I was diagnosed in 1997, tried Interferon for a year, and then HHT for 14 months, then Gleevec since 1999, and those are my symptoms to a tee! I usually only get the nausea if I take Gleevec in the morning without enough food...can take it at night on an empty stomach with no problems. I get night sweats, but usually am cold during the day more than everyone else. I get the muscle cramps in my feet but sometimes drinking propel will help that some. I don't mind the slight diarrhea, as I'd really rather have that than be constipated...I just need to make sure I'm near a bathroom most of the time...and it's usually only in the mornings... I do get tired easily too..I was laid off a year after working 32/hrs a week so am enjoying the time off..I'll be 55 in July and still have 3 kids at home, so really working and keeping up with everyone at home was just too much. Oh, I know one more side effect you didn't mention...When I sleep at night, my arms go numb if I don't change positions often....not sure if that's a side effect from the CML or the Gleevec or what...
Jody -----Original Message----- From: [email protected] [mailto:[email protected]] On Behalf Of bikercub Sent: Wednesday, April 15, 2009 11:54 PM To: CMLHope Subject: [CMLHope] Gleevec Side Effects I was diagnosed with CML in May of 1992. I've been on Gleevec going on my 7th year. I was on Interferon for 10 years before that. I still have some effects of the Interferon, but I think most of my side effects are from the Gleevec and was wondering how many others out there have these. I know there are newer drugs available, but Gleevec seems to be working for me and I don't want to mess with that! I've always ran on the "warm" side, but really feel warm all the time now. I still have night sweats (which was one of the things that took me to the doctor 17 years ago!). Sometimes I think that my co-workers feel that I am taking advantage of having a day off in the middle of the week to "rest". I still work full time and have pretty much since this all started. I also "look healthy" so I think that may throw them off! I've read a lot of posts and read about various side effects, but most of those posts were a couple years back....unless I'm looking in the wrong place???? Is it because most people are starting on the newer drugs for CML now? I'm actually wanting to know how people who have been on Gleevec for a few years are feeling. So here is my list of problems: Fatigue, especially if I do too much Day and night sweats Muscle cramps, especially at night in the calves and arch of foot Frequent Diarrhea Some edema Nausea on rare occassions So, am I crazy? Or are you guys out there dealing with these too? If so, how often? Thanks --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
