How can you have this Mitrofinoff surgery after yrs of a folley?
> On 12/12/2023 4:12 PM EST Michelle Harkness <hotwheelsmiche...@gmail.com> > wrote: > > > Eric - I was TERRIFIED of the Mitrofinoff surgery for about 28 years. I had > never had a surgery other than my spinal fusion, so I was not on board with > signing up for anything major! I'm also on blood thinners because of blood > clots/pulmonary embolism and I'm overweight, so add those two layers of suck > to the mix as well. About 2 months after the pandemic hit my gallbladder > decided it didn't like me, so I had to have emergency surgery to get that > taken out (in the hospital completely ALONE for 5 days). I was scared, being > my first big surgery, but it gave me a bit of confidence that the unknown > wasn't as scary as previously thought. I've also done childbirth as a quad, > without an epidural (not by choice, it just happened that way) so I maybe had > a bit of false confidence added in the mix? My quad doc also said that I > wanted to have it when my body could better recover before I got too old, > considering I just keep getting older... Either way, it was an approximate 4 > week recovery with the Mitrofinoff, but my least favorite and worst part was > the emptying of the bowels the day before. A day of bed rest and a crazy > amount of poo to handle! I did about 2 weeks of bed rest healing and another > 2 of light duty at home. No driving for a month and no car rides for a > month. My bowel bounced back really well from having the 10" cut out of it > for the augmentation, and my incision from belly button to top of pubic line > also healed much faster than I anticipated. My only regret was not getting > it done sooner and I kicked my own butt for waiting so long! Especially when > I have so much more freedom with it. If interested, I would see which docs > are in your area. I actually declined the first doc (who did my suprapubic) > as he was an ass and did the surgery a bit different. My second doc I went > to was soo much better and even had experience watching Dr. Mitrofinoff > perform his surgery. That doc knew his stuff and had an excellent procedure. > I had a 3 hour surgery and was out of the hospital and home in 3 days. > > I'm interested to know how the gentamicin works, as I still get way to many > UTI"S. I flush my bladder every other night, just to help keep my new > goobers out and in the hopes of keeping infections lower. > > On Tue, Dec 12, 2023 at 2:24 PM Eric Olson <whee...@wi.rr.com > mailto:whee...@wi.rr.com> wrote: > > > I had my supra pubic done a couple decades ago and it certainly makes > > things easier for my care givers. I still have problems with uti's. I was > > thinking about the Mitrofinoff,but it is a no joke surgery. I have started > > doing gentamicin bladder irrigations. Gentamicin is an antibiotic. It's > > not supposed to cause antibiotic resistance the way antibiotics taken > > systemically do. I will let everyone know how that goes. I may still > > have to go to the Mitrofinoff at some point, but that surgery scares me > > > > On Mon, Dec 11, 2023 at 2:34 PM SHIRLEY BELL <sbell...@cox.net > > mailto:sbell...@cox.net> wrote: > > > > > Hi all, well I had my cystoscopy and all he found was a shrunken bladder. > > > That is what is causing spasms on and off and rejecting catheters on and > > > off. Not lasting as long. They are going to change my meds to see if that > > > helps. Botox is an option as well. 47 years of indwelling catheter use > > > has taken a toll. Not much they can do but I am looking into it. There is > > > an external catheter option called a pur wick for women of course but I > > > have doubts about it. I am trying not to worry but geez, not great. A > > > suprapubic may be an option, not a cure but may be easier for me and my > > > caretakers to deal with this. Hope you all doing ok, quad life is an > > > ongoing challenge for sure. Have a great holiday season.Shirley If you > > > want to see how I make my living check out my Etsy shop here. > > > https://www.etsy.com/shop/ShirleyBell?ref=seller-platform-mcnav > > > > > >
