Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Sheila Watson]

Thanks Amy:

It caught me off guard for a minute when I first saw it.  But I realized it
was a scam.

Sheila

On Sat, Jul 18, 2020 at 5:10 AM  wrote:

> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
> View all topics
> 
>
>- Hello - NICK WOODS <#m_7486913211620045013_group_thread_0> - 1 Update
>
> Hello - NICK WOODS
> 
> AAFAAmy : Jul 17 03:43AM -0700
>
> Folks, this a scam, and one that’s been around for a while. Please don’t
> ever respond to messages like these.
>
> Stay safe!
>
> Amy O’Keefe
> DX with CML 4/2001
> Back to top <#m_7486913211620045013_digest_top>
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RE: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[N Quade]

My financial advisor from Nigeria, he is a Prince, has warned me about these 
things.

Thanks,
Norm

Sent from Mail for Windows 10

From: cmlhope@googlegroups.com
Sent: Saturday, July 18, 2020 5:10 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

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·Hello - NICK WOODS - 1 Update
Hello - NICK WOODS 

AAFAAmy : Jul 17 03:43AM -0700

Folks, this a scam, and one that’s been around for a while. Please don’t ever 
respond to messages like these.

Stay safe!

Amy O’Keefe
DX with CML 4/2001
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[sherri swanson]

Hi Susan,

Looks like 2003 was popular year. Too bad it was for CML.  The good news,
we keep fighting it everyday.

Sherri, Northern Illinois

On Thu, Sep 26, 2019 at 7:45 PM 'educatorsusan' via CMLHope <
cmlhope@googlegroups.com> wrote:

> I was diagnosed in 2003, too!
>
> Susan Rosenthal
> Miami, Florida
>
> On Sep 26, 2019, at 7:43 PM, sherri swanson 
> wrote:
>
> Hi Ken,
>
> Glad to hear your doing well. I too take Gleevec but take 600mg. Like you
> I was DX in 2003 and have been on 600mg since then. My blood is almost
> undetectable as well. I guess the CML just wants to let me know it's there.
> I just let it know I'm still here too.
>
> Have a great weekend,
>
> Sherri
>
> On Thu, Sep 26, 2019 at 10:44 AM ksnwo...@prodigy.net <
> ksnwo...@prodigy.net> wrote:
>
>> I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating
>> it well. My semi- annual blood test remains almost untraceable, but still
>> there. Greetings to all cml'ers. Keep the faith. Nick
>>
>>
>>
>> *Sent from my LG V40 ThinQ, an AT 5G Evolution capable smartphone*
>>
>> -- Original message--
>> *From: *cmlhope@googlegroups.com
>> *Date: *Thu, Sep 26, 2019 5:10 AM
>> *To: *Digest recipients;
>> *Cc: *
>> *Subject:*[CMLHope] Digest for cmlhope@googlegroups.com
>> <+cmlhope@googlegroups.com> - 1 update in 1 topic
>>
>> cmlhope@googlegroups.com
>> 
>>  Google
>> Groups
>> 
>> 
>> Topic digest
>> View all topics
>> 
>>
>>- Acaria health
>><#m_-8593631717912210402_m_590827347862330147_group_thread_0> - 1
>>Update
>>
>> Acaria health
>> 
>> icandoallttc >: Sep 25 12:22PM -0400 <%3cicandoall...@aol.com>
>>
>> Hello everyone
>> I had the strangest thing happen to me in reference to my Ponatinib. Is
>> anyone on Ponatinib ?
>> I got a letter telling me ascaria health would be handling my drug from
>> now on. I did t ask for this so decided to wait until biologics called to
>> refill my prescription. Well they called and asked me if I was ready for
>> refill. Never mentioned as aria and my medicine came As usual. I was so
>> happy. So my question is should I notify someone of this as it seems like a
>> fraud to me. This medicine is very expenvive. It is 17,000 $ a month. Has
>> anyone ever have this happened? I???ve researched google with no answers.
>> Norm I remember when you helped me run the tasigna group. I couldn???t
>> take it. Talk later all the news. You and your wife love are so up lifting.
>> Yes love you so very much.
>> 
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian
>> Dx 1/2004 CML Leukemia
>> Back to top <#m_-8593631717912210402_m_590827347862330147_digest_top>
>> You received this digest because you're subscribed to updates for this
>> group. You can change your settings on the group membership page
>> 
>> .
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>>
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>> --
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>> -
>>
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>> 
>> .
>>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['educatorsusan' via CMLHope]

I was diagnosed in 2003, too!

Susan Rosenthal
Miami, Florida

> On Sep 26, 2019, at 7:43 PM, sherri swanson  
> wrote:
> 
> Hi Ken, 
> 
> Glad to hear your doing well. I too take Gleevec but take 600mg. Like you I 
> was DX in 2003 and have been on 600mg since then. My blood is almost 
> undetectable as well. I guess the CML just wants to let me know it's there. I 
> just let it know I'm still here too. 
> 
> Have a great weekend, 
> 
> Sherri
> 
>> On Thu, Sep 26, 2019 at 10:44 AM ksnwo...@prodigy.net  
>> wrote:
>> I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it 
>> well. My semi- annual blood test remains almost untraceable, but still 
>> there. Greetings to all cml'ers. Keep the faith. Nick
>> 
>> 
>> 
>> Sent from my LG V40 ThinQ, an AT 5G Evolution capable smartphone
>> 
>> -- Original message--
>> From: cmlhope@googlegroups.com
>> Date: Thu, Sep 26, 2019 5:10 AM
>> To: Digest recipients;
>> Cc:
>> Subject:[CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
>> 
>> cmlhope@googlegroups.com Google Groups  
>> Topic digest 
>> View all topics
>> Acaria health - 1 Update
>> Acaria health   
>> icandoallttc >: Sep 25 12:22PM -0400 
>> 
>> Hello everyone
>> I had the strangest thing happen to me in reference to my Ponatinib. Is 
>> anyone on Ponatinib ?
>> I got a letter telling me ascaria health would be handling my drug from now 
>> on. I did t ask for this so decided to wait until biologics called to refill 
>> my prescription. Well they called and asked me if I was ready for refill. 
>> Never mentioned as aria and my medicine came As usual. I was so happy. So my 
>> question is should I notify someone of this as it seems like a fraud to me. 
>> This medicine is very expenvive. It is 17,000 $ a month. Has anyone ever 
>> have this happened? I???ve researched google with no answers. 
>> Norm I remember when you helped me run the tasigna group. I couldn???t take 
>> it. Talk later all the news. You and your wife love are so up lifting. Yes 
>> love you so very much. 
>> 
>>  
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian 
>> Dx 1/2004 CML Leukemia
>> Back to top
>> You received this digest because you're subscribed to updates for this 
>> group. You can change your settings on the group membership page.
>> To unsubscribe from this group and stop receiving emails from it send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
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> 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[sherri swanson]

Hi Ken,

Glad to hear your doing well. I too take Gleevec but take 600mg. Like you I
was DX in 2003 and have been on 600mg since then. My blood is almost
undetectable as well. I guess the CML just wants to let me know it's there.
I just let it know I'm still here too.

Have a great weekend,

Sherri

On Thu, Sep 26, 2019 at 10:44 AM ksnwo...@prodigy.net 
wrote:

> I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it
> well. My semi- annual blood test remains almost untraceable, but still
> there. Greetings to all cml'ers. Keep the faith. Nick
>
>
>
> *Sent from my LG V40 ThinQ, an AT 5G Evolution capable smartphone*
>
> -- Original message--
> *From: *cmlhope@googlegroups.com
> *Date: *Thu, Sep 26, 2019 5:10 AM
> *To: *Digest recipients;
> *Cc: *
> *Subject:*[CMLHope] Digest for cmlhope@googlegroups.com
> <+cmlhope@googlegroups.com> - 1 update in 1 topic
>
> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
> View all topics
> 
>
>- Acaria health <#m_590827347862330147_group_thread_0> - 1 Update
>
> Acaria health
> 
> icandoallttc >: Sep 25 12:22PM -0400 <%3cicandoall...@aol.com>
>
> Hello everyone
> I had the strangest thing happen to me in reference to my Ponatinib. Is
> anyone on Ponatinib ?
> I got a letter telling me ascaria health would be handling my drug from
> now on. I did t ask for this so decided to wait until biologics called to
> refill my prescription. Well they called and asked me if I was ready for
> refill. Never mentioned as aria and my medicine came As usual. I was so
> happy. So my question is should I notify someone of this as it seems like a
> fraud to me. This medicine is very expenvive. It is 17,000 $ a month. Has
> anyone ever have this happened? I???ve researched google with no answers.
> Norm I remember when you helped me run the tasigna group. I couldn???t
> take it. Talk later all the news. You and your wife love are so up lifting.
> Yes love you so very much.
> 
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Back to top <#m_590827347862330147_digest_top>
> You received this digest because you're subscribed to updates for this
> group. You can change your settings on the group membership page
> 
> .
> To unsubscribe from this group and stop receiving emails from it send an
> email to cmlhope+unsubscr...@googlegroups.com.
>
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> 
> .
>

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[NICK WOODS]

 I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it 
well. My. 

Sent from my LG V40 ThinQ, an AT 5G Evolution capable smartphone 
-- Original message--From: cmlhope@googlegroups.comDate: Thu, Sep 26, 
2019 5:10 AMTo: Digest recipients;Cc: Subject:[CMLHope] Digest for 
cmlhope@googlegroups.com - 1 update in 1 topic
  
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Acaria health - 1 Update 
Acaria health   
|   icandoallttc : Sep 25 12:22PM -0400  

 Hello everyone
I had the strangest thing happen to me in reference to my Ponatinib. Is anyone 
on Ponatinib ?
I got a letter telling me ascaria health would be handling my drug from now on. 
I did t ask for this so decided to wait until biologics called to refill my 
prescription. Well they called and asked me if I was ready for refill. Never 
mentioned as aria and my medicine came As usual. I was so happy. So my question 
is should I notify someone of this as it seems like a fraud to me. This 
medicine is very expenvive. It is 17,000 $ a month. Has anyone ever have this 
happened? I’ve researched google with no answers. 
 Norm I remember when you helped me run the tasigna group. I couldn’t take it. 
Talk later all the news. You and your wife love are so up lifting. Yes love you 
so very much. 

 
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
  |

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 To unsubscribe from this group and stop receiving emails from it send an email 
to cmlhope+unsubscr...@googlegroups.com.  |

 

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[ksnwo...@prodigy.net]

I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it 
well. My semi- annual blood test remains almost untraceable, but still there. 
Greetings to all cml'ers. Keep the faith. NickSent from my LG V40 ThinQ, an 
AT 5G Evolution capable smartphone-- Original message--From: 
cmlhope@googlegroups.comDate: Thu, Sep 26, 2019 5:10 AMTo: Digest 
recipients;Cc: Subject:[CMLHope] Digest for cmlhope@googlegroups.com - 1 update 
in 1 topic

  

  

  

  
  cmlhope@googlegroups.com

  
  
Google Groups
  
  

  

  

  
  



  
  
  
Topic digest
  
  
  
View all topics
  


  
  

  
  Acaria health -
  1 Update

  
  




  
  
  
  

  Acaria health

  
  

  

  

  icandoallttc >: Sep 25 12:22PM -0400


Hello everyone
I had the strangest thing happen to me in reference to my Ponatinib. Is anyone 
on Ponatinib ?
I got a letter telling me ascaria health would be handling my drug from now on. 
I did t ask for this so decided to wait until biologics called to refill my 
prescription. Well they called and asked me if I was ready for refill. Never 
mentioned as aria and my medicine came As usual. I was so happy. So my question 
is should I notify someone of this as it seems like a fraud to me. This 
medicine is very expenvive. It is 17,000 $ a month.  Has anyone ever have this 
happened?  I???ve researched google with no answers. 
 Norm I remember when you helped me run the tasigna group.   I couldn???t take 
it. Talk later all the news. You and your wife love are so up lifting. Yes love 
you so very much. 

??
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia

  

  
  
Back to top
  




  
  
  
  

  
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[bkbarney via CMLHope]

Dear Nick and Elizabeth,
Thank you for your lovely Christmas blessings email. I hope that you both have 
a year ahead filled with good health, moments of joy and wonder and lots of 
love. 
Warmest regards and 18's
Beth


-Original Message-
From: NICK WOODS 
To: cmlhope 
Sent: Tue, Dec 18, 2018 9:45 am
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

 Sending Merry Christmas and Happy Holidays to each of you.  Nick's at year 15 
with CML. For each day together we thank God and appreciate this time, this 
day.He's had muscle shrinkage, and the pains which we guess go with CML in 
muscle, joint, the spine.   The hair loss. The sweating to the point of soaking 
parts of T-shirt and flannel when he's working on tractor or moving lumber and 
equipment.  Sometimes being really chilly and layering clothes to keep warm or 
wrapping up in a blanket as well.  AH! The Gleevec "wonders" years. Every day 
someone does or says something kind or is there when we need help even before 
we know we would need help, and we thank God for that person-for that moment in 
time.  We decided we must pass these moments of goodness on in our way to 
othersnote, e-mail, phone call, smile, listening ear, praying for others, 
opening a door, a nice comment to a stranger.you all do these, 
too.Blessings upon Blessings and Blessed to be a Blessing to others,Elizabeth 
and Nick WoodsOn ‎Tuesday‎, ‎December‎ ‎18‎, ‎2018‎ ‎04‎:‎17‎:‎18‎ ‎AM‎ 
‎CST,  wrote:  
 
   
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Merry Christmas and happy Holidays to all - 1 Update 
Merry Christmas and happy Holidays to all   
|   Jeanie : Dec 17 01:29PM -0500  

 Hi Susan
Thanks for the uplift and sorry for your problems. 
Did you have your thyroid checked. 
I first noticed my right pinkie was numb and then it went all the way to my 
elbow. 
Yes I too don’t want to leave the house. My daughters insist I do. 
Have a wonderful holiday and keep warm. It’s even cold in fl 
Love
 
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal
 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

So glad Nick is doing good and fighting on. I have been fighting for 14 years 
and Gleevec was a real battle. After mutants for other tki I am now on 
Ponatinib. 
Those sweats are the worse. I guess we should just think of them as cleaning 
out those cancer cells. 
I had a wonderful Thanksgiving as my son cooked and cleaned for me. I live 
alone but he is right next door and I stay with him a lot. 
Christmas is my favorite time of the year and we filled 12 bags of gifts for 
family.  Tree is glowing and I’m just happy to be here to enjoy it. I sure miss 
the ones we have lost. 
Thank you so much for your blessings and you guys sure are a blessing to this 
group. 
Have a beautiful time with the season ahead. 
Love you so very much 
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Dec 18, 2018, at 9:45 AM, NICK WOODS  wrote:
> 
> Sending Merry Christmas and Happy Holidays to each of you. 
>  Nick's at year 15 with CML. For each day together we thank God and 
> appreciate this time, this day.
> He's had muscle shrinkage, and the pains which we guess go with CML in 
> muscle, joint, the spine.   The hair loss. The sweating to the point of 
> soaking parts of T-shirt and flannel when he's working on tractor or moving 
> lumber and equipment.  Sometimes being really chilly and layering clothes to 
> keep warm or wrapping up in a blanket as well.  AH! The Gleevec "wonders" 
> years. 
> Every day someone does or says something kind or is there when we need help 
> even before we know we would need help, and we thank God for that person-for 
> that moment in time.  We decided we must pass these moments of goodness on in 
> our way to othersnote, e-mail, phone call, smile, listening ear, praying 
> for others, opening a door, a nice comment to a stranger.you all do 
> these, too.
> Blessings upon Blessings and Blessed to be a Blessing to others,
> Elizabeth and Nick Woods
> On ‎Tuesday‎, ‎December‎ ‎18‎, ‎2018‎ ‎04‎:‎17‎:‎18‎ ‎AM‎ ‎CST, 
>  wrote:
> 
> 
> cmlhope@googlegroups.com  Google Groups  
> Topic digest 
> View all topics
> Merry Christmas and happy Holidays to all - 1 Update
> Merry Christmas and happy Holidays to all 
> Jeanie : Dec 17 01:29PM -0500 
> 
> Hi Susan
> Thanks for the uplift and sorry for your problems. 
> Did you have your thyroid checked. 
> I first noticed my right pinkie was numb and then it went all the way to my 
> elbow. 
> Yes I too don’t want to leave the house. My daughters insist I do. 
> Have a wonderful holiday and keep warm. It’s even cold in fl 
> Love
>  
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>  
> Back to top
> You received this digest because you're subscribed to updates for this group. 
> You can change your settings on the group membership page.
> To unsubscribe from this group and stop receiving emails from it send an 
> email to cmlhope+unsubscr...@googlegroups.com.
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[NICK WOODS]

 Sending Merry Christmas and Happy Holidays to each of you.  Nick's at year 15 
with CML. For each day together we thank God and appreciate this time, this 
day.He's had muscle shrinkage, and the pains which we guess go with CML in 
muscle, joint, the spine.   The hair loss. The sweating to the point of soaking 
parts of T-shirt and flannel when he's working on tractor or moving lumber and 
equipment.  Sometimes being really chilly and layering clothes to keep warm or 
wrapping up in a blanket as well.  AH! The Gleevec "wonders" years. Every day 
someone does or says something kind or is there when we need help even before 
we know we would need help, and we thank God for that person-for that moment in 
time.  We decided we must pass these moments of goodness on in our way to 
othersnote, e-mail, phone call, smile, listening ear, praying for others, 
opening a door, a nice comment to a stranger.you all do these, 
too.Blessings upon Blessings and Blessed to be a Blessing to others,Elizabeth 
and Nick WoodsOn ‎Tuesday‎, ‎December‎ ‎18‎, ‎2018‎ ‎04‎:‎17‎:‎18‎ ‎AM‎ 
‎CST,  wrote:  
 
   
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Merry Christmas and happy Holidays to all - 1 Update 
Merry Christmas and happy Holidays to all   
|   Jeanie : Dec 17 01:29PM -0500  

 Hi Susan
Thanks for the uplift and sorry for your problems. 
Did you have your thyroid checked. 
I first noticed my right pinkie was numb and then it went all the way to my 
elbow. 
Yes I too don’t want to leave the house. My daughters insist I do. 
Have a wonderful holiday and keep warm. It’s even cold in fl 
Love
 
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal
 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Sherri,

This is Shaun.  My family and I greatly appreciate your heartwarming gift.
Thank you so very much for that.  My Mom (his wife, Rachelle) sends her
thanks, as well.

Regards,
Shaun

On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
wrote:

> Hello Shaun,
>
> I am so very sorry to hear about your dad. He was such a kind and gentile
> man and he will be missed by many.  I wanted to let you know that I have
> planted a tree in his name in Israel. May this serve as a living tribute to
> his memory. You and your family are in my thoughts and prayers. Marty will
> always be in my heart and on my mind.  My heart is broken knowing I will
> not receive another message from Marty and we will no longer share share
> photos.
>
>
>
> *As long as we live, they too will live; for they are now are a part of
> us; as we remember them. *
>
> Regards,
>
> Sherri Swanson
>
>
>
>
>
> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
>
>> Hi everyone -
>>
>> This is Marty's son, Shaun, again.  Thank-you all so much for all the
>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
>> are all so grateful to know how loved he was and how he was able to touch
>> so many lives in a profound way.
>>
>> Hi Wayne - please do not cancel this thread.  I am still checking in on
>> it and relaying to rest of my family.  Just as he helped others, you all
>> are helping us, and we appreciate that, so much.
>>
>> Regards,
>> Shaun
>>
>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>>
>>> Please cancel.  Subscriber is deceased.
>>>
>>>
>>>
>>>
>>>
>>> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
>>> *Sent:* November-14-18 5:14 AM
>>> *To:* Digest recipients
>>> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in
>>> 1 topic
>>>
>>>
>>>
>>> cmlhope@googlegroups.com
>>>
>>> Google Groups
>>> 
>>>
>>> [image: Image removed by sender.]
>>> 
>>>
>>> Topic digest
>>> View all topics
>>>
>>> ·   Update on Marty G
>>> <#m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
>>> - 1 Update
>>>
>>> Update on Marty G
>>> 
>>>
>>> Tracie Camlin : Nov 13 06:50AM -0600
>>>
>>> Dear Shaun and Family,
>>>
>>> I am so sorry for your loss. He was truly an amazing person who inspired
>>> and supported so many of us. His strength and courage held me up at times
>>> he didn't even know about. He will be missed. Blessings and much love to
>>> you and your family.
>>>
>>> Best Regards
>>> Tracie Mulvaney
>>>
>>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>>>
>>> Back to top
>>> <#m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>
>>>
>>> You received this digest because you're subscribed to updates for this
>>> group. You can change your settings on the group membership page.
>>> To unsubscribe from this group and stop receiving emails from it send an
>>> email to cmlhope+unsubscr...@googlegroups.com.
>>>
>>>
>>>
>>> --
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>> --
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>> -
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> 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

Thanks Shaun
It’s wonderful to know you will be checking on us. 
Marty was much more than a advisor. We all loved him so much. 
His last email to me was he was in rehab and he would get with me as soon as he 
could. 
I always feel God puts us where he wants us.  
Prayers always
Jeanie 

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 14, 2018, at 7:28 PM, Marty Gartenberg  wrote:
> 
> Hi everyone -
> 
> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We 
> are all so grateful to know how loved he was and how he was able to touch so 
> many lives in a profound way.  
> 
> Hi Wayne - please do not cancel this thread.  I am still checking in on it 
> and relaying to rest of my family.  Just as he helped others, you all are 
> helping us, and we appreciate that, so much.
> 
> Regards,
> Shaun
> 
>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>> Please cancel.  Subscriber is deceased.
>> 
>>  
>> 
>>  
>> 
>> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
>> Sent: November-14-18 5:14 AM
>> To: Digest recipients
>> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
>> 
>>  
>> 
>> cmlhope@googlegroups.com
>> 
>> Google Groups 
>> 
>> 
>> 
>> Topic digest 
>> View all topics
>> 
>> ·   Update on Marty G - 1 Update
>> 
>> Update on Marty G
>> 
>> Tracie Camlin : Nov 13 06:50AM -0600 
>> 
>> Dear Shaun and Family,
>>  
>> I am so sorry for your loss. He was truly an amazing person who inspired
>> and supported so many of us. His strength and courage held me up at times
>> he didn't even know about. He will be missed. Blessings and much love to
>> you and your family.
>>  
>> Best Regards
>> Tracie Mulvaney
>>  
>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>> 
>> Back to top
>> 
>> You received this digest because you're subscribed to updates for this 
>> group. You can change your settings on the group membership page.
>> To unsubscribe from this group and stop receiving emails from it send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> 
>>  
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
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> 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

So true Sherrie.  Thanks for the tribute. I was waiting on him to answer a 
question I had asked him. When he didn’t answer I had a feeling something was 
very wrong. 
He fought so hard and helped so many. 
I’ll be thinking of the tree as I say my prayers. 
Love you all so very much 
Jeanie 

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 14, 2018, at 8:27 PM, sherri swanson  
> wrote:
> 
> Hello Shaun, 
> 
> I am so very sorry to hear about your dad. He was such a kind and gentile man 
> and he will be missed by many.  I wanted to let you know that I have planted 
> a tree in his name in Israel. May this serve as a living tribute to his 
> memory. You and your family are in my thoughts and prayers. Marty will always 
> be in my heart and on my mind.  My heart is broken knowing I will not receive 
> another message from Marty and we will no longer share share photos. 
> 
> 
> As long as we live, they too will live; for they are now are a part of us; as 
> we remember them. 
> 
> Regards, 
> 
> Sherri Swanson
> 
> 
> 
> 
> 
>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
>> Hi everyone -
>> 
>> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We 
>> are all so grateful to know how loved he was and how he was able to touch so 
>> many lives in a profound way.  
>> 
>> Hi Wayne - please do not cancel this thread.  I am still checking in on it 
>> and relaying to rest of my family.  Just as he helped others, you all are 
>> helping us, and we appreciate that, so much.
>> 
>> Regards,
>> Shaun
>> 
>>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>>> Please cancel.  Subscriber is deceased.
>>> 
>>>  
>>> 
>>>  
>>> 
>>> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
>>> Sent: November-14-18 5:14 AM
>>> To: Digest recipients
>>> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
>>> 
>>>  
>>> 
>>> cmlhope@googlegroups.com
>>> 
>>> Google Groups 
>>> 
>>> 
>>> 
>>> Topic digest 
>>> View all topics
>>> 
>>> ·   Update on Marty G - 1 Update
>>> 
>>> Update on Marty G
>>> 
>>> Tracie Camlin : Nov 13 06:50AM -0600 
>>> 
>>> Dear Shaun and Family,
>>>  
>>> I am so sorry for your loss. He was truly an amazing person who inspired
>>> and supported so many of us. His strength and courage held me up at times
>>> he didn't even know about. He will be missed. Blessings and much love to
>>> you and your family.
>>>  
>>> Best Regards
>>> Tracie Mulvaney
>>>  
>>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>>> 
>>> Back to top
>>> 
>>> You received this digest because you're subscribed to updates for this 
>>> group. You can change your settings on the group membership page.
>>> To unsubscribe from this group and stop receiving emails from it send an 
>>> email to cmlhope+unsubscr...@googlegroups.com.
>>> 
>>>  
>>> 
>>> -- 
>>> -- 
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>>> A support group of http://cmlhope.com
>>> -
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>>> You received this message because you are subscribed to the Google Groups 
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>> 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[sherri swanson]

Hello Shaun,

I am so very sorry to hear about your dad. He was such a kind and gentile
man and he will be missed by many.  I wanted to let you know that I have
planted a tree in his name in Israel. May this serve as a living tribute to
his memory. You and your family are in my thoughts and prayers. Marty will
always be in my heart and on my mind.  My heart is broken knowing I will
not receive another message from Marty and we will no longer share share
photos.



*As long as we live, they too will live; for they are now are a part of us;
as we remember them. *

Regards,

Sherri Swanson





On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:

> Hi everyone -
>
> This is Marty's son, Shaun, again.  Thank-you all so much for all the
> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
> are all so grateful to know how loved he was and how he was able to touch
> so many lives in a profound way.
>
> Hi Wayne - please do not cancel this thread.  I am still checking in on it
> and relaying to rest of my family.  Just as he helped others, you all are
> helping us, and we appreciate that, so much.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>
>> Please cancel.  Subscriber is deceased.
>>
>>
>>
>>
>>
>> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
>> *Sent:* November-14-18 5:14 AM
>> *To:* Digest recipients
>> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1
>> topic
>>
>>
>>
>> cmlhope@googlegroups.com
>>
>> Google Groups
>> 
>>
>> [image: Image removed by sender.]
>> 
>>
>> Topic digest
>> View all topics
>>
>> ·   Update on Marty G
>> <#m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
>> - 1 Update
>>
>> Update on Marty G
>> 
>>
>> Tracie Camlin : Nov 13 06:50AM -0600
>>
>> Dear Shaun and Family,
>>
>> I am so sorry for your loss. He was truly an amazing person who inspired
>> and supported so many of us. His strength and courage held me up at times
>> he didn't even know about. He will be missed. Blessings and much love to
>> you and your family.
>>
>> Best Regards
>> Tracie Mulvaney
>>
>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>>
>> Back to top
>> <#m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>
>>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi everyone -

This is Marty's son, Shaun, again.  Thank-you all so much for all the
stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
are all so grateful to know how loved he was and how he was able to touch
so many lives in a profound way.

Hi Wayne - please do not cancel this thread.  I am still checking in on it
and relaying to rest of my family.  Just as he helped others, you all are
helping us, and we appreciate that, so much.

Regards,
Shaun

On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:

> Please cancel.  Subscriber is deceased.
>
>
>
>
>
> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
> *Sent:* November-14-18 5:14 AM
> *To:* Digest recipients
> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1
> topic
>
>
>
> cmlhope@googlegroups.com
>
> Google Groups
> 
>
> [image: Image removed by sender.]
> 
>
> Topic digest
> View all topics
>
> ·   Update on Marty G
> <#m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
> - 1 Update
>
> Update on Marty G
> 
>
> Tracie Camlin : Nov 13 06:50AM -0600
>
> Dear Shaun and Family,
>
> I am so sorry for your loss. He was truly an amazing person who inspired
> and supported so many of us. His strength and courage held me up at times
> he didn't even know about. He will be missed. Blessings and much love to
> you and your family.
>
> Best Regards
> Tracie Mulvaney
>
> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>
> Back to top
> <#m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>
>
> You received this digest because you're subscribed to updates for this
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RE: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Wayne Becken]

Please cancel.  Subscriber is deceased.

 

 

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
Sent: November-14-18 5:14 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

 


cmlhope@googlegroups.com 

 

 Google Groups 

 

 Image removed by sender.

Topic digest 
View all topics 

·   Update on Marty G - 1 Update 

 

 Update on Marty G 


Tracie Camlin : Nov 13 06:50AM -0600 

Dear Shaun and Family,
 
I am so sorry for your loss. He was truly an amazing person who inspired
and supported so many of us. His strength and courage held me up at times
he didn't even know about. He will be missed. Blessings and much love to
you and your family.
 
Best Regards
Tracie Mulvaney
 
On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <

Back to top 


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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[NICK WOODS]

Hello Richard,We are happy to hear you're feeling stronger and progressing 
along.Nick had been critically anemic in 2014. He and the Oncologist decided he 
needed to take iron tablets and it worked.  But every one's response is 
different with CML!  Plus, all the other ways we age throughout life.You are 17 
1/2 on Gleevec.  Nick is 15 years on Gleevec.  Hope you keep all of us posted 
from time to time.As Ever,Elizabeth & Nick Woods

 

On Sunday, September 30, 2018 5:12 AM, "cmlhope@googlegroups.com" 
 wrote:
 

   
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Hello All! - 1 Update 
Hello All!   
|   Richard H : Sep 29 08:29PM -0700  

 I am sorry I have not posted in a while. I have been rather busy taking 
care of this older model body I have. I been in and out of the hospital 
about 4 times with low blood counts and fluid buildup in my lungs and 
legs. I am recovering, and have started to increase my energy level. We 
(doctors and me) are not sure what the causes are for sure. Heart, 
CML, or I just was too tired . Recovery is underway so all is well. 
I wish the best for those having problems.
 
18's
 
Richard H.
Still going after 17 1/2 years on Gleevec.
  |

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Good morning Jeanie,

Don't you just love those Senior Moments? I can't remember what i just ate
for breakfast???

But what i usually do remember is...

18's,

Marty 

On Thu, May 24, 2018 at 10:19 AM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Sorry I resent that picture. Senior moment. Love you so very much.
> Jean
>
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center
>
> 0 CBL. ABL
>
> On May 7, 2018, at 2:28 PM, Victoria Reiter  wrote:
>
> Been a long time.  Trust  you are well and holding steady.
>
> On Tue, Feb 27, 2018 at 5:15 AM,  wrote:
>
>> cmlhope@googlegroups.com
>> 
>>  Google
>> Groups
>> 
>> 
>> Topic digest
>> View all topics
>> 
>>
>>- The Daffodil principal
>><#m_5807082411556197584_m_-5237887458506008448_group_thread_0> - 1
>>Update
>>
>> The Daffodil principal
>> 
>> Marty Gartenberg : Feb 26 09:20PM -0500
>>
>> Just sit back and relax when your day isn't what it should be. It is
>> somewhat of a long read but the pictures are unbelievable.
>>
>> Marty
>> Back to top <#m_5807082411556197584_m_-5237887458506008448_digest_top>
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>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

Sorry I resent that picture. Senior moment. Love you so very much.  
Jean

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer  center

0 CBL. ABL

> On May 7, 2018, at 2:28 PM, Victoria Reiter  wrote:
> 
> Been a long time.  Trust  you are well and holding steady.
> 
>> On Tue, Feb 27, 2018 at 5:15 AM,  wrote:
>> 
>> cmlhope@googlegroups.com Google Groups  
>> Topic digest 
>> View all topics
>> The Daffodil principal - 1 Update
>> The Daffodil principal   
>> Marty Gartenberg : Feb 26 09:20PM -0500 
>> 
>> Just sit back and relax when your day isn't what it should be. It is
>> somewhat of a long read but the pictures are unbelievable.
>>  
>> Marty
>> Back to top
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[bkbarney via CMLHope]

Thanks for the beautiful pictures Marty... So uplifting I got my BCR back 
today, undetectable... yea! So that is my news for today..


Love to all.and happy Spring,




Beth



-Original Message-
From: Marty Gartenberg <wa2...@gmail.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, May 7, 2018 6:11 pm
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic



Hi Victoria,


Nice to be hearing from you. First, how are you doing? I hope that you are well.
As for me well i just go on and on just like that pink energizer bunny. But my 
feet aren't as large as his (or could be hers) you never know who is who and 
what is what. But what i do know is i am me and Shelly is her and you are 
you... If that makes any sense.


We just cam back from a cruise and had a wonderful time but i came back with a 
terrible cold and that is a no no for me because i have a difficult time 
dealing with my immune system because of all the immune suppressible 
medication. But so far so good. Please don't be a stranger.


Thanks for ringing my bell.


18's,


Marty



On Mon, May 7, 2018 at 2:28 PM, Victoria Reiter <vkrei...@gmail.com> wrote:

Been a long time.  Trust  you are well and holding steady.


On Tue, Feb 27, 2018 at 5:15 AM,  <cmlhope@googlegroups.com> wrote:

  

  

  
cmlhope@googlegroups.com
  
  
Google Groups  
  
  

  

  
  
  Topic digest
  View all topics  
  
  
The Daffodil principal -  1 Update

  
The Daffodil principal
  
  

  Marty Gartenberg <wa2...@gmail.com>: Feb 26 09:20PM -0500 
   

Just sit back and relax when your day isn't what it should be. It is
somewhat of a long read but the pictures are unbelievable.
 
Marty
  
  
  
Back to top  
  
  
  
  

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Victoria,

Nice to be hearing from you. First, how are you doing? I hope that you are
well.
As for me well i just go on and on just like that pink energizer bunny. But
my feet aren't as large as his (or could be hers) you never know who is who
and what is what. But what i do know is i am me and Shelly is her and you
are you... If that makes any sense.

We just cam back from a cruise and had a wonderful time but i came back
with a terrible cold and that is a no no for me because i have a difficult
time dealing with my immune system because of all the immune suppressible
medication. But so far so good. Please don't be a stranger.

Thanks for ringing my bell.

18's,

Marty

On Mon, May 7, 2018 at 2:28 PM, Victoria Reiter  wrote:

> Been a long time.  Trust  you are well and holding steady.
>
> On Tue, Feb 27, 2018 at 5:15 AM,  wrote:
>
>> cmlhope@googlegroups.com
>> 
>>  Google
>> Groups
>> 
>> 
>> Topic digest
>> View all topics
>> 
>>
>>- The Daffodil principal
>><#m_-3514246164197998179_m_-5237887458506008448_group_thread_0> - 1
>>Update
>>
>> The Daffodil principal
>> 
>> Marty Gartenberg : Feb 26 09:20PM -0500
>>
>> Just sit back and relax when your day isn't what it should be. It is
>> somewhat of a long read but the pictures are unbelievable.
>>
>> Marty
>> Back to top <#m_-3514246164197998179_m_-5237887458506008448_digest_top>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Victoria Reiter]

Been a long time.  Trust  you are well and holding steady.

On Tue, Feb 27, 2018 at 5:15 AM,  wrote:

> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
> View all topics
> 
>
>- The Daffodil principal <#m_-5237887458506008448_group_thread_0> - 1
>Update
>
> The Daffodil principal
> 
> Marty Gartenberg : Feb 26 09:20PM -0500
>
> Just sit back and relax when your day isn't what it should be. It is
> somewhat of a long read but the pictures are unbelievable.
>
> Marty
> Back to top <#m_-5237887458506008448_digest_top>
> You received this digest because you're subscribed to updates for this
> group. You can change your settings on the group membership page
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi, I was thinking about all of this so i decided to tell you one of my
stories. It is about helping other people. Yes some of it may make you cry
but some will put some happiness into your lives. It has done these two
emotions to me as well. And i felt that you have the right to also know.
There are 1,286 stories in my journal that i have compiled over the last
thirty years

  Peter M Sr. and Peter M Jr.





In the early part of 1991 I heard of a Transit Police Officer in New York
City that was stricken with Leukemia. I was able to make contact with his
father Peter Jr. because of a Bone Marrow drive that he had started in
hopes of getting a tissue match for his son Peter Jr.



Unfortunately, as time went by he was not successful in his quest, but an
amazing thing happened from his search. He was actually able to find at
least a half dozen other compatible matches for others in need of a bone
marrow transplant. He was also able to collect some monetary donations to
help offset the cost of his search for his son, and after his son died he
would donate the remainder of these funds to others in the same situation.



Since Peter Sr. was a captain in the New York City Fire Department, many of
the men working in the New York City Fire Department, as well as the New
York City Police Department which Peter Jr. belonged to, volunteered to be
tested to see if a match could be found. This is how I first was able to
speak with Peter Sr. Since then we have had many conversations, and they
were both very comforting and informative to him as well as his son Peter
Jr. and we became close.



Months had passed and Peter Jr. was unable to find a suitable match and was
forced to have his mother be his bone marrow donor knowing that this was
not a very close match. In order to find a good match there has to be
several indicators in the bone marrow. Since there were no other matches
available either by sibling or in the general public bone marrow bank, in
order to stay alive, even for a short period of time he had to do
something.



Since his disease was progressing he had no other choice but to use his
mothers marrow donation. Unfortunately, and sadly Peter Jr. succumbed to
his disease slightly more then two years after receiving his mother’s
marrow donation.



Peter Sr. found out that I would make a speech at a Temple on Staten Island
about helping people. Without any knowledge on my part he did attend as the
many others that I have previously helped. I was shocked to see all of
these people, some that I had never even had the opportunity of meeting in
person but I had known quite well by their voices. They were all seated in
the first two rows in the Temple sanctuary.



I finally found out later on, two years later to be exact when Rabbi
Sussman presented me with the many letters he had received. Here is the one
written by Peter M before his son’s death:







Dated November 6, 1993



Dear Rabbi Sussman,



Although we have never met, I felt the need to write to you about a mutual
friend, Marty Gartenberg. Marty to coin a phrase is “one in a million”.  I
first spoke to him in 1991. A story about my son Peter, a NYC Transit
Police Officer and a victim of Leukemia had been published in The Staten
Island Advance.



It told of Peter’s plight and the desperate search we were making for a
compatible bone marrow donor, our only hope of saving his life. After
reading the story Marty who had himself had a bone marrow transplant about
a year before went to considerable trouble to find a way of contacting me.



When he was finally able to get my phone number, he called me explaining
his desire to help us by offering his support and the benefit of his rather
extensive knowledge gained first hand. He explained that having gone
through the rigors of a transplant he had decided to devote all of his time
to helping others in the same situation. The enormity of what he was saying
took some time to sink in. Here was a man who had gone through so much
himself, who was still fighting this disease and the after effects of his
transplant, who had every reason to say to the world “leave me alone, I
have my own problems” but who instead decided to reach out to others to
help his fellow man.



Such a man is rare, and like most rare things – valuable. Marty and I had
many conversations since that first one. Some long some short some happy
and some not so happy, but each time I came away renewed in spirit because
I knew he was there for me. And I am by no means the only one. Marty has
talked to scores maybe even hundreds of people like me, and his compassion
and understanding transcend anything as trivial religion or race national
origin. He is blind to these things. All he sees is the need, and offers
his help without reservation, to *anyone* he can reach. He has even had a
second phone line installed in his home so he can carry on this good work.



I am a captain in the NYC fire 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[myvety2k via CMLHope]

Well my CML friends, I'm on my 18 1/2 year on Gleevec and still pumping blood.

greenie



-Original Message-
From: bkbarney via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>; wa2yyx <wa2...@gmail.com>
Sent: Sat, Mar 10, 2018 8:41 pm
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic


Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone else 
who am forgetting because of my chemo brain. I am here, think about everyone 
often...had a bad flu season...really starting to feel better only nowWow17 
years for both Kristen and Jeanie!! Congrats...I just hit 8 years on February 
12thTime marches on..so glad to be here with all of you...


My latest blood work came back undetectable...so I was very happy to see 
thatstill navigating the severe muscle fatigue, deterioration issues, and 
some heart sprycel related stuff..but I am truly blessed to be here...and to 
still be able to work


love to all of you out there.the glass is half full in Chicago!


18's
Beth



-Original Message-
From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com>
To: wa2yyx <wa2...@gmail.com>; cmlhope <cmlhope@googlegroups.com>
Sent: Sat, Mar 10, 2018 4:18 pm
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic



For me it's been 13 years.
18's,
Susan F. Zimmerman



On Saturday, March 10, 2018 Marty Gartenberg <wa2...@gmail.com> wrote:


Hi Jeanie,


Wow 17 years! Good for you as well. My congratulates to you. Hey are you 
catching up with me? 30 years for me.
Time fly's by when your riding on the Marquis Express. Okay now lets all sing 
along all of you people out 
there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A


18's,


Marty 



On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com> wrote:


I am celebrating 17 years also.  I'm on my 4 tki: Ponatinib. Been a rough ride. 
How bout you! 

My Motto:
Faith and Pills
With Love
\uD83D\uDC2018's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL


On Mar 10, 2018, at 2:10 PM, Kristin Lieberman <kristinlieber...@gmail.com> 
wrote:



I’m here. Celebrating my 17th year as a CML survivor!


Kristin 



Sent from my iPhone

On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:



  

  

  
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  Topic digest
  View all topics  
  
  
Hello -  1 Update

  
Hello
  
  

  Marty Gartenberg <wa2...@gmail.com>: Mar 09 04:12PM -0500 
   

Hello, hello... Is anyone out there?
 
18's,
 
Marty
  
  
  
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

Hi my little sweetheart Marty. You are such an uplift to me. Surviving cml at a 
time when the odds were against you and then fight for your life with those 
kidneys.  I know a church member who tripped on a rug in a favorite restaurant 
and broke his neck and he died. So God wants you around to help the way you do. 
You are a light to anyone who knows you. 
What are you able to do physically?
I don't care much for tv so I read a lot, walk a little and garden a little. My 
mother broke her leg when she was my age and never walked again. Gotta be 
careful walking. So easy to trip and fall. 
Keep us all in your prayers. 



My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL

> On Mar 10, 2018, at 5:16 PM, Marty Gartenberg  wrote:
> 
> Hi Jeanie,
> 
> Wow 17 years! Good for you as well. My congratulates to you. Hey are you 
> catching up with me? 30 years for me.
> Time fly's by when your riding on the Marquis Express. Okay now lets all sing 
> along all of you people out there...`
> 
> 18's,
> 
> Marty 
> 
>> On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope 
>>  wrote:
>> I am celebrating 17 years also.  I'm on my 4 tki: Ponatinib. Been a rough 
>> ride. How bout you! 
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> 18's
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extramine
>> 0 CBL. ABL
>> 
>>> On Mar 10, 2018, at 2:10 PM, Kristin Lieberman  
>>> wrote:
>>> 
>>> I’m here. Celebrating my 17th year as a CML survivor!
>>> 
>>> Kristin 
>>> 
>>> Sent from my iPhone
>>> 
 On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:
 
 
 cmlhope@googlegroups.com   Google Groups   
 Topic digest 
 View all topics
 Hello - 1 Update
 Hello
 Marty Gartenberg : Mar 09 04:12PM -0500 
 
 Hello, hello... Is anyone out there?
  
 18's,
  
 Marty
 Back to top
 You received this digest because you're subscribed to updates for this 
 group. You can change your settings on the group membership page.
 To unsubscribe from this group and stop receiving emails from it send an 
 email to cmlhope+unsubscr...@googlegroups.com.
>>> 
>>> -- 
>>> -- 
>>> [CMLHope]
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>>> You received this message because you are subscribed to the Google Groups 
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>> 
>> -- 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Susan' via CMLHope]

CML “Hopers”:

Celebrating 15 years, last 28 months without Gleevec.  I’m a lurker but still 
keep in contact!

Hugs,
Susan Rosenthal

> On Mar 10, 2018, at 8:41 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> 
> wrote:
> 
> Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone 
> else who am forgetting because of my chemo brain. I am here, think about 
> everyone often...had a bad flu season...really starting to feel better only 
> nowWow17 years for both Kristen and Jeanie!! Congrats...I just hit 8 
> years on February 12thTime marches on..so glad to be here with all of 
> you...
> 
> My latest blood work came back undetectable...so I was very happy to see 
> thatstill navigating the severe muscle fatigue, deterioration issues, and 
> some heart sprycel related stuff..but I am truly blessed to be here...and to 
> still be able to work
> 
> love to all of you out there.the glass is half full in Chicago!
> 
> 18's
> Beth
> 
> 
> -Original Message-
> From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com>
> To: wa2yyx <wa2...@gmail.com>; cmlhope <cmlhope@googlegroups.com>
> Sent: Sat, Mar 10, 2018 4:18 pm
> Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 
> topic
> 
> For me it's been 13 years.
> 18's,
> Susan F. Zimmerman
> On Saturday, March 10, 2018 Marty Gartenberg <wa2...@gmail.com> wrote:
> Hi Jeanie,
> 
> Wow 17 years! Good for you as well. My congratulates to you. Hey are you 
> catching up with me? 30 years for me.
> Time fly's by when your riding on the Marquis Express. Okay now lets all sing 
> along all of you people out 
> there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A
> 
> 18's,
> 
> Marty 
> 
> On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope 
> <cmlhope@googlegroups.com> wrote:
> I am celebrating 17 years also.  I'm on my 4 tki: Ponatinib. Been a rough 
> ride. How bout you! 
> 
> My Motto:
> Faith and Pills
> With Love
> \uD83D\uDC2018's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
> 
> On Mar 10, 2018, at 2:10 PM, Kristin Lieberman <kristinlieber...@gmail.com> 
> wrote:
> 
> I’m here. Celebrating my 17th year as a CML survivor!
> 
> Kristin 
> 
> Sent from my iPhone
> 
> On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:
> 
> cmlhope@googlegroups.com  Google Groups  
> Topic digest 
> View all topics
> Hello - 1 Update
> Hello
> Marty Gartenberg <wa2...@gmail.com>: Mar 09 04:12PM -0500 
> 
> Hello, hello... Is anyone out there?
>  
> 18's,
>  
> Marty
> Back to top
> You received this digest because you're subscribed to updates for this group. 
> You can change your settings on the group membership page.
> To unsubscribe from this group and stop receiving emails from it send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
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>  
> You received this message because you are subscribed to the Google Groups 
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> For more opt

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[bkbarney via CMLHope]

Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone else 
who am forgetting because of my chemo brain. I am here, think about everyone 
often...had a bad flu season...really starting to feel better only nowWow17 
years for both Kristen and Jeanie!! Congrats...I just hit 8 years on February 
12thTime marches on..so glad to be here with all of you...


My latest blood work came back undetectable...so I was very happy to see 
thatstill navigating the severe muscle fatigue, deterioration issues, and 
some heart sprycel related stuff..but I am truly blessed to be here...and to 
still be able to work


love to all of you out there.the glass is half full in Chicago!


18's
Beth



-Original Message-
From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com>
To: wa2yyx <wa2...@gmail.com>; cmlhope <cmlhope@googlegroups.com>
Sent: Sat, Mar 10, 2018 4:18 pm
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic



For me it's been 13 years.
18's,
Susan F. Zimmerman



On Saturday, March 10, 2018 Marty Gartenberg <wa2...@gmail.com> wrote:


Hi Jeanie,


Wow 17 years! Good for you as well. My congratulates to you. Hey are you 
catching up with me? 30 years for me.
Time fly's by when your riding on the Marquis Express. Okay now lets all sing 
along all of you people out 
there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A


18's,


Marty 



On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope 
<cmlhope@googlegroups.com> wrote:


I am celebrating 17 years also.  I'm on my 4 tki: Ponatinib. Been a rough ride. 
How bout you! 

My Motto:
Faith and Pills
With Love
\uD83D\uDC2018's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL


On Mar 10, 2018, at 2:10 PM, Kristin Lieberman <kristinlieber...@gmail.com> 
wrote:



I’m here. Celebrating my 17th year as a CML survivor!


Kristin 



Sent from my iPhone

On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:



  

  

  
cmlhope@googlegroups.com
  
  
Google Groups  
  
  

  

  
  
  Topic digest
  View all topics  
  
  
Hello -  1 Update

  
Hello
  
  

  Marty Gartenberg <wa2...@gmail.com>: Mar 09 04:12PM -0500 
   

Hello, hello... Is anyone out there?
 
18's,
 
Marty
  
  
  
Back to top  
  
  
  
  

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Susan Zimmerman' via CMLHope]

For me it's been 13 years.
18's,

Susan F. Zimmerman


On Saturday, March 10, 2018 Marty Gartenberg  wrote:

Hi Jeanie,


Wow 17 years! Good for you as well. My congratulates to you. Hey are you 
catching up with me? 30 years for me.

Time fly's by when your riding on the Marquis Express. Okay now lets all sing 
along all of you people out 
there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A


18's,


Marty 


On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope 
 wrote:

I am celebrating 17 years also.  I'm on my 4 tki: Ponatinib. Been a rough ride. 
How bout you! 

My Motto:

Faith and Pills

With Love

\uD83D\uDC2018's

Dx 1/2004 CML Leukemia

Started Gleevec 2/2004

Started Tasigna 9/2009

Started Sprycel 11/2009

Started Ponatinib 1/ 2015

New Doctor--Dr Martine Extramine

0 CBL. ABL


On Mar 10, 2018, at 2:10 PM, Kristin Lieberman  
wrote:

I’m here. Celebrating my 17th year as a CML survivor!


Kristin 


Sent from my iPhone


On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:

cmlhope@googlegroups.com Google Groups  

Topic digest 
View all topics 

Hello - 1 Update 

Hello 

Marty Gartenberg : Mar 09 04:12PM -0500 

Hello, hello... Is anyone out there?
 
18's,
 
Marty

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Jeanie,

Wow 17 years! Good for you as well. My congratulates to you. Hey are you
catching up with me? 30 years for me.
Time fly's by when your riding on the Marquis Express. Okay now lets all
sing along all of you people out there...`

18's,

Marty

On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> I am celebrating 17 years also.  I'm on my 4 tki: Ponatinib. Been a rough
> ride. How bout you!
>
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
>
> On Mar 10, 2018, at 2:10 PM, Kristin Lieberman 
> wrote:
>
> I’m here. Celebrating my 17th year as a CML survivor!
>
> Kristin
>
> Sent from my iPhone
>
> On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:
>
> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
> View all topics
> 
>
>- Hello <#m_-2959867268393905017_group_thread_0> - 1 Update
>
> Hello
> 
> Marty Gartenberg : Mar 09 04:12PM -0500
>
> Hello, hello... Is anyone out there?
>
> 18's,
>
> Marty
> Back to top <#m_-2959867268393905017_digest_top>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

I am celebrating 17 years also.  I'm on my 4 tki: Ponatinib. Been a rough ride. 
How bout you! 

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL

> On Mar 10, 2018, at 2:10 PM, Kristin Lieberman  
> wrote:
> 
> I’m here. Celebrating my 17th year as a CML survivor!
> 
> Kristin 
> 
> Sent from my iPhone
> 
>> On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:
>> 
>> 
>> cmlhope@googlegroups.com Google Groups   
>> Topic digest 
>> View all topics
>> Hello - 1 Update
>> Hello
>> Marty Gartenberg : Mar 09 04:12PM -0500 
>> 
>> Hello, hello... Is anyone out there?
>>  
>> 18's,
>>  
>> Marty
>> Back to top
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Kristin,

Glad to hear from you again and to know that your doing well. Please stay
in touch when ever your around just to say hello.

18's,

Marty

On Sat, Mar 10, 2018 at 2:10 PM, Kristin Lieberman <
kristinlieber...@gmail.com> wrote:

> I’m here. Celebrating my 17th year as a CML survivor!
>
> Kristin
>
> Sent from my iPhone
>
> On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:
>
> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
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>
>- Hello <#m_-4517020188768820731_group_thread_0> - 1 Update
>
> Hello
> 
> Marty Gartenberg : Mar 09 04:12PM -0500
>
> Hello, hello... Is anyone out there?
>
> 18's,
>
> Marty
> Back to top <#m_-4517020188768820731_digest_top>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Kristin Lieberman]

I’m here. Celebrating my 17th year as a CML survivor!

Kristin 

Sent from my iPhone

> On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote:
> 
> 
> cmlhope@googlegroups.com  Google Groups  
> Topic digest 
> View all topics
> Hello - 1 Update
> Hello
> Marty Gartenberg : Mar 09 04:12PM -0500 
> 
> Hello, hello... Is anyone out there?
>  
> 18's,
>  
> Marty
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Jamie Tufariello]

On Monday, August 3, 2015, Maria Cashion  wrote:

>
>
> On Sat, Aug 1, 2015 at 6:28 AM,  wrote:
>
>> cmlhope@googlegroups.com
>> 
>>  Google
>> Groups
>> 
>> 
>> Topic digest
>> View all topics
>> 
>>
>>- New Results <#m_5972982799922959625_14ee8ce254022dda_group_thread_0>
>>- 1 Update
>>
>> New Results
>> 
>> Joyce Mesnarich : Jul 31 11:19PM -0500
>>
>> Susan,
>> Thanks for your reply. It is encouraging to know that you, too, had
>> rising liver numbers and that they subsequently went down. That is what we
>> are hoping and praying for. Hope your BCR/ABL numbers are good.
>> God bless and keep you,
>> Joyce in IL
>> Back to top <#m_5972982799922959625_14ee8ce254022dda_digest_top>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Jamie Tufariello]

On Monday, April 24, 2017, Victoria Reiter  wrote:

> I agree about remaining on Gleevec and not messing around with other
> medical entities.
>
> On Wed, Dec 14, 2016 at 3:13 PM, Victoria Reiter 
> wrote:
>
>> I'm not quite satisfied with 50%...rather remain on Gleevec and be
>> certain I don't relapse.
>>
>> On Sun, Nov 6, 2016 at 5:12 AM,  wrote:
>>
>>> cmlhope@googlegroups.com
>>> 
>>>  Google
>>> Groups
>>> 
>>> 
>>> Topic digest
>>> View all topics
>>> 
>>>
>>>- This was posted on our Yahoo site - WE ALL NEED TO READ THE
>>>ARTICLE!
>>>
>>> <#m_3228109347992102438_m_1886279506459063909_m_-3285202243326054360_group_thread_0>
>>>- 1 Update
>>>
>>> This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!
>>> 
>>> Richard H : Nov 05 09:42PM -0700
>>>
>>> Ryan Romero
>>> Today at 12:11 PM
>>>
>>> -
>>> -
>>>
>>> Hi everyone!!!
>>>
>>> I hope you all are doing well and continuing the fight!
>>>
>>> I wanted to share with you all a fantastic front page article in CURE
>>> Magazine and also ask you if anyone has tried or had success with the
>>> LAST
>>> Trial. I know some of you have asked your oncologists about this in the
>>> past but never say any updates.
>>>
>>> For those that don't know what this trial is; after 3-4 years of pcrU on
>>> TKIs (your chemo- gleevec for me), they are pulling people off
>>> gradually.
>>> Reports show 50% remain pcrU !!!
>>>
>>> Today is a bad day for me. I'm tried of the side effects of treatment
>>> and
>>> overall just tired. Needing some inspiration I picked up my CURE
>>> Magaizine
>>> and noticed that CML was on the front page. Here's a link below.
>>>
>>> http://www.curetoday.com/publications/cure/2016/hematology-2
>>> -2016/targeted-power-improving-prognoses-for-patients-with-
>>> chronic-myeloid-leukemia
>>> .
>>>
>>>
>>> Ryan "chemo-sabi"
>>> dx-10.27.2009
>>> Interferon-10/09-12/09
>>> Gleevec-400mg 1xd-12/09-02-11
>>> BCR-ABL- undetectable 2/2011
>>> 02/2011-Today- 400mg gleevec
>>> Back to top
>>> <#m_3228109347992102438_m_1886279506459063909_m_-3285202243326054360_digest_top>
>>> You received this digest because you're subscribed to updates for this
>>> group. You can change your settings on the group membership page
>>> 
>>> .
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>>> email to cmlhope+unsubscr...@googlegroups.com.
>>>
>>
>>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Victoria Reiter]

I agree about remaining on Gleevec and not messing around with other
medical entities.

On Wed, Dec 14, 2016 at 3:13 PM, Victoria Reiter  wrote:

> I'm not quite satisfied with 50%...rather remain on Gleevec and be certain
> I don't relapse.
>
> On Sun, Nov 6, 2016 at 5:12 AM,  wrote:
>
>> cmlhope@googlegroups.com
>> 
>>  Google
>> Groups
>> 
>> 
>> Topic digest
>> View all topics
>> 
>>
>>- This was posted on our Yahoo site - WE ALL NEED TO READ THE
>>ARTICLE!
>><#m_1886279506459063909_m_-3285202243326054360_group_thread_0> - 1
>>Update
>>
>> This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!
>> 
>> Richard H : Nov 05 09:42PM -0700
>>
>> Ryan Romero
>> Today at 12:11 PM
>>
>> -
>> -
>>
>> Hi everyone!!!
>>
>> I hope you all are doing well and continuing the fight!
>>
>> I wanted to share with you all a fantastic front page article in CURE
>> Magazine and also ask you if anyone has tried or had success with the
>> LAST
>> Trial. I know some of you have asked your oncologists about this in the
>> past but never say any updates.
>>
>> For those that don't know what this trial is; after 3-4 years of pcrU on
>> TKIs (your chemo- gleevec for me), they are pulling people off gradually.
>> Reports show 50% remain pcrU !!!
>>
>> Today is a bad day for me. I'm tried of the side effects of treatment and
>> overall just tired. Needing some inspiration I picked up my CURE
>> Magaizine
>> and noticed that CML was on the front page. Here's a link below.
>>
>> http://www.curetoday.com/publications/cure/2016/hematology-
>> 2-2016/targeted-power-improving-prognoses-for-patien
>> ts-with-chronic-myeloid-leukemia
>> .
>>
>>
>> Ryan "chemo-sabi"
>> dx-10.27.2009
>> Interferon-10/09-12/09
>> Gleevec-400mg 1xd-12/09-02-11
>> BCR-ABL- undetectable 2/2011
>> 02/2011-Today- 400mg gleevec
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>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Victoria Reiter]

I'm not quite satisfied with 50%...rather remain on Gleevec and be certain
I don't relapse.

On Sun, Nov 6, 2016 at 5:12 AM,  wrote:

> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
> View all topics
> 
>
>- This was posted on our Yahoo site - WE ALL NEED TO READ THE
>ARTICLE! <#m_-3285202243326054360_group_thread_0> - 1 Update
>
> This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!
> 
> Richard H : Nov 05 09:42PM -0700
>
> Ryan Romero
> Today at 12:11 PM
>
> -
> -
>
> Hi everyone!!!
>
> I hope you all are doing well and continuing the fight!
>
> I wanted to share with you all a fantastic front page article in CURE
> Magazine and also ask you if anyone has tried or had success with the LAST
> Trial. I know some of you have asked your oncologists about this in the
> past but never say any updates.
>
> For those that don't know what this trial is; after 3-4 years of pcrU on
> TKIs (your chemo- gleevec for me), they are pulling people off gradually.
> Reports show 50% remain pcrU !!!
>
> Today is a bad day for me. I'm tried of the side effects of treatment and
> overall just tired. Needing some inspiration I picked up my CURE Magaizine
> and noticed that CML was on the front page. Here's a link below.
>
> http://www.curetoday.com/publications/cure/2016/
> hematology-2-2016/targeted-power-improving-prognoses-for-
> patients-with-chronic-myeloid-leukemia
> .
>
>
> Ryan "chemo-sabi"
> dx-10.27.2009
> Interferon-10/09-12/09
> Gleevec-400mg 1xd-12/09-02-11
> BCR-ABL- undetectable 2/2011
> 02/2011-Today- 400mg gleevec
> Back to top <#m_-3285202243326054360_digest_top>
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> .
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Icandoallttc' via CMLHope]

Hi Sue and i really enjoyed the video.  It was amazing!! 
Thanks. 

My Motto: Faith and Pills❤️
With Jeanie 18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 4, 2016, at 5:19 AM, Sue  wrote:
> 
> Lottie and Zavie were my mentors
>  
> I was #1197 in the Zavies Zero Club
>  
> So Kristen I was somewhat behind your #69
>  
> I miss   Lotties friendship and Zavies Photos he would send each week
>  
> The importance of the photos – were two fold – to see that Zavie was AOK but 
> also that he was living with CML and not Living It his CML – Great lesson
>  
> I enjoyed his Yippee Yahoos when one became PCRU – [ Now named MRD – Minimum 
> Residual Disease ]  even when PCRU
>  
> I was an Ambassador for Ride to Conquer Cancer and reference both Lottie and 
> Zavie in my speech to riders
>  
> https://www.youtube.com/watch?v=4DhL8FQLRKw
>  
> You may like to listen
>  
> Those of us who are the living are certainly those two guys LEGACY
>  
> Sue 
> (Australia)
>   
>  
>  
>  
> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
> Sent: Friday, 4 March 2016 6:13 PM
> To: Digest recipients 
> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
>  
> cmlhope@googlegroups.com
> Google Groups
> 
> Topic digest 
> View all topics
> · Digest for cmlhope@googlegroups.com - 13 updates in 3 topics - 1 
> Update
> Digest for cmlhope@googlegroups.com - 13 updates in 3 topics
> Kristin Lieberman : Mar 03 07:07AM -0800 
> 
> I remember Lottie and Jimmy. I adored Zavie, and he called me a few times in 
> the old days just to check on me. I was #69 in Zavie's Zero Club.
>  
> Sent from my iPhone
>  
> Back to top
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RE: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Sue]

Lottie and Zavie were my mentors 

 

I was #1197 in the Zavies Zero Club 

 

So Kristen I was somewhat behind your #69

 

I miss   Lotties friendship and Zavies Photos he would send each week

 

The importance of the photos – were two fold – to see that Zavie was AOK but 
also that he was living with CML and not Living It his CML – Great lesson

 

I enjoyed his Yippee Yahoos when one became PCRU – [ Now named MRD – Minimum 
Residual Disease ]  even when PCRU 

 

I was an Ambassador for Ride to Conquer Cancer and reference both Lottie and 
Zavie in my speech to riders 

 

https://www.youtube.com/watch?v=4DhL8FQLRKw

 

You may like to listen 

 

Those of us who are the living are certainly those two guys LEGACY 

 

Sue 

(Australia)

  

 

 

 

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
Sent: Friday, 4 March 2016 6:13 PM
To: Digest recipients 
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

 


cmlhope@googlegroups.com 

 

 Google Groups 

 

 

Topic digest 
View all topics 

* Digest for cmlhope@googlegroups.com - 13 updates in 3 topics - 1 
Update 

 

 Digest for cmlhope@googlegroups.com - 13 updates in 3 topics 


Kristin Lieberman  >: Mar 03 07:07AM -0800 

I remember Lottie and Jimmy. I adored Zavie, and he called me a few times in 
the old days just to check on me. I was #69 in Zavie's Zero Club.
 
Sent from my iPhone
 

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RE: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Sue]

Kathy – there is a facebook page specifically for those on Pontinab 

 

https://www.facebook.com/groups/150038661787828/

 

 

You may find some suggestions and shared info of Pontinab 

 

Sue

 

 

 

 

 

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
Sent: Monday, 18 January 2016 6:28 PM
To: Digest recipients 
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

 


cmlhope@googlegroups.com 

 

 Google Groups 

 

 

Topic digest 
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* To Kathy - 1 Update 

 

 To Kathy 


Icandoallttc  >: Jan 17 
07:42AM -0500 

Hi Kathy
This is my 12 th year fighting cml and yes it was worth it. I know what you are 
going through as I remember my first year in Gleevec. We have many more choices 
now so if it gets too bad talk to your dr about changing tkis. 
Make sure you are going to a specialty cml onc as I made the mistake in the 
beginning of going to an onc that didn't know what he was doing. Stay strong 
and stay connected. 
❤️
My Motto: Faith and Pills❤️
With Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
 

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Susan Rosenthal' via CMLHope]

Victoria:

Dr. Brian Druker just told me about a month ago that if your hemoglobin and 
white blood cells are in the good range, it is okay to consider taking the 
shingles vaccine.

There seems to be a lot of controversy out there on this topic.  Make sure that 
the information you are receiving is from a specialist.

Hugs,
Susan Rosenthal

On Jul 12, 2015, at 6:19 AM, cmlhope@googlegroups.com wrote:

 cmlhope@googlegroups.com  Google Groups  
 Topic digest 
 View all topics
 Digest for cmlhope@googlegroups.com - 2 updates in 1 topic - 1 Update
 Digest for cmlhope@googlegroups.com - 2 updates in 1 topic   
 Victoria Reiter vkrei...@gmail.com: Jul 11 08:47AM -0400 
 
 My onc told me that I could not take the shingles vaccine nor any
 live-virus vaccine. I've been on Gleevec since 2000.
  
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[NICK WOODS]

Nick has this in his mouth.  It's from older types of metal fillings.  When 
teeth are pulled or fillings removed and replaced with newer types of fillings, 
some of the old metal residue gets into the cells of the gums and moves into 
the roof of the mouth or elsewhere like under the tongue.  Hope this is what 
your Dentist finds to be the case and not another cancer.  

Thinking and praying for you all as you post. Sincerely, Nick's wife, Elizabeth 


On Monday, January 19, 2015 4:10 AM, cmlhope@googlegroups.com 
cmlhope@googlegroups.com wrote:
  


cmlhope@googlegroups.comGoogle Groups  
Topic digest 
View all topics   
* blue palate - 1 Update 
blue palate   
Rien Jonkers rien16...@gmail.com: Jan 16 07:40AM +0100  

Hi Jeanie,
 
Thanks for posting!  I was surprised to hear that you suffered from
ear pain too, I had that as well, with blooding  ears, but I never thought
that this could be linked to Gleevec
As for the palate: I never check it, do not feel any pain either, so I do
not know since when it has got this funny colour. I visited my dentist
there months ago and then nothing strange could be seen... I am still
afraid that it could be mouth cancer... They will call me on Tuesday from
the hospital, telling me if they think a biopsy is needed...Keep my fingers
crossed...
My blood was checked last week, nothing special!!
Thanks again,
Rien
 
 
 
 
 
Op donderdag 15 januari 2015 heeft 'Icandoallttc' via CMLHope 
 email to cmlhope+unsubscr...@googlegroups.com
 javascript:_e(%7B%7D,'cvml','cmlhope%2bunsubscr...@googlegroups.com');.
 For more options, visit https://groups.google.com/d/optout.
 
-- 
 
*Dr. Marinus Jonkers*
 
*Ravenhoflaan 5*
 
*NL- 4706 WD Roosendaal*
 
*Tel. +31 165 8 22128*
 
*117 Bd de la 1ère Armée, no. 21*
 
*F – 83330 Le Beausset*
 
*Tél. +33 494 06 01 87*
 
*email: rien16...@gmail.com rien16...@gmail.com*
   
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Myvety2k via CMLHope]

Hi Gang,  did any of you folks watch 60 min. last  night.  It was about the 
cost of cancer drugs and Gleevec was on the list  of high cost.  Some 
people can't afford to pay the co-pay so their not  getting the drug. Some 
people 
are taking haft the amount that their suppose to  take to same on cost.  
It's all about money.  In my mind you can't  tell me they don't have a cure 
for CML they would loose so much money plus all  of the research, etc.   
Novartis has made billions of dollars since  the begining in May of 2001.  I 
would say they have received their return  of investment spent on research by 
now.  I hope all is well with  everyone out their.
 
Greenie
 
 
In a message dated 10/5/2014 6:44:32 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

Hi Marcie,  


We all seem to have our own afflictions so it isn't only me but every one  
of us that needs prayers for a healthy new year no matter what religion we 
may  be.


I so much appreciate your prayers for me to find myself transplanted with  
a kidney soon. Hopefully...


18's,


Marty


On Sat, Oct 4, 2014 at 9:00 PM, 'Marcie Goodman' via  CMLHope 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  wrote:


Hi Marty,


How are you since your last surgery?  Here's hoping that the New  Year will 
bring abundant blessings to all, but especially to you, dear  Marty, for a 
transplant to come your way very shortly. 


Marcie

Sent from my iPad

On Oct 4, 2014, at 8:10 PM, Marty Gartenberg _wa2yyx@gmail.com_ 
(mailto:wa2...@gmail.com)  wrote:




Hi Maria,  


We are still around so you don't have to worry. 


Today is my New Year and I prayed for everyone to have a happy and  healthy 
New Year. May any afflictions that anyone has become healed, and  by the 
grace of GOD that will happen. I know in my heart that there is a  cure coming 
for CML.


18,s


Marty


On Sat, Oct 4, 2014 at 2:02 PM, Maria Cashion _mariacashion@gmail.com_ 
(mailto:mariacash...@gmail.com)  wrote:

Hi everyone  
I hope that all is well with everyone of you! Haven't noticed  any 
activity in a while and that worries me


Maria


On Sun, Sep 28, 2014 at 6:18 AM, _cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com)  wrote:


_cmlhope@googlegroups.com_ 
(https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics)
   _Google Groups_ 
(https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview)

(https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overvie
w)  
 
Topic  digest 
_View all topics_ 
(https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics)
  
 
*   _jeanies  blood results and Marty_ 
(mip://15390868/default.html#148ddd75b993fda1_148dc53640c4fa63_148bbcef7677c233_group_thread_0)
  - 1  Update 

_jeanies blood results and Marty _ 
(http://groups.google.com/group/cmlhope/t/9c8e85c9ec5718c8?utm_source=digestutm_medium=email)
 
Susan Zimmerman _rszim0702@aol.com_ (mailto:rszim0...@aol.com) : Sep 27 
11:38PM -0400  

This is so helpful, if I can figure it out,  lol


Always wondered what ANC  was..


Susan




-Original  Message-
From: 'Skip Duffie' via CMLHope _cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) 
To: cmlhope  _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) 
Sent: Sat, Sep  27, 2014 4:44 pm
Subject: Re: [CMLHope] jeanies blood results  and  Marty








http://www.mdcalc.com/absolute-neutrophil-count-anc/
Hi  Jeanie and all. Just reading your report, as it seem different  to our 
reports here in NS... I will try to explain ANC as best  as I can. First if 
you look to the right of my actual counts,  you will see what the count 
should be. next you will not find  ANC, this count is a combination of white 
cells and neutrophils,  These counts do not appear on the copy of your results. 
To find  this count (ask your nurse or lab tech) see mine from this Fri.  
the formula is ANC = through the years 
I found a way not  exact but just take %of neutrophils and multiply by 
white  count,what this indicates is how immune compromised your are. In  fact I 
think its the most important count you can get.  Neutrophils indicated how 
your system is retaining bug fighting  capabilities and they call it ANC I 
still figure mine out twice  week. If I have all the information like % bands 
and Segments as  in the formula above will use it. but most times I just use 
my  method. I hope I did not confuse you but if your neutrophils are  up 
(see my report) that's good but if low avoid crowded spaces (  I miss church)  












On  Friday, September 26, 2014 10:03 PM, Marty Gartenberg 
_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com)   wrote:





Hi  Jeanie,


Pain especially severe pain is  the worst thing that someone could ever go 
through. I have been  through a lot of severe pain in my life. Having my 
spleen  surgically removed was really bad but then I had some very  severe gout 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[NICK WOODS]

Hi all CMLer's! Happy Monday to each of you where ever you live.  It's a crisp, 
Fall day here in Kansas.  
Nick's doing O.K. as far as O.K. goes to describe living with ache, pain, 
and then the usual side effects of Gleevec.
But as each of you say and we say each day, Thank God I am alive and 
appreciating the day. So hang in there and know you're thought about and 
prayed for, too.  
Elizabeth W. Nick's wife. 


On Monday, October 6, 2014 5:24 AM, cmlhope@googlegroups.com 
cmlhope@googlegroups.com wrote:
  


cmlhope@googlegroups.comGoogle Groups  
Topic digest 
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* Digest for cmlhope@googlegroups.com - 1 update in 1 topic - 1 Update  
   
Digest for cmlhope@googlegroups.com - 1 update in 1 topic   
Marty Gartenberg wa2...@gmail.com: Oct 05 06:44PM -0400  

Hi Marcie,
 
We all seem to have our own afflictions so it isn't only me but every one
of us that needs prayers for a healthy new year no matter what religion we
may be.
 
I so much appreciate your prayers for me to find myself transplanted with a
kidney soon. Hopefully...
 
18's,
 
Marty
 
On Sat, Oct 4, 2014 at 9:00 PM, 'Marcie Goodman' via CMLHope 
   
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Greenie,

Yes, I did see that on TV.

I am very angry at Novartis. Did I ever tell you the story about how
STI-571 got to market to become Gleevec? It was because of me and Zavie
Miller, and now they just don't know what to charge. Your correct some
people just can't afford it and suffer.

Anyway, it is a long story but Novartis should show compassion to every one
that has CML and can be helped by this drug.

18's,

Marty

On Mon, Oct 6, 2014 at 7:32 AM, Myvety2k via CMLHope 
cmlhope@googlegroups.com wrote:

  Hi Gang,  did any of you folks watch 60 min. last night.  It was about
 the cost of cancer drugs and Gleevec was on the list of high cost.  Some
 people can't afford to pay the co-pay so their not getting the drug. Some
 people are taking haft the amount that their suppose to take to same on
 cost.  It's all about money.  In my mind you can't tell me they don't have
 a cure for CML they would loose so much money plus all of the research,
 etc.   Novartis has made billions of dollars since the begining in May of
 2001.  I would say they have received their return of investment spent on
 research by now.  I hope all is well with everyone out their.

 Greenie

  In a message dated 10/5/2014 6:44:32 P.M. Eastern Daylight Time,
 wa2...@gmail.com writes:

 Hi Marcie,

 We all seem to have our own afflictions so it isn't only me but every one
 of us that needs prayers for a healthy new year no matter what religion we
 may be.

 I so much appreciate your prayers for me to find myself transplanted with
 a kidney soon. Hopefully...

 18's,

 Marty

 On Sat, Oct 4, 2014 at 9:00 PM, 'Marcie Goodman' via CMLHope 
 cmlhope@googlegroups.com wrote:

  Hi Marty,

 How are you since your last surgery?  Here's hoping that the New Year
 will bring abundant blessings to all, but especially to you, dear Marty,
 for a transplant to come your way very shortly.

 Marcie

 Sent from my iPad

 On Oct 4, 2014, at 8:10 PM, Marty Gartenberg wa2...@gmail.com wrote:

  Hi Maria,

 We are still around so you don't have to worry.

 Today is my New Year and I prayed for everyone to have a happy and
 healthy New Year. May any afflictions that anyone has become healed, and by
 the grace of GOD that will happen. I know in my heart that there is a cure
 coming for CML.

 18,s

 Marty

 On Sat, Oct 4, 2014 at 2:02 PM, Maria Cashion mariacash...@gmail.com
 wrote:

 Hi everyone
 I hope that all is well with everyone of you! Haven't noticed any
 activity in a while and that worries me

 Maria

 On Sun, Sep 28, 2014 at 6:18 AM, cmlhope@googlegroups.com wrote:

cmlhope@googlegroups.com
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics
  Google
 Groups
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
  [image:
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview]
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
  Topic digest
 View all topics
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics

- jeanies blood results and Marty - 1 Update

 jeanies blood results and Marty
 http://groups.google.com/group/cmlhope/t/9c8e85c9ec5718c8?utm_source=digestutm_medium=email
   Susan Zimmerman rszim0...@aol.com: Sep 27 11:38PM -0400

 This is so helpful, if I can figure it out, lol


 Always wondered what ANC was..


 Susan




 -Original Message-
 From: 'Skip Duffie' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Sat, Sep 27, 2014 4:44 pm
 Subject: Re: [CMLHope] jeanies blood results and Marty








 http://www.mdcalc.com/absolute-neutrophil-count-anc/
 Hi Jeanie and all. Just reading your report, as it seem different to
 our reports here in NS... I will try to explain ANC as best as I can. First
 if you look to the right of my actual counts, you will see what the count
 should be. next you will not find ANC, this count is a combination of white
 cells and neutrophils, These counts do not appear on the copy of your
 results. To find this count (ask your nurse or lab tech) see mine from this
 Fri.
 the formula is ANC = through the years
 I found a way not exact but just take %of neutrophils and multiply by
 white count,what this indicates is how immune compromised your are. In fact
 I think its the most important count you can get. Neutrophils indicated how
 your system is retaining bug fighting capabilities and they call it ANC I
 still figure mine out twice week. If I have all the information like %
 bands and Segments as in the formula above will use it. but most times I
 just use my method. I hope I did not confuse you but if your neutrophils
 are up (see my report) that's good but if low avoid crowded spaces ( I miss
 church)












 On Friday, September 26, 2014 10:03 PM, Marty Gartenberg 
 wa2...@gmail.com wrote:





 Hi Jeanie,


 Pain especially severe pain is the worst thing that someone could ever
 go 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Marcie,

We all seem to have our own afflictions so it isn't only me but every one
of us that needs prayers for a healthy new year no matter what religion we
may be.

I so much appreciate your prayers for me to find myself transplanted with a
kidney soon. Hopefully...

18's,

Marty

On Sat, Oct 4, 2014 at 9:00 PM, 'Marcie Goodman' via CMLHope 
cmlhope@googlegroups.com wrote:

 Hi Marty,

 How are you since your last surgery?  Here's hoping that the New Year will
 bring abundant blessings to all, but especially to you, dear Marty, for a
 transplant to come your way very shortly.

 Marcie

 Sent from my iPad

 On Oct 4, 2014, at 8:10 PM, Marty Gartenberg wa2...@gmail.com wrote:

 Hi Maria,

 We are still around so you don't have to worry.

 Today is my New Year and I prayed for everyone to have a happy and healthy
 New Year. May any afflictions that anyone has become healed, and by the
 grace of GOD that will happen. I know in my heart that there is a cure
 coming for CML.

 18,s

 Marty

 On Sat, Oct 4, 2014 at 2:02 PM, Maria Cashion mariacash...@gmail.com
 wrote:

 Hi everyone
 I hope that all is well with everyone of you! Haven't noticed any
 activity in a while and that worries me

 Maria

 On Sun, Sep 28, 2014 at 6:18 AM, cmlhope@googlegroups.com wrote:

 cmlhope@googlegroups.com
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics
   Google
 Groups
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
   Topic digest
  View all topics
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics

-  jeanies blood results and Marty
#148ddd75b993fda1_148dc53640c4fa63_148bbcef7677c233_group_thread_0
- 1 Update

   jeanies blood results and Marty
 http://groups.google.com/group/cmlhope/t/9c8e85c9ec5718c8?utm_source=digestutm_medium=email
   Susan Zimmerman rszim0...@aol.com: Sep 27 11:38PM -0400

 This is so helpful, if I can figure it out, lol


 Always wondered what ANC was..


 Susan




 -Original Message-
 From: 'Skip Duffie' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Sat, Sep 27, 2014 4:44 pm
 Subject: Re: [CMLHope] jeanies blood results and Marty








 http://www.mdcalc.com/absolute-neutrophil-count-anc/
 Hi Jeanie and all. Just reading your report, as it seem different to our
 reports here in NS... I will try to explain ANC as best as I can. First if
 you look to the right of my actual counts, you will see what the count
 should be. next you will not find ANC, this count is a combination of white
 cells and neutrophils, These counts do not appear on the copy of your
 results. To find this count (ask your nurse or lab tech) see mine from this
 Fri.
 the formula is ANC = through the years
 I found a way not exact but just take %of neutrophils and multiply by
 white count,what this indicates is how immune compromised your are. In fact
 I think its the most important count you can get. Neutrophils indicated how
 your system is retaining bug fighting capabilities and they call it ANC I
 still figure mine out twice week. If I have all the information like %
 bands and Segments as in the formula above will use it. but most times I
 just use my method. I hope I did not confuse you but if your neutrophils
 are up (see my report) that's good but if low avoid crowded spaces ( I miss
 church)












 On Friday, September 26, 2014 10:03 PM, Marty Gartenberg 
 wa2...@gmail.com wrote:





 Hi Jeanie,


 Pain especially severe pain is the worst thing that someone could ever
 go through. I have been through a lot of severe pain in my life. Having my
 spleen surgically removed was really bad but then I had some very severe
 gout attacks, but even worse was two bouts with the shingles. However the
 absolutly worst pain in my life were the terrible mouth sores when I went
 through my bone marrow transplant. It hurt so badly that I was put on a
 morphine drip that I was able to control with a button. The only thing that
 it did was to make me hullicinate and throw up. It got so bad that I
 removed the morphine tube and went on with the pain. I just decided to put
 my mind in a different place. The transplant nurse gowned up and came into
 my bubble and held my hand in her gloved hand and whispered through her
 mask three words into my ear. I always remembered those three words to this
 day. She said It's only temporary and even though I suffered greatly I
 would say those words over and over again. They helped me deal with the
 pain, but it still hurt and I wouldn't let my mind soak it in.


 18's,


 Marty



 On Fri, Sep 26, 2014 at 9:50 AM, ICANDOALLTTC via CMLHope 
 cmlhope@googlegroups.com wrote:


 Hi Marty and so glad you are home; I pray that everything goes well.
 As we walk through this life, it seems pain is very much a part of it. I
 try to 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Maria Cashion]

Hi everyone
I hope that all is well with everyone of you! Haven't noticed any
activity in a while and that worries me

Maria

On Sun, Sep 28, 2014 at 6:18 AM, cmlhope@googlegroups.com wrote:

 cmlhope@googlegroups.com
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics
   Google
 Groups
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
   Topic digest
  View all topics
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics

-  jeanies blood results and Marty #148bbcef7677c233_group_thread_0
- 1 Update

   jeanies blood results and Marty
 http://groups.google.com/group/cmlhope/t/9c8e85c9ec5718c8?utm_source=digestutm_medium=email
   Susan Zimmerman rszim0...@aol.com: Sep 27 11:38PM -0400

 This is so helpful, if I can figure it out, lol


 Always wondered what ANC was..


 Susan




 -Original Message-
 From: 'Skip Duffie' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Sat, Sep 27, 2014 4:44 pm
 Subject: Re: [CMLHope] jeanies blood results and Marty








 http://www.mdcalc.com/absolute-neutrophil-count-anc/
 Hi Jeanie and all. Just reading your report, as it seem different to our
 reports here in NS... I will try to explain ANC as best as I can. First if
 you look to the right of my actual counts, you will see what the count
 should be. next you will not find ANC, this count is a combination of white
 cells and neutrophils, These counts do not appear on the copy of your
 results. To find this count (ask your nurse or lab tech) see mine from this
 Fri.
 the formula is ANC = through the years
 I found a way not exact but just take %of neutrophils and multiply by
 white count,what this indicates is how immune compromised your are. In fact
 I think its the most important count you can get. Neutrophils indicated how
 your system is retaining bug fighting capabilities and they call it ANC I
 still figure mine out twice week. If I have all the information like %
 bands and Segments as in the formula above will use it. but most times I
 just use my method. I hope I did not confuse you but if your neutrophils
 are up (see my report) that's good but if low avoid crowded spaces ( I miss
 church)












 On Friday, September 26, 2014 10:03 PM, Marty Gartenberg wa2...@gmail.com
 wrote:





 Hi Jeanie,


 Pain especially severe pain is the worst thing that someone could ever go
 through. I have been through a lot of severe pain in my life. Having my
 spleen surgically removed was really bad but then I had some very severe
 gout attacks, but even worse was two bouts with the shingles. However the
 absolutly worst pain in my life were the terrible mouth sores when I went
 through my bone marrow transplant. It hurt so badly that I was put on a
 morphine drip that I was able to control with a button. The only thing that
 it did was to make me hullicinate and throw up. It got so bad that I
 removed the morphine tube and went on with the pain. I just decided to put
 my mind in a different place. The transplant nurse gowned up and came into
 my bubble and held my hand in her gloved hand and whispered through her
 mask three words into my ear. I always remembered those three words to this
 day. She said It's only temporary and even though I suffered greatly I
 would say those words over and over again. They helped me deal with the
 pain, but it still hurt and I wouldn't let my mind soak it in.


 18's,


 Marty



 On Fri, Sep 26, 2014 at 9:50 AM, ICANDOALLTTC via CMLHope 
 cmlhope@googlegroups.com wrote:


 Hi Marty and so glad you are home; I pray that everything goes well.
 As we walk through this life, it seems pain is very much a part of it. I
 try to cope, and I remember Millie telling me that she would cope with the
 pain as well as she could. My sister has knee pain and I would tell Millie
 that she woke up each morning in pain; so I told her we could all join
 together in a prayer in the morning as we all woke up with pain.

 Coping with pain is hard because you don't know what is safe to take for
 the pain. As Sprycel is already a blood thinner, and most pain pills are
 blood thinners, you have to be careful that you don't get your blood too
 thin. I believe Millie had that problem, and she finally got a machine that
 would tell her how thin her blood was. However, as my platelets are high, I
 probably don't need to worry about the blood being too thin. Those with low
 platelets would have to watch it carefully.

 I was taking Tramadol for pain and it helped some. I learned recently that
 it has been put on controlled drug list. My doctor never told me this drug
 could be addictive, so I took it at least once a day. Now I find out that
 it is addictive, and that you can't just go off of it. You have to cut down
 gradually as it affects the brain. If anyone 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Maria,

We are still around so you don't have to worry.

Today is my New Year and I prayed for everyone to have a happy and healthy
New Year. May any afflictions that anyone has become healed, and by the
grace of GOD that will happen. I know in my heart that there is a cure
coming for CML.

18,s

Marty

On Sat, Oct 4, 2014 at 2:02 PM, Maria Cashion mariacash...@gmail.com
wrote:

 Hi everyone
 I hope that all is well with everyone of you! Haven't noticed any
 activity in a while and that worries me

 Maria

 On Sun, Sep 28, 2014 at 6:18 AM, cmlhope@googlegroups.com wrote:

 cmlhope@googlegroups.com
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics
   Google
 Groups
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
   Topic digest
  View all topics
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics

-  jeanies blood results and Marty
#148dc53640c4fa63_148bbcef7677c233_group_thread_0 - 1 Update

   jeanies blood results and Marty
 http://groups.google.com/group/cmlhope/t/9c8e85c9ec5718c8?utm_source=digestutm_medium=email
   Susan Zimmerman rszim0...@aol.com: Sep 27 11:38PM -0400

 This is so helpful, if I can figure it out, lol


 Always wondered what ANC was..


 Susan




 -Original Message-
 From: 'Skip Duffie' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Sat, Sep 27, 2014 4:44 pm
 Subject: Re: [CMLHope] jeanies blood results and Marty








 http://www.mdcalc.com/absolute-neutrophil-count-anc/
 Hi Jeanie and all. Just reading your report, as it seem different to our
 reports here in NS... I will try to explain ANC as best as I can. First if
 you look to the right of my actual counts, you will see what the count
 should be. next you will not find ANC, this count is a combination of white
 cells and neutrophils, These counts do not appear on the copy of your
 results. To find this count (ask your nurse or lab tech) see mine from this
 Fri.
 the formula is ANC = through the years
 I found a way not exact but just take %of neutrophils and multiply by
 white count,what this indicates is how immune compromised your are. In fact
 I think its the most important count you can get. Neutrophils indicated how
 your system is retaining bug fighting capabilities and they call it ANC I
 still figure mine out twice week. If I have all the information like %
 bands and Segments as in the formula above will use it. but most times I
 just use my method. I hope I did not confuse you but if your neutrophils
 are up (see my report) that's good but if low avoid crowded spaces ( I miss
 church)












 On Friday, September 26, 2014 10:03 PM, Marty Gartenberg 
 wa2...@gmail.com wrote:





 Hi Jeanie,


 Pain especially severe pain is the worst thing that someone could ever go
 through. I have been through a lot of severe pain in my life. Having my
 spleen surgically removed was really bad but then I had some very severe
 gout attacks, but even worse was two bouts with the shingles. However the
 absolutly worst pain in my life were the terrible mouth sores when I went
 through my bone marrow transplant. It hurt so badly that I was put on a
 morphine drip that I was able to control with a button. The only thing that
 it did was to make me hullicinate and throw up. It got so bad that I
 removed the morphine tube and went on with the pain. I just decided to put
 my mind in a different place. The transplant nurse gowned up and came into
 my bubble and held my hand in her gloved hand and whispered through her
 mask three words into my ear. I always remembered those three words to this
 day. She said It's only temporary and even though I suffered greatly I
 would say those words over and over again. They helped me deal with the
 pain, but it still hurt and I wouldn't let my mind soak it in.


 18's,


 Marty



 On Fri, Sep 26, 2014 at 9:50 AM, ICANDOALLTTC via CMLHope 
 cmlhope@googlegroups.com wrote:


 Hi Marty and so glad you are home; I pray that everything goes well.
 As we walk through this life, it seems pain is very much a part of it. I
 try to cope, and I remember Millie telling me that she would cope with the
 pain as well as she could. My sister has knee pain and I would tell Millie
 that she woke up each morning in pain; so I told her we could all join
 together in a prayer in the morning as we all woke up with pain.

 Coping with pain is hard because you don't know what is safe to take for
 the pain. As Sprycel is already a blood thinner, and most pain pills are
 blood thinners, you have to be careful that you don't get your blood too
 thin. I believe Millie had that problem, and she finally got a machine that
 would tell her how thin her blood was. However, as my platelets are high, I
 probably don't need to worry about the blood being too thin. 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Marcie Goodman' via CMLHope]

Hi Marty,

How are you since your last surgery?  Here's hoping that the New Year will 
bring abundant blessings to all, but especially to you, dear Marty, for a 
transplant to come your way very shortly. 

Marcie

Sent from my iPad

 On Oct 4, 2014, at 8:10 PM, Marty Gartenberg wa2...@gmail.com wrote:
 
 Hi Maria,
 
 We are still around so you don't have to worry. 
 
 Today is my New Year and I prayed for everyone to have a happy and healthy 
 New Year. May any afflictions that anyone has become healed, and by the grace 
 of GOD that will happen. I know in my heart that there is a cure coming for 
 CML.
 
 18,s
 
 Marty
 
 On Sat, Oct 4, 2014 at 2:02 PM, Maria Cashion mariacash...@gmail.com wrote:
 Hi everyone
 I hope that all is well with everyone of you! Haven't noticed any 
 activity in a while and that worries me
 
 Maria
 
 On Sun, Sep 28, 2014 at 6:18 AM, cmlhope@googlegroups.com wrote:
 
 cmlhope@googlegroups.comGoogle Groups  
 Topic digest 
 View all topics
 jeanies blood results and Marty - 1 Update
 jeanies blood results and Marty   
 Susan Zimmerman rszim0...@aol.com: Sep 27 11:38PM -0400 
 
 This is so helpful, if I can figure it out, lol
  
  
 Always wondered what ANC was..
  
  
 Susan
  
  
  
  
 -Original Message-
 From: 'Skip Duffie' via CMLHope cmlhope@googlegroups.com
 To: cmlhope cmlhope@googlegroups.com
 Sent: Sat, Sep 27, 2014 4:44 pm
 Subject: Re: [CMLHope] jeanies blood results and Marty
  
  
  
  
  
  
  
  
 http://www.mdcalc.com/absolute-neutrophil-count-anc/
 Hi Jeanie and all. Just reading your report, as it seem different to our 
 reports here in NS... I will try to explain ANC as best as I can. First if 
 you look to the right of my actual counts, you will see what the count 
 should be. next you will not find ANC, this count is a combination of white 
 cells and neutrophils, These counts do not appear on the copy of your 
 results. To find this count (ask your nurse or lab tech) see mine from this 
 Fri. 
 the formula is ANC = through the years 
 I found a way not exact but just take %of neutrophils and multiply by white 
 count,what this indicates is how immune compromised your are. In fact I 
 think its the most important count you can get. Neutrophils indicated how 
 your system is retaining bug fighting capabilities and they call it ANC I 
 still figure mine out twice week. If I have all the information like % 
 bands and Segments as in the formula above will use it. but most times I 
 just use my method. I hope I did not confuse you but if your neutrophils 
 are up (see my report) that's good but if low avoid crowded spaces ( I miss 
 church) 
  
  
  
  
  
  
 
  
  
 
 
 
 On Friday, September 26, 2014 10:03 PM, Marty Gartenberg wa2...@gmail.com 
 wrote:
 
 
  
 
  
 Hi Jeanie,
  
  
 Pain especially severe pain is the worst thing that someone could ever go 
 through. I have been through a lot of severe pain in my life. Having my 
 spleen surgically removed was really bad but then I had some very severe 
 gout attacks, but even worse was two bouts with the shingles. However the 
 absolutly worst pain in my life were the terrible mouth sores when I went 
 through my bone marrow transplant. It hurt so badly that I was put on a 
 morphine drip that I was able to control with a button. The only thing that 
 it did was to make me hullicinate and throw up. It got so bad that I 
 removed the morphine tube and went on with the pain. I just decided to put 
 my mind in a different place. The transplant nurse gowned up and came into 
 my bubble and held my hand in her gloved hand and whispered through her 
 mask three words into my ear. I always remembered those three words to this 
 day. She said It's only temporary and even though I suffered greatly I 
 would say those words over and over again. They helped me deal with the 
 pain, but it still hurt and I wouldn't let my mind soak it in.
  
  
 18's,
  
  
 Marty
  
  
  
 On Fri, Sep 26, 2014 at 9:50 AM, ICANDOALLTTC via CMLHope 
 cmlhope@googlegroups.com wrote:
  
  
 Hi Marty and so glad you are home; I pray that everything goes well. 
 As we walk through this life, it seems pain is very much a part of it. I 
 try to cope, and I remember Millie telling me that she would cope with the 
 pain as well as she could. My sister has knee pain and I would tell Millie 
 that she woke up each morning in pain; so I told her we could all join 
 together in a prayer in the morning as we all woke up with pain.
 
 Coping with pain is hard because you don't know what is safe to take for 
 the pain. As Sprycel is already a blood thinner, and most pain pills are 
 blood thinners, you have to be careful that you don't get your blood too 
 thin. I believe Millie had that problem, and she finally got a machine that 
 would tell her how thin her blood was. However, as my platelets are high, I 
 probably don't need to worry about the blood being too thin. Those with low 
 platelets would 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Maria Cashion]

Dear Marty:

You are already a part of my life as all the rest!!! I am happy that your
surgery is over and hoping for the best.  My veins are also very difficult
to canalize...When I had my pick line inserted, they had to remove its
safety peel because it did not fit in my veins...Hope that dialisis is
easier on you.  As well as everyone else, I am praying for your kidney
transplant to come soon!!! Bless you and HAPPY  NEW YEAR

Maria :)


On Thu, Sep 25, 2014 at 6:26 AM, cmlhope@googlegroups.com wrote:

 cmlhope@googlegroups.com
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics
   Google
 Groups
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
   Topic digest
  View all topics
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics

-  My surgery is over #148ac58ca1952651_group_thread_0 - 1 Update

   My surgery is over
 http://groups.google.com/group/cmlhope/t/57913a4bf5047022?utm_source=digestutm_medium=email
   Marty Gartenberg wa2...@gmail.com: Sep 24 04:45PM -0400

 I want to thank everyone for their good wishes and prayers. I know
 that all of you really helped me out.

 I received something from Marcie and in it she wrote L'shana tova
 tikateivu
 It simply means have a good New Year.

 Marcie, I'm sure that you won't mind if I spread this onto everyone.
 It doesn't matter what religion you are but it does matter that each
 and every one of you has a very healthy and happy new year. This is
 from me to everyone. I pray that there will be a cure for CML and with
 it all of you may be healed. After what all of you have been going
 through you really deserve all healing health. With health comes
 happiness.

 I love each and every one of you. Your always in my heart and mind. I
 often think about you and at times I just can't sleep at night, but
 please know that THERE WILL BE A CURE!!!

 18's,

 Marty
   Back to top #148ac58ca1952651_digest_top
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Thank you Maria,

I guess that we all have our own set of problems but we are still able to
deal with them. That is what life is all about.

Anyway, thank you for your New Years wishes.

18's,

Narty

On Thu, Sep 25, 2014 at 4:37 PM, Maria Cashion mariacash...@gmail.com
wrote:

 Dear Marty:

 You are already a part of my life as all the rest!!! I am happy that your
 surgery is over and hoping for the best.  My veins are also very difficult
 to canalize...When I had my pick line inserted, they had to remove its
 safety peel because it did not fit in my veins...Hope that dialisis is
 easier on you.  As well as everyone else, I am praying for your kidney
 transplant to come soon!!! Bless you and HAPPY  NEW YEAR

 Maria :)


 On Thu, Sep 25, 2014 at 6:26 AM, cmlhope@googlegroups.com wrote:

 cmlhope@googlegroups.com
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics
   Google
 Groups
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview
   Topic digest
  View all topics
 https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!forum/cmlhope/topics

-  My surgery is over
#148ae88569e68624_148ac58ca1952651_group_thread_0 - 1 Update

   My surgery is over
 http://groups.google.com/group/cmlhope/t/57913a4bf5047022?utm_source=digestutm_medium=email
   Marty Gartenberg wa2...@gmail.com: Sep 24 04:45PM -0400

 I want to thank everyone for their good wishes and prayers. I know
 that all of you really helped me out.

 I received something from Marcie and in it she wrote L'shana tova
 tikateivu
 It simply means have a good New Year.

 Marcie, I'm sure that you won't mind if I spread this onto everyone.
 It doesn't matter what religion you are but it does matter that each
 and every one of you has a very healthy and happy new year. This is
 from me to everyone. I pray that there will be a cure for CML and with
 it all of you may be healed. After what all of you have been going
 through you really deserve all healing health. With health comes
 happiness.

 I love each and every one of you. Your always in my heart and mind. I
 often think about you and at times I just can't sleep at night, but
 please know that THERE WILL BE A CURE!!!

 18's,

 Marty
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[bkbarney via CMLHope]

Dear Maria Seni,

Welcome welcome welcome..
This is a great site and a great group of folksplease feel free to share 
your story, ask any questions you may have and we will all try to support you 
as best we can. It's a very very supportive group. Have a great day. Beth


-Original Message-
From: Maria Cashion mariacash...@gmail.com
To: cmlhope cmlhope@googlegroups.com
Sent: Sat, Jun 7, 2014 9:31 am
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic


Hello to all of you!!! I am new to this, I have really never joined a group 
like this one.  I initiated contact a few mopnths ago, but haven't had the 
corage or the time to really join.  I am hoping  for support and frienship!!! 
Promise I will write about what hppened with me from the start!!! Bless you 
all!!!


Maria Seni




On Sat, Jun 7, 2014 at 6:22 AM, cmlhope@googlegroups.com wrote:

  Today's topic summary
Group: http://groups.google.com/group/cmlhope/topics

Marty and Beth Millie and All [1 Update]

 Marty and Beth Millie and All
Marty Gartenberg wa2...@gmail.com Jun 06 11:06PM -0400  

Hi Millie,
 
I haven't heard anything from you in a while. I hope everything is
alright. Please keep in touch, I'm a bit concerned about you.
 
18's,
 
Marty
 

 




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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[icandoallttc via CMLHope]

Welcome to our group

You will love it here
I'm on vacation but will be checking in

Hope everyone is well
Jeanie

Sent from my iPhone

 On Jun 7, 2014, at 10:28 AM, Maria Cashion mariacash...@gmail.com wrote:
 
 Hello to all of you!!! I am new to this, I have really never joined a group 
 like this one.  I initiated contact a few mopnths ago, but haven't had the 
 corage or the time to really join.  I am hoping  for support and frienship!!! 
 Promise I will write about what hppened with me from the start!!! Bless you 
 all!!!
 
 Maria Seni
 
 
 On Sat, Jun 7, 2014 at 6:22 AM, cmlhope@googlegroups.com wrote:
   Today's topic summary
 Group: http://groups.google.com/group/cmlhope/topics
 
 Marty and Beth Millie and All [1 Update]
  Marty and Beth Millie and All
 Marty Gartenberg wa2...@gmail.com Jun 06 11:06PM -0400  
 
 Hi Millie,
  
 I haven't heard anything from you in a while. I hope everything is
 alright. Please keep in touch, I'm a bit concerned about you.
  
 18's,
  
 Marty
 
 -- 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Maria,

Let me welcome you to this group. Please don't be bashful for we all
share in the same thing that you do. We are all here together to try
and help each other. Any time that you feel you need to talk you have
come to the right place.

My name is Marty and I suppose that I am probably one of the longest
survivors of having CML. I had a bone marrow transplant more then 24
years ago and am here to try and help people go through CML and try to
live their lives.

There is only one person that has survived longer then I. His name is
Skip and I believe he is on his 36 year with having CML. So what does
this tell you? CML is a survivable disease.

There has been so much improvement with all of these new drugs (called
TKI's) then when I had to go through it. I know that there will
finally be a cure for CML, it is just a matter of time which should
come soon.

Now just to let you know. Whenever I end an email I always end it with
two numbers. They are 1 and 8, which is a symbol for life.

So Maria, I wish you 18's

Marty

On Sat, Jun 7, 2014 at 10:28 AM, Maria Cashion mariacash...@gmail.com wrote:
 Hello to all of you!!! I am new to this, I have really never joined a group
 like this one.  I initiated contact a few mopnths ago, but haven't had the
 corage or the time to really join.  I am hoping  for support and
 frienship!!! Promise I will write about what hppened with me from the
 start!!! Bless you all!!!

 Maria Seni


 On Sat, Jun 7, 2014 at 6:22 AM, cmlhope@googlegroups.com wrote:

   Today's topic summary

 Group: http://groups.google.com/group/cmlhope/topics

 Marty and Beth Millie and All [1 Update]

  Marty and Beth Millie and All

 Marty Gartenberg wa2...@gmail.com Jun 06 11:06PM -0400

 Hi Millie,

 I haven't heard anything from you in a while. I hope everything is
 alright. Please keep in touch, I'm a bit concerned about you.

 18's,

 Marty





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