Re: [CMLHope] Pictures

called CML and let's not forget that. >>>>> >>>>> There are so many stories that surrounds us and every one of them are >>>>> meant to be. We all stand here and try help each other. Why? it's because >>>>> it is meant to be. We

Fwd: [CMLHope] Ron can you add Wendy to our group. She needs Marty's and others advise. Thanks.

; > > Sent from my iPhone > > Begin forwarded message: > >> From: "'Jeanie' via CMLHope" <cmlhope@googlegroups.com> >> Date: May 31, 2016 at 4:46:08 PM EDT >> To: cmlhope@googlegroups.com >> Subject: [CMLHope] Ron can you add Wendy t

Re: [CMLHope] Pictures

em are meant >>> to be. We all stand here and try help each other. Why? it's because it is >>> meant to be. We give of each other, and also to each other, and you know >>> what I am talking about. It is all about trying to live our lives the best >>> way tha

[CMLHope] Anyone heard from John? I'm worried.

Anyone heard from John? He's on Ponatinib like me. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to

Re: [CMLHope] Check out MyNMs MyChart - Test Details

Couldn't open it. Required password. Blessings. Sent from my iPhone > On Jun 7, 2016, at 10:03 AM, Myvety2k via CMLHope > wrote: > > MyNMs MyChart - Test Details > > Hi Group, I received some results from Northwestern this morning from years > passed and I have

Re: [CMLHope] Check out MyNMs MyChart - Test Details

lt;wa2...@gmail.com> wrote: > > Jeanie, > > It appears that your following in the foot steps of 18's... Just march ahead > Jeanie > > 18's, > > Marty > >> On Thu, Jun 9, 2016 at 9:55 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com>

Re: [CMLHope] Check out MyNMs MyChart - Test Details

Here's mine: BCR/AbL Quantitive test results low positive for BCR/ABL P210 transcripts were detected less than 0.0008% IS MMR 0.1% IS Molecular Response 4.0 (MR4) 0.1% IS Molecular Response 4.5 (MM4.5) 0.0032% iS This is after over a year on Ponatinib Blessings Sent from my iPhone > On Jun 7,

Re: [CMLHope] Pictures

t; >> There are so many stories that surrounds us and every one of them are meant >> to be. We all stand here and try help each other. Why? it's because it is >> meant to be. We give of each other, and also to each other, and you know >> what I am talking about

[CMLHope]

YOUR WORTH IT. FINALLY, AND YOU CAN ASK JEANIE AND EVERYONE ELSE ON THIS CML SITE ABOUT WHEN EVERY TIME I END A POST I SEND ALONG TWO NUMBERS AND LET ME INTRODUCE YOU TO THEM AND WHAT THERE MEANING IS... 18's WHICH MEANS LIFE Marty > On Mon, May 30, 2016 at 8:48 AM, 'Jeanie' via CMLHo

Re: [CMLHope] Pictures

;>> For instance this site, and everyone that reads it or posts on it are meant >>> to be because all of us are still kicking (as you said) and we all share >>> this disease called CML and let's not forget that. >>> >>> There are so many stories that surrounds

Re: [CMLHope] About John Hopkins Cancer Update

Oh no!!! I'm so sorry. I'm there with you in sprit and love for your family. This is so hard I know. I am praying for you right now. Love Jeanie My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started

Re: [CMLHope] About John Hopkins Cancer Update

gt; > 18's, > > Marty > >> On Mon, Jun 13, 2016 at 6:07 PM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Our food today is full of junk. You would have to grow everything yourself >> and use no fertilizer or pesticides. You can't even b

[CMLHope] Let us know if you need anything Greenie

We are here for you. Let us know if you need anything. ❤️ My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center -- -- [CMLHope] A support group of

Re: [CMLHope] About John Hopkins Cancer Update

So true Marty. When I lost my Hubbie I could feel him everywhere. I even saw him standing at the refrigerator door where I had seen him so many times. Love will sustain you and yours. ❤️ My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started

Re: [CMLHope] About John Hopkins Cancer Update

ion on >> the lower part of my left leg, that I got I got last week. They had to admit >> me and I was started on Vankromycen IV for the last week and just got home >> today. >> >> Just another small bump in the road for me. >> >> I hope that everyone

Re: [CMLHope] About John Hopkins Cancer Update

So young. Did he have heart problems? My niece lost her son much the same way. He was playing baseball and just passed out. He was in his 30s. Blessing to you and all. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started

Re: [CMLHope] About John Hopkins Cancer Update

imply > change your attitude as I once did. > > I prefer to live my life as best as I can, no matter what I go through > because I never forget that there may be some bumps in the road but there > also some very good times going along that road as well. How about you? > >

Re: [CMLHope] About John Hopkins Cancer Update

l that you need to do is to simply > change your attitude as I once did. > > I prefer to live my life as best as I can, no matter what I go through > because I never forget that there may be some bumps in the road but there > also some very good times going along that road a

[CMLHope] To Marty advise

I was wondering if you could give her some advice. She is set up for a BMT but can't decide. Thanks Sent from my iPhoneI love to see people get on this page and talk about living with CML rather than dying from CML... I believe if you truly want to see the face of cancer walk into a

Re: [CMLHope] To Marty advise

THROUGH THIS, BECAUSE IT IS JUST A BUMP IN THE ROAD. > > YOU KNOW I TELL YOU LIKE IT IS SO MAYBE IT IS TIME TO DO WHAT YOU FEEL IS > BEST. > > I LEAVE YOU WITH SOMETHING ELSE, IT TOOK ME ALMOST TWO HOURS TO WRITE THIS TO > YOU, AND DO YOU WANT TO KNOW WHY? IT IS BECAUSE YOUR WO

Re: [CMLHope] Pictures

Thank you so very much Marty. If I knew then what I knew today I think I would have Had the transplant. My onc at that time thought I Was too old. However I'm still alive and kicking After 4 tkis. I am sick; I can't seem to kick this flu. Just resting after my vacation. I sure had a good

[CMLHope] Ron can you add Wendy to our group. She needs Marty's and others advise. Thanks.

Wendy's email. caligirlny...@aol.com Sent from my iPhone > On May 30, 2016, at 8:48 AM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > wrote: > > I was wondering if you could give her some advice. She is set up for a BMT > but can't decide. Thanks > > Sent

Re: [CMLHope] About John Hopkins Cancer Update

gt; >>> But Jeanie, you now can see what my father taught me and just look right >>> into your heart and mind... By the way Jeannie, your heart and your mind >>> are very powerful tools. >>> >>> Sorry about the loss of your "Hubby" >>&g

[CMLHope] How is everyone

Checking in. How is everyone I hope very good. I am worried about Marty. Has anyone heard from him? I have been sick again. Seems this flu just won't go away! Let me know how you are all doing. Blessings! My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004

Re: [CMLHope] Ferone treatment

There are better treatments now. I'm on Ponatinib and its working good. I take 1 15 mg pill daily. I've been on most of the tkis. I got mutants on all except the one I'm in now.Yes go to specialist. Blessings. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started

Re: [CMLHope] Tasigna and Lipitor

I haven't taken any of those drugs but I would quit the drug and get back with your doctor. What you are experiencing are side effects of Crestor. Good luck. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel

Re: [CMLHope] Re: Fatigue side effect nilotinib

Yes rest when you can. Light exercise if you can. Drink lots of water. Eat good. Massage is good. Be sure to get blood tested often. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015

Re: [CMLHope] Fatigue side effect testing nilotinib

dragging with this ongoing virus..am > going to restart sprycel cell very soon...will keep everyone updated..love, > Beth > > > -----Original Message- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: F

Re: [CMLHope] Anyone out there. Testing

esday, July 12, 2016 8:06 PM >>> Subject: Re: [CMLHope] Anyone out there. Testing >>> >>> Hi Jeanie, >>> >>> I'm out here in the heat & humidity trying to stay cool.  >>> >>> Sherri >>> >>> On Tue, Jul 12,

Re: [CMLHope] Fatigue side effect testing nilotinib

able...I lost 6 weeks in a > blink! > > Hope life has calmed down for those struggling this summer and that we all > can find some joy in the weeks to come! I hear there are some sweet movies > out guaranteed to make you smile...so I am going to look into this.......:) >

[CMLHope] Anyone out there. Testing

My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center -- -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] Fatigue side effect testing nilotinib

il.com> wrote: > > Thank you all for the feedback. I am trying acupunture and guaraná. > > Em 28 de jun de 2016 11:39, "'Jeanie' via CMLHope" <cmlhope@googlegroups.com> > escreveu: >> When I was first in Gleevec I wanted to go visit my daughter. She cal

Re: [CMLHope] Anyone out there. Testing

gt; >> On Tue, Jul 12, 2016 at 11:03 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> >> My Motto: >> Faith and Pills >> With Love >> 18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started T

Re: [CMLHope] Anyone out there. Testing

;>> From: sherri swanson <swanson@gmail.com> >>> To: cml...@googlegroups.com >>> Sent: Tuesday, July 12, 2016 8:06 PM >>> Subject: Re: [CMLHope] Anyone out there. Testing >>> >>> Hi Jeanie, >>> >>> I'm out here in the

Re: [CMLHope] New BCR-ABL test in

Great news!!! Keep fighting. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Jul 13, 2016, at 6:56 AM, Myvety2k via CMLHope

Re: [CMLHope] Anyone out there. Testing

To: cmlhope@googlegroups.com > Sent: Tuesday, July 12, 2016 8:06 PM > Subject: Re: [CMLHope] Anyone out there. Testing > > Hi Jeanie, > > I'm out here in the heat & humidity trying to stay cool.  > > Sherri > > On Tue, Jul 12, 2016 at 11:03 AM, 'Jeanie' via

Re: [CMLHope] Fatigue side effect testing nilotinib

us know how you are. > > God bless and keep you. > Joyce in IL >> On Jul 12, 2016, at 11:04 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Anyone there. Testing >> >> My Motto: >> Faith and Pills >>

Re: [CMLHope] Fatigue side effect nilotinib

When I was first in Gleevec I wanted to go visit my daughter. She called and I told her I was too tired to pack. She said don't pack get some rest. So my advise to you is don't do anything you don't have to do. Rest as much as you can. Your body is fighting a horrible disease and its

[CMLHope] Happy Fourth Of July

Hello to all my wonderful warriors. I am hanging in there and blood is almost normal. Wbc came down to 9 but would like them a little lower but thank God I am back in MMR. I would like to hear from all; just a note to know how you are.  My Motto: Faith and Pills With Love

[CMLHope] Testing

My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center -- -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] Fatigue side effect nilotinib

PM, Ricardo Gadelha <ricardodgade...@gmail.com> wrote: > > Thank you all for the feedback. I am trying acupunture and guaraná. > > Em 28 de jun de 2016 11:39, "'Jeanie' via CMLHope" <cmlhope@googlegroups.com> > escreveu: >> When I was first in Gleevec

Re: [CMLHope] Fatigue side effect nilotinib

r Balducci Moffitt Cancer Center > >> On Jul 6, 2016, at 7:12 PM, Ricardo Gadelha <ricardodgade...@gmail.com> >> wrote: >> >> Thank you all for the feedback. I am trying acupunture and guaraná. >> >> Em 28 de jun de 2016 11:39, "'Jeanie' vi

Re: [CMLHope] Fatigue side effect nilotinib

r Balducci Moffitt Cancer Center > >> On Jul 6, 2016, at 7:12 PM, Ricardo Gadelha <ricardodgade...@gmail.com> >> wrote: >> >> Thank you all for the feedback. I am trying acupunture and guaraná. >> >> Em 28 de jun de 2016 11:39, "'Jeanie' via CMLH

Re: [CMLHope] Skip have you heard from Marty

Glad you are good. Blessings My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Aug 4, 2016, at 5:35 PM, 'rszim0...@aol.com' via CMLHope >

Re: [CMLHope] Posting Privileges Have Been Removed For Some Members

That's an old text. Please ignore. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Aug 6, 2016, at 7:16 AM, Jeanie

[CMLHope] Haven't heard from John either.

Hi all Not well at all today. Just hanging in there. Does anyone know John who was on Ponatinib like me?? Haven't heard from him. Pain in side much worse. I was on oxycodone but took myself off due to terrible side effect. However it did help the pain. Taking my morning walk. Making

Re: [CMLHope] Haven't heard from John either.

e been living > with this for so long. > > Praying for ya, honey, as all of u are in my prayers! > Hugs and 18's, > Sisan z > > Sent from my Sprint phone > > -- Original message-- > From: 'Jeanie' via CMLHope > Date: Sat, Aug 6, 2016 8:10 AM > To:

Re: [CMLHope] Haven't heard from John either.

So sorry for your loss. I have 2 sons and know the pain you both are having. So glad to hear from you. Something's wrong with Marty but don't know what. And John hasn't checked in for a long time. Just keep living each day and enjoy each other. My hubby passed 18 years ago. I always

Re: [CMLHope] Haven't heard from John either.

Hi Greenie I lost my young grandson,19, in a gun shot accident a couple years ago so I feel your loss. He was my baby and we were so close. But as you say life goes on and live on the good memories. He was a chef and would cook me meals so delicious. You will never forget the day you got

Re: [CMLHope] How is everyone

as on > the original Gleevec study since 2001. > These words were music to my ears~~~ > Angie in Canada > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > Sent: Tuesday, August 2, 2016 1:13 PM > Subject: [CMLH

Re: [CMLHope] Tasigna and Lipitor

My husband and brother got very ill on Lipitor. Try some natural ways first if you can. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On

Re: [CMLHope] Happy 4th of July!

Happy Freedom Day!!!and the rockets break glare My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Jul 1, 2016, at 12:06 AM,

Re: [CMLHope] Disability and retirement

Center > On Feb 2, 2017, at 10:22 AM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hey Jeanie, > > Your on the ball. Yea, you must be a smart resourceful person. > > 18's, > > Marty > >> On Thu, Feb 2, 2017 at 10:17 AM, 'Jeanie' via CMLHope >>

Re: [CMLHope] Disability and retirement

Hi Greenie Did you still get your pension check? My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Feb 2, 2017, at 11:35 AM, Myvety2k via

Re: [CMLHope] 39 years with cml

I was donating blood and having lots of tooth X-rays when I got it. Just don't know. Was around a lot of pesticides in my generation. Always spraying for mosquitos and such when I was a girl. Lived by a strawberries farm and they sprayed every day. No sickness of any kind until CML. Go

Re: [CMLHope] Fun thing to do

of this was all about i probably wouldn't have > gotten CML > > Want to know what a FARADA suit is? CHECK THIS OUT > > https://www.youtube.com/watch?v=9tzga6qAaBA > > 18's, > > Marty > >> On Mon, Feb 6, 2017 at 6:08 PM, 'Jeanie' via CMLHope >> <

Re: [CMLHope] Fun thing to do

f engineer for a television station and at times i had to >>> be enclosed in a Faraday suit to try and avoid the dangerous currents and >>> high voltages of the transmitter. >>> >>> Had i known then what all of this was all about i probably wouldn't have >&g

Re: [CMLHope] Fun thing to do

when an old lady >>> on a scooter hit a display of Javex. It splashed all over me.completely >>> ruined my clothes...and I had to drive home on that VERY HOT summer day(two >>> hr drive) in clothing soaked with Javex. Apparently it absorbs through the >&g

Re: [CMLHope] Fun thing to do

t all of this was all about i probably wouldn't have >> gotten CML >> >> Want to know what a FARADA suit is? CHECK THIS OUT >> >> https://www.youtube.com/watch?v=9tzga6qAaBA >> >> 18's, >> >> Marty >> >>> On Mon, Feb

Re: [CMLHope] Re: Fun thing to do

Thanks Peter We just didn't know the dangers. My mom used gas for cleaning different things. When I was little my brother and I decided to get dizzy smelling gas. We took off the gas cap and smelled the gas and turned round and round. Oh how sick I was. My Motto: Faith and Pills With Love

Re: [CMLHope] Disability and retirement

Hi to all My hubby was retired and was getting his retirement from his company. When he finally got his disability they cut his retirement and even made him pay back what they had paid him as his disability was retroactive. Medicare takes over when you start receiving it and our company

Re: [CMLHope] 39 years with cml

Hi Skip and loved the web page. We have another CML friend whose leukemia started in his hip. You've had a long hard Journey but you are still with us. Praises. Mine is much the same as yours but they had already started on Gleevec then. I got mutations to all and am now on Ponatinib. I

Re: [CMLHope] 39 years with cml

to be removed bu Mohs surgery, > > Then finally the immune drugs that keeps my systen free of rejection. > > 18's > > Marty > >> On Mon, Feb 6, 2017 at 8:03 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> I was donating blood

Re: [CMLHope] 39 years with cml

had to be removed bu Mohs surgery, > > Then finally the immune drugs that keeps my systen free of rejection. > > 18's > > Marty > >> On Mon, Feb 6, 2017 at 8:03 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> I was donating blood

[CMLHope] Fun thing to do

Let's all make s list of all the things we were doing when we got CML. Things that we didn't normally do or that were done every day. Mine were: Exposure to pesticides Dental X-rays more than normal Donating blood Deep grief over loss of hubby Thanks group. My Motto: Faith and Pills With Love

Re: [CMLHope] RE: feeling worried

Ana Burgos <anab...@hotmail.com> wrote: > > > My mun after 13 years on Gleveec is now 0,19 the doctor is going to repeat > the pcr test if it is the same or worse wants to change the medication. > Can you tell me how is the move from gleevec to tasigna? Does it have lo

Re: [CMLHope] Change on date

ke it a repeat >>> performance for you. I love everyone on this site and I know that everyone >>> on this site also loves me so do whatever you need to try and stay healthy >>> including no caffeine, drink water with non caffeinated iced tea mix, just >>> keep a pitc

Re: [CMLHope] Re: feeling worried

signa? Does it have lots >> of side effects? >> >> >> >> >> >> >> >> >> >> De: 'Jeanie' via CMLHope >> Enviado: jueves, 5 de enero de 2017 22:51 >> Para: 'Jeanie' via CMLHope >> Asunto: [CMLHope] 2nd part

Re: [CMLHope] RE: feeling worried

ll me how is the move from gleevec to tasigna? Does it have lots > of side effects? > > > > > De: 'Jeanie' via CMLHope > Enviado: jueves, 5 de enero de 2017 22:51 > Para: 'Jeanie' via CMLHope > Asunto: [CMLHope] 2nd part blood report. > > > > -

Re: [CMLHope] Haven't gotten any e-mail notifications

Me either. Think everyone is on vacation. I had my cat scan. Some bad news. My pancreas has atrophied. Got to cut down on fat. I wonder if that is what is causing my pain. I know Ponatinib causes pancreatitis. Dr never says anything about it. Everything else was the same except for a

Re: [CMLHope] Re: About Marty

I knew something had happened. Thanks so much for the news. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 8, 2016, at 6:58 AM,

Re: [CMLHope] Haven't gotten any e-mail notifications

still in MMR. So I > will try to put it out of mind. > We learn so much from each other. Maybe you can enlighten me as to what a > ERCP is. > God bless and keep you. > Joyce in IL > > >> On Sep 6, 2016, at 1:48 PM, 'Jeanie' via CMLHope <cmlhope@googlegroup

[CMLHope] Marty number

Here is Marty' s number. I can't hear good on phone so if someone could call great. 561_364/8998 Thanks My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer

Re: [CMLHope] Haven't gotten any e-mail notifications

> > Sent from my Sprint phone > > ------ Original message-- > From: 'Jeanie' via CMLHope > Date: Tue, Sep 6, 2016 8:48 AM > To: cmlhope@googlegroups.com; > Subject:Re: [CMLHope] Haven't gotten any e-mail notifications > > Thanks Joyce,Yes a low fat diet is recommended

Re: [CMLHope] Haven't gotten any e-mail notifications

eks..I > agree with Joyce, so happy to be on the upside of the grass..we warriors need > to keep on uniting...stay stronger together... I will write more soon. Take > good care and know that you are loved and thought of18's Beth > > > -Original Message- > From: 'Jeanie' via

Re: [CMLHope] Re: About Marty

Remember when we didn't hear from Millie for a while? Marty was the one who got in touch her son and gave us the news. He also sent flowers I believe. She had liver failure and had been in Tasigna for a long time. Bless her heart!! I still miss her like crazy. She had a lot of pain.

Re: [CMLHope] Just checking in

Hi Beth and so sorry you got bitten. I was once bitten by a scorpion. That really hurt. Yes it's good to hear from everyone so keep posting. My ct scan showed several things wrong but this old body is aging and I'm taking a powerful chemo. Some times I wonder if I really want to know what's

Re: [CMLHope] Just checking in

Hi Norm and all and sure do enjoy hearing from you. I've missed our Tasigna group but hope everyone has found this group as it is a wonderful comfort time and all. I'm so sorry about your friend and am happy to hear you have another one to enjoy. Thank you so much for giving us your story

Re: [CMLHope] Just checking in

at day. > > > Love, Beth. > > > -----Original Message- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Sun, Sep 11, 2016 4:04 pm > Subject: Re: [CMLHope] Just checking in > > Hi Beth and so sorry you got

Re: [CMLHope] Just checking in

had so many tests..maybe a > hernia they cannot see??? something is hiding..but not life threatening..just > a serious nuisance. > > I am thinking of you.. > > Love, B > > > -Original Message- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> &

Re: [CMLHope] All zero club members

t;> Just to let you know my Zavies zero club number is #1 and face book wasn't >>> even around then, so I also never got on face book. >>> >>> Join our club >>> >>>> On Wed, Sep 28, 2016 at 1:44 PM, sherri swanson >>>> <swanso

Re: [CMLHope] All zero club members

lub >> >>> On Wed, Sep 28, 2016 at 1:44 PM, sherri swanson >>> <swanson.sherri...@gmail.com> wrote: >>> To bad I'm not on facebook. I have a Zavie number. >>> >>>> On Wed, Sep 28, 2016 at 8:19 AM, 'Jeanie' via CMLHope >>>>

Re: [CMLHope] Medicare and presc drugs cost

I have Humana with no monthly payments. You can also call Medicare and they will look for your best option. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt

Re: [CMLHope] Insurance

Yes when we started Medicare that had to become our primary insurance. Work insurance pays the copay unless they can wiggle out if it. Good luck. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started

Re: [CMLHope] All zero club members

28, 2016, at 1:44 PM, sherri swanson <swanson.sherri...@gmail.com> > wrote: > > To bad I'm not on facebook. I have a Zavie number. > >> On Wed, Sep 28, 2016 at 8:19 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Thanks. I'll let h

Re: [CMLHope] All zero club members

rs.com> wrote: > > I am # 76.... > > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > Sent: Wednesday, September 28, 2016 7:30 AM > Subject: [CMLHope] All zero club members > > > Hi Florida

Re: [CMLHope] My sister, me and my older brother

Yes Marty God works in mysterious ways. But you are Still here with us and that's what counts. My mom fell over one of those and dislocated her shoulder. They are dangerous and am ever mindful of them. One of my sisters church friends tripped over a rug at a restaurant we visit quiet a

Re: [CMLHope] Zavie's List

Wow!!! And thanks. Anyone else?!!! My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 30, 2016, at 11:06 PM, ANGELYN ESDERS

Re: [CMLHope] This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!!!!!

my counts are back within range. > I'll take it. > > Hope everyone is doing well. > > L'Chaim > > Sherri > >> On Mon, Nov 7, 2016 at 2:50 PM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Good to hear from you and I know what

Re: [CMLHope] This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!!!!!

Good to hear from you and I know what you mean. I get tired of it all too but I've been a CML warrior almost 13 years and live by faith and pills. I'm on my fourth tki now and I feel it's my last try. I can't go off because my platelets and wbc go sky high when I do. Just get your rest and

[CMLHope] Zavie's zero club group

For those of you wanting to be added to the zero club list please email bar...@wanado.fr She will work with you. Thanks My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

I drink I can daily because I like it. I wish I had known it reduced platelets when mine were so high. Hehe My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 5 updates in 1 topic

; >> cmlhope@googlegroups.com Google Groups >> Topic digest >> View all topics >> Zavie's List - 5 Updates >> Zavie's List >> Ana Burgos <anab...@hotmail.com>: Oct 17 11:13AM >> >> Someone there? >> >> >

[CMLHope] Living with CML web seminar

If you would like to join the CML web seminar sign up here www.lls.org/programs Or call 888 510 9390 Nov 2 2016 My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt

Re: [CMLHope] Happy Thanksgiving to all.

Happy Thanksgiving to all. May you all stay safe and well. ♥️♥️ My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Nov 22, 2016, at 10:27 AM,

Re: [CMLHope] Got a brand new Hip!

Thanks for the update and so sorry about your mother and hip problems. You seem to be holding up good. Did they help you with the pain. Nothing worse than being in pain all the time. I lost my mom and dad many years ago and still miss them. I also lost my hubby if 42 years in 1998. 6

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get up in the middle if night to walk out leg cramps. I too was put on Sprycel. And yes I would look in mirror and not recognize myself. Just keep on fighting warriors. Blessings My Motto: Faith and Pills With Love

Re: [CMLHope] Blood work results

Hi Greenie I'm 78 so we grew up in in same era. What a fun time. So sorry about your son The pain never goes away. I'm headed out on a Christmas cruise. If you are there Norm I'm thinking of you. We are going all over starting with Key West and over to Mexico. I'm going with my daughter and

Re: [CMLHope] Digest for cml...@googlegroups.com - 1 update in 1 topic

I have never been able to quit tkis. My counts go sky high and I am in accelerated phase quickly. Good luck to those who can. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor

Re: [CMLHope] Re: Fw: Jingle Bells (1940s style)

Very nice. Had a wonderful Christmas cruise and the ship was decorated beautifully for Christmas. Ate too much. Good food. Happy new year and keep up the good fight. ♥️♥️♥️♥️♥️ My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009

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