Re: [QUAD-L] A friend in need.
What a sad story about this gentleman. I don't know his situation but can sympathize as to what its like to get worse after getting hurt. Memorial weekend will be 7 years for me. I was paralyzed from the neck down after waking up from a coma, got better to t7/8 then last year got osteomyelitis in my spinal column and had to get several disks replaced with metal and now have rods, screws and something called cages replacing the vertabreas from t4 and screwed into my pelvis. A screw has since popped through a vertabrae and have to get another surgery getting more rods. I can barely bend my back as it is and am very frightful about what I am in store for after my next surgery. I will most likely have to get more rods and then will be from t1 down. I fought a serious pressure sore for a few years and had 4 surgeries on that. I'm healed but still have pain in the area. Some bone had to be removed in order for it to heal. Even though I've had a lot of medical issues and have only a good few years of living paralyzed, I still know I have a life to live and giving up would lead to a miserable life. Your friend will end up in a nursing home if he gives up and that is no way to live. I try to use my situation to the best of my ability. I know there is so much I cant do but have to use what I can. I will pray for your friend. I have so much going on with my mom and her health right now. She also wants to give up and it breaks my heart.Please tell him he is in my prayers and I hope that he can recover from this depression. WHen I have more time, I'd like to send him a letter or give him a call. Sometimes it just helps to talk to someone. Is he on a ventilator? Is if fairly easy for him to talk on the phone considering his level is pretty high? Stacu - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sunday, March 9, 2008 5:00:38 PM Subject: [QUAD-L] A friend in need. Hi all. I got a call from my visiting nurse, Chris ( Dave's care givers ) last Wednesday and she asked if I would call a guy who broke his neck a few years ago and is currently in a funk thinking he's had about enough of this quad 'crap'. I called him and went to visit as he lives about 2 miles from me. He is 63 and broke his back on a trampoline 14 years ago and then fell out of bed 4 years ago and broke his neck at C1. He is in pretty bad shape with only a little movement in his arms and none in fingers or anywhere else. He has been plagues with UTIs and bed sores and can't seem to stay out of the hospital for vary long. I chatted with him for about an hour and he told me he doesn't have a computer since he can't operate one. He asked if I would mention him to you guys and that maybe someone in similar circumstances could give him a call and compare notes with him a bit. I know some of you could give him some good news about computer accessibility since I don't know much about voice operated computing. I have a laptop I could loan him to get his feet wet if any of you could spark an interest. He says he's done with doctors, hospitals, and pills - and we all know where that will lead very quickly. He's really a pretty nice guy in a pretty bad place. His name is Gordon R Bierworth at phone number (602) 938-5838 - address: 5102 W Monte Cristo Ave, Glendale AZ. Thanks in advance for your help with this. AZ Dave Visit My Home Page It's Tax Time! Get tips, forms and advice on AOL Money Finance. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] Gays
I love gay people. I have always been around them since I was a kid. My babysitter when I was a kid is gay. Since I have been exposed to many different types of people my whole life it has taught me not to judge anyone for color, religion, sexual preference, etc. We are all God's children regardless of the above things. I know that there are people that may not like me for whatever reason and I don't like to bejudged so why would I judge others. You aren't a bad person but a good person for not being bothered by what a person prefers in a partner. I got my tattoo years ago with one of my best friends who is gay. He also stepped up and really helped me through the tough time of my life when I first became paralyzed. He stepped up when other friends abandoned me. We don't really keep in touch now that he has moved away but every time I look at my ankle, I think of him and will always have the memory of that great day together. Stacy - Original Message From: Cullen [EMAIL PROTECTED] To: Quad-lIST quad-list@eskimo.com Sent: Wednesday, March 12, 2008 10:40:32 PM Subject: [QUAD-L] Gays I guess I'm a bad person, but the fact that someone is gay doesn't bother me. It's more about what kind of person they are. I have a brother that is gay and I love him just as much as I would if he wasn't gay. I don't want to know what gays do behind close doors and he respects my wishes and doesn't go there. Cullen C3 Quadius [EMAIL PROTECTED] wrote: No gays at Fox! ROFL Q PS for those of you who, like myself, don't know much about chat, that means rolling on the floor laughing. On 3/12/08, kaye allard [EMAIL PROTECTED] wrote: Not for Fox...LOL. 2008/3/11 John S. [EMAIL PROTECTED]: OMG! Homosexuals! That does it. now I can't watch ABC either? Theres homos working for all the stations! john - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, March 10, 2008 6:12:51 PM Subject: Re: [QUAD-L] FW: Abomination He was working for the part that maintained the website and had no business answering the email. In a message dated 3/10/2008 5:33:57 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: I read snoops and didn't it say TRUE or am I going blind? Sure it was one guy maybe , but he was working for ABC! Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes. It's Tax Time! Get tips, forms and advice on AOL Money Finance. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. -- Our Similarities bring us to a common ground; Our Differences allow us to be fascinated by each other -Tom Robbins Cullen C3/4 Yahoo! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] makeup, probably just the girls ha ha
I always wear a little makeup when I go out. I try to look nice. I get stared at enough, I may as well look nice. I have been seeing an infomercial on a powder makeup that covers all flaws that I am considering getting.. I'm 33 and have more pimples now than I had when I was a teenager. Anyone use anything like this? Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, March 17, 2008 3:57:08 PM Subject: Re: [QUAD-L] makeup, probably just the girls ha ha I cannot apply makeup myself, but I have been wearing the mineral every day unless I'm going somewhere, it doesn't take much time to be applied. I use my regular powder foundation as it seems to cover more. It of course depends on who is doing. Everyone is making the mineral makeup and I was told that the mineral makeup worked well by a salesperson in a store called Sophia. It is a store in the mall. . I previously bought the L'Oreal brand that has a foundation, blush and overall powder. I use a lot of different brands. I like to buy something to get the free guest at the different counters if there are items I want in the gift set. They often have lipstick and eye shadow that I like. I also go to drugstores or discount stores to look to look at makeup. I usually buy the same colors. The one thing I like about department stores is they will try it on or you so you know what the color is going to look like on you. What do you other girls like to do? Dana It's Tax Time! Get tips, forms and advice on AOL Money Finance. Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] makeup, probably just the girls ha ha
I use almay eyeshadow from brown eyes. It had purple and brown showdow in it that is supposed to bring out brown eyes. I often get complimented on my makeup. I use black/brown covergirl mascara that has that new kind of brush that I really like. It keeps the lashes separted well. I use a bit of blush and sometimes I wear lipstick but mostly ilp gloss since my lips get dry. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, March 17, 2008 10:08:28 PM Subject: Re: [QUAD-L] makeup, probably just the girls ha ha I wear the MAC eyeshadow, I will have to look up the colors. I really like them. My eyeliner is from Clinique, a purple shades that is not bright at all. For foundation powder I just used the cover girl powder foundation if I'm not using the minimal powder makeup. Right now I have under a cover-up by Revlon but I'm going to get some from Lancome that I ran out of that is the best I have found. I use all over pink powder by company just to give the glow and regular lose powder besides blush by Clinique for L'Oreal. I try all kinds of lipsticks that will stay on longer because I drink a lot of liquids. I guess my favorite is raspberry glosse by Clinique and then another wand gloss on top by different cosmetic companies. My skin is fair so I wear more ivory colored makeup and raspberry colored lipsticks. It seems the darker shades get on your teeth and are not as easy to have someone put on you as you often look like Betty Davis. Ha ha. I really think it helps to use the oil of Olay moisturizer and eye cream and now I have tried the one that the girl from Sex and the City advertises, I can't think of the name of it, it is cheaper than oil of Olay. I know you are probably a lot younger than me so you may not worry so much about the moisturizer but I know they are good for your skin no matter what the age. My mom has always used lotion on her face and she doesn't have many wrinkles at 73 which is amazing. She taught me that since I was a little girl and to always rub it completely all over your neck, because you age on your neck first. It also helps not to go out into the sun unless you are wearing sunscreen. Some of the lotions do contain sunscreen . There is a Oil of Olay that I often use that does. I often want more sunscreen and the lotion contains. I often look for a sunscreen that is the high number that is not oily at all in use with my moisturizer. There is one moisturizer with sunscreen that has color with it that you can wear if you don't want to wear makeup. Most of you already know this, but just thought I would mention. If anybody has any makeup tips I really enjoyed learning anything new. . It's Tax Time! Get tips, forms and advice on AOL Money Finance. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
[QUAD-L] getting a service dog.
How did you all get your dogs? I found one program but it takes 4 or 5 years and have to go stay in a hotel in Baltimor for a week for the training. That is not possible for me but could really use a dog. Stacy Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
[QUAD-L] my mom
Hey all. I am having problems and serious concerns. My mom recently got two of her toes amputated due to bad circulation She isn't walking well on top of that due to the circulation. I am the only kid that is tepping up to the plate with her. My younger brother is in prison so has no way to help and my older brother isn't even calling us after several attempst to call him. Every morning I get a call from her all upset about something. I am working on getting her medical assistance and hoping I can get help with her rent since she doesn't have an income and hopefully she will be able to draw disability. On top of the toes she has an ulcer on the inside of her leg. I talked to the doctor telling him that I cant physically help her and now he is getting her to rehab. She is freaking out bc it is a nursing home/rehab. I am at a loss of what to do. She has car payments, phone, electric, etc. We have talked about letting the car go but she lives out in the middle of nowhere and she can't stop onto my van. I'm doing everything I can tp keep her from living with me again. I can't take her negativity and if you all remember, she chased away a guy that I was dating. On top of it all I will need to get spinal curgery again soon and scared to death of what will happen to my mom in the coming years when she wont be able to care for herself at all. I did get my name back on the list for substuting with the board of edication a few weeks ago so I can help pay her bills but havent been called at all. I need to help my mom, but finding it so hard. I'm curious to know how you all have handled or handling the aging of parents when you can't physically take care of them.. I always knew I would be the one to care for my parents when they got older but now that I have problems, I know I wont be able to do it and it breaks my heart to think my mom will eventually end up on a home since my brother wont even call to see how she is doing. It is so exhausting dealing with my mom now. She is a terrible patientand is getting great care but she doesn't think so. Like i said before, she calls me first thing in the morning every day crying about something and doesnt seem to calm down unless I am there. the day she has surgery, she had her heart rate well over a hundred and refuses anxiety medicine. She didnt calm down until her friend that was visiting and I went to see her. Her friend was on her way home so I was at the hospital all day into the night to keep her calm. When I was in the hospital she constantly complained to me about things going on at home and now is throwing things in my face but she didnt do as much as she thinks because I had my dad helping me with my bills. I was three hours away in baltimore and she wasnt able to come see me but expects me to be with her all the time. I've missed a couple of days seeing her to give my back a break which hurts all of the time bc of the screw moving that popped through the vertabrae that I have to get fixed. I have my second opinion in april for my back and will try to put off the surgery as long as I can so I can try to help her but cant put it off forever. I knoq I rambled but I'm really upset over this situation and scared to death of what is going to hapen. does anyone have any suggestions on how I can get funds to save her car and apt.? Like I said, moving back in with isn't something I can handle. Mostlh because of her negativity complaining all of the time about everything and how she picks at me. Her own friend cant deal with it. Any suggestions would be great and even a prayer wouldn't hurt. Stacy Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] getting a service dog.
I got mine here http://www.gatorlandk9.com/ . Ted came to my house for a week, from FL to IL. Eric W Rudd [EMAIL PROTECTED] - Original Message - From: Stacy Harim To: quad-list@eskimo.com Sent: Friday, March 21, 2008 3:23 AM Subject: [QUAD-L] getting a service dog. How did you all get your dogs? I found one program but it takes 4 or 5 years and have to go stay in a hotel in Baltimor for a week for the training. That is not possible for me but could really use a dog. Stacy -- Never miss a thing. Make Yahoo your homepage.
FW: [QUAD-L] close call
Wow. Was that caused by AD or something else? From: [EMAIL PROTECTED]: Thu, 20 Mar 2008 19:40:27 -0400Subject: Re: [QUAD-L] close callTo: [EMAIL PROTECTED] Larry,I have had that problem twice. One time I was delirious and the next experience I was in a coma for 13 days. We really have problems when we have horrible UTI infection.Dana it must've been septic like I think mine was. Create a Home Theater Like the Pros. Watch the video on AOL Home. _ How well do you know your celebrity gossip? http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A
Re: [QUAD-L] Quadriplegic dump out a chair (update)
It sounds like Brian has some serious mental problems that need attention. In a message dated 3/20/2008 9:11:38 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: I thought I would give you the link to the article which was written up today. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes. **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [QUAD-L] my mom
I'll send some prayers. Your mom has got to apply for disability. If her negativity stops her (they'll never let me have it) then you have to push her. It sounds like you need to become the parent and say this is what you're going to do. In a message dated 3/21/2008 4:47:34 A.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Any suggestions would be great and even a prayer wouldn't hurt. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes. **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [QUAD-L] Quadriplegic dump out a chair (update)
But why the sudden behavior change?
Re: [QUAD-L] Quadriplegic dump out a chair (update)
He's no longer with the BSCIP. Maybe he's having financial trouble and family trouble and it became too much for him. I'm just guessing here. In a message dated 3/21/2008 12:04:16 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: But why the sudden behavior change? Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes. **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
RE: [QUAD-L] close call
Well first it's good to see you're ok! I've had a uti put me in the hospital before but not like that, I passed out in my dr's office while driving my chair going into the waiting room and luckily my aid was keeping a good eye on me before I took out a few computers. She seen me pass out and took my hand off the joy stick just in time. But it was just the opposite for me my blood pressure was extremely low and that's why I passed out. It's crazy being a quad! Mark Jackson RollinOn _ From: William Willis [mailto:[EMAIL PROTECTED] Sent: Thursday, March 20, 2008 5:41 PM To: quad-list@eskimo.com Subject: [QUAD-L] close call Hey guys. I had a really nasty experience this week and thought my end had come. I woke up Sunday morning with pain in my lower abdomen and a slightly nauseous feeling. I thought I just had a bug. Then my wife rolled me over on my back. That's when the nasty began. My entire abdomen went into violent spasms. I couldn't breath or talk and began gasping for breath. Then my head felt like a bomb. Then my wife says I zoned out and literally became a zombie. I thought I was dying. My wife tried to bring me around with no luck. She called the ambulance and I was rushed to the hospital. My BP was 180/120, it's usually 95/60. For about two hours I was completely out of it. Tests showed I had - you guessed it - a UTI. of course. all the other symptoms were AD. I've had the shakes and cold sweats many times before, but I have never experienced anything like this. I thought my time had come. The doc put me on levaquin, ditropan, and dantrolene. Only today have I begun to feel better. Have any of you guys experienced this? Larry Willis _ Climb to the top of the charts! Play the word scramble challenge with star power. HYPERLINK http://club.live.com/star_shuffle.aspx?icid=starshuffle_wlmailtextlink_jan; Play now! No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1335 - Release Date: 3/19/2008 9:54 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1335 - Release Date: 3/19/2008 9:54 AM
[QUAD-L] Fwd:close call
From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: 3/21/2008 11:13:41 A.M. Central Daylight Time Subj: Re: Fwd: [QUAD-L] close call yes I have seen my husband sweating when his Bp is really high.we turn him check his catheters forkinks,take binders or kinks from the sheet. disimpact him .most of the times AD getscontrolled only once I used nitroglycerine at my husbands request (he is a cardiologist ) which brought his BP down prevented me from taking him to the hospital sarla --- On Thu, 3/20/08, [EMAIL PROTECTED] wheelchair@ **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
[QUAD-L] Pain back/tummy
From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: 3/21/2008 11:02:52 A.M. Central Daylight Time Subj: Re: Fwd: [QUAD-L] Pain Pain Pain back/tummy some times taking cranberry juice helps preventing UTI sarla **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
[QUAD-L] Chair Repair
I've been waiting for a chair repair for months. I just hate the way my insurance and the chair shop (Apria) do business. This is the procedure: 1. Go to doc for prescription for repair. 2. Go to shop to do a check-up. 3. Shop contacts insurance to get approved. 4. Shop orders parts. 5. Once parts arrive, shop confirms with insurance that they approve. 6. Shop calls the schedule repair. 7. If they are busy and can not get me in on the same calendar month the insurance approved, thy must get re-approved. It now takes 3 months to get a repair done. And here is the worst part. If I want to pay for it myself, they will not let me. Because of the contracts the shop has with the insurance, the shop is not allowed to do business with me directly. So if it's something simple, I go to another shop and pay myself. If I did not have a back-up chair, I could be in bad shape if it was a big repair job. It is immoral to do that to someone who has no other chair. The only loner chairs they have are manual chairs and you have to fight for one of those. I've been without my left chest / trunk support for months now. It just came in, but they are confirming with the insurance again. Sincerely, and tipping to the left, Greg
Re: [QUAD-L] Chair Repair
Your experience should be a lesson for all. But its not always the fault of your DME. Especially when it comes to CMS payment. This is their protocol for doing repairs. Violate CMS policy and you soon find yourself outside... looking in. DME repairs is a good business, but if CMS changes its mind on coverage, the DME is often left holding the special order part. Many times the order is verified and re verified to make sure that the DME will be paid. Its not very pretty, but that's how it is. Best Wishes W In a message dated 3/21/2008 3:00:15 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: I’ve been without my left chest / trunk support for months now. It just came in, but they are confirming with the insurance again. Sincerely, and tipping to the left, Greg **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
RE: [QUAD-L] Chair Repair
The entire wheelchairs/repairs/parts procedure is so antiquated. I purchased my own chair because I had no insurance and I was not eligible for Medicare until I turned 65. So I come into the Medicare System with my own chair. I now need batteries, tires, and am surprised to find out that Medicare will not supply anything for my chair because they did not buy the chair for me. I ran through their entire obstacle course with switch back turns, hoops to jump through, and even past their local fire breathing dragon J. Only to be told by the very top supervisor-her own words-that the best bet for me would be to order a new chair. I explained to her that these were not a dime a dozen wheelchair, with tilt and recline and all the other bills and whistles we were looking at $20,000 plus. She said that is OK, we can then maintain it for you! What is wrong with this system? I really have a problem with going ahead and buying a new wheelchair when I have the chair of my dreams and for the first time I feel safe when I am out and about by myself. I can get around most of the obstacles that I encounter, do not have to look for curb cuts, drive sideways on our hillside without feeling that the chair is ready to run downhill, etc etc and so forth. Have any others of you run into this problem? Is there another answer? Joan in sunny Reno Nevada No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1337 - Release Date: 3/20/2008 8:10 PM
[QUAD-L] BP
Guys, what drug is it that brings your BP down quickly? _ Test your Star IQ http://club.live.com/red_carpet_reveal.aspx?icid=redcarpet_HMTAGMAR
Re: [QUAD-L] Chair Repair
It's run by the government. Enough said. In a message dated 3/21/2008 4:29:40 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: looking at $20,000 plus. She said that is OK, we can then maintain it for you! What is wrong with this system? Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes. **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [QUAD-L] Quadriplegic dump out a chair (update)
I think it's all guessing right now. I'll try to keep you updated, without flooding you with too much unnecessary info. Quadius On 3/21/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: *He's no longer with the BSCIP. Maybe he's having financial trouble and family trouble and it became too much for him. I'm just guessing here.* In a message dated 3/21/2008 12:04:16 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: But why the sudden behavior change? *Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes.* -- Create a Home Theater Like the Pros. Watch the video on AOL Homehttp://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301 .
Re: [QUAD-L] getting a service dog.
Eric, Do you have any movement below your neck? I would love to have a dog, but I really don't have a way to walk it when I am alone. Just curious. Quadius C2-3 quadriplegic almost 13 years post On 3/21/08, Eric W Rudd [EMAIL PROTECTED] wrote: I got mine here http://www.gatorlandk9.com/ . Ted came to my house for a week, from FL to IL. Eric W Rudd [EMAIL PROTECTED] - Original Message - *From:* Stacy Harim [EMAIL PROTECTED] *To:* quad-list@eskimo.com *Sent:* Friday, March 21, 2008 3:23 AM *Subject:* [QUAD-L] getting a service dog. How did you all get your dogs? I found one program but it takes 4 or 5 years and have to go stay in a hotel in Baltimor for a week for the training. That is not possible for me but could really use a dog. Stacy -- Never miss a thing. Make Yahoo your homepage.http://us.rd.yahoo.com/evt=51438/*http://www.yahoo.com/r/hs
Re: [QUAD-L] getting a service dog.
yes, but u can train them off-leash or have an aide hook her leash to ur chair...i'm not sure but i assume they train for high quads Eric W Rudd [EMAIL PROTECTED] - Original Message - From: Quadius To: Eric W Rudd Cc: quad-list@eskimo.com Sent: Friday, March 21, 2008 4:16 PM Subject: Re: [QUAD-L] getting a service dog. Eric, Do you have any movement below your neck? I would love to have a dog, but I really don't have a way to walk it when I am alone. Just curious. Quadius C2-3 quadriplegic almost 13 years post On 3/21/08, Eric W Rudd [EMAIL PROTECTED] wrote: I got mine here http://www.gatorlandk9.com/ . Ted came to my house for a week, from FL to IL. Eric W Rudd [EMAIL PROTECTED] - Original Message - From: Stacy Harim To: quad-list@eskimo.com Sent: Friday, March 21, 2008 3:23 AM Subject: [QUAD-L] getting a service dog. How did you all get your dogs? I found one program but it takes 4 or 5 years and have to go stay in a hotel in Baltimor for a week for the training. That is not possible for me but could really use a dog. Stacy -- Never miss a thing. Make Yahoo your homepage.
Re: [QUAD-L] my mom
I really wish I could help you out, but it looks to me like you need the aid of a good social worker. I recently faced some issues with my mother, but not nearly to the extent you are experiencing right now. My heart goes out to you and hope someone else on here will have a better idea of how you can contact the social worker or any other ideas. Quadius On 3/21/08, Stacy Harim [EMAIL PROTECTED] wrote: Hey all. I am having problems and serious concerns. My mom recently got two of her toes amputated due to bad circulation She isn't walking well on top of that due to the circulation. I am the only kid that is tepping up to the plate with her. My younger brother is in prison so has no way to help and my older brother isn't even calling us after several attempst to call him. Every morning I get a call from her all upset about something. I am working on getting her medical assistance and hoping I can get help with her rent since she doesn't have an income and hopefully she will be able to draw disability. On top of the toes she has an ulcer on the inside of her leg. I talked to the doctor telling him that I cant physically help her and now he is getting her to rehab. She is freaking out bc it is a nursing home/rehab. I am at a loss of what to do. She has car payments, phone, electric, etc. We have talked about letting the car go but she lives out in the middle of nowhere and she can't stop onto my van. I'm doing everything I can tp keep her from living with me again. I can't take her negativity and if you all remember, she chased away a guy that I was dating. On top of it all I will need to get spinal curgery again soon and scared to death of what will happen to my mom in the coming years when she wont be able to care for herself at all. I did get my name back on the list for substuting with the board of edication a few weeks ago so I can help pay her bills but havent been called at all. I need to help my mom, but finding it so hard. I'm curious to know how you all have handled or handling the aging of parents when you can't physically take care of them.. I always knew I would be the one to care for my parents when they got older but now that I have problems, I know I wont be able to do it and it breaks my heart to think my mom will eventually end up on a home since my brother wont even call to see how she is doing. It is so exhausting dealing with my mom now. She is a terrible patientand is getting great care but she doesn't think so. Like i said before, she calls me first thing in the morning every day crying about something and doesnt seem to calm down unless I am there. the day she has surgery, she had her heart rate well over a hundred and refuses anxiety medicine. She didnt calm down until her friend that was visiting and I went to see her. Her friend was on her way home so I was at the hospital all day into the night to keep her calm. When I was in the hospital she constantly complained to me about things going on at home and now is throwing things in my face but she didnt do as much as she thinks because I had my dad helping me with my bills. I was three hours away in baltimore and she wasnt able to come see me but expects me to be with her all the time. I've missed a couple of days seeing her to give my back a break which hurts all of the time bc of the screw moving that popped through the vertabrae that I have to get fixed. I have my second opinion in april for my back and will try to put off the surgery as long as I can so I can try to help her but cant put it off forever. I knoq I rambled but I'm really upset over this situation and scared to death of what is going to hapen. does anyone have any suggestions on how I can get funds to save her car and apt.? Like I said, moving back in with isn't something I can handle. Mostlh because of her negativity complaining all of the time about everything and how she picks at me. Her own friend cant deal with it. Any suggestions would be great and even a prayer wouldn't hurt. Stacy -- Looking for last minute shopping deals? Find them fast with Yahoo! Search.http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] BP
I managed to find the link in the quad archives. http://www.mail-archive.com/quad-list%40eskimo.com/msg26490.html Atenelol, Procardia, Nitroglycerin tablets or cream Quadius On 3/21/08, William Willis [EMAIL PROTECTED] wrote: Guys, what drug is it that brings your BP down quickly? -- Test your Star IQ Play now!http://club.live.com/red_carpet_reveal.aspx?icid=redcarpet_HMTAGMAR
[QUAD-L] Chair Repair
**Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301) ---BeginMessage--- Hi Joan, why should buy your own wheelchair, be any different than having a wheelchair that Medicare bought. That's what I have and I think they help pay for the repairs but they would not pay for in the of the wheelchair itself even though I had Medicare. It is a weird system. That is why my suppliers says it takes so long to get repairs because it has to go through Medicare system to get repairs for the heart Blue Cross does not pay. So sorry that you have to go through this. It is a crazy system and I would think that you could feel this because you're now on Medicare and 65. Maybe you can somehow change the system if you take it to court and get a legal aid while you're if you qualify for one. That would be the only thing I did recommend. I had you that would Medicaid, go to court with the legal aid to move to a different county and get the kind of care I needed, because Medicaid would not cover my care because I had a tracheostomy. Just a thought. I have legal aid lawyer through KU . I also had to have 2 state representatives involved, and letters from all my doctors. I know this is different with Medicare through the government. After this battle I have had no trouble getting care. I sure wish you good luck to get Medicare to pay for your repairs as I know how expensive they are I think you have a Permobil. I don't know if Medicare will buy another. My suppliers said it would be difficult to get another Permobil with the new regulations. That would be good to ask the list if any of them have for mobile through Medicare. I think I remember Mark mentioning he was going to get one. I sure hope it is possible, because I love mine. I would hate to have to switch to another brand of wheelchair is this chair took away the back pain that I was having previously in my old EJ with a reclining system, before they had tilt space. I have had this chair five years of may well not try to get in each year yet with the new rules. Dana **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301) ---End Message---
RE: [QUAD-L] Chair Repair
Ditto! Mark Jackson RollinOn _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, March 21, 2008 3:33 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Chair Repair It's run by the government. Enough said. In a message dated 3/21/2008 4:29:40 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: looking at $20,000 plus. She said that is OK, we can then maintain it for you! What is wrong with this system? Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes. _ Create a Home Theater Like the Pros. HYPERLINK http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom0 00301 \nWatch the video on AOL Home. No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1335 - Release Date: 3/19/2008 9:54 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1335 - Release Date: 3/19/2008 9:54 AM
RE: [QUAD-L] BP
I have a poster of Bea Author naked! That does it for me. Mark Jackson RollinOn _ From: William Willis [mailto:[EMAIL PROTECTED] Sent: Friday, March 21, 2008 3:30 PM To: quad-list@eskimo.com Subject: [QUAD-L] BP Guys, what drug is it that brings your BP down quickly? _ Test your Star IQ HYPERLINK http://club.live.com/red_carpet_reveal.aspx?icid=redcarpet_HMTAGMARPlay now! No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1335 - Release Date: 3/19/2008 9:54 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1335 - Release Date: 3/19/2008 9:54 AM
Re: [QUAD-L] Chair Repair
After reading wheelchair of response, I might understand the need for verification and re-verification, but I don't comprehend a three-month delay. If someone like me were in bed down for three months, it would cost far more money in the long run. If this seems to be the norm and you cannot get new chair repaired in a reasonable amount of time then you might want to look at trying to get some help from some outside sources. Another words maybe you need to contact your representative or possibly let some of your local news stations know what kind of delays the paralyzed public is having to deal with. If they have a good investigative reporter they can find more dirt than even you will be able to provide them. That's just my two cents. Thankfully I have a much more responsive company. And it must be noted that I get my repairs done through the VA, so I don't deal with this type of situation. So maybe I'm just overreacting, but it seems unreasonable to me. Quadius On 3/21/08, Greg [EMAIL PROTECTED] wrote: I've been waiting for a chair repair for months. I just hate the way my insurance and the chair shop (Apria) do business. This is the procedure: 1. Go to doc for prescription for repair. 2. Go to shop to do a check-up. 3. Shop contacts insurance to get approved. 4. Shop orders parts. 5. Once parts arrive, shop confirms with insurance that they approve. 6. Shop calls the schedule repair. 7. If they are busy and can not get me in on the same calendar month the insurance approved, thy must get re-approved. It now takes 3 months to get a repair done. And here is the worst part. If I want to pay for it myself, they will not let me. Because of the contracts the shop has with the insurance, the shop is not allowed to do business with me directly. So if it's something simple, I go to another shop and pay myself. If I did not have a back-up chair, I could be in bad shape if it was a big repair job. It is immoral to do that to someone who has no other chair. The only loner chairs they have are manual chairs and you have to fight for one of those. I've been without my left chest / trunk support for months now. It just came in, but they are confirming with the insurance again. Sincerely, and tipping to the left, Greg
Re: [QUAD-L] getting a service dog.
Stacy I trained my own service, but?I recommend getting one that is professionally trained at least for your first dog. Training a dog is not easy esspecially for a mid-high quad.? You need to be able to care for all of the dogs needs (i.e. feed, walk, put on and take off harness and gear, and groom and bathe or take somewhere to get done).? To me, if you can't be independent with the dog, then there's really no point in getting one.? The only thing I get tired of doing sometimes is going to bed late and waking up early for walks.? In Texas you can get a dog free of charge http://www.servicedogs.org/ Luke c-5/6 incomplete, 7 1/2 yrs post PS? I'm living completely independent in the college dorms because of the help I get from my pup. -Original Message- From: Stacy Harim [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Fri, 21 Mar 2008 3:23 am Subject: [QUAD-L] getting a service dog. How did you all get your dogs?? I found one program but it takes 4 or 5 years and have to go stay in a hotel in Baltimor for a week for the training.? That is not possible for me but could really use a dog. ? Stacy Never miss a thing. Make Yahoo your homepage.
Re: [QUAD-L] Chair Repair
Done all that except I just call the doc instead of going in. If my chair is broken, how will I get there? Can't figure out why the doc has to get involved with a chair repair. Praxair, wheelchair shop, says they have rules to follow for Medicare. I keep telling them I am not on Medicare. I am private insurance. Do the work I will pay send in the insurance papers myself. They won't allow me to do that. 3 months is a normal turn around time.
Re: [QUAD-L] BP
I take Norvasc prn for hi BP Lindaf
Re: [QUAD-L] Chair Repair
I don't know why it takes so long to get repairs. I use Apria also and I have Blue Cross through my stepmom and also Medicare. I just got the switches and the box repaired on my Permobil and it took over two months now I'm waiting for my foot pedals to be adapted and it has already been 2 months. They tell me it is approval for the parts with Blue Cross and Medicare. Don't they understand we need to chair and they will not pay for backup. The switches used to be covered by Apria and they would extend them for me, now they don't longer will. A friend is close to help me, but he has not been available I guess. If he cannot do I don't know who will do. I need the switches extended to be able to operate the switches to adjust the tilt in space, the reclining, the back in the petals. I don't understand why they will no longer do this as they did in the past. They won't even recommend someone that will do. Dana In a message dated 3/21/2008 3:00:15 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: I’ve been waiting for a chair repair for months. I just hate the way my insurance and the chair shop (Apria) do business. This is the procedure: 1. Go to doc for prescription for repair. 2. Go to shop to do a check-up. 3. Shop contacts insurance to get approved. 4. Shop orders parts. 5. Once parts arrive, shop confirms with insurance that they approve. 6. Shop calls the schedule repair. 7. If they are busy and can not get me in on the same calendar month the insurance approved, thy must get re-approved. It now takes 3 months to get a repair done. And here is the worst part. If I want to pay for it myself, they will not let me. Because of the contracts the shop has with the insurance, the shop is not allowed to do business with me directly. So if it’s something simple, I go to another shop and pay myself. If I did not have a back-up chair, I could be in bad shape if it was a big repair job. It is immoral to do that to someone who has no other chair. The only loner chairs they have are manual chairs and you have to fight for one of those. I’ve been without my left chest / trunk support for months now. It just came in, but they are confirming with the insurance again. Sincerely, and tipping to the left, Greg **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [QUAD-L] Chair Repair
CMS is controlling or trying to control against fraud. In the past its been bad. Bad, to the tune of a billion dollars over the last 5 years of waste and CMS is trying to control all of that by developing partitions and procedures. Wait until competitive bidding kicks in to establish the maximum allowable price for a wheelchair. Next it will maximum allowables for repairs too. This amounts to government restraints in business... affecting the consumer, all behind your backs. (you are not suppose to know this is going on) And in the next 2-3 years it will become more restrictive and competitive. Those working with private insurance and the VA may not face these new road places and competitive uniformity to restrict costs. Keep in mind that the DME are not allowed to blame the government either, just follow the established guidelines or face losing your certification. Maybe this explains the reason the most DMEs don't stock parts and components like they once did. Why stock it, if it won't be approved, like in the past. Best Wishes In a message dated 3/21/2008 4:36:01 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: After reading wheelchair of response, I might understand the need for verification and re-verification, but I don't comprehend a three-month delay. If someone like me were in bed down for three months, it would cost far more money in the long run. If this seems to be the norm and you cannot get new chair repaired in a reasonable amount of time then you might want to look at trying to get some help from some outside sources. **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [QUAD-L] Chair Repair
I beg to differ, as I've seen this very question asked in private discussion boards for DMEs. The answer is the used chair must be registered with CMS to qualify and the paperwork must be completed and submitted by the DME doing the repairs, before the work is done. Granted, there is little or no incentive for anyone at the DME to complete and submit the paperwork, when they can sell you a new chair, which is a lot easier. I would ask you to consider making contact with a consumer advocate in your area or state/federal representative with your documentation and let them begin the process of contacting CMS for a clarification letter or statement. Only then will you get that which you want. Best Wishes In a message dated 3/21/2008 3:29:40 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: The entire wheelchairs/repairs/parts procedure is so antiquated. I purchased my own chair because I had no insurance and I was not eligible for Medicare until I turned 65. So I come into the Medicare System with my own chair. I now need batteries, tires, and am surprised to find out that Medicare will not supply anything for my chair because they did not buy the chair for me. I ran through their entire obstacle course with switch back turns, hoops to jump through, and even past their local fire breathing dragon J. Only to be told by the very top supervisor-her own words-that the best bet for me would be to order a new chair. I explained to her that these were not a dime a dozen wheelchair, with tilt and recline and all the other bills and whistles we were looking at $20,000 plus. She said that is OK, we can then maintain it for you! **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [QUAD-L] BP
LOL, Mark. Are you sure that the poster is not that of Bea Arthur? lol W In a message dated 3/21/2008 4:35:02 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: I have a poster of Bea Author naked! That does it for me. Mark Jackson RollinOn **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [QUAD-L] BP
Linda what is a hiBP!
Ms Linda Ferrell [EMAIL PROTECTED] wrote:.hmmessage P { PADDING-RIGHT:
0px; PADDING-LEFT: 0px; PADDING-BOTTOM: 0px; MARGIN: 0px; PADDING-TOP: 0px }
BODY.hmmessage { FONT-SIZE: 10pt; FONT-FAMILY: Tahoma } I take
Norvasc prn for hi BP
Lindaf
-
Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [QUAD-L] BP
Welcome back to the woild, Linda! How are you doing? W In a message dated 3/21/2008 6:47:36 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Linda what is a hiBP! Ms Linda Ferrell [EMAIL PROTECTED] wrote: I take Norvasc prn for hi BP Lindaf **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
