>> wrote:
>> Hi Jeanie,
>>
>> Yep, have taken levothroxine since I was 30. Still on it without incident.
>>
>> Much love to all and 18's
>>
>> Beth
>>
>>
>> -Original Message-
>> From: 'Jeanie' via CMLHope
>
th
>>
>>
>> -Original Message-
>> From: 'Jeanie' via CMLHope
>> To: cmlhope
>> Sent: Tue, Jul 17, 2018 10:58 am
>> Subject: Re: [CMLHope] Re: Sudden problem after twenty years.
>>
>> Anyone have a thyroid problem?
>>
>> My
Hi Jeanie,
Yep, have taken levothroxine since I was 30. Still on it without incident.
Much love to all and 18's
Beth
-Original Message-
From: 'Jeanie' via CMLHope
To: cmlhope
Sent: Tue, Jul 17, 2018 10:58 am
Subject: Re: [CMLHope] Re: Sudden problem after twenty years.
Anyone
Great drug! I have been taking it for many, many years. What dose is he on?
18's,
Marty
On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich wrote:
> Jeanie,
> My husband has had hypothyroidism for years…..before he got CML. It never
> caused him any problems. It was diagnosed at a regular
Jeanie,
My husband has had hypothyroidism for years…..before he got CML. It never
caused him any problems. It was diagnosed at a regular office visit with a
blood test. He takes levothyroxin and has regular blood tests.
Joyce in Southern Illinois
> On Jul 17, 2018, at 10:57 AM,
Anyone have a thyroid problem?
My Motto:
Faith and Pills
With Love
Jeanie
free
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired
0 CBL. ABL
Hi everyone
My daughter is flying to Turkey for a Persian wedding tomorrow. Please pray for
her and family.
I found out the reason they are all going to Turkey is that it is a neutral
country that Persians and Americans can all meet in without a lot of
regulations. I thought that was very
Okay Jeanie,
Since there is a lot to talk about I will do it between your lines.
Hi
That’s cute
When I first started dating my hubby I was 16. When we went to leave I
hugged and kissed my mom and dad goodbye. He told me later he had never
seen that before.
OH I DID, BECAUSE MY PARENTS CAME FROM
Hi
That’s cute
When I first started dating my hubby I was 16. When we went to leave I hugged
and kissed my mom and dad goodbye. He told me later he had never seen that
before. His mom and dad never hugged or kissed him. It was just the way we
were.
Kiss goodbye and kiss hello.
Same way
Jeanie, And I love you to, but when you say " Love you so very much" Do you
mean like hugging me so much that your going to crush me until my ribs
crumble?
Ah yet another opportunity to let me say again...
18's,
Marty
On Fri, Jul 13, 2018 at 9:16 AM, 'Jeanie' via CMLHope <
So true Marty
You aren’t even on tki’s and look what you’ve been through.
Thank you for this email.
Love you so very much
Jeanie
My Motto:
Faith and Pills
With Love
Jeanie
free
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/
Hey Richard, yea, I used to say that to. The point is that we all care
about each other.
Besides it gives me another opportunity to say this again...
18's,
Marty
On Fri, Jul 13, 2018 at 12:02 AM, Richard H wrote:
> GULP!!
>
> 18's Richard H.
>
> On Saturday, July 7, 2018 at 1:04:15 PM
GULP!!
18's Richard H.
On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote:
>
> I suddenly became terribly anemic and my doctor cut my intake of 400mg
> Gleevec daily in half. It took five months but I am no longer anemic and
> the CML does not seem to have become visible as yet.
Richard, how close can we get? You and I are like blood relatives. I'll bet
you that we even have the same brand of pace-makers. And I am very happy to
be browbeating you, because I have been browbeaten by the best of them.. My
wife. Let's hear it from the rest of you gal's and guy's. It is my
Thanks Marty. Yes you are correct. My ONC, My second Neurologist, and my
Heart Specialist are aware of this. I am on reduced Gleevec, Neurologist
is totally involved and if/when the counts become higher he will make his
recommendation, and Heart specialist has me on the latest .
Hi Marty
You are so right. I admire you so much for fighting bravely every hardship that
life has handed you. I feel privileged to have met you and have learned so much
from you.
This thyroid problem is just another battle to go through. Thanks for
everything.
Love
Jeanie
My Motto:
Faith
Richard and all, just like Jeanie wrote. do you know what a THS level is
all about? Let me post an article:
Below I
I
I
Richard has your oncologist mentioned that you should be on a blood
thinning medication? Even 81mg baby aspirin? So why are you worried about
a stroke
Hi Richard and all
I take Ponatinib and one of the main side effects is stroke and blood clots
along with many more. I knew this going in and since I was in blast I knew I
had to do something.
My onc advised an aspirin daily which I take. So far it is all working. Blood
counts are good however
Richard, now I know what your problem is. It is your kidney function being
3 what is your doctor doing about this? That is why your HGB is so low. Do
you have a nephroligist near you? if so then go see him or her. Do it as
soon as you can. Because it is not to late. When I had to go onto Dialysis
Thanks Marty. Yes hemoglobin below 10. and himeric below 30 is correct..
That is for time to allow it to start doing its work and then will go
toward normal. If I take it just over then the counts build over the
normal level.
Just trying to maintain that level just below normal according
Oh Jeanie,
first let me take you back to something I wrote to Richard
I have heard a lot of people mentioning that they blame some of the TKI
that they are taking. Perhaps that may be so, but what if it isn't that at
all? That is why they need to consult with their doctors because that is
his or
Hi all
I had this problem when on Tasigna. My hmg dropped to 8. I argued with my onc
as I didn’t want someone else’s blood in me. I knew if he would take me off the
tasigna the hbg would come back up. He finally talked me into it and I had to
stay for hours getting transfusions. As most of you
Richard, first thing is when your hemoglobin drops to 10 or below then is
the time that procrit generic Epoetin Alfa should start. It should increase
your red/hemoglobin count. However it may take a week or two to start
showing results. Why don't you mention this to your doctor.
Also, have your
Yes, I have been struggling with this for years. I have had Transfusions,
and now check my CBC every month to see if I need to take Procreate to
bring my blood level back up. I am currently on 200 mg Gleevec daily
because my CML levels will rise if I don't use it as a maintenance
feature. I
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