Re: [CMLHope] Re: surgery behind me

Joyce, As for you saying "I feel like you are all family and hope you will excuse this off-subject post. I love you all and you are in my every prayer". What do you mean? First YOU ARE ONE OF OUR FAMILY! And There is no such thing as an excuses for an "off-subject post" and there will never be

Re: [CMLHope] Three months

Hi Mitri, So you can now see that there are good things that more and more people with CLM can do, and your son is a living example just as Angie is. Absolutely wonderful! On Tue, Sep 29, 2015 at 8:39 PM, Parichart N. wrote: > Congratulations!!! > > So excited to

Re: [CMLHope] Three months

Angie, So I see that your finally good to go  That's great! 18's, Marty On Tue, Sep 29, 2015 at 8:18 PM, ANGELYN ESDERS wrote: > After 14+ years, I have been off Gleevec for 3 months. > So far, so good... All blood counts are A-OK. > I am starting to feel a little braver

Re: [CMLHope] happy Holidays!!

Jim, I am so sorry to hear this. I am wounded every time something like this happens. If there is anything that I can do for you then please let me know. 18's, Marty On Fri, Sep 18, 2015 at 2:53 PM, Nadia Noles wrote: > This is from Mr. Noles, the husband of Nadia

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 4 topics

Dear Elizabeth and Nick, and everyone that are reading this. I was very happy to hear that your 55 years of being married has come to be. So far I can only claim 45 years, but we are still working on it. You know what? I have a present for you and everyone else. Now I don't know if you or

Re: [CMLHope] New results

Dear Beth and Joyce, Sometimes things may not go as planned but sometimes they do go as planned. This is what life is all about. I know what the both of you are going through, and it does take someone that has already been their and done that, but you still live on to do what you can do. Every

Re: [CMLHope] Ponatinib

Well now. I am beginning to see some positive progress within the CML community. This one is doing well because things are getting better because some of you fine people are finding their way to not being able to detect any more of those nasty cells. Others are also doing well because some

Re: [CMLHope] Test Results

Hi Suzieq, First let me congratulate you on you success about being non detectable, a very good step in the right direction. I already have been in touch with Skip and we talk to each other about every couple of weeks. I have already mentioned about all of you and he is happy for all of you. He

Re: [CMLHope] Stopping Gleevec and BMB X4 !

finestill low platelets. Life goes on. Angie -- *From:* Marty Gartenberg wa2...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Wednesday, June 17, 2015 7:29 AM *Subject:* Re: [CMLHope] Stopping Gleevec Hi Angie, You are not thee only one that has

Re: [CMLHope] Stopping Gleevec and BMB X4 !

it. Anyway, I am finestill low platelets. Life goes on. Angie -- *From:* Marty Gartenberg wa2...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Wednesday, June 17, 2015 7:29 AM *Subject:* Re: [CMLHope] Stopping Gleevec Hi Angie, You are not thee

Re: [CMLHope] Allopurinol ?

Jeanie, I take it everyday. I used to get these horrible gout attacks. Besides when some usually has a kidney transplant it really helps. There are two doses one if for 100 mg the other is 300 mg. At the beginning of a bone marrow transplant they are usually put on to 300 mg. However it then

Re: [CMLHope] Marty what dosage if cardizem do you take

pain. Thanks again ❤️❤ ️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 29, 2015, at 2:23 PM, Marty Gartenberg wa2...@gmail.com

[CMLHope] Something I would like you to read

I am in the process of writing a book. It is on going book that is actually my autobiography. It describes in detail what I have gone through. Part of my book describes some of the people who have dealt with Leukemia and bone marrow transplants. There are more then twenty years of the stories in

Re: [CMLHope] Marty what dosage if cardizem do you take

Hi Jeanie. I have been taking Cardizem also known as Dilizem Hydrochloide for my blood pressure ever since during my Kidney transplant. It is really helping me. I am taking 240 mg Extended release capsule. I usually take one at about 1pm every day. let me know what happens Good luck 18's

Re: [CMLHope] Re: 12 years old boy with CML

23, 2015, at 1:34 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Sherri, I feel so sorry for you to have to tolerate such a terrible taste in your mouth, and what is even worse are those mouth sores. It is like having a never ending battle. Maybe I can help you with something called Biotene

Re: [CMLHope] Skip

Hi Suzieq, I also haven't heard from Skip. I tried contacting him trough skype but nothing yet. I will keep tiring. 18's Marty On Fri, Jul 24, 2015 at 2:17 PM, Suzieq sheila.a.wat...@gmail.com wrote: Was just wondering if anyone has heard from Skip in a while? I know I haven't been very

Re: [CMLHope] Re: 12 years old boy with CML

tells me. I would much rather swallow the pill but due to my paralyzed stomach, I can no longer do that. So what did Cyclosporine taste like? I can't image that it was very tasteful. L'chaim On Fri, Jul 17, 2015 at 2:34 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Sherri, I am just

Re: [CMLHope] CBC results 7/17

Hi Richard, since your white counts reflect any ware from 12 to around 10, I may not be understanding your meaning of a low white count is. That may be in the metric system but I am not sure, I have a white count of RGB4.20 - 6.00 m/uL 6.00 n/ul which is considered normal. Mine is usually low

Re: [CMLHope] Re: 12 years old boy with CML

Hi Sherri, I am just curious I have tasted some awful things in my life, including liquid Cyclosporine with was the absolutely worth thing I have ever tasted in my life, but since i have never been on Gleevec can you tell me what does it taste? On Fri, Jul 17, 2015 at 2:32 PM, sherri swanson

Re: [CMLHope] 12 years old boy with CML

Hi Choi, Something you may be interesting in seeing. Copy this link http://www.medicinenet.com/gastritis/patient-comments-313.htm It discuses a lot of the problem of different people with gastritis. I hope it help you. !8's, it is a symbol for life. I always use it. Marty On Wed, Jul 15,

Re: [CMLHope] Platelets

Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 3:19 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through

Re: [CMLHope] Platelets

well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2

Re: [CMLHope] Platelets

Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F.

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.comI have Sent: Thu, Jun 25, 2015 12:29 am Subject: Re: [CMLHope] Humor is the spice of life. When your

Re: [CMLHope] Jeans Moffitt visit

, then you can put it behind you..while you are going through all of thisjust remember how cared for, loved, and appreciated you are ...here..with us. have a great day!! and feel good!!! Love, 18's, and hugs, Beth -Original Message- From: Marty Gartenberg wa2

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jun 19, 2015, at 8:58 PM, Marty Gartenberg wa2...@gmail.com wrote: Thank you for praying Psalm for me. I am enclosing a copy so that every one can read it. Psalm 91 1 Whoever

Re: [CMLHope] Jeans Moffitt visit

Hi Joyce, I see that your a night owl by getting up so early in the morning. This tells me something. You have a lot on your mind but for good reason. When something is running through my mind I also have difficulties sleeping and will get up early in the morning. Sometimes I just lay in bed and

Re: [CMLHope] Jeans Moffitt visit

Beth, you know what Zavie would have to say don't you? YIPPIE YAHOOY... 18,s Marty On Mon, Jun 22, 2015 at 10:47 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: That is really great!! [image: ❤]️[image: ❤]️ Prayers Blessings Jeanie [image: ][image: ]18,s Dx 1/2004

Re: [CMLHope] Jeans Moffitt visit

Joyce, you will overcome your latest bump in the road. I will be praying for you. Double even triple 18's to you. Marty On Fri, Jun 19, 2015 at 11:54 PM, Joyce Mesnarich joy...@htc.net wrote: Jeanie, So happy that your new TKI is working. On July 9 my hubby and I will go to see Dr

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

your talents were endless! Jeannie, so excited for you! 18's and blessings, Susan F. Zimmerman -Original Message- From: Marty Gartenberg wa2...@gmail.com To: CMLHope CMLHope@googlegroups.com Sent: Fri, Jun 19, 2015 12:29 am Subject: [CMLHope] Humor is the spice of life. When your

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Jun 19, 2015 4:49 pm Subject: Re: [CMLHope] Humor

[CMLHope] Humor is the spice of life. When your laughing your not crying.

This is a little spicy but rather funny. By now you must all know me. I have been asked many times how I can have an operation for a kidney transplant as well as a bone marrow transplant some 26 years and still be able to spread humor. As I mentioned humor is the spice of life and without it where

Re: [CMLHope] Jeans Moffitt visit

Hi Jeanie, That is some really great news. Keep up the effort. By the way are you PCRU? If so then for how long and is your doctor thinking about you going off the TKI? 18's, Marty On Thu, Jun 18, 2015 at 4:43 PM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Blood test was

Re: [CMLHope] Stopping Gleevec

Hi Angie, You are not thee only one that has stopped your TKI and felt that way. sometimes something that we take as far as any TKI's ends up being a crutch for us and we always seem to worry if this or that will come back to haunt us. It is a normal human response and we worry about it. Angie,

Re: [CMLHope] Platelets

Hi Skip, With all that you have been through and still going through you are the longest surviving CML patient that I know of. 37 years and counting, but who is counting, you just keep on going on. This is for you to continue on 18's dear Skip. Marty On Sun, Jun 14, 2015 at 9:05 AM, 'Skip

Re: [CMLHope] Cml and Shingles vaccine

Hi Kothal, Good question. I spoke with my doctor about this and since I have had two episodes of the Harpies Zoster virus (Shingles) he told me to go ahead and have the vaccine. However I am not or have ever been on any TKI's because they were not yet available 26 years ago when I had my bone

Re: [CMLHope] Re: Cml and Shingles vaccine

: ][image: ]18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On Jun 12, 2015, at 11:31 AM, Marty Gartenberg wa2...@gmail.com wrote: Angie who knows what to say about this? Some doctors say no while others say yes. Since I

Re: [CMLHope] Re: Cml and Shingles vaccine

Angie who knows what to say about this? Some doctors say no while others say yes. Since I already got the shingles way before my kidney transplant and way after my bone marrow transplant it was fine then. But now after my kidney transplant and that I am on a lot of immune suppressive drugs,

Re: [CMLHope] off Sprycel

Hi Choi, Pleural Effusions are quite common to people that are using Sprycel sometimes even on low doses. Since he also has the E55G mutation he or you may want to get in touch with Dr. Brian Druker and Dr. Moshie Talpaz. Both of these doctors are the CML experts Dr. Druker was the one that made

Re: [CMLHope] last Fridays test

Hi Richard, Very good hemoglobin count! This tells me something. Your TKI is going it's job and your kidneys are working well. It is your kidneys that produce a hormone (can't remember the name of this hormone at the moment) that goes to your bone marrow to help promote hemoglobin and red blood

Re: [CMLHope] Is the high cost of CML care worth it?

Dear Robert, at first I was perplexed by your question *Is the high cost of CML care worth it? Then I read your post to the bottom.* *I'm sure you know no matter how much money is spent on keeping us alive is a good investment. Twenty six years I was an experiment having a bone marrow transplant

Re: [CMLHope] Where is everyone?

: Marty, thank you so very much! I will use this help that you have given me. I appreciate it hugely! Hugely. Most sincerely, Angie -- *From:* Marty Gartenberg wa2...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Friday, June 5, 2015 8:47 PM *Subject:* Re

Re: [CMLHope] Where is everyone?

sincerely, Angie -- *From:* Marty Gartenberg wa2...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Friday, June 5, 2015 8:47 PM *Subject:* Re: [CMLHope] Where is everyone? Brian J. Druker, MD Director, OHSU Knight Cancer Institute JELD-WEN Chair

[CMLHope] Where is everyone?

Is everyone alright? I haven't a post from anyone in a long time. 18's Marty -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this

Re: [CMLHope] Where is everyone?

and with no platelets. They don't know WHAT to do with me. :( Angie in Canada -- *From:* Marty Gartenberg wa2...@gmail.com *To:* CMLHope@googlegroups.com *Sent:* Friday, June 5, 2015 7:35 AM *Subject:* [CMLHope] Where is everyone? Is everyone alright? I

Re: [CMLHope] Where is everyone?

On Fri, Jun 5, 2015 at 5:54 PM, ANGELYN ESDERS esd...@rogers.com wrote: Have you any idea how I could contact either of them? I think it could be well worth while. Thank you for the suggestion, Marty. Angie -- *From:* Marty Gartenberg wa2...@gmail.com *To:* cmlhope

Re: [CMLHope] Re: Mom's Obituary

I miss my Mommy Lottie. 18's Marty On Fri, May 29, 2015 at 7:35 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi all I sending this to remember and honor Millie, our brave cml warrior who lost her battle last year. She was so brave and fought pain every day of her life.

Re: [CMLHope] A bit of good news today

Sherri PCRU! EXCELENT 18's for sure. Marty[?] You need a great big hug! On Wed, May 27, 2015 at 3:04 PM, sherri swanson swanson.sherri...@gmail.com wrote: Hi Everyone! In the mist of all the bad news I've been getting lately, I got some good news this afternoon. My Onc called me

Re: [CMLHope] Picture of Marty and Shelly

Ponatinib January 2015 On May 26, 2015, at 12:16 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Jeanie, Sorry to hear about your husband I didn't know. Jeanie I know that you have gone through a lot of crap and there is nothing you can do about that but put it in your past where it belongs. You

Re: [CMLHope] Picture of Marty and Shelly

. I really don't feel like it but trying it anyway. Keep up the good work. Prayers Blessings Jeanie [image: ][image: ]18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 25, 2015, at 5:50 PM, Marty Gartenberg wa2

Re: [CMLHope] Picture of Marty and Shelly

:19 PM, ANGELYN ESDERS esd...@rogers.com wrote: Lovely to meet you both[image: *:) happy] Angie -- *From:* Marty Gartenberg wa2...@gmail.com *To:* CMLHope@googlegroups.com *Sent:* Monday, May 25, 2015 5:50 PM *Subject:* [CMLHope] Picture of Marty and Shelly

[CMLHope] Picture of Marty and Shelly

Well, I have been posting here for a long time and no one knows what I or Shelly look like. I must admit that this picture was taken several years ago before my kidneys failed. We were on a cruise and since then I have shed some weight. My beautiful wife Shelly is the love of my life. Once I'm

Re: [CMLHope] Platelets

Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my

Re: [CMLHope] Platelets

transplant? Maybe my bone marrow transplant? Who knows but no matter what I will still dedicate my life to try and help people if I possibly can. Now you know why I always end with 18's (life) Marty On Sun, May 24, 2015 at 8:24 AM, Marty Gartenberg wa2...@gmail.com wrote: Hi Angie, Please

Re: [CMLHope] Platelets

the best to you! 18's~ Angie -- *From:* Marty Gartenberg wa2...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Sunday, May 24, 2015 8:24 AM *Subject:* Re: [CMLHope] Platelets Hi Angie, Please read this about the effects to not only your platelet counts

Re: [CMLHope] Today's

Hi Beth, First Shelly and I would like to thank you for your birthday wishes. Now for a couple of corrections. Yes I do try to kick azz but I don't do any pushups on the commode, there are only two things that I use the commode for. Up until recently it was only one thing but since my kidney

Re: [CMLHope] Today's

Hi Greenie, I keep on saying that your mind is also a part of this process. You need to learn how and when to take control of your mind. Please remember something. When your upset or have any anxiety in your life then it effects your endorphin levels in your brain. The less of this hormone the

Re: [CMLHope] Today's report for Marty

all those doc appts. I hope you get to celebrate big! So great to hear from you, but I must get ready for vacation! Living life to the fullest and wishing that for all of you, too! 18's and blessings on your birthday, Susan F. Zimmerman -Original Message- From: Marty Gartenberg

Re: [CMLHope] Today's

Hi Susan and everyone else. Well another hospital stay but I just got home yesterday. This time it was phenomena so I was started on an iv antibiotic which I will have with me for about two more weeks. Anyway it was my goal to celebrate my wife's birthday which was on May 20th and mine is

Re: [CMLHope] Some bad news

Thank you greenie I just have to do what I have to do. It is only a bump in the road but a very painful bump but I just ride it out. There are no other choices 18's Marty On Sat, May 9, 2015 at 3:31 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Marty, you are one son of a gun, I

[CMLHope] Some bad news

As you already know I was discharged from the hospital yesterday with the catheter removed. When I got home I was able to urinate but only a little at a time. Later on in the evening I couldn't urinate at all and the pain was getting very bad I had no other choice to go to the Bethesda west

Re: [CMLHope] Re: Questions

Richard, That's what we are all here, to share our knowledge and experiences. Anyway, I go into the hospital again tomorrow afternoon to have my prostate operation. If everything goes ok then this horrible catheter will finally come out after more then ten weeks. It gave me a uti and I am on

Re: [CMLHope] My article re: CML

day. 18's, Susan F. Zimmerman -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, May 5, 2015 2:56 pm Subject: Re: [CMLHope] My article re: CML Well, well well Susan Zimmerman .01 Hugs, I also notice that you use 18's

Re: [CMLHope] My article re: CML

Well, well well Susan Zimmerman .01 [?] Hugs, I also notice that you use 18's as well. Good! 18's right back at you Marty On Tue, May 5, 2015 at 2:17 PM, rszim0702 via CMLHope cmlhope@googlegroups.com wrote: Hello Vic, I finally got tested again (bcr/abl) which showed my number as

Re: [CMLHope] Questions

HI Suzieq From my understanding The first patent for Gleevec expires in July 2015. This is the earliest predictable date that a generic version could become available. However this will probably be something that Novartis will fight and make some minor changes to it and maybe refilled it again.

Re: [CMLHope] What is on our outsides can not compare to what is in our insides

your possession. Psalm 2:8 -Original Message- From: Marty Gartenberg wa2...@gmail.com To: CMLHope CMLHope@googlegroups.com Sent: Sun, May 3, 2015 3:11 pm Subject: [CMLHope] What is on our outsides can not compare to what is in our insides Hot Chocolate. You will need power point

Re: [CMLHope] Today's Update

Hi Richard, And speaking about the 23rd psalm. FOOTPRINTS IN THE SAND One night I dreamed I was walking along the beach with the Lord. Many scenes from my life flashed across the sky. In each scene I noticed footprints in the sand. Sometimes there were two sets of footprints. Other times there

Re: [CMLHope] Today's Update

Richard, I am glad that your feeling better 18's, Marty On Thu, Apr 30, 2015 at 4:48 PM, Richard H rbhuffm...@gmail.com wrote: I spent 3 days in the hospital this week. Good news it was not necessarily related to CML, but CML was hiding the problems. 1. I had developed Vertigo, so we

[CMLHope] Have a happy everything

Hi everyone, We all go through our trials in life, some more then others but in our lives there is so much uncertainty that we sometimes loose track of what is really important. We are all very precious human beings and even though you may think that the world is coming down on you we must

Re: [CMLHope] Jeanie's update

Hi Jeanie, I had the same problem after my kidney transplant. My pulse was beating in the 145 and sometimes higher. The doctor gave me Cartizem and now my heart beats are normal but even more my blood pressure is just about perfect. 18's, Marty On Sat, Apr 25, 2015 at 6:24 PM, 'Icandoallttc'

Re: [CMLHope] Jeanie's update

Thank you greenie. 18's Marty On Sat, Apr 25, 2015 at 9:31 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Marty, I'm always glad to here good news from you, it's up lifting. greenie In a message dated 4/25/2015 7:41:34 P.M. Eastern Daylight Time, wa2...@gmail.com writes:

[CMLHope] Having a positive attitude

I always try to keep a positive attitude and as everyone already knows what i have already gone through, but i don't complain because i am still here. And if you look at yourselves and everything that your going through i want you to remember something. First are those two numbers i always send

Re: [CMLHope] Having a positive attitude

wrote: Marty, I am so glad to read your upbeat email. You are a very special man and I am thankful that you received your kidney. May God continue to bless you and your family Marcie Sent from my iPad On Apr 24, 2015, at 7:54 AM, Marty Gartenberg wa2...@gmail.com wrote: I always try

Re: [CMLHope] Marty's Post on CML2

-Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Apr 21, 2015 8:50 pm Subject: Re: [CMLHope] Marty's Post on CML2 Thank you Beth. I am trying to do a lot of exercise to try and get back into shape. It is working little

Re: [CMLHope] Marty's Post on CML2

Thank you Beth. I am trying to do a lot of exercise to try and get back into shape. It is working little by little but always moving forward, On May 7th i will have another operation on my prostate to make it be able to pass urine. I have had a urine catheter in me for more then seven weeks

Re: [CMLHope] Marty

Thank you Guy. The best of health to you. 18's Marty On Thu, Apr 2, 2015 at 8:48 PM, gene and guy Larcher gandglarc...@gmail.com wrote: Dear Marty, Hope you feel a little better each day and that you get good news from the docs regarding your transplant. The letter you wrote to the

Re: [CMLHope] Re: U[PDATE FOR MARTY

Just to let everyone know, I do consider all of you as my extended family. When someone hurts then so do we all. We are all a very tight knit group. Please know that It has been very difficult for me to stay in touch with all of you because this procedure has kept me in and out of the hospital

Re: [CMLHope] Re: U[PDATE FOR MARTY

, 2015 12:01 pm Subject: Re: [CMLHope] Re: U[PDATE FOR MARTY Oh, Marty, it is so good to hear your voice. We understand your situation and will continue our prayers for you. Rest and heal. God bless and keep you. Joyce in IL On Mar 30, 2015, at 7:54 AM, Marty Gartenberg wrote

Re: [CMLHope] Re: U[PDATE FOR MARTY

Hi everyone, I did get my kidney transplant and I am trying to recover, i am in a lot of pain but when I feel better I will let you know 18's On Sun, Mar 29, 2015 at 8:19 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Jeanie, let's us know as soon as you find out something. O.

Re: [CMLHope] U[PDATE FOR MARTY

Hello to everyone, Now you all know why I do what I do. I love all of you just as my extended family. I am so honored and grateful to be a part of your lives, your very precious lives. I would like to share with all of you, a letter that I wrote to my kidney donors family. I would hopefully

[CMLHope] Kidney transplant

I thought that everyone should know, When I arrived at dialysis this morning I had a phone call from my transplant coordinator. She told me that there is a kidney for me and I will have to go to the hospital late this evening. They still need to make sure that the cross match is good. If it isn't

Re: [CMLHope] Re: Kidney Transplant

.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.png. 18,s On Feb 19, 2015, at 6:37 AM, Marty Gartenberg wa2...@gmail.com wrote: Hi Maria, I'm sorry to hear about your kidney problems

Re: [CMLHope] Re: Kidney Transplant

Hi Maria, I'm sorry to hear about your kidney problems. If I can give you some advice? If you are not diabetic try drinking cranberry juice. It washes out your kidneys and keeps you hydrated. Good luck with your BMA, I am praying that everything comes out well. 18's, Marty On Thu, Feb 19,

Re: [CMLHope] Re: Kidney TransplantI

@googlegroups.com wrote: Hi Maria--I had BMA a few weeks ago. It just confirmed my leukemia. I'll send a highlight of mine soon. Are they going to put you to sleep? Good luck -- you will be ok. Praying for you Prayers Blessings Jeanie . 18,s On Feb 19, 2015, at 6:37 AM, Marty Gartenberg wa2

Re: [CMLHope] Re: Just checking in

Hi Suzieq, Hopefully soon. but it will come eventually, and I thank you for the 18's to everyone. Lately I have noticed more and more people on this site have been also using it. As far as the Desferal, I guess that it wasn't around when I had my bone marrow transplant and receiving those 93

Re: [CMLHope] Re: Your hemoglobin counts

Hi Richard, Well, your giving me more credit then I actually deserve. I lived in that plastic bubble for seven months, and this would be my first kidney transplant not my second. My first was the bone marrow one. All of the blood transfusions were done for and directly after my bone marrow

Re: [CMLHope] Re: Your hemoglobin counts

Hi Richard, Just because it didn't work (Procrit/Epogen) for you then that doesn't mean it won't work for you now. That should be discussed with your doctor. There are a lot of contributing factors so you can't really be sure until you have that discussion with your doctor. Possibly you weren't

Re: [CMLHope] Change from Sprycel to bosulif

Hi Jeanie, I hate it when a doctor tells you that something is your last hope. In my opinion I think that you need to find yourself another more qualified Oncologist. It just brings back some memories of my own. When I was first diagnosed my doctor's associate came into my hospital room and right

[CMLHope] Your hemoglobin counts

Hi Jeanie, Life is a complicated process. Having hemoglobin counts under 8 is a hard rock to chew on. I know because my usual hemoglobin counts are usually under 10 but since my kidneys no longer produce the hormone that goes into the bone marrow to help produce my hemoglobin my doctors give me

Re: [CMLHope] Your hemoglobin counts

-it's a treasure as you are. Prayers Blessings Jeanie 18's [image: ][image: ] On Feb 14, 2015, at 7:38 AM, Marty Gartenberg wa2...@gmail.com wrote: Hi Jeanie, Life is a complicated process. Having hemoglobin counts under 8 is a hard rock to chew on. I know because my usual hemoglobin

Re: [CMLHope] Re: Kidney Transplant

Hi Shannon, Thank you for all of your crossed joints [?] I appreciate it. I know that it will eventually happen just as I know there WILL be a cure for CML, and that is what I have all of my joints crossed for. 18's, and hugs [?] Marty On Thu, Feb 12, 2015 at 5:46 AM, Shannon L

Re: [CMLHope] Just checking in

Hi Suzieq, Don't worry about this to much. Remember there was a different lab used and they used a more sensitive test. I would just wait until your next ABL/PCR test and see what happens. I have already seen this many times. I keep on saying that there will be a cure for CML soon. It is only a

[CMLHope] Kidney Transplant

First I would like to thank each and every one of you for your prayers. As I pray for all of you I know that you have been also praying for me. This web site makes all of us as one caring family and it is always of help for all of us. I was just called by my transplant coordinator to inform me

Re: [CMLHope] Ponatinib

the good fight of faith. Every day is a victory! 18's, Susan F. Zimmerman -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Feb 6, 2015 5:36 pm Subject: Re: [CMLHope] Ponatinib Keep on going Jeanie. 18's, Marty

Re: [CMLHope] Ponatinib

Keep on going Jeanie. 18's, Marty On Fri, Feb 6, 2015 at 10:03 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Good morning everyone My blood results are in and my platelets came down a little--1050 million--WBC still at 14--still fighting. Prayers Blessings Jeanie 18's

[CMLHope] My twelfth surgery on my fistula

I got up this morning and went to the hospital to have some corrective surgery to the fistula in my arm. This operation was a little different from all of the others because I had to be intabated and general Anastasia was used. The operation lasted more then three hours, hopefully this one will

Re: [CMLHope] My twelfth surgery on my fistula

, Beth -Original Message- From: Marty Gartenberg wa2...@gmail.com To: CMLHope CMLHope@googlegroups.com Sent: Tue, Feb 3, 2015 4:21 pm Subject: [CMLHope] My twelfth surgery on my fistula I got up this morning and went to the hospital to have some corrective surgery to the fistula

Re: [CMLHope] Ponatinib

Greenie, They are called Q-Tips because all that you see from behind is like looking at a giant Q-Tip. Sometimes you don't even see that. It is like the car is being driven without anybody behind the wheel. Some suddenly decide to stop right in the middle of the street for no apparent reason .

Re: [CMLHope] Ponatinib John

Hi John, Just so you know when you have CML then your uric acid will also usually be high. That is why you are then started on Allopurinol. I have been on it for more then 25 years and I hardly ever get anymore gout attacks. 18's, Marty On Sun, Feb 1, 2015 at 11:22 AM, John Barrons

Re: [CMLHope] Update Jeanie's blood counts

Susan, I don't want to leave you out, so here it is from me to you. [?] 18's, Marty On Fri, Jan 30, 2015 at 11:27 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Dear Jeanie, Will surely be praying for you. Don't panic, and don't even be anxious! Worry accomplishes

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