I get it Jeanie, truly I do. Good luck with the eye doctor. Have a great
weekend. Great news about Marty! Beth
-Original Message-
From: ICANDOALLTTC via CMLHope
To: cmlhope
Sent: Fri, Feb 27, 2015 7:15 am
Subject: Re: [CMLHope] Doctor's Visit
Thanks Beth and yes just tryi
u
can feel betterstill, I am so glad it's working for you!!! Yippee!
Thinking of Marty too...such brave warriors.
take care,
Beth.
-Original Message-
From: 'Icandoallttc' via CMLHope
To: cmlhope
Sent: Thu, Feb 26, 2015 3:04 pm
Subject: Re: [CMLHope] Doctor
via CMLHope
To: cmlhope
Sent: Thu, Feb 26, 2015 3:04 pm
Subject: Re: [CMLHope] Doctor's Visit
Hi all
Got my blood results and check up today. Everything is good. Got some bad
side effects from ponatinib. Vision problems and headaches the worst. Rough
dry skin on thighs and some s
best for sure
>
> 18's,
> Susan Z
> -Original Message-
> From: Richard H
> To: cmlhope
> Sent: Tue, Feb 24, 2015 12:17 pm
> Subject: [CMLHope] Doctor's Visit
>
>
> I received my test results yesterday. It shows a major molecular reduction
> dow
ulif eventually. Even
going to 200 mg of gleevec would be great!!! I wish you the best for sure
18's,
Susan Z
-Original Message-
From: Richard H
To: cmlhope
Sent: Tue, Feb 24, 2015 12:17 pm
Subject: [CMLHope] Doctor's Visit
I received my test results yes
Sent: Thu, Feb 26, 2015 10:49 am
Subject: Re: [CMLHope] Doctor's Visit
Hi Beth,
I think Marty had the transplant and I'm praying all is going well for him. How
are you feeling? You are such a positive, joyful person and I always look
forward to your posts.
Best
t;> I am wondering, if anyone who has been on sprycel, has developed any other
>> forms of cancer while on it? Thanks, Beth
>>
>>
>> -----Original Message-
>> From: ICANDOALLTTC via CMLHope
>> To: cmlhope
>> Sent: Wed, Feb 25, 2015 8:10 am
>> Subject: Re: [CMLH
le on it? Thanks, Beth
>
>
> -Original Message-
> From: ICANDOALLTTC via CMLHope
> To: cmlhope
> Sent: Wed, Feb 25, 2015 8:10 am
> Subject: Re: [CMLHope] Doctor's Visit
>
> Hi Richard and good to hear from you.
> I had the worst side effects on Gleevec than an
TC via CMLHope
> To: cmlhope
> Sent: Wed, Feb 25, 2015 8:10 am
> Subject: Re: [CMLHope] Doctor's Visit
>
> Hi Richard and good to hear from you.
> I had the worst side effects on Gleevec than any other TKI I have taken,
> except for the one I am on now, Ponatinib.
thoughts, love,
his way.
I am wondering, if anyone who has been on sprycel, has developed any other
forms of cancer while on it? Thanks, Beth
-Original Message-
From: ICANDOALLTTC via CMLHope
To: cmlhope
Sent: Wed, Feb 25, 2015 8:10 am
Subject: Re: [CMLHope] Doctor's Visit
Susan, thank you for the feed back, I'm going to check into maybe start on
200 mg.
greenie
In a message dated 2/25/2015 7:56:37 A.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Richard and Greenie:
I have been on 250mg of Gleevec now since 2008 or so. I'd have to look u
catorsusan' via CMLHope
To: cmlhope
Sent: Wed, Feb 25, 2015 7:56 am
Subject: Re: [CMLHope] Doctor's Visit
Richard and Greenie:
I have been on 250mg of Gleevec now since 2008 or so.
I'd have to look up the correct date. But in order to be on this dosage I am
being closely monito
nice to hear good tidings!
Marcie
-Original Message-
From: Richard H
To: cmlhope
Sent: Tue, Feb 24, 2015 12:17 pm
Subject: [CMLHope] Doctor's Visit
I received my test results yesterday. It shows a major molecular
reduction down to 1.579% on the international scale.
Richard and Greenie:
I have been on 250mg of Gleevec now since 2008 or so. I'd have to look up the
correct date. But in order to be on this dosage I am being closely monitored
by Dr. Druker with PK and PCR tests every three months. I still have side
effects with this dosage. I just had one
Thanks to all for the good wishes. Just for the record after 5 years on
Gleevec I was having severe leg cramps and transfusions every 3 weeks.
That was the the major reasons I suggested a vacation until the CML counts
touched the danger point. When I reached 16.050% the Dr. said it was time
H
To: cmlhope
Sent: Tue, Feb 24, 2015 11:17 am
Subject: [CMLHope] Doctor's Visit
I received my test results yesterday. It shows a major molecular reduction
down to 1.579% on the international scale. The side effects (a long list) are
minimal. The most aggravating are watery, fuzzy visi
Richard H. I've been on Gleevec for over 15 years. I started in a study
in Chicago Jan. 10, 2000 at 400 mg and receive the Gleevec rash. They
dropped me down to 300 mg, at that time they had the clue as to what was going
on. That was before it was approved in 2001. Fuzzy vision, leg cra
Richard, that is great news! I pray that the Gleevec will continue to work
well and the side effects will stay away. So nice to hear good tidings! Marcie
-Original Message-
From: Richard H
To: cmlhope
Sent: Tue, Feb 24, 2015 12:17 pm
Subject: [CMLHope] Doctor's
Hi Richard for all the updates. I had bad side effects while on gleevec. We
just have to go through them and do what we can to fight them. Good report.
Prayers & Blessings Jeanie . 18,s
> On Feb 24, 2015, at 12:17 PM, Richard H wrote:
>
>
> I received my test results yesterday.
I received my test results yesterday. It shows a major molecular
reduction down to 1.579% on the international scale. The side effects (a
long list) are minimal. The most aggravating are watery, fuzzy vision
and leg, foot cramps from twinges to a pain level 3. I started on 400mg
Gleevec a
Well, hello to all. I've not been around for a few days, so thought I
would post my information from my quarterly doctor's visit today. I
just read about Katy and the possibility of pneumonia before posting,
so to let you all know, my doctor insisted that I take a flu shot & the
pneumonia vaccin
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