[CMLHope] How are you!

How are you doing today?  Hope this email finds you well? will be so glad if you can do me a favour cheersAngie Sent from my Huawei phone -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed

Re: [CMLHope] Fun thing to do

I was a smoker. How many of us were smokers? One day at a supermarket I was in the direct line of fire when an old lady on a scooter hit a display of Javex. It splashed all over me.completely ruined my clothes...and I had to drive home on that VERY HOT summer day(two hr drive)  in clothing

Re: [CMLHope] 39 years with cml

Skip, I was really moved reading your story. I am Canadian and didn't know til now that you are from NS. Your story has made me ever more grateful and appreciative for my good fortune. I started Gleevec in January 2001 and was in remission by July of that year. I am now almost finished my 2nd

Re: [CMLHope] Marty

is may be graphic but is what it looks like. At least they can usually get these things out.    But you already know me and I usually don't like to complain.    18's, Marty On Tue, Nov 8, 2016 at 8:47 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: How are you doing, Marty? Feeling  better?Ready to j

[CMLHope] Marty

How are you doing, Marty? Feeling  better?Ready to jitterbug yet? -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

r 30, 2016 5:18 AM, "cmlhope@googlegroups.com" <cmlhope@googlegroups.com> wrote: | cmlhope@googlegroups.com | Google Groups | | Topic digest View all topics - Angie, your card - 2 Updates Angie, your card | ANGELYN ESDERS <esd...@rogers.com>:

[CMLHope] Zavie's List

This is all I have...  ZERO CLUB MEMBERS No. Name Surname City St Comment 1 Marty Gartenberg Staten Island NY BMT from sister. I now live in Florida 2 Linda Bartlett Cody WY Gleevec 3 Jeanelle Street Nederland TX  4 Vinny Carrasco    5 Rob Gebauer Roseville CA  6 Suzan McNamara Montreal QU 

Re: [CMLHope] Angie, your card

You are most welcome.I fractured my 9th vertebra a month ago. I have had to give up almost everything I do. I understand pain.May we BOTH be dancing on tabletops by this time next year!Angie From: Marty Gartenberg To: cmlhope@googlegroups.com Sent: Thursday,

Re: [CMLHope] All zero club members

I am # 76 From: 'Jeanie' via CMLHope To: 'Jeanie' via CMLHope Sent: Wednesday, September 28, 2016 7:30 AM Subject: [CMLHope] All zero club members Hi Florida - Sue Hurt If you haven't signed in yet and have your zero

Re: [CMLHope] Re: About Marty

Thanks for finding out about Marty. I'm really sorry to hear about all that he has had to endure. God bless him for keeping a positive attitude!Is there an address where he could receive greeting cards? From: 'LadyRx' via CMLHope To: cmlhope@googlegroups.com

Re: [CMLHope] Marty number

Has anyone called Marty? I am really curious to know how he is doingAngie in Canada From: 'Jeanie' via CMLHope To: Myvety2k via CMLHope Sent: Wednesday, September 7, 2016 10:02 AM Subject: [CMLHope] Marty number Here is

Re: [CMLHope] How is everyone

I'm great! Last week  my doctor told me that if I am in treatment free remission for one more year, I will be considered CURED (!) of CML. I was on the original Gleevec study since 2001.These words were music to my ears~~~Angie in Canada From: 'Jeanie' via CMLHope

Re: [CMLHope] Anyone out there. Testing

We're roasting in Canada! How hot is it? The chickens are laying hard boiled eggs. From: sherri swanson To: cmlhope@googlegroups.com Sent: Tuesday, July 12, 2016 8:06 PM Subject: Re: [CMLHope] Anyone out there. Testing Hi Jeanie, I'm out here in the

[CMLHope] ...and to all the Canadians........

Happy Birthday to Canada149 years old today!Canadian, Please | gunnarolla & Julia Bentley |   | |   | |   |   |   |   |   | | Canadian, Please | gunnarolla & Julia Bentley | | | | View on www.youtube.com | Preview by Yahoo | | | |   | -- -- [CMLHope] A support group of

Re: [CMLHope] Cancer Update from Johns Hopkins

Cancer Update Email -- It's a Hoax! From: Marty Gartenberg To: CMLHope@googlegroups.com Sent: Thursday, June 9, 2016 9:28 PM Subject: [CMLHope] Cancer Update from Johns Hopkins | | Marty Gartenberg | | | | | | | | | Johns

Re: [CMLHope] To Susan Zimmerman

, 2016, at 8:37 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: Hi. Marcie.Did your platelets also bottom out with your red cells?A year ago April I lost almost every single platelet, and also needed 6 blood transfusions in a week. The specialists had blamed it on my lupus. I recovered and str

Re: [CMLHope] To Susan Zimmerman

Hi. Marcie.Did your platelets also bottom out with your red cells?A year ago April I lost almost every single platelet, and also needed 6 blood transfusions in a week. The specialists had blamed it on my lupus. I recovered and strangely lost a LOT of hairbut I have been very well since

[CMLHope] Gleevec to give away

To anyone who would like them, I have 77- 100mg Gleevec pills to give away. I don't use it anymore and they are now 6 mo. old. I don't know if they expire or not, but it would be a sorry shame to let them go to waste.Email me privately (esd...@rogers.com)   and  I will be happy to mail them to

Re: [CMLHope] Does anyone remember Zavie and Ida Miller or Lottie?

I remember dear Zavie! We were going to Ottawa once and I asked him if he would join us for lunch. He was a guide at the art gallery in Ottawa and took us through. He was  such a nice fellow. He was the first one I contacted when I went into remission. I am not sure, but I think I was #68 or 69

Re: [CMLHope] Re: Hey, what happened to everyone?

er things, and I think that you already know me and I just don't give up.    18's Marty On Tue, Mar 1, 2016 at 7:05 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: I also have kidney disease. I have been on Gleevec since Jan. 2001 (300mg daily).  I have occasionally had swollen legs, but

Re: [CMLHope] Hey, what happened to everyone?

I'm alive and kicking...8 months off Gleevec and feeling fine so far. According to the dr. I have a 50/50 chance of either having the CML recur, or never hearing from it again. I prefer to be optimistic.Angie in Canada  diag. 2000. From: Marty Gartenberg To:

Re: [CMLHope] Re: stroke

HUGS! From: 'Susan Zimmerman' via CMLHope To: cmlhope@googlegroups.com Sent: Saturday, January 2, 2016 7:24 PM Subject: Re: [CMLHope] Re: stroke Dear Angie, Hooray for 6 mos free of gleevec!  I'm so hopeful I can stay off bosulif until I turn 65 next

Re: [CMLHope] Re: stroke

Best wishes, Susan. What a way to end the year!Wishing you all the best of health in 2016...May love increase, and troubles cease! I am so far off Gleevec for 6 months and no sign of trouble.Knock on woodAngie From: 'Susan Zimmerman' via CMLHope To:

Re: [CMLHope] Fwd: Fw: Fwd: Fw: THE MORNING AFTER THE ZOO'S CHRISTMAS PARTY.......

HILARIOUS!! From: Myvety2k via CMLHope To: cmlhope@googlegroups.com Sent: Thursday, December 31, 2015 3:17 PM Subject: [CMLHope] Fwd: Fw: Fwd: Fw: THE MORNING AFTER THE ZOO'S CHRISTMAS PARTY...    O. K. this is the last one I can't help myself

Re: [CMLHope] Fwd: Fw: Fwd: Bet You Did Not Know this

Thanks! Interesting...I did NOT ever hear of this before. From: Myvety2k via CMLHope To: cmlhope@googlegroups.com Sent: Monday, December 7, 2015 7:53 AM Subject: [CMLHope] Fwd: Fw: Fwd: Bet You Did Not Know this    Hi my CML friends and care givers.  A

Re: [CMLHope] Three months

great! 18's, Marty On Tue, Sep 29, 2015 at 8:18 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: After 14+ years, I have been off Gleevec for 3 months. So far, so good... All blood counts are A-OK.I am starting to feel a little braver about it now...Angie in Canada-- -- [CMLHope]

[CMLHope] Three months

After 14+ years, I have been off Gleevec for 3 months. So far, so good... All blood counts are A-OK.I am starting to feel a little braver about it now...Angie in Canada -- -- [CMLHope] A support group of http://cmlhope.com - You received this

Re: [CMLHope] Three months

. Our doctor never recommended to decrease the dose (4/day) or off. Hope to see lots and lots more people be able to live life free of it. All the best to you, Angie. Pari On Wed, Sep 30, 2558 at 7:21 AM ANGELYN ESDERS <esd...@rogers.com> wrote: After 14+ years, I have been off Gleevec for 3

Re: [CMLHope] Three months

ork! Marcie Sent from my iPhone On Sep 29, 2015, at 8:18 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: After 14+ years, I have been off Gleevec for 3 months. So far, so good... All blood counts are A-OK.I am starting to feel a little braver about it now...Angie in Canada-- -- [CMLH

Re: [CMLHope] happy Holidays!!

Heartfelt condolences, Jim. Very sorry for your loss.Angie   From: Nadia Noles To: cmlhope@googlegroups.com Sent: Friday, September 18, 2015 2:53 PM Subject: RE: [CMLHope] happy Holidays!! This is from Mr. Noles, the husband of Nadia Noles, a member

Re: [CMLHope] Stopping Gleevec and BMB X4 !

THEN MOVESINTO THE AREA OF POSSIBILITY.EVERY GREAT THINGEVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE BEGINNING OF A DOUBTFULUNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME...FOCUS... 18's,Marty On Tue, Jun 16, 2015 at 9:02 PM, ANGELYN ESDERS esd...@rogers.com wrote: I

Re: [CMLHope] Cml and Shingles vaccine

My doctor did not recommend the vaccination to me. I woke up one morning last year with blisters on my shoulder. Recognizing what it was, I was at the hospital within half an hour and received immediate medication. The patch of shingles stayed at about 2 by 3, and healed quickly.  The real

Re: [CMLHope] Where is everyone?

I'm still sitting here anemic and with no platelets. They don't know WHAT to do with me. :(Angie in Canada   From: Marty Gartenberg wa2...@gmail.com To: CMLHope@googlegroups.com Sent: Friday, June 5, 2015 7:35 AM Subject: [CMLHope] Where is everyone? Is everyone alright? I haven't a

Re: [CMLHope] Where is everyone?

Angie, I have a suggestion for you. Why not speak to one of the CML gurus like Dr. Brian Druker or Moshie Talpaz. They are both very fine CML doctors I hope it helps you out 18's, Marty  On Fri, Jun 5, 2015 at 9:32 AM, ANGELYN ESDERS esd...@rogers.com wrote: I'm still sitting here anemic

Re: [CMLHope] Where is everyone?

Code:  L592 Dr. Moshie TalpazA - Univers Of Mich Comp Canc Ctr - 1500 E Medical Center Dr - Ann Arbor, MI 48109 - (734) 647-8901 (Office) - (734) 232-1328 (Fax) 18's Marty On Fri, Jun 5, 2015 at 5:54 PM, ANGELYN ESDERS esd...@rogers.com wrote: Have you any idea how

Re: [CMLHope] Picture of Marty and Shelly

Lovely to meet you bothAngie   From: Marty Gartenberg wa2...@gmail.com To: CMLHope@googlegroups.com Sent: Monday, May 25, 2015 5:50 PM Subject: [CMLHope] Picture of Marty and Shelly Well, I have been posting here for a long time and no one knows what I or Shelly look like. I must

Re: [CMLHope] Platelets

hemoglobinhad dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time.Wishing all the best to you! 18's~ Angie On Sun, May 24, 2015 at 8:43 AM, ANGELYN ESDERS esd...@rogers.com wrote: Thanks, Marty. I have ordered organic papaya leaf tea

Re: [CMLHope] Platelets

://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so very

Re: [CMLHope] Platelets

platelet counts improve soon. regards, Ragavan On Sun, May 24, 2015 at 7:37 AM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so

Re: [CMLHope] Today's

I am so sorry that your dog was attacked and brutalized! We love our dog like a 3rd child and hate so much to see them in pain. I am  so sorry this happened to you. Hoping she will recover soon~~Angie   From: bkbarney via CMLHope cmlhope@googlegroups.com To: cmlhope@googlegroups.com

Re: [CMLHope] Platelets

powder and boil it. Filter it and drink warm. regards, Ragavan   On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie   From: Gopalsamy Ragavan graga...@gmail.com

Re: [CMLHope] Re: Platelets

Hi, John.I live in Brantford, just the other side of Hamilton. I go to Juravinski in Hamilton as well as McMaster. I was in the Gleevec study for 12 years.I have done so well on Gleevec  that no one has suggested any change in years. Hopefully they will find some way to stabilize my

Re: [CMLHope] Platelets

everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level?Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I

Re: [CMLHope] Re: U[PDATE FOR MARTY

BIG HUGS to you, Martyand best wishes for these pains and problems to pass.Thinking of you...Angie In Canada...but presently in New Zealand.   From: bkbarney via CMLHope cmlhope@googlegroups.com To: cmlhope@googlegroups.com Sent: Tuesday, March 31, 2015 11:16 AM Subject: Re:

Re: [CMLHope] Kidney Transplant

Marty, congratulations! I wish only the best for you.Yesterday marked 36 years since I gave my brother a kidney. Now I am a candidate for eventual dialysis, so every story doesn't have a good ending.I'm sure that with your indomitable spirit you will come through with flying colours.Angie in

Re: [CMLHope] Facing misfortune....

BELIEF AT THE BEGINNING OF ADOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME...FOCUS... 18's, Marty On Wed, Jan 14, 2015 at 10:06 PM, ANGELYN ESDERS esd...@rogers.com wrote: Truth be told, when hard times hit, and the challenges you face are great, you can either let your

[CMLHope] Facing misfortune....

Truth be told, when hard times hit, and the challenges you face are great, you can either let your situation define you, let it destroy you or let it strengthen you.  The choice is yours to make. -- -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] May 21st

Happy Birthday, Marty...  I hope you had a wonderful, happy day with joy and sweet surprises, and that these blessings will carry into the forthcoming year May 21st: My late brother John would have been 78 today. I gave him a kidney on Feb. 9, 1979. He died on Feb. 9, 1984. Funny how life

Re: [CMLHope] NY Times OHSU ad

 Thanks, Ruth! Very informative and interesting What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: mar...@enter.net mar...@enter.net To: cml2 cml2 c...@yahoogroups.com; CML HOPE HOPE

[CMLHope] Happy Passover!

     This comes to me from a friend in Jerusalem... Happy Passover plus Vivaldi.   לכל ידידי באשר אתם בארץ או בחול איחוליי לחג שמח וכשר מהנה ובריא חג פסחשמח!!!   http://www.youtube.com/watch?feature=player_embedded   -- -- [CMLHope] A support group of http://cmlhope.com

[CMLHope] Re: Gleevec and antacids

 I used to live on Gaviscon (an over-the-counter drug) for acid reflux. My dr. finally prescribed a daily pill call Pantoprazolemaybe 4 years ago. I NEVER EVER have acid reflux anymore. I take 300mg of Gleevec daily, as well as several other pills for various conditions. They are

Re: [CMLHope] Aniversary 13

 Good luck to you, Marty I passed 13 years with CML this past December. I have complications in the kidney also. I gave my brother a kidney in 1979. Sadly, my remaining one, that has been working solo for those 35 years, is starting to decline. I am on a special diet of low potassium and

Re: [CMLHope] In memory of Ida and Zavie Miller

Very, very nice. Angie What lies behind us and what lies before us are tiny matters compared to what lies within us From: Marty Gartenberg wa2...@gmail.com To: CMLHope@googlegroups.com Sent: Thursday, October 31, 2013 9:15:55 PM Subject: [CMLHope] In

Re: [CMLHope] Re: Posting for the first time in years

Hi, Shannon. I think I remember you from one of the online chat sessions that Zavie Miller used to arrange so many years ago.   I have been on Gleevec for 12½ yr now. I was quickly in remission and now take 300mg a day. I was told long ago to always eat protein before taking Gleevec to avoid

Re: [CMLHope] colonoscopy?

Ask the pharmacist. There are alternatives to that hideous and expensive gallon of fluid. There are other ways to accomplish the same. What REALLY annoys me is that the same laxative dose is given to a 5'2 woman as to a 6'6 man. It may work for a man, but for a small woman it is painful,

[CMLHope] Re: Does any one use Apple Cider Vinegar?

Every morning of her life my mother drank a glass of warm water containing a spoonful of honey and a spoonful of apple cider vinegar. She lived to age 97.  After I was born in 1947, she went 61 years without revisiting a hospital. She took no medications. (I sure wish I had inherited her iron

Re: [CMLHope] Re: Hi..Susan's Life

AWESOME Susan! That was very interesting. Keep on celebrating! What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: Susan Zimmerman rszim0...@aol.com To: cmlhope@googlegroups.com Sent: Saturday, July

[CMLHope] A good story....

 http://play.simpletruths.com/movie/the-empty-pickle-jar/store/   -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email

Re: [CMLHope] Photos

 MOTIVATED  LOVELIES?   CARCINOGENIC MOST LIVELY?  (ugh)   Susan -Original Message- From: ANGELYN ESDERS esd...@rogers.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Jul 12, 2013 11:35 pm Subject: Re: [CMLHope] Photos I conclude that the Warriors are an amazingly attractive

Re: [CMLHope] a picture for you

GREAT photo! Lovely kids, too~~ What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: C.M. Houtz ho...@ptd.net To: tasigna-support-group-...@googlegroups.com; CMLHope@googlegroups.com Sent: Friday, July

Re: [CMLHope] Photos

I conclude that the Warriors are an amazingly attractive group of people! CML? Currently More Lovely?? What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: myvet...@aol.com myvet...@aol.com To:

Re: [CMLHope] a picture for you

Nice to meet you, Millie. What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: C.M. Houtz ho...@ptd.net To: CMLHope@googlegroups.com; tasigna-support-group-...@googlegroups.com Sent: Thursday, July 11,

Re: [CMLHope] Taking a break from gleevec after over 12 years

Having been in remission for 12 yr. now, I see my oncologist only twice a year. When I saw him Thursday I brought up the topic of a break from Gleevec. He did not encourage it in the least, and he gave several reasons why he thought it was not a good idea.  I was a little disappointed, but...hey!

Re: [CMLHope] Re: Taking a break from gleevec after over 12 years

I started Gleevec at McMaster University Medical Centre in Hamilton, Canada, on Jan. 22, 2001. My tests in June 2001 confirmed that I had reached cytogenic remission. I think I was #69 in Zavie's Zero Club. I am planning to discuss a holiday from Gleevec next time I see Dr. Walker, my

[CMLHope] Cramping...

I was really bothered by cramping for some years (I have been on Gleevec for 12 years now.). I find that the best and fastest relief for cramping in the feet is standing barefoot on a COLD surface. As my bedroom is carpeted, I used to keep a large plastic covered book beside the bed to step on

Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon

Great advice, Marty! Angie in Canada What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Friday, April 19, 2013 9:30:59 AM Subject:

Re: [CMLHope] skin problems on tasigna

Any chance it is psoriasis? What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: patrickemailguard-g...@yahoo.com patrickemailguard-g...@yahoo.com To: cmlhope@googlegroups.com Sent: Sunday, February 24,

Re: [CMLHope] A girls last hope to beat Leukemia

] A girls last hope to beat Leukemia Hi Angie, I like your analogy Hugs. 18's Marty On Sun, Dec 9, 2012 at 11:13 PM, ANGELYN ESDERS esd...@rogers.com wrote: Simply amazing! Thanks for sharing this article. Angie in Canada What lies behind us and what lies before us are tiny matters compared

Re: [CMLHope] A girls last hope to beat Leukemia

Simply amazing! Thanks for sharing this article. Angie in Canada What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: Marty Gartenberg wa2...@gmail.com To: CMLHope@googlegroups.com Sent: Sunday,

Re: [CMLHope] Acid Reflux

I cannot remember NOT having acid reflux. My Dr. prescribed Pantoprazole and one pill a day takes care of the acid reflux. In all fairness, I cannot attribute it to Gleevec. Stress plays an important role, as well as food choices Æ in Canada What lies behind us and what lies before us are tiny

Re: [CMLHope] update on how many years we have been fighting CML

I started the Gleevec study in January 2001, was in cytogenic remission on July 5, 2001, and continue to be so 11 years later. Thanks be to God. I have taken only Gleevec. What lies behind us and what lies before us are tiny matters compared to what lies within us Angie

Re: [CMLHope] Xml

I was diagnosed on Dec. 11, 2000also 2 wks before Christmas!! Some dates just stick in your mind, huh? I started on 400mg of Gleevec daily.. reached complete cytogenic remission after 6 mo. Reduced to 300 mg daily and have been doing well for the past almost 12 years. (After 6 yr I developed

Re: [CMLHope] 15th CML Anniversary Today

Huge congratulations to you, and many happy returns of the day! How precious Life is! (I just had 11 yrs in remission in July) What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: Virginia Garner

Re: [CMLHope] are there creative authors in this group?

Your story sure has made the roundsI have read it many many times.  They say the author is unknown.   http://academictips.org/blogs/moral-tale-hospital-window/ What lies behind us and what lies before us are tiny matters compared to what lies within us Angie

Re: [CMLHope] Side effects

I don't know if it is a myth or not, but I was told many years ago to make sure I had a breakfast heavy in PROTEIN before taking my Gleevec. It sure seems to work for me! I might feel sick after a breakfast of toast and jam, but never after eggs or grilled cheese or ham on toast. Also, eating

[CMLHope] Zavie Miller

In August 2007, we arranged to meet Zavie at the National Gallery in Ottawa as we were going to see the Renoir exhibition. The spring in his step and the sweetest of smiles on his face helped us to recognize him immediately. Zavie took us through the art gallery, describing everything with

Re: Fwd: [CMLHope] tingling in hands....

 I have been on Gleevec for almost 11 years now, and I still get hand muscle cramps...actually, cramps anywhere and everywhere when there is sustained pressure on the muscles..e.g. drying lots of dishes, cutting with scissors, polishing silver, rolling cookie batter, walking a long time, etc

Re: [CMLHope] Re: French health service further investigating Gleevec

Interesting to read your mail. I just returned from  a trip to central Asia, and while there had a short bout of Pasha's Revenge. I took some Cipro...and had extremely sore muscles for a few days. I never had Cipro before. Wasn't sure what caused the severe muscle aches. Hm~ Angie What

Re: [CMLHope] leukemia heredity

Hi, Ruth and Dorothy! There is no leukemia in our family...Father had 7 brothers, and Mother is 97 yr old and the last survivor of 12 children, so that is a pretty broad spectrum. Angie What lies behind us and what lies before us are tiny matters compared to what lies within us Angie ---

Re: [CMLHope] Norma Beidleman

Hi, Ruth...I was astounded to hear that Norma had died! I got no CML Hope message about it. Tell me what you know. Norma and I have always kept in touch...I had not heard from her lately. The worst is, I got out my pics from the Spring Fling, and everyone is in the pics except Norma! God knows

Re: [CMLHope] Dosage Gleevec

I've been on 300 mg a dat for about 8 years now. Angie in Canada -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to

Re: [CMLHope] Prayers For Zavie Miller

Thanks for the good news about Zavie.It is so important for all of us to know how our friend is doing! Æ What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Fri, 6/3/11, Martin Gartenberg wa2...@gmail.com wrote: From: Martin

Re: [CMLHope] Prayers For Zavie Miller

A few years ago when we visited Ottawa to see the Renoir exhibit at the National Gallery, we arranged to meet Zavie, who also worked as a volunteer at the gallery. What a gem of a man! He took us through the gallery and just shone with love for the art he showed us. We had lunch together, and

Re: [CMLHope] FW: My Bone Marrow Cancer drug.

DONE! What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Tue, 5/10/11, Zavie Miller zmil...@sympatico.ca wrote: From: Zavie Miller zmil...@sympatico.ca Subject: [CMLHope] FW: My Bone Marrow Cancer drug. To: c...@yahoogroups.com,

Re: [CMLHope] Gleevec 106 trial - ending?

I am quite sure i was told that the trial would end after 12 years. Has anyone heard differently? Concerned guinea-pig in Canada, Angie What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Thu, 4/28/11, dstuede...@aol.com

Re: [CMLHope] Gleevec 106 trial - ending?

It has now been confirmed for me that the study ends Jan. 2012, as promised. Angie in Canada What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Thu, 4/28/11, dstuede...@aol.com dstuede...@aol.com wrote: From: dstuede...@aol.com

Re: [CMLHope] Gleevec trial 106

I received this news today from the Juravinski Centre, Hamilton, Ont. Angie What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Fri, 4/29/11, Cindy thea7...@aol.com wrote: From: Cindy thea7...@aol.com Subject: [CMLHope] Gleevec trial

Re: [CMLHope] Druker in Smithsonian Magazine

Thanks, Ruth! Angie-in-Canada What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Tue, 4/26/11, marcon mar...@enter.net wrote: From: marcon mar...@enter.net Subject: [CMLHope] Druker in Smithsonian Magazine To: cmlhope@googlegroups.com

Re: [CMLHope] Re: CHILLLLLLS~~~~~

Your mention of deep freeze chills really caught my eye. I had 3 episodes of that before my diagnosis (I was diagnosed with CML in 2000). I would shake with cold, and my skin HURT as though I was trapped in a deep freeze. Neither hot tea, nor blankets could get me warm. I told my family doctor

[CMLHope] Tenth Anniversary

Dec. 11 marked 10 years since the doctor informed me that I had a blood disorder I had never even heard of beforeCML. I have been on Gleevec all these years and doing quite well, having reached remission in July of 2001. This year, I made a trip alone to the brilliant little country of

Re: [CMLHope] Tenth Anniversary

Thanks, Greenie! All the best to YOU! Æ --- On Sun, 12/26/10, myvet...@aol.com myvet...@aol.com wrote: From: myvet...@aol.com myvet...@aol.com Subject: Re: [CMLHope] Tenth Anniversary To: cmlhope@googlegroups.com Date: Sunday, December 26, 2010, 12:39 PM Good for you Angie.  I'll drink to

Re: [CMLHope] Remission....Finally....

CONGRATULATIONS, MILLIE! What  great  news! How will you celebrate? Angie in Canada Hi all,   Just came back from my Oncologist and the news is that I'm in complete remission.  I don't know who was happier, him or me.  It's been a long journey, but I finally made it.  I still have to

Re: [CMLHope] Re: Question For The Ladies

My hairdresser has been doing my hair for about 12 years. She laughs to see my poker straight hair getting curlier every year, and she knows I have not had a perm. Same thing: My hair frizzes up in dampness. I have found the product by John Frieda, Frizz-Ease, to be very effective in working

Re: [CMLHope] EYE BLEEDS

I've been on  300 mg Gleevec since Jan. 2001 and have never yet had an eye bleed. Knocking on wood Angie in Canada -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups

Re: [CMLHope] Emailing: DSC_0174, DSC_0198, DSC_0240, 01 - Tour of Novartis Gleevec Plant - Ringaskiddy, IrelandDSC_0357, 02 - Joe Shrieves and Maeve Devlin - DSC_0284, 03 - Susanne - DSC_0303, 16

Hey, Zavie! Thanks for the photos. That was a surprise to see where they were made. I wish you had put more captions with the pictures! Thanks, hon...and hope you are doing welll Angie --- On Tue, 8/3/10, Zavie Miller zmil...@sympatico.ca wrote: From: Zavie Miller zmil...@sympatico.ca

Re: [CMLHope] Post some photos

Ted, Thank you for the wonderful photos! Angie (CANADA) --- On Fri, 7/23/10, Ted fanruif...@gmail.com wrote: From: Ted fanruif...@gmail.com Subject: [CMLHope] Post some photos To: cmlhope@googlegroups.com Date: Friday, July 23, 2010, 3:17 AM Hi everyone ,this is Ted, 19 years old from China,i

Re: [CMLHope] Re: Gleevec and Prednisone

I was dx'd with CML in 2000 and went straight into a drug study for Gleevec, and never had any other treatment. I reached complete remission in July of 2001, and have remained there, taking 300 mg per day ever since. I am still monitored by the study. From  2004 I suffered terrible skin lesions

Re: [CMLHope] Brittle Bones

I have been on Gleevec for 9+ years now. I had a stress fracture in my left foot in the last year. I could not recall injuring the footit just started being painful and an xray revealed the cause of the pain. I have also been on prednisone because of lupus for the last 4 years. I take

Re: [CMLHope] Nausea and exercise

At the beginning, in 2001, I felt nausea each time I took my 400mg of Gleevec. I worked around it by getting up early enough to take  half a Bonamine (motion sickness pill). After it had time to get working, I would eat a big bowl of oatmeal. Then I took the Gleevec. It seemed to me that the

Re: [CMLHope] H1N1 flu vaccine

I had it a few weeks ago on my oncologist's suggestion. My arm was a bit sore for a few days. That's ALL. Angie in Canada --- On Mon, 11/16/09, Émile Fichault fi...@videotron.ca wrote: From: Émile Fichault fi...@videotron.ca Subject: [CMLHope] H1N1 flu vaccine To: CMLHope@googlegroups.com,

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