Re: [QUAD-L] Blood Clots - Picc line vs port
Discuss with your husband and doctors having a Medi-port put in his chest. I've had one since 1998 and it's great. Less risk of clots, easier access for IV's and not hard to flush and heplock. Bill --The one in FL C6 Incomplete since 7/20/68 Age 59 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake! - Original Message - From: Kandy Vogelpohl To: quad-list@eskimo.com Sent: Friday, October 16, 2009 11:52 AM Subject: [QUAD-L] Blood Clots - Picc line vs port I need help deciding what to do for my husband. He is a C-4 complete with a trach and a peg tube. He was hospitlized for a year and has been home since May. Since he has been home he has been hospitizied 3 times with pnemonia and is currenltly in the hospital. When he goes to the hospital he needs IV meds. Currenltly his IV is in his foot because his veins are hard to get at. The hospital wants to put a pic line in again. I have told him no at this time because his vein is still working. When he was hospitlized (first year), he got a blood clot in his arm due to the pic line. I am trying to prevent that from happening again. It has been suggested from our home health care agency to get a port installed, so we can do IV's at home. The doctors have told me they cause blood clots as well. I am trying to make the best decision for my husband without causing anymore complications, especially blood clots. Can anyone tell me what is the lesser of the two evils? Picc line or Port? Please provide me some feedback. FYI - My husband got MRSA when he was hospitalied initially. It comes and it goes. I was just reading that the regular IV's can cause that as well.\ I don't what to do. Please help. Thank you, Kandy - wife of C4 complete, accident 5-8-08. ( My husband has many complications). avast! Antivirus: Inbound message clean. Virus Database (VPS): 091022-0, 10/22/2009 Tested on: 10/23/2009 11:14:55 AM avast! - copyright (c) 1988-2009 ALWIL Software.
Re: [QUAD-L] Blood Clots - Picc line vs port
In 1998 '99 I was having a lot of trouble with my legs. I ended up having both amputated in 2000 due to Osteomyelitis, Osteoporosis, muscle atrophy and cellulitis. I was also having frequent UTI's and had no veins left for IV access. The medi-port was a great solution for me. It has to be flushed and heplocked once per month to keep it free from clots. Bill --The one in FL C6 Incomplete since 7/20/68 Age 59 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake! - Original Message - From: Danny Hearn To: Bill Jenkins ; quad-list@eskimo.com Sent: Friday, October 23, 2009 11:55 AM Subject: Re: [QUAD-L] Blood Clots - Picc line vs port HI,BILL--WHY HAVE YOU HAD IT IN SINCE 1998? DO YOU NEED I.V. DRUGS A LOT? IN CURIOUS BECAUSE MOST BAD BLADDER INFECTIONS I HAVE HAD REQUIRED I.V.DRUGS, 3 TIMES I WAS HOSPITALIZED TO GET THEM THEN THE LAST 2 TIMES THEY PUT IN A PICC LINE. MY LAST WAS THIS PAST APRIL, I HOPE I CAN MAKE IT A WHILE MORE WITHOUT NEEDING I.V. MEDS AGAIN. THANKS, DAN H. C-6 12 YEARS POST-- ST. LOUIS, MISSOURI AREA. -- From: Bill Jenkins mikeybird...@embarqmail.com To: quad-list@eskimo.com Sent: Friday, October 23, 2009 10:43:33 AM Subject: Re: [QUAD-L] Blood Clots - Picc line vs port Discuss with your husband and doctors having a Medi-port put in his chest. I've had one since 1998 and it's great. Less risk of clots, easier access for IV's and not hard to flush and heplock. Bill --The one in FL C6 Incomplete since 7/20/68 Age 59 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake! - Original Message - From: Kandy Vogelpohl To: quad-list@eskimo.com Sent: Friday, October 16, 2009 11:52 AM Subject: [QUAD-L] Blood Clots - Picc line vs port I need help deciding what to do for my husband. He is a C-4 complete with a trach and a peg tube. He was hospitlized for a year and has been home since May. Since he has been home he has been hospitizied 3 times with pnemonia and is currenltly in the hospital. When he goes to the hospital he needs IV meds. Currenltly his IV is in his foot because his veins are hard to get at. The hospital wants to put a pic line in again. I have told him no at this time because his vein is still working. When he was hospitlized (first year), he got a blood clot in his arm due to the pic line. I am trying to prevent that from happening again. It has been suggested from our home health care agency to get a port installed, so we can do IV's at home. The doctors have told me they cause blood clots as well. I am trying to make the best decision for my husband without causing anymore complications, especially blood clots. Can anyone tell me what is the lesser of the two evils? Picc line or Port? Please provide me some feedback. FYI - My husband got MRSA when he was hospitalied initially. It comes and it goes. I was just reading that the regular IV's can cause that as well.\ I don't what to do. Please help. Thank you, Kandy - wife of C4 complete, accident 5-8-08. ( My husband has many complications). -- avast! Antivirus: Inbound message clean. Virus Database (VPS): 091022-0, 10/22/2009 Tested on: 10/23/2009 11:14:55 AM avast! - copyright (c) 1988-2009 ALWIL Software. avast! Antivirus: Inbound message clean. Virus Database (VPS): 091022-0, 10/22/2009 Tested on: 10/23/2009 11:56:33 AM avast! - copyright (c) 1988-2009 ALWIL Software.
Re: [QUAD-L] Living Arrangements
I live with my caregiver who does my care 24/7. I pay her rent for my room and the BSCIP pays her for my care. I've been here 6 years and it has worked out very well. Bill --The one in FL C6 Incomplete since 7/20/68 Age 58 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake! - Original Message - From: ladyno...@aol.com To: quad-list@eskimo.com Sent: Tuesday, October 13, 2009 6:59 PM Subject: [QUAD-L] Living Arrangements I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis avast! Antivirus: Inbound message clean. Virus Database (VPS): 091013-0, 10/13/2009 Tested on: 10/14/2009 4:15:27 PM avast! - copyright (c) 1988-2009 ALWIL Software.
Re: [QUAD-L] 19 years
You should've started earlier, Joan. LOL I started this journey 41 years ago. I'm now 59. I come from long-lived people. My great-great grandfather lived to be 92, my great grandfather lived to be 96, my grandfather lived to 98. My dad died at 70 because he smoked 3 packs a day. My mom lived to 93. Looks like I may have another 30-35 years here. Bill --The one in FL C6 Incomplete since 7/20/68 Age 59 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake! - Original Message - From: Joan Anglin To: quad-list@eskimo.com Sent: Wednesday, October 14, 2009 4:19 PM Subject: [QUAD-L] 19 years Tomorrow will be 19 years, just where did the time go? I am now 70 ½-that can't be true either. JIf I had a choice would I do it over again? Most emphatically yes. I have three grandchildren I would not have seen otherwise, one great granddaughter, a great granddaughter due in December, and a granddaughter due in January. What more can a grandma ask for? I am not looking forward to some of the things that lie in the future-probably more skin problems because of thinning skin-worse hearing that I have now-right now my Some Timers Disease is OK, but maybe it will get worse and I suppose I could find a bunch more. I Am looking forward to some of the things that live in the future-new grandchildren and great grandchildren, watching the others grow up and tackle life as best they can, finishing my garden (probably not), enjoying the greenhouse and fresh tomatoes in winter, staying involved in youth activities (I love to see how children get comfortable with me in the wheelchair and only think of me as a lady who uses a wheelchair to get around rather than a disabled person), maybe writing a book-don't know who would read it but I might enjoy writing it-, helping friends and family landscape their houses-I get the fun part, designing it, they get the fun part of doing it-continue taking a couple of college courses that interest me. OK, I guess I get it. My list as much longer for things I want to do than it is for things I'm afraid of. So I will continue on my merry way-probably not for another 19 years although my mother lived until 91 after suffering a major stroke 19 years before, so who knows what is my lifeline to be. Glad I have this list to belong to-it is good to share with others in the same boat. Joan avast! Antivirus: Inbound message clean. Virus Database (VPS): 091013-0, 10/13/2009 Tested on: 10/14/2009 4:19:55 PM avast! - copyright (c) 1988-2009 ALWIL Software.
[QUAD-L] Dave Kelmer's Obit
David K. Kelmer, 55, of Wichita Falls died Saturday, May 30, 2009, in Wichita Falls. Services will be held at 1 p.m. Sunday at Seventh-Day Adventist Church in Wichita Falls with Pastor Travis Patterson officiating. At the request of Mr. Kelmer, his body was donated to Texas Tech University in Lubbock. Mr. Kelmer was the Spinal Cord Injury Caregivers Texas representative and was the Texas ambassador for the Wall of Tolerance. Survivors include sons, Jon of Hastings, Mich., Chris of Iowa Park; mother, Helen Eschief of Wichita Falls; grandmother, Flo Kane of Plainwell, Mich.; brother, Doug of Wichita Falls; sisters, Nina James of Phoenix, Nita Fosmore of Mendon, Mass., and Ginny Gillum of Austin, Ark.; and four grandchildren. Bill --The one in FL C6 Incomplete since 7/20/68 Age 58 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake!
[QUAD-L] Dave
I'm so sorry I failed to check the mail on my mikeybi...@aol.com name. Below is the email I received from Dave's caregiver. I'm cc'ing this to her. Jan, I'm so sorry for your loss and ours. Dave was a wonderful guy who will be missed by many. Can you email me and tell me what caused him to code? Any answers may help us to understand/avoid suffering a similar problem. My prayers are with you and Dave's family. Please write me at mikeybird...@embarqmail.com or billj...@aol.com Bill --The one in FL C6 Incomplete since 7/20/68 Age 58 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake! - Original Message - From: pi...@sbcglobal.net To: mikeybi...@aol.com Sent: 6/1/2009 6:53:39 P.M. Eastern Daylight Time Subj: Dave Dave was in the hospital for about two weeks now. On Thursday, 28May, he was getting ready to come home after an infection in one of his wounds. They took out the central pick line on him and he coded. It was about six to eight minutes before they brought him back. It left some severe brain damage and heart damage to him. He was left in pretty bad shape. He passed away on Saturday 30May. I am so sorry to give you such bad news. He was my best friend. If I can answer any questions I'll check my computer and do my best to answer them. Jan Shop Inspiron, Studio and XPS Laptops at Dell.com -- avast! Antivirus: Inbound message clean. Virus Database (VPS): 090603-0, 06/03/2009 Tested on: 6/3/2009 6:11:29 PM avast! - copyright (c) 1988-2009 ALWIL Software.
[QUAD-L] Dave Kelmer
Dave died when they removed a central IV line from his neck. His body (as per his wishes) was sent to a university for scientific study. His memorial service will be at 1pm CT at the Seventh Day Adventist Church, 1305 14th St., Wichita Falls, TX 76301. Jan only asked that you stop and think of Dave and his family for a few moments. I sent a small flower arrangement on behalf of the SCIC and QUAD LIST members. As Dave would say: Stay strong. Bill J.--The one in FL C5-6 since 7/20/68 Diving accident Age 58 Leesburg, FL If you think health care is expensive now, wait until you see what it costs when it's free!
Re: [QUAD-L] use caution
I had a friend in MI that backed out onto his lift (full size Ford van) and rolled off the end when the plate failed to tip up on the end of the lift. He was killed in the fall. I hope you're talking about a mini-van, Dave. Just a word of caution for big van users. Bill --The one in FL C6 Incomplete since 7/20/68 Age 58 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake! - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, December 06, 2008 4:54 PM Subject: [QUAD-L] use caution I'm finding that as time passes, many things are getting harder for me to do. I used to stand to transfer and used a manual chair for the 1st 38 years of this 'quad' thing. Now I'm electric - and my fingers and shoulders feel much better but getting dressed is much harder now as is getting into bed. I think I know where this all is going and I don't like it at all. I made a bad transfer a few years ago and heard something down under 'crunch'. As it turns out, it was my urethra which then leaked into my perineum and within days I had a uti that nearly killed me. I now take all my transfers very carefully and slowly making sure I don't goof up. I come down my van ramp backwards so I don't kiss the driveway - again, and I always have my cell phone with me just in case. In our cases, an ounce of prevention is definitely worth a ton of cure!! Be careful out there. Take the world in a love embrace Fire all of your guns at once And explode into space DAVEOCONNELL.COM -- Make your life easier with all your friends, email, and favorite sites in one place. Try it now.
[QUAD-L] Just checkin'
To see if I'm still subbed. Bill --The one in FL C6 Incomplete since 7/20/68 Age 58 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake!
[QUAD-L] Somehow I got unsubbed.
But I'm back on now. Bill C-5,6 since 7/20/68 Leesburg, FL
Re: [QUAD-L] Re: Our Relationship With Others
Bill of Ill, I have the sig line that expresses what you wrote below. It's this: Life should NOT be a journey to the grave with the intention of arriving in an attractive, well preserved body–but rather to skid in sideways, chocolate in one hand, wine in the other, body used up, totally worn out and screaming WOO HOO what a ride! Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup. - Original Message - From: Dr. William E. Heft To: QUAD LIST Sent: Friday, January 18, 2008 7:00 PM Subject: Re: [QUAD-L] Re: Our Relationship With Others Hi Billy. Bill of Il.here. I share your sentiments and emotions. I too, lived my life as you do, dead from the neck on down, but my brain never quit working. Unfortunately, as you say, some insinuate that we must be as equality retarded as we are handicapped. I understand that blind people often experience something similar to this same event. Seems that when individuals learned the person was blind, they immediately began talking much louder and had to be told, Hey, this person is blind, not deaf. Example. At one point, when I was 60 years old, I was told that I had only 24 hours to live, and that there was no hope for me because the tumor had crushed my spinal cord to the thickness of a ribbon. Those were the words of my neurosurgeon, a great and wonderful doctor. After surviving the removal of the tumor, I was told that I was lucky to be alive, but that I would live as a vegetable for the remaining time that I remained alive. I spent months lying in bed, not being able to turn over or to even feed myself. I remember lying in bed, doing the only thing I could do on my own, and that was to watch life go by. When I tired of that, I would yell and someone would turn me away from the window. The longer I lay there, the more determined I became to make an effort to change my situation, if only in the slightest way. So slowly I began to fight back against this thing that tries to destroy us. I remember the first time I tried to sit up. Someone had to hold me in a sitting position or else I would fall off the bed. It took several months, but I finally reached the point where I was able to sit up unaided. What a great feeling it was to experience that feeling of freedom. We have all been robbed of our lives and dreams and aspirations by an enemy we never knew. We didn't ask for this life, so why should I give this enemy every last once of victory. Every time I learn to do something that was taken from me, I win back an once of freedom. I take back what has been taken from me. Like Billy stated, I am not brain dead, and I have an awful lot of time to think as long as I am sitting there, so I began to outsmart the enemy and figure out ways to succeed in the simple tasks. One day after a lot of work I actually buttoned one button on my shirt. Yes, in a matter of seconds my PC person could have done it, but that person (as wonderful as they are) will never experience the sweet feeling of that success. I never, never belittled anyone for trying to help us. These were embellishment written by someone else writing on the list. The analogy was given about an elderly lady crossing a street. Should we sit idly by and watch her struggle, or should we run up to her and announce that we are going to help her cross the street. We do neither. We first approach and ask her or him if they would like any help. This satisfy's the human urge to help those in need, but remember, we can only respond to the elderly lady's response. If she says why yes, thank you, we then her. but if she says, no thank you, I want to attempt this crossing on my own, we can only capitulate and watch her cross the street. No one is demeaning those who are care givers, but if any of you were to come up to me and ask me if you could do assist me with somethingBill o I was trying to do, I would simply tell you not at the moment, thank you, I want to fail first. Today, as I write, after 6 years of trying, I can walk a little bit on my own, even though I was told that I would never be able to walk unassisted. I am not through declaring war on the enemy, and will continue to do so until the last hour before I die, which time is always near. When I do check out, I plan to do so with a smile on my face, because I gave that enemy(whoever that might be) the best fight I was able to bring to the battlefield, given the condition I am in. Bill of Il.
Re: [QUAD-L] What Keeps Us Entertained
We had a UHF station in Detroit (ch. 50) that we were able to receive starting about 1961. There was a guy named Bill Kennedy that hosted a show that played nothing but classic movies. Kennedy's claim to fame was playing the executioner in the film The Hunchback of Notre Dame. He had only 1 line in the movie where he was lighting the fire to burn Qusimoto's love at the stake. It was Hand me another faggot. A faggots was a bundle of sticks tied together. Not a derogatory term for a gay person. As you can see, my answer is Yes. I love classic films. I watch TCM and AMC quite often. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup. - Original Message - From: Dr. William E. Heft To: QUAD LIST Sent: Saturday, January 19, 2008 1:45 PM Subject: [QUAD-L] What Keeps Us Entertained Good Morning: Being a great fan of the theater, I especially love the old black and white films of the 20's, 30's 40's and 50's. I guess the reason for this is that I grew up in the era and genre. So it was with great pleasure that I found a good Bogart movie last night that I had never seen before. It was entitled,'Marked Women' co-staring Betty Davis and was a 1937 production. As Bogart starred in mostly B movies in his early career, it wasn't a bad production. It was also quite evident that Bogart had not reached his potential yet. I am curious to know if by chance there are any other fans of classic moves here. Those of us who share the love of the black and white cinemas talk by the hours about the likes and dislikes of the classics and sharing bits of trivia. For example, the Bogart movie 'Casablanca has been rated as the most Romanic movie in the history of US films. Another circa favorite of the black white films are the Bowery Boys, produced from the late 30's up through the 1950s. These films have developed a cult following and produced such loveable characters as Slip, Sach, Chuck, Whity and Louie, the sweet shop owner. Anyone on the list old enough to remember these films? Some of these films were entitles 'Hell's Kitchen, Angles With Dirty Faces and The East Side Kids'. Much thanks goes to Ted Turner for airing the TCM television network which airs these classics 24/7 commercial free. Perhaps I might just invoke interest in this subject or even the associated field of literature, but then on the other hand this subject might be perceived as the ranting of an old man. Bill of Il.
Re: [QUAD-L] Our Relationship With Others / Ron 10 years
Let me add my congrats, too, Ron. I didn't really recognize the anniversary of my injury until I hit #18. Doctors told me when I was injured that most quads my age (17 at time of injury) don't make it to age 35. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Saturday, January 19, 2008 5:25 PM Subject: Re: [QUAD-L] Our Relationship With Others / Ron 10 years Congratulations Ron on your 10 year mark. Does it seem like a lifetime or only 10 years? Just wondering! Dana. C4 5, 33 years Post, 54, Prairie Village, Kansas suburb of Kansas City. In a message dated 1/19/2008 1:03:40 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Hi Ron, Sorry this is late, but I want to offer my congratulations to you on reaching your 10 year mark as a Quad. Those of who have been there, know just how much it takes to reach ten years. Stay strong. With Love, CtrlAltDel aka Dave C4/5 Complete - 31 Years Post Texas, USA RONALD L PRACHT [EMAIL PROTECTED] wrote: Im a c7 fairly functional quad, I remember an instance where I pulled up to a gas pump with my van for the sole purpose to see if I could gas my van up in a emergency. I got out and the first challenge was getting the credit card out of the slot once i pushed it in. Immediately some guy stopped and was helping me, this was a double edged sword. I appreciated his help but I didnt meet my personal goal. Eventually I went back and met the goal. In my situation as long as I know i can open a door, make a sandwich and all that fun stuff myself, I dont mind if someone helps me sometimes because it does save energy for the other things during the day.Im just at the ten year mark in a chair and Im trying to become more laidback about these things although I have my bad days. 10 yrs in a chair today! woohoo jan 16 98- jan 16 08 ron c7 [EMAIL PROTECTED] wrote: Very well put W. I am a high level quad and I need help doing most things. The average AB can't recognize those of us quads or paras that need help and those that don't. Since I'm one of those quads that do need a lot of help, I'm always happy when someone opens a door or picks up something I dropped, etc., etc. It makes my day to know that in this increasingly selfish society, there are still people who will take a moment to help someone out. My type of disability won't get better - only worse over time. I remember having a discussion with an OT and she said 'Sure Dan, you can struggle to get your shirt on or cut up your food etc. but how long will these things take and at what expense to your time and energy reserve? If a PCA does these things for you, you can save time and energy for the really important things in life - like masturbation or working on the computer'. And Bill, would you say the same thing about watching an elderly lady with a bad limp and using a cane struggling to cross a parking lot carrying a large bag of groceries? Go granny, go! Come on you can do it and if you have another stroke trying at least you gave it your best shot. Bravo! Dan - who is grateful for the compassionate ones. At 01:10 PM 1/16/2008 -0500, [EMAIL PROTECTED] said something that elicited my response: I got your mail but was pondering the issue before making comments. You mentioned the term normal. That is one word in the dictionary that I fail to comprehend in judging others. I submit that when you find a perfect normal, please take a picture of it and share it with the rest of us. Until you achieve the status of being independent, you have to tolerate some of those acts like those who hold the door, say G'Morning and shake your hand, as a greeting. Sometimes, just saying thank you but I'd like to try it myself and stick around I might need your help. Best Wishes In a message dated 1/16/2008 11:45:08 A.M. Central Standard Time, [EMAIL PROTECTED] writes: Gaday Mates: I am wondering if my connection with the list has been severed? Two days have passed now and not one posting has been received in my email. Or, everyone has already tired of my diatribe and stopped writing. (grin). Seriously, I was just thinking about those of us who lead an entirely different lifestyle than normal people and how our lifestyle effects those around us. Once again, I am only expressing my own thoughts and ideas on these matters. Please do not assume me to be dictatorial or presumptuous with my statements. One of the more difficult
Re: [QUAD-L] Re: Our Relationship With Others
Bill from Ill: Please stay. We all have our differences. I don't care if you're a para or quad, got injured going 300 mph on a skateboard or tripped over a gnat. We're all here to share info, give support and help each other. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup. - Original Message - From: Dr. William E. Heft To: QUAD LIST Sent: Wednesday, January 16, 2008 11:07 PM Subject: [QUAD-L] Re: Our Relationship With Others Normal: a: according with, constituting, or not deviating from a norm, rule, or principle b: conforming to a type, standard, or regular pattern: occurring naturally normal immunity4 a: of, relating to, or characterized by average intelligence or development. Abnormal: deviating from the normal or average. I quote from one of my statements in my last post, Once again, I am only expressing my own thoughts and ideas on these matters. Please do not assume me to be dictatorial or presumptuous with my statements. Or perhaps I am mistaken. I was under the impression that a member of this list still retained the freedom of expression. I quote from another source. In a move entitled 'Uncommon Valor', a movie that is dear to my heart because I served with many of my beloved brothers in Vietnam. A statement from this movie was made by an actor named Sailor, who said, Man,you don't ever quit. Yes, yes, I've heard it all before, on how men like me are politically incorrect for being involved in that crazy Asian war. I personally don't care, even though the cause of my t-1 2 condition is from Agent Orange. All I'm describing is what is best for me. I haven't and I never will quit trying. If I drop something, and it takes me a half an hour to pick it up, who's going to complain, or will the politically incorrect police come and arrest me? You say that it's important to conserve your strength for the important things, well struggling to exist everyday is my form of freedom, and that to me is the most important thing in life. Perhaps the prejudice on this list run the other way, and apparently I don't qualify as being a legitimate quadriplegic, at least not on this list. I made a mistake by joining, but that's ok, I make many mistakes. I'm sure there may exist other lists such as this one, or maybe there isn't. Either way it doesn't make any difference. Bill of Ill.
Re: [QUAD-L] FW: Fw: obama
http://www.snopes.com/politics/obama/muslim.asp Someone didn't check snopes very well. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup. - Original Message - From: Silas Shelburne To: quad-list@eskimo.com ; adam malle ; Amy Davis ; Ann Slemp ; Bill Sage ; Cheryl Sizemore ; Coker Lynn ; Gail Tyree ; GERALD SHULER ; Hank Ross ; joanne pilkenton ; Joyce Lynn Wilson ; Karen Dotson ; Kay Ross ; [EMAIL PROTECTED] ; Kirk Ballin ; [EMAIL PROTECTED] ; liz robbins ; Patty Pennington ; Randy Ball ; Roberta Shuler ; Ronnie Montgomery ; sandra johnson ; Sandy B ; Stacia Kohler ; Susie Richardson ; Terry Estep ; Judy Shelburne ; Trish Livesay Sent: Sunday, January 13, 2008 8:54 AM Subject: [QUAD-L] FW: Fw: obama From: Lisa Johnson [mailto:[EMAIL PROTECTED] Sent: Saturday, January 12, 2008 6:15 PM To: Tammy Bledsoe; [EMAIL PROTECTED]; Silas; Rhonda Bowen; [EMAIL PROTECTED]; Kaye Weitzman; Jessie Mullins; Jane Jones; Green, Ramie; Darla Lipe; Carter, Darla A - Eastman; Carol Carter Subject: Fw: Fw: obama - Original Message - From: Patti To: Lisa Johnson ; [EMAIL PROTECTED] ; Eve ; Phillip Reece ; Mona Skidmore ; Ronnie Carter Sent: Saturday, January 12, 2008 6:25 PM Subject: Fwd: Fw: obama Note: forwarded message attached. -- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [QUAD-L] better today
Alan, How long (if ever) did you push a manual chair? I have arthritis in my shoulders from over 17 years in a manual. I developed bone spurs in one shoulder and had rotator cuff surgery. The shooulder problems caused chest muscle pain because I used them to compensate for weaker shoulder muscles. I don't know if that's your problem, but think about it. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup. - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sunday, January 13, 2008 1:01 PM Subject: [QUAD-L] better today Thankfully, for some reason, my upper chest and arms are better today (less pain, heaviness, numbness, and weakness, and I don't feel so weak overall. Right arm still has some numbness and weakness, but that's been standard for a while, and it's not nearly as bad as the past two days.) Yesterday was really scary - the arms were extremely painful, and I could barely move them, and it got more difficult as the day went on. I really feared I'd wake up today with no arm use at all. I went to bed at 7:00, because I couldn't really type any more, and could barely control my chair - unless I'm sick or the catheter blows, I never go to bed before I go in for the night at 10:00, no matter how bad pains are. To explain the difference between yesterday and normal, when I'm in bed, I do movements of my arms in sets of 20 (that's sets, plural, for some moves, like rotator cuff.) Yesterday, I tried to do them after I lay down. By the fifth move, I had to stop - I couldn't do them. Today, I got full sets done, and into second sets, and I'm pretty much having only the usual difficulties using my arms - upper back pain, poor balance and posture, and popping scapulas. What could cause this? Deficiency in some vitamin or mineral involved in nerve conduction or muscle movement? The inner arm pains definitely felt like the central pain - the skin and muscles pulled when I moved, and all the sensations felt like the rest of my body. They came on so fast! I'm not taking any new meds, and I am eating (not much, but that's normal for me, and I have my Boost Plus and multivitamin daily.) I don't think effects of a syrinx would come on that fast, and I doubt they'd get better by themselves. Anyhoo, I'm much better physically and emotionally today. Alan -- --- Posted by alanh77[at]comcast.net using MR/2 ICE Newsreader #564 Proudly using eComstation 1.2R (OEM OS/2) BBS - The Nerve Center Telnet FidoNet 261/1000 tncbbs.no-ip.com ---
[QUAD-L] Van for sale
BlankA friend of mine here in Leesburg, FL has a van for sale. Details are below. Email [EMAIL PROTECTED] for more info. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. From: [EMAIL PROTECTED] To: MikeyBird3 Sent: 12/29/2007 5:24:24 P.M. Eastern Standard Time Subj: van info 1993 Dodge Caravan, 32,000 original miles, $6,500 vmi conversion. power sliding door, power ramp, 10in dropped floor. runs great looks good. New tires put on in September. Blank Bkgrd.gif
Re: [QUAD-L] Old-timers and newcomers_Checking in
I'm fairly new. I've only been on the list a bit over 3 years. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. - Original Message - From: Lori Michaelson To: quad-list@eskimo.com Sent: Monday, December 31, 2007 2:32 PM Subject: [QUAD-L] Old-timers and newcomers_Checking in Hey... For those of you who post regularly (as well as those who do not or just lurk) I was wondering if you all could tell the rest of us how long you have been on this list? I found it in the latter part of 1995 and never unsubscribed except for six months when we were living in temporary quarters at one time around 2000 so it has been 12 1/2 years for me or so. During the last 12 1/2 years I have told at least four people about this list because they had not heard of it. They know who they are. :-) Anyway, it would be refreshing to see how long y'll all have been on the list. Happy new year to you all! -- Lori C4/5 complete quad, 28 years post Tucson, AZ
Re: [QUAD-L] woohoo
Thanks, Dave. I don't need leg rests. LOL Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. - Original Message - From: David K. Kelmer To: Bill Jenkins ; Quad List Sent: Monday, December 31, 2007 3:37 PM Subject: Re: [QUAD-L] woohoo Hi Bill, They also offer joystick controlled adjustable legs that are first rate. With Love, CtrlAltDel aka Dave C4/5 Complete - 31 Years Post Texas, USA Bill Jenkins [EMAIL PROTECTED] wrote: John, Pride already has both tilt-in-space and recline systems. I have them on my Quantum 600. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. - Original Message - From: John S. To: quad-list@eskimo.com Sent: Saturday, December 29, 2007 4:32 PM Subject: Re: [QUAD-L] woohoo Ibots are not covered in Ohio because nobody seems to be able to show a medical necessity for it. I don't think you can even get a peremobile in Ohio using Medicaid. On the other end of the spectrum, they want you to prove why you cannot use a Pride Jazzy or a Quicky. I understand Pride is working on a tilt in space system and a recline, Maybe they will revive the Everest Jennings name. (They tried to stick a paraplegic into a hopped up 4wheel scooter over at the rehab center) I feel any upturn in Medicaid will have to come from the low end products outperforming expectations. The space shuttle works most of the time and it is built by the lowest bidders. I've always felt the quickies were a low cost quality product. Anyone else got any feedback on wheelchairs that Medicaid has funded or won't fund. (You aren't suppose to say they won't pay for stuff unless they have been rejected and no product is rejected solely because of price.) What BS! Someone set me straight? We spent 70 years spouting about how stupid Communists were with 5 year plans and now we go out of our way to create a health care system that imitates an economic plan that failed for the exact same lack of ingenuity and practicality. EOR (end of rant) Happy New Years, john - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Saturday, December 29, 2007 3:21:35 PM Subject: Re: [QUAD-L] woohoo In a message dated 12/29/2007 7:27:37 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Just park like a drunk driver...crooked, that way nobody will want to park close to ya. and by the way i'm loving my ibot! Wow! Can you get one under Medicaid? :-) Dianna -- See AOL's top rated recipes and easy ways to stay in shape for winter. -- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [QUAD-L] woohoo/Quantum chair
Yes. My chair does have enough support. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. - Original Message - From: KK To: Bill Jenkins ; Quad List Sent: Sunday, December 30, 2007 11:42 AM Subject: Re: [QUAD-L] woohoo/Quantum chair Bill, does your chair have enough back support? I have the same chair. I don't like the minimum lumbar support or the way it tilts back. I need it to sit up straight when I am at the computer. KK People are so worried about what they eat between Christmas and the New Year, but they really should be worried about what they eat between the New Year and Christmas. - Anonymous
Re: [QUAD-L] Don't Park In The Handicap Spot
Neither of your links work, KK. Can you try the addresses again? Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. - Original Message - From: KK To: Ann Cyr ; Candice Kello ; cecil susan mccarstle ; Eric Batte ; EVYLEN KENDRICK ; Faye Perkins ; Lainie Suzanne Batte ; Mandy C ; Nancy Womack ; quad-list@eskimo.com Sent: Friday, December 28, 2007 7:45 PM Subject: [QUAD-L] Don't Park In The Handicap Spot Interesting Don't Park In The Handicap Spot Campaign http://msnews. acceleratedcure. org/node/ 3021 WARNING: One of the signs contains a naughty word Take a look at these hilarious, but all-too-true, signs for handicap parking spots. http://blog. coolz0r.com/ 2006/07/10/ your-spine- or-mine/ KK Did you hear about the dyslexic satanist? He worshiped Santa.
Re: [QUAD-L] Don't Park In The Handicap Spot
Still doesn't work, KK. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. - Original Message - From: KK To: Bill Jenkins ; Quad List Sent: Saturday, December 29, 2007 11:27 AM Subject: Re: [QUAD-L] Don't Park In The Handicap Spot http://blog. coolz0r.com/ 2006/07/10/ your-spine- or-mine/ KK Did you hear about the dyslexic satanist? He worshiped Santa.
Re: [QUAD-L] Don't Park In The Handicap Spot
Got it. Thanks, Eric. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. - Original Message - From: Eric W Rudd To: Quad List Sent: Saturday, December 29, 2007 11:29 AM Subject: Re: [QUAD-L] Don't Park In The Handicap Spot just take the spaces out of url http://www.acceleratedcure.org:8080/node/3021 http://blog.coolz0r.com/2006/07/10/your-spine-or-mine/ Eric W Rudd [EMAIL PROTECTED] - Original Message - From: Bill Jenkins To: Quad List Sent: Saturday, December 29, 2007 9:08 AM Subject: Re: [QUAD-L] Don't Park In The Handicap Spot Neither of your links work, KK. Can you try the addresses again? Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying.
Re: [QUAD-L] Affording things
I keep cash in my room when I want to save for some big purchase. Medicai/Medicare doesn't have to know if I have more than $2,000 if it's in cash. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Life is too short for long pity parties. Get busy living, or get busy dying. - Original Message - From: Lori Michaelson To: quad-list@eskimo.com Sent: Saturday, December 15, 2007 5:26 PM Subject: [QUAD-L] Affording things I was wondering how you folks that qualify for Medicaid and/or SSI (whereby you can only have so much money in your checking account, assets... cash or otherwise, etc. etc. etc.) are able to afford some of the better things in life? For example, when GHenry recently asked about wireless microphones... this is just one example out of thousands and thousands of things that are pricey. Do you just go without or do family members help you with such purchases? Or really nice friends! Say, for example, that you wanted a brand-new Sony Bravia flat screen TV that is 46 inches. Or a brand-new MP3 player that is worth it ($200+) and a myriad of other examples. Just curious! Lori Michaelson C4/5 complete quad, 28 years post Tucson, AZ
[QUAD-L] Glenn
Try this. Sent only through the list. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, November 21, 2007 3:23 PM Subject: [QUAD-L] subscribe Jim, I stopped getting posts, and subscribed again but am only getting posts not going through the list. What is wrong? Glenn A Henry -- Check out AOL Money Finance's list of the hottest products and top money wasters of 2007.
Re: [QUAD-L] Smoking
Some of the worst effects are decreased circulation in your extremities. Nicotine and other agents cause narrowing of the blood vessels which causes poor circulation. This can result in poor healing capabilities in the lower legs should you get a pressure sore there. I smoked until 1989 and the docs said that it may have been a contributing factor in having to have both legs amputated in 2000. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Thursday, November 08, 2007 9:30 AM Subject: [QUAD-L] Smoking Natural dangers are the long term effects on one's breathing system. Whether smoking an occasional cigar and how it may affect you is between you and your doctor. W In a message dated 11/8/2007 3:16:25 A.M. Central Standard Time, [EMAIL PROTECTED] writes: Im curious what the natural dangers or the added effects on your quad body are? Before my accident id smoke cigars from time to time….. Danny Espinoza 24/m/California -- See what's new at AOL.com and Make AOL Your Homepage.
Re: [QUAD-L] symptoms
That's for children under 12, William. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: William Willis To: quad-list@eskimo.com Sent: Sunday, November 04, 2007 10:08 AM Subject: FW: [QUAD-L] symptoms I don't think aspirin is advised for flu. Especially for young people. I think it can lead to Reyes Syndrome. Date: Sat, 3 Nov 2007 14:02:52 -0700 From: [EMAIL PROTECTED] Subject: Re: [QUAD-L] symptoms To: quad-list@eskimo.com With my vast knowledge of medicine I can say with confidence, I don't know. Have you been around anyone with the Flu? Do you shake hands a lot? If you do, stop it! Disgusting way to greet people. Shaking hands is about as smart as licking each other. The flu is actually hard to spot untill its widespread. If I were you I would take some aspirin for the low temp and drink lots of fluids and get lots of rest. Theres no pill or cure. All you can do is make yourself comfortable. Good luck. Best wishes and my prayers. john - Original Message From: Danny Espinoza [EMAIL PROTECTED] To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Saturday, November 3, 2007 4:13:41 PM Subject: RE: [QUAD-L] symptoms My temp is up “100.2” and my pain is increased by a lot….. I don’t feel nauseous though Danny Espinoza 24/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://www.myspace.com/DannyLNX From: John S. [mailto:[EMAIL PROTECTED] Sent: Saturday, November 03, 2007 1:05 PM To: Danny Espinoza; quad-list@eskimo.com Subject: Re: [QUAD-L] symptoms Danny, When I'm gettin the flu I start feeling like I did the day after I got my flu shot. - Original Message From: Danny Espinoza [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, November 3, 2007 3:02:55 PM Subject: [QUAD-L] symptoms What symptoms does everyone get with the flu? Danny Espinoza 24/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://www.myspace.com/DannyLNX __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com -- Climb to the top of the charts! Play Star Shuffle: the word scramble challenge with star power. Play Now!
Re: [QUAD-L] symptoms
Fever, nausea, sometimes diarrhea. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: Danny Espinoza To: quad-list@eskimo.com Sent: Saturday, November 03, 2007 3:02 PM Subject: [QUAD-L] symptoms What symptoms does everyone get with the flu? Danny Espinoza 24/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://www.myspace.com/DannyLNX
Re: [QUAD-L] Van Mods
Congrats on passing. Good luck with finding the perfect ride for you. I haven't seen a minivan with a power back seat but I have seen a full-size van with one. The hand controls, blinkers, headlights, horn, etc. will have to be tailored to your abilities. Each person is different. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, October 29, 2007 6:23 PM Subject: [QUAD-L] Van Mods I just passed my driver's test with flying colors! Now it's time to start van shopping. I'm thinking about getting a Chevy Uplander and I'll be driving from the drivers seat as opposed to my wheelchair. Where can I go on the net that can explain all the conversion options for handicapped vans? (i.e. hand controls, blinker/headlights/horn/etc. options, seating options, etc.) Have y'all ever heard of a minivan that had a rear seat that would electronically lay down? I'd like to have that in case I was out somewhere and I got tired (medicine head). Luke -- Email and AIM finally together. You've gotta check out free AOL Mail!
Re: [QUAD-L] to all in wheelchairs
I hate to contradict you, Wheel, but any licensed physician can write the prescription if the OT or PT writes the letter of evaluation and medical necessity well enough. I got my letter from an OT in Feb. '07, my prescription from my doctor's PA in Mar. '07 and my chair was delivered April 13, '07. IMO the DME provider makes all the difference by double-checking everything; making sure every i is dotted, every t is crossed and everything is coded properly. I chose the Quantum 600 and it's been great. I liked the center wheel drive because both my legs are anputated above-the-knee making my weight/balance cause a rear-wheel drive tip easily. It also had the best options for me: Roho high-profile Quatro cushion, tilt, recline, etc. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Saturday, October 27, 2007 1:46 PM Subject: Re: [QUAD-L] to all in wheelchairs You will learn in time that obtaining a new chair these days is a lot more difficult today than it was just 5 years ago. Especially if CMS is paying for that chair. First, is the order from a licensed doctor in rehab medicine, to see an Occupational Therapist for a complete evaluation based on medical needs. The evaluation goes back to the doctor for another order to the DME. The DME will then determine what is best for you, with your help and assistance and submit those findings to Gov Insurance to determine if they will be paid for the perfect chair. Sometimes they get a yes and other times they get a no. Submittals have to be adjusted and justifications have to be properly coded and submitted. The process could take 6 months to a year. Maybe longer. Sometimes shorter. Ask around and evaluate each answer, based on its user and needs. Best Wishes In a message dated 10/27/2007 12:29:24 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: The DME close by here has a wide selection of power wheelchairs. They have invacare, and jazzy and pride and might be able to get a quikie. My own wheelchair is an invacare TDX3. It has been a good chair but it is 4.5 years old with my butt in it almost everyday between 8 to 14 hours. A few signs of wear are becoming evident. I figure I'll get my new back replacement and batteries then get them started on a replacement. Unless Ohio has dictated the chairs shall last 7 years! My neighbor did put some cool leg armor on my chair so I can visit offices where they don't allow wheelchairs. (Like Medicaid) Is that the total choice open to medicare and medicaid patience? john -- See what's new at AOL.com and Make AOL Your Homepage.
Re: [QUAD-L] Test!
You're coming through, Silas. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: Silas Shelburne To: quad-list@eskimo.com Sent: Wednesday, October 17, 2007 5:24 PM Subject: [QUAD-L] Test! Having trouble sending pictures, just wondering if this email goes through. Thanks Silas
Re: [QUAD-L] Psuedamonas UTI
Quoting the website: No Scalpel Vasectomy by Beaver Cleaver D.C. Bilateral Orchiectomy Procedure This procedure has the potential of adding 14 years to the average male life expectancy by significantly reducing the risk for prostate cancer and totally reducing the risk of testicular cancers. (however professional body builders using this technique in conjunction with steroid therapy for the purpose of body sculpting, are at somewhat greater risk to develop prostate cancers because of the increased hormone levels being introduced). No scalpel? What were the 2cm incisions made with. Beaver Cleaver D.C.? You're putting me on! Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, October 02, 2007 5:24 PM Subject: Re: [QUAD-L] Psuedamonas UTI You are a pretty good detective Lori, I salute your efforts and successes. I had about 6 utis last year, 3 of them requiring hospitalization and fancy new (to me) drugs Zosyn and Vancomyosin , and finally in November I told the doc to remove what I thought was the offending part. I had been using a condom catheter since 1967 and figured it was doing me just fine even tho it allowed me to retain about 300 cc in my bladder. I was sure foleys were a much bigger possibility for introducing utis into my system. Now since my orchiectomy and the use of a foley (a bunch of them actually) since 11-2007, I have had only 1 or 2 minor utis. I now seem to be noticing cleaner output since using collidal silver, alka seltzer, and vinegar some great home remedies for Bladder Infections . Dave In a message dated 10/2/2007 12:52:42 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Hi Danny, You and I have been talking (around 2 years now?) about the chronic UTIs that we both have been plagued with. But it seems like you have not had very good luck with competent doctors. Neither have I but I finally found out that the culprit were those very big, big bladder stones that had been sitting in growing in my bladder for years and kept growing. Anyway, you said that you have had a bad UTI for a month now! If it is bad then I must assume it has gone systemic and you have been running a fever with severe chills for a whole month? Something does not sound right. Not to mention being extremely dangerous!!! In other words... what the F***? have you or the doctors than waiting on/for? After a whole month... you just got urine culture results today which only take three days (on the outside)? Just before, and after, having my bladder stones removed a year ago this past May... the bug that came after me twice in 2 months was Pseudomonas. It is one of the worst ones and both times I had to be treated with IV antibiotics via a PICC line at home. Again, you and I have discussed these ongoing UTIs both on list and off list. There must be some source, or culprit, causing your chronic infections. Mine was bladder stones but it has to be a process of elimination kind of deal. And only you know your body best! You already know that I have had repeated serious UTIs such as Pseudomonas. Yes, it is very depressing not to mention life-threatening. And going through an entire month ... how in the world did you let it go that long if it WAS so BAD? My fevers that bad really quick and I thought I would die before ibuprofen in some sort of antibiotic began kicking in. Then finding out that Pseudomonas has been growing in there the whole time? I would began to think that your urologist OR even your regular physician... sits around reading comic books rather than trying to help you! As far as how many times one can use the IV drugs before the bug gets resistant to them it is really academic if you NEED them anyway. My greatest fear with all my troubles ALSO was the fear that the bugs were growing more and more resistant. After all... when you have to resort to IV antibiotics... that is scary enough! There is nothing left to resort to. This is what leads me to think that your position does not give a rat's ass about your well-being. How you describe it... this is dead serious and something not to just brush off again and again. Also, like I have told you so many times... you might need to travel to get a better urologist and one really cares about your well-being! This quack that you keep going to has not been very helpful... has he? Therefore, because these things can get quite serious... you better get real proactive real fast. If I sound like I am yelling at you or preaching to you... maybe it is because that I care more about you than your doctor does! Tough love if you want to call it that. :-) I was so
Re: [QUAD-L] Leg fracture
7 weeks may be too long to corrwct it without surgery. Good luck. Hope you can get it repaired. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: Richard Kratt To: Quadlist Sent: Saturday, September 29, 2007 9:19 PM Subject: [QUAD-L] Leg fracture I wonder if anybody out there has had experience with a spiral fracture of the tibia/fibia? I broke mine about seven weeks ago and there's been no sign of healing. No attempt by orthopedics was made to reduce the fracture and x-rays taken just last week have shown no bone growth and the separation of the bones is still the same. I've been pushing for some sort of surgery, but haven't had much success. What's been your experiences? Richard, C 3/4, 65 post 14 1/2
Re: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS
Happy Anniversary, John. Independent providers have to have a Medicaid Provider Number. The last 2 digits are assigned to her rather than an agency. Without that number she can't be paid by Medicaid. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: John S. To: quad-list@eskimo.com Sent: Wednesday, September 26, 2007 3:14 PM Subject: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS I just hired a lady that is an independant provider. Most of my aides have been from agencies. This lady use to be from an agency. Is the billing process meant to be a pain, or is she just not familiar with it? I'd like to help her with it but so much of it is just gibberish. I got a long lecture of how nursing homes are a drain on medicaid and frankly, they are often nightmarish. The agencies have usually treated me well but I'm told they cost 4 times what an independant costs medicaid. So why would states make their billing process for independants such a cryptic mess? The 24th was my 32nd anniversary as an old man in a wheelchair. Thats right, I've always been old. :) Got that Walter Brenan thing going. I hope y'all are doing well. Not getting many e-mails. Kinda wondering if I fell off the list again? My best to everyone, john C-5 post 32 years -- Pinpoint customers who are looking for what you sell.
Re: [QUAD-L] HOME DOOR LOCKS / KEYLESS ENTRY
Hey, Dave. Did you train those dogs to stand on each others' backs to unlock the door? snicker Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, September 24, 2007 12:43 PM Subject: Re: [QUAD-L] HOME DOOR LOCKS / KEYLESS ENTRY I hope I don't trigger some bad Karma here but we don't usually lock up. I have a garage door opener with a keypad on our back fence and a button in my van for times when I do lock the front door. mostly I just rely on my killer dogs --Two rat dogs Dave In a message dated 9/24/2007 9:35:30 A.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: In a message dated 9/24/2007 11:04:40 A.M. Central Daylight Time, [EMAIL PROTECTED] writes: JUST CURIOUS HOW YOU UNLOCK YOUR DOOR TO GET IN YOUR HOUSE. I LOOKED AT KEYPAD LOCKS BUT THEY'RE RATHER COSTLY. I FIGURED SOMEONE OUT THERE HAS SOMETHING RIGGED UP. NICKI C5/6 Geez, I thought everyone was using an eye sensor security door operator. You could also use the one with a p/b remote controller. Its all based on how much you want to spend. Best Wishes See what's new at AOL.com and Make AOL Your Homepage. -- See what's new at AOL.com and Make AOL Your Homepage.
Re: [QUAD-L] Re: my birthday and seeing my sister perform for the first time
Just busy here. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Friday, September 14, 2007 5:31 PM Subject: [QUAD-L] Re: my birthday and seeing my sister perform for the first time I haven't gotten many e-mails lately, is everyone just busy. September 14 th will be my 54th birthday. My evening aide that usually makes my evening meal is taking my mother and myself out for dinner. Last night I was able to go to my sisters first gig after three years and the first time I had ever gotten to see her perform. It was quite exciting, Lori sings indie pop and I will put pictures on my space and the SCI list. It will take me a few days. I think you can click on Lori Wray under my space friends and possibly hear some of her music. I know Mark's daughter also sings. It is a part time job for Lori on the side, she has a full-time job full-time.. Join me at MySpace.com! Just click here to join: http://www1.myspace.com/reloc.cfm?c=2id=ED1ACFD1-24FD-4312-B30F-816BD3885EFD or http://health.groups.yahoo.com/group/DisabledOfAmerica/ -Dana . -- See what's new at AOL.com and Make AOL Your Homepage.
Re: [QUAD-L] Strange e-mail
Strange e-mailI get 5 or 6 daily. It's a scam. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: RollinOn To: quad-list@eskimo.com Sent: Tuesday, September 11, 2007 11:49 AM Subject: Spam: [QUAD-L] Strange e-mail I was just wondering how many have been sent a strange e-mail like this? OXFAM GB - UK 274, Banbury Road, Oxford OX2 7DZ Dear Sir/Madam, This is to notify you that you have been officially chosen by the Board of Trustees of the Oxfam GB (NGO UK) as one of the final Recipients of a Cash Grant/Donation for Economic Growth and a Poverty Alleviation Scheme Through your email. Oxfam GB (U.K.) a Multi-Million Pounds NGO group was established with the Objective Of Human Growth, Educational and Community Development. In line with the 61st anniversary program, Oxfam GB (U.K.) in conjunction with the European Council is giving out Five Million Pounds Sterling as specific Donations/Grants to 10 lucky International recipients worldwide in different Categories for Business and Social Development. These funds are freely given to you for your Business, Economic And Educational Development, as well as the enhancement of the overall standard of living in your region.. Your Email was selected based on an internet random Selection Exercise, you are therefore confirmed as one of The lucky recipients and are entitled to £500,000.00 (FIve THOUSAND POUNDS STERLING) as charity donations/aid from the Oxfam GB (UK). Further information on requisites associated with the Processing and disbursement of your £500,000.00 grant entitlements, alongside the provision of your qualification documentations will be dislosed to you by the National Secretary Oxfam GB (UK), Dr.Robert Grayson. Endeavour to quote your Qualification Number (OG/N231/E101/BDB) as the subject of your correspondence with him to facilitate your Grant disbursement process. Dr.Robert Grayson, Oxfam GB (UK) Email: [EMAIL PROTECTED] Claims Requirements: 1.Name in full-- 2.Address--- 3.Nationality--- 4.Age--- 5.Occupation 6.Phone/Fax- 7.Present Country--- 8.Alternate Email Address--- Please note that these Donations/Grants are administered by a United Kingdom Bank and therefore subject to United Kingdom Banking Laws. You are by all means advised, To keep this information confidential until you have collected your grant. This is a security measure to avoid unwarranted attention from the International press, double or unqualified claim. On behalf of the Board, kindly accept our warmest Congratulations! Yours faithfully, Sir.Graham Mackay Programme Manager. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.485 / Virus Database: 269.13.14/999 - Release Date: 9/10/2007 5:43 PM Mark Jackson No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.485 / Virus Database: 269.13.14/999 - Release Date: 9/10/2007 5:43 PM
Re: [QUAD-L] Anniversary
AnniversaryWell, happy anniversary, Mark. Keep on keepin' on. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: RollinOn To: quad-list@eskimo.com Sent: Tuesday, September 11, 2007 12:07 PM Subject: [QUAD-L] Anniversary Hello people, Well it was about this time (10:30) 8 years ago when I decided to take a dip into shallow water and within a couple minutes I knew my life was in for a battle. Some might say I lost the battle but as we all know we're still fighting it every day. I'm not going to dwell on this day I'm taking my son out for his birthday later and enjoy life and the fact that I'm still here with him! On another note my anniversary falls on a dark day for my country and my heart goes out to the families of the TWC victims, no matter how bad we have it sometimes it could always be worse! Mark Jackson No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.485 / Virus Database: 269.13.14/999 - Release Date: 9/10/2007 5:43 PM
Re: [QUAD-L] test
MessageI didn't study! Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL My doctor refused to write me a prescription for Viagra. He said it would be like putting a new flagpole on a condemned building. - Original Message - From: Eric W Rudd To: quad-list@eskimo.com Sent: Friday, September 07, 2007 5:59 PM Subject: [QUAD-L] test Eric W Rudd [EMAIL PROTECTED]
Re: [QUAD-L] VAN
Dave, I had to quit driving after my legs were amputated. Both hips have been disarticulated, too. It sure changes your sitting balance, doesn't it? Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL My doctor refused to write me a prescription for Viagra. He said it would be like putting a new flagpole on a condemned building. - Original Message - From: David K. Kelmer To: Nichole Rohling ; Quadlist Sent: Thursday, August 30, 2007 3:50 PM Subject: Re: [QUAD-L] VAN Hi Nicki, Congratulations on your new van. Drive with care but enjoy your ride! If I know I will need to move after sitting awhile, I'll flex just to give the muscles a signal before I'd move, and that helped. I haven't driven since the dis-articulation of my leg in '89! With Love, CtrlAltDel aka Dave C4/5 Complete - 31 Years Post Texas, USA Nichole Rohling [EMAIL PROTECTED] wrote: I FINALLY GOT MY VAN BACK LAST FRIDAY. THEY LEFT THE GAS SETTING PAST EMPTY BUT HOPEFULLY I'M DONE WITH IDS - INDEPENDENT DRIVING SYSTEMS. IT IS WONDERFUL TO HAVE THIS INDEPENDENCE BACK. ONLY THING IS AFTER DRIVING 20 MINUTES ON THE INTERSTATE MY MUSCLES SAY NO WHEN I MAKE MY 1ST TURN. SPASM CITY. I THINK IT'S FROM BEING PRETTY MUCH IN ONE POSITION THEN TRYING TO MOVE SUDDENLY. ANYONE ELSE EXPERIENCE THIS? I'M FINE JUST GOING INTO TOWN A FEW MILES. NICKI
Re: [QUAD-L] questions
I do genealogy research for myself and others. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL My doctor refused to write me a prescription for Viagra. He said it would be like putting a new flagpole on a condemned building. - Original Message - From: Danny Espinoza To: quad-list@eskimo.com Sent: Monday, August 27, 2007 3:15 AM Subject: [QUAD-L] questions So what doeseveryone do for fun and work?
