Hi Beth,
I have enclosed some information that is on web md
http://www.webmd.com/vitamins-supplements/ingredientmono-907-CHLORELLA.aspx?activeIngredientId=907&activeIngredientName=CHLORELLA
18's
"Uncle" Marty
bkbar...@aol.com
to cmlhope
Dear "Uncle Marty", thanks for sharing your wisdom and
firmation on is controlling bad breath (think
> Certs) including doggy breath in man's best friend. Although helping with
> nausea does seem likely to me.
> Patrick
>
> --- On Sun, 8/12/12, Marty Gartenberg wrote:
>
>
> From: Marty Gartenberg
> Subject: [CMLHope]
Yes indeed Richard,
You stated that since all of these TKI's have been around that "I will die
of something else". You must remember that everyone who is born will
eventually have to die. So it is good to know that CML will not be your
undoing.
I am one of those members that you spoke about. I ha
Suzie, I wish you the very best of luck.
18's
Marty
On Wed, Aug 29, 2012 at 9:47 AM, Sheila Watson wrote:
> My take on the stopping of the drugs after being negative for several
> years, I think that is up to the person and their doctor. I, personally,
> did not feel comfortable in completely
Hi Skip, you sure do have a lot of complicated problems but the one thing
that really counts is that your still alive to have these problems. I mean
just look at yourself being a survivor with CML for over 35 years. That is
what really counts. I admire you for all of what you have gone through and
Hi Greenie,
Maybe you might want to have your doctor give you an MRI or CAT scan to
rule out any brain bleeds. It is probably like you say, the hot and humid
weather here in Florida, but why not be safe and have it checked out?
I also live in Florida and this heat and humidity also gets to me.
1
Hi Kelly,
I'm so happy to hear that everything is going so well for you.
18's, (symbol for life)
Marty
On Thu, Oct 4, 2012 at 10:57 PM, Richard H wrote:
>
> On Saturday, September 29, 2012 9:15:49 AM UTC-5, kellyelise wrote:
>>
>> Hi folks!
>> It's been awhile since I last posted...but, I had
E. Donnall Thomas, a physician who pioneered the use of bone marrow
transplants in leukemia patients and later won the 1990 Nobel Prize in
medicine, has died in Seattle at age 92.
The Fred Hutchinson Cancer Research Center announced the death Saturday. A
spokesman said the cause was heart disease.
http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm325895.htm
18's
Marty
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to this gr
Why are my posts not coming through?
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To u
Hi Millie,
As you can see your post to me did come through. Thank you for your reply.
I would like to answer your questions and comments so I will write in
between your lines in CAPS.
On Sat, Oct 27, 2012 at 12:13 PM, C.M. Houtz wrote:
> **
> *Hi Marty.Please let me know if this post gets
k among the nations and watch; be utterly astounded! For I will work
> a work in your days which you would not believe, though it were told you."
> Hab. 1:5
>
>
> -Original Message-
> From: Marty Gartenberg
> To: cmlhope
> Sent: Sat, Oct 27, 2012 2:54 pm
> Su
Hi Millie,
I think it is cruel to abandon any pets, especially birds. Once they are
domesticated and let out in the wild they become pray for other animals.
If they had dark colors on their wings then perhaps they were not Canaries
but Finches.
I hope that you start feeling better real soon
18'
Just so everyone knows. Sometimes insurance may be difficult to deal with.
It is up to you to go after what you should be awarded.
When I had my bone marrow transplant almost 23 years ago my insurance
company decided to only pay 15% of my bills. Their reasoning was that I was
given only a 15% chan
Everyone that is currently using Gleevec...
I have enclosed a web site that describes when the earliest Gleevec would
come out of patent.
There is also a field that you can put your email adderss in to in order to
possibly get some kind of a discount. I am not sure about this so do it at
your ow
ies for moving
> patients off Gleevec and on Tasigna to retain market share and
> profitability. There have been some news articles about this recently as
> well.
>
> ** **
>
> Best,
>
> Pat Elliott
>
> CML patient and patient advocate****
>
> **
Hi Suzieq,
You know that my prayers are with you. I wish you the very best and have a
very *HEALTHY *and *HAPPY *Thanksgiving.
18's
Marty
On Tue, Nov 20, 2012 at 2:32 PM, Suzieq wrote:
> Hello fellow CML Survivors!
>
> Having my six month check up tomorrow and will be important, I think,
> si
Hi Cammie,
Having CML and being depressed are one in the same. That is if you let it
be that way.
The way I look at it is to picture a child's See-Saw and your on one side
of it with all of your problems resting on your shoulders. This brings you
down.
Now start taking some of the good things in
Hi Millie,
I'm so sorry to hear about all of your problems especially about all the
pain that your in. Hopefully they will find the cause and will be able to
treat you.
As far as all the things you must do for the holidays, well, you know the
old saying.. "Take one day at a time" Whatever you can
ithin us
> Angie
> *From:* Marty Gartenberg
> *To:* CMLHope@googlegroups.com
> *Sent:* Sunday, December 9, 2012 10:38:43 PM
> *Subject:* [CMLHope] A girls last hope to beat Leukemia
>
> I would like everyone to read this.
>
> A girls last hope to beat Leukemia. It was actu
Hi Jeanie,
I'm not the warrior here because I have already gone through all of this.
If anyone is a warrior here it is you and Millie and all the rest of the
people with this disease. You are fighting and winning, and that is what
this is all about isn't it?
I read through all of the posts here a
es.
So, that's about it and I am just like Pop Eye the sailor man... I am what
I am.
It's all about attitude and most of all, hope. I would like you to read
something that was posted by someone about me.
Go to:
http://talkbloodcancer.com/content/window-martin-gartenberg
Or simply Goog
Hi Suzieq,
I would also like to wish you a very healthy and happy holiday season. It
looks like your doing real well and it should continue. Maybe in the near
future if your doctor thinks you could get off of it compleatly or just
drop the dose to 100. I would suggest that you run this by a CML sp
Hi Jeanie,
I just want to comment on something you wrote.
"but then I wonder what the drugs are doing to my body. Well, the leukemia
kills, so better to just face it head on and live with it"
Jeanie, now your getting the idea. No matter what your going through your
still alive to go through it.
When someone has CML or any other type of cancer, then they also have a
certain amount of depression as well. Some more then others but it is just
an emotion that we as humans all share when we are ill. It doesn't
necessarily have to be from the Gleevec or any other type of TKI's, but the
fact that
Hi Marcie,
Fighting Leukemia is a tough battle, but as you have proved, it can be done.
You now have your Christmas Present called PCRU[?]
I wish you many more years of HEALTH and HAPPINESS.
18's (stands for life)
Marty
On Fri, Dec 21, 2012 at 1:05 PM, wrote:
> Finally - PCRU after 3 3/4
Hi Marcie,
l'chaim, another way to say 18's.
Take care of yourself and enjoy another happy and healthy New Years.
18's "l'chaim"
Marty
On Sat, Dec 22, 2012 at 11:20 AM, wrote:
> l'chaim
--
[CMLHope]
A support group of http://cmlhope.com
-
Y
Hi Jeanie, welcome back.
Yes Jeanie, GOD has given you these past nine years, as he has also given
me the past twenty three years, but GOD helps those that help themselves.
It is also you that helps you have these past nine years, and your going to
help yourself have many more.
Merry Christmas an
My eyes are full of tears and there is an apple stuck in my throat. This
reminds me of something that happened a very long time ago. Unfortunately
it didn't have such a happy ending.
Here is something with a happy ending I would like you to watch.
18's (Symbol for life)
Marty
http://www.dailymo
Hi Again Dawn,
The video I sent you first has an advertisement so just ignore it.
18's
Marty
On Wed, Dec 26, 2012 at 2:51 PM, DAWN RODEGHIER wrote:
> *To all my cml fighters: This is one day late getting out but I was busy
> like the rest of you warriors and time got away. But here is a good
Hi Jeanie,
You seem to have gone through a lot with everything that happened to you
and your husband. From this new year on may you be blessed with things that
will make you live life to it's fullest and have some joy in your life.
18's
Marty
On Tue, Jan 1, 2013 at 4:03 PM, wrote:
> **
> Than
Hi Doris-bmt,
According to web-md a rare side effect of Gleevec is Retinal Hemorrhage as
well as Eye Bleeds.
Although I have never been on it, I had a bone marrow transplant almost 23
years ago, I have heard of this happening many times with people taking
Gleevec.
It usually subsides in a short
HI JEANIE,
THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY ABDOMEN. IT DROVE
ME CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL AORTA
THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. WHICH IS A
BLOOD THINNER.
18'S
MARTY
On Fri, Jan 25, 2013 at 10:59 AM, wrote:
> **
> Hi
Hi Jeanie,
The Warferin did make that beating go away. It wasn't so much the pain just
like a very uncomfortable feeling.
I think that you should discuss this with your doctor. You should get an
ultrasound to see what if anything is going on.
18's
Marty
On Sat, Jan 26, 2013 at 3:07 PM, wrote:
Hi Jeanie,
I'm not talking about the aorta of the heart but rather the abdominal aorta.
18's,
Marty
On Sun, Jan 27, 2013 at 4:21 PM, wrote:
> **
> Hi Marty and will do. He does an ultrasound of my heart yearly but don't
> know if that includes the aorta scan or not. I'll ask him. He is aw
I did some research and here is what I found out about what to avoid while
taking Gleevec. Please remember that I have never been on any TKI's because
I had a bone marrow transplant many years ago. I just do a lot of research.
Hopefully this will be able to help you, and others as well.
Gleevec I
This at first this seems to be a joke, but it teaches us something. Just
because you have a disease like CML it shouldn't change your life so much
that it effects the way you are, and how you live.
A 65 year old woman had a heart attack and was taken to the hospital.
While on the operating table s
Hi Skip. I keep on telling you that your still here for a reason. Just like
Mommy Lottie was also here for a reason. I guess that she finished up with
her reason.
By the way, have you noticed that Tracy never even posted anything and she
never even signed Lotties obituary columb.
Some bitch face,
And hi right back at you. You didn't leave your actual name so I don't know
who to address this to.
All of what your now going through is what initially happens when your
first diagnosed with CML and then put onto a TKI which Gleevec is one of.
Some of the symptoms that you are experiencing may ge
Hi Jeanie,
I would like to shake your son's hand for insisting that you go see a
doctor when you started having all of those problems. Sometimes we just
don't want to believe that something may be wrong with us and we just
procrastinate. Your not the only one because when I first knew something
wa
hen I first got sick.
> My spleen was never a problem. But I do remember pain in my left side over
> the years
> I was wondering how many patients were hospitalized and their blood
> cleansed when first dx.
> More later. Jeanie
>
> Sent from my iPhone
>
> On Mar 13, 2013, at 1
ite blood cells being
>> cleaned out of my blood. I have it all written down in my faith journal
>> that I started
>> When I first got sick.
>> My spleen was never a problem. But I do remember pain in my left side
>> over the years
>> I was wondering how many pa
Hi Ted and everyone else that is taking Gleevec.
There was a court case in India that sued and won against Novartis for it's
patent rights on Gleevec. Please go to this web site and read all about it.
http://www.reuters.com/article/2013/04/01/us-india-novartis-patent-idUSBRE93002I20130401
On We
p/opla/term/156.html
>
> http://www.uspto.gov/web/offices/pac/dapp/opla/term/certs/5521184.pdf
>
> God bless us !
>
> Ted in China
>
>
> On Thursday, April 11, 2013, Marty Gartenberg wrote:
>
>> Hi Ted and everyone else that is taking Gleevec.
>>
>>
Hi Peg and everyone else.
Just so you know, Novartis was sued by some people in India over the patent
rights of Gleevec and they won the law suit. Now, this means that India is
now allowed to use a generic drug instead of the original Gleevec.
So, with this said, Gleevec may just become a thing o
roblem
> with what I receive or is it that cml 2 and hope are just being quiet...
> MARTY how are you feeling, I do hope your well. Anyway I am slowly getting
> back
> SkipD
>
>
>
>
>
> *From:* Marty Gartenberg
> *To:* cmlhope@googlegroups.com
> *Sent:* Tuesday, A
Hi Millie,
You just said something that shows me what type of a person you really are.
You said that you are working to make yourself feel better. Maybe not in
those exact words but the same idea. I would like to send you something
that was given to me when I had my bone marrow transplant. It was
Hi Beth,
I just have one thing to say in answer to your post. You wrote "Isolation
and fear are powerful tools" Indeed they are, but do you want to know a
much more powerful tool? It's your Mind.
18's,
Marty
On Fri, Apr 19, 2013 at 1:28 PM, wrote:
> Dear Skip, Marty, Millie, and all those wa
n Fri, Apr 19, 2013 at 9:30 AM, Marty Gartenberg wrote:
> Hi Millie,
>
> You just said something that shows me what type of a person you really
> are. You said that you are working to make yourself feel better. Maybe not
> in those exact words but the same idea. I would like to send
Dear Marcie,
I too have been to Israel and also placed several "notes" into the cracks
of the Western Wall for others suffering from cancer.
I would very much like if you could place a piece of paper in one of the
cracks of that wall.
My email address is wa2...@juno.com. If you would kindly cont
This is actually the story of my life. You are all my friends and I value
your friendship and wanted to share this with you. Now, before you read the
rest let me explain what a keeper really is to me. Anyone can be a keeper.
I have seen it many times, a wife helping her husband, a husband helping
h
er one is going through. There is so
> much warmth and caring and even though it's the internet, I feel surrounded
> by it all and, believe me, it helps me through some rough days. Marty, you
> are one of the best and I do hope that whatever you put in the wall comes
> to be.
Hi Richard,
As I said on the other site, I wish you the best of luck.
18's
Marty
On Wed, Apr 24, 2013 at 6:16 PM, Richard H wrote:
> My tests show a sharp increase in counts indicating that my Gleevec
> vacation is coming to an end. I will complete my 5th year off Gleevec by
> being retested
MY LIFE HAS BEEN AN ADVENTURE OF SORTS, AND THEN IT'S WINTER.
You know. . . Time has a way of moving quickly and catching you unaware
of the passing years. It seems just yesterday that I was young, just
married and embarking on my new life with my mate. Yet in a way, it
seems like eons ago, and I
ld you."
> Hab. 1:5
>
>
> -Original Message-
> From: Marty Gartenberg
> To: CMLHope
> Sent: Sun, Apr 28, 2013 7:46 am
> Subject: [CMLHope] AND THEN IT'S WINTER.
>
> MY LIFE HAS BEEN AN ADVENTURE OF SORTS, AND THEN IT'S WINTER.
>
> You know.
to deal with each day and do the best I can. Thanks
> Marty..Millie*
>
> - Original Message -
> *From:* Marty Gartenberg
> *To:* CMLHope@googlegroups.com
> *Sent:* Sunday, April 28, 2013 7:46 AM
> *Subject:* [CMLHope] AND THEN IT'S WINTER.
>
> MY LIFE HAS
Hi Angie,
Many years ago after my bone marrow transplant I would get the most painful
cramps in almost every part of my body but it was my legs that was the
worst of all.
This went on for a long time until one of my friends told me to start
taking Magnesium. I did and no more cramps. Maybe you mi
Hi Greenie,
I am so happy to hear about you getting a years supply of Gleevec at no
cost to you.
I kind of know how you felt about having a one years supply of Gleevec with
you. I'll bet that you kept turning around looking for anyone that might
want to steal it from you.
I experienced the same
Hi, I have never been on Gleevec or any other TKI's. I had a bone marrow
transplant, and I also get these same kinds of back pain you describe. They
feel like they are in the center of my back in the middle of my rib cage
like someone was pushing down on my shoulders. When I lay down they seem to
g
Hi Millie,
I'm just checking up on you. Did you get those tests done yet? I hope that
everything turned out well for you.
18's,
Marty
On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz wrote:
> **
> *Hi Marty.It is good to see you one line. I will keep you in my
> prayers and pray that you hea
Hi Jeannie,
All I can say is WOW!!! You sure that you have Leukemia? With counts like
that it sure doesn't show.
Don't worry about your sugar counts just try and eat more sensibly, and
that includes your Cholesterol
As Far as your Creatinine, it is fine don't worry about it. Your doing
remarkabl
Hi Suzieq,
just something to think about... When I was first diagnoised they started
me on Hydroxy Urea and Allopurnial. It wasn't the hydroxy that I questioned
because I knew why they were giving it to me. It was the Allopurnial. That
is used for controlling the gout. I was told that having CML t
Hi Millie,
sorry it took so long to get back to you. Since I am on dialysis it is
sometimes difficult to do what I want. However we are both fighters so that
is what we know how to do. Even with all of your problems you are still
hanging in there and so am I.
As far as 18's well that is what we a
Hi Suzieq,
Yes cheries are good at preventing the gout. However most cherry juice is
made with other ingredients such as grape juice which won't do a thing to
help prevent the gout. If fresh cheries are in season that would be a much
better choice. I eat pounds of them when they are in season.
Th
Hi Terri,
It looks like someone has hijacked your email address.
[CMLHope] Hello
Inbox
x
Terri Migut
6:06 AM (2 hours ago)
to rentals, willzkane, cpaquet33312, malrburnside, luff2000, zertuche_aldo,
cteeter21, linda.alfwebb, drsliger, 605-873-2852, dynamodj, cmlhope
http://www.paulfilm.pl/_invit
Hi Suzieq,
Well your on the right track about that cherry juice, however you need to
stay far away from that cherry wine, or anything that contains any alcohol.
That is a no no for the gout.
You know if that cherry consentrate juice cost $18 then if it helps you
with the pain it is worth every pe
Hi Jim,
I happen to know someone by the name of Jim Thompson that lives on Staten
Island. Could this be you? If it is then we sure do live in a small world.
18's (symbol for life)
Marty
On Fri, May 17, 2013 at 9:59 AM, jim thomson wrote:
> Hello, I saw the problems that you have been having
Hi Suzieq,
I forgot to mention that anything that you eat or drink that contains
purines can cause the gout. There are several that are very high content of
purines. Sea food like crustaceans but usually not fish, Wine, and
especially beer. Green leafy vegetables like spinich, then Mushrooms. Red
Hi Suzieq,
So happy to hear that your gout is respomding to the cherry juice and dried
cherries.
Cherries are back in season and I eat them like they are going out of
season and haven't had any gout.
Sorry that "I am killing you" with this advice but you now know that the
one tip I gave you is r
Good now see if that helps but remember all or most of the other foods.
Simply try cutting back on them. Hey you have to live and enjoy your life
but in moderation.
Let me know.
18's
Marty
On Fri, May 31, 2013 at 9:52 AM, Suzieq wrote:
> Marty:
>
> I certainly have done away with the wine. L
Please read on, this may also be linked to Leukemia. This article doesn't
make any distinction about which type of Leukemia, but still why put
yourself at risk.
Study Links Aspartame To Fast-Paced Decline in Kidney Function
June 2, 2013 by Arjun
A study published in the Clinical Journal of the Am
Hi Sylvia,
First, welcome back to the group. How well I remember those "good" olden
days of when gleevec first came out. Unfortunately it wasn't around when I
was diagnoised with CML in 1989. The only thing at the time was interferon
but for me it would have a blind study case weather I would get
Hi Angie, I wish you the very best of luck on your Gleevec "holiday" Yes,
12 years is a long time.
18's
Marty
Number 1 on Zavies Zero List. I sure do miss him.
Disgnosed July 1989
Bone Marrow Transplant May 21St 1990 (23 years ago)
On Tue, Jun 4, 2013 at 11:13 PM, ANGELYN ESDERS wrote:
> I s
Hi Suzieq,
I'm glad that my suggestion about eating cherries both fresh and dried is
really helping you. You may also try some cranberry juice but first run it
by your doctor.
Cranberry juice helps flush out your kidneys. Just make sure that it
doesn't contain any grape juice as an additive. If y
Hi Suzieq,
Hey I want to know what your mother eats for breakfast. Being 81 and in
relatively good health except for the falls says a lot about her.
I am also happy to hear about your brother always being there to help her
out. Shows very good charactor.
Anyway, I will be leaving Florida tomorro
Hi Jeanie,
Of course eating or drinking anything in moderation is fine but not
alcohol. That is sure to trigger a gouty attack if your uric acid is high
to begin with.
Your father eating fish was alright. Depending on which fish he liked
probably wouldn't effect his gout. However it is not fish i
Dear Marcie,
What an exciting trip you had. I have been there a few years ago.
18's,
Marty
On Fri, Jun 21, 2013 at 10:08 PM, Marcie Goodman wrote:
> Me in the hat and my sister at Haddasah Hospital, Ein Kerem, outside of
> Jerusalem, next to a line from one of my favorite Hebrew poems, A Woman
YEAH!!
Looks like your an 18's
Marty
On Tue, Jun 25, 2013 at 3:15 PM, Richard H wrote:
> My tests show a sharp *decrease* in counts indicating that my Gleevec
> vacation is going to continue. I will complete my 5th year off Gleevec
> next week. I will be testing again in December. I will b
Hi Wesley,
First, I have never been on any of the TKI's but had a bone marrow
transplant more then 23 years ago. So that you understand more about
fatigue, it could be caused by a lot of things but in your case I would
suspect that the Gleevec may be playing havoc with your red blood cells as
well
day and night and a healthy diet. Obviously, this is not a one size fits
> all answer.
>
> Hope you are doing well. How are things going now that you are at your
> summer home?
>
> 18s, my friend.
>
> Marcie
>
> Sent from my iPad
>
> On Jun 26, 2013, at 8:24
> You also Beth. Both of you are survivors! Keep that in mind when you have
> any problems that may be a bit difficult to deal with.
>
> 18's
>
> Marty
>
>
>
>
> On Fri, Apr 19, 2013 at 9:30 AM, Marty Gartenberg wrote:
>
>>Hi Millie,
>>
>
although I must admit
> today I feel much better today than in months. going back over me email I
> do not see much in the way of email, is there a problem
> with what I receive or is it that cml 2 and hope are just being quiet...
> MARTY how are you feeling, I do hope your well. Any
Dear Millie,
I wish you good luck with your upcoming tests. Funny you should mention
Monday, Wednesday and Friday. Those are my dialysis days. You and I and
just about everyone here simply has to do whatever we all need to do. Stay
alive but also try to live our lives as best we can.
It sounds li
Skip, your like the rock of Gibralter!
18's
Marty
On Wed, Jul 3, 2013 at 9:29 AM, Skip Duffie wrote:
>
> *.Hello all *
> *thanks for including me in your email. I was on sprycel and after while
> I had to have my chest drained.*
> **
> *over a two month period I had to have 8.5 lts of f
I also wish you the best of luck with your liver biopsy. I am praying for
you.
18's
Marty
On Thu, Jul 4, 2013 at 5:12 PM, C.M. Houtz wrote:
> **
> *Hi Suzieq,*
> *I have had those injections in the past, and for years they worked for
> me most of the time. I have given up on pain management
Your welcome Beth
18's,
Marty
On Sat, Jul 6, 2013 at 1:34 AM, wrote:
> Dear Marty,
>
> I so appreciated your keeper story..just loved it.. Thanks so much for
> sharing. Beth
> -Original Message-
> From: ICANDOALLTTC
> To: cmlhope
> Sent: Wed, Jul 3, 2013 9:20 am
> Subject: Re: [CM
Hi Millie, even with all of the delays I'm glad that your test went well
and there was no pain involved. Praying for good results
18's
Marty
On Sat, Jul 6, 2013 at 6:27 PM, C.M. Houtz wrote:
> **
> *Hi BethOther then the long wait to have it done, the day went fine.
> I left my house at 6
Dear Millie,
I think that your doctor gave you some sound advice. Just try and take it
easy and you must learn to do that each and every day.
Anyway, I am glad to hear about your son. I know that it must have been
very difficult loosing your daughter and having to bring up her son as you
and him
Hi Millie,
I have come to know that there aren't any coincidences in life just things
that are meant to be. The Hebrew word for that is BASHERT.
So, for example, your husband is 83 years old. He went through a very bad
accident many years ago and he is still doing fine, thank GOD. This simply
was
That's right Beth, I always say 18's. We must all help each other because
we are all in this together. Not so much me because I already traveled
through this journey. However, I always try to help others simply because
it is the right thing to do.
Times have changed so much since I fought my battl
Hi Marcie and everyone else.
What else can I say about having to go through life having CML? Well, there
is actually a lot that I can say about having CML.
So, let me start... You have to remember having and living with CML is no
longer a "death sentence" as it once was. In 1998 when I was first
intend to find out because I think it would be
> fantastic if our group could have a conference call at least once or twice
> a month.
>
> Take good care.
>
> Much love and 18s,
>
> Marcie
> -Original Message-
> From: Marty Gartenberg
> To: cmlhope
> S
Millie,
Sorry to hear about your liver problems. Yes they do transpalnts even if
you have CML. Just so you know the liver would probably come from a cadaver
also you can get part of a living persons liver so if you know anyone that
has the same blood type as you do and they are willing to donate t
Hi Richard,
Well to be honest with you I must have been cut from the same mold that you
were. However, there is one big difference. I am on dialysis and my energy
level is next to nothing after my treatments and for the next day afterward
then it's back again to another dialysis treatment and so o
Hi Millie,
You want to know something? No matter what you are and have been going
through your still here and kicking. You Millie are just like that pink
ever-ready bunny. You just keep going and going. You ended your last
statement with *That's what we all do, so nothing new..!*
*
*
*Well
Hi Susan,
Sure you may have your problems but the important thing is that you have
decided to try and do something about them. You are no different then
anyone else. Sometimes we just go through so much that we are terribly
frightened to do anything about them because anything that is of the
unkno
ing My Life!!!
>
> Oh, by the way, I asked Dr. Pinilla through e-mail about the vaccine he
> was working on, but he only answered me about his recommendation of
> medication and two docs he recommended. I guess I asked him too many
> questions for him to answer.totally understan
Thank you and the very same to you Jeanie.
18's
Marty
Good luck Marty with everything.
Blessings,
Jeanie<3
On Sat, Jul 27, 2013 at 4:10 PM, wrote:
> **
> Good luck Marty with everything.
> Blessings,
> Jeanie<3
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
Hi Terry,
Nice to see you here on this forum. I was wondering what happened to you.
Sorry to hear about your kidney problems. I also have kidney failure and am
on dialysis. All of this started over 23 years ago from all of the chemo
and radiation I had for my bone marrow transplant and as time we
Dear Millie, you have been through so much, but you are a very strong
person. I wish you the very best of luck
18's
Marty
On Wed, Jul 31, 2013 at 12:46 AM, C.M. Houtz wrote:
> **
> *Hi all, I did tell you I'd let you know how my Doctors visit went
> today. Well, we did straighten a lot out,
1 - 100 of 890 matches
Mail list logo
