I'll be 50 in a few months.  I'm not ready to give in to age yet!  I'm
just getting started.  The ringing did seem come on with the Gleevec.

On Apr 17, 9:37 am, "Jody Capik" <[email protected]> wrote:
> YES! i have ringing in the ears as well!!! I'm 55..could be the age????
>
>
>
> -----Original Message-----
> From: [email protected] [mailto:[email protected]] On Behalf
>
> Of Bob
> Sent: Friday, April 17, 2009 8:06 AM
> To: CMLHope
> Subject: [CMLHope] Re: Gleevec Side Effects
>
> Hi,
>
> I definitely have the muscle cramps, arch of the foot especially.
> Also the long muscle in my back if I twist at the waist and hold it
> very long.  Not so much of the sweats any more, but one thing that
> wasn't on your list is ringing in the ear.  Has anyone else noticed
> this?  It's pretty much a constant.  Sometimes seems very loud and
> others it fades to background, but it's always there.
>
> Take care,
> Bob
>
> On Apr 16, 12:54 am, bikercub <[email protected]> wrote:
> > I was diagnosed with CML in May of 1992.  I've been on Gleevec going
> > on my 7th year.  I was on Interferon for 10 years before that.  I
> > still have some effects of the Interferon, but I think most of my side
> > effects are from the Gleevec and was wondering how many others out
> > there have these.
>
> > I know there are newer drugs available, but Gleevec seems to be
> > working for me and I don't want to mess with that!
>
> > I've always ran on the "warm" side, but really feel warm all the time
> > now.  I still have night sweats (which was one of the things that took
> > me to the doctor 17 years ago!).
>
> > Sometimes I think that my co-workers feel that I am taking advantage
> > of having a day off in the middle of the week to "rest".  I still work
> > full time and have pretty much since this all started.  I also "look
> > healthy" so I think that may throw them off!
>
> > I've read a lot of posts and read about various side effects, but most
> > of those posts were a couple years back....unless I'm looking in the
> > wrong place????  Is it because most people are starting on the newer
> > drugs for CML now?  I'm actually wanting to know how people who have
> > been on Gleevec for a few years are feeling.
>
> > So here is my list of problems:
> > Fatigue, especially if I do too much
> > Day and night sweats
> > Muscle cramps, especially at night in the calves and arch of foot
> > Frequent Diarrhea
> > Some edema
> > Nausea on rare occassions
>
> > So, am I crazy?  Or are you guys out there dealing with these too?  If
> > so, how often?
>
> > Thanks- Hide quoted text -
>
> - Show quoted text -
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