Re: [QUAD-L] Wanchiks writer?

[Don Smith]

Amazon.com has them


Virus-free.
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On Wed, Jan 30, 2019 at 12:34 PM RONALD L PRACHT 
wrote:

> Does anybody know where I can buy a Wanchiks writer for a right handed
> quad?I know sammons preston is not out there anymore. For people that dont
> know what it is..its a device that goes onto your hand that allows a
> pen to be inserted and you write. Also I cant find the old phone holders
> that you can attach to anything and gives you something to grab onto.
>
> Ron
>

Re: [QUAD-L] Strange Question

[Don Smith]

Your van should have a spare tire the tow truck driver could have put on.


Virus-free.
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On Tue, Jan 1, 2019 at 11:01 PM Dana Wray  wrote:

>  Hi Lori, Eric,Jim, Greg, Nancy and  all fellow Quad-list  members,
> I have suffered  numerous  medical situations  that could’ve ended my
> life. The Lord is not finished with me yet.   Lori  and all, I commend you
> on your survival  experiences. I wish I could document all my experiences
> like Lori  is able to do. I  thank you all  for sharing your life stories.
> I  have had some strange experiences when septic. I was  in a coma twice.
> Several situations were physician error. Yesterday after leaving a
> appointment  for blood work and Prolia  shot for osteoporosis. My caregiver
> hit the curb and blew out my tire and wheel  on the front right tire. I was
> able to get it towed by AAA but it took an hour and a half to find someone
> to bring me home. A taxi service said they did not provide that kind of
> transportation.  Finally someone through AAA found out three places to
> call. It happened around 5:30 PM and I got home around   9:30 PM. I am  at
> blessed  that AAA waited till 10-10  large wheelchair  assessable van
>  arrived. I thought it was going to be a desperate situation.  AAA  wanted
> to pay for it  by credit card but the taxi company would not accept. I
> thought this was strange. Has anyone else ever had this experience, when
> their vehicle was not drivable?
>  Dana C4-5  complete, 44 years post. 7/26/74, passenger in a motor vehicle
>  accident at 20
> On Fri, Dec 21, 2018 at 1:21 PM Lori Michaelson 
> wrote:
>
>> My injury (car accident) happened nearly 40 years ago and I was in the
>> hospital for a total of 13 months (October 1979 to the end of November
>> 1980) because I was so bad. I was not even able to sit up until I got to
>> rehab so I was flat on my back for at least two thirds of that time  which
>> included a neck fusion and having a tracheotomy at least 8 months. During
>> that time alone I came close to dying so many times I can't even remember
>> if and ever since.
>>
>> I had such a bad neck injury that I choke often but have figured out that
>> it is from tight neck muscles so it is 100% easier for me to swallow laying
>> down. I have choked over 1000 times or more whereby I almost died. A
>> neurosurgeon nearly killed me in Brooklyn New York after I finally got the
>> diagnosis of Posttraumatic Syringomyelia and would have easily died if my
>> ex common-law husband of 13 years was not with me. They let cerebral spinal
>> fluid leak out of the back of my head for two weeks without doing anything!
>>
>> That is only a small list of so many times and I almost died this year
>> when my sodium level dropped so low that I did not know who I was, began
>> chewing on my finger without even knowing it (and I would have broken it
>> had my caregiver not noticed it was happening) so I was rushed to the
>> hospital and spent two weeks in ICU, aspirated twice before and after the
>> hospital requiring a chest tube and one week later for a total of three
>> weeks in the hospital this year. Unbelievable.
>>
>> ~Lori
>>
>> On Fri, Dec 21, 2018 at 10:46 AM Eric Olson  wrote:
>>
>>> A couple times but try to learn something so it doesn't happen again
>>>
>>>
>>> 
>>>  Virus-free.
>>> www.avast.com
>>> 
>>> <#m_5896484920279362603_m_-9073437861150003753_m_-1256766246196393347_m_1553701315410400077_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>>>
>>> On Thu, Dec 20, 2018 at 7:13 PM Greg  wrote:
>>>
 Since your injury, how many times, because of your injury, have you
 come close to passing?

 Me, 3 Times...

 OD, medication interaction.

 Almost fell in Pool when no one was around, seatbelt on. (I no longer
 use a seatbelt, only chest strap if I go out by myself. Actually a few
 close calls.

 Choking, eating bread, it got stuck very bad. Could not breath. Semi
 heimlich got it out.

 Greg

>>>
>>
>> --
>> "Petting, scratching and cuddling a dog could be soothing to the mind and
>> heart and deep meditation and almost as good for the soul as prayer." ~Dean
>> Koontz
>>
>

Re: [QUAD-L] Strange Question

[Don Smith]

Three times, food poisning, allegic reaction to medicine and pneumonia

On Thu, Dec 20, 2018 at 5:13 PM Greg  wrote:

> Since your injury, how many times, because of your injury, have you come
> close to passing?
>
> Me, 3 Times...
>
> OD, medication interaction.
>
> Almost fell in Pool when no one was around, seatbelt on. (I no longer use
> a seatbelt, only chest strap if I go out by myself. Actually a few close
> calls.
>
> Choking, eating bread, it got stuck very bad. Could not breath. Semi
> heimlich got it out.
>
> Greg
>

Re: [QUAD-L] Tipped Over, Ouch

[Don Smith]

A few years ago I was in my chair and dozed off and drove off a six inch
curb and tipped over on the side in a lane of traffic.  Lucky for me I
didn't get hurt, they got m e back up and paramedic checked  me out and on
the way I went

On Wed, Jul 4, 2018 at 11:23 AM Greg  wrote:

> Bad Day for me yesterday. First I get stuck on a packed gravel trail I’ve
> used for years. No one around, so I called home. My helper comes out and
> gets me unstuck. I take off again and in the rear view mirror, my helper
> sees me spin and flip over. 1st time in 36 years I've ever when completely
> over…
>
> I think I hit a rut in middle of a main street, it spun me around and me
> and my chair go down. Broke my shoulder. Clavicle. Luckily its still lined
> up, so as long as it heals strait, no surgery.
>
> It took 5 guys to stop and tip me back up. I never had such pain. As I’m
> laying there thinking “I hope someone stops to help soon.” I'm saying out
> loud “O Fuc* Me”
>
> Spent the afternoon in the hospital getting x-rays, ribs, neck, arms,
> wrist. Only issue is shoulder.
>
> Greg
>

[QUAD-L] Re: [QUAD-L] Re: [QUAD-L] RE: [QUAD-L] Food 菱 prepared

[Don Smith]

​My caregivers fix all my meals, but I always let them know what I want and
go shopping with them.


On Mon, Jun 4, 2018 at 2:03 PM, Amy Elizabeth Baldwin <
the.littleq...@yahoo.com> wrote:

> All of my food and meals are fixed for me.
> At home and when I go out to eat.
>
> I couldn't resist making a comment on it!
>
> •~ LittleQuad ~•
>
> Sent from Yahoo Mail on Android
> 
>
> On Tue, May 29, 2018 at 5:31 PM, Eric Olson
>  wrote:
> When I was first injured I thought having to be fed was the most degrading
> thing ever.
>
> On Tue, May 29, 2018 at 4:49 PM,  wrote:
>
> No, I miss cooking and tasting, and I hate being fed even after all these
> years!
> "Nothing is impossible, the word itself says I'm possible" Audrey Hepburn
>
>
>
>
> -Original Message-
> From: Bobbie Humphreys 
> Sent: Tuesday, May 29, 2018 2:47 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Food 菱 prepared
>
> Does anybody else just like having someone else prepare the food ALL the
> time?
> Bobbie
>
> "Be the change you want to see in the world". Gandhi
>
>
>

Re: [QUAD-L] Movies

[Don Smith]

My nephew uses it and likes it, read up on it tho because there's a
requirements but if you can deal with them it's a good deal.

On Tue, Mar 27, 2018 at 9:28 AM, Randy Anderson 
wrote:

> I've heard about it but don't know of anybody who's used it, BUT I'M
> JEALOUS! :-) :-)
>
> On Mon, Mar 26, 2018 at 5:05 PM, Greg  wrote:
>
>> Anyone use MoviePass?
>> I live a mile from a Theater that takes it. I could cruise there myself
>> and watch movies often.
>> Its like $8 a month. Pretty good. Might do it.
>>
>> Greg
>>
>
>

Re: [QUAD-L] Protein for wound healing

[Don Smith]

​I have a small pressure wound and I take zinc, vitamin A, D3 and a multi
vitamin and it helps healing.


On Wed, Mar 14, 2018 at 2:36 PM, Dave Krehbiel 
wrote:

> I have a wound on my backside, and it has been very very close to being
> completely closed. Sometimes it will stay close for a day or two, as it is
> now.
>
>
>
> My wife has been buying Juven Therapeutic Nutritional Powder, and we think
> it is helping, but it is very expensive. Recently she has been buying it on
> Amazon, but it seems expensive, about a dollar for a package (I take one or
> two daily).
>
>
>
> Does anyone know of any less-expensive sources?
>
>
>
> Or, does anyone recommend a different sort of nutritional or protein
> powder, or other source of protein?
>
>
>
> Thanks so much, and take care,
>
>
>
> Dave Krehbiel
>
> (301)924-4530 <(301)%20924-4530>
>
>
>
>
> 
>  Virus-free.
> www.avast.com
> 
> <#m_-1121512652905680714_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>

Re: [QUAD-L] I would like to say

[Don Smith]

Merry Christmas to one and all

On Sun, Dec 24, 2017 at 11:09 AM, Bobbie Humphreys <
bobbiehumphre...@gmail.com> wrote:

> "Merry Christmas" back at ya
> Bobbie
>
> "Be the change you want to see in the world". Gandhi
>
> On Dec 24, 2017, at 12:00 PM, Jim Lubin  wrote:
>
> Merry Christmas. God Bless.
>
> On Sun, Dec 24, 2017 at 2:33 AM, Ismael Cavazos 
> wrote:
>
>> I want to wish you guys and your family a Merry Christmas and a save one
>> and I will be praying for you guys thank you and God bless you
>>
>
>

Re: [QUAD-L] Pillow talk

[Don Smith]

No it doesn't but most of the time when on my side I Have my  wrist under
my head for comfort

On Fri, Oct 6, 2017 at 5:52 PM, Larry Willis  wrote:

> Absolutely. I also hate listening to my heartbeat against the pillow.
>
> Sent from my iPad
>
> Begin forwarded message:
>
> *Resent-From:* quad-list@eskimo.com
> *From:* Bobbie Humphreys 
> *Date:* October 6, 2017 at 3:50:01 PM EDT
> *To:* quad-list@eskimo.com
> *Subject:* *[QUAD-L] Pillow talk*
>
> When laying on your side, dose it bother anybody else to talk when one ear
> is resting on a pillow?
> It drives me nuts 樂 to hear my voice "echoed" back at me.
> Bobbie
>
> "Be the change you want to see in the world". Gandhi
>
>

Re: [QUAD-L] What do you wear in rainy weather?

[Don Smith]

This is what I use, a nice poncho, her the link
http://www.buckandbuck.com/mens-adaptive/sweaters-jackets-poncho-vests/ponchos/mens-waterproof-poncho.html
 or Ijust wait till the rain stops

On Mon, Oct 2, 2017 at 1:32 PM, Dave Krehbiel 
wrote:

> On a couple of occasions, I've needed to go out in a bit of rain or
> drizzle. I'm thinking about buying some rubber boots, and maybe a poncho or
> a number of disposable ponchos. Made in the lecture piece of plastic or
> something to cover my legs and keep them dry.
>
>
>
> How do you guys stay warm and dry?
>
>
>
> Thanks, and take care,
>
>
>
> Dave Krehbiel
>
> Olney, MD
>
>
> 
>  Virus-free.
> www.avast.com
> 
> <#m_-1057127544619681738_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>

Re: [QUAD-L] Help for caregivers and outside just the golden rule...

[Don Smith]

You might try  care.com.  It cost $30.00 for a month, it worked for me.
Craigslist is also a good place to put an ad.

On Mon, May 22, 2017 at 9:09 PM, Lori Michaelson 
wrote:

> ​Yep Jeff... tried to find them last year and specifically the university
> paper but there are others. My days have been so full of having one
> accident or things that have to be done ASAP (or that day or that hour)
> that we have not had time to even interview people at this point. This is
> not an excuse... just the truth.
>
> Actually,  a lady that we found via advertising showed up on our doorstep
> about a month ago. We let her and and she said that she was interested in
> the job again (after she got over whatever crisis she had that she didn't
> workout last year when my caregiver has to go away at least every month or
> every other month). She said "I am just down the road so that would work
> out nicely/additionally." Well, she never came back and when I tried to
> call her at left a message and she never returned the call. When she was
> here she also said that she might be breaking up with her boyfriend or
> fiancé and when I spoke with her on the phone she told me that she did and
> was in the process of moving but was still interested. Yeah right. And she
> wasn't a young immature girl but, at the same time, not over my age either.
> I was so hoping she would work out. My caregiver has had it with her so she
> says if she shows up at the doorstep again she will look out the peephole
> and if it is her she will not open the door. We are tired of sob stories
> when we are trying to survive ourselves every day.
>
> You can only give someone so many times and if you are depending on that
> person to stay with you for a week... you can't wonder if they are going to
>  show up at all. My live-in caregiver is extremely dependent and neither of
> us understand people like this. I mean, whatever came up again... can't you
> just call and say that it won't work out again?"
>
> Same thing happened with a girl who was cleaning for me and my husband
> before he died. She has cleaned for me again four or five times that now
> she has dropped off the face of the earth. No returning our calls or text
> and, again, actions speak louder. Although, how come these people are
> always on Facebook? Rhetorical course! Irritates the crap out of me and my
> caregiver though!
>
> In addition to me, I just know that William or Larry had just posted this
> question about caregivers so thought I would offer that article for him and
> then just put in my $.02. Oh... wait! $20 with inflation and all.  :-)
>
> ~Lori​
>
> On Mon, May 22, 2017 at 8:01 PM, Jeffrey Gaede  wrote:
>
>> Have you ever tried advertising in the newspaper, Lori. Seems like I
>> tried that once and it worked. I mean there are people out there but it's
>> just a matter of finding them. Keep pushing on…
>>
>>
>> --
>> *From:* Lori Michaelson 
>> *To:* quad-list 
>> *Sent:* Monday, May 22, 2017 7:42 PM
>> *Subject:* [QUAD-L] Help for caregivers and outside just the golden
>> rule...
>>
>> http://health.usnews.com/health-care/for-better/articles/
>> 2017-05-19/how-caregivers-can-find-relief-beyond-the-golden-
>> rule?int=health-care-rec
>>
>> While I can empathize with all the caregivers out there... I have never
>> seen one article on help for those who need the help and are in constant
>> pain and need help around the clock and often times having their life
>> stolen from them like I have over the last year and a half. Not one single
>> article.
>>
>> I have been having the worst of time and hurt the most by medical
>> caregivers over the years but I have not been in a position like I am now
>> since my injury over 37 years ago. Back then at least I had my mother and
>> my grandparents and they were the ones who had a shrewd best interest in my
>> well-being. Actions will always speak louder than words and know that they
>> are gone I have had to fend for myself. Unfortunately, I am not wealthy
>> enough to pay for what caregivers now want just to become a glorified
>> babysitter ($26/hour) but not poor enough to be eligible for any type of
>> Medicaid.
>>
>> I have tried colleges, training programs, Independent Living Centers (I
>> used to work for one), churches and so much more only to come up empty.
>> This is the first time in my life I have not been able to find anyone.
>>
>> Hope and prayer is the only thing I can do.
>>
>> --
>> "Petting, scratching and cuddling a dog could be soothing to the mind and
>> heart and deep meditation and almost as good for the soul as prayer." ~Dean
>> Koontz
>>
>>
>>
>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>

Re: [QUAD-L] Pressure wound advice

[Don Smith]

I agree 150% with what at Wheelchair  said, wound vacs are great at
healing, just make sure your wife and caregivers learn how to trouble shot
it and keep any extra clear adhesive drape in case a leak occurs.  Also
the KCI Wound vacs are much better then any others.

On Wed, May 17, 2017 at 6:29 PM,  wrote:

> Hiya Ben! An open wound should be treated with the utmost respect, and
> never... ever be taken lightly. I hope you are being service by a certified
> Wound Care Clinic/Specialist. Make sure your Nurse is a Certified Wound
> Nurse and knows how to use a smart phone to take pictures every day or
> every other day and send them to your Medical Wound Doctor.  I'm sure by
> now, your wound has been de-breeded and measured before the wound vac was
> applied.  Wound Vacs can be a pain in your butt, but you know that
> already.  If you have an aid, have them watch what is done, so they can
> know what to do if tubes to the vac become tangled or your alarm goes off.
> How many pounds of Vac, are you using?  An air mattress is most important
> and laying on your side at night time. I truly hope you don't smoke, as
> that will delay the healing process.
> Do well my friend.
> Best Wishes
>
> In a message dated 5/17/2017 7:41:41 P.M. Central Daylight Time,
> bmatt...@earthlink.net writes:
>
> I have a Stage 4 pressure wound on my tailbone –  my first ever!  Doc is
> recommending a Wound Vac and perhaps a "low air loss" bed mattress.
>  Anybody have any experience with either? How am I going to function with a
> Wound Vac attached to my butt? Do they work quickly?   Also,I don't have a
> hospital bed –  I share a regular queen-size mattress with my wife – so I'm
> not eager to make my bedroom into a hospital room. What sort of beds do you
> all use? Maybe a Roho overlay would be good enough?
> Thanks for your thoughts.
> Best,
> Ben  (SMA quad, 54 years old)
>
>

Re: [QUAD-L] Muscle

[Don Smith]

I think that's how med-caid is designed, that way you give up or die trying
to get it.

On Thu, May 11, 2017 at 9:01 PM,  wrote:

> Funniest thing I’ve read in months!!
>
> Well done, Larry.
>
> It would be even funnier if it weren’t so sad.
>
>
>
> I hope you figure it out.
>
>
>
> Don.
>
>
>
> *From: *Larry Willis 
> *Sent: *Thursday, May 11, 2017 3:42 PM
> *To: *quad-list@eskimo.com
> *Subject: *Fwd: [QUAD-L] Muscle
>
>
>
> I live in the great state of Kentucky. As of now I am still in the process
> of transitioning from teachers retirement insurance to Medicare (because I
> turn 65 this month). It is more confusing than the matrix.  I think there
> is a part for each letter of the alphabet and  a rider and a supplement for
> each letter. Now add different levels to each rider and those in network
> and those out of network. Figure the different levels of copay,  check line
> 37 for your agi, and call the assistance hotline. Scream loudly, hang up,
> and realize that there is no way in hell that you can understand this, much
> less afford it. The words GIVE UP are ringing in the background. Double the
> Paxil, doc. No wait...can't afford it.
> Sent from my iPad
>
>
> Begin forwarded message:
>
> *From:* greg 
> *Date:* May 10, 2017 at 9:13:19 PM EDT
> *To:* Larry Willis 
> *Subject:* *Re: [QUAD-L] Muscle*
>
> Where do you live?
>
> Do they have Medicare Replacement Insurence?
>
> Greg
>
> > As I grow older, my arms have become skinner and weaker. Doc says
>
> > it is a loss of muscle mass due to aging. I'm almost 65. Anyone
>
> > else experiencing this? I am losing confidence in doing things that
>
> > used to be easysuch as driving. My shoulder seems to lock when
>
> > I turn the steering wheel too far. I think I am over the hill.
>
> > Btw, I switched over to Medicare this month. Aa prescription that
>
> > cost me 45$ last month cost me $300 today. Made me nauseous. Can't
>
> > do it. Larry Willis
>
> > Sent from my iPad
>
> >
>
> > Begin forwarded message:
>
> >
>
> >
>
> >> Resent-From: quad-list@eskimo.com
>
> >> From: greg 
>
> >> Date: May 9, 2017 at 10:12:10 PM EDT
>
> >> To: 
>
> >> Subject: [QUAD-L] Waxed Ams
>
> >>
>
> >>
>
> >> I waxed my arms last week. Got a few replies asking if it worked.
>
> >>
>
> > I think it actually helped.  The hair on my arms is always standing
>
> > up. Makes my arms tingle. Especially in bed with the blankets
>
> > rubbing on them. Its not perfect, but its better I think.
>
> > Only cost $40
>
> > Greg
>
>
>

Re: [QUAD-L] Women

[Don Smith]

Women are nice to look at and converse with but other then that it's the
same, when the money's gone so is the honey

On Sat, Apr 2, 2016 at 4:35 PM, john owens  wrote:

> Nope
>
>
> On Thursday, March 10, 2016 9:25 PM, Carolyn Boyles 
> wrote:
>
>
> You just haven't found the right woman yet.
>
> Carolyn
>
>
>
>

Re: [QUAD-L] Just HAD to show you all this

[Don Smith]

I'm a c5/6 incomplete, if I was a c6/7 incomplete or lower I'd  probably
hurt myself doing something stupid

On Thu, Feb 25, 2016 at 1:17 PM, Danny Hearn  wrote:

> Most Quadriplegics can't do very much of these things but Paraplegics can
> do tons of things including upper body buildingI always told my wife
> that I wish I could have been a para...I guess we always wish for more such
> as many on the list that can't use their arms at all, Or are on a vent
> probably wish they had a lower injury also, that would give them more
> functionbut alas, we must all play the hand we were dealt.   Dan H**
>
>
> On Thursday, February 25, 2016 12:59 PM, Naomi Hudson 
> wrote:
>
>
> Bobbie, I am just now seeing this video and it is awesome. They are doing
> things that I couldn't do even if I wasn't paralyzed. I suppose there's not
> much that can't be done in a wheelchair. If I had the use of my arms and
> hands, I could do a lot more also
>
> Have a Blessed Day, Naomi
>
>
> -Original Message-
> From: Gmail 
> To: quad-list 
> Sent: Mon, Feb 15, 2016 9:36 pm
> Subject: [QUAD-L] Just HAD to show you all this
>
> There's new breed of wheelchair users out there.
> Bobbie
>
> https://vimeo.com/154738449?outro=1
>
>
> Smile Everyday
>
>
>
>

Re: [QUAD-L] Weather

[Don Smith]

I've had the same issue here in Calif. most recently when a transformer
blew.  My low air loss bed didn't loose any air.  I have an eggcreat. under
it and a thick plastic mat from a previous beb between the springs and
eggcreate.  power  was out for three  hours, I took a nice nap.

On Thu, Aug 13, 2015 at 4:11 PM, greg g...@eskimo.com wrote:

 We had a huge storm 2 nights ago. 5 minutes after I go to bed, a big crack
 and power goes out. It was a micro burst.  We get these small, but
 powerful wind bursts. Knocked over 5 or 6 power poles, lots of trees, some
 tipped over with the root ball, others split in half.
 I use a circulating air mattress so the motor goes out. I can't lay long
 on the wrinkled up plastic. So I had to get up.
 Luckily earlier that week, I was thinking what would I do if the motor
 burned up. So I bought a 6 inch thick memory foam mattress, tat I could use
 in a pinch. It arrived earlier that day.
 My bed is too tall for my lift if I leave it under my regular mattress, so
 it was still wrapped up in the garage. I had to get up and switch them.
 But going to bed with no TV or light of any kind. It's is hard for me. So
 I turned my Kindle on. Luckily it was only out for 4 hours. Others were out
 more than 24 hours.
 I'd go to a hotel if my power was out that long.
 Greg

Re: [QUAD-L] Icy paws

[Don Smith]

I to have a similar issue, I a c5/6 incomplete and my right side was my
dominant side.  After my injury my left  side  is now dominate and when my
right hand gets cold, it gets very painful from my little finger to my
wrist.  I keep it covered or I can't sleep.  I figure it's nerve damage
from my injury and thankful its not worse

On Mon, Aug 10, 2015 at 6:03 PM, wheelch...@aol.com wrote:

 Have you considered some spicy hot creams?
 Best Wishes

 In a message dated 8/10/2015 11:32:26 A.M. Central Daylight Time,
 lwillis82...@gmail.com writes:

 For the last two weeks or so my hands have felt like icicles, especially
 the right one. I have held them to a heater and exercised but nothing seems
 to help. They have become uncomfortable and a bit worrisome. It seems I
 have a new ailment every day. Anybody got wisdom on this?

 Larry Willis
 Retired and proud of it

Re: [QUAD-L] Question

[Don Smith]

Show them how to lower the backrest and take your cushion, headrest,
joystick and footrest and put them in overhead storage.  Tell them not to
put the chair on it's side,the batteries may move and create issues you
don't want or need.   Also be at the boarding gate 45 minutes before
boarding time, you well be first on and last off.  Enjoy the flight, look
out the windows when you can.

On Sat, Jun 6, 2015 at 5:02 PM, wheelch...@aol.com wrote:

  Wheelchair passengers transfer out of their chair at the boarding gate,
 into an aisle chair and transferred to their seat in the Jet.  Your chair
 should be in free wheel as it is loaded into the belly of the jet and may
 be set on its side.  Once you arrive at your destination, the aisle chair
 will be used again, from the jet to the arrival gate, where your chair
 should be.
 Best Wishes

  In a message dated 6/6/2015 2:59:43 P.M. Central Daylight Time,
 lwillis82...@gmail.com writes:

 Billy, great info, my friend. I appreciate you taking the time and effort
 to enlighten me. Very helpful! And how did you get off that plane?

 -- Forwarded message --
 From: *William Lang III* blan...@icloud.com
 Date: Saturday, June 6, 2015
 Subject: Re: [QUAD-L] Question
 To: Larry Willis lwillis82...@gmail.com
 Cc: quad-list quad-list@eskimo.com


 Larry,

 I am my C5 25 years post, and I been on cruises many times. I would like
 to think that the airlines have gotten better in caring for power chairs
 and their passengers. Sadly, it is an adventure in and of itself.

 Cruise ships especially the new ones, are wonderful in handicap
 accommodations. Handicapped rooms are half again the size of a regular room
 allowing for room to maneuver the wheelchair. Get a room with a balcony.
 The newer ships allow you access to a balcony so you can actually look at
 the flying Fish. Elevators are large enough for a power chair to enter and
 turn around to exit.

 I recommend you Google to find instructions on how to get the most out of
 flying. Do not read posts older than two years because I don’t think
 they’ll be relevant.

 A caveat: I have had nightmarish experiences with airlines. Breaking
 chairs, leaving chairs at places of embarkation (I once flew from Vancouver
 to Newark, first-class bulkhead seats). My wife exited the plane and was
 told that my Permobil did not make the flight! There I sat on the empty
 plane in a first-class seat while the cleaning crew was preparing the
 flight to England. On second thought, I should have just stayed on the
 plane. It worked out and I got my $13K back from Continental for my family
 group’s round-trip airfare by writing they had ruined my Alaskan vacation.
 Boo-hoo boo-hoo.

 You have time. Detailed planning and understanding what to do on each leg
 of the itinerary should allay your fears and help you to enjoy the trip of
 a lifetime.

 Bon voyage


   On Jun 5, 2015, at 8:07 AM, Larry Willis lwillis82...@gmail.com wrote:

  The plan -- make payments for one year (till next June) then hit the
 high seas with a parrot and a bottle of rum. (And a case of Dramamine)...
 And the professor and Mary Ann.

 Larry Willis
 Retired and proud of it


 Begin forwarded message:

  *From:* Gail Holmes fgdhol...@cox.net
 *Date:* June 5, 2015 at 2:51:31 AM EDT
 *To:* Larry Willis lwillis82...@gmail.com
 *Subject:* *Re: [QUAD-L] Question*

  A particular time or month set?







 Sent from my iPhone

 On Jun 3, 2015, at 3:16 PM, Larry Willis lwillis82...@gmail.com wrote:


 Got a question for everyone. My sister-in-law who lives in Houston insists
 that I and family meet her in New Orleans to go on a cruise. That's a two
 hour flight with power chair, accommodations of some sort, five day cruise,
 and flight home. I have never been on a ship or a jet. I don't know what to
 say. What do you guys think? Are the difficulties too great?


 Larry Willis

 Retired and proud of it





  Don’t  let what you cannot do interfere with what you can do!
 Billy Lang
 blan...@icloud.com

Re: [QUAD-L] New Chair

[Don Smith]

Last year I got a permobil m300, with full tilt and legs can elevate.  My
20 % co-pay was $3400,on 19,000 plus cost.  It goes 6mph, but for an extra
$1000.00 out of pocket I could get faster motors that did 7mph.  That
$1000.00 bought alot of food, and  I'm never late to eat.

On Tue, May 12, 2015 at 5:29 PM, greg g...@eskimo.com wrote:

 Hmm, the Q600Z web page lists 8mph. Could 5mph be a Medicare rule, not FDA?
 I know if there were things uncovered before, that I could pay the
 difference.
 My TDX5 clocks in at 6.5mph, but was listed at 7.5mph. Never as fast as
 listed though.
 Thanks, Greg


  hi greg,
  i don't know about insurance but i just got my new chair. it's a
  quantum 6000z. i really like it. going over bumps are nice. smooth
  ride. my rep told me 5mph was the max because of fda rules. still
  fast though!
 
 
  -Original Message-
  From: greg g...@eskimo.com
  To: quad-list quad-list@eskimo.com
  Sent: Tue, May 12, 2015 4:13 pm
  Subject: [QUAD-L] New Chair
 
 
  I need a new chair pretty soon. This one is falling apart. The
  repair shop said it's at the point it's costing more to keep it
  going. It needs motors, batteries, recline actuators. they all
  still work, just not great. My insurance covers 80%, but my 20% is
  still a big expense. The chair shop use to help out with co-pays,
  but now they have contracts with the insurance companies that say
  they wont do that anymore. I guess that prevents more people from
  getting chairs, keeps their costs down. I'm on a Medicare
  replacement program United
  Healthcare. I do not qualify for Medicaid. Anyone know of any type
  of  secondary insurance that would help? I'm liking the Quantum
  6000Z, 8mph. Greg

Re: [QUAD-L] Hey Don

[Don Smith]

I'm able  to move myself around  some, I sleep on a low  loss  air mattress
and I have a phone by my bed incase of any issues I can't deal with. We
change my foley every two weeks which  help cut down on problems.  As with
most of us, I have had to call pca or a friend in the middle of the night
though.


On Sat, Apr 25, 2015 at 9:02 AM, greg g...@eskimo.com wrote:

 I could not do it. I go most nights with no trouble, but now and then I
 start sweating really bad at night. I either need moved around a bit, or my
 cath is kinked somewhere. I would probably lay there all night worrying
 that I would start sweating any minute.
 Greg

  Good for you, Don. I would not have the onions to live by myself. I
  can imagine my night as one long panic attack. It is almost that
  way now. You are more man than I am my friend.

Re: [QUAD-L] Does exercise help with depression

[Don Smith]

I spend most of my time in bed due to a small cornic  isheal sore.  There
is depression in my family, and I dealt with it after my divorce in 2000.
My Dr. put me on 20mgs of prozac daily which I still take.  I live alone
with my cat, most days start between 5am and 8am, depending on which pca is
working.  After breakfast and any other things needing done, they leave and
I watch tv make needed calls and spend time on my  computer reading email,
local news, facebook and other thing.  My evenings are much the same.  I do
go out two or three times a week (weather depending) and run some errands,
visit friends and enjoy the out doors.  I'm always looking forward to
tomorrow to see what it brings .


Don c5/6 incomplete 27 years post.
In sunny dry Calif

On Thu, Apr 23, 2015 at 11:32 AM, Gmail bobbiehumphre...@gmail.com wrote:

 I love doing aerobic exercises three days a week it just makes me feel
 good mentally.Bobbie

 Smile Everyday

 On Apr 23, 2015, at 9:24 AM, Larry Willis lwillis82...@gmail.com wrote:

 I agree. A trip to the grocery or even Walmart gets my blood flowing!


 Begin forwarded message:

 *Resent-From:* quad-list@eskimo.com
 *From:* Quadius quad...@gmail.com
 *Date:* April 23, 2015 at 2:12:50 AM EDT
 *To:* Bob Vogel rhvsh...@mac.com
 *Cc:* quad-list@eskimo.com quad-list@eskimo.com
 *Subject:* *Re: [QUAD-L] Does exercise help with depression*

 Getting out and riding around the neighborhood makes me feel better.

 On Wednesday, April 22, 2015, Bob Vogel rhvsh...@mac.com wrote:

 I am doing an article for New Mobility magazine about exercise and its
 role in
 helping with depression.  I have studies on how it can help by increasing
 and
 or releasing endorphins in the brain, and have read that even being up in
 our
 wheelchair vs. laying down helps this process.

 In my *survey of one* I find this to be true--clinical depression runs in
 my family--
 my dad had it, and running and/or riding an exercise bike helped him a
 great deal.
 I have it as well and find pushing my chair and/or getting my heart rate
 up by peddling
 my stationary hand cycle helps.

 Does anybody find that exercise helps fight the blues?  If so, I am
 looking for people
 that could do a short phone interview, for a quote or two for the article.

 Please contact me at rhvsh...@mac.com

 Sincerely,
 Bob Vogel
 Senior Correspondent/New Mobility magazine
 www.NewMobility.com

Re: [QUAD-L] I have Bronchitic.

[Don Smith]

Try robutusin (ask parmicest which one is best to loosen up phleghm) then
take a mouthful and lay on both sides switching every 2 hours, feet higher
is better

Don
In dry Ca.

On Thu, Apr 16, 2015 at 5:34 PM, Larry Willis lwillis82...@gmail.com
wrote:

 No easy answer, Dave. First, visit your doctor. Second, monitor closely.
 It can easily slip into pneumonia, and that's bad. If you have a problem
 coughing up phlegm, lie on your back with head lowered and feet elevated.
 Have someone pound rapidly on your chest to loosen the gunk. Try to bring
 it up and out. This saved my life a few years ago.


 -- Forwarded message --
 From: *DAVID LEWIS* curlyle...@verizon.net
 Date: Thursday, April 16, 2015
 Subject: [QUAD-L] I have Bronchitic.
 To: Quad-list Post quad-list@eskimo.com


 I have bronchitis. It sucks. Hard to breath always coughing. But the worst
 is when your in bed. You cant cough it up or stop coughing so you get no
 sleep.
 How did any of you handle it?

Re: [QUAD-L] Got to figure out a new way

[Don Smith]

Maybe he's hiding from the mob



On Sunday, November 23, 2014 7:51 PM, wheelch...@aol.com wheelch...@aol.com 
wrote:
 


I'm sorry.  I must have come in between paragraphs and did not read 
the whole subject.  Please excuse.
Best Wishes
 
In a message dated 11/23/2014 9:31:38 P.M. Central Standard Time, 
r.pra...@sbcglobal.net writes:
Do what.make it searchable or change it?  lol



On Sunday, November 23, 2014 9:26 PM,  wheelch...@aol.com 
wheelch...@aol.com 
wrote:



 
Ron... why would you do that?
Best Wishes
 
In a message dated 11/23/2014 9:21:40 P.M. Central Standard Time,  
r.pra...@sbcglobal.net writes:
 
All the things I post are searchable on the net and that screwed  me . I 
guess Im going to have to unsubscribe then come back under a new name  with a 
different email.


Ron

Re: [QUAD-L] I am shriveling up

[Don Smith]

I was injured in 88 and turned 50 this year, I have pretty much the same issues 
as you.  Just bcuz we're quads don't exempt us from aging.
Don in Calif.




On Saturday, November 1, 2014 5:47 PM, greg g...@eskimo.com wrote:
 


I was injured in 1982. I am 50 now. My age is catching up on me pretty fast.
My feet swell and my toes like to curl up. My nails don't curl, but they are 
very thick. I try spreading my toes out, but they just pop back. I went years 
without lateral supports, so my spine is now curving bit. My eyes are getting 
worse. Things use to pop up often, and I haven't noticed it do that for a long 
time. And now I seem to have grown a 2nd chin/neck.
Greg



 I am 42 years post now and and starting to shrivel up. It started
 with atrophy and my legs are getting very skinny. Then the
 scoliosis on my back where I lean over toward my left.
 I went to my podiatrist and he said I have bad foot drop and my
 toes are curling up on one foot and so are my toenails.
 It seems like the only place I am not shriveling, or curling, as my
 quad gut.

 Are any of the other older quads experiencing what I am? Bobbie

 Smile Everyday

Re: [QUAD-L] Taking pills

[Don Smith]

I've never had any issues taking pills, I can take 8 to10 different pills at 
once with a swallow of any liquid afterwords to wash them down.
Don in Calif




On Monday, September 1, 2014 2:13 PM, Don Price donpric...@yahoo.com wrote:
 


Not bragging, but I can take a handful of pills with a gulp of water [or 
whatever is handy.] The exception is vitamin C pills--they sometimes gag me.

My sister is opposite of me. Totally unable to swallow pills. Has to grind them 
up and drink them.

FWIW, a lot of people tilt their head back to swallow pills. Wrong! Tilt your 
head downward, chin to chest, and pills will go down easier.

Don.


On Monday, September 1, 2014 2:04 PM, Gmail bobbiehumphre...@gmail.com wrote:
 


When you''all take pills, do you take them one at a time? Do you a small sip of 
water or a big gulp of water?

I take a very tiny sip of water with each pill unless they are capsules that 
are the same size, even then I still take a tiny sip. I find it so much easier 
to swallow ... try it. Bobbie 


Smile Everyday

[QUAD-L] Removed due to bouncing,

[Don Smith]

A little more info,  Below is a copy of the message I get from eskimo.com, if 
you follow it down you'll see the aol address and the message they send which I 
never receive.

Over the past several months I've been removed from the list due to 
bouncing.  It's always because list members submit or send from an aol 
address, which eskimo.net has issues with.  Is anyone else having the 
same problem?
==
Your mail address scamper2...@att.net has been removed
from the quad-list@eskimo.com mailinglist.
It generated an excessive amount of bounced mails.

Before sending in a subscription request to
quad-list-requ...@eskimo.com again, please ensure that
this problem has been resolved. When in doubt, ask your system
administrator or send mail to postmaster.

The last one of those bounced mails has been quoted below:
From MAILER-DAEMON  Sun Aug 24 09:19:23 2014
Return-Path: 
X-Original-To: quad-list-requ...@eskimo.com
Delivered-To: quad-list-requ...@eskimo.com
Received-SPF:
 none (sccwmxc03.att.net: No applicable sender policy available) 
receiver=mx2.eskimo.com; identity=helo; helo=sccwmxc03.att.net; 
client-ip=204.127.208.83
Received: from sccwmxc03.att.net (sccwmxc03.att.net [204.127.208.83])
by mx2.eskimo.com (Postfix) with ESMTP id 4E1BD1678
for quad-list-requ...@eskimo.com; Sun, 24 Aug 2014 09:19:23 -0700 (PDT)
Received: from sccwmxc03.att.net (localhost[127.0.0.1])
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X-Originating-IP: [127.0.0.1]
From: Postmaster postmas...@worldnet.att.net
Subject: Returned mail:
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Message-Id: 20140824161920s03005mm...@att.net
Date: 24 Aug 2014 16:19:20 +
To: quad-list-requ...@eskimo.com
Mime-Version: 1.0
Content-Type: multipart/report; report-type=delivery-status; 
boundary=_53fa1088.16d6.0+att.net=_

--_53fa1088.16d6.0+att.net=_
Content-Type: text/plain

A message (from quad-list-requ...@eskimo.com) was received at 24 Aug 2014 
16:19:19 +.

The following addresses had
 delivery problems:

scamper2...@att.net
Permanent Failure: MAIL FROM: quad-list-requ...@eskimo.com 554 REPLY: 
 554_5.7.9_Message_not_accepted_for_policy_reasons.__See_http://postmaster.yahoo.com/errors/postmaster-28.html
Delivery last attempted at Sun, 24 Aug 2014 16:19:19 -

--_53fa1088.16d6.0+att.net=_
Content-Type: message/delivery-status

Reporting-MTA: dns; att.net
Arrival-Date: 24 Aug 2014 16:19:19 +

Final-Recipient: rfc822; scamper2...@att.net
Action: failed
Status: 5.1.0
Diagnostic-Code: smtp; (Permanent Failure: Other address status)
Last-Attempt-Date: Sun, 24 Aug 2014 16:19:19 -

--_53fa1088.16d6.0+att.net=_
Content-Type: message/rfc822

Received: from mx2.eskimo.com ([204.122.16.11])
  by att.net (sccwmxc03) with ESMTP
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X-Originating-IP: [204.122.16.11]
Received: by mx2.eskimo.com (Postfix, from userid 36987)
id 19B74380D; Sun,
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Old-Return-Path: daa...@aol.com
X-Original-To: quad-list@eskimo.com
Delivered-To: quad-list@eskimo.com
Received-SPF: pass (aol.com: 205.188.109.202 is authorized to use 
'daa...@aol.com' in 'mfrom' identity (mechanism 'ptr:mx.aol.com' matched)) 

receiver=mx2.eskimo.com; identity=mailfrom; envelope-from=daa...@aol.com; 
helo=omr-d05.mx.aol.com; client-ip=205.188.109.202
From: daa...@aol.com
Full-name: DAANOO
Message-ID: b25cb.6ecf6f52.412b6...@aol.com
Date: Sun, 24 Aug 2014 


12:19:16 -0400 (EDT)
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s=20140625; t=1408897156;
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Resent-Message-ID: yc3h9y_eksm.a.qib.fch...@mx2.eskimo.com
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X-Mailing-List: quad-list@eskimo.com archive/latest/126167
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Precedence: list
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Subject: [QUAD-L] Re: Take Action Next Week To Fix Medicare In
 2014
Resent-Date: Sun, 24 Aug 2014 09:19:17 -0700 (PDT)

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In a message dated 6/28/2014 1:29:42 P.M. Central Daylight Time,  

[QUAD-L] Removed due to bouncing

[Don Smith]

Over the past several months I've been removed from the list due to bouncing.  
It's always because list members submit or send from an aol address, which 
eskimo.net has issues with.  Is anyone else having the same problem?

Don
scamper2...@att.net

Re: [QUAD-L] device made up in my head to stay cool

[Don Smith]

I use a misty mate 16 or 24oz works great, fill it 3/4's full and pump it up 
it's good 3 to 6 hours depending on how much you use it.



On Sunday, August 10, 2014 12:26 PM, diannal...@aol.com diannal...@aol.com 
wrote:
 


we took a garden/weed sprayer when we went boating. a life saver!



-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list quad-list@eskimo.com
Sent: Sun, Aug 10, 2014 1:17 pm
Subject: [QUAD-L] device made up in my head to stay cool


Being a quad, especially when I was younger I always wanted to solve the 
problem of staying cool above 85 degrees. I always thought of making something. 
I had this idea of a plastic cap like a membrane( goes on your head) that could 
hold water and have little holes on the bottom side It would have a tube going 
to to a water reservoir and a egg shaped pump you could press on to push the 
water from the reservoir, up the tube in the hat and out the holes onto the 
whole surface of your head.  You could disguise this device with a ballcap or 
boonie hat. It would immediately cool you down with a couple pumps. maybe even 
find a better way to activate the pump without pushing. Would be so valuable. I 
use a mini hairspray bottle to cool me off. nobody gets the fact that quads 
don't sweat. Nobody ever believes me. They want to have a 30 minute 
conversation with me in the blazing sun.

Re: Fwd: [QUAD-L] Chairs

[Don Smith]

At one time I had visions of modifying my Quicke P300 2/93 to 8/99 and making a 
pulling chair to pull a small tractor pull type sled.  I passed the chair on to 
a friend who's father was an amputee (leg) due to diebetis and only had a 
manual chair and just lost his wife, who never let him have a power chair.



On Friday, August 8, 2014 2:24 PM, Larry Willis lwillis82...@gmail.com wrote:
 


I have an invacare storm high end non-tilt chair that will exceed 10mph. It's 
the fastest chair I have ever had.

-- Forwarded message --
From: greg g...@eskimo.com
Date: Friday, August 8, 2014
Subject: [QUAD-L] Chairs
To: quad-list@eskimo.com



Yeah, my 1st chair in 1982 did 11-12 mph. 21st Century. They are still there 
and look the same. Large back wheel, belt driven.
I was told my insurance did not cover those.
 
I just found the Quickie S636,it was listed as 8mph with larger motors.
 
Permobil has a cool 9mph one, not covered, but it's way cool. The whole front 
end slides out an extra 10 inches or so for speed stability. 
 
My provider told me they use to wave the 20% co-pay, but insurance's contrates 
made them stop doing it.
 
I'd love to bring one to custom chopper place.
What would you have them do to your chair?
 
Greg 

Re: [QUAD-L] Hey Ron

[Don Smith]

Several years ago I cut out all carbs, including pasta and bread except for 
holidays and just ate protein, beef chicken, pork, fish and vegetables.  after 
about 8 or 9 months I had droped about 20lbs.  


On Sunday, August 3, 2014 6:11 PM, Quadius quad...@gmail.com wrote:
 


I used to take ephedrine to raise blood pressure. Work more effectively than 
the medication I now take. That's what I would be apprehensive about.

I'm trying to lose my belly and the only thing that ever seems to work is 
low-carb diet. I have the same issue with my belly pressing down my bladder and 
causing issues. I use an abdominal binder so what even makes it worse.

I been doing very moderate dieting over the last week or so and haven't really 
lost too much, but I'm going to be a little more aggressive in the coming 
weeks. If I  lose about 5 pounds I will feel considerably better.

On Saturday, August 2, 2014, RONALD L PRACHT r.pra...@sbcglobal.net wrote:

I never took it, but I can imagine at times it could raise blood pressure. if 
you just take 1 pill I don't see a problem arising. I never went dysreflexic 
over it it does make me urinate more though. my moms taking it to just for 
weight loss 



On Saturday, August 2, 2014 7:04 PM, Danny Espinoza da...@immortaldesigns.co 
wrote:
 


Whats the ripped fuel do to your blood pressure? I'm only curious because I've 
been trying not to take anything that raises mine for fear that I'll have an 
AD episode and that things that raise my BP will get me closer to something 
horrible happening.


-Danny

 Original Message 
Subject: Re: [QUAD-L] Hey Ron
From: RONALD L PRACHT r.pra...@sbcglobal.net
Date: Sat, August 02, 2014 12:58 pm
To: quad-list@eskimo.com


Well, when I first was injured and came home I was weak as a kitten and 
needed something to give me the energy to build myself up. Each day I would 
strap my belly bag on with my Walkman and plenty of water and hit the streets 
to wheel as far as I could. At first I couldn't make it a quarter mile and if 
I fell over I couldn't get back up. I went to GNC and started buying ripped 
fuel. I would take 2 capsules and hit the streets and within a few months I 
was doing 3+ miles a day with energy to spare. Not only did I increase my 
stamina, but I was able to maneuver my chair better and get myself up and 
down. This allowed me to be able to start swimming at the YMCA, which led me 
to be able to drive a fullsize Ford Van with standard paraplegic hand 
controls. I kept taking it b4 I entered the pool or any workout. I was able 
to bench 150 on an Olympic weight bench with quad hands and use the sci-fit 
bike for an hour after swimming an hour in the pool. What
 really messed me up is after all my working out, lifting, wheeling and biking 
I developed a spinal syrinx then my appendix burst, then got a hernia. I 
believe that all those issues can be linked to my vigorous workouts. At the 
same time though when I went down in the hospital, I was able to come back 
because of the good shape I was in. I still take one ripped fuel capsule 
w/ephedra b4 a I handcycle or wheel. You can take it without working out, but 
it makes you a little jumpy sometimes. you have to buy it from a special 
website called neutri I believe, but I will get you the actual website. some 
people are scared of ephedra, but it is like anything else..if you take six 
capsules at once you will have a problem. They have another pill called a 
yellow devil which is more ephedra, but I wouldn't suggest that.


ron 



On Saturday, August 2, 2014 11:58 AM, Larry Willis lwillis82...@gmail.com 
wrote:
 



Hey Ron, tell me about the ephedra for weight loss. I have developed a belly 
that just makes me miserable. It hurts, is in the way, and presses on my 
bladder causing pain and accidents. The gut has got to go.

Sent from my iPad

Re: [QUAD-L] Heres what wheelchair was talking about, paraplegic in chair pushed to ground

[Don Smith]

I hope the guy sues the police department.  What he was doing at the school 
with a weapon may have been wrong and I'm sure there's more to the story, but 
the officers actions were not called for.



On Monday, July 7, 2014 3:37 PM, Quadius quad...@gmail.com wrote:
 


According to what I read just below the video,  the Police Department agreed. 
They wanted to fire him, but the civil board decided on a 30 day suspension and 
one year of probation.
Sounds pretty Just to me.

On Monday, July 7, 2014, RONALD L PRACHT r.pra...@sbcglobal.net wrote:

Indiana Cop Pushes Over Paraplegic Man in Wheelchair | Officer Shoves Disabled 
| Dash Cam


I don't care what the paralyzed man did, there is a better way to handle it.


Ron

Re: [QUAD-L] Chair not working ---- HELP

[Don Smith]

Maybe upstairs neighbor took batteries to bingo.



On Saturday, June 28, 2014 9:54 AM, Gmail bobbiehumphre...@gmail.com wrote:
 


I tried to turn on my chair ... no power AT ALL!!! We checked all the wires to 
see if anything is lose, nothing. Help!   Bobbie 

Re: [QUAD-L] My neighbor Dawn

[Don Smith]

It seems as independent as she is and not home half the time living in a apt. 
just what are they doing each day that's taking 6 hours.  I wonder if the state 
cut her hours because a case review showed that all hours weren't being used 
but were being billed.  Also maybe the agency nurses got tired of being 
disrespected by her, no matter who is your pca you need to respect them and not 
treat them like slaves.

Don  



On Friday, June 27, 2014 12:20 PM, Gmail bobbiehumphre...@gmail.com wrote:
 


Dawn called Horizon, our insurance company, and explain the situation. They 
called her back the next day with a new agency that is going to help her ... 
maybe.
She thinks if she moves closer to her family they will help her, right now they 
live 15 minutes away.    Bobbie 

Smile Everyday

On Jun 27, 2014, at 4:11 AM, RONALD L PRACHT r.pra...@sbcglobal.net wrote:


Well bobbie 2 hours a day for a quad living alone with no family help is 
cutting it close. I cant see how you could get a bowell routine and shower done 
and cleaned up in that time. That's not accounting for a basic microwave meal 
and throwing a load in the wash. She might be able to pull it off if she was 
proactive and did everything she could herself. Its easier said than done, Im 
sure she deals with depression and the rest of the usual probs that a quad on 
their own faces. This might be a precursor to trying to get her to throw in the 
towel and go to a nursing home. Its hard to believe they can cut 6 hrs down to 
2 and get away with it. Pete can help her for awhile , but eventually he will 
have to move on. I hope she figures something out, but I cant imagine 
whatit doesn't sound like family is going to take up the slack.  


Ron



On Thursday, June 26, 2014 10:06 PM, Gmail bobbiehumphre...@gmail.com wrote:
 


Dawn has been living in my/our section 8 apartments since 1995. The VNA has 
been taking care of all her needs and she worked her way up to 6 hours per 
day, 7 days a week.
She has ALWAYS treated nurses and aids as her staff They work for me. She 
would always tell me. She did not treat them well at all. The agency has now 
cut her hours down to 2 hours per day.
She called Pete for Help I have now idea where or what is going to come or 
happen from this.
Bobbie venting

Smile Everyday

Re: [QUAD-L] My neighbor Dawn

[Don Smith]

I guess you never had food poisonin, which well make the German shepherd at the 
park look like a rabbit turd.

Don



On Friday, June 27, 2014 4:46 PM, RONALD L PRACHT r.pra...@sbcglobal.net 
wrote:
 


  
  
from my last post...its called rollin dirty...lol

Ron



On , RONALD L PRACHT r.pra...@sbcglobal.net wrote:
 


from my last post...its called rollin dirty...lol

Ron


On Friday, June 27, 2014 5:56 PM, RONALD L PRACHT r.pra...@sbcglobal.net 
wrote:
 


I get by to , for the past 16 yrs from 2 to midnight Im here alone everyday. 
The point I was saying is can you get a bowell routine, shower and set up in 2 
hrs? Its possible on a good day, but what about the day you get off the bowell 
chair and have a monster accident and its rolling out the back of the chair? I 
mean does she just sit in it until a caregiver may possibly come tomorrow for 
two hours?  She has to have a backup person which I guess is going to be 
Petewhat about when you wake up at 3 am and feel in back of you and 
theres a pile like you never seen since the german shepard at the park, 
lol..lol. It might not happen very often , but it does happen. Hope I gave some 
a laugh.

Ron


On Friday, June 27, 2014 3:48 PM, Danny Hearn ddh...@sbcglobal.net wrote:
 



My wife just started back to a job, being a caregiver 2 to 3 days a week and 2 
evenings from 5 till 10 for an older woman with alzheimers. I'm all alone most 
the time and get by pretty well, she just makes me a sandwich or gets something 
for me that is easy for me to eat and leaves a few snacks that I can get. 
Before that she worked full time at factory type jobs...so I see what your 
saying about lots of caregiving hours...They told me I don't qualify for any 
hours at all, here in Missouri, But so far we have got by ok.  Dan H.** 


On Friday, June 27, 2014 3:23 PM, Don Smith scamper2...@att.net wrote:
 


It seems as independent as she is and not home half the time living in a apt. 
just what are they doing each day that's taking 6 hours.  I wonder if the state 
cut her hours because a case review showed that all hours weren't being used 
but were being billed.  Also maybe the agency nurses got tired of being 
disrespected by her, no matter who is your pca you need to respect them and not 
treat them like slaves.

Don  



On Friday, June 27, 2014 12:20 PM, Gmail bobbiehumphre...@gmail.com wrote:
 


Dawn called Horizon, our insurance company, and explain the situation. They 
called her back the next day with a new agency that is going to help her ... 
maybe.
She thinks if she moves closer to her family they will help her, right now they 
live 15 minutes away.    Bobbie 

Smile Everyday

On Jun 27, 2014, at 4:11 AM, RONALD L PRACHT r.pra...@sbcglobal.net wrote:


Well bobbie 2 hours a day for a quad living alone with no family help is 
cutting it close. I cant see how you could get a bowell routine and shower done 
and cleaned up in that time. That's not accounting for a basic microwave meal 
and throwing a load in the wash. She might be able to pull it off if she was 
proactive and did everything she could herself. Its easier said than done, Im 
sure she deals with depression and the rest of the usual probs that a quad on 
their own faces. This might be a precursor to trying to get her to throw in the 
towel and go to a nursing home. Its hard to believe they can cut 6 hrs down to 
2 and get away with it. Pete can help her for awhile , but eventually he will 
have to move on. I hope she figures something out, but I cant imagine 
whatit doesn't sound like family is going to take up the slack.  


Ron



On Thursday, June 26, 2014 10:06 PM, Gmail bobbiehumphre...@gmail.com wrote:
 


Dawn has been living in my/our section 8 apartments since 1995. The VNA has 
been taking care of all her needs and she worked her way up to 6 hours per 
day, 7 days a week.
She has ALWAYS treated nurses and aids as her staff They work for me. She 
would always tell me. She did not treat them well at all. The agency has now 
cut her hours down to 2 hours per day.
She called Pete for Help I have now idea where or what is going to come or 
happen from this.
Bobbie venting

Smile Everyday

Re: Fwd: [QUAD-L] 16 Years

[Don Smith]

At 16 years you've just post the newbie stage, I made 26 years this past 
January, I'm still learning and each day is always a new adventure to look 
forward to.
Don



On Friday, June 27, 2014 7:25 PM, Larry Willis lwillis82...@gmail.com wrote:
 


Congrats on conquering 16 tough years Nichole. Now let's knock out 16 more.

Sent from my iPad

Begin forwarded message:


Resent-From: quad-list@eskimo.com
From: nichole rohling zoocr...@windstream.net
Date: June 27, 2014 at 6:57:13 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] 16 Years


16 years ago today was my olympic dive that changed my life forever – time 
flies!
 
Nicki
c5/6

Re: [QUAD-L] Spasms frustraition

[Don Smith]

Check for ingrown toe nails,and  pressure spots.  Over the years I've gone 
through spasms from hell and Dr.s couldn't figure out why, at one point I even 
broke the back of my chair.  They finelly gave me valium which helps.  The 
spasms ran there course and calmed back to normal .  I do weather change 
affects them though.



On Wednesday, June 25, 2014 5:58 AM, Danny Espinoza da...@immortaldesigns.co 
wrote:
 


My spasms keep happening and I've got no idea why... I get range of motion 
twice a day and had my baclofen increased to the maximum recommended dose but 
they keep happening. I dont have an infection right now as far as I know as I 
am not symtomatic yet and my urine is clear my normal color so I've got no 
idea whats going on...
Does anyone have any advice?

    -Danny

[QUAD-L] Low airloss beds

[Don Smith]

I'm going to replace my microair 3500 low airloss bed and was wondering what 
those of you that use lo airloss use and if you like or dislike any certain 
type.

Don c5/6 incomp.

Re: [QUAD-L] Capital punishment

[Don Smith]

We\ can''t hang'em and leave them a quad for life, they'd sue the state, make 
billions and give the rest of us a bad name.  Capital punishment is just that, 
for politicians and criminals.  If the jury convicts them, then give them five 
years for the appeal, if they loose that give them the choice , firing squad, 
public hanging or the injection, and no crying about the pain from the needle, 
then 24 hours later do it.




 From: Gmail bobbiehumphre...@gmail.com
To: RONALD L PRACHT r.pra...@sbcglobal.net 
Cc: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, May 10, 2014 6:32 PM
Subject: Re: [QUAD-L] Capital punishment
 


I use to write to a quad in prison. He told me fellow prisoners would help take 
care of him not outside help. He died from an infection in a wound.   Bobbie 

Smile Everyday

On May 10, 2014, at 4:51 PM, RONALD L PRACHT r.pra...@sbcglobal.net wrote:


The problem with turning criminals into quadriplegics is then the state would 
have to hire people to take care of them. The best thing to do with murderers 
is to give them swift justice which includes a trial by jury, then carry out 
the sentence within 30 days. Many times people that are convicted of murder and 
sentenced to death are still alive 15 yrs later. Ive even heard they have a cat 
program for death row inmates.


Ron   
On Saturday, May 10, 2014 3:19 PM, Gmail bobbiehumphre...@gmail.com wrote:
 
I was watching a movie In cold blood any and they hung them. When somebody 
is hung they do not dive right away, first the neck is broken then it takes a 
while before they die perhaps 10 minutes.
Perhaps a better punishment, for someone truly cruel, would be to hang them, 
let their neck be broken, then let them live as a quadriplegic.
Bobbie

Smile Everyday

Re: [QUAD-L] transportation

[Don Smith]

I think voc. rehab should have been the one to handle things and they should 
help you replace the vehicle that your case worker purchased for you with the 
grant money.  You didn't mention where the grant came from or who the case 
worker is worker is employed by, but you should have been evaluated to see what 
type of vehicle was needed for you before it was purchased.  It sounds like 
your case worker may not give a care.  What state are you in?





 From: Nadeana Halamar nadea...@gmail.com
To: quad-list@eskimo.com 
Sent: Sunday, April 27, 2014 5:05 PM
Subject: [QUAD-L] transportation
 


im a 31 one year old 7 yrs a quad and single mother. I have gotten myself in 
trouble being my own advocate. i only have one caseworker and one homehealth 
agency left that will take my case. ( im a difficult case) i guess. neway they 
know this so i have to take their crap. i had recieved a grant for a van that i 
could get converted so i could get around. i trusted my caseworker with it and 
the vehicle she got cant be converted. im going through voc rehab for drivers 
training, but now i have a vehicle im paying insurance on and cant do anything 
with it. i dont know what to do i cant have a car payment i only make 720 a mo. 
anyone know who i can get in touch with

Re: [QUAD-L] Dawn, the quad girl upstairs from me

[Don Smith]

I would have told her 10pm and if she couldn't be home by then she would have 
to sleep in her chair.  I'd never ask my caregivers to come and put me in bed 
at 3am, they have a life of their own, I have called them at that time on rear 
occasions when a chather has gone bad and needs fixen but thats the only time.  
What the heck is she doing out at that time of night anyway?\

Don in Calif.





 From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com 
Sent: Sunday, April 27, 2014 6:24 PM
Subject: [QUAD-L] Dawn, the quad girl upstairs from me
 

I've talked it you all about Dawn and her troubles with her van? Well, now she 
is having troubles with her bed. She has a Craftmatic, like I HAD. 
It isn't working right. Actually it is broken in the high position. So she 
asked my Pete if he would help her into bed, she can get her self undressed. 
Actually, she can get herself into bed all the time, but not right now.
She asked Pete to come up at 3:00am! Pete said the best I can do is 2:00am 
she rolled her eyes and said ok, 2:00am is fine.
She has NO IDEA HOW LUCKY SHE IS.     Bobbie 


Smile Everyday

Re: [QUAD-L] Dawn, the quad girl upstairs from me

[Don Smith]

If he can't fix it, he needs to tell her how to get it fixed and that if she 
wants his help getting in bed, bingo is going to have to take a break for 
awhile and she should respect and be thankful for his help, or she may have no 
one.  Where are her friends, maybe somebody from bingo can help her.





 From: Gmail bobbiehumphre...@gmail.com
To: Patricia Brown-Tulee pl...@yahoo.com 
Cc: quad-list quad-list@eskimo.com 
Sent: Monday, April 28, 2014 5:15 PM
Subject: Re: [QUAD-L] Dawn, the quad girl upstairs from me
 


BINGO, BINGS, BINGO. She waste's so much of her SSI check on BINGO week 
after week, month after month, year after year! 
Dawn has a 2002 Mimi van with 130,000K on it. I have a 2001 with about 35,000K 
on it. 
Pete's going up tonight to try and fix her bed, and if he can't I'm sure she is 
going to expect him to put her to bed when SHE wants to ... NOT when it's 
convenient for him.
Bobbie 

Smile Everyday

On Apr 28, 2014, at 7:36 PM, Patricia Brown-Tulee pl...@yahoo.com wrote:


does she go out to bars or?
 
Patricia L. B 
pl...@yahoo.com 

while adding years to your life, add life to your years
On Sunday, April 27, 2014 6:24 PM, Gmail bobbiehumphre...@gmail.com wrote:
 
I've talked it you all about Dawn and her troubles with her van? Well, now she 
is having troubles with her bed. She has a Craftmatic, like I HAD. 
It isn't working right. Actually it is broken in the high position. So she 
asked my Pete if he would help her into bed, she can get her self undressed. 
Actually, she can get herself into bed all the time, but not right now.
She asked Pete to come up at 3:00am! Pete said
 the best I can do is 2:00am she rolled her eyes and said ok, 2:00am is fine.
She has NO IDEA HOW LUCKY SHE IS.     Bobbie 


Smile Everyday

Re: [QUAD-L] Mouth stick sleeves

[Don Smith]

What about latex extension tubing for legbags, you can get them at most online 
med supply places, made by bard 





 From: Quadius quad...@gmail.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Monday, April 21, 2014 6:57 PM
Subject: [QUAD-L] Mouth stick sleeves
 


I have been using mouthstick for years, but last year the chemical makeup of 
the sleeves changed and I'm not able to use the new ones for more than a week.  
And one time I was able to use latex tubing, but I'm not able to find it 
anymore. Does anyone have any ideas?

Here is what the sleeves look like.
http://www.4mdmedical.com/mouth-sticks-mouthstick-sleeves-fits-both-adult-and-pediatric-4-pkg.html#.U1XMX3y9KK0

Q

Re: [QUAD-L] 41st Anniversary

[Don Smith]

Ya if I had listened to my mom I wouldn't have busted my neck either.  We live 
and learn, that was my lesson for that day.

Don





 From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com 
Sent: Thursday, April 17, 2014 1:00 PM
Subject: [QUAD-L] 41st Anniversary
 

Today is 41 years ago at 4:15 I was trying to learn to do jumps on a 250 
Kawasaki notarized dirt bike. I went with n old boyfriend to watch him, he was 
very good. Then he decided that I should learn, I told him I didn't want to. We 
had taken my Mom out for lunch and the last thing she said to me as she looked 
at the dirt bike tied down in the back of his van I don't want you riding that 
thing. So, I reminded Eddie as he was attaching the helmet onto me  ... for 
the first time I want to do something my Mother told me to do. But he wouldn't 
hear of it.
He showed me how the gas and break worked and then I started zipping around 
very sloppy. Then I accidental went over a jump, the bike flew ... I loved it, 
I was hooked. I asked him How can I make this bike go higher and faster over 
the jump? He said When the front wheel hits the jump, give it all the gas. 
So I backed up, looked at my watch 4:15.  This is the only time I'm going to 
try this because I promised Mom I'd pick up my sister Patti and bring home my 
sister DeDee's girlfriend because we were on Easter break from school. I was 17 
a junior in high school Patti was 16 a sophomore and DeeDee was 14 in 8th grade.
So, over the jump I went but when the front wheel hit the jump I FORGOT to lift 
the handle bars up. SHIT! I knew right then and there I did something wrong.
I ended up flying through the air, in slow motion, at 30 miles an hour on till 
I hit the side of a very large jump head on. While I was in the air I knew when 
I hit the ground I was going to either die instantly or break my neck and be 
paralyzed for life. I landed on my left side, when I opened my eyes I saw the 
dirt and thought I was buried until Eddie came and turned me onto my back.
He said Are you alright? I told him immediately No, I broke my neck. Call an 
ambulance and get me a blanket because I'm in shock. 
It was so very, very strange. How could I possibly know that I broke my neck?
Bobbie 

Smile Everyday

Re: [QUAD-L] Pillows?

[Don Smith]

I do, but it's well broke in and I like it one way although I can use it 
flipped over it's not as comfy.





 From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, April 9, 2014 6:06 PM
Subject: [QUAD-L] Pillows?
 

Just curious. How many of you sleep with a pillow behind your head when you 
sleep on your back? I can't it hurts my neck to much.
But when I sleep on my side I need a VERY thick pillow to support my neck.
Bobbie 

Smile Everyday

Re: [QUAD-L] the squirrels ate my van

[Don Smith]

Where did you buy it?





 From: Derrick Winegardner whe...@cvn.net
To: quad-list@eskimo.com 
Sent: Sunday, April 6, 2014 10:31 AM
Subject: Re: [QUAD-L] the squirrels ate my van
 


Since I have EMC equipment, I cannot jump start van. I just bought a 2W solar 
charger for $24. It plugs into power outlet/cig lighter or can connect direct 
to battery.
The solar part lays on dash.


On 4/6/2014 12:47 AM, RONALD L PRACHT wrote:

I bought an on board charger for my van that screws to an open place under the 
hood. It connects to your battery. You run the plug outside your grille. When 
you want to charge just plug it in and it will automatically stops charging 
when the battery is full. Cost was 28.00 and allows a low quad to charge a van 
on their own if need be


Ron

From: Don Smith scamper2...@att.net
To: RONALD L PRACHT r.pra...@sbcglobal.net; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, April 5, 2014 8:00 PM
Subject: Re: [QUAD-L] the squirrels ate my van
 


Thats a  bummer.  A good  friend drives  mine to work once or twice a week to  
keep the battery up,it is a pain to jump start..





From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, April 5, 2014 4:56 PM
Subject: [QUAD-L] the squirrels ate my van
 


My van wouldn't start today, so my dad opened the hood and the squirrels ate a 
bunch of wires . We started figuring out what we will need to buy and solder. 
Very frustrating for something like this to happen when quad life is hard 
enough. F the squirrels


Ron 

Re: [QUAD-L] the squirrels ate my van

[Don Smith]

Thats a  bummer.  A good  friend drives  mine to work once or twice a week to  
keep the battery up,it is a pain to jump start..





 From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, April 5, 2014 4:56 PM
Subject: [QUAD-L] the squirrels ate my van
 


My van wouldn't start today, so my dad opened the hood and the squirrels ate a 
bunch of wires . We started figuring out what we will need to buy and solder. 
Very frustrating for something like this to happen when quad life is hard 
enough. F the squirrels

Ron 

Re: [QUAD-L] the squirrels ate my van

[Don Smith]

That sounds good, but I live in an apartment and don't park next to my apt. so 
it wouldn't work  out.  I'm going to replace the battery soon..  it was a seven 
year battery I bought 4 years ago.  Good luck getting your van going.





 From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, April 5, 2014 9:47 PM
Subject: Re: [QUAD-L] the squirrels ate my van
 


I bought an on board charger for my van that screws to an open place under the 
hood. It connects to your battery. You run the plug outside your grille. When 
you want to charge just plug it in and it will automatically stops charging 
when the battery is full. Cost was 28.00 and allows a low quad to charge a van 
on their own if need be

Ron

From: Don Smith scamper2...@att.net
To: RONALD L PRACHT r.pra...@sbcglobal.net; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, April 5, 2014 8:00 PM
Subject: Re: [QUAD-L] the squirrels ate my van
 


Thats a  bummer.  A good  friend drives  mine to work once or twice a week to  
keep the battery up,it is a pain to jump start..



From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, April 5, 2014 4:56 PM
Subject: [QUAD-L] the squirrels ate my van
 


My van wouldn't start today, so my dad opened the hood and the squirrels ate a 
bunch of wires . We started figuring out what we will need to buy and solder. 
Very frustrating for something like this to happen when quad life is hard 
enough. F the squirrels

Ron 

Re: [QUAD-L] Sores

[Don Smith]

I have a small ischeal sore on my right butt cheek, It's been there for years.  
A few years ago I got ostyomolits (bone infection) and did 5 days in the 
hospital and 8 weeks on vincamyacn.  A nurse visits 3x a week and takes care of 
it, I spend most of my time off of it so it don't get worse and it well 
probably go with me to my grave but I'm not going to let it put me there.

Don c5/6 incomp 26 years





 From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com 
Sent: Friday, March 14, 2014 4:57 PM
Subject: [QUAD-L] Sores
 


Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
day. It is not deep and doesn't tunnel. However, it is a wide open sore. I sit 
on a Roho and fully expect to take this sore to the grave with me. I simply 
cannot and will not spend the 12 months or more in bed that healing would 
require. It burns and hurts like crazy some daysand nights. However, I am 
62 and 43 years post. I'm pretty sure I'm not nearly as motivated as I once was.

Sent from my iPad 

Re: [QUAD-L] Sores

[Don Smith]

Tried it for several months with no resuls, just spun my wheels

Don





 From: Nan nlg52...@yahoo.com
To: Danny Hearn ddh...@sbcglobal.net; Don Smith scamper2...@att.net; Larry 
Willis lwillis82...@gmail.com; quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 1:03 PM
Subject: Re: [QUAD-L] Sores
 


Hi Larry,
I know you've probably tried every 'modern' treatment out there ... have you 
ever tried using the old wet to dry saline and gauze packing?  I was in a 
nursing home waiting for a flap to be done and my Ex and I got so frustrated 
that we demanded they try the old wet to dry.  I went in Christmas Eve and was 
out by Valentines Day.  I did stay off my butt, but, this was in 2007-2008 and 
it's been good since.  Btw, I'm nearly 63 years old and I'm close to 46 years 
post injury.  I hear you abut being less motivated ... I've lost a lot of my 
get up and go also.

Take care.

Nan



On Saturday, March 15, 2014 1:58 PM, Danny Hearn ddh...@sbcglobal.net wrote:
 
I have heard a few quads talk about getting bone infections, how do you find 
out it went to the bone? are there any signs or ? thanks, Dan H**

From: Don Smith scamper2...@att.net
To: Larry Willis lwillis82...@gmail.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 11:52 AM
Subject: Re: [QUAD-L] Sores
 


I have a small ischeal sore on my right butt cheek, It's been there for years.  
A few years ago I got ostyomolits (bone infection) and did 5 days in the 
hospital and 8 weeks on vincamyacn.  A nurse visits 3x a week and takes care of 
it, I spend most of my time off of it so it don't get worse and it well 
probably go with me to my grave but I'm not going to let it put me there.

Don c5/6 incomp 26 years



From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com 
Sent: Friday, March 14, 2014 4:57 PM
Subject: [QUAD-L] Sores
 


Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
day. It is not deep and doesn't tunnel. However, it is a wide open sore. I sit 
on a Roho and fully expect to take this sore to the grave with me. I simply 
cannot and will not spend the 12 months or more in bed that healing would 
require. It burns and hurts like crazy some daysand nights. However, I am 
62 and 43 years post. I'm pretty sure I'm not nearly as motivated as I once was.

Sent from my iPad 

[QUAD-L] necrotizing fasciitis

[Don Smith]

Saw this on my local news.

http://sacramento.cbslocal.com/2014/03/08/flesh-eating-bacteria-kills-man-who-survived-brutal-home-invasion/

Re: [QUAD-L] am I cold, or am I hot

[Don Smith]

Have you tried wearing thick long socks to keep your feet warm.  Are feet have 
alot of nerve endings and if they're cold your body may feel cold.




 From: Bill Lang blan...@verizon.net
To: Don Price donpric...@yahoo.com 
Cc: Dave Krehbiel davekrehb...@earthlink.net; greg g...@eskimo.com; 
quad-list@eskimo.com quad-list@eskimo.com 
Sent: Thursday, March 6, 2014 6:11 PM
Subject: Re: [QUAD-L] am I cold, or am I hot
 


I seem to be always cold! 24 years of shivering. I am sitting here in a 74 
degree room wrapped in a blanket with a hood and a neck warmer. That works for 
me most times.

I feel for you.

Sent from my iPad Billy

On Mar 6, 2014, at 17:42, Don Price donpric...@yahoo.com wrote:


Don't know if you touch alcohol, but a glass of red wine seems to reset my 
internal temperature gauge. Of course, alcohol and certain medications are not 
a good combination, so be careful there.


Your situation, as described, seems to be more neurological than 
environmental. In my opinion, it's not a matter of blankets and air 
temperature, but more likely related to Autonomic Dysreflexia, inappropriate 
vasodialation, poor blood circulation or something affecting your 
hypothalamus. Maybe a combination. I assume you've talked to your physician 
about this?


I hope you can figure it out because being (feeling) cold is miserable!
Don.



On Thursday, March 6, 2014 2:54 PM, Dave Krehbiel davekrehb...@earthlink.net 
wrote:
 
I don’t know if it would help your problem, but I sleep much more comfortably 
at night (and feel warmer during the day) when I wear a knit cap.
-Dave
 
From:greg [mailto:g...@eskimo.com] 
Sent: Thursday, March 06, 2014 4:10 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] am I cold, or am I hot
 
I've mentioned this before, but I never heard if anyone else was experiencing 
the same problem. I can sit in the sun for long times in hot weather and feel 
fine. A few times I have gotten overheated, but at those times I felt hot and 
overheated. And in Seattle at night I would use a blanket, a sheet, and a 
heavy comforter. And all through the night I felt toasty warm.
 
But the last few years when I'm in bed daytime or night, but mostly nighttime. 
Just using a sheet and one blanket. When my arms are covered. I can feel like 
I am freezing cold, I can even be shivering. I can turn up the heat, I can add 
a blanket, but I just feel colder. I often check my temperature and it is 
about 97 or there about, my normal temperature is about 96.5. I am so sure 
that I am cold, my arms feel like all the hair is standing up and my arms are 
shaking. Then I realize what must be happening, that I'm overheated. So I 
uncover my arms and at first, when the air gets my arms I feel even a bit 
colder. But as my arms cool off they start to feel better, no longer hot or 
cold. But then in the middle of the night they get cold again from being 
uncovered. So it is damned if I do, damned if I don't.
 
My arms often feel cold and tingly, except when the sun is shining on them. 
But only when under covers do they get to bad. When I sit under the furnace 
vent and get warm I don't shivering like that. When I fall asleep with my arms 
covered I wake up shivering, my arms are clenched tight, and I would bet 
everything I have that I am cold. Obviously I would lose that bet.
 
I can't figure out how to stay warm night, without feeling like I'm freezing.
 
Greg
 

Re: [QUAD-L] center drive wheelchair question

[Don Smith]

I would ask to demo the mid wheel drive chair in your regular daily 
environment.  I have had rear wheel drive chairs for the past 26 years with the 
last one at 13 years now, at the time I got it I lived in the country and mid 
wheel drive chairs were new to the market.  I now live in town/city and demo'ed 
a mid wheel drive chair (Permobil m300) and it works great on public transit as 
well as getting around my apartment and all other things I do.

Don c5/6 incomp.





 From: wheelch...@aol.com wheelch...@aol.com
To: kelra...@gmail.com; quad-list@eskimo.com 
Sent: Wednesday, March 5, 2014 3:14 PM
Subject: Re: [QUAD-L] center drive wheelchair question
 


As part of your OT Evaluation, living in the country is all part of 
it.  Personally, I don't like the center drive wheelchairs on anything 
other than a smooth, flat dry surface. I like the rear wheel drive units.  
But I realize that much depends on each individual.
 
Best Wishes
 
In a message dated 3/5/2014 12:13:43 P.M. Central Standard Time, 
kelra...@gmail.com writes:
I will be getting a new wheelchair that summer and I have a few questions  that 
I am hoping people on here will have some opinions about. I live out in  the 
country on a dirt road on a farm. I spend a lot of time outside during the  
summer and I am on grass and gravel most of the time. I am wondering if  
anybody has any idea how the center drive wheelchairs work on those kind of  
surfaces. It seems to me like the smaller wheels in the front and the back  
would get caught up in the grass and gravel. I had a salesman tell me last  
year that a center drive would be fine and I have had other representative say  
that the center drive would not work well at all on those surfaces. I am just  
looking for some opinions from the people actually use the wheelchairs every  
day. Thank you very much in advance for your help with this.
 
Raymond
C3/4 complete

Re: [QUAD-L]

[Don Smith]

Where are you located? 





 From: Nadeana Halamar nadea...@gmail.com
To: quad-list@eskimo.com 
Sent: Wednesday, March 5, 2014 4:06 PM
Subject: [QUAD-L] 
 


im in a situation, ive been discharged from the home health agencies that r in 
my county. ive been labeled on the black list ever since I lived with this lady 
that yelled and screamed all the time and made my first company drop me. so now 
I have no one even my caseworker is upset because her supervisor got the 
letters I wrote to the governor. she told me her supervisor told her she had to 
stay to get everything worked out. then shes gonna ask the stae to drop me too, 
who knows what she wil say ive done to protect herself. also she helped with my 
grant for a van and picked up the wrong kind of vehicle. now I have something 
that was supposed to help me b more independent but now sits here because I 
cant get it converted . some one please help me im a 31 year old mother ad a 
quad, and im watching everything around me fall apart

Re: [QUAD-L] A.D. attack

[Don Smith]

One time about 14 years ago my foley got pinched in my waistband of my pants 
and I was unaware till I was in a meeting for work, I started sweating, I 
checked my leg bag and figured out my hose was kinked.  I waited till the mtg. 
was over about 30-45 minutes then headed to my dr. office across the street for 
help, my head was pounding by the time the nurse undid my pants, my leg bag was 
rock hard as soon as she undid my pants, I felt much better after offloading 
36oz. of pee, although my head hurt for 2 days afterwords from the throbbing 
from the high bp..

Don c5/6 incomp. 26 years





 From: jume9...@comcast.net jume9...@comcast.net
To: quad-list quad-list@eskimo.com 
Sent: Tuesday, March 4, 2014 9:54 AM
Subject: [QUAD-L] A.D. attack
 


This morning during bowel care I had an A.D. episode that scared the shit out 
of me, well actually that was the problem, I guess I was constipated. 
Thankfully my roomate had some nitroglycerin which immediaetly  helped. I've 
only experienced this once before about 20 yrs. ago. Have any of you had to go 
to the hospital for that? When do you know to seek medical help? I'm still a 
little shakey.


Meredith

Re: [QUAD-L] in naples Fl southwest, and MAY need help getting up etc.

[Don Smith]

Here is a link that has information n ILC's in all states hopefully it is of 
some help to everyone on the list planing to travel/relocate.  
http://www.ilru.org/html/publications/directory/index.html





 From: wheelch...@aol.com wheelch...@aol.com
To: sbell...@cox.net; quad-list@eskimo.com 
Sent: Wednesday, March 5, 2014 3:19 PM
Subject: Re: [QUAD-L] in naples Fl southwest, and MAY need help getting up etc.
 


I think there are 5 CIL's in Florida.  I would check with the one 
closest to your vacation.
Best Wishes
 
 
In a message dated 3/5/2014 11:54:21 A.M. Central Standard Time, 
sbell...@cox.net writes:
Hi all,  I am in naples fl on vacation for all of march. my husband and I drove 
down  from RI 3 days, well He is not well, has a bad cold thing. I think he is 
on  the mend but had some moments of wondering if I may need help. anyone in fl 
 have an agency  I could call if i need to. Thanks. It is so nice and warm  
here, on the up side. 
shirley

Re: [QUAD-L] My new bed

[Don Smith]

I think I read in one of your posts that the glider wheels were n the box the 
bed came in, but there wasn't enough for the whole bed.  I say if they were in 
the box and were installed on the bed and photographed for records then the 
glider wheels should be on the bed, no matter what functions the bed has.  
Hospital beds in the hospital all have wheels/casters of some type as well as 
many functions.  I think they are blowing smoke up your backside because they 
don't want to do it.

Anyway if it's paid off you don't have to let them in to remove the wheels.

Don from it might rain in Calif.





 From: Gmail bobbiehumphre...@gmail.com
To: wheelch...@aol.com wheelch...@aol.com 
Cc: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Monday, February 24, 2014 7:01 PM
Subject: Re: [QUAD-L] My new bed
 


Verbal. The company jots down notes after each and every phone call transpired. 
The guys who sort up to bed took pictures after they installed the casters and 
reported that those were com my old bed because the .proper wheels were not 
in the truck like they were supposed to be.  Bobbie 

Smile Everyday

On Feb 24, 2014, at 6:16 PM, wheelch...@aol.com wrote:


Do you have it in writing that you requested a bed with wheels or was it a 
verbal understanding?
Best Wishes
 
In a message dated 2/24/2014 4:13:54 P.M. Central Standard Time, 
bobbiehumphre...@gmail.com writes:
Hi  All,
      Back in August 2013 I bought a easy rest 
  full-size Easy Rest hospital bed and it was delivered in September 
  2013
When the bed was delivered the guys put glider wheels upfront and 4 
  caster wheels from my old Craftmatic Bed temporarily at the bottom.
I 
  called the company two weeks ago to say that I am now getting out of bed and 
  the wheels caster wheels are falling off and to please put on the safe 
correct 
  ones.
I then come to learn that with the high low function there are not 
  supposed to be wheels on the bed AT ALL.
I explained to them that the only 
  reason I bought was under the conditions that it had wheels so I could move 
  the bed. And that it had a high low function. The salesman said it was no 
  problem.
I must've spoken to about five different people giving me five 
  different answers about 10 days ago as to what a solution could be.
Today I 
  got a phone call from the company saying they're coming out this Thursday to 
  take ALL of the wheels off and no wheels are allowed to be on because of the 
  high low function. This is what their engineering department 
  saying.

Does anybody have any idea of what I can do about getting a 
  different bed or getting SOME money back? The bed is paid for completely 
  already I did that on purpose the interest rate was so very, very high. It 
  cost me close to $6,000!!


Bobbie 

Re: [QUAD-L] 12 of snow here in New Jersey

[Don Smith]

Part of the problem is that California has some of the most strict regulations 
for smog in the U.S. and they very by county.  I think that the whole country 
needs be under one set of rules.  And then there's other industrialized 
countries that don't have any or very few regulations.  If the United States 
would stop trading with those countries and start making goods back here in 
America, maybe we could get the whole planet on the same page to stop global 
warming.

That's my rant for the day.
Don





 From: wheelch...@aol.com wheelch...@aol.com
To: scamper2...@att.net; daa...@aol.com; bobbiehumphre...@gmail.com 
Cc: quad-list@eskimo.com 
Sent: Saturday, February 15, 2014 5:44 PM
Subject: Re: [QUAD-L] 12 of snow here in New Jersey
 


 
Until our entire population is willing to admit that Global Warming is 
alive and doing its dirty deed, nothing will be done.  Some corporate 
experts have been denying the fact that Global Warming has taken over and 
leading the population to promote NOTHING.  Its about a 50/50 split.  
When we as a population are all willing to admit that there is a problem, only 
then will we as a national demand corrective actions.  It all begins with 
admission.  Until then, it will continue to grow and get worse
Best Wishes
In a message dated 2/15/2014 1:50:45 A.M. Central Standard Time, 
scamper2...@att.net writes:
Ya  I agree, I think mother nature might have a touch of demensha. Here in 
Calif.  where 70% of the fresh produce is grown for the United States, we're in 
the  worst drought in more then 100 years, we're at about 21% of normal after 
two  previous years of less then normal rain/snow fall.  If we had just half  
the rain and snow that is falling where it's way to much we'd be over  joyed.  
Please pray that we get lots of rain and snow in the next two  months.







 From: Dana Wray daa...@aol.com
To: Gmail  bobbiehumphre...@gmail.com 
Cc: quad-list  quad-list@eskimo.com 
Sent: Friday, February 14, 2014 10:52  PM
Subject: Re: [QUAD-L] 12  of snow here in New Jersey


Wow That is way too much 
  snow!
Dana

Sent from my iPhone

On Feb 14, 2014, at 2:23 PM, 
  Gmail bobbiehumphre...@gmail.com  wrote:

 Yesterday we got 12 of snow that was on top of 8 already 
  threre. Saturday were going to get 3-5 MORE
 Bobbie.  
  Northren New Jersey
 
 Smile 
  Everyday

Re: [QUAD-L] 12 of snow here in New Jersey

[Don Smith]

Ya he says he's gong to help but the help is nowhere near what the loss of the 
crops value is. we well all pay much higher prices at the mkt. for food later 
on.





 From: Danny Espinoza da...@immortaldesigns.co
To: 'Don Smith' scamper2...@att.net; 'Dana Wray' daa...@aol.com; 'Gmail' 
bobbiehumphre...@gmail.com 
Cc: 'quad-list' quad-list@eskimo.com 
Sent: Saturday, February 15, 2014 12:24 AM
Subject: RE: [QUAD-L] 12 of snow here in New Jersey
 


Obama Announces Aid for Drought-Stricken California
http://www.nytimes.com/2014/02/15/us/politics/obama-to-announce-aid-for-drought-racked-california.html?partner=rssemc=rsssmid=tw-nytimes
 
From:Don Smith [mailto:scamper2...@att.net] 
Sent: Friday, February 14, 2014 11:51 PM
To: Dana Wray; Gmail
Cc: quad-list
Subject: Re: [QUAD-L] 12 of snow here in New Jersey
 
Ya I agree, I think mother nature might have a touch of demensha. Here in 
Calif. where 70% of the fresh produce is grown for the United States, we're in 
the worst drought in more then 100 years, we're at about 21% of normal after 
two previous years of less then normal rain/snow fall.  If we had just half the 
rain and snow that is falling where it's way to much we'd be over joyed.  
Please pray that we get lots of rain and snow in the next two months.
 
 



From:Dana Wray daa...@aol.com
To: Gmail bobbiehumphre...@gmail.com 
Cc: quad-list quad-list@eskimo.com 
Sent: Friday, February 14, 2014 10:52 PM
Subject: Re: [QUAD-L] 12 of snow here in New Jersey

Wow That is way too much snow!
Dana

Sent from my iPhone

On Feb 14, 2014, at 2:23 PM, Gmail bobbiehumphre...@gmail.com wrote:

 Yesterday we got 12 of snow that was on top of 8 already threre. Saturday 
 were going to get 3-5 MORE
 Bobbie.  Northren New Jersey
 
 Smile Everyday

Re: [QUAD-L] 12 of snow here in New Jersey

[Don Smith]

Ya I agree, I think mother nature might have a touch of demensha. Here in 
Calif. where 70% of the fresh produce is grown for the United States, we're in 
the worst drought in more then 100 years, we're at about 21% of normal after 
two previous years of less then normal rain/snow fall.  If we had just half the 
rain and snow that is falling where it's way to much we'd be over joyed.  
Please pray that we get lots of rain and snow in the next two months.





 From: Dana Wray daa...@aol.com
To: Gmail bobbiehumphre...@gmail.com 
Cc: quad-list quad-list@eskimo.com 
Sent: Friday, February 14, 2014 10:52 PM
Subject: Re: [QUAD-L] 12 of snow here in New Jersey
 

Wow That is way too much snow!
Dana

Sent from my iPhone

On Feb 14, 2014, at 2:23 PM, Gmail bobbiehumphre...@gmail.com wrote:

 Yesterday we got 12 of snow that was on top of 8 already threre. Saturday 
 were going to get 3-5 MORE
 Bobbie.  Northren New Jersey
 
 Smile Everyday

Re: [QUAD-L] Epi Pen

[Don Smith]

Can you please follow up with the group with any outcome,  This past spring I 
had a bad reaction to medi honey also called munuka (spelling) honey, it comes 
from New Zealand.  I spent 6 hours in the ER. and carry an eppy pen when I'm 
out but I am a c5/6 incomp. quad and would also have problems if the need came 
up.  I'm not sure if it's all honey and bee products, but better safe then 
sorry.

Don





 From: Don Price donpric...@yahoo.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Tuesday, February 11, 2014 11:56 AM
Subject: [QUAD-L] Epi Pen
 


I've recently had a strange allergic reaction that causes my lips and face to 
swell. It happens about once per month, in the middle of the night and so far 
we haven't been able to determine the cause.

Yesterday I saw a specialist (Allergist) and we're doing some tests to find the 
cause. She wants me to have an epi-pen with me in case my air ways ever start 
to swell shut. An epi-pen is for emergency injections of epinephron, and you 
basically stab it into your thigh and it auto-injects medication. We worked 
with two different 'dummy pens' that have no needle or medication just to teach 
me how to use the pen if I ever needed it in an emergency. However, I was 
unable to grasp either of the pens well enough to push down hard enough to 
trigger the auto-inject mechanism. My doctor insists that I be able to do it 
myself in case of emergency.

My question is: do any of know of an epi-pen that is more 'quad friendly?'

My doctor admitted she had never considered this situation, although it could 
easily be an issue for anyone with limited hand function such as arthritis or 
gout. So, my doctor is having reps from the companies that sell these pens come 
in and meet with me/her so we can brainstorm on a solution.

I welcome any input from my quadlist friends.

Don Price
Tempe, AZ

Re: [QUAD-L] AD

[Don Smith]

Check for ingrown toenails, cather placement any broken bones below injury.  
Just a few thoughts, hopefully some help.




 From: nichole rohling zoocr...@windstream.net
To: 'Danny Hearn' ddh...@sbcglobal.net; quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:34 PM
Subject: RE: [QUAD-L] AD
 


no pressure sores but I have hemorrhoids and believe that is what triggered it 
initially. I’m good once I’m up in my chair. Yes, headaches come on very 
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! 
 Went to ER yesterday evening but by the time I got there my blood pressure was 
fine…….wasted trip!
 
Nicki
 
From:Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
 
I just keep thinking... there has to be something wrong causing the A.D.  In 
the past my worst cases of  it were because of severe uti's and bladder stones. 
Have you been checked for pressure sores and so on ? Do the headaches come on 
fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it 
figured out, be praying for you Nicki.  Dan H**
 
From:nichole rohling zoocr...@windstream.net
To: quad-list@eskimo.com 
Sent: Monday, February 10, 2014 4:36 PM
Subject: RE: [QUAD-L] AD
 
I’m so frustrated……….went to dr today and they’re putting me on a high blood 
pressure medicine (beta-blocker) because they think my headaches are causing 
the high blood pressure……..if that were the cause then shouldn’t we be treating 
the headache and not the symptom………I so wish I lived close to a SCI hospital.
 
From:nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD
 
Just curious if anyone has had a bad case of AD and then experience 
hypersensitivity that causes AD more often.  I had  a bad case on Feb 1 and now 
just putting the sling under me, unbuttoning my pants, coughing, taking my 
shoes off, pulling wedge out from under my feet causes my blood pressure to sky 
rocket. 
 
I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m 
still getting AD (this morning all I did was move my arm to get my water and it 
made me have a throbbing headache)
 
Nicki

Re: [QUAD-L] Remote Control Door Opener

[Don Smith]

There are remote door locks that have a battery in them, just check at your 
local home improvement store.  If it's just to let people in like caregivers, 
give them each a key.  If it's for friends, hide a key outside and let them 
know where it's at, and have them put it back when they leave.  This is also 
helpful incase of an emergency, just let 911 know where it's at.

Don





 From: KK Batte kkba...@outlook.com
To: quad quad-list@eskimo.com 
Sent: Friday, February 7, 2014 3:37 PM
Subject: [QUAD-L] Remote Control Door Opener
 


 
I have a front door remote opener.  But if the door is locked, the remote 
doesn't work.

When you are alone, how do you unlock  open the door?

KK

Re: [QUAD-L] Antibiotics for pressure sores?

[Don Smith]

And stay off of your bum for a week or so, A visit to your Dr. may also be 
needed.  Check your cushion, it may need air or replacement.





 From: Danny Hearn ddh...@sbcglobal.net
To: jume9...@comcast.net jume9...@comcast.net; quad-list 
quad-list@eskimo.com 
Sent: Saturday, February 8, 2014 11:34 AM
Subject: Re: [QUAD-L] Antibiotics for pressure sores?
 


Don't think they call for antibiotics for that---but Lantiseptic is very good 
for that and so is the bag balm.  Dan H**

From: jume9...@comcast.net jume9...@comcast.net
To: quad-list quad-list@eskimo.com 
Sent: Saturday, February 8, 2014 12:43 PM
Subject: [QUAD-L] Antibiotics for pressure sores?
 


Should I take antibiotics for a pressure that is on my bum? It is not open but 
very painful.


Thanks

Meredith

Re: [QUAD-L] BP cuffs for wrists

[Don Smith]

Ya my wound nurse has used one on me, there good as long as the batteries are 
not dead or low.





 From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com 
Sent: Thursday, February 6, 2014 6:54 PM
Subject: [QUAD-L] BP cuffs for wrists
 

When I went to the wound center they took my BP with a wrist cuff because me, 
and many others I'm sure, were wearing two and three layers of clothing because 
the temperature was about 8°
They said the wrist cuff is as cute as the standard.

Has anybody ever had there BP a taken by a wrist cuff?   Bobbie 

Smile Everyday

Re: [QUAD-L] Pressure soars

[Don Smith]

Also check cushion and aid a little air if it's a roho





 From: gah17...@aol.com gah17...@aol.com
To: jume9...@comcast.net 
Cc: quad-list@eskimo.com 
Sent: Sunday, February 2, 2014 11:30 AM
Subject: Re: [QUAD-L] Pressure soars
 


1:Think!  Have I changed anything lately that would have caused 
pressure, moved legrests, new shoes with higher heels, different pad, etc.
 
2: Bagbalm twice a day every day.
 
3: Stay off of it if you feel it appropiate.
 

Glenn Henry

In a message dated 2/2/2014 12:20:57 P.M. Eastern Standard Time, 
jume9...@comcast.net writes:
hi all, 

I haven't had a pressure on my butt in over  twenty years but recently have 
been told that is red down there. What is best  way to deal with it in the 
early stages? I have  the patches on  hand.



Meredith

Re: [QUAD-L] Wound care conference

[Don Smith]

I wonder if ground up viagera would raise the dead with that kind of thinking.





 From: gah17...@aol.com gah17...@aol.com
To: quad-list@eskimo.com 
Sent: Tuesday, January 28, 2014 11:42 AM
Subject: [QUAD-L] Wound care conference
 


OK, here is one for the books.
 
I just spoke on a panel to about 200 nurses concerning wound care.  Of 
course a lot of
the legal medical stuff flew over the cuckoos nest.
 
I live in Lancaster County Pa, where it is 9 degrees right now and there is 
a large
Amish population.  One VNA said she had a 1st last week. She entered 
the home,
nice clean and neat and started treatment.  She took off the bandage 
while the family stood
by with smiles on their face.  As she took off the dressing red stuff 
started to ooze from the
area.  She thought oh my gosh!  The family wasn't alarmed, they 
calmly said that ground up
red beets have healing powers.  Truth
 
Red beet eggs anyone?
 

Glenn Henry

Re: [QUAD-L] Vertical scrolling in iPad

[Don Smith]

can you scroll sideways?  if so just turn it sideways.  does the os have any 
accessibility settings like click lock in windows





 From: Quadius quad...@gmail.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Friday, January 24, 2014 6:18 PM
Subject: [QUAD-L] Vertical scrolling in iPad
 



I am wanting to see if I can change the vertical scroll for my iPad. Whenever I 
read magazines or need to scroll down the page I'm having difficulty with my 
mouth stick doing so. It either stutters or I'm unable to do so. Does anyone 
have any ideas?

BillySent from my iPad

Re: [QUAD-L] Power chair questions

[Don Smith]

I demo'ed the m300 mid wheel drive last spring, it's much better then my 13 
year old quickie p300.  As for the head rest I can get by with a basic one that 
we adjust once and leave it, I only need it when I tilt back.  I didn't have 
any issues with my knees spreading like they do with my quickie.  I wonder if 
the footrest was set low enough for you.  The only issue I have with the m300 
is low ground clearance, I live in town and had no problems but I'm thinking 
about driving again and need to find out about any special lockdown that may be 
needed.

Don





 From: Danny Espinoza da...@immortaldesigns.co
To: quad-list@eskimo.com 
Sent: Monday, January 20, 2014 7:16 PM
Subject: [QUAD-L] Power chair questions
 


I keep having problems with my Quantum 6000z and was told in may I will be able 
to submit for a new power chair. I'm very happy about that! 

I've got some questions for you guys about it... I'm thinking about getting a 
permobil m300 which is a mid wheel chair.
The question I've got is about the head and foot rest systems. My chair right 
now the feet are together which causes my knee's to open up which I hate. On my 
current chair I've been using a gate belt around my thighs to bring my knees 
closer together. I think this was due to my feet having to be together due to 
the foot plate being one small piece of metal with ankle straps and not being 
two plates that my feet can be separated.

My headrest never really has been comfortable because my head doesn't really 
rest on it... It touches it if I recline a little though so I've reclined the 
seat back and chair a little so my neck doesn't wear out and get sore so fast.
I need to make decisions on which headrest, foot rests, arm rests and seat I 
want and was curious which you guys recommend? 
Also what do you guys think of the permobil m300? Thanks in advance!

-Danny

Re: [QUAD-L] Re: quad site

[Don Smith]

Their either out and about or frozen in snow with no internet or just to cold 
to get out of a nice warm bed





 From: wheelch...@aol.com wheelch...@aol.com
To: gah17...@aol.com 
Cc: quad-list@eskimo.com 
Sent: Thursday, January 16, 2014 10:17 AM
Subject: [QUAD-L] Re: quad site
 


Not much happening here Glenn.  I suppose that summer came early this 
year and everyone is out n about trying to improve their suntans.  Hope you 
are ok.
Best Wishes
 
In a message dated 1/16/2014 12:12:28 P.M. Central Standard Time, 
gah17...@aol.com writes:
Hey Wheels,
 
Has the quad site have many posts over the past 2 weeks?
 
I'm not getting anything.  Isn't there a way to look at  archives?
 
Thanks,

Glenn Henry

Re: [QUAD-L] Inflammed testicles

[Don Smith]

Try bag balm or udder balm, I have issues with sweating and when   the hairy 
twins and surrounding area get red and raw it helps clear it up.





 From: ntpgrn...@aol.com ntpgrn...@aol.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, December 14, 2013 2:36 AM
Subject: [QUAD-L] Inflammed testicles
 


As a result of uti and frequent bowel accidents we battling very red and raw 
testicles and inner thigh. Looking for some wisdom.

Nancy 

Re: [QUAD-L] Fwd: Silas shelburne

[Don Smith]

I found this about Silas Shellburne on the web.  It proves you can do anything 
if you try.  if you do a yahoo search there's some pictures of him.  Prayers to 
his family.

Silas Shellburnea southwestern Virginia beef and tobacco farmer, was having a 
little fun
jumping on a trampoline with his three children during June 2002. The fun, 
however, ended
abruptly when Mr. Shelburne fell off the trampoline and sustained a crush 
injury to his C4/C5
vertebrae, leaving him with quadriplegia. This life changing injury left him 
wondering how he
would continue to operate his more than 100 acre, three generation farm. 
Through the use of a
wheelchair accessible workstation and a computer with an on-screen keyboard, he 
is now able to
manage the accounting and management records. Modifications of the passenger 
seat of a
Kawasaki Mule has given him access to many of his fields and pastures. With the 
help of the
AgrAbility program and other Rural Rehabilitation Partners, Mr. Shelburne has 
been able to
return to a productive role on the farm.

Don
c5\6 incomp 25years post.





 From: Jim Lubin jlu...@makoa.org
To: quad-list@eskimo.com 
Sent: Monday, November 11, 2013 10:29 AM
Subject: [QUAD-L] Fwd: Silas shelburne
 





-- Forwarded message --
From: Amy Davis amydv...@yahoo.com
Date: Sun, Nov 10, 2013 at 11:59 PM
Subject: Silas shelburne
To: quad-list@eskimo.com quad-list@eskimo.com


Not sure how many remember Silas Shelburne from the quad list but yesterday he 
passed away in his bed after 12 years as a quad.
I wanted to say that although he did not post much or liked to stir a ruckus on 
the list, he loved reading your posts and learned so much from you guys to make 
his life as a quad better.
I miss my friend and and just want to say a word of thank to all of you on his 
behalf.
My life will never be the same because of him being in it and now because of 
his passing.

Amy

Re: ARTICLE Re: [QUAD-L] Quad taken off vent dies

[Don Smith]

I find it hard to be-leave that his wife didn't seem to have any say in the 
matter.  I wonder how much say and ethics the doctor had, after all aren't they 
supposed to save your life.




 From: Todd Daugherty todd.daughe...@gmail.com
To: Eric W Rudd c5sc...@gmail.com 
Cc: quad list quad-list@eskimo.com 
Sent: Friday, November 8, 2013 1:31 PM
Subject: Re: ARTICLE Re: [QUAD-L] Quad taken off vent dies
 


The more I think about this the more angry I get at the family.  Even if the 
doctor said he might be vent dependent, what kind of family wakes their kid up 
from sedation to ask him if he wants this? Of fucking course he does not want 
this and if someone did that to me in my first few weeks I could have very well 
said the same thing.  Heavily sedated, confused, paralyzed, vent in, newly 
injured with no certain prognosis yet, and I have the knowledge to make this 
kind of decision?  And what's the rush?  If 3-6 months go by and you feel the 
same way, by all means pull the vent out but wow the way this went down doesn't 
sit well with me.  There may be more to this we don't know, but many quads I 
know have started on vents and gotten off.  I'm sure many people have said they 
didn't want to live their life in a chair but when it becomes reality there are 
too many emotions, adjustments, learning that needs to take place it seems 
before you can make
 life/death decisions imo.  

  





On Thu, Nov 7, 2013 at 11:49 AM, Eric W Rudd c5sc...@gmail.com wrote:

 
http://www.recorder.com/news/nation/world/9197116-95/paralyzed-deer-hunter-chooses-to-end-life-support
 
- Original Message - 
From: RONALD L  PRACHT 
To: quad-list@eskimo.com 
Sent: Thursday, November 07, 2013 10:38  AM
Subject: Re: [QUAD-L] Quad taken off vent  dies


I want to read it...I wasn't in no way or form passing  judgement on the 
man. We as a society must be careful of the slippery slope of  who judges a 
lifes value.
 
ron


From: Paul Jacobson  pjacob...@san.rr.com
To: wheelch...@aol.com; bobbiehumphre...@gmail.com; quad-list@eskimo.com 
Sent: Thursday, November 7, 2013 10:04  AM
Subject: Re: [QUAD-L] Quad  taken off vent dies



send to me, please 
From: wheelch...@aol.com 
Sent: Thursday, November 7, 2013 5:17 AM
To: bobbiehumphre...@gmail.com ; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Quad taken off vent dies
  I don't want to see or hear of anyone dying period.  I was not part  of the 
equation and had no input, nor was I asked before they pulled the air  
tube
I'm sure there was more to the story and none of our business.
May Tim Rest In Peace.
Best Wishes
 
In a message dated 11/6/2013 7:53:05 P.M. Central Standard Time, 
bobbiehumphre...@gmail.com writes:
Did  anybody read an article I read today in AOL news about a Quad taken off 
a  vent and died 6 hours later?
Tim, 32, fell 16' out of a tree crushing 
C-3,4,5 while hunting in Decatur, Indiana Sat. Nov.2nd Then on Sun. Nov.3rd 
his Family and doctors asked him if he wanted to be taken off the 
ventilator 
and die. He said yes and with in six hours he died.
He had just gotten 
married August 3, 2013 and was expecting a baby.
He had told his wife 
that ... I never want to have my life in a wheelchair.
What I can't be 
leave is how quickly the decision was made and carried out, 24 hours after 
his accident they pulled the plug on the ventilator.
If anybody wants me 
to send them the article I read, just email me and I will send to you. I 
tried to send it to the Quad list but it wasn't expected.   Bobbie 

Re: ARTICLE Re: [QUAD-L] Quad taken off vent dies

[Don Smith]

If that's the case then why did they even ask him, she should have known that 
at first thats the choice most would make, the dr. should not have allowed this 
to happen.  Theres gotta be some kind of laws to prevent things like this.





 From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, November 9, 2013 10:19 AM
Subject: Re: ARTICLE Re: [QUAD-L] Quad taken off vent dies
 


Somebody told me that one of the family members was an intensive care nurse. 
She instructed everyone that his condition was hopeless and everyone went along 
with it.  

From: Don Smith scamper2...@att.net
To: Todd Daugherty todd.daughe...@gmail.com; Eric W Rudd c5sc...@gmail.com 
Cc: quad list quad-list@eskimo.com 
Sent: Saturday, November 9, 2013 11:02 AM
Subject: Re: ARTICLE Re: [QUAD-L] Quad taken off vent dies
 


I find it hard to be-leave that his wife didn't seem to have any say in the 
matter.  I wonder how much say and ethics the doctor had, after all aren't they 
supposed to save your life.


From: Todd Daugherty todd.daughe...@gmail.com
To: Eric W Rudd c5sc...@gmail.com 
Cc: quad list quad-list@eskimo.com 
Sent: Friday, November 8, 2013 1:31 PM
Subject: Re: ARTICLE Re: [QUAD-L] Quad taken off vent dies
 


The more I think about this the more angry I get at the family.  Even if the 
doctor said he might be vent dependent, what kind of family wakes their kid up 
from sedation to ask him if he wants this? Of fucking course he does not want 
this and if someone did that to me in my first few weeks I could have very well 
said the same thing.  Heavily sedated, confused, paralyzed, vent in, newly 
injured with no certain prognosis yet, and I have the knowledge to make this 
kind of decision?  And what's the rush?  If 3-6 months go by and you feel the 
same way, by all means pull the vent out but wow the way this went down doesn't 
sit well with me.  There may be more to this we don't know, but many quads I 
know have started on vents and gotten off.  I'm sure many people have said they 
didn't want to live their life in a chair but when it becomes reality there are 
too many emotions, adjustments, learning that needs to take place it seems 
before you can make
 life/death decisions imo.  

  





On Thu, Nov 7, 2013 at 11:49 AM, Eric W Rudd c5sc...@gmail.com wrote:

 
http://www.recorder.com/news/nation/world/9197116-95/paralyzed-deer-hunter-chooses-to-end-life-support
 
- Original Message - 
From: RONALD L  PRACHT 
To: quad-list@eskimo.com 
Sent: Thursday, November 07, 2013 10:38  AM
Subject: Re: [QUAD-L] Quad taken off vent  dies


I want to read it...I wasn't in no way or form passing  judgement on the 
man. We as a society must be careful of the slippery slope of  who judges a 
lifes value.
 
ron


From: Paul Jacobson  pjacob...@san.rr.com
To: wheelch...@aol.com; bobbiehumphre...@gmail.com; quad-list@eskimo.com 
Sent: Thursday, November 7, 2013 10:04  AM
Subject: Re: [QUAD-L] Quad  taken off vent dies



send to me, please 
From: wheelch...@aol.com 
Sent: Thursday, November 7, 2013 5:17 AM
To: bobbiehumphre...@gmail.com ; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Quad taken off vent dies
  I don't want to see or hear of anyone dying period.  I was not part  of the 
equation and had no input, nor was I asked before they pulled the air  
tube
I'm sure there was more to the story and none of our business.
May Tim Rest In Peace.
Best Wishes
 
In a message dated 11/6/2013 7:53:05 P.M. Central Standard Time, 
bobbiehumphre...@gmail.com writes:
Did  anybody read an article I read today in AOL news about a Quad taken off 
a  vent and died 6 hours later?
Tim, 32, fell 16' out of a tree crushing 
C-3,4,5 while hunting in Decatur, Indiana Sat. Nov.2nd Then on Sun. Nov.3rd 
his Family and doctors asked him if he wanted to be taken off the 
ventilator 
and die. He said yes and with in six hours he died.
He had just gotten 
married August 3, 2013 and was expecting a baby.
He had told his wife 
that ... I never want to have my life in a wheelchair.
What I can't be 
leave is how quickly the decision was made and carried out, 24 hours after 
his accident they pulled the plug on the ventilator.
If anybody wants me 
to send them the article I read, just email me and I will send to you. I 
tried to send it to the Quad list but it wasn't expected.   Bobbie 

Re: [QUAD-L] Bumper sticker

[Don Smith]

I've seen one that said shit happens on the back of a lift equipped van several 
years ago at Santa Clara Valley Med Center, my mom had a good laugh about it.





 From: Nan nlg52...@yahoo.com
To: Gmail bobbiehumphre...@gmail.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Wednesday, October 30, 2013 9:02 AM
Subject: Re: [QUAD-L] Bumper sticker
 


I would!!!  I used to have one that said No Riders in college.



On Tuesday, October 29, 2013 8:50 PM, Gmail bobbiehumphre...@gmail.com wrote:
 
http://www.uromed.eu/

This is where I got got my bumper sticker Dose this wheelchair make my butt 
look big?
Or call 800-841-1233.        
 Bobbie 


Smile Everyday

Re: [QUAD-L] 1st Time Traveling

[Don Smith]

If you have a reclining chair or one that the back can be layed down\back make 
sure you take any pins that have to be removed out and keep them with you, 
small things tend to get lost when you least want them to.

Don





 From: Lissette Whitehead lissw...@hotmail.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Friday, October 25, 2013 5:09 PM
Subject: [QUAD-L] 1st Time Traveling
 


 
Hi everyone,
I will be traveling for the first time as a quad in the end of November, (after 
8 years post injury). And to make it even more exciting, I'm going to Cabo San 
Lucas. I know!!! Pretty brave huh? Well not really because I live in Mexico and 
I'm used to the inaccessibility. Of course I already know my way around here 
where I live. Cabo is pretty much new to me, even though I've been there before 
but not in a power wheelchair. I have my concerns but I think I'll be able to 
manage.
What I am wondering right now is about the flying situation. I know they have 
those special isle wheelchairs and that the staff at the airport help you 
transfer and all that. But what about my power chair? I know they put it with 
the luggage, but do they need to disassemble it? I sent a message to the 
airline but I know they take a while to reply and I'm a bit anxious.
Any other traveling tips would be very much appreciated.  


Lissette Whitehead

www.lwgripgloves.com 

Re: Fwd: [QUAD-L] I Hate cold weather

[Don Smith]

You may need some green eggs and ham Sam





 From: lwillis...@yahoo.com lwillis...@yahoo.com
To: quad-list@eskimo.com 
Sent: Friday, October 25, 2013 7:33 AM
Subject: Fwd: [QUAD-L] I Hate cold weather
 


It is a balmy 27 degrees here in old Kaintuck this morning. Damn it's cold said 
Sam I am!

Sent from my iPad

Begin forwarded message:


Resent-From: quad-list@eskimo.com
From: Derrick Winegardner whe...@cvn.net
Date: October 24, 2013 at 6:57:56 PM EDT
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] I Hate cold weather


Yep, my furnace has been running all day.
I'm ready to head south.
Derrick in PA


On 10/24/2013 5:33 PM, gah17...@aol.com wrote:

It is cold in Pennsylvania!
 

Glenn Henry

G.A.Henry Radio
100 Mill Street
Washington Boro, PA 17582

Re: [QUAD-L] I Hate cold weather

[Don Smith]

Calif. is not bad 45 at 6am and mid 80's by mid afternoon.





 From: Derrick Winegardner whe...@cvn.net
To: quad-list@eskimo.com 
Sent: Thursday, October 24, 2013 3:57 PM
Subject: Re: [QUAD-L] I Hate cold weather
 


Yep, my furnace has been running all day.
I'm ready to head south.
Derrick in PA


On 10/24/2013 5:33 PM, gah17...@aol.com wrote:

It is cold in Pennsylvania!
 

Glenn Henry

G.A.Henry Radio
100 Mill Street
Washington Boro, PA 17582

Re: [QUAD-L] Considering marriage, concerened about loosing disability

[Don Smith]

It depends on if it is ssdi payed on the 3rd of the month or ssi which is paid 
on the 1st.  when I was married I never lost my ssdi but did lose my small ssi 
medi cal and ihss once my wife started working.  Things may have changed 
though, it's best you check with your local social security office to be sure.

Don





 From: Shelly Kerchner shelly.kerch...@yahoo.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Tuesday, October 22, 2013 9:22 AM
Subject: [QUAD-L] Considering marriage, concerened about loosing  disability
 


Hi to all!

Will I loose my disability if I get married? 

Thanks !!


Shelly
C6-c7 incomplete
6 years post injury

Sent from Yahoo! Mail for iPad 

Re: [QUAD-L] When you went to Rehab

[Don Smith]

 From: Gmail bobbiehumphre...@gmail.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Monday, October 14, 2013 2:15 PM
Subject: [QUAD-L] When you went to Rehab
 

Hi All,
       When you all went to 
Rehab;
1. How did you get there? Helicopter
2. Was family there with you?yes
3. How long were you in the hospital? between hospital and rehab 5 months
4. How long were you in Rehab
5. When you went home, were there minor or major conversions necessary? Just 
ramps and widen a door
6. Did you go straight home or a nursing home first? home
7. What was your home waiting for you doable medical equipment wise? just a 
hospital bed
8. How many of your friends were there to be by your side? one, I wanted to 
adjust to things
9. How many siblings do you have to help you out when you first got home?  none
10. Did you feel you had enough rehab or did you go on to outpatient rehab? I 
had enough.

Smile Everyday

Re: [QUAD-L] anxiety

[Don Smith]

I did have one of the best wound nurses from  a home health agency in the area 
that would take care of my sore when it would get out of hand, but it's in a 
spot that don't have much meat.  She took a job at a hospital wound clinic and 
was consulting for the agency but they sent out a nurse (I'll call her Ms. know 
it all) and after a personal call to the wound consultant, I got a bone scan 
and spent 5 days in the hospital and 8 weeks of vankomyacin..  After the 
hospital Ms. know it all was back and I went to the Kaiser outpatient clinic 
once a month, they knew less then me.  After a few tries I got rid of Ms. Know 
not much when she took two weeks vacation and her replacement who knew more 
after one visit agreed to take over my case, things are progressing slowly but 
in the right direction.  I sleep on a low airloss matterass and use a roho 
cushion on my chair.  


Don






 From: Monty aa999...@yahoo.com
To: Don Smith scamper2...@att.net; quadriplegic quad-list@eskimo.com 
Sent: Thursday, October 17, 2013 12:54 PM
Subject: Re: [QUAD-L] anxiety
 


I speak from experience of having a bone infection on my bottom! I had this old 
bag of bones nurse that thought she knew everything and went months before 
getting a wound clinic appointment. Discovering that I had a bone infection, a 
round IV antibiotics started to turn it around and then failed. So after 
researching myself on my activity level and trying everything else surgery was 
the next option. It's absolutely necessary to take those six weeks after 
surgery not get up for any amount of time! What kind of mattress are you 
sleeping on? I have an alternating air overlay on my bed and no issue with skin 
integrity for many years now. I have spent the last five weeks in bed because 
of a broken leg and hoping to get liberated next week during my doctors 
appointment. Are you going to a wound clinic on a regular basis? What kind of 
treatments have they tried? I would make sure you don't have a bone infection 
first and getting a second opinion is another
 perfect option also. I had a bone infection in my arm just below the elbow and 
that was nearly a four-year battle before leaving town and finding doctors that 
knew what they were talking about two hours from me. Anxiety I've had a few 
different times but for the most part it's not been an issue. Any other 
questions feel free to ask.
Monty of Indiana 3/4c nearly 20 years post injury



On Thursday, October 17, 2013 2:47 PM, Don Smith scamper2...@att.net wrote:
 
I sleep in my living room because I cant get into the bedroom because my 
wheelchair is to big, I also live alone but have a pca twice a day.  I'm also 
dealing with a ischeal tube pressure sore, it's small but chronic.  When I have 
an issue with anxiety I turn on my fan and if that don't help I take 10mgs of 
Valium which I keep in reach, it doesn't happen often but can be scary.

Don





 From: greg g...@eskimo.com
To: quad-list quad-list@eskimo.com 
Sent: Thursday, October 17, 2013 9:04 AM
Subject: [QUAD-L] anxiety
 


 
 
I'll try this again. It got sent before I was done.
 
I am considering surgery on my pressure wound on my butt. But that would mean 4 
to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. 
Right now I'm trying to stay in bed most of the time, only getting up for a 
couple hours. My biggest concern is anxiety. It rarely happens, but if I get 
really overheated or really constipated, I get A.D. Not only do I sweat, 
headaches, claustrophobic, I get this really bad anxiety. Where I just can't 
stop worrying about little things. It's only happens about once or twice a 
year. If that even. Though it happened the other night. Actually two times this 
week. I think being stuck in bed has helped cause it. I started worrying about 
my pressure wound, and then I start worrying about totally unrelated things. 
Then I start to worry about what if I start to worry. What if a week after the 
surgery it happens again. When it happens nothing seems to help unless I get 
up. Once I get over it I think to myself
 how foolish it was to worry about that. The Dr. gave me something for anxiety 
once, but by the time I needed it it had expired.
 
It may take two or three times longer to heal up, but I can get up for one or 
two hours a day. Or do I just risk it, have the surgery, and hope I don't have 
any issues.
 
My wound was on its way to being healed up when the cushion went flat, then 
when I had my ostomy surgery it took twice as long as it was supposed to and 
being on the surgery table caused the wound to be set back a little more.
 
It's hard to figure out what to do.
 
Greg

Re: [QUAD-L] If a Quad .......

[Don Smith]

Na x2





 From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com 
Sent: Friday, October 18, 2013 3:17 PM
Subject: [QUAD-L] If a Quad ...
 

Hello Quadets,
                   Did you ever hear that age old question, If a tree falls in 
the forest and no one is there to hear it fall, doesn't make a sound? Well it 
got me to thinking about Quad related questions in that light. So here are a 
few of my own;

If a quad runs over somebody's foot and apologizes does it still hurt?

Is a quad drops something on the floor and it breaks, and you can't  reach the 
floor, does she have to clean it up?

Bobbie 

Re: [QUAD-L] anxiety

[Don Smith]

I sleep in my living room because I cant get into the bedroom because my 
wheelchair is to big, I also live alone but have a pca twice a day.  I'm also 
dealing with a ischeal tube pressure sore, it's small but chronic.  When I have 
an issue with anxiety I turn on my fan and if that don't help I take 10mgs of 
Valium which I keep in reach, it doesn't happen often but can be scary.

Don





 From: greg g...@eskimo.com
To: quad-list quad-list@eskimo.com 
Sent: Thursday, October 17, 2013 9:04 AM
Subject: [QUAD-L] anxiety
 


 
 
I'll try this again. It got sent before I was done.
 
I am considering surgery on my pressure wound on my butt. But that would mean 4 
to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. 
Right now I'm trying to stay in bed most of the time, only getting up for a 
couple hours. My biggest concern is anxiety. It rarely happens, but if I get 
really overheated or really constipated, I get A.D. Not only do I sweat, 
headaches, claustrophobic, I get this really bad anxiety. Where I just can't 
stop worrying about little things. It's only happens about once or twice a 
year. If that even. Though it happened the other night. Actually two times this 
week. I think being stuck in bed has helped cause it. I started worrying about 
my pressure wound, and then I start worrying about totally unrelated things. 
Then I start to worry about what if I start to worry. What if a week after the 
surgery it happens again. When it happens nothing seems to help unless I get 
up. Once I get over it I think to myself
 how foolish it was to worry about that. The Dr. gave me something for anxiety 
once, but by the time I needed it it had expired.
 
It may take two or three times longer to heal up, but I can get up for one or 
two hours a day. Or do I just risk it, have the surgery, and hope I don't have 
any issues.
 
My wound was on its way to being healed up when the cushion went flat, then 
when I had my ostomy surgery it took twice as long as it was supposed to and 
being on the surgery table caused the wound to be set back a little more.
 
It's hard to figure out what to do.
 
Greg

Re: [QUAD-L] source for wheelchair friendly clothing

[Don Smith]

http://www.blvd.com has links under adaptive clothing/men and women, some stuff 
is a bit costly though






 From: Dave Krehbiel davekrehb...@earthlink.net
To: quad-list@eskimo.com 
Sent: Monday, October 7, 2013 11:43 AM
Subject: [QUAD-L] source for wheelchair friendly clothing
 


Where do you suggest that I look for things like shirts and windbreakers and 
ponchos designed for folks in wheelchairs?
 
Thanks, Dave Krebbiel

Re: [QUAD-L] My next step?

[Don Smith]

Id be warn out after all that, it looks like the video was sped up.





 From: KK Batte kkba...@outlook.com
To: Tray P tray...@gmail.com; Lainie Batte lainieba...@yahoo.com; Steve 
Shepard shep0...@yahoo.com; ms-qu...@yahoogroups.com 
ms-qu...@yahoogroups.com; ericba...@gmail.com ericba...@gmail.com; 
quad-list@eskimo.com quad-list@eskimo.com 
Sent: Tuesday, October 1, 2013 9:38 AM
Subject: [QUAD-L] My next step?
 


 
http://www.youtube.com/watch?v=NokH2IHCUd4feature=em-uploademail

Yes Elizabeth this is another Chris, the quad video.  But please watch it  
help me figure this out.

He makes it look like it takes so little energy.  Is this really life using a 
lift?  Is it safe to use a lift when you are alone.  In other video's it looks 
like he will be hanging himself.

Life as a quad who is getting weaker by the day.

KK

Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities

[Don Smith]

I really don't care about the rides, its a pain in the rear getting in and out 
of my wheelchair.  And when I go to an event I get in line just like the norms 
I feel the special treatment is going against treating the disabled as 
mainstream citizens, isn't that what the ADA was all about.





 From: John S. alcibiat...@yahoo.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Friday, September 27, 2013 12:26 PM
Subject: Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities
 


I don't want to get to the front any faster than norms, I just want to access 
the ride like  a norm. The lines are part of a park. Half the fun is the people 
you meet. When did this become a special need?
john
LTNS!

From: Don Smith scamper2...@att.net
To: wheelch...@aol.com wheelch...@aol.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Thursday, September 26, 2013 11:15 AM
Subject: Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities
 


I got a brace to sell this guy, its called the graybar motel for froud, its in 
Maracopa county Arizona.



From: wheelch...@aol.com wheelch...@aol.com
To: quad-list@eskimo.com 
Sent: Wednesday, September 25, 2013 12:38 PM
Subject: Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities
 


Yes, and if you check, I believe Jim Banks the owner is having them 
built... off shore.
Best Wishes
 
In a message dated 9/25/2013 12:17:59 P.M. Central Daylight Time, 
scamper2...@att.net writes:
The  free electric wheel chair a.k.a the hoveround, I still see ads on t.v. now 
and  then.  Their offering back and knee braces now useng the same m.o.





From: wheelch...@aol.com wheelch...@aol.com
To: quad-list@eskimo.com 
Sent: Wednesday, September 25, 2013 8:23  AM
Subject: Re: [QUAD-L]  Disney Changes Policy Regarding Riders w/ Disabilities



I think the new policy will continue to evolve as Disney Properties gain  
direction and continuing feedback.  This smells of the same thing as the  
Free Electric Wheelchair Program  How many years did it take for the  
Government to clamp down on the abuses.
Best Wishes
 
In a message dated 9/25/2013 10:06:41 A.M. Central Daylight Time,  
scamper2...@att.net writes:
And  so whats going to prevent people from hiring wheelchair users to help 
them  get the ride pass with the return time to come back to get on the  
ride?/  Is the pass only for the person with the dis ability and not  the 
family?





From: wheelch...@aol.com wheelch...@aol.com
To: donpric...@yahoo.com;  quad-list@eskimo.com 
Sent: Tuesday, September 24, 2013 4:18 PM
Subject: Re: [QUAD-L] Disney Changes  Policy Regarding Riders w/ Disabilities



I don't like it, but I understand.  Both Abuses and Fair   Equal Treatment, 
per ADA.  ADA offered equal treatment, not better  treatment.   Besides, 
Disney Properties have been slam'd with  lawsuits, many of them unfounded and 
dismissed.  Like I said, I don't  like it... but I fully understand the 
change.
Best Wishes
 
In a message dated 9/24/2013 3:49:19 P.M. Central Daylight Time,  
donpric...@yahoo.com writes:
People with disabilities will no longer go  straight to the front of lines at 
Disneyland and Walt Disney World under a  policy change park officials say is 
a response to growing abuse of the  system.
What do you think about Disney's decision?  Join the conversation 
onFacebook.com/NBCLA
Under the change, visitors with special needs  will be issued tickets with a 
return time and a shorter wait similar to  the FastPass system that's 
offered to everyone...


http://www.nbclosangeles.com/news/local/Disneyland-Disabled-No-Longer-Skip-Lines-224810762.html

Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities

[Don Smith]

And so whats going to prevent people from hiring wheelchair users to help them 
get the ride pass with the return time to come back to get on the ride?/  Is 
the pass only for the person with the dis ability and not the family?





 From: wheelch...@aol.com wheelch...@aol.com
To: donpric...@yahoo.com; quad-list@eskimo.com 
Sent: Tuesday, September 24, 2013 4:18 PM
Subject: Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities
 


I don't like it, but I understand.  Both Abuses and Fair  Equal 
Treatment, per ADA.  ADA offered equal treatment, not better 
treatment.   Besides, Disney Properties have been slam'd with 
lawsuits, many of them unfounded and dismissed.  Like I said, I don't like 
it... but I fully understand the change.
Best Wishes
 
In a message dated 9/24/2013 3:49:19 P.M. Central Daylight Time, 
donpric...@yahoo.com writes:
People with disabilities will no longer go straight to the front  of lines at 
Disneyland and Walt Disney World under a policy change park  officials say is a 
response to growing abuse of the system.
What do you think about Disney's decision? Join the  conversation 
onFacebook.com/NBCLA
Under the change, visitors with special needs will be issued  tickets with a 
return time and a shorter wait similar to the FastPass system  that's offered 
to everyone...


http://www.nbclosangeles.com/news/local/Disneyland-Disabled-No-Longer-Skip-Lines-224810762.html

Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities

[Don Smith]

Hey at least you still get to use the handi - capped parking that's only a half 
mile from the gate.





 From: Don Price donpric...@yahoo.com
To: wheelch...@aol.com wheelch...@aol.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Tuesday, September 24, 2013 5:19 PM
Subject: Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities
 




I understand the policy change too. There were a lot of people abusing the 
system.

My only additional comment is: there is not really 'equal treatment' at 
Disneyland for wheelchair users. Equal treatment to me would mean the park were 
fully accessible, including all the rides. If only half the rides and three 
quarters of the park are wheelchair accessible, there is definitely no equal 
treatment. Yes, I understand not everything or every place could [or should] be 
accessible.

When I paid my $97 adult admission fee to get into Disneyland I felt it was 
reasonable because even though I could only use some of the rides at least I 
knew I would have quicker access to the limited rides I could get on. Perhaps 
with this change they will consider a reduced ticket for wheelchair users? Not 
likely as that would get abused too.

One last thing: being able to take my niece and nephew to the front of the line 
made me feel kind of good in a way. For a change the wheelchair became an 
advantage instead of an obstacle. I'm kind of sad that has been taken away. 
But, I do understand.

Don.



 From: wheelch...@aol.com wheelch...@aol.com
To: donpric...@yahoo.com; quad-list@eskimo.com 
Sent: Tuesday, September 24, 2013 4:18 PM
Subject: Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities
 


I don't like it, but I understand.  Both Abuses and Fair  Equal 
Treatment, per ADA.  ADA offered equal treatment, not better 
treatment.   Besides, Disney Properties have been slam'd with 
lawsuits, many of them unfounded and dismissed.  Like I said, I don't like 
it... but I fully understand the change.
Best Wishes
 
In a message dated 9/24/2013 3:49:19 P.M. Central Daylight Time, 
donpric...@yahoo.com writes:
People with disabilities will no longer go straight to the front  of lines at 
Disneyland and Walt Disney World under a policy change park  officials say is a 
response to growing abuse of the system.
What do you think about Disney's decision? Join the  conversation 
onFacebook.com/NBCLA
Under the change, visitors with special needs will be issued  tickets with a 
return time and a shorter wait similar to the FastPass system  that's offered 
to everyone...


http://www.nbclosangeles.com/news/local/Disneyland-Disabled-No-Longer-Skip-Lines-224810762.html

Re: [QUAD-L] Bureaucracy

[Don Smith]

You should have run over her toe, then told her she walk good.





 From: Joan Anglin poaj...@sbcglobal.net
To: quad-list@eskimo.com 
Sent: Tuesday, September 24, 2013 5:38 PM
Subject: [QUAD-L] Bureaucracy
 


OK, a new thing for me (at least in the last 23 years), I had to get 
fingerprinted because of our Host Home license with the state. Now my thoughts 
are: I've been licensed 36 years with the state, had been fingerprinted and 
background checked numerous times before breaking my neck in 1990. Always 
passed. Haven't been able to move my arms, use my hands etc etc etc since that 
time.
Now they want a new background check and fingerprints. Let me see, I'm afraid 
that they found out about my attempt to rob a store few years ago-told the 
clerk that this was a stickup, I had a gun, it is in my lap, told him to pick 
it up, point it at himself and hand over the money. Oh right, those were his 
fingerprints not mine. I guess I am in the clear.
We get to the fingerprinting place, fill out paperwork, and then spend several 
minutes trying to figure out how to do my fingerprints on a machine that's 
attached the wall. We finally figure it all out, and she begins the slow 
process of doing my right hand first, then the left hand, then back to the 
right hand, and then back to the left hand as that is how the machine is set 
up. Each time I have to backup the wheelchair, turn around, backup to the 
machine, a total of four times.
Whew, got that accomplished and she looks at me and says  are you enjoying 
your little outing today? You certainly can drive your chair well I said no to 
the first question and told her that she walks pretty well too. She sort of 
laughs and has the last laugh on me.
She states  I hope the state will accept these fingerprints as it looks like 
you have burned them off and they usually require additional fingerprinting. I 
guess only my thumbs have any ridges and whorls after being on my hand rests 
for 23 years.
But now I am legal. Joan just shaking my head.

Re: [QUAD-L] almost time to change or renew medicare medicare advantage plans

[Don Smith]

I have Kaiser Senior Advantage which I pay $63.00 a month for, I'm not sure 
what part B pays.  I do have copays $10 and $20 bucks for dr. visits and lab 
work.  I have a $150.00 per day hospital copay for first 7 days $65.00 ER 
co-pays and 20% DME co-pays.  I do use all the co-pays for tax purposes to 
offset my taxable income from inheiratenses, Which very s due to the economy.





 From: Danny Hearn ddh...@sbcglobal.net
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Tuesday, September 24, 2013 5:57 PM
Subject: [QUAD-L] almost time to change or renew medicare  medicare advantage 
plans
 


Do any of you like medicare with a supplement ? or have a medicare advantage 
plan that you like or recommend??  I have used a medicare advantage plan 
provided by (Coventry ) for the last few years but starting this year (2013 ) 
they jumped from a low deductible up to $950 before they pay one cent, plus 
raised their premium monthly payment up to $28 a month---all of this is besides 
the $112 a month medicare takes out for my part B coverage. I was told it went 
up due to partial kick in of Obama Care in 2013... they said Obamacare will 
really kick in in year 

Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities

[Don Smith]

The free electric wheel chair a.k.a the hoveround, I still see ads on t.v. now 
and then.  Their offering back and knee braces now useng the same m.o.





 From: wheelch...@aol.com wheelch...@aol.com
To: quad-list@eskimo.com 
Sent: Wednesday, September 25, 2013 8:23 AM
Subject: Re: [QUAD-L] Disney Changes Policy Regarding Riders w/ Disabilities
 


I think the new policy will continue to evolve as Disney Properties gain 
direction and continuing feedback.  This smells of the same thing as the 
Free Electric Wheelchair Program  How many years did it take for the 
Government to clamp down on the abuses.
Best Wishes
 
In a message dated 9/25/2013 10:06:41 A.M. Central Daylight Time, 
scamper2...@att.net writes:
And  so whats going to prevent people from hiring wheelchair users to help them 
get  the ride pass with the return time to come back to get on the ride?/  Is  
the pass only for the person with the dis ability and not the family?







 From: wheelch...@aol.com wheelch...@aol.com
To: donpric...@yahoo.com;  quad-list@eskimo.com 
Sent: Tuesday, September 24, 2013 4:18 PM
Subject: Re: [QUAD-L] Disney Changes  Policy Regarding Riders w/ Disabilities



I don't like it, but I understand.  Both Abuses and Fair  Equal  Treatment, 
per ADA.  ADA offered equal treatment, not better  treatment.   Besides, 
Disney Properties have been slam'd with  lawsuits, many of them unfounded and 
dismissed.  Like I said, I don't  like it... but I fully understand the change.
Best Wishes
 
In a message dated 9/24/2013 3:49:19 P.M. Central Daylight Time,  
donpric...@yahoo.com writes:
People with disabilities will no longer go  straight to the front of lines at 
Disneyland and Walt Disney World under a  policy change park officials say is 
a response to growing abuse of the  system.
What do you think about Disney's decision? Join  the conversation 
onFacebook.com/NBCLA
Under the change, visitors with special needs will  be issued tickets with a 
return time and a shorter wait similar to the  FastPass system that's offered 
to everyone...


http://www.nbclosangeles.com/news/local/Disneyland-Disabled-No-Longer-Skip-Lines-224810762.html

Re: [QUAD-L] Work question....

[Don Smith]

How about math, technology  or science tuter at the local school or college.  
You can also work privately from your home.



 From: Danny da...@immortaldesigns.co
To: quad-list@eskimo.com 
Sent: Saturday, September 21, 2013 3:22 AM
Subject: [QUAD-L] Work question
 


I’m technically a c2 incomplete asymmetrical quadriplegic and wondering if you 
guys could give me ideas work I’m able to do? I can move my right arm only a 
little up to my wrist, my bicep is strong but my tricep is weak so I can barely 
move my arm since extending my arm takes effort and my arm will start curling 
in eventually, get stuck and I need assistance extending it again. My left arm 
is completely paralyzed… I can use a computer with the use of a mouth joystick 
called a quadjoy and onscreen keyboard. I also have a trach atm… The reason I 
mentioned what function I have was purely to help you with recommendations. 
Before my accident I was a network security engineer and computer programmer. 
I’m good with math, technology, science and problem solving.
Thanks in advance for your suggestions and feedback
-Danny

Re: [QUAD-L] Bacteria in Urine

[Don Smith]

well if you go to the hospital and you get the runs you won't need bowel care 
and they well have to clean things up and ask the Dr. to write orders for any 
therapy you need.  Avoid their food at all cost unless its good.  have friends 
and family bring you food.
\
Don





 From: nichole rohling zoocr...@windstream.net
To: quad-list@eskimo.com 
Sent: Monday, September 9, 2013 10:50 AM
Subject: [QUAD-L] Bacteria in Urine
 


Has anyone had to use Meropenem by IV? What side effects did you have and were 
you admitted into the hospital or did home health do it.
 
I have 3 different bacteria, I’m not symptomatic other than my leg bag is blue. 
 Last time it was blue I took macrobid, then bactrim, then cipro and macrobid 
and this was almost a year ago.
 
I DON’T want to do IV antiobiotics because I’m afraid it will give me diarrhea 
and I don’t feel sick (but don’t want to feel sick either). And I refuse to go 
be in the hospital for 5 days where they can’t do my care!
 
Suggestions, experiences or opinions please
 
Nicki

Re: [QUAD-L] Blair Underwood as wheelchair bound cop

[Don Smith]

Its the same issue with the terms handicao and disabled, I once worked at an 
ILC and the Executive director refereed to the consumers as disabled and not 
handicapped, it was a difference in the definition and disabled was pc 
correct.





 From: Bob Vogel rhvsh...@pacbell.net
To: Don Price donpric...@yahoo.com; KK Batte kkba...@outlook.com; Steve 
Shepard shep0...@yahoo.com; ms-qu...@yahoogroups.com 
ms-qu...@yahoogroups.com; Anne Cyr tro...@megalink.net; 
quad-list@eskimo.com quad-list@eskimo.com 
Sent: Wednesday, September 4, 2013 7:33 AM
Subject: Re: [QUAD-L] Blair Underwood as wheelchair bound cop
 


Good call Don!  It isn't a matter of PC, the terms wheelchair bound and 
confined to a wheelchair
are journalistically incorrect.  Anybody that works in media in the U.S.  
*should* abide by The Associated
Press Stylebook and Libel Manual, a book that is the bottom line on countless 
phrases etc.  The AP manual
specifically states do not use 'wheelchair bound' or 'confined to a 
wheelchair'. The correct term is 
wheelchair user.

Bottom line, anytime you see wheelchair bound in a news article, the writer and 
editer didn't properly proof read,
just as bad a spelling errors like have a glass of shampain.

Bob V



 From: Don Price donpric...@yahoo.com
To: KK Batte kkba...@outlook.com; Steve Shepard shep0...@yahoo.com; 
ms-qu...@yahoogroups.com ms-qu...@yahoogroups.com; Anne Cyr 
tro...@megalink.net; quad-list@eskimo.com quad-list@eskimo.com 
Sent: Monday, September 2, 2013 6:24 PM
Subject: Re: [QUAD-L] Blair Underwood as wheelchair bound cop
 


Wheelchair bound?
Sorry,but that phrase makes me laugh. Really, it should be avoided whenever 
possible, no offense intended. Maybe I'm being too P.C.?

Don.



 From: KK Batte kkba...@outlook.com
To: Steve Shepard shep0...@yahoo.com; ms-qu...@yahoogroups.com 
ms-qu...@yahoogroups.com; Anne Cyr tro...@megalink.net; 
quad-list@eskimo.com quad-list@eskimo.com 
Sent: Monday, September 2, 2013 10:08 AM
Subject: [QUAD-L] Blair Underwood as wheelchair bound cop
 


 
http://www.contactmusic.com/story/blair-underwood-makes-mum-proud-as-wheelchair-bound-cop_389

His Mom has Multiple Sclerosis

Re: [QUAD-L] Blair Underwood as wheelchair bound cop

[Don Smith]

Ya I agree with you there, mine tends to suck a 20% copay out of my pocket wach 
time it needs repairs, mainly when I don't have it.

Don c5/6 incomp. 25 years post.





 From: Danny Hearn ddh...@sbcglobal.net
To: Bob Vogel rhvsh...@pacbell.net; Don Price donpric...@yahoo.com; KK 
Batte kkba...@outlook.com; Steve Shepard shep0...@yahoo.com; 
ms-qu...@yahoogroups.com ms-qu...@yahoogroups.com; Anne Cyr 
tro...@megalink.net; quad-list@eskimo.com quad-list@eskimo.com 
Sent: Wednesday, September 4, 2013 8:13 AM
Subject: Re: [QUAD-L] Blair Underwood as wheelchair bound cop
 


wheelchair userI guess that does sound better, but at times I think my 
wheelchair is  using me !  lol Dan H**

From: Bob Vogel rhvsh...@pacbell.net
To: Don Price donpric...@yahoo.com; KK Batte kkba...@outlook.com; Steve 
Shepard shep0...@yahoo.com; ms-qu...@yahoogroups.com 
ms-qu...@yahoogroups.com; Anne Cyr tro...@megalink.net; 
quad-list@eskimo.com quad-list@eskimo.com 
Sent: Wednesday, September 4, 2013 9:33 AM
Subject: Re: [QUAD-L] Blair Underwood as wheelchair bound cop
 


Good call Don!  It isn't a matter of PC, the terms wheelchair bound and 
confined to a wheelchair
are journalistically incorrect.  Anybody that works in media in the U.S.  
*should* abide by The Associated
Press Stylebook and Libel Manual, a book that is the bottom line on countless 
phrases etc.  The AP manual
specifically states do not use 'wheelchair bound' or 'confined to a 
wheelchair'. The correct term is 
wheelchair user.

Bottom line, anytime you see wheelchair bound in a news article, the writer and 
editer didn't properly proof read,
just as bad a spelling errors like have a glass of shampain.

Bob V

From: Don Price donpric...@yahoo.com
To: KK Batte kkba...@outlook.com; Steve Shepard shep0...@yahoo.com; 
ms-qu...@yahoogroups.com ms-qu...@yahoogroups.com; Anne Cyr 
tro...@megalink.net; quad-list@eskimo.com quad-list@eskimo.com 
Sent: Monday, September 2, 2013 6:24 PM
Subject: Re: [QUAD-L] Blair Underwood as wheelchair bound cop
 


Wheelchair bound?
Sorry,but that phrase makes me laugh. Really, it should be avoided whenever 
possible, no offense intended. Maybe I'm being too P.C.?

Don.

From: KK Batte kkba...@outlook.com
To: Steve Shepard shep0...@yahoo.com; ms-qu...@yahoogroups.com 
ms-qu...@yahoogroups.com; Anne Cyr tro...@megalink.net; 
quad-list@eskimo.com quad-list@eskimo.com 
Sent: Monday, September 2, 2013 10:08 AM
Subject: [QUAD-L] Blair Underwood as wheelchair bound cop
 


 
http://www.contactmusic.com/story/blair-underwood-makes-mum-proud-as-wheelchair-bound-cop_389

His Mom has Multiple Sclerosis

Re: [QUAD-L] hoyer lifts

[Don Smith]

Ya I do and if I'm not careful I well scratch the inside of my knee on the 
release lever or the rivet on the handle where it attaches to the pump

Don





 From: Fragile swl...@gmail.com
To: quad-list quad-list@eskimo.com 
Sent: Thursday, August 29, 2013 3:14 PM
Subject: [QUAD-L] hoyer lifts
 


On the subject of Hoyer lifts...

Got my first one about a week ago.  I know the sling I got with it isn't going 
to work because I'd have to sit on it while in my chair.  Before buying a sling 
that I think will work I decided to give it a try.  When I'm in the sling, I 
can't turn facing the hydraulic cylinder (with my chair behind me) without my 
knees and feet hitting the cylinder.  I have pretty long legs.  I'm wondering 
if they come with a longer top arm?  Does anybody else have this problem?

Re: [QUAD-L] Anyone have stem cell therapy?

[Don Smith]

I'm just curios if there's ever been any research done on stem cell use to 
treat pressure sores?  I would volunteer my right butt cheek if the 
treatment/trial was free and not hazardus. 





 From: diannal...@aol.com diannal...@aol.com
To: wheelch...@aol.com; quad-list@eskimo.com 
Sent: Saturday, August 24, 2013 7:46 PM
Subject: Re: [QUAD-L] Anyone have stem cell therapy?
 


I'm having stem cells harvested from my bone marrow after chemo treatment, 
frozen  getting my own cells back so I won't need a donor. I know this is much 
different than what you all are discussing but it does shine light on stem cell 
research for us one day.
Dianna
Perhaps,  A Day In The Life Of A Quad.
Best Wishes
 
In a message dated 8/23/2013 6:48:08 P.M. Central Daylight Time, 
bobbiehumphre...@gmail.com writes:
Ron,
     I think you, and a few more of us, should record our  years of 
knowledge, and put it on YouTube. Title it something like How to  surviving 
a broken neck What a Newley SPINAL CORD INJURY'D person should   shouldn't 
do 10 steps to dealing with insurance Anything along those  lines.    
Bobbie
-Original Message-
From: wheelchair wheelch...@aol.com
To: bobbiehumphreys7 bobbiehumphre...@gmail.com; r.pracht 
r.pra...@sbcglobal.net
Cc: quad-list quad-list@eskimo.com
Sent: Fri, Aug 23, 2013 10:08 pm
Subject: Re: [QUAD-L] Anyone have stem cell therapy?


Perhaps,  A Day In The Life Of A Quad.
Best Wishes
 
In a message dated 8/23/2013 6:48:08 P.M. Central Daylight Time, 
bobbiehumphre...@gmail.com writes:
Ron,
     I think you, and a few more of us, should record our  years of knowledge, 
and put it on YouTube. Title it something like How to  surviving a broken 
neck What a Newley SPINAL CORD INJURY'D person should   shouldn't do 10 
steps to dealing with insurance Anything along those  lines.    Bobbie

Smile Everyday

On Aug 22, 2013, at 11:51 PM, RONALD L PRACHT r.pra...@sbcglobal.net  wrote:


   I wont go in to my personal  opinion on things such as stem cell 
therapy, acupuncture, voodoo or sun gods  because whatever a person needs to 
do to deal with a spinal cord injury in a  positive way is a good thing. What 
I will say is probally the best advice  any newly injured person can get. When 
you get injured and are in a rehab  setting for usually at least three months 
you have a window of opportunity  to figure out vital things needed to be a 
success at living with sci.  Learning to tranfer, catherize, feed oneself are 
a few as well as how you  are going to build a ramp at your existing home or 
you may need to move  somewhere else that can be modified. soak up all this 
information, work  hard, write notes on people that can help you down the 
road. Once your out  of the hospital the two things that will make or break 
you in my opinion are  getting involved in a college and either getting a 
vehicle modified for  driving or transport,
 depending on function level. These two things alone  along with what you 
learned in rehab and family support will determine how  successful your new 
life is going to be. This is the new you and that isnt  necessarily a good or 
bad thing it just is. Its a chance to start over  in any case and build new. 
This window of opportunity slowly closes and you  are left with what you 
learned, wrote, adapted and so on. If you waste the  first few years worrying 
about  things like stem cells I believe you  will be sorry.  If I were involved 
with these sci magazines, I would  write a three page special on what to do 
after you have a spinal cord  injury. Im so angry at times at what people told 
me to do when I was first  injured that was foolish and Im paying the price 
now.I hope someone can  take something I said and make it useful to a newly 
injured, scared  person. Sci is not the end, its just the beginning of a  
journey. 
 
 
Ron out of St. Louis c7 almost 16 yrs post


From: Don Price  donpric...@yahoo.com
To: Don Price donpric...@yahoo.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Thursday, August 22, 2013 1:43  PM
Subject: Re: [QUAD-L]  Anyone have stem cell therapy?



Some info I got about Stem Cell  Therapy:


Trish Stressman-She has a blog where she talks  about stem cell research. 
http://www.stemcelltherapy.tv/tag/trish-stressman/. 
 
Trish’s blog with her contact info- http://tstressman.blogspot.com/    
 
email- trish.stress...@gmail.com
 
Also here’s an article about Trish as well  from the local paper in 2011- 
http://www.eastvalleytribune.com/article_21eb2e96-3959-54de-bbd5-478c1121c26f.html
 


From: Don Price  donpric...@yahoo.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Wednesday, August 21, 2013 12:25  PM
Subject: [QUAD-L] Anyone  have stem cell therapy?



Please email me if you have experience, good or bad, with stem cell  therapy.


Thanks,
Don.


From  my friend Karen:


I know this is probably a long shot but have any  of you had stem cell 
therapy done? I have a young man who is 

Re: [QUAD-L] Blue Leg Bag

[Don Smith]

Better yet, sell it on Ebay, someone might give big money for it.





 From: wheelch...@aol.com wheelch...@aol.com
To: zoocr...@windstream.net; quad-list@eskimo.com 
Sent: Friday, August 23, 2013 4:57 AM
Subject: Re: [QUAD-L] Blue Leg Bag
 


You can always send them a sample... and be crazy together.
Best Wishes
 
In a message dated 8/22/2013 7:16:33 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:
Wheelchair,
 
Haven’t  changed meds or diet……I’ll call uro tomorrow, but I think I told him 
last time  I saw him that it has done this and he looked at me like I was 
crazy J
 
 

Re: [QUAD-L] Honey to Treat Infections

[Don Smith]

They tried Manueka or  medi honey for my wound and after two days just after 
the dressing change I had an allergic reaction to it.  I broke out in wilts and 
itching, my caregiver called 911 and I went to emergency by ambulance.  Ive 
never had problems with bees or honey before.  The plant the honey comes from 
is native to New Zealand and Australasia.  

Don
c5/6 incomp 25 years post 





 From: linda...@comcast.net linda...@comcast.net
To: Don Price donpric...@yahoo.com 
Cc: quad-list@eskimo.com 
Sent: Tuesday, August 13, 2013 10:32 AM
Subject: Re: [QUAD-L] Honey to Treat Infections
 


I just ordered  some  Manueka Honey last week for my pressure sore that I have 
been battling over  3 years. Hfully it will help it heal. I have spent my whole 
summer in  bed  it hasn't helped..
Lindaf

Re: [QUAD-L] Dawn saga continue's

[Don Smith]

Hi Bobbie
Is this gal a drama queen or just a dumb a**?.  any way one day her vans going 
to stop running if she don't take care of the stalling issues and she won't 
have money for a very expensive repair which might be cheaper to fix now.

Don
p.s. is she blond by the way, this could explain things.





 From: Gmail bobbiehumphre...@gmail.com
To: quad-list@eskimo.com 
Sent: Sunday, July 28, 2013 2:25 PM
Subject: [QUAD-L] Dawn saga continue's
 

Hi All,
      Friday Daen goes out to Pep Boys to get her breaks fixed. The motor in 
the van still continues to seize-up and just die while she's driving. Saturday 
afternoon she goes to a family party, after that she goes to the ER because her 
stomach is bothering her. Saturday night, mid-night, she goes to midnight BINGO 
gets home at 2:30 wakes Pete up to close her lift and tells him I still don't 
feel good, I'm going inside to call the visiting nurse. Today she goes out to 
a family party.
      All this time, her family is no where in sight. Not for all the 15 years 
she's been living here.
Bobbie



Sent from my iPad

Re: [QUAD-L] Dawn saga continue's

[Don Smith]

If it was me she called at 2am to close her door, I would have told her I would 
do it when I got up in the morning after breakfast, if she hadn't found someone 
else to do it.

Don





 From: Gmail bobbiehumphre...@gmail.com
To: quad-list@eskimo.com 
Sent: Sunday, July 28, 2013 2:25 PM
Subject: [QUAD-L] Dawn saga continue's
 

Hi All,
      Friday Daen goes out to Pep Boys to get her breaks fixed. The motor in 
the van still continues to seize-up and just die while she's driving. Saturday 
afternoon she goes to a family party, after that she goes to the ER because her 
stomach is bothering her. Saturday night, mid-night, she goes to midnight BINGO 
gets home at 2:30 wakes Pete up to close her lift and tells him I still don't 
feel good, I'm going inside to call the visiting nurse. Today she goes out to 
a family party.
      All this time, her family is no where in sight. Not for all the 15 years 
she's been living here.
Bobbie



Sent from my iPad