Dear Shelly and Family,
My deepest condolences on Marty’s passing. As so many of us in the group have
expressed, Marty was our head cheerleader, a constant source of inspiration,
support and love. He gave us a roadmap to navigate not only our illness but,
more importantly, our lives. And he sha
Marty,
Such a beautiful story which brought me to tears. Thanks, as always, for
sharing. By the way, you aren't in Miami now are you?
Marcie
Sent from my iPad
> On Sep 7, 2017, at 9:11 PM, Marty Gartenberg wrote:
>
> Joyce, Jeanie and everyone here,
>
> I learned something a very long time
d-bearing
> age, menstrual periods have resumed with Epogen treatment. Therefore, it may
> be possible to become pregnant while using this medication. Discuss the need
> for birth control with your doctor. It is unknown if this drug passes into
> breast milk. Consult your doctor befor
Does anyone receive erythropoietin injections such as Procrit to combat
decreasing red cells? If so, any side effects and how often do you need the
injections?
My red cells keep bottoming out and erythropoietin has been recommended with
caution. I have some concerns about the risks, although I
Congratulations, Richard, and thanks for sharing! It's always a pleasure to
hear such good news.
Marcie
Sent from my iPad
> On Aug 28, 2017, at 11:54 PM, bkbarney via CMLHope
> wrote:
>
> Thanks for sharing such good news Richard. I am very very happy for you, No
> news here.. going next w
Suzie, please accept my condolences on the loss of your beloved mother. I'm so
sorry but I'm sure that your wonderful memories will be a comfort and blessing
to you always.
Marcie
Sent from my iPhone
> On Nov 27, 2016, at 8:17 PM, Suzieq wrote:
>
> Hello to my CML Survivors!
>
> Hope ever
I'm here, just not been posting. Haven't seen anything from Marty in quite a
while. Hope Marty and all of the group is enjoying end of summer and doing
well.
Marcie
Sent from my iPad
> On Sep 6, 2016, at 12:16 AM, 'rszim0...@aol.com' via CMLHope
> wrote:
>
> I'm here but on vacay til the 1
Greenie, I am so deeply saddened to hear about Derek. Please know that you and
Grace and your family are in my thoughts and prayers. May your memories of
Derek sustain you in the days ahead.
Much love, Marcie
Sent from my iPad
> On Jun 13, 2016, at 10:52 PM, Myvety2k via CMLHope
> wrote:
>
Marty,
Hope you are feeling well and on the mend. You are quite the warrior!
Marcie
Sent from my iPhone
> On Jun 13, 2016, at 9:23 PM, Marty Gartenberg wrote:
>
> Hi Jeanie and everyone else.
>
> Just to let all of you know I had to go to the hospital for an infection on
> the lower part o
Beth, yes, a long time since you've posted. Please let us know your results.
Sending prayers and hugs.
Marcie
Sent from my iPhone
> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope
> wrote:
>
> Thank you Richard for your kind words and prayers. They are always so
> appreciated. You are suc
d
> shall have wonderful peace." Ps.37:11
>
>
>
> On Friday, April 29, 2016 'Marcie Goodman' via CMLHope
> wrote:
>
> Hi Friends,
>
> I've been off line for a bit. My husband was hospitalized beginning of
> January for a week due to numerous
Jim, God Bless to you and your family. Your son is lucky to have such loving
and devoted parents.
Marcie
Sent from my iPhone
> On Apr 30, 2016, at 8:40 AM, 'Jim Sago' via CMLHope
> wrote:
>
> Alan has CML since September of 2001 and is doing well with Glevleec (I'm not
> sure of the spell
Hi Friends,
I've been off line for a bit. My husband was hospitalized beginning of January
for a week due to numerous falls. He has early stages atypical Parkinson's or
something similar. In March I was hospitalized for bottomed out hematocrit.
Then 10 days ago he had a stroke While in Johns H
gt; Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
>> On Mar 26, 2016, at 1:26 PM, 'Marcie Goodman' via CMLHope
>> wrote:
>>
>> Angie, what a
gt; Anyway, Life is good. No complaints.
> Angie in Canada
>
>
> From: 'Marcie Goodman' via CMLHope
> To: cmlhope@googlegroups.com
> Sent: Thursday, March 24, 2016 5:07 PM
> Subject: Re: [CMLHope] To Susan Zimmerman
>
> Susan, as always, I have you and R
on here! Keep us updated!!!
>
> 18's and fight on,
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and
> shall have wonderful peace." Ps.37:11
>
>
>
> On Thursday, March 24, 2016 'Marcie Goodman&#
good luck off meds. Hang in there and fight. Blessings
>
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffit
Susan, as always, I have you and Roy in my prayers. Please let us know how your
test turns out.
I just got out of hospital because my red cells bottomed out and I became very
sick. So some transfusions and several days later, just came home. I will be
undergoing more tests, might have gallblad
Perry,
I have not but just want to wish you well. Please keep us updated because we
look out for one another.
Marcie
Sent from my iPhone
> On Jan 6, 2016, at 7:05 PM, Perry Israel wrote:
>
> I've been lurking on the list for quite some time, and thought I would seek
> some advice. I've be
Richard, that is very good news. Let's hope the hem stays at that level or
better. So glad to hear your wife is doing well. Take care!
Marcie
Sent from my iPhone
> On Oct 7, 2015, at 12:01 AM, Richard H wrote:
>
> All is good at this house. Saw Kidney Dr. and my tests have improved the
>
Joyce, we love you, too! So glad you don't need chemo or radiation. Please
keep us updated. Would you be willing to send your address? You can send it to
me at margoo...@aol.com if you'd like. Stay strong and I'm just so thrilled
that you are doing well.
Marcie
Sent from my iPad
> On Oct
9:13 PM, ANGELYN ESDERS wrote:
>
> Thanks, Marcie!
> Sorry to disappoint, but I have felt no changes at ALL! After the first few
> months, Gleevec had no negative impact on me. I just feel fine, lots of
> energy, no muscle cramping.
> Long may this continue~~~~
> Æ
>
>
Angie, wow, this is great news! I imagine you feel very different. Can you
share some of the changes being off Gleevec? Keep up the good work!
Marcie
Sent from my iPhone
> On Sep 29, 2015, at 8:18 PM, ANGELYN ESDERS wrote:
>
> After 14+ years, I have been off Gleevec for 3 months.
> So far,
Congratulations Suzieq! What a relief for you. Keep up the good work.
Marcie
Sent from my iPhone
> On Aug 14, 2015, at 8:27 PM, Suzieq wrote:
>
> To my CML Survivors:
>
> Just wanted to let everyone know that my BCR-ABL results came back and I am
> once again "none detected"...I'm so v
Richard,
Thoughts and prayers coming your way for the RBC counts to rise quickly.
Sometimes I feel like a yo-yo the way my counts rise and fall. Take good care.
Marcie
Sent from my iPad
> On Jul 18, 2015, at 12:26 AM, Richard H wrote:
>
> After all the weeks working to get my RBC up to 12.3
Marty, when did that happen? I hope you are feeling well and I'll be saying
prayers for you. Please take good care. Hugs to you.
18s
Marcie
Sent from my iPad
> On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wrote:
>
> Hi. Susan
>
> unfortunately i had a stroke. getting better.
>
> 18's
Hi Susan,
My favorite is Psalm 121 but I love all of them. There is a custom in Judaism
that psalms be recited at the bedside, in the synagogue and home for one who is
sick or in some other need. It is interesting how so many of us find comfort in
these ancient words.
My best to you and Roy.
Joyce, so sorry to hear about your new battle. You and your husband will be in
my thoughts and prayers. Please let our group know how your husband's
appointment goes and also how you are doing too. God Bless and stay strong.
Marcie
Sent from my iPad
> On Jun 19, 2015, at 11:54 PM, Joyce Mesna
Jeanie, I'm so happy for you! Stay well. Marcie
Sent from my iPad
> On Jun 18, 2015, at 7:19 PM, Marty Gartenberg wrote:
>
> Hi Jeanie,
>
> That is some really great news. Keep up the effort. By the way are you PCRU?
> If so then for how long and is your doctor thinking about you going off
Great news, Richard! Keep up the good work. Marcie
Sent from my iPad
> On Jun 8, 2015, at 11:59 PM, Richard H wrote:
>
> Hemoglobin is climbing without the shot now at 12.4. YEAH!!! The CML was
> just dropped to .03% as of last Tuesday. So all is well here.
>
> 18's
>
> Richard H.
>
Good luck.
>
> Prayers & Blessings Jeanie 🐟🐟18,s
> Dx 1/2004
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
>
>> On Jun 6, 2015, at 11:18 AM, "'Marcie Goodman' via CMLHope&qu
Sorry for typos on 1st email. "On Gleevec" and 600 mg! Chemo Brain.
Sent from my iPhone
> On Jun 6, 2015, at 11:14 AM, 'Marcie Goodman' via CMLHope
> wrote:
>
> Thanks, Beth and Jeanie. After 6 years o Gleevec, I've gone out of PCRU and
> the numbe
Beth, you are an angel. Marcie
Sent from my iPhone
> On Jun 6, 2015, at 12:16 AM, bkbarney via CMLHope
> wrote:
>
> Dear Angie,
>
> I am so sorry you are having such trouble with your counts...I feel for you
> and know the fear involved when people say to you " I don't know what to do
> wi
n ?
>
> Prayers & Blessings Jeanie 18,s
> Dx
> 1/2004
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel
> 11/2009
> Started Ponatinib January 2015
>
> > On Jun 5, 2015, at 11:01 AM,
> "'Marcie Goodman' via CMLHope&qu
I'm waiting at the hospital for blood work for CBC and bone marrow work.
Sent from my iPhone
--
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To p
Beth, hugs and prayers to you and your dog. Hope she's getting stronger every
day.
Much love,
Marcie
Sent from my iPad
> On May 24, 2015, at 11:01 PM, ANGELYN ESDERS wrote:
>
> I am so sorry that your dog was attacked and brutalized! We love our dog like
> a 3rd child and hate so much to s
Happy, happy birthday dear Marty and Shelly! Thanks for all of the
encouragement you give to all of us.
Jeanie, so glad you are doing well. Much love to everyone in our group.
Marcie
Sent from my iPhone
> On May 21, 2015, at 5:54 PM, Marty Gartenberg wrote:
>
> Hi Susan Zimmerman.<360.gif
Marty, sorry you've been through such a painful time but so glad you are doing
better. Thoughts and prayers are with you.
18s
Marcie
Sent from my iPhone
> On May 5, 2015, at 2:51 PM, Marty Gartenberg wrote:
>
> HI Suzieq
>
> From my understanding The first patent for Gleevec expires in Jul
Marty, I am so glad to read your upbeat email. You are a very special man and I
am thankful that you received your kidney. May God continue to bless you and
your family
Marcie
Sent from my iPad
> On Apr 24, 2015, at 7:54 AM, Marty Gartenberg wrote:
>
> I always try to keep a positive attitu
ther. That is so important.
> Last week, I had to get a transfusion as my counts were so low. I went to my
> onc and he did the usual blood draw and my WBC was 2.4. That was enough to
> send me over to the hospital for type and cross match and a transfusion.
>
> I too am eager to
think it's
>> great that your drs are talking to one another. That is so important.
>> Last week, I had to get a transfusion as my counts were so low. I went to my
>> onc and he did the usual blood draw and my WBC was 2.4. That was enough to
>> send me over to the hosp
Richard, excellent news and I'm happy to hear that your hemoglobin has
stabilized. Glad that your doctors are in sync, too, because that will
certainly make your life easier. Yay!
Marcie
Sent from my iPhone
> On Mar 10, 2015, at 12:15 AM, Richard H wrote:
>
> I visited my VA ONC today and b
Marty,
All of us are so thrilled and excited about your transplant. You are an
inspirational, loving and giving man and I'm so happy to be part of your
"family." God Bless you and your family and your donor and donor's family as
well. May your recovery be fast and strong. Thinking of you and s
Richard,
Thanks for sharing. Such very good news. I know all of us are so delighted
that Marty has had the transplant. Hope all is well with you, too.
Marcie
Sent from my iPad
> On Feb 28, 2015, at 12:31 AM, Richard H wrote:
>
> This was posted to CML2 on YAHOO.
>
> Hello cml chums!
>
Hi Beth,
I think Marty had the transplant and I'm praying all is going well for him. How
are you feeling? You are such a positive, joyful person and I always look
forward to your posts.
Best wishes,
Marcie
Sent from my iPad
> On Feb 26, 2015, at 5:01 AM, sherri swanson
> wrote:
>
> Hi B
Marty,
What wonderful news and I'm so very happy for you, as I know everyone on this
site will be when they hear.
I'll be thinking of you and sending love and prayers your way
Marcie
Sent from my iPhone
> On Feb 23, 2015, at 7:10 PM, Marty Gartenberg wrote:
>
> I thought that everyone sho
Hi SusieQ,
Good to catch up with you. I know that same worry when you go from undetected
to a positive reading. And you are correct that we aren't cured even if
undetected, just cells hiding due to our TKIs. Hang in there and please let us
know the results in March
Marcie
Sent from my iPhone
Dear Friends,
I lost my email for a couple of weeks and just got it back. So I'm trying to
catch up with everyone's news and was moved to tears by what I read. I don't
want to leave anyone out so please forgive any omissions. Also, much of my aol
was lost so I'm not up to date with everyone.
Thanks to everyone for your kind words on the passing of my father I also just
lost my aunt, like a second mother to me. I deeply appreciate your support and
friendship. My thoughts and prayers are with each of you for good news as you
keep battling on with CML.
Sent from my iPhone
> On Jan 2
t;>>>>>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson
>>>>>>>>>> wrote:
>>>>>>>>>> Hi Marty,
>>>>>>>>>>
>>>>>>>>>> Happy New Year. I hope you a
ich do
> cause cancer. That's my take on it, hope you find some relief!!!
>
> Thanks for your always uplifting posts! Happy New Year to you, too!
> Susan F. Zimmerman
>
>
> -Original Message-
> From: 'Marcie Goodman' via CMLHope
> To: cmlhope
> Sen
s still having occasional night sweats. I
>> guess we never associated it with the TKI's because they started for him
>> before he was on them. Interested in anything anyone else has to say about
>> hotness and sweating. All the best to you in this new year.
>>
Joyce in IL
>
>
>> On Jan 5, 2015, at 7:36 AM, 'Marcie Goodman' via CMLHope wrote:
>>
>> Happy New Year, dear friends. I'm wondering if any of you suffer with night
>> sweats as a side effect of your TKI. I do, and have, over the years of my
>
Happy New Year, dear friends. I'm wondering if any of you suffer with night
sweats as a side effect of your TKI. I do, and have, over the years of my
treatment. I don't know that it is happening more frequently but the sweats
seem to be more intense. Is there anything that you know of that will
To all of my dear friends in this group, I wish a happy, healthy New Year
filled with many blessings. May this year bring Marty a kidney, Beth much
needed relief, less swelling for Richard, and for all - Greenie, Susan, Ana,
Jeannie, Pat, Giora, Maria, and others I'm sure I'm forgetting to name,
>From my family to you and yours, a very Merry Christmas and the happiest of
>New Years.
Marcie
Sent from my iPhone
> On Dec 24, 2014, at 11:12 AM, 'Icandoallttc' via CMLHope
> wrote:
>
> Merry Christmas and happy holidays to all.
> Blessings
>
> Jeanie 🎅🎅
>
> Sent from my iPhone
>
>>
And don't forget to take your TKIs!
Sent from my iPhone
> On Nov 27, 2014, at 12:37 PM, Myvety2k via CMLHope
> wrote:
>
> Happy Thanksgiving to everyone, eat lot's Diet Tomorrow.
>
>
> greenie
>
> In a message dated 11/27/2014 11:27:45 A.M. Eastern Standard Time,
> cmlhope@googlegroups.
Happy Thanksgiving. I'm so thankful for each and every one of you!
Marcie
Sent from my iPad
> On Nov 27, 2014, at 10:57 AM, icandoallttc via CMLHope
> wrote:
>
>
>
> Sent from my iPhone
>
>> On Nov 26, 2014, at 10:43 AM, icandoallttc via CMLHope
>> wrote:
>>
>> Wow!! Glad I can get it a
Maria, hope you'll be feeling better very soon. I think Susan Zimmerman on this
group takes bosulif and is doing well on it. Please let us know when you get
your results. I'll be keeping you in my thoughts and prayers.
Marcie
Sent from my iPhone
> On Nov 20, 2014, at 6:34 PM, mariacash...@gma
Love it, Captain Dave!
Marcie
Sent from my iPhone
> On Nov 15, 2014, at 7:20 AM, Myvety2k via CMLHope
> wrote:
>
> Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral,
> I'm not sure but I think he as had CML the longest. Will make Marty Admiral
> that's next in line a
Greenie, we are all so thrilled you are doing well. If Marty is our captain, I
think you must be his first officer!
Marcie
Sent from my iPad
> On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope
> wrote:
>
> I would like to thank each and everyone of you for your warm hearted replies.
>
> gr
Congratulations, Greenie! Great news.
Marcie
Sent from my iPad
> On Nov 14, 2014, at 7:35 PM, Marty Gartenberg wrote:
>
> Greenie,
>
> Hey, what took you so long? I am thrilled to hear this wonderful news. You
> are blessed.
>
> 18's,
>
> Marty
>
>> On Fri, Nov 14, 2014 at 2:29 PM, ican
Marty,
What a lovely email to Sue. We are traveling together and I feel like you are
the Captain of our ship!
Thinking about you and keeping you in my prayers
Love and 18s,
Marcie
Sent from my iPhone
> On Nov 12, 2014, at 8:34 PM, Marty Gartenberg wrote:
>
> Oh yes Sue, family. Well you k
Really great news Richard. Hope the VA processes your medication quickly and
that you do well on it.
Marcie
Sent from my iPhone
> On Oct 22, 2014, at 12:48 AM, Richard H wrote:
>
> I finally received the results of all my testing yesterday and got to talk to
> the ONC today. ( I won't talk
ars and two months with no medicine and my numbers got as high as
>> 23.0with very little problems with that. I know everyone is really
>> different in reactions. This does not mean you won't continue to use
>> gleevec, just a slight bump in the road. I hope your cramp
Shalom and todah rabbah, dearest Giora. Yes, one test isn't a big deal. I
haven't been feeling very well and have lost over 10 pounds in a short time.
Nothing has turned up on any tests so could just be stress. I'm awaiting the
General Election on November 4th because my current boss lost his pr
es I had but rather go through a bone marrow transplant.
>
> You do know the meaning of 18's well it means life, and that is exactly what
> you have.
>
> wishing you many 18's,
>
> Marty
>
>> On Fri, Oct 10, 2014 at 6:25 PM, 'Marcie Goodman' via
Hi Richard, and thanks very much. I think those 2 undetecteds got me thinking
I'd stay that way for a long time. I know that the next test could be better
and thankfully we have so many options today with CML.
I hope your doctor's visit goes well and please let us know when you get the
results
numbers got as high as
> 23.0with very little problems with that. I know everyone is really
> different in reactions. This does not mean you won't continue to use
> gleevec, just a slight bump in the road. I hope your cramping has gone away?
>
> Prayers to all,
> 18&
Hi Friends,
Just got my 3 month bcr-abl results. After 6 months of undetected, this test
came back as "weak positive." Not much in terms of amount but I'm bummed that
I didn't remain undetected.
So I'm wondering if anyone else has received a "weak positive". I'm not really
worried because I'l
Hi Marty,
How are you since your last surgery? Here's hoping that the New Year will
bring abundant blessings to all, but especially to you, dear Marty, for a
transplant to come your way very shortly.
Marcie
Sent from my iPad
> On Oct 4, 2014, at 8:10 PM, Marty Gartenberg wrote:
>
> Hi Mar
Marty,
My thoughts, prayers and love are with you for a successful surgery and a
transplant to come quickly.
Thanks so much for always lifting us up and inspiring us to keep fighting the
good fight.
L'shana tova tikateivu to you and Shelly and your family.
Marcie
Sent from my iPhone
> On
Susan, that is really great news and I'm so happy for you. Enjoy the beautiful
weather.
Marcie
Sent from my iPad
> On Sep 8, 2014, at 6:26 PM, "'Susan Zimmerman' via CMLHope"
> wrote:
>
> Hi all,
>
> Just wanted to report the most beautiful summer/fall day ever today! Sorry
> for those i
Hi Eluzabeth,
Hopeful news is always good to hear. I have been in Gleevec since diagnosis 5
1/2 years ago and mostly have night sweats. I take Gleevec with dinner and that
could be why the sweats occur throughout the night. I sleep with a fan next to
me, even in winter. I wouldn't be concerned
...
>
> Blessings and 54's, (triple life)
> Susan
>
>
>
> -Original Message-
> From: Marty Gartenberg
> To: cmlhope
> Sent: Sun, Aug 24, 2014 3:16 pm
> Subject: Re: [CMLHope] Digest for cml...@googlegroups.com - 4 updates in 1
> topic
>
&
Hi Everyone,
Glad we are all still here with our attitudes of gratitude. Susan, did you take
pictures with Greenie? If so, would you post some?
I'm recovering from my car accident slowly but it just is something that will
take time. We listen to the world news and feel so sick about the state
You are a true warrior! And I'll keep your advice tucked away. Stay strong.
Marcie
Sent from my iPad
> On Aug 7, 2014, at 10:01 AM, "'Skip Duffie' via CMLHope"
> wrote:
>
> Thank you Marcie,
> this was most likely the worse month I've had. On the other hand I got
> through it. My only comme
Susan, wow, those are great results! I'm so happy for you. When you see
Greenie, please take some photos to share with us.
Much love,
Marcie
Sent from my iPad
> On Aug 7, 2014, at 10:01 AM, "'Susan Zimmerman' via CMLHope"
> wrote:
>
> Hello Marty, Marcie and Skip, along with all the rest,
Hi Marty,
I had a bad car accident about 10 days ago. I've been out of work and in to
physical therapy. Very thankful to be here, as I was broadsided and my car was
pushed across 3 lanes of traffic, and came to rest across 2 lanes of oncoming
traffic. Lots of pain but nothing broken except the
Hi Richard,
Like Susan, I've got out of town guests. Getting older sure isn't for sissies
and add in CML and it is tougher. But I think everyone in our group really
seems to live life to the fullest extent. My boss lost his re/election primary
and my job and great health benefits are now in que
d know that God is sure in your
> corner as well, Maria!!! You can private message me anytime by using the
> listing of my e-mail up above.
>
> We are all watched over by our Sovereign Lord, and He knows all our triumphs
> and troubles. I reiterate a great thought I've said
to the TKI that your on. Now that you
> > are PCRU for the second time in a row, maybe you might consider
> > getting in touch with some of the worlds renown CML specialists like
> > Dr. Brian Druker or Moshie Talpaz and ask for their advice of taking
> > less or maybe even
Hi Maria:
Susan Zimmerman on this site is now on bosulif, I think. She is a sweetheart
and I'm sure when she sees your post she will respond. Wish I could be of more
help but I've only been on Gleevec.
Hugs,
Marcie
Sent from my iPhone
> On Jul 20, 2014, at 3:25 AM, mariacash...@gmail.com wr
ft with me. I prayed and I was blessed
>
>
>> On Wed, Jul 16, 2014 at 9:05 PM, 'Marcie Goodman' via CMLHope
>> wrote:
>> Hi Maria,
>>
>> I'm on Gleevec since being dx'd 5 yrs and 4 months ago so I really don't
>> kno
Thanks, Jeanie. I'll try the castor oil and let you know. The baths help but I
work full time and a lot of the pain is going on during that time so obviously
I can't take a bath til evening. I just got my 3 month bone marrow results and
hit undetected, same as the prior one in March. A first fo
ble for me. I told her that I
> wante to try lowering Sprcel to 70 mg daily before changing to another med.
> The Hema/Onco in charge agreed and told me that if this didnt work, he would
> change me to Bosulif.
>
> I am really feeling better with Sprycel at 70 mg daily, but have con
Hi Maria:
How have you progressed since diagnosis and what meds do you take. I don't
believe I've "met" (since we all know each other through the internet) anyone
dx'd in blast stage. What an awful fright that must be. I relate to pushing off
the symptoms and assuming it's just tiredness becaus
Thanks, Susan. Do you still have pain? Glad to hear that you seem to be doing
well on your new routine. Thank goodness for the accomplishments in treatment
of CML.
Marcie
Sent from my iPhone
> On Jul 10, 2014, at 7:32 PM, "'Susan Zimmerman' via CMLHope"
> wrote:
>
> I've used acupuncture
Thanks, Jim. That is very encouraging news. I really have done well on Gleevec
and the only bad side effects are fatigue and bone pain, mostly in the knees
and below. I, too, feel extremely blessed to be alive, working with great
health care benefits and a wonderful support system of family and
Marty,
Best wishes for a speedy recovery. You are an important part of our cml family
and everyone will be praying for you.
Marcie
Sent from my iPhone
> On Jul 4, 2014, at 4:41 PM, Marty Gartenberg wrote:
>
> Dear Richard, Chris, and everyone else,
>
> I am so sorry to hear this. I guess
Chris:
My family and I extend heartfelt condolences to you and your family. Your mom
was like a mom to all of us and always had a kind word and upbeat attitude. May
your wonderful memories sustain all of you in the difficult days ahead.
As Susan said, we are hear for you whenever you need us.
Hi Friends,
I'm so glad that Millie's son is keeping us informed. How difficult for them,
and all of us, to lose such a dear, loving person. No doubt in my mind that
Millie will be in God's arms.
Beth, I hope you are quickly able to find an alternative treatment. You've
been through so much
Greenie, thoughts and prayers for your wife to have a speedy and complete
recovery. Isn't her name Grace? Hang in there. Everyone will be thinking of
you.
Sent from my iPad
> On Jun 26, 2014, at 8:50 PM, Myvety2k via CMLHope
> wrote:
>
> WOW, did I mess up on that message. YES, everyone
Marty,
Lots of prayers and good wishes coming your way for your surgery. I also pray
that your transplant will happen quickly. God Bless, dear friend, and thanks
for lifting us up, always and all ways.
Marcie
Sent from my iPad
> On Jun 26, 2014, at 6:06 PM, Marty Gartenberg wrote:
>
> Hi G
Chris:
Please know that your mom and all of the family will be in my thoughts and
prayers. May God grant you, your beloved mom and family with strength and grace
as you face this challenge.
Marcie
Sent from my iPhone
> On Jun 22, 2014, at 12:02 PM, "C.M. Houtz" wrote:
>
> Good morning,I wi
Thanks, Chris. Everyone is thinking about her. Please tell her Marcie in
Baltimore sends her love. Your mom is in all of our thoughts and prayers.
Sent from my iPhone
> On Jun 13, 2014, at 9:47 PM, "C.M. Houtz" wrote:
>
> Hello everyone,as I understand this will be read by many people.I am w
Marty,
Your letter to Millie is just like you, very kind and caring. I'm keeping my
fingers crossed and hoping that Millie is OK. We really are like family and it
is scary when someone drops off our grid. When you were in the hospital
recently, everyone prayed that you would have a short stay a
Marty, I haven't seen a post for weeks. I think I have her phone #. Hopefully,
someone will post soon that they've talked to her.
Marcie
Sent from my iPad
> On Jun 8, 2014, at 7:46 PM, Marty Gartenberg wrote:
>
> Has anyone heard from Millie? I haven't seen any poste from her lately
> and I
Happy Birthday to you and Shelly. May you have many blessings ahead!
Marcie
Sent from my iPad
> On May 21, 2014, at 10:01 PM, Marty Gartenberg wrote:
>
> Well, it's May 21st which is my first and second birthday. I was
> actually born on May 21st 1944 and had my bone marrow transplant when
> I
So glad to hear that Marty is out of the hospital, Millie is doing her knitting
and cooking, Susan isn't experiencing side effects, Greenie's results are
excellent, Pat Elliott is taking charge of so many issues and Richard and
Jeanie seem to be upbeat. I remember that Beth was having a tough ti
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