Yeah they are great, he did all of my neck surgeries and his nurse is definitely one of the best. I didn't have him do a surgery like the ones you guys are describing, but he did remove some of the fusing in my neck to give me left to right and up and down movement.
Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic. I had a Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator "woohoo" however only half of my diaphragm works right now "due to an asymmetric spinal cord injury....." http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx -----Original Message----- From: Tod E. Santee [mailto:[email protected]] Sent: Wednesday, August 12, 2009 9:37 AM To: Danny Hearn; [email protected]; RONALD L PRACHT Subject: Re: [QUAD-L] syrinx Quick Note / Option: Check into Dr. Scott Falci (Fal' chee) at Craig Rehab in Denver. His nurse, Charlotte, is a great help. I had a syrinx caused by "tethering" -- the cord was tethered --attached-- to the surrounding dura mater, the covering that surrounds the cord and brain and holds cerebrospinal fluid. This tethering is a common cause of quad-related syrinxes and often goes missed or misdiagnosed. In 1996, when I was diagnosed, Dr. Falci and Dr. Barth Green (at the Miami Project) were the only ones experienced in this UN-tethering of cervical syrinxes in quads with the purpose of (A) Relieving pain -AND- (B) Restoring some function! At the time, Falci had already done the procedure over 100 times with an excellent (and immediate!) success rate. Best of luck. I empathise and sympathise with your problems! Best wishes, --Tod ---- Danny Hearn <[email protected]> wrote: > I'll let you know Ron, We are trying to decide if I should see Picker at > St.Johns or Wright, who you told us about. I saw picker after first being > diagnossed with a syrinx in about 1999 or 2000. But my daughter works for > Washington University as a medical Assistant and seems to think I should see > Wright, thinking he may have more experience. I think both may be pretty > good. Dr. Wice said it seems there may be 2 things going on and that the > Sirinx is definitly growing also, and said go see a neuro to see what they > think. It will be about a month to get in to see them. All the serious back > pain and problems have started getting real bad this year--- It is real scary > , I feel pain in area's of my back that used to have no feeling.I hope I > don't loose function or ability to be transfered or load myself in our van. > For years my thinking was---being paralyzed sucks, it can't get much worse > than this ! ( But believe me I wish I could go back to prior this > year--those were the good ole days, lol ) I take pain meds every day now and > even driving around my neighborhood in my wheelchair I need to go slow over > bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know > when I see the neuro surgeon. Dan H. > > --- On Wed, 8/12/09, RONALD L PRACHT <[email protected]> wrote: > > > From: RONALD L PRACHT <[email protected]> > Subject: [QUAD-L] syrinx > To: [email protected] > Date: Wednesday, August 12, 2009, 1:22 AM > > > > > > > > Hey Dan H, > please let me know what you find out concerning your syrinx. Im going down > the same road as you.......will be going to wice to find out if mine has > grown. Im interested in what the surgeons tell you in regards to what to do > at this point. I truely wish the best results for you. > > ron c7
