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effects of pituitary tumor removel

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From: PammyPoohPammyPooh

Dear Jillie,
 
I feel your pain!!  My pit tumor (1.1 cm) was discovered via MRI in 3/98.
 
I have yet to find an Endocrinologist who treats these.  The many Edno's I have seen determined my tumor was not the problem but I was depressed or something else was causing my hypo-pituitary symptoms.  A POX on them all!  Why any one of them did not refer me to a Pituitary Specialist is beyond me.  Arrogance and a 'If I don't know it, then it doesn't exist' attitude.
 
But, I have discovered thru research, 1 in 4 people have a pituitary tumor that does not affect them in anyway.
 
Then, there are those 1 in 10,000 people who's pituitary tumor causes many problems for them.
 
The bottom line seems to be that pituitary disorders are rare and doctors who treat them are rare, too.
 
I live near NYC and have found only a few doctors familiar with pituitary disorders but none that specialize.  That really surprises me since this area is saturated with doctors of all kinds and we have a large population.
 
So, I plan to travel a couple hundred or more miles to see a specialist if my latest doctor cannot convince me he sees many patients like me.
 
I know someone here who saw a local Endocrinologist and a Neurosurgeon who said they could help her.  Her subsequent surgery was not done correctly and now she is seeking a pituitary specialist, too, to correct the problem.  How sad.
 
So, good luck and don't be afraid to look out of state.  It might be worth the trouble.
 
My geography is poor but I think you are closest to Los Angeles than other large cities.  If so, I have heard very good things about Dr. Shanian (spelling?).  More info on him is at www.pituitary.org website.
 
You might want to ask here and at www.pituitary.org and other groups about him or other doctors that may be in your part of the country. People seem to want to share their good experiences with doctors.
 
Good luck.  Thank goodness for Pituitary groups and their support.  I think I would go crazy if I did not know that many others were going thru this crazy problem, too.
 
Pam

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