The neuro at St. Johns your talking about is Selwyn Picker . He is from South Africa and is a very nice man. The problem I had with him is he keeps wanting to give lip service , but no real solutions. He is a firm believer in no surgery without function loss. What upsets me about some of these docs is they say well you dont know for sure the pain is coming from the cyst. Well when you have no pain for the first ten yrs then feel like you got punched in the stomach all the time a person knows something in their body has drastically changed...and if an obstruction in the cord called a syrinx is found soon after...thats the problem. I mean for instance if your driving your car and you start feeling a vibration.....then you get out and see a screw in your tire....more chances than not the screw is the prob. It just isnt rocket science. ron c7
--- On Wed, 8/12/09, Danny Hearn <[email protected]> wrote: From: Danny Hearn <[email protected]> Subject: Re: [QUAD-L] syrinx To: [email protected], "RONALD L PRACHT" <[email protected]> Date: Wednesday, August 12, 2009, 7:26 AM I'll let you know Ron, We are trying to decide if I should see Picker at St.Johns or Wright, who you told us about. I saw picker after first being diagnossed with a syrinx in about 1999 or 2000. But my daughter works for Washington University as a medical Assistant and seems to think I should see Wright, thinking he may have more experience. I think both may be pretty good. Dr. Wice said it seems there may be 2 things going on and that the Sirinx is definitly growing also, and said go see a neuro to see what they think. It will be about a month to get in to see them. All the serious back pain and problems have started getting real bad this year--- It is real scary , I feel pain in area's of my back that used to have no feeling.I hope I don't loose function or ability to be transfered or load myself in our van. For years my thinking was---being paralyzed sucks, it can't get much worse than this ! ( But believe me I wish I could go back to prior this year--those were the good ole days, lol ) I take pain meds every day now and even driving around my neighborhood in my wheelchair I need to go slow over bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know when I see the neuro surgeon. Dan H. --- On Wed, 8/12/09, RONALD L PRACHT <[email protected]> wrote: From: RONALD L PRACHT <[email protected]> Subject: [QUAD-L] syrinx To: [email protected] Date: Wednesday, August 12, 2009, 1:22 AM Hey Dan H, please let me know what you find out concerning your syrinx. Im going down the same road as you.......will be going to wice to find out if mine has grown. Im interested in what the surgeons tell you in regards to what to do at this point. I truely wish the best results for you. ron c7
