Hi Tom,

I don’t see that your “first killer move” by separating SNOMED CT technology 
from content would make that much sense. The specification and technology you 
are describing in quite many sentences in your e-mail seems to be quite much 
like the EN 14463 Classification Markup Language (ClaML) specification and the 
ecosystem around that specification. However, that specification and the 
associated tools are not that well known or well used, so why would it be a 
“first killer move” to separate SNOMED CT technology from content? If it was a 
killer move someone had already created EN 14463 Association and competed out 
SNOMED CT and SNOMED International …

Instead it seems to be the collaboration and pooling of resources to create, 
extend and improve the common content in SNOMED CT that is possible to share 
among different countries that is the driving force for countries to join 
SNOMED International. The members would like to move away of the situation 
where each country spend large resources to create similar terminology products 
covering the same kind of clinical findings, anatomy, substances and much more. 
Instead they would like to focus on the things that are truly specific for each 
country. However, spending large resources to create similar things in each 
country doesn’t seem to be a problem in your argumentation, Tom?

Your “second killer feature” seems to be the existing SNOMED CT Expression 
Constraint Language - Specification and Guide (http://snomed.org/ecl) and the 
supporting tooling, or do you mean something else?

In your “third killer feature” I don’t really understand what you mean by that 
the translation tools should work on “the basis of legacy vocabulary”. But your 
second claim seems to be that it should be possible to use the tools to only 
translate parts of SNOMED CT and that is a function in all SNOMED CT 
translation tools I have heard of.

I don’t think that anyone would say that IHTSDO Workbench was a success, but 
more as a result of a few quite wrecked IT-projects made under various external 
less than optimal circumstances. To judge an organization’s will from the 
functions of the final IHTSDO Workbench, which you seem to do, is therefore 
quite unfair. (The IHTSDO Workbench was replaced with better adapted software 
quite quickly, so I think nowadays quite few people in the SNOMED International 
community remember the IHTSDO Workbench .)

                           Regards
                           Mikael


From: openEHR-technical [mailto:[email protected]] On 
Behalf Of Thomas Beale
Sent: den 13 mars 2018 15:21
To: [email protected]; For openEHR clinical discussions 
<[email protected]>
Subject: Re: [Troll] Terminology bindings ... again




The killer move would be to do something I advocated for years unsuccessfully: 
separate SNOMED technology from content and allow them to be independently 
licensable and used. Here, technology means representation (RF2 for example), 
open source programming libraries for working with ref-sets, specs and implems 
for e..g the constraint language, URIs and so on.

It should be possible for a country (the one I am most familiar with w.r.t. to 
terminology today is Brazil) to create an empty 'SNOMED container' of its own, 
and put its existing terminologies in there - typically procedure lists, drug 
codes, lab codes, devices & prosthesis codes, packages (chargeable 
coarse-grained packages like childbirth that you get on a health plan) and so 
on. There are usually < 20k or even 10k such codes for most countries (UK and 
US would an exception), not counting lab analyte codes (but even there, 2000 or 
so codes would take care of most results). But the common situation is that 
nearly every country has its own version of these things, and they are far 
smaller than SNOMED. Now, SNOMED's version of things is usually better for some 
of that content, but in some cases, it is missing concepts.

The ability to easily create an empty SNOMED repo, fill it with national 
vocabularies, have it automatically generate non-clashing (i.e. with other 
countries, or the core) concept codes and mappings, and then serve it from a 
standard CTS2 (or other decent standard) terminology service would have 
revolutionised things in my view. This pathway has not been obviously available 
however, and has been a real blockage. The error was not understanding that the 
starting point for most countries isn't the international core, it's their own 
vocabularies.

The second killer feature would have been to make creating and managing 
ref-sets for data/form fields much easier, based on a subsetting language that 
can be applied to the core, and tools that implement that. Ways are needed to 
make the local / legacy vocabularies that have been imported, to look like a 
regular ref-set.

The third killer feature would have been to make translation tools work on the 
basis of legacy vocabulary and new ref-sets, not on the basis of the huge (but 
mostly unused) international core.

I think IHTSDO's / SNOMED International's emphasis has historically been on 
curating the core content, and making/buying tools to do that (the IHTSDO 
workbench, a tool that comes with its own PhD course), rather than promulgating 
SNOMED technology and tooling to enable the mess of real world content in each 
country to be rehoused in a standard way, and incrementally joined up by 
mapping or other means to the core. I think the latter would have been more 
helpful.

There is additionally an elephant in the room: IHTSDO (now SNOMED 
International) has been tied to a single terminology - SNOMED CT, but it would 
have been better to have had a terminology standards org that was independent 
of any particular terminology, and worked to create a truly 
terminology-independent technology ecosystem, along with technical means of 
connecting terminologies to each other, without particularly favouring any one 
of them. It's just a fact that the world has LOINC, ICDx, ICPC, ICF and 
hundreds of other terminologies that are not going anywhere. What would be 
useful would be to:

  *   classify them according to meta-model type - e.g. multi-hierarchy 
(Snomed); single hierarchy (ICDx, ICPC, ... ); multi-axial (LOINC); units 
(UCUM, ...), etc
  *   build / integrate technology for each major category - I would guess < 10
  *   help the owning orgs slowly migrate their terminologies to the 
appropriate representation and tools
  *   embark on an exercise to graft in appropriate upper level ontology/ies, 
i.e. BFO2, RO, and related ontologies (this is where the <10 comes from by the 
way)
  *   specify standards for URIs, querying, ref-sets that work across all 
terminologies, not just SNOMED CT

A further program would look at integrating units (but not by the current 
method of importing to SNOMED, which is a complete error because of the 
different meta-models), drugs and substances (same story), lab result normal 
and other range data, and so on. None of this can be done without properly 
studying and developing the underlying ontologies, which are generally small, 
but subtle.
I'll stop there for now. I suspect I have kicked the hornet's nest, but since 
Grahame kicked it first, and I can run faster than him, I feel oddly safe. 
Probably an illusion.

- thomas
On 13/03/2018 12:12, Grahame Grieve wrote:

I am get the impression that SNOMED CT is hard to implement, and therefore 
wondered if we are at some kind of tipping point, like where HL7v3 was a few 
years ago, and some bright spark came along, and now we have FHIR that is 
gaining great traction in the health community due to the ease at which it can 
be implemented.

this is very true, and I wish that someone would stick their neck out and do 
this at scale with
a community behind them. Many of the parameters for how it could be done are 
obvious around
free and crowd-support etc. But the big problem is that there is no capacity 
for it to happen as a
palace revolution; it must be a full civil war first.

Grahame





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Thomas Beale
Principal, Ars Semantica<http://www.arssemantica.com>
Consultant, ABD Team, Intermountain 
Healthcare<https://intermountainhealthcare.org/>
Management Board, Specifications Program Lead, openEHR 
Foundation<http://www.openehr.org>
Chartered IT Professional Fellow, BCS, British Computer 
Society<http://www.bcs.org/category/6044>
Health IT blog<http://wolandscat.net/> | Culture 
blog<http://wolandsothercat.net/>
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