RE: [QUAD-L] medical supplies

[Nichole Rohling]

What brand leg bag and what tubing?

 

From: Michael Galvin [mailto:whatsu...@gmail.com] 
Sent: Tuesday, May 28, 2024 9:33 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] medical supplies

 

 

I have a bunch of leg bags, tubing and catheters.  If anyone is interested and 
willing to pay for the shipping, I will send them to you.

 

PQ

C5/C6 / 54 years 

RE: [QUAD-L] Question about lockdown systems.

[Nichole Rohling]

I’ve had 3 Invacare chairs over over 25 years….I refuse to change to any other 
brand.

https://pro.invacare.com/Mobility/Powered-Wheelchairs/Rear-Wheel-Drive/c/Rear-Wheel-Drive

 

Nicki 

C5/6

 

From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] 
Sent: Tuesday, February 20, 2024 1:11 PM
To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL
Subject: Re: [QUAD-L] Question about lockdown systems.

 

I am going through process of getting new electric wheelchair and trying to get 
a model that has an ezlock for it.

I have invacare storm series but invacare went bankrupt, and dealer wants me to 
switch to Quantum R-TRAK rear wheel drive.Does anybody with ezlock have one for 
quantum chair?

 

I heard that ezlock is making one for R-TRAK  but I do not see it on their list 
of wheelchairs. 

Here is list from Ezlock.

https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf

 

Shelly, you can check out their list of wheelchairs on list at the link above.

 

Derrick W in cold ass PA.

 

On 2/19/24 5:53 PM, wheelch...@aol.com wrote:

Greetings,

I've never seen a manual wheelchair, using a single post on an EZ Lock System, 
for driving or riding.   I have seen double wheel securement for riding 
wheelchairs.  The design of an EZ lock system was designed for drivers and 
riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer.

Best Wishes.

 

 

On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL  
  wrote:

 

 

Hi Shelly, are you in the new England area?  

On 02/19/2024 2:40 PM EST Shelly Kerchner   
 wrote: 

  

  

hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well! 

 

Currently, I’m driving my motorized chair using the easy lock system. 

 

I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.

 

One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint) 

 

Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….

 

( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.

 

It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!

 

Thanks ahead of time !!

 

Shelly Kerchner

 

 

 

 Sent from Yahoo Mail for iPad 

 

RE: [QUAD-L] indwelling urinary catheter problems

[Nichole Rohling]

Great to see you post! I’ll have to check it out!

Nicki

 

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Sunday, November 5, 2023 2:00 PM
To: 'toran spencer'; quad-list@eskimo.com; Nichole Rohling
Subject: Re: [QUAD-L] indwelling urinary catheter problems

 

Not sure if this going to help or confuse anyone but here it goes. More than a 
decade ago, I met a Dr Tom at a conference in Atlanta.  I believe that he was 
from Florida, at the time. Back then he was representing a product called 
UROCYCLER.  It was not an indwelling cath, but an accessory for those with 
indwelling catheters.  The theory behind its design and function seemed like it 
might be good for some, but not everyone.  It is a ceramic device that 
connected between the indwelling catheter and collection bag.  It allows urine 
to collect in the bladder until pressure builds up and then the magnets 
separate, allowing the urine to leave the bladder... under turbulence, to empty 
the bladder.

Has anyone heard of this system?  You can Google, UROCYCLE and see for 
yourselves.

Comments Appreciated

Best Wishes

On Sunday, November 5, 2023 at 08:47:21 AM CST, Nichole Rohling 
 wrote: 

 

 

I do 30 ml twice in the evening when I get in bed

and 1 time in the morning before I get up

 

 

 

From: toran spencer [mailto:toran.spen...@outlook.com] 
Sent: Saturday, November 4, 2023 4:31 PM
To: Nichole Rohling; 'Danny Hearn'; quad-list@eskimo.com
Subject: Re: [QUAD-L] indwelling urinary catheter problems

 

 

How often should you flush your tube often? 

 

Get Outlook for iOS <https://aka.ms/o0ukef> 

  _  

From: Nichole Rohling 
Sent: Saturday, November 4, 2023 1:02:48 PM
To: 'Danny Hearn' ; quad-list@eskimo.com 

Subject: RE: [QUAD-L] indwelling urinary catheter problems 

 

I just use sterile water. Work fine for me.

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Saturday, November 4, 2023 2:07 PM
To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede
Cc: quad-list
Subject: Re: [QUAD-L] indwelling urinary catheter problems

 

I have a supra-pubic also..like some of you I have persistant bacteria that 
I live with also, when I flush we just use sterile water, I have read that some 
use saline or a mix of water and 0.25 acetic acid, I have not tried the 
colloidal silver as a flush eitherwhat type flush do most of you use if not 
doing the silver method???  Thanks Dan H>***  26 years post.

 

On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede 
 wrote: 

 

 

I feel for you, Shirley. I'm right there with you, Don. I really don't have an 
issue with incontinence but I've had my share of UTIs (indwelling catheter). 
I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" 
that's not an issue for the most part. I'm told it's just there. The condition 
has an actual name but I can't recall it at the moment.

 

I love the list of UTI-solution ideas, Don. Thanks for providing them. Never 
heard of the colloidal silver flush. I'll have to do some research and speak 
with my doctor about that one. Good luck, Shirley. Good luck, All.

Jeff

 

 

On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price 
 wrote: 

 

 

Shirley,

 

I hope you get everything figured out and working properly again. UTIs and 
incontinence are such a life-suck. They're just about the hardest part of life 
with SCI.

 

I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've 
developed a resistant bladder bug that is probably with me all the time. As 
long as i drink enough fluids I'm not symptomatic of infection, even though if 
i did a urinalysis i'm sure it would come back positive. I try not to use 
antibiotics except as a last resort. 

 

I know a bunch of quads and just about every one has some favorite method of 
treating a UTI without antibiotics. Things I've heard include: cranberry pills, 
d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and 
bladder flushes with various solutions. I'm not a doctor, so obviously be 
careful trying any of these. 

 

The thing that has worked best for me (I have a suprapubic catheter) is 
irrigating with a solution of colloidal silver. Silver is a natural 
antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually 
cloudy/smelly urine) I use a syringe to push the colloidal silver water up my 
catheter into my bladder, then clamp off the catheter for at least 20 minutes. 
i do this twice a day (once morning, once bedtime) for about 3 days at it makes 
a huge difference. I wouldn't consider it a miracle cure, but it seems to take 
out enough bad bacteria that my symptoms clear up for a while with no side 
effects or possibility of resistance

 

I will be the first to admit that my results are purely anecdotal, and i was 
highly skeptical of this silver stuff when another quad friend of mine told me 
about it. I gave it a try because i was running out of other option

RE: [QUAD-L] indwelling urinary catheter problems

[Nichole Rohling]

I do 30 ml twice in the evening when I get in bed

and 1 time in the morning before I get up

 

 

 

From: toran spencer [mailto:toran.spen...@outlook.com] 
Sent: Saturday, November 4, 2023 4:31 PM
To: Nichole Rohling; 'Danny Hearn'; quad-list@eskimo.com
Subject: Re: [QUAD-L] indwelling urinary catheter problems

 

 

How often should you flush your tube often? 

 

Get Outlook for iOS <https://aka.ms/o0ukef> 

  _  

From: Nichole Rohling 
Sent: Saturday, November 4, 2023 1:02:48 PM
To: 'Danny Hearn' ; quad-list@eskimo.com 

Subject: RE: [QUAD-L] indwelling urinary catheter problems 

 

I just use sterile water. Work fine for me.

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Saturday, November 4, 2023 2:07 PM
To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede
Cc: quad-list
Subject: Re: [QUAD-L] indwelling urinary catheter problems

 

I have a supra-pubic also..like some of you I have persistant bacteria that 
I live with also, when I flush we just use sterile water, I have read that some 
use saline or a mix of water and 0.25 acetic acid, I have not tried the 
colloidal silver as a flush eitherwhat type flush do most of you use if not 
doing the silver method???  Thanks Dan H>***  26 years post.

 

On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede 
 wrote: 

 

 

I feel for you, Shirley. I'm right there with you, Don. I really don't have an 
issue with incontinence but I've had my share of UTIs (indwelling catheter). 
I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" 
that's not an issue for the most part. I'm told it's just there. The condition 
has an actual name but I can't recall it at the moment.

 

I love the list of UTI-solution ideas, Don. Thanks for providing them. Never 
heard of the colloidal silver flush. I'll have to do some research and speak 
with my doctor about that one. Good luck, Shirley. Good luck, All.

Jeff

 

 

On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price 
 wrote: 

 

 

Shirley,

 

I hope you get everything figured out and working properly again. UTIs and 
incontinence are such a life-suck. They're just about the hardest part of life 
with SCI.

 

I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've 
developed a resistant bladder bug that is probably with me all the time. As 
long as i drink enough fluids I'm not symptomatic of infection, even though if 
i did a urinalysis i'm sure it would come back positive. I try not to use 
antibiotics except as a last resort. 

 

I know a bunch of quads and just about every one has some favorite method of 
treating a UTI without antibiotics. Things I've heard include: cranberry pills, 
d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and 
bladder flushes with various solutions. I'm not a doctor, so obviously be 
careful trying any of these. 

 

The thing that has worked best for me (I have a suprapubic catheter) is 
irrigating with a solution of colloidal silver. Silver is a natural 
antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually 
cloudy/smelly urine) I use a syringe to push the colloidal silver water up my 
catheter into my bladder, then clamp off the catheter for at least 20 minutes. 
i do this twice a day (once morning, once bedtime) for about 3 days at it makes 
a huge difference. I wouldn't consider it a miracle cure, but it seems to take 
out enough bad bacteria that my symptoms clear up for a while with no side 
effects or possibility of resistance

 

I will be the first to admit that my results are purely anecdotal, and i was 
highly skeptical of this silver stuff when another quad friend of mine told me 
about it. I gave it a try because i was running out of other options, and it 
ended up working for me. I don't have any studies to share--definitely do your 
own research.

 

You can purchase colloidal silver online. Half gallon of it for about $40. I 
use enough each flush to fill my bladder but not cause A.D. Everyone's bladder 
is different, so i recommend discussing with your urologist first. 

 

If anyone has further questions you can email me directly.

donpric...@yahoo.com

 

Best wishes,

Don.

 

 

 

On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL 
 wrote: 

 

 

Thanks everyone, My Dr does want a sample when I change the catheter again. I 
just did and this time things are ok, right now. don't want to try to change 
again as that's when it goes south. 

On 10/25/2023 1:30 PM EDT Eric Olson  wrote: 

  

  

just happened to run across this article.  Looks like you have a few of the 
signs of an infection 

  

https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection
 

 

On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL  wrote: 

Hi all, anyone have an indwelling Catheter for 40 or so years and had severe 
issues on 

RE: [QUAD-L] indwelling urinary catheter problems

[Nichole Rohling]

I just use sterile water. Work fine for me.

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Saturday, November 4, 2023 2:07 PM
To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede
Cc: quad-list
Subject: Re: [QUAD-L] indwelling urinary catheter problems

 

I have a supra-pubic also..like some of you I have persistant bacteria that 
I live with also, when I flush we just use sterile water, I have read that some 
use saline or a mix of water and 0.25 acetic acid, I have not tried the 
colloidal silver as a flush eitherwhat type flush do most of you use if not 
doing the silver method???  Thanks Dan H>***  26 years post.

 

On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede 
 wrote: 

 

 

I feel for you, Shirley. I'm right there with you, Don. I really don't have an 
issue with incontinence but I've had my share of UTIs (indwelling catheter). 
I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" 
that's not an issue for the most part. I'm told it's just there. The condition 
has an actual name but I can't recall it at the moment.

 

I love the list of UTI-solution ideas, Don. Thanks for providing them. Never 
heard of the colloidal silver flush. I'll have to do some research and speak 
with my doctor about that one. Good luck, Shirley. Good luck, All.

Jeff

 

 

On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price 
 wrote: 

 

 

Shirley,

 

I hope you get everything figured out and working properly again. UTIs and 
incontinence are such a life-suck. They're just about the hardest part of life 
with SCI.

 

I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've 
developed a resistant bladder bug that is probably with me all the time. As 
long as i drink enough fluids I'm not symptomatic of infection, even though if 
i did a urinalysis i'm sure it would come back positive. I try not to use 
antibiotics except as a last resort. 

 

I know a bunch of quads and just about every one has some favorite method of 
treating a UTI without antibiotics. Things I've heard include: cranberry pills, 
d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and 
bladder flushes with various solutions. I'm not a doctor, so obviously be 
careful trying any of these. 

 

The thing that has worked best for me (I have a suprapubic catheter) is 
irrigating with a solution of colloidal silver. Silver is a natural 
antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually 
cloudy/smelly urine) I use a syringe to push the colloidal silver water up my 
catheter into my bladder, then clamp off the catheter for at least 20 minutes. 
i do this twice a day (once morning, once bedtime) for about 3 days at it makes 
a huge difference. I wouldn't consider it a miracle cure, but it seems to take 
out enough bad bacteria that my symptoms clear up for a while with no side 
effects or possibility of resistance

 

I will be the first to admit that my results are purely anecdotal, and i was 
highly skeptical of this silver stuff when another quad friend of mine told me 
about it. I gave it a try because i was running out of other options, and it 
ended up working for me. I don't have any studies to share--definitely do your 
own research.

 

You can purchase colloidal silver online. Half gallon of it for about $40. I 
use enough each flush to fill my bladder but not cause A.D. Everyone's bladder 
is different, so i recommend discussing with your urologist first. 

 

If anyone has further questions you can email me directly.

donpric...@yahoo.com

 

Best wishes,

Don.

 

 

 

On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL 
 wrote: 

 

 

Thanks everyone, My Dr does want a sample when I change the catheter again. I 
just did and this time things are ok, right now. don't want to try to change 
again as that's when it goes south. 

On 10/25/2023 1:30 PM EDT Eric Olson  wrote: 

  

  

just happened to run across this article.  Looks like you have a few of the 
signs of an infection 

  

https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection
 

 

On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL  wrote: 

Hi all, anyone have an indwelling Catheter for 40 or so years and had severe 
issues on and off with spasms and incontinence resulting in changing even new 
catheters until one works? It's hard to explain but not good. I take the max on 
spasm pills. Can't get in to see Dr for a few weeks, wanted to do research 
before. Would a supra pubic help with this? Any help would be appreciated. 
Thanks, Shirley 

RE: [QUAD-L] indwelling urinary catheter problems

[Nichole Rohling]

Hi Shirey,

 

I’ve had an indwelling cath for 25 years. Minimal problems. Do you irrigate it?

I irrigate in the morning and at night. Is sediment stopping it up?

If so could be a bladder stone. Do you have a UTI? That can cause spasms.

 

Hope you get it figured out soon.

 

Nicki

 

 

From: SHIRLEY BELL [mailto:sbell...@cox.net] 
Sent: Wednesday, October 25, 2023 10:25 AM
To: quad-list
Subject: [QUAD-L] indwelling urinary catheter problems

 

Hi all, anyone have an indwelling Catheter for 40 or so years and had severe 
issues on and off with spasms and incontinence resulting in changing even new 
catheters until one works? It's hard to explain but not good. I take the max on 
spasm pills. Can't get in to see Dr for a few weeks, wanted to do research 
before. Would a supra pubic help with this? Any help would be appreciated. 
Thanks, Shirley 

RE: [QUAD-L] Greg Wickenburg

[Nichole Rohling]

Agree Dana! I have been blessed over the last 24 ½ years to only have had one 
serious hospital stay due to a blood clot in my leg and it broke off and I had 
multiple pulmonary embolisms in both lungs. 

I have great care! I am very fortunate!

 

Nicki

C5

 

From: Dana [mailto:wraydan...@gmail.com] 
Sent: Wednesday, February 8, 2023 3:06 PM
To: Noel
Cc: Don Price; Jim Lubin; Quad-list Post
Subject: Re: [QUAD-L] Greg Wickenburg

 

My condolences to Greg and his family. I had never spoken to him,when Dana was 
alive she had spoke with him and his family. She was quite concerned, because 
if I'm remembering correctly he had breathing problems. She had not been able 
to get a hold of him. Thank you for posting about his photography career. I 
think it would be good if we could list all the people on the group that we've 
lost and how did they die. Several of them I didn't know the cause. Several 
seem to be sores. I think it would be great if we would share more about each 
other and how we fight different complications of spinal cord injury. I know 
sepsis can be a serious complication. I hhave had sepsis too many times. I 
believe that was a complication of Christopher Reeves. It can take you down so 
fast if you don't catch it soon enough. It will be 2 years since I had in June, 
caused by UTI infections. I can't remember the young girl's name, but she was a 
paralyzed journalist that died from sepsis. Several did not have adequate care. 
I feel like if the country can send millions of dollars to other countries and 
we don't even know if that money needed is legitimate. Persons with 
disabilities, where there they be car accidents, diving and many of the 
diseases that don't have a cure or veterans should have more adequate care to 
prevent these deaths.Forgive me of my speaking out of turn. I'm Proud of his 
ability to learn how to use his photography. One of the quads had come to my 
hospital to try to speak to me about getting a ventilator, because that's what 
he had. He died because his ventilator fell off during the night because he 
didn't have any night support. He was a peer counselor for the whole person, an 
independent living center in Kansas City. He chose to live independently even 
though he didn't have enough care.Some people don't qualify for enough care 
because of their income Being a little too high for Medicaid Eligibility. To my 
knowledge Medicare doesn't cover in-home care. After I have gotten out of the 
hospital a physical therapist or nurse might be able to come for a week. I have 
to limit my time in the chair, because of her persistent pressure area. If we 
are injured at a young age we get osteoporosis, causing bones breaking that 
cannot be operated on.. It's good to remember those that have been lost, 
because on this group we care about each other. Dana

 

On Tue, Feb 7, 2023 at 8:01 AM Noel  wrote:

Greg's photos were pretty amazing, I showed them to a couple of photographers 
where I live, they were all very inspired.

https://www.gregwickenburg.com/

 

On Tue, Feb 7, 2023 at 6:35 AM Don Price  wrote:

I’m really sorry to hear this sad news. Greg was a really nice guy and I got to 
hang out with him a few times at his home. He always beat me in Wii tennis. I’m 
not sure if Greg ever shared his photography with the group, but he developed a 
pretty neat technique of overlapping two photos to create this beautiful 
double-exposure effect. Very creative.

 

Rest easy, Greg. You are missed.

 

Don Price

Tempe, AZ





On Feb 6, 2023, at 12:47 PM, Jim Lubin  wrote:



this posted on facebook

 

To all the friends, family and supporters of Greg Wickenburg,

Our hearts are heavy to have to tell you that Greg passed away last night, 
February 5th 2023. He was surrounded by family and died peacefully at home.

Greg was an amazing, inspiring, creative, generous, determined, funny 
"smartass", and as genuine as they come.

Even facing his difficult challenges in life, he never failed to stay positive. 
He will forever be in our hearts and now he is free to fly. 

We love you Greg. You will be missed by all.

RE: [QUAD-L] Greg Wickenburg

[Nichole Rohling]

Sad to hear of Greg’s passing. I joined in 1998 too. So many have left us.

 

Nichole

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 6, 2023 1:58 PM
To: Quad-list Post; Jim Lubin
Subject: Re: [QUAD-L] Greg Wickenburg

 

Amen, Jim.Sorry to hear about Greg, I joined the list way back in around 
1998 or so, and so many of our good ole friends on here have passed over the 
years. I know he had been having a lot of health issues the last year or two.

 

On Monday, February 6, 2023 at 01:47:12 PM CST, Jim Lubin  
wrote: 

 

 

this posted on facebook

 

To all the friends, family and supporters of Greg Wickenburg,

Our hearts are heavy to have to tell you that Greg passed away last night, 
February 5th 2023. He was surrounded by family and died peacefully at home.

Greg was an amazing, inspiring, creative, generous, determined, funny 
"smartass", and as genuine as they come.

Even facing his difficult challenges in life, he never failed to stay positive. 
He will forever be in our hearts and now he is free to fly. 

We love you Greg. You will be missed by all.

RE: [QUAD-L]

[Nichole Rohling]

Can you tell us more about his injury? What level is it? Did he go to a rehab 
facility?

 

Nicki 

 

From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] 
Sent: Thursday, December 29, 2022 5:44 PM
To: Eric Olson; Lily Nami
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L]

 

> , how can I make happy my c4 friend ?? He is 25 years old and can't move 
> any part of his body 

That is a very hard question to answer. He needs many people to help him and 
support him. 

 

 

 

 

On 12/29/22 6:02 PM, Eric Olson wrote:

Hi Lily, 

 

I am sorry this is a little la,but I use a supra public catheter for bladder 
care.  For bowel care I use a magic bullet suppository and digital stimulation. 
 To answer your current question, it would be helpful to know a little bit more 
about his situation.  How long has he been injured?  Does he have a wheelchair 
to get out of the house?  That kind of information could help us.  I think 
connecting with other paralyzed people whether here or online might help him 
not feel so alone would be a good place to start  


 


 

On Thu, Dec 29, 2022 at 3:43 PM Lily Nami  wrote:

Hello again my friends , thanks for your information about my last questions , 
now I need your help again ,, how can I make happy my c4 friend ?? He is 25 
years old and can't move any part of his body 

 

RE: [QUAD-L] Caregiver services

[Nichole Rohling]

I find my own by asking on Facebook…I’ve had great luck doing that.

 

Nichole

 

From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Wednesday, December 21, 2022 1:34 PM
To: Greg
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Caregiver services

 

What have you been doing for caregivers up to now? 

 

On Tue, Dec 20, 2022 at 6:49 PM Greg  wrote:

Anyone know of an emergency caregiver service that you can call and ask someone 
to start right away? The Phoenix Arizona area. Only for about 6 to 8 weeks. I 
could probably go with the caregiver doing a couple hours morning and a couple 
hours at night. Or a live-in. I just don't know if I will need it, but if I do, 
it would be right away. A lot of family health issues going on, all hitting at 
once.

My insurance covers for healthcare, but it's only when I need actual medical 
services not just custodial care.

Thanks so much, Greg

RE: [QUAD-L] 33 years

[Nichole Rohling]

Jim, 

 

Wow! Congrats on 33 years and good health! I’m almost 26 yrs and also healthy.

Best wishes for continued wellness.

Nicki

 

From: Jim Lubin [mailto:jlu...@makoa.org] 
Sent: Tuesday, May 17, 2022 7:20 PM
To: Quad-list Post
Subject: [QUAD-L] 33 years

 

Today marks 33 years since my transverse myelitis onset. I woke up with a pain 
in my shoulder. Two hours later I could not remain able to stand and then 
stopped breathing. I have been paralyzed from the neck down and dependent on a 
ventilator to breathe to keep me alive ever since. I am otherwise in great 
health and not in pain, so life is good.

RE: [QUAD-L] Nancy

[Nichole Rohling]

Dana, 

I copied from her facebook page.

 

“Yesterday at about 1:15pm, my mother passed peacefully with family by her 
side. It was an honor to be able to hold her hand at the end. There will be a 
service sometime in the spring to celebrate her wonderful life. Rest In Peace 
Mom, I love you so much.

As many of you know , my mother is my hero. The amount of adversity she has 
faced and over came makes this post all the harder. Due to complications from a 
bedsore her lungs and kidneys have failed her. With the guidance of her health 
care team we have decided to focus on her comfort instead of aggressive 
treatment … She is resting comfortably and will be with her parents in heaven 
soon. Please pray for her and a peaceful transition.”

 

 

From: Dana Wray [mailto:daano...@gmail.com] 
Sent: Tuesday, May 10, 2022 12:22 AM
To: Nichole Rohling
Cc: quad-list@eskimo.com; wheelch...@aol.com
Subject: Re: [QUAD-L] Nancy

 

I was so sorry to hear about Nancy. Did anybody know she was ill and the cause 
of death. I send my condolences to her and her family. My love and prayers for 
the family for the Lord to comfort them during this terrible time of loss.

Dana

 

On Thu, May 5, 2022 at 10:39 AM Nichole Rohling  wrote:

Yes! She was so helpful when I joined the list.

Hard to believe I joined 24 years ago.

She was a great person!!

 

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Tuesday, May 3, 2022 7:04 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] Nancy

 

Thank You Nicki.  I will always remember her as Naughty Nancy, from our 
earliest days on computer chats.  She was a great woman and human.

Best Wishes


In a message dated 5/3/2022 1:53:51 PM Central Standard Time, 
zoocr...@windstream.net writes: 

 

I just saw where Nancy Gillen passed away Jan 20

She was always so helpful. She’ll be missed.

 

Nicki

RE: [QUAD-L] Nancy

[Nichole Rohling]

Yes! She was so helpful when I joined the list.

Hard to believe I joined 24 years ago.

She was a great person!!

 

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Tuesday, May 3, 2022 7:04 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] Nancy

 

Thank You Nicki.  I will always remember her as Naughty Nancy, from our 
earliest days on computer chats.  She was a great woman and human.

Best Wishes


In a message dated 5/3/2022 1:53:51 PM Central Standard Time, 
zoocr...@windstream.net writes: 

 

I just saw where Nancy Gillen passed away Jan 20

She was always so helpful. She’ll be missed.

 

Nicki

[QUAD-L] Nancy

[Nichole Rohling]

I just saw where Nancy Gillen passed away Jan 20

She was always so helpful. She'll be missed.

 

Nicki

RE: [QUAD-L] Quadlist Zoom Meeting, 3/15

[Nichole Rohling]

Anytime between 1 pm and 4 pm CST

 

Nicki

 

From: Jim Lubin [mailto:jlu...@eskimo.com] 
Sent: Wednesday, March 16, 2022 8:44 PM
To: Edward Tessier
Cc: Don Price; Greg; quad-list@eskimo.com
Subject: Re: [QUAD-L] Quadlist Zoom Meeting, 3/15

 

Only Don and I. 

 

What is a good time for everyone? Earlier is better for me, 10am or 1pm Pacific

 

On Wed, Mar 16, 2022 at 12:36 PM Edward Tessier  wrote:

How did the zoom go last night?

 

Unfortunately I have a funeral to attend.

  _  

From: Don Price 
Sent: Tuesday, March 15, 2022 4:29 PM
To: Greg ; quad-list@eskimo.com 
Subject: RE: [QUAD-L] Quadlist Zoom Meeting, 3/15 

 

Still on…. Starting soon.

 

From: Greg  
Sent: Tuesday, March 15, 2022 4:09 PM
To: Don Price  ; quad-list@eskimo.com
Subject: Re: [QUAD-L] Quadlist Zoom Meeting, 3/15

 

I hope the meeting is still on. Did I miss it, or is it an hour later than 
advertised?

 

Greg

 

 

On Mon, Mar 7, 2022 at 4:57 PM Don Price  wrote:

Hey all!

 

We did a Quadlist Zoom meeting a few weeks ago, and even though only four of us 
attended it was still very enjoyable. I finally got to see and talk to my hero, 
Jim Lubin, the man who started the Quadlist.

 

Anyhow, I want to schedule another meeting, and rather than trying to get a 
consensus on date/time, i'm just going to schedule it for Tuesday, March  15th 
at 5pm AZ time. That's:

7pm ET

6pm CT

5pm MT

4pm PT

 

 

Topic: Quad-List Chat

Time: Mar 15, 2022 05:00 PM Arizona

 

Join Zoom Meeting

https://us02web.zoom.us/j/85753852801

 

One tap mobile

+16699006833,,85753852801# US (San Jose)

 

Join if you can!!!

 

Don.

 

RE: [QUAD-L] Testing my email

[Nichole Rohling]

I see you J

 

Nicki

 

From: Edward Tessier [mailto:e...@artecopartners.com] 
Sent: Thursday, January 13, 2022 9:52 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Testing my email

 

I haven't posted in a long time that I want to make sure it still works with
my current email.   If anybody sees this, just give me a quick howdy.

 

 Thanks

[QUAD-L] Tap Water Enema

[Nichole Rohling]

Has anyone or does anyone use a Tap Water Enema?

I had one once in the hospital. 

My bowel program has been terrible and

basically my caregiver has to push and pull on 

my rear to even get poop to come out.

Curious if anyone has experience doing a 

tap water enema and could you share your thoughts.

 

Nicki

C5/6

RE: [QUAD-L] ARE QUADS IN CONSIDERD HIGH RISK FOR BOOSTER SHOT

[Nichole Rohling]

I believe you would but would advise asking your doctor when you should get it.

 

Nicki

 

From: DAVID LEWIS [mailto:curlyle...@verizon.net] 
Sent: Tuesday, September 21, 2021 11:45 AM
To: Quad-list Post
Subject: [QUAD-L] ARE QUADS IN CONSIDERD HIGH RISK FOR BOOSTER SHOT

 

Im 63 year old Quad has trouble coughing. Do i need a booster?  and When?

 

RE: [QUAD-L] wondering about people

[Nichole Rohling]

Thank you Don for replying.

I originally asked if any Quads had gotten Covid, etc.

 

Nicki

C5/6

 

From: Don Price [mailto:donpric...@yahoo.com] 
Sent: Tuesday, September 7, 2021 2:28 PM
To: Quad-list@eskimo.com
Subject: Re: [QUAD-L] wondering about people

 

Hello all!

 

I haven't been on the quadlist for a while, but i'm checking in today.

 

I'm so sorry to hear about Lori. She was a nice woman who went through a lot. 
My condolences to her family and friends. 

 

Somebody asked about quads and covid. I know three quads who caught it. All 
three got through it without being hospitalized, although one of them resided 
in a nursing home when he caught it. 

 

I've been vaccinated and even went in for a booster third shot recently. I got 
the Moderna vax, and as discussed I had slight fever and yuckiness for about 24 
hours after the second shot. No such reaction after the third shot.

 

I wish you all happiness and good health!

 

Don.

c5-6, Tempe, AZ

 

On Tuesday, September 7, 2021, 08:02:29 AM MST, Shirley Bell  
wrote: 

 

 

Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies died 
either. Miss them  both. Also wonder how Joan and Larry are?? I am good here in 
RI trying to find a way to drive again, hard on many levels. Shirley

RE: [QUAD-L] Lori Michaelson

[Nichole Rohling]

Thanks Dana for answering. Such a sad situation.

 

Nicki

C5/6

 

From: Dana Wray [mailto:daano...@gmail.com] 
Sent: Sunday, September 5, 2021 8:37 PM
To: Gail Holmes
Cc: Jeffrey Gaede; Michael Galvin; ; Eric Olson; Nichole 
Rohling; Julie
Subject: Re: [QUAD-L] Lori Michaelson

 

Lori and I emailed and talked on the phone. She had written me in June and I 
saw the email after I got out of the hospital and then I had to go back to the 
hospital for exploratory surgery. I wrote her but didn't hear back from her. I 
should've tried calling her, because in her letter she didn't know where she 
was going and she was trying to find a home for her beautiful dog. She had 
medical issues from the nurse that was improper and not sterile,sringmylia that 
cause pain, like Julie said being uprooted from her sisters home. I don't think 
they understood or liked her having caregivers coming in and out of the house. 
It's what a lot of us face when we don't have enough care. She receives Social 
Security from her husband and her own but it wasn't enough to pay caregivers, 
her apartment and living expenses. She wasn't able to get any help from the 
state. She loved her scrapbooking and her dog that she walked every day. She 
had a great caregiver and after she left she got a new one, but they were 
leaving. We were trying to find out everywhere we could post an ad. It is often 
so difficult to find specially if you have limited funds. This is what happens 
to a lot of quadriplegics and why they get sores and die. I wish they would do 
a study on this but with the current administration, I don't think they would 
do anything to help situations like this. I don't know what kind of care is 
available in the state of Arizona. I don't know if there's anybody else on the 
quad list that lives in Arizona She had a wonderful niece that would spend time 
with her, but she lived out-of-state, maybe Texas. I'd have to look up in my 
old letters about specifics. I loved her and enjoyed talking on the phone and 
emailing her. I will truly miss her. I lived in a nursing home for three years 
and it is a long story. All home facilities don't know how to take care of 
quadriplegics and don't have the staff. It's like a death sentence to go to a 
nursing home after living independently all your life and having a dog that you 
dearly loved. I pray that she died in her sleep and didn't have to suffer. I 
don't know that we will find out what the cause of death was. We have lost 
quite a few persons that I miss. it seems. I'm not familiar with you Julie. I'm 
on Facebook. I've always enjoyed the quad list and learning about other persons 
facing the same problems and learning from them. Dana, 47 years post, C4-5, 
tracheostomy, ileoconduit. Those of the hospital for 10 days for two kidney 
infections, sepsis and ammonia in June. Several weeks after that I had 
exploratory surgery to find the kidney stones. My urologist couldn't find 
kidney stones. . I have tubes hooked up to my kidneys that are turned off right 
now. My kidneys were not draining properly. Has anyone else ever had this 
problem. I'm assuming I will have to go back to the kidney doctor. My urologist 
could only use the camera in the ileoconduit and ureters not the kidneys. Three 
weeks ago I ran out of the suction catheters. The company they switched me to 
would not answer the phone. Thanks to Jim Lubin, he gave me the name of the 
company he uses, and I hope they will be shipping to me soon, before I run out 
of the ones I had to buy privately. I contacted for five different companies 
and none of them answered me. I don't have very many left.

We can write on Lori's Facebook page. Lori will be missed, she was such a good 
communicator about her life. Let's make a list of those we have lost on the 
quad list. We can remember them again.

 

On Sun, Sep 5, 2021 at 1:13 AM Gail Holmes  wrote:

If I recall correctly a few years ago Lori was uprooted from the northeast 
where she lived w her sister and brother-in- law after the unexpected death of 
her husband who was her caregiver. 

 

I believe she said her parents were deceased and she had no choice but to go it 
alone and decided on Phoenix area for the climate I think.

 

I know she had medical complications with her bladder that she said was from a 
nurse’s poor handling of the inflated bulb of her then foley catheter.  

 

This resulted in trauma to her urethra that caused problems and 
hospitalizations and ultimately she got a  Suprapubic catheter I believe.

 

Please someone correct me if I’m getting it wrong and fill in what details I’m 
missing.

 

The last I remember was she was in urgent need of a live in caregiver 
replacement. 

 

I’m so sorry to hear of her passing and also wonder what happened and what 
became of her beloved dog.

 

 

 

 

 

 

 

 

 

Sent from my iPhone





On Sep 4, 2021, at 5:28 PM, Jeffrey Gaede  wrote:



Wow! Thank you!

 

On Saturday, September 4, 2021, 03:00:52 PM

FW: [QUAD-L] Lori Michaelson

[Nichole Rohling]

Michael

 

Do you have any idea what happened to her?

 

Nicki

 

From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Saturday, September 4, 2021 1:23 PM
To: Nichole Rohling
Cc: Danny Hearn; Quad-list Post
Subject: Re: [QUAD-L] Lori Michaelson

 

Wow  I was just going to email her about her live in also.  Do you know what 
happened?

 

 

 

On Sat, Sep 4, 2021 at 12:53 PM Nichole Rohling  wrote:

I was just talking about her this week. I hate to hear this.

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Friday, September 3, 2021 8:04 PM
To: quad-list@eskimo.com; Michael Galvin
Subject: Re: [QUAD-L] Lori Michaelson

 

Wow, Sad to hear this about Lori..I have been wondering about her lately, I 
know she was concerned about needing a new care-giver and worried about her Dog 
if she had to go into a living type center.  Thanks for letting us know.  Dan 
H. ***

On Friday, September 3, 2021, 07:53:31 PM CDT, Michael Galvin 
 wrote: 

 

 

 

I have not seen it on the quad list, and I'm not sure if people already know, 
but Lori Michaelson passed away a few weeks ago.

 

She will be missed.

 

PQ

RE: [QUAD-L] Lori Michaelson

[Nichole Rohling]

I was just talking about her this week. I hate to hear this.

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Friday, September 3, 2021 8:04 PM
To: quad-list@eskimo.com; Michael Galvin
Subject: Re: [QUAD-L] Lori Michaelson

 

Wow, Sad to hear this about Lori..I have been wondering about her lately, I 
know she was concerned about needing a new care-giver and worried about her Dog 
if she had to go into a living type center.  Thanks for letting us know.  Dan 
H. ***

On Friday, September 3, 2021, 07:53:31 PM CDT, Michael Galvin 
 wrote: 

 

 

 

I have not seen it on the quad list, and I'm not sure if people already know, 
but Lori Michaelson passed away a few weeks ago.

 

She will be missed.

 

PQ

RE: [QUAD-L] Covid and Vaccine

[Nichole Rohling]

Thank you Greg for your response

 

Nicki

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Thursday, September 2, 2021 8:11 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Covid and Vaccine

 

i had the pfizer shots and had no side effects at all.  4 family members had
no side effects either.
going to get my update shot tommorow. 
greg

On 8/31/2021 2:03 PM, Nichole Rohling wrote:

Just curious if anyone has had Covid and how did you feel, symptoms, etc.

If you got vaccine which did you get? Did you have a reaction?

 

Nicki

C5/6

 

[QUAD-L] Covid and Vaccine

[Nichole Rohling]

Just curious if anyone has had Covid and how did you feel, symptoms, etc.

If you got vaccine which did you get? Did you have a reaction?

 

Nicki

C5/6

RE: [QUAD-L] iron

[Nichole Rohling]

Prayers for you Greg. So sorry you are having health problems.

 

Nicki

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Friday, August 27, 2021 1:25 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] iron

 

My heart, lung, blood, SCI, doc just can't find my issue. It feels like I ran a 
marathon and now a fat man is on my chest. If my EMG test shows a problem, I 
might need a diaphragm pace maker. But my iron is so low, the blood doc 
says it could be that. She said people with colostomy don't absorb iron or b12. 
no doc ever told me that. they took 8 vials of blood yesterday to do lots of 
specialty tests. next week i start an iv iron treatment, 1 a week for 5 weeks.

greg

RE: [QUAD-L] Remote for IMS Conversion

[Nichole Rohling]

I didn’t take it in as I live in Oklahoma. My friend’s husband is over the auto 
body classes at our local vo-tech.

The kids cleaned everything, etc and fixed it.

As far as my recent problem I call Pat the service manager at MITS. He has 
ordered a door motor, cables, and door contacts

For me. Every time I have a issue I Can’t figure out he suggested what to try 
and he is 

100% right every time.

 

http://www.mitscorp.com/

 

 

From: Shelly Kerchner [mailto:shelly.kerch...@yahoo.com] 
Sent: Friday, June 25, 2021 7:25 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] Remote for IMS Conversion

 

Vo tech, I will keep that in mind.  So where in PA did you take it?  I

 

thanks,

 

Shelly

 

On Friday, June 25, 2021, 08:00:30 PM EDT, Nichole Rohling 
 wrote: 

 

 

The dealer in OKC had me sit 4 years ago for 2.5 hours to tell me they couldn’t 
fix a door/ramp problem and if they could it would be about $10,000

I took it to a local vo-tech and they fixed it.

I called a dealer in PA, he knew exactly what it was and we fixed w/ zip ties.

 

Nichole

 

From: Don Smith [mailto:scamper2...@gmail.com] 
Sent: Friday, June 25, 2021 6:32 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] Remote for IMS Conversion

 

  Go to the dealer

 

On Sun, Jun 20, 2021, 10:39 AM Nichole Rohling  wrote:

My remote to open/close my door on my 2002 Dodge quit working.

I cleaned it, replaced battery (light lights up when I push both buttons)

But it’s not beeping or doing anything when I push the buttons.

Any suggestions? It worked fine until it didn’t, LOL

 

Nichole

RE: [QUAD-L] Remote for IMS Conversion

[Nichole Rohling]

The dealer in OKC had me sit 4 years ago for 2.5 hours to tell me they couldn’t 
fix a door/ramp problem and if they could it would be about $10,000

I took it to a local vo-tech and they fixed it.

I called a dealer in PA, he knew exactly what it was and we fixed w/ zip ties.

 

Nichole

 

From: Don Smith [mailto:scamper2...@gmail.com] 
Sent: Friday, June 25, 2021 6:32 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] Remote for IMS Conversion

 

  Go to the dealer

 

On Sun, Jun 20, 2021, 10:39 AM Nichole Rohling  wrote:

My remote to open/close my door on my 2002 Dodge quit working.

I cleaned it, replaced battery (light lights up when I push both buttons)

But it’s not beeping or doing anything when I push the buttons.

Any suggestions? It worked fine until it didn’t, LOL

 

Nichole

RE: [QUAD-L] Remote for IMS Conversion

[Nichole Rohling]

Michael, 

 

It wasn’t my remote after all. My battery was completely dead.

I don’t have a spare remote and would gladly pay shipping

if you no longer have a use for them. I wonder if they have to

be programmed/synced with my van or if they’re universal.

 

Nichole

 

From: Michael Galvin [mailto:whatsu...@gmail.com] 
Sent: Monday, June 21, 2021 1:31 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] Remote for IMS Conversion

 

Hi Nichole,

 

Not sure what's going on with your remote, but I just got rid of my 2001 Dodge 
and still have the remotes to it. I have no use for them and if you think it is 
your remotes, I will be glad to send them to you free of charge.

 

PQ 

 

On Sun, Jun 20, 2021 at 1:39 PM Nichole Rohling  wrote:

My remote to open/close my door on my 2002 Dodge quit working.

I cleaned it, replaced battery (light lights up when I push both buttons)

But it’s not beeping or doing anything when I push the buttons.

Any suggestions? It worked fine until it didn’t, LOL

 

Nichole

[QUAD-L] Remote for IMS Conversion

[Nichole Rohling]

My remote to open/close my door on my 2002 Dodge quit working.

I cleaned it, replaced battery (light lights up when I push both buttons)

But it's not beeping or doing anything when I push the buttons.

Any suggestions? It worked fine until it didn't, LOL

 

Nichole

RE: [QUAD-L] 53th "Quad-anniversary"

[Nichole Rohling]

Congrats Nancy! This year will be 23 for me.

 

Nicki

C5/6

 

From: Nancy [mailto:nlgil...@aol.com] 
Sent: Monday, June 7, 2021 5:23 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] 53th "Quad-anniversary"

 

Today is my 53th "Quad-anniversary". There were times that I thought I'd never 
make it to this day, but, I'm alive, and ready to try for a few more years! 
Life is good!

[QUAD-L] tattoos

[Nichole Rohling]

 

I got one on my right back shoulder area but I have feeling there. Had no 
problems.

Personally, I wouldn’t do one anywhere I can’t feel.

 

Nicki

 

From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Tuesday, April 27, 2021 4:26 PM
To: quad-list
Subject: [QUAD-L] tattoos

 

Any of you with a SCI ever get a tattoo?  Did it cause disreflexia?

 

RE: [QUAD-L] Voice Operated TV Google, Alexa, others?

[Nichole Rohling]

Hi Randy,

 

I don’t have any advice or input but just wanted to welcome you!

 

Nicki C5/6

 

From: Randy Anderson [mailto:randyanderson...@gmail.com] 
Sent: Tuesday, February 23, 2021 4:15 PM
To: quad-list
Subject: [QUAD-L] Voice Operated TV Google, Alexa, others?

 

Hello

I have a SCI 4/5, no movement from the neck down using a sip and puff power 
wheelchair.
The picture on our TV went out yesterday morning so I'm looking for another one.

I'm seeing that some TVs they come with an option of using your voice with 
Google or Alexa, and maybe others.
I do have Alexa now, mostly lights, a phone call now and then, etc.
Do any of you have a TV with these functions?
How well does it work for you, do you prefer Alexa or Google?
Is Alexa or Google more user-friendly for a hands-free operation?
Are there other options I should be aware of?

If anybody has a TV with the Alexa and Google function, which TV do you own?
Do or don't you like it?

Any suggestions would be appreciated.
Thank you, Randy

RE: [QUAD-L] Does everyone have solid tires on their rehab power chairs?

[Nichole Rohling]

Mie have always been solid.

 

Nicki

 

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Friday, February 5, 2021 1:29 PM
To: quad-list
Subject: [QUAD-L] Does everyone have solid tires on their rehab power chairs?

 

About a year ago I was told that they no longer provide pneumatic (air) tires 
for their Permobile power chairs.  I have a Permobile M 300 and the day before 
Thanksgiving I got a flat tire on one of my large tires. Until they could order 
new tires thankfully it held air (and if it lost any air I have an air pump) 
and then we put Slime on the tire until I could get new tires.

 

They were finally gotten and put on yesterday but riding on these solid tires 
is a NIGHTMARE. I live in an area where most everywhere has smooth walkways 
(without having to resort to sidewalks) and I went out today for one of my many 
walks and it hurt like hell. Right up my spine and then giving me a headache. 
Looks like now I can even enjoy a walk.

 

So, I was wondering if all of you have solid tires now?

 

Thanks!

 

-- 

“Petting, scratching, and cuddling a dog could be as soothing to the mind and 
heart as deep meditation and almost as good for the soul as prayer.” ― Dean 
Koontz

RE: [QUAD-L] Vaccines for Covid-19

[Nichole Rohling]

I live in a rural area, population of 2,500 for my city. We were hit hard in 
December and it was our places of worship that had breakouts. 6 deaths.

My risk is caregivers. I have stayed home. 

Cipro is my go to drug for UTI’s but maybe only twice a year.

 

Stay well

Nicki

 

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Wednesday, January 20, 2021 5:52 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Vaccines for Covid-19

 

All drugs have side effects, and long term issues can show up in even old 
drugs. I used Cipro for years and now they say not to use it if you can find 
other option.
>From what I understand, the Cov19 vaccines does not have the active virus, so 
>it can't give you Cov19. And other countries have been using it a bit longer 
>than us. I'd trust enough considering how bad things are. 2 family members 
>that live with me are scheduled to get the 1st shot next week. They work in 
>high risk areas. So I'll get it as soon as I can.

If I lived in a rural area, not hard hit, I might pass for awhile.

Greg

On 1/14/2021 4:01 PM, Danny Hearn wrote:

Hello Group.I was Wondering how everyone Feels about the Covid-19 Vaccines. 
Yes-No  Or going to wait a while and see ? I'm not sure I Trust Them Myself.  
Thanks !Hope Your All Doing Okay as we head into A New Year !Dan H***

 

RE: [QUAD-L] Vaccines for Covid-19

[Nichole Rohling]

Thanks for sharing your experience. I have a young girl who puts me in bed and 
her mom tested positive yesterday. She was here Tuesday night so I pray she and 
I don’t get it. 

My dr told me if I even think I have it call his cell phone and go nowhere else 
but him. 

 

Nobody knows the long term effects of the virus or vaccine. Just all so crazy.

 

Nicki

C5/6

 

From: Aaron Mann [mailto:aman...@gmail.com] 
Sent: Wednesday, January 20, 2021 6:47 PM
To: Nichole Rohling
Cc: quad-list
Subject: Re: [QUAD-L] Vaccines for Covid-19

 

Nichole,

 

Honestly thought I had a bad cold or the flu. This was in March, so the 'scare' 
had just begun. I was scared sh!tl3$$ for the whole week I was down. As a C4-5, 
I spent most nights doubled over my legs 'assist-coughing' myself. Avoiding the 
news to keep from panicking. My symptoms: Runny nose, cough, fever (101-102), 
wet cough, loss of taste. Didn't confirm it was Covid-19 until I had blood 
tested in October. It wasn't fun, but similar to having the flu. DO NOT take 
this as an example of what you may go through. I take a good number of vitamins 
and nutritionals daily, really watch my diet, and have always had a naturally 
strong immune system.

 

My concern is the lack of testing and gross neglect of accountability allowed 
in emergency medicine. I hope to God I'm wrong, but I fear the impact of this 
particular 'vaccine' down the road.


 

Aaron Mann

 

 

On Tue, Jan 19, 2021 at 1:36 PM Nichole Rohling  wrote:

Absolutely Aaron!

So many people have no idea that vaccine manufacturers cannot be held liable 
for any injury/death their vaccine may cause.  

The legislation was called NVICP and passed in 1986. This is different than 
PREP for the Covid-19 vaccines.

Sadly, no vaccines have been tested in a double blind placebo study. 

 

You state you have had Covid-19. What were your symptoms and how sick were you?

 

Nicki 

 

From: Aaron Mann [mailto:aman...@gmail.com] 
Sent: Tuesday, January 19, 2021 12:56 PM
To: Nichole Rohling
Cc: wheel...@centurylink.net; quad-list
Subject: Re: [QUAD-L] Vaccines for Covid-19

 


Educate yourself prior to taking ANY medications. Me, personally, do not trust 
'rushed' medicine. The history of these drugs is not good. This one in 
particular is having billions thrown at it in addition to stripping standard 
testing protocols. The manufacturers are being put in a category by the federal 
government where they cannot be sued for side effects down the road. 
https://www.cnbc.com/2020/12/16/covid-vaccine-side-effects-compensation-lawsuit.html
 I prefer the holistic, healthy living route. Had flu, had Covid 19, neither 
were fun, but only lasted several days. It's a 'risk' I choose to take. Always 
take YOUR health and pro-morbidities into account before deciding.


 


What COVID-19 vaccines have been approved and how do they work?


Currently, several COVID-19 vaccines are in clinical trials. The FDA will 
review the results of these trials before approving COVID-19 vaccines for use. 
But because there is an urgent need for COVID-19 vaccines and the FDA's vaccine 
approval process can take months to years, the FDA will first be giving 
emergency use authorization to COVID-19 vaccines based on less data than is 
normally required. The data must show that the vaccines are safe and effective 
before the FDA can give emergency use authorization.

https://www.mayoclinic.org/diseases-conditions/coronavirus/in-depth/coronavirus-vaccine/art-20484859

 

"Another subject, Ian Haydon,  
<https://www.sciencemag.org/news/2020/11/fever-aches-pfizer-moderna-jabs-aren-t-dangerous-may-be-intense-some>
 told Science magazine in its “Fever, aches from Pfizer, Moderna jabs aren’t 
dangerous but may be intense for some” report, that he experienced chills along 
with “headache, muscle ache, fatigue, nausea” so bad he went to urgent care. 
His adverse reactions dimmed about 24 hours after his shot, but not before he 
vomited and fainted."

https://www.washingtontimes.com/news/2020/nov/26/covid-19-vaccines-scary-side-effects-must-not-be-d/

 

 

 

Aaron Mann

 

 

On Sat, Jan 16, 2021 at 2:08 PM Nichole Rohling  wrote:

I am not forcing my caregivers to get it. I am a firm believer in health 
choice. I am waiting myself. 

We wear masks. They wash their hands as soon as they come in my house.

Hopefully we all stay healthy. I have stayed home, not worth the risk just to 
go shop, etc.

 

Nicki

 

 

From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] 
Sent: Friday, January 15, 2021 5:37 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Vaccines for Covid-19

 

i think some drug companies said that they do drugs for free. i don't know how 
much free doses cause USA already paid billions up front for vaccine.

 

there is more chance of all chemicals/pesticides that is our food to cause more 
sickness and premature deaths than vaccines.USDA allows a lot of 'stuff' in 
packaged food

 

just think if cell

RE: [QUAD-L] Vaccines for Covid-19

[Nichole Rohling]

Absolutely Aaron!

So many people have no idea that vaccine manufacturers cannot be held liable 
for any injury/death their vaccine may cause.  

The legislation was called NVICP and passed in 1986. This is different than 
PREP for the Covid-19 vaccines.

Sadly, no vaccines have been tested in a double blind placebo study. 

 

You state you have had Covid-19. What were your symptoms and how sick were you?

 

Nicki 

 

From: Aaron Mann [mailto:aman...@gmail.com] 
Sent: Tuesday, January 19, 2021 12:56 PM
To: Nichole Rohling
Cc: wheel...@centurylink.net; quad-list
Subject: Re: [QUAD-L] Vaccines for Covid-19

 


Educate yourself prior to taking ANY medications. Me, personally, do not trust 
'rushed' medicine. The history of these drugs is not good. This one in 
particular is having billions thrown at it in addition to stripping standard 
testing protocols. The manufacturers are being put in a category by the federal 
government where they cannot be sued for side effects down the road. 
https://www.cnbc.com/2020/12/16/covid-vaccine-side-effects-compensation-lawsuit.html
 I prefer the holistic, healthy living route. Had flu, had Covid 19, neither 
were fun, but only lasted several days. It's a 'risk' I choose to take. Always 
take YOUR health and pro-morbidities into account before deciding.


 


What COVID-19 vaccines have been approved and how do they work?


Currently, several COVID-19 vaccines are in clinical trials. The FDA will 
review the results of these trials before approving COVID-19 vaccines for use. 
But because there is an urgent need for COVID-19 vaccines and the FDA's vaccine 
approval process can take months to years, the FDA will first be giving 
emergency use authorization to COVID-19 vaccines based on less data than is 
normally required. The data must show that the vaccines are safe and effective 
before the FDA can give emergency use authorization.

https://www.mayoclinic.org/diseases-conditions/coronavirus/in-depth/coronavirus-vaccine/art-20484859

 

"Another subject, Ian Haydon,  
<https://www.sciencemag.org/news/2020/11/fever-aches-pfizer-moderna-jabs-aren-t-dangerous-may-be-intense-some>
 told Science magazine in its “Fever, aches from Pfizer, Moderna jabs aren’t 
dangerous but may be intense for some” report, that he experienced chills along 
with “headache, muscle ache, fatigue, nausea” so bad he went to urgent care. 
His adverse reactions dimmed about 24 hours after his shot, but not before he 
vomited and fainted."

https://www.washingtontimes.com/news/2020/nov/26/covid-19-vaccines-scary-side-effects-must-not-be-d/

 

 

 

Aaron Mann

 

 

On Sat, Jan 16, 2021 at 2:08 PM Nichole Rohling  wrote:

I am not forcing my caregivers to get it. I am a firm believer in health 
choice. I am waiting myself. 

We wear masks. They wash their hands as soon as they come in my house.

Hopefully we all stay healthy. I have stayed home, not worth the risk just to 
go shop, etc.

 

Nicki

 

 

From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] 
Sent: Friday, January 15, 2021 5:37 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Vaccines for Covid-19

 

i think some drug companies said that they do drugs for free. i don't know how 
much free doses cause USA already paid billions up front for vaccine.

 

there is more chance of all chemicals/pesticides that is our food to cause more 
sickness and premature deaths than vaccines.USDA allows a lot of 'stuff' in 
packaged food

 

just think if cell phones do cause cancer after 20-25 yeArs of use. 

 

i have a bad annoying germ phobia that developed several years ago[mainly 
started when they said cell phones have more germs than toilet] and i think 
vaccines will be safer than most products we eat and/or put on our skin.

i don't expect the vaccine be any different than the flu vaccine. people say 
they get sick, others say no problems. 

 

my caregiver said that she is not getting it. she will quit job. she been my 
morning caregiver for 7 years, 7 days week. 

what you think?

derrick w

 

 

On 1/15/21 2:08 PM, Eric Olson wrote:

How many people have died from Covid?  I believe we're approaching 400,000.  
How many have died from the vaccine? 0  It's that simple.  Lori, just because 
there is money to be made off the vaccines does not mean that was the only 
reason they were developed.  Will Moderna and Pfizer make billions from the 
vaccines?  You bet.  Will the vaccines save lives?  You bet.  

 

HIV used to be a death sentence.  Now people with HIV can take a drug combo 
that reduces the level of virus in their bodies to undetectable levels.  Did 
the drug companies make money off of people with HI?  Yes.  Were tens of 
thousands of lives saved?  Yes.  The two can go hand in hand.  Just because 
there is money, money, money to be made from something does not make it 
inherently evil.  

 

 

 

On Thu, Jan 14, 2021 at 6:52 PM Lissette Whitehead  wrote:

I pretty much trust them and do wanna get

RE: [QUAD-L] foley catheters

[Nichole Rohling]

I have used regular latex catheters for 20 years with no problems.

Nicki

-Original Message-
From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] 
Sent: Thursday, January 14, 2021 6:00 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] foley catheters

to those who use foleys.

I am going to use some foley until sore heals up due to condom catheter.

is the more expensive foleys made with silver worth buying? compared to 
silicone or latex? i have no allergy's.

thank you,

derrick w in pa c/5

RE: [QUAD-L] Vaccines for Covid-19

[Nichole Rohling]

I am not forcing my caregivers to get it. I am a firm believer in health 
choice. I am waiting myself. 

We wear masks. They wash their hands as soon as they come in my house.

Hopefully we all stay healthy. I have stayed home, not worth the risk just to 
go shop, etc.

 

Nicki

 

 

From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] 
Sent: Friday, January 15, 2021 5:37 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Vaccines for Covid-19

 

i think some drug companies said that they do drugs for free. i don't know how 
much free doses cause USA already paid billions up front for vaccine.

 

there is more chance of all chemicals/pesticides that is our food to cause more 
sickness and premature deaths than vaccines.USDA allows a lot of 'stuff' in 
packaged food

 

just think if cell phones do cause cancer after 20-25 yeArs of use. 

 

i have a bad annoying germ phobia that developed several years ago[mainly 
started when they said cell phones have more germs than toilet] and i think 
vaccines will be safer than most products we eat and/or put on our skin.

i don't expect the vaccine be any different than the flu vaccine. people say 
they get sick, others say no problems. 

 

my caregiver said that she is not getting it. she will quit job. she been my 
morning caregiver for 7 years, 7 days week. 

what you think?

derrick w

 

 

On 1/15/21 2:08 PM, Eric Olson wrote:

How many people have died from Covid?  I believe we're approaching 400,000.  
How many have died from the vaccine? 0  It's that simple.  Lori, just because 
there is money to be made off the vaccines does not mean that was the only 
reason they were developed.  Will Moderna and Pfizer make billions from the 
vaccines?  You bet.  Will the vaccines save lives?  You bet.  

 

HIV used to be a death sentence.  Now people with HIV can take a drug combo 
that reduces the level of virus in their bodies to undetectable levels.  Did 
the drug companies make money off of people with HI?  Yes.  Were tens of 
thousands of lives saved?  Yes.  The two can go hand in hand.  Just because 
there is money, money, money to be made from something does not make it 
inherently evil.  

 

 

 

On Thu, Jan 14, 2021 at 6:52 PM Lissette Whitehead  wrote:

I pretty much trust them and do wanna get it but I prefer to wait a bit. I am a 
bit scared of the side effects. I'm a lot more scared of getting COVID.

 

 

Lissette Whitehead 

www.lwgripgloves.com

https://www.facebook.com/RetroTeesPlus/

(858) 888-9263

  _  

From: Nichole Rohling 
Sent: Thursday, January 14, 2021 4:07:33 PM
To: 'Eric Olson' ; quad-list@eskimo.com 

Subject: RE: [QUAD-L] Vaccines for Covid-19 

 

Any side effects? I have friends who have had COVID and got vaccinated and they 
were super sick.

 

Nicki

 

From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Thursday, January 14, 2021 5:27 PM
To: Danny Hearn
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Vaccines for Covid-19

 

I was vaccinated on Tuesday 

 

On Thu, Jan 14, 2021 at 5:01 PM Danny Hearn  wrote:

Hello Group.I was Wondering how everyone Feels about the Covid-19 Vaccines. 
Yes-No  Or going to wait a while and see ? I'm not sure I Trust Them Myself.  
Thanks !Hope Your All Doing Okay as we head into A New Year !Dan H***

 

RE: [QUAD-L] Vaccines for Covid-19

[Nichole Rohling]

Any side effects? I have friends who have had COVID and got vaccinated and they 
were super sick.

 

Nicki

 

From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Thursday, January 14, 2021 5:27 PM
To: Danny Hearn
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Vaccines for Covid-19

 

I was vaccinated on Tuesday 

 

On Thu, Jan 14, 2021 at 5:01 PM Danny Hearn  wrote:

Hello Group.I was Wondering how everyone Feels about the Covid-19 Vaccines. 
Yes-No  Or going to wait a while and see ? I'm not sure I Trust Them Myself.  
Thanks !Hope Your All Doing Okay as we head into A New Year !Dan H***

RE: [QUAD-L] Vaccines for Covid-19

[Nichole Rohling]

I’m going to pass on it for now. It’s too new. I don’t want to be a guinea pig.

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Thursday, January 14, 2021 5:02 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Vaccines for Covid-19

 

Hello Group.I was Wondering how everyone Feels about the Covid-19 Vaccines. 
Yes-No  Or going to wait a while and see ? I'm not sure I Trust Them Myself.  
Thanks !Hope Your All Doing Okay as we head into A New Year !Dan H***

RE: [QUAD-L] sweating

[Nichole Rohling]

Hemorrhoids, any small skin sores, slits/tears near your bottom?

 

Nichole 

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Saturday, January 2, 2021 5:42 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] sweating

 

I have been sweating so bad the last few weeks. I have had lots of gas and it 
can cause sweating pain, but no idea why so much gas. My poo is soft and sticky 
and have a colostomy, but thats happened before but never this much sweating.
Checked for uti, but ok.  Its when sitting, laying, etc.
Anyone go through this?
Greg

RE: [QUAD-L] Sunshine

[Nichole Rohling]

I think we all love the sunshine! I did before my accident and still love 
summer. The warmer the better.

I had a large area of squamous cell carcinoma removed a few years ago on my 
shin and have had multiple places removed on my shins since.

I try to limit my time in direct sunlight but I am not too good at it.  

The only thing I like about winter is watching snow fall and it’s supposed to 
snow Sunday.

I have a desk heater for my desk in the winter and sleep with a heating pad (I 
know it’s a no no. LOL)

 

Hope you all have a Merry Christmas!

Nicki

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Thursday, December 10, 2020 6:45 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Sunshine

 

I am so addicted to sunshine, I find it hard to stay inside on sunny days. So 
much so, I end up not doing things I'm supposed to be doing. I just put things 
off and say I'll do it later, but end up to late.
When inside and I know it's sunny, thats all I think about, knowing I'm missing 
it.

Greg

[QUAD-L] Perirectal Abcess

[Nichole Rohling]

Has anyone ever had a perirectal abcess?

I had one but it started draining on its own and then we helped it along.

I saw dr and had a CT scan and he said he's referring me to a surgeon. 

We can't even tell where it was now.

 

Nicki

RE: [QUAD-L] Re: Just checking in.

[Nichole Rohling]

Doing well Nancy

We had 1 case in our community of about 2,500 people. 

I have 4 caregivers so I pray they stay well.

 

Nicki

 

From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Monday, April 27, 2020 1:28 PM
To: Shirley Bell
Cc: Jim Lubin; Quad-list@eskimo.com
Subject: Re: [QUAD-L] Re: Just checking in.

 

Not yet, but I fear the worst of it will come in the fall.  It's probably just 
my own paranoia, but I worry more about a "second wave"  It might not happen 
but I worry about sending my daughter back to school in September.  All my 
caregivers have school aged children too.  I hope they move cautiously.  It 
would be much easier for upper grades to do then grade school kids.   9th and 
10th grade has in person school on Monday and Tuesday and online school 
Wednesday - Friday.  Some kind of staggering as opposed to all kids all 
together all week long.  I realize this is probably not realistic for poorer 
school districts.  What about fall sports for the kids?  I hope a "second wave" 
never comes, but I have to have something to worry about lol.

 

On Mon, Apr 27, 2020 at 12:01 PM Shirley Bell  wrote:

I am good in RI. are any of you having trouble getting aids to come?? be well

 

From: Jim Lubin 

Sent: Monday, April 27, 2020 12:24 PM

To: Nancy 

Cc: Quad-list 

Subject: [QUAD-L] Re: Just checking in.

 

I'm doing good. Hope you are doing well

 

On Mon, Apr 27, 2020 at 7:13 AM Nancy  wrote:

Just want to know how you all are doing. Thinking of you all!

 

Nan

RE: [QUAD-L] Quads and virus battle

[Nichole Rohling]

I haven’t heard of any. We are up to 67 cases and 2 deaths.

 

Nicki

C5/6

 

From: Dana Wray [mailto:daanoo2...@yahoo.com] 
Sent: Sunday, March 22, 2020 12:16 AM
To: Nichole Rohling; Quad-list New
Subject: Re: [QUAD-L] Quads and virus battle

 

We have 55 in Kansas Missouri has a few more I don’t know the exact number. I 
am staying in. I’m sorry about your granddaughter being in the hospital And 
your son, not being able to come back because of the travelAnd your son, not 
being able to come back because of the travel bans. I pray they are able to get 
home soon. 

 

Dana Prairie Village Kansas C-4 5, tracheostomy, ileo-conduit. Survivor of 
bladder and colon Cancer. 45 years post.

 

 One of my caregivers has been out with the flu and her son and my other 
caregiver, Her daughter was exposed to the Coronavirus.  It’s difficult to find 
reliable caregivers, like Lori has written about. I try every way I can think 
of.I don’t like colleges, because they don’t always have a stable schedules and 
I need reliability. I tried to use college Students when I lived in Lawrence 
Kansas University of Kansas 30 years ago .They were more Short term, and we 
rely on long term, at least I do. 

 

 

 

Thank you for sharing Nichole. Have you heard of any Quadriplegics that have 
gotten the coronavirus.I have not.

 

Sent from my iPad





On Mar 21, 2020, at 3:14 PM, Nichole Rohling  wrote:



What state are you in and how many cases do you have?

I’m in OK and we have 53 w/ 300+ still waiting on test results.

I stay in during the winter months due to the flu so being at home isn’t a big 
deal for me. I am only in contact w/ 4 caregivers and 4 people in my family.

My son-in-law is in the Army and they were supposed to be moving back to OK 
from Guam (they have 15 cases) the first week of May. Due to military travel 
ban all moves are postponed until at least May 11. My granddaughter got out of 
the hospital Sunday after fighting pneumonia and they are expecting a boy the 
beginning of September. We were so excited for them to be home and then this 
dang virus ruined our plans L 

 

From: DAVID LEWIS [mailto:curlyle...@verizon.net] 
Sent: Saturday, March 21, 2020 2:53 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] Quads and virus battle

 

Very true,  i hope hospitals take that into mind. 

 

On Saturday, March 21, 2020, 03:24:10 PM EDT, Nichole Rohling 
 wrote: 

 

 

It won’t be good. With our limited lung function, I think it would be deadly.

 

Nicki

 

From: DAVID LEWIS [mailto:curlyle...@verizon.net] 
Sent: Saturday, March 21, 2020 1:35 PM
To: Quad-list
Subject: [QUAD-L] Quads and virus battle

 

How will quads do if the get it?

RE: [QUAD-L] Quads and virus battle

[Nichole Rohling]

What state are you in and how many cases do you have?

I’m in OK and we have 53 w/ 300+ still waiting on test results.

I stay in during the winter months due to the flu so being at home isn’t a big 
deal for me. I am only in contact w/ 4 caregivers and 4 people in my family.

My son-in-law is in the Army and they were supposed to be moving back to OK 
from Guam (they have 15 cases) the first week of May. Due to military travel 
ban all moves are postponed until at least May 11. My granddaughter got out of 
the hospital Sunday after fighting pneumonia and they are expecting a boy the 
beginning of September. We were so excited for them to be home and then this 
dang virus ruined our plans L 

 

From: DAVID LEWIS [mailto:curlyle...@verizon.net] 
Sent: Saturday, March 21, 2020 2:53 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] Quads and virus battle

 

Very true,  i hope hospitals take that into mind. 

 

On Saturday, March 21, 2020, 03:24:10 PM EDT, Nichole Rohling 
 wrote: 

 

 

It won’t be good. With our limited lung function, I think it would be deadly.

 

Nicki

 

From: DAVID LEWIS [mailto:curlyle...@verizon.net] 
Sent: Saturday, March 21, 2020 1:35 PM
To: Quad-list
Subject: [QUAD-L] Quads and virus battle

 

How will quads do if the get it?

RE: [QUAD-L] Quads and virus battle

[Nichole Rohling]

It won’t be good. With our limited lung function, I think it would be deadly.

 

Nicki

 

From: DAVID LEWIS [mailto:curlyle...@verizon.net] 
Sent: Saturday, March 21, 2020 1:35 PM
To: Quad-list
Subject: [QUAD-L] Quads and virus battle

 

How will quads do if the get it?

RE: [QUAD-L] Hello!

[Nichole Rohling]

Eric,

I am growing much more concerned,. My granddaughter is in the hospital in Guam 
(son-in-law is military) They say she has pneumonia but haven’t tested her for 
COVID-19. Guam has 3 reported cases. They are waiting to get blood cultures 
back. They were to move back to the states the beginning of May and now the 
military is restricted from travel until May 11 for now. They will have to self 
quarantine when they get back. They were supposed to stay with me for 30 days 
and now who knows when I’ll get to see them.

 

From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Sunday, March 15, 2020 12:40 PM
To: Nichole Rohling
Cc: Jeffrey Gaede; Quad-list Post
Subject: Re: [QUAD-L] Hello!

 

Yes I am worried.  I'm on a vent so I'm high risk.  My wife has MS. She uses a 
drug that suppresses her immune system making her high risk as well. If I 
didn't have to rely on others for care, I wouldn't worry.  Now I worry about a 
caregiver getting me sick AND caregivers getting sick and not being able to 
work.  Hands down the worst part of being disabled is having to be dependent on 
others for care.  

 

On Sat, Mar 14, 2020 at 1:40 PM Nichole Rohling  wrote:

Still here!

Not much discussion but who is afraid of getting COVID-19? I stay home mostly 
so I’m not super worried.

Nicki

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Friday, March 13, 2020 9:27 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Hello!

 

So who all is still here and what is everyone talking about?

Jeff

RE: [QUAD-L] Hello!

[Nichole Rohling]

Jeff, 

 

With our compromised lungs I am just curious who is afraid of getting it. Do 
you feel at risk or are you in a hot spot? Not worried at all?

I am more likely to get the flu but like I said, I stay home mostly so my 
exposure to flu is pretty low.

However, my daughter and family live in Guam (Military) and they are supposed 
to be moving back the 1st week of May.

Their travel will be military flights to Seattle then commercial to Oklahoma. 
They are staying with me 30 days. 

Now their move might be postponed. So many things cancelled in OK and we only 
have 3 cases I think.

 

Nicki

 

 

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Saturday, March 14, 2020 1:45 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] Hello!

 

Bring on the drugs! Oh, I think you're talking about that bug. Rhetorical 
question? Don't you mean who is afraid of taking risk that can make them much 
more likely to catch the virus? Just curious… Jeff

 

On Saturday, March 14, 2020, 11:40:42 AM PDT, Nichole Rohling 
 wrote: 

 

 

Still here!

Not much discussion but who is afraid of getting COVID-19? I stay home mostly 
so I’m not super worried.

Nicki

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Friday, March 13, 2020 9:27 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Hello!

 

So who all is still here and what is everyone talking about?

Jeff

RE: [QUAD-L] Hello!

[Nichole Rohling]

Still here!

Not much discussion but who is afraid of getting COVID-19? I stay home mostly 
so I’m not super worried.

Nicki

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Friday, March 13, 2020 9:27 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Hello!

 

So who all is still here and what is everyone talking about?

Jeff

RE: [QUAD-L] Hospital

[Nichole Rohling]

Greg, 

Ugh! Hate to hear you haven’t been well!

Prayers for you!

Nicki

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Friday, November 15, 2019 11:05 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Hospital

 

I've been in-out of the hospital again. 1st time 2 was for months.

Butt sore, Bone infection, (antibiotics caused), Kidney failure – Respiratory 
failure (dialysis and ventilator). Finely weaned off both.

Since then I've had 4 ER 1 day visits, a 12, 7, 5, 5, and a 3 day visit.

A number of other bad issues, but mostly my lung keeps getting fluid around it. 
(Pleural Effusion) Had to drain it a few times a week. Finely had surgery. 
Looks ok now.

I lost so much weight and strength, I couldn't take big enough breaths at night 
to get rid of all the C02. Id sleep in my chair all day, no one could wake me 
up. My CO2 levels were in the 80s, supposed to be in the 30s. Other times I 
would act normal for a few days, but then remember nothing.

So now I have to use a feeding tube at night and eat during the day. Plus I 
need to use a Bipap machine to make me breath deeper at night.


Greg

RE: [QUAD-L] Valium with Pain Medication

[Nichole Rohling]

They said they can’t prescribe a benzodiazepine and an opioid, it’s against the 
“rules” since last November. The Dr. said I had flown under the radar and when 
my pharmacy requested refills it was both at the same time and the nurse 
realized I was getting both. One of my caregivers is a pharmacy tech and she 
said they fill both for people all the time.

 

Nicki 

 

From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Monday, September 16, 2019 12:01 PM
To: Nichole Rohling
Cc: diannal...@aol.com; Quad-list Post
Subject: Re: [QUAD-L] Valium with Pain Medication

 

did they say why?

 

On Sat, Sep 14, 2019 at 4:29 PM Nichole Rohling  wrote:

My dr refused to refill both scripts for Tylenol 3 and valium so I am weaning 
off valium that I have taken for 21 years. Ridiculous.

 

From: diannal...@aol.com [mailto:diannal...@aol.com] 
Sent: Sunday, September 1, 2019 5:25 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] Valium with Pain Medication

 

Yes, I do. I take 10mg of Percocet a day (Roxycodone which is Percocet without 
Tylenol in them.) 2 Lyrica a day. I use my Valium when my body tightens and 
take one when the others give me no relief which is seldom. I always have extra 
valium. 

-Original Message-
From: Nichole Rohling 
To: quad-list 
Sent: Sun, Sep 1, 2019 4:22 pm
Subject: [QUAD-L] Valium with Pain Medication

My dr’s nurse called Tuesday because my pharmacy requested a refill for my 
Tylenol 3. 

She said I would need to pick between it and my Valium (I have taking 5mg twice 
daily for 21 years)……I was a bit confused.

I told her if I had to pick it would be the pain medicine because I take as 
needed when I get up and am sweating from dysreflexia. (mind you I had 19 of 60 
pills left that are prescribed twice daily as needed and it had been 62 days 
since I had it filled).

She also told me when I asked about weaning off the valium I could quit cold 
turkey. My pharmacist disagreed.

Anyone else take Valium and pain medicine at the same time.

I know she doesn’t know what she’s talking it.

 

Nicki

RE: [QUAD-L] Valium with Pain Medication

[Nichole Rohling]

My dr refused to refill both scripts for Tylenol 3 and valium so I am weaning 
off valium that I have taken for 21 years. Ridiculous.

 

From: diannal...@aol.com [mailto:diannal...@aol.com] 
Sent: Sunday, September 1, 2019 5:25 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] Valium with Pain Medication

 

Yes, I do. I take 10mg of Percocet a day (Roxycodone which is Percocet without 
Tylenol in them.) 2 Lyrica a day. I use my Valium when my body tightens and 
take one when the others give me no relief which is seldom. I always have extra 
valium. 



-Original Message-
From: Nichole Rohling 
To: quad-list 
Sent: Sun, Sep 1, 2019 4:22 pm
Subject: [QUAD-L] Valium with Pain Medication

My dr’s nurse called Tuesday because my pharmacy requested a refill for my 
Tylenol 3. 

She said I would need to pick between it and my Valium (I have taking 5mg twice 
daily for 21 years)……I was a bit confused.

I told her if I had to pick it would be the pain medicine because I take as 
needed when I get up and am sweating from dysreflexia. (mind you I had 19 of 60 
pills left that are prescribed twice daily as needed and it had been 62 days 
since I had it filled).

She also told me when I asked about weaning off the valium I could quit cold 
turkey. My pharmacist disagreed.

Anyone else take Valium and pain medicine at the same time.

I know she doesn’t know what she’s talking it.

 

Nicki

[QUAD-L] Valium with Pain Medication

[Nichole Rohling]

My dr's nurse called Tuesday because my pharmacy requested a refill for my
Tylenol 3. 

She said I would need to pick between it and my Valium (I have taking 5mg
twice daily for 21 years)..I was a bit confused.

I told her if I had to pick it would be the pain medicine because I take as
needed when I get up and am sweating from dysreflexia. (mind you I had 19 of
60 pills left that are prescribed twice daily as needed and it had been 62
days since I had it filled).

She also told me when I asked about weaning off the valium I could quit cold
turkey. My pharmacist disagreed.

Anyone else take Valium and pain medicine at the same time.

I know she doesn't know what she's talking it.

 

Nicki

RE: [QUAD-L] anniversary

[Nichole Rohling]

So sorry I didn’t respond sooner! I have 21 years in June. Congratulations on 
53 years and Happy Anniversary. What a feat to live 53 years post injury and I 
pray you are posting again next year for 54!

 

Nicki 

 

From: glenn henry [mailto:gah17...@gmail.com] 
Sent: Wednesday, July 10, 2019 3:30 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] anniversary

 

 

 I wasn't going to post, but I guess I will. At this time 53 years ago I was in 
surgery. I think I made it, at least on your now. The last year has been very 
rough, but we keep plugging on.

 

Why be able to post 54, we will see.

 

Glenn Henry/ Pennsylvania

RE: [QUAD-L] how is Greg?

[Nichole Rohling]

Thank you Jim! Continued prayers for him.

 

Nicki

 

From: Jim Lubin [mailto:jlu...@eskimo.com] 
Sent: Saturday, June 15, 2019 3:04 PM
To: Eric Olson
Cc: Shirley Bell; Quad-list@eskimo.com
Subject: Re: [QUAD-L] how is Greg?

 

I contacted Greg's mom. She told Greg the quadlist was asking how he is doing. 
She said Greg wanted me to pass this along.
Thanks for everyone's concern. In a nutshell...
His kidney biopsy reveals that they have completely shut down and no meds can 
reverse it. So he will probably need dialysis 3 times a week for life, but 
there is always hope that things will reverse. They continually need to drain 
fluid from around his lungs. Almost 2 liters on two different occasions and 
almost one on another. They recently inserted a semi permanent valve to make it 
easier and less invasive to drain fluid if needed. He  might need to come home 
with a trach. The lung dr seems to think so, but might only need to be hooked 
up to a respirator at night. He looks better today. We don't know how long he 
will be in hospital.

 

On Sat, Jun 15, 2019 at 9:58 AM Eric Olson  wrote:

I was also wondering how he's doing 

 

On Sat, Jun 15, 2019 at 10:40 AM Shirley Bell  wrote:

Does anyone know how Greg is doing??

RE: FW: [QUAD-L] BOWEL PROGRAM: What works best - Magic Bullet/Enemieez/Other?

[Nichole Rohling]

That’s my schedule as well (M W F) and it works great for me. I also schedule 
appointments

For Tue Thurs and frees up weekend time.

 

Nicki

 

From: Randy Anderson [mailto:randyanderson...@gmail.com] 
Sent: Saturday, March 23, 2019 11:29 AM
To: Raymond Kelly
Cc: Quad List
Subject: Re: FW: [QUAD-L] BOWEL PROGRAM: What works best - Magic 
Bullet/Enemieez/Other?

 

After my accident in 98 I rehabbed out at Craig Institute in Denver. They used 
and suggested I use MAGIC bullet, I have ever since and it seems to work for me 
although I've never tried anything else to compare it to.
Also, I use to do my ball program every other day but switched to 3 times a 
day, Monday Wednesday Friday.
This way it frees up my weekend and I know for Tuesday and Thursday that I'm 
getting out of bed earlier on a non-bowel day, and schedule appointments or 
other things for those 2 days.
For me, it hasn't given me any problems in doing it this way. You may or may 
not want to try it.
Randy

 

On Sat, Mar 23, 2019 at 10:15 AM Raymond Kelly  wrote:

I have been using Enemeez for several years now and it has been working 
fabulously. I do my bowel therapy every other day.

Raymond c3/4

 

Let me know what you think.

Paul c5/6

[QUAD-L] EZ Lock

[Nichole Rohling]

I got a new power chair and need a new EZ Lock bracket. Does anyone know

A place where I can just purchase the bracket and my brother can put it on?

 

I already have the docking station in my van, just need the bracket

And don't want to pay 3 hrs labor.

 

Merry Christmas 

Nicki

RE: [QUAD-L] Staphylococcus Aureus (MRSA) in the urine

[Nichole Rohling]

Hate to hear you’re having problems and I can’t offer much advice other than I 
agree, a UA/Sensitivity should be done after a round of antibiotics. My primary 
care physician always does one. I agree IV antibiotics would be best course of 
treatment for MRSA.

 

Good luck getting answers.

Nicki

 

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Wednesday, March 28, 2018 11:41 PM
To: quad-list
Subject: [QUAD-L] Staphylococcus Aureus (MRSA) in the urine

 

Hey everyone...

 

Has anyone else had Staphylococcus Aureus (MRSA) found in their urine and their 
urologist being too complacent about not getting rid of it?

 

After a bladder biopsy done died on February 23 (outpatient procedure) and less 
than a week later I began to have my usual bladder infection symptoms (SEVERE 
bladder and flank pain) so I requested a culture and sensitivity be done and, 
sure enough it was positive for, this time, the superbug. They only put me on a 
week of Nitrofurantoin (Macrobid) 100 mg, twice a day. From what I have read 
and what I know about Macrobid it does work on some gram-negative bacteria but 
it is also more of a prophylactic antibiotic.

 

Unfortunately, after I requested a follow-up urine (and had symptoms) it had 
not gone away. My urologist does not like to do follow-up urine cultures which 
I think is ridiculous because one would think they would like to know if the 
antibiotic worked. 

 

For those of you who don't know... MRSA is mostly found in hospitals and 
nursing homes and therefore a nosocomial infection (hospital acquired or clinic 
acquired) but I can't make use my urologist of giving it to me when it is just 
too coincidental that I get it less than a week after being in the hospital for 
the outpatient procedure.

 

My urologist's staff is absolutely horrible at getting back to you and this has 
been a problem from the beginning. I have brought it up several times and they 
have admitted it and say they are trying to improve it but it only gets worse. 
Yes, I would try looking for another urologist but this is the one who did my 
bladder neck closure back in June of 2018 which I was forced into because of 
the nurse stretching my urethra beyond repair and now having an SP catheter. If 
something were to go wrong with the bladder neck closure... there are very few 
of them in my town if there are any others (and I have looked) he would be this 
surgeon to look into it. 

 

He is known as one of the best in Arizona and I have been told that people come 
from all over Arizona and a couple from New Mexico because he is such a good 
surgeon. I am sure he is a good surgeon but as far as needing him for other 
things or being sensitive to my needs as I know my body best after 38 years and 
learning tons from my husband since he went to medical school and was a chief 
medical technologist and dealt with all kinds of bacterium whether it be in the 
urine or the blood.

 

Below is the best information I have found bread regarding Staphylococcus 
Aureus (MRSA) and treating it. Since has staff was so poor at communication I 
wanted me to go to my primary care physician if I had any symptoms and that's 
what I did. I was doing pretty good until after being in the hospital and then 
getting MRSA less than a week after being in the hospital. I sent him a message 
in the patient portal because I had asked his office to order the culture and 
sensitivity this time around hoping that their communication issues had been 
resolved. I basically told him that I thought, since it had not gone away with 
Nitrofurantoin that a more aggressive approach should take place. This is what 
he wrote back:

 

"The appointment to see you is to further discuss your biopsy results and your 
overall urologic management which is not going well in my opinion with 
essentially constant infections. I'd like to discuss this in person and not on 
the phone or email."

 

What I had sent him in part is this:

 

"However, from what I have been reading, I don't feel confident it will work 
with that type of diagnosis. Cipro was listed in my Culture and Sensitivity 
Report as well as Vancomycin and others. As MRSA is extremely resistant, I 
would like to hear from you what would be the best approach, in your opinion.  
The earlier the appropriate diagnosis and therapy is instituted for MRSA, the 
better the prognosis. 

 

I have read that… “the majority of serious MRSA infections are treated with two 
or more intravenous antibiotics that, in combination, often are still effective 
against MRSA (for example, vancomycin, linezolid, rifampin, 
sulfamethoxazole-trimethoprim, and others). I just want to be proactive and get 
appropriate treatment. I am contacting you simply due to the lack of 
communication from your staff. 

 

I am doing OK right now and have a little over another week of Nitrofurantoin 
(Macrobid) to take (100 mg twice a day), but my question is if this is the best 
course of action, in your opinion?"

RE: [QUAD-L] Ramp/Door Problems

[Nichole Rohling]

We have done quite a bit of Southern engineering J

Thank you for the info!

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Sunday, March 25, 2018 9:05 AM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Ramp/Door Problems

 

IMS, was purchased by Braun in 2005.  After Ralph Braun passed, the company was 
purchased by a Foreign Company in Europe and was renamed Braun Ability.  There 
is no real reason from Braun to support old technology and the new owners agree.

 

I know you don't want to hear this but this is quite normal in business when 
one corporation buys out another company and then is sold.  I'm not sure if IMS 
made their own parts and components, or vendor them out as there are so many 
changes going on and will continue to change.

 

Have you tried,   www.blvd.com,  in California as a source for old parts and 
components and you can call Braun Ability, in Northern INdiana.

 

The last resort is proto-typing your own parts and components.  But that could 
be risky.  Good Luck and

 

Best Wishes

 

In a message dated 3/24/2018 11:00:40 AM Central Standard Time, 
zoocr...@windstream.net writes: 

 

Wheelchair,

 

My conversion is about 16 years old and yes it is the parts apparently that 
aren’t available. I thought IMS no longer existed? Do you know how I would 
contact the Zone Manager or tech service? At this point I’m willing to do 
whatever Ica to get my independence back.

 

Thank you!

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com 
 ] 
Sent: Friday, March 23, 2018 3:33 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Ramp/Door Problems

 

Not sure how old your IMS Conversion is but I'm guessing the parts necessary 
are becoming obsolete as new technology takes over and old technology is passe. 
 Have you considered contacting IMS directly for their Zone Manager or their 
tech service dept.  This is the best I can offer you now..

Best Wishes

 

In a message dated 3/23/2018 3:25:58 PM Central Standard Time, 
zoocr...@windstream.net writes:

 

I have a 2002 Dodge Grand Caravan with IMS Conversion. I took my van to United 
Access OKC (hate it) and waited 2.5 hours to be told what I told them was wrong 
with it. My ramp isn’t extending out to ground level and it doesn’t pull 
completely in which sometime prevents the door from closing all the way. Ramp 
also wouldn’t pull back in unless the flap at the top of ramp is lifted.  My 
door also isn’t unlatching and someone has to pull the handle after I push the 
button to open it. They told me even if they could get parts it would be 
$10,000 to $15,000 and that would be a great down payment on a new van. They 
waived the diagnostic fee and gave me a card for their salesman. They didn’t 
even clean or service the ramp.

Purchasing a new van is not an option.

 

I took my van to a technology school and the kids there cleaned the components 
they could reach and eventually got the ramp to extend/retract like it should. 
The instructor couldn’t get the door latch figured out before he ran out of 
time. He fixed it before but we don’t remember exactly what he did to fix it. 
(He took the panel off the inside of the door and did something to the part 
that makes the latch unlatch. Is there an adjustment that can be made on that 
part?). The ramp pulls in very slow.

 

I am open to any suggestions as to what could be wrong/how to fix it.

 

Thanks

Nicki

RE: [QUAD-L] Ramp/Door Problems

[Nichole Rohling]

Wheelchair,

 

My conversion is about 16 years old and yes it is the parts apparently that 
aren’t available. I thought IMS no longer existed? Do you know how I would 
contact the Zone Manager or tech service? At this point I’m willing to do 
whatever Ica to get my independence back.

 

Thank you!

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Friday, March 23, 2018 3:33 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Ramp/Door Problems

 

Not sure how old your IMS Conversion is but I'm guessing the parts necessary 
are becoming obsolete as new technology takes over and old technology is passe. 
 Have you considered contacting IMS directly for their Zone Manager or their 
tech service dept.  This is the best I can offer you now..

Best Wishes

 

In a message dated 3/23/2018 3:25:58 PM Central Standard Time, 
zoocr...@windstream.net writes: 

 

I have a 2002 Dodge Grand Caravan with IMS Conversion. I took my van to United 
Access OKC (hate it) and waited 2.5 hours to be told what I told them was wrong 
with it. My ramp isn’t extending out to ground level and it doesn’t pull 
completely in which sometime prevents the door from closing all the way. Ramp 
also wouldn’t pull back in unless the flap at the top of ramp is lifted.  My 
door also isn’t unlatching and someone has to pull the handle after I push the 
button to open it. They told me even if they could get parts it would be 
$10,000 to $15,000 and that would be a great down payment on a new van. They 
waived the diagnostic fee and gave me a card for their salesman. They didn’t 
even clean or service the ramp.

Purchasing a new van is not an option.

 

I took my van to a technology school and the kids there cleaned the components 
they could reach and eventually got the ramp to extend/retract like it should. 
The instructor couldn’t get the door latch figured out before he ran out of 
time. He fixed it before but we don’t remember exactly what he did to fix it. 
(He took the panel off the inside of the door and did something to the part 
that makes the latch unlatch. Is there an adjustment that can be made on that 
part?). The ramp pulls in very slow.

 

I am open to any suggestions as to what could be wrong/how to fix it.

 

Thanks

Nicki

[QUAD-L] Ramp/Door Problems

[Nichole Rohling]

I have a 2002 Dodge Grand Caravan with IMS Conversion. I took my van to
United Access OKC (hate it) and waited 2.5 hours to be told what I told them
was wrong with it. My ramp isn't extending out to ground level and it
doesn't pull completely in which sometime prevents the door from closing all
the way. Ramp also wouldn't pull back in unless the flap at the top of ramp
is lifted.  My door also isn't unlatching and someone has to pull the handle
after I push the button to open it. They told me even if they could get
parts it would be $10,000 to $15,000 and that would be a great down payment
on a new van. They waived the diagnostic fee and gave me a card for their
salesman. They didn't even clean or service the ramp.

Purchasing a new van is not an option. 

 

I took my van to a technology school and the kids there cleaned the
components they could reach and eventually got the ramp to extend/retract
like it should. The instructor couldn't get the door latch figured out
before he ran out of time. He fixed it before but we don't remember exactly
what he did to fix it. (He took the panel off the inside of the door and did
something to the part that makes the latch unlatch. Is there an adjustment
that can be made on that part?). The ramp pulls in very slow.

 

I am open to any suggestions as to what could be wrong/how to fix it.

 

Thanks

Nicki

RE: [QUAD-L] I don't seem to be getting any emails.

[Nichole Rohling]

Not many posts L

 

From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] 
Sent: Wednesday, March 14, 2018 5:21 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] I don't seem to be getting any emails. 

 

Is there something wrong? Do I need to reapply or something?

 

Thanks, and take care,

 

Dave Krehbiel

Olney, MD

 


 
 

Virus-free.
 www.avast.com 

 

RE: [QUAD-L] Shoulder

[Nichole Rohling]

I have the same pain sometimes and I think it’s nerve pain. 

Gabapentin has helped.

Nicki

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Wednesday, February 14, 2018 3:31 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Shoulder

 

My shoulder blade hurts so bad I feel sick. Its like a knife is sticking under 
there prying it up. It comes and goes for years now. I’ve been to every type of 
doctor and had every test. They can’t find a cause. My guess would be pinched 
nerve, but they tested for that. Had me hooked up to a bunch of electrodes. 
Catscan, MRI, Xray, Ultrasound, etc. It can be gone for weeks, but then show up 
for hours, days, weeks, etc.

My sister had a similar problem and it turned out it was her Thyroid. Who knew 
your Thyroid could hurt your shoulder blade. But I was tested for that a few 
times.

I'm on pretty good pain meds for other things, but it does not even dent this.
Greg

RE: [QUAD-L] HHA tracking

[Nichole Rohling]

My workers all have to call in from my home phone. I'm in Oklahoma. It is a
pain in the ass!

-Original Message-
From: Bobbie Humphreys [mailto:bobbiehumphre...@gmail.com] 
Sent: Wednesday, February 14, 2018 4:12 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] HHA tracking

I just got in the mail informing us that the agency were associated with is
going to be implementing the new tracking system on Pete.
This is not new to us. Back in 2002, or there about's, the Agency we were
with needed Pete to call in and help at each visit. We ended up leaving the
agency because of this, it was such a pain in the ass.
  We were considering leaving this agency but it looks like it's going to be
mandated throughout the country.
Bobbie 

"Be the change you want to see in the world". Gandhi

RE: [QUAD-L] Leg Pain

[Nichole Rohling]

Sounds like nerve pain. I take Gabapentin and recently upped my dose because my 
tolerance built up. 

 

Nicki

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Monday, February 12, 2018 8:42 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Leg Pain

 

The last few days my thighs have hurt so bad. Just throbbing. I wake up 
dreaming my legs are being crushed. It goes away for awhile, but comes back 
just out of nowhere. Hard to describe the feeling. Kind of like my muscles are 
stuck flexing, kind of like they are wrapped in something too tight, or a vice 
is squeezing them. But they are relaxed, no spasms, not tight. E

Greg

RE: [QUAD-L] Illness

[Nichole Rohling]

You may really need to go to the doctor/hospital

 

Get well soon

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Wednesday, February 7, 2018 1:51 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Illness

 


I can’t breathe when I lie down.

 

Sent from my iPad


Begin forwarded message:

From: "Nichole Rohling" <zoocr...@windstream.net>
Date: February 7, 2018 at 2:47:37 PM EST
To: "'Larry Willis'" <lwillis82...@gmail.com>, <quad-list@eskimo.com>
Subject: RE: [QUAD-L] Illness

I am in Oklahoma and it is terrible here! I have only left my house 4 times
since Dec 23 and 2 of those times I didn't get out of my vehicle.
Not worth the risk!
Why are you sleeping in your chair?

Nicki

-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Wednesday, February 7, 2018 1:35 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Illness

Guys, how is the sickness in your neighborhood? It is simply awful here. I
think everyone I know is or has been sick. I have slept in my chair since
Christmas. It is like a plague.

Sent from my iPad

RE: [QUAD-L] Illness

[Nichole Rohling]

I am in Oklahoma and it is terrible here! I have only left my house 4 times
since Dec 23 and 2 of those times I didn't get out of my vehicle.
Not worth the risk!
Why are you sleeping in your chair?

Nicki

-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Wednesday, February 7, 2018 1:35 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Illness

Guys, how is the sickness in your neighborhood? It is simply awful here. I
think everyone I know is or has been sick. I have slept in my chair since
Christmas. It is like a plague.

Sent from my iPad

[QUAD-L] Merry Christmas

[Nichole Rohling]

I hope you all have a wonderful Christmas!

 

Nicki

RE: [QUAD-L] Merry Christmas, I voted for Trump and I'm a christian

[Nichole Rohling]

Merry Christmas to you and yours!!

 

Nicki

 

From: Glenn A Henry [mailto:gah17...@aol.com] 
Sent: Sunday, December 24, 2017 1:52 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Merry Christmas, I voted for Trump and I'm a christian

 

Merry

Christmas

 

It is Christmas, well technically Christmas Eve, and if you are offended at 
what I say, perhaps you will read my whole post and know my story a little 
better.

 First, 
Merry Christmas, 
happy Hanukkah, 
happy Kwanzaa, 
happy happy happy.

Okay, I’m one of those that believe that Donald Trump is doing a fantastic job 
even 
though the fake news media is doing their best to discredit everything that the 
majority of this country was built upon and believes in. For those that say the 
quad site is not for religion, politics or a Merry Christmas, go pound sand, 
better yet stick your head under it and come out in eight years.

 Now, I’m going to say what I intend. I'm free, live in the United States of 
America, the greatest nation on earth and at the moment have free speech. I 
have been on the quad site most of 12 to 14 years, if not more and enjoyed the 
posts that came across, found many helpful and I was able to help other people 
that posted. I’m proud of who I am, what I’ve accomplished in my life and 
scared of the road that I need to travel. I have this road close to my house 
that I call my Prayer Road. When I have an issue I will travel this road to 
think and pray. I was traveling that road in 1996 praying for an answer to 
prayer because of a decision I needed to make. My mother was put on a 
ventilator and a decision needed to be made to continue. Being the only 
surviving child the weight fell on my shoulders and that was the issue I was 
praying about. I know the spot that an audible voice told me “don’t worry she 
is already with me.” That is something I will never forget.

 I still travel that road when I have an issue to think or pray about, but I 
look at the road a little different. About two thirds of the way on this road, 
I look back. What I see is a stone road that I traveled many times. This road 
is now paved, but in my mind I can still see a stone road and small concrete 
bridge. This road I traveled hundreds of times on the way to “the old swimming 
hole”. Oh yes, the old swimming hole, many of us have areas like this, many of 
the kids that swam there also tried their first cigarette or other first. Mine 
was a small corncob pipe, tobacco was cherry blend half-and-half. As I look 
back the road I treasure the memories of the swimming hole and probably the 
best hunting for small game in the area. I took many a rabbit and squirrel from 
that road. Gone is the stone road, much of the trees and brush, remaining sweet 
memories.

 Today on that same road after I have looked back, I look forward. The road 
goes up a small hill and bears to the left. If you are new to that road wonder, 
what is ahead, what will I need to go through.

 I know what I find for I elected to follow that road many years ago. However, 
the thought of what is ahead and how will I handle it is the million-dollar 
question.

 A few months ago someone made the comment about ending their life, but stated 
that they probably would not have the strength to go through that. It is not 
srength to end your life, I know that all too well. Yes, it is going to end 
your suffering and Lord knows I’ve suffered too. I’ve also gone through pain 
when a brother committed suicide and I know firsthand what it does to those 
around you. My nephew to this day has to be on medication for depression. If he 
does not take his medicine they may find him laying on the floor rolled up in a 
ball. My brother was a police officer, was on solo patrol and watched 
helplessly as his best friends father, a damn drunk, stepped out from the 
backside of a telephone pole into the path of a car, to commit suicide. My 
brother tried to get him out and resuscitate him, but no go. The year was 1975 
and thinking about actions like this were totally different. The police 
department gave a few counseling sessions, but basically told him not to think 
about it or talk about it and eventually it will go away. Well, just about a 
year later it went away and so does my brother. I am mad at the police 
department, or basically the people that were in charge of that time, but I met 
her at my brother. At my time of life I need someone that I can share with, and 
certain things cannot be shared and understood unless it is a sibling or very 
long-standing friend.

 My accident was 1966, so that makes me almost 52 years post SCI. In those 52 
years I started out with two small businesses, the first making Christmas 
decorations and the second selling hunting and fishing equipment. I always had 
a very strong urge to go into the electronics field. I don’t know why, but 
looking back it was a God thing. The Pennsylvania Bureau of rehabilitation 
would not pay for schooling for electronics. I said, 

RE: [QUAD-L] Stuck In Sun

[Nichole Rohling]

Oh no!! Glad the neighbor heard you!

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Sunday, November 19, 2017 2:01 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Stuck In Sun

 

I finely got a rental chair while waiting for my new one. I just found out 
about 1 option on this chair that is very stupid. I was out and about and when 
I got home, I reclined in the sun in my entryway to relax. Sun shines in there 
and heats it like a hot box. Great when it cools off. But it’s in the mid 70s 
today. I nodded off, woke-up overheated. I didn’t know the chair turns itself 
off after awhile. My recline button stopped working. I could not sit back up. I 
was stuck, reclined, in a hotbox. The recline buttons should always work. No 
idea how long I was there. I was inches from reaching the door. Couldn’t reach 
my phone. Finely a neighbor heard me.

Greg

RE: [QUAD-L] Bowel Problems

[Nichole Rohling]

So does waste just go in the bag on its own or do you still have to use
suppository? Do they attach the beginning of large intestine/colon or the
end? I also have a problem with hemorrhoids and wonder if this would help
with them too. I am just so tired of having to call someone. Strange thing
is it is always 2 to 3 hours after laying down.

 

Nicki 

 

From: greg [mailto:g...@eskimo.com] 
Sent: Monday, October 30, 2017 5:04 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] Bowel Problems

 

I know how you feel, the bowel routine was running my life. Scheduled
everything around it, not waning to go out those days incase issues after.
Then worse, I started leaking, just enough to smell. I finely 'bagged it'
and got a colostomy. The only thing wrong was I didn't do it years ago.
Quality of life s s much better, but not just for me, but for family and
helper. What use to take 2 hours, now takes 30 seconds. Just pop the bag
off, wipe clean, pop new bag on.  It takes maybe 1 minute when dong a full
change, every 5 days. J`ust unstick the wafer part, wipe clean, stick new
one on.

 

In 2 or 3 years now, no real issues. A few times it unsnapped, not put on
good enough. And you can hear farts more, not often, or I'm lucky.

 

Life changing. I heard of people having issues with sores, but I never have.
Only once. I was on strong antibiotics, had diarrhea (liquid). I didn't
change the bag often enough, burned my skin a bit. My fault.

 

The 2 main supply makers send you free sample anytime you want to try
different types. So you can try until you find a style you like. Send you
nice travel bags to hold your supplies.

 

Greg

> Ugh! So tired of having to call my caregiver or sister at night to

> come and get me up on my shower chair to poop.

> 

> It ranges from every 3 to 2 weeks but last night it had only been

> one week. It is always at night 2 to 3 hours after getting in bed.

> I've tried the magic bullet and it doesn't work any better than the

> suppository I use. I still go when I do bowel program but I don't

> think my bowels are emptying out. Then when I have to call at night

> it is a pot full of loose stool. (I did just start an antibiotic so

> that might have played a role in last night and making it only a

> week in between).

> 

> 

> Any suggestions? I seriously am thinking a colostomy would be

> better but then again, will I still have these blowouts?

> 

> 

> Nicki

[QUAD-L] Bowel Problems

[Nichole Rohling]

Ugh! So tired of having to call my caregiver or sister at night to come and
get me up on my shower chair to poop.

It ranges from every 3 to 2 weeks but last night it had only been one week.
It is always at night 2 to 3 hours after getting in bed. I've tried the
magic bullet and it doesn't work any better than the suppository I use. I
still go when I do bowel program but I don't think my bowels are emptying
out. Then when I have to call at night it is a pot full of loose stool. (I
did just start an antibiotic so that might have played a role in last night
and making it only a week in between).

 

Any suggestions? I seriously am thinking a colostomy would be better but
then again, will I still have these blowouts?

 

Nicki

RE: [QUAD-L] Broken leg..

[Nichole Rohling]

More than once. We used a boot and even then had to be sure and check for 
pressure sores. My dr absolutely would not do a hard cast.

 

Nicki

 

From: BeeJ [mailto:mrbeej...@gmail.com] 
Sent: Thursday, September 21, 2017 7:04 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Broken leg..

 

So I broke my leg Last Friday Night turning around in the dark with my power 
chair. The toe of my boot caught on my bed and I twisted it and heard a pop. So 
now I have a cast up to my knee that I can't feel. Anyone on here have any 
experience dealing with a broken bone below your level of injury? I'm a little 
worried about what's going on inside that cast.

 

-Bj

RE: [QUAD-L] Despair

[Nichole Rohling]

Larry,

Prayers for Melissa and you.

Nicki

-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Monday, September 11, 2017 7:53 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Despair

Guys, I am dealing with something that makes me want to close my eyes and
not wake up. My dear wife Melissa is in the throes of serious heart failure.
She is retaining so much fluid she can't breathe. She is in constant pain
and has had to quit her job. The medical bills are ungodly and have forced
us to file bankruptcy. If you have any prayers to spare, throw them my way.
Lori, I keep thinking of you. I am at a loss.

Sent from my iPad

RE: [QUAD-L] Battaries

[Nichole Rohling]

I was told the same thing last fall. They received to fax from my dr that day 
for new chair and were at my house to assess for repair and told me I had to 
pay out of pocket for repairs. Since they had just received the script from my 
dr I told them tear it up because I am not paying out of pocket for repairs I 
had been asking them to do for months. They trashed the script, fixed my chair 
and now we are in the process of getting a new chair.

 

Good luck

 

Nicki

 

From: Rose Chase [mailto:cviewe...@gmail.com] 
Sent: Tuesday, August 8, 2017 8:16 PM
To: wheelch...@aol.com
Cc: greg; quad-list@eskimo.com
Subject: Re: [QUAD-L] Battaries

 

I went for an evaluation  yesterday to get a power chair. Even though the Dr, 
wrote up all that.  I need she said she did not think medicare would pay for an 
elevating seat and she was not sure about the tilt and recline. She said it 
would take months to get  a review through medicare.I asked if I could get some 
repairs done to my old chair but was told NO not while I am waiting for a new 
chairmedicare would not pay for repairs and then a new chair.

 

On Tue, Aug 8, 2017 at 2:01 PM,  wrote:

Who told you that you could not get your chair repaired while you are going 
thru the process of a new one?

Best Wishes

 

In a message dated 8/8/2017 10:39:38 A.M. Central Daylight Time, 
g...@eskimo.com writes:

My chair is so weird, I can charge it all day and night, but it still say not 
charged. Or I can run it almost dead, and it charge full just over night. I 
charged it all day, and all night, went dead after 2 miles. A few days ago I 
went 6 miles.

 

It kind of feels like the breaks come on while driving sometimes. Other times 
it feels like something comes loose and my chair comes to a dead stop.

 

I can't do too much to it because I'm trying to get a new chair.

 

 

Greg

 

RE: [QUAD-L] Wheelchair Draining Battery

[Nichole Rohling]

Jeffrey,

 

My DME is doing their best to steer me away from my 3rd Invacare. NOT GOING TO 
HAPPEN J .

They came and picked up demo chairs last Wednesday and I had to make a list of 
why the other 2 chairs wouldn’t work. It was a page long………haven’t heard a word 
from them.

Nicki

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Wednesday, August 2, 2017 8:26 PM
To: wheelch...@aol.com; g...@eskimo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Wheelchair Draining Battery

 

It's just very frustrating because I mentioned while at a seating clinic a week 
ago that I needed my anti-tip bars raised and a new gooseneck for my sip and 
puff chair. The anti-tip bars were adjusted at the seating clinic. Without even 
making an appointment, someone from my chair tech company showed up yesterday 
and, while telling me he had the gooseneck listed on his paperwork to be 
ordered, he checked the date of the batteries, which seemed to be working fine, 
but they know my insurance will pay for new ones, checked my tires, which also 
seem fine, but they'll probably order new ones because my insurance will pay, 
and I don't know what else he did because I was taking a break from working 
just to deal with all this stuff. 

 

I made the ultimate decision, but I was steered away from purchasing my third 
Invacare chair in a row. The chair they steered me towards? It turned out to 
have a major flaw and, instead of replacing it, I told them I didn't want that 
brand. Again, I let them steer me away from Invacare, and now I have a chair 
that's had its share of issues, still does, doesn't go as far as it should on a 
full charge, which I complained about early on, but they don't look at the 
things you are mentioning, Wheelchair. Instead, it's replace batteries, try 
different batteries if the replacements don't make a difference, and do 
everything – it seems – but what it really takes to make it work properly. The 
biggest issue, in my opinion, is they don't "live" in a wheelchair. I realize 
they have to make money but this is just kind of messed up… Jeff 

 

  _  

From: "wheelch...@aol.com" 
To: g...@eskimo.com; quad-list@eskimo.com 
Sent: Wednesday, August 2, 2017 4:01 PM
Subject: Re: [QUAD-L] Wheelchair Draining Battery

 

Without a certified tech, your chair is just a fancy, expensive, flashlight.  
Does not sound like your batteries are the issue, but rather are suffering the 
effects of a component failure.  For example if the magnetic brakes have 
internal issues, each manufacturer requires that the motor assembly, which 
includes the magnetic brakes, motor and gearbox be replaced. Also when 
replacing a motor assembly, both motors are replaced for even movement of the 
chair.  There is a lot more to it and I hope you find a certified tech.

Best Wishes

 

In a message dated 8/2/2017 11:06:29 A.M. Central Daylight Time, 
g...@eskimo.com writes:

I'd like it too.

My chair often feels like the auto breaks are on, or grabbing.

Fully charged, I'll be driving and the chair stops dead, I jurk forward.

The joystick flashes Recharge Battaries. No idea whats going on.

Greg

> Would anyone still have that post regarding all the alternate

> causes why a wheelchair battery gets drained, yet these issues

> aren't typically looked at by wheelchair companies?

> 

> 

> Jeff

 

RE: [QUAD-L] Wheelchair Draining Battery

[Nichole Rohling]

Found two posts I made regarding batteries showing full but couldn’t hardly go 
out of my house…….would say charge batteries when going over a threshold or 
incline

 

I had the same problem last year beginning in March. The batteries were 
replaced 4 times. After asking in May to replace anything relating to charging 
the batteries the company finally replaced the charger (in October, didn’t fix 
it) then battery boxes, the joystick and the 2-prong thing that the battery box 
slides into on the chair in December. Haven’t had a problem since (knock on 
wood).

 

Best of luck, it is so dang frustrating

 

Nicki

 

 

Greg,

I think we are in the same boat! I just had my 4th set of batteries put in 
Monday since March. All of a sudden my chair was stopping saying “low battery”. 
I would turn it off then on and go a few feet and repeat. Joystick shows full 
battery charge. Woke up in March and my house smelled like rotten eggs. I paid 
out of pocket for what they said were gel batteries from a battery supplier 
because I had to have them that day. $352 worth. In June, same thing with my 
chair stopping saying low battery but joystick shows full charge (I use my 
chair very little). They swapped out batteries at no charge but said it had to 
be my chair. DME company came out right after 4th of July and ordered new 
batteries and new charger. Got them Sept 9, they said what I had was not true 
gel cell . Last week, same thing, low battery and chair stopping even though 
joystick shows full charge. We ordered new battery boxes, receptacles, joystick 
and they warrantied my batteries but by the time parts get here these batteries 
will be shot and I’ll have to pay out of pocket again. My chair is 8 yrs old 
and new chair process is on hold until medicare covers parts. Soo 
frustrated the DME company drug their feet on parts and really trying to 
troubleshoot the problem. I asked in July to order anything it could possibly 
be. I did call Invacare and they said DME company should have brought 
programmer to see fault codes so I called them and asked that he please bring 
it. Really didn’t tell much other than I’m having low batteries.

 

I feel your pain and good luck!

 

Nicki

 

 

From: greg [mailto:g...@eskimo.com] 
Sent: Wednesday, August 2, 2017 11:06 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Wheelchair Draining Battery

 

I'd like it too.

My chair often feels like the auto breaks are on, or grabbing.

Fully charged, I'll be driving and the chair stops dead, I jurk forward.

The joystick flashes Recharge Battaries. No idea whats going on.

Greg

> Would anyone still have that post regarding all the alternate

> causes why a wheelchair battery gets drained, yet these issues

> aren't typically looked at by wheelchair companies?

> 

> 

> Jeff

RE: [QUAD-L] Battery

[Nichole Rohling]

If your DME Supplier isn’t helping I would call Invacare at 800-333-6900. They 
have quit making the Storm (I have had 2 over the course of 19 years) and was 
told in June all parts can be replaced except motors and brain box. I haven’t 
experienced any problem like you are describing. You’ll need the serial number 
of your chair. 

 

Hope you get an answer soon.

Nicki

 

 

From: Bryce Willis [mailto:lwillis82...@msn.com] 
Sent: Monday, July 31, 2017 8:04 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Battery

 

Ok, here is another quandary.i have an 8 month old invacare storm. WHen I turn 
it off the screen says goodbye and nothing works. I have to break power to get 
it to reset. If I am alone and accidentally hit the off button, I am screwed. 
Strangely enough, my previous chair, a storm, did the very same thing. Never 
did figure it out.Anyone else have this problem?

Sent from my iPad


Begin forwarded message:

Resent-From: 
From: glenn henry 
Date: July 30, 2017 at 1:34:36 PM EDT
To: wheelch...@aol.com
Cc: greg , quad-list@eskimo.com
Subject: Re: [QUAD-L] Battery

If it wasn't for only having one bar, I would suggest checking the brushes. It 
sounds like

one may be burnt through.  If you need more info send email to ghen...@aol.com.

 

On Wed, Jul 19, 2017 at 6:48 AM,  wrote:

If I may.  If this issue was an automobile, a dealer would hook up the auto to 
a computer to analyze the issue.  Electric wheelchairs users and dealers don't 
have that issue. But each chair has a control module that directs energy to 
each motor, from the energy of the combined batteries, using the joystick as 
the guide.  Motors, and Magnets Brakes, are the biggest users of energy on a 
wheelchair, so each motor and magnetic brake assembly must be tested before and 
during the operation of the chair to determine the high energy draw, rather 
than just replacing the batteries and joystick.

 

I hope this helps.

Best Wishes

 

In a message dated 7/18/2017 10:16:08 P.M. Central Daylight Time, 
g...@eskimo.com writes:

My chair is possessed. I had battery issues, so changed, twice. Still was 
getting about   5 blocks a charge. They tried getting a new joystick, but 
couldn't, to old. They were going to replace entire electronics, but then I 
would not be eligible for a new chair.

 

I found a joystick on Ebay. It seemed to fix it. But after a few weeks, its 
weird again. My charger works, tried 2 to be sure. But some days it charges 
full, some days none. Charged 2 nights not going anywhere, still only shows 1 
bar. Now when I drive, it will just jerk, stop cold, joystick flash “Recharge”. 
I drive a bit more, same thing. Does it when it says full or empty.

 

Its like a loose wire, but if loose, it would die, go black. Sometimes it feels 
like the electric breaks are one while driving. I put in mode 2, slow speed and 
it didn't seem to jerk stop as much.

 

Any ideas?

Hoping to gwt new chair soon, Greg

 

RE: [QUAD-L] New Chair Options

[Nichole Rohling]

Bobbie,

 

I dread it! I guess I should start calling and getting quotes.

Which Quantum chair do you have?

 

Nicki

 

From: Bobbie Humphreys [mailto:bobbiehumphre...@gmail.com] 
Sent: Tuesday, July 25, 2017 4:53 PM
To: Nichole Rohling
Cc: Danny Hearn; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair Options

 

When I got a new chair my van conversion company charged me $800 to put a 
ezlock bracket on the bottom of my new Quantum 

Bobbie 

"Be the change you want to see in the world". Gandhi


On Jul 25, 2017, at 4:15 PM, Nichole Rohling <zoocr...@windstream.net> wrote:

Danny,

 

Do you drive and use the EZ-Lock to lock into your van? If so did you have to 
move driving equipment and EZ-Lock to compensate changing from an Invacare to 
the Quantum?

 

My Invacare base is 33” and the Quantum is 36” so this is a concern especially 
because it will be out of pocket to add new EZ-Lock to chair and if I have to 
make changes in my van the expense will be greater. 

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, July 10, 2017 1:59 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair Options

 

Nicki...they are solid and I go everywhere and they show zero signs  of any 
wear at all...I'm am very impressed by that, they are so much better than the  
invacare tires ever were. The ride is a bit better or smoother also, although 
my last Invacare is 7 years old so they may have made improvements also.  Dan**

 

On Monday, July 10, 2017 1:34 PM, Nichole Rohling <zoocr...@windstream.net> 
wrote:

 

Thanks Danny

 

I am pretty positive I want to stick with rear wheel drive. Are the tires on 
your Quantum solid or air filled?

 

Nicki 

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, July 10, 2017 1:13 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair Options

 

I got the Quantum Rival a few months back with the speed upgrade, I think it 
goes about 7 mph or sowhich is pretty quick for outdoors, It took a bit of 
getting used to it  because like you I had been in Invacare Arrows for the past 
14 years, all my chairs have been REAR wheel drive and that works great for me 
and fit into my 1995 chevy astro mini van. Many folks do not like the rear 
wheel indoors because it is not good for tight turns like the mid-wheels can 
do. My area is set up for outdoors...it has trails and park area's near me, so 
rear wheel is great for me. I suggest trying a few like you said you are going 
to do. I do love the Quick Change buttons on this Quantum that can switch from 
tilt/leg lift back to drive very fast by a button on either side of the 
control. good, luck, Dan H***

 

On Monday, July 10, 2017 12:39 PM, Nichole Rohling <zoocr...@windstream.net> 
wrote:

 

I’m getting my 3rd chair in 19 years. I have had the Invacare Action Arrow 
Storm for all 19 years. Invacare got in trouble with the FDA and are under a 
consent decree with them. My DME is really trying to steer me away from getting 
an Invacare chair. It would be a Torque 3. I am suppose to be testing it as 
well as a Permobil C350 and a Quantum Rival. The provider brought out the 
Quantum on Friday and it has a plate footrest (I have always had 2 footrest 
which allows me to straddle table posts at restaurants) I don’t even think my 
feet would stay on a center mounted foot plate. They were suppose to bring the 
Invacare first and the employee agreed he didn’t think my feet would stay on 
the plate. He even told me that the motors in the Rival go out but I didn’t 
hear that from him. The DME supplier is trying to get footrests for the demo 
chairs but said they can only get 1 side for the Invacare.

 

Would love input on any of these chairs.

 

Nicki

 

 

RE: [QUAD-L] New Chair ?

[Nichole Rohling]

Spoken with them a few times and today they said they will have their rep for 
my area call me, only downfall is she is on vacation until the 31st. Hoping 
she’ll call while on vacation J and can speak with the vendor too.

 

I would like to call the FDA but not sure who/where/division I would need to 
call. Hopefully rep can tell me.

 

Nicki  

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Wednesday, July 19, 2017 3:39 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair ?

 

Why not call Invacare directly and get the story from them.  Tell them what you 
want and why you want to. Let them pull while you are pushing.   BTW, who's the 
customer anyway?  Customer, is always right.  Call Medicare/Medicaid in your 
state and let them know what the provider is doing to you.

Best Wishes

 

In a message dated 7/19/2017 1:58:56 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

Below is a previous message I sent the quadlist. I decided this morning I don’t 
even want to demo any chairs. The DME vendor is having  problem getting two 
footrests instead of the platform plate for all 3 chairs. I’ve been in an 
Invacare Action Arrow Storm for 19 years. They no longer make this chair but 
the Torque 3 is the same chair, different motor. 

 

I called vendor to tell them to order the Invacare but they told me we have to 
provide reasons why the other chairs won’t work before the FDA will sign off on 
it (since Invacare is currently under Consent Decree with FDA). So they still 
want me to demo chairs and come up with reasons they won’t work.

 

I am so frustrated. I know one deal breaker is the armrests because I have a 
bag that we attach to a particular spot on my armrest and I put my leg bag in 
it so it is hidden. Their suggestion is to put in on front of seat pan. That 
won’t work, not even gonna try it, what’s not broke doesn’t need fixed.

 

Also, I believe by having the same base I won’t have to move e-z locks in the 
floor of my van where as if the other bases are different not only will I have 
to pay to have bolt added to chair but the expense of moving the bases.

 

Anyone else want to help me come up with reasons why other chairs won’t work?

 

My rear is the one that sits in it so why can’t I just pick what I freaking 
want?

 

Nicki   

 

 

I’m getting my 3rd chair in 19 years. I have had the Invacare Action Arrow 
Storm for all 19 years. Invacare got in trouble with the FDA and are under a 
consent decree with them. My DME is really trying to steer me away from getting 
an Invacare chair. It would be a Torque 3. I am suppose to be testing it as 
well as a Permobil C350 and a Quantum Rival. The provider brought out the 
Quantum on Friday and it has a plate footrest (I have always had 2 footrest 
which allows me to straddle table posts at restaurants) I don’t even think my 
feet would stay on a center mounted foot plate. They were suppose to bring the 
Invacare first and the employee agreed he didn’t think my feet would stay on 
the plate. He even told me that the motors in the Rival go out but I didn’t 
hear that from him. The DME supplier is trying to get footrests for the demo 
chairs but said they can only get 1 side for the Invacare.

 

Would love input on any of these chairs.

 

RE: [QUAD-L] New Chair Options

[Nichole Rohling]

Danny,

 

Do you drive and use the EZ-Lock to lock into your van? If so did you have to 
move driving equipment and EZ-Lock to compensate changing from an Invacare to 
the Quantum?

 

My Invacare base is 33” and the Quantum is 36” so this is a concern especially 
because it will be out of pocket to add new EZ-Lock to chair and if I have to 
make changes in my van the expense will be greater. 

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, July 10, 2017 1:59 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair Options

 

Nicki...they are solid and I go everywhere and they show zero signs  of any 
wear at all...I'm am very impressed by that, they are so much better than the  
invacare tires ever were. The ride is a bit better or smoother also, although 
my last Invacare is 7 years old so they may have made improvements also.  Dan**

 

On Monday, July 10, 2017 1:34 PM, Nichole Rohling <zoocr...@windstream.net> 
wrote:

 

Thanks Danny

 

I am pretty positive I want to stick with rear wheel drive. Are the tires on 
your Quantum solid or air filled?

 

Nicki 

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, July 10, 2017 1:13 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair Options

 

I got the Quantum Rival a few months back with the speed upgrade, I think it 
goes about 7 mph or sowhich is pretty quick for outdoors, It took a bit of 
getting used to it  because like you I had been in Invacare Arrows for the past 
14 years, all my chairs have been REAR wheel drive and that works great for me 
and fit into my 1995 chevy astro mini van. Many folks do not like the rear 
wheel indoors because it is not good for tight turns like the mid-wheels can 
do. My area is set up for outdoors...it has trails and park area's near me, so 
rear wheel is great for me. I suggest trying a few like you said you are going 
to do. I do love the Quick Change buttons on this Quantum that can switch from 
tilt/leg lift back to drive very fast by a button on either side of the 
control. good, luck, Dan H***

 

On Monday, July 10, 2017 12:39 PM, Nichole Rohling <zoocr...@windstream.net> 
wrote:

 

I’m getting my 3rd chair in 19 years. I have had the Invacare Action Arrow 
Storm for all 19 years. Invacare got in trouble with the FDA and are under a 
consent decree with them. My DME is really trying to steer me away from getting 
an Invacare chair. It would be a Torque 3. I am suppose to be testing it as 
well as a Permobil C350 and a Quantum Rival. The provider brought out the 
Quantum on Friday and it has a plate footrest (I have always had 2 footrest 
which allows me to straddle table posts at restaurants) I don’t even think my 
feet would stay on a center mounted foot plate. They were suppose to bring the 
Invacare first and the employee agreed he didn’t think my feet would stay on 
the plate. He even told me that the motors in the Rival go out but I didn’t 
hear that from him. The DME supplier is trying to get footrests for the demo 
chairs but said they can only get 1 side for the Invacare.

 

Would love input on any of these chairs.

 

Nicki

 

 

[QUAD-L] New Chair ?

[Nichole Rohling]

Below is a previous message I sent the quadlist. I decided this morning I
don't even want to demo any chairs. The DME vendor is having  problem
getting two footrests instead of the platform plate for all 3 chairs. I've
been in an Invacare Action Arrow Storm for 19 years. They no longer make
this chair but the Torque 3 is the same chair, different motor. 

 

I called vendor to tell them to order the Invacare but they told me we have
to provide reasons why the other chairs won't work before the FDA will sign
off on it (since Invacare is currently under Consent Decree with FDA). So
they still want me to demo chairs and come up with reasons they won't work.

 

I am so frustrated. I know one deal breaker is the armrests because I have a
bag that we attach to a particular spot on my armrest and I put my leg bag
in it so it is hidden. Their suggestion is to put in on front of seat pan.
That won't work, not even gonna try it, what's not broke doesn't need fixed.

 

Also, I believe by having the same base I won't have to move e-z locks in
the floor of my van where as if the other bases are different not only will
I have to pay to have bolt added to chair but the expense of moving the
bases.

 

Anyone else want to help me come up with reasons why other chairs won't
work?

 

My rear is the one that sits in it so why can't I just pick what I freaking
want?

 

Nicki   

 

 

I'm getting my 3rd chair in 19 years. I have had the Invacare Action Arrow
Storm for all 19 years. Invacare got in trouble with the FDA and are under a
consent decree with them. My DME is really trying to steer me away from
getting an Invacare chair. It would be a Torque 3. I am suppose to be
testing it as well as a Permobil C350 and a Quantum Rival. The provider
brought out the Quantum on Friday and it has a plate footrest (I have always
had 2 footrest which allows me to straddle table posts at restaurants) I
don't even think my feet would stay on a center mounted foot plate. They
were suppose to bring the Invacare first and the employee agreed he didn't
think my feet would stay on the plate. He even told me that the motors in
the Rival go out but I didn't hear that from him. The DME supplier is trying
to get footrests for the demo chairs but said they can only get 1 side for
the Invacare.

 

Would love input on any of these chairs.

 

RE: [QUAD-L] New Chair Options

[Nichole Rohling]

Thanks Danny

 

I am pretty positive I want to stick with rear wheel drive. Are the tires on 
your Quantum solid or air filled?

 

Nicki 

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, July 10, 2017 1:13 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair Options

 

I got the Quantum Rival a few months back with the speed upgrade, I think it 
goes about 7 mph or sowhich is pretty quick for outdoors, It took a bit of 
getting used to it  because like you I had been in Invacare Arrows for the past 
14 years, all my chairs have been REAR wheel drive and that works great for me 
and fit into my 1995 chevy astro mini van. Many folks do not like the rear 
wheel indoors because it is not good for tight turns like the mid-wheels can 
do. My area is set up for outdoors...it has trails and park area's near me, so 
rear wheel is great for me. I suggest trying a few like you said you are going 
to do. I do love the Quick Change buttons on this Quantum that can switch from 
tilt/leg lift back to drive very fast by a button on either side of the 
control. good, luck, Dan H***

 

On Monday, July 10, 2017 12:39 PM, Nichole Rohling <zoocr...@windstream.net> 
wrote:

 

I’m getting my 3rd chair in 19 years. I have had the Invacare Action Arrow 
Storm for all 19 years. Invacare got in trouble with the FDA and are under a 
consent decree with them. My DME is really trying to steer me away from getting 
an Invacare chair. It would be a Torque 3. I am suppose to be testing it as 
well as a Permobil C350 and a Quantum Rival. The provider brought out the 
Quantum on Friday and it has a plate footrest (I have always had 2 footrest 
which allows me to straddle table posts at restaurants) I don’t even think my 
feet would stay on a center mounted foot plate. They were suppose to bring the 
Invacare first and the employee agreed he didn’t think my feet would stay on 
the plate. He even told me that the motors in the Rival go out but I didn’t 
hear that from him. The DME supplier is trying to get footrests for the demo 
chairs but said they can only get 1 side for the Invacare.

 

Would love input on any of these chairs.

 

Nicki

 

[QUAD-L] New Chair Options

[Nichole Rohling]

I'm getting my 3rd chair in 19 years. I have had the Invacare Action Arrow
Storm for all 19 years. Invacare got in trouble with the FDA and are under a
consent decree with them. My DME is really trying to steer me away from
getting an Invacare chair. It would be a Torque 3. I am suppose to be
testing it as well as a Permobil C350 and a Quantum Rival. The provider
brought out the Quantum on Friday and it has a plate footrest (I have always
had 2 footrest which allows me to straddle table posts at restaurants) I
don't even think my feet would stay on a center mounted foot plate. They
were suppose to bring the Invacare first and the employee agreed he didn't
think my feet would stay on the plate. He even told me that the motors in
the Rival go out but I didn't hear that from him. The DME supplier is trying
to get footrests for the demo chairs but said they can only get 1 side for
the Invacare.

 

Would love input on any of these chairs.

 

Nicki

RE: [QUAD-L] 51 years post SCI

[Nichole Rohling]

WOW! 51 years……congratulations! Prayers for a blessed year.

 

Nicki

 

From: glenn henry [mailto:gah17...@gmail.com] 
Sent: Sunday, July 9, 2017 2:53 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] 51 years post SCI

 

 I sold the posting last week for 31 years, mine is 51 on July 10.

 

A lot of water has gone over the dam sinc the day, I married and remain so 
today, three  stepchildren, nine grandchildren and one dog.

 

When one door was slammed shut, it seemed that God would open another. I 
operated a successful electronics business for 30 years, acquired some rental 
properties, built a second home in the mountains and life was good.

 

It was good. I crossed the threshold about two years  ago and now I believe I 
have traded quality for quantity. I probably will be facing surgery in the 
future and I don't believe I could expect a good outcome.

 

I sometimes sit at a local Riverpark and think how easy it would be to roll 
down the windows of the van and drive into the drink. No, that won't happen. 
I've seen firsthand what suicide does to those left behind. My brother was a 
police officer and on his first solo patrol watched his best friend's father 
step out in front of the car an committed suicide. He could only watch it 
happen and couldn't do anything about it. The thinking back then from the 
police department, keep your mouth shut don't talk about it and it wil go away. 
It went away, or  more so  he did.

 

I've had a good life and don't regret much. I used to always make the statement 
if God would have only given me one good hand, how much farther I could've 
gone.   well, then I went to an  event, sat with a fellow quad and his wife 
needed to feed him. I promise God right there and then I would never make that 
statement again.

 

 Will I be here for 52, only God knows that. I do know that I made an influence 
on many people's lives and God used me in ways I could never have dreamed.

 

Take care and hang in there, let's see about 52.

 

Glenn Henry

 

 

 

 

 

RE: [QUAD-L] New Chair

[Nichole Rohling]

I would do a commercial for them! I honestly can’t imagine being in anything 
but Invacare,.

Thank you so much for your advice over the years!

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, June 19, 2017 5:31 PM
To: zoocr...@windstream.net; ju...@jlar.org; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair

 

When you call Invacare Customer Service, be prepared to lay it on thick.  Let 
them know you love their chair and would not want to be stuck in another brand, 
 start crying if you must.  Let them know what the vendors are doing to 
consumers. Who knows what they can do for you.  Good Luck and I hope you 
win an Oscar !

 

Best Wishes

 

In a message dated 6/19/2017 12:42:04 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:

They told me we would have to prove that no other chair would work for me? Did 
you have this same experience?

 

Nicki

 

From: Julie [mailto:ju...@jlar.org] 
Sent: Monday, June 19, 2017 12:03 PM
To: 'Nichole Rohling'
Subject: RE: [QUAD-L] New Chair

 

Hi,

I am getting a new Invacare Torque 3 Wednesday.  They were halted for a couple 
years, so I waited but they are at least in operation now.

Julie

From: Nichole Rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, June 19, 2017 12:40 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] New Chair

 

Need your opinions and input please

 

I have been injured almost 19 years (Thought it was 20 but I was wrong) and I 
am getting ready to get a new chair.

This will be my 3rd chair and and my 1st two were Invacare Action Arrow Storms. 
They are no longer making this chair L

I hate change! I went to an evaluation appointment and was told the chair I 
want (Invacare Torque 3) is considered a Group 4 chair

And it would be difficult to get. They recommended a Permobil C350 or Quantum 
Rival.

 

They told me that an Invacare plant had been shut down by the FDA ( I think 
that’s right) and their concern is if I got the

Invacare they might quit making parts for it. 

 

I feel they probably make more $$ off the other two chairs (I just really have 
trust issues with them) 

. I have had incredible luck with my Invacare chairs, obviously since 2 have 
lasted 19 years. 

 

What would you recommend?

 

Nicki

RE: [QUAD-L] New Chair

[Nichole Rohling]

Thank you Raymond

 

From: Raymond Kelly [mailto:kelra...@gmail.com] 
Sent: Monday, June 19, 2017 1:40 PM
To: 'Nichole Rohling'
Subject: RE: [QUAD-L] New Chair

 

>From what I have heard about Invacare I would stay away from them if you
can. I get my wheelchairs through the VA and they said they will not deal
with Invacare anymore until they get there FDA problem straightened out. I
have had a couple different wheelchair vendors basically tell me the same
thing. I can tell you that I have had two permobil wheelchair so far and I
have had very good luck with them. I know firsthand that Permobil does make
a very good product.

That is my 2 cents.

 

Raymond

C3/4 complete

 

From: Nichole Rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, June 19, 2017 12:40 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] New Chair

 

Need your opinions and input please

 

I have been injured almost 19 years (Thought it was 20 but I was wrong) and
I am getting ready to get a new chair.

This will be my 3rd chair and and my 1st two were Invacare Action Arrow
Storms. They are no longer making this chair L

I hate change! I went to an evaluation appointment and was told the chair I
want (Invacare Torque 3) is considered a Group 4 chair

And it would be difficult to get. They recommended a Permobil C350 or
Quantum Rival.

 

They told me that an Invacare plant had been shut down by the FDA ( I think
that's right) and their concern is if I got the

Invacare they might quit making parts for it. 

 

I feel they probably make more $$ off the other two chairs (I just really
have trust issues with them) 

. I have had incredible luck with my Invacare chairs, obviously since 2 have
lasted 19 years. 

 

What would you recommend?

 

Nicki

RE: [QUAD-L] New Chair

[Nichole Rohling]

I was anxiously awaiting your response Wheelchair! I will call  my CMS office 
and ask. Invacare has been nothing but wonderful and helpful to me, why would I 
want to change?

 

Nicki

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, June 19, 2017 4:15 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair

 

I found this most interesting.  So I called Invacare and read back to them what 
you wrote.  I was assure that they were still in business and new plants 
continue to open.

 

Have you considered calling your local CMS Office and asking for a written copy 
of the procedure/guideline for someone in need of an electric wheelchair, with 
a doctor's order.

 

Your salesperson is trying to guide you to a product they stock, for their 
benefit, not yours.  Call Invacare Customer Service and hear from the Horse's 
Mouth... rather than from the Horse's Ass. (smiling)

Best Wishes

 

In a message dated 6/19/2017 11:48:41 A.M. Central Daylight Time, 
zoocr...@windstream.net writes:

Need your opinions and input please

 

I have been injured almost 19 years (Thought it was 20 but I was wrong) and I 
am getting ready to get a new chair.

This will be my 3rd chair and and my 1st two were Invacare Action Arrow Storms. 
They are no longer making this chair L

I hate change! I went to an evaluation appointment and was told the chair I 
want (Invacare Torque 3) is considered a Group 4 chair

And it would be difficult to get. They recommended a Permobil C350 or Quantum 
Rival.

 

They told me that an Invacare plant had been shut down by the FDA ( I think 
that’s right) and their concern is if I got the

Invacare they might quit making parts for it. 

 

I feel they probably make more $$ off the other two chairs (I just really have 
trust issues with them) 

. I have had incredible luck with my Invacare chairs, obviously since 2 have 
lasted 19 years. 

 

What would you recommend?

 

Nicki

RE: [QUAD-L] New Chair

[Nichole Rohling]

Yes, and they said it would take longer to get the chair.

Nicki

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Monday, June 19, 2017 12:57 PM
To: Nichole Rohling; 'Julie'; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair

 

Someone is telling you that you have to prove that no other chair would work?  
I would want to see that in writing.

 

  _  

From: Nichole Rohling <zoocr...@windstream.net>
To: 'Julie' <ju...@jlar.org>; quad-list@eskimo.com 
Sent: Monday, June 19, 2017 10:42 AM
Subject: RE: [QUAD-L] New Chair

 

They told me we would have to prove that no other chair would work for me? Did 
you have this same experience?

 

Nicki

 

From: Julie [mailto:ju...@jlar.org] 
Sent: Monday, June 19, 2017 12:03 PM
To: 'Nichole Rohling'
Subject: RE: [QUAD-L] New Chair

 

Hi,

I am getting a new Invacare Torque 3 Wednesday.  They were halted for a couple 
years, so I waited but they are at least in operation now.

Julie

From: Nichole Rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, June 19, 2017 12:40 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] New Chair

 

Need your opinions and input please

 

I have been injured almost 19 years (Thought it was 20 but I was wrong) and I 
am getting ready to get a new chair.

This will be my 3rd chair and and my 1st two were Invacare Action Arrow Storms. 
They are no longer making this chair L

I hate change! I went to an evaluation appointment and was told the chair I 
want (Invacare Torque 3) is considered a Group 4 chair

And it would be difficult to get. They recommended a Permobil C350 or Quantum 
Rival.

 

They told me that an Invacare plant had been shut down by the FDA ( I think 
that’s right) and their concern is if I got the

Invacare they might quit making parts for it. 

 

I feel they probably make more $$ off the other two chairs (I just really have 
trust issues with them) 

. I have had incredible luck with my Invacare chairs, obviously since 2 have 
lasted 19 years. 

 

What would you recommend?

 

Nicki

 

RE: [QUAD-L] New Chair

[Nichole Rohling]

Good to know

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, June 19, 2017 2:20 PM
To: Nichole Rohling
Subject: Re: [QUAD-L] New Chair

 

No, Mine has to be open also...never had the solid type, Will not work for me 
either. Dan H***

 

On Monday, June 19, 2017 1:34 PM, Nichole Rohling <zoocr...@windstream.net> 
wrote:

 

Thanks, the Quantum Rival is made by Pride Mobility. Do you have the footrest 
that is more like a platform and is solid?

I eat out a lot and need my footrests to have space between them to straddle 
the post if a table has single post, that is

Definitely a must for me.

 

Nicki

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, June 19, 2017 1:03 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair

 

My last 2 chairs have been invacare storm series also with rear wheel drive, I 
just had to get a new chair and wanted the same, since they work for us plus 
fit in our mini astro wheelchair van..They told me everyone including 
invacare is getting away from the rear wheel drive chairs, so my supplier 
ordered me a chair from Pride Mobility that still makes a rear wheel drive, 
They use Quantam Electronics I think. So far I am very happy with this new 
chair except my legs are so long that I don't have very much clearance from the 
floor...so I have to recline back a few inches when going over ramps,thresholds 
or outside, I'm now used to that but most people would not have this problem 
probably. I love the Electronics...they have a quick change button that can 
switch from tilt/leg lift or back into drive and then 4 speeds of drive, this 
chair is fast goes 7.5 mph. It even has a built in clock and how many miles you 
driveSince I got it in February I have put 91.3  miles on it. The tires are 
extremely good and show zero wear so far.( my invacare tires would be at 
least a quarter of the way worn out already) so these must be very well made.  
I now have my last chair going as a back up but my old back up chair I am 
giving away if anyone wants it or needs partsIt works and has the charger 
with it but has set so long It would need the batteries replaced...It is also 
and invacare storm rear wheel drive chair with tilt and leg lift, there is a 
place online called Wholesare batteries that sells all the same batteries we 
need for much,much cheaper than the suppliers do.  Dan H. St. Louis, Mo. area.

 

On Monday, June 19, 2017 11:49 AM, Nichole Rohling <zoocr...@windstream.net> 
wrote:

 

Need your opinions and input please

 

I have been injured almost 19 years (Thought it was 20 but I was wrong) and I 
am getting ready to get a new chair.

This will be my 3rd chair and and my 1st two were Invacare Action Arrow Storms. 
They are no longer making this chair L

I hate change! I went to an evaluation appointment and was told the chair I 
want (Invacare Torque 3) is considered a Group 4 chair

And it would be difficult to get. They recommended a Permobil C350 or Quantum 
Rival.

 

They told me that an Invacare plant had been shut down by the FDA ( I think 
that’s right) and their concern is if I got the

Invacare they might quit making parts for it. 

 

I feel they probably make more $$ off the other two chairs (I just really have 
trust issues with them) 

. I have had incredible luck with my Invacare chairs, obviously since 2 have 
lasted 19 years. 

 

What would you recommend?

 

Nicki

 

 

RE: [QUAD-L] New Chair

[Nichole Rohling]

Thank you for your input!! I called Invacare last fall so looks like I’ll be 
calling again. I know my vendor has

An issue w/ Invacare because they started shipping parts orders together 
instead of separated.

 

Nicki

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Monday, June 19, 2017 12:13 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair

 

I think that's BS.  Go to the Invacare site.  Last time I went there they were 
fine.  It may take more to get what you want but get what you want.  I didn't.  
I listened to a specific individual who steered me away from Invacare, even 
though my last two chairs were Invacare and I loved them.  Don't settle.  Do 
research.

 

  _  

From: Nichole Rohling <zoocr...@windstream.net>
To: quad-list@eskimo.com 
Sent: Monday, June 19, 2017 9:50 AM
Subject: [QUAD-L] New Chair

 

Need your opinions and input please

 

I have been injured almost 19 years (Thought it was 20 but I was wrong) and I 
am getting ready to get a new chair.

This will be my 3rd chair and and my 1st two were Invacare Action Arrow Storms. 
They are no longer making this chair L

I hate change! I went to an evaluation appointment and was told the chair I 
want (Invacare Torque 3) is considered a Group 4 chair

And it would be difficult to get. They recommended a Permobil C350 or Quantum 
Rival.

 

They told me that an Invacare plant had been shut down by the FDA ( I think 
that’s right) and their concern is if I got the

Invacare they might quit making parts for it. 

 

I feel they probably make more $$ off the other two chairs (I just really have 
trust issues with them) 

. I have had incredible luck with my Invacare chairs, obviously since 2 have 
lasted 19 years. 

 

What would you recommend?

 

Nicki

 

RE: [QUAD-L] New Chair

[Nichole Rohling]

They told me we would have to prove that no other chair would work for me?
Did you have this same experience?

 

Nicki

 

From: Julie [mailto:ju...@jlar.org] 
Sent: Monday, June 19, 2017 12:03 PM
To: 'Nichole Rohling'
Subject: RE: [QUAD-L] New Chair

 

Hi,

I am getting a new Invacare Torque 3 Wednesday.  They were halted for a
couple years, so I waited but they are at least in operation now.

Julie

From: Nichole Rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, June 19, 2017 12:40 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] New Chair

 

Need your opinions and input please

 

I have been injured almost 19 years (Thought it was 20 but I was wrong) and
I am getting ready to get a new chair.

This will be my 3rd chair and and my 1st two were Invacare Action Arrow
Storms. They are no longer making this chair L

I hate change! I went to an evaluation appointment and was told the chair I
want (Invacare Torque 3) is considered a Group 4 chair

And it would be difficult to get. They recommended a Permobil C350 or
Quantum Rival.

 

They told me that an Invacare plant had been shut down by the FDA ( I think
that's right) and their concern is if I got the

Invacare they might quit making parts for it. 

 

I feel they probably make more $$ off the other two chairs (I just really
have trust issues with them) 

. I have had incredible luck with my Invacare chairs, obviously since 2 have
lasted 19 years. 

 

What would you recommend?

 

Nicki

[QUAD-L] New Chair

[Nichole Rohling]

Need your opinions and input please

 

I have been injured almost 19 years (Thought it was 20 but I was wrong) and
I am getting ready to get a new chair.

This will be my 3rd chair and and my 1st two were Invacare Action Arrow
Storms. They are no longer making this chair L

I hate change! I went to an evaluation appointment and was told the chair I
want (Invacare Torque 3) is considered a Group 4 chair

And it would be difficult to get. They recommended a Permobil C350 or
Quantum Rival.

 

They told me that an Invacare plant had been shut down by the FDA ( I think
that's right) and their concern is if I got the

Invacare they might quit making parts for it. 

 

I feel they probably make more $$ off the other two chairs (I just really
have trust issues with them) 

. I have had incredible luck with my Invacare chairs, obviously since 2 have
lasted 19 years. 

 

What would you recommend?

 

Nicki

RE: [QUAD-L] Pressure wound advice

[Nichole Rohling]

I have an air bed mattress that lays on top of a regular bed but recently had 
the beginning of a sore on my tailbone. We took foam from a mattress overlay 
and double layered it. We cut a circle out of it and placed under me at night 
so there is no pressure at all on the tailbone. It healed rather quickly.

 

Nicki

 

From: Ben Mattlin [mailto:bmatt...@earthlink.net] 
Sent: Wednesday, May 17, 2017 7:41 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Pressure wound advice

 

I have a Stage 4 pressure wound on my tailbone –  my first ever!  Doc is 
recommending a Wound Vac and perhaps a "low air loss" bed mattress.  Anybody 
have any experience with either? How am I going to function with a Wound Vac 
attached to my butt? Do they work quickly?   Also,I don't have a hospital bed – 
 I share a regular queen-size mattress with my wife – so I'm not eager to make 
my bedroom into a hospital room. What sort of beds do you all use? Maybe a Roho 
overlay would be good enough?

Thanks for your thoughts.

Best,
Ben  (SMA quad, 54 years old)

RE: [QUAD-L] Battery Drain?

[Nichole Rohling]

I had the same problem last year beginning in March. The batteries were
replaced 4 times. After asking in May to replace anything relating to
charging the batteries the company finally replaced the charger (in October,
didn't fix it) then battery boxes, the joystick and the 2-prong thing that
the battery box slides into on the chair in December. Haven't had a problem
since (knock on wood).

 

Best of luck, it is so dang frustrating

 

Nicki

 

From: greg [mailto:g...@eskimo.com] 
Sent: Wednesday, May 10, 2017 9:10 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Battery Drain?

 

My batteries wont hold a charge. I can't go more than a few streets now.
Changed batteries, twice. Now waiting for a new joystick. I'm hoping it's
causing a power drain. Trying to fix it before I get a new chair.

 

Any ideas to have them look at or check?

What can drain power so fast? It says it's fully charged.

 

Greg

RE: [QUAD-L] Considering a Camelbac drinking system

[Nichole Rohling]

You can purchase at amazon, they have the brand name Camelbak and generic 
brands. Here is a link to generic 
https://www.amazon.com/Hydration-Backpack-Juboury-Rucksack-Bladder-Running/dp/B017NFMYSU/ref=sr_1_114?s=sporting-goods
 

 =UTF8=1490567915=1-114=camelbak

 

Also tubing for camelback 
https://www.amazon.com/CamelBak-Crux-Replacement-Tube-Blue/dp/B01MA6SYK5/ref=sr_1_75?s=sporting-goods
 

 =UTF8=1490568313=1-75=camelbak

 

Bite valve 
https://www.amazon.com/Camelbak-Big-Bite-Valve-Blue/dp/B0019DCVTA/ref=sr_1_5?s=sporting-goods
 

 =UTF8=1490568362=1-5=camelbak+bite+valve

 

 

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Sunday, March 26, 2017 4:33 PM
To: quad-list
Subject: [QUAD-L] Considering a Camelbac drinking system

 

Okay,

 

Could someone please tell me what type of Camelbac system would work best for 
me with all that I need?

 

I would need it to have a long flexible tube that would wrap around the top of 
my bed and reach my mouth. Because my neck was used... I can't turn my head 
barely at all either left or right. 

 

Of course someone can get the original Camelbac water bottle but then where do 
I get the extension tubing THAT GOES ALONG WITH IT AS WELL as the clip so 
everything works together smoothly and is not complicated?

 

I used to have a huge support system but now I am out on my own so I need to 
find exactly what would work for me, get it ordered and wala!

 

Thank you!

 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

RE: [QUAD-L] Night time drinking "water or juice" with a sp cath on a c2 quad.

[Nichole Rohling]

Danny,

 

I too use a CamelBak in bed at night. I have use of my arms so I can reach
the tube and get it to my mouth but I feel

The tube could be clipped near your head as long as you can turn your head.

 

Nichole 

 

From: Danny Espinoza [mailto:da...@immortaldesigns.co] 
Sent: Thursday, March 23, 2017 2:12 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Night time drinking "water or juice" with a sp cath on a
c2 quad.

 

I get really thirsty sometimes at night and thus far have been struggling
between calling my family for a drink or my window open/fan up. I've found a
few home automation projects in the past buf I figure my quad list
buddies/family would know best. So ir was
1> Able to drink something cold on my own while in upright position.
2> Ability to control my bed/window/blinds with sip'n'puff, my PC or my
right arm to the wrist.

-Danny
ex network/security engineer

RE: [QUAD-L] Raining

[Nichole Rohling]

I would freeze!!!

 

 

From: Paul Jacobson [mailto:pjacob...@san.rr.com] 
Sent: Monday, February 20, 2017 2:39 PM
To: Nichole Rohling; 'RONALD L PRACHT'; 'greg'; quad-list@eskimo.com
Subject: Re: [QUAD-L] Raining

 

Thermostat:  Keep at 70 all year round

 

Paul c5/6

San Diego, CA

 

From: Nichole Rohling 

Sent: Monday, February 20, 2017 11:04 AM

To: 'RONALD L PRACHT' ; 'greg' ; quad-list@eskimo.com 

Subject: RE: [QUAD-L] Raining

 

Greg I agree and Ronald I’m with you! Oklahoma is bipolar. We had 85 degrees a 
week ago Saturday and it is suppose to be 82 Thursday. I‘m ready for Spring

 

What temperature do you keep your thermostat on? 77 here!

 

Nicki

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Sunday, February 19, 2017 6:44 PM
To: Quad-list Post
Subject: Re: [QUAD-L] Raining

 

Come on down to Missouri(Misery)where a quad has to hibernate between 
Nov-April. Every year I think Im going to be tough, but cant fight below 30 in 
my old quad years.

 

Ron

 

On Sunday, February 19, 2017 5:19 PM, greg <g...@eskimo.com> wrote:

 

I hate these rainy days. I get so sore.
Its hard to believe 60 and sunny feels so much bete than 72 and rainy. I'd 
rather 60 and sunny than 80 and clowdy.

I drink hot stuff all day, then feel blah from dinking too much sweet stuff. 
Hot Coco, Coffees, Cider.
rain rain go away...

Greg

 

RE: [QUAD-L] Raining

[Nichole Rohling]

Greg I agree and Ronald I’m with you! Oklahoma is bipolar. We had 85 degrees a 
week ago Saturday and it is suppose to be 82 Thursday. I‘m ready for Spring

 

What temperature do you keep your thermostat on? 77 here!

 

Nicki

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Sunday, February 19, 2017 6:44 PM
To: Quad-list Post
Subject: Re: [QUAD-L] Raining

 

Come on down to Missouri(Misery)where a quad has to hibernate between 
Nov-April. Every year I think Im going to be tough, but cant fight below 30 in 
my old quad years.

 

Ron

 

On Sunday, February 19, 2017 5:19 PM, greg  wrote:

 

I hate these rainy days. I get so sore.
Its hard to believe 60 and sunny feels so much bete than 72 and rainy. I'd 
rather 60 and sunny than 80 and clowdy.

I drink hot stuff all day, then feel blah from dinking too much sweet stuff. 
Hot Coco, Coffees, Cider.
rain rain go away...

Greg