Re: [QUAD-L] Stuck in bed for over a month
I just got over six weeks after breaking my leg and followed up by surgery. Thank goodness that I could use my laptop while in bed and lots of music from online radio! Any other questions feel free to ask, Monty 20 years post 3/4c On Tuesday, October 29, 2013 10:12 PM, RONALD L PRACHT r.pra...@sbcglobal.net wrote: I did over a month in the hospital when my appendix burst in 2011. I had a 14 inch incision down my abdomen area and was hooked up to a wound vac. My bowells shut down completely and I couldnt eat or drink for close to three weeks. Did have minimal sips of water but had the tube in my nose and would throw up if i cheated. Every other day my father would come in and between the two of us straining, I would attempt to get onto the bowell chair. It was scary with no results, pain, passing out on the chair but it had to be done and the nurses werent going to do it. I normally straight cathe independently, but was hooked up to a foley and that got plugged up and i went dysreflexic bad, and they still didnt believe it was clogged til I went crazy. The same hospital that taught me how to live as a quad and about dysrelexia, suddenly didnt know what i was referring to. I told the infectious disease doc to please look it up and at least prescribe something to lower my blood pressure during these times. It was crazy to be in bed and deal with so much, lorezapam helped me from going crazy at night. I just kept hoping I could get out of there without any secondary complications, but I got c-diff. Then everybody treated me like I had the plague..wearing gowns and masks. My family refused to wear them because it was pointless because they were so involved with my care.my gf at the time and father did about everything to keep the nurses happy. Somehow i made it out of there and could very slowly and dangerously get in bed and cathe myself. Dad went back to second shift the day I went home and i had to survive from 2 to midnight alone. I wasnt sure how fast or if I would fully recover. I wouldnt say Im as good as b4 all that happenned , but Im good enough to make it . Gf broke up with me, swim organization changed things so i couldnt go back, counselor quit...and I fell pretty hard emotionally. Im still here though and with that there is hope. Ron From: Gmail bobbiehumphre...@gmail.com To: greg g...@eskimo.com Cc: quad-list@eskimo.com quad-list@eskimo.com Sent: Tuesday, October 29, 2013 7:56 PM Subject: Re: [QUAD-L] Stuck in bed for over a month Greg, I was in Nov. 2013- May 2013 and AGAIN now 5 weeks without getting up AT ALL What do you do to keep your mind busy? I read, write, watch TV and on my life saver the ipad. Bobbie Smile Everyday On Oct 29, 2013, at 5:42 PM, greg g...@eskimo.com wrote: Yes, since July. But I do get up for a couple of hours a few days a week. Pressure sore on my butt I just don't think I can do the surgery. Having to go 4-6 weeks with no getting up at all. I need a bit of sun a few days a week. I went a whole week once and it did not heal any faster that week. Greg Hi All, Is there anybody else right now who has been stuck in bed for a month or more? Just wondering. Bobbie Smile Everyday
Re: [QUAD-L] 1st Time Traveling
I have traveled many times through Chicago O'Hare and contacting special needs services for that particular airlines is your first step. My experience has been only with American Airlines and a wide variety of end results! When you book your ticket it should have a place to indicate that you are disabled and answered a few questions. Usually the airlines call me about a week before my trip and will not accept my call before that time. Getting to the airport as early as possible and no less than two hours before your flight. I have had transportation issues in the past but luckily never miss a flight. They will board you first and this is very important lesson at this point! I have a large gym bag full of a week of clothing and necessary medical supplies. Normally this bag would be a check-in but to save yourself the baggage fee this is what you do. Depending upon how busy they are I either have them transfer me to the aisle chair or a manual chair if the other ones not available for some reason. Removing the seat cushion placement to the side and I put it in my seat once I board the aircraft. Removing the leg rest, head rest and the one arm rest that does not have my control panel on it. Placing these items were the seat cushion was and placing the gym bag on top of those to hold everything in place and to give some extra protection for the chair. Now taking two ratchet straps in a crisscross pattern down to my tiedown points on my chair or your lowest part of the mainframe. I have some some commercial grade saran wrap to wrap up the chair allowing it to still manually be pushed. You can also buy this saran wrap at your local home improvement store or somewhere that has moving supplies. I got mine from work many years ago and still using my original roll. Instructing the baggage handlers how to disengage your motors and telling them which side is best to lay down on because it will not fit otherwise in the cargo hold of any domestic airliner. Have your cell phone ready to take some photos of your chair before the flight and after it's all bundled up. I've had to file a few damage claims with them over broken items found on the chair upon arrival. Any other questions or concerns feel free to ask. Also get an estimate on the approximate weight of your chair they also want to know this. Take care and enjoy your trip On Saturday, October 26, 2013 12:52 PM, Don Smith scamper2...@att.net wrote: If you have a reclining chair or one that the back can be layed down\back make sure you take any pins that have to be removed out and keep them with you, small things tend to get lost when you least want them to. Don From: Lissette Whitehead lissw...@hotmail.com To: quad-list@eskimo.com quad-list@eskimo.com Sent: Friday, October 25, 2013 5:09 PM Subject: [QUAD-L] 1st Time Traveling Hi everyone, I will be traveling for the first time as a quad in the end of November, (after 8 years post injury). And to make it even more exciting, I'm going to Cabo San Lucas. I know!!! Pretty brave huh? Well not really because I live in Mexico and I'm used to the inaccessibility. Of course I already know my way around here where I live. Cabo is pretty much new to me, even though I've been there before but not in a power wheelchair. I have my concerns but I think I'll be able to manage. What I am wondering right now is about the flying situation. I know they have those special isle wheelchairs and that the staff at the airport help you transfer and all that. But what about my power chair? I know they put it with the luggage, but do they need to disassemble it? I sent a message to the airline but I know they take a while to reply and I'm a bit anxious. Any other traveling tips would be very much appreciated. Lissette Whitehead www.lwgripgloves.com
Re: [QUAD-L] anxiety
blood tests and I think it's an MRI? It's been some time so I don't remember but a good infectious disease specialist doctor will know what test do. On Friday, October 18, 2013 6:53 AM, daa...@aol.com daa...@aol.com wrote: Hi Bobbie, I am so sorry dancing caused a sore. Was your cushion not inflated enough. I wish they had some kind of warning signal if OUR wheelchair cushions are going flat, because we cannot always tell. I remember reading something about a cushion that did that but I do not remember the name. This was a number of years ago. I remember we were talking about the cushion that is like an alternating mattress but costs about USD4000. I cannot quite remember the name of it now. I was thinking about getting one when the power cord of my laptop got under my bottom and I was in bed for six months. I think you can dance again but just in a different way. It might need to be on slow speed, with no rapid movements. It takes so little to cause skin break down. It takes us so long to heal. I still sleep in a waterbed, which never causes any problems. My brother built a frame underneath so I can use my Hoyer to go under the bed, so I can get out of bed and I use my sliding board to get in bed. I have only had to replace the mattress two times in 25 years. It is so warm also. If you have a sore on one side, you can stay longer on the other side without hurting your skin. Does anyone else use a waterbed? I am anxious to hear everyone's stories about rehab coming home. That was a great question. Dana In a message dated 10/17/2013 2:41:26 P.M. Central Daylight Time, bobbiehumphre...@gmail.com writes: I know what you mean Dan. I just got a brand new power chair with center wheel drive (my first one) and after having it 6 weeks+ I decided to practice dancing. Pete and I like to go to jazz concerts and dance. But by putting the chair in high Greer and going extreme right then left then right again ... I got a super fiscal sore on my butt. Yesterday was 3 weeks and I'll probably be in for another 3 weeks. So, now I can't dance : (. Bobbie Smile Everyday On Oct 17, 2013, at 12:31 PM, Danny Hearn ddh...@sbcglobal.net wrote: When things are going wrong for a quad it does cause worry and anxiety, my roho lost air under my rear causing a pressure soreman now I feel sick, because little things like that can be a big problem and take tons of time to get better.(plus trying to get it replaced with insurance red tape and etc.) Greg have your doc write a script for a low dose of zanex when getting anxiety, that will help you. good luck, Dan H** From: greg g...@eskimo.com To: quad-list quad-list@eskimo.com Sent: Thursday, October 17, 2013 11:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg =
Re: [QUAD-L] is anyone using Dragon NaturallySpeaking with Windows 8?
I would not go to Windows 8.1, to many uncertainties with Dragon and Windows compatibility! For stability and reliability I would use Dragon 12.0 and Windows 7 professional 64 bit edition. I'm currently running Windows 7 and Dragon 11.5 with no issues or concerns. It takes time for Dragon and Windows to work out little bugs or issues between them. Also the 64 bit edition will allow you to run over 4 GB of memory and I recently saw Dragon on sale for $100 that is 50% off. http://www.youtube.com/watch?v=3yi6RmGvGuk this is my computer set up that I purchased the parts and had a good computer buddy put it all together for me. AMD CPUs are the most cost-effective and have been running this set up nearly 18 months. Let me know if you have any other questions and whatever you do do not go to Best Buy's or anyone else like that! Take care from Monty On Friday, October 18, 2013 2:08 PM, Ben Mattlin bmatt...@earthlink.net wrote: Yup, I'm using Dragon NaturallySpeaking 12.5 on Windows 8.1 (that's yesterday's upgrade of Windows 8). I don't like Windows 8 – especially the tablet-ready touchscreen part of it, for which I have to use a mouth-operated mouse anyway. I mostly ignore that mode. Don't need it. But Dragon works great in the regular desktop mode of Windows 8. Of course, you have to have a mighty powerful computer with lots of RAM… Feel free to email me with other questions. Best, Ben __ BEN MATTLIN www.BenMattlin.com www.MiracleBoyGrowsUp.com From:Dave Krehbiel [mailto:davekrehb...@earthlink.net] Sent: Friday, October 18, 2013 10:04 AM To: quad-list@eskimo.com Subject: [QUAD-L] is anyone using Dragon NaturallySpeaking with Windows 8? I’m still running on windows XP, and am running Dragon version 10. My son is trying to encourage me to update. Is anybody using Dragon NaturallySpeaking with Windows 8? If so, how is it working? What version of Dragon are you using? Do you recommend updating? Thanks, Dave Krehbiel
Re: [QUAD-L] anxiety
I speak from experience of having a bone infection on my bottom! I had this old bag of bones nurse that thought she knew everything and went months before getting a wound clinic appointment. Discovering that I had a bone infection, a round IV antibiotics started to turn it around and then failed. So after researching myself on my activity level and trying everything else surgery was the next option. It's absolutely necessary to take those six weeks after surgery not get up for any amount of time! What kind of mattress are you sleeping on? I have an alternating air overlay on my bed and no issue with skin integrity for many years now. I have spent the last five weeks in bed because of a broken leg and hoping to get liberated next week during my doctors appointment. Are you going to a wound clinic on a regular basis? What kind of treatments have they tried? I would make sure you don't have a bone infection first and getting a second opinion is another perfect option also. I had a bone infection in my arm just below the elbow and that was nearly a four-year battle before leaving town and finding doctors that knew what they were talking about two hours from me. Anxiety I've had a few different times but for the most part it's not been an issue. Any other questions feel free to ask. Monty of Indiana 3/4c nearly 20 years post injury On Thursday, October 17, 2013 2:47 PM, Don Smith scamper2...@att.net wrote: I sleep in my living room because I cant get into the bedroom because my wheelchair is to big, I also live alone but have a pca twice a day. I'm also dealing with a ischeal tube pressure sore, it's small but chronic. When I have an issue with anxiety I turn on my fan and if that don't help I take 10mgs of Valium which I keep in reach, it doesn't happen often but can be scary. Don From: greg g...@eskimo.com To: quad-list quad-list@eskimo.com Sent: Thursday, October 17, 2013 9:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg
Re: [QUAD-L] source for wheelchair friendly clothing
I have used a military's type of poncho from the very beginning, the main thing you want to do is to keep it from blowing up like over your head. I use a couple metal spring clamps to hold it down in front of me and then tuck the sides under my elbows. Many online retailers and a few local military surplus stores should have them for about $20. From: Dave Krehbiel davekrehb...@earthlink.net To: quad-list@eskimo.com Sent: Monday, October 7, 2013 2:43 PM Subject: [QUAD-L] source for wheelchair friendly clothing Where do you suggest that I look for things like shirts and windbreakers and ponchos designed for folks in wheelchairs? Thanks, Dave Krebbiel
[QUAD-L] post leg surgery update
well hello everyone, for those individuals that did not know I had surgery done on my leg due to both bones in the lower part of my leg just above the ankle. I forgot very important piece of information just before surgery? I am a 3/4c complete and had a tracheostomy for six months after my injury. Well during one of my hospital stays because of pneumonia my primary physician warned me about scar tissue still remaining in my throat and this is what I forgot to tell anybody before surgery. Scared myself nearly half to death about an hour after returning to my room, it felt like my throat was closing up! Thankfully I got the word nurse out of my mouth before I started making this most unusual sound, which meant I couldn't vocalize what was going on. With the great response of medical personnel, including four doctors which one of them gave me a breathing treatment reduces swelling in the back of my throat. Upon trying to insert a breathing tube for surgery they encountered that scar tissue and became inflamed afterwards. So my word of wisdom to have these type of things written down and brought to the attention of those who take care of us. The surgery went great now I have a metal rod or the correct term a nail running down the middle of my one bone and some plates and screws to accessorize it. Now to wait out the next two weeks to see what my surgeon released me from my bed to some kind of activity?? If anybody has any other questions feel free to ask take care my dear friends Monty of Indiana almost 20 years post injury
[QUAD-L] Unidentified subject!
I know it has been quite some time since I have posted anything and sense on bed restriction due to a broken leg. Has anybody else had any experience with 21st-century products? Well last year I received my new chair, but the breath control was a lot more sensitive than Invacare! After months of trying to reprogram and to adjust it with no difference. My local people finally shipped it off to the manufacturer on their dime and found some issues that they resolve. Knowing that I'm a road warrior no matter the season in northern Indiana. They threw on some lithium ion batteries that's supposed to have a range of 30 miles? Yes that's right and as far as I know the only chair in my area powered by these batteries over $2000 worth. So upon receiving this chair back it was much better but far from perfect. Like with anything whether it's a chair or some other form of technology whole load of luck and practice. After finishing my routine at the local elementary school as a volunteer and paid homework tutor after school for one hour. Just needed to pick up a few things at my local dollar store and is not unusual to be out most of the day without anybody with me. Upon turning onto a main isle I caught my foot on the display shelf and never knew that my foot was in harms way. About halfway through my heard the two bones break about 3 inches above the ankle. At first I just thought I must've caught something on my armrest but after asking the cashier the condition of my foot confirmed my suspicions. I have broken my other leg a couple different times but nothing quite like this. Being my independent self I just thought travel across town to get it x-rayed and a sample boot type of support device. Boy was I wrong and somebody that knew what was going on call 911 for me and took a trip in a ambulance. Placing a temporary cast almost all the way to my knee and thinking the orthopedic doctor would put a regular cast after examining me the following day. He is wise thinking the temporary would just do fine and not to worry?? Our personalities and his bedside manner was absolutely horrible or horrifying. I went about after that appointment to get a second opinion and have great difficulties finding a specialist willing to do that. At first they told me my insurance Medicare and Medicaid would not cover that opinion, well at least here in Indiana they do. On a follow-up appointment the bones were all lined up and told me to remain on bed rest. Then three weeks into this waiting game the bones shifted and he was not happy with my attitude with him and vice versa. He gladly sent me to another doctor to deal with this misalignment of bones. I will be having surgery was a nail and screws this coming Thursday and hoping a couple weeks from now to at least get up in my chair? Sorry this post is so long and will be celebrating my 20th anniversary coming up in November 14. Take care and you dear friend. Monty C3/4 complete
[QUAD-L] successful
my recent travels from Indiana, southern Arizona just before the holiday season.yes, I have traveled numerous times before this but flying out of Chicago has always been a nightmare!taking a shuttle bus from South Bend to Chicago in just over a two hour ride departing at 4 AM. So once in Chicago I had about an hour and a half before the departing flight and it seemed going through security was not too much of a hassle. Just after a few minutes of waiting at the departing the gate, I was approached by the individual for special needs. Now, in times past, they usually transferred me from my power chair directly to the aisle chair for the aircraft but I had a different idea. This time around. Straight from my power chair to a manual chair and then to the aisle chair. , With following my directions of breaking down my chair and securing a gym bag of my clothing on top of the wheelchair parts to make one beautiful package to fit under the plane. Using two ratchet straps and commercial grade saran wrap to ensure everything would stay together even when they laid chair down on its side. Even with my chair broken down, it barely fits in the cargo hole of the aircraft. Getting the bulkhead seats are the first row of seats in coach section and on the right-hand side of seating in the middle seat with my traveling companion taking the window seat. Departing nearly on time, which was very rare than previous departures. I am 3/4c complete 6 feet tall and just over 200 pounds, so transferring me is not the easiest. Once we touched down the chair was actually still all put together the same way we packed it prior to flight. So getting to the airport with enough time to spare is key in not getting a damage chair during flight and this occurred also on the returning flight. So anybody has any questions about this travel fell free to ask and had an excellent time celebrating my grandpa's 90th birthday. I hope everybody had a great holiday season and is ready for this new year. All is well. Concerning my health really don't have any complaints at this time except for my new chair. And it's been nearly a year now on getting my new chair ordered and delivered. It's from 21st-century product and looks a lot more durable than my current Invacare product! But for now programming it is the next hurdle and hope to have it on the road in the near future. Will let you know once I have it up and running. Take care my friends and have a good one.
[QUAD-L] 19_anniversary
Good morning everybody and have been meaning to write sooner but time seems to fly by at times. It's my anniversary of 19 years post injury as of 3 PM today. It seems kind of weird because I was 19 when the car accident happened. For the most part I feel like I'm on top of the world well at least for someone dealing with spinal injury. Have been in the process these last few months on getting a new chair from 21st-century products. Medicaid had no problem of approving it with no denial except for the paint color which I have to pay out-of-pocket. I have remained extremely active outside of my home on a daily basis of voluntary and employment. About three months ago I moved into a much bigger place under government subsidized apartments which offered me a three-bedroom unit versus the shoebox sized one-bedroom I had before. Unfortunately without the property management Not being up front with me about room dimensions,I had to take the living room but my live-in roommate now has a bedroom of her own. Next month I will be going on vacation to celebrate my grandpa's 90th birthday down in Tucson. That is where all my family is and I visit about every year or so. Medically I really can't complain about anything, with no skin issues that I'm having to deal with for the moment. The morning temperatures here in northern Indiana the last week has been down in the low 20s with daytime temperatures barely in the 40s. It is always so much fun to get my body to adjust for these temperatures and I'm the one choosing to say here in this cold climate. After being employed at target for over 17 years now in customer service you learn a little bit on how retailers rotate their inventory on a regular basis. The last couple Springtime I found some excellent deals on jackets at Sears at 70 to 80% off the regular retail price which have been keeping me warm and toasty at least for the top half of me. I thank you all for your ongoing encouragement and hope the best for all of you. From Monty of Indiana 3/4 complete 19 years
Re: [QUAD-L] Sore
sounds like a bone infection and have many of them over the years. A simple blood test can tell if your blood count is off and also possibly taking of the area itself. I spent over two years to convince my doctor about a bone infection but did not listen to me! I located some doctors a couple hours away and they quickly determined that I had a bad bone infection. No surgery on the outside area is going to keep it closed, if there is infection in the bone. Any other questions feel free to ask and yes it took surgery to resolve my issues From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Wednesday, July 18, 2012 5:10 PM Subject: [QUAD-L] Sore It's a year now since I got my butt sore, well, just next to my tailbone. I can't recall the exact numbers, something like 2.5 cn x .6 cn. It was not too deep, but then tunneled towards 1 o'clock. It slowly healed about half way in 8 month. Then within a week it just went back to the beginning. We pack it with Collagen AG. We tried a few different things, but nothing is helping. I assumed the sore was from sleeping on that side yet changing sides has not helped. Then we thought it had to be from the back of my chair. The padding was flat and the bottom of the chair's back was real hard. I got a new pad and lowered my cushion so the sore area now does not touch the back. There is now a 2 inch gap between the top of the cushion and the bottom of the chair's back. Yet this sore just will not heal up. The doc is suggesting starting to think of surgery. He thinks it might have started as a Pilonidalcyst, but there was never an infection or anything. Very frustrating. Greg
[QUAD-L] new wheels
I started back in January of this year on getting a new chair. Once the paperwork was finished and sent off to Medicaid to be quickly returned less than a month later of being approved! I was almost in shock when they called me and hopefully in the next week or so chair will be ordered. http://wheelchairs.com/hframe_plus_page.html very interesting subjects being spoken about on the list lately. I am 3/4 complete nearly 19 year post injury and love being outside! Living in northern Indiana just not the temperature that affects life but also the amount of moisture in the air! We have been over 90° great majority of our summer so far and can tolerate it for many hours. It's not about our body changes but our chairs that's wrapped around us so tightly! I am custom molded back on my chair and can't imagine how much heat it keeps in?? All of my seating on my chair is black so that only absorbs more heat from the sun! Knowing my chair while enough, I love finding sprinklers to cool myself off. I'm currently employed at target for the last 17 years and can't stand their lack of respect for me. I have an associate degree for the last 11 years and I don't even care about it. So I volunteer at a local elementary school during the school year and some new as a volunteer opportunity is going through the training to be a court appointed advocate for children.I'm about halfway through the training so far and greatly enjoying it. For any of those individuals don't get out on a regular basis, it's greatly beneficial both mentally and physical. I sometimes leave my apartment for the majority of the day nearly 10 hours or more. Even when I don't like going anywhere, but once I get out I feel much better than if I would've stayed home. It's just not having places to go but having others depend on us is definitely difficult because of or disabilities. Just knowing that the principal at the school is expecting the following day is a huge boost of confidence. Besides I was at the grocery store and the person behind the counter recognized me and informed me he was a former student at school. He was rather shocked to find out I was still helping out at school and I told him I have only been there for nearly 9 years. Yes I have had my health issues over the years but my thought is life Rolls on! Thanks for listening and take care
Re: [QUAD-L] Invacare Storm
Thank you for your post, I currently have a Invacare Ranger X that is a piece of crap! And they are trying to get me approved for the brand that you mentioned and we are waiting to hear from the insurance company?? This next chair will be my fourth since my accident and they have only last me just over five years each time. The unreliability of the electronics and other mechanical pieces of this chair is costing the insurance company thousands of dollars just to keep me on the road! Just the other day I covered over 20 miles on the road just traveling around, just knowing this chair it's on its last leg. I sometimes get rear tires three times a year and batteries at least once a year. This current chair was just over $20,000 and now they are saying that the new one could cost up to 50,000 that's why were waiting for the insurance company response. I am unable to drive my own vehicle, so my chair is my vehicle to get me where I need to go! Yes I use public transportation depending on the weather conditions and the time frame to get to my destination. I am a very active individual I volunteer at a local elementary school five days a week, work at target on Saturdays and have church responsibilities on Sundays. So I have individuals relying on me to be there and can't understand when I call because I'm in bed due to the chair being in the repair shop again. I only have Medicaid and Medicare insurance so if they deny me I already have vocational rehabilitation Waiting to see if they could pick up some of the tab along with the real services. Another idea of mine is contacting some local companies to sponsor my new chair much like NASCAR and will drive around with their logo indicating their sponsorship? I live in Indiana so I will keep you guys posted on what their reaction will be and will not ever have another Invacare product again! Take care and have a great day. From Monty of Indiana 3/4 complete post 18 years From: Dan d...@unh.edu To: quad-list@eskimo.com Sent: Tuesday, June 5, 2012 2:00 PM Subject: Re: [QUAD-L] Invacare Storm I wish it was that easy, and in the past it was. Now you can have all the OTs, PTs and the best doctors in the world but if Medicare or Medicaid or your private insurance says they will not pay for a stage 4 chair, you're not going to get one. How do they expect us to get out of the house unless we have a good reliable chair? Especially those of us who rely on Ventilators? My first chair was an Everest in Jennings. It was a piece of crap. But extremely simple. You could get most of the parts you needed to fix it from RadioShack. After dealing with the constant repairs of that chair. I got a really good one called Century 21. I still use the same company today. Each chair last me at least 12 years. I'm sure I could go longer, but the electronics eventually go out of date. Unfortunately, the Century 21 is considered a high-end chair. That is to say it's very expensive -- $22,000. But it's worth every penny, because I know it won't break down, and it will last me more than a decade. Would someone please give me an answer as to why insurance companies will not pay for a good chair? Don't they realize that our chair is our bodies? And how miserable we are when our chair is not working? I see! They just don't give a damn. Dan On 6/5/2012 7:53 AM, wheelch...@aol.com wrote: Joan, an OT eval is step #2. DME's like to tell you they have ATS that are just as good. An ATS works for the DME. An OT works for your Doctor and You. Knowing this important equation is valuable in achieving your future goals. Best Wishes In a message dated 6/4/2012 10:29:07 P.M. Central Daylight Time, poaj...@sbcglobal.net writes: It would be great if Reno had a rehab Dr. That dealt with quads, but most of ours are primarily sports medicine which is the main thing in Reno with snow skiing, water skiing, rock climbing, hunters, fishers, not to mention football, baseball, soccer, basketball and not to be left out, golf! My Dr. and I started the procedure today for a new wheelchair. I am on Medicare and AARP and I do not have a clue about the procedure as I only received one chair when I was first injured, the quickie, and 1 7 years later and Invacare. I do have a good DME and he will help me through the procedure. They have been fantastic keeping my omega trac running, and even obtaining parts for me that they were not going to install. I really wanted to stay with a front wheel drive but will really have to see what is available and go with the flow. Wish me luck Joan *From:*wheelch...@aol.com [mailto:wheelch...@aol.com] *Sent:* Monday, June 04, 2012 6:38 PM *To:* alcibiat...@yahoo.com; quad-list@eskimo.com *Subject:* Re: [QUAD-L] Invacare Storm The human body was designed to last
Re: [QUAD-L] Finally got my chair
I am going to Alex home medical for my new chair and Kerry Jones is the one making the recommendations for my new chair. It's now June and the new chair is not even ordered yet so it will most likely be another 2 to 3 months at least?? From: linda...@comcast.net linda...@comcast.net To: Monty aa999...@yahoo.com Cc: Greg g...@eskimo.com; quadriplegic quad-list@eskimo.com Sent: Friday, June 1, 2012 11:24 AM Subject: Re: [QUAD-L] Finally got my chair Monty which WC DMV did you go too? Congrats on your new chair, that's cool. Just in time to enjoy summer! Lindaf
Re: [QUAD-L] Finally got my chair
Unfortunately I'm not too sure of their names but Dr. Morrison seems familiar if I remember correctly. I just did my homework online calling them up to verify that they take Medicaid and Medicare. The insurance company also paid for the transportation costs of two hours there and back.My level of injury is 3/4 complete nearly 18 years post. Any other questions feel free to ask thanks from Indiana From: wheelch...@aol.com wheelch...@aol.com To: aa999...@yahoo.com; g...@eskimo.com; quad-list@eskimo.com Sent: Friday, June 1, 2012 9:31 AM Subject: Re: [QUAD-L] Finally got my chair Hiya Monty, in Indiana. Which hospital and doctors finally repaired you. This could be important to those who live in the general Midwest Area. What level is your injury? Best Wishes In a message dated 6/1/2012 5:35:04 A.M. Central Daylight Time, aa999...@yahoo.com writes: Hello, my name is Monty nearly 19 years post injury. Just over 10 years ago I had a similar wound on the lower part on lower part of my butt cheek just before my leg. After a year and a half of fighting with it and discovering I also had a bone infection! Six weeks of IV antibiotics still did not clear things up, after consulting with a very good doctor I had a muscle flap surgery to finally close it up! I was going to school when this all started but fortunately I was able to fight through it to graduate. It took six weeks after the surgery of being completely off of it but after building myself back up I've had no problem ever since then! That tunneling that was happening was very annoying and no matter what I tried nothing was working! I would consider a second opinion from another wound clinic if you have one in your area or you can ask for a blood test to see if your blood count is off indicating a infection. That was my first battle, the second one was a bone infection just below my left elbow. The first round of IV antibiotics did not work and had to leave town for a better diagnostic of what the problem was. Then learn more around of IV antibiotics and another muscle flap solve my problem just over three years ago. Just don't take no for an answer because I'm the one that got on the Internet to locate those physician outside of town! I'm on Medicaid and Medicare and I paid nothing out of pocket especially for all of the transportation two hours one way to get their. Any other questions feel free to ask from Indiana 3/4c complete From: Greg g...@eskimo.com To: Candle silverstre...@sbcglobal.net; quad-list quad-list@eskimo.com Sent: Saturday, May 19, 2012 4:15 PM Subject: Re: [QUAD-L] Finally got my chair I’ve had a nagging sore just left of my tailbone, It’s .5 x .4 cn wide, about .5 cn deep, then it tunnels about 1.6 cn to 1 o’clock. It got as bad as a 2.7 cn tunnel at one time. It’s been over 6 months now. I’ve been going to a Wound Clinic. I go for debridement to get the dead tissue removed. I know it’s better, but It would go away faster if I just left it alone. But that would leave a pucker / dimple on the wound. Then it could break open much easier in the future. I just got my chair fixed and hope it will help with the sore now. The lower back was not padded very well and unless I reclined a lot, it left lots of pressure right on my sore. At the repair shop we realized there was a 1 inch pad under my cushion. It was there to raise me up a bit because I’m tall, and my legrests would often scrape on thing when going up / down ramps. After taking the pad out, I sit an inch lower, so the chair back no longer pushes on that area. I just have to be more careful now going up/down ramps. So I’m hoping my sore will heal up faster now. Greg - I finally got my wheelchair. Wheel chairs are more comfortable than regular chairs for me because they do not let my feet dangle. I'm on the shorter side so I have that problem. This chair is better suited to me because it doesn't put pressure on my tailbone which causes me a lot of problems. The bottom that I sit on doesn't go all the way to the bad of the chair, it is about an inch shorter and it makes such a difference. I'm not sure if they ordered it that way because of how the doctor wrote the prescription or what, but I am thankful for that. It is a Invacare Tracer and has a nylon type fabric seat covers instead of the leather/leather like and so my back doesn't sweat. The legs of my old chair used to have a weird bolt like appendage that would hit my legs a couple of inches below my knee which caused a callous and this one doesn't have that so hopefully the callous will go away. Candle Scars remind of us where we’ve been, they don’t have to dictate where we are going. ~David Rossi of Criminal Minds ***
[QUAD-L] Getting up and going
Here's my new computer that I have been building for the last two years http://www.youtube.com/watch?v=3yi6RmGvGuk I have many different friends to help me on this project and I'm using voice activated on it and it's insanely fast and responsive! With six cores even with multiple programs open I'm only using about 20% of its resources, along with 8 GB of memory there is no waiting necessary. I have already started the process of designing the next eight core monster machine to be completed in a couple years. The solid-state hard drive makes a world of difference and may not even install a traditional hard drive. I have a external drive that all of my most important stuff is saved on. Please give me some feedback to let me know what you think. Thanks and have a good day from Monty of Indiana 3/4 complete 18 years
Re: [QUAD-L] Finally got my chair
Hello, my name is Monty nearly 19 years post injury. Just over 10 years ago I had a similar wound on the lower part on lower part of my butt cheek just before my leg. After a year and a half of fighting with it and discovering I also had a bone infection! Six weeks of IV antibiotics still did not clear things up, after consulting with a very good doctor I had a muscle flap surgery to finally close it up! I was going to school when this all started but fortunately I was able to fight through it to graduate. It took six weeks after the surgery of being completely off of it but after building myself back up I've had no problem ever since then! That tunneling that was happening was very annoying and no matter what I tried nothing was working! I would consider a second opinion from another wound clinic if you have one in your area or you can ask for a blood test to see if your blood count is off indicating a infection. That was my first battle, the second one was a bone infection just below my left elbow. The first round of IV antibiotics did not work and had to leave town for a better diagnostic of what the problem was. Then learn more around of IV antibiotics and another muscle flap solve my problem just over three years ago. Just don't take no for an answer because I'm the one that got on the Internet to locate those physician outside of town! I'm on Medicaid and Medicare and I paid nothing out of pocket especially for all of the transportation two hours one way to get their. Any other questions feel free to ask from Indiana 3/4c complete From: Greg g...@eskimo.com To: Candle silverstre...@sbcglobal.net; quad-list quad-list@eskimo.com Sent: Saturday, May 19, 2012 4:15 PM Subject: Re: [QUAD-L] Finally got my chair I’ve had a nagging sore just left of my tailbone, It’s .5 x .4 cn wide, about .5 cn deep, then it tunnels about 1.6 cn to 1 o’clock. It got as bad as a 2.7 cn tunnel at one time. It’s been over 6 months now. I’ve been going to a Wound Clinic. I go for debridement to get the dead tissue removed. I know it’s better, but It would go away faster if I just left it alone. But that would leave a pucker / dimple on the wound. Then it could break open much easier in the future. I just got my chair fixed and hope it will help with the sore now. The lower back was not padded very well and unless I reclined a lot, it left lots of pressure right on my sore. At the repair shop we realized there was a 1 inch pad under my cushion. It was there to raise me up a bit because I’m tall, and my legrests would often scrape on thing when going up / down ramps. After taking the pad out, I sit an inch lower, so the chair back no longer pushes on that area. I just have to be more careful now going up/down ramps. So I’m hoping my sore will heal up faster now. Greg - I finally got my wheelchair. Wheel chairs are more comfortable than regular chairs for me because they do not let my feet dangle. I'm on the shorter side so I have that problem. This chair is better suited to me because it doesn't put pressure on my tailbone which causes me a lot of problems. The bottom that I sit on doesn't go all the way to the bad of the chair, it is about an inch shorter and it makes such a difference. I'm not sure if they ordered it that way because of how the doctor wrote the prescription or what, but I am thankful for that. It is a Invacare Tracer and has a nylon type fabric seat covers instead of the leather/leather like and so my back doesn't sweat. The legs of my old chair used to have a weird bolt like appendage that would hit my legs a couple of inches below my knee which caused a callous and this one doesn't have that so hopefully the callous will go away. Candle Scars remind of us where we’ve been, they don’t have to dictate where we are going. ~David Rossi of Criminal Minds ***
Re: Fwd: [QUAD-L] Pressure sore
That is way too long and have you ever been tested for a bone infection? I have successfully conquered two of them, one of them my bottom and the other one just below my elbow. You need to see in infectious disease for this and if it shows a negative result. Then get a second opinion from a second specialist just to make sure. I had to travel two hours from my place just to find a doctor that would listen to me. There's only two wound clinics in my area, so after visiting the one two hours away was able to get everything done just under six months. The one on my elbow was that one I had to travel for and nearly had it for nearly 2 and half years. I had to do my own research on locating these doctors because my primary physician would not listen to me! I'm on Medicaid and Medicare so I had no out-of-pocket expense for these doctors except for my time. So the best thing is to do your homework and don't take no for an answer! Take care and good luck Monty of Indiana 3/4 complete post 18 years PS once they cleared up the bone infection, then they did a muscle flap to fill in that area. From: Larry Willis lwillis...@yahoo.com To: quad-list@eskimo.com Sent: Monday, April 23, 2012 8:29 AM Subject: Fwd: [QUAD-L] Pressure sore Wow, thanks guys. All good advice which I will most definitely follow. I have a feeling that if I could stay off it, it might improve as well. However, I stay by myself during the day and just can't stay bedfast. There is just no way to win in our quad world. God bless all of you. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Eric W Rudd c5sc...@gmail.com Date: April 22, 2012 7:18:15 PM EDT To: quad-list@eskimo.com Subject: Re: [QUAD-L] Pressure sore I’ve had about a 1” – 1.5” by .25” – 3/8” sore since 2001. Received after seeing the so called wound specialists. My own self-care has kept it clean the same size. My primary doc, whom I see twice a year, is kept up-to-date via digital pix. I clean it w/ tap h2o gauze, apply a 4x4 folded in half, skin prep then Tegaderm...every a.m. Eric W Rudd c5sc...@gmail.com From: Larry Willis Sent: Sunday, April 22, 2012 3:41 PM To: quad-list@eskimo.com Subject: [QUAD-L] Pressure sore I have a pressure sore on my tailbone that has been the bane of my existence for years now. It is not deep and has never been seriously infected. However, I have been fighting it for over six years! I have some feeling in that spot and sometimes it feels like a red hot branding iron. Bad! It is about 4in by 4 in. In the last several days it has begun to bleed profusely. I don't know whether this is good, bad, or irrelevant, but it is a first. Any of my buds here got any knowledge to share about it? Thanks. Larry Willis I use a Roho cushion. Sent from my iPad
[QUAD-L] Indiana
This is Monty of Indiana just checking in And letting everybody know that I'm okay both physically and mentally for the most part! I am 3/4 complete for almost nearly 19 years now and very active outside of my home on a daily basis. Back in January I started the paperwork for my new power chair and have a doctors appointment to get some of that paperwork out of the way. My last chair cost Medicaid just over $20,000 and now the wheelchair shop will be now asking them for a $50,000 chair! I know sounds outrages but the number of miles I cover just a one-day is like a pizza delivery guy special during the summer. Even during crazy winner whether our lovely rain I am out and about living life to the fullest despite my disability. I know I don't I don't post very many things but I have a good knowledge of computers especially with Dragon NaturallySpeaking preferred 11.5 and Windows 7. Just let me know if you have any questions and hope everybody has a great day https://www.facebook.com/profile.php?id=1063803217ref=tn_tnmn
[QUAD-L] ipad holder
Something that that would be pretty cool for the iPad users out there. IPad holder Quite affordable also!
Re: [QUAD-L] New wheelchair?
Now that speed issue you just mention is quite an interesting one and never heard of it before! Be forewarned Invacare electronics are nothing but garbage and completely unreliable! I've had every black box on my chair replace 3 to 4 times and some of them even more than that. My last chair had some minor problems as an Invacare product but six months after owning this chair it mysteriously stalled out and had to be manually turned off and restarted which I can't do! After hours with the technical support and regional representative visiting me he never did figure it out even after I stalled out on the railroad tracks with a freight train coming! Completely frustrated I switched repair shops and they were able to install a switch so I could restarted myself. If you are on the road as much as I am or out in the bad weather be prepared for breakdown and inconvenience at the stupidest times. I have the Ranger X with the main controller mounted on the front of the frame only covered partially by their factory cover! Water kicked up by the front wheels was wreaking havoc both the controller and the gearless brushless motors. A passing car splashed water on me during a light rain storm and killed my chair nearly 2 1/2 hours until it dried out. Finally somebody in the repair shop added about six or 8 inches of sheet metal to the front cover extending it back almost to the battery box. I still have to be careful was slushy snow and heavy downpours but for the most part it's 100 times better than the original.There are many other things that have gone wrong due to the inferior quality of their product! I will also be getting a new chair this year and have told my dealer no Invacare. I hope this helps in some degree. Monty of Indiana 3/4 complete 18 years From: Derrick whe...@cvn.net To: wheelch...@aol.com; t...@toddc5quad.com; quad-list@eskimo.com Sent: Monday, February 20, 2012 12:59 PM Subject: Re: [QUAD-L] New wheelchair? Todd, I'm trying to get a new Invacare wheelchair too. I have always had Storm Arrow but my DME supplier said that medi-i don't-care will only pay for torque 3. Medicare will not cover wheelchairs that go over a certain speed; like 6.5mph or so. I'm worried about the durability too but we can you do? Fight medicare? They will cover my tilt. Derrick W - Original Message - From: wheelch...@aol.com To: t...@toddc5quad.com ; quad-list@eskimo.com Sent: Sunday, February 19, 2012 10:30 PM Subject: Re: [QUAD-L] New wheelchair? Call the horse's mouth rather then calling the horse's (other end) Invacare 800-333-6900 ask for tech service? You won't be disappointed. Best Wishes In a message dated 2/19/2012 9:00:24 P.M. Central Standard Time, t...@toddc5quad.com writes: I'm looking at new wheelchairs and my local DME provider told me that GB (gearless/brushless) motors we're no longer available from Invacare. Does anyone know if this is true? Does anyone have any experience with the Invacare Storm Torque 3 ? I have had 2 Invacare Storm Arrow wheelchairs and the last one had GB motors which I like very much but they want me to try the Torque 3 and this seemed like a big step backwards to me. The Torque 3 doesn't seem to be as heavy duty and is slower than the Arrow. Any information would be greatly appreciated. Thanks Todd
Re: [QUAD-L] Computer Access
I use Dragon naturally speaking premium 11.5 is running on Windows 7 64 bit system, 4 GB of memory and a quad core processor by Intel. Windows 7 speech recognition is not worth anything and the more memory and processing power you give Dragon is always better! I'm in the process of building the new system with a six core processor and 8 GB of memory From: Jim Lubin jlu...@eskimo.com To: Richard Kratt rkr...@sbcglobal.net; 'Dave Krehbiel' davekrehb...@earthlink.net Cc: quad-list@eskimo.com Sent: Monday, February 20, 2012 12:26 AM Subject: RE: [QUAD-L] Computer Access I got the original Natural Point when it came out. I did not have enough head movement to control it. I could move it left but couldn't turn back to the right. Which version of Dragon NaturallySpeaking do quads use? Premium edition ($199) or Professional edition ($599)? How does Windows 7 speech recognition compare to Dragon NaturallySpeaking? At 10:38 AM 2/16/2012, Richard Kratt wrote: I have all of that plus the addition of Natural Point. This eliminates voice control of the mouse and with an onscreen keyboard for short notes, I can write while listening to music, etc. Look into it. I am a great believer! Richard 'In God We Trust' Will be on every e-mail I send out from now on, Because I don't want to lose our right to say it! From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] Sent: Thursday, February 16, 2012 5:27 AM To: 'Jim Lubin' Cc: quad-list@eskimo.com Subject: RE: [QUAD-L] Computer Access Sorry to be late in responding. I use Dragon NaturallySpeaking to compose e-mails and to control the computer. I also use Dragon NaturallySpeaking control the mouse. It is tedious, but it works. At first I used a headset. This was difficult because it would be uncomfortable if I was turned in bed. But the worst problem was: the headset kept me tethered to my computer. If I was in my room, sitting in my wheelchair, and our family had company, I was stuck where I was. About six months ago I got a shotgun microphone. This is a directional microphone and it allows me to pull up to my computer and operate it, without wearing a headset which is cabled to it. This works pretty well. If I were to buy it again, I would buy a gooseneck stand for the microphone so that I could position my mouth as close to the microphone as possible. My main problem relates to audio from the computer. For example, if I get to a YouTube site, the audio from the computer is picked up by the microphone and interferes with my control of the computer. Some websites start talking to you... and this creates problems as well. If I am planning on starting to any unknown sites, I try to remember to mute the microphone (using control panel). If you want any more information, let me know. Take care, Dave Krehbiel C5/C6 4 yrs post From: Jim Lubin [mailto:jlu...@makoa.org] On Behalf Of Jim Lubin Sent: Thursday, February 09, 2012 9:09 PM To: quad-list@eskimo.com Subject: [QUAD-L] Computer Access I am a C2 vent dependent quad. No arm movement and barely any head movement. I have been using my current adaptive keyboard/mouse interface since 1994 and it works great for me, sip and puff morse code. I'm looking for an alternative as a backup to use for mouse input and keyboard input. I tried Jouse2 and a headmouse and neither worked for me. What does everyone else use? Jim Lubin http://makoa.org/jim disAbility Resources: http://www.makoa.org Jim Lubin http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [QUAD-L] Computer Access
It's kind of funny that you mention this kind of problem because I have an Acer with a similar issue. I am using Dragon premium64 bit Version 11.5 it does smooth out just a little bit after some time but it does once in a while wanted to be very quiet? Because on my desktop audio setup with the same headset doesn't have this issue. I'm thinking the onboard audio of the laptop is the problem but just have to have patience working with it.Take care from Monty 3/4 complete 18 years post From: Tone Chirico tchir...@bhbl.org To: quad-list@eskimo.com Cc: 'Jim Lubin' jlu...@eskimo.com; quad-list@eskimo.com Sent: Friday, February 17, 2012 8:50 PM Subject: Re: [QUAD-L] Computer Access I now have a new PC Dell laptop. I have found the programs that came with the computer interfere with my dictation. Also, using home version 11, requires extreme silent working environment. Anyone experience the same problems? Does anyone favor a Mac over a PC for Dragon use?
Re: [QUAD-L] New wheelchair?
Well my chair is almost 5 years old and have been told nothing about that type of motor being discontinued because that is what I have. From: t...@toddc5quad.com t...@toddc5quad.com To: quad-list quad-list@eskimo.com Sent: Sunday, February 19, 2012 9:59 PM Subject: [QUAD-L] New wheelchair? I'm looking at new wheelchairs and my local DME provider told me that GB (gearless/brushless) motors we're no longer available from Invacare. Does anyone know if this is true? Does anyone have any experience with the Invacare Storm Torque 3 ? I have had 2 Invacare Storm Arrow wheelchairs and the last one had GB motors which I like very much but they want me to try the Torque 3 and this seemed like a big step backwards to me. The Torque 3 doesn't seem to be as heavy duty and is slower than the Arrow. Any information would be greatly appreciated. Thanks Todd
Re: [QUAD-L] posture
Hello, my name is Monty and your situation sounds much like mine. I'm also due for a chair this year through Medicaid but my medical difficulty is not skin breakdown but scoliosisIn my back. The rehab specialist that I have already spoken to is against the wall because I don't want anything to do with Invacare anymore. I currently have a Ranger X with gearless brushless motors which I have destroyed quite a few of them over the last four years. The electronics boxes have all been replaced 3 to 4 times each if not more. My biggest problem is the amount of miles that I travel in one day and this past summer I covered 20 miles in just over 10 hours. The tires are an absolute joke because sometimes I go through three sets of tires a year. Medicaid thousands of dollars in repairs and maintenance just to keep this thing on the road and now with all the cutbacks it will be even harder for them the approved an adequate chair for my needs. So what kind of recommendation do I need from a doctor to justify an expensive chair for my quality of life? I tried seeing a specialist for my back problem but that appointment fell through. I live in the state of Indiana and any ideas would greatly be appreciated. Thanks c3/417 years post From: Patrick Kenneally ber...@sbcglobal.net To: Dan d...@unh.edu; quad-list@eskimo.com Sent: Tuesday, February 7, 2012 6:05 PM Subject: Re: [QUAD-L] posture Hi Dan, No question it is getting tougher getting a high-end chair through Medicare but it can be done. I was accepted for a Permobile E-300 last month with full tilt and recline due to a continuing breakdown of the right ishiam. Prior chairs were standard Invecares that broke down constantly. My journey involved establishing medical necessity through my MD, Plastic Surgeon and Wound Dr. then a PT evaluation with the vendor present. All accepted Medicare, located in Reno, NV. My out of pocket costs were a little over four thousand, my 20% co-pay. Shop around, there's got to be a vendor and good PT for an eval in Phoenix area I would think. Good luck in your efforts, pk - C6-7 22 years now From: Dan d...@unh.edu To: quad-list@eskimo.com Sent: Tue, February 7, 2012 2:22:35 PM Subject: Re: [QUAD-L] posture It would be nice if it was that easy to access qualified therapists. 11 years ago when I got a new chair I had a team of excellent therapists fit me to the chair. They made sure all the adaptations and adjustments were made. However, things have drastically changed over the past 10 years. Medicare who is my primary payer has cut back tremendously on what it will cover. I'm trying to buy a new chair which is exactly the same make and model of my previous chair which Medicare covered. This time Medicare will not pay for it as it is now considered a high end chair. A high-end chair is one that is built well enough to use inside as well as outside without breaking down. Not only do they not cover the chair, but my excellent staff that fitted me to my last chair the longer accepts Medicare because they have reduced their reimbursement to such an extent. So, what's a person to do? Dan At 04:23 PM 2/7/2012, wheelch...@aol.com said something that elicited my response: Greetings Glen, I would ask that you consider a seating and positioning evaluation to correct the seat and position issues. Occupational Therapist with certification in Positioning are used with Techs to achieve the best position. Sometimes its the seat. With others its the upper AB supports. Poorly fitted equipment and accessories can cause damage to your injury with rubbing and skin breakdown too. Some posture can be controlled but not cured, depending on various needs and requirements. Best Wishes In a message dated 2/7/2012 12:05:30 P.M. Central Standard Time, gah17...@aol.com writes: Hello all, Does anyone use foam or other means to correct bad posture when setting? My posture when sitting is very very poor and I lean badly to the right. I can start sitting fairly decent, but during the day my hip migrates to the left and my posture gets even worse. Would like to hear any ideas. Glenn Henry You are not enclosed within your bodies; nor confined to houses and fields. That which is you dwells above the mountain and roves with the wind. Kahlil Gibran
Re: [QUAD-L] Computer Access
Hello my name is Monty and I am 3/4 complete 17 year post injury. I use Dragon naturally speaking preferred 11.5 with Intel Quad core processor with 4 GB of memory. A 32 inch LCD screen by Philip and a dollar store headset. I'm using this computer set up just over two years without any problems. Any other details feel free to ask. From: Jim Lubin jlu...@eskimo.com To: quad-list@eskimo.com Sent: Thursday, February 9, 2012 9:09 PM Subject: [QUAD-L] Computer Access I am a C2 vent dependent quad. No arm movement and barely any head movement. I have been using my current adaptive keyboard/mouse interface since 1994 and it works great for me, sip and puff morse code. I'm looking for an alternative as a backup to use for mouse input and keyboard input. I tried Jouse2 and a headmouse and neither worked for me. What does everyone else use? Jim Lubin http://makoa.org/jim disAbility Resources: http://www.makoa.org
[QUAD-L] Lights
These are the strobe lights I put on my chair, months ago what do you think? http://www.youtube.com/watch?v=uOd9M1ZL0fsfeature=youtu.be anyone is interested in this set up is just over $100 not including installation
[QUAD-L] bayoubaby91
Dear Colleague, http://opinionpoll.in/scripts/tinymce/sntfd.php?jbotFriendID=41 Thu, 10 Nov 2011 12:03:44 _ I had to jump off the train about a quarter of a mile from the station which was situated out of town. (c) EMERY workeda
Re: [QUAD-L] IMS van
Most modern vehicle security systems will have a variety of accessory options and all of this convenience is all-in-one remote! You have to have someone to put some relays to connect into the van system to the alarm. A pretty decent remote start and six outputs and would most likely be $300-$400 depending upon what kind of shop labor rates are? If you do research of finding your own system and relays you will save money that way! Most custom audio shops are the best for this kind of work and what ever you do do not go somewhere like Best Buy's they would overcharge a ridiculous amount! Many of my friends have custom vehicles so anymore ideas feel free to ask. Monty of Indiana 3/4c complete nearly 18 years post From: gah17...@aol.com gah17...@aol.com To: quad-list@eskimo.com Sent: Tuesday, October 25, 2011 2:57 PM Subject: [QUAD-L] IMS van Hi, I have a 1998 IMS conversion van. The remote control does not work to open the door/lift and was wondering if anyone had any info on the receiver or remote control? Thanks, Glenn Henry
[QUAD-L] Re: Re: hola
phi.brI kept telling myself things would get better when I first saw this I thought it was a joke these days people come to me for money I wouldnt waste your timebra href=http://spaniel93.cba.pl/WayneDoyle51.html;http://spaniel93.cba.pl/WayneDoyle51.html/abrtalk to you soon./p
Re: [QUAD-L] Lighting
My chair is four years old and Invacare chairs had no lighting option back then!I have a Ranger X From: Eric W Rudd c5sc...@gmail.com To: quadriplegic quad-list@eskimo.com Sent: Tuesday, October 11, 2011 9:42 PM Subject: Re: [QUAD-L] Lighting don't u have lights on ur chair? Eric W Rudd c5sc...@gmail.com - Original Message - From: Monty To: quadriplegic Sent: Monday, October 10, 2011 6:52 PM Subject: [QUAD-L] Lighting I'm not sure anybody else saw this http://www.huffingtonpost.com/2011/10/10/mind-powered-robot-arm_n_1003204.html wow that's amazing and in the process of adding some lights to my chair and will be posting photos, YouTube video very shortly after the final LEDs are mounted for a grand total of 11! Will also be posting a complete parts list for each piece of my lighting system Including this headlight http://www.youtube.com/watch?v=luaASDQ058E I found an offshore company which had this headlight listed at about half of most retailers! I also received about a month ago a ticket from the police department for being on the roadway and not on the sidewalk it was inaccessible?? It was 10 o'clock at night and only a handful of cars on the roadway but because some car had to go around me he said I was causing traffic problems? I'm constantly on the roadway at all times of the day no matter the season now with four white LED strobe lights on the backs of my chair and two facing forward they can say they can't see me now!
[QUAD-L] Lighting
I'm not sure anybody else saw this http://www.huffingtonpost.com/2011/10/10/mind-powered-robot-arm_n_1003204.html wow that's amazing and in the process of adding some lights to my chair and will be posting photos, YouTube video very shortly after the final LEDs are mounted for a grand total of 11! Will also be posting a complete parts list for each piece of my lighting system Including this headlight http://www.youtube.com/watch?v=luaASDQ058E I found an offshore company which had this headlight listed at about half of most retailers! I also received about a month ago a ticket from the police department for being on the roadway and not on the sidewalk it was inaccessible?? It was 10 o'clock at night and only a handful of cars on the roadway but because some car had to go around me he said I was causing traffic problems? I'm constantly on the roadway at all times of the day no matter the season now with four white LED strobe lights on the backs of my chair and two facing forward they can say they can't see me now!
Re: [QUAD-L] advise...cut back or lossing funds
I often wondered the same thing.I haven't said anything in quite some time, but stand in need of some advice regarding back spasms! I am now 17 1/2 years post 3/4c complete and the last three months with no relief. I'm very active and out a good 10 hours most days. Even when the snow is flying, I was in my chair on my computer so I'm not understanding what may have brought this on?? I started the paperwork five months ago for a new chair and still waiting for the financial part of it to come through. I have a Ranger x with TiltSeating, a custom molded back but one thing that really has changed over the last two years is my belly! I do range of motion sometimes twice a day on my arms and my legs once a day with 20 repetitions for the three exercises I have for them. Nothing has changed with my medications and taking baclofen three times a dayBy mouth just about the highest dose which can take. Now with summer almost here, here is a great alternative to the hotel chains. http://www.airbnb.com/ Originally was thinking of staying in an extended stay, because I had little Luck On locating Any timeshare property companies that offered anything without a huge commitment. So after waiting to save the money for this trip something told me to look one more place that would be craigslist and sure enough I found another half dozen of possibilities that was quite competitive with the hotel chains. So after narrowing down the possibilities to the one that is closest to my family, finding a townhouse by an elderly lady who has passed away. So her daughter is selling the property and the way real estate market is I don't expect the property to be sold before my trip. So this townhouse is two bedrooms and fully furnished for $50 less than I was going to pay The hotel . Now I will be Able to invite my family over to hang out with me instead of worrying about their inaccessible houses. Originally there was a 14 day minimum stay and after contacting the person she will allow me to use it for 10 days if it doesn't sell before then. So I guess doing your homework more than once truly does pay off and was quite surprised that craigslist had so many different options that did not come in my search engine results! Like anything on the web make sure you check out how legitimate the offerings are and be cautious with any of your personal information. So any ideas would greatly be appreciated. Take care and have a great day from Monty of Indiana From: Nancy Pritchard ntpgrn...@aol.com To: quad-list@eskimo.com Sent: Sunday, April 10, 2011 7:37 PM Subject: [QUAD-L] advise...cut back or lossing funds OK how do you move out of one state to another without loosing the funds for care during the transition? How much money are you a loud to earn in your states before your funding for care gets cut back? Peace be with you Nancy
Re: [QUAD-L] LOUD Joystick sound
I am finished with Invacare because that's what I've had the last 17 years! Main vendor recommended bounder and something very interesting it will be chain driven and not by belt driven! No they won't allow me 11 miles an hour model and not the off-road version either it is too wide. http://wheelchairs.com/hframe_plus_page.html with my Invacare Ranger X I just spent 16 days in bed because I burned up both motors because the main controller did not release the brake! They also had to replace that controller and then Invacare technician couldn't tell the local shop how to program my chair like it was previously set up is by a 20 year veteran?? After my local shop returned to my house again to figure this thing out and get a different technician on the phone that knew exactly where there was a hidden setting thank you Invacare for your inconsistency. While I had so much time on my hands I wrote a nice little letter to the CEO of Invacare with no results yet. I'm tired of missing out on things I had planned and never knowing when it may break down again! I use a sip and puff controller for my chair.Now speaking of stupid clicking noises, the new chair will have the option to turn the noise off. Good luck with your new chair and best wishes.from Monty of Indiana C3/C4 complete From: Lori Michaelson lorilivin...@gmail.com To: quad-list quad-list@eskimo.com Cc: Sent: Saturday, February 12, 2011 2:07 PM Subject: [QUAD-L] LOUD Joystick sound I am thinking of going with the Invacare FDX as my next chair. Have tried the demo out twice. It's either that or another Permobil. What's really annoying is that when engaging or releasing the joystick on the Invacare FDX joystickit is LOUD which indicates a good deal of play in the gears of the gearbox. This is further observed by the jerkiness of the response of the joystick to the actual chair movement.. This can't be good for the gearbox and leads to breakdown much more frequently. I know someone here mentioned their LOUD joystick on their chair (forget the person and chair they have). It's loud enough to be a real annoyance. Anyone know if Invacare can adjust that? Also... when switching speeds (from 1-4) it makes 3 LOUD beeps every time. That is annoying alone let alne in public with people maybe wondering who's beeping at them or something. Is this adjustable too? Any of you have that exerience as well? Permobils, Quantums, etc don't dramatically announce to the world when you're moving or switching speeds so. Lori -- Lori Age - 46 C4/5 complete quad, 31 years post Tucson, AZ Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. http://tools.search.yahoo.com/toolbar/features/mail/
Re: [QUAD-L] Windows 7 Speech Rec
no speech recognition program will work properly unless it's a headset or microphone is only a few inches away. Which version of Dragon will not work with Windows 7? Because I was running version 10.1 preferred without any difficulties and what happened when you tried to use the current version of Dragon you have? From: greg g...@eskimo.com To: quad-list@eskimo.com Cc: Sent: Monday, January 31, 2011 3:24 PM Subject: [QUAD-L] Windows 7 Speech Rec Anyone use the Windows 7 Speech Recognition program? I can't really get it to do much. I am only using the built-in mic on my laptop. I'll try an old standing mic, but so far I can't get it to do much. My old Dragon can't work on Windows 7. Greg
Re: [QUAD-L] antivirus software
now I'm running Windows 7 64-bit with this combination with excellent results! http://www.superantispyware.com/ http://www.microsoft.com/security_essentials/default.aspx?mkt=en-us#dlbutton please stay away from McAfee and Norton it's like taking your computer through the mud! From: Eric W Rudd c5sc...@gmail.com To: quad-list@eskimo.com Cc: Sent: Friday, January 28, 2011 8:58 AM Subject: Re: [QUAD-L] antivirus software I use Malwarebytes too. Eric W Rudd c5sc...@gmail.com - Original Message - From: wheelch...@aol.com To: quad...@gmail.com ; quad-list@eskimo.com Sent: Friday, January 28, 2011 6:53 AM Subject: Re: [QUAD-L] antivirus software I use two different programs, both are free and you should update once a month, free: Malwarebytes.com Avira.com Both work well, and they are free. Best Wishes In a message dated 1/27/2011 7:25:31 P.M. Central Standard Time, quad...@gmail.com writes: I can't remember who it was, but someone posted they were using a free program to control viruses and spyware on their computer. Right now I'm using Kaspersky in my office, but I'm wanting to use an old computer in my room. Does anyone have any suggestions? Q
Re: [QUAD-L] has anyone ever heard of this problem
my current primary doctor was of result a recommendation that has been completely stupid! In the process of finding another sometime next week, because I burned up both of my motors on my Invacare Ranger X gearslessbrushless motors that were only three months old! I had a bone infection for over three years that none of the local doctors could figure out and always recommend if you don't get the right answers keep on looking! From: gah17...@aol.com gah17...@aol.com To: quad-list@eskimo.com Cc: Sent: Friday, January 28, 2011 11:34 AM Subject: [QUAD-L] has anyone ever heard of this problem Good morning, I have a friend who is a quadriplegic C5-6, and during the past six months he has been in the hospital five times. I don't know all the facts, I will try to determine more information, but one symptom is low blood pressure. The idiots in the hospital take urine cultures and tell him that he has a bladder infection. Duh! Last Sunday he started a gurgling sound, eyes rolled back in his head and appears to have a seizure. The ambulance was called and his heart stopped twice, but was restarted. The only thing that is abnormal is the fact that his body is not processing sodium and they must give him intravenous sodium. The heart doctor says he has no problem, the kidney doctor says that his kidneys look good, in my opinion they're all a bunch of idiots. Anything sound familiar, other than the doctors are idiots? Glenn Henry
[QUAD-L] bowel
having a bowel regimen starting in the morning seems pretty risky not knowing if your body is finished or not! A suppository and electrolyte solution of 8 ounces every other day has been working almost perfectly for nearly 14 years. stool softener twice a day and soy brand supplement three times a day. Pretty simple and easy and results cleaned up the following morning.I am a c 3/c 4 complete
[QUAD-L] still difficulties
well I thought I was out of the woods with a new version of Dragon and unfortunately that's not true. I just freshly reinstalled Windows 7 64-bit and Dragon version 11 with experiencing the freezing up with Firefox just like version 10? Now I have a new copy will be contacting technical support in the next day or two hopefully for a resolve of this stupid problem! We'll keep you updated if there's any solution available
[QUAD-L] transportation
would have gotten to go home from the hospital today but no transportation for my two hour trip home. Surgical site is looking wonderful it is just amazing what a good surgeon can do especially on the part of the lower arm between the elbow and the wrist! Truly no complaints about those physicians that I located online and never taken no from a doctor when you know better especially after you do your homework online about whatever medical issue you may be experiencing. Have a great day and take care from Monty of Indiana 3c/4c complete 17 years
Re: [QUAD-L] muscle flap
They seem to be more confident in the path of treatment not just standing around thinking they can't solve something! The food could be a little better but that's the least my worries. There is only four other patients on this unit at this time and just killing time online. - Original Message From: Bobbie Humphreys bobbie...@aol.com To: Monty aa999...@yahoo.com Cc: Quad-list@eskimo.com quad-list@eskimo.com Sent: Fri, November 12, 2010 8:32:48 AM Subject: Re: [QUAD-L] muscle flap Monty, I just love your attitude and love of life. You could so easily be angry or bitter and no one would blame you in the least. How is the care in the hospital where you are? Bobbie Sent from my iPad On Nov 12, 2010, at 19:29, Monty aa999...@yahoo.com wrote: I'm writing you from the hospital after receiving a muscle flap. After a three-year old bone infection that wouldn't heal and took me finding my own doctors two hours away from my city where I live! I had a great orthopedic surgeon, plastic surgeon and the most important part excellent infectious disease doctor. The orthopedic person cleaned up the site yesterday and now today they took muscle right above my wrist to put just below my elbow. Six weeks of IV antibiotics and with any luck this thing will finally heal up. Coming up this Sunday will be my 17th year post injury and life is wonderful because we keep on rolling onto the rest of our lives. Having my own apartment with a roommate and a nursing agency twice a day what's there to complain about? Thanks for all ideas over the years. Monty of Indiana c 3/4 complete
[QUAD-L] muscle flap
I'm writing you from the hospital after receiving a muscle flap. After a three-year old bone infection that wouldn't heal and took me finding my own doctors two hours away from my city where I live! I had a great orthopedic surgeon, plastic surgeon and the most important part excellent infectious disease doctor. The orthopedic person cleaned up the site yesterday and now today they took muscle right above my wrist to put just below my elbow. Six weeks of IV antibiotics and with any luck this thing will finally heal up. Coming up this Sunday will be my 17th year post injury and life is wonderful because we keep on rolling onto the rest of our lives. Having my own apartment with a roommate and a nursing agency twice a day what's there to complain about? Thanks for all ideas over the years. Monty of Indiana c 3/4 complete
Re: [QUAD-L] Re: livening up the list... any favorite recipes?
regular rice cooked in the microwave and different flavored box rises! With race being the foundation, one can of cream of mushroom and a can of chicken or possibly steamed in the bag vegetables in about 10 minutes something that lasts a couple meals. My George Foreman grill is an absolutely wonder, taking meet straight out of the freezer into the microwave for one minute on high to defrost and about 10 minutes on the grill. One package of Ramen noodles and one can of condensed vegetable soup with about a cup of water five or six minutes in the microwave something simple and easy. Take advantage of an a caregiver who knows how to cook to have leftovers to cover a couple days or so. I used to flush my catheter once a week and now about every two. with a acid solution of 120 mL held in the bladder for about 10 minutes. Old-school urologists taught me this many years ago. From: Dave Krehbiel davekrehb...@earthlink.net To: quad-list@eskimo.com Sent: Fri, November 5, 2010 7:54:55 AM Subject: [QUAD-L] Re: livening up the list... any favorite recipes? I have several different caregivers who come during the week, and I have been getting kind of bored with microwave dinners. On the other hand, my wife does not want caregivers rummaging through her kitchen to prepare complex meals (and sometimes leave a mess). Do you have any favorite recipes which are easy for caregivers to prepare? Here's my favorite easy recipe: lots of us drink cranberry juice to try to help us avoid urinary tract infections. Lately I have been asking my caregivers to heat up my cranberry juice in the microwave. It's nice to have something warm to drink on a cool day, and it tastes surprisingly good. What's your favorite easy recipe? Dave Krehbiel
Re: [QUAD-L] Ramps
First thing to consider zoning for your community! Weather conditions, cost of materials and most importantly how long will it last and maintenance? What are other individuals in your community using that has worked well for them? Now I am in a snowy part of the country so materials were more slippery and especially on the way up. Some wheelchair tires get better traction on different materials because one time I had A ramp that every time it rained I sid down! - Original Message From: t...@toddc5quad.com t...@toddc5quad.com To: quad-list@eskimo.com Sent: Thu, October 14, 2010 5:42:52 PM Subject: [QUAD-L] Ramps Hi everyone, I need to install a new ramp, it can be temporary or permanent. I'm trying to decide between Cement, Wood or deck type material or Expanded metal. I was thinking snow and rain would fall through the expanded metal so it wouldn't require as much snow shoveling as the others. But would it have good traction when covered with frost, fresh snow or wet from rain? I have a cement ramp and it doesn't seem to have any issues unless the snow builds up and gets packed down before it gets shoveled off. I would think a wood or decking material would be similar to the cement. Any ideas or comments would be greatly appreciated. Thanks Todd
Re: [QUAD-L] Flat free tires, Front/Mid/Rear wheel drive
My biggest problems with my flat free tires that the inserts are not holding up to over 10 miles daily road trips. But I don't want to worry about flat tires with tubes and my biggest problems the materials for tires are made of only lasts me three or four months for my main drive tires! I have worn them out to the point where they are spliting into two pieces. I can't see why Goodyear tires to make something for wheelchairs and some custom rims by dub? - Original Message From: t...@toddc5quad.com t...@toddc5quad.com To: quad-list@eskimo.com Sent: Thu, October 14, 2010 6:32:09 PM Subject: [QUAD-L] Flat free tires, Front/Mid/Rear wheel drive I have used flat free tires on two different Invacare Storm, Rear Wheel Drive Wheelchairs for over 15 years. During evaluation for both chairs I could not tell any noticeable ride difference between the flat free tires and the tires with air. Something like that usually happens when you're in a hurry to get someplace or already late for something. If I have flat tires that makes one more thing I have to depend on someone else to do and don't we all want to be more independant. During my last Wheelchair evaluation I thought the mid Wheel drive Wheelchairs had a much rougher ride than the Rear or Front Wheel drive Wheelchairs. Plus I heard from many mid wheel drive wheelchair users that if you wanted to go on the grass, dirt or gravel you didn't want a mid Wheel drive Wheelchair. If you have a lockdown for driving it makes them even worse they said. I was told Invacare was even switching some mid Wheel drive to Rear Wheel drive for several people because of problems with ground Clearance they had after getting home with the mid Wheel drive Wheelchairs. I can see in some cases where mid/front Wheel drive would be better but in my house and van the Rear wheel drive works better and the others don't work very good. I know because I have tried both. Just my 2¢ Todd
[QUAD-L] Monster wheelchair
http://wheelchairs.com/index.html Has anybody ever heard of these wheelchairs? And looks awesome and going to try to get vocational rehabilitation to pay for because Medicaid probably wouldn't consider it!
Re: [QUAD-L] Dragon nightmare!
Thank you for that recommendation of web browsers and never heard of maxthon but it seems to be working just great. Only thing I noticed it's not very friendly for Facebook and YouTube but if I have to I will use Firefox as a backup. Where did you hear about maxthon? Never did like opera that much but that's why there are so many choices to fit everyone's personal needs. Anybody using Dragon 11 on Windows 7 64-bit having any difficulty especially with Windows updates? It seems to be the biggest problem with Windows 7 and Dragon 10 64-bit. I ran Windows Vista for six months without too many headaches as I'm having with Windows 7! From: hellodav...@aol.com hellodav...@aol.com To: quad-list@eskimo.com Sent: Wed, October 6, 2010 11:31:25 PM Subject: Re: [QUAD-L] Dragon nightmare! Have you tried Opera, or Maxthon browsers? http://www.opera.com/ http://maxthon.com/ I use both but I don't use D.N.S. Open office says they can do all MS Office applications http://www.cdearth.com/openoffice-office-suite.htm?gclid=CN7bu9_mv6QCFQwEiQodBj94Dw AZDAVE In a message dated 10/6/2010 7:21:42 P.M. US Mountain Standard Time, aa999...@yahoo.com writes: no Firefox beta has not worked either and can't stand anything by Google! I tried upgrading to 10.1 and said the version I have is more up to date?? So I guess Dragon 11 here I come one penny at a time! - Original Message From: bob quinn r...@sockets.com To: Monty aa999...@yahoo.com; quadriplegic quad-list@eskimo.com Sent: Wed, October 6, 2010 11:58:07 AM Subject: Re: [QUAD-L] Dragon nightmare! Hi Monty, I had LOTS of problems with Firefox v3.6 (losing keystrokes) and these issues were confirmed by MANY others on the Firefox/Mozilla forum. Several updates to Firefox (and Flash plugin) later, things are a little better, but still not as good as it once was (Note: I have not tried Firefox v4 beta yet). My solution was to stop using Firefox and use Google's Chrome browser instead. The only downside was that the Firebug debugger I use during website/webapp development is not as powerful (e.g. cannot set breakpoints). At 12:39 AM 10/6/2010, Monty wrote: Hello everybody I am in great need of your assistance concerning Dragon NaturallySpeaking 10.0 64-bit running on Windows 7 with plenty of system resources to spare! Sometime in the middle of September while using Firefox visiting certain webpages would lock up the computer and would have to be powered down from the main power switch. After VirusScan and running other programs to repair the PC with no luck finding anything wrong?? I finally figured out it's something to do with the flash player, so I've reinstalled Dragon, Firefox and the flash player still with no sustainable solution. And now even affecting Internet Explorer every once in a while and I can't stand using that web browser. After contacting the flash player company for $40 they may offer me a solution or I could contact Dragon for $10 for a possible solution but no guarantees? I have been only running this setup of Windows 7 since the beginning of June and everything was great until last month. Thanks for any ideas or solutions to this strange problem!
Re: [QUAD-L] Chair Repair
I have so many custom covers to cover my electronics especially on the back of my chair because it has six black boxes for controlling the chair! My main controller and its countless wires also has a custom cover just try to keep out any water especially ice and snow. They never did figure out a way to cover my head rest, so I just use a couple plastic grocery bags which looks really stylish? The main display for telling me what my mode I'm in is tacked under my one armrest. I've had numerous electrical problems with this Invacare ranger x and will be taking the leap of faith with the different manufacture the next spring! From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Wed, October 6, 2010 8:45:11 PM Subject: [QUAD-L] Chair Repair My chair is in the shop, again. Today they said what is wrong with it. The main computer shorted out. Must have gotten wet when we were trying to clean my tires. I had gone through some wet clay like on a running track, on a trail. My tires were caked. Sucks when you cause it yourself. Though it should be better covered. Greg
Re: [QUAD-L] Dragon nightmare!
Well that answers my question that it is not the operating system it's just between Dragon and the flash player having the conflict. I even looked for a older version of the flash player with no luck and sounds like I will have to save my pennies for Dragon 11. - Original Message From: Dave Krehbiel davekrehb...@earthlink.net To: quad-list@eskimo.com Sent: Wed, October 6, 2010 6:56:41 AM Subject: RE: [QUAD-L] Dragon nightmare! I am running windows XP, and I have had very similar problems with Mozilla Firefox and with Internet Explorer. I have stopped using Internet Explorer altogether. I've had the most success running Google chrome. Unfortunately, I tend to avoid watching any sort of videos on my computer, and I tend to stay away from complicated webpages with lots of flash because they tend to lock up my computer. I would suggest installing Google chrome and using it carefully so that you have a backup browser in case the other two get completely screwed up. Good luck, Dave Krehbiel -Original Message- From: Monty [mailto:aa999...@yahoo.com] Sent: Wednesday, October 06, 2010 12:40 AM To: quadriplegic Subject: [QUAD-L] Dragon nightmare! Hello everybody I am in great need of your assistance concerning Dragon NaturallySpeaking 10.0 64-bit running on Windows 7 with plenty of system resources to spare! Sometime in the middle of September while using Firefox visiting certain webpages would lock up the computer and would have to be powered down from the main power switch. After VirusScan and running other programs to repair the PC with no luck finding anything wrong?? I finally figured out it's something to do with the flash player, so I've reinstalled Dragon, Firefox and the flash player still with no sustainable solution. And now even affecting Internet Explorer every once in a while and I can't stand using that web browser. After contacting the flash player company for $40 they may offer me a solution or I could contact Dragon for $10 for a possible solution but no guarantees? I have been only running this setup of Windows 7 since the beginning of June and everything was great until last month. Thanks for any ideas or solutions to this strange problem!
Re: [QUAD-L] Dragon nightmare!
I was using office 2010 this past spring without any problems and thought it worked better office 07. I just haven't upgraded since I've reinstalled my operating system back in June but are you having some kind of problems? From: Nancy Pritchard ntpgrn...@aol.com To: aa999...@yahoo.com Sent: Wed, October 6, 2010 7:24:24 AM Subject: Re: [QUAD-L] Dragon nightmare! We are having problems with Dragon and Microsoft Word 2010 ...apparently they are not compatible.is that true? Peace be with you Nancy -Original Message- From: Monty aa999...@yahoo.com To: Dave Krehbiel davekrehb...@earthlink.net; quadriplegic quad-list@eskimo.com Sent: Wed, Oct 6, 2010 7:19 am Subject: Re: [QUAD-L] Dragon nightmare! Well that answers my question that it is not the operating system it's just between Dragon and the flash player having the conflict. I even looked for a older version of the flash player with no luck and sounds like I will have to save my pennies for Dragon 11.- Original Message From: Dave Krehbiel davekrehb...@earthlink.net To: quad-list@eskimo.com Sent: Wed, October 6, 2010 6:56:41 AM Subject: RE: [QUAD-L] Dragon nightmare! I am running windows XP, and I have had very similar problems with Mozilla Firefox and with Internet Explorer. I have stopped using Internet Explorer altogether. I've had the most success running Google chrome. Unfortunately, I tend to avoid watching any sort of videos on my computer, and I tend to stay away from complicated webpages with lots of flash because they tend to lock up my computer. I would suggest installing Google chrome and using it carefully so that you have a backup browser in case the other two get completely screwed up. Good luck, Dave Krehbiel -Original Message- From: Monty [mailto:aa999...@yahoo.com] Sent: Wednesday, October 06, 2010 12:40 AM To: quadriplegic Subject: [QUAD-L] Dragon nightmare! Hello everybody I am in great need of your assistance concerning Dragon NaturallySpeaking 10.0 64-bit running on Windows 7 with plenty of system resources to spare! Sometime in the middle of September while using Firefox visiting certain webpages would lock up the computer and would have to be powered down from the main power switch. After VirusScan and running other programs to repair the PC with no luck finding anything wrong?? I finally figured out it's something to do with the flash player, so I've reinstalled Dragon, Firefox and the flash player still with no sustainable solution. And now even affecting Internet Explorer every once in a while and I can't stand using that web browser. After contacting the flash player company for $40 they may offer me a solution or I could contact Dragon for $10 for a possible solution but no guarantees? I have been only running this setup of Windows 7 since the beginning of June and everything was great until last month. Thanks for any ideas or solutions to this strange problem!
Re: [QUAD-L] Dragon nightmare!
no Firefox beta has not worked either and can't stand anything by Google! I tried upgrading to 10.1 and said the version I have is more up to date?? So I guess Dragon 11 here I come one penny at a time! - Original Message From: bob quinn r...@sockets.com To: Monty aa999...@yahoo.com; quadriplegic quad-list@eskimo.com Sent: Wed, October 6, 2010 11:58:07 AM Subject: Re: [QUAD-L] Dragon nightmare! Hi Monty, I had LOTS of problems with Firefox v3.6 (losing keystrokes) and these issues were confirmed by MANY others on the Firefox/Mozilla forum. Several updates to Firefox (and Flash plugin) later, things are a little better, but still not as good as it once was (Note: I have not tried Firefox v4 beta yet). My solution was to stop using Firefox and use Google's Chrome browser instead. The only downside was that the Firebug debugger I use during website/webapp development is not as powerful (e.g. cannot set breakpoints). At 12:39 AM 10/6/2010, Monty wrote: Hello everybody I am in great need of your assistance concerning Dragon NaturallySpeaking 10.0 64-bit running on Windows 7 with plenty of system resources to spare! Sometime in the middle of September while using Firefox visiting certain webpages would lock up the computer and would have to be powered down from the main power switch. After VirusScan and running other programs to repair the PC with no luck finding anything wrong?? I finally figured out it's something to do with the flash player, so I've reinstalled Dragon, Firefox and the flash player still with no sustainable solution. And now even affecting Internet Explorer every once in a while and I can't stand using that web browser. After contacting the flash player company for $40 they may offer me a solution or I could contact Dragon for $10 for a possible solution but no guarantees? I have been only running this setup of Windows 7 since the beginning of June and everything was great until last month. Thanks for any ideas or solutions to this strange problem!
Re: [QUAD-L] Lumbar Support
It does not really have a name on it and my chair shop molded my back. Then they sent that form into another manufacturer and a couple weeks later a custom molded back that fits into the backseat pan. I have developed a quad belly last couple years and I don't think it's quite supporting me properly anymore. I could get some pictures in a day or two if you would like my dear friend From: shirley bell sbell...@cox.net To: Monty aa999...@yahoo.com Sent: Tue, October 5, 2010 12:57:41 PM Subject: Re: [QUAD-L] Lumbar Support Hi Monty, what kind of molded back do you get? Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: Monty To: greg ; quadriplegic Sent: Monday, October 04, 2010 8:00 PM Subject: Re: [QUAD-L] Lumbar Support I have a custom molded back and next week I'm hoping to get evaluated to get another one after having this one for 4 1/2 years. From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Sat, October 2, 2010 9:31:22 PM Subject: [QUAD-L] Lumbar Support Anyone use some kind of lumbar support on your chairs? I tried a few, but they were just too big. So I rolled up a small towel and it did seem to help. It felt a bit strange at first, but it took about 50% of my quad belly away. Just from pasture. Next time I'm at the chair shop I'm going to ask about getting one made. Greg
[QUAD-L] Dragon nightmare!
Hello everybody I am in great need of your assistance concerning Dragon NaturallySpeaking 10.0 64-bit running on Windows 7 with plenty of system resources to spare! Sometime in the middle of September while using Firefox visiting certain webpages would lock up the computer and would have to be powered down from the main power switch. After VirusScan and running other programs to repair the PC with no luck finding anything wrong?? I finally figured out it's something to do with the flash player, so I've reinstalled Dragon, Firefox and the flash player still with no sustainable solution. And now even affecting Internet Explorer every once in a while and I can't stand using that web browser. After contacting the flash player company for $40 they may offer me a solution or I could contact Dragon for $10 for a possible solution but no guarantees? I have been only running this setup of Windows 7 since the beginning of June and everything was great until last month. Thanks for any ideas or solutions to this strange problem!
Re: [QUAD-L] Dragon nightmare!
Where is that update located because I've spent much time looking for any updates! Closest thing I've found is version 11? From: Richard Kratt rkr...@sbcglobal.net To: quadriplegic quad-list@eskimo.com; Monty aa999...@yahoo.com Sent: Wed, October 6, 2010 12:48:05 AM Subject: Re: [QUAD-L] Dragon nightmare! You have installed the 10.2 upgrade I hope? Richard p.s. Just starting with DNS 11 and so far it is wonderful! Hard work spotlights the character of people: some turn up their sleeves, some turn up their noses, and some don't turn up at all. - Sam Ewing Be Kind. Please delete my email address before forwarding. Also, use BCC. Say NO to spammers! --- On Tue, 10/5/10, Monty aa999...@yahoo.com wrote: From: Monty aa999...@yahoo.com Subject: [QUAD-L] Dragon nightmare! To: quadriplegic quad-list@eskimo.com Date: Tuesday, October 5, 2010, 9:39 PM Hello everybody I am in great need of your assistance concerning Dragon NaturallySpeaking 10.0 64-bit running on Windows 7 with plenty of system resources to spare! Sometime in the middle of September while using Firefox visiting certain webpages would lock up the computer and would have to be powered down from the main power switch. After VirusScan and running other programs to repair the PC with no luck finding anything wrong?? I finally figured out it's something to do with the flash player, so I've reinstalled Dragon, Firefox and the flash player still with no sustainable solution. And now even affecting Internet Explorer every once in a while and I can't stand using that web browser. After contacting the flash player company for $40 they may offer me a solution or I could contact Dragon for $10 for a possible solution but no guarantees? I have been only running this setup of Windows 7 since the beginning of June and everything was great until last month. Thanks for any ideas or solutions to this strange problem!
Re: [QUAD-L] Lumbar Support
I have a custom molded back and next week I'm hoping to get evaluated to get another one after having this one for 4 1/2 years. From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Sat, October 2, 2010 9:31:22 PM Subject: [QUAD-L] Lumbar Support Anyone use some kind of lumbar support on your chairs? I tried a few, but they were just too big. So I rolled up a small towel and it did seem to help. It felt a bit strange at first, but it took about 50% of my quad belly away. Just from pasture. Next time I'm at the chair shop I'm going to ask about getting one made. Greg
Fw: [QUAD-L] more about wireless microphones
first of all which operating system are you running under? Just a couple days ago I had some similar problems, but it is due to Windows updates under 7. I had to go to system restore before the updates and then let them reinstall at least three times now! The last round of updates really wreaked havoc and never had these problems with Windows Vista? I am running Dragon version 10 on a 64-bit system with plenty of system resources to spare! From: Dave Krehbiel davekrehb...@earthlink.net To: quad-list@eskimo.com Sent: Sat, September 18, 2010 9:19:09 AM Subject: [QUAD-L] more about wireless microphones In an earlier e-mail, I talked a bit about my frustrations about being hardwired to my computer. Here's another issue: if I try to watch a YouTube video, or if I accidentally visit a website with audio, Dragon NaturallySpeaking tries to interpret the words spoken by the website. Sometimes (particularly if the words are spoken rapidly) my computer seems to use all its resources trying to interpret the spoken words, and so Dragon NaturallySpeaking becomes nonresponsive. I have addressed this by turning the speaker volume way down, and this helps... but I find it best to mute the computer speakers. But this makes it very cumbersome to, say, answer a phone call via Skype. (Skype is great for making outbound calls, by the way...) I would very much like to be able to watch video podcasts and YouTube videos and so forth and retain control of my computer using Dragon NaturallySpeaking. I would like to be able to participate in webinars, and in conference calls using Skype. I plan to research directional microphones. It may be possible to position a directional microphone so that it can pick up my voice from several feet away with minimal interference from the computer speakers and the telephone and visitors... Any ideas or suggestions? Thanks, and take care, Dave Krehbiel
Re: [QUAD-L] Need help with pressure sore info. ( or how to search archives )
yes I'm serious and after many antibiotics and many other treatments!
From: Eric W Rudd c5sc...@gmail.com
To: quadriplegic quad-list@eskimo.com
Sent: Tue, September 14, 2010 11:22:14 PM
Subject: Re: [QUAD-L] Need help with pressure sore info. ( or how to search
archives )
are u serious? a 3 yr old sore on ur elbow?
Eric W Rudd
c5sc...@gmail.com
- Original Message -
From: Monty
To: wheelch...@aol.com ; quadriplegic
Sent: Tuesday, September 14, 2010 10:18PM
Subject: Re: [QUAD-L] Need help withpressure sore info. ( or how to search
archives )
that is partially true but unfortunately I have been spending the last
eight
weeks or so running from specialist to specialists with no definitive
answers! Yes I do go to wound clinic regarding a pressure ulcer near my left
elbow that is now over three years old with no end in sight??
From: wheelch...@aol.com wheelch...@aol.com
To: quad...@gmail.com; ddh...@sbcglobal.net
Cc: quad-list@eskimo.com
Sent: Tue, September 14, 2010 10:07:10PM
Subject: Re: [QUAD-L] Needhelp with pressure sore info. ( or how to search
archives)
Pressure Sores, are a separate practice of medicine. Most doctors and
hospital will outsource their patients to a Wound Clinic with skin specialist.
Most Wound Clinics are not in hospital, but rather next to them or a separate
location. Some may be in hospitals, but not part of the hospital. Thatis
why wound therapy is so different in the medical practice. Similar to
nutritionist, and nutrition.
Best Wishes
In a message dated 9/14/2010 2:44:02 P.M. Central Daylight Time,
quad...@gmail.com writes:
I'm embarrassed to reveal this, but I didn't really know the stages of a
decubitus ulcer. Well, it seems that I had a stage II pressure sore a
couple of weeks ago and I will tell you what I did. 1. I stayed down
until the wound was a stage I that was still blanching. Then I only got
up
for very important things and for a few hours at that. 2. I did exactly
what Steve did, but I didn't leave the legs like that all day long. Then
again you have to remember my ulcer was under the testicles and had
another
small one on the inside of my left leg near where the buttocks and legs
meet. 3. And probably one of the really great things I discovered was
that bag balm can be used on this type of ulcer. We noticed some drastic
improvement right after we started applying the bag balm to the wound.
All
in all the entire process took me about 10 days. I figure that was well
worth the time, because I think if I wouldn't have been aggressive and
prevention and treatment then it would have been gotten much worse
quickly.
Having said all that, if you don't see some drastic improvement in the
couple of days, I would definitely recommend doing what Wheelchair
advised. There could definitely be considerably more problems
underneath
the skin. See you need to heed his advice.
And I do want to thank you all for your advice when I had my problem.
This
is the first time I've ever had a wound in a spot which would prevent me
from getting up. I've had some stage II ulcers on my heels when the
nurses
weren't careful at the hospital, but this was the first time I had any
problems in the area where I sit.
Quadius
On Tue, Aug 31, 2010 at 3:26 PM, Danny Hearn ddh...@sbcglobal.net wrote:
Hello friends--- I know quadius brought up something on this issue
lately
about bedsore issue--today during bowel routine my wifenoticed I have
a
pressure sore about a quarter in size on my lowerleft buttock that is
stage 2, We have only had an issue likethis on my bottom, once ever
before, about a year or so ago but then itwas not near as bad and
only a
dime in size and healed pretty fast. ( bothtimes we think my roho may
have got too low) before Lori and someothers on here told me about
lantaceptic and bag balm...i know that bagbalm is better to use
before
wound gets open I think. Do you guy'sthink cleaning with wound wash
saline then lanaceptic can heal this orknow of any products that are
good? ( I can search the archives, but donot know how//? any
suggestions on product or archive help would beappreciated !!!
{Thanks
so much ! Dan H. St. Louis, Mo. area}
Re: [QUAD-L] Cigarette Lighter Outlet on Chair
my setup is very simple it consists of a moped battery located under my city for just under $50, this cigarette outlet with wires about $7 and a charger from Harbor freight for just under $10! Doesn't that sound a lot cheaper? the funniest thing about my setup the airlines didn't even know it was there! From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Tue, September 14, 2010 8:37:55 PM Subject: [QUAD-L] Cigarette Lighter Outlet on Chair I wanted to get a cigarette lighter outlet on my chair. I called all the chair repair shops around, but no one will do it. I saw one that said it plugged into a wheelchair's charging outlet on a joystick controller, but did not mention what chairs are compatible. $200, a bit high. But my chair will not work if the charger is plugged in. Greg
Re: [QUAD-L] Need help with pressure sore info. ( or how to search archives )
that is partially true but unfortunately I have been spending the last eight
weeks or so running from specialist to specialists with no definitive answers!
Yes I do go to wound clinic regarding a pressure ulcer near my left elbow that
is now over three years old with no end in sight??
From: wheelch...@aol.com wheelch...@aol.com
To: quad...@gmail.com; ddh...@sbcglobal.net
Cc: quad-list@eskimo.com
Sent: Tue, September 14, 2010 10:07:10 PM
Subject: Re: [QUAD-L] Need help with pressure sore info. ( or how to search
archives )
Pressure Sores, are a separate practice of medicine. Most doctors and hospital
will outsource their patients to a Wound Clinic with skin specialist. Most
Wound Clinics are not in hospital, but rather next to them or a separate
location. Some may be in hospitals, but not part of the hospital. That is why
wound therapy is so different in the medical practice. Similar to
nutritionist,
and nutrition.
Best Wishes
In a message dated 9/14/2010 2:44:02 P.M. Central Daylight Time,
quad...@gmail.com writes:
I'membarrassed to reveal this, but I didn't really know the stages of a
decubitusulcer. Well, it seems that I had a stage II pressure sore a
couple
ofweeks ago and I will tell you what I did. 1. I stayed down untilthe
wound was a stage I that was still blanching. Then I only got up forvery
important things and for a few hours at that. 2. I didexactly what Steve
did, but I didn't leave the legs like that all daylong. Then again you
have
to remember my ulcer was under the testiclesand had another small one on
the
inside of my left leg near where the buttocksand legs meet. 3. And
probably one of the really great things Idiscovered was that bag balm can
be
used on this type of ulcer. Wenoticed some drastic improvement right after
we started applying the bag balmto the wound. All in all the entire
process
took me about 10 days. I figure that was well worth the time, because I
think if I wouldn't have beenaggressive and prevention and treatment then
it
would have been gotten muchworse quickly.
Having said all that, if you don't see some drasticimprovement in the
couple
of days, I would definitely recommend doing whatWheelchair advised. There
could definitely be considerably more problemsunderneath the skin. See
you
need to heed his advice.
And I dowant to thank you all for your advice when I had my problem. This
is thefirst time I've ever had a wound in a spot which would prevent me
from
gettingup. I've had some stage II ulcers on my heels when the nurses
weren'tcareful at the hospital, but this was the first time I had any
problems in thearea where I sit.
Quadius
On Tue, Aug 31, 2010 at 3:26 PM, Danny Hearn ddh...@sbcglobal.net wrote:
Hello friends--- I know quadius brought up something on this issue lately
about bedsore issue--today during bowel routine my wife noticed I have a
pressure sore about a quarter in size on my lower left buttock that is
stage 2, We have only had an issue like this on my bottom, once ever
before, about a year or so ago but then it was not near as bad and only a
dime in size and healed pretty fast. ( both times we think my roho may
have
got too low) before Lori and some others on here told me about
lantaceptic
and bag balm...i know that bag balm is better to use before wound gets
open
I think. Do you guy's think cleaning with wound wash saline then
lanaceptic can heal this or know of any products that are good? ( I can
search the archives, but do not know how//? any suggestions on product
or
archive help would be appreciated !!! {Thanks so much ! Dan H. St.
Louis,
Mo. area }
Re: [QUAD-L] flying back east
whichever airlines you have chosen contact their special service department is the first step. Ask for the bulkhead seats or in other words the very first row of coach and depending upon the airplane one side should have three seats which is best for having room to transfer! I have flown five times and have learned something every single time! The ventilator part is going to be the tricky one because you are transferred from your chair to what is called an aisle chair which is only about 18 inches wide before you get on the plane. Also ask their maximum dimensions for their cargo whole my wheelchair even after being broken down has to go in on its side. Now for you and them not to lose legrests armrests or even a headrest if you would go to a place like U-Haul or a good home improvement store they sell an industrial Saran wrap for shipping items. It's about 20 inch long roll with handles on it you put all of the loose wheelchair parts where the cushion was removed where you sit. Going around the chair with that wrap to hold everything in and make sure to indicate which side of the chair it can be laid on its side which I learned this last time. I use my chair cushion from my chair in the airline seat and that also save $25 instead of checking luggage in at the ticket counter high just wrapped it up with my wheelchair. Also you will need to show them how to put the chair in manual mode so they can push it without killing themselves. Have your local wheelchair shop inspect your chair to make sure everything is in good shape and also you have gel cell batteries or the wheelchair cannot fly by federal regulation! Before they transfer you and after you wrap it up you may need these later on to prove to them of any damage while the chair is in their care. You also need to locate a local wheelchair repair shop where you are going as backup, after reaching my destination my wheelchair would not power up after countless calls on my part and on their side we finally found somebody 90 minutes later. The airlines had to transport me across the town and only took over five hours since my landing to finally get me up and running! They had to pay everything and gave me free tickets to fly again within one year. Any other particular questions feel free to ask. Monty of Indiana 3c/4c almost 17 years post injury From: Cullen c3q...@gmail.com To: quad-list@eskimo.com Sent: Fri, September 3, 2010 12:25:05 PM Subject: [QUAD-L] flying back east I have a c500 permobil and am on a vent. We have to fly back east. I have never flown with this chair or this vent, what can I expect from the airline and what should I be doing to prepare. Cullen C3
Re: [QUAD-L] tires
never buy used those things are too cheaply built! Save your money to buy new ones otherwise you will be wasting your money From: gah17...@aol.com gah17...@aol.com To: quad-list@eskimo.com Sent: Fri, September 3, 2010 7:16:03 AM Subject: [QUAD-L] tires Does anyone know of a company selling used Invacare storm 200x50 front wheel caster hubs. Thanks, Glenn
Re: [QUAD-L] Fw: Shoes
range of motion have kept my ankles fairly flexible, unfortunately with my size 13 feet I am always catching them on something! I have had my legrests reinforce many times after breaking off many parts of them and that is also key to proper support for your feet? From: Dadsw Angel dadswan...@yahoo.com To: quad-list@eskimo.com Sent: Thu, September 2, 2010 7:05:18 PM Subject: [QUAD-L] Fw: Shoes My feet go forward meaning more pressure to the top feet leaning to the sides giving me a pressure point on the pinky toe. Has anyone ever had shoes made since my feet dont go at a 90% angle? I am using a splint to try to make my ankle losen up a little.
Re: [QUAD-L] Pain Pump
but there is a level of toxicity with baclofen what happened to me after too much of it! So there is a fine line in between spasms and pain relief? From: Dr. Bo Machado d...@hf-rc.com To: Dadsw Angel dadswan...@yahoo.com; ladyno...@aol.com; quad-list@eskimo.com; tmic-l...@eskimo.com Sent: Tue, August 31, 2010 7:42:54 PM Subject: RE: [QUAD-L] Pain Pump Replacing the pump for baclofen is a much better plan than for pain meds (narcotics). Baclofen does not cause any toletance that I am aware of, and will help you with far less side effects. In Him, Dr M From:Dadsw Angel [mailto:dadswan...@yahoo.com] Sent: Tuesday, August 31, 2010 6:44 PM To: ladyno...@aol.com; quad-list@eskimo.com; tmic-l...@eskimo.com Subject: Re: [QUAD-L] Pain Pump I have a bachoflen pump. I have pain med/bachoflen in it. Last yr i had too remove it for three wks because of a infection from the site. My doc said I could get it back in anytime. I was in a hurry because I had severe with drawels without it in. From:ladyno...@aol.com ladyno...@aol.com To: quad-list@eskimo.com; tmic-l...@eskimo.com Sent: Mon, August 30, 2010 1:02:06 AM Subject: [QUAD-L] Pain Pump I had a baclofen pump removed last September 11, due to complications with it. At the time of removal, I was told that I could not have it put back in. But what I did not know at the time, was that I could get pain medicine put directly into the pump also. Now I'm considering having the pump put back in just for the pain medicine. My question is, has anyone ever had the pump removed and reinstalled? I would normally be concerned about them fooling around with my spinal cord, but I'm already a quadriplegic, completely paralyzed on the right side and minimal, nonfunctional, use on the left side. My only concern would be that they would something affect my brain. Naomi.
Re: [QUAD-L] need advice for a new quad
broadcasting or calling the games play-by-play? Interviewing athletes? Coaching and knew this guy as a quad that coaches gymnastics! Blogging or even a podcast? From: gah17...@aol.com gah17...@aol.com To: quad-list@eskimo.com Sent: Wed, August 18, 2010 7:49:59 PM Subject: [QUAD-L] need advice for a new quad Hello again, After 44 years, I've just about seeing an experienced it all. Our pastor asked me to meet with a young lady who is 22 years old, quad for three years and depressed. She was heavy into sports, now does not see a future. In my opinion her options are limitless, you only are limited by what you think you can't do. Any suggestions for someone that was a sports nut? Thanks, Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582
Re: [QUAD-L] hello from a new participant in Olney, Maryland
well it depends on what your operating system you're on and what is your favorite web browser? I am running Windows 7 ultimate 64-bit edition, Firefox and Dragon version 10. If you are running under Firefox there are countless number of add-ins to grab any information that is being displayed in your web browser window! Now if you want to copy text just drag and highlight and right-click to copy and paste into some other application. Any other questions just ask From: Dave Krehbiel davekrehb...@earthlink.net To: quad-list@eskimo.com Sent: Tue, August 17, 2010 9:45:20 AM Subject: [QUAD-L] hello from a new participant in Olney, Maryland I'm a new participant in the forum from Olney, Maryland. I was injured in an accident at the beach about three years ago, and I'm now a C4/C5 quadriplegic. It sure is nice to find a forum dedicated to quadriplegics. I can imagine that being a paraplegic is a devastating and life-changing injury, but it seems to me that quadriplegics face problems of an entirely different magnitude. I have two primary areas of interest: Support for Dragon NaturallySpeaking. I am currently using Dragon NaturallySpeaking 10, and it works pretty well for most things, but I have questions from time to time. For example, does anyone know how to copy a block of information from a website and paste it into a document using Dragon voice commands? Quality of life issues. So many of the organizations which help those with spinal cord injuries seem to focus on basic health needs and research and things like that. I am considering starting an organization which would focus on quality-of-life issues only. It is nice to stay alive... but it might be nice to have some fun too. Are you aware of any organizations which focus on quality-of-life issues for quadriplegics and their families? If I were to start such an organization, would that be of interest to you? Thank you, and take care, Dave Krehbiel
Re: [QUAD-L] Cigarette Charger
yes I do it's a scooter battery neatly tucked between my frame under my seat! Besides that outlet, it is mainly for my air horns which are intended to be mounted on a motorcy...@137 dB think people here me? That outlet is also used to charge the battery. I have a Ranger x with tilt seating, my level of injury is c 3/4 complete and to activate my horn auxiliary switch custom-made with abs plastic mounted on my control tube. It is wonderful to have friends that that can make custom electronics and other fabrications if you would like photos just ask From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Wed, July 28, 2010 8:52:40 PM Subject: [QUAD-L] Cigarette Charger Anyone have a cigarette lighter outlet on your chair? Or even a regular plug outlet. I think it would be cool for little things. My phone can use up it's battery pretty fast. There is an electric coffee cup that will keep hot if plugged into a lighter outlet. Or an electric blanket on cold nights out. My chair repair shop wont do it, but the one here says it can plug into your chair's charger's plug-in. $200 is a bit much. But a great idea. http://www.broadenedhorizons.com/chargingsocketpower.htm http://www.broadenedhorizons.com/mobilepower.htm Greg
[QUAD-L] quality
super pubic catheters are excellent solution to greatly reduce infections and other complications! 26 French with a 5 mL balloon that I've put in 10 mL 16 1/2 years post injury.
Re: [QUAD-L] Regarding... In Bed Again
highlight the text and then say read that if you have any other questions just e-mail me From: Dan d...@unh.edu To: daa...@aol.com; quad-list@eskimo.com Sent: Tue, July 13, 2010 8:14:53 PM Subject: Re: [QUAD-L] Regarding... In Bed Again How do you use Dragon Dictate to 'read'? I have DD but I don't see an option for reading text. Dan At 03:13 AM 7/13/2010, daa...@aol.com said something that elicited my response: I also use my Dragon dictate program to read anything I type or copy from a website or whatever. I could also use my Dragon at the same time on the computer while the audible is running. Dana audible.com
Re: [QUAD-L] Regarding... In Bed Again
I have an alternating air mattress on a hospital style bed for quite a few years and seems to be working wonderfully! After getting tipped over two weeks ago tomorrow and now waiting for the repair shop to get my armrest! First they could not figure out where they came from and then finely they found them. What do you do with extended time in bed? Not a TV fan and the computer can get pretty old after a certain number of hours! No idea upon my chair'sreturning From: Danny Hearn ddh...@sbcglobal.net To: wheelch...@aol.com; quad-list@eskimo.com Sent: Mon, July 12, 2010 4:24:55 PM Subject: Re: [QUAD-L] Regarding... In Bed Again Why a full Wheel?? that is one thing I was wondering about---Right now I sleep in bed beside my wife on a regular queen bed, she turns me once or twice a night, but my circulation is slowly getting worse and turning me is hard on her. I'm not sure if I may need to go in a hospital bed eventually--would be nice to be able to have a bed that could let me set-up in bed (adjustable) We are wondering if I get a alternating air mattress for just my half of the bed , if that would work?? thanks, Dan H. From: wheelch...@aol.com wheelch...@aol.com To: quad-list@eskimo.com Sent: Mon, July 12, 2010 3:13:00 PM Subject: Re: [QUAD-L] Regarding... In Bed Again Make sure its a full bed cushion and not a 1/2 bed air cushion. Best Wishes In a message dated 7/12/2010 3:11:29 P.M. Central Daylight Time, ddh...@sbcglobal.net writes: Lori--when in bed that long do you use a regular bed mattress or an alternating air type? My circulation is getting worse so my DME is looking into getting me an alternating air mattress, my insurance makes me pay 20% out of pocket so I guess this will be added to the $2,700 dollars i'm paying payments on for my out of pocket money on my new wheelchair that I had to get a few months ago. Hope ya get completely healed ! Dan H.* From: Lori Michaelson lorilivin...@gmail.com To: bobbie...@aol.com bobbie...@aol.com; quad-list quad-list@eskimo.com Sent: Mon, July 12, 2010 1:56:04 PM Subject: [QUAD-L] Regarding... In Bed Again I have been in bed 24/7 for the last 3 months and one week (yup, you start counting the days and weeks) and my wound has closed. But it is super super vulnerable so I'll be sitting up in bed for X-number of weeks before I graduate to getting back in the chair as well as getting the proper seating (wheelchair cushion and perhaps a new power chair after 11 years). Lori -- Lori Age - 45 C4/5 complete quad, nearly 31 years post Tucson, AZ
Re: [QUAD-L] Anniversary
why don't you want to try a muscle flap? I had one almost 7 1/2 years ago with excellent results after six weeks in bed but it's rock solid ever since then! I am nearly 16 1/2 years post injury C3/4 complete spinal cord injury. Get some second, third or even fourth opinion if necessary from whatever specialists you have to find! That's what I'm doing right now regarding a bone infection nearby left elbow. From: ladyno...@aol.com ladyno...@aol.com To: quad-list@eskimo.com Sent: Fri, July 2, 2010 5:08:55 PM Subject: [QUAD-L] Anniversary Today, July 2, marks the five-year mark of being stricken with Transverse Myelitis. I am celebrating it by being bedridden, nursing two pressure sores. Have you ever tried lying on one side, for days at a time? It causes me to have claustrophobic anxiety attack , but it is quite necessary to avoid flap surgery :-( Naomi, C-4 Quad due to Transverse Myelitis since July 2, 2005
[QUAD-L] stupidity
hello and hope everybody is having a good day. My yesterday could have been better after approaching a four-way stop and proceeded to cross the street the car on my left stopped and unfortunately the other vehicle rolled through without stopping! The only recourse I had was to swerve to my left to let the truck the rear portion of my chair and essentially and tip me over pretty hard on my left shoulder! It took both my armrest off and thank goodness for a good chest strap which I think kept me from hitting my head. My stupid small-town so many of these four way stops is almost stupid besides the roundabouts? So having a chair that can protect you in any form is a great necessity and not looking forward to any more accidents. Just last week somebody ran a red light right in front of me thank goodness I noticed them because they were going 30 mph so please be careful and look multiple times before crossing the street especially major intersections. Besides my bruised shoulder and somewhat of my back being a little sore considered myself pretty lucky.
Re: [QUAD-L] URGENT INFO. NEEDED FROM QUADS IN ARIZONA, NEVADA, AND UTAH
whatever city you want to narrow it down to go to the local website and look under residential most likely at the top of the page. And should somewhere on that list should list of medical services available in that area. From: donald scott rollingl...@yahoo.com To: quad-list@eskimo.com Sent: Fri, June 18, 2010 10:04:51 PM Subject: [QUAD-L] URGENT INFO. NEEDED FROM QUADS IN ARIZONA, NEVADA, AND UTAH Hello Quadsters, I cuurently live in So. Calif. and might need to move in with family in one of the following states Arizona, Nevada, or Utah. If you live in any one of these states I need to know how you get by. What type of medical programs do you use? Like here it's Medicare and Medical. What type of caregiver programs do you have? Here it's In Home Supportive Services. What type of housing programs? Here it's Section 8 housing. Any type of info. or numbers would be very much appreciated. Thanks group, Donald C5-C6 Complete 20 years post
Re: [QUAD-L] troubles
I have gotten one every time I get a new chair it just has to be included with all the other necessities of the chair.the main reason why I get one of my previous model had repetitive programming issues! That was on Invacare with Mark 4 electronics and especially necessary when the wheelchair shops not open especially on weekends! Somehow they word the prior authorization to Medicaid and Medicare to justify it. From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Tue, June 15, 2010 8:35:06 PM Subject: Re: [QUAD-L] troubles Anyone buy or find the little computer device the repair shops use to adjust your chair's computer? I'd love to get one. I almost had one once when the repair guy left it in the room at the shop after he left, but I was honest. Now I wish I would have taken it. Greg
Re: [QUAD-L] Permobil RS/ C500
my Invacare did the same kind of thing but it would stay powered up but had to be turned off and back on to reset it. Just last year after three years of uncertainty I can now power down my own chair and started back up again. It's a little black box not made by Invacare or supported by them as just a simple switch on my sip and puff control tube. I would have to ask my repair shop who makes the box and besides that a couple months ago I had a friend install some air horns that get anybody's attention within about a half a city block or more! One time I stalled out on the railroad tracks with a freight train coming and fortunately there was a police officer right behind me to help push me off the tracks! From: Quadius quad...@gmail.com To: Billy Lang blan...@verizon.net Cc: quad-list@eskimo.com Sent: Tue, June 15, 2010 8:59:35 PM Subject: Re: [QUAD-L] Permobil RS/ C500 I don't know what type of seating system I am using, but I am using a C3 50. I'm also having difficulty with my chair after only 3 1/2 months of use. Unfortunately mine is intermittent problem. Yesterday while I was out riding around my half mile loop, my Permobile just simply up and stopped. The computer shut down and I had no way to turn it on. Thankfully one of my neighbors happen to step outside her house after I had been sitting there for 10 minutes. They only needed to hit the button again in order for the computer to boot back up, but this is really dangerous. Sorry I couldn't help. On Tue, Jun 15, 2010 at 6:44 PM, Billy Lang blan...@verizon.net wrote: Hi Guys, I’ve have a C500 Permobil with an RS seating system. I was wondering if anyone on the list is currently using this unit, (either RS seat or C500)? I am having difficulties with both, after a year of use. Don't let what you cannot do interfere with what you can do. Billy
[QUAD-L] troubles
switches later I thought they were picking on my chair today and my local repair shop did not think they only had one day to repair or diagnose what was wrong with my chair. I was already scheduled for tire replacement which the rear tires I go through in less than six months. Any repair shop taking more than a few days is absolutely ridiculous and not understanding the need for our equipment. Besides the chair problems I came home to computer problems and crashed Windows Vista ultimate and now running Windows 7 ultimate with Dragon 10.0 64-bit edition. Which is working out pretty good for the moment except for some screen resolution issues and sorry about the length of this post but just thought very informative to other individuals in our situation. Monty of Indiana c3/c4 nearly 17 years post injury
Re: [QUAD-L] Quad Belly
amen to that one! I am starting to feel the same way about nine months ago at 16 1/2 years post injury it really does look like a Goodyear blimp? - Original Message From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Sun, June 6, 2010 8:04:02 PM Subject: [QUAD-L] Quad Belly My quad belly seems to be growing no matter what I do. It looks like if you poked me I would pop. I'm not over weight, fairly skinny arms and legs. I've been working out and watching what I eat. I feel like I'm pushing my stomach out trying to make myself look pregnant. But my belly is getting uncomfortable, when I try to bend forward, etc. I wish those Ab Belts that shock your muscles to tighten would work, but I heard they don't. It would be great if a doc could just go in there and tie every thing back up. I feel like all my inside stuff is lowering out of place. Even my abdomen binder does not help hold things in place. Greg
[QUAD-L] peebody
I'm 16 1/2 post injury and six months after my accident my urologist strongly suggests that that I get supra and has been rock solid for the most part every since then! The only reasons that I might have got a UTI is not drinking enough water or due to other illness. One thing I have not heard discussed before is getting your catheter flushed out on a regular basis now to my old school urologist he strongly recommend that this using an acid-base solution retained in the bladder for about 10 minutes. Also nobody has mentioned any proud flesh around the catheter site is very common with this type of catheter and use silver nitrate to reduce it.I am 3/4 complete level injury and have been doing this 16 years can't be going wrong. Besides my current urologists is a cancer research type of individual and likes to take a scope about everyone a half years to make sure everything is checking out on the good side. Yes state insurance money covers all this, having individuals using alcohol wipes when changing over from one bank to another is another way to reduce infections
Re: [QUAD-L] 2nd time posting here
keeping active mentally it's also very essential and after my workplace only employees me one day a week I had to find something else to fill my time!that is why I volunteer at an elementary school five days a week and since physically exercise an option but just cruising through the neighborhood or wherever will make you feel much better no matter the season! 16 years post injury and constantly getting repairs done to my chair is testimony of that? - Original Message From: Aaron Mann aman...@gmail.com To: karan alexander kabea...@optonline.net; quad-list@eskimo.com Sent: Fri, May 14, 2010 7:20:19 PM Subject: RE: [QUAD-L] 2nd time posting here I distinctly remember being tired and COLD the first 5 to 10 years. I don't really think diet is the only issue. Although, do not expect to eat as much as you did prior to your injury. If you do, be prepared for a tractor-tire around your mid-section. I remember my Dr.'s saying that my body was still adjusting to being in a sitting position all day. That the brain is not used to being at a physical state-of-rest 24/7. (exercise greatly helps) Are you cold a lot? I know that if I am in a room below 78 for too long, them it takes a looong time to get back to feeling warmly comfortable again. I remember many many hours basking in direct sunlight the first many years post injury. Sorry, no magic potions in this world. You'll find each of us here had to discover our own rituals. Fun part is that while no one here has the same rituals, none contain unique parts. So, listen and try things you hear here. Stick with what works for you. God bless, Aaron Mann C4-5, 1988 -Original Message- From: karan alexander [mailto:kabea...@optonline.net] Sent: Friday, May 14, 2010 5:18 PM To: quad-list@eskimo.com Subject: [QUAD-L] 2nd time posting here Thank you for responding to my initial post, it feels encouraging to know I'm not the only one out here (even though I feel like it). Is it common to chronically feel tired, I don't eat right I know that does not help - it's dinner time I've had a bananna, a coke a handful of popcorn. I'm also trying as of today to wean myself from fentanyl patches (not happy so far). Anyway, does anyone find any vitamins, shakes, protein bars, etc. to be helpful? I'm looking for a magic potion... Thanks
[QUAD-L] regulatory : (
I am planning to visit my family in Tucson Arizona the first week in June and currently live in Indiana. I have lost track of the number of e-mails and phone calls in regards to finding some personal care during a visit! After a e-mail campaign this morning, one of the agencies informed me of a huge stumbling block in regards to hiring any agency in the state of Arizona without a local physician of the state no care can take place! I was already planning to pay out of pocket for the care, but without my family stepping up to the plate and no volunteers to speak of either?? Churches or nonprofit organization and even nursing schools have come up with nothing. I'm not respiratory dependent or critically ill,just a simple bed Bath and a suppository every other night. My next plan of attack is craigslist or finding a hooker on the street corner without the bureaucracy? Knowing my luck I would pick up a undercover officer and then the jail would have to worry about my care. I'm only talking a one-week visit and my family are just idiots for not helping out. Any ideas would be greatly appreciated especially those individuals based in Tucson. Thanks
Re: [QUAD-L] Unidentified subject!
with sip and puff control you just have to make sure you don't lose control of it or come apart some bizarre way! Condensation during the winter months is truly a pain especially entering and exiting from hot to cold it gets pretty tricky at times. It's part of living in northern Indiana and wanting to keep active no matter what the weather is! If I could have my friends good hook me up with air horns constructing a small flat form would not be difficult by any means just need some dimensions? - Original Message From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Sun, April 25, 2010 2:54:27 PM Subject: Re: [QUAD-L] Unidentified subject! My TDX5 says it goes 7.5 mph. I go full speed any time I can, sidewalk, store isles, house hallways, trails walking the dog, etc. I too had the stopping speed slowed down so it does not stop real fast. My hand sometimes slips off the joystick, and I would tip forward from momentum. Now I always wear my chest strap whenever I go out alone. I want a 21st Century Bounder that can go 11 mph. I had one as my 1st chair 28 years ago. I don't like the large rear wheel, it's not as agile as my mid wheel TDX5, but I just love the faster speeds. It's better looking now than it was back then, but still not as nice looking as the TDX series. You really need rear wheel drive if you go over 7.5, or you can start to wobble a bit and fish tail. I think you get use to the speed Chairs need a small platform on the back of the chairs that flip down for those who accompany us in chairs to stand on. It could have little castor wheels to hold the weight. I've thought of going in to a motorcycle shop to see if they could make something like that. SPEED SPEED SPEED, Greg Do you guys who like speed really go full speed anywhere except on a city street?I have a TDX5 which claims 6.5 mph and wide open, my son has to trot rather fast to keep up with me. I feel VERY unstable anywhere except on a very flat paved surface. I also feel rather confident that if I just dropped the joy stick while cruising at full tilt, I'd likely be dumped out on my face.I don't hardly ever use highest speed. AZDAVE I hate when I just miss a call by the last ring (Hello? Hello?), but whe
Re: [QUAD-L] drainage bag tubing
it's not recommend it to keep any drainage bags or tubing more than about 10 days. At least from my physicians and besides any longer than that they begin to have a odder and they smell horrible! Thank goodness my insurance company covers my supplies especially since my urologist said it was medically necessary. I have super pubic catheter and using9 inches extension tubing to get my leg bag below my knee and I am 6 foot tall. I use 1000 mLsize bag that gets me through more than six or eight hours. This is my idea and my thoughts regarding this. http://www.shopwiki.com/_10+Medline+Lipo-Suction+Clear+Vinyl+Tubing%2C+10+Ft?o=264356759s=274506; the search terms that I use leg bag extension tubing by the roll http://info.com/ it's one of my favorite search engines! Good luck and take care from Indiana From: Derrick whe...@cvn.net To: quad-list@eskimo.com Sent: Tue, April 13, 2010 10:18:01 PM Subject: [QUAD-L] drainage bag tubing I wear a leg bag. I need tubing to connect catheter(texas) to leg bag. I have long legs and dealer keeps sending 18 lengths that are too short. Plus the hose gets flimsy after a few weeks. It kinks easy then. Where can I buy 50 foot rolls? What kind of hose lasts atleast 1 month? Thanks, Derrick W ps: if you reply -do not worry if you get a spam message. i'll get your reply. i get messages from quad-list with no problems.
[QUAD-L] reality check?
so if Social Security goes belly up say by August would the federal government be ready for all of the disabled and senior citizens march into the emergency room because we have no money for our monthly expenditures?? Who would call adult protective services because we didn't have our medications or our housing? Talk about a nightmare now I can understand say starting in January of 2011 there might be some more restrictions or other cutbacks! I don't think very many of us would be living without some of our daily medications or medical care which we require every day of our lives? If you really want to know some answers contact your political figures in your given area? Thanks for listening from Monty of Indiana
Re: [QUAD-L] Baclofen pump
I am 16 1/2 years post injury at 3/4 complete and take baclofen three times a day with pretty decent results! Another part of spasms is the lack of range of motion and I do range of motions almost everyday and sometimes twice. Being 6 foot tall personal-care would be almost impossible without it and to keep myself in my chair without finding somebody all of the time to put it back up a limb or two. I have gone a few days without them and then takes another 3 to 4 days to get my muscles to relax once again. I think changing positions either in bed or the chair can assist in cutting down the number of spasms. I have a tilt system on my chair and alternating air mattress on my bed. This is what works for me and like always we are all different in many little ways! Your friend of Indiana From: Sharon Hiatt roo...@verizon.net To: quad-list@eskimo.com Sent: Tue, March 9, 2010 2:50:18 PM Subject: [QUAD-L] Baclofen pump Hi everyone. I haven't been on the quad-list for years but am back to get info positive/negative from anyone who has/had a baclofen pump. I'm 10 years post after a run-in with a kangaroo, paralyzed at C5/6 and my spasms have gotten bad enough that pills aren't working anymore. Appreciate hearing from anyone, Rooby
[QUAD-L] Road warrior!
I am somewhat of a dilemma on deciding in regards to my new power chair late this year. I am currently in my third Invacare power chair rearwheel drive with gearless brushless motors. Living in northern Indiana with the wildest weather extremes and will not take a little snow caused me to stay home unless it's to deep. My last chair before this one electronics seem to be bulletproof, accepting bone jarring miles of travel sometimes over 10 miles in a single day! Six months in the ownership I started experiencing mysterious electronic problems which manufacture still hasn't figured out in the last four years.the chair would just stall and had to be manually turned off and turned back on by somebody else other than myself. After countless calls to my service center and the manufacturer resulting in no definitive answers! This situation truly got scary one time while crossing some railroad tracks and it stalled out just about the time the crossing arms were coming down. Looking over my shoulder with a westbound train only blocks away, heaven help me there was a state trooper who was just behind me to get me rolling again! Every piece of electronic box or parts have been replaced more than one time without solving the problem. After changing my service center they were able to wire in a non-Invacare reset switch so I can power my chair on an off without any assistance. I am 3/4c level injury and extremely active outside of my four walls. I volunteer at an elementary school five days a week and have a paying job at target on Saturdays. So having a dependable and reliable chair is absolutely key to my lifestyle. I have lost count on how many days that I have spent in bed because of this hunk of junk chair and will never own another Invacare chair again. Having the combination of long-distance travel and excessive amount of torque when necessary to climb over unknown obstacles. Potholes in this community are everybody's springtime favorite, besides those old famous cobblestone road that still exist out there. I have a sip and puff control, with the tilt system that seems to be a good combination for my 6 foot 175 pound body. Right now I'm going through another redesign on my leg rest still not strong enough to resist all of those things I seem to be bouncing off. Having about 10 hours or so up in my chair on a daily basis helps to keep me healthy both mentally and physically. Yes I've had issues with breakdown a time or two but that's just part of being disabled. Even with my worse cases of pneumonia getting up in the chair helped to speed up my recovery time. I don't mind taking extra medication to help out fighting against those sickly little bugs and absolutely swear by taking zinc once a day. Haven't a single day of school because of and think that says something? Sorry this post is so long but just been watching for the last few days of everybody's concerns and issues. Take care my dear friends
Re: [QUAD-L]
well don't feel bad, I just got booted by my agency because I offended 40 some of their workers that refuse to come back to my case? Their office management was a complete nightmare anyway and you can never tell when I had coverage or not! I just happen to hear a name of an agency by word-of-mouth and now have them. It seems their office management is much better and time will only tell how the aides will work out. You signed up with real services or any other state agencies would contact your case manager if you have one. Thank goodness I have a live-in roommate and another good friend for backup. Has anybody ever heard a public partnership program? It's a state-funded program at least in Indiana to pay individuals i.e. family or friends to assist you in non-skilled care. I have been with this program for nearly a year and is absolutely wonderful especially since I don't have that out-of-pocket expenditure. Good luck with your replacement search. My dear friend From: Ismael ismael.cava...@att.net To: quad-list@eskimo.com Sent: Thu, February 25, 2010 8:49:22 PM Subject: [QUAD-L] High my friend. I got a question for you, I hope you can help me. I have a home help agency I been with them. Three years today they told me. I have only two weeks left with them I asked them why they told me they could not provide my beads. Anymore, because I am connected to a respirator. I couldn't believe what I was hearing. They told me to find another agency. I caught advocacy. They told me they cannot help me. I told my caseworker about it. She agrees with me that it is not right. What they're doing to me. So I was wondering if you have an idea that you could share with me
Re: [QUAD-L] Naturally speaking version 10
Dragon 10.1 For Windows Vista 64-bit edition! http://wcarchive.cdrom.com/pub/scansoft/DragonPreferred10.1ENX_078.exe This was a true pain to locate this file download which is extremely large and installed beautifully. After multiple rounds their website I just e-mailed technical support and they gave me this link which is free. Does anybody have any difficulty using Windows Vista? The Dragon NaturallySpeaking preferred is the only interface I have with a computer and for the most part has been rock solid for just over three months. My computer system is custom built from the ground up with plenty of memory and processing power since Vista is a memory hog! If anybody is having difficulty please let me know and maybe I could help you resolve your problems with software or hardware issues. Take care my dear friends From: Steve Oldaker steve.olda...@comcast.net To: Steve Crowder dangerwo...@san.rr.com; Quadius quad...@gmail.com; quad-list quad-list@eskimo.com Sent: Sun, February 14, 2010 8:16:13 AM Subject: RE: [QUAD-L] Naturally speaking version 10 Nick, Dragon NaturallySpeaking 10.1 contains quite a few bug fixes for version 10.0 as well as a few new features. I'm almost certain that if you own version 10.0 you can upgrade to version 10.1 for free. You can check at nuance.com for details. Steve - C4, 21 years From:Steve Crowder [mailto:dangerwo...@san.rr.com] Sent: Saturday, February 13, 2010 8:42 PM To: Quadius; quad-list Subject: Re: [QUAD-L] Naturally speaking version 10 Yes, it is much better, except for all the millions of error messages. They now have Dragon 10.1 out. Has anybody tried it yet? If so, is it better than 10.00 which is working really well. Thanks, Nick - Original Message - From:Quadius To:quad-list Sent:Saturday, February 13, 2010 5:30 PM Subject:[QUAD-L] Naturally speaking version 10 Hey there guys, I finally managed to get version 10 of NaturallySpeaking. I have been using the professional for a long time, but decided to go with the preferred since I use my mouse stick in combination with my trackball for a lot of my maneuvering around the screen. I have been very satisfied with it so far. Others may not notice it, but I have seen a significant increase in the inaccuracy over 9.5. The only training I did was reading the Kennedy inauguration speech and then I let the software check my documents. I just started dictating after that and it's been much more accurate than all of my other versions of this stage of the game. Quadius
[QUAD-L] Southwest
does anybody live in Tucson Arizona, that has a hi top van? If so I am coming to visit and need some transportation at a reasonable rate. Will pay for use of vehicle of whatever you think is reasonable. It will be in the first part of June for a one-week and will not need to keep completely that whole time. Thank you for your consideration or any ideas of some organization. From Monty of Indiana
