protected], [email protected] Date: Thursday, August 6, 2009, 12:33 PM So sorry you're going through so much pain. I thought I had one also a number of years ago and I remember how scared I was each time I got a MRI for a number of years.. Mine turned out to be scar tissue. I hope you can find and go to the expert and they were will do something if they know it will help. I met several people briefly at Craig who had gone through the surgery. I was just there for a rehab evaluation. That is where they found what they thought was a syrinx . You always think that when you are quad, at least you will not change in what you can do. You feel fortunate compared to compare to a person with a degenerative disease. We don't usually know anything about what a syrinx can do. I went to a syrinx workshop during that time. A lot of the top surgeons were discussed, but unfortunately I don't remember their names. There is a website. Many of them were not already quadriplegics. So sorry you are having to go through this. I know how important it is to find the right surgeon. Dana
