There is the GDC in Davis ,CA.  Theirs is an open Registry and anyone can
participate.
Anne

Myra Savant wrote:

> While I agree that people are more inclined to support a registry that
> publishes good news, I still wish that we had an open registry that gives us
> all the known information.  By having access to that information, we could
> start to piece together the puzzles about carrier status and recessives.  We
> would be able to know more about the genetic baggage that our dogs are
> carrying.  I know that you are correct that if people were mandatorily
> required to report all of the testing information in any society, they
> simply wouldn't test.  I'm not sure why that is, but I suppose it has
> something to do with the competitive nature of showing dogs for sport.  All
> we can do at this point is the best we can do.  Myra Savant
>
> >From: Cavatibs <[EMAIL PROTECTED]>
> >Reply-To: The Cavalier King Charles Spaniel List
> ><[EMAIL PROTECTED]>
> >To: [EMAIL PROTECTED]
> >Subject: Re: [CKCS-L] genotype v phenotype
> >Date: Sat, 8 Dec 2001 12:59:14 -0500
> >
> >The UK Cavalier Club and the CKCSC have both sponsored Heart and Health
> >Registries, listing only heart CLEAR dogs.  If the breeders do not support
> >these
> >publications (as was pointed out by Annette Jones' post a while ago and is
> >obvious
> >by reading the dogs listed in the CKCSC Registry versus the CKCSC
> >Statistics) when
> >the Registry includes only the clear dogs, then there is absolutely no
> >chance that
> >breeders are going to support an open registry where breeders will submit
> >their
> >dogs that are affected as well as clear. The only way an open registry will
> >work
> >well to substantially reduce the incidence of MVD is if, as  with the
> >British BVA
> >eye scheme or HD scoring scheme, the results are submitted directly from
> >the
> >cardiologist to the Club sponsored open registry for publication and
> >subsequently
> >placed on the registration papers - this would be in an ideal world.  The
> >problem,
> >however, that has evolved in Britain with these two schemes is that few
> >breeders
> >check for HD and some have stopped having their dogs' eyes tested
> >altogether which
> >does not do the breed any good.  This, in my opinion, is why the BVA eye
> >scheme
> >(or similar Heart scheme) will have no support-- if you have no
> >participants, the
> >dogs' hearts will then not be checked by a cardiologist and the incidence
> >of MVD
> >will skyrocket.    Better that the registry publish only the good news
> >which will
> >allow breeders to examine which dogs to breed, which lines to go for, based
> >on the
> >ages and heart status of the dogs in these registries.
> >
> >Anne
> >
> >cavlover wrote:
> >
> > > And of course, Laura, Dr. Padgett and other geneticists recommend that
> >parent
> > > breed clubs sponsor an open registry for health testing results as well.
> > > Breed clubs who have sponsored such open regisries can truly begin to
> >collect
> > > the data that may help breeders to comprehend the mode of transmission
> >on these
> > > genetically transmitted diseases.  At that point, progress can be made.
> > > However, it is pretty clear that there is a still very little knowledge
> >in the
> > > breeding community about genetics, and very little interest in learning
> >more.
> > >
> > > Myra Savant
> > >
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