Quick Note / Option: Check into Dr. Scott Falci (Fal' chee) at Craig Rehab in Denver. His nurse, Charlotte, is a great help. I had a syrinx caused by "tethering" -- the cord was tethered --attached-- to the surrounding dura mater, the covering that surrounds the cord and brain and holds cerebrospinal fluid.
This tethering is a common cause of quad-related syrinxes and often goes missed or misdiagnosed. In 1996, when I was diagnosed, Dr. Falci and Dr. Barth Green (at the Miami Project) were the only ones experienced in this UN-tethering of cervical syrinxes in quads with the purpose of (A) Relieving pain -AND- (B) Restoring some function! At the time, Falci had already done the procedure over 100 times with an excellent (and immediate!) success rate. Best of luck. I empathise and sympathise with your problems! Best wishes, --Tod ---- Danny Hearn <[email protected]> wrote: > I'll let you know Ron, We are trying to decide if I should see Picker at > St.Johns or Wright, who you told us about. I saw picker after first being > diagnossed with a syrinx in about 1999 or 2000. But my daughter works for > Washington University as a medical Assistant and seems to think I should see > Wright, thinking he may have more experience. I think both may be pretty > good. Dr. Wice said it seems there may be 2 things going on and that the > Sirinx is definitly growing also, and said go see a neuro to see what they > think. It will be about a month to get in to see them. All the serious back > pain and problems have started getting real bad this year--- It is real scary > , I feel pain in area's of my back that used to have no feeling.I hope I > don't loose function or ability to be transfered or load myself in our van. > For years my thinking was---being paralyzed sucks, it can't get much worse > than this ! ( But believe me I wish I could go back to prior this > year--those were the good ole days, lol ) I take pain meds every day now and > even driving around my neighborhood in my wheelchair I need to go slow over > bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know > when I see the neuro surgeon. Dan H. > > --- On Wed, 8/12/09, RONALD L PRACHT <[email protected]> wrote: > > > From: RONALD L PRACHT <[email protected]> > Subject: [QUAD-L] syrinx > To: [email protected] > Date: Wednesday, August 12, 2009, 1:22 AM > > > > > > > > Hey Dan H, > please let me know what you find out concerning your syrinx. Im going down > the same road as you.......will be going to wice to find out if mine has > grown. Im interested in what the surgeons tell you in regards to what to do > at this point. I truely wish the best results for you. > > ron c7
