John,
Thanks for clearing that up for us. That was my mistake. I realized it
after she responded to my e-mail. Did I not say
that my concentration isn't what it should be (and neither is my memory).
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
That was a really cute card. Thank you for sharing.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Create a Home Theater Like the Pros. Watch the video on AOL
Home.
Thank God for the lamp post!
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Create a Home Theater Like the Pros. Watch the video on AOL
Home.
(http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
How and why was your urethra burned close? I have never heard of this. Is
this something they usually do when you get a suprapubic catheter?
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Create a Home Theater Like the Pros. Watch the video on AOL
Thanks for the website. I love Joel Olsten
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Create a Home Theater Like the Pros. Watch the video on AOL
Home.
(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
PQ,
I heard about the Word of God by attending church on Sundays and Bible
studies on Wednesdays. Now that I don't attend church as much as I used to, I
use
the audio Bible website to read the Bible.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
Are you one of those who spend their profits on their own products? LOL
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Create a Home Theater Like the Pros. Watch the video on AOL
Home.
When you have tattooed eyebrows, what do you do about your real eyebrows?
Won't they still need waxing or plucking?
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Create a Home Theater Like the Pros. Watch the video on AOL
Home.
Dianna,
Please do send a picture. I cannot visualize what you're saying. I haven't
worn make up since I got out of the hospital, and I am very interested in
knowing how other women apply theirs.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Create a
John, you are a scream! Stop it!
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**It's Tax Time! Get tips, forms, and advice on AOL Money
Finance. (http://money.aol.com/tax?NCID=aolprf000301)
Cullen,
We haven't heard from you lately. I was wondering if you were still on the
list. I'm glad to know that you are still here. What have you been up to
lately? I am currently in physical therapy using a machine called the
Locomat.
It is very high-tech, and pretty cool.
_[HOCOMA]
I lived in Michigan. Ypsilanti Township, near Ann Arbor.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**It's Tax Time! Get tips, forms, and advice on AOL Money
Finance. (http://money.aol.com/tax?NCID=aolprf000301)
Keith, who pays for your aides?
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Ideas to please picky eaters. Watch video on AOL Living.
(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/
Stacy,
I totally agree with you. There are more pressing issues that this website
could address that would be a great help to those of us who need it. I went
into the Transverse Myelitis website, but found that the quad website is
where I can get the most information for my needs. When
Gina,
How did they find out your hip was dislocated? Was it your doctor or a
therapist who told you this? Did they explain how it became that way?
I ask these questions, because I am paralyzed on the right side and have no
use of that arm. Because of the paralysis, my arm has
Lori,
I have been paying out of pocket for an aide. It is really a financial
struggle, but I haven't been able to get any help from anywhere.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**The year's hottest artists on the red carpet at the Grammy
How do you all acquire aides and who pays for them? I have been told I
don't qualify for an aide through Medicare because I am custodial care. Does
Medicare pay for an aide for anyone? Are your aides private pay, or paid
through Medicaid? What are your Medicaid guidelines?
Naomi
How did you get your state to pay for your aide? I also have a nurse that
comes once a month for cath changes. She told me that there may be a problem
since I now go to outpatient therapy. I am no longer considered homebound.
I am unable to drive and has to depend on others to take me
I don't do a bowel program either. I take stool softeners daily and eat
lots of fruits and vegetables. I suppose gravity is what makes me go. Once I
eat enough food, usually every three days, I will go on my own. The only time
I have a problem, is when I take an excessive amount of pain
That was funny!
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Start the year off right. Easy ways to stay in shape.
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489
Quadius,
Was your surgery recommended, because you weren't drinking enough fluids or
drinking too much fluid? Thank you for your response and the information.
It is much appreciated.
Naomi
**Start the year off right. Easy ways to stay in shape.
My whole purpose of getting the catheter is to prevent UTIs. I have them
back to back. Do you self cath or use some type of bag connected to your
catheter?
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Biggest Grammy Award surprises of all time on
Thank you all for your information on super pubic catheter. You have helped
me a lot in trying to decide. I will ask the neurologist about the bladder
augmentation, Also
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**Start the year off right. Easy
I went to my doctor yesterday and she suggested that I have a super pubic
catheter put in, because I am constantly plagued UTIs. I don't know if this
is
a good idea or not. I don't have access to a shower, so I just get bed a
bath every day. I have read several things on this list
Wheelchair,
What will make someone unable to accept SP? What is the difference between
bladder augmentation and SP? I have an appointment with my urologists in
February. I guess he will explain all this to me. I'd just like to get input
from those who have experience with SP, which
Subject: muscular contractions
A Professor was giving a lecture on Involuntary Muscular Contractions to
his first year medical students. Realizing that this was not the most
riveting subject, the Professor decided to lighten the mood slightly.
He pointed to a young woman in the front
Mark,
I am in my fourth day of wearing the patch. I am on a very low dose at this
time (25 mg). It has helped a little. I hope constipation will not become
an issue. I have had a problem with constipation with every pain medication
that I have taken. I have Miralax waiting, just in
W,
I bet you are, indeed, a chick magnet.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**See AOL's top rated recipes
(http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Naomi
**See AOL's top rated recipes
(http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
inline: god%20bless%20you%20picture.jpg---BeginMessage---
WHAT A MISERABLE LIFE!
And when the people complained, it displeased the Lord: and the Lord
My neuropathy is really getting the best of me. I am currently taking 400
mg of Lyrica two times a day, in addition to Vicodin 750 three times a day.
My feet, legs, both hands, and right arm hurts so bad all the time.
My doctor has prescribed a Fentanyl patch. I looked this medication
Glenn,
I was just thinking that same thing earlier today. I hope someone will
respond to this.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**See AOL's top rated recipes
Dave,
That is hilarious! I may have to use that line one day.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**See AOL's top rated recipes
(http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
I used to be plagued by the same problem. I am now taking Protonix. It has
been under control since then.
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
**See AOL's top rated recipes
Is the microphone wireless?
Naomi
**Check out AOL's list of 2007's hottest
products.
(http://money.aol.com/special/hot-products-2007?NCID=aoltop000301)
Marie-Frances.
Thank you so much for your well wishes. I am still a bit under the weather,
but I'm sure I will be fine in a few days.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** See what's new at http://www.aol.com
John,
Thank you for your well wishes and prayers.
Naomi
** See what's new at http://www.aol.com
inline: god%20bless%20you%20picture.jpg
Greg,
I was just prescribed Cipro when I went to the hospital the other night, and
I wake up with terrible headaches. I think I will call the doctor and ask
for something else.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
**
I know exactly what you mean. I was in the hospital last night between 3:30
a.m. and 10:00 a.m.. I had a real bad case of AD, which shots my blood
pressure up skyhigh. My head was pounding like someone was hit me with a
hammer.
While at the hospital, they determined I had a severe UTI.
Count your blessings! It has been an ongoing problem trying to find
competent help. After awhile neither family, nor friends are willing to help.
Your
wife is a dedicated devoted woman. Never take her nor her caregiving for
granted.
Naomi
C-4 quad, incomplete since July 2, 2005
John, you are a crazy man! I just saw the wagon go past looking for you.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** See what's new at http://www.aol.com
Lori,
All doctors are not the same and it is a shame that the majority end up
being criticized because of the few.
My sister is an orthopedic surgeon, and she really enjoys her job and
helping people, she gets so frustrated dealing with the insurance companies,
while
trying to provide
Stacy,
I have the same problem with my urologist. They will not believe I have a
UTI, because I don't have a fever. I know my symptoms of a UTI better than
anyone. I have to pretty much beg them to take a urine sample, which always
comes back with some type of infection. I just asked
Dave,
On your next visit, they are going to send some big burly guy out. Be
prepared! That oughta keep blood pressure down.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
John,
Yes, we are all waiting for Bush to exit office, so that we can get up to
speed on stem cell research.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
Cullen,
My left leg is pretty strong. It is about normal strength, but with
diminished sensation. My left arm, I can only lift to my bust line and it's
always
pulling inward. If I try to reach up and out my arm goes down. It's very
hard for me to even scratch my fore head.
The
Did we pass?
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Nicki,
Yes, you go right ahead and scream as much as you feel you need to. Your
van ordeal has really scared me. I need to get a new van and just knowing
what
you've been through, makes me leery of even buying one. Good luck on
getting your van back and it working properly for you.
You all are crazy! :-)
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
They Left the Kids In the Van?!
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
I don't care what color it is, as long as it is big enough for me to see.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
I truly enjoyed reading the posts on this message board, but I have one
concern. Due to the fact that mother nature has taken a toll on my eyesight,
not
to mention what the medication has done for it, I would really appreciate if
the font size could be a bit bigger. Some of the font size
Tim,
What time is dinner? :-) Happy Anniversary!
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Dan,
I'm so sorry to hear about your syrinx. Yes, he's great to still be alive.
My Transverse Myelitis hit me instantly. I had to life symptoms(fever,
chills, diarrhea, etc.) for about four days, then while sitting at my nephew's
wedding reception. I had a terrible pain in my neck and
Luke,
I purchased the Oxy cycle, off-line. It serves my purpose. I am paralyzed
on the right side, so I have to have my right foot tied up to the pedal with
a nylon stocking. It is electric, and the speed is adjustable.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
Dan,
For sure, you can last another 10 years. You probably thought you couldn't
last these past 10 years, but you did. Congratulations on making it the past
10 years! Look forward to the future. I only two years post, and those
were our hardest to years of my life (I'm 50 years old).
Dave,
I agree with you. Any days or years post, are good years. I know most of
us probably thought we wouldn't live to see the next day, but was still here.
Praise God!
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a
Tim,
Sorry to hear about your accident, and about the pain and suffering you've
had to endure. Sounds to me like you need to consult with an attorney. They
will be good at letting you know what type of liability case you should
pursue
Naomi
C-4 quad, incomplete since July 2, 2005
Dana,
It is not a given that physical therapy will help me, but it is the only
thing left to try. It cannot hurt me.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
Greg,
For some reason, the visual of your last sentence, cracked me up. That was
so funny to me. Probably, because I've been in the same situation and
thought the same way.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get
Dave, stay away from the pool! Please! Don't scare me like that.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Okay, Dave. I guess I can live with being very careful.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Diane,
Yes, I happened taken Cymbalta for two years now. I'm not sure as to how
much pain it relieves, because I also take Lyrica and Vicodin for pain. I was
given Cymbalta for a dual-purpose, pain relief and antidepressant. It works
very well as an antidepressant. I would say, it's
Yeah, sure! :-)
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Dave,
Thank you so very much for putting this information on the board. I read
through part of it and found it to be quite interesting. Thank God for new
medical technology!
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get
Diane,
There's nothing wrong with being proud of your daughter. We're proud of her
also.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Howard,
Here is a link to a website that can explain it better than I
can._Transverse Myelitis Fact Sheet: National Institute of Neurological
Disorders and
Stroke (NINDS)_
(http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm)
Naomi
C-4 quad, incomplete
Cullen,
Thanks for that information on the pants. I looked up wheelchair clothing
and found there were quite a few websites available. I'm going to look and
some of them later and see if there's something that I could use. Thanks
again. Happy Wheeling!
Naomi
C-4 quad, incomplete
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
---BeginMessage---
-Original Message-
From: Juanita McReynolds [EMAIL PROTECTED]
To: Daredb97 [EMAIL PROTECTED]; Sthenry7 [EMAIL PROTECTED]; [EMAIL
PROTECTED];
Quadius,
We will miss you tremendously. I always look forward to your input. Good
luck what your colonoscopy. I have to have one next month. I also have
Crohn's disease, and colonoscopys a are a way of a life for me.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
Corie,
You answered every question, I had regarding your belly bag. Thank you very
much.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Data,
Thank you very much for your prayers, I need all the prayers I can get.
Here's a link that has more information on Crohn's disease._Crohn's Disease_
(http://digestive.niddk.nih.gov/ddiseases/pubs/crohns/index.htm)
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
Cullen,
Excuse my ignorance, but why would wheelchair clothing to be different?
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
This has been around before but it is one of the best that I have seen
in awhile. Reality check.** *
*There was a blind girl who hated herself because she was blind.*
*She hated everyone, except her loving boyfriend. He was always there
for her.*
*She told her boyfriend, If I could
Ron,
I am so sorry you had to experience that! Some people are so damn
insensitive and selfish. Thank God, things have changed through the years. I
know
things aren't what they should be, but hopefully, we are much more acceptable
than 30 years ago. I agree with you and Tim both,
Tim, that was hilarious! I'm going to keep that one in mind for later use.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peak of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
I especially like the one with the ham sandwich. Those were hilarious!
Thanks for sharing.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peak of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Lori sent me this information and ask me to forward it to the list. I think
it's a great idea!
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peak of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Cori,
I was going to order a daily bag, just to try it out. I am so glad you
offered this suggestion first. This way I can try a belly bed out, without
purchasing anything new. I only have one question. Was the elastic in your
shorts/Capri. The only thing that held the bag up or do to
Quadius,
Please, tell me more about this belly bag. This is the first I've heard of
it.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** Get a sneak peak of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Greg,
I also have one of those pedal bike things (Oxy cycle). I am using mine for
my legs. My right leg is paralyzed and will not stay on the pedal, so my
aid tied my foot to the pedal with a pantyhose. She is the only one that
knows
how to tie it so my foot doesn't fall out. When I
Quadius,
Today marks my two year anniversary for my Transverse Myelitis. It's really
depressing because I thought, by the two-year period, I would have gained
more movement and made more progress. To be perfectly honest, I'm worse off
than I am when I left the hospital. I am still
Dan,
I believe that is the symbol for paragraph. If that is the case, click on
Format then Paragraph this should take care of the problem. If not, then
I'm not sure what it is.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
**
Cullen,
You have to do whatever works for you. I suppose the pump isn't for
everyone.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** See what's free at http://www.aol.com.
They are going to have to cut the price in half and then give me a hefty
discount. I will love to have one of these wheelchairs, but that price is a
bit
out of my reach.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** See
Quadius,
I hope this is what you were referring to: _Adjustment Instructions_
(http://www.therohogroup.com/medical/properadjust/instruction.html)
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** See what's free at
Cullen,
Yes, you are correct. The pump distributes a measured amount of medicine at
timed intervals. Because the medication does not go through your entire
body to get to where it needs to be, the dose is significantly less and the
side
effects are null. The medicine from the pump
Yes, isn't that crazy ridiculous. Who could afford that, besides the filthy
rich.
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis
** See what's free at http://www.aol.com.
Nicki,
Congratulations on your nine year anniversary! I bet you have learned a lot
and saw a lot of changes in the diagnosing and managing of TM, in those nine
years.
Wishing you continued good health of your mind body and spirit!
** See what's free
Cullen,
I went through that whole 9 yards with the baclofen. I was taking more than
the FDA recommends, and I still wasn't getting the relief I need. My spasms
were given in the way of my therapy. I ended up putting the Baclofen pump
in last July. As a matter of fact, I just went to
Cullen,
Welcome to the quad list. My name is Naomi and I am also a quad due to
Transverse Myelitis. July 2 will be my two year anniversary date. I joined
the
quad list, because it has more information pertaining to me and my condition,
then the Transverse Myelitis list. I live in
For some reason, I have start receiving e-mails from the Quad message board.
I hope this e-mail is received, and then I will continue to receive e-mails
from the board.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
** See what's free at
Dave,
I was told to use a vinegar and water solution to plane the bed bag and leg
bag.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
** See what's free at http://www.aol.com.
While I was in the nursing home, my doctor there gave me an overdose of
Zanaflex, which I had a severe reaction. My doctor panicked and took me off
all
my medications, including my Baclofen, Lyrica and Vicodin. I thought I was
going to die!! I had such severe spasms, I nearly jumped off
Jim,
I agree with you 100%. I am married and disabled. Finances are a major
part of any relationship, but especially crucial, when there is a loss of
income
and the expense of medical equipment, medication, medical assistance, and
anything else that comes along with being disabled.
Angie,
What about those of us who weren't in an accident, but because of an
unforeseen or unpreventable illness, became paralyzed in a matter of minutes??
I know I had anything to do with it, this is not be what I would've chosen.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
Do you have a Foley catheter?
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
** See what's free at http://www.aol.com.
Luke,
Congratulations on going back to school. Good luck on collecting your
documentaries and making others aware of people with disabilities. If I had a
documentary, I would be happy to share it with you.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
In a message dated 3/24/2007 7:54:19 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:
http://www.veoh.com/videos/v325456xTPD2rBP
I just got finished looking at your video. It was great! Too bad I didn't
have any pictures to contribute to it. I would have loved to have been in
K,
I was faced with the same dilemma. I was running Dragon Naturally Speaking
8.0, when I encounter a problem with it on my computer. I could not get it
to work properly. I deleted it from the computer and tried to reinstall it.
It didn't work. I purchased a 9.0 version, only to find
Dave,
I thought it was just me! Thought maybe the date was wrong.
Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
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