Hi all
I pray everyone is good and having s wonderful spring. When my lilies start
blooming I know we ate in for a great spring
I have developed a sore on my tummy and I thought it must have been a big bite.
It is very painful and developed a black scab and red rash. I never had
anything
that keeps you going. Please hang there.
>
> Regards and 18s,
> Shaun
>
> Virus-free. www.avast.com
>
>> On Mon, Dec 31, 2018 at 11:03 AM 'Jeanie' via CMLHope
>> wrote:
>> Thank you Shaun
>> I miss him too so much. Sometimes I feel like giving up and
that brought him some comfort.
>>>>
>>>> To everyone in this group I wish a very happy and healthy (belated)
>>>> Thanksgiving. I am so grateful to see what strong support group you all
>>>> have with each other and glad that my Dad was able to be
!!
> Thinking of you...
>
> 18/s Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope
> To: cmlhope
> Sent: Fri, Dec 28, 2018 9:45 am
> Subject: [CMLHope] Thyroid issues
>
> Hi Beth
> I didn’t know you had thyroid issues.
> Maybe you can help me. My
Thank you so much how are you?
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci
As our new year approaches I thought it would be wonderful to hear from all of
you
In this amazing group with an update on your journey through cml.
I am almost 15 years into fighting my battle. I found this group early on and
it has been a tremendous help to me. If you will read to the end
So glad Nick is doing good and fighting on. I have been fighting for 14 years
and Gleevec was a real battle. After mutants for other tki I am now on
Ponatinib.
Those sweats are the worse. I guess we should just think of them as cleaning
out those cancer cells.
I had a wonderful Thanksgiving
Hi Susan
Thanks for the uplift and sorry for your problems.
Did you have your thyroid checked.
I first noticed my right pinkie was numb and then it went all the way to my
elbow.
Yes I too don’t want to leave the house. My daughters insist I do.
Have a wonderful holiday and keep warm. It’s
iday.
>
> !8's and love,
>
> Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope
> To: cmlhope
> Sent: Wed, Nov 21, 2018 11:59 am
> Subject: [CMLHope] Hi Shaun question
>
>
> Hi Shaun
> I know you are in a lot of grief and if you
Hi Shaun
I know you are in a lot of grief and if you don’t feel like talking about I
will understand.
I have never feared death but always feared that I would be in a lot of pain
while dying. My question is did they give your dad pain meds before he went
into hospice?
I miss him so much as
gt; Love and a big hug to all of you...
>
> With tears and 18's,
>
> Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope
> To: cmlhope
> Sent: Mon, Nov 12, 2018 8:26 am
> Subject: Re: [CMLHope] Update on Marty G
>
> I am so shocked and upset a
Thanks Shaun
It’s wonderful to know you will be checking on us.
Marty was much more than a advisor. We all loved him so much.
His last email to me was he was in rehab and he would get with me as soon as he
could.
I always feel God puts us where he wants us.
Prayers always
Jeanie
My Motto:
So true Sherrie. Thanks for the tribute. I was waiting on him to answer a
question I had asked him. When he didn’t answer I had a feeling something was
very wrong.
He fought so hard and helped so many.
I’ll be thinking of the tree as I say my prayers.
Love you all so very much
Jeanie
My
We are all in the same group here to lift each other up and keep on fighting,
> as Marty showed us so many times. Let's only get closer as those who feel a
> nudge about sharing will give us an encouraging word.
>
> Blessings and 18's,
> Susan Z
>
>
>
>
> -Or
> with me i will tell you. 18s Marty
>
>> On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope
>> wrote:
>> Hi all I got my thyroid test back. The counts err very high so went back to
>> taking meds. Check it again in 6 weeks.
>> I am sure it’s all these meds. D
it might help my
> side effects and symptoms...still plugging along the stay positive
> attitude...is still finding meeven in the dark sometimes :), seeing the
> shadows so know the light is somewhere near by.
>
> Love to all.. and Marty, hope you are healing welland Ric
I am so shocked and upset as I read this. I have been waiting for an answer to
a question I had about my thyroid and since he didn’t answer I knew something
was wrong.
He was a true fighter and kept us going in our horrible journey with leukemia.
He must have been in a lot of pain to give
tarted Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Oct 1, 2018
. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal
> On Nov 3, 2018, at 11:09 AM, 'Jeanie' via CMLHope
> wrote:
>
> Hi Marty my friend
> What do you mean?
> Thanks
>
>
> My Motto:
> Faith and Pills
> With Love
You kk Marty. Haven’t heard for a while. My mail might be messed up.
Love you so very much
My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New
haven don't you where a led lined neck brace the next time you get in touch
> with me i will tell you. 18s Marty
>
>> On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope
>> wrote:
>> Hi all I got my thyroid test back. The counts err very high so went back to
>> taki
Check your thyroid. My hair was falling out and all I wanted to do was sleep.
Very nervous all the time.
❤️
My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
Hi all I got my thyroid test back. The counts err very high so went back to
taking meds. Check it again in 6 weeks.
I am sure it’s all these meds. Did you know even the X-rays from dentist can
hurt thyroid. They say to asked for a protection mask. I have never heard
about this in all my
Hi lee
I believe you are right and I might just do that.
I don’t feel the nurse knows my case that much. I got nervous and my blood
pressure went up. After my visit they had a social worker call me to see if I
was alright. If it had been my dr that would never have happened as he knew
me.
arty Gartenberg
>> To: cmlhope
>> Sent: Tue, Sep 25, 2018 3:43 am
>> Subject: Re: [CMLHope] Blood work Moffitt perfect
>>
>> Jeanie you see you see you see what do i keep telling you change geers trust
>> yourself now something else broke my leg had surgery i
nberg wrote:
> Jeanie you see you see you see what do i keep telling you change geers trust
> yourself now something else broke my leg had surgery in rehab talk later
> Marty 18s
>
> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope
> wrote:
>
> Hi all
> My blo
p telling you change geers trust
> yourself now something else broke my leg had surgery in rehab talk later
> Marty 18s
>
>> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope
>> wrote:
>>
>> Hi all
>> My blood work at Moffitt today came back perfe
> On Sep 20, 2018, at 9:58 AM, 'Jeanie' via CMLHope
> wrote:
>
> Hi Beth
> Just wanted to let you know that Sprycel quit working for me after 4 years.
> Dr found out I had a mutation. Have them check to see if you do.
> This is when they put me on Ponatinib. I am doin
mal so I can focus on other related health
> issues. Happy fall to all...
>
>
> Much love,
>
> Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope
> To: cmlhope
> Sent: Tue, Sep 18, 2018 12:36 pm
> Subject: [CMLHope] Blood work M
as before since on sprycel. 10x more bcrl abl cells but still
>> a reasonably low ratio. So, I am praying that it will continue to work for
>> me. The next blood test should tell us more. Will keep you all informed.
>> Pray that it returns to my normal so I can focus on other related
l continue to work for
>> me. The next blood test should tell us more. Will keep you all informed.
>> Pray that it returns to my normal so I can focus on other related health
>> issues. Happy fall to all...
>>
>>
>> Much love,
>>
>> Be
Hi all
My blood work at Moffitt today came back perfect!
Praise the Lord!!
God is so good to me.
Love you so very much
❤️❤️
My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started
Hi all
Moffitt appointment today. Blood work and visit with nurse.
Pray for all in need.
❤️❤️❤️
My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New
s what I used to do after a Radiation treatment when I had a real bad
> headache.
>
> Does it sound crazy? Perhaps but who knows maybe it isn't?
>
> You know the numbers...
>
> 18's
>
> Marty
>
>> On Thu, Aug 23, 2018 at 8:47 AM 'Jeanie' via CMLHope
&
Hi perk
Yes my onc reduced my Ponatinib as soon as my numbers got good.
It’s so hard to know what to do. We are scared to take mds but know we will
die if we don’t.
Good luck with all.
My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec
Yes I have heard they have to drain the fluid off. Good luck.
My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt
in Southern Illinois
>
>
>> On Jul 28, 2018, at 12:24 PM, 'Jeanie' via CMLHope
>> wrote:
>>
>> My granddaughter is an artist. This is her rendition of Siggy as we call
>> him.
>> Have a great Evening everyone.
>>
>>
>>
>>
&g
Yes!
My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired
Dr Gedia PCD
0
t3-normal
> On Jul 28, 2018, at 1:32 PM, 'Jeanie' via CMLHope
> wrote:
>
> Hi there
> You may need oxygen. They gave my husband the choice of oxygen or not since
> he was borderline. I wish we had opted for but we didn’t. I don’t think I
> would wait for drs visi
Hi there
You may need oxygen. They gave my husband the choice of oxygen or not since he
was borderline. I wish we had opted for but we didn’t. I don’t think I would
wait for drs visit. Get it checked now.
Just my opinion.
Love you so very much
My Motto:
Faith and Pills
With Love
Jeanie
My granddaughter is an artist. This is her rendition of Siggy as we call him.
Have a great Evening everyone.
My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
Hi Ann
I have high blood pressure.
I’ve been in tki for years. I have tried all the blood pressure pills with no
luck. They all make my heart hurt. He is probably under a lot of stress. Try
yoga and other calming exercises.
They help some.
My Motto:
Faith and Pills
With Love
Jeanie
free
> Preserves. Mix it all together. Pour mixture over the Yams, place covered in
> the oven at 350 degrees for approximately 20 to 30 minutes. Be sure to keep
> an eye on it to make sure it doesn’t overcook or burn, then serve and enjoy.
>
> We would like to wish everyone a ve
f on the back, and if you want to curtsy a little bit then
> be my guest.
>
> Oh please don't let me forget those cherries for Jeanie as well.
>
> 18's,
>
> Marty
>
>> On Tue, Jul 24, 2018 at 7:51 AM, 'Jeanie' via CMLHope
>> wrote:
>> Thank you Jo
>> wrote:
>>
>> I love the Pink Lillie's!
>>
>> Sherri
>>
>>> On Thu, Jul 19, 2018 at 3:55 PM, Marty Gartenberg wrote:
>>> Pink Lilies Close as I can get...
>>> 18's,
>>>
>>> Marty
>>>
>>>>
yce in Southern Illinois
>>
>>> On Jul 19, 2018, at 6:46 PM, sherri swanson
>>> wrote:
>>>
>>> I love the Pink Lillie's!
>>>
>>> Sherri
>>>
>>>> On Thu, Jul 19, 2018 at 3:55 PM, Marty Gartenberg wrote:
>>&g
;>>> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich wrote:
>>>> Jeanie,
>>>> My husband has had hypothyroidism for years…..before he got CML. It never
>>>> caused him any problems. It was diagnosed at a regular office visit with
>>>> a blood
yce in Southern Illinois
>>
>>> On Jul 19, 2018, at 6:46 PM, sherri swanson
>>> wrote:
>>>
>>> I love the Pink Lillie's!
>>>
>>> Sherri
>>>
>>>> On Thu, Jul 19, 2018 at 3:55 PM, Marty Gartenberg wrote:
>>&g
CBL. ABL
> On Jul 19, 2018, at 2:22 PM, 'Jeanie' via CMLHope
> wrote:
>
> Thanks everyone.
> I was worried about the meds. Did the meds get your tsh levels back to
> normal. Mine was 13. ❤️
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> fre
;> Joyce in Southern Illinois
>>
>>
>>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope
>>> wrote:
>>>
>>> Anyone have a thyroid problem?
>>>
>>> My Motto:
>>> Faith and Pills
>>> With Love
>
othyroidism for years…..before he got CML. It never
>>>> caused him any problems. It was diagnosed at a regular office visit with
>>>> a blood test. He takes levothyroxin and has regular blood tests.
>>>>
>>>> Joyce in Southern Illinois
>
>> wrote:
>> Hi Jeanie,
>>
>> Yep, have taken levothroxine since I was 30. Still on it without incident.
>>
>> Much love to all and 18's
>>
>> Beth
>>
>>
>> -Original Message-
>> From: 'Jeanie' via CMLHope
>
gt;
>
> Sherri
>
>
>> On Wed, Jul 18, 2018 at 8:46 PM, bkbarney via CMLHope
>> wrote:
>> Hi Jeanie,
>>
>> Yep, have taken levothroxine since I was 30. Still on it without incident.
>>
>> Much love to all and 18's
>>
>> Be
arms she said she didn’t
> know what she would do if she couldn’t do her sewing and etc.
> though I never met her I felt I knew her all my life. More later——
>
> THAT'S WHY I CALLED HER MOMMY LOTTIE.
>
> And she knew what 18's meant.
>
> So 18's,
>
> Marty, and a
arms she said she didn’t
> know what she would do if she couldn’t do her sewing and etc.
> though I never met her I felt I knew her all my life. More later——
>
> THAT'S WHY I CALLED HER MOMMY LOTTIE.
>
> And she knew what 18's meant.
>
> So 18's,
>
> Marty, and a
--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired
0 CBL. ABL
> On Jul 16, 2018, at 12:30 PM, Marty Gartenberg wrote:
>
> Ahhh the kids! Which ones?
>
> 18's,
>
> Marty
>
>> On Mon, Jul 16, 2018 at
PM, Marty Gartenberg wrote:
>
> I'm coming over to you. I will bring the bread you cut up the vegetables and
> cook them. Let's have a party!
>
> Gee I get to do it again.
>
> 18's,
>
> Marty
>
>> On Sun, Jul 15, 2018 at 12
>
> Once more...
>
> 18's,
>
> Marty
>
>> On Sun, Jul 15, 2018 at 12:34 PM, 'Jeanie' via CMLHope
>> wrote:
>>
>>
>>
>>
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
&g
the spring time because it always lifts me to
> distract myself with my gardening...
>
> lots and lots to do!!!
>
> much love to all...nice to hear from Susan Z and others who haven't written
> in awhile...How are GReenie, and Richard and Skip, etc???
>
> 18's Beth
>
uot; Do you
> mean like hugging me so much that your going to crush me until my ribs
> crumble?
>
> Ah yet another opportunity to let me say again...
>
> 18's,
>
> Marty
>
>> On Fri, Jul 13, 2018 at 9:16 AM, 'Jeanie' via CMLHope
>> wrote:
>> So
d cross and it said "Human
> organs, B right side short urethra.
>
> I almost jumped out of the gurney because it was B type and then I remembered
> that I used to be O type. Now what are the chances that this could ever
> happen?
>
> Now Jeanie and all of the r
ur cells. Only T4 that is
> unattached or “free” can get into your cells to go to work. A blood test can
> measure how much free T4 is available.
>
>
>
>> On Wed, Jul 11, 2018 at 6:32 AM, 'Jeanie' via CMLHope
>> wrote:
>> Hi Richard and all
>> I take Ponatinib and one o
Hi Richard and all
I take Ponatinib and one of the main side effects is stroke and blood clots
along with many more. I knew this going in and since I was in blast I knew I
had to do something.
My onc advised an aspirin daily which I take. So far it is all working. Blood
counts are good however
Hi all
I had this problem when on Tasigna. My hmg dropped to 8. I argued with my onc
as I didn’t want someone else’s blood in me. I knew if he would take me off the
tasigna the hbg would come back up. He finally talked me into it and I had to
stay for hours getting transfusions. As most of you
. It adds so much
> to our lives.
>Joyce in Southern Illinois
>
>
>> On May 7, 2018, at 4:15 AM, 'Jeanie' via CMLHope
>> wrote:
>>
>> This is my brother in law grace. My sister is 87 and still doing good. I
>> forgot to take my glasse
Hi all. I highly recommend this cabin if you want to visit The Great Smoky
Mountains. I loved it. Hated to leave.
Love you so very much.
My Motto:
Faith and Pills
With Love
Jeanie
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started
Love it!!
My Motto:
Faith and Pills
With Love
Jeanie
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer center
0 CBL. ABL
--
--
[CMLHope]
A support group of
> On Jun 6, 2018, at 4:49 PM, Pete Pabon wrote:
>
>
>
> Get Outlook for iOS
>
> From: 'Jeanie' via CMLHope
> Sent: Wednesday, June 6, 2018 4:45:57 PM
> To: cmlhope@googlegroups.com
> Subject: Re: [CMLHope] New Canary hatchings
>
> Hi all
> Actually my
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer center
0 CBL. ABL
--
--
[CMLHope]
A support group of http://cmlhope.com
ope] New Canary hatchings
>>
>> Hey have a great time. Well one thing that bothers me. Since did you become
>> a male subject? Now your sporting the name of Jean? Hey I hope that your
>> still growing hair in all of the right places.
>>
>> Marty
>>
Hi all
I’m in The great smokie mountains with my 2 daughters. She rented a fantastic
cabin with indoor and outdoor fireplaces. We have been having a ball. Headed to
Chimney Rocks to picnic today.
Tell more when I get home.
Love you so very much
Jean
My Motto:
Faith and Pills
With Love
18's
Sorry I resent that picture. Senior moment. Love you so very much.
Jean
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer center
0
Hi Marty and all.
Sometimes when I read your post I cannot believe that they are written by
someone who has been through all you have.
I never thought I would make it through cml because Gleevec through every side
effect it had in me and then some. I started a diary to God and wrote in it
for this.
>>
>> Listen i can't make up these stories because they are all true.
>>
>> Now, i really liked your story about how everyone in your family kissed
>> eachother when they said hello and good by. that is very inspirational to
>> me, but since i
oy your life.
>>
>> Two of my favorite sayings are what Forrest Gump said in the movie... "Life
>> is just like a box of Chocolates, you never know what you get" As i read
>> that to me it meant that you don't know just what you got but since his
>>
about 98.6% My temperature, and the rest of the
> 1.4% they can go to where the sun don't shine (one of my favorite sayings and
> for good reason
>
> 18's,
>
> Marty
>
>> On Fri, May 11, 2018 at 9:40 AM, 'Jeanie' via CMLHope
>> <cmlhope@googlegroups.co
that you may see in these three pictures are things that we
>> personally accomplished by ourselves including the crown moldings as well as
>> the moldings on the ceiling. Both of us never said that maybe we should
>> stop, but sat down and rested for a while and had l
we
>> personally accomplished by ourselves including the crown moldings as well as
>> the moldings on the ceiling. Both of us never said that maybe we should
>> stop, but sat down and rested for a while and had lunch or watched TV and
>> then got back to "busines
left me with a great deal to navigate daily. I know I am blessed. But today
>> I am just very very very weary. Tomorrow is another day...
>>
>> Hope everyone is well and enjoying spring...one day at a time...breath in
>> the flowers and enjoy!!!
>>
e...`
>
> 18's,
>
> Marty
>
>> On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope
>> <cmlhope@googlegroups.com> wrote:
>> I am celebrating 17 years also. I'm on my 4 tki: Ponatinib. Been a rough
>> ride. How bout you!
>>
>>
\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A
>
> 18's,
>
> Marty
>
>> On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope
>> <cmlhope@googlegroups.com> wrote:
>> I a
I am celebrating 17 years also. I'm on my 4 tki: Ponatinib. Been a rough ride.
How bout you!
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL.
Oh no Joyce,
I am so sorry. Had you been hurting? I have been in pain now for a long time
and many years later they have found nothing. I think I'm scared because many
years ago my brother who was in his late 50s went in for exploratory surgery
and they found a tumors cancer. He died not long
Hey Joyce
Wow! You have really been through the mill. So happy you made it through. You
and I are about the same age and that it the reason I never pushed for surgery.
Sounds like you are well on the way to recovery.
I would have it done if I could get up the nerve. I have been in the
His could you tell you had blood clots?. Lots in legs. I bruise easily my
Ponatinib has blood clots as side effects.
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr
So sorry to hear about all your problems. Did you get good care? I have
umbelical hernia. Been afraid to get it fixed. Anyone had this fixed?
Mine happened due to umbelical surgery twice from gallbladder and getting tubes
tied. Just weakened the area. I wish I had had it fixed when I was
ed that and thought it was cute and i am passing this onto
> you
>
> By the way as you probably know that i live in Florida, in West Palm Beach in
> a town called Boynton Beach right near the Florida Turnpike. Where do you
> live?
>
> You have a great day.
>
> 18's
Thanks Sweetheart
Those were beautiful. You always brighten our day.
I have been in so much pain lately and don't know if I should go to a dr or
not. It started in my little right finger and then creeped on up my arm. Now
my heel and sometimes ankles are killing me. The pain usually wakes me
Hi Beth
So good to hear from you. I have a new oncologist at Moffitt and they are
moving our entire unit to another out patient building close to the Moffitt
hospital.
I go to a pain clinic as my onc at Moffitt wouldn't write my pain meds anymore.
I was upset about it as it means more dr
Thanks Susan. I have never had diarrhea but have constipation. Tried everything
and finally saw Mira lax. Tried it and it worked perfect. Can you believe
after trying all those things. You can buy generic and insurance pays.
Keep looking up.
My Motto:
Faith and Pills
With Love
18's
Dx
I saw my new doctor at Moffitt. Her name is Martine Extermine. She works also
with the seniors and I liked her a lot but she had a lot put on her shoulders.
Had to take over all Dr Balducci's patients.
II got good news. I asked her what my last BCR ABL tests results were and she
said 0's.
;
> I just love birds mainly canaries but most any other species as well.
> Here are some pictures of many of them. I know that your heart will smile
> especially when you see the newborns sitting in their nest.
> They are all grown up now.
>
> 18,
>
> Marty
>
>
>&
Who is James Tufanello and why did I get all these email from him?
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
> On Jan 25, 2018, at 11:37
rtenberg <wa2...@gmail.com> wrote:
>
> Don't worry your new doctor will be more understanding about your pain.
> You'll see. And out with the past year and in with the new year and your new
> doctor.
>
> 18's,
>
> Marty
>
>> On Mon, Jan 1, 2018 at 10:41 AM
e you really
> want him to try and realize that you are still doing okay.
>
> I wish that each and every one of you a very HEALTHY and HAPPY New Year. You
> really are warriors.
>
> 18's
>
> Marty
>
>> On Sun, Dec 31, 2017 at 3:12 PM, 'Jeanie' via CMLHope
>> &
Hi Elizabeth and thanks for the uplift. My dryer just decided to hit the dust
probably just old age like me. Hehe. Wonderful day with beautiful weather.
When I would tell my doctor I was old he would say he didn't want to hear about
age. He is in his 70s and still going strong. Well he is
https://www.google.com/ads/slp?data=IYAKGgjH0qyUShISCdX7LaOZx8KIEU90DlPNwKR6ELSVtRw=YE9GWtWzOYTImwHhx5-oCg
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt
all people, regardless of age,
> gender, ethnicity and religion
>
> VIII. I have to base treatment decisions on the respect of the will of the
> person and in defence of human dignity
>
> IX. I have to share and promote the knowledge on pain care
>
> X. This is my comm
; Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and
> shall have wonderful peace." Ps.37:11
>
>
>
> On Friday, December 22, 2017 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
> wrote:
>
> Hi
re of that.
>
> Have wonderful holidays and enjoy every day!!!
> Thanks Marty for making us all laugh!!!
> 18's,
> Love and prayers,
> Susan Z.
>
>
>
>
>
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every bl
1 - 100 of 253 matches
Mail list logo
