Re: High PTH

[Pituitary Chat]

New Message on Pituitary Chat High PTH Reply   Recommend Message 5 in Discussion From: PT3688041 Hi Meri,   Yale is behind in their testing so I still do not have the results back for the MEN-1 testing. The genetic counselor told me to call back in 2 weeks to remind her if iIdo not hear before then. I went to the pituitary endocrinologist: My elevated calcium level is now back to normal but I have other signs of difficulty. Unfortunately, everything could also be attributed to other things. I have osteopenia which could also be attributed to my rheumatoid arthritis. I have lots of little kidney stones which also could be attributed to my wierd kidneys (medullary cell? sponge? kidney - I think I was just made wrong). They are testing for Vitamen D and PTH continues to be elevated. I think they are assuming there is a parathyroid adenoma. I got a couple of different versions of what happens if there is a tumor. Version 1: If I have MEN-1 they will take a wait and see position as the tumors tend to regrow after surgery and it is currently not causing major problems. Version 2 (I think this is if I was having more symptoms): Neck resection rather than laporoscopy so that all of the parathyroid glands can be checked and removed as needed. Since I am not having severe problems at this time I'm going for the wait and see approach. My nonpituitary endocrinologist thinks that a scan might be indicated as it's alsways possible that I have developed a single parathyoid adenoma not related to MEN-1. I'll keep you updated. By the way Kaiser is paying for the MEN-1 testing. View other groups in this category. Also on MSN: Start Chatting | Listen to Music | House & Home | Try Online Dating | Daily Horoscopes To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. Remove my e-mail address from Pituitary Chat.