My husband takes 20 mg about 2 to 3 times a day, plus only 2 mg valium about
twice a day. He still has some spasms, but if he takes more baclofen it really
makes him weak and makes his muscles too weak for therapy. I will say that the
only cure for spasms is more therapy. The more stretching
What is the percentage of each that you use in the mixture?
From: Robert Vogel
Sent: Tuesday, April 23, 2019 11:21 AM
To: Eric Olson
Cc: Lori Michaelson ; quad-list
Subject: Re: [QUAD-L] Infectious Disease physician
Hi Eric,
For me, I started doing the Saline/Neosporin Gu solution once in
Find a good infectious disease doctor – most of them are not qualified and say
colonization is just a fact of life and not to worry. Personally, we haven’t
found one so we cut way down on sugar and use D-Mannose supplement like a
teaspoon per day. That seems to keep the bacteria from getting
Be careful…..if you have a spastic bladder, pain meds can back up in your
system due to not being processed well in your liver/kidney and you can
overdose and be very sleepy. My husband was hospitalized for this 3 times until
they finally figured it out…
From: Bryce Willis
Never heard of it; doesn't iron cause constipation? How much do you take?
-Original Message-
From: Bobbie Humphreys [mailto:bobbiehumphre...@gmail.com]
Sent: Wednesday, September 20, 2017 7:34 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Iron for healing
Even since I started taking
We have this same one and all you can do is put the pressure up and down; my
husband keeps it at around 11 oclock. He has never had a pressure sore on this
mattress, but it does not rotate you. It does "alternate" the pressure when you
have it on that mode like every half hour or so. You will
What is the link?
From: Bobbie Humphreys [mailto:bobbiehumphre...@gmail.com]
Sent: Monday, July 31, 2017 11:37 AM
To: greg
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Old worn out Electric Wheelchair disposal help
Have you tried Joni Erickson-Tada's web site for donating your chairs?
Bobbie
hing about spinal cord injury at all. Sadly,
the public is misinformed.
My husband would be THRILLED to have an opportunity to try stem cell therapy 3
years post-injury. If you know of anyone doing work in this area, please let us
know.
Sincerely,
Gail Overton
Phoenix, AZ
P: 603.305.4
I’m looking for an off-road chair that runs on rugged terrain like desert
washes, through water, etc……….
From: Shirley Bell [mailto:sbell...@cox.net]
Sent: Tuesday, June 06, 2017 2:29 PM
To: Gail Overton
Subject: Re: [QUAD-L] 4X4Chairs?
love my quickie power assist
From: Gail Overton
Sent
Nope…….
From: Ed Tessier [mailto:e...@teamjeved.com]
Sent: Tuesday, June 06, 2017 10:17 AM
To: Gail Overton
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] 4X4Chairs?
Gail, did anybody ever get back to you about powered 4 x 4 chairs?
Ed Tessier
President
M: 909-994-5900 | O: 909-623-0535
Bobby --
My husband has been suffering with a bunch of different UTI's over the past 3
years. Many of the simple bacterial ones respond to oral medications, but he
has had pseudomonas now for 2 years and despite oral, intravenous, and even
bladder flushes, he still has it. It hibernates for
Yeah just had professors send an email to their PT/OT students at a local
college in Phoenix; no response
From: Jeffrey Gaede [mailto:jsga...@yahoo.com]
Sent: Friday, May 19, 2017 12:50 PM
To: Lori Michaelson; Dave Krehbiel; quad-list
Subject: Re: [QUAD-L] Who cares for the family
It is great to have paid caregiving support by the state if you are low income,
but for people just making ends meet that have a little savings and the spouse
works, there are no "PAID" services and so I spend half of my paycheck on
caregivers and the other half just living in Phoenix because
What do you flush the bladder with? Something to prevent infection?
From: Danny Hearn [mailto:ddh...@sbcglobal.net]
Sent: Sunday, April 09, 2017 9:47 AM
To: Jeffrey Gaede; RONALD L PRACHT; Quad-list Post
Subject: Re: [QUAD-L] Things got interesting today
That is one of the reasons I got a
OK it helps to include the link...
http://www.ebay.com/itm/Dive-Medical-Low-Air-Loss-Alternating-Pressure-Hospital-Mattress-/131879741730?hash=item1eb4a52922:g:nWQAAOSwaB5Xirec
From: Gail Overton
Sent: Thursday, April 06, 2017 4:24 PM
To: 'Joan Anglin'; 'DEBRA DEW'; quad-list@eskimo.com
This is what my husband uses and he's never had any bedsores.
From: Joan Anglin [mailto:poaj...@sbcglobal.net]
Sent: Thursday, April 06, 2017 3:15 PM
To: 'DEBRA DEW'; quad-list@eskimo.com
Subject: [QUAD-L] RE: [QUAD-L] Alternating air pressure mattress not doing what
is supposed to I
I'll try it; thanks..but I really can't afford the $20 an hour for
24-hour care..
From: Dave Krehbiel [mailto:davekrehb...@earthlink.net]
Sent: Saturday, April 01, 2017 8:24 AM
To: Gail Overton; quad-list@eskimo.com
Subject: RE: [QUAD-L] Respite 24 hour care in Phoenix?
Have you
Medical marijuana for sleep……….the only thing that has worked for me.
From: Carrie Pinter [mailto:cpinte...@comcast.net]
Sent: Wednesday, March 29, 2017 5:21 PM
To: 'Larry Willis'; quad-list@eskimo.com
Subject: RE: [QUAD-L] Sleepy
Yeah, it’s probably safe to say that generally, quads do not get
This has been going on for 2 months and getting worse everyday, even with
bedrest..
From: greg [mailto:g...@eskimo.com]
Sent: Wednesday, March 22, 2017 8:01 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Ischial bursitis?
Once I get the "phantom" pain in areas I can't feel, like my
Have any of you dealt with this where both buttocks ache when you're sitting in
the chair or laying on your back? What did you do to heal it?
Most of these movies are about paraplegics that can use their hands; not a
disability in my book………..how about more movies on true quads that can’t do
anything but lay in bed and have other people drive them around in their
wheelchairs (unless you have a ton of money for assistive aids that are
My husband tried it for shoulder pain - once a week for 2 months and it did
help. Cut his prescription pain medication in half. But after not going for 2
months, the pain came back so we are back at acupuncture. It worked for him to
alleviate 50% of his pain.but not all of it.
From:
Can anyone recommend good chair brands for off-road use both manual or
automatic? Seems all the automatic ones are very heavy and all the manual ones
are built for paraplegics that can use their arms.
ROGOWOLF
Larry if you could make your way to Algodones, Mexico just south of Yuma, AZ,
you could get implants done for about $1000. It is top notch dental care; we
have all our work done there; go to http://www.losalgodones.com/dental_index.htm
-Original Message-
From: Larry Willis
Only thing that has worked for my husband's neck and shoulder pain has been
acupuncture.
-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com]
Sent: Tuesday, December 20, 2016 1:07 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Tissues and issues
I have a couple of
Only thing you can do is be turned gently every 2 hours; you won't be totally
on your side, but pillows underneath one side will take the pressure right off
your buttocks..
From: Nichole Rohling [mailto:zoocr...@windstream.net]
Sent: Thursday, December 15, 2016 12:13 PM
To:
My husband has the same thing; left shoulder pain that radiates to his neck. He
has some problems in the shoulder from subluxation; do all of you have
subluxation that have the pain? Are you quads with no arm movement?
From: Johnny Cammon [mailto:quadjkin...@gmail.com]
Sent: Thursday, November
Another question for the list. Do you know of any commercially available
headgear, eye-tracking, or tongue-drive systems for a quadriplegic to drive
their own chair. The Internet seems to have very little information.
Yes it has no armrests and no headrest - my husband is a quadriplegic with no
hand/arm movement and poor trunk control.that is the problem with
all these chairs.
From: Dave Krehbiel [mailto:davekrehb...@earthlink.net]
Sent: Monday, September 19, 2016 12:01 PM
To: Gail Overton
Cc
Does anyone know where I can buy an off-road manual wheelchair that I can push
through sand/gravel? All the manual chairs have those skinny tires that get
stuck in anything and the knobby tire bikes are built for paraplegics that can
use their hands. My husband cannot even drive his power chair
My husband is a C3 quad and hoped Dragon would work for him but we found he had
to click the mouse which he cannot do at all. Apparently some quads have more
function than others on this chat list.
From: Dave Krehbiel [mailto:davekrehb...@earthlink.net]
Sent: Monday, July 04, 2016 3:53 PM
To:
The decision to live is a personal one, and humans should not be criminalized
for committing suicide if they choose. Everyone has different levels of
disability and deals with them differently. In the wild, injured wolves are
shunned by the pack. Humans say they are different, but should they
My husband is an incomplete C3 quad able to move every muscle except still weak
after almost 1.5 years of therapy (started out at 6 hours per week and now up
to 10 hours per week). People tell me ten hours of therapy per week is not
enough, especially when they only work on one muscle group 15
My husband is a quadriplegic but with full sensory feeling from head to toe. As
his caregiver, I am frustrated because the only way I was taught to trim and
file nails is by using a nail file. His nails are so thick and he is so
sensitive that he cannot stand a file and so I tried to use a
I only take 40 mg per day, but I am a C3 incomplete. Spasms come and go, but
are not so bad. I'm sorry for those people who have really bad spasms as they
are painful. I find my spasms increase when I have a wound or have unusually
rigorous physical therapy or do something new in PT...
For the past 3 months I cannot sleep at night. I’m wide awake at 10 pm and
simply can’t sleep. Stopped taking sleeping pills altogether because they work
for about a week and then stop working. I cannot get comfortable, have anxiety,
but then during the day I am frequently tired and falling
My husband was disabled in May 2014 and started getting Social Security
Disability in October 2014. He is eligible for Medicare in October 2016 – two
years after he started receiving SSDI. I believe it is like that in all states
– it is a Federal program…
From: Danny Hearn
Don't take gabapentin. Totally reduces any motor function you may have and the
withdrawal is horrible. Physical therapy, acupuncture, and massage is only cure
for nerve pain.
-Original Message-
From: greg [mailto:g...@eskimo.com]
Sent: Saturday, January 02, 2016 6:32 PM
To:
My husband didn't have eye problems, but Gabapentin at 1800 mg totally took
away all his muscle function. He is incomplete and started moving biceps and
legs 3 months post injury. Then they put him on gabapentin for shoulder and
neck pain. All his motor function ceased for the next month. The
Does anyone know if there is such a thing as a voice-activated television
remote control? We caregivers spend way too much time changing channels for
quadriplegics and I’m sure it’s frustrating for them as well….surely in the
21st century there has to be something!
I have heard that Kwasnica is excellent, but she is so busy it would have been
4 months before we could start seeing her...
-Original Message-
From: greg [mailto:g...@eskimo.com]
Sent: Friday, October 09, 2015 4:26 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Phoenix SCI
No offense, but Dr. Linke was our physiatrist at Barrow and unfortunately, we
were not impressed by his capabilities and “aloof” bedside manner. He never
addressed the severe shoulder/neck pain that my husband had during his stay at
Barrow and it has followed him throughout his therapy. He also
I would sure like to find one. We had Matthias Linke at Barrow as physiatrist;
cannot recommend him. Not really invested in his patients. Then we had Candyce
Williams and she really didn't make any good recommendations for therapy. Now
we have Robert Djergaian at Banner. He seems more
How does anyone get approval for home health aid care? My husband is a totally
dependent quadriplegic and his insurance does not cover any home health. The
only way we can get it in Arizona is if he is eligible for AHCCS which we are
not because our income exceeds the minimum and same with
Magnesium citrate upsets my husband’s stomach and he can’t handle it. Has
anyone tried the magnesium citrate tablets – do they work?
From: Quadius [mailto:quad...@gmail.com]
Sent: Monday, June 22, 2015 7:33 PM
To: William Lang III
Cc: quad-list
Subject: Re: [QUAD-L] Bowel Blockage
Whenever I've
I'd like to know as well, having been paying $13 an hour for caregivers but
thinking of moving back home and hiring live-in help. Will not ask them to pay
room and board and will buy all groceries, but would be curious to know what
someone would need to be paid monthly if housing and meals are
Are any of the quads on this list incomplete C3? Do you have any motor function
and if so, were you able to improve strength after months of therapy?
From: Naomi Hudson [mailto:ladyno...@aol.com]
Sent: Friday, April 10, 2015 4:45 PM
To: lwillis82...@gmail.com; quad-list@eskimo.com
Subject: Re:
Do any of the quadriplegics out there have seizures? My husband is a C3
incomplete quadriplegic who has two hours of physical therapy a day and
recently was put on antibiotics for a cough and UTI. But on Thursday he was
vomiting again and had a seizure. Then he had another seizure in the
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