due to severe burning pain I had an MRI taken a few years ago. The first radiologist to read it said "no abnormalities", everything looks normal. About a year later I took the images to a neurologist, he looked at them for a few seconds and told me I had a syrinx. After looking at syrinx images on the Internet and noticing they didn't look anything like my images, I sent them to Dr. Falci. He told me I had posttraumatic tethering due to SCI. No syrinx, no sign of a fluid filled cavity. Although he said there was nothing that could be done surgically because I wasn't losing any function, I was very surprised and grateful that he and his nurse took the time to look over the MRIs and give me his opinion without asking for anything in return.
On Wed, Aug 12, 2009 at 9:36 AM, Tod E. Santee <[email protected]> wrote: > Quick Note / Option: > > Check into Dr. Scott Falci (Fal' chee) at Craig Rehab in Denver. His > nurse, Charlotte, is a great help. I had a syrinx caused by "tethering" -- > the cord was tethered --attached-- to the surrounding dura mater, the > covering that surrounds the cord and brain and holds cerebrospinal fluid. > > This tethering is a common cause of quad-related syrinxes and often goes > missed or misdiagnosed. In 1996, when I was diagnosed, Dr. Falci and Dr. > Barth Green (at the Miami Project) were the only ones experienced in this > UN-tethering of cervical syrinxes in quads with the purpose of (A) Relieving > pain -AND- (B) Restoring some function! At the time, Falci had already done > the procedure over 100 times with an excellent (and immediate!) success > rate. > > Best of luck. I empathise and sympathise with your problems! > > Best wishes, > --Tod > > > --- >
