They don't usually do surgery unless you are loosing function. If you haven't got a baclophen pump in, they may suggest it for pain. Sorry to hear it is messing with you. Maybe they can slip you some stem cells. Go in with pain and leave a day later with a limp. I do wish you the best. john
________________________________ From: "[email protected]" <[email protected]> To: [email protected]; [email protected] Sent: Thursday, August 6, 2009 1:33:59 PM Subject: Re: [QUAD-L] Syrinx So sorry you're going through so much pain. I thought I had one also a number of years ago and I remember how scared I was each time I got a MRI for a number of years.. Mine turned out to be scar tissue. I hope you can find and go to the expert and they were will do something if they know it will help. I met several people briefly at Craig who had gone through the surgery. I was just there for a rehab evaluation. That is where they found what they thought was a syrinx . You always think that when you are quad, at least you will not change in what you can do. You feel fortunate compared to compare to a person with a degenerative disease. We don't usually know anything about what a syrinx can do. I went to a syrinx workshop during that time. A lot of the top surgeons were discussed, but unfortunately I don't remember their names. There is a website. Many of them were not already quadriplegics. So sorry you are having to go through this. I know how important it is to find the right surgeon. Dana ________________________________
