Re: [QUAD-L] Burns
Greg, You might want to get back to your doctor and have him look at it. Sometimes the antibiotic cream prevents healing. I also have burnt myself in many places with heat wrap, hotplate, hot beverages, and accidentally bumping the oven. About a year ago I burnt my finger and the wound wouldn't go away and it became infected. After seeing A GP, a surgeon and then finally an orthopedic surgeon, who cut out the infection twice, it finally healed. Feeling cold and uncomfortable, the warmth is soothing and comforting and I always try to be careful but sometimes it is not enough. Best wishes Dan T. [EMAIL PROTECTED] wrote: I'm healing up a few burns on my ankle from sitting too close to my space heater a few weeks ago. it's amazing how we can cook ourselves without even knowing it. Dave In a message dated 3/12/2007 5:41:13 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Burns, Burns, and yet another Burn. I got a muffin out of the mic and it was hotter than I thought. I had it on a napkin on the back of my hand. A few hours later I went to rub my face and water was all over. The big blisters popped. They looked to be heeling ok, scabbed up⦠I had to get a prescription for something else, so I had the doc look at it. He put an antibiotic cream on it, then wrapped it up. But now the cream has soften it up and itâs all wet looking. At least he gave me oral antibiotics to take too, just in case it got infected. I should just remember all my other burns I have had over the years, once itâs scabbed up, leave it alone⦠Greg Dave Visit My Home Page - AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
RE: [QUAD-L] Fosamax for Osteoporosis
Yes Joan, I have the same kind of extensor spasms. I have had a baclofen pump
for a bout 12 years and it is very effective in reducing the spasticity. Dan T.
poajoan [EMAIL PROTECTED] wrote: v\:* { BEHAVIOR: url(#default#VML) }
o\:* { BEHAVIOR: url(#default#VML) } w\:* { BEHAVIOR: url(#default#VML)
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DIV.Section1 { page: Section1 }I am extremely fortunate in that I
do not have severe spasms. I had more spasms when I was newly injured than I do
now. I have also learned to try and relax before anybody tries to move me,
because for not having any muscle-I sure can tighten up a lot and be extremely
hard to move. I don't have the kicking type of spasms for the most part, but
rather twist my whole torso and straighten out arms and legs. Learning to live
with our bodies, and knowing each idiosyncrasy, is so important as so many
others on this list have said in the past.
Joan, C4 1990
-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Wednesday, March 07, 2007 12:42 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Fosamax for Osteoporosis
In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time, [EMAIL
PROTECTED] writes:
Hi Diana.
I have been taking Fosamax for three years. I had no side effects from the
drug, and after the first 18 months, we retested, and there was about 20%
improvement. The doctor was very pleased, and so was I..
Joan, C4 1990
I've just been going through a really bad time in the past couple weeks. My
chest and back feel extremely tight and my leg spasms have increased. This
morning my husband touched my leg and it went into it's spasm, kicking thing. I
do have an appt with my doc but it's sooo frustrating being a quad and trying
to figure out what's going on with the body. Fosamax has joint, muscle, and
bone pain as a side effect but we also noticed discoloration on the foley when
it was changed. Don't know what's going on so I guess it's time for ultra
sounds and such.
diane
-
AOL now offers free email to everyone. Find out more about what's free from
AOL at AOL.com.
[QUAD-L] SEATING SOLUTION
Hi guys, I am looking for seating suggestions. I recently healed a pressure sore and am having difficulty finding a seating solution. The most recent attempt is with the Ride Designs cushion and I am having trouble with it also. I have used Jay, Roho, Aquilla and others. I do have some seating issues, pelvic obliquity and some rotation. I have been working with seating specialists unsuccessfully. Any input would be appreciated. Dan T.
Re: FW: [QUAD-L] Fosamax for Osteoporosis
I range and spasm. Dan T. [EMAIL PROTECTED] wrote: I went to school in Detroit where in winter, my hands would get very cold and stiffen out like two paddles - they weren't worth having for pushing, grabbing or anything - just paddling. I wouldn't give up my spasms for anything. After a few beers - I'm pretty much a ball of jelly. can't transfer - speak intelligently - or do much of anything. Mirapex (an Alzheimer med) helps slow them down to manageable. In a message dated 3/8/2007 8:33:28 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: I sent my two cents worth by Reply to Joanâs letter. Sending mail by Reply apparently does not make the Q-List, I felt this important enough to repeat here. In short, I have not met a spinal injured person with spasms who has kept up with their range of motion. Also on range of motion, I have neither met anyone with contracted hands who also ranges fingers regularly. Some people use contracted hands to hold things pretty good. I am too vain, even to hold things better, to allow my fingers to contract so I still range fifteen years post. I would like using this forum to take a poll, or not. 1) Who ranges, who spasms, and who have contracted hands? Merrill - From: Dan Tessiatore [mailto:[EMAIL PROTECTED] Sent: Thursday, March 08, 2007 6:32 PM To: poajoan; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: RE: [QUAD-L] Fosamax for Osteoporosis Yes Joan, I have the same kind of extensor spasms. I have had a baclofen pump for a bout 12 years and it is very effective in reducing the spasticity. Dan T. poajoan [EMAIL PROTECTED] wrote: I am extremely fortunate in that I do not have severe spasms. I had more spasms when I was newly injured than I do now. I have also learned to try and relax before anybody tries to move me, because for not having any muscle-I sure can tighten up a lot and be extremely hard to move. I don't have the kicking type of spasms for the most part, but rather twist my whole torso and straighten out arms and legs. Learning to live with our bodies, and knowing each idiosyncrasy, is so important as so many others on this list have said in the past. Joan, C4 1990 - From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, March 07, 2007 12:42 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Fosamax for Osteoporosis In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Hi Diana. I have been taking Fosamax for three years. I had no side effects from the drug, and after the first 18 months, we retested, and there was about 20% improvement. The doctor was very pleased, and so was I.. Joan, C4 1990 I've just been going through a really bad time in the past couple weeks. My chest and back feel extremely tight and my leg spasms have increased. This morning my husband touched my leg and it went into it's spasm, kicking thing. I do have an appt with my doc but it's sooo frustrating being a quad and trying to figure out what's going on with the body. Fosamax has joint, muscle, and bone pain as a side effect but we also noticed discoloration on the foley when it was changed. Don't know what's going on so I guess it's time for ultra sounds and such. diane - AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Dave Visit My Home Page - AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
Re: [QUAD-L] Sick
Quadius, Sorry to hear you were ill. Were you hospitalized? I hope your lungs clear and you feel well. Dan T. B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:Hey guys and gals, I have been suffering with an upper respiratory infection that invaded my lungs, but I am slowly but surely coming out of it. To say it has been a struggle is a bit of an understatement; it's more of a battle. Anyway, I hope I didn't miss too much while I was away (three weeks and counting), but I have not had the energy or the ability to dictate. Right now my voice is still in and out and there is really no hope that I will be able to get through the 340 e-mails on the quad list alone. Hopefully I will be back to read every e-mail very shortly. Quadius PS I haven't had an illness which has infected my lungs since 2000. Almost 7 years without no problems. - Need Mail bonding? Go to the Yahoo! Mail QA for great tips from Yahoo! Answers users.
Re: [QUAD-L] I'm new to the list!
Hi Debbie, Welcome to the list. I am 30 your post injury C. 4-5 and live in Illinois. Dan T. Bruce and Debbie Hamilton [EMAIL PROTECTED] wrote: Hi my name is Debbie. I am almost 2 years postaccident. I was diagnosed as a C4, my function level now is C6 on the right C5 on the left. The first year postaccident was absolutely horrendous! During the second year, I've worked on accepting the new me. I am 47 years old, married, and have three boys one still at home. I am now living in Colorado after going to Craig hospital and have found there aren't very many resources after being discharged. Such as rehab for SCI. I look forward to asking questions in this group. I need the support! Will post questions soon. _ Win a Zunemake MSN® your homepage for your chance to win! http://homepage.msn.com/zune?icid=hmetagline
[QUAD-L] Gentleman Door/Sliding Patio Door Opener
Hello, I recently recall someone asking about a sliding glass door opener. I also have been considering purchasing one. Has anyone had any experience with the Gentleman Door company? gentlemandoor.com thanks, Dan T.
Re: [QUAD-L] Smacked my van - Gap Insurance
Amen John! Also a lot of a those parking placards are expired or belong to
someone else not in the car and that illegal! Dan T.
[EMAIL PROTECTED] wrote:I'm only going to say this one time. Get two
traffic cones, (stealing them is the best way because they get stolen a lot).
Block the space beside your van with them. If you do get parked in then go in
the store and tell them that car has left its lights on.
If you live in an area where you always get parked in, try using spaces
farther away. Doctors give out those parking permits like they use to give out
lollipops. I've seen people with handicapped parking permits for being obese. I
know your all thinking what I'm thinking. Say something to doctors about it
when you see them. I do.
john
-Original Message-
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Wed, 28 Feb 2007 12:22 PM
Subject: Re: [QUAD-L] Smacked my van - Gap Insurance
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BORDER-BOTTOM: #dadad6 1px solid; HEIGHT: 206px }Lucky is
definitely the word Wally. Good AND bad luck actually - just bought 4 new
tires, new
speakers for the radio, new AC compressor... and a completely fluke accident.
I was afraid they'd pry it back into shape and return it to me. I would have
sold it on the street hopefully for enough to cover my loan - but I would have
felt bad thru the whole thing. I'm really glad it turned out like it did.
wifey has vowed never to get behind the wheel again - unless we move the seat
over, or leave the motor off. parking is definitely a problem, the only way
I'm safe is to park cornerwise in two spots with the door pointed out to the
driveway. did it the other way once and someone squeezed into the 1/2 a spot
I left open with my door facing in. even the handicapped spots are no good as
people park over their lines into the hash marks between us and block me, or a
motorcycle will park on the hash marks - - the! trip in from the last spot
where no one wants to park anyway isn't all that bad. I just drop wifey off up
front. from now on, I'm PLANNING my luck - no
more trusting the stars.
Dave
In a message dated 2/28/2007 9:43:09 A.M. US Mountain Standard Time,
wheelchair writes:
Consider yourself most fortunate. I've seen vehicles with worse damage
that were repaired and returned to its owner. Your old van, will be sold to a
junk yard for 100-200 bucks with a scrap title. He can never be sold again as
a used vehicle. However, that same vehicle will be chopped and parted for
individual parts totaling thousands of dollars in parts. But that is the name
of the game.
You might consider adding a safety feature to your car that prevent that from
happening again, or watch where you park.
Best Wishes
W
In a message dated 2/28/2007 10:38:44 A.M. Central Standard Time, [EMAIL
PROTECTED] writes:
No - once totaled and paid off by the primary ins company, they (the ins
co) now owns the van. The gap insurance is from a 3rd party who will send the
lender the difference of what my primary insurer pays and what I owe.
Basically, my lender (Credit Union) gets paid in full for
RE: [QUAD-L] Mark Felling gimpgear.US
Joan, sliding doors have adjustments on them that can make them easier and more
difficult to open and close. Maybe contacting your manufacturer or someone
knowledgeable about the door's and inquire if it is adjustable. I can make a
difference and sometimes when you adjust them they resort to their previous
difficult condition and need to be adjusted again. I think the adjustments are
on the bottom and the top of the door. I think the one in my door are screws
that can be adjusted with a screwdriver. Hope this helps... Dan T.
poajoan [EMAIL PROTECTED] wrote: v\:* { BEHAVIOR: url(#default#VML) }
o\:* { BEHAVIOR: url(#default#VML) } w\:* { BEHAVIOR: url(#default#VML)
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Section1 }I too have a DoorMate-bought it four years ago, and we
hooked it up to my SiCare, and it is just not strong enough to open the sliding
door. However, a friend of mine has a different style sliding door, which is
not as heavy as mine, and it works great -- go figure!
Joan
-
From: LINDA FERRELL [mailto:[EMAIL PROTECTED]
Sent: Tuesday, February 27, 2007 4:09 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Mark Felling gimpgear.US
Joan,
Your home sounds lovely ideal. You once mentioned you wanted a door opener,
I have a DoorMate would not recommend it for my dog because it is a piece of
JUNK!!!
Lindaf
Re: [QUAD-L] Question about chairs and Roho cushions.
Danny, there is a big difference between the low profile and high profile Roho. A low profile will not give you the adequate margin to avoid pressure sores. I would definitely stick with a high profile. The low profile is probably for someone who is more ambulatory. Have you been having any trouble with pressure when sitting? Dan T. Danny Hearn [EMAIL PROTECTED] wrote:Hi all, I have 2 questions, 1st-- I'm getting evaluated for a new chair on March 8th---Do any of you have suggestions or like any certain chairs ? My old one is over 5 years old, it is an invacare arrow and overall it has been an ok chair but not real good in backyards or parks when on grass, and I love being outside a lot. My 2nd Question is..Does anyone know if a Roho low profile cushion is as good as a Roho High profile ?? I've had roho high profile for over 9 years but if low is just as good, I may get one because it's so hard getting legs under restaurant tables and every inch lower would help.Thanks, Dan H.
Re: [QUAD-L] Smacked my van
Sorry to hear about your accident. I hope everyone is okay as it is plastic and metal. Dan T. [EMAIL PROTECTED] wrote: I got blocked out of my van by the only other car in the parking lot. I had my wife get in to roll it forward so I could get in, bad decision. she hit the gas, fell down and smacked into a brick wall. the verdict isn't in yet but I'm thinking it's totaled. Dave's Broken Van Dave Visit My Home Page - AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
RE: [QUAD-L] Mark Felling gimpgear.US
Joan, it sounds as though you've made every effort to correct your ex 10 glitch
and you are probably aware that the devices have different channels but in case
that was an oversight I wanted to mention it. Isn't technology wonderful when
it works? Dan T.
poajoan [EMAIL PROTECTED] wrote: v\:* { BEHAVIOR: url(#default#VML) }
o\:* { BEHAVIOR: url(#default#VML) } w\:* { BEHAVIOR: url(#default#VML)
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navy; FONT-FAMILY: Arial; mso-style-type: personal-reply } DIV.Section1 {
page: Section1 }Hi Dan.
I have an environmental control unit -- a SiCare -- that I use. As with all
voice-activated, there are drawbacks, but it certainly has helped me control
the environment immediately around me. I use it at night to turn my fan on and
off, control the entire TV and satellite dish, and control the lights around
the entire house. I was supposed to get a door opener, but so far that has not
happened. But I have' not lost the faith yet. When we built my house, we
actually installed X--10 throughout the house. For the most part it has worked
well, with funny little glitches that we have not been able to correct i.e.,
when I turn the lights on and off in my room it also turns the lights on and
off in the living room. We have reprogrammed them, we have moved the bounce
device to different areas of the house, and now we just laugh when I turn the
lights on and off. Good luck in your search.
Joan
-
From: Dan Tessiatore [mailto:[EMAIL PROTECTED]
Sent: Saturday, February 24, 2007 6:35 PM
To: poajoan; quad-list@eskimo.com
Subject: RE: [QUAD-L] Mark Felling gimpgear.US
Joan, I am looking to purchase a totally hands-free cell phone and sometime
in the future possibly some environmental control products. Thanks for all
your feedback on your cell phone. Dan T.
poajoan [EMAIL PROTECTED] wrote:
Hi Dan.
I purchased the carrier sling that they carry. It is well made, will work
quite well, and their delivery time was very quick. It is almost exactly like
the sling I have for my barrier free lift, but is made of sturdier material and
with handles at the appropriate place. I am going to try to find out more about
their assisted hand device. It would be so fantastic be able to give myself a
drink, let alone be able to feed myself :-) :-) :-).
What is it that you're looking at? That is, if you don't mind my being nosy.
Regards.
Joan
-
From: Dan Tessiatore [mailto:[EMAIL PROTECTED]
Sent: Friday, February 23, 2007 4:54 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Mark Felling gimpgear.US
Has anyone purchased products from Mark Felling at gimpgear.us? would have
your experiences been? Things, Dan T.
Re: [QUAD-L] $$$$ medication's $$$
Bobby, sorry to hear about your friend. Is she enrolled in any of the Medicare drug programs? At last resort she could make herself eligible for Medicaid. Did they give her any idea of her prognosis? Ideally it would be good if she could have an oncologist and a physician specializing in pain management. Your friendship and assistance to her is the most valuable thing you can give her. Best regards, Dan T both of you are in my prayers [EMAIL PROTECTED] wrote:If she doesn't have the money or is under insured, the Montel Williams TV Show has been marketing a program for free meds and various drug programs offered by the manufacturers. I wish your friend... enough. W In a message dated 2/24/2007 5:57:35 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Hi guys, A close friend of mine was just fine two weeks ago. She gad been complaining about her back bothering her. Her back pain got SO BAD that she went to the ER, something she herself, has never done. After being admitted and put on IV pain meds and going for MRI's X-rays CAT scans. The Doctor's came to her and told her she has kidney cancer, lung cancer AND spine cancer. They sent her home and with prescriptions and scheduled her for chemo starting Monday. One of the prescriptions for 28 pills cost $6,000.00 Six thousands dollars!! Ann is 84 yrs old. Bobbie - AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
RE: [QUAD-L] Mark Felling gimpgear.US
Joan, I am looking to purchase a totally hands-free cell phone and sometime in
the future possibly some environmental control products. Thanks for all your
feedback on your cell phone. Dan T.
poajoan [EMAIL PROTECTED] wrote: v\:* { BEHAVIOR: url(#default#VML) }
o\:* { BEHAVIOR: url(#default#VML) } w\:* { BEHAVIOR: url(#default#VML)
} .shape { BEHAVIOR: url(#default#VML) } @font-face { font-family:
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mso-style-type: personal-reply } DIV.Section1 { page: Section1 }
Hi Dan.
I purchased the carrier sling that they carry. It is well made, will work
quite well, and their delivery time was very quick. It is almost exactly like
the sling I have for my barrier free lift, but is made of sturdier material and
with handles at the appropriate place. I am going to try to find out more about
their assisted hand device. It would be so fantastic be able to give myself a
drink, let alone be able to feed myself :-) :-) :-).
What is it that you're looking at? That is, if you don't mind my being nosy.
Regards.
Joan
-
From: Dan Tessiatore [mailto:[EMAIL PROTECTED]
Sent: Friday, February 23, 2007 4:54 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Mark Felling gimpgear.US
Has anyone purchased products from Mark Felling at gimpgear.us? would have
your experiences been? Things, Dan T.
[QUAD-L] Mark Felling gimpgear.US
Has anyone purchased products from Mark Felling at gimpgear.us? would have your experiences been? Things, Dan T.
Re: [QUAD-L] Mark Felling gimpgear.US
Has anyone purchased products from Mark Felling at gimpgear.us? what have your experiences been? Thanks, Dan T. Dan Tessiatore [EMAIL PROTECTED] wrote:
Re: [QUAD-L] How You Do It
Sometimes I tell people who try to tell me that I can be healed if my faith is
strong enough that I can be healed through the faith of others. Dan T.
[EMAIL PROTECTED] wrote:All of us have a different story. I just seem to
call agencies and try to be nice. It seems like I pay people to be around me
and I haven't enough money for anyone to get fanatical about it. I don't under
estimate the fact that I take drugs.
I think I've been lucky because I've never had much trouble with women
chasing me. Most leave skid marks if I even joke about such things.
The really difficult people I meet are trying to get me healed at their
church. They get so upset when I don't get up and dance. I tried to tell them
that faith shouldn't require proof. I'm being shunned by two entire cults. I'd
complain but I am still enjoying the telephone silence.
john
-Original Message-
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Thu, 22 Feb 2007 10:05 AM
Subject: Re: [QUAD-L] How You Do It
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BORDER-BOTTOM: #dadad6 1px solid; HEIGHT: 206px } Hi Merrill,
It sounds like you had the perfect set-up 3 times in a row! And your asking us
how you should do it?!? I should be so lucky. Why did you leave what sounds
like such perfect set-ups?
Dan
On 2/20/07, Merrill Burghardt [EMAIL PROTECTED] wrote:
HOW DO YOU DO IT?
If you do not care to read this in complete, can you share how as a fellow
quadriplegic you live?
To learn what is possible for myself, I watch and speak to as many
quadriplegics how they live, particularly on a low budget paying to get in and
out of bed at that. After rehab when I was first injured, the hospital nor I
knew what to do with me. My family lived 2,000 miles away in Milwaukee.
Moving from California was not at present an option, nor did I want at that
time be the prodigal son I was, to move in this way. Fortunate for me, the SCI
psychologist refused to allow me be discharged to a nursing home. I am forever
thankful to this woman to have given me a standard and the guts to be creative
in how I live. I know nursing facilities are necessary to perhaps most people
at one time or another, so any person at home in such a facility I mean no
disrespect. Contrary, what you have to do, or found, ya have to d! o it.
My solution was to run an ad in the domestic colomn in a newspaper in an area I
desired to live. The ad read something like, 38 year old quadriplegic
looking to live with caregiver. Offering (at that time $1,300.) A woman with
two old enough to work daughters, CNAs themselves were my best choice. As a
new C/5 injury I pretty much broke myself in with my new found injury survival
ways here. This was working out pretty well.
A cousin I had never met started calling me insisting for me to move in with
her in a house she recently bought. After two months of persuasiveness, I felt
if she wanted me bad enough she could have me. So not involving her in my care
outside of meals, could you, would yours, and the sort, I pretty well cut my
teeth on hiring, working with, training, and firing attendants.
After ten
Re: [QUAD-L] How You Do It
I'd do it with the help of family and the best medical care I can find in my area. Learn everything you can. Dan T. [EMAIL PROTECTED] wrote:In a message dated 2/20/2007 8:48:40 P.M. Central Standard Time, [EMAIL PROTECTED] writes: HOW DO YOU DO IT? If you do not care to read this in complete, can you share how as a fellow quadriplegic you live? The ground rules have changed completely in the last 17 years regarding SCI and living the life. 17 years ago, most could expect a minimum of 90 days in rehab, while planning their eternal future in the real woild. Today, even C4/5 are kicked out after 30 days of uncertainty. Depending on the type of insurance you have, can also determine how easy or difficult life can be. Lawsuits often take 5-7 years before you can expect any reasonable settlements. Support from one's spouse, family and support group, provide some interesting insight, during those transition periods. Then you have the natural survivors. They tend to be extremely rare. Give them a holy blanket and a feathered pillow and they can sleep in a tent on the side of a mountain, eat grass and drink dirty water and you can only shake your head at them... and just wonder. Its never easy and often not pretty, but I too have seen it done. Paul The Impossible Only Takes A Little Longer Berg, was one of those people. Ed Father of CIL Roberts, is another. Curtis Superfly Mayfield, Christopher Reeve, Judith Human and so many others who faced SCI as a quad, and lived the life. No, I don't have the answer. But I know its out there for all to seek and survive. W - Check out free AOL. Most comprehensive set of free safety and security tools, millions of free high-quality videos from across the web, free AOL Mail and much more.
Re: [QUAD-L] A question to the q-list group from Bobbie
Sure, if time allows I would enjoy it. Dan T. [EMAIL PROTECTED] wrote: Hey Everybody, Would you guys mind if I send a few things I've written? Or when I write something new, which I'm always doing, would you be interested in reading and revising or giving input to my short stories, poems or essays? Bobbie - Check out free AOL. Most comprehensive set of free safety and security tools, millions of free high-quality videos from across the web, free AOL Mail and much more. ** Check out free AOL at http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free safety and security tools, millions of free high-quality videos from across the web, free AOL Mail and much more.
Re: [QUAD-L] how about this rewrite ~ A Love That Inspires
Bobbie, I like the original better. Dan T. [EMAIL PROTECTED] wrote: Hi All OK, I rewrote this. let me know if it's any better. Thanks guys ~ Bobbie ~ A Love That Inspires by Bobbie Humphreys Imagine a kind of love that inspires spontaneous slow dancing. A daily routine interrupted by a Nat King Cole love song. ââ¦the greatest thing you'll ever learn, is just to love and be loved in returnâ A devoted husband helping his disabled wife of twenty four years, with her sleeve that seems to be caught with in itâs self â inside out some people call it. In the middle of the day in the center of their living room they begin dancing cheek to cheek, the embrace is important, not the missed steps of paralyzed legs. He whispers in her ear âI love you sweetieâ then twirls with her empty sleeve. He giggles when he finally notices a neighbor compelled to look in their first floor apartment window at a man apparently dancing with a sleeve. The husband graciously takes a bow and together they laugh at the thought that the passer by cannot see his beautiful wife sitting in a wheelchair with her heart on her sleeve.
Re: [QUAD-L] Ditropan
I take the Ditropan XL and have experienced mouth soreness. Often times I am unable to eat things that have a lot of salt , tomato sauce and vinegar. I started taking Ditropan several years ago and it worked great, but after several years it was not as effective. My doctor put me on a different med of which I cannot remember. After a few years that drug was no longer effective and I am now back on Ditropan and it is working. Dan T. [EMAIL PROTECTED] wrote:Hi all, My urologist has put me on Ditropan, 10 mg 3 times a day. Ditropan XL upsets my stomach. The problem that I have is of course dry mouth, but another is a very sore mouth. My tounge and gums hurt like I ate food with too much salt, or took too much vitamin C. Anybody have the mouth soreness? GA - Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] What's wrong with this?
Bobbie, It all works for me. Very descriptive and enjoyable. I give you an A+. It touches the heart. Dan T. [EMAIL PROTECTED] wrote: Hi all, I just wrote this short skit I don't know what to call it, for a writing class. Could you read it and tell me what dose and doesn't work in it. Either a word or phrase. Thanks, Bobbie A Celebration Imagine a kind of love that inspires spontaneous slow dancing. A daily routine interrupted by a Nat King Cole love song. ââ¦the greatest thing you'll ever learn, is just to love and be loved in returnâ A devoted husband helping his disabled wife of twenty four years, with her sleeve that seems to be caught with in its self â inside out some people call it. In the middle of the day in the center of their living room they begin dancing cheek to cheek, the embrace is important, not the missed steps of paralyzed legs. He whispers in her ear âI love you sweetieâ then twirls with her empty sleeve. He giggles when he finally notice's a neighbor compelled to look in their first floor apartment window at a man apparently dancing with a sleeve. The husband graciously takes a bow and they laugh at the thought that the passer by can not see his beautiful wife sitting in a wheelchair with their hearts on their sleeve.
Re: [QUAD-L] X TV
Great show! Entertaining and educational. Tremendous lung capacity. How do you do that professor? Dan T. [EMAIL PROTECTED] wrote: I would like to share my TV Show with everyone, I upload regularly, the MVP Shows are different, check the list of videos for other videos, thanks http://www.veoh.com/channels/xtv Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] What's wrong with this?
Maybe call it a love that inspires. Dan T. Dan Tessiatore [EMAIL PROTECTED] wrote: Bobbie, It all works for me. Very descriptive and enjoyable. I give you an A+. It touches the heart. Dan T. [EMAIL PROTECTED] wrote: Hi all, I just wrote this short skit I don't know what to call it, for a writing class. Could you read it and tell me what dose and doesn't work in it. Either a word or phrase. Thanks, Bobbie A Celebration Imagine a kind of love that inspires spontaneous slow dancing. A daily routine interrupted by a Nat King Cole love song. ââ¦the greatest thing you'll ever learn, is just to love and be loved in returnâ A devoted husband helping his disabled wife of twenty four years, with her sleeve that seems to be caught with in its self â inside out some people call it. In the middle of the day in the center of their living room they begin dancing cheek to cheek, the embrace is important, not the missed steps of paralyzed legs. He whispers in her ear âI love you sweetieâ then twirls with her empty sleeve. He giggles when he finally notice's a neighbor compelled to look in their first floor apartment window at a man apparently dancing with a sleeve. The husband graciously takes a bow and they laugh at the thought that the passer by can not see his beautiful wife sitting in a wheelchair with their hearts on their sleeve.
[QUAD-L] Article quad in jail for pot
Here's an article that's several years old but it is shocking. You might have read this but if you haven't you will probably never forget it. Talk about being out of touch with reality. Dan T. http://www.talkleft.com/story/2004/10/01/408/37516
Re: [QUAD-L] Re: /mitrofanoff
What kind of procedure is that? Dan T. [EMAIL PROTECTED] wrote:In a message dated 2/16/2007 7:33:43 A.M. Central Standard Time, [EMAIL PROTECTED] writes: my doc said there are very few people he would do the mitrofanoff on but i happened to be one of the lucky few. he said it is becoming somewhat of a trend in the medical world and some people were wanting it done out of pure laziness. he also said he will only do it if it helps a person become more independent. if they still need assistance after the procedure he felt it wasn't worth it. jessica Those born with spina bifida, can still be very active and have a normal lifestyle while using manual wheelchairs. Sex, can also be quite normal, hence the Mitrofanoff Procedure. Best Wishes W
Re: [QUAD-L] uti's/mitrofanoff
Jessica, in the last two years I have had 2 UTI's. Prior to that I hadn't had any in a good 10 years. Most UTI's are from bugs that can be found in stool. I read that several years ago and after multiple UTI's every year I became extreme with hygiene. I was always good with hygiene but now I go over-the-top somewhat. Changing sheets and washing more frequently can help prevent a UTI's. Also being careful to keep the catheter sterile when changing it. Dan T. Jessica Ann Gordon [EMAIL PROTECTED] wrote: On Feb 15, 2007, at 6:26 PM, [EMAIL PROTECTED] wrote: How many UTI's do the rest of you get? i'd say i get a UTI at least once every 2 months, but probably more frequently than that on average. i had the mitrofanoff procedure a couple years ago, hoping that if i catheterized more often i would eliminate infections. unfortunately this wasn't quite the case. i may get them slightly less frequently but it's not a huge change. anyone else had the mitrofanoff? for those who don't know what it is: http://en.wikipedia.org/wiki/Mitrofanoff_appendicovesicostomy jessica
Re: [QUAD-L] uti's
When I get at UTI the urine turns very dark but does not get bloody. Stones can cause bleeding as they can scrape and tear the tissue. Dan T. Jessica Ann Gordon [EMAIL PROTECTED] wrote: On Feb 16, 2007, at 1:36 AM, [EMAIL PROTECTED] wrote: Have others had blood in their urine from a UTI? Is that normal with bladder stones to have bleeding ? i have had bladder stones removed surgically on three separate occassions. blood is a normal symptom of UTI's and/or stones. i don't usually have blood from a UTI but i did when i had stones. so don't be too alarmed -- just get it checked out soon! jessica
Re: [QUAD-L] QUESTION
I would say yes. Dan T. Nichole Rohling [EMAIL PROTECTED] wrote: DO YOU THINK BY HAVING A SCI MAKES PEOPLE WITH SCI A MINORITY? NICKI
Re: Fwd: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems
Dana, how do you use this phone? But accessories do you use? Thanks, Dan T. [EMAIL PROTECTED] wrote:I will have to look up in my notebooks, the name of the program as it has been a couple years since I got this speakerphone. I hope they still have the program going, but you never know. I think it was federally funded. http://ameriphone.onlinephonestore.com/browse/75f5ccfff418ae0e5445deb029a0299f/Ameriphone_Remote_Controlled_Speaker_Phones.html In a message dated 2/12/2007 10:20:06 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Dana, what is the Americanphone you mentioned in a previous e-mail? Thanks Dan T. [EMAIL PROTECTED] wrote: I really like my americaphone. You can get one for free through most state programs. I will have to look up the information, it is one of my notebooks which may not be findable. You can get them every so many years. The doctor has to fill out paperwork. I just can't room the name of the program right now. I think I will be able to find it. If you don't hear from me, remind me again. I use in my bed and on a boom so I could move it which ever way and turned so I always have access to my telephone. Always, Dana Date: Mon, 12 Feb 2007 19:51:32 -0800 (PST) From: Dan Tessiatore [EMAIL PROTECTED] Subject: Re: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems To: [EMAIL PROTECTED], [EMAIL PROTECTED], quad-list@eskimo.com Dana, what is the Americanphone you mentioned in a previous e-mail? Thanks Dan T. [EMAIL PROTECTED] wrote: I really like my americaphone. You can get one for free through most state programs. I will have to look up the information, it is one of my notebooks which may not be findable. You can get them every so many years. The doctor has to fill out paperwork. I just can't room the name of the program right now. I think I will be able to find it. If you don't hear from me, remind me again. I use in my bed and on a boom so I could move it which ever way and turned so I always have access to my telephone. Always, Dana
Re: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems
Naomi, thanks for the info. Can you say hello to get a dial tone? I looked at the web site and you can buy dialers for them that our voice activated. It's quite costly, did you get a bargain on yours? Dan T. [EMAIL PROTECTED] wrote: Dan T, I have this same phone. It was the only voice activated phone I could find. I have had it for nearly 2 years now without any problems. My husband just plugged in to a phone jack. Simply saying hello will answer the phone. It comes with a small remote control, which enables you to dial numbers that you program into the phone. I don't have the dexterity to push buttons or dial a phone, but I am able to press the remote with the heel of my hand. It scans the numbers programmed, and when you're at the number you want to dial, you press the remote. Hope this helps Naomi C-4 quad since July 2, 2005 Transverse Myelitis
Re: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems
Dana, what is the Americanphone you mentioned in a previous e-mail? Thanks Dan T. [EMAIL PROTECTED] wrote: I really like my americaphone. You can get one for free through most state programs. I will have to look up the information, it is one of my notebooks which may not be findable. You can get them every so many years. The doctor has to fill out paperwork. I just can't room the name of the program right now. I think I will be able to find it. If you don't hear from me, remind me again. I use in my bed and on a boom so I could move it which ever way and turned so I always have access to my telephone. Always, Dana
Re: [QUAD-L] Shivering
Could it be your muscles twitching after sitting in one position for a certain
amount of time? Maybe try to change our position more often. Dan T.
Merrill Burghardt [EMAIL PROTECTED] wrote: @font-face { font-family:
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Section1 }Thanks for the good responses regarding my night long
shivering after I have been in bed a half hour or more. The hours of shivering
are not cold related, but the ideas of an infection some place are interesting.
As long as I stay sitting the shivers do not begin. As long as I continue to
stay in bed supine and flat, the shivering will not start again unless I sit up
for several hours. As directed by several list members I saw a doctor. Urine
and blood tests were negative.
I have taken to sleeping in my chair sitting, or to sleep in bed at 30
degrees or more to avoid the night long ordeal awake shivering uncontrollable
for fours. So, still not to rule out an infection yet, but I am still
requesting ideas or someone else who has done this.
The members contributing on this list have more savvy, experience, and
knowledge than most doctors Ive worked with in my years as a c/5 quadriplegic.
Re: [QUAD-L] severe chills
I feel very cold off and on. I layer my clothing and use a hat like you do. I also use a high tight turtleneck. They seem to help me. I think it helps keep the heat in. Get warm... Dan T. LTeasley [EMAIL PROTECTED] wrote:Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle - Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.
Re: [QUAD-L] this is crazy
Have you taken your blood pressure when feeling hot? Sometimes when my
hyperreflexia acts up it makes it makes me feel hot. Dan T.
[EMAIL PROTECTED] wrote:Your hypothalmus gland is wack and in your case, it
is making you feel hot. It is not the average, but it is not uncommon. Do bring
it up with your doctor even if they can't do anything. maybe someone else has
an idea? I'm thinking an ice cold hand towel on the chest and around your neck.
john
-Original Message-
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Sun, 11 Feb 2007 4:54 PM
Subject: [QUAD-L] this is crazy
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BORDER-BOTTOM: #dadad6 1px solid; HEIGHT: 206px } Hi everyone this is
crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the
time so I sleep with a fan on my face. Explain that one??
Hec
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RE: [QUAD-L] this is crazy
Hang in there Joan, staying in bed will pay off. I have been in bed off and on, more recently in bed a lot and I got up for the first day in about 10 days. The doctors suggest getting up once a day for about an hour when I am trying to heal a pressure sore. But I find that my sore is in a crevis of of my skin and getting up and down caused setbacks. Stay strong... Dan T poajoan [EMAIL PROTECTED] wrote: It sure seems like most of us share a lot of the same problems. If it's any help, I have found that in the last three or four years I am better at regulating my body temperature. I don't get as cold nearly as much as I used to, but I am often cold when I go to bed and then wake up several hours later roasting. That's when my fan goes on, and then a while later it will have to go off. For those of us who are higher quads, just the lack of ability to move and warm those muscles is a primary reason for the slowness in our responding to temperatures. I absolutely love my wood stove, and the fact that it has a glass window makes it even more appealing. For these last five weeks of bed rest, the thing I miss the most is my wood stove -- of course realistically I miss being up. Joan C4 :-) -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 1:54 PM To: quad-list@eskimo.com Subject: [QUAD-L] this is crazy Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec
RE: [QUAD-L] Night Shivering
Greg, I agree, the majority of my dysreflexia comes from my bladder. Maybe
it's got some mucus or other crap obstructing its somewhat, or possibly kinked
were the top of the leg bag is bunched etc. The bowel is also a source of
hyperreflexia including flatulence. isn't quadriplegia wonderful? hang in
there, Dan T.
Greg [EMAIL PROTECTED] wrote: @page Section1 {size: 8.5in 11.0in;
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DIV.Section1 { page: Section1 }I think the night shivers are a
slight case of Autonomic Disraflexia(sp?)
When I get it, once I get moved a bit it goes away. Most of my AD is bladder
related, so maybe the SP cath is in a bad position and irritating my bladder.
One time I woke up so cold and shivering so bad, I was sure I had a bad UTI. As
soon as I got up I went to the ER. My arm was shivering so bad I was jerking as
I was driving my chair. My temp was at 94 degrees. The ER line was very long so
I went outside to sit in the sun. By the time they called me, I was warming up
(it was over 105 out side). AD slows things down and can lower your temp as it
raises you blood pressure. It is a dangerous thing.
Greg
..
Re: [QUAD-L] Night Shivering
If I have been on my back in bed and turn on either side, I noticed I get cold when I am on my sides as opposed to laying flat on my back. Dan T. [EMAIL PROTECTED] wrote: You have to be really careful, because a number of years ago my UTI went into the bloodstream and I went into a comma for 13 days and my kidneys were about to shut down as I do not have a bladder from bladder cancer. Don't ever wait, if you have symptoms, call the doctor or get to ER. I don't have a lot of symptoms with my UTI's, sometimes smell of the urine and a lot of extra spasms. I usually called my visiting nurse and get a culture. I often get night shivers and I am freezing.. Dana.
Re: [QUAD-L] RE Fwd: computer questions about Vista Dragon 8
I use Dragon preferred 8 and I had previously downloaded Vista. Dragon worked with Vista but it did not work as well as it should. Some commands were lost and some commands cause the computer to freeze. I removed it and the computer and Dragon worked better. Dan T. [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] Date: Sat, 10 Feb 2007 11:36:40 EST Subject: (no subject) To: quad-list@eskimo.com, [EMAIL PROTECTED] Can anyone help me with this question. My brother is setting up my new laptop and he says it will not take Dragon. Is this true. He says Visa has its own voice program. I can't imagine not having Dragon. Does any one know anything about the new VISTA program and Dragon. I hope someone can help me. I just have Dragon 8 professional and he thought he had to order Dragon 9482 work. Surely someone has come across this problem. He is taking my bedroom computer to work on and all I will have is the laptop in here. My living room computer is new but it did not have this to so Dragon eight is working fairly well with some problems. He thought it was also a 64 bit whatever that means? HELP! Dana
Re: [QUAD-L] mean able body ppl
It's a cruel and unfair world! [EMAIL PROTECTED] wrote: I told this girl at the bars that I couldn't feel my legs. so I asked her if I could feel hers and she took of.. Discrimination I say!!
Re: [QUAD-L] Night Shivering
It sounds as though you have an infection. If you are running a fever contact
your doctor, Go to a quick care clinic or go to the emergency room. Don't let
it get out of control. UTIs caused any shivering and an overheating. It's a
possibility. Hope you are feeling better... Dan T.
Silas [EMAIL PROTECTED] wrote: @page Section1 {size: 8.5in 11.0in;
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DIV.Section1 { page: Section1 } Hi Merrill,
Ive been through this several long nights, when I start shivering it takes
several hr's to get warm then ill start burning up. Always caused by some kind
of infection, uti or lungs. Man its pure hell, if the ABs could experience the
daily suffering us quads have to endure it would bring a new name to torture.
But hell im just glad to be here. Lol.
Silas
- Original Message -
From: Merrill Burghardt
To: quad-list@eskimo.com
Sent: Friday, February 09, 2007 2:33 PM
Subject: [QUAD-L] Night Shivering
My gut feeling is that this is urological related. As usually the case,
doctors act as if everything is new to them. This message group is so much
more problem solving.
I could be dead tired, temperature comfortable, and blood pressure is low.
With-in half an hour I am no longer tired, urine is caught in bag, I am
becoming cold and soon to be shivering, blood pressure raised, and I am wide
awake unable to sleep until morning.
This has so affected my life. Regardless how tired I am, in half an hour I
am ready for a long night of flipping TV channels. This must be experienced by
others at some time. Any help or related stories?
Re: [QUAD-L] 3 Dans on list
There is only one Dan on this list and I like to confuse people. LOL just kidding. In my gradeschool homeroom there were three additional Dans. It was very confusing for the teacher. Dan T. Danny Hearn [EMAIL PROTECTED] wrote: It's funny there are 3 different Dan's on this list, Dan V. --- Dan T. -- and me Dan H. ( who knows there may even be a few more Dan lurkers who just have not posted lol ! Either it must be a common name or us Dan's just have a knack to get paralyzed ;-) Are there more people on the list with multiple same names, either male or female ? just curious Dan
Re: [QUAD-L] Quads and Hospitals that almost killed me!
Darrick, I experienced a similar situation. In 2005 I was experiencing extreme spasticity and my blood pressure was 230/130 and I ended up in the ER where they gave me two doses of morphine and other meds of which I am not sure. It turns out I had a UTI and was admitted. Later that night the nurse could not get a blood pressure on me and couldn't initially wake me up. I don't remember what my BP was what it was but it low and I ended up in intensive care for several days and I had one nurse their from hell but that is another story. It's wise to learn your injury and advocate for yourself medically. Hypereflexia can cause stroke or death. Glad it wasn't our turn Derrick. Dan T. Derrick [EMAIL PROTECTED] wrote: I was almost killed at our local hospital after recent sugery. I went in for sugery to remove 2 hemmhroid. 1 bleeding internal and 1 outside I printed out 5 pages of info on AD and took it with me to the hospiital because I knew that dysreflexia would happen. I was to stay overnight because they were to put packing in my rectum to stop any bleeding. Well when I awoke from the sugery and ate something, my blood pressure(bp) spiked to 190 over 130. it usually is around 90 over 70. I showed the nurse the papers about AD and told her that I wanted to see a doctor. I told her to take the packing out and see if the blood pressure would drop. This was around 4pm. She called the doctor and he told her to put me on pills every 15 minutes and IV'ed another blood pressure medications every 1/2 hour. Plus they gave me morphine and other pain meds for my headache. Well, this went on untill 9 pm. My b.p. finally lowered. An emergency room doc showed up at 9:30pm. [5.5 hours later] He asked, Why did I think I needed a doctor. I told him about AD and sked him if he ever treated it before. He said yes and that is all i remember because i was so drugged up. So, around 10pm, i felt funny and i asked the nurse to check my bp. She did and it was 60 over 30. So, they put me on drugs to raise my bp. Around 2:30am, my bp was around normal. They never removed the packing until sometime after this. Then my bp stayed normal and I went home at 11am. There is alot more to the story that blows me away on how healthcare officials do not listen to their patients and they think they know it all. I had the systoms and causes in black and white. Wow! Please let me know of any good website links to info about AD. I am making it a mission that this does not happen to anyone else. Derrick Winegardner c/5 - Original Message - From: RONALD L PRACHT To: quad-list@eskimo.com Sent: Wednesday, February 07, 2007 3:36 PM Subject: [QUAD-L] Quads and Hospitals Hey yall, I was in the hospital getting my colonoscopy 2 years ago and the iv they put in me caused me to go into dysreflexia. I watched my blood pressure go up on the machine right b4 my eyes. I was scared as hell and neither the people prepping me for the colonoscopy or my mother believed anything was wrong. It was a very scary momment for me because they were putting me asleep. With the grace of god I made it through, but Im kinda bitter because noone ever believes anything I say when I go in the hospital. Ron c7 St Louis - No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.29/673 - Release Date: 2/6/2007 5:52 PM
Re: [QUAD-L] Quads and Hospitals
If you can, go to a teaching hospital where they have experience with SCI. Or were you at a teaching hospital? You really have to advocate for your self when getting medical treatment even if you are not disabled. Hope everyone is more informed and things go better next time. Dan [EMAIL PROTECTED] wrote:Thanks for that info Ron. But now you know that should be covered in the pre-op meeting with your doctor and doctors about your precondition and have it written into the doctor's report. The surgical team, must read the pre-op report before they begin to prep you. Ask LindaF, if I'm correct. W In a message dated 2/7/2007 2:37:49 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Hey yall, I was in the hospital getting my colonoscopy 2 years ago and the iv they put in me caused me to go into dysreflexia. I watched my blood pressure go up on the machine right b4 my eyes. I was scared as hell and neither the people prepping me for the colonoscopy or my mother believed anything was wrong. It was a very scary momment for me because they were putting me asleep. With the grace of god I made it through, but Im kinda bitter because noone ever believes anything I say when I go in the hospital. Ron c7 St Louis
Re: [QUAD-L] dr.G (Friday night lights)
John, what do you do when water fills up your lungs? Dan
[EMAIL PROTECTED] wrote:Joan, are you sure edema isn't a side effect of
some drug you are on. Swelling fingers is often a sign your kidneys aren't
functioning up to par. I have found that when my fingers are sweling, my lungs
are next to fill with water.
john
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED];
quad-list@eskimo.com
Sent: Wed, 7 Feb 2007 3:49 PM
Subject: RE: [QUAD-L] dr.G (Friday night lights)
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BORDER-BOTTOM: #dadad6 1px solid; HEIGHT: 206px }Hi Joan,
My fingers curled enough that I can grasp a pop-can and hold it in what looks
to be a natural grasp. The pinkie on my right hand curls downward, but not a
lot.
With Love,
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
poajoan [EMAIL PROTECTED] wrote:
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Section1 }My fingers have never curled up, but they sure do swell up.
The only time they resemble fingers is while I am still in bed,
but once I get up the edema swells them up -- it's not really that bad, but
down in rehab, they had me wearing gloves to try and keep the swelling down. It
didn't work, so I decided that fat fingers were better than fat fingers inside
gloves. LOL.
Have a great day Joan
-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, January 29, 2007 1:04 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] dr.G (Friday night lights)
-
Check out the new AOL. Most comprehensive set of free safety and security
tools, free access to millions of high-quality videos from across the web, free
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Re: [QUAD-L] How Do You Read Books?
IM enrolled in the government's talking book program but quit requesting them as many of the tapes would malfunction in the player. I requested a new players but they had the same results. I'm also enrolled in their pilot program using new technology to listen to the books as their catalog is not extensive as it is a pilot program. B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: This is a very good suggestion. I went through this process and ended up getting enrolled in the US government books on tape program. While the equipment is archaic, to say the least, it does provide free books that are completely unabridged. There is also quite a selection and here in Florida, they have a website where you can search for them and order them directly from your computer. Quadius [EMAIL PROTECTED] wrote: In a message dated 2/5/2007 6:57:21 P.M. Central Standard Time, [EMAIL PROTECTED] writes: No, this is the first book I have read in this series. Which one is the best ? I have limited access to audio books as my library does not offer every book in audio. Dan T. I would call the librarian and ask if they can get more audio books via the State Program. Rarely are libraries private. They usually correspond with other branches in your state. Make sure they know what you want. Make them work for YOU. Best Wishes - Expecting? Get great news right away with email Auto-Check. Try the Yahoo! Mail Beta.
Re: [QUAD-L] Do You Read Books?
Yes, I gave them feedback. [EMAIL PROTECTED] wrote:In a message dated 2/6/2007 10:33:13 A.M. Central Standard Time, [EMAIL PROTECTED] writes: IM enrolled in the government's talking book program but quit requesting them as many of the tapes would malfunction in the player. I requested a new players but they had the same results. I'm also enrolled in their pilot program using new technology to listen to the books as their catalog is not extensive as it is a pilot program. As part of both programs did your participation include your written opinions of the services rendered. Government programs always like written feedback on their programs. I'm sure that your input would be very relevant. W
Re: [QUAD-L] Vacations
Most of my better vacation memories involve short trips from one to three days.
Day trips to Chicago are enjoyable and usually involve less hassles than if I
stay overnight. I also have enjoyed 2-4 day trips to door county Wisconsin and
Michigan along its Lake Michigan shoreline. Traveling by plane has always been
a hassle as my chair has been abused as the personnel don't always know what
they're supposed to when it comes to disabled travelers and their wheelchairs.
As a quad, all the transferring is a pain especially if you have to change
planes or deplane because of mechanical problems.
I was actually planning on traveling to Italy this past year with several
family members who could assist with transferring, luggage, driving etc. but I
had to cancel because of a pressure sore. You have to enjoy the good times
where you are and take advantage of what is close by. Dan T.
Greg [EMAIL PROTECTED] wrote: st1\:* { BEHAVIOR: url(#default#ieooui)
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What are some of the better vacations you guys have had as quads?
All my ideal vacations are to areas not real wheelchair accessible (Old
places like Tuscany, Pyramids, Etc.,) Im thinking maybe places with beaches,
but again, not too accessible. If I go only to stay in nice hotels in warm
weather, I can just go to a local hotel here in AZ. Though Ive seen beach
wheelchairs, but not electric ones. I hate long airplane trips, or Hawaii and
the Virgin Islands would sound wonderful. So I think Mexico might be ok if I go
that direction. As long as I stay in the resort area, but if Im in Mexico, Id
love to get out into the real Mexico.
I think a cruise is kind of a good way to go. By the water, but not have to
worry about the sand. But I hear getting off at the destination ports is not
always easy in an electric chair. But then Id have to fly to get to a starting
off point.
Greg
Re: [QUAD-L] A Dr G we have seen before
What is the DHC? Dan T. KK [EMAIL PROTECTED] wrote: Feb 16, 2007 @12:00 AM also comes on once before after this time network :: DHCseries :: Dr. G: Medical Examinerepisode :: The Desperate Crossingrating :: pgdescription :: A quadriplegic woman is found dead in a local park 150 feet away from her motorized wheel chair. The young woman's distressed mother turns to Dr. G to prove what, or who, killed her daughter.
Re: [QUAD-L] How Do You Read Books?
No, this is the first book I have read in this series. Which one is the best ? I have limited access to audio books as my library does not offer every book in audio. Dan T. B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:I finished that book about a month ago and even though Nelson DeMille has become my favorite author, I found this book to be a little less interesting than the previous three in this particular series. However, that is possibly because the other three were so great that it was time for a letdown. I do agree, nonetheless, that the book is a good read, it just wasn't up to the normal greatness which I attribute to DeMille. Have you read the other novels in the series Dan? well, this is just my opinion. Probably doesn't mean much anyway. Quadius Dans Tessiatore [EMAIL PROTECTED] wrote: No, the mouthstick does not have to be manufactured as specific as my mouth. I use a mouth stick that purchased through some medical equipment supplier. I do enjoy reading print better but as I have been in bed healing a pressure sore the recorded books are better than nothing. I just finished Wildfire by Nelson DeMille it's a good read. Dan T. [EMAIL PROTECTED] wrote: Dan, Does a mouth stick have to be specially made to fit your mouth? No, I haven't read any good books lately. Actually I haven't read any books lately. As soon as I find out how to turn the page, I will be up and reading(hopefully). Naomi C-4 quad since July 2, 2005 Transverse Myelitis . - Everyone is raving about the all-new Yahoo! Mail beta.
[QUAD-L] USR
I have a tilt and recline mechanism on my wheelchair and have a USR option that moves my back rest. Does anyone know what USR stands for? And, what is its purpose? thanks, Dan T.
Re: [QUAD-L] Sore
Try to keep the area from being overly moist as your wound will not heal if to wet. Naturally, the more you stay off it the quicker it will heal. I had a sore in a fold of my skin on my behind and finally decided to stay in bed off of it. It does help. Possibly look into a cushion that would provide relief for that area. Have you or your caregiver consulted with a wound care specialist? What are you sitting on? my wound care specialists recommended using a new products manufactured by Smith and nephew. Using a product called Solosite on the open wound and covered with a gauze bandage. On the healed areas and at risk areas I use a product called Extra Protection Cream Hang in there it will heal. Dan T. [EMAIL PROTECTED] wrote: Question for the guys out there. (different anatomy than the female) I have an area 1 inch by 1/2 inch, not deep,good granulation, VNA checked and can find no tract, but it just won't heal. The problem is that it is under the scrotum where it meets the torso, so it is always warm and damp. The VNA has me on protein, vitamins, etc. We have used Progran, a thin covering that you put over the area, wet with saline and it is absorbed into the area. No change. I have now gone to a treatment that we used before, putting a heatlamp for 3 minutes along with neosporin and bagbalm in the AM, up in the chair 4-5 hours, then put a fan on it for 7 minutes, then neo. and bagbalm. No change. Any ideas? GA
Re: [QUAD-L] How Do You Read Books?
No, the mouthstick does not have to be manufactured as specific as my mouth. I use a mouth stick that purchased through some medical equipment supplier. I do enjoy reading print better but as I have been in bed healing a pressure sore the recorded books are better than nothing. I just finished Wildfire by Nelson DeMille it's a good read. Dan T. [EMAIL PROTECTED] wrote: Dan, Does a mouth stick have to be specially made to fit your mouth? No, I haven't read any good books lately. Actually I haven't read any books lately. As soon as I find out how to turn the page, I will be up and reading(hopefully). Naomi C-4 quad since July 2, 2005 Transverse Myelitis
RE: RE: [QUAD-L] Sore
I have a friend who had been trying to heal a sore on the bottom of her heel unsuccessfully. She finally went to a wound care specialist and they put a cast on her foot that would allow her to put weight on that foot but not on the sore. It has been healing since the casting. The cast is changed two to three times a week to prevent additional sores. Hope you heal soon... Dan T. Les [EMAIL PROTECTED] wrote: First go to the doctor or wound clinic and don't want it to good bad. I have a sore on my heel and since I have been going to the wonder clinic it has finally got better. So this is the few things I can tell you, get all pressure off the heel, don't let anything push against your heel, because that will make it worse. Each sore has its own life force so chat with a doctor for the next step. Lester C4-5 Quad 18 Post -Original Message- From: Paul Jacobson [mailto:[EMAIL PROTECTED] Sent: Sunday, February 04, 2007 2:48 PM To: William Willis; quad-list@eskimo.com Subject: Re: RE: [QUAD-L] Sore I too.have a soremy first.on my heel(under my foot.its actually a large blister that is dark inside). How do I treat it? Thanks! Paul c5/6 - Original Message - From: William Willis To: Sent: Sunday, February 04, 2007 11:37 AM Subject: FW: RE: [QUAD-L] Sore I have a large sore on my ass that I have been trying to heal for over 3 years. I has no depth, just open flesh about 3x4 in. I've tried every miracle cure known to man and a few unknown. It won't heal. The problem - I have a full-time job and have to sit 10-12 hrs a day. It depresses the hell out of me and I don't know what to do about it. From: Steve Oldaker To: , Subject: RE: [QUAD-L] Sore Date: Sun, 4 Feb 2007 12:17:22 -0500 GA... Is there any way you can stay out of the chair long enough for the sore to heal completely? It would seem that spending even a couple of hours let alone 4-5 hours in the chair daily would undo any healing that is accomplished when you are not in your chair. I have had periodic skin trouble for nearly nineteen years of injury and I have never been able to heal a problem without staying out of the chair. I also keep a small fan blowing on my groin area any time I am in the bed, sore or otherwise, to prevent moisture from building up and creating problems. Steve - C4 _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, February 04, 2007 11:26 AM To: quad-list@eskimo.com Subject: [QUAD-L] Sore Question for the guys out there. (different anatomy than the female) I have an area 1 inch by 1/2 inch, not deep,good granulation, VNA checked and can find no tract, but it just won't heal. The problem is that it is under the scrotum where it meets the torso, so it is always warm and damp. The VNA has me on protein, vitamins, etc. We have used Progran, a thin covering that you put over the area, wet with saline and it is absorbed into the area. No change. I have now gone to a treatment that we used before, putting a heatlamp for 3 minutes along with neosporin and bagbalm in the AM, up in the chair 4-5 hours, then put a fan on it for 7 minutes, then neo. and bagbalm. No change. Any ideas? GA ..
Re: [QUAD-L] SuperBowl- Disabled Services
W , When you say 500 had signed up, are you referring to volunteers? also, when you say 50 had shown up to assist the disabled are they volunteers or employees? Thanks... Dan T. GO BEARS ! [EMAIL PROTECTED] wrote: Barnett Services in Houston, TX, is the company that contracts with the NFL to provide staffing for NFL Disabilities. 500 signed up and as of Wednesday this week 50 had shown up to assist the disabled to various events during the week leading up to the Superbowl. On Sunday, they are expected to show up a 9am and with be working, well into the next morning as part of their duties while... enjoying the game. So if you are most fortunate to attend the SuperBowl Game this weekend, looking for the crew and tell them I said HI Best Wishes W
Re: [QUAD-L] Home from Bladder Stone removal
Danny, glad to hear you are back home. I think the stones are a symptom of a
person with SCI. The size of your stone is remarkable and the fact that you
did not have symptoms earlier is amazing. Watch your calcium intake. Hang
tough as you have been. Best wishes... Dan T. Go Bears!
Danny Hearn [EMAIL PROTECTED] wrote: Hello all, I came home Tuesday
after having a golf ball sized bladder stone taken out, Now about 9 years post
it was my 1st stone.-- Thanks for all the well wishes and prayers. My Doc was
going to make an incission to get it out but decided to go with laser method.
The Doc said he had to try and flush out the pieces because my ( urethra's )
were obliverated --- he could not get a wire thru there, and that was how he
was gonna remove the pieces. Has anyone had this happen to them ?? { I have
had a supra-pubic catheter about 6 years now and not sure if that is a common
occurance with having a supra-pubic.} { Also to MARK or others who may have
had this same procedure done in recent past...did you keep having pain and
some bleeding afterward ? } My bleeding has pretty much stopped now except a
bit at times and mostly during the night., but i'm still having lots of pains
like from bladder or lower gut area.hope that
gets better, I have been taking a lot of vicadins. (( Dan H. c-6 ))
Re: [QUAD-L] Attendant Care
Lester, what is a sure hand lift? Dan Dan [EMAIL PROTECTED] wrote: First contact your ILC. They will do an assessment of your needs. They will ask you how long it takes to do your care. DON'T go by how long it takes your dad to do these. You have to add a factor of 4 or more because a newbie will take way longer to do things than your dad. If you're allowed to hire and train your own PCAs get advertise at the nearest college, university or trade school. I've been doing this for over twenty years and I've found students are by far much more honest and dependable than the people you might get from an ad in your local paper. Also, be very suspicious of people that want to help you out! I was told this by my assessment person years ago and it is so true. People that say they want to help you out are doing so to make them feel better about THEMSELVES. THEY are the ones that don't stay around very long. Once they feel better about themselves they'll drop you like a hot potato. They feel they've done their share. The person(s) that will usually stick is the one(s) who really needs the money. If at all possible, meet someplace other than your home. Mostly for safety reasons - you might not want some of the people you'll interview to know exactly where you live ;). If you like them and visa-versa, have another interview at your home. Hire more than one as you'll need people to cover for each other. Once you hire them it will take awhile for them to get things right but remember - praise, praise, praise. Even if they are doing things backwards and upside down at first. Find something to make them feel good about the job and themselves. Gee, you're doing great! You did that like a pro, etc. People love please and thank you. I've found you can't say it enough. And above all, have a sense of humor! Dan V At 05:26 PM 2/2/2007 -0500, Les said something that elicited my response: Hi Everybody, I have a question for the group. Background info: Currently my dad is doing all my care. Getting me dressed, transferred out of bed (surehands lift) and getting ready for work. Comes to my work place and feeds me lunch. Then after work helps with anything I need, then puts me to bed and all that stuff around 10pm. Well I know I can rely on my dad forever, he is getting older (around 70ish). So I need to start the process of getting attendant care. What advice would you guys recommend? Lester C4-5 Quad
Re: [QUAD-L] How Do You Read Books?
You might try a mouthstick to turn the pages on your book stand but that has pitfalls also. A company also makes an automatic page turner but I have not had experience with it. The library of congress has a program of books on tapes but it is antiquated as they are updating their technology and trying pilot programs. My local library has started offering books that you can download on the Web. Its catalog could be better but it gives me more options. Check with your library. I recently completed Shadow Divers my robertkurson and enjoyed it very much. It is a true story is about a German U-boat laying off the coast of New Jersey. Have you read anything good lately? Dan T. [EMAIL PROTECTED] wrote: I am having a dilemma. I was an avid book reader before I became a quadriplegic due to Transverse Myelitis. Now I am in a dilemma as to how do I manage to read a book. I have a book stand, but it is virtually impossible for me to turn the pages. I have looked on the Internet for page turners, but I haven't found any that are suitable for my need. This is really driving me crazy, especially since there are so many things I need to read. I would like to know how anyone else manage to read a book. For novels, I get books on tape, if they're available, but some things I need to read, do not come on a tape. I would appreciate any suggestions. Naomi
Re: [QUAD-L] min oil
Maybe the amount of liquid a person consumes when eating is a factor. Dan T. B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:Jim, I accidentally deleted the e-mail which said how much oatmeal you use. I'd appreciate if you could give it once again. I was told to start taking a Metamucil by my doctor quite some time ago in order to make sure that I kept regular and so the stool would maintain a certain consistency. I occasionally have problems with loose stool and then inexplicably go to constipation without any change in diet. I have found over the last two years that I have had to do my bowel program every other day, as I was getting too much discomfort (it actually felt like I needed to go all of the time). After consulting a dietitian, she told me based on my food diary that I was getting too much fiber and this was stimulating my bowels to move as if they were getting ready to void. Now I have to watch how often I eat my garden burgers/sausages/chicken substitute and how much other fiber I take in. If I can replace Metamucil with other fiber, that would be fine by me. It would be really great if I could eat my garden accessories and a ton of salad everyday without discomfort. I am just curious to hear what everyone on here thinks about this. Well, perhaps not everyone. :-) Quadius [EMAIL PROTECTED] wrote: Metamucil is designed to make you go, I do not have that problem. The bran forms everything up really nice so I do not wake up with a mess in my bed or have troubles during the day. Jim - Don't get soaked. Take a quick peak at the forecast with theYahoo! Search weather shortcut.
Re: [QUAD-L] UTI Prevention Van Insurence
Maybe the UTI was fostered by the yogurt. Sometimes food rich in calcium or minerals are deposited in the urine and slowdown draining of urine. The slowdown could in turn foster UTI. I have read that most UTIs are caused from a bug in our stool. I had always been extremely careful getting cleaned off after bowel care and accidents but then when I learned that most UTIs are caused by bug in stool I became extreme, somewhat over-the-top about cleanliness. It helped. Changing sheets and washing more frequently might help. Dan T. [EMAIL PROTECTED] wrote: Hi All, I have not had a UTI since August and I swear it's from taking cranberry pills and eating a yogurt EVERYDAY. When I got my new van in 2001 I had my conversion company give me an itemized list of their work and gave it to my State Farm agent so everything is insured. I pay $1,200 and I drive. I haven't had an accident since 1981 and I've never gotten a ticket. Bobbie
Re: [QUAD-L] I totaled my van, anyone know how this works with the modificati...
Sorry to hear you were in an accident. Are you okay? If you want to get a new chair and you think you can justify it as a medical necessity contact a PT or OT to talk about your needs and if there is a medical necessity. Best wishes... Dan T. [EMAIL PROTECTED] wrote:Who's insurance company is paying. yours or the other person. W In a message dated 1/31/2007 4:21:08 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I just sent in a bid for the lift, doors, hand controls, lowered floor- everything. Without this, they thought they were going to figure out the value on their own (through an independant company, apparently) and my representative started saying they were going to put the value of all the modified parts (originally about $30k or so) at $2,500. That can't be even close...right? It will cost over $1200 just for hand controls alone. My van itself was $14,000 in 2000 and is now valued about $8,5000. Does anyone know how insurance companies deal with putting a value to handicap modifications? I think my next vehicle will probably be a car untill I can make the payments on a newer minivan. I haven't done it yet, but I have met 2 quads around my level C6-7 or so who did it. They would get in the passenger side of the car, take the wheels off the chair, and pull everything in after them, sliding over to the drivers side. I'd have to get the quad release wheels. What I really need though is just a whole new damn chair and I might try to push for this, but that's really hard. My insurance paid for a new motorized chair a few years ago. I've had my manual since my accident in '92. Obviously, I have a lot on my mind ;-)
[QUAD-L] Voice activated [EMAIL PROTECTED]
hello, has anyone had any experience with a voice activated control featured by Brookstone? Dan T. InVoca Voice-Activated Remote Control http://www.brookstone.com/store/product.asp?pid=552158wid=100cid=61sid=9927search_type=subcategoryprodtemp=t2cm_ven=Emailcm_cat=012907cm_pla=01Acm_ite=sub_552158
RE: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems
Joan, I would appreciate it if you would ask Christian why you needed the cobra
adapter as I am interested in a totally hands-free device. Thanks for your
help, Dan T.
poajoan [EMAIL PROTECTED] wrote: v\:* { BEHAVIOR: url(#default#VML) }
o\:* { BEHAVIOR: url(#default#VML) } w\:* { BEHAVIOR: url(#default#VML)
} .shape { BEHAVIOR: url(#default#VML) } @font-face { font-family:
Tahoma; } @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in
1.25in; } v\:* { BEHAVIOR: url(#default#VML) } o\:* { BEHAVIOR:
url(#default#VML) } w\:* { BEHAVIOR: url(#default#VML) } .SHAPE {
BEHAVIOR: url(#default#VML) } P.MsoNormal { FONT-SIZE: 12pt; MARGIN: 0in
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{ COLOR: blue; TEXT-DECORATION: underline } SPAN.MsoHyperlink { COLOR:
blue; TEXT-DECORATION: underline } A:visited { COLOR: purple;
TEXT-DECORATION: underline } SPAN.MsoHyperlinkFollowed { COLOR:
purple; TEXT-DECORATION: underline } SPAN.EmailStyle17 { COLOR: navy;
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navy; FONT-FAMILY: Arial; mso-style-type: personal-reply } DIV.Section1 {
page: Section1 }Hi Dan
I wish I could answer that for you, but when my friend put the system
together, he found that he needed the cobra adapter in order to make it truly
hands-free. I don't know why, but it has worked very well for 15 months. If you
are interested in the same thing, I will get Christian, who is my electronic
guru, to e-mail me the reasons why, and exactly what he had to do. I am most
grateful for all of my voice-activated things, and I am extremely grateful for
Christian who comes and bails me out when my X10 system goes wrong, and
multiple other things. God has certainly put some very valuable helpers in my
walk, so that I can live life to the fullest. Joan
-
From: Dan Tessiatore [mailto:[EMAIL PROTECTED]
Sent: Monday, January 29, 2007 7:46 PM
To: poajoan; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems
Hi Joan, what is a COBRA adapter? And, why do you need one if your telephone
is hands-free? Thanks, Dan T.
poajoan [EMAIL PROTECTED] wrote:
Hi Dana.
You are right, he has added quite a few things to his website. It is
interresting that the one set up can be used for an environmental control
system, using an X--10 system I presume. I have purchased his carrier for when
we go on vacation. Using it, I can be carried out into the water for swimming.
My phone system uses the Sony Ericsson 600 I Walkman, a Plantronics Voyager
Bluetooth, and a COBRA adapter from RadioShack. When I purchased it 15 months
ago, the entire set up with a two-year contract with Cingular was $165. I have
had absolutely no problems with it, and as he mentioned in his letter to you
Dana, Cingular is very disability friendly. I have the free voice dial, but did
not know about the free information. I will look into that. I really like my
system better for just a phone, because it is very un-obtrusive. I have a
telephone mounted on a flexible boom, which attaches to my chair, and a wire
that connects the cobra adapter to my chin controller. The Bluetooth is then
wireless of course. As he mentions in his letter, there is a bug with the Sony
Ericsson 600i, which turns off the voice capabilities, if there is a message
waiting. I use that bug all the time. To prevent me from making outgoing calls,
when I am in a very noisy place, I just have somebody
dial my number and do not answer the phone --voila, no mistaken outgoing
calls. I just have somebody click the phone button when I am ready to make
outgoing calls.
I do not use a headrest on my chair so that flexing microphone would not
work for me. Just my opinion, but I do like my system better for just the phone.
I chose this Plantronics Bluetooth, because it is very unobtrusive, and it
stays in my ear, even when I am outside bumping around.
Have a great day. Joan
-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, January 29, 2007 1:01 AM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Fwd: Vocalize iTalk Voice Controlled Cell Phone Systems
Dan T. and Joan ,
I don't know how similar this is to the set up Joan has.
I don't know what service is uses for sure. I thought previously it was
Cingular but I have not read his sites yet as I just got, but I wanted to share
with you and whoever else is interested in hands-free phones
Re: [QUAD-L] RE: Environmental Control Unit
Peter, I currently use an x 10 system. It is a simple and basic system. The plug of the appliance you want to control is plugged into a module which is plugged into your regular outlet than you can control that appliance using a control box allowing you to shut it off and on. The control box can be difficult to operate as its buttons are somewhat small and relatively close together. I am also in the market to acquire additional ECU. Good luck... Dan T. Peter Damiano [EMAIL PROTECTED] wrote: Could somebody give me some information about an environmental control unit? I'm looking for something very basic, and not expensive. Preferably, one that is operated from the personal computer. I heard some time back that there was some software geared towards an ECU. I'm only looking for something to control some basic appliances. Does anyone have one similar to this description? All information would be greatly appreciated-Thank You Peter Damiano C/4-5 25 Years Post -- You Rock! Your E-Mail Should Too! Signup Now at Rock.com and get 250MB of Storage! http://webmail.rock.com/signup/
Re: [QUAD-L] RE: Environmental Control Unit
Peter, I currently use an x 10 system. It is a simple and basic system. The plug of the appliance you want to control is plugged into a module which is plugged into your regular outlet than you can control that appliance using a control box allowing you to shut it off and on. The control box can be difficult to operate as its buttons are somewhat small and relatively close together. I am also in the market to acquire additional ECU. Good luck... Dan T. Peter Damiano [EMAIL PROTECTED] wrote: Could somebody give me some information about an environmental control unit? I'm looking for something very basic, and not expensive. Preferably, one that is operated from the personal computer. I heard some time back that there was some software geared towards an ECU. I'm only looking for something to control some basic appliances. Does anyone have one similar to this description? All information would be greatly appreciated-Thank You Peter Damiano C/4-5 25 Years Post -- You Rock! Your E-Mail Should Too! Signup Now at Rock.com and get 250MB of Storage! http://webmail.rock.com/signup/
Re: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems
Hi Joan, what is a COBRA adapter? And, why do you need one if your telephone
is hands-free? Thanks, Dan T.
poajoan [EMAIL PROTECTED] wrote: v\:* { BEHAVIOR: url(#default#VML) }
o\:* { BEHAVIOR: url(#default#VML) } w\:* { BEHAVIOR: url(#default#VML)
} .shape { BEHAVIOR: url(#default#VML) } @font-face { font-family:
Tahoma; } @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in
1.25in; } P.MsoNormal { FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY:
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TEXT-DECORATION: underline } A:visited { COLOR: purple; TEXT-DECORATION:
underline } SPAN.MsoHyperlinkFollowed { COLOR: purple; TEXT-DECORATION:
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mso-style-type: personal-reply } DIV.Section1 { page: Section1 }
Hi Dana.
You are right, he has added quite a few things to his website. It is
interresting that the one set up can be used for an environmental control
system, using an X--10 system I presume. I have purchased his carrier for when
we go on vacation. Using it, I can be carried out into the water for swimming.
My phone system uses the Sony Ericsson 600 I Walkman, a Plantronics Voyager
Bluetooth, and a COBRA adapter from RadioShack. When I purchased it 15 months
ago, the entire set up with a two-year contract with Cingular was $165. I have
had absolutely no problems with it, and as he mentioned in his letter to you
Dana, Cingular is very disability friendly. I have the free voice dial, but did
not know about the free information. I will look into that. I really like my
system better for just a phone, because it is very un-obtrusive. I have a
telephone mounted on a flexible boom, which attaches to my chair, and a wire
that connects the cobra adapter to my chin controller. The Bluetooth is then
wireless of course. As he mentions in his letter, there is a bug with the Sony
Ericsson 600i, which turns off the voice capabilities, if there is a message
waiting. I use that bug all the time. To prevent me from making outgoing calls,
when I am in a very noisy place, I just have somebody
dial my number and do not answer the phone --voila, no mistaken outgoing
calls. I just have somebody click the phone button when I am ready to make
outgoing calls.
I do not use a headrest on my chair so that flexing microphone would not work
for me. Just my opinion, but I do like my system better for just the phone.
I chose this Plantronics Bluetooth, because it is very unobtrusive, and it
stays in my ear, even when I am outside bumping around.
Have a great day. Joan
-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, January 29, 2007 1:01 AM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Fwd: Vocalize iTalk Voice Controlled Cell Phone Systems
Dan T. and Joan ,
I don't know how similar this is to the set up Joan has.
I don't know what service is uses for sure. I thought previously it was
Cingular but I have not read his sites yet as I just got, but I wanted to share
with you and whoever else is interested in hands-free phones.
It looks like he has some new things to offer since I last looked at his
site and wrote to him and I don't know the prices yet.
Dana
[QUAD-L] Good Luck Danny!
Danny, you're in many thoughts and prayers tomorrow. I hope things go well and you return home quickly. Tomorrow I will be at the rehab Institute of Chicago picking up a new cushion as I have been in bed several months healing a pressure sore. Think positive! Much success... Dan T.
Re: [QUAD-L] dr.G (Friday night lights)
Only my pinky finger curled up... Dan T. [EMAIL PROTECTED] wrote:Hello all my name is Larry, I watch the show every week. It's pretty good. It actually resembles my life/injury just a bit as I was injured in football practice in college in '97(while blitzing I collided with another player). I'm a C5 quad so it peaked my interest more becuase I wanted to see how well they get this whole quadlife right. Are there any other quads out there whose fingers didn't curl up, mine didn't. -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sun, 28 Jan 2007 5:34 PM Subject: Re: [QUAD-L] dr.G (Friday night lights) In a message dated 1/28/2007 12:44:16 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Dan Tessiatore [EMAIL PROTECTED] wrote: William, no I did not see the medical examiner but earlier this week I happened to turn on Friday Night Lights, never saw the show before. One of the characters is a para who had a girlfriend whose father intimated that dating him and furthering his relationship would be the equivalent of going through hell. I got such a warm and fuzzy feeling watching it. It seems as though the para character Agrees with the father and the next thing I know he's engaged to the girl. Anybody else see it... Dan T. Dan, Funny, I was going to ask the list if any one watched this show. We watch it every week. He did agree with the father that he would breakup with the girl but after he talked with a guy who also is in a chair that was his rehab room mate told him he should have told the father 'where to go' mocked the f/u finger which didn't straighten, as we all know :-). So after talking to his buddy he decided to ask her. The kid was a quarterback who broke his neck during a game. I think they've been doing a pretty close job portraying him as a quad from other shows I've watched. You wrote 'para' but he's supposed to be a quad. The reason I say this is his fingers are curled up (which is why I say they 're doing okay for portraying him as a quad). But ...anyway, yes, I 've watched it from the start out of boredom one night I like the show. Diane - Check Out the new free AIM(R) Mail -- 2 GB of storage and industry-leading spam and email virus protection.
Fwd: [QUAD-L] Pressure mapping/cell phone Bluetooth
Hi Joan, it sounds like you've got a lot of technology working for you. Can you tell me, do you use a Bluetooth device with any of your phones? Also, what is voice connect? Thanks, Dan T. Note: forwarded message attached.---BeginMessage--- My most recent, but I have some end of my documents from last year that are more complete definitions of how she uses the Sony phone. And all up for that other guy, who has hands-free phones to sell, but pricey although he will make payments for those of us on disability as he is also spinal cord injured, low quad possibly he has the interesting site, if you have the money and you want to spend it. he will call you and talk to you about your needs as he offered to do for me. I was not at that stage , because of my contract with the present phone I have until September. Dana if I can not find I know Mark posted it. I will look tonight as I'm going out with my best friend on errands and dinner and possibly movie who knows. If I get tired I just watch videos at home, when I get back. ---BeginMessage--- Hi Dana. Surprisingly, here in Reno, we only have two medical suppliers. For an area that has 300,000 people that seems to be somewhat low. The one company is very difficult to deal with, and in the past have taken my chair in on an appointment to be tested, and didn't even get around to looking at it for five working days! I will check with Wayne the other medical supplier, and see if I can try a Roho for a few days. Good idea, thank you very much. I love my Sony Ericsson 600 I. It has some drawbacks, but so does all voice-activated equipment. Over the 16 months I have had it, I have discovered some little tricks to make it work better. If I'm going to be in a noisy environment, I call a friend or family member to call me and then I don't answer. For some reason, if I have a missed call I cannot dial out. When I'm going to move out of the noisy environment, I just have somebody press the missed call and then press no, and I'm back in business. I have gotten rid of most of the mistakes in dialing out, when I didn't mean to, I moving many of my voice activated calls to voice connect at Cingular. Then I just tell it to dial voice connect and then make my calls through voice connect. I only have six or seven people on my voice activation cell phone, and if I miss dial any of those, well, they are friends and family and I can talk to them any time. Now if I can just learn how to effectively use DragonDictate, I'll be in seventh heaven! Joan [EMAIL PROTECTED] wrote: Hi Joan, I enjoyed reading your information and I'm so glad you got a good deal on your omega track. I use a roho and I don't have any trouble with not being level but I don't have the area that you do. It is they are reliable on my skin. The air has gone low and I have gotten a view pressure sores, but they were not large and mostly just red spots and I stayed in bed for a few days and they were gone. I keep wondering if there's something they may make that would attach to the cushion to monitor the air pressure as I know someone posted such a device. No one seems to remember this post except me. I may never find it. I often look in my full-length mirror to check the cushion. I understand your worry of the issue. The roho mapped out really good when I was getting a new chair the last time it was checked. How is your magic word cell phone working? Just my two cents. Dana I think most dealers might let you try a roho for a few days to see how it feels. ---End Message--- ---End Message---
Re: [QUAD-L] dr.G
William, no I did not see the medical examiner but earlier this week I happened to turn on Friday Night Lights, never saw the show before. One of the characters is a para who had a girlfriend whose father intimated that dating him and furthering his relationship would be the equivalent of going through hell. I got such a warm and fuzzy feeling watching it. It seems as though the para character Agrees with the father and the next thing I know he's engaged to the girl. Anybody else see it... Dan T. William Willis [EMAIL PROTECTED] wrote: Anybody watch Dr.G, Medical Examiner last night? It was about a para who had a died of decubiti on his butt/leg. The sore actually had maggots in it. He was 20 yrs. post gunshot wound. Since he died from that wound, the shooter was charged with murder - 20 yrs. after the fact! .
Re: [QUAD-L] min oil
No, you might try drinking some fruit juices that are actually made up of the real juices off the fruits and not some drink made with a great deal of additives and sweeteners. I would think the mineral oil would help also as my rehab Dr. many years ago recommended cleaning out my bowel with some type of oil to reduce my hyperreflexic symptoms associated with my bowel. I didn't do it then but I later did it with milk of magnesia and it helped. Dan T. William Willis [EMAIL PROTECTED] wrote: Anybody tried a daily dose of mineral oil to solve that old backup problem? Does it work? Does it cause dependency? Larry Willis
Re: [QUAD-L] My 50 year birthday
Danny, a big happy birthday to you! Celebrate the good times and do what you can do when you're able as I tell my parents and I repeat to myself we might not always be able to be go and do as we wish. So, the sky's the limit. Celebrate as never before! I'm glad you are part of the quad list and enjoy corresponding with you. Have a great birthday... Dan T. Danny Hearn [EMAIL PROTECTED] wrote:Hi all- Today i'm 50 years old..wow a half a century ! My family members are all calling today saying Happy Birthday , Old Man . LOL I tell them...well I may be old but this old dude don't have any gray hair on his head yet !P.S,---I do have a few on my chin whiskers if I let them grow out tho lol -- Keep me in prayers or thoughts as I go Monday morning to get a golf ball sized bladder stone removed, And thanks for the imput by all and web site Dave provided on that subject. Danny c-6 9 .5 years Post
[QUAD-L] Roho mobile pressure mapping
I inquired to Roho as to the cost of their mobile pressure mapping device listed on their Internet site and below is the response and contact information. Dan T. You've contacted us through our website about the X3 Mobile Pressure Mapping system. The Mobile system is not available at this time. We plan on having a release date soon. The price on this system starts at $10,500. The other X3 systems are available and meet most users expectations. What is your application? Thanks, Scott Scott Fiss Director of National Accounts/Product Manager 100 N. Florida Avenue Belleville, IL 62221 1-800-851-3449 ext. 2316 1-888-551-3449 fax [EMAIL PROTECTED] www.therohogroup.com
[QUAD-L] TracFone
Has anyone had good/bad experiences with TracFone? The connectivity, range, use of speakerphone, buttons and hidden charges? Any experiences would be appreciated. They seem like a pretty good deal. Dan T. http://www.tracfone.com/home_page.jsp
[QUAD-L] Sheering on Cushion
I am having difficulty sitting on my Quattro Roho as it seems I am sliding to the side creating pressure sores. The cushion is inflated as instructed and I have a hip guide. I think the problem largely stems from my pelvic obliquity as my hips rotate up to the right and down on my left side. Any suggestions on how to address this problem of uneven hips and sheering? Thanks, Dan T.
Re: [QUAD-L] Balloons
What is a Texas catheter? also, anyone with a condom type catheter or previously had one, how did it work and how does it work for you? I.e. leaking and coming off Dan T. B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: 11 years for me. I use pretty much the same techniques as Dan described here, but I decided on me the suprapubic more for practicality. Mainly I was not draining sufficiently when I had a Texas catheter and I consistently a problems with the aforementioned condom catheter leaking all over my pants. I also wanted to keep my little Q open for other options, but haven't had much action lately. :-) Quadius Dan [EMAIL PROTECTED] wrote: 2 years for me. I had a Foley for a year before that. I much prefer the SP - my Peter is much too good looking to have a tube stuck down his throat! My PCAs change the SP every 3 weeks and it's very easy. It's about as difficult as changing a belly button ring. The only cleaning I do is wipe around the opening once a day with an antibacterial wet one and put a dab of triple antibiotic cream on it. Dan V At 06:34 PM 1/22/2007 -0800, Dillon Ewa said something that elicited my response: Hello, I am curious and would like to know how long you have had your suprapubic? I may have to have one in the near future because of seven problems and want to know how difficult they are to maintain, keep clean and so on. I hope your problems will resolve themselves and that your catheter performs well. I now have an indwelling Foley and am just out of the hospital for a bladder infection, it was terrible. Take care, Dillon B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: I usually use around 8 cc, however, I think this is more experimental and depends on every individual's needs. Quadius Dan [EMAIL PROTECTED] wrote: I have had periods of bleeding through my Supra Pubic. I decided to reduce the inflation of the balloon from 10ccs to 5ccs. Since then - so far - no bleeding and it is more comfortable. Anyone else done this? Dan V Get your own web address. Have a HUGE year through Yahoo! Small Business. - TV dinner still cooling? Check out Tonight's Picks on Yahoo! TV.
[QUAD-L] Hoyer Ceiling Lift
I am using a Hoyer lift on wheels to get up into my chair and am having trouble getting back far enough in the chair. Is this problem eliminated with a ceiling mounted lift system? or is it still difficult to get far back into the chair with a ceiling lift because of the sling? Thanks, Dan T.
Re: [QUAD-L] Hoyer Ceiling Lift
Yes it does Bill_J [EMAIL PROTECTED] wrote: Dan, I use the Hoyer on wheels. Does your chair have tilt and recline? Bill age 56 C6 Incomplete since 7/20/68 Leesburg, FL Out of my mind. Back in five minutes. - Original Message - From: Dan Tessiatore To: quad-list@eskimo.com Sent: Monday, January 22, 2007 10:53 AM Subject: [QUAD-L] Hoyer Ceiling Lift I am using a Hoyer lift on wheels to get up into my chair and am having trouble getting back far enough in the chair. Is this problem eliminated with a ceiling mounted lift system? or is it still difficult to get far back into the chair with a ceiling lift because of the sling? Thanks, Dan T.
Re: [QUAD-L] Balloons
I have an indwelling catheter and have reduced the inflation of the balloon to 5 cc on my own initiative. When I mentioned it to my urologist he said that any one that cannot tolerate the 10 CC's shouldn't have an indwelling catheter. I have kept using the five CC's for several years and can't quite figure out his argument. I have had the indwelling catheter for 30 years and had various problems including significant bladder spasms which have been a source of hypereflexia and even caused hospitalizations. I have been taking a double dose anti-spasticity medication for the bladder under my doctors orders. He has said it is a matter of time until the medication is no longer effective and then I will need some type of surgery. I have been juggling medications for several years to avoid and prevent the surgery. How is the smaller balloon working for you? Best of luck... Dan T. B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: I usually use around 8 cc, however, I think this is more experimental and depends on every individual's needs. Quadius Dan [EMAIL PROTECTED] wrote: I have had periods of bleeding through my Supra Pubic. I decided to reduce the inflation of the balloon from 10ccs to 5ccs. Since then - so far - no bleeding and it is more comfortable. Anyone else done this? Dan V - Get your own web address. Have a HUGE year through Yahoo! Small Business.
[QUAD-L] Hoyer Lift/Sling
I have been using a Hoyer lift to get into my chair with a sling that has a cut out for the behind. I am having trouble getting back far enough in the chair. Any suggestions for getting back far enough into my chair with the sling and Hoyer lift? I have tried adjusting the chains/straps to the sling but it hasn't helped a great deal. Any input would be appreciated. Thanks, Dan T.
Re: [QUAD-L] Pain on lower left side
Ray, I have not experienced that kind of pain in that area but it possibly could be related to your UTI may be something with your kidney. Don't let a doctor's complacency prevent you from pursuing this. I don't want to scare you but it could be serious. Do you have a urologist who is knowledgeable and experienced with SCI patients? I hope your pain disappears. Keep in touch. Best regards Dan T. [EMAIL PROTECTED] wrote: Hey everyone, i've been experiencing a pain on my lower left side that i havn't felt in the past, just curious if anyone else has felt sharp pain there, i'm currently taking Cipro for uti and did blood and urine test yesterday, and had ultrasound my urologist ultrasound looked good still waiting on blood work and urine test, been on cipro for a week he just put me on another week, they don't act like I should be concerned but my side has never hurt like this before,any info would be much appreciated. Thank you Ray c-5 c-6 almost 6yrs post - Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] Roho w/ pressure mapping built in
Sounds great Bobby. It just makes too much sense for an able-bodied to think of it. That's my cynical side talking... Dan T. [EMAIL PROTECTED] wrote:In a message dated 1/19/2007 1:09:38 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Hey what if a Roho had a pressure mapping system built in. That would be cool, expensive too. Bobbie Very true Bobbie. But I don't think it would be that expensive as most of the cost is in the wires and computer with software. Who knows until you ask W
Re: [QUAD-L] My first Bladder Stone ;-(
Danny, sorry to hear about your problems. When I have had my stones my urologist was able to go into the bladder by way of urethra and break up the stones into smaller pieces to pass through the catheter. It's hard to believe that it is the size of a golf ball. It would probably be a good idea to talk to your doctor about prophylactic antibiotics and hypereflexia symptoms during and after the procedure. Get it taken care of ASAP you don't want bigger problems. What hospital where you at ? best of luck, keep us posted... Dan T. David K. Kelmer [EMAIL PROTECTED] wrote:Hi Danny, Sorry to hear about the stone. I don't think they need to make an incision to remove it unless it is too hard to break-down. Here is some good info on them. Bladder stones Introduction Bladder stones are small masses of minerals that form in your bladder, the balloon-shaped organ in your pelvis that stores urine. Bladder stones, also called bladder calculi, often form when concentrated urine sits in your bladder. As urine stagnates, minerals in the urine form various crystals that may combine to form stones. Bladder stones usually develop secondary to another condition, such as an enlarged prostate or a urinary tract infection. http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=1 Treatment Bladder stones usually need to be removed. If the stone is small, your doctor may recommend that you drink an increased amount of water each day to help the stone pass. If the stone is large or doesn't pass on its own, your doctor may need to remove the stone. Bladder stones are usually removed during a procedure called a cystolitholapaxy. During this procedure, your doctor inserts a small tube with a camera at the end (cystoscope) through your urethra and into your bladder to view the stone. Your doctor uses a laser, ultrasound or mechanical device to break the stone into small pieces and then flushes the pieces from your bladder. You'll likely have regional or general anesthesia prior to the procedure to make you comfortable. Complications from a cystolitholapaxy aren't common, but urinary tract infections, fever, a tear in your bladder and bleeding can occur. Your doctor may give you antibiotics before the procedure to reduce the risk of infections. About a month after the cystolitholapaxy, your doctor will likely check to make sure that no stone fragments remain in your bladder. Occasionally, bladder stones that are large or too hard to fragment are removed through open surgery. In these cases, your doctor makes an incision in your bladder and directly removes the stones. Any underlying condition causing the stones, such as an enlarged prostate, may be corrected at the same time the stones are removed. http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=8 I hope this helps. With Love, CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA Danny Hearn [EMAIL PROTECTED] wrote: Hi all, I just got home from the hospital after a day a half stay for Bleeding thru my supra pubic catheter . The bleeding has pretty much slowed down..it comes and goes. The ER did a CT scan and said I got a bladder stone the size of a golf ball. I'm supposed to set an appointment with my urologist to get it removed. My question is this..the doctor said they will probably make an inscission by surgury to get it out. . I thought most stones were removed by laser or a ( cystomy ) not sure of spelling. A few here If i recall correctly, said they even removed them thru their supra pubic hole site ? Anyone know more about how they are usually took out???Dan H. c-6 9 years post,1st time for a stone.
Re: [QUAD-L] Environmental Control Units (mattress)
Dana, is the item you had mentioned to check the Roho a mapping device? In the seating clinic at the rehabilitation Institute of Chicago they have a mapping pad. A person sits on the device and the computer gives you a readout of where the most and least pressure is. It's not foolproof. My generator cost 4500 it is a Generac and it automatically starts up with a power outage and turns off when the power comes back on. That is what I am using for backup for my mattress. My mattress will go flat in a matter of minutes without power. When this previously happened I used to get out of bed as soon as I could as I was laying on metal. Dan [EMAIL PROTECTED] wrote: Hi Dave Dan , I remember some time ago, somebody posted something that you could use with your Roho decade tell you when you were in your chair if your Roho was going to low. I have gotten several sores from that very same cause. I probably saved it on a computer that I don't have any more. Does anybody remember that post? What kind of generator are you using Dan and the price? How do you make it automatically begin when there is power outage. What kind of backup do you use if the mattress loses current or just fails to work? We would not know if it lost air just like the Roho. I still will use water bed, because I don't need turned that often and in my air bet I was told I would need to be turned every few hours. I don't know the name of it either. It was the only thing my insurance with cover, I will have to have someone look on the mattress, it is on the hospital bed I'm not using. Dana Hi Dan, This is exactly the kind of info I need. Thanks for the help. With Love, CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA Dan Tessiatore [EMAIL PROTECTED] wrote: Dave, I have an Ortho Elite air diffuse mattress. It is made by Sunrise Medical or a company affiliated with sunrise medical. It has worked wonderfully. It has started making a whistling sound every so often and someone suggested putting lambs will over it. The only maintenance that it required is to clean the air filter once in awhile. It's a simple process. Also, if your area has a history of power outages you might want to get some type of backup for power because the mattress will deflate in the matter of seconds without electricity. I recently purchased a Generac generator for backup that automatically starts when a power outage occurs. I am also 30 years Post C 4-5 as a result of waterskiing accident. This past six months I have been trying to heal pressure sores on my behind and it has been a challenge. I think I am near the latter stages of healing as I have been spending a great deal of time in bed. I was sitting on an Quattro from Roho and I didn't realize that it had an extremely small leak that was unnoticeable when sunk in water. At one point it just more or less burst open. The cushion was five years old and that is their expected life. If anyone is using a Roho and you are approaching five years or later with the cushion please take notice that there could be problems. David K. Kelmer [EMAIL PROTECTED] wrote: Hi Dan, I am looking for a good defusing mattress for the fist time as a Quad. It will be my first air mattress so I'm taking the time to buy the right one for me. With Love, CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA Dan Tessiatore [EMAIL PROTECTED] wrote: Thanks for the feedback. I am going to try the sheepskin. Dan B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: I had the same problem with mine, but I found if I covered my mattress with sheepskins it helped with the noise. I used to own an alternating mattress, but I find the mattresses which diffuse here to be more effective in maintaining my skin integrity. Quadius Dana
Re: [QUAD-L] Mother Dies After Consuming Too Much Water......
What exactly killed this woman? What does drinking too much water as it going to the bathroom do that would cause death? [EMAIL PROTECTED] wrote: Everyone's worst nightmare. A contest with natural risks. A challenge, banter and someone dies. Not just a someone, but rather a Wife, a Women, and a Mother. The radio station was warn of the risks, but assured listeners that all contestants had signed waivers.. (another red flag) Now a woman is dead. Another senseless tragedy. Most Quads would have seen this happening way long before it began. or would they? W
[QUAD-L] capuchin monkey
This evening NBC nightly news had a segment on monkeys assisting disabled individuals. Does anybody have one of these monkeys? Dan T.
Re: [QUAD-L] capuchin monkey
I noticed one of them had diapers on but I couldn't say the others did. Dan T. KK [EMAIL PROTECTED] wrote: No, I don't have one. I saw the tease but didn't see the report. Do they wear diapers?
Re: [QUAD-L] Mother Dies After Consuming Too Much Water......
Why were your lungs filling up with with water? Was it possibly pneumonia or heart failure? Hope you are doing better... Dan T. andrea murray [EMAIL PROTECTED] wrote:That is how I ended up in the hospital in Dec. My lungs was felling up with water. I felt like I was drowning. Wheelchair Warrior [EMAIL PROTECTED] wrote: In a message dated 1/18/2007 10:31:01 A.M. Central Standard Time, [EMAIL PROTECTED] writes: too much water depletes the body of minerals and other essential vitamins, etc which the body needs to function In this case her body drown in liquid saturation and could not release such liquids. W - It's here! Your new message! Get new email alerts with the free Yahoo! Toolbar.
Re: [QUAD-L] internal hemroid sugery
I didn't have the surgery but an able body buddy of mine did. He didn't say he lost any control but the pain was pretty intense. Your doctor would probably have to watch you for hypereflexia. Dan T. Derrick [EMAIL PROTECTED] wrote: Has anyone had hemroids sugery by cutting them out? I am told that it is often done sugery but i am worried about loosing bowel control. I've tried all kinds of remedy but it is not going away and bleeds occassionaly. Thanks, Derrick C-5
Re: [QUAD-L] Environmental Control Units (mattress)
Dave, I have an Ortho Elite air diffuse mattress. It is made by Sunrise Medical or a company affiliated with sunrise medical. It has worked wonderfully. It has started making a whistling sound every so often and someone suggested putting lambs will over it. The only maintenance that it required is to clean the air filter once in awhile. It's a simple process. Also, if your area has a history of power outages you might want to get some type of backup for power because the mattress will deflate in the matter of seconds without electricity. I recently purchased a Generac generator for backup that automatically starts when a power outage occurs. I am also 30 years Post C 4-5 as a result of waterskiing accident. This past six months I have been trying to heal pressure sores on my behind and it has been a challenge. I think I am near the latter stages of healing as I have been spending a great deal of time in bed. I was sitting on an Quattro from Roho and I didn't realize that it had an extremely small leak that was unnoticeable when sunk in water. At one point it just more or less burst open. The cushion was five years old and that is their expected life. If anyone is using a Roho and you are approaching five years or later with the cushion please take notice that there could be problems. David K. Kelmer [EMAIL PROTECTED] wrote:Hi Dan, I am looking for a good defusing mattress for the fist time as a Quad. It will be my first air mattress so I'm taking the time to buy the right one for me. With Love, CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA Dan Tessiatore [EMAIL PROTECTED] wrote: Thanks for the feedback. I am going to try the sheepskin. Dan B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: I had the same problem with mine, but I found if I covered my mattress with sheepskins it helped with the noise. I used to own an alternating mattress, but I find the mattresses which diffuse here to be more effective in maintaining my skin integrity. Quadius
Re: [QUAD-L] Supra Pubic problem question
Danny, that also has happened to me a couple times. Yes it possibly stones but then is usually accompanied by hypereflexia, elevated blood pressure, possible sweating etc. it also could be imitation from the catheter. Either way you're smart to get in touch with your urologist. Hopefully he is familiar with SCI and neurogenic bladder. Good luck... Dan Danny Hearn [EMAIL PROTECTED] wrote: HI All, earlier tonight while eating diner I began to have some pain in my lower gut down by where my catheter is, then a while later we noticed the line had blood instead of urine. Then after a bit the blood stopped and became normal as usual urine only coming thru again. I'm curious to know if it has happened to any of you before? I was wondering if a small stone could of passed thru my kidney perhaps but i'm not sure if that even is possible? Thanks for any Ideas..I'll try to contact my urologist tomorrow and see what he say's about it. Dan H.
[QUAD-L] LCD monitor mount
I am spending more time in bed due to a pressure sore and would like to mount a LCD monitor on a device that could be secured to my ceiling and also have the ability to be versatile as I would like to move it around, possibly on some type of track. Does anyone know of a product like this or possibly a vendor or a resource? Thanks Dan
Re: [QUAD-L] Environmental Control Units (mattress)
Thanks for the feedback. I am going to try the sheepskin. Dan
B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: I had the same problem
with mine, but I found if I covered my mattress with sheepskins it helped with
the noise. I used to own an alternating mattress, but I find the mattresses
which diffuse here to be more effective in maintaining my skin integrity.
Quadius
Dan Tessiatore [EMAIL PROTECTED] wrote: My mattress is an ortho elite, it
does not alternate but it diffuses air and lately I think it's defusing too
much air and sometime whistles. I am wondering if I should try to cover some
of the holes in the mattress but I'm not sure what I would use. When the power
goes off the mattress will deflate in a matter of seconds so I am very happy we
have a backup generator now. Dan Tessiatore
[EMAIL PROTECTED] wrote: Yes Dan, my air mattress is alternating preasure
and low air loss. Its not very good at the air loss part but it will not
completely deflate for a couple hours. It is one of those ebay specials a
sister got me for $500. It draws about 250 watts (Maybe a little less.) and
runs pretty good on a 12 volt battery for about 5 hours. It would probably run
longer if I wouldn't move the bed so often.
john
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 8:30 PM
Subject: Re: [QUAD-L] Environmental Control Units
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you use an air mattress that is constantly defusing air? Does the inverter
power the air mattress very long? What do something like that cost? Dan
Tessiatore
[EMAIL PROTECTED] wrote: I sure feel silly. When power goes off here I have
a flashlight I can shake and radio/cd player. When things get bad, I have a
1000 watt power inverter for the wheelchair batteries to operate my bed and
whatever else. (I know it doesn't add life to my batteries.) I try to be
positive and name the mice that are wondering What did I do this time?
john
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 7:57 PM
Subject: Re: [QUAD-L] Environmental Control Units
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Re: [QUAD-L] Environmental Control Units
The Generac generator costs about $4500 installed. It automatically starts its self and rooms for about 10 minutes to maintain the battery. Dan B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: Thanks Jim for the information. How much did this particular device costs. Without giving away too many details, I have a sizable grant which I have not used and it must be used on items to make my house more accessible. Since my house is already accessible the only things I can think of are additional door openers, a device like you suggest here, widening my office door, and perhaps putting tinting on my windows so that my skin disorder (my knuckles get very hard and dark when exposed to too much sun) is not further exacerbated. Quadius Dan Tessiatore [EMAIL PROTECTED] wrote: We just purchased a at Generac generator. It is wired in to our electric system and when the power cuts out the generator starts up. Although we initially had trouble with the system It turns out that a clamp was installed incorrectly by the manufacturer. Jim Lubin [EMAIL PROTECTED] wrote: I wonder if the XPower PowerSource 1800 would work for you? It doesn't have the surge protectors that most UPS systems have. I got one so we could operate my bed, suction machine and humidifier during a power outage. http://www.xantrex.com/web/id/218/p/1/pt/30/product.asp At 12:50 PM 1/13/2007, B. Kimberlin \(Quadius\) wrote: Quartet is much more stable and has a eight hour battery backup. The only difficulty I have seen is that it requires a UPS in order to back up the remote transmitter. This allows me to operate the ECU wirelessly from my wheelchair. I, however, I am unable to use a UPS near my ECU as it dampens out the X-10 signals to the rest of the house. Best of luck in your endeavors. Jim Lubin [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org . - Don't pick lemons. See all the new 2007 cars at Yahoo! Autos.
Re: [QUAD-L] Double H Camp Inspiration ventilator camp
Can you send the rest of the information about Inspiration again? Thanks Dan Jim Lubin [EMAIL PROTECTED] wrote: WHOOPS! I listed the camp phone number incorrectly! It is (518) 696-5676. Sorry! Kathleen Braico, MD
Re: [QUAD-L] Environmental Control Units
do you also sit on a Roho? How's that working for you? Dan [EMAIL PROTECTED] wrote: I have a roho mattress, works great. No need for power. Bobbie
Re: [QUAD-L] Lyrica for nerve pain, it's helping me
What kind of pain is it good for? Dan [EMAIL PROTECTED] wrote: Anybody else taking Lyrica for pain? It's helping me out a lot. Bobbie
Re: [QUAD-L] Environmental Control Units
We just purchased a at Generac generator. It is wired in to our electric system and when the power cuts out the generator starts up. Although we initially had trouble with the system It turns out that a clamp was installed incorrectly by the manufacturer. Jim Lubin [EMAIL PROTECTED] wrote: I wonder if the XPower PowerSource 1800 would work for you? It doesn't have the surge protectors that most UPS systems have. I got one so we could operate my bed, suction machine and humidifier during a power outage. http://www.xantrex.com/web/id/218/p/1/pt/30/product.asp At 12:50 PM 1/13/2007, B. Kimberlin \(Quadius\) wrote: Quartet is much more stable and has a eight hour battery backup. The only difficulty I have seen is that it requires a UPS in order to back up the remote transmitter. This allows me to operate the ECU wirelessly from my wheelchair. I, however, I am unable to use a UPS near my ECU as it dampens out the X-10 signals to the rest of the house. Best of luck in your endeavors. Jim Lubin [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org .
Re: [QUAD-L] Environmental Control Units
Do you use an air mattress that is constantly defusing air? Does the inverter
power the air mattress very long? What do something like that cost? Dan
Tessiatore
[EMAIL PROTECTED] wrote:I sure feel silly. When power goes off here I have
a flashlight I can shake and radio/cd player. When things get bad, I have a
1000 watt power inverter for the wheelchair batteries to operate my bed and
whatever else. (I know it doesn't add life to my batteries.) I try to be
positive and name the mice that are wondering What did I do this time?
john
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 7:57 PM
Subject: Re: [QUAD-L] Environmental Control Units
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Yes, it has the automatic lock off control. It is powered by natural gas. Dan
Tessiatore
[EMAIL PROTECTED] wrote: Make sure that you have an automatic
cut-off/lock-out switch, so that you are not sending volts back into the
electric company's power line. That is how repair people are injured while
trying to restore your normal power. Is your Generac, powered by natural gas
or fossil fuel?
W
In a message dated 1/13/2007 6:39:42 P.M. Central Standard Time, [EMAIL
PROTECTED] writes:
We just purchased a at Generac generator. It is wired in to our electric
system and when the power cuts out the generator starts up. Although we
initially had trouble with the system It turns out that a clamp was installed
incorrectly by the manufacturer.
-
Check out the new AOL. Most comprehensive set of free safety and security
tools, free access to millions of high-quality videos from across the web, free
AOL Mail and more.
Re: [QUAD-L] Environmental Control Units
Relax, you'll do fine. I'm 30 years post c 4-5 and still have a lot to learn
myself. Where did you do your rehab? Dan in Illinois
LTeasley [EMAIL PROTECTED] wrote: Hi, my name is Belle. I'm fairly new
here, I've only posted a couple of times before. I am a C4--5 as a result of a
motor vehicle accident. I am only 18 months out, so I realize I'm really new
at this. But boy I sure feel like I have a lot to learn. I know what an
environmental control unit is, but as far as the UPS, and other initials and
such that are being used I have no clue how to follow them. Can anyone help
me? By the way, I came to know of this site through Steve Oldaker; he is
friends/acquaintances with my father's cousin. I am very grateful for the
connection.
Thanks,
LJ Belle
[EMAIL PROTECTED] wrote: I sure feel silly. When power goes off here I have
a flashlight I can shake and radio/cd player. When things get bad, I have a
1000 watt power inverter for the wheelchair batteries to operate my bed and
whatever else. (I know it doesn't add life to my batteries.) I try to be
positive and name the mice that are wondering What did I do this time?
john
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 7:57 PM
Subject: Re: [QUAD-L] Environmental Control Units
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Yes, it has the automatic lock off control. It is powered by natural gas. Dan
Tessiatore
[EMAIL PROTECTED] wrote: Make sure that you have an automatic
cut-off/lock-out switch, so that you are not sending volts back into the
electric company's power line. That is how repair people are injured while
trying to restore your normal power. Is your Generac, powered by natural gas
or fossil fuel?
W
In a message dated 1/13/2007 6:39:42 P.M. Central Standard Time, [EMAIL
PROTECTED] writes:
We just purchased a at Generac generator. It is wired in to our electric
system and when the power cuts out the generator starts up. Although we
initially had trouble with the system It turns out that a clamp was installed
incorrectly by the manufacturer.
-
Check out the new AOL. Most comprehensive set of free safety and security
tools, free access to millions of high-quality videos from across the web, free
AOL Mail and more.
.
-
Don't pick lemons.
See all the new 2007 cars at Yahoo! Autos.
