[QUAD-L] Fwd: Homeowner's Insurance Payment Notification

[William Willis]

I did this with the same company about three weeks ago. My doc made an appt. 
with a physical 
Therapist. He measured everything but my penis length. Then he gave it to the 
Nu-motion rep, and now I am waiting
and now I am waiting for insurance approval.
> 
> 
>
> Friday, August 26, 2016
> 
>  
> 
> The information contained in this email is accurate as of the date this email 
> was sent.  eAlerts is a Free service provided by Nationstar Mortgage to 
> securely and timely deliver your mortgage notifications to an email address 
> provided by you.  You are receiving this recurring email alert because you 
> registered online at nationstarmtg.com or opted in either verbally or in 
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> You can unsubscribe from email alerts by logging on to Nationstar Mortgage 
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>  

Fwd: [QUAD-L] help, AD is happening when laying down at bedtime

[William Willis]

Kidney stones could certainly cause ad. They could move when you lie down and 
put pressure on painful areas. I know my bladder hurts every morning when I 
first wake up. Don't know why. I would bet that stones are the problem. Are you 
sure there are no other cuts, sores, etc?

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Derrick 
> Date: April 8, 2016 at 4:55:17 PM EDT
> To: quad-list@eskimo.com
> Subject: [QUAD-L] help, AD is happening when laying down at bedtime
> 
> Hey all,
> My c/5 friend 25 years post sci, has been having AD every night. Here is his 
> last email, "just got back from er, get ad every night this week when i lay 
> down at bed time, did blood work and ct scanall normal blood and scan 
> except kidney stones and sinus infection...not sure whats causing it but its 
> been bad."
> Does anybody have had similar AD? Would kidney stones cause it to happen only 
> when you lay down?
> 
> Someone posted a phone number for a SCI hotline, or SCI nurse and doctor to 
> answer sci questions? What was the phone number?
> 
> Thanks in advance if you will reply to help him figure this AD out,
> Derrick W in PA
> 
> ps: we live in very rural area so no major hospital or doctors. just a local 
> called "band aide station" hospital
> 

Re: [QUAD-L] Today is my 10 year aniversary of my injury

[William Willis]

It sounds like you are having a very rough time. I pray that the cancer and uti 
problems will be resolved and that hospitals will be a thing of the past for 
you. Stay strong and may God bless.

Sent from my iPad

> On Mar 21, 2016, at 6:16 AM, daano...@gmail.com wrote:
> 
> That was so well said Larry. Thank you I told agree with everything you say. 
> Being ona ventilator is so difficult. I was on one for a few days after my 
> colon cancer surgery in November 2015. 
> 
> Has anyone else experienced colon cancer and on chemotherapy. I have been on 
> an oral medication but I've been in the hospital three times in the last 
> month and a half with bleeding from UTIs.
> 
> Sent from my iPhone
> 
>> On Mar 8, 2016, at 10:10 PM, lwillis...@yahoo.com wrote:
>> 
>> To all of you guys on a vent -- God bless you. Your strength of spirit blows 
>> me away and humbles me beyond words. I don't think I could do it. Love and 
>> blessings to all of you. You are amazing.
>> 
>> Sent from my iPad
>> 
>> Begin forwarded message:
>> 
>>> Resent-From: quad-list@eskimo.com
>>> From: Eric Olson 
>>> Date: March 8, 2016 at 10:30:58 PM EST
>>> To: quad-list@eskimo.com
>>> Subject: Re: [QUAD-L] Today is my 10 year aniversary of my injury
>>> 
>>> Sorry and congratulations.  Seriously, I'm a C3 on a vent myself and many 
>>> in our situation would have already succumbed to various maladies by now 
>>> 
 On 3/5/2016 4:47 PM, Danny Espinoza wrote:
 10 years ago today I became a c2 quadriplegic.
 -Danny
>>> 
>>> 
>>> This email has been sent from a virus-free computer protected by Avast. 
>>> www.avast.com

FW: [QUAD-L] Rejoyce - hand device

[William Willis]

I thought it sounded a bit fishy. Thanks, Greg.

From: g...@eskimo.com
To: pjacob...@san.rr.com; quad-list@eskimo.com
Date: Wed, 14 Aug 2013 11:35:16 -0700
Subject: Re: [QUAD-L] Rejoyce -  hand device



I read the article and thought it sounded quite cool. So I searched for on the 
web and found a YouTube video about it. It's nothing like what the article 
says. The ReJoyce Hand and Arm Rehabilitation System is basically an exercise 
machine. It's like a 4 foot long plastic elbow shaped device. The one end of it 
the paralyzed person holds onto as good as they can, the other end is attached 
to the table and connected to a computer. The elbow joint let it move in all 
directions. So as you move around it moves the cursor on the computer. So you 
move it around playing a game on the computer. It helps with exercise, balance, 
and coordination. At least the one I saw does not actually open and close your 
hand. It looks like it could be a home exercise machine. It might actually help 
with balance and coordination. But not the miracle device that open and close 
at hand.
Greg
 
 


 
 
 
 Anyone know about this?
 http://www.apparelyzed.com/forums/topic/11978-device-stimulates-
 paralyzed-hands-arms-to-move-
 again/http://www.apparelyzed.com/forums/topic/11978-device-
 stimulates-paralyzed-hands-arms-to-move-again/
   

FW: [QUAD-L] Supplements

[William Willis]

Wow Paul! Do you take all of those everyday? Did you design this regimen 
yourself or with a doc or nutritionist? Do they make a noticeable difference? 
This is highly interesting to me.
 
From: pjacob...@san.rr.com
To: quad-list@eskimo.com
Date: Fri, 5 Jul 2013 17:05:38 -0700
Subject: [QUAD-L] Supplements





Hello, as you can see I take a pile of supplements.  Wonder if any of 
these 
are linked to increased spasms.
 
Thanks for your input.
Paul c5/6 complete  10 yrs
 
MEDS
Detrol LA  4 mg 

Doxazosin8 mg

SUPPLEMENTS
Multi Fiber   


Juice Plus – Orchard   

Juice Plus – Vineyard 

Fish Oil

Vitamin D   
  

 
Probiotics  

Magnesium  

Green Caps  
 

ImmunoVen   
  

Noni
   

 
Adaptogen   
  

B 
Complex 
Medi-Clay FX
  

Oregano Oil  
(1 drop on skin)
Juice Plus – Garden 
 
Collagenics 
CoQ10 ST-100   


  

FW: [QUAD-L] burns

[William Willis]

 All the time. My hands are covered with burn scars. Even have a few on my 
belly.
Date: Mon, 8 Jul 2013 12:44:08 -0700
From: pl...@yahoo.com
To: quad-list@eskimo.com
Subject: [QUAD-L] burns

do any of u burn themselves frequently? cuz i do. this  time it's on my finger 
[possibly from hot dinner plate or cig ash, not sure]  am in need of burn care 
tips. pl Patricia L. Brown-Tulee
pl...@yahoo.com

while adding years to your life, add life to your years 
  

FW: [QUAD-L] burns

[William Willis]

 With a big blister, I stick a pin in the side and press the liquid out.  
Careful not to tear the skin. Apply an antibiotic cream and a bandage. It is 
very vulnerable to germs at this time, so keep it covered. The worst thing you 
can do is tear the skin off and leave it exposed. Almost guarantees an 
infection. I speak from much experience.
Date: Mon, 8 Jul 2013 12:50:09 -0700
From: pl...@yahoo.com
Subject: Re: [QUAD-L] burns
To: lwillis82...@msn.com

i have burn scars all over. do u take off top layer where it blisters or leave 
it? Patricia L. Brown-Tulee
pl...@yahoo.com

while adding years to your life, add life to your years
From: William Willis lwillis82...@msn.com
 To: quad-list@eskimo.com quad-list@eskimo.com 
 Sent: Monday, July 8, 2013 12:47 PM
 Subject: FW: [QUAD-L] burns
   




 All the time. My hands are covered with burn scars. Even have a few on my 
belly.
Date: Mon, 8 Jul 2013 12:44:08 -0700
From: pl...@yahoo.com
To: quad-list@eskimo.com
Subject: [QUAD-L] burns

do any of u burn themselves frequently? cuz i do. this  time it's on my finger 
[possibly from hot dinner plate or cig ash, not sure]  am in need of burn care 
tips. pl Patricia L. Brown-Tulee
pl...@yahoo.com

while adding years to your life, add life to your years 
  


  

FW: [QUAD-L]

[William Willis]

Wow, Carolyn, you are amazing. To stay  so upbeat and positive over 50 years is 
remarkable. I'm on year 42 and feel like the dark cloud over my head keeps 
growing. Please post more because you are an inspiration and you give the rest 
of us a glimpse of what to expect. You are the Daniel Boone of the quad world 
-- a pioneer of uncharted territory.

 Date: Fri, 3 May 2013 17:28:48 +
 From: carolyndeand...@comcast.net
 To: quad-list@eskimo.com
 Subject: [QUAD-L] 
 
 A few of you wondered if I was crooked..I am not..guess I'm just lucky in 
 that regard.  I had my bladder removed in 1995 due to bladder cancer and now 
 have a Miami pouch...I love it.  I have had my problems with excessive 
 sweating but it turns out the sweating was being caused by an open sore on my 
 foot..I think.  This past year I have not had any cold sweats and the sore is 
 closed.  I have had about 30 kidney and bladder stones (In my Miami pouch) 
 all removed last year but I will probably get more!
 In 2005 I had shingles and after being put on the medicine for shingles I had 
 a brain bleed which has affected my short term memory...other then being 
 stuck in this wheelchair life is good!
 I have been married to my wonderful husband Tony for 47 years, have one sweet 
 daughter Lisa and two incredible grandchildren Ryan and Megan.  I will 
 celebrate being alive on my 50th ann, of my car accident which put me in this 
 chair Sunday..I have a great life always busy doing something.  I do phone 
 work for AmVets..calling for discards since 1986..brings in a little money. I 
 don't write that much on the quad list but I read all the posts..will try to 
 write more.
 
  

FW: [QUAD-L] List

[William Willis]

Wow, Carolyn, I'm pretty sure you hold the list record. If you feel up to it, 
would you mind sharing some of the obstacles, health and otherwise, that you 
have dealt with over the years? Has age bothered you much? Sores, dysreflexia, 
prejudice? I'm sure we would all love to hear your story. Larry Willis, c5, 1971

 Date: Mon, 29 Apr 2013 17:52:01 +
 From: carolyndeand...@comcast.net
 To: ppac...@comcast.net
 CC: quad-list@eskimo.com
 Subject: Re: [QUAD-L] List
 
 Carolyn D'Andrea C3/4 May 5, 1963 car accident in CT now living in Tamarac, 
 FL  Sunday will be my 50th anniversary..oh my god
 
 - Original Message -
 From: ppac...@comcast.net
 To: quad-list@eskimo.com
 Sent: Monday, April 29, 2013 12:45:01 PM
 Subject: Re: [QUAD-L] List
 
 
 NJ DIVING 
 
 
 Thank you! 
 Paul 
 
 - Original Message -
 From: ppac...@comcast.net 
 To: quad-list@eskimo.com 
 Sent: Monday, April 29, 2013 1:42:53 PM 
 Subject: [QUAD-L] List 
 
 
 Paul Pacera C5/6 complete 1991 48yrs. old. 
 
 
 Thank you! 
 Paul 
 
  

FW: [QUAD-L] please help!

[William Willis]

Prescription needed for both drugs.

From: caars...@hotmail.com
To: jume9...@comcast.net; quad-list@eskimo.com
Subject: RE: [QUAD-L] please help!
Date: Wed, 17 Apr 2013 17:32:09 +




do i need a prescription for propantheline? i feel it's worth a tryi'd try 
anything to rid me of this discomfort. thanks
 
Date: Wed, 17 Apr 2013 17:16:46 +
From: jume9...@comcast.net
To: caars...@hotmail.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] please help!

Carla, Propantheline is a must for sweating...get some. It will give you 
hella cotton mouth but worth it for most of us. Dysreflxia is a weird thing. i 
had a major attack the other night after having heartburn.I thought I was 
going to die, my head was pounding, sweating etc. Could you be in pain? Try 
taking a pain pill, if the sweating stops temporarily then you will know that 
is the problem. Good luck to you, I can totally relate.

Meredith

From: Carla Aarssen caars...@hotmail.com
To: quad-list@eskimo.com
Sent: Tuesday, April 16, 2013 3:16:27 PM
Subject: [QUAD-L] please help!




i'm a c5 quad female, 33yrs old, 11years post injury and about a yr ago i 
started sweating profusely 90% of the day, doesn't matter the temp of air, 
sometimes i feel cold while sweating, i have goose flesh and sweat like i'm 
running in the desert (i wish,lol) i spent a month in hospital oly to be told i 
was full of shit pardon my french ...i'd have to change my bowel routine from 
3x a week to daily and clean outwell, it seemed to me i continued to sweat 
for quite some time and it just mostly subsided but almost exactly 1yr later 
it's happening again, sweat is rolling down my neck right nowthe dr's are 
not taking me seriouslyi am no longer full of shit...what else can it be? 
it's not dysreflexia..in-dwelling foley cath works fineany ideas? 
anyone ever hear of propantheline bromide?  
 

  

FW: [QUAD-L] My San Francisco Trip

[William Willis]

DON, where is part 2?  We are waitingwaiting..waiting!!!

Date: Sat, 23 Feb 2013 11:26:24 -0800
From: kw...@comcast.net
To: quad-list@eskimo.com; jume9...@comcast.net
Subject: Re: [QUAD-L] My San Francisco Trip















Your a  great writer. I can totally relate. My aides and I went to SF last 
September. It was freezing! I looked like a rolling mummy. Looking forward to 
the rest of your story.
Kathy 
 
 

 
 

---Original Message---
 

From: jume9...@comcast.net
Date: 2/23/2013 11:14:06 AM
To: quad-list
Subject: Re: [QUAD-L] My San Francisco Trip
 
Wow Don,
Don't keep us in suspense!  I have been to S.F. It is colder than people think 
for Northern Cailifornia. Continue...

Meredith



From: Don Price donpric...@yahoo.com
To: quadlist quad-list@eskimo.com
Sent: Friday, February 22, 2013 6:23:09 PM
Subject: [QUAD-L] My San Francisco Trip




When I learned that my college team, the AZ State Sun Devils, would be playing 
in the Kraft Fight Hunger Bowl this year, December 29th at ATT Park in San 
Francisco, against the Midshipmen of Navy, I was elated. Jokingly, I said to my 
girlfriend: It would be awesome to go to that football game! To my great 
surprise she replied Yes, it would.!

We flew from Phoenix directly to Oakland via Southwest Airlines, a very easy 
2-hour flight. For those of you who fly, if you ever have a choice between 
airlines I highly recommend SW--they do things the right way, in my experience. 
We were traveling on a budget so decided not to rent a pricey minivan. Instead, 
we would use the extensive public transit system in the Bay area to get around.

Like most of us quads, I don't do well in cold temperatures on a good day, but 
I was in for a rough weekend because I didn't realize that I had fractured two 
toes in my right foot when my laundry caught onto my joystick and sent me [and 
my tootsies] careening into my bedroom furniture. Well, I knew I had hurt my 
foot somewhere, but I couldn't see or feel any immediate damage so I wasn't 
about to cancel my trip to see the Sun Devils!

The flight went smoothly, but as we departed our plane I noticed that I was 
covered with a fine sheen of sweat, the source of this Autonomic Dysreflexia as 
yet unknown to me. We collected our luggage and headed out the doors to catch a 
shuttle bus to the BART (Bay Area Rapid Transit--light rail system.) Wham! The 
cold Bay weather hit this sweaty quad like slap from an icy hand. Luckily, we 
didn't have to wait long and we were on our way to the BART station. The 
shuttle to the BART was tolerable, except for the guy across from me who hadn’t 
bathed in a year. I believe it is Federal law that there must be one stinky 
person on every bus, and we exceeded that mandate.

A few minutes of icy-cold confusion ensued trying to figure out the BART 
ticketing kiosks. After some experimentation with the machines we were happily 
ensconced on the train, headed up through Oakland, underneath the Bay and into 
downtown San Fran where we'd catch one last bus to take us to our hotel near 
Fisherman's Wharf. [Be prepared when the BART starts moving because there are 
no chair lock-downs. Powerchairs with electronic breaks have an advantage here, 
so long as you don't accidentally hit your joystick.]

I wasn't thrilled about our plan to save money by using public transportation, 
but as the BART train shook and rattled its way through the darkness I began 
thinking this really isn't too bad! A few minutes later we passed the West 
Oakland station and the train went underground--underwater too--for several 
minutes as we crossed underneath the Bay. I'm sure I could eventually get used 
to riding a train underground, but try as I might I could not avoid the thought 
of earthquakes and the horrendous way we'd go out if that tunnel ever 
collapsed. 

I faked a light-hearted smile at my girlfriend who faked a smile right back. I 
attempted to say something whimsical to ease the tension but neither one of us 
could hear the other over the screeching and grinding noises in the tunnel--a 
nice addition to the apocalyptic scene playing out inside of my fevered brain.

I looked around and saw another powerchair user on the train and was somewhat 
comforted by the fact that she looked bored. This is old hat for her; a ho-hum 
trip into town that she probably takes often. Arriving at our station she 
zipped off the traincar  and we hurriedly followed, trying to keep up with her 
but she is gone, lost is the sea of humanity exiting these metal rail snakes. 
She went that way, my girlfriend says, indicating the direction of the 
elevator that would take us to street level at the Embarcadero. 

Sorry, Elevator Out of Service, the hand-made paper sign reads. Dammit, I 
grumble, but this can't be the only elevator at this station, or that girl 
wouldn't have gotten off. Several more very noisy, chilly and frustrating 
minutes pass as we ask and search everywhere for another elevator, only to 
learn 

FW: [QUAD-L] Pressure sore explosion

[William Willis]

I have had bone removed twice, Meredith. Just takes forever to get well. Have 
you ever used a wound vac? It helped me a great deal. Take care and God bless.

From: wheelch...@aol.com
Date: Thu, 28 Feb 2013 18:22:46 -0500
Subject: Re: [QUAD-L] Pressure sore explosion
To: jume9...@comcast.net; quad-list@eskimo.com






I'm glad you chose the medical doctor root.  Sorry to hear of the 
results.
Best Wishes
 

In a message dated 2/28/2013 4:38:18 P.M. Central Standard Time, 
jume9...@comcast.net writes:

  
The 
  doctor says my wound is deep and is concerned it could go to the bone  
  and I don't want to go to the hospital so I am on antibiotics and I'm being 
  very diligent. Learned my lesson.


Meredith

  
  From: Nan nlg52...@yahoo.com
To: 
  jume9...@comcast.net
Sent: Wednesday, February 27, 2013 8:31:57 
  PM
Subject: Re: [QUAD-L] Pressure sore explosion


  
  WTG Meredith.  Good luck!
  

  Nan
  

  
  
  
  
  From: jume9...@comcast.net 
  jume9...@comcast.net
To: quad-list 
  quad-list@eskimo.com 
Sent: Wednesday, February 27, 2013 5:20 
  PM
Subject: Re: [QUAD-L] 
  Pressure sore explosion


  
  

  
  Thanks for 
  your advice, I've got an appt. tomorrow morning.

Meredith


  
  From: wheelch...@aol.com
To: jume9...@comcast.net, 
  quad-list@eskimo.com
Sent: Wednesday, February 27, 2013 12:49:37 
  PM
Subject: Re: [QUAD-L] Pressure sore explosion


  Depend on the sore, and its reason.  Pressure sores should be clean 
  and debreeded and bandaged.  Infections, not treated properly can produce 
  more negative effects.
  Best Wishes
   
  
  In a message dated 2/27/2013 2:40:40 P.M. Central Standard Time, 
  jume9...@comcast.net writes:
  
Hi 
all,
I ignored my sore and it got bad overnight, my foot swelled up and 
the sore literally exploded with pus and blood ( my aide almost threw up) 
She squeezed the ick out and we soaked it in salt water and bandaged it up. 
Should I get some antibiotics? Can I just continue soaking? 
Thanks


Meredith


  

FW: [QUAD-L] Propantheline

[William Willis]

Thanks Shirley. For the most part, ditropan works pretty good for me. I take 
one in the morning and sometimes one at night. Sometimes I wake up and it feels 
like my tongue is going to break off lol. I am so dry I can't even swallow. 
Ditro is time-released, though, which is good.
From: sbell...@cox.net
To: lwillis82...@msn.com
Subject: Re: [QUAD-L] Propantheline
Date: Wed, 19 Dec 2012 11:05:35 -0500






Hi Larry ,I use ditopan to. I tried the pro. and it 
worked but did not last long at all. I take a ditro at night and thats it. You 
should try it though, it might help you. its the same low price
Best,
Shirley Bell
 
www.ShirleyBellDesigns.com

  - Original Message - 
  From: 
  Larry 
  Willis 
  To: quad-list@eskimo.com 
  Sent: Wednesday, December 19, 2012 9:01 
  AM
  Subject: Fwd: [QUAD-L] 
Propantheline
  

  I have somehow missed the boat on propantheline. This is the first time I 
  have heard of it. I've been taking ditropan (oxybutynin) for sweating. Does 
  anyone know how the two compare? Is one better than the other? I need some 
  serious enlightenment, guys.

Sent from my iPad
  
Begin forwarded message:


  
Resent-From: quad-list@eskimo.com
From: 
Nan nlg52...@yahoo.com
Date: 
December 18, 2012, 7:51:03 PM EST
To: jume9...@comcast.net jume9...@comcast.net, quad-list 
quad-list@eskimo.com
Subject: 
Re: [QUAD-L] Propantheline
Reply-To: Nan nlg52...@yahoo.com


  


Wow, that's for sure!!!


Nan






From: jume9...@comcast.net jume9...@comcast.net
To: Lori Taylor llt1...@sbcglobal.net; quad-list 
quad-list@eskimo.com 

Sent: Tuesday, December 
18, 2012 7:47 PM
Subject: 
Re: [QUAD-L] Propantheline




I have 
tried to split the pills but they are so small, also I found that a half 
works about half as long. I am completely lost with out my propantheline. I 
hope they never stop making them or all of us are going to have to do 
battle 
with the drug co.ha ha!

Meredith



From: Lori Taylor llt1...@sbcglobal.net
To: 
greg g...@eskimo.com, quad-list@eskimo.com
Sent: 
Tuesday, December 18, 2012 2:00:22 PM
Subject: Re: [QUAD-L] 
Propantheline





Hey Greg,
 
I'm glad to hear Propantheline is working for you.  I know it 
works real well for me too.  I'm not a doctor, but have been a quad for 
over 34 years.  So, I feel the need to give you a bit of 
caution...
Sweating and rapid heart rate--heart beating hard are a quad's 
'6th sense'...pain sensory and is a part of dysreflexia...
 
I cut my 15mg propantheline in half.  That way, I can see if I can 
stop the sweating w/out my mouth drying out too bad and w/out my heart 
beating too hard.  If I feel ok, but am still  sweating after a 
bit, I take the other half.  Please be careful b/c what you're dsaying 
about your heart beat could be a recipe for disaster.  I'm only saying 
this b/c I know that feeling.  
 
Please consiider 1/2 a pill.
 
 

 




From: greg g...@eskimo.com
To: quad-list@eskimo.com
Sent: Tue, December 18, 2012 1:31:49 
PM
Subject: [QUAD-L] 
Propantheline

I sweat so bad during my b-program, it is very 
uncomfortable. I mean buckets.
A few people here mentioned Propantheline. 
I tried it and it worked great. I took 15mg.
The only issues I had was 
dry mouth for a few hours and my heart beat hard for just a bit.
I really 
hope it continues to work well, it is so much better.
I just pop one 
before I start.
Thanks everyone for the 
tip.
Greg



  

FW: [QUAD-L] Propantheline

[William Willis]

Thanks Lori. A very very helpful answer.

Date: Wed, 19 Dec 2012 09:19:55 -0800
From: llt1...@sbcglobal.net
Subject: Re: Fwd: [QUAD-L] Propantheline
To: lwillis82...@msn.com; quad-list@eskimo.com

Here's my 2 cents on the comparison..
Ditropan and propantheline are created for the same purpose...to tighten the 
sphincter muscle to eliminate urine leakage.  I take ditropan/oxybutynin 5mg 
2x/day.  But, I view propantheline as a 'pain pill for quads' b/c when we have 
pain we sweat and this drug stops it.  Or at least, minimizes it.  I was 
introduced to it by another quad around 20 years ago and was amazed at the 
difference it made in my daily living.  When it was thought that they stopped 
making it, I panicked.  So, since a few years back, I've stock-piled it and 
refill every chance I can.  All I know is, that it works for me, my doc 
understands, and it helps me from taking a bunch of addictive, mind-altering 
pain meds.
Hope this helps...
Lori





From: Larry Willis lwillis82...@msn.com
To: quad-list@eskimo.com
Sent: Wed, December 19, 2012 8:03:45 AM
Subject: Fwd: [QUAD-L] Propantheline


I have somehow missed the boat on propantheline. This is the first time I have 
heard of it. I've been taking ditropan (oxybutynin) for sweating. Does anyone 
know how the two compare? Is one better than the other? I need some serious 
enlightenment, guys.

Sent from my iPad

Begin forwarded message:



Resent-From: quad-list@eskimo.com
From: Nan nlg52...@yahoo.com
Date: December 18, 2012, 7:51:03 PM EST
To: jume9...@comcast.net jume9...@comcast.net, quad-list 
quad-list@eskimo.com
Subject: Re: [QUAD-L] Propantheline
Reply-To: Nan nlg52...@yahoo.com





Wow, that's for sure!!!


Nan






From: jume9...@comcast.net jume9...@comcast.net
To: Lori Taylor llt1...@sbcglobal.net; quad-list quad-list@eskimo.com 
Sent: Tuesday, December 18, 2012 7:47 PM
Subject: Re: [QUAD-L] Propantheline




I have tried to split the pills but they are so small, also I found that a half 
works about half as long. I am completely lost with out my propantheline. I 
hope they never stop making them or all of us are going to have to do battle 
with the drug co.ha ha!

Meredith



From: Lori Taylor llt1...@sbcglobal.net
To: greg g...@eskimo.com, quad-list@eskimo.com
Sent: Tuesday, December 18, 2012 2:00:22 PM
Subject: Re: [QUAD-L] Propantheline





Hey Greg,
 
I'm glad to hear Propantheline is working for you.  I know it works real well 
for me too.  I'm not a doctor, but have been a quad for over 34 years.  So, I 
feel the need to give you a bit of caution...
Sweating and rapid heart rate--heart beating hard are a quad's '6th 
sense'...pain sensory and is a part of dysreflexia...
 
I cut my 15mg propantheline in half.  That way, I can see if I can stop the 
sweating w/out my mouth drying out too bad and w/out my heart beating too hard. 
 If I feel ok, but am still  sweating after a bit, I take the other half.  
Please be careful b/c what you're dsaying about your heart beat could be a 
recipe for disaster.  I'm only saying this b/c I know that feeling.  
 
Please consiider 1/2 a pill.
 
 

 




From: greg g...@eskimo.com
To: quad-list@eskimo.com
Sent: Tue, December 18, 2012 1:31:49 PM
Subject: [QUAD-L] Propantheline

I sweat so bad during my b-program, it is very uncomfortable. I mean buckets.
A few people here mentioned Propantheline. I tried it and it worked great. I 
took 15mg.
The only issues I had was dry mouth for a few hours and my heart beat hard for 
just a bit.
I really hope it continues to work well, it is so much better.
I just pop one before I start.
Thanks everyone for the
 tip.
Greg



  

Fwd: [QUAD-L] Low Protein, etc.

[William Willis]

You might try Pro-stat. It is concentrated protein in liquid form. Tis a bit 
like cough syrup and can usually be found on eBay.

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: wheelch...@aol.com
 Date: April 4, 2012 8:29:54 PM EDT
 To: g...@eskimo.com, quad-list@eskimo.com
 Subject: Re: [QUAD-L] Low Protein, etc.
 

 GNC, has powder Protein in a container and it really tastes good when mixed 
 with a glass of milk. You can double the recommended powder for extra protein.
 Best Wishes
  
 In a message dated 4/4/2012 6:15:58 P.M. Central Daylight Time, 
 g...@eskimo.com writes:
 I have a wound next to my tailbone that just will not fill in. I just had my 
 protein checked and even though I’ve increased it in my diet, it is still 
 lower than it was when it was low. So now I have low protein, low blood 
 count, and low testosterone. I take a max dose of testosterone pumps and it’s 
 barely raising. My body is just not adsorbing this stuff, natural or in extra 
 supplements. Yet another doc appointment to try and figure it out. Greg 

FW: [QUAD-L] Dave AZ

[William Willis]

Well said, Nancy. I turned 60 on May 23, 41 years post-injury. Day to day is 
exactly right. Not to be a sad-sack, but sometimes I wish that day would hurry 
up and get here. And I agree, both Daves were great guys. 

Date: Mon, 28 May 2012 07:51:52 -0700
From: onemofor...@yahoo.com
Subject: Re: [QUAD-L] Dave AZ
To: nlg52...@yahoo.com; quad-list@eskimo.com

Amen Nan! I too am so sorry and saddened to hear about Dave. He gave this list 
so much, and I am sure so many others as well! -thankful for each dayTim
  From: Nan nlg52...@yahoo.com
 To: quad-list@eskimo.com quad-list@eskimo.com 
 Sent: Sunday, March 25, 2012 5:22 PM
 Subject: Re: [QUAD-L] Dave AZ
   


I am so sorry to hear about Dave.  He was a wonderful man and great source of 
information.  

Dave was injured one year before I was, I don't remember how old he was, but I 
remember that he had a wife, children and grandchildren just like me.  I will 
be 60 in May and 44 years post in June.  I now live day to day, hour by hour, 
minute by minute.  I have never appreciated life like I do now. I know my turn 
will come one day.  I just hope that I will have done justice to the life I was 
given.
My condolences to his family.  God Speed Dave.  You will be missed!
Nancy Davis Gillen (Nan)Facebook -
 https://www.facebook.com/profile.php?id=10356803640


  


  

FW: [QUAD-L] 39 years today!!

[William Willis]

Good for you Bobbie! 39 years is a long time to be stuck in the swamp. It takes 
a train load of strength and courage to battle quad crap for so long. God bless 
you and keep on rollin'! Good luck with that pressure sore too. I'm battling 
one of those !@3$%!! things myself.
 
 From: bobbie...@aol.com
 To: quad-list@eskimo.com
 Date: Tue, 17 Apr 2012 17:01:15 -0400
 Subject: [QUAD-L] 39 years today!!
 
 Hi All,
   I just CAN'T believe it's been 39 freaking YEARS since my motor cross 
 jumping accident! Pete and I are going to celebrate with dinner in bed, since 
 I'm stuck with a bed sore.
   I've absolutely decided next year on my 40th anniversary I'm going to have 
 a VERY large catered party. I have already started saving for the expense for 
 a hoarders(sp) party at 2:00 or 3:00 on a Saturday.
Bobbie 
 
 
 
 Sent from my iPad
  

FW: [QUAD-L] Low Protein, etc.

[William Willis]

I think that is Pro-stat.

Date: Wed, 4 Apr 2012 16:33:05 -0700
From: lilroamin...@verizon.net
Subject: Re: [QUAD-L] Low Protein, etc.
To: quad-list@eskimo.com

Back when I was in the nursing home and had pressure sores they had me on this 
drink dont remember the name but it had exra protein n other stuff that helped 
promote healing, I'll try to find out the name and get back with you.
Gina

Do just once what others say you can't do, and you will never pay attention to 
their limitations again.

--- On Wed, 4/4/12, Greg g...@eskimo.com wrote:


From: Greg g...@eskimo.com
Subject: [QUAD-L] Low Protein, etc.
To: quad-list@eskimo.com
Date: Wednesday, April 4, 2012, 6:15 PM






I have a wound next to my tailbone that just will not fill in. I just had my 
protein checked and even though I’ve increased it in my diet, it is still lower 
than it was when it was low. So now I have low protein, low blood count, and 
low testosterone. I take a max dose of testosterone pumps and it’s barely 
raising. My body is just not adsorbing this stuff, natural or in extra 
supplements. Yet another doc appointment to try and figure it out. Greg 
   

FW: [QUAD-L] Life Insurance post injury

[William Willis]

The only way I could get it was through work where a physical wasn't required. 
Then the maximum was $50,000. There are many acceptance guaranteed policies 
out there. However, they are whole life and max at $10,000 to $15,000.

To: quad-list@eskimo.com
From: airgant...@aim.com
Date: Sun, 8 Apr 2012 23:43:00 -0400
Subject: [QUAD-L] Life Insurance post injury

Hello all,



Have any of you'll been able to purchase life insurance after being injured?





Larry


  

[QUAD-L] FW: [Quads United] A FELLOW QUAD, BOBBIE HUMPHRIES SAID I COULD POST...

[William Willis]

Bobbie, some very interesting and valuable information. Unfortunately, I don't 
have a trust fund other than trust in the Lord. The expense and red tape are 
just mind-numbing.

Date: Sun, 8 Apr 2012 06:30:41 -0700
To: quadsuni...@groups.facebook.com
From: notification+ma24w...@facebookmail.com
Subject: [Quads United] A FELLOW QUAD, BOBBIE HUMPHRIES SAID I COULD POST...




FacebookMichael Vestal posted in Quads UnitedMichael Vestal 9:30am Apr 8 A 
FELLOW QUAD, BOBBIE HUMPHRIES SAID I COULD POST THIS HERE ON FACEBOOK I THOUGHT 
WAS VERY INFORMATIVE:
 
  Hi All,
   My family opened IrrevocableSupplemental Needs Trust Fund we all 
  learned a lot going through the process. It must, and only can be, set up 
  by a lawyer. There are a few different kinds, the one I mentioned and an 
  Supplemental Needs Trust Fund Special Needs Trust Fund These trust 
  funds are already written up, you and a lawyer sit down together to 
  figure out which one best suites your individual needs and situation. It 
  cost $1,500 to set up with our lawyer.
Here are some questions I had for my Dad's lawyer after I read his will 
  and the answers; (a one time amount of money was given to me by my father 
  one month before he passed away, that's why the trust fund was set up.)
 
  Can I have a check written out to my home health aid personally, not the  
agency? - Answer - yes
  Can I have a check written out to individual people, family members,  
friends?
  - Answer - yes
 
  What if I go into a nursing home?
  - Answer -  No nursing home, or any other institution, can touch any of 
  the trust money.
 
  Can I contest the will because I don't like the trust?
  - Answer - I cannot change what my Dad wrote or wishes were if a judge 
  finds that Dad was not of sound mind at the time he wrote his will
 
  Is there 1 trust or 2?
 - Answer - Right now there are 2 trusts 1. The one that Patti, my sister 
  the trustee, opened and has DD as secondary. 2. One Dad established and 
  has Ray as primary and Michael as secondary. The Ray/Michael trust will 
  not be set up until Nellie (my step Mother) pass's away They can be merged 
  with some of paper work.
 
  Page 8 Part A
  What dose this sentence mean?   … the trustee shall annually add to the 
  principal of such trust the balance of net income not so paid or applied.
  - Answer - The money in the trust will be making intreats, if I don't 
  spend the intreats then I can not spend it the next year (or 50%?)
 
  In my Fathers will he stated that he wanted a … Supplemental Needs Trust 
  set up for me -- my sister just set up an Irrevocable Supplemental Needs 
  Trust
  Are they in conflict of each other AND can monies from the Supplemental 
  Trust be transferred into the Irrevocable Trust?
  - Answer - yes, but it takes a lot of paper work - you can have more than 
  one trust fund
 There has to be 2 people on the paper work to open the trust fund at a 
  bank that you choose, a primary trustee and a secondary trustee I have 
 my 2 sister's without hesitation. I met my sister Patti at he bank to open 
 the trust in case I had questions. An investment banker had to open the 
  trust, so we made an appointment. It took about 11/2 hours total to go 
  through all the paper work. Then Patti was told that she had to inform 
  social security about the trust because I collect SSI. She also had to 
  call the IRS to get a tax ID number because I/she will have to pay tax's 
  on the money.
One of the first things I got with the trust money was a Hunter Douglas 
 motorized window shade for my bedroom $750 since I spend so much time in 
  bed and I get pounded by the sun.
   Dose anybody else here have a trust fund?
  Bobbie
View Post on Facebook · Edit Email Settings · Reply to this email to add a 
comment.
  

FW: [QUAD-L] I lost my Dad

[William Willis]

I lost my dad back in '03. We were very close. He had been my right hand man 
since I got hurt back in '71 at age 19. I wasalready prone to depression and 
that nearly pushed me over the edge. I just did not want to live any more even 
though I still had my mother and two kids. Finally my doc put me on 
anti-depressants. I tried two or three that didn't work and finallysettled on 
Paxil. It has made a huge difference. I still get the dark cloud occasionally 
but nothing like before. Talk to your doc about it. 

 From: bobbie...@aol.com
 To: quad-list@eskimo.com
 Date: Wed, 7 Mar 2012 22:42:00 -0500
 Subject: [QUAD-L] I lost my Dad
 
 Hi All,
   I've been having a hard time since I my Daddy passed away January. I 
 haven't seen him in over 10 years. Three years ago he moved into a nursing 
 home, because of his Parkinson's, only 3 hours one way. Pete and I planed a 
 trip to see him but Dad called and said … I heard you are planning a trip up 
 to see me, I want you to promise me something … I want you to promise me you 
 won't make the trip up to see me. I know how hard it will be on your body … 
 now let me talk to Pete. I had to honor his request but as I did I KNEW I 
 was never going to see him alive again … I was right, and now he's gone.
 Bobbie
 
  
 
 Sent from my iPad
  

FW: [QUAD-L] ileovesicostomy

[William Willis]

That is a good question. I don't think I have ever heard of this procedure 
before.










Quadius, does this procedure have any common names?
Best Wishes
 

In a message dated 2/21/2012 5:51:34 P.M. Central Standard Time, 
quad...@gmail.com writes:
I have 
  been experiencing a multitude of problems over the last year and finally I 
had 
  a cystoscopy done in August which showed there were no stones or any other 
  obstructions.  I had been experiencing a lot of pain from the catheter 
  rubbing against the back of the bladder wall.

I have managed to tape my 
  suprapubic (SP) against a stat lock device that I'm using on my lower 
  abdomen.  This is working well with the pain most of the time, but I am 
  still having problems with my catheter not draining properly at times.  
  Repositioning the bag so that the urine has to travel up seems to help about 
  50% of the time, but there also seems to be those times when we have to flush 
  with some saline in order to get it draining again.

When I explain this 
  to be urologist, who works on a multitude of quadriplegics here in Tampa and 
  as been my urologist for the last 10 years) she informed me that I would be 
an 
  ideal candidate for the ileovesicostomy.  She told me that my catheter 
  had atrophied so significantly that it was probably one of the only options 
  left up to me.  I have been procrastinating and thought I had everything 
  resolved, but I have been experiencing a lot of problems lately.  I think 
  I'm just delaying the inevitable.

Has anyone on this list have the 
  procedure and if so would they mind telling me their experiences?

I am 
  searching through forums right now and trying to gather as much information 
as 
  I can.  I'm planning on scheduling another meeting with my urologist in 
  order to allay my fears.  I haven't had surgery since I have been 
  paralyzed and I'm terribly frightened of general anesthetic.  I don't 
  want to be put back on a ventilator after spending four months of what I now 
  think were the worst months of my life fighting to get off the 
  ventilator.

Anyway, if you can help out I really 
  appreciated.
Quadius
PS please excuse any errors.  Among the backup 
  to my backup microphone and it has some static bursts into it right now.  
  I really need to get my computer and microphones within working order 
  again.
  

FW: [QUAD-L] Intimacy

[William Willis]

I have been married since 1990, have two kids, and retired last year after 31 
years of teaching high school English. I am c5 from a diving accident in 1971 
at age 19. Until about 6 or 7 years ago my sex drive was relatively normal (for 
a quad). Since then it seems like my libido has just died. I mean desire, 
virility, ability -- the whole package has just gone down the drain. Needless 
to say it is very depressing and has just been a disaster for my beloved wife. 
She is more my nurse than my wife. I don't know if it is my medicine, my age,my 
decreasing vitality, or my mental state. I love my wife dearly, and the whole 
situation has just about thrown me down a black hole. Anyone else had this 
experience?

Date: Thu, 24 Nov 2011 16:57:59 -0500
To: quad-list@eskimo.com
From: d...@unh.edu
Subject: Re: [QUAD-L] Intimacy





great story Dave!  I wish I had one like it but alas no such
luck.  The closest I ever came to a relationship was the occasional
hand job and a few girls that were not ashamed to show their naked
bodies.  From talking to my quad friends, that's about all we ever
got.  To me this is very sad but we were never in the right place at
the right time.


I once hired a stripper and I was amazed at her comfort level with
me.  Strangely, I was not aroused by her performance but rather had
an admiration of her genuine sincerity.  The fact that she was so
comfortable being alone with me gave me a feeling of being -- finally --
an adult.  An adult male something I really didn't have until that
point.  After she left, I felt liberated.  I know it might
sound strange but from that point on I had a great deal more confidence
and self assurance.Maybe someday before I die I will have an experience
akin to yours Dave.




At 01:26 PM 11/24/2011, hellodav...@aol.com said something that elicited
my response:

 

I was
injured at 19 - c3 incomplete, and have nearly normal touch sensations -
hot and cold not so much.   I was in a rehab ward with 6 other
sci's all under 21 - 1 of whom had a sister in nursing school who would
visit often.  we told her to bring 6 friends next time and she
did.  they made our 6 month rehab much more bearable. 
Also. my p.t. was a 28 year old female who was very nice to all of us
guys.  1 time she took me and 1 other (para) and his date to the
drive in.  Afterwards, she suggested we all spend the night at her
trailer.  Rick took the couch and she dragged me down the hall and
into her bed. (I was much lighter then.)  We spent the night
determining just what worked and how well it did.  by morning she
said, I'm taking you back - you're killing me.  it was
wonderful to know all was not 'broken'.  Since then - 1967 - I got
married to a h.s. sweetheart, had 3 kids the old fashioned way, taught
school, and had a 25 year career with Honeywell as a programmer. 
now my job is in India and I fool around on the PC all day trying to
remember which happy hour is on which day, and getting a bigger quad
belly every year.   

I wish everyone here a very blessed Thanks Giving and happy holidays with
good friends and family.

=

What some call health, if purchased by perpetual
anxiety about diet, isn't much better than tedious
disease.
 George Dennison
Prentice


Daveoconnell.com

 

=

 

In a message dated 11/21/2011 1:28:38 P.M. US Mountain Standard Time,
donpric...@yahoo.com writes:



I raised the sex question
because when we discussed turning and positioning in bed the thought
occurred to me that everyone does things differently, and we can learn so
much from each other.  I assume the same holds true for intimacy,
and I know we're always open to information and suggestions. 
:)


 


 My interest in the subject is part personal curiousity and part
professional interest as I do quite a bit of mentoring in my job.


 


I have a million questions, but the first, and most basic, are: 
how has SCI affected your intimate relationships?  Do you have a sex
life?  Do you [and your partner] find it fulfilling?  How does
your current lovelife compare with before your injury?


 


[Keep in mind that your replies may be searchable through Google in
the future, so don't write anything you'd be embarrassed to have
searched.]


 


I will answer my own questions to get the ball rolling:  


 


I was injured at age 18 and had not been sexually active before my
injury.  I realized quickly after my injury [c5-6 complete] that I
could get a physiogenic erection [from touch] but not a psychogenic
erection [from thought.]  I had very reduced sensation in that area
but the sensation I have is very nice.  It took me many years
post-injury to trust someone enough to get to the point of intimacy, but
during college one of my female caregivers slipped into bed with me one
night, removed my catheter and changed my life.  I never guessed
that with my reduced sensation I could climax, but I did.  Not only
that, but even with her doing 

FW: [QUAD-L] 15 minute Paid Survey on Bladder Management

[William Willis]

 I filled this one out. Was pretty simple. Now we see if the 25$ shows up.  
From: c5sc...@gmail.com
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] 15 minute Paid Survey on Bladder Management
Date: Mon, 3 Oct 2011 22:33:43 -0500










yep, hear that.  it almost becomes 'persistance' 
while opening another tab
 
Eric W Rudd
c5sc...@gmail.com

  - Original Message - 
  From: 
  Lissette 
  Whitehead 
  To: wheelch...@aol.com ; c5sc...@gmail.com 
  ; quad-list@eskimo.com 
  Sent: Monday, October 03, 2011 10:12 
  PM
  Subject: RE: [QUAD-L] 15 minute Paid 
  Survey on Bladder Management
  

  What kind of surveys do you fill out Eric? I belong to several 
  survey sites and I do get paid but some surveys
are so long and don't 
  seem to pay that much, of course it ads up and if there's not much more to do 
  I don't mind
filling them out, except for when I'm doing one for about an hour 
  and then it says the study reached the required
number of 
  participants, that kind of pisses me off.

 
  
Lissette Whitehead
1177 Broadway Suite #4
Chula Vista, CA 
  91911
www.lissettesgoaltowalk.synthasite.com
www.lwgripgloves.com

 

  
  
  From: wheelch...@aol.com
Date: Mon, 3 Oct 2011 22:52:25 -0400
Subject: 
  Re: [QUAD-L] 15 minute Paid Survey on Bladder Management
To: 
  c5sc...@gmail.com; quad-list@eskimo.com


  
  No, I did not have the time and chose to forward it to others who might 
  have the time.  I was going to fill it out this evening. (guess I'm not 
  now)
  Best Wishes
   
  
  In a message dated 10/3/2011 9:50:22 P.M. Central Daylight Time, 
  c5sc...@gmail.com writes:
  
out of curiosity did u take it?
 
Eric W Rudd
c5sc...@gmail.com

  - 
  Original Message - 
  From: 
  wheelch...@aol.com 
  To: 
  c5sc...@gmail.com ; quad-list@eskimo.com 
  Sent: 
  Monday, October 03, 2011 9:34 PM
  Subject: 
  Re: [QUAD-L] 15 minute Paid Survey on Bladder Management
  

  Thanks Eric.  I received that notice only this afternoon before 
  forwarding to the Quad List.  I have sent an email to that Study in 
  Canada/UK and advised them about securing private information and then 
  replying that the study was full.  I felt deceived and made sure that 
  Jelena was aware of what she did to so many.
  Best Wishes
   
  
  In a message dated 10/3/2011 8:21:43 P.M. Central Daylight Time, 
  c5sc...@gmail.com writes:
  
I'll comment on the getting paid part.  YTD 
I've made $126.50 from filling surveys, watching video etc.  While 
this doesn't seem like much, it hasn't cost anything but 
time.
 
I'll also give Wheel an attaboy, although, not for 
this one as I didn't qualify either...but, if I remeber I've made $30 
from surveys for...uh used to be Barnes-Jewish Hospital in 
StLouis.
 
Eric W Rudd
c5sc...@gmail.com

  - 
  Original Message - 
  From: 
  Lissette Whitehead 
  To: 
  steve.olda...@comcast.net 
  ; wheelch...@aol.com ; windjammerm...@aol.com 
  Cc: 
  quad-list@eskimo.com 
  Sent: 
  Monday, October 03, 2011 7:54 PM
  Subject: 
  RE: [QUAD-L] 15 minute Paid Survey on Bladder Management
  

  Yeah, it has happened to me a couple times. It made me 
  wonder if anyone ever gets paid

 
  
Lissette Whitehead
1177 Broadway Suite 
  #4
Chula Vista, CA 91911
www.lissettesgoaltowalk.synthasite.com
www.lwgripgloves.com

 

  
  
  From: steve.olda...@comcast.net
To: 
  wheelch...@aol.com; windjammerm...@aol.com
CC: 
  QUAD-LIST@eskimo.com
Subject: 
  RE: [QUAD-L] 15 minute Paid Survey on Bladder Management
Date: Mon, 
  3 Oct 2011 18:22:41 -0400


  

  

  
  Don't 
  waste your time on this. They collect a fair amount of information on 
  you, then tell you the study is full and they are not taking any more 
  participants. They should have stated that before collecting any 
  information at all.
   
  Steve 
  - C4, 23 years
   
  
  
  From: 
  wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: 
  Monday, October 03, 2011 4:19 PM
To: 
  windjammerm...@aol.com
Cc: 
  QUAD-LIST@eskimo.com
Subject: [QUAD-L] 15 minute Paid Survey 
  on Bladder Management
   
  
  Make 
  some money !
  
  Best 
  Wishes
  
   
  
  




From: 
jrasko...@mrg.net
To: wheelch...@aol.com
Sent: 10/3/2011 
3:00:12 P.M. Central Daylight Time
Subj: 15 minute Paid Survey on 

[QUAD-L] scam - please read

[William Willis]

To all my friends, my computer has been hijacked and a money-making scam sent 
in my name to everyone in my address book. Please delete it -- it is NOT from 
me. I don't know what it is or where it came from. I apologize for the 
foolishness. If you know anything about who started this scam, let me know. 
Thanks. Larry Willis   

FW: [QUAD-L] First Posting

[William Willis]

Wow, Phil, I think you are the first Zealander we've had on here. Welcome.  You 
have indeed made contact! Let the introduction begin. Larry Willis, Kentucky, 
USA

 From: p-we...@ihug.co.nz
 To: quad-list@eskimo.com
 Date: Sun, 2 Oct 2011 09:46:20 +1300
 Subject: [QUAD-L] First Posting
 
 Hi All
 
 I'm a long time 'lurker' on the list.
 
 I'll see if I've got the correct address before introducing myself.
 
 
 Best
 
 Philip D Wells
 280 Paora Road
 RD 37
 Okato
 Taranaki
 New Zealand 4381
 
 p-we...@ihug.co.nz
 
 
  

FW: [QUAD-L] Meds and blood pressure

[William Willis]

 Very same problem here. Then I get very weak and my neck and shoulders hurt. 
Also, my bp spikes every morning while I'm getting ready for the day. My head 
throbs, breath gets shallow, and I get very weak. No doubt it is AD. It takes 
about an hour of sitting up for me to level out. Larry Willis


Date: Mon, 18 Apr 2011 17:58:39 -0700
From: onemofor...@yahoo.com
Subject: Re: [QUAD-L] Meds and blood pressure
To: quad-list@eskimo.com; ljtbe...@yahoo.com; gah17...@aol.com






I take the same as you Lucinda and have the same drops after I eat. My pressure 
jumps all over the place.
Tim c5-c6


--- On Tue, 4/5/11, LJT ljtbe...@yahoo.com wrote:


From: LJT ljtbe...@yahoo.com
Subject: Re: [QUAD-L] Meds and blood pressure
To: quad-list@eskimo.com
Date: Tuesday, April 5, 2011, 8:27 PM






Glenn,
my normal blood pressure right now is around 90/50. I don't know about the rest 
of you, but my blood pressure tends to drop tremendously after I eat. I take a 
couple meds before eating to try and combat that from happening. One of them is 
Midodrine and the other is fludrocortisone. Sometimes they work, sometimes they 
don't. I've been told that if you take too many/combine opiates that can drop 
your blood pressure and your breathing can shallow out to a dangerous level. 

Lucinda
C-4,5 complete
July 31, '05
Mpls., MN
 

--- On Tue, 4/5/11, gah17...@aol.com gah17...@aol.com wrote:


From: gah17...@aol.com gah17...@aol.com
Subject: [QUAD-L] Meds and blood pressure
To: quad-list@eskimo.com
Date: Tuesday, April 5, 2011, 11:13 AM



I have several questions about medications and blood pressure.
 
Many of the articles that I read on the Internet suggests that quads have a low 
blood pressure.  What is your experience with blood pressure?  Many of the 
articles suggest that if your blood pressure is slightly above normal, EX: 
170/100, it's time to think about calling an ambulance.
 
My doctor has put me on Baclofen.  I know that some of you are on this 
medication, what do you use it for, any side effects, does it do anything with 
your blood pressure?
 
Does anyone take baclofen and ditropan?
 
Thanks,
 

Glenn Henry
  

FW: [QUAD-L] Meds and blood pressure

[William Willis]

 Very same problem here. Then I get very weak and my neck and shoulders hurt. 
Also, my bp spikes every morning while I'm getting ready for the day. My head 
throbs, breath gets shallow, and I get very weak. No doubt it is AD. It takes 
about an hour of sitting up for me to level out. Larry Willis


Date: Mon, 18 Apr 2011 17:58:39 -0700
From: onemofor...@yahoo.com
Subject: Re: [QUAD-L] Meds and blood pressure
To: quad-list@eskimo.com; ljtbe...@yahoo.com; gah17...@aol.com






I take the same as you Lucinda and have the same drops after I eat. My pressure 
jumps all over the place.
Tim c5-c6


--- On Tue, 4/5/11, LJT ljtbe...@yahoo.com wrote:


From: LJT ljtbe...@yahoo.com
Subject: Re: [QUAD-L] Meds and blood pressure
To: quad-list@eskimo.com
Date: Tuesday, April 5, 2011, 8:27 PM






Glenn,
my normal blood pressure right now is around 90/50. I don't know about the rest 
of you, but my blood pressure tends to drop tremendously after I eat. I take a 
couple meds before eating to try and combat that from happening. One of them is 
Midodrine and the other is fludrocortisone. Sometimes they work, sometimes they 
don't. I've been told that if you take too many/combine opiates that can drop 
your blood pressure and your breathing can shallow out to a dangerous level. 

Lucinda
C-4,5 complete
July 31, '05
Mpls., MN
 

--- On Tue, 4/5/11, gah17...@aol.com gah17...@aol.com wrote:


From: gah17...@aol.com gah17...@aol.com
Subject: [QUAD-L] Meds and blood pressure
To: quad-list@eskimo.com
Date: Tuesday, April 5, 2011, 11:13 AM



I have several questions about medications and blood pressure.
 
Many of the articles that I read on the Internet suggests that quads have a low 
blood pressure.  What is your experience with blood pressure?  Many of the 
articles suggest that if your blood pressure is slightly above normal, EX: 
170/100, it's time to think about calling an ambulance.
 
My doctor has put me on Baclofen.  I know that some of you are on this 
medication, what do you use it for, any side effects, does it do anything with 
your blood pressure?
 
Does anyone take baclofen and ditropan?
 
Thanks,
 

Glenn Henry
  

RE: [QUAD-L] AD - once is enough

[William Willis]

I have had two very serious episodes of AD that resulted in ambulance rides. 
The sad and scary part was that nobody at the hospital knew anything about it. 
My bp was 180/120 and all they did was keep me for observation for about 5 hrs. 
until I calmed down. I truly thought I was going to die. We never found a 
direct cause, but our best guess is impacted bowel --  10 lbs. of poop in a 5 
lb. sack.  Larry Willis, c-5, 1971
 


From: diannal...@aol.com
Date: Thu, 13 Jan 2011 16:59:09 -0500
Subject: Re: [QUAD-L] AD - once is enough
To: hellodav...@aol.com; quad-list@eskimo.com




In a message dated 1/13/2011 3:43:05 PM Eastern Standard Time, 
hellodav...@aol.com writes:
 She was here in about the longest 45 minutes I have ever spent 

I didn't know we could survive 45 minutes of that! I've been in A.D. from 
plugged foleys and I felt like I was going to stroke out any minute from the 
headache. Once we put on a new leg bag on that did not have a slit in it for 
the urine to drain. We always check them now...even Bard products can 
malfunction :-) I'm one of the lucky ones who has a caregiver 24/7. When those 
moments arise you REALLY APPRECIATE him/her!!!
Glad your ok, Dave.
Dianna

RE: [QUAD-L] AD - once is enough

[William Willis]

I don't think my whole message made it through. Here tis again.
 




From: lwillis82...@msn.com
To: quad-list@eskimo.com
Subject: RE: [QUAD-L] AD - once is enough
Date: Thu, 13 Jan 2011 17:17:59 -0500




I have had two very serious episodes of AD that resulted in ambulance rides. 
The sad and scary
 part was that nobody at the hospital knew anything about it. My bp was 180/120 
and all they did
 was keep me for observation for about 5 hrs. until I calmed down. I truly 
thought I was going to
 die. We never found a direct cause, but our best guess is impacted bowel --  
10 lbs. of poop in
 a 5 lb. sack.  Larry Willis, c-5, 1971
 




From: diannal...@aol.com
Date: Thu, 13 Jan 2011 16:59:09 -0500
Subject: Re: [QUAD-L] AD - once is enough
To: hellodav...@aol.com; quad-list@eskimo.com



In a message dated 1/13/2011 3:43:05 PM Eastern Standard Time, 
hellodav...@aol.com writes:
 She was here in about the longest 45 minutes I have ever spent 

I didn't know we could survive 45 minutes of that! I've been in A.D. from 
plugged foleys and I felt like I was going to stroke out any minute from the 
headache. Once we put on a new leg bag on that did not have a slit in it for 
the urine to drain. We always check them now...even Bard products can 
malfunction :-) I'm one of the lucky ones who has a caregiver 24/7. When those 
moments arise you REALLY APPRECIATE him/her!!!
Glad your ok, Dave.
Dianna

FW: [QUAD-L] 38th anniversary....

[William Willis]

congrats Tim. Yesterday was my 38th quad-versary. I never dreamed I would live 
this long.



Date: Sat, 8 Aug 2009 07:16:25 -0700
From: onemofor...@yahoo.com
Subject: Re: [QUAD-L] 21st anniversary
To: daa...@aol.com; quad-list@eskimo.com

Thanks Dana- 
I feel blessed; and bloated too(ha-ha) my celebration of life dinner was 
homemade Mexican food, fresh salsa from my salsa garden and más más más 
cervezas.
 
Tim
 http://whoopiekat.com/crockscrib/index.htm

WhoopieKat.com

--- On Sat, 8/8/09, daa...@aol.com daa...@aol.com wrote:


From: daa...@aol.com daa...@aol.com
Subject: Re: [QUAD-L] 21st anniversary
To: onemofor...@yahoo.com
Date: Saturday, August 8, 2009, 2:22 AM



Hi Tim,
I wish you a happy anniversary, sorry I'm a day late..  I remember seeing the 
great pictures of your family the last time I looked at your website.  You and 
they are blessed.
Dana
 
 





_
Get your vacation photos on your phone!
http://windowsliveformobile.com/en-us/photos/default.aspx?OCID=0809TL-HM

FW: [QUAD-L] 21st anniversary....

[William Willis]

Tim, your story is so similar to mine it is eerie. Same day, same type 
accident, same rescue experience, same injury, same hospital stay, 2 kids, 
married, some feeling but no movement.  Wierd. Larry Willis



From: poaj...@sbcglobal.net
To: onemofor...@yahoo.com; steve.olda...@comcast.net; quad-list@eskimo.com
Subject: RE: [QUAD-L] 21st anniversary
Date: Fri, 7 Aug 2009 15:37:51 -0700
















Congratulations-that’s what life is all about, appreciating the
good and glossing over the bad!

 

Joan C4

 

What to do for yourself dies with you, what you do for others lives
forever.

 



From: t crook
[mailto:onemofor...@yahoo.com] 

Sent: Friday, August 07, 2009 2:04 PM

To: Steve Oldaker; q-list

Subject: RE: [QUAD-L] 21st anniversary



 


 
  
   
  
  As
  my dad always has said- it is a great life if you don't weaken!
  
   
  Tim
  c5-c6, 21 yrs.post today
  
   
  
  
  My
  quad page/story- new with updates 
http://whoopiekat.com/crockscrib/index.htm
  
   
  

  WhoopieKat.com

  

  --- On Fri, 8/7/09, Steve Oldaker steve.olda...@comcast.net
  wrote:
  
  

  From: Steve Oldaker steve.olda...@comcast.net

  Subject: RE: [QUAD-L] 21st anniversary

  To: 't crook' onemofor...@yahoo.com

  Date: Friday, August 7, 2009, 12:42 PM
  
  
  Congrats,
  Tim! I made it 21 years this year as well.
  
   
  
  Steve
  - C4
  
   
  
  From: t crook
  [mailto:onemofor...@yahoo.com] 

  Sent: Friday, August 07, 2009 1:39 PM

  To: q-list

  Subject: [QUAD-L] 21st anniversary
  
   
  
   


Celebrating 21 years of Life!


 


Tim c5-c6, 21 yrs.post today


 


My quad page/story- new with updates 
http://whoopiekat.com/crockscrib/index.htm


Oh- and you can take a spasm test on the links page.


 


 


 


 


   
  
   
  
 


 

No virus
found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.392 / Virus Database: 270.13.46/2288 - Release Date: 08/07/09 
13:13:00



_
Get your vacation photos on your phone!
http://windowsliveformobile.com/en-us/photos/default.aspx?OCID=0809TL-HM

FW: [QUAD-L] roho-ho-ho-ho

[William Willis]

Thanks guys. It is on its way back to  Roho, still under warranty.

From: wheelch...@aol.com
Date: Mon, 3 Aug 2009 11:57:34 -0400
Subject: Re: [QUAD-L] roho-ho-ho-ho
To: ddh...@sbcglobal.net; lwillis82...@msn.com; quad-list@eskimo.com








I've called the factory a couple of times in the past.  They are 
located in Illinois.  Customer service has always been nice and 
helpful.  Especially when it comes to the Roho name and warranty.  
Call their 800 and see for yourself.  Then let the rest of us know what 
happened.
 
Best Wishes
 

In a message dated 8/3/2009 10:55:02 A.M. Central Daylight Time, 
ddh...@sbcglobal.net writes:

  


  They have at least a 1 year warranty--- if you can't fix 
and you have a provider, they will give you a loaner and have roho fix 
or replace it.  Most all my roho cushions have lasted at least 2 
years. Also at times it can be a leak at the valve stem--roho can fix 
that too.  Dan H.

--- On Sun, 8/2/09, wheelch...@aol.com 
wheelch...@aol.com wrote:


From: 
  wheelch...@aol.com wheelch...@aol.com
Subject: Re: [QUAD-L] 
  roho-ho-ho-ho
To: lwillis82...@msn.com, 
  quad-list@eskimo.com
Date: Sunday, August 2, 2009, 10:50 PM


  
  As suggested, return your 3 cushions to the factory and wait for 
  your new ones.
  Best Wishes
   
  
  In a message dated 8/2/2009 12:02:25 P.M. Central Daylight Time, 
  lwillis82...@msn.com writes:
  Hi guys, how long does a roho cushion usually  
last for  you guys? The last three I have  had went flat 
after only six months. That  just  doesn't seem 
right  for  the cost. They send a repair  kit, but I 
haven't had much luck with it. What do you think? Larry 
Willis



Express your personality in color! Preview and select themes for 
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[QUAD-L] roho-ho-ho-ho

[William Willis]

Hi guys, how long does a roho cushion usually  last for  you guys? The last 
three I have  had went flat after only six months. That  just  doesn't seem 
right  for  the cost. They send a repair  kit, but I haven't had much luck with 
it. What do you think? Larry Willis

_
Express your personality in color! Preview and select themes for Hotmail®. 
http://www.windowslive-hotmail.com/LearnMore/personalize.aspx?ocid=PID23391::T:WLMTAGL:ON:WL:en-US:WM_HYGN_express:082009

[QUAD-L] more roho

[William Willis]

anyone know the difference in the roho mosaic  cushion and  the regular roho 
cushion? They look and sound the same but there is a big price difference.

_
Get back to school stuff for them and cashback for you.
http://www.bing.com/cashback?form=MSHYCBpubl=WLHMTAGcrea=TEXT_MSHYCB_BackToSchool_Cashback_BTSCashback_1x1

FW: [QUAD-L] roho-ho-ho-ho

[William Willis]

Thanks Steve. I'll  check it out tomorrow.

From: steve.olda...@comcast.net
To: lwillis82...@msn.com; quad-list@eskimo.com
Subject: RE: [QUAD-L] roho-ho-ho-ho
Date: Sun, 2 Aug 2009 13:08:00 -0400



















Hi Larry,

 

Your Roho cushion should be under warranty. I have returned them
for repair and they have either sent me a new one or repaired mine at no cost.

 

Steve - C4, 21 years

 





From: William Willis
[mailto:lwillis82...@msn.com] 

Sent: Sunday, August 02, 2009 1:02 PM

To: quad-list@eskimo.com

Subject: [QUAD-L] roho-ho-ho-ho





 

Hi guys, how long does a roho cushion
usually  last for  you guys? The last three I have  had went
flat after only six months. That  just  doesn't seem right 
for  the cost. They send a repair  kit, but I haven't had much luck
with it. What do you think? Larry Willis







Express
your personality in color! Preview and select themes for Hotmail®. Try it now.


_
Get back to school stuff for them and cashback for you.
http://www.bing.com/cashback?form=MSHYCBpubl=WLHMTAGcrea=TEXT_MSHYCB_BackToSchool_Cashback_BTSCashback_1x1

FW: [QUAD-L] 35 year anniversary

[William Willis]

I'll celebrate my 38th anniversary on Aug.7. It has been a long, difficult 
haul, but I am still here. Larry Willis

From: daa...@aol.com
Date: Mon, 27 Jul 2009 16:23:15 -0400
Subject: Fwd: [QUAD-L] 35 year anniversary
To: quad-list@eskimo.com








I forgot to include Dave.  He is sorely missed also.  They all 
were great guys that were great contributors to the 
list.
Dana
 


--Forwarded Message Attachment--
From: daa...@aol.com
Date: Mon, 27 Jul 2009 16:11:50 -0400
Subject: Re: [QUAD-L] 35 year anniversary
To: diannal...@aol.com; quad-list-requ...@eskimo.com









I can't imagine 46 like Glenn Henry, 11 more years.  There was another 
guy that that wrote the donkey tracks that was older I think I remember another 
guy, who I think quadius corresponded with.  There is also a woman whose 
husband was paralyzed in 1953, so it would be 55 .  He has never posted on 
the last and I think he has medical problems.  She has not posted for a 
long time.
I still can't believe Mark, who was so young in quad years, who I 
liked him so much.  I had asked about him as I had not seen him post for a 
while before his death unless I missed it.  I ask on the list and someone 
and someone said, that he was okay.  I now correspond with his sister, She 
had a dream about him and he was doing good.  Isn't that cool. 

Dana

In a message dated 7/27/2009 11:23:00 A.M. Central Daylight 
Time, DiannaL767 writes:
 

  
  In a message dated 7/27/2009 10:28:02 AM Eastern Daylight Time, 
  daa...@aol.com writes:
  I 
can't believe I made it to my 35 th year anniversary.  
  
  Congrats Dana! I just past my 19th. At times I can't fathom 30+ yrs but 
  some of you on this list are a true inspirations! 
  Dianna
  
   
  

  
  An Excellent Credit Score is 750. See 
  Yours in Just 2 Easy Steps!


 
_
Bing™ brings you maps, menus, and reviews organized in one place. Try it now.
http://www.bing.com/search?q=restaurantsform=MLOGENpubl=WLHMTAGcrea=TXT_MLOGEN_Local_Local_Restaurants_1x1---BeginMessage---
 
I can't imagine 46 like Glenn Henry, 11 more years.  There was another  guy 
that that wrote the donkey tracks that was older I think I remember another 
 guy, who I think quadius corresponded with.  There is also a woman whose  
husband was paralyzed in 1953, so it would be 55 .  He has never posted on  
the last and I think he has medical problems.  She has not posted for a  
long time.
I still can't believe Mark, who was so young in quad years, who I  liked 
him so much.  I had asked about him as I had not seen him post for a  while 
before his death unless I missed it.  I ask on the list and someone  and 
someone said, that he was okay.  I now correspond with his sister, She  had a 
dream about him and he was doing good.  Isn't that cool.  
Dana

In a message dated 7/27/2009 11:23:00 A.M. Central Daylight  Time, 
DiannaL767 writes:


In a message dated 7/27/2009 10:28:02 AM Eastern Daylight Time,  
daa...@aol.com writes:

I  can't believe I made it to my 35 th year anniversary.   
Congrats Dana! I just past my 19th. At times I can't fathom 30+ yrs but  
some of you on this list are a true inspirations! 
Dianna

 

 

An Excellent Credit Score is 750. _See  Yours in Just 2 Easy Steps!_ 
(http://pr.atwola.com/promoclk/100126575x1221823322x1201398723/aol?redir=http://www
.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=JulyExcfooterN
O62) 




**A bad credit score is 600  below. Checking won't affect your 
score. See now! 
(http://pr.atwola.com/promoclk/100126575x1221823322x1201398723/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgI
D=62bcd=JulyBadfooterNO62)
---End Message---

FW: [QUAD-L] July 10

[William Willis]

Inspirational, Glenn. Simply fantastic. You have more courage and guts than 
just about anyone I know.

Date: Mon, 27 Jul 2009 13:02:54 -0700
From: thequadl...@yahoo.com
Subject: Re: [QUAD-L] July 10
To: quad-list@eskimo.com

Wonderful story Glenn. Thanks for sharing it.
 
Tim
http://thequadlink.com 
 


--- On Mon, 7/27/09, gah17...@aol.com gah17...@aol.com wrote:


From: gah17...@aol.com gah17...@aol.com
Subject: Re: [QUAD-L] July 10
To: daa...@aol.com
Cc: quad-list@eskimo.com
Date: Monday, July 27, 2009, 9:56 AM



I am finally doing it!  I am finally answering my e-mails from my posting of my 
spinal cord injury July 10.
 
I find that I can not pronounce a simple word, no.  I got myself into a few 
time-consuming projects and I said to myself today, self, answer your e-mails 
before everyone thinks you died and went to heaven.
 
Okay, a few of you ask for some history.
 
I live on the banks of the Susquehanna River and spent a lot of my time 
fishing, hunting and swimming in the river.  The weather prior to July 10, 1966 
was very hot and we had a storm on Thursday.  My mother did not feel safe with 
me boating in the river as it was possible to hit a submerged log or other 
debris.  Instead she said that we could go to the local public pool, a safe 
choice.  That was a decision that she had to live with for the rest of her life.
 
Someone jumped on my back as I was swimming, the lifeguard's girlfriend who was 
sitting on the lifeguard stand because her boyfriend went home.  She was as 
qualified as my dog.
 
Two teenagers that just completed a Red Cross course pulled me out.  I was not 
breathing and for all intents and purposes, dead.
 
They rolled me around on the concrete, beat the back of my neck to clear my 
airway, my partial denture dislodged and I started to breathe.
 
Fast-forward to 1969, I had spent the last 2 1/2 years in a state hospital for 
crippled children.  Due to the fact we could not prove what happened at the 
pool, we received $7,500 settlement and my hospital bill was paid.  Of course 
there was no charge for the state institution that I was a resident for 2 1/2 
years.
 
In the 1960s there was no regiment of treatment for spinal cord injury.  The 
only thing positive that came out of the Vietnam War was that the government 
put gobs of money into the paralyzed vets.
 
My parents finally had enough of their bull and sign me out of the hospital 
December 1969.  The charge nurse took my father aside, told him to take me 
home, buying me a television, and wait for me to die.
 
She is now dead, I have gone through 12 or more televisions, and I'm not 
finished yet.  Do I buy a 32 inch, 37 inch, or 42 inch flat screen TV?  My, my, 
I hate to make such big decisions.
 
Soon after I came home I started selling homemade fishing lures from my parents 
garage.  I expanded somewhat into other fishing and hunting equipment.  In 
ninth grade, one year before my injury, I took electronics 101 and loved it.  I 
got caught up in the CB radio craze, started tinkering and soon knew what I 
wanted to do.  I tried to get a grant from vocational rehabilitation for a home 
correspondence course, but no go.  Their opinion was I could not physically 
work on equipment.  I took the money that I made selling hunting and fishing 
equipment along with money people would send me in cards and started to take a 
home correspondence course.  After I was three quarters of the way through it, 
they realized I was serious.
 
In 1973 I received my associate degree in electronics.  The CB radio craze was 
still escalating and I took over my parents garage and devoted it entirely to 
CB radios.  I hired a part time student to help work on CB radios and with in 
18 months had two full-time technicians.  The room was getting quite cramped.
 
In 1975 I purchased a building lot across the street and built, with the help 
of my father and brother, a ranch-style building that I used entirely for 
electronics.  From CB radios I branched into other consumer electronics and 
into the commercial radio field.
 
In 1981 I married, instant father of three children, and life went on.  My wife 
was an executive secretary and was able to quit her job and work in the 
business around 1985.  With in the next two years our advertising of fire 
equipment service was in two national magazines as well as a magazine targeted 
at Pennsylvania.  We sent semiannual mailers to fire departments in 13 states.  
I had a niche, firemen want their equipment repaired yesterday, so our 
advertising and our service focused on three to five days turnaround unless 
repaired parts were needed.
 
In the early 1990s my wife needed a hip replacement, a fairly common procedure, 
but the surgeon was going through a divorce and drinking heavily and taking 
drugs.  He did everything wrong he could do wrong.  The two follow-up surgeries 
to try and correct his mistakes ended with my wife having a stroke during 
recovery because no one was monitoring the oxygen 

FW: [QUAD-L] Longevity

[William Willis]

Welcome to growing old as a quad, guys. Throw in depression and anxiety as 
well. Larry, 38 yrs.post

Date: Sun, 12 Jul 2009 11:46:06 -0700
From: ddh...@sbcglobal.net
Subject: Re: [QUAD-L] Longevity
To: quad-list@eskimo.com; g...@eskimo.com

MY SITUATION SOUNDS KINDA SIMILAR GREG-- IVE NEVER HAD SPASM'S IN ABOUT 12 
YEARS POST UNTIL THIS YEAR. IN THE PAST I ONLY HAD THEM IF I HAD A UTI. NOW 
AFTER IV'E BEEN UP IN MY CHAIR 3 OR 4 HOURS I BEGIN GETTING TIGHTNESS AND PAIN 
ACROSS MY BACK AND HAVE TO TAKE PAIN MEDS TO HELP WITH SPASMS AND PAIN. AT 
NIGHT AT TIMES I GET SOME A.D. AND HAVE MY WIFE TURN ME AND OR GIVE ME MORE 
PAIN MEDS. WE DON'T HAVE A CLUE WHAT'S GOING ON, DO YOU THINK AN MRI WOULD HELP 
AT ALL? I DON'T KNOW IF I GOT ANY CALCIFICATION IN HIPS OR BACK LIKE YOU SPOKE 
OF. HOW DID YOU FIND OUT? LIKE YOU SAID THOUGH---ON SOME THINGS OPERATING MAY 
MAKE IT COME BACK WORSE. THIS STUFF CAN NAG AND WORRY A PERSON TO DEATH, HOPE 
THINGS GET BETTER FOR ME AND YOU AND OTHERS WITH PROBLEMS ON THE LIST.  
DAN H. ***

--- On
 Sat, 7/11/09, Greg g...@eskimo.com wrote:


From: Greg g...@eskimo.com
Subject: [QUAD-L] Longevity
To: quad-list@eskimo.com
Date: Saturday, July 11, 2009, 8:47 PM






I thought 27 years post was long, you guys have real longevity. My body started 
to break down about 20 years post. I had to start pain meds and daily 
antibiotics.  3 main areas of break downs.
 
1. My UTI’s got so frequent they wanted to do a bladder augmentation, but tried 
a daily antibiotic first. It’s worked pretty good.
 
2. My b-program seems to be slowing down. Probably from the pain meds. But I 
did one of those “Drink Barium Tests” and had some x-rays. One of the diagnoses 
was “Thickening of the rectum walls”.  My guess is it’s from doing so many 
b-programs with “Bullets”, etc. I think this is the most stressful part of my 
routine. I sweat so bad while doing it and need more and more and longer 
dig-stims. It’s just getting harder and harder on me to do it. If it gets much 
worse I’m going to have to look at other options… like… Just “Bagging It”.
 
3. Then my biggest break down I think are my hips. An injury caused Heterotopic 
Ossification. Excess bone growth, where bone starts to grow into the muscles. 
Very painful. They can cut it out, but that can cause it to come back even 
worse. I went 20 plus years with no spasms and no pain meds. Now, without pain 
meds I spasm so bad it makes me grunt. My chest and abdomen constrict so bad it 
feels like someone is standing on my chest. If I recline it’s bad enough it is 
hard to breath.
 
How are you other long termers?
 
Greg
 
 
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FW: [QUAD-L] Goose Bumps Sweats is this AD?

[William Willis]

Same here. I've experienced the cold sweats from day one. It is miserable and 
is often caused by bladder spasms. Ditropan will help it tremendously.


Date: Mon, 6 Jul 2009 13:43:15 -0700
From: ljtbe...@yahoo.com
Subject: Re: [QUAD-L] Goose Bumps  Sweats is this AD?
To: quad-list@eskimo.com; kvogelp...@embarqmail.com

oh, yes. something similar happens to me when my leg-bag gets too full, or if i 
have any other issues that might cause ad. 

Lucinda
C-4,5 complete
July 31, '05  Mpls., MN   

--- On Mon, 7/6/09, Kandy Vogelpohl kvogelp...@embarqmail.com wrote:

From: Kandy Vogelpohl kvogelp...@embarqmail.com
Subject: [QUAD-L] Goose Bumps  Sweats is this AD?
To: quad-list@eskimo.com
Date: Monday, July 6, 2009, 9:47 AM



 
 

Good Morning, I am trying to figure out if my 
husband is having AD episodes  I know for sure he had one when he was 
in the hospital because his blood pressure spiked, and I know it was from a 
kinked hose into his cathetor.  So I am always checking 
that
 
What I am wondering is that my husband breaks out 
in sweats around his shoulders and head, but then will have goose bumps going 
down his forearms.  But his blood pressure is never elevated.  Can he 
have AD without the blood pressure elevation?  He gets so many of the 
symptons except that.
 
Thanks for your help.
 
Kandy (Wife of husband - C-4 Complete Car accident 
2008.  
 
(My husband was hospitalized for a year.  I 
just got him home a month ago.)  I could use any pointers anyone has to 
offer.

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FW: [QUAD-L] BP

[William Willis]

I too have that problem. It hits me during morning cath/bowel routine and when 
I roll to my back. it starts with stomach spasms, then headache, then labored 
breathing.
 As  you know, it is a bit of hell. I don't know exactly what  triggers  it 
either, but it has nearly killed me twice. Larry


Date: Fri, 19 Jun 2009 19:02:51 +
From: linda...@comcast.net
To: Quad-list@eskimo.com
Subject: Re: [QUAD-L] BP





Hi,

Wow, sounds exactly what is going on with me except for the temps. We have done 
what you have with checking for pressure problems  found nothing. My urine 
looks good with some yeasty looking stuff but not that bad. It's got me 
stumped. My right foot is having more spasms with no sores. Like you said, any 
ideas of what might be causing the problem?

Lindaf

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FW: [QUAD-L] Mark

[William Willis]

 Hi Dana, I read your post about Mark. It is just stunning and heart breaking 
to lose Mark and dave both. Quad life is a precarious existence. I guess it is 
a blessing that we can't see the  future. Take care. Larry


From: daa...@aol.com
Date: Wed, 10 Jun 2009 04:33:15 -0400
Subject: Re: [QUAD-L] Mark
To: lwillis82...@msn.com


Hi Larry,
did you see my e-mail, I was so sad to find out.
Dana



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FW: [QUAD-L] Dave Kelmer

[William Willis]

God bless you Dave Kelmer. You were a good man and a good friend. You will be 
sorely missed. With love, Larry Willis

 

 

 


 


From: mikeybird...@embarqmail.com
To: quad-list@eskimo.com
Date: Wed, 3 Jun 2009 20:11:52 -0400
Subject: [QUAD-L] Dave Kelmer





Dave died when they removed a central IV line from his neck.  His body (as per 
his wishes) was sent to a university for scientific study.  His memorial 
service will be at 1pm CT at the Seventh Day Adventist Church, 1305 14th St., 
Wichita Falls, TX 76301.  Jan only asked that you stop and think of Dave and 
his family for a few moments.
 
I sent a small flower arrangement on behalf of the SCIC and QUAD LIST members.
 
As Dave would say: Stay strong. 
 
Bill J.--The one in FL
C5-6 since 7/20/68 Diving accident
Age 58
Leesburg, FL
If you think health care is expensive now, wait until you see what it costs 
when it's free!
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FW: [QUAD-L] Dave Kelmer

[William Willis]

I think Dave and I were the oldest ones on the list. I am 57 and c5 since a 
diving accident in 1971. We had much in common.i too have a sore on my coccyx 
that Ihave battled for 5 years. I have an iv antibiotic for it about twice a 
year. If I remember right,Chris Reeve died of this same thing. Dave was one of 
the finest  and most positive people I have ever known. Ihave a feeling he is 
somewhere doing jumping jacks and pushups right now!
 

Hey Dave! Save me a place! Someday we'll climb trees and run laps together! 
Love you, brother. =) sigh.   Larry Willis

 

 


From: daa...@aol.com
Date: Thu, 4 Jun 2009 12:55:29 -0400
Subject: Re: FW: [QUAD-L] Dave Kelmer
To: scil...@yahoogroups.com; disabledofamer...@yahoogroups.com; 
quad-list@eskimo.com



Dave will really be missed with love, especially his warm and loving wishes he 
always  had for everyone. I always felt free to write to him about anything. He 
always answered with extreme caring.
 
Dana
I did not know that death would occur, just by removing a central line. Would 
someone on the list explain this more clearly.
 
Thank you.

 
In a message dated 6/4/2009 7:11:55 A.M. Central Daylight Time, lwi
lis82...@msn.com writes:
 

God bless you Dave Kelmer. You were a good man and a good friend. You will be 
sorely missed. With love, Larry Willis
 
 
 

 


From: mikeybird...@embarqmail.com
To: quad-list@eskimo.com
Date: Wed, 3 Jun 2009 20:11:52 -0400
 Aruba 10 nine Subject: [QUAD-L] Dave Kelmer





Dave died when they removed a central IV line from his neck.  His body (as per 
his wishes) was sent to a universityor they were according tor scientific 
study.  His memorial service will be at 1pm CT at the Seventh Day Adventist 
Church, 1305 14th St., Wichita Falls, TX 76301.  Jan only asked that you stop 
and think of Dave and his family for a few moments.
 
I sent a small flower arrangement on behalf of the SCIC and QUAD LIST members.
 
As Dave would say: Stay strong. 
 
Bill J.--The one in FL
C5-6 since 7/20/68 Diving accidentAsia 
Age 58
Leesburg, FL
If you think health care is expensive now, wait until you see what it costs 
when it's free!


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[QUAD-L] read

[William Willis]

 I don't care if you lick windows, 
take the special bus or occasionally pee on yourself. 
 You hang in there, sunshine-you're friggin' special. 
Every sixty seconds you spend angry, upset or mad, 
is a full minute ofhappiness you'll never get back. 
Today's Message of the Day is:
Life is short, Break the rules, Forgive quickly, Kiss slowly, Lovetruly,   
 Laugh uncontrollably, And never regret anything that made yousmile.   

Life may not be the party we hoped for, 
but while we're here, weshould dance. 
Send to all the people you don't want to lose in 2009, even me, please. 
If you get 3 back, you are a great friend. 
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FW: [QUAD-L] what a quad can work?

[William Willis]

 


From: lwillis82...@msn.com
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] what a quad can work?
Date: Sat, 4 Apr 2009 14:39:49 -0400




 I'm in my 30th year as  a high school English teacher, all as a c-5 quad. I've 
enjoyed it for the most part, but it sure has not been easy. The last two  
years have been rough. Age is catching up with me. Larry Willis
 
 
 
 


From: bobbie...@aol.com
Date: Sat, 4 Apr 2009 13:08:22 -0400
Subject: Re: [QUAD-L] what a quad can work?
To: hosnialkha...@hotmail.com; quad-list@eskimo.com



 Work I've done as a C 4,5,6 switchboard operator, motivational speaker, retail 
sales, peer councilor, meditation instructor

I want to ask what a quadriplegic person can work after his injury to continue 
his life as a normal person.
What kind of work?



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FW: [QUAD-L] what a quad can work?

[William Willis]

 I'm in my 30th year as  a high school English teacher, all as a c-5 quad. I've 
enjoyed it for the most part, but it sure has not been easy. The last two  
years have been rough. Age is catching up with me. Larry Willis

 

 

 

 


From: bobbie...@aol.com
Date: Sat, 4 Apr 2009 13:08:22 -0400
Subject: Re: [QUAD-L] what a quad can work?
To: hosnialkha...@hotmail.com; quad-list@eskimo.com



 Work I've done as a C 4,5,6 switchboard operator, motivational speaker, retail 
sales, peer councilor, meditation instructor

I want to ask what a quadriplegic person can work after his injury to continue 
his life as a normal person.
What kind of work?



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FW: [QUAD-L] Those in Kentucky... without power

[William Willis]

Hi Dana,I am 57,c-5,38  years post. That is a long time and I sure feel it some 
days. i have a little dog that sleeps in my lap,too. She is a 
Schitz-a-huaua.LOL She is a lil' sweetheart. Take care,Dana, and God bless.

From: daa...@aol.comdate: Sun, 1 Feb 2009 03:44:55 -0500Subject: Re: FW: 
[QUAD-L] Those in Kentucky... without powerTo: lwillis82...@msn.com
Larry,I'm so glad God is watching over you.  How many years are you again and 
your age and level?  I am 34 years, 55 years old and C4-5.  Several years ago 
Kansas City was without power for two weeks.  I'm so thankful my brother 
brought me a generator for my waterbed, furnace, TV and computer.  I don't even 
know how to look it up nor does my aid.  My area has been so lucky to escape 
any ice storms this year.My supper aide just finished and I'm waiting for my 
aid to put me into bed.
 
I'm sure the guys on the group are looking forward to Super Bowl.  I'm not 
really into basketball unless its KU.  They gave was not on TV in my area 
unfortunately today.  I try to call Time Warner and they checked messages 
because it was a 40 minute way but of course didn't call me back.Finally little 
yorkie is sleeping in my lap.  She is tired after going with me to my moms 
today.  She lives a block and a half away so we can drive my chair.  I'm 
watching the national dog show.  There are so many breeds that I am not aware 
of each year as you don't see them , probably rare and expensive.
 
I hope you're having a good weekend.  Praying for you each night.  God bless 
you.  Take my earpiece onDana
 
I hope all your doggies are doing well.  Remind me of what you have. I saw a 
really good DVD today called Henri Poole.  I like Luke Wilson I saw him in 
something else recently also but I don't remember the name.

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FW: [QUAD-L] Those in Kentucky... without power

[William Willis]

I am right in the middle of the worst of it. Areas and counties all around me 
are still without  power. God must be watching over this old quad. I lost power 
for about 30 min. Amazing. Six people have died from carbon monoxide poisoning.

From: wheelch...@aol.comdate: Sat, 31 Jan 2009 14:13:48 -0500To: 
quad-l...@eskimo.comsubject: [QUAD-L] Those in Kentucky... without power
 
There are still those in Kentucky without power and may still be without power 
for 10 days.
That has to have a nasty effect on those in powered wheelchair and others who 
are home
bound.  I'm looking at 35 degrees while I know those in Kentucky at still 
facing 20+ degrees
as utility workers are working around the clock in their attempt to restore 
7000 lines that need
replacement.  I know here when it happen, there were people that risks their 
lives in trying to salvage
anything they saw laying on the ground and considered it junk, scrap and 
salvaged wire.  This requires
new line which needs to be ordered, shipped to site before installation.  This 
takes more time, while it affect those without power.  I truly hope that is not 
the case.
 
Best Wishes
W
 

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FW: [QUAD-L] Exercise

[William Willis]

Joan, you are one tough cookie. I am a c-5 and I don't think I have anything 
near  your gumption and zest. Hang tough and God bless. Willis
 
 
 



Date: Mon, 22 Dec 2008 11:04:32 -0500To: quad-l...@eskimo.comfrom: 
d...@unh.edusubject: RE: [QUAD-L] ExerciseWay to go Joan!DanAt 11:33 PM 
12/21/2008, Joan Anglin said something that elicited my response: 
Lucinda I am a C4 complete. October 1990, fell off scaffolding in my barn. 
Shoulder shrug is it. I have had to have three tracheotomies, but fortunately 
for me I was able to get off of each trach within a couple of weeks.I have an 
omega trac wheelchair, very powerful even if it is not very fast, and have not 
tipped myself over since I bought it. It has given me a very confident and safe 
lifestyle, especially now that I have a German shepherd puppy-now eight months 
who is already helping me out. She can open most doors, is very calm in stores, 
loves children and will sit to shake hands with them without command, and of 
course she is a great conversation opening.I have always been an independent 
person, and really enjoy getting out by myself. With my cell phone, Elfie my 
German shepherd, and my omega trac Im good to go. We have joined a German 
shepherd Schaeferhunde Gruppe (in a former life I trained German shepherds in 
Germany, and I am very much looking forward to taking Elfie through her SchH1 
degree in a couple of years. However, I will be the first one to admit that it 
is a whole bunch more difficult training a dog when you cannot use your arms. 
She has had to learn to step up on my wheelchair to get a treat from my mouth. 
I am now working with the silent whistle as my whistle left me when I broke my 
neck. JSorry to go on. I am just very excited about all the things that seem to 
be happening in my life. I’ll be 70 next April, and we are trying very hard to 
get me certified to go scuba diving in Honduras. Everyone around me scuba 
dives, and now I figure it’s my turn. Have a great day. Joan From: LTeasley [ 
mailto:ljtbe...@yahoo.com] Sent: Sunday, December 21, 2008 2:12 PMTo: 
quad-l...@eskimo.comsubject: RE: [QUAD-L] Exercise Joan,what level is your 
injury? using a chin control suggests pretty high, but with your prior talk of 
going around the property, i thought somewhat low. regardless, it sounds 
courageous.lucindac45 complete?july 31, '05mpls., mn--- On Sun, 12/21/08, Joan 
Anglin poaj...@sbcglobal.net wrote:From: Joan Anglin 
poaj...@sbcglobal.netSubject: RE: [QUAD-L] ExerciseTo: 'Merrill' 
merril...@cox.net, quad-l...@eskimo.comdate: Sunday, December 21, 2008, 12:00 
PMOuch, the suspender idea could be very uncomfortable? Of course, my solution 
for the quad gut is a bodysuit, which is not uncomfortable for me, but is 
difficult for my attendants. I?ve gotten so used to it that I feel 
uncomfortable without it. And I agree with Lori, that one of the biggest 
problems it is my butt spreading sideways. LOLI still wear a size 10, but I 
definitely hang over the 16 inch cushion. Oh well, it could be worse.As far as 
exercise, my greatest achievement is successfully blowing the hair out of my 
eyes. Seriously, although I cannot do more than a shoulder shrug, I really 
bounce myself around just going around the property. So I guess that would 
qualify as exercise. I still do shoulder exercises with my arm in a sling 
suspended from the ceiling, I?ve never gotten any return, but my neck and 
shoulder muscles are still quite strong. I do not use a headrest, since I use a 
chin control I did not want to be smacked in the mouth by a chin controller and 
on the back of the head by a headrest, and that has helped to keep my neck 
muscles strong.Those of you in the northeast states stay warm. It?s been cold 
here, but for the most part sunny, with highs in the low twenties. We finally 
got snow several days ago, and it is still hanging around, but nothing like the 
northeast states-thank goodness.I hope everybody has a great day Joan No virus 
found in this incoming message.Checked by AVG - http://www.avg.comVersion: 
8.0.176 / Virus Database: 270.9.19/1860 - Release Date: 12/21/2008 3:08 PM
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FW: [QUAD-L] sore advice and pressure relief.

[William Willis]

i've been trying to heal a sore while sitting on a roho for over a year now. I 
get one healed and anothr develops. Its very depressing and frustrating. I was 
having pretty good luck until my tilt chair died. Now i can't relieve pressure 
and things aren't going as well. I visit a wound clinic once a week and have 
done so since june 2007

Date: Mon, 8 Dec 2008 19:27:06 -0800From: [EMAIL PROTECTED]: Re: [QUAD-L] sore 
advice and pressure relief.To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
quad-list@eskimo.com



I think you'll be ok now that your cushion is properly inflated.  I had a sore 
that I got in rehab over the summer heal while sitting on my roho after they 
got me on an air mattress at night.  Its the other sore that got infected and 
lead to another surgery in almost the same place as the sore I got fixed last 
year.  
 
When I met with the wheelchair dealer for a new chair, he said that he has seen 
people heal on a roho cushion.  As long as it has the proper amount of air in 
it and pressure relief is being done.
 
Speaking of pressure relief, since I got this surgery fusing my back even more, 
I am not longer able to get any sort of shoulder deppresion that leaves me 
unable to get my butt off of the surface.  I lean now.  I haven't gotten any 
new breakdown since the episode over the summer but am curious how you all do 
your pressure relief.
 
Stacy



From: RONALD L PRACHT [EMAIL PROTECTED]To: [EMAIL PROTECTED]; [EMAIL 
PROTECTED]: Saturday, December 6, 2008 1:01:38 PMSubject: Re: [QUAD-L] need 
advice on pressure sore




hey dan,
ive got little purplish bruises b4 that go away without doing anything , like 
when a transfer goes a lil wrong and you hit something. as far as what to put 
on it someone else here on the list prob has a better idea. i dont think it is 
gotten to a severe stage yet though .
 
 
 
ron c7
 
--- On Sat, 12/6/08, Danny Hearn [EMAIL PROTECTED] wrote:
From: Danny Hearn [EMAIL PROTECTED]Subject: [QUAD-L] need advice on pressure 
soreTo: [EMAIL PROTECTED]: Saturday, December 6, 2008, 10:57 AM





HI -  All,  I need help with a new pressure sore issue my roho got a bit 
low but i could not tell and now i got a small pressure sore on my left side of 
my bottom. My wife said it looks sort of like a purple colored bruisecan 
you guys tell me the best things to put on one early---when it has not even 
opened up??? is lantaseptic or bag balm good for it ?? i'm real worried because 
last april, i got a blister on my heel from my wife buying a pair of tennis 
shoes one size too small---that turned  into a pressure sore and now 7 months 
later it is still slightly discolored and i still only wear sandal type shoe to 
keep all pressure off that area. So besides the last shoe incidentthis is 
my 1st time with a butt area pressure sore---i know to do pressure release and 
stay off as much as possible-- but not sure what to put on it in the early 
stages.  thanks for any help !  
  
Dan H.  C-6  11 1/2 yr. post
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FW: [QUAD-L] Wound on heel or ankle

[William Willis]

When I used granulex in the past, it was applied only to flesh that needed to 
be removed. It eats both good and bad flesh so you have to be very careful with 
appication. 

Date: Sat, 13 Sep 2008 11:21:15 -0700From: [EMAIL PROTECTED]: Re: [QUAD-L] 
Wound on heel or ankleTo: quad-list@eskimo.com




I don't believe that, but they may be refusing to send the stuff to homes 
because I've seen nurses ruin $400 tubes of it just opening it. It is so easy 
to contaminate that most doctors don't even bother ordering it. I watched a 
nurse open a tube, set the top down wrong side up, then put the regranex on a 
non-sterile glove and proceed to waste a weeks worth before knocking the cap on 
the floor and declaring the five second rule.  And this woman taught nursing. 
Needless to say, the wound became badly infected by the next day. They make 
regranex, but do you think you can prove that it will be used without 
contaminating it. (Insurance companies control what we get these days and they 
insist you can't use it so it isn't on my formulary anymore, either.)I can't, 
and I like my aids, but they do not understand sterile technique. I feel bad 
for you guys and gals with indwelling caths because that's another contributing 
factor to your UTI'S.I sure wish you the best with the spray stuff. I've never 
understood how it is meant to work, but it doesn't make the wound worse. john
- Original Message From: '[EMAIL PROTECTED]' [EMAIL PROTECTED]To: 
[EMAIL PROTECTED]: Friday, September 12, 2008 5:14:37 PMSubject: Re: [QUAD-L] 
Wound on heel or ankleJohn what type of  Regranex? It has worked for me before 
 several months ago I asked my doctor to order it for me but the pharmacy sent 
me a spray can called granulex. I immediatly called the pharmacy  asked about 
the tube of gel that I once had  they told me to hold on then came back to say 
they no longer make the gel, is this true? Lindaf
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FW: [QUAD-L] What Keeps You Going?

[William Willis]

My family. Without them I would have no desire to continue. I just don't have 
that self-generating  willpower that some of you have. A book I recommend - 
Man's Search for Meaning by  Victor Frankl.
 
 


A friend and coworker recently posed a question to me. I'm not sure how my 
responses were utilized as it was never explained and for some reason I decided 
not to ask, but I thought the question might be worth posting to the our 
discussion group: 
 
What keeps you going? (List up to 3 things – knowing the comedians on this 
list, we are talking about life, not bowel programs J)
 
Steve
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[QUAD-L] FW: You gotta see this!!

[William Willis]

http://www.tothepoi ntnews.com/ content/view/ 3114/85/ROCKING RUSSKIES Written 
by To The Point News Thursday, 06 March 2008 Prepare yourself for this one - 
maybe with a Stoli martini or two. Back in the days of the Soviet Union, the 
Soviet Red Army had an official choir composed of male soldiers and 
musicians.It still exists. The Red Army Choir performs throughout Russia to 
this day.Now consider the Finnish rock band called The Leningrad Cowboys. A 
little while ago, they held a concert in Russia,in which - to the screaming 
applause of Russkie teen-agers - they got the Red Army Choir to join them on 
stage for a performance of 'Sweet Home Alabama.' In English. You couldn't make 
this up.We're talking seriously off the wall here. Better have that Stoli ready 
when you watch it:
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FW: [QUAD-L] 13 yrs breathing

[William Willis]

Thanks Dana. I never dreamed I would last 37 years! The last 2 years I can 
really tell a difference. I stay tired all the time and battle panic attacks 
that are just killers. I still have that sore too. I figure I'll take it to my 
grave. Life just seems to get harder as I grow older, but I guess that is the 
way life works. Take care, my friend. Larry 

From: [EMAIL PROTECTED]: Sat, 9 Aug 2008 13:55:49 -0400Subject: Re: FW: 
[QUAD-L] 13 yrs breathingTo: [EMAIL PROTECTED]; quad-list@eskimo.com


Congratulations Larry on your 37 year, if that is right.  Please correct me if 
I am wrong about your name.WOW 37 years-a great accomplishment.  How are you 
doing?  I think I remember you writing about a sore, how is it doing?  How are 
your dogs, you have two?
 
I hope you celebrated in some way.
 
I forgot to tell people last month that my 34th anniversary was July 27.  I 
usually remember to list it.What I remember the most,is that I overheard I was 
paralyzed by a nurse talking to a physical therapist.It had been almost a month 
and I was in ICU on a ventilator.I kept feeling like I was in a straitjacket, 
but did not realize what my injury was.Duh  Dana54, 34 years post, Prairie 
Village Kansas, which is a suburb of Kansas City.
 
  

Congratulations and God bless. Hang in there. Day before yesterday was my 37th 
anniversary. Still truckin' but each day is a mighty rough haul. Time is 
catching up with me and it aint fun..  





Wishing you many more years of breathing my friend.
 
Tim
c5-c6, 20 years ago today
www.geocities.com/onemofortom
--- On Wed, 8/6/08, Quadius [EMAIL PROTECTED] wrote:
From: Quadius [EMAIL PROTECTED]Subject: [QUAD-L] 13 yrs breathingTo: 'Darel 
Evans' quad-list@eskimo.comDate: Wednesday, August 6, 2008, 4:49 PM

I have chosen not to think too much about the anniversary of my accident, but I 
have decided to embrace the first time I was able to breathe for 24 hours 
without any ventilator assistance.
I was shooting for my birthday, August 4, but I managed to breathe on my own 
for the entire day on August 6 (today) 13 years ago.  In fact, I have only been 
put on a ventilator once since then to aid me in getting out secretions.  Well, 
I do stuck on the end of a ventilator hose daily in order to get some 
medication into my lungs, but I didn't start doing that until February 2007.
I had planned on doing something today, but that didn't work out.  Tomorrow I 
will definitely doing something worthwhile.-- QuadiusC2-3 incomplete13 years 
post injury 




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FW: [QUAD-L] bad chair

[William Willis]

A whopping big thanks to everyone for your advice. As usual, your input has 
been invaluable.

From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Wed, 16 Jul 2008 14:07:51 
-0400Subject: [QUAD-L] bad chair


guys, my invacare power chair has died on me. The control box and batteries are 
ok because I tested them. Every one of the lights on the control box are on. 
The 'gas gauge' is lit from one side to the other and all the power level 
lights are  on at once.  The chair does nothing. Any ideas?

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FW: [QUAD-L] bad chair

[William Willis]

From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: RE: [QUAD-L] bad chairDate: Sat, 19 
Jul 2008 15:15:12 -0400


My insurance would only pay 60% of a new one. This  chair was 3 mo. old and I 
gave $1500 for it. Plus I needed a tilt chair asap because of some pressure 
sores. It has been a good chair until now.

Date: Fri, 18 Jul 2008 10:54:41 -0700From: [EMAIL PROTECTED]: Re: [QUAD-L] bad 
chairTo: quad-list@eskimo.com



That is cold. I don't know how much an electrician would charge but these 
chairs are not state of the art. I have a brother in law that I beg and he 
likes to show off at how he can fix anything within reason. I would imagine you 
could  send the bill to Medicare. The trick is being able to afford the guys 
bill. My DME  would repair anything I have as long as I buy a chair from them 
on a regular basis. They do charge me to fix stuff I bought from Ebay.Ok, why 
did you buy a chair from a private party? You understand, I need to know why no 
insurance paid for yours.best luck,john

- Original Message From: William Willis [EMAIL PROTECTED]To: 
'quad-list@eskimo.com' quad-list@eskimo.comSent: Thursday, July 17, 2008 
6:15:34 PMSubject: FW: [QUAD-L] bad chair

First thing I checked. I'm feeling very urinated on and frustrated right now. 
There are 3 Invacare dealers within 20 miles of me. None  of them will even 
look at the chair. Why? Because I didn't buy it there. I bought it  from an 
individual. You would think a certified dealer would provide service to its 
company  products, like Ford or Chevy, but not so. Their basic answer  was - 
tough luck bud, but we'd love to sell you a  new one. Greedy jerks. I have no 
idea how to get it fixed.

Date: Thu, 17 Jul 2008 11:18:53 -0400From: [EMAIL PROTECTED]: RE: [QUAD-L] bad 
chairTo: [EMAIL PROTECTED]





Are you sure that the levers are in the up position for driving versus pushing?
 




From: William Willis [mailto:[EMAIL PROTECTED] Sent: Wednesday, July 16, 2008 
2:08 PMTo: [EMAIL PROTECTED]: [QUAD-L] bad chair
 
guys, my invacare power chair has died on me. The control box and batteries are 
ok because I tested them. Every one of the lights on the control box are on. 
The 'gas gauge' is lit from one side to the other and all the power level 
lights are  on at once.  The chair does nothing. Any ideas?



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FW: [QUAD-L] bad chair

[William Willis]

Thanks. This sounds like what I need. Only problem, the cost will come from my 
wallet. A rough road any way you go.

From: [EMAIL PROTECTED]: Thu, 17 Jul 2008 19:18:07 -0400To: [EMAIL PROTECTED]: 
[QUAD-L] bad chair

I hope by now you've looked at www.roadrunnermobility.com and made arrangements 
with them.  Be that as it may.  You can't imagine the legal ramifications these 
days with DME working on wheelchairs not sold by them.  The other side is being 
reimbursed by CMS for equipment not paid for by CMS.  It is such a major 
business headache that most DME, 'just say no.'
 
Since Invacare purchased RoadRunner Mobility in Janurary of this year, most of 
the field service is being done by them in North America.  This might be 
another issue with the local DME as Invacare pays Road Runner less money than 
they did the DME for service work done for the provider.
 
You and so many others may find yourself between a rock and a hard spot because 
of this.  Hence it is always wise to develop friendships with local DME's 
before you need them and not during an emergency.
 
Again, Best Wishes
 

In a message dated 7/17/2008 5:16:02 P.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
First thing I checked. I'm feeling very urinated on and frustrated right now. 
There are 3 Invacare dealers within 20 miles of me. None  of them will even 
look at the chair. Why? Because I didn't buy it there. I bought it  from an 
individual. You would think a certified dealer would provide service to its 
company  products, like Ford or Chevy, but not so. Their basic answer  was - 
tough luck bud, but we'd love to sell you a  new one. Greedy jerks. I have no 
idea how to get it fixed.

Date: Thu, 17 Jul 2008 11:18:53 -0400From: [EMAIL PROTECTED]: RE: [QUAD-L] bad 
chairTo: [EMAIL PROTECTED]





Are you sure that the levers are in the up position for driving versus pushing?
 




From: William Willis [mailto:[EMAIL PROTECTED] Sent: Wednesday, July 16, 2008 
2:08 PMTo: [EMAIL PROTECTED]: [QUAD-L] bad chair
 
guys, my invacare power chair has died on me. The control box and batteries are 
ok because I tested them. Every one of the lights on the control box are on. 
The 'gas gauge' is lit from one side to the other and all the power level 
lights are  on at once.  The chair does nothing. Any ideas?



Use video conversation to talk face-to-face with Windows Live Messenger. Get 
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Use video conversation to talk face-to-face with Windows Live Messenger. Get 
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FW: [QUAD-L] bad chair

[William Willis]

First thing I checked. I'm feeling very urinated on and frustrated right now. 
There are 3 Invacare dealers within 20 miles of me. None  of them will even 
look at the chair. Why? Because I didn't buy it there. I bought it  from an 
individual. You would think a certified dealer would provide service to its 
company  products, like Ford or Chevy, but not so. Their basic answer  was - 
tough luck bud, but we'd love to sell you a  new one. Greedy jerks. I have no 
idea how to get it fixed.

Date: Thu, 17 Jul 2008 11:18:53 -0400From: [EMAIL PROTECTED]: RE: [QUAD-L] bad 
chairTo: [EMAIL PROTECTED]






Are you sure that the levers are in the up position for driving versus pushing?
 




From: William Willis [mailto:[EMAIL PROTECTED] Sent: Wednesday, July 16, 2008 
2:08 PMTo: [EMAIL PROTECTED]: [QUAD-L] bad chair
 
guys, my invacare power chair has died on me. The control box and batteries are 
ok because I tested them. Every one of the lights on the control box are on. 
The 'gas gauge' is lit from one side to the other and all the power level 
lights are  on at once.  The chair does nothing. Any ideas?



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[QUAD-L] bad chair

[William Willis]

guys, my invacare power chair has died on me. The control box and batteries are 
ok because I tested them. Every one of the lights on the control box are on. 
The 'gas gauge' is lit from one side to the other and all the power level 
lights are  on at once.  The chair does nothing. Any ideas?
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FW: [QUAD-L] broken leg... AGAIN

[William Willis]

I broke both legs in a van wreck a few years ago. The docs put me in fiberglass 
braces that were open on top but kept my legs straight and stable. They also 
gave me atrocious pressure sores on my heels, and both sides 0f the ankles and 
knees.  They cut holes in the braces to relieve the pressure but it took nearly 
two years to heal the sores. Twas very bad. Beware hard casts...and  good luck

Date: Sat, 12 Jul 2008 17:22:25 -0400From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: Re: [QUAD-L] broken leg... AGAINCC: [EMAIL PROTECTED] must concur 
John.  I am not a doctor, but I have known a lot of SCI individuals who have 
broken their legs over the years and one thing is a constant, no hard cast.  At 
least that's the case for the hospital here where there is overwhelming number 
of SCI patients.In fact, there are probably more than 60 SCI patients 
hospitalized at this very moment.  I know there are at least 50.Quadius
On 7/11/08, John S. [EMAIL PROTECTED] wrote: 



Ok, a hard cast? It won't be his pressure sore.
 
john
 
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FW: [QUAD-L] Wagon / Ride

[William Willis]

That is a good idea, Greg, as long as the passenger isn't too heavy. My 
8-year-old son stands on the frame behind me. We make quite a sight at Walmart! 
People say he looks like a chariot driver. The castor wheels are a very good 
idea. 


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Tue, 24 Jun 2008 10:54:11 
-0700Subject: [QUAD-L] Wagon / Ride




I was thinking of a cool way to give rides to those people who go places with 
us in chairs.
Something like a 12 x 12 inch metal plate on the back of our chairs. It could 
flip down and have castor wheels on it.
So people could stand on it while we drive, then they could hop off and it 
would pop back up.
It would be like a flat wagon. It could be used to carry lots of other stuff 
too.
Just thought it would be easy to make and lots of fun…
Greg
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FW: [QUAD-L] Bed Sore

[William Willis]

Diflucan is  usuallly given for yeast infections.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: FW: [QUAD-L] Bed SoreDate: Thu, 19 
Jun 2008 11:49:13 -0700






Over the internet at Canadian pharmacies you can find a drug, spelled something 
like, “Diflucan” as an anti fungal.  Expensive but worked for me.  Better to 
ask your doctor for this.  Collidal Silver claims to fight these single cell 
fungi also.
 
Merrill
 




From: Eric W Rudd [mailto:[EMAIL PROTECTED] Sent: Wednesday, June 18, 2008 6:30 
PMTo: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [QUAD-L] Bed 
Sore
 

tried it...bag balm

Eric W [EMAIL PROTECTED]


- Original Message - 

From: [EMAIL PROTECTED] 

To: [EMAIL PROTECTED] ; quad-list@eskimo.com 

Sent: Wednesday, June 18, 2008 7:13 PM

Subject: Re: [QUAD-L] Bed Sore

 

 

Anti-fungal creams since yeast is a fungus.  I can't remember the name of one 
or two that works the best that I can find out if you want me to. 

There was something people were talking about some time ago about a miracle 
mist (something like that), do you remember what that was?

Dianna

 

 





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[QUAD-L] hey mike

[William Willis]

Those are some fantastic paintngs. You are one talented fellow!


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: RE: [QUAD-L] 
accessible boatDate: Thu, 19 Jun 2008 12:01:46 -0500




Thanks Dana!
 

Please check out my art gallery at:
  www.MurGallery.com
 
-Original Message-From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Thursday, June 19, 2008 12:12 AMTo: [EMAIL PROTECTED]; [EMAIL PROTECTED]: 
Re: [QUAD-L] accessible boat
 

Congratulations on your second anniversary.  May you have many many more years 
together.Dana





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[QUAD-L] FW: Determined man shrugs off injury

[William Willis]

Check this. Pretty amazing.   Article Title:  Determined man shrugs off 
injury  To view the contents on www.courier-journal.com, go to:  
http://www.courier-journal.com/apps/pbcs.dll/article?AID=/200806180430/COLUMNISTS04/806180832
   
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FW: [QUAD-L] Breathing Attacks

[William Willis]

I take xanax instead of valium. It seems to work better for me. It doesn't give 
as much hangover.


Date: Wed, 18 Jun 2008 12:01:47 -0700From: [EMAIL PROTECTED]: Re: [QUAD-L] 
Breathing AttacksTo: [EMAIL PROTECTED]; quad-list@eskimo.com




If you tell your doctor you are taking overdoses of Tylenol they start getting 
the point. I've taken 40mg of Valium for 32 years. I'm addicted. Does it make 
any difference? If you want to stop taking it you will need to cut it back 
gradually while replacing it. I can promise you Zoloft won't do didly sqwat for 
spasms let alone seizures. What is difficult for them to grasp is that even 
though you don't feel the pain as before, your body does. When your autonomic 
nervous system overloads from all the nerve impulses your autonomic nervous 
system starts to malfunction. This leads to super high blood pressure and 
eventually heart and kidney damage and failure. Even blood sugar goes awry so 
obviously, the pancreas is not functioning during these events.I've had to tell 
doctors if they want to experiment, they can get guinea pigs elsewhere. If he 
won't give you common medications that you need to deal with your situation, 
maybe he can recommend a doctor that will. The cause of anxiety attacks in most 
quads is from the uncontrolled glands that spew hormones into your system. Even 
knowing that your having anxiety for no real reason doesn't stop it. Valium and 
Baclophen will bring the attacks under control. When the attack affects your 
breathing, your muscles tense and start convulsing, your blood pressure is 
raising and your heart is going to start doing its own sprints. This is the 
beginning of a seizure that most quads refer to as AD or Autonomic Dysreflexia. 
You should have a pill on hand that controlls your blood pressure for these 
events. If it is caused by your urine not flowing, then get it fixed 
immediately. If it is from your bowel being full, empty it. If it is from pain, 
take painkillers. These are the 3 P's, pee, poo  and pain. These are what 
normally set off the AD even though it all begins with you feeling nervous and 
sensative, or ANXIOUS.I know you are in OZ and doctors there like to discover 
new ways to treat old ailments, but I really think your doctor should address 
the roots of your anxiety. Not the anxiety because it is merely letting you 
know something is wrong. Killing the messenger is probably not going to resolve 
this issue.Regardless of what you are addicted to, does it improve your life? 
Getting you off addictive drugs is an experiment in futility if it only leaves 
you miserable and closer to death.I sure wish you the best of luck. john 
- Original Message From: Robert Brennan [EMAIL PROTECTED]To: [EMAIL 
PROTECTED]: Tuesday, June 17, 2008 8:40:24 PMSubject: Re: [QUAD-L] Breathing 
Attacks

Doctor's here are trying to replace Valium with Zoloft.Probably is effective,i 
can't even get them to understand my pain levels.We are probably considered 
drug addicts,i can't get anything besides NEURONTIN.
Rob.
- Original Message From: Merrill [EMAIL PROTECTED]To: [EMAIL 
PROTECTED]: Wednesday, 18 June, 2008 8:28:05 AMSubject: [QUAD-L] Breathing 
Attacks



Rather than to think of a drug to lower anxiety breathlessness, is there a drug 
you normally take which you have stopped taking?  I have been cutting  back on 
my morphine which a day latter gives me all kinds of bad feelings including 
anxiety and breathing.
 
Merrill

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FW: [QUAD-L] Cardura and Detrol LA

[William Willis]

I take ditropan for bladder spasms and cold sweats. For me it works better than 
detrol but causes terrible dry mouth.

 From: [EMAIL PROTECTED]
 To: quad-list@eskimo.com
 Date: Sun, 15 Jun 2008 08:30:01 -0700
 Subject: [QUAD-L] Cardura and Detrol LA
 
 Hi does anyone take Cardura or Detrol LA?  Does it help their
 bladder spasms?  Any other thoughts on taking these?
 
 Thanks!
 Paul c5/6 complete

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[QUAD-L] dave info

[William Willis]

Sheila -
I looked up the address and it showed that the full address is Margaret Drive - 
I just want to make sure the cards get where they need to.
Thank you for getting the news on Dave - he is such a wonderful caring man.
Nita
 
- Original Message - 

From: Sheila Connell 
To: [EMAIL PROTECTED] com 
Sent: Monday, June 09, 2008 3:33 PM
Subject: [SCIC] Dave Kelmer update


I just talked to his caregiver, Jan, and she said he is in ICU but is doing 
good and just trying to get his lungs going.  He is getting better.  She said 
he had no access to the internet at the hospital and I asked her if we sent him 
physical cards, would she be able to take them to him.  She said she would love 
to.
So here's her address:
Jan Fouillier
1911 Margaret
Wichita Falls, TX 76703
sheila, mom to Christopher
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FW: [QUAD-L] 40 Year Anniversary

[William Willis]

Aug.7, 1971 c5 diving accident, 19 yrs.old, now 56. 


CC: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [QUAD-L] 40 
Year AnniversaryDate: Sun, 8 Jun 2008 19:35:28 -0700Eddie incomplete 08/23/42 
bear attack 



On Jun 8, 2008, at 7:23 PM, Eric W Rudd wrote:


c5 inc 05/09/97 church collapse
Eric W [EMAIL PROTECTED]

- Original Message -
From: Paul Jacobson
To: LTeasley ; quad-list@eskimo.com
Sent: Sunday, June 08, 2008 9:07 PM
Subject: Re: [QUAD-L] 40 Year Anniversary

c5/6 complete 11/05/03

- Original Message -
From: LTeasley
To: quad-list@eskimo.com
Sent: Sunday, June 08, 2008 1:17 PM
Subject: Re: [QUAD-L] 40 Year Anniversary




july 31, '05 c-4/5 completelucinda teasley--- On Sun, 6/8/08, [EMAIL PROTECTED] 
[EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]Subject: Re: [QUAD-L] 40 Year 
AnniversaryTo: [EMAIL PROTECTED], [EMAIL PROTECTED]: Sunday, June 8, 2008, 1:57 
PM

You will be 40 July 20 also if I'm adding right.Dana July 27, 74
 
we need a list of everybody's anniversary dates.  Who is the longest?.


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FW: [QUAD-L] free laser eye surgury

[William Willis]

It was a typo smartass. I've taught English for 29 years and probably know 
considerably more about it than you do. CC: quad-list@eskimo.com From: [EMAIL 
PROTECTED] To: [EMAIL PROTECTED] Subject: Re: [QUAD-L] free laser eye 
surgury Date: Sat, 24 May 2008 17:06:14 -0700  SURGURY???  What in the 
world? you can't even spell something so related to our  condition?? I'm sorry 
that just upsets me!  SURGERY  Hec  
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FW: [QUAD-L] free laser eye surgury

[William Willis]

Eddie, if you were talking about the  doctor, I apologize. I over-reacted just 
a tad.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: FW: [QUAD-L] free laser eye 
surguryDate: Sun, 25 May 2008 13:17:58 -0400


It was a typo smartass. I've taught English for 29 years and probably know 
considerably more about it than you do. CC: quad-list@eskimo.com From: [EMAIL 
PROTECTED] To: [EMAIL PROTECTED] Subject: Re: [QUAD-L] free laser eye 
surgury Date: Sat, 24 May 2008 17:06:14 -0700  SURGURY???  What in the 
world? you can't even spell something so related to our  condition?? I'm sorry 
that just upsets me!  SURGERY  Hec  

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FW: [QUAD-L] free laser eye surgury

[William Willis]

Anyone on the list had this done?


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Fri, 23 May 2008 
11:43:33 -0700Subject: [QUAD-L] free laser eye surgury



Free Laser Eye Surgery for quads!
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[QUAD-L] drugs

[William Willis]

My doc has put me on two new drugs that have helped me tremendously. Reglan 
helps food move thru the gut, and xanax which relieves nighttime pain and 
spasms. They have both been a godsend. I have never taken neurontin.
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[QUAD-L] dave k.

[William Willis]

Did you guys know Dave Kelmer has been in the hospital? I didn't until I saw 
his post on yahoo yesterday.
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[QUAD-L] need advice

[William Willis]

Guys, I need some serious advice. You may remember that I have been having 
terrible abdominal spasms at night that have twice triggered AD. I have no 
infection and nothing has helped until...I borrowed some xanax from a 
friend. One before bedtime has made a huge difference. Anyone here take xanax 
and what should I do? Is it safe? Addictive? Thanks
_
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FW: [QUAD-L] bowel problems

[William Willis]

FYI - my doc put me on reglan about a month ago and it has made a huge 
difference in my bowel program. It increases peristalis. Anyone else take it?
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FW: [QUAD-L] Wheelchair Monologue

[William Willis]

The message isn't bad - it's the whining self-pity of the voice that is the 
turn-off.A bit of sass and vinegar would have helped.


From: [EMAIL PROTECTED]: Sun, 27 Apr 2008 11:46:32 -0400To: [EMAIL PROTECTED]: 
[QUAD-L] Wheelchair Monologue

The Star Press - www.thestarpress.com - Muncie, IN 


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[QUAD-L] FW: To Tammie

[William Willis]

From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: To TammieDate: Sun, 20 Apr 2008 
19:52:10 -0400


Tammie, I suffered those sweats for years with the exact symptoms. The cure? 
Ditropan. It dries your mouth out terribly, but stops the sweats. It has been a 
blessing to me. Larry Willis


From: [EMAIL PROTECTED]: Sun, 20 Apr 2008 09:42:22 -0400To: [EMAIL PROTECTED]: 
[QUAD-L] Continuous pressure sore problems...
I have a problem and I'm hoping somebody on the list can help me with.  I have 
had problems with pressure sores since my injury 13 years ago.  They never get 
really bad, mostly just to the blister stage but they are constant.  The area 
where I get the sores all the time is always purple, I have asked doctors, 
nurses and people in the support groups that I attend an apparently I am the 
only one with a purple butt.  Until recently I could lay on my side for a 
couple of days and they would go way.  It seems like now whenever I lay on my 
side all I do is sweat.  The more I sweat the more I want to cover myself up 
and the more I cover myself up the more I sweat.  If I have somebody put the 
warm blow dryer on me it helps but only until they stop.  I would love to hear 
what kind of mattress and what you guys do or don't do to prevent constant 
pressure sores? I have an SP tube so that also hinders lying on my side because 
my knee is always bent and it looks like it's pushing the tube.
 
Take care and play nice Tammie Lou
C6 complete quadriplegic
13 years postchippertue.comChippertue's World 
 

In a message dated 4/17/2008 12:02:44 P.M. Pacific Daylight Time, [EMAIL 
PROTECTED] writes:

IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER.
 
NICKIMerrill Burghardt [EMAIL PROTECTED] wrote:








If I do not hold my arm up, a finger becomes red with a narrowing at the hand 
which then is a thin red line as if a vane.  Does that sound suspicious?  I 
have a doc appointment in a month but maybe I should go to Urgent Care.
 
Merrill
 





From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] Sent: Thursday, April 17, 2008 
9:50 AMTo: Lori Michaelson; QUADLISTSubject: Re: [QUAD-L] PAIN
 

SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL IS 
ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR  CLOT. MY LEVEL WAS 2226!

 

NICKI

 

Lori Michaelson [EMAIL PROTECTED] wrote:


I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by 
surgeries.  I was also very, very, very lucky to have survived it because I was 
telling doctors (my neurosurgeon and his staff hours away) my symptoms and they 
were ignoring them even though they were classic symptoms of a DVT!  Hitherto 
... I was not familiar with clots of any type so I was in the dark.  It was the 
Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least eliminate 
the possibility of a clot since I just had two surgeries with that doctor and 
that is a primary thing to worry about after surgery.  But noo... I thought 
it was probably just swelling and I should wear some of those tight hose.  
QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and very 
hard.  I finally read an article on the net (I was very new to the Internet 
back then and only knew how to look things up) and one doctor in Washington 
state had an article about spinal cord injuries and folks with MS.  A sentence 
said If one leg is significantly larger than the other... it could indicate a 
clot.  All I knew was that a clot was not good but I had no idea that I had 
a DVT whereby all I had to do was move a certain way to have it move directly 
to my lungs to kill me.

The very next morning I called my primary care physician and I went to see him. 
 He looked at it and said I don't know... I don't think it could be a clot but 
I will send you over to the hospital to have an ultrasound done.  Needless to 
say... I never left the hospital because it was a lengthy clot and I was in 
immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ

 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING [EMAIL PROTECTED] wrote:

YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. 
MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0

 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE 
BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKIQuadius [EMAIL PROTECTED] wrote:

Thank goodness you made it through it.  They send you home with blood 
clots?Quadius

On 4/12/08, NICHOLE ROHLING [EMAIL PROTECTED] wrote: 

I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN 
MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS 

FW: [QUAD-L] Getting Supra Pubic in 3 weeks

[William Willis]

Skin-bond, a brush-on glue always worked well for me.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: FW: FW: [QUAD-L] Getting Supra 
Pubic in 3 weeksDate: Fri, 18 Apr 2008 13:14:45 -0700








In my external catheter days I was successful using Clear Advantage.  This is 
the trick.  Get some stretchable athletic tape 1-2 inches wide.  It is tape 
used to tape Ace bandages. Tape half on cath and half on skin.  It will not 
come off.  It might be called “Elasticon or another Elastoplast.
 
Merrill
 





From: David K. Kelmer [mailto:[EMAIL PROTECTED] Sent: Friday, April 18, 2008 
12:13 PMTo: Tod E. Santee; Quadius; quad-list; ginaSubject: Re: FW: [QUAD-L] 
Getting Supra Pubic in 3 weeks
 

Hi Tod,

 

It's good to see the Teach (as Breezy would say) posting on the Q-List again. 
 I have used all three kinds of catheters, and have found that my body will 
immediately reject a Teflon catheter.  The latex ones will work, but they don't 
last long before I need to change them.  The silicone coated latex ones work 
best for me too, in my experience.

 


With Love, CtrlAltDel aka DaveC4/5 Complete - 31 Years Post

Texas, USA 

Tod E. Santee [EMAIL PROTECTED] wrote:

Hi Gina  Quadius,I know what you mean. I had similar issues with catheters as 
both of you. The silione ones caused irritation and even pain at times. The 
latex ones caused redness after a week or two.After some reading I found there 
were two types opf latex catheters... teflon coated and silicone coated. Most 
warehouse-type places send whatever they happen to grab when they pull your 
order. I fopund I had to specify silicone coated latex NOT silicone, not 
latex and not teflon coated. HAS TO BE silicone coated.I don't know who you get 
your supplies from but I've found Edgepark to great at sending monthly orders 
without having to call all the time (unless something changes) and almost 
always getting it right! And never any problems with returns when they do 
goof.Best regards!--Tod gina wrote:  I use a silicone, because I found out 
I'm allergic to latex. I have alot less problems with silicone, but with what 
you described I might be allergic to the silicone, but not as bad as latex I 
know of no other catheters that I can use. Does your insurance pay for the 
Saline solution? I use a 24 french and 10cc or I should say thats what the 
doctor uses.,.I get him to change it once a month if I go much longer than that 
it feels like he's ripping out my guts.. what do ya'll irrigate with? Gina  
Quadius wrote: The main reason I asked about the type of catheter is because I 
discovered about 10 years ago that I am allergic to the silicone products. I 
first noticed it when I had a silicone trach to which my skin became adhered. 
Ear nose and throat had to rip the trach right out of my neck and finally got 
them to agree to do reconstructive surgery about five or six years later. When 
I have a silicone catheter in my body, my bladder spasms profusely, I feel like 
I have a terrible UTI, the stoma tries to adhered itself to the catheter, and 
there are excessive amounts of calcification on the end of the catheter when it 
is removed. I now only use latex catheters with a little bit of silicone 
coating. According to my care providers, this is an abnormal allergy, but I 
thought I'd let you know about it since you're, seems to close around your 
catheter. Quadius   On 4/15/08, Merrill Burghardt wrote: I use 10 cc's of 
natural saline. I daily apply triple action antibiotic gel, but when the SP is 
first installed it will generally leak for a few days. The type used is a 24 
French. Mine was a headache for several days. I even thought it was a mistake 
but it was worth it.  Merrill   -  From: 
Quadius [mailto:[EMAIL PROTECTED]  Sent: Tuesday, April 15, 2008 12:39 PM To: 
gina Cc: quad-list Subject: Re: [QUAD-L] Getting Supra Pubic in 3 weeks   
Gina, How much sailing are you putting into the bulb? I used to have a problem 
with the SP leaking if I put in 5 cc, but I now put in anywhere from eight to 
10 cc. What type of catheter are you using, i.e. silicone or latex? Quadius 
 On 4/15/08, gina wrote:  Hi,  I've had a SP for about 3yrs now and it is 
better. I get mine changed every month the only problems I really have with 
mine is it leaks some but when I get it changed it hurts some because my body 
heals so fast that it tries to heal itself around the catheter and I get alot 
of calcium built up around the end of it. But I am glad I did it the UTI's are 
alot less. And it is great to have that area down below free... I hope it all 
goes well with yours...  Gina
 
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FW: [QUAD-L] question - iron

[William Willis]

Only wait if your appt. is today. Get it checked immediately.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: FW: [QUAD-L] question - ironDate: 
Fri, 18 Apr 2008 11:01:32 -0700






The finger is red with a ½ inch line.  As redness gets to the base it follows 
on tiny vain down my wrist.  Right, sounds infected.  But no.  When hand is 
elevated redness goes away.  I posted on the thread about clots because it 
entered my mind.  This morning the finger is simply purple, but again I am 
trying to elevate it.  Thanks to all.  Guess I need to wait for my appointment 
seeing redness is not spreading.
 
Merrill
 





From: William Willis [mailto:[EMAIL PROTECTED] Sent: Thursday, April 17, 2008 
7:05 PMTo: [EMAIL PROTECTED]: [QUAD-L] question - iron
 
I've been taking iron pills for about two months. My friend's doc told him last 
week that iron pills were a waste of time and gave him injections. Anybody know 
the facts on this? Larry



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FW: [QUAD-L] question - iron

[William Willis]

Thanks Tod. Excellent info.
 
 
 Date: Thu, 17 Apr 2008 23:47:08 -0400 From: [EMAIL PROTECTED] To: [EMAIL 
 PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] question - iron  
 Larry, I just had this talk with my doc. Iron needs a very acidic stomach to 
 be absorbed and even then, at best, from a 50mg tab you'll get 2-3mg!  If 
 you take antacids, proton pump inhibiters, H2-blockers (like Prevacid, 
 Prilosec, Zantac , etc.) you'll get almost nothing ... if at all. Iron 
 absorbs through the stomach but not in the intestines.  However, if yo take 
 iron WITH a Vitamin C there's a chance of enough stomach acid long enough to 
 absorb it.  The IVs are effective with or without stomach acid. It's a 
 half-hour or 1hr infusion that last up to 3 months.  That's the best I can 
 tell ya. Hope it helps. The vitamin C + ion brought me up from slightly 
 anemic to normal.  Best, --Tod   William Willis [EMAIL 
 PROTECTED] wrote: I've been taking iron pills for about two months. 
 My friend's doc told him last week that iron pills were a waste of time and 
 gave him injections. Anybody know the facts on this? Larry  
 _  Pack up 
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FW: [QUAD-L] PAIN

[William Willis]

Merrill, you should have that checked immediately if not sooner.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: FW: [QUAD-L] PAINDate: Thu, 17 Apr 
2008 10:10:33 -0700








If I do not hold my arm up, a finger becomes red with a narrowing at the hand 
which then is a thin red line as if a vane.  Does that sound suspicious?  I 
have a doc appointment in a month but maybe I should go to Urgent Care.
 
Merrill
 





From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] Sent: Thursday, April 17, 2008 
9:50 AMTo: Lori Michaelson; QUADLISTSubject: Re: [QUAD-L] PAIN
 

SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL IS 
ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR  CLOT. MY LEVEL WAS 2226!

 

NICKI

 

 Lori Michaelson [EMAIL PROTECTED] wrote:


I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by 
surgeries.  I was also very, very, very lucky to have survived it because I was 
telling doctors (my neurosurgeon and his staff hours away) my symptoms and they 
were ignoring them even though they were classic symptoms of a DVT!  Hitherto 
... I was not familiar with clots of any type so I was in the dark.  It was the 
Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least eliminate 
the possibility of a clot since I just had two surgeries with that doctor and 
that is a primary thing to worry about after surgery.  But noo... I thought 
it was probably just swelling and I should wear some of those tight hose.  
QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and very 
hard.  I finally read an article on the net (I was very new to the Internet 
back then and only knew how to look things up) and one doctor in Washington 
state had an article about spinal cord injuries and folks with MS.  A sentence 
said If one leg is significantly larger than the other... it could indicate a 
clot.  All I knew was that a clot was not good but I had no idea that I had 
a DVT whereby all I had to do was move a certain way to have it move directly 
to my lungs to kill me.

The very next morning I called my primary care physician and I went to see him. 
 He looked at it and said I don't know... I don't think it could be a clot but 
I will send you over to the hospital to have an ultrasound done.  Needless to 
say... I never left the hospital because it was a lengthy clot and I was in 
immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ

 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING [EMAIL PROTECTED] wrote:

YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. 
MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0

 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE 
BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKIQuadius [EMAIL PROTECTED] wrote:

Thank goodness you made it through it.  They send you home with blood 
clots?Quadius

On 4/12/08, NICHOLE ROHLING [EMAIL PROTECTED] wrote: 

I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN 
MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING REDNESS OR HEAT.

 

HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF 
OF THE MAIN CLOT.

 

I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE

 

NICKI

 


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Yahoo! Mail has the best spam protection around http://mail.yahoo.com 

 

 

__Do You Yahoo!?Tired of spam? 
Yahoo! Mail has the best spam protection around http://mail.yahoo.com 
-- Lori C4/5 complete quad, 27 years postTucson, AZ 
 
  



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[QUAD-L] question - iron

[William Willis]

I've been taking iron pills for about two months. My friend's doc told him last 
week that iron pills were a waste of time and gave him injections. Anybody know 
the facts on this? Larry
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FW: [QUAD-L] SLEEP

[William Willis]

I sometimes feel like a rolling pharmacy. Daily regimem: 2 oxycontin 20's, 2 
percocet, 2 ditropan, 4 reglan, and an assortment of vitamins. Abdominal spasms 
are killing me at night and I can't find the cause.


From: [EMAIL PROTECTED]: Sat, 12 Apr 2008 03:13:39 -0400Subject: Re: [QUAD-L] 
SLEEPTo: [EMAIL PROTECTED]; quad-list@eskimo.com

I am so sorry John I will pray for you.  I can see you're so uncomfortable as a 
result of your injury that was not your fault of the hospital's.  I wish your 
chair with comfortable for you.  You have trouble sleeping just like I do.  It 
seems like a lot of us do I guess it is the quad thing, just like getting 
really cold when we get in bed.
I hope the new sleeping medication my sleep doctor was talking about that is 
not on the market yet will be more of a benefit for us, I don't know anything 
about it.  I'm going to ask more about it the next time I go.they want me to 
buy a light to turn on to get my rhythm normalized.  Have you ever heard of and 
do you think it works?  They are about $100 I think she just gave me some more 
information as I lost another, they really want me to buy one.  I don't want to 
spend the money if it does not work.  They think I'm affected by not having 
some light causing me not to sleep.
 
Dana.Dana


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FW: [QUAD-L] PAIN

[William Willis]

Close call Nicki! Hang in there! Larry


Date: Sat, 12 Apr 2008 17:22:08 -0400From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: Re: [QUAD-L] PAINCC: [EMAIL PROTECTED]; [EMAIL PROTECTED] goodness 
you made it through it.  They send you home with blood clots?Quadius
On 4/12/08, NICHOLE ROHLING [EMAIL PROTECTED] wrote: 

I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN 
MY RIGHT LUNG.
 
I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.
 
THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING REDNESS OR HEAT.
 
HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF 
OF THE MAIN CLOT.
 
I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE
 
NICKI
 
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[QUAD-L] shift happens

[William Willis]

If you need something to worry about, check this video! 
 
 
 
http://www.break.com/index/shift_happens.html
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FW: [QUAD-L] the show today on Dr. Phil about superbug scare

[William Willis]

Anybody read the comic strip Rex Morgan MD? MRSA has been the topic of choice 
the last couple of weeks.


Date: Mon, 7 Apr 2008 12:03:01 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; 
[EMAIL PROTECTED]: Re: [QUAD-L] the show today on Dr. Phil about superbug scare
Ya...that about sums it up for what is known now.  It's the numerous strains, 
bodily immune systems, etc that is worrisome.  
 
The media love to have The sy is falling topics.  MRSA has been in and out of 
the media.
 
Lori
On Sat, Apr 5, 2008 at 9:41 PM, Corie Jones [EMAIL PROTECTED] wrote:


The 19-year-old girl on the Dr. Phil show had the community based MRSA the same 
as I had and I was not terribly, terribly sick either.  I could have 
potentially got that way just as Dr. Phil was worried about this girl and being 
treated sooner than she was being treated.  My aunt (who I believe gave me the 
community-based MRSA had the same big swelling bumps under her armpits and then 
later on her stomach and was never very sick or close to death either.  It CAN 
be treated and is curable.  I think it depends on how you contracted it, how 
well your immune system is, and how long you let it go without being treated 
that depends on how you respond to the antibiotics they are giving people for 
this superbug.
Corie




- Original Message - 
From: Lori Michaelson 
To: [EMAIL PROTECTED] ; quad-list@eskimo.com 
Sent: Saturday, April 05, 2008 2:38 PM
Subject: Re: [QUAD-L] the show today on Dr. Phil about superbug scare

We do not watch Dr. Phil anymore.  Haven't for two years.  Prior to that he had 
a great show going on but then he turned sensationalistic.  And there are 
commercials every six minutes.
 
BUT I remembered getting a notice from his website and that THAT topic (MRSA) 
would be covered with individuals with first-hand experience.  Dr. Phil said 
that he did not want to sensationalize it but he did not want to trivialize it 
either.  In our opinion... he did sensationalize it.  
 
But, besides that and for those who did not watch it ... MRSA is 85% of 
hospital acquired (I added the 5%) and 15% community acquired.  Which is 
exactly why I stay out of hospitals!
Further, we really don't think the blonde girl was diagnosed correctly.  MRSA 
makes you terribly, terribly sick or kills you with any few days.  She probably 
DOES have some sort of infection going but we highly doubt that it is MRSA.  
She certainly would not be looking that well or going for so long without being 
horribly sick.
Just our humble opinion.  But acquiring methicillin-resistant staph aureus is 
pretty much a death sentence.  But we and/or the doctors have done that to 
ourselves over the last xx number of years.
 
Keeping everything as clean as possible?  Bleach will kill just about anything 
and that is why I have turned to using that for the last 20 years or so.  There 
is not a product out there that will kill like bleach does.  Companies like to 
(LOVE TO) advertise that their product is a super safeguard but, hey, it makes 
them a buck.
 
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ
 
On Tue, Apr 1, 2008 at 9:14 PM, [EMAIL PROTECTED] wrote:


http://www.drphil.com/shows/show/1048
 
The Cleanse Light™ Portable Ultraviolet Sanitizer kills up to 99.99% of 
Bacteria, Viruses, Fungi, Mold and Dust Mites on household surfaces, bedding 
and clothing is perfect for Home, Business  Travel usage.  59.95 is out of 
stock that will be available in four to six weeks.
 
http://www.cleanselight.com/
 
The doctors also said that the germicide gel is also good, although does not 
get rid of dirt and using Lysol to spray everything down.  A light seems like a 
good idea, if you have someone that we use.It seems especially good for use 
during this cold and flu season.


Create a Home Theater Like the Pros. Watch the video on AOL Home.-- Lori C4/5 
complete quad, 27 years postTucson, AZ -- Lori C4/5 complete quad, 27 years 
postTucson, AZ 
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FW: [QUAD-L] PAIN

[William Willis]

That sounds like what I'm having only mine is across my abdomen. It keeps me 
awake and eventually triggers AD. Can't find the cause and it is wearing me 
down. It's not a uti.


Date: Mon, 7 Apr 2008 15:33:38 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: 
[QUAD-L] PAIN
hey gang
 
i started having spasms in right side sat night. each time i tried to take a 
breath in i spasmed which caused a horrible sharp pain under right shoulder 
blade. the pain became continuous and literally took my breath away.
 
i went to er yesterday am and they did nothing. imagine that! no lift, couldn't 
or wouldn't transfer me - bunch of crap. sent me home w/ lortab and flexeril. i 
have appt w/ dr tomorrow.
 
i wasn't dysreflexic so i'm really thrown off because i know something is 
wrong. i'm asking for a head to toe check.
 
any ideas?
 
nicki 
 
 


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FW: [QUAD-L] MRSA

[William Willis]

Different variants of mrsa respond to different drugs. Their common element is 
their resistance to methicillin (sp) based drugs, which is the majority. As of 
yet no bug is resistant to everything, thank God. Seen the movie I Am Legend?


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [QUAD-L] MRSADate: Sat, 5 Apr 
2008 21:35:18 -0700



Vancomyosin  Bactrim (sulfa) also treat MRSA.  There's also another antibiotic 
that I took with the Bactrim that starts with an R, can't remember the name, 
but I think Tod mentioned it in his post.  Mine was cleared up in 14 days.
Corie

- Original Message - 
From: Kevin M. Rudolph 
To: 'Lori Michaelson' ; quad-list@eskimo.com 
Sent: Saturday, April 05, 2008 3:00 PM
Subject: RE: [QUAD-L] MRSA

thats not completely true lori...vancomyosin is the only drug known that can 
treat it
 
 
Kevin M. RudolphLouisville, Kentucky 40214-4023E-Mail:  [EMAIL PROTECTED] site: 
 http://www.turbokev.comInstant Messengers: AOL:  kyprincecharming  
 ICQ:  28414413 MSN:  [EMAIL PROTECTED]   Yahoo:  turbokev 

-Original Message-From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: 
Saturday, April 05, 2008 5:51 PMTo: [EMAIL PROTECTED]: [QUAD-L] MRSA

Lots of people say they have had it or are carriers.  The reason it is called 
methiline-resistant is because it is resistant to ALL antibiotics.  And that is 
also why it is called the superbug.  If someone was told that they had MRSA and 
was given an antibiotic and it took care of it... it had to be an infection of 
another sort.  MRSA is resistant to all the antibiotics on the market today.  
That is WHY it is such a huge concern.
But if a lay person is unable to read their own lab reports, etc. (which is 
most people)... doctors can tell their patients anything and most of the time 
people believe them.
Truthfully... I don't think doctors want to start a panic so that is why they 
tell patients what they do.  Or they are required by law to say this or that 
not to start a panic.
 
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ



 
On Tue, Apr 1, 2008 at 5:53 PM, Merrill Burghardt [EMAIL PROTECTED] wrote:



Las month I was cultured as a MRSA carrier.  MRSA is a resistant infection 
which is spreading in hospitals.  Apparently I am only a carrier but suspicious 
looking circular sores are developing on my inner thighs.  I have read about 
this but have never spoken with anyone who has or had it.
 
One person had it and lost a foot.  My doctors will not treat it as they 
believe it will only become further resistance.  Have a story?
 
Merrill-- Lori C4/5 complete quad, 27 years postTucson, AZ -- Lori C4/5 
complete quad, 27 years postTucson, AZ 
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[QUAD-L] mrsa final two

[William Willis]

MRSA is by no means a death sentence. As I said, it has many strands that vary 
in resistance and virulance. The one SUPER BUG that defies everything hasn't 
come along yet (If it has, it is very rare). Scientists tremble to think of 
that possibility. It could resemble the 1918 flu epidemic or the plague of the 
middle ages. Check out the book Hot Zone or the movie I Am Legend. The movie is 
about a cancer cure that mutated and wiped out everybody. Pretty scary stuff.
Well, 'nuff said on that topic.
 
BTW, Kansas or Memphis?
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FW: [QUAD-L] mrsa final two

[William Willis]

Watch The Mist. It kept me awake that night!


From: [EMAIL PROTECTED]: Sun, 6 Apr 2008 19:00:57 -0400Subject: Re: [QUAD-L] 
mrsa final twoTo: [EMAIL PROTECTED]

That was really a good movie and scary to think of that really happening.I'm 
glad you were able to treat your MRSA.  I need to read this site that was 
listed.Dana


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FW: [QUAD-L] MRSA

[William Willis]

You are right, the first doc did not diagnose it correctly. They even tagged 
her as a frequent flier in the ER. By the time a competent doc diagnosed her, 
it was too late. Needless to say, a lawsuit is in the works.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: FW: [QUAD-L] MRSADate: Thu, 3 Apr 
2008 15:02:35 -0700








Did the doctors respond quickly.  Nurses listen and repeat what they learn, 
some might believe it even.  You said she did not get help, but maybe she just 
believed in and went with the doctors opinion.  I am under the impression her 
healthcare was also her job.  Being a perfect worker she did not make waves?
 
Merrill
 





From: William Willis [mailto:[EMAIL PROTECTED] Sent: Thursday, April 03, 2008 
11:34 AMTo: [EMAIL PROTECTED]: FW: [QUAD-L] MRSA
 
I HAVE AN OPEN WOUND THAT HAS HAD MRSA TWICE. My doc treated it both times, 
once with iv and once with pills. I've never had any symptoms - sores, etc. If 
it is responsive to an antibiotic, I would treat it. My sister-in-law got a 
small cut on her foot two years ago. It refused to heal. To make a long story 
short, it was mrsa. It dissolved the bones and tendons in the foot and went 
systemic. She was delirious for a week and nearly died. They even installed a 
direct port. As of now, doc says the foot must go. She still has the germ in 
her bloodstream. Bad. She is a nurse, able-bodied, and cut her foot on a 
wheelchair at work. She works for HCA in Nashville and has had to fight 
tooth-and-nail for worker's comp. The irony is she is a nurse yet didn't get 
help until the infection was advanced. She thought she was invincible - but has 
certainly learned differently.On a different note, my great aunt died 
yesterday. She was 98 and still sharp as a tac.



From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]: RE: [QUAD-L] 
MRSADate: Thu, 3 Apr 2008 10:56:06 -0700

My doctors refuse to treat my MRSA.  I have the sore which they monitor but 
still believe I am better left not treated.  What do you think?
 
The sore is managed ONLY by keeping in bed treating the sore on my inner thigh 
as a heat rash which it is not.  My healthcare is VA, think I should just watch 
the sore grow or treat the MRSA?
 
Merrill
 





From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, April 03, 
2008 7:00 AMTo: [EMAIL PROTECTED]: Re: [QUAD-L] MRSA
 

MRSA will show up in blood cultures or when a sore is cultured.  The doctor 
should always do a culture/sensitivity test to determine which antibiotic would 
best kill the infection.

 

Here's something else you should know: Methicillin: A semisynthetic 
penicillin-related antibiotic, also known as Staphcillin, that once was 
effective against staphylococci (staph) resistant to penicillin because they 
produce the enzyme penicillinase. Rarely used now, methicillin has been largely 
superceded by Vancomycin. Over the past 50 years, staph bacteria have become 
resistant to various antibiotics, including the commonly used 
penicillin-related antibiotics, including methicillin. These resistant bacteria 
are called methicillin-resistant Staphylococcus aureus, or MRSA.

 

There are other antibiotics that can kill a non-MRSA infection like Keflex, 
Keflon (the IV form of Keflex) and Cipro.

 


In a message dated 4/2/2008 8:21:43 P.M. Eastern Daylight Time, DAANOO writes:

I guess they don't test you unless they see some kind of signs of it on your 
skin?

 

BillC6 Incomplete since 7/20/68Age 57Leesburg, FLVery funny, Scotty. Now beam 
up my clothes.
 





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FW: [QUAD-L] MRSA

[William Willis]

My mrsa was treated with bactrim and zosyn iv. Zosyn does a number on the 
bowels.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]: RE: [QUAD-L] 
MRSADate: Fri, 4 Apr 2008 11:40:23 -0700








Thank you for your piece.  Are you saying that because you sought psych help 
for anxiousness over your health care, that this was why MRSA was treated?
 
Merrill
 




From: Corie Jones [mailto:[EMAIL PROTECTED] Sent: Thursday, April 03, 2008 9:26 
PMTo: Merrill BurghardtSubject: Re: [QUAD-L] MRSA
 

No problem!  I agree with what Tod said, I would be firmer about getting on an 
antibiotic that treats this superbug.  Tod mentioned the ones that treat it the 
best.  I took Bactrim  the one that started with an R.  I am allergic to 
Bactrim (sulfa) and get the itchies, so only managed to stay on the 
prescription for like 11 days, then couldn't tolerate any more, but stayed on 
the other antibiotic longer and it cleared up the spots.  I'm not sure if they 
give vancomycin orally or if it has to be just through IV.  These sores, if it 
for sure is MRSA, have the potential to spread and get worse and get into your 
bloodstream and people have died from it.  So I don't think it's something that 
should be treated so lightly by your doctors.  I felt the nurse practitioner, 
who finally treated mine, after my physiatrist intervened, was too laid-back 
about it as well.  Anyway, good luck and keep us posted.
Corie


- Original Message - 

From: Merrill Burghardt 

To: 'Corie Jones' 

Sent: Thursday, April 03, 2008 11:07 AM

Subject: RE: [QUAD-L] MRSA

 
Oh, thank you for writing.  Do you know which antibiotic was successful?  Was 
it Vancomysine?
 
Merrill
 





From: Corie Jones [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 02, 2008 
10:03 PMTo: [EMAIL PROTECTED]: Re: [QUAD-L] MRSA
 

Hi Merrill,I got MRSA from a family member who had the same pimple looking, 
circular sores.  Mine developed in my inner thigh area also and was untreated 
for a month because at first we were not sure what they were, thinking they 
were ingrown hairs (from shaving) or pimples, but they got worse and spread.  
My family member who was the person I believe gave it to me, hers was under her 
armpit and later on her stomach and much bigger than mine and the doctor never 
diagnosed her with MRSA, just called it a bacterial staff infection.  It was 
only after I got it and was properly diagnosed, luckily by my home care nurse 
that comes in once a month, that we realized hers was the same thing I had.  I 
was first treated with the wrong antibiotic, although it was healing it a 
little, but then I was put on the right antibiotics and they cleared right up.  
They left scars for a while, but those are finally fading too.  It's a scary 
thing to know you've had it and I'm sure I'm a carrier for it now also.  In 
fact, my 2-year-old daughter also got one of the bumps on her butt area that 
would not heal and got bigger and took her to the doctor and was told it was 
MRSA and she was put on antibiotics (sulfa) and it healed.  And it very much 
worries me that my daughter has had it with how young she is and hearing that 
kids have died from it.  Fortunately, she's healed very well with the 
antibiotics.  We are much more careful with cleanliness even more so than we 
were before.  Hopefully, they will keep coming up with better antibiotics to 
fight this superbug!
Corie, C4-5, incompleteRedding, CA


- Original Message - 

From: Merrill Burghardt 

To: quad-list@eskimo.com 

Sent: Tuesday, April 01, 2008 5:53 PM

Subject: [QUAD-L] MRSA

 
Las month I was cultured as a MRSA carrier.  MRSA is a resistant infection 
which is spreading in hospitals.  Apparently I am only a carrier but suspicious 
looking circular sores are developing on my inner thighs.  I have read about 
this but have never spoken with anyone who has or had it.
 
One person had it and lost a foot.  My doctors will not treat it as they 
believe it will only become further resistance.  Have a story?
 
Merrill
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FW: [QUAD-L] SATmattress fraud

[William Willis]

I am one of the fake testimonials on their web site. Not my words, not my 
picture. I discovered it by accident. The mattress is ok, but I would not buy 
another one. I was contacted by the NJ lawyer who filed suit. Many, many 
disgruntled customers. (Look under testimonials at their site. There I am, 
Larry Willis, waxing eloquent about SAM!) Ha! 


From: [EMAIL PROTECTED]: Thu, 3 Apr 2008 14:34:13 -0400Subject: Re: [QUAD-L] 
SATmattress fraudTo: quad-list@eskimo.com



I did a quick search and this was going on as far back as in 2002.
 
 
This link states the same as Mark.
http://www.coccyx.org/coping/samsat.htm
 
 
This link show the posts and other people's comments about ComfortDirect.
http://www.epinions.com/reviews/SAM_Mattress?_redir_att_abrtd_=1
 
This link is from New Jersey BBB.
http://www.consumeraffairs.com/news04/2006/04/nj_comfort_direct.html
 Keith/35/C4-5/NJ


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FW: [QUAD-L] rehab doctor/weight/everything etc....

[William Willis]

I am scrawny everywhere but my belly, of course. I'm 5'11 and weigh 160, up 
from 145 last year. The nearest rehab doc is about 100 mi. away. I haven't been 
back since I was hurt - 1971.


Date: Thu, 3 Apr 2008 10:56:50 -0700From: [EMAIL PROTECTED]: Re: [QUAD-L] rehab 
doctor/weight/everything etcTo: [EMAIL PROTECTED]; quad-list@eskimo.com




I see my rehab doctor about every 3 months.  He is also a spasticity doctor.  I 
struggle with my weight.  I was heavy before the chair, lost some then gained 
again a few times.  I gained more after I broke my back because I dont get as 
much movement.  I have to watch everything I eat to lose it and it's hard to 
watch everything I eat on such a strict budget but I try.  It's mostly my belly 
and I am sure a lot of you can relate as there is no muscle control there.
 
 
Stacy
- Original Message From: t crook [EMAIL PROTECTED]To: q-list 
quad-list@eskimo.comSent: Thursday, April 3, 2008 10:54:14 AMSubject: 
[QUAD-L] rehab doctor/weight/everything etc

First of all- how many of you are excessively skinny? I have been told by my 
old physical therapist; that quads eventually go to one extreme or the other 
(skinny or heavy). I have been lean my whole life (including prior injury); but 
with years of atrophy I am just plain skinny.
Second- I have not had a rehab doctor visit in about 17 years, I've just had 
periodic check ups with my family doctor. How often do you guy's see a rehab 
doctor? I am scheduled to see one the 10th of this month.
 
Thanks-
  
Tim 
c5-c6, 19 1/2 yrs. post
 
my UPDATED quad site www.geocities.com/onemofortom

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FW: [QUAD-L] MRSA

[William Willis]

I HAVE AN OPEN WOUND THAT HAS HAD MRSA TWICE. My doc treated it both times, 
once with iv and once with pills. I've never had any symptoms - sores, etc. If 
it is responsive to an antibiotic, I would treat it. My sister-in-law got a 
small cut on her foot two years ago. It refused to heal. To make a long story 
short, it was mrsa. It dissolved the bones and tendons in the foot and went 
systemic. She was delirious for a week and nearly died. They even installed a 
direct port. As of now, doc says the foot must go. She still has the germ in 
her bloodstream. Bad. She is a nurse, able-bodied, and cut her foot on a 
wheelchair at work. She works for HCA in Nashville and has had to fight 
tooth-and-nail for worker's comp. The irony is she is a nurse yet didn't get 
help until the infection was advanced. She thought she was invincible - but has 
certainly learned differently.
On a different note, my great aunt died yesterday. She was 98 and still sharp 
as a tac.


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]: RE: [QUAD-L] 
MRSADate: Thu, 3 Apr 2008 10:56:06 -0700








My doctors refuse to treat my MRSA.  I have the sore which they monitor but 
still believe I am better left not treated.  What do you think?
 
The sore is managed ONLY by keeping in bed treating the sore on my inner thigh 
as a heat rash which it is not.  My healthcare is VA, think I should just watch 
the sore grow or treat the MRSA?
 
Merrill
 




From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, April 03, 
2008 7:00 AMTo: [EMAIL PROTECTED]: Re: [QUAD-L] MRSA
 

MRSA will show up in blood cultures or when a sore is cultured.  The doctor 
should always do a culture/sensitivity test to determine which antibiotic would 
best kill the infection.

 

Here's something else you should know: Methicillin: A semisynthetic 
penicillin-related antibiotic, also known as Staphcillin, that once was 
effective against staphylococci (staph) resistant to penicillin because they 
produce the enzyme penicillinase. Rarely used now, methicillin has been largely 
superceded by Vancomycin. Over the past 50 years, staph bacteria have become 
resistant to various antibiotics, including the commonly used 
penicillin-related antibiotics, including methicillin. These resistant bacteria 
are called methicillin-resistant Staphylococcus aureus, or MRSA.

 

There are other antibiotics that can kill a non-MRSA infection like Keflex, 
Keflon (the IV form of Keflex) and Cipro.

 


In a message dated 4/2/2008 8:21:43 P.M. Eastern Daylight Time, DAANOO writes:

I guess they don't test you unless they see some kind of signs of it on your 
skin?

 

BillC6 Incomplete since 7/20/68Age 57Leesburg, FLVery funny, Scotty. Now beam 
up my clothes.





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FW: [QUAD-L] Finally, Introducing Myself to the List

[William Willis]

Hey Tod, it's great to have you back. You may remember me as the other teacher 
on the list (English, psychology). It sounds like you have had an interesting 
absence, to say the least. Hang tough, my friend. More later. Larry Willis 
Date: Mon, 31 Mar 2008 11:42:41 -0700 From: [EMAIL PROTECTED] To: 
quad-list@eskimo.com Subject: [QUAD-L] Finally, Introducing Myself to the 
List  Hi There Fellow Q's  (Ok... It's a Star Trek reference for any 
non-Trekkies here.)  But don't worry, I'm not here for Star Trek related talk 
(though I wouldn't ignore nor dismiss any should it occur *grin*). I suppose 
I can consider myself a former old timer on this list from several years ago. 
Haven't been on the List in maybe 5 years or so. Primarily because I've been 
busy with work and work-related, disability legal crap (on the down side) and 
participating in some of my favorite volunteer works (on the upside).  
However, though I haven't been here a long time, in looking at the archives, I 
do recognize quite a few old-timers from my past... wheelchair, DAANOO, Lori 
M., GHenry1, Eric Rudd, Bobbie among several others.  For those who don't 
know me, I'm a 41-year-old, C5/6 since 1983. I fell from a tree after doing a 
teenaged high wire act for a $10 bet. I won the bet because I walked across a 
30-ft wire... it's just that the that didn't include successfully making it out 
of the tree at the other end! Yes, life can sure sometimes be an irony.  I 
grew up in eastern Pennsylvania just an hour or two north of Philadelphia 
(between Houston and Allentown for those who know PA) in what was a pretty 
small town, Nazareth. Accessibility was pretty much nonexistent... plus it was 
before the ADA (not that the the ADA has made a huge difference in ALL places! 
[Especially small towns]). I always have a good time in college bars when 
people asked where I'm from... Nazareth, ... Where's that? ... Near 
Bethlehem. ... Where's Bethlehem? ... Me, You're kidding, haven't you ever 
read a Bible? It's near Egypt. (All true! At least as far as PA geography 
goes. But it sure does trip out half-drunk bar hoppers!)  So, that gives you 
some idea of my sense of humor. Beyond that, I'm also a huge advocate for the 
disabled when it comes to employers and businesses that don't follow the ADA 
even after 18 years of being law. (Including my own employer... not necessarily 
a good thing for making friends when asking nicely has no results.)  Once 
upon a time I found this list to be extremely informative. It's why I began 
calling the group here fellow Q's. I imagine there is been many changes on 
the list but I'm also willing to bet the aspect of being a list full of 
knowledgeable people eager to give advice as well as being open to receive it 
qualifies this collective as being knowledgeable enough to be nearly 
Q-like.  I'm very happy to see some of my old friends are still here (BTW: 
any old-timers seen or heard from breezy lately?). I'm equally happy to see 
there appears to be many new people here that I might be able to call my NEW 
friends, as well.  Being a quad for 25 years has provided me plenty of 
knowledge on several topics and up happy to share whatever I can to help any 
new quads... or old quads with new questions.  Currently I've got plenty of 
problems I'm dealing with myself. I had a flap surgery in 2006 for a sore that 
was open 4.5 months. During the surgery he was found a small amount of 
osteomyelitis from MRSA had formed in my ishium. Within a year the surgical 
site RE-opened, I showed outward signs of some kind of infection, and it was 
found the osteo might not have been eliminated.  I had to have another 
surgery to explore an unusual area seen in a CAT scan. The surgery's result was 
somewhere between negative and inconclusive for MRSA. Two months later, major 
disturbing signs of infection returned (swelling, fever, and pain indicated by 
dysreflexia).  If I didn't have MRSA then, the surgery to find it and the 
open surgical site provided a perfect pathway for the staph to really hit me. A 
MRSA infection in the exposed tissue with directly to my hip bone and begin 
disintegrating the hip and femur so much that I ended up with a dislocated hip 
(causing the pain) because it wasn't enough stable bone to hold my femur 
properly in the hip socket. All this while I was in bed recovering from 
surgery.  Since then I began hyperbaric oxygen treatments (HBOT). For anyone 
unfamiliar, HBOT entails being placed in a tube that is sealed and pumped 
full of 100% oxygen at 2X normal atmospheric pressure for 2 hours every day... 
usually for a minimum of 60 days. HBOT activates certain bone cells that 
eliminate dead bone and activates other cells that rebuild new bone in its 
place because the hyper-oxygenated atmosphere makes the body produce more blood 
vessels into dead areas.  So far, I can report, so good. I'm finally 
beginning to sit again in my WC for the first time since the end of August, 
'07! I consider 

FW: [QUAD-L] close call

[William Willis]

pain meds don't help much. I have figured out this week that eating too much 
seems to make it worse. I ate a taco salad for supper last night and woke up at 
7 with abdominal spasms that are just now starting to ease, 10 am. My stomach 
hurts and I feel like a train wreck. Just another wonderful day in quad-city. 


From: [EMAIL PROTECTED]: Thu, 27 Mar 2008 19:41:19 -0400Subject: Re: FW: 
[QUAD-L] close callTo: [EMAIL PROTECTED]; quad-list@eskimo.com


When I was having AD during my bow routine, I was told to take pain medication 
before starting and it just relieves pain, but does not control the trigger at 
least for me.Dana
 
 
In a message dated 3/27/2008 6:22:35 P.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
 





So can you control the trigger with pain meds?
 





From: William Willis [mailto:[EMAIL PROTECTED] Sent: Thursday, March 27, 2008 
2:31 PMTo: [EMAIL PROTECTED]: FW: [QUAD-L] close call
 
Well I just got some info about my close call and I don't know whether to be 
worried or not. I didn't have a uti afterall. In fact, they don't have a clue 
what caused it. I still feel like manure after 2 weeks. It was obviously severe 
AD, but I don't know the trigger.



Date: Thu, 27 Mar 2008 11:28:27 -0500From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: Re: [QUAD-L] close call

Glad you're now doing better.

Never exp the bad episodes you described.

I just get the feeling that the back of my skull is ready to explode from AD.

Good luck,

stunt

On Thu, Mar 20, 2008 at 5:41 PM, William Willis [EMAIL PROTECTED] wrote:

Hey guys. I had a really nasty experience this week and thought my end had 
come. I woke up Sunday morning with pain in my lower abdomen and a slightly 
nauseous feeling. I thought I just had a bug. Then my wife rolled me over on my 
back. That's when the nasty began. My entire abdomen went into violent spasms. 
I couldn't breath or talk and began gasping for breath. Then my head felt like 
a bomb. Then my wife says I zoned out and literally became a zombie. I thought 
I was dying. My wife tried to bring me around with no luck. She called the 
ambulance and I was rushed to the hospital. My BP was 180/120, it's usually 
95/60. For about two hours I was completely out of it. Tests showed I had - you 
guessed it - a UTI. of course. all the other symptoms were AD.  I've had the 
shakes and cold sweats many times before, but I have never experienced anything 
like this. I thought my time had come. The doc put me on levaquin, ditropan, 
and dantrolene. Only today have I begun to feel better. Have any of you guys 
experienced this? Larry Willis



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FW: [QUAD-L] close call

[William Willis]

Well I just got some info about my close call and I don't know whether to be 
worried or not. I didn't have a uti afterall. In fact, they don't have a clue 
what caused it. I still feel like manure after 2 weeks. It was obviously severe 
AD, but I don't know the trigger.


Date: Thu, 27 Mar 2008 11:28:27 -0500From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: Re: [QUAD-L] close call
Glad you're now doing better.
Never exp the bad episodes you described.
I just get the feeling that the back of my skull is ready to explode from AD.
Good luck,
stunt
On Thu, Mar 20, 2008 at 5:41 PM, William Willis [EMAIL PROTECTED] wrote:

Hey guys. I had a really nasty experience this week and thought my end had 
come. I woke up Sunday morning with pain in my lower abdomen and a slightly 
nauseous feeling. I thought I just had a bug. Then my wife rolled me over on my 
back. That's when the nasty began. My entire abdomen went into violent spasms. 
I couldn't breath or talk and began gasping for breath. Then my head felt like 
a bomb. Then my wife says I zoned out and literally became a zombie. I thought 
I was dying. My wife tried to bring me around with no luck. She called the 
ambulance and I was rushed to the hospital. My BP was 180/120, it's usually 
95/60. For about two hours I was completely out of it. Tests showed I had - you 
guessed it - a UTI. of course. all the other symptoms were AD.  I've had the 
shakes and cold sweats many times before, but I have never experienced anything 
like this. I thought my time had come. The doc put me on levaquin, ditropan, 
and dantrolene. Only today have I begun to feel better. Have any of you guys 
experienced this? Larry Willis

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FW: [QUAD-L] close call

[William Willis]

Wow. Was that caused by AD or something else?


From: [EMAIL PROTECTED]: Thu, 20 Mar 2008 19:40:27 -0400Subject: Re: [QUAD-L] 
close callTo: [EMAIL PROTECTED]

Larry,I have had that problem twice.  One time I was delirious and the next 
experience I was in a coma for 13 days.
 
We really have problems when we have horrible UTI infection.Dana
 
it must've been septic like I think mine was.


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_
How well do you know your celebrity gossip?
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