[CMLHope] when or why to take chlorella

2012-08-12 Thread Marty Gartenberg
Hi Beth, I have enclosed some information that is on web md http://www.webmd.com/vitamins-supplements/ingredientmono-907-CHLORELLA.aspx?activeIngredientId=907activeIngredientName=CHLORELLA 18's Uncle Marty bkbar...@aol.com to cmlhope Dear Uncle Marty, thanks for sharing your wisdom and

Re: [CMLHope] Re: stopping meds.

2012-08-28 Thread Marty Gartenberg
Yes indeed Richard, You stated that since all of these TKI's have been around that I will die of something else. You must remember that everyone who is born will eventually have to die. So it is good to know that CML will not be your undoing. I am one of those members that you spoke about. I had

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 Messages in 1 Topic

2012-08-29 Thread Marty Gartenberg
Suzie, I wish you the very best of luck. 18's Marty On Wed, Aug 29, 2012 at 9:47 AM, Sheila Watson sheila.a.wat...@gmail.comwrote: My take on the stopping of the drugs after being negative for several years, I think that is up to the person and their doctor. I, personally, did not feel

Re: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid Infections

2012-09-01 Thread Marty Gartenberg
Hi Skip, you sure do have a lot of complicated problems but the one thing that really counts is that your still alive to have these problems. I mean just look at yourself being a survivor with CML for over 35 years. That is what really counts. I admire you for all of what you have gone through and

Re: [CMLHope] Sprycel induced PAH

2012-10-05 Thread Marty Gartenberg
Hi Greenie, Maybe you might want to have your doctor give you an MRI or CAT scan to rule out any brain bleeds. It is probably like you say, the hot and humid weather here in Florida, but why not be safe and have it checked out? I also live in Florida and this heat and humidity also gets to me.

Re: [CMLHope] Re: Sprycel induced PAH

2012-10-05 Thread Marty Gartenberg
Hi Kelly, I'm so happy to hear that everything is going so well for you. 18's, (symbol for life) Marty On Thu, Oct 4, 2012 at 10:57 PM, Richard H richard1huff...@comcast.netwrote: On Saturday, September 29, 2012 9:15:49 AM UTC-5, kellyelise wrote: Hi folks! It's been awhile since I last

[CMLHope] The father of bone marrow transplants dies at 92

2012-10-21 Thread Marty Gartenberg
E. Donnall Thomas, a physician who pioneered the use of bone marrow transplants in leukemia patients and later won the 1990 Nobel Prize in medicine, has died in Seattle at age 92. The Fred Hutchinson Cancer Research Center announced the death Saturday. A spokesman said the cause was heart

[CMLHope] FDA approves new drug for CML

2012-10-26 Thread Marty Gartenberg
http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm325895.htm 18's Marty -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this

[CMLHope] Why are my posts not coming through?

2012-10-27 Thread Marty Gartenberg
Why are my posts not coming through? -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To

Re: [CMLHope] Why are my posts not coming through?

2012-10-27 Thread Marty Gartenberg
Hi Millie, As you can see your post to me did come through. Thank you for your reply. I would like to answer your questions and comments so I will write in between your lines in CAPS. On Sat, Oct 27, 2012 at 12:13 PM, C.M. Houtz ho...@ptd.net wrote: ** *Hi Marty.Please let me know if

Re: [CMLHope] Why are my posts not coming through?

2012-10-27 Thread Marty Gartenberg
a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Oct 27, 2012 2:54 pm Subject: Re: [CMLHope] Why are my posts not coming through? Hi Millie

Re: [CMLHope] Why are my posts not coming through?

2012-10-27 Thread Marty Gartenberg
Hi Millie, I think it is cruel to abandon any pets, especially birds. Once they are domesticated and let out in the wild they become pray for other animals. If they had dark colors on their wings then perhaps they were not Canaries but Finches. I hope that you start feeling better real soon

Re: [CMLHope] insurance

2012-11-07 Thread Marty Gartenberg
Just so everyone knows. Sometimes insurance may be difficult to deal with. It is up to you to go after what you should be awarded. When I had my bone marrow transplant almost 23 years ago my insurance company decided to only pay 15% of my bills. Their reasoning was that I was given only a 15%

[CMLHope]

2012-11-09 Thread Marty Gartenberg
Everyone that is currently using Gleevec... I have enclosed a web site that describes when the earliest Gleevec would come out of patent. There is also a field that you can put your email adderss in to in order to possibly get some kind of a discount. I am not sure about this so do it at your

Re: [CMLHope]

2012-11-10 Thread Marty Gartenberg
share and profitability. There have been some news articles about this recently as well. ** ** Best, Pat Elliott CML patient and patient advocate ** ** *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] *On Behalf Of *Marty Gartenberg *Sent:* Friday

Re: [CMLHope] 6 month Check up

2012-11-20 Thread Marty Gartenberg
Hi Suzieq, You know that my prayers are with you. I wish you the very best and have a very *HEALTHY *and *HAPPY *Thanksgiving. 18's Marty On Tue, Nov 20, 2012 at 2:32 PM, Suzieq sheila.a.wat...@gmail.com wrote: Hello fellow CML Survivors! Having my six month check up tomorrow and will be

Re: [CMLHope] 9 Years and counting with CML

2012-11-21 Thread Marty Gartenberg
Hi Cammie, Having CML and being depressed are one in the same. That is if you let it be that way. The way I look at it is to picture a child's See-Saw and your on one side of it with all of your problems resting on your shoulders. This brings you down. Now start taking some of the good things

Re: [CMLHope] A girls last hope to beat Leukemia

2012-12-10 Thread Marty Gartenberg
Hi Millie, I'm so sorry to hear about all of your problems especially about all the pain that your in. Hopefully they will find the cause and will be able to treat you. As far as all the things you must do for the holidays, well, you know the old saying.. Take one day at a time Whatever you can

Re: [CMLHope] A girls last hope to beat Leukemia

2012-12-10 Thread Marty Gartenberg
Angie *From:* Marty Gartenberg wa2...@gmail.com *To:* CMLHope@googlegroups.com *Sent:* Sunday, December 9, 2012 10:38:43 PM *Subject:* [CMLHope] A girls last hope to beat Leukemia I would like everyone to read this. A girls last hope to beat Leukemia. It was actually ALL but there is also

Re: [CMLHope] why are you on dialysis?

2012-12-11 Thread Marty Gartenberg
Hi Jeanie, I'm not the warrior here because I have already gone through all of this. If anyone is a warrior here it is you and Millie and all the rest of the people with this disease. You are fighting and winning, and that is what this is all about isn't it? I read through all of the posts here

Re: [CMLHope] why are you on dialysis?

2012-12-11 Thread Marty Gartenberg
am just like Pop Eye the sailor man... I am what I am. It's all about attitude and most of all, hope. I would like you to read something that was posted by someone about me. Go to: http://talkbloodcancer.com/content/window-martin-gartenberg Or simply Google my name Marty Gartenberg and look

Re: [CMLHope] BCR-ABL Results

2012-12-12 Thread Marty Gartenberg
Hi Suzieq, I would also like to wish you a very healthy and happy holiday season. It looks like your doing real well and it should continue. Maybe in the near future if your doctor thinks you could get off of it compleatly or just drop the dose to 100. I would suggest that you run this by a CML

Re: [CMLHope] why are you on dialysis?

2012-12-13 Thread Marty Gartenberg
Hi Jeanie, I just want to comment on something you wrote. but then I wonder what the drugs are doing to my body. Well, the leukemia kills, so better to just face it head on and live with it Jeanie, now your getting the idea. No matter what your going through your still alive to go through

[CMLHope] Depression

2012-12-19 Thread Marty Gartenberg
When someone has CML or any other type of cancer, then they also have a certain amount of depression as well. Some more then others but it is just an emotion that we as humans all share when we are ill. It doesn't necessarily have to be from the Gleevec or any other type of TKI's, but the fact

Re: [CMLHope] PCRU

2012-12-22 Thread Marty Gartenberg
Hi Marcie, Fighting Leukemia is a tough battle, but as you have proved, it can be done. You now have your Christmas Present called PCRU[?] I wish you many more years of HEALTH and HAPPINESS. 18's (stands for life) Marty On Fri, Dec 21, 2012 at 1:05 PM, margoo...@aol.com wrote: Finally -

Re: [CMLHope] PCRU

2012-12-23 Thread Marty Gartenberg
Hi Marcie, l'chaim, another way to say 18's. Take care of yourself and enjoy another happy and healthy New Years. 18's l'chaim Marty On Sat, Dec 22, 2012 at 11:20 AM, margoo...@aol.com wrote: l'chaim -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] Depression

2012-12-25 Thread Marty Gartenberg
Hi Jeanie, welcome back. Yes Jeanie, GOD has given you these past nine years, as he has also given me the past twenty three years, but GOD helps those that help themselves. It is also you that helps you have these past nine years, and your going to help yourself have many more. Merry Christmas

Re: [CMLHope] Santa and Sarah

2012-12-27 Thread Marty Gartenberg
My eyes are full of tears and there is an apple stuck in my throat. This reminds me of something that happened a very long time ago. Unfortunately it didn't have such a happy ending. Here is something with a happy ending I would like you to watch. 18's (Symbol for life) Marty

Re: [CMLHope] Santa and Sarah

2012-12-27 Thread Marty Gartenberg
Hi Again Dawn, The video I sent you first has an advertisement so just ignore it. 18's Marty On Wed, Dec 26, 2012 at 2:51 PM, DAWN RODEGHIER drodegh...@sbcglobal.netwrote: *To all my cml fighters: This is one day late getting out but I was busy like the rest of you warriors and time got

Re: [CMLHope] why are you on dialysis?

2013-01-01 Thread Marty Gartenberg
Hi Jeanie, You seem to have gone through a lot with everything that happened to you and your husband. From this new year on may you be blessed with things that will make you live life to it's fullest and have some joy in your life. 18's Marty On Tue, Jan 1, 2013 at 4:03 PM,

Re: [CMLHope] Eye bleeds.

2013-01-24 Thread Marty Gartenberg
Hi Doris-bmt, According to web-md a rare side effect of Gleevec is Retinal Hemorrhage as well as Eye Bleeds. Although I have never been on it, I had a bone marrow transplant almost 23 years ago, I have heard of this happening many times with people taking Gleevec. It usually subsides in a short

Re: [CMLHope] High blood pressure

2013-01-25 Thread Marty Gartenberg
HI JEANIE, THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY ABDOMEN. IT DROVE ME CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL AORTA THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. WHICH IS A BLOOD THINNER. 18'S MARTY On Fri, Jan 25, 2013 at 10:59 AM,

Re: [CMLHope] ultrasound of abominal aorta ?

2013-01-26 Thread Marty Gartenberg
Hi Jeanie, The Warferin did make that beating go away. It wasn't so much the pain just like a very uncomfortable feeling. I think that you should discuss this with your doctor. You should get an ultrasound to see what if anything is going on. 18's Marty On Sat, Jan 26, 2013 at 3:07 PM,

Re: [CMLHope] ultrasound of abominal aorta ?

2013-01-27 Thread Marty Gartenberg
Hi Jeanie, I'm not talking about the aorta of the heart but rather the abdominal aorta. 18's, Marty On Sun, Jan 27, 2013 at 4:21 PM, icandoall...@aol.com wrote: ** Hi Marty and will do. He does an ultrasound of my heart yearly but don't know if that includes the aorta scan or not. I'll

[CMLHope] Gleevec Interactions

2013-02-02 Thread Marty Gartenberg
I did some research and here is what I found out about what to avoid while taking Gleevec. Please remember that I have never been on any TKI's because I had a bone marrow transplant many years ago. I just do a lot of research. Hopefully this will be able to help you, and others as well. Gleevec

[CMLHope] Stay as you are, don't be something your not

2013-02-28 Thread Marty Gartenberg
This at first this seems to be a joke, but it teaches us something. Just because you have a disease like CML it shouldn't change your life so much that it effects the way you are, and how you live. A 65 year old woman had a heart attack and was taken to the hospital. While on the operating table

Re: [CMLHope] Stay as you are, don't be something your not

2013-02-28 Thread Marty Gartenberg
Hi Skip. I keep on telling you that your still here for a reason. Just like Mommy Lottie was also here for a reason. I guess that she finished up with her reason. By the way, have you noticed that Tracy never even posted anything and she never even signed Lotties obituary columb. Some bitch

Re: [CMLHope] CML Newbie

2013-03-10 Thread Marty Gartenberg
And hi right back at you. You didn't leave your actual name so I don't know who to address this to. All of what your now going through is what initially happens when your first diagnosed with CML and then put onto a TKI which Gleevec is one of. Some of the symptoms that you are experiencing may

Re: [CMLHope] Re: Thankyou

2013-03-13 Thread Marty Gartenberg
Hi Jeanie, I would like to shake your son's hand for insisting that you go see a doctor when you started having all of those problems. Sometimes we just don't want to believe that something may be wrong with us and we just procrastinate. Your not the only one because when I first knew something

Re: [CMLHope] Re: Thankyou

2013-03-14 Thread Marty Gartenberg
first got sick. My spleen was never a problem. But I do remember pain in my left side over the years I was wondering how many patients were hospitalized and their blood cleansed when first dx. More later. Jeanie Sent from my iPhone On Mar 13, 2013, at 11:12 PM, Marty Gartenberg wa2...@gmail.com

Re: [CMLHope] Re: Thankyou

2013-03-16 Thread Marty Gartenberg
. My spleen was never a problem. But I do remember pain in my left side over the years I was wondering how many patients were hospitalized and their blood cleansed when first dx. More later. Jeanie Sent from my iPhone On Mar 13, 2013, at 11:12 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

2013-04-11 Thread Marty Gartenberg
Hi Ted and everyone else that is taking Gleevec. There was a court case in India that sued and won against Novartis for it's patent rights on Gleevec. Please go to this web site and read all about it. http://www.reuters.com/article/2013/04/01/us-india-novartis-patent-idUSBRE93002I20130401 On

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

2013-04-12 Thread Marty Gartenberg
://www.uspto.gov/web/offices/pac/dapp/opla/term/certs/5521184.pdf God bless us ! Ted in China On Thursday, April 11, 2013, Marty Gartenberg wrote: Hi Ted and everyone else that is taking Gleevec. There was a court case in India that sued and won against Novartis for it's patent rights on Gleevec

Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon

2013-04-17 Thread Marty Gartenberg
with what I receive or is it that cml 2 and hope are just being quiet... MARTY how are you feeling, I do hope your well. Anyway I am slowly getting back SkipD *From:* Marty Gartenberg wa2...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Tuesday, April 16, 2013 11:20:06 AM *Subject:* Re

Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon

2013-04-19 Thread Marty Gartenberg
Hi Millie, You just said something that shows me what type of a person you really are. You said that you are working to make yourself feel better. Maybe not in those exact words but the same idea. I would like to send you something that was given to me when I had my bone marrow transplant. It was

Re: [CMLHope] Skip Duffie

2013-04-19 Thread Marty Gartenberg
Hi Beth, I just have one thing to say in answer to your post. You wrote Isolation and fear are powerful tools Indeed they are, but do you want to know a much more powerful tool? It's your Mind. 18's, Marty On Fri, Apr 19, 2013 at 1:28 PM, bkbar...@aol.com wrote: Dear Skip, Marty, Millie,

Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon

2013-04-20 Thread Marty Gartenberg
, Apr 19, 2013 at 9:30 AM, Marty Gartenberg wa2...@gmail.com wrote: Hi Millie, You just said something that shows me what type of a person you really are. You said that you are working to make yourself feel better. Maybe not in those exact words but the same idea. I would like to send you

Re: [CMLHope] Skip Duffie

2013-04-21 Thread Marty Gartenberg
Dear Marcie, I too have been to Israel and also placed several notes into the cracks of the Western Wall for others suffering from cancer. I would very much like if you could place a piece of paper in one of the cracks of that wall. My email address is wa2...@juno.com. If you would kindly

[CMLHope] The Keeper

2013-04-21 Thread Marty Gartenberg
This is actually the story of my life. You are all my friends and I value your friendship and wanted to share this with you. Now, before you read the rest let me explain what a keeper really is to me. Anyone can be a keeper. I have seen it many times, a wife helping her husband, a husband helping

Re: [CMLHope] The Keeper

2013-04-22 Thread Marty Gartenberg
by it all and, believe me, it helps me through some rough days. Marty, you are one of the best and I do hope that whatever you put in the wall comes to be. You take care my friend.* *18's to you.* *Millie* - Original Message - *From:* Marty Gartenberg wa2...@gmail.com *To:* CMLHope

Re: [CMLHope] Test Results

2013-04-24 Thread Marty Gartenberg
Hi Richard, As I said on the other site, I wish you the best of luck. 18's Marty On Wed, Apr 24, 2013 at 6:16 PM, Richard H richard1huff...@comcast.netwrote: My tests show a sharp increase in counts indicating that my Gleevec vacation is coming to an end. I will complete my 5th year off

[CMLHope] AND THEN IT'S WINTER.

2013-04-28 Thread Marty Gartenberg
MY LIFE HAS BEEN AN ADVENTURE OF SORTS, AND THEN IT'S WINTER. You know. . . Time has a way of moving quickly and catching you unaware of the passing years. It seems just yesterday that I was young, just married and embarking on my new life with my mate. Yet in a way, it seems like eons ago, and I

Re: [CMLHope] AND THEN IT'S WINTER.

2013-04-28 Thread Marty Gartenberg
- From: Marty Gartenberg wa2...@gmail.com To: CMLHope CMLHope@googlegroups.com Sent: Sun, Apr 28, 2013 7:46 am Subject: [CMLHope] AND THEN IT'S WINTER. MY LIFE HAS BEEN AN ADVENTURE OF SORTS, AND THEN IT'S WINTER. You know. . . Time has a way of moving quickly and catching you unaware

Re: [CMLHope] AND THEN IT'S WINTER.

2013-04-28 Thread Marty Gartenberg
. Thanks Marty..Millie* - Original Message - *From:* Marty Gartenberg wa2...@gmail.com *To:* CMLHope@googlegroups.com *Sent:* Sunday, April 28, 2013 7:46 AM *Subject:* [CMLHope] AND THEN IT'S WINTER. MY LIFE HAS BEEN AN ADVENTURE OF SORTS, AND THEN IT'S WINTER. You know. . . Time

Re: [CMLHope] Cramping...

2013-05-02 Thread Marty Gartenberg
Hi Angie, Many years ago after my bone marrow transplant I would get the most painful cramps in almost every part of my body but it was my legs that was the worst of all. This went on for a long time until one of my friends told me to start taking Magnesium. I did and no more cramps. Maybe you

Re: [CMLHope] Cramping...

2013-05-02 Thread Marty Gartenberg
Hi Greenie, I am so happy to hear about you getting a years supply of Gleevec at no cost to you. I kind of know how you felt about having a one years supply of Gleevec with you. I'll bet that you kept turning around looking for anyone that might want to steal it from you. I experienced the same

Re: [CMLHope]

2013-05-05 Thread Marty Gartenberg
Hi, I have never been on Gleevec or any other TKI's. I had a bone marrow transplant, and I also get these same kinds of back pain you describe. They feel like they are in the center of my back in the middle of my rib cage like someone was pushing down on my shoulders. When I lay down they seem to

Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon

2013-05-07 Thread Marty Gartenberg
Hi Millie, I'm just checking up on you. Did you get those tests done yet? I hope that everything turned out well for you. 18's, Marty On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz ho...@ptd.net wrote: ** *Hi Marty.It is good to see you one line. I will keep you in my prayers and pray

Re: [CMLHope] posting my blood panel results today

2013-05-14 Thread Marty Gartenberg
Hi Jeannie, All I can say is WOW!!! You sure that you have Leukemia? With counts like that it sure doesn't show. Don't worry about your sugar counts just try and eat more sensibly, and that includes your Cholesterol As Far as your Creatinine, it is fine don't worry about it. Your doing

Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon

2013-05-15 Thread Marty Gartenberg
Hi Millie, sorry it took so long to get back to you. Since I am on dialysis it is sometimes difficult to do what I want. However we are both fighters so that is what we know how to do. Even with all of your problems you are still hanging in there and so am I. As far as 18's well that is what we

Re: [CMLHope] Re: Arthritis ?

2013-05-15 Thread Marty Gartenberg
Hi Suzieq, Yes cheries are good at preventing the gout. However most cherry juice is made with other ingredients such as grape juice which won't do a thing to help prevent the gout. If fresh cheries are in season that would be a much better choice. I eat pounds of them when they are in season.

Re: [CMLHope] Hello

2013-05-17 Thread Marty Gartenberg
Hi Terri, It looks like someone has hijacked your email address. [CMLHope] Hello Inbox x Terri Migut terrijef...@aol.com 6:06 AM (2 hours ago) to rentals, willzkane, cpaquet33312, malrburnside, luff2000, zertuche_aldo, cteeter21, linda.alfwebb, drsliger, 605-873-2852, dynamodj, cmlhope

Re: [CMLHope] Re: Arthritis ?

2013-05-17 Thread Marty Gartenberg
Hi Suzieq, Well your on the right track about that cherry juice, however you need to stay far away from that cherry wine, or anything that contains any alcohol. That is a no no for the gout. You know if that cherry consentrate juice cost $18 then if it helps you with the pain it is worth every

Re: [CMLHope] Help with Arthritis

2013-05-17 Thread Marty Gartenberg
Hi Jim, I happen to know someone by the name of Jim Thompson that lives on Staten Island. Could this be you? If it is then we sure do live in a small world. 18's (symbol for life) Marty On Fri, May 17, 2013 at 9:59 AM, jim thomson thom8...@yahoo.com wrote: Hello, I saw the problems that you

Re: [CMLHope] Re: Arthritis ?

2013-05-18 Thread Marty Gartenberg
Hi Suzieq, I forgot to mention that anything that you eat or drink that contains purines can cause the gout. There are several that are very high content of purines. Sea food like crustaceans but usually not fish, Wine, and especially beer. Green leafy vegetables like spinich, then Mushrooms. Red

Re: [CMLHope] Re: Arthritis ?

2013-05-30 Thread Marty Gartenberg
Hi Suzieq, So happy to hear that your gout is respomding to the cherry juice and dried cherries. Cherries are back in season and I eat them like they are going out of season and haven't had any gout. Sorry that I am killing you with this advice but you now know that the one tip I gave you is

[CMLHope] Aspartame

2013-06-03 Thread Marty Gartenberg
Please read on, this may also be linked to Leukemia. This article doesn't make any distinction about which type of Leukemia, but still why put yourself at risk. Study Links Aspartame To Fast-Paced Decline in Kidney Function June 2, 2013 by Arjun A study published in the Clinical Journal of the

Re: [CMLHope] Taking a break from gleevec after over 12 years

2013-06-04 Thread Marty Gartenberg
Hi Sylvia, First, welcome back to the group. How well I remember those good olden days of when gleevec first came out. Unfortunately it wasn't around when I was diagnoised with CML in 1989. The only thing at the time was interferon but for me it would have a blind study case weather I would get

Re: [CMLHope] Re: Taking a break from gleevec after over 12 years

2013-06-05 Thread Marty Gartenberg
Hi Angie, I wish you the very best of luck on your Gleevec holiday Yes, 12 years is a long time. 18's Marty Number 1 on Zavies Zero List. I sure do miss him. Disgnosed July 1989 Bone Marrow Transplant May 21St 1990 (23 years ago) On Tue, Jun 4, 2013 at 11:13 PM, ANGELYN ESDERS

Re: [CMLHope] Re: Taking a break from gleevec after over 12 years

2013-06-05 Thread Marty Gartenberg
Hi Suzieq, I'm glad that my suggestion about eating cherries both fresh and dried is really helping you. You may also try some cranberry juice but first run it by your doctor. Cranberry juice helps flush out your kidneys. Just make sure that it doesn't contain any grape juice as an additive. If

Re: [CMLHope] Re: Taking a break from gleevec after over 12 years

2013-06-06 Thread Marty Gartenberg
Hi Suzieq, Hey I want to know what your mother eats for breakfast. Being 81 and in relatively good health except for the falls says a lot about her. I am also happy to hear about your brother always being there to help her out. Shows very good charactor. Anyway, I will be leaving Florida

Re: [CMLHope] Israel

2013-06-21 Thread Marty Gartenberg
Dear Marcie, What an exciting trip you had. I have been there a few years ago. 18's, Marty On Fri, Jun 21, 2013 at 10:08 PM, Marcie Goodman margoo...@aol.com wrote: Me in the hat and my sister at Haddasah Hospital, Ein Kerem, outside of Jerusalem, next to a line from one of my favorite

Re: [CMLHope] My Update

2013-06-25 Thread Marty Gartenberg
YEAH!! Looks like your an 18's Marty On Tue, Jun 25, 2013 at 3:15 PM, Richard H richard1huff...@comcast.netwrote: My tests show a sharp *decrease* in counts indicating that my Gleevec vacation is going to continue. I will complete my 5th year off Gleevec next week. I will be testing

Re: [CMLHope] Fatigue

2013-06-26 Thread Marty Gartenberg
Hi Wesley, First, I have never been on any of the TKI's but had a bone marrow transplant more then 23 years ago. So that you understand more about fatigue, it could be caused by a lot of things but in your case I would suspect that the Gleevec may be playing havoc with your red blood cells as

Re: [CMLHope] Fatigue

2013-06-27 Thread Marty Gartenberg
fits all answer. Hope you are doing well. How are things going now that you are at your summer home? 18s, my friend. Marcie Sent from my iPad On Jun 26, 2013, at 8:24 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Wesley, First, I have never been on any of the TKI's but had a bone

Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon

2013-07-02 Thread Marty Gartenberg
in months. going back over me email I do not see much in the way of email, is there a problem with what I receive or is it that cml 2 and hope are just being quiet... MARTY how are you feeling, I do hope your well. Anyway I am slowly getting back SkipD *From:* Marty Gartenberg wa2

Re: [CMLHope] Hi Marty

2013-07-03 Thread Marty Gartenberg
Dear Millie, I wish you good luck with your upcoming tests. Funny you should mention Monday, Wednesday and Friday. Those are my dialysis days. You and I and just about everyone here simply has to do whatever we all need to do. Stay alive but also try to live our lives as best we can. It sounds

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread Marty Gartenberg
Skip, your like the rock of Gibralter! 18's Marty On Wed, Jul 3, 2013 at 9:29 AM, Skip Duffie skipd_2...@yahoo.com wrote: *.Hello all * *thanks for including me in your email. I was on sprycel and after while I had to have my chest drained.* ** *over a two month period I had to

Re: [CMLHope] An update on the pain

2013-07-04 Thread Marty Gartenberg
I also wish you the best of luck with your liver biopsy. I am praying for you. 18's Marty On Thu, Jul 4, 2013 at 5:12 PM, C.M. Houtz ho...@ptd.net wrote: ** *Hi Suzieq,* *I have had those injections in the past, and for years they worked for me most of the time. I have given up on pain

Re: [CMLHope] The Keeper

2013-07-06 Thread Marty Gartenberg
Your welcome Beth 18's, Marty On Sat, Jul 6, 2013 at 1:34 AM, bkbar...@aol.com wrote: Dear Marty, I so appreciated your keeper story..just loved it.. Thanks so much for sharing. Beth -Original Message- From: ICANDOALLTTC icandoall...@aol.com To: cmlhope

Re: [CMLHope] An update on the pain

2013-07-08 Thread Marty Gartenberg
Dear Millie, I think that your doctor gave you some sound advice. Just try and take it easy and you must learn to do that each and every day. Anyway, I am glad to hear about your son. I know that it must have been very difficult loosing your daughter and having to bring up her son as you and him

Re: [CMLHope] An update on the pain

2013-07-11 Thread Marty Gartenberg
Hi Millie, I have come to know that there aren't any coincidences in life just things that are meant to be. The Hebrew word for that is BASHERT. So, for example, your husband is 83 years old. He went through a very bad accident many years ago and he is still doing fine, thank GOD. This simply

Re: [CMLHope]

2013-07-14 Thread Marty Gartenberg
Hi Marcie and everyone else. What else can I say about having to go through life having CML? Well, there is actually a lot that I can say about having CML. So, let me start... You have to remember having and living with CML is no longer a death sentence as it once was. In 1998 when I was first

Re: [CMLHope]

2013-07-14 Thread Marty Gartenberg
it would be fantastic if our group could have a conference call at least once or twice a month. Take good care. Much love and 18s, Marcie -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Sun, Jul 14, 2013 8:05 am Subject: Re

Re: [CMLHope] Hi

2013-07-16 Thread Marty Gartenberg
Millie, Sorry to hear about your liver problems. Yes they do transpalnts even if you have CML. Just so you know the liver would probably come from a cadaver also you can get part of a living persons liver so if you know anyone that has the same blood type as you do and they are willing to donate

Re: [CMLHope]

2013-07-19 Thread Marty Gartenberg
Hi Richard, Well to be honest with you I must have been cut from the same mold that you were. However, there is one big difference. I am on dialysis and my energy level is next to nothing after my treatments and for the next day afterward then it's back again to another dialysis treatment and so

Re: [CMLHope] Re: Hi

2013-07-19 Thread Marty Gartenberg
Hi Millie, You want to know something? No matter what you are and have been going through your still here and kicking. You Millie are just like that pink ever-ready bunny. You just keep going and going. You ended your last statement with *That's what we all do, so nothing new..!* * *

Re: [CMLHope] Re: Hi

2013-07-20 Thread Marty Gartenberg
Hi Susan, Sure you may have your problems but the important thing is that you have decided to try and do something about them. You are no different then anyone else. Sometimes we just go through so much that we are terribly frightened to do anything about them because anything that is of the

Re: [CMLHope] Re: Hi..Susan's Life who did the doc recommend?

2013-07-22 Thread Marty Gartenberg
for all the encouragement, 18's, Susan F. Zimmerman Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope

Re: [CMLHope] Hi

2013-07-27 Thread Marty Gartenberg
Thank you and the very same to you Jeanie. 18's Marty Good luck Marty with everything. Blessings, Jeanie3 On Sat, Jul 27, 2013 at 4:10 PM, icandoall...@aol.com wrote: ** Good luck Marty with everything. Blessings, Jeanie3 -- -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] Just wondering if anyone has gone through unrelated bmt for cml...

2013-07-30 Thread Marty Gartenberg
Hi Terry, Nice to see you here on this forum. I was wondering what happened to you. Sorry to hear about your kidney problems. I also have kidney failure and am on dialysis. All of this started over 23 years ago from all of the chemo and radiation I had for my bone marrow transplant and as time

Re: [CMLHope] Doctors Visit

2013-07-31 Thread Marty Gartenberg
Dear Millie, you have been through so much, but you are a very strong person. I wish you the very best of luck 18's Marty On Wed, Jul 31, 2013 at 12:46 AM, C.M. Houtz ho...@ptd.net wrote: ** *Hi all, I did tell you I'd let you know how my Doctors visit went today. Well, we did straighten

Re: [CMLHope] Re: 10 years post-transplant today.

2013-08-01 Thread Marty Gartenberg
i AM USING IT FROM A MEDICAL PROSPECTIVE. MOST INSURANCE COMPANIES WILL DISQUALIFY A PERSON THAT HAS OR HAD CANCER FROM ANY LIFE INSURANCE POLICY'S MOST INSURANCE COMPANIES ALSO SUCK... 18'S MARTY On Thu, Aug 1, 2013 at 10:37 AM, kevin.l.willi...@gmail.com kevin.l.willi...@gmail.com wrote:

Re: [CMLHope] Re: Back on Gleevec

2013-08-02 Thread Marty Gartenberg
Hi Peter, Don'r become discouraged. We all have different bodies and what may work for one may not work for another. Everyone acts differently from different drugs. Who knows why but the fact is you you are still alive and basically doing well. I just wish any of these TKI's would have been

Re: [CMLHope] Re: Back on Gleevec

2013-08-02 Thread Marty Gartenberg
Millie, I know that i'm right, they will come up with something. i'm sorry that you have to deal with all of that pain. You must be such a strong person and I admire you for that. Many more 18's dear Millie, Marty On Fri, Aug 2, 2013 at 3:56 PM, C.M. Houtz ho...@ptd.net wrote: ** *Hi Beth,

Re: [CMLHope] Re: Back on Gleevec

2013-08-03 Thread Marty Gartenberg
Dear everyone, I want you to read this. We may all have our faults but we are all here for a reason. I always say that there is a reason for everything but you must first open your eyes to be able to see these reasons. The Water Bearer http://love2ascend.com/2013/01/16/the-water-bearer/ [image:

Re: [CMLHope] Re: Just wondering if anyone has gone through unrelated bmt for...

2013-08-04 Thread Marty Gartenberg
Hi Terri, Your doctor doesn't know what she is talking about dialysis and disability. If and when you have to be on dialysis then as far as social security disability goes, you are in fact considered disabled. Go to Google and type in, are people on dialysis considered disabled. How do I know

Re: [CMLHope] Re: Just wondering if anyone has gone through unrelated bmt for...

2013-08-05 Thread Marty Gartenberg
Hi Again Terri, I know that you have already taken that 24 hour clearance test, but you should have it repeated in a month or so just to see if there are any changes in your clearance, even if only a small amount. That way your kidney performance can be judged to see if they are either getting

Re: [CMLHope] For Terri

2013-08-08 Thread Marty Gartenberg
Terri, Just to let you know. Almost any time that someone applies for Medicare benefits they are usually denied. Even when they try to apply again they are denied once again. I remember when I had to live in a plastic bubble in the hospital for many months my social worker applied for for social

Re: [CMLHope] For Terri

2013-08-08 Thread Marty Gartenberg
Hi Again Terri, Remember what I said, you are your own best advocate, and sometimes you have to do things that can help you along. If you asked for a continuation then it should be on the records. Did you get any paperwork or do you remember who you spoke with about that continuance?? Take a

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