RE: Fwd: [QUAD-L] sex

[alcibiates2]

I'm confused, who's putting antibiotic ointment and a bandaid on what?

 Original message 
From: Larry Willis  
Date: 12/18/2016  8:08 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Fwd: [QUAD-L] sex 

You are so right, Nicki. I have burn scars all over my hands. Immediately apply 
neosporin and bandaid. If you don't, it will almost certainly become infected 
and very ugly. At least that is my experience.Larry Willis
Retired and proud of it

Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: "Joan Anglin" 
Date: December 18, 2016 at 7:39:04 PM EST
To: "'Ed Tessier'" , "'Quad-list Post'" 

Subject: RE: [QUAD-L] sex

That applies to so many things, not just sex.shoulda had a V8 J From: Ed 
Tessier [mailto:e...@teamjeved.com] 
Sent: 18 December, 2016 2:08 PM
To: Quad-list Post 
Subject: [QUAD-L] sex Just had a lazy afternoon sex with my wife... all oral, 
since that's what works dependably...  so enjoy times like this… So why does it 
happen so infrequently, why do I let my chronic aches and pains and hassles 
distract me from enjoying life?  I struggle so hard to get through the day 
sometimes, I don't leave any energy for something that should be IMPORTANT 
Anybody else in this boat?

RE: [QUAD-L] Pressure Sore

[alcibiates2]

No, Nicki, you have true low air loss if it bleeds a lot of air under.you.Best 
Wishes, John s. 

 Original message 
From: Nichole Rohling <zoocr...@windstream.net> 
Date: 12/15/2016  3:24 PM  (GMT-05:00) 
To: 'alcibiates2' <alcibiat...@yahoo.com>, quad-list@eskimo.com 
Subject: RE: [QUAD-L] Pressure Sore 

What I have is a hill-rom acucair…..I’m assuming the true low air loss mattress 
is different? nicki From: alcibiates2 [mailto:alcibiat...@yahoo.com] 
Sent: Thursday, December 15, 2016 1:52 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: RE: [QUAD-L] Pressure Sore I don't know if you are able to get one, 
but you need a "True low air loss mattress ", not an alternating pressure 
mattress that leaks air. Good luck. Best Wishes, John s. 

 Original message 
From: Nichole Rohling <zoocr...@windstream.net> 
Date: 12/15/2016 2:13 PM (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Pressure Sore I’ve been paralyzed 18 ½ years and have had 1 
pressure sore at the top of my butt crack a few years after my injury. One of 
my caregivers noticed last night I am getting another one. I am pretty sure 
it’s from laying on my back in bed. I prop my feet up and my pillow top has a 
deep indention where my butt is. I do have a air bed on top of the mattress. I 
can’t lay on my side because my catheter doesn’t drain. Suggestions please on 
how you would relieve pressure on this area.  Home health nurse left me 
aquacell to put on it but they are 6 x 6 ……..she said just cut them but that 
leaves 2 edges that aren’t sealed and I thought you weren’t suppose to put that 
directly on an open sore? Nicki

RE: [QUAD-L] Pressure Sore

[alcibiates2]

I don't know if you are able to get one, but you need a "True low air loss 
mattress ", not an alternating pressure mattress that leaks air. Good luck. 
Best Wishes, John s. 

 Original message 
From: Nichole Rohling  
Date: 12/15/2016  2:13 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Pressure Sore 

I’ve been paralyzed 18 ½ years and have had 1 pressure sore at the top of my 
butt crack a few years after my injury. One of my caregivers noticed last night 
I am getting another one. I am pretty sure it’s from laying on my back in bed. 
I prop my feet up and my pillow top has a deep indention where my butt is. I do 
have a air bed on top of the mattress. I can’t lay on my side because my 
catheter doesn’t drain. Suggestions please on how you would relieve pressure on 
this area.  Home health nurse left me aquacell to put on it but they are 6 x 6 
……..she said just cut them but that leaves 2 edges that aren’t sealed and I 
thought you weren’t suppose to put that directly on an open sore? Nicki

RE: [QUAD-L] Chair Shop

[alcibiates2]

All I can think of is that you might want to try a good electronics person to 
check your chairs. I use a 08 tdx and just went at least 6 miles and didn't use 
a 50% charge on 4 year old interstate maintenance free marine batteries. I got 
them and a polycarbonate divider that I was told should always be used when 
batteries are settled together. I haven't had a box with both batteries 
together since the late 80s. Everest & Jennings used to nestle batteries beside 
each other like this chair and they needed dividers that didn't  come with the 
chair. I don't know if this will help anyone but it's an idea. I know that it's 
out of pocket ,  but electronic repair shops and many auto mechanics have been 
more help to me than DME's. Much faster too.Best Wishes , John s . 

 Original message 
From: Nichole Rohling  
Date: 12/02/2016  5:32 PM  (GMT-05:00) 
To: wheelch...@aol.com, quad-list@eskimo.com 
Subject: RE: [QUAD-L] Chair Shop 

I bought out of pocket in March from a battery supply business and they covered 
2nd set in June/July but said it had to be my chair. DME came out in July and 
was suppose to order new batteries and parts. I called in September asking 
where are my batteries and parts? Never got ordered. They replaced batteries 
Sept 9 with MK brand and replaced Oct 31 but said MK won’t warranty my current 
set. My parts won’t be in supposedly until Dec 14 and by then I am sure my 
batteries will be bad. I don’t feel I should pay out of pocket since I’ve been 
trying to get them to fix my chair since July. Nicki  From: wheelch...@aol.com 
[mailto:wheelch...@aol.com] 
Sent: Thursday, December 1, 2016 6:34 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] Chair Shop MK batteries are both expensive and the best, 
when treated right.  The failure rate on those imported China Batteries have a 
very high failure rate and only a 6 month warranty.  Make sure you place a note 
or sticker on each battery, as to when it was installed,  then hold your 
provider's feet to the fire. Best Wishes In a message dated 12/1/2016 6:13:05 
P.M. Central Standard Time, zoocr...@windstream.net writes:Mine is doing the 
same thing…….finally ordered new battery boxes, joy stick, receive where 
battery box plugs in……..we’ll see if it fixes it. I’m on my 4th set of new 
batteries since March Nicki From: greg [mailto:g...@eskimo.com] 
Sent: Thursday, December 1, 2016 5:48 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Chair Shop The chair shop just sent a guy out to check my 
chair, to see why the batteries are not holding a charge. I get about 3 to 4 
miles. I use to go 8 miles fine. I do not think he knew his butt from a hole in 
the ground. All his answers were “Charge it longer, needs 12 hours a day” I've 
been in a chair 34 years, never charged it 12 hours a day and I wet 13 miles 
one day. Just got new batteries 2 ½ months ago. He did no real testing other 
than an Amp? Meter. They will replace the batteries, and hope its that. Hope 
its not the chair draining them for some reason. I'd like to get it at least 
running good before I get a new one. I'd like to keep it as my backup. Greg

RE: [QUAD-L] Barreries

[alcibiates2]

The  safety issue with the gell batteries is with flying . If acid batteries 
come in contact with salt water they give off poisonous gas. Since AGM, 
advanced glass  mat,, batteries  don't vent, I don't see how they'd be a 
problem. The law was written before  AGM batteries became available.I really 
think that you have described a dead cell. It's not common  but it does happen 
. I think when you get them tested one battery will read 8 volts or something 
under 12. I do wish you the best of luck with it.
John  s.

 Original message 
From: Nichole Rohling  
Date: 11/02/2016  7:13 PM  (GMT-05:00) 
To: 'Danny Hearn' , quad-list@eskimo.com 
Subject: RE: [QUAD-L] Barreries 





Danny, I have Medicare and they cover MK Gel Batteries but they
are expensive 

 

Nicki

 





From: Danny Hearn
[mailto:ddh...@sbcglobal.net] 

Sent: Tuesday, November 1, 2016 7:57 PM

To: wheelch...@aol.com; g...@eskimo.com; quad-list@eskimo.com

Subject: Re: [QUAD-L] Barreries





 











I think they are some type of
sealed acid..but not gel as they come with, the medical equipment supplier
said they will not replace gel batteries after the original ones the chairs
come with go badi think they said it was to costly for insurance to
cover...I hate this because the gel hold up great and are safe. Dan H**





 

















On Tuesday, November 1, 2016 7:51
PM, "wheelch...@aol.com"  wrote:



 







Lead. Acid ARE DANDEROUS.  They will void any manufacture
warrant and can be dangerous to your health and well being.



 





Best Wiishes



Sent from AOL Mobile Mail





-Original Message-

From: Danny Hearn 

To: greg ; quad-list 

Sent: Tue, Nov 1, 2016 12:36 PM

Subject: Re: [QUAD-L] Barreries















Greg...my batteries ran dead
and they were replaced with the lead acid type and had to buy another type
charger because the old charger was made more for the gel type batteries, The
Gel batteries are much better and last longer but when they replace them they
go with the regular acid type because of cost I think.  My chair is real
old also 7 years plus and trying to get a new one because my back-up chair is
shot and this one is beginning to develop problems also. Dan H**





 











On Tuesday, November 1, 2016
11:36 AM, greg 
wrote:



 









I got new
batteries in Aug, but already after a few miles, my chair feels sluggish. After
about 4 miles, my chair has 2 out of 5 bars left of power. Then really gets bad
even on a small ramp. Chair stops, charge bar meter flashes and I have to turn
it off and on. The last 3 weeks or so, after a few miles, the charge meter on
the joystick flahes the Pi sign, TT one wavy cross on top.





The chair repair shop, nor
Invacare, can figure out the flashing Pi sign. Neither have ever seen it
before.







My chair is old and I'm just starting the new chair prosses. But is there
anything that an old chair can do to cause batteries to go out fast. Or draw to
much power?





 





Just called to try and get the
battering replaced.





 





Greg







 























 

Re: [QUAD-L] Barreries

[alcibiates2]

I've used my charger on lead acid, (( check with distilled water ), and gell, 
and maintenance free and it's still doing the job. I have had to replace the 
charger, though .  to charge your batteries  you must have 24 volts and about 
20 amps. Most chargers begin at 30 some amps then drop to 15 and then finally 3 
or 2 before  they stop charging. Always at 26 to 24 volts. most electric 
multimeters can test them. the pi symbol  is what I've  never seen. It must 
mean something .  maybe 1 battery has a dead cell?
Best wishes , John s . 

 Original message 
From: Danny Hearn  
Date: 11/01/2016  8:57 PM  (GMT-05:00) 
To: wheelch...@aol.com, g...@eskimo.com, quad-list@eskimo.com 
Subject: Re: [QUAD-L] Barreries 

I think they are some type of sealed acid..but not gel as they come with, 
the medical equipment supplier said they will not replace gel batteries after 
the original ones the chairs come with go badi think they said it was to 
costly for insurance to cover...I hate this because the gel hold up great and 
are safe. Dan H** 

On Tuesday, November 1, 2016 7:51 PM, "wheelch...@aol.com" 
 wrote:
  

 Lead. Acid ARE DANDEROUS.  They will void any manufacture warrant and can be 
dangerous to your health and well being.
Best Wiishes

Sent from AOL Mobile Mail


-Original Message-
From: Danny Hearn 
To: greg ; quad-list 
Sent: Tue, Nov 1, 2016 12:36 PM
Subject: Re: [QUAD-L] Barreries




Greg...my batteries ran dead and they were replaced with the lead acid type and 
had to buy another type charger because the old charger was made more for the 
gel type batteries, The Gel batteries are much better and last longer but when 
they replace them they go with the regular acid type because of cost I think.  
My chair is real old also 7 years plus and trying to get a new one because my 
back-up chair is shot and this one is beginning to develop problems also. Dan 
H** 

On Tuesday, November 1, 2016 11:36 AM, greg  wrote:
  

 
#yiv5080691910  #yiv5080691910AOLMsgPart_2_323e5daa-2ae5-4a69-8d51-e58b4ee815e8 
td{color:black;}#yiv5080691910  .yiv5080691910aolReplacedBody 
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p{display:block;margin:0.00in;}#yiv5080691910  .yiv5080691910aolReplacedBody 
#yiv5080691910aolmail_yiv5771690354  {}
I got new batteries in Aug, but already after a few miles, my chair feels 
sluggish. After about 4 miles, my chair has 2 out of 5 bars left of power. Then 
really gets bad even on a small ramp. Chair stops, charge bar meter flashes and 
I have to turn it off and on. The last 3 weeks or so, after a few miles, the 
charge meter on the joystick flahes the Pi sign, TT one wavy cross on top.


The chair repair shop, nor Invacare, can figure out the flashing Pi sign. 
Neither have ever seen it before.

My chair is old and I'm just starting the new chair prosses. But is there 
anything that an old chair can do to cause batteries to go out fast. Or draw to 
much power?
 
Just called to try and get the battering replaced.
 
Greg



 



 

RE: [QUAD-L] Barreries

[alcibiates2]

Greg, all I can think of is maybe your charger has something burned out and it 
isn't doing the three stage charge right.  On the other hand , what kind of 
batteries did they put in 4 months ago?One time, they tried to put in 
rediculously small batteries. My chair is being replaced as well, but I never 
run it much below 50%. the batteries usually last 3 to 4 years.As a  rule I 
don't recharge them unless the are down 30 percent but if I'm going to leave 
it, I  always charge it up.Best Wishes , John s . 

 Original message 
From: greg  
Date: 11/01/2016  12:35 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Barreries 

I got new batteries in Aug, but already after a few miles, my chair feels 
sluggish. After about 4 miles, my chair has 2 out of 5 bars left of power. Then 
really gets bad even on a small ramp. Chair stops, charge bar meter flashes and 
I have to turn it off and on. The last 3 weeks or so, after a few miles, the 
charge meter on the joystick flahes the Pi sign, TT one wavy cross on top.


The chair repair shop, nor Invacare, can figure out the flashing Pi sign. 
Neither have ever seen it before.

My chair is old and I'm just starting the new chair prosses. But is there 
anything that an old chair can do to cause batteries to go out fast. Or draw to 
much power?
 
Just called to try and get the battering replaced.
 
Greg

Re: [QUAD-L] Dreams

[alcibiates2]

Yes, I have had dreams that I seemed to be in control of. I was doing drugs at 
that time. Best Wishes,John s 

 Original message 
From: RONALD L PRACHT  
Date: 09/21/2016  7:10 PM  (GMT-05:00) 
To: Quad-list Post  
Subject: Re: [QUAD-L] Dreams 

Has anybody had a dream that you realized was a dream therefore did what you 
want. I think its called as lucid dream.
ron 

On Wednesday, September 21, 2016 11:16 AM, Danny Hearn 
 wrote:
  

 Sometimes I dream that I can get up out of my chair and walk but not smoothly, 
I walk like a disabled person but everyone around seems thrilled about it, not 
sure what that dream is about but I have had that type a few times.   What do 
you guys think of the exoskeletons that were originally invented for the 
military but in the future they want to make available to the public, when they 
can get the cost of them down to a more affordable price range. Dan H** 

On Wednesday, September 21, 2016 10:42 AM, RONALD L PRACHT 
 wrote:
  

 Sometimes Im in a chair, sometimes not.but Im always fighting or cant 
keep up. something is always wrong even if a chair isn't involved.
Ron 

On Wednesday, September 21, 2016 9:22 AM, greg  wrote:
  

 
#yiv2001430326   --
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#yiv2001430326   p{display:block;margin:0.00in;}
#yiv2001430326   body{}
#yiv2001430326 
When you dream, are you paralyzed, walking, or both?
 
I go back and forth. I'd say:
50% of my dreams I walk.
25% of the time I'm in my chair.
25% of the time I'm both. Like I'm in my chair, but I can get up and walk, but 
its very hard and I strugle. Like I'm paralyzed, but I get up and strugle to 
get up to go to the bathroom. Very wierd feeling.
 
Greg



 

 

 

RE: [QUAD-L] Burned Again

[alcibiates2]

Greg, I have been burned long ago,  but now I know better.  Anything that is 
that hot I simply don't mess with.  I always have water nearby in cases where I 
 may have an,accident so I can dilute the spill fast . Hot coffee is the most 
dangerous thing that I mess with anymore. I can deal with being wet, but not 
burned. My best tip is grow aloe plants. The goo  from them works wonders for 
burns.Best Wishes, John s. 

 Original message 
From: greg  
Date: 08/30/2016  5:59 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Burned Again 

You guys burn yourself very often.
I seem to do it a lot. I drink a lot of hot drinks and set the cup on a small 
pillow on my lap. Though I use  cap, it somrtimes drips on my shirt. I usually 
keep my hand through the cup's handel, but sometimes I set my hand on the top 
of the cup so it' does not spill when driving my chair. I burn myself 3 way, 
spill, puttig my hand/fingure over the steam hole, and now and then I use a new 
insolated cup and find out the cup gets too hot and I burned my hand through 
the cup.
Last night a cup got too hot. Back of my fingers and tummy got a few blisters.
When I lived in Seattle we had a wood stove, I often pushed the damper in if it 
was too hot, I often burned my hand by barely touching the tove.
Worst one was spilling a whole cup of hot apple cider on my lap. Huge blisters.
 
Greg

RE: [QUAD-L] air mattress recommendation to avoid bedsores

[alcibiates2]

Any wound  care specialist should be able to order a decent mattress for you.  
It is their job. You should be able to make an appointment with one. Decubitus 
ulcers are similar to burns. There's no excuse for the place your in to ignore 
the wounds  or you.Best Wishes, John s. 

 Original message 
From: DEBRA DEW  
Date: 08/13/2016  3:16 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] air mattress recommendation to avoid bedsores 



I have three pressure areas on my derrière currently being bandaged.



Unless I can OBTAIN AN AIR MATTRESS that will shift my body a little BY HAVING 
CYLINDERS IN IT THAT WILL inflate and deflate EVERY SO OFTEN i AM NOT ABLE TO 
GET RID OF THEM. This is going on for years now and I've ASCERTAINED I must 
purchase A MATTRESS MYSELF
 BECAUSE the facilities I have been in have old mattresses that WILL NOT DO 
WHAT IS NECESSARY FOR ME. I have the money ready to go and now I cannot decide 
what to buy. 



tHIS IS THE ONLY ONE i'VE FOUND SO FAR AND i'VE BEEN LOOKING FOR THREE MONTHS 
and I FOUND THIS ONE IN May and I am extremely frustrated because of the pain 
IN MY you know what.







https://www.google.com/search?q=SPAN+America+air+mattressmass
how+to+order+one+and+is+it+returnable=SP=chrome.5.69i60l2j69i61j69i60j69i57j69i59.20286j0j7=chrome=UTF-8#q=span+america+pre








iF ANYONE is using something successfully I would certainly appreciate it if 
you would tell me the brand and model number. i DO NOT KNOW WHY IT IS SO 
DIFFICULT TO spend my money! Ha ha.



Sorry about the WORDS IN CAPITAL LETTERS. mY dRAGON PROGRAM DOES THAT 
automatically AND i DO NOT KNOW HOW TO STOP IT. I'm not yelling at anybody.



tHANK YOU again















Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot

Currently: Quadrapeligic due to advanced MS and living in a nursing home

Phone: 561-743-5093 Room 227B

SC student 20yrs  

ROMANS 8:28
B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

RE: Fwd: [QUAD-L] Wound FYI

[alcibiates2]

Bryce,  I take a drink after meals. Most of my protein is from food, but 140 
must have been a mistype. I meant 100 grams per day. My bad. The problems with 
wounds is that they drain protein from your system so fast that it is important 
to replenish your that protein loss but as Lori said, don't overwhelm your 
system. Exess protein exits your system via your kidneys and can be harmful if 
not taken with lots of fluids and spread out over the course of a day. Some of 
the protein drinks can't be digested and will simply be excreted through the 
urinary tract. For many quads, it's important to discuss it with doctors and 
dieticians. After all, we want to be healthy, not cause more problems. Best 
Wishes, John s. 

 Original message 
From: Bryce Willis <lwillis82...@msn.com> 
Date: 08/07/2016  9:45 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Fwd: [QUAD-L] Wound FYI 


John, how in the world can you take in 140 grams a day? Larry Willis



Sent from my iPad


Begin forwarded message:





Resent-From: <quad-list@eskimo.com>

From: alcibiates2 <alcibiat...@yahoo.com>

Date: August 7, 2016 at 1:47:52 PM EDT

To: Lori Michaelson <lorilivin...@gmail.com>, William Lang 
<blan...@icloud.com>, quad-list <quad-list@eskimo.com>

Subject: Re: [QUAD-L] Wound FYI






I do know the hospital blue boots, but quite frankly, I believe that they have 
saved my boney feet and ankles from many sores over the years. 
In healing sores,  I've found that a high protein diet is essential. A sore 
will drain protein from your system like nothing else.
Don't turn your nose up to those nasty drinks. Just give in and choke it down. 
At least 140 grams per day. 
Best Wishes, 
John s. 




 Original message 

From: Lori Michaelson <lorilivin...@gmail.com>


Date: 08/05/2016 5:02 PM (GMT-05:00) 

To: William Lang <blan...@icloud.com>, quad-list <quad-list@eskimo.com>


Subject: Re: [QUAD-L] Wound FYI 




Hey William,



I am sorry to hear about your ongoing problems, but this type of thing seems to 
be running rampant this past year, with many of us on this list no matter how 
hard we try for the breakdowns not to happen!



I have never had a Roho cushion as I have always used a rotating air mattress. 
but I posted a couple of weeks ago or a little bit longer what is going on with 
me as a result of a careless nurse ruining my urethra.
 By stretching it. This leads to urine draining around the catheter, which I 
have never had in my life, which gives a Domino effect of skin breakdown -- 
most of which was causing my old battle wounds that I had between 2009 and 
2012, whereby that very fragile
 skin will never get back to as strong as it was.



To add insult to injury, and for the first time in my life a wound opened deep 
in the crease of my groin and for my safety [so any wrong movement or urinary 
bacteria by getting up in my chair] I have been staying
 in bed. It has been a little over 3 weeks now. They are both now closed but 
fragile, so I will wait a few more days to give it a chance to seal a little 
longer for lack of better words.



I DID get up on Tuesday of this week to go see my urologist about the strategy 
of what to do about this urinary leaking and I was going over very smooth roads 
and did not go over any extraordinary bumps or
 anything. And it is only 10 minutes away. But in that time I got an abrasion 
over my right is she'll tuberousity, which is caused by shearing. My Roho 
Cushion has served me well for shearing and that is why I started using one 
beginning in 2010/2011 timeframe.
 So I could get up after my old battle wounds were mostly closed and then 
closed. 



What I have noticed a great correlation to happen is between all the stress I 
have been through over the last six months (because of what happened to me 
around February 1, of having my urethra stretched terribly,
 but of which I did not report at the time, because I did not think it would 
hurt long-term. And there was really no way I could "prove" that one particular 
nurse did it under the circumstances).



Being without any family is what hurts the most and none of this would have 
happened had my sister and brother-in-law been able to keep me living with them 
and they very well could have because they took me
 in for 3 1/2 years after my husband's passing for what I thought would be much 
longer than that . And they had nowhere for me to go because there was no 
accessible houses or apartments in their town or around it. They did not even 
think twice about the consideration
 of putting me in a nursing home I have always been an active person and I was 
getting great care by hiring morning and evening caregivers 7 days a week and I 
had a great home health agency providing me with all nursing needs and 3 
morning home health aide
 visits, which Medicare Certified Home Health Agencies started to cut way back 
on, starting

Re: [QUAD-L] Cushion question

[alcibiates2]

Contour seats have to be designed to fit you. If it's meant to fit everyone it 
will just cause you more problems. I personally need a seat that reclines and 
can tilt in space. I do know it's possible to get Contour seats that can do 
this. Car seats are made to recline an automotive manufacturers have been 
studying the way people sit for a long time much longer then wheelchair 
manufacturers. I'm absolutely certain that Contour seats can be made to fit 
into wheelchairs without risking sores.
I get a little upset when I get into a car seat that is more comfortable then 
my wheelchair and reclines electrically yet nothing like it is available in a 
wheelchair. Let's face it a Roho seat maybe the height of comfort in 
wheelchairs but it looks like crap. I think it's about time some wheelchairs 
had a little bit more Style.
Best wishes to all
John



 Original message 
From: greg  
Date: 07/30/2016  12:04 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Cushion question 

I have always gone back to Roho after trying a new cushion. I'm sure there will 
be a better one sometime. I like the contour part. But, I worry every butt is a 
different shape and size. If it curves where you don't, could cause an issue. 
though if it fits good, might as well try it.
Greg


> Hey guys. I am trying to get a new chair and cushion. My advisor
> wants me to get a new style cushion by Ride Designs. Any of you
> familiar with it? Take a look at ridedesigns.com and tell me what
> you think. I value your opinion. I currently use a roho. Thanks,
> Larry WILLIS
>
> Larry WillisRetired and proud of it
>
>
> Begin forwarded message:
>
>
>> Resent-From: quad-list@eskimo.com
>> From: Bobbie Humphreys  Date: July
>> 27, 2016 at 2:39:21 PM EDT To: quad-list@eskimo.com Subject:
>> [QUAD-L] Pens?
>>
>>
>> I wanted to ask what kind of pens dose everybody use to write
>> with? I'm looking for a retractable pen that I don't need to
>> apply much or any pressure. Bobbie
>>
>> Smile Everyday

RE: [QUAD-L] Strange Request

[alcibiates2]

Well Craig there's a lot of crazy people out there. And it's a cold cold world.

 Original message 
From: greg  
Date: 07/29/2016  2:31 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Strange Request 

I got a strange request today. A guy I thought was a quad on Facebook ended up 
saying he was a caregiver. After chatting a bit, asked me if we could pretend 
he was my caretaker??? I said… “not into that, sorry...”
He says... “You're already a quad, so its easy for you.”
Then he says… “You should take that off FB its inappropriate.”
I said what is? His reply was only a... U
 
Strange guy, Greg

Re: [QUAD-L] Pens?

[alcibiates2]

I use a split that is hinged at the rest and Knuckles and holds my thumb in 
place while my index and middle fingers are moved up and down with the motion 
of my wrist. This allows me a relatively natural way to pick up and hold pans 
forks spoons papers books and food.
It comes in a kit form and a brace maker must hit it to each individual person. 
The hard thing about it is finding a brace maker that will do it. Or should I 
say do it right.
I wish you the best,
John

 Original message 
From: greg  
Date: 07/28/2016  4:13 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Pens? 

I found the Wanchik Writer to be the best way to write and eat. I tape a fork 
and spoon on them. I tried forever to eat using a univarcal cuff, never got it 
to work well. With a little bending, it hold a fork-spoon in a real natural 
position. 
 
https://www.ncmedical.com/item_941.html


Greg
 
> Can you use pen again? http://www.penagain.com/
>
>
> On 7/27/2016 1:39 PM, Bobbie Humphreys wrote:
>> I wanted to ask what kind of pens dose everybody use to write
>> with? I'm looking for a retractable pen that I don't need to
>> apply much or any pressure. Bobbie
>>
>> Smile Everyday
>
>
> ---
> This email has been checked for viruses by Avast antivirus
> software. https://www.avast.com/antivirus

RE: [QUAD-L] Too much

[alcibiates2]

Larry, my best wishes go out to you and yours. May God bless you all.
John s.

 Original message 
From: Larry Willis  
Date: 01/09/2016  7:30 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Too much 

Well, we buried my sister-in-law and mother-in-law on Thursday. My wife MELISSA 
barely made it through the day. Then last night about midnight she took an 
ambulance ride to the hospital. Heart failure causing water retention. Since 
Monday she had gained 25 pounds of fluid. They are removing that, putting her 
on oxygen and blood thinners. Her BP was 175/125, dangerous territory. She 
still can barely breathe. My son Bryce is taking care of me. He is only 15 and 
a great kid. These are rough times on the WILLIS plantation, peeps. If you have 
any extra prayers stashed away in the closet, cash a few of them in for us. 
Thanks.

Larry Willis
Retired and proud of it

Re: [QUAD-L] New wound

[alcibiates2]

Here's what I know about treating small wounds. Start by treating with Dakin's 
solution, you can make it yourself. It consists of 21 parts sterile water one 
part Clorox bleach and a pinch of baking soda. This is much cheaper than buying 
it and it is the actual solution. Since you already have aQUACEL, be sure that 
they just lay it in the world and not pack the wound. It should be very fluffy 
and not tightly packed. Over packing wounds delays healing and often causes 
more damage. Cover the wound and try to stay off it as much as possible.
True Dakin's solution is 7 parts water to one part bleach with a pinch of 
baking soda. This is often too strong to be used at home. Medicaid won't cover 
it because it is easy to make.Best Wishes, John s. 

 Original message 
From: diannal...@aol.com 
Date: 01/08/2016  1:45 PM  (GMT-05:00) 
To: thequadd...@gmail.com, quad-list@eskimo.com 
Subject: Re: [QUAD-L] New wound 

forgot to mention, they were using dankins solution to pack my wound and 
anacept. both fought infection and smelled like bleach. the anacept was used 
because my body couldn't tolerate the dankns very expensive and not covered by 
medicaid.
dianna






-Original Message-

From: Quad Dude 

To: diannal767 

Cc: Quad-list@eskimo.com 

Sent: Fri, Jan 8, 2016 12:11 pm

Subject: Re: [QUAD-L] New wound










My wound is only stage 2 at worst. I think wound VACs are used on wounds that 
are at least stage 3 or worse. Even though my wound is only stage 2, it just 
won't completely heal. I have discussed the possibility of surgery, i.e. skin 
flap, to repair the affected area, but he thinks any risk of the surgery not 
healing properly outweighs just living with the problem I have now.




It gets so old staying out of my chair for extended days at a time, but staying 
in it long-term definitely makes matters worse.





Steve - C4, 27 years





On Fri, Jan 8, 2016 at 11:55 AM,   wrote:

try a wound vac yet?












-Original Message-


From: Quad Dude 


To: Gmail 


Cc: Quad-list@eskimo.com 


Sent: Fri, Jan 8, 2016 10:08 am


Subject: Re: [QUAD-L] New wound















Bobbie,








My wound Dr. has been treating my wound with Aquacel AG for more than a year 
now. I wish I could say it was the magic bullet that worked for me, but I can't 
and it appears my wound is not nearly as deep as yours. In fact, he just 
recently switched me to a different type of bandage called Endoform dermal 
template which is supposed to help build a framework for new skin to heal the 
wound. So far, it hasn't done much better. Keep in mind that this is in spite 
of spending lots of time out of my chair and doing frequent pressure relief 
when I am in the chair. It's very frustrating…










Steve - C4, 27 years










On Thu, Jan 7, 2016 at 10:19 PM, Gmail  wrote:


I got a new wound, over night.



Bamb! Just like that.



It's the size of a nickel and the depth in a female thumb deep.







My wound Doc is packing it with Aquacel AG



Has anybody ever used this stuff?







It has silver in it. It's about 1/4" wide and comes in a roll and you cut as 
much as you need.







I found spray normal saline to clean the wound.







I'm going to get a alternating pressure mattress topper for my bed. I want 4" 
or more.



Anybody know of a good one?







Help! I need you guys on this one.



Bobbie







Smile Everyday

RE: [QUAD-L] Para Race Driver

[alcibiates2]

With the advances in transmission technology many cars can use automatic 
transmissions with thumb shifting on the steering wheel. Braking and throttle 
is a single stick with a finger trigger to keep rpms up if they use a 
turbocharged engine. Actually. A second trigger to operate the clutch would be 
simple but I don't think a standard tranny would offer any real advantage. The 
racing transmissions I used to work with always had a crash synchronization 
system so the driver only used the clutch to stop and go. Shifting is done when 
the idiot light signals to let off the gas and depress the thumb lever on the 
top, or right. Downshifting is the reverse. Rev the motor and press the left or 
lower thumb lever. Long ago, the space and safety of the floor shift was tossed 
out. In 1969 Richard Petty dominated NASCAR in a charger that had a simple 
automatic column shifter. Best Wishes, John s. 

 Original message 
From: greg  
Date: 01/08/2016  10:48 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Para Race Driver 

http://www.michaeljohnsonracing.com/

This is a para who races cars. Very cool.
I bet it's hard to do with hand controls and g-forces.
I bet the hand controls are paddles on the wheel. Only way I can see doing it.
Cool for him.

Greg

Re: [QUAD-L] Wow

[alcibiates2]

What are you I got one for under $200. Are you sure you're buying the right 
model.John s. Best Wishes 

 Original message 
From: Quadius  
Date: 12/23/2015  8:21 PM  (GMT-05:00) 
To: Danny Hearn  
Cc: Larry Willis , quad-list@eskimo.com 
Subject: Re: [QUAD-L] Wow 

I thought these things were much more cost-effective. Possibly around $1000?

On Wed, Dec 23, 2015 at 7:57 PM, Danny Hearn  wrote:
Yep, It's a shame Larry...even with insurance folks can hardly afford to get 
things done. Dan H** 

On Wednesday, December 23, 2015 6:50 PM, Larry Willis 
 wrote:
  

 Here is something that makes me sick to my stomach. My wife is making 
arrangements to get a defibrillator. The hospital sent us a projected cost 
statement today. This is based on entering the hospital at 10:30 am, installing 
the device, and leaving before lunch the next day. Est. cost - $150,000. That 
is double what my house cost. This does not include doctor bills. I am at a 
loss for words. Perhaps these might work - greed, evil, immoral, senseless, 
disgusting, unfair, crazy, sickening. Any thoughts on this?
And other countries provide free healthcare?

 

RE: [QUAD-L] enough with the bowels

[alcibiates2]

That's the way to do it.

 Original message 
From: Joan Anglin  
Date: 12/22/2015  8:19 PM  (GMT-05:00) 
To: 'Eric Olson' , quad-list@eskimo.com 
Subject: RE: [QUAD-L] enough with the bowels 

This just goes to show how different we all are, and not just injury level.  I 
do program every morning about 6:30 AM, and it usually takes 10 to 20 minutes.  
Every evening I take Metamucil, Benefiber and Align pro biotic.  I've been on 
this regime for five years after consulting with a gastroenterologist and it 
definitely works for me.  He was absolutely awesome and worked with me very 
closely until I got regulated quite well.  You might want to see a 
gastroenterologist and get some ideas from him or her.  Good luck, my life is 
so much easier than it was for the 20 years before.  Joan

RE: [QUAD-L] Cold Out

[alcibiates2]

Greg if you're freezing and chilling in Arizona at this time of the year I 
really think you should see a specialist. It sounds to me like you're in pain 
and you don't know where it's coming from. It is important to find out where it 
is coming from. Best wishesJohn s. 

 Original message 
From: greg  
Date: 12/13/2015  11:56 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Cold Out 

I just can't imagine still living in Seattle, I'm in the Phoenix area now. The 
highs this next week are 54-66, the lows are 29-38. Yesterday I wore heavy 
sweats, a shirt, heavy  hoodie, and wrapped in a blanket, fleece hat, and drank 
hot drinks all day, heat set at 80. And still froze all day. Must be low 
pressure or something aches my bones. Just shaking cold. I can't imagine you 
east coast guys. At least here it's only a few months a year. It's not too bad 
during the day if it's at least sunny out. I hate getting washed up when it's 
so cold out, no mater what the heats on. I don't know how you guys leave the 
house.
Greg

Re: [QUAD-L] Bowel Problems

[alcibiates2]

Considering all the problems and pain does anyone here ever think of getting a 
colostomy?
Best wishes,John s. 

 Original message 
From: greg  
Date: 12/04/2015  11:28 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Bowel Problems 

Mine got so bad, 2+ hours of non stop sweating, constant worries about it, I 
finely "Just bagged it". I wish I'd done it from the beginning. Sooo much 
easier, faster, less worries, no accidents. reg


> I have hated BM days for yrs due to the sweats, nausea etc. Milk of
> Magnesia or sennekot is what I use.

RE: [QUAD-L] Are my posts getting through

[alcibiates2]

Bob, I got this post but I didn't see a post from you on Friday. I have had the 
same trouble in the past. Best Wishes, John s. 

 Original message 
From: Robert Vogel  
Date: 11/30/2015  4:25 PM  (GMT-05:00) 
To: ""  
Subject: [QUAD-L] Are my posts getting through 

I put a post on Friday.  Still don’t see it yet.  Come to think of it I haven’t 
seen any quad-list
posts for a few days.  Has the site been down?

Bob V

RE: [QUAD-L] Bad AD

[alcibiates2]

Very sorry to hear that Greg. Shingles are very painful.  (DUH) Have you tried 
a pain killer like Oxycodone. The pain is probably causing the shakes. Then I 
can only suggest that you use an inspirometer while bringing the fever down. 
Having had the shingles I can only wish you the best over the next four to six 
weeks. The pain that you don't feel is there and your body is feeling it. You 
can't let the pain killers depress your breathing. If the infection travels to 
your lungs it will turn to pneumonia.Very Best Wishes, John s. 

 Original message 
From: greg  
Date: 11/27/2015  7:15 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Bad AD 

I have 101.8 fever, had to go to urgent care today. Everything was looking 
better, but AD was worse. Now my crotch still has yeast infection, still has 
shingles, and now is infected. Lots more meds and creams, if not better in 2 
days, suposed to go to ER for IV meds. Though I'm at 101.8, uncontrolible 
shaking feeling cold. Neck and shoulders hurt from clinching jaw so tight.
No fun, Greg

Re: [QUAD-L] More Issues Today

[alcibiates2]

There are many good bacteria that are killed off by antibiotics that should be 
replaced between doses. Any GNC or similar type of place would be happy to 
advise her about the right solution for her problem. Acidophilus works for me 
in most cases.Best Wishes, John s. 

 Original message 
From: Gmail  
Date: 11/16/2015  9:20 PM  (GMT-05:00) 
To: greg  
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] More Issues Today 

Sorry Greg. As you know somebody always is worse off.

My neighbor Dawn (a Quad 25 years post) who lives in my building has Mesa, more 
toes are infected and might need to be amputated. The wound center put her on 2 
super antibiotics which is reiki havoc with her intestines and she is getting 
diarrhea multiple times after transferring into bed ALONE. 
She told me she had to clean herself up each time all by herself. 
She called the VNA at 5:00am but they didn't get to her till 9:00am

Bobbie

Smile Everyday

> On Nov 16, 2015, at 7:29 PM, greg  wrote:
> 
> 
> Now I have 2 more issues to deal with. I burned the back of a couple fingers. 
> Putting my fingers through the handle of a cup of hot cider. It must have 
> gotten too hot. Plus, my crotch is inflamed. My pants were wet, but nothing 
> leaked, so I assume I spilled said hot drink in my crotch too. It looks bad. 
> I'll have to get it looked at.
> Greg
> 

RE: [QUAD-L] Quad Gut?

[alcibiates2]

Uhm, what's your idea? A binder implant,  maybe? The problem is muscle 
distention and gravity. I have heard of electronic stimulation treatments, but 
I've never heard what the long term results were. As far as surgery,  well most 
doctors just smile and walk away. If you find out anything new, please post it 
for all of us.

 Original message 
From: greg  
Date: 11/08/2015  5:57 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Quad Gut? 

Anyone ever heard of a quad doing surgery on a quad gut?
Mines not real big, but can get uncomfortable. It often feels like it's 
extended, bloated. I use a binder for blood pressure and it helps with the 
bloated feelings, but it can fold and leave red marks. So I leave it off every 
few days. I thought they should be able to push everything back in place then 
tighten it up.
Greg

RE: [QUAD-L] testing

[alcibiates2]

Yes but I don't know if I am.
Best wishes,
John s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: RONALD L PRACHT  
Date: 10/29/2015  10:31 PM  (GMT-05:00) 
To: Quad-list Post  
Subject: [QUAD-L] testing 

  just seeing if im getting through

RE: [QUAD-L] Back on list

[alcibiates2]

Welcome back! Best Wishes, John s.

 Original message 
From: jume9...@comcast.net 
Date: 10/11/2015  4:56 PM  (GMT-05:00) 
To: quad-list  
Subject: [QUAD-L] Back on list 

Hi all,
How have you all been?
I was unable to receive mail from this list for awhile. Now I am just sending a 
test to see if I can receive posts again.

Meredith

Re: [QUAD-L] Hello

[alcibiates2]

Yeah, I'm here too, wherever here is. 

 Original message 
From: llt1...@sbcglobal.net 
Date: 08/17/2015  9:30 PM  (GMT-05:00) 
To: bobbiehumphre...@gmail.com, quad-list@eskimo.com 
Subject: Re: [QUAD-L] Hello 

I'm here!  Sent from my MetroPCS 4G Android device  -- Original 
message-- From: GmailDate: Mon, 8/17/2015 8:14 PMTo: 
quad-list;Subject:[QUAD-L] Hello Hello!! Is anybody out there?
Bobbie 

Smile Everyday

Re: [QUAD-L] New Chairs

[alcibiates2]

I really have to ask this. Is speed really a selling point for electric 
wheelchairs? I'm always looking for comfort and durability, ease of service.  
When a tech starts talking speed, I start wondering if the leg risers are going 
to fall off.John s.

 Original message 
From: Quadius quad...@gmail.com 
Date: 08/13/2015  7:18 PM  (GMT-05:00) 
To: linda...@comcast.net 
Cc: Greg g...@eskimo.com, quad-list quad-list@eskimo.com 
Subject: Re: [QUAD-L] New Chairs 

If you're using a magitex it will dampen the amount of speed. My chair can 
usually do about 7 miles an hour, but I'm only able to do 5.8 with my magitex

On Saturday, July 25, 2015,  linda...@comcast.net wrote:
Greg I had a Quickie PS 320  loved it then I got a Quantum with the Majitek 
Drive system which was really fast but the Chair tech could never get it 
programmed right for me. Now I have a Quantum 4000 with their control system  
it is fast also in speed three. Linda F.

RE: [QUAD-L] SPINAL CORD INJURY pain study

[alcibiates2]

Think the consensus is, just publish it on the list! Thanks Bobby.Best 
wishes,John s. 

 Original message 
From: Gmail bobbiehumphre...@gmail.com 
Date: 08/10/2015  4:45 PM  (GMT-05:00) 
To: quad-list quad-list@eskimo.com 
Subject: [QUAD-L] SPINAL CORD INJURY pain study 

I wanted to let you all know about pain study that you can do over the phone. 
It is being done at Kessler Institute in New Jersey.
If anybody is interested in participating in the study, which will pay $200, 
let me know and I will send you the contact information.
Bobbie

Smile Everyday

Re: Fwd: [QUAD-L] Old sci

[alcibiates2]

I know that many quads only break their necks and become quads, but some of us 
break a lot of things. I was hurt and had a severe head injury, a broken neck, 
back, several ribs, left arm and leg, spleen, fingers and nose. Arthritis 
became an issue after about 28 years post. I have to use a back brace because I 
have disc disintegrating disease or DDD. I get AD from just being positioned 
wrong.  I am not looking for sympathy.  I'm sick of that. I do know that other 
quads have similar problems and are fighting unseen pain with little help 
because they have lived so long. I've never met two quads exactly alike. The 
one thing that we do have in common is a desire to be treated with the same 
respect that so many people take for granted. I don't want pity, just a low air 
loss mattress that was promised to me last year. You can't spend pity.Best 
wishes, John s.

 Original message 
From: Don Price donpric...@yahoo.com 
Date: 08/08/2015  11:01 PM  (GMT-05:00) 
To: Larry Willis lwillis82...@gmail.com, quad-list@eskimo.com 
Subject: Re: Fwd: [QUAD-L] Old sci 


I'm writing this for any new quads on the list because I see things differently 
than most of those who have responded to this post.
I will be 33 years post injury on August 15th--C5-6 complete quad due to diving 
accident. At this time I would love nothing more than to someday be the oldest 
living quad. I suppose I can say that because I don't have the debilitating 
pain or issues many on this list speak of. I'm not saying this to undermine 
their struggles--I know I'm very lucky.
I get up every day looking forward to the adventure ahead. I am thankful for 
every moment I have and I try to radiate that positive vibe to every person I 
meet. I don't always succeed, and I have bad days just like everybody else. 
Still, my greatest fear is dying too soon, not dying too old. 
As others have said here: they were fine living as quads for years and then 
things just fell apart. I know that is a possibility for me, too. That 
realization adds even greater urgency to every day--I want to experience 
everything I possibly can while I'm healthy.
So, for any new quads on this list, let me be testimony that life as a quad can 
be full, happy, active and rewarding, even after 33 years. I only speak for 
myself, but I know I'm not alone.
I wish you all health and happiness,
Don P C5-6, 33 yrs postTempe, AZ  

RE: [QUAD-L] Surgery

[alcibiates2]

I wish you all the best of luck. I do know what you are going through and 
remember , don't push. Now,  back to the greens and the mirilax. Don't forget 
protein.  It's great for helping the body to heal. I hope you recover and enjoy 
Christmas and the all of the holidays. 
Best wishes, 
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: nichole rohling zoocr...@windstream.net 
Date:12/13/2014  11:53 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Surgery 

Well I did it. I had surgery on my hemorrhoids Monday. They didn’t do a spinal 
block…..just sedation and local anesthetic. They kept me for observation  
overnight and I came home Tuesday afternoon. All was good until I came home. I 
got nauseated on the way home so I ate some soup and took a phenagran. I went 
to bed at 4 and it was a rough evening and  night. I was sick to my stomach and 
sweated my rear off all night. I really wanted to die and should’ve called 911 
to go back to the hospital. Should’ve stayed an extra day.  I rested all day 
Wednesday but was up in my chair all day Thursday and Friday. Still taking pain 
meds but went 9 hours yesterday in between doses.
 
The surgeon said not to do bowel program for at least a week………I feel like a 
fat cow. Taking Miralax and praying I’ll go when I’m on my shower chair.
 
On a lighter note and something only quads can appreciate……I’ve passed gas 
w/out bending over or pushing on my rear……it was a joyful noise…….lol
I guess there’s no roadblocks anymore J now if I can just go to the bathroom!
 
Nicki
C5/6

[QUAD-L] I haven't seen mail since wed

[alcibiates2]

I haven't seen any email from the list since Wednesday.  Am I still  on the 
list? Is everyone out shopping? I wish you all well. 
John s


Sent from my Verizon Wireless 4G LTE smartphone

RE: [QUAD-L] Medical Marijuana

[alcibiates2]

Well, don't waste it. You can cook it into all kinds of foods. If you have it 
as butter,  at least spread it on a muffin. Lol. Seriously,  sometimes it's gas 
bubbles. Mostly. They just don't last long enough to really study.
Best wishes, 
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Paul Jacobson pjacob...@san.rr.com 
Date:12/09/2014  1:55 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Medical Marijuana 

I am just starting to try this stuff out.  I have spasms (mostly 
bladder/midsection)
and have heard that applying the liquid form can help a good deal.  You don’t
get the high, but for me, calming the spasms would be huge.  Any thoughts
or recommendations?
 
Thanks,
 
Paul c5/6 complete
11 years post/50 yrs old
San Diego, CA

RE: [QUAD-L] Fwd: 2 SCI research survey opportunities from the Miami Project

[alcibiates2]

Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Fragile swl...@gmail.com 
Date:12/08/2014  12:12 PM  (GMT-05:00) 
To: quad-list quad-list@eskimo.com 
Subject: [QUAD-L] Fwd: 2 SCI research survey opportunities from the Miami 
Project 


-- Forwarded message --
From: Anderson, Kimberly D kanders...@med.miami.edu
Date: Mon, Dec 8, 2014 at 9:58 AM
Subject: 2 SCI research survey opportunities from the Miami Project
To: Anderson, Kimberly D kanders...@med.miami.edu


Survey About Pain After Spinal Cord Injury

 

Researchers at the Miami Project are conducting a web-based survey regarding 
day-to-day experiences of people living with spinal cord injury (SCI) and 
chronic pain. In most cases pain remains a major problem, despite our best 
treatments. The purpose of this study is to learn from the perspectives of 
people who are living with this pain.  The information regarding the personal 
experiences of living with SCI and chronic pain is needed to improve the 
understanding and management of this difficult condition, and will benefit the 
general SCI community including Veterans, their families, and caregivers.  
Everyone with persistent pain after a spinal cord injury has a unique 
experience. We would like to hear about yours!

Access the survey here: www.surveymonkey.com/s/SCIpain

 

 

Survey About Independence in Daily Living and Quality of Life After Spinal Cord 
Injury

 

The enclosed link below contains a survey that seeks your opinion/perspectives 
on which functions you (would) value most highly to improve your own 
independence in daily living and quality of life.  It does so by asking you to 
complete a series of scenarios and questionnaires, ranking the relative 
importance in restoring different sorts of function (arm movement/hand 
grasping, walking, bladder and bowel control, sexual function) and/or treating 
the very common problem of neuropathic (nerve-related) pain against each other. 
This research forms part of a PhD study in which we hope to be able to compare 
views of people with SCI in the United States with Australia, extending 
previous work done in US.

Access the survey here: 
http://www.surveygizmo.com/s3/1880284/SCI-Health-Choices​

 

Best wishes and Happy Holidays!

Kim

 

 

 

Kim Anderson-Erisman, Ph.D.

Associate Professor, Department of Neurological Surgery

Director of Education, The Miami Project to Cure Paralysis

Lois Pope Life Center

1095 NW 14th Terrace, Room  1-31, Mail Locator R-48

University of Miami

Miami, FL 33136

Office:  305-243-7108

Fax:  305-243-3913

kanders...@med.miami.edu

www.themiamiproject.org

 

RE: [QUAD-L] cool item to control electric appliances with remote

[alcibiates2]

It looks like a great deal. I'll get one to! That'll come under the 
to-me-from-me-for-me gift list. Lol.

john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: RONALD L PRACHT r.pra...@sbcglobal.net 
Date:12/06/2014  8:10 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] cool item to control electric appliances with remote 

http://www.ebay.com/itm/5-Pack-Wireless-Remote-Control-Power-Outlet-Light-Switch-Plug-Socket-W-2-remotes-/141453226402?pt=Home_Automation_Moduleshash=item20ef44f1a2autorefresh=true


I found this device on ebay. It allows you to control 5 different electric 
items with one remote control for under 30 bucks. Im picking one up for 
Christmas.

Ron

RE: [QUAD-L] cool item to control electric appliances with remote

[alcibiates2]

That looks like a great deal.  I have to have one too!  I'll put it on my 
to-me-from-me-for-me gift list.  Lol
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: RONALD L PRACHT r.pra...@sbcglobal.net 
Date:12/06/2014  8:10 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] cool item to control electric appliances with remote 

http://www.ebay.com/itm/5-Pack-Wireless-Remote-Control-Power-Outlet-Light-Switch-Plug-Socket-W-2-remotes-/141453226402?pt=Home_Automation_Moduleshash=item20ef44f1a2autorefresh=true


I found this device on ebay. It allows you to control 5 different electric 
items with one remote control for under 30 bucks. Im picking one up for 
Christmas.

Ron

Re: [QUAD-L] Autonomic Dysreflexia and pain

[alcibiates2]

I just thought of a problem that I have from time to time. Check for wrinkles 
under you. After several hours they can feel like knives. 
Best wishes
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Quadius quad...@gmail.com 
Date:12/05/2014  6:28 PM  (GMT-05:00) 
To: Don Price donpric...@yahoo.com 
Cc: Larry Willis lwillis82...@gmail.com,quad-list@eskimo.com 
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain 

If you're having lactose intolerance you can try multiple things to ameliorate 
the situation. Lactase, avoiding dairy, using substitutes. Me I have more of a 
dairy allergy most of the time.

On Thursday, December 4, 2014, Don Price donpric...@yahoo.com wrote:
Sounds like you might have some food allergies. Remember that allergies CAN 
develop over time, so just because you've never been lactose intolerant doesn't 
mean that hasn't changed. The one you hear about now is gluten sensitivity, but 
there are many foods that could be causing you to have reactions. Excessive gas 
in the stomach or intestines could easily cause A.D., as well as inflame your 
digestive tract. It might be worth seeing and allergist, or at least trying a 
change in diet to see what happens. For example, no dairy products for two 
weeks. Other common allergens include: eggs, nuts, shellfish, soy and wheat 
products. Carbonated beverages can cause gas too.

Good luck. I hope you guys can figure it out!

Don.

From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Thursday, December 4, 2014 9:24 AM
Subject: Fwd: [QUAD-L] Autonomic Dysreflexia and pain

Empty bowels always makes me feel better. Sometimes I wish I could get by 
without eating anything at all. But, alas, hunger pangs interfere. I eat, 
become bloated and painful, and the whole thing starts over again. Bummer.

Sent from my iPad

Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: jume9...@comcast.net
Date: November 24, 2014 at 5:25:01 PM EST
To: alcibiates2 alcibiat...@yahoo.com, quad-list quad-list@eskimo.com
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain



You are correct and I do that. Also, i have noticed that when you have a 
thorough bowel movement it helps the medicine work better...weird I know, but 
true for me. Anyone else notice that?

From: alcibiates2 alcibiat...@yahoo.com
To: jume9...@comcast.net, quad-list quad-list@eskimo.com
Sent: Monday, November 24, 2014 1:21:23 PM
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain

I think that the first thing everyone needs to know about most pain drugs is 
that you must continually break the forming addiction.  Staying on one drug 
will cause it to lose its effectiveness.at that point you are taking the drug 
and its not doing anything but feeding an addiction. No one in pain wants to 
hear this but the fact is you must find another drug or device while you detox.
 The drug needs to come from another family of drugs.  Altering your 
medications and using milder drugs whatever the pain isn't quite as bad can 
help extend the use of Norco or vicodin.
  Don't get me wrong, I'm totally sympathetic I've been on the trip myself.  
john s


Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: jume9...@comcast.net 
Date:11/24/2014 3:40 PM  (GMT-05:00) 
To: quad-list 
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain 

I have the same thing with pinched nerves from my disc. Also, when I first 
broke my neck My hip on one side got inflamed with calcium deposits 
(hetertopicosification) witch has left me crooked. The last few years my whole 
other side has deterorated and so Norco has stopped working very well. What is 
the next step up in pain management.? They won't operate.

Meredith
From: alcibiates2 alcibiat...@yahoo.com
To: Danny Hearn ddh...@sbcglobal.net, quad-list quad-list@eskimo.com
Sent: Monday, November 24, 2014 5:57:02 AM
Subject: Re: [QUAD-L] Autonomic Dysreflexia

I was told it was disintegrating disc disease. There's no cure for it. It 
causes nerves to be pinched as well as making it impossible to position 
comfortably. Spending long times sitting in the chair is really painful.I'm to 
the point now where I get out of bed for a couple hours each day.
Best wishes. 
john s


Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: Danny Hearn 
Date:11/24/2014 5:44 AM (GMT-05:00) 
To: alcibiates2 ,quad-list@eskimo.com 
Subject: Re: [QUAD-L] Autonomic Dysreflexia 

John, I read that many quads develope disc problems in their backs, did they do 
anything for yours or do you just get by as best you can with that??  thanks, 
Dan**


On Sunday, November 23, 2014 6:55 PM, alcibiates2 alcibiat...@yahoo.com wrote:


Dan, I've had some fractures that were almost undetectable but really sent my 
bp up and pulse way down. Just the weight of my foot separated my tibia at the 
mantle below the knee. Chalky bones and deterioration

RE: Fwd: [QUAD-L] scalp itch

[alcibiates2]

Maybe our lack of feel has caused us to be more sensitive to what and where we 
can feel. You might be onto a fellowship grant!?
John s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Joan Anglin poaj...@sbcglobal.net 
Date:12/04/2014  2:33 PM  (GMT-05:00) 
To: 'Don Price' donpric...@yahoo.com,'alcibiates2' 
alcibiat...@yahoo.com,'greg' g...@eskimo.com,quad-list@eskimo.com 
Subject: RE: Fwd: [QUAD-L] scalp itch 

I think it’s because we cannot scratch our heads!
 
From: Don Price [mailto:donpric...@yahoo.com]
Sent: Thursday, December 04, 2014 9:08 AM
To: alcibiates2; greg; quad-list@eskimo.com
Subject: Re: Fwd: [QUAD-L] scalp itch
 
I'm curious: do you think we're more susceptible to scalp itch because of our 
sci/quadriplegia for some reason? Or are we just having typical ailments that 
go along with aging? After all, Selsun Blue has been around a while--they 
must be making money.
 
I can't think of many reasons our quadriplegia would contribute to scalp itch, 
except:
1. we wear hats more?
2. we lay in bed more and move less?
3. we shower or wash our hair less?
 
Further investigation needs to be conducted.  :)
 
Don.
 
From: alcibiates2 alcibiat...@yahoo.com
To: greg g...@eskimo.com; quad-list@eskimo.com 
Sent: Wednesday, December 3, 2014 5:59 PM
Subject: Re: Fwd: [QUAD-L] scalp itch
 
Season blue works for me. Lol. Try every other day. (Once a week,lol )
john s
 
 
Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: greg 
Date:12/03/2014 6:59 PM (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: Fwd: [QUAD-L] scalp itch 

My head itches so bad some days, it hurts.
Sometimes it's jus sun burns, I'm in the sun a lot.
But other times it's dry skin. I've tried all those shampoos, but none even 
helped a bit. I went to my doc about it. He said to lightly scrape your scalp 
with a plastic comb, then run Crisco Oil on my scalp over night. Then wash real 
good and scrape with comb again. \
It's not perfect, but it did help a lot. I have to lay a towel over my lap 
because so much dry skin falls off while I'm scraping my scalp. It's like it's 
snowing.
I also have to wash my hair at least twice a week or it gets bad. I try and go 
once a week when it's cold out, but it starts itching again.
Greg


 My head is itching like crazy. Im going to try the selsun blue I
 guess. Anybody know anything better to put on there that's fairly
 simple? Must be because of the cold weather and I wear a sock hat
 all the time.   Ron

 

Re: Fwd: [QUAD-L] scalp itch

[alcibiates2]

Season blue works for me. Lol. Try every other day. (Once a week,lol )
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: greg g...@eskimo.com 
Date:12/03/2014  6:59 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: Fwd: [QUAD-L] scalp itch 

My head itches so bad some days, it hurts.
Sometimes it's jus sun burns, I'm in the sun a lot.
But other times it's dry skin. I've tried all those shampoos, but none even 
helped a bit. I went to my doc about it. He said to lightly scrape your scalp 
with a plastic comb, then run Crisco Oil on my scalp over night. Then wash real 
good and scrape with comb again. \
It's not perfect, but it did help a lot. I have to lay a towel over my lap 
because so much dry skin falls off while I'm scraping my scalp. It's like it's 
snowing.
I also have to wash my hair at least twice a week or it gets bad. I try and go 
once a week when it's cold out, but it starts itching again.
Greg


 My head is itching like crazy. Im going to try the selsun blue I
 guess. Anybody know anything better to put on there that's fairly
 simple? Must be because of the cold weather and I wear a sock hat
 all the time.   Ron

RE: [QUAD-L] Fwd: [I USE A WHEELCHAIR,SO WHATS THE PROBLEM?] Does any ever get leg spasms late at night when...

[alcibiates2]

I'm pretty sure you're still a second place to California. I sure wish I had a 
dooby. It's hard to find as you get old 
Best wishes
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Larry Willis lwillis82...@gmail.com 
Date:11/30/2014  4:34 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Fwd: [I USE A WHEELCHAIR,SO WHATS THE PROBLEM?] Does any ever 
get leg spasms late at night when... 

I really really wish we had cannabis here in Kaintuck. We grow it by the 
trainloads but it is exported or puffed in private. I do not know where we 
stand now, but at one time we were second only to California in production. 
Just transitioned from moonshine!

Sent from my iPad

Begin forwarded message:

From: Eric N. Franks notification+ma24w...@facebookmail.com
Date: November 28, 2014 at 3:30:19 PM EST
To: I USE A WHEELCHAIR,SO WHATS THE PROBLEM? 
117559551611...@groups.facebook.com
Subject: Re: [I USE A WHEELCHAIR,SO WHATS THE PROBLEM?] Does any ever get leg 
spasms late at night when...
Reply-To: Reply to Comment 
g+4145y01t00bjyk3y008pevxltiiq00p4rll62s...@groups.facebook.com

Eric N. Franks commented on Brad Schear's post in I USE A WHEELCHAIR,SO WHATS 
THE PROBLEM?.

Eric N. Franks   3:30pm Nov 28
I do, and I have been using Cannabis as a medicine for nearly 13 years, 
successfully too! If you're in a medical Cannabis state, get in touch with a 
recommending Physician. You don't have to smoke anything, use tincture 
(concentrated liquid extracts) or vaporization. I use very high CBD and CBN 
types, both have very low amounts of THC!
Comment History

Caitlin McKone  2:07pm Nov 28
Take a muscle relaxer before bed. The reason I get leg spasms is because of 
where I put my foot and in what position my leg is in, does that my sense? I 
never get them in my Afo's, only when I am not wear my braces.

William Larry Willis2:03pm Nov 28
Yes! Last night was horrible! My right leg is a servant of satan. Got maybe 3 
hrs of sleep

Marc Pyle   1:39pm Nov 28
Is quinine illegal then in the us?

Karen Mathurin  1:30pm Nov 28
I get leg spasms when I'm snuggled under my covers. I just let them run their 
course, eventually, I go to sleep. I take baclofin and eventually, that kicks 
in, thank God!  I'll say a prayer for you, Brad Schear and all who posted here. 
God bless!  O:)

Jim Wilson  11:49am Nov 28
talk to your neurologist
View All Comments
Original Post

Brad Schear 1:50am Nov 28
Does any ever get leg spasms late at night when laying in bed? How do you help 
it? Lately ive been getting them and they last about an hour every night when 
im sleeping

View Post on Facebook · Edit Email Settings · Reply to this email to add a 
comment.

Re: [QUAD-L] Long time

[alcibiates2]

Welcome back Lil quad. LTNS. I hope all is well with you.  Happy THANKSGIVING!
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: linda...@comcast.net 
Date:11/26/2014  3:12 PM  (GMT-05:00) 
To: Amy Elizabeth Baldwin littleq...@gmail.com 
Cc: quad-list quad-list@eskimo.com 
Subject: Re: [QUAD-L] Long time 

Welcome back Lil Quad, it's so good to hear from you!  Sounds like you are 
doing the right thing for swollen feet. I try to do the same thing.
lindaf
 

From: Amy Elizabeth Baldwin littleq...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Tuesday, November 25, 2014 7:43:45 PM
Subject: [QUAD-L] Long time

Hello again friends! LittleQuad is here!
I had been having swollen feet for a while. I noticed that when I lay all the 
way back in my chair during the day and have my feet elevated above my head 
they would slowly drain. About 3 weeks ago when I got into bed and  they were 
still very swollen. So I asked my mom if she minded letting me lay on my back 
and propping my feet up on several pillows, each leg on separate stack. I lay 
there about 2 hours. It makes a HUGE DIFFERENCE! We cath about 500 to 600.
Then about 10pm I get on my side.
Just wanted to let everyone know what I discovered!!!
♡ LittleQuad

[QUAD-L] Unidentified subject!

[alcibiates2]

I was told by two doctors that there's not much can be done about it.  It s a 
Case of no money no can do. 
  I think if I could live nearby Denver or Miami  I would be able to see some 
serious doctors.  Cincinnati isn't the best place for a poor quad to live or 
even try to get by.
  When they say it's not about money you know it's about money.  It makes me 
wonder why they kept me alive  in 75 when they don't want to see me when 
predictable crap starts to occur. I am here because of their decision not mine. 
  Just too stupid to  die and to we'll mannered to off myself. 
Tiz the season,

Sent from my Verizon Wireless 4G LTE smartphone

Re: [QUAD-L] Autonomic Dysreflexia

[alcibiates2]

I was told it was disintegrating disc disease. There's no cure for it. It 
causes nerves to be pinched as well as making it impossible to position 
comfortably. Spending long times sitting in the chair is really painful.I'm to 
the point now where I get out of bed for a couple hours each day.
Best wishes. 
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Danny Hearn ddh...@sbcglobal.net 
Date:11/24/2014  5:44 AM  (GMT-05:00) 
To: alcibiates2 alcibiat...@yahoo.com,quad-list@eskimo.com 
Subject: Re: [QUAD-L] Autonomic Dysreflexia 

John, I read that many quads develope disc problems in their backs, did they do 
anything for yours or do you just get by as best you can with that??  thanks, 
Dan**


On Sunday, November 23, 2014 6:55 PM, alcibiates2 alcibiat...@yahoo.com wrote:


Dan, I've had some fractures that were almost  undetectable but really sent my 
bp up and pulse way down. Just the weight of my foot separated my tibia at the 
mantle below the knee. Chalky bones and deterioration of spinal disc's have 
played hell with me. Try sitting straight up and take something for pain. Don't 
recline until your pulse returns to your normal never be afraid to 911 yourself 
to an er.
Tip:take a copy of a medical definition of AD with you along with your med 
list. I swear they can be pig ignorant of what is going on and what to do. Help 
has gotten ambivalent in Cincinnati. 
Best Wishes,
John s







Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: Danny Hearn 
Date:11/23/2014 4:42 AM (GMT-05:00) 
To: quad-list@eskimo.com  
Subject: [QUAD-L] Autonomic Dysreflexia 

Man, I hate having dysreflexia and unable to find the cause, I have been having 
it on and off for about 3 days and have had almost no sleep for the last 2 
days. Bladder and bowels all seem fine-no pressure sores or etc. that we can 
find. When I try to lay down at night after a while I get real hot and clammy, 
my heart begins to pound and act up. I do have a syrinx and bad neck and back 
pain but not sure if that can be the problem. I guess Monday I'll try to call 
my primary doctor and get checkup and bloodwork for a start, This stuff is 
depressing and drives my wife crazy making her lose sleep also, plus she is a 
caregiver to an elderly woman with alzheimers 4 days a week. This Quad related 
stuff can be so challenging at times ! Well I guess i'm done venting...it's 
about 3:45 am. Hope To get better before long.  Dan H***

Re: [QUAD-L] Autonomic Dysreflexia and pain

[alcibiates2]

I think that the first thing everyone needs to know about most pain drugs is 
that you must continually break the forming addiction.  Staying on one drug 
will cause it to lose its effectiveness.at that point you are taking the drug 
and its not doing anything but feeding an addiction. No one in pain wants to 
hear this but the fact is you must find another drug or device while you detox.
 The drug needs to come from another family of drugs.  Altering your 
medications and using milder drugs whatever the pain isn't quite as bad can 
help extend the use of Norco or vicodin.
  Don't get me wrong, I'm totally sympathetic I've been on the trip myself.  
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: jume9...@comcast.net 
Date:11/24/2014  3:40 PM  (GMT-05:00) 
To: quad-list quad-list@eskimo.com 
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain 

I have the same thing with pinched nerves from my disc. Also, when I first 
broke my neck My hip on one side got inflamed with calcium deposits 
(hetertopicosification) witch has left me crooked. The last few years my whole 
other side has deterorated and so Norco has stopped working very well. What is 
the next step up in pain management.? They won't operate.

Meredith
From: alcibiates2 alcibiat...@yahoo.com
To: Danny Hearn ddh...@sbcglobal.net, quad-list quad-list@eskimo.com
Sent: Monday, November 24, 2014 5:57:02 AM
Subject: Re: [QUAD-L] Autonomic Dysreflexia

I was told it was disintegrating disc disease. There's no cure for it. It 
causes nerves to be pinched as well as making it impossible to position 
comfortably. Spending long times sitting in the chair is really painful.I'm to 
the point now where I get out of bed for a couple hours each day.
Best wishes. 
john s


Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: Danny Hearn 
Date:11/24/2014 5:44 AM (GMT-05:00) 
To: alcibiates2 ,quad-list@eskimo.com 
Subject: Re: [QUAD-L] Autonomic Dysreflexia 

John, I read that many quads develope disc problems in their backs, did they do 
anything for yours or do you just get by as best you can with that??  thanks, 
Dan**


On Sunday, November 23, 2014 6:55 PM, alcibiates2 alcibiat...@yahoo.com wrote:


Dan, I've had some fractures that were almost undetectable but really sent my 
bp up and pulse way down. Just the weight of my foot separated my tibia at the 
mantle below the knee. Chalky bones and deterioration of spinal disc's have 
played hell with me. Try sitting straight up and take something for pain. Don't 
recline until your pulse returns to your normal never be afraid to 911 yourself 
to an er.
Tip:take a copy of a medical definition of AD with you along with your med 
list. I swear they can be pig ignorant of what is going on and what to do. Help 
has gotten ambivalent in Cincinnati. 
Best Wishes,
John s







Sent from my Verizon Wireless 4G LTE smartphone


 Original message 
From: Danny Hearn 
Date:11/23/2014 4:42 AM (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Autonomic Dysreflexia 

Man, I hate having dysreflexia and unable to find the cause, I have been having 
it on and off for about 3 days and have had almost no sleep for the last 2 
days. Bladder and bowels all seem fine-no pressure sores or etc. that we can 
find. When I try to lay down at night after a while I get real hot and clammy, 
my heart begins to pound and act up. I do have a syrinx and bad neck and back 
pain but not sure if that can be the problem. I guess Monday I'll try to call 
my primary doctor and get checkup and bloodwork for a start, This stuff is 
depressing and drives my wife crazy making her lose sleep also, plus she is a 
caregiver to an elderly woman with alzheimers 4 days a week. This Quad related 
stuff can be so challenging at times ! Well I guess i'm done venting...it's 
about 3:45 am. Hope To get better before long.  Dan H***

RE: [QUAD-L] Autonomic Dysreflexia

[alcibiates2]

Dan, I've had some fractures that were almost undetectable but really sent my 
bp up and pulse way down. Just the weight of my foot separated my tibia at the 
mantle below the knee. Chalky bones and deterioration of spinal disc's have 
played hell with me. Try sitting straight up and take something for pain. Don't 
recline until your pulse returns to your normal never be afraid to 911 yourself 
to an er.
Tip:take a copy of a medical definition of AD with you along with your med 
list. I swear they can be pig ignorant of what is going on and what to do. Help 
has gotten ambivalent in Cincinnati. 
Best Wishes,
John s







Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Danny Hearn ddh...@sbcglobal.net 
Date:11/23/2014  4:42 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Autonomic Dysreflexia 

Man, I hate having dysreflexia and unable to find the cause, I have been having 
it on and off for about 3 days and have had almost no sleep for the last 2 
days. Bladder and bowels all seem fine-no pressure sores or etc. that we can 
find. When I try to lay down at night after a while I get real hot and clammy, 
my heart begins to pound and act up. I do have a syrinx and bad neck and back 
pain but not sure if that can be the problem. I guess Monday I'll try to call 
my primary doctor and get checkup and bloodwork for a start, This stuff is 
depressing and drives my wife crazy making her lose sleep also, plus she is a 
caregiver to an elderly woman with alzheimers 4 days a week. This Quad related 
stuff can be so challenging at times ! Well I guess i'm done venting...it's 
about 3:45 am. Hope To get better before long.  Dan H***

Re: [QUAD-L] Reclining?

[alcibiates2]

I don't think a guage would work very well since when no one is in the chair 
there is no pressure in the seat, only volume. Once you sit on the roho your 
bottom should be about an inch from the roho surface. I have a doubled up egg 
crate under my roho.
You want to measure at the bony part of the butt. Aids love doing this. Yeah, 
well. A mag light can be handy for this job. 
I think they would have included a psi Guage if it would help. 
Best wishes
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: daano...@gmail.com 
Date:11/17/2014  4:25 AM  (GMT-05:00) 
To: greg g...@eskimo.com,Quad-list quad-list@eskimo.com 
Subject: Re: [QUAD-L] Reclining? 

I do the same thing sometimes it catches up with you. I am sure we all more. I 
just don't understand why Roho cannot make it gauge to let you know when you're 
losing air. They have been in business long enough and charge enough for their 
cushions to have gauges.
Dana

Sent from my iPhone

 On Nov 1, 2014, at 8:00 PM, greg g...@eskimo.com wrote:
 
 How often do you recline your chair?
 I try to do it at leased every hour. I also am moving around a bit, bending 
 forward a bit to read, etc.
 I doubt when I lean forward or sideways a bit, it is enough to move the 
 pressure on my butt.
 After my bad pressure sore, I try to recline more often, but when I get into 
 a good book, or am playing cribbage online on my Kindle, I can forget. I 
 often have gone many hours without reclining.
 Greg
 

Re: [QUAD-L] Electric chair maintenance???

[alcibiates2]

I think you're getting great advice but without actually seeing the chair there 
is almost no way anyone good give you the right advice. unfortunately your best 
bet is to take it to the DME who provided you with the chair. The more 
complicated chairs get, the more you have to go back to the providers.
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Billy blan...@verizon.net 
Date:11/14/2014  11:05 AM  (GMT-05:00) 
To: Shelly Kerchner shelly.kerch...@yahoo.com 
Cc: Quad-list quad-list@eskimo.com 
Subject: Re: [QUAD-L] Electric chair maintenance??? 

Your scowling needs to be adjusted. Mine did the same thing. You can tweak the 
seat riser to relieve the pressure. If the creaking goes away when you rise up, 
that's the cause.

Sent from my iPad

On Nov 11, 2014, at 21:02, Shelly Kerchner shelly.kerch...@yahoo.com wrote:


Hello to all,
My chair is making annoying creeks and it's from the back. It's 3 years old 
and the tires have been replaced.
May it be my suspension??? It's working on my partners nerves,
Is there something I could do before I call my medical supply store?

Thank you

Shelly

Sent from Yahoo Mail for iPad

Re: [QUAD-L] Fwd: Monkey shines

[alcibiates2]

As we used to say, Right On. When doctors start B'S  about addiction, I want 
to break some of their bones. I will do and use whatever I think I need 
regardless of what Congress or insurance companies may have decided for me.
The pee party wants to emulate our forefathers, fine. They were smugglers and 
sick of government treating them like second class citizens. I'll get what I 
must using any corrupt system they devise.
john s

Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Gentrie Pool gentr...@yahoo.com 
Date:11/09/2014  11:12 AM  (GMT-05:00) 
To: Larry Willis lwillis82...@gmail.com 
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Fwd: Monkey shines 

Well said, Larry. And people who don't agree have either never experienced it 
or have never seen a loved one endure it.

Please excuse any typos or brevity of tone as this was typed using an iPhone 
(and possibly Siri, in an effort to be as safe as possible while en route.)

G

On Nov 9, 2014, at 9:24 AM, Larry Willis lwillis82...@gmail.com wrote:

When pain becomes chronic, severe, and unrelenting, we will beg for any kind of 
relief be it pills, booze, or a gun. It takes other-world strength to endure 
severe pain, and I do not have that. After 43 years any noble notion of facing 
life drug-free left me long ago. I do or take whatever makes my life easier to 
endure.

-- Forwarded message --
From: diannal...@aol.com
Date: Saturday, November 8, 2014
Subject: Monkey shines
To: bswif...@aol.com, quad-list@eskimo.com


every quad is different. if you were in enough pain perhaps you would 
understand it. i'm usually hurting in the morning, haven't had the chance to 
over use my body.
35 post injury and I have a wife and 3 kids life sucks some times. Taking pills 
and booze does not change that. If 6 out of 10 quads try to kill themselves 
then it is what it is. I am a C5/6 quad and I have pain because of over use etc 
and I don't understand the massive use of pain meds.



-Original Message-
From: Brian P Swift bswif...@aol.com
To: diannal767 diannal...@aol.com
Sent: Thu, Nov 6, 2014 1:26 pm
Subject: Re: [QUAD-L] Re: Monkey shines

35 post injury and I have a wife and 3 kids life sucks some times. Taking pills 
and booze does not change that. If 6 out of 10 quads try to kill themselves 
then it is what it is. I am a C5/6 quad and I have pain because of over use etc 
and I don't understand the massive use of pain meds.

Brian P. Swift
brianpswift.com
https://www.facebook.com/profile.php?id=16859653620


-Original Message-
From: diannal767 diannal...@aol.com
To: r.pracht r.pra...@sbcglobal.net; quad-list quad-list@eskimo.com
Sent: Thu, Nov 6, 2014 11:50 am
Subject: Re: [QUAD-L] Re: Monkey shines

i agree with you ron. i thought about it alot in the 1st year. my grand 
daughter, that i speak of often, keeps me going. she brightens my world 
immensely. she's 11. she lives in the same small neighborhood as i. she is 
very, considerate and considers others feelings most of the time. cool 
personality. she came home monday crying because her best friend (a diabetic) 
had to go to the hospital. i asked if she was okay and yes she was but isabella 
was pissed because the friend wasn't compliant with her medicine. i know i'm 
way off topic and rambling but my point is, she gives me reason to live. a 
feeling that someone needs me to talk to and often tells me things swearing me 
to secrecy.  she does however remind me that i'm stuck in this chair. we listen 
to music on you tube, she dances  i wish soo much i could dance, ride bikes, 
etc. before she was born, i kept going and was happiest when i was on prozac 
and beerjust being honest here.
dianna
 I'm in the process of watching Monkey Shines right now (Wed 2:47 pm). The doc 
 just said 6 out of ten quads attempt suicide. He didn't say how many were 
 successful. What do you guys think about that number? I've thought about it 
 many times but never actually attempted. Thoughts of my family always pull me 
 out of it. If I were absolutely alone and in a nursing home, might be a 
 different story. Or maybe not. I dunno.



-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list quad-list@eskimo.com
Sent: Wed, Nov 5, 2014 8:55 pm
Subject: [QUAD-L] Re: Monkey shines

after my last surgery I went back to my swimming and lifting as soon as 
possible. Upon returning my coach told me you are a fucked up quad Ron. I 
said no Steve the fucked up quads are at home and never go out

Ron


On Wednesday, November 5, 2014 7:45 PM, Larry Willis lwillis82...@gmail.com 
wrote:


Well said, Ron. I think you expressed the feelings of many of us.

On Wednesday, November 5, 2014, RONALD L PRACHT r.pra...@sbcglobal.net wrote:
I have thought about suicide many times. Its not really to do with being a quad 
in itself.its the pain, hurt, being shunned, what could have beens, 
people throwing the blame on you, 

Re: [QUAD-L] Reclining?

[alcibiates2]

I have done guite well with a lot of Partially used  dme items
Especially spare parts.

Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: greg g...@eskimo.com 
Date:11/09/2014  5:19 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Reclining? 

As of a few months ago, you could get a replacement Roho cushion for $100, as 
long as you did not want a cover or warrantee. I used that offer for my new 
cushion.
Greg

 I feel the same way about Roho cushions. It dose NOT cost $300,
 $400, $600, $700 to make each cushion. The mold is already made and
 rubber doesn't cost THAT much.  Bobbie

 Smile Everyday

 On Nov 6, 2014, at 4:39 PM, greg g...@eskimo.com wrote:

 The mapping I used was just a cloth you put on top of your
 cushion, then it plugs into  computer. I thought that can't be
 too expensive, I should just buy one and use it all the time. But
 he said it cost like $10,000. It can't be that costly to make.
 Roho had a thin board that went under your cushion, that had a
 alarm that went off if it had too much pressure on it. If your
 cushion went flat.
 But from what I heard they stopped making it cause it did not
 work well. I had one, but I would let air out until I bottomed
 out, but it would not go off. I could not trust it so I gave it
 back. Greg


 Thanks for explaining that, Greg.  That was the point I was
 trying to make by suggesting a pressure mapping.  For me, even
 a small change in my Roho can cause a sore and if it's not
 corrected, the sore/shear just won't heal.  I wish someone who
 is creative could design a pressure gauge for Rohos.  That way
 you could know your number and could monitor the cushion to
 maintain your optimal pressure.


 Nan


 On Sunday, November 2, 2014 10:05 PM, greg g...@eskimo.com
 wrote:


 I have been pressure mapped a few times. It helps find the
 perfect amount of air to use, or how far you need to recline
 for best relief. But I got mapped on a few different Roho
 cushions. I found there were a few Rohos that did not give me
 good pressure relief. Different Rohos change your posture, etc.
 I really wanted the Roho that has the foam sides that keep your
 legs straight. But it just didn't work for me. Also, you can
 make changes to your chair's back or legrests and it changes
 your posture.
 Good to make those changes then get mapped. After I added
 Lateral supports it totally changed my mapping. I had to be
 careful to make sure I didn't move the pressure to where I had
 my previous sore. Greg


 Nan, I don't understand...if they do a pressure mapping, then
 what happens or what can be changed then?? I use Roho going
 on 18 years now. thank you Dan H**


 On Sunday, November 2, 2014 12:06 PM, Nan
 nlg52...@yahoo.com wrote:


 Bobbie,


 Do you use a Roho?
 I do and I've found that
 they lose air after a while.  This causes
 me to get sores - I've been
 sitting for so long my skin is incredibly fragile.  What I've
 learned is that when this happens, I need another pressure
 mapping.   Sometimes I have to fight to get one, but once I
 get it I can heal sores while in my chair.  Sometimes I have
 to recline for a week or so - watch TV, listen to music ...
 but once a sore starts to heal, I can start living again.
 Have you had a pressure mapping recently?


 Nan

 On Saturday, November 1, 2014 10:35 PM, Gmail
 bobbiehumphre...@gmail.com wrote:


 I try to recline once an hour ... if I remember. I love to
 paint, and to put my brush down to recline takes the away the
 flow. And when I'm reading I would need to recline every
 chapter. I'm only up 7-8 hours and up one day then in 2-3
 days for prevention. November 7th I have an appointment to
 see a wound Doctor because I have a very small area stage 1
 or less. I'm using DuoDerm extra thin.
 But to tell you the truth, I'm sick and tired of needing to
 deal with all this shit. Bobbie

 Smile Everyday

 On Nov 1, 2014, at 9:00 PM, greg g...@eskimo.com wrote:

 How
 often do you recline your chair?
 I try to do it at leased every hour. I also am moving
 around a bit, bending

 forward a bit to read, etc.
 I doubt when I lean forward or sideways a bit, it is enough
 to move the pressure on my butt.
 After my bad pressure sore, I try to recline more often,
 but when I get into a good book, or am playing cribbage
 online on my Kindle, I can forget. I often have gone many
 hours without reclining. Greg

[QUAD-L] Long lost

[alcibiates2]

E not sure if many of ya'l l  member me. I have spent weeks reading old posts.  
I'm john from down by  Cincy ohio.
I want to tell about my adventures with insurance and  courts and god. I know 
where to pray err prey, whatever, now.
I can really identify with Larry, Moe, and Curly Joe doing patient transfers. 
Just to be short, I had , or was the accident. 

Now I'm part of a legal can't say much.
I guess ill talk more as I learn what I can say .
For now I'll plead drain Brammer. and try to find my way back .
john s 
Sent from my  Wireless 4G LTE smartphone
.

Re: [QUAD-L] Quad burned bu caregiver

[alcibiates2]

The story reads like a book. In the 80's I Had an aid that killed a guy doing a 
drug deal. I wasn't surprised. He had been working twenty hour days for a week 
without gripping about his time. 
When I saw him on TV all I could think of was the reward money I missed out on.
Nowadays, I use the fin test on new aids. I leave a five on the floor and see 
if it disappears or gets given back. If they pass we try bigger and more 
discreet tests. 
It's important to trust aids even more so than family. Don't think sex makes a 
difference when it comes to trust. 
john s
 


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: RONALD L PRACHT r.pra...@sbcglobal.net 
Date:11/08/2014  6:04 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Quad burned bu caregiver 

ST. LOUIS COUNTY • A caregiver of a quadriplegic man from south St. Louis 
County was found guilty of first degree murder and first degree arson after a 
trial this week .
Tyrone Benedict, 41, of Maryland Heights, is scheduled to be sentenced Dec. 5, 
said defense attorney Gil Sison. The jury deliberated about two and a half 
hours on Friday and recommended a sentence of life without the possibility of 
parole for the murder charge and life for the arson charge.
The incident happened on Feb. 23, 2001. Firefighters who arrived at the burning 
apartment found Mark J. Woods, 40, in bed with multiple stab wounds, including 
one through his neck. Woods, who had been paralyzed from the chest down and 
relied on machines and caregivers for most of his daily tasks, had hired 
Benedict as a caregiver about a month earlier.
Prosecutors noted that Benedict's story to police changed, and he at first 
denied he had gone into work that day but cell phone records placed him near 
the duplex in the 100 block of Kinswood Lane.
During the trial, Woods' mother said that he did not have problems with 
previous caregivers but did with Benedict. She said she’d hear them arguing 
over money and once heard Benedict say to Woods, “You will be sorry.”
​Valerie Schremp Hahn covers nightside public safety for the Post-Dispatch.  
Follow her on Twitter at @valeriehahn.
Copyright 2014 stltoday.com. All rights reserved. This material may


On Friday, November 7, 2014 10:49 PM, Don Smith scamper2...@att.net wrote:


can you post (cut and paste) the whole artical, it wants me to subscribe.
Thank You
Don


On Friday, November 7, 2014 9:08 AM, RONALD L PRACHT r.pra...@sbcglobal.net 
wrote:


The reason you read it and post it is you prepare for the worst and hope for 
the best. If you have 100 caregivers and 1 is a thief you have to prepare for 
the thief. that's just life, unless you live in a shell.

Ron


On Friday, November 7, 2014 11:06 AM, ntpgrn...@aol.com ntpgrn...@aol.com 
wrote:


Why repeat such a dreadful thing?
What about all the living, compassionate caregiver
There are many


Nancy Pritchard 




On Nov 6, 2014, at 10:13 PM, Gmail bobbiehumphre...@gmail.com wrote:

A friend of mine, who is a C-4,5 had a care giver who use to flick cigarette 
butts at him in bed.
Sickening people out there.    Bobbie 

Smile Everyday

On Nov 6, 2014, at 7:42 PM, RONALD L PRACHT r.pra...@sbcglobal.net wrote:

http://www.stltoday.com/news/local/crime-and-courts/caregiver-accused-of-murdering-quadriplegic-man-goes-to-trial-in/article_09a970ab-d2f0-51f1-b8df-b50a2e531102.html


Interesting story about a successful quad burned by a disagreement with his 
caregiver.

Ron

Re: [QUAD-L] Hawkings movie

[alcibiates2]

Last I heard he is completely incommunicado.  A serious shame. Wonder what he's 
thinking about?
John s.
P.S. Good to be back.


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Gmail bobbiehumphre...@gmail.com 
Date:11/05/2014  10:06 PM  (GMT-05:00) 
To: Quadius quad...@gmail.com 
Cc: Danny Hearn ddh...@sbcglobal.net,quad-list@eskimo.com 
Subject: Re: [QUAD-L] Hawkings movie 

That's impossible. He's been living like that for YEARS and isn't on a trac?   
Bobbie

Smile Everyday

On Nov 5, 2014, at 8:45 PM, Quadius quad...@gmail.com wrote:

ALS

On Wednesday, November 5, 2014, Gmail bobbiehumphre...@gmail.com wrote:
What, exactly, is his disability?   Bobbie 

Smile Everyday

On Nov 5, 2014, at 8:20 PM, Danny Hearn ddh...@sbcglobal.net wrote:

I remember when Steven Hawkings did'nt believe there was a God, Then when 
scientists discovered there were other many other Galaxies--Perhaps millions 
besides our Milky Way that we live in.He said that opened his mind to a new 
way of Thinking and now he said there may very well be a God after all. Dan H***


On Wednesday, November 5, 2014 6:52 PM, Gmail bobbiehumphre...@gmail.com 
wrote:


Did anybody hear about the movie of the life of Steven Hawkings  life The 
Theory of Everything? It's coming out this weekend. You can see the movie 
trailer on YouTube. I really would like to see it.   Bobbie 

Smile Everyday

Re: [QUAD-L] Re: Monkey shines

[alcibiates2]

I'm not judgemental about suicide. If you can't deal,  then it's up to you. 
I've lost so many good friends that way that  I can't condemn them all. Many 
weren't even crippled. 
I've had so much crap thrown at me and I still have a perverse need to throw 
some back.  Besides, I like to learn.
Who knows, maybe I'll follow them someday, but not today.
john s.


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Gmail bobbiehumphre...@gmail.com 
Date:11/06/2014  3:24 PM  (GMT-05:00) 
To: RONALD L PRACHT r.pra...@sbcglobal.net 
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Re: Monkey shines 

S many family  friends say to me periodically  ... I don't know how 
you do it, I couldn't. Meaning live a life as a quad. I tell them I do it 
because I have no choice and one day at a time.     Bobbie 

Smile Everyday

On Nov 6, 2014, at 2:10 PM, RONALD L PRACHT r.pra...@sbcglobal.net wrote:

Your right everybody says that but 99 percent would deal with it and do what 
they can. I had a guy once tell me he would of pulled the plug, then some girl 
went crazy on him telling him ..what plug? What it comes down to if 
your above ground you deal with what you got, its about what you still have, 
not what you don't have. Keep wiglin and jiglin what you got.

ron


On Thursday, November 6, 2014 1:02 PM, Larry Willis lwillis82...@gmail.com 
wrote:


I think most able-bodied folks say they would choose death over quadom. My high 
school students used to say that. It's an easy thing to say, but when it 
actually happens, attitudes change. The will to live is a pretty strong force.

Sent from my iPad

Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Ed Tessier e...@teamjeved.com
Date: November 6, 2014 at 12:47:05 PM EST
To: RONALD L PRACHT r.pra...@sbcglobal.net
Cc: quad-list@eskimo.com quad-list@eskimo.com
Subject: Re: [QUAD-L] Re: Monkey shines

 When monkey shines came out friends in Hollywood warned it would paint a 
terrible picture of quadriplegia. A group of us out ADAPT, the disability civil 
rights organization, were absolutely appalled. We organized a demonstration 
that was carried by national media and triggered similar protests in other 
cities. we weren't protesting the horror premise – – the genre is outlandish by 
definition. We were protesting the entire back story regarding the 
disabilities, that we live in nightmare existence, isolated, despised, deformed 
by self-loathing and hate for everybody else. This judgment went completely 
un-critiqued by the narrative and, I'm sad to say,  the audience. One 
able-bodied civil rights activist polled people as they left showings of the 
movie. 80 something percent said quadriplegic was a life not worth living. That 
is the fuel for discrimination, prejudice and all the way up to euthanasia. I 
don't think we're much better off 26 years later. kill me I'm a quad  still 
proliferate.

On Wed, Nov 5, 2014 at 5:54 PM, RONALD L PRACHT r.pra...@sbcglobal.net wrote:
after my last surgery I went back to my swimming and lifting as soon as 
possible. Upon returning my coach told me you are a fucked up quad Ron. I 
said no Steve the fucked up quads are at home and never go out

Ron


On Wednesday, November 5, 2014 7:45 PM, Larry Willis lwillis82...@gmail.com 
wrote:


Well said, Ron. I think you expressed the feelings of many of us.


On Wednesday, November 5, 2014, RONALD L PRACHT r.pra...@sbcglobal.net wrote:
I have thought about suicide many times. Its not really to do with being a quad 
in itself.its the pain, hurt, being shunned, what could have beens, 
people throwing the blame on you, watching other people live full lives while 
you struggle to hold your own or make small gains. The times where I have been 
happy I was doing things, going places with girlfriends, doing my 
swimming..then things were good and life was worth it. Its a very 
slippery slope as a quad if you have little support.

Im sure someone on here will tell how life is better now as a quad and they 
make more money now and women just knock the door down to sleep with them. Its 
really about your support system and some about self motivation. I have seen 
people on both ends of the spectrum and everywhere in between. enjoy the ride 
while you can.

ron


On Wednesday, November 5, 2014 2:09 PM, Gmail bobbiehumphre...@gmail.com 
wrote:
 


I already know exactly how I am going to carry it out when my pain gets bad 
enough. Bobbie

Smile Everyday

 On Nov 5, 2014, at 2:55 PM, Larry Willis lwillis82...@gmail.com wrote:

 I'm in the process of watching Monkey Shines right now (Wed 2:47 pm). The doc 
 just said 6 out of ten quads attempt suicide. He didn't say how many were 
 successful. What do you guys think about that number? I've thought about it 
 many times but never actually attempted. Thoughts of my family always pull me 
 out of it. If I were absolutely alone and in a nursing home, might be a 
 different 

Re: [QUAD-L] Going home

[alcibiates2]

Rehab was awesome after the year and a half in a nursing home. I got a lesson 
in marriage when I left rehab and started college. I spent more time moving 
than anything else. I think that's what I remember most. 
Funny part is I can't remember who got away with my old clothes and cars. The 
hospitals found all my money.  No curiosity in that. I think I tried to look on 
the bright side of things more than I do today.  Back then folks were surprised 
I was alive. Today, everyone is a lot more ambivalent. Including me.
john s


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: RONALD L PRACHT r.pra...@sbcglobal.net 
Date:11/06/2014  7:22 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Going home 

The rehab is mostly good memories of promise, hope along with hard work and 
tears. Coming home was a lot of fear and discontent. My parents were into a lot 
of disagreement so I spent my days on the streets rolling around with my 
Walkman looking for friends. This method actually got me a lot of services at 
the time because I was noticed. My parents divorced soon after as well. I tried 
moving in with my mother and all she did was cry and read the bible. I called 
my dad to ask to come home and he told me a famous line boy if you come back 
all I can offer you is a little food, water and heat and Im leaving at 2pm for 
work. The short end to a long story is I came back.

Ron


On Thursday, November 6, 2014 4:49 PM, Gmail bobbiehumphre...@gmail.com wrote:
 


I forgot the BIGGEST change was that my Father and Mother broke up 5 days after 
my accident. My  Mom and 2 sister's had 8 months to get use the living in the 
house without my father.    Bobbie 

Smile Everyday

On Nov 6, 2014, at 5:39 PM, Shelly Kerchner shelly.kerch...@yahoo.com wrote:

Oh my, going home was bad for me, felt sick cause I was returning home to a 
husband full of self pity for HIMSELF while neglecting and abusing me, it got 
worse after I became a quad. Remember the highlights of my days were when 
the OT and PT came to visit and work with me.

So very grateful I am no longer in that marriage and am happier now than I was 
before, despite my  accident.

Hugs!!
Love
Shelly
8 yrs post, C6-C7 incomplete 





Sent from Yahoo Mail for iPad

At Nov 6, 2014, 5:05:46 PM, Gmail'bobbiehumphre...@gmail.com' wrote:
What was the most outstanding thing you guys remember from when you got home 
after being in the hospital the rehab immeditly after your accident?
The smells of MANY different things is what I remember most, instead of 
antiseptic cleaning Solutions. Next thing was the narrow doorways, unlike those 
in hospitals and rehab. Next was the phone. When I was injured in 1973 we still 
had rotary phones, I learned in rehab how to dial a rotary phone. Bobbie 

Smile Everyday

RE: [QUAD-L] adema or swollen feet

[alcibiates2]

I can't promise you anything but sometimes edema is a side effect of certain 
drugs. I had the same problem with macrodantin.

John s.


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Danny Hearn ddh...@sbcglobal.net 
Date:11/02/2014  7:34 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] adema  or swollen feet 

I know some of us deal with swollen legs and feet,  but about 2 months ago my 
feet have swollen real bad-I can only wear soft house slippers now..in the past 
we just had to elevate my legs some at night and they got better but now they 
stay very swelled up, my family doc. had me try Lasik A water pill I think plus 
had me try wearing compression hose stockings, but that did not help a whole 
lot, does anyone know what can be done or what type doctor can treat this?? We 
are not sure if is even treatable? Anyway's thanks for any information from any 
of you that deal with this or know any more that can be done/ ?  thank you ! 
Dan H**

[QUAD-L] Living and dying

[alcibiates2]

I think anyone who has seen the death will agree life is better.


Sent from my Verizon Wireless 4G LTE smartphone

RE: [QUAD-L] weather

[alcibiates2]

Oh yeah!
John


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: RONALD L PRACHT r.pra...@sbcglobal.net 
Date:10/27/2014  1:47 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] weather 

Im in the Midwest and its going to be close to 80 degrees here. Get out and 
enjoy if you can today the cold will be in here by next week. Keep wiglin and 
jiglin.


Ron

Re: [QUAD-L] weather

[alcibiates2]

I understand where you're coming from and don't blame you a bit.  I wouldn't 
hold a grudge, but I'd sure give them a lecture on manners and the Christian 
fundamentals of sending the tithing to the so called preacher that isn't 
praying for the winner of our national pastime on his prerecorded show. I'll 
bet he's watching the series!
john

Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: RONALD L PRACHT r.pra...@sbcglobal.net 
Date:10/27/2014  3:11 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] weather 

Tell me your opinions. your watching the World Series and a person keeps 
changing the channel to a preacher or that crazy news channel that repeats the 
stories over and over. You finally say something and are met with an argument. 
I felt like this person thought they had power over me because im in a chair. I 
asked them ' do you think a walking guy would put up with you changing the 
channel to a preacher?, I feel like you are stepping on my manhood.

Am I wrong here?

Ron


On Monday, October 27, 2014 1:59 PM, Danny Hearn ddh...@sbcglobal.net wrote:


Yep, Ron I was out enjoying it today...nice but a bit windy...and to add to 
your comment-i'll add a Will smith oneGET JIGGY WITH IT  LOL  Dan H**


On Monday, October 27, 2014 12:47 PM, RONALD L PRACHT r.pra...@sbcglobal.net 
wrote:


Im in the Midwest and its going to be close to 80 degrees here. Get out and 
enjoy if you can today the cold will be in here by next week. Keep wiglin and 
jiglin.


Ron

[QUAD-L] High bp

[alcibiates2]

When my bp sky rockets it is because of full bowel or bladder or pain. 
Recently, pain is the big problem. Feeling hot or sweating is my tip off. I 
take ten mgs. of Norco every 4 hours. Oxy when it's not enough. 
Be careful.  This can kill if not taken care of.
good luck
John   
Johnsend


Sent from my Verizon Wireless 4G LTE smartphone

[QUAD-L] Kentucky teatcher

[alcibiates2]

you really should discuss with a qualified financial advisor. It's tax 
deductible to talk to him. And it's well worth the money. I think there, so 
some big loopholes you're missing out on.
John
 

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Re: [QUAD-L] Why I Think This World Should End

[alcibiates2]

Talk to Jim?


Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Don Price donpric...@yahoo.com 
Date:09/29/2014  1:12 PM  (GMT-05:00) 
To: wheelch...@aol.com,hosnialkha...@hotmail.com,quad-list@eskimo.com 
Subject: Re: [QUAD-L] Why I Think This World Should End 

Isn't there any way we can remove this Hosni guy from the list? He never (or 
rarely) contributes anything quad related, but we always get his blog posts, 
most of which are political, some are offensive.

I'm not into censorship, and I think it's great that he expresses his opinions 
in a  blog. It's just not appropriate to this forum.

If I'm the only one who is upset by these blog postings on quad-list I'll shut 
up and accept my title of grumpy old quad.

Thanks,
Don.


On Monday, September 29, 2014 9:08 AM, wheelch...@aol.com 
wheelch...@aol.com wrote:


I saw the video and just want to express that the glass is only 1/2 empty. Just 
ask those who lived on this planet, from the beginning. Even back then, the 
world had problems and issues that needed resolve.  Today is no different.  
Just ask Donald Trump.  I know he is a poor example.  Our world extreme poverty 
levels have dropped, in the last 10 years, from 30% to 12%  Yes, extreme 
poverty and poverty is bothersome to our planet, country, states and cities. 
Progress is slow but light is clearly visible and achievable. 
Best Wishes
 
In a message dated 9/29/2014 10:33:18 A.M. Central Daylight Time, 
hosnialkha...@hotmail.com writes:


HOSNI AL-KHATIB has sent you a link to a blog: 

Why I Think This World Should End 

Blog: BRAVEHEART 
Post: Why I Think This World Should End 
Link: 
http://hkbraveheart.blogspot.com/2014/09/why-i-think-this-world-should-end.html

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Re: [QUAD-L] Funny thing happenned to my Jay 2 cushion

[alcibiates2]

Sent from my Verizon Wireless 4G LTE smartphone

 Original message 
From: Quadius quad...@gmail.com 
Date:10/03/2014  5:47 PM  (GMT-05:00) 
To: RONALD L PRACHT r.pra...@sbcglobal.net 
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Funny thing happenned to my Jay 2 cushion 

if we agreed with everything life would be a little boring.

On Fri, Oct 3, 2014 at 12:53 AM, RONALD L PRACHT r.pra...@sbcglobal.net wrote:
Nothing wrong with adding info or disagreeing. Im just trying to make people 
realize the able bodies judge us pretty harshly when you stick out with these 
issues and others. I know..who cares . Well the truth is most of us do 
care. The point really is don't let yourself fall into a routine that you go 
out without regard.  Like take a blanket , cut a hole in it and go out, lol.

Ron 


On Thursday, October 2, 2014 10:14 PM, diannal...@aol.com 
diannal...@aol.com wrote:


many days i go without shoes in the summer...with my capris and painted 
toenails. an abled body woman would wear flip flops, not much difference so i 
beg to differ with you ron! i'll agree with the rest. i'll have you know i pay 
$20.00 for those painted toes and i want people to see them. along with the 
fact i find it hard to get sandals and flip-flops on my swollen feet.
The worst things the disabled do in public 

1) no shoes
2) exposed urine bag
3) just plain dirty or have a stench
4) chair has food and scum all over it
5) legs fallen over to a side or bowed severely( especially on ladies)
6) scared to look people in the eye

Theres more,but that's what sticks out in my mind. I an say this because Im a 
quad myself ..16 yrs post. We cant help many things , but some things we 
can do something about.



-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list quad-list@eskimo.com
Sent: Thu, Oct 2, 2014 3:15 pm
Subject: Re: [QUAD-L] Funny thing happenned to my Jay 2 cushion

The worst things the disabled do in public 

1) no shoes
2) exposed urine bag
3) just plain dirty or have a stench
4) chair has food and scum all over it
5) legs fallen over to a side or bowed severely( especially on ladies)
6) scared to look people in the eye

Theres more,but that's what sticks out in my mind. I an say this because Im a 
quad myself ..16 yrs post. We cant help many things , but some things we 
can do something about.

Ron


On Thursday, October 2, 2014 1:37 PM, diannal...@aol.com diannal...@aol.com 
wrote:
 


funny. i put rolled up hand towels on both sides of my thighs. otherwise my 
legs spread like men legs.
dianna
had to add my 1 inch wedge adductors to each side of the new cushion to keep my 
long legs from bowing. I cant stand paralyzed people that let their legs bow or 
fall to one side. It looks terrible and its fixable.



-Original Message-
From: wheelchair wheelch...@aol.com
To: r.pracht r.pra...@sbcglobal.net; quad-list quad-list@eskimo.com
Sent: Wed, Oct 1, 2014 8:00 pm
Subject: Re: [QUAD-L] Funny thing happenned to my Jay 2 cushion

Have you considered contacting Jay and ask if they are looking for a very 
qualified cushion tester?
 
Best Wishes
 
In a message dated 10/1/2014 3:06:16 P.M. Central Daylight Time, 
r.pra...@sbcglobal.net writes:
I came in from my handcycle trip last night and was rolling around thehouse 
when I looked at my hand and it was covered with this nasty yellow stuff. I 
looked at the front of my cushion and at the bottom below the cover was a 
massive amount of yellow crap. I jumped in bed with my new cushion and a trash 
can and pulled the cover off the old cushion which had a hole in the front and 
threw all the nastiness away then had to use rubbing alcohol to clean the stuff 
off my seat sling. This was the second Jay 2 to do this to me. The last one 
popped when a girl sat on my lap. I get about 4 yrs out of each one then boom. 
The stuff that comes out is oil based and very hard to get off of your stuff. I 
was home alone but managed to get the old one off and cleaned, and the new one 
on. I also had to add my 1 inch wedge adductors to each side of the new cushion 
to keep my long legs from bowing. I cant stand paralyzed people that let their 
legs bow or fall to one side. It looks terrible and its fixable. A new Jay 2 is 
going to cost me over 400 and an extra air exchange cover will be 65. Crazy but 
that's how she goes in the handicap world. I need to put a new seat sling on 
the chair but that's hard to do yourself and if you fail you have no chair, lol.

Ron

[QUAD-L] Stem cell therapy

[alcibiates2]

I think that former pres. Bush and a handy group of religious zealots set back 
stem cell research at least ten years. Let's face it, by the time this research 
is available to the average person, the average person will have to take most 
insurance companies to court because medicare sure as heck will refuse to fund 
such risky treatments, assuming medicare even exists to say it's a valid 
treatment. 
To be kind, medicine will soon be a rich man's entitlement. Like courts and 
justice, politics and so many other things we were taught were American. 
38 yrs. Post.  I hate to sound jaded but I honestly don't think stem cell for 
quads will be standard treatment for the everyday person for another thirty 
five years minimum. Of course the rich will have it as fast as they can wire 
the money into a numbered account now.

john

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