Re: [CMLHope] Update on Marty G

Dear Shelly and Family, My deepest condolences on Marty’s passing. As so many of us in the group have expressed, Marty was our head cheerleader, a constant source of inspiration, support and love. He gave us a roadmap to navigate not only our illness but, more importantly, our lives. And he

Re: [CMLHope] Words OF WISDOM.

Marty, Such a beautiful story which brought me to tears. Thanks, as always, for sharing. By the way, you aren't in Miami now are you? Marcie Sent from my iPad > On Sep 7, 2017, at 9:11 PM, Marty Gartenberg wrote: > > Joyce, Jeanie and everyone here, > > I learned

Re: [CMLHope] Erythropoietin Injections

> age, menstrual periods have resumed with Epogen treatment. Therefore, it may > be possible to become pregnant while using this medication. Discuss the need > for birth control with your doctor. It is unknown if this drug passes into > breast milk. Consult your doctor before breastfeedin

[CMLHope] Erythropoietin Injections

Does anyone receive erythropoietin injections such as Procrit to combat decreasing red cells? If so, any side effects and how often do you need the injections? My red cells keep bottoming out and erythropoietin has been recommended with caution. I have some concerns about the risks, although I

Re: [CMLHope] Aug CML update.

Congratulations, Richard, and thanks for sharing! It's always a pleasure to hear such good news. Marcie Sent from my iPad > On Aug 28, 2017, at 11:54 PM, bkbarney via CMLHope > wrote: > > Thanks for sharing such good news Richard. I am very very happy for you, No

Re: [CMLHope] Got a brand new Hip!

Suzie, please accept my condolences on the loss of your beloved mother. I'm so sorry but I'm sure that your wonderful memories will be a comfort and blessing to you always. Marcie Sent from my iPhone > On Nov 27, 2016, at 8:17 PM, Suzieq wrote: > > Hello to my

Re: [CMLHope] Haven't gotten any e-mail notifications

I'm here, just not been posting. Haven't seen anything from Marty in quite a while. Hope Marty and all of the group is enjoying end of summer and doing well. Marcie Sent from my iPad > On Sep 6, 2016, at 12:16 AM, 'rszim0...@aol.com' via CMLHope > wrote: > > I'm

Re: [CMLHope] About John Hopkins Cancer Update

Greenie, I am so deeply saddened to hear about Derek. Please know that you and Grace and your family are in my thoughts and prayers. May your memories of Derek sustain you in the days ahead. Much love, Marcie Sent from my iPad > On Jun 13, 2016, at 10:52 PM, Myvety2k via CMLHope

Re: [CMLHope] About John Hopkins Cancer Update

Marty, Hope you are feeling well and on the mend. You are quite the warrior! Marcie Sent from my iPhone > On Jun 13, 2016, at 9:23 PM, Marty Gartenberg wrote: > > Hi Jeanie and everyone else. > > Just to let all of you know I had to go to the hospital for an infection on

Re: [CMLHope] Re: Zavie's Zero Club.xls

sing, and > shall have wonderful peace." Ps.37:11 > > > > On Friday, April 29, 2016 'Marcie Goodman' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Hi Friends, > > I've been off line for a bit. My husband was hospitalized beginning of > January for

Re: [CMLHope] Our son Alan Sago

Jim, God Bless to you and your family. Your son is lucky to have such loving and devoted parents. Marcie Sent from my iPhone > On Apr 30, 2016, at 8:40 AM, 'Jim Sago' via CMLHope > wrote: > > Alan has CML since September of 2001 and is doing well with Glevleec

Re: [CMLHope] Re: Zavie's Zero Club.xls

Hi Friends, I've been off line for a bit. My husband was hospitalized beginning of January for a week due to numerous falls. He has early stages atypical Parkinson's or something similar. In March I was hospitalized for bottomed out hematocrit. Then 10 days ago he had a stroke While in Johns

Re: [CMLHope] To Susan Zimmerman

kemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > >> On Mar 26, 2016, at 1:26 PM, 'Marcie Goodman' via CMLHope >> <cmlhope@googlegroups.com> wrote: >&

Re: [CMLHope] To Susan Zimmerman

to expect next. > Anyway, Life is good. No complaints. > Angie in Canada > > > From: 'Marcie Goodman' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope@googlegroups.com > Sent: Thursday, March 24, 2016 5:07 PM > Subject: Re: [CMLHope] To Susan Zimmerman > >

Re: [CMLHope] To Susan Zimmerman

here! Keep us updated!!! > > 18's and fight on, > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > > On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope &

Re: [CMLHope] To Susan Zimmerman

alducci Moffitt Cancer Center > >> On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Susan, as always, I have you and Roy in my prayers. Please let us know how >> your test turns out. >> >> I

Re: [CMLHope] To Susan Zimmerman

Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have

Re: [CMLHope] Heart valve replacement and TKIs

Perry, I have not but just want to wish you well. Please keep us updated because we look out for one another. Marcie Sent from my iPhone > On Jan 6, 2016, at 7:05 PM, Perry Israel wrote: > > I've been lurking on the list for quite some time, and thought I would seek >

Re: [CMLHope] Test Day

Richard, that is very good news. Let's hope the hem stays at that level or better. So glad to hear your wife is doing well. Take care! Marcie Sent from my iPhone > On Oct 7, 2015, at 12:01 AM, Richard H wrote: > > All is good at this house. Saw Kidney Dr. and my

Re: [CMLHope] Re: surgery behind me

Joyce, we love you, too! So glad you don't need chemo or radiation. Please keep us updated. Would you be willing to send your address? You can send it to me at margoo...@aol.com if you'd like. Stay strong and I'm just so thrilled that you are doing well. Marcie Sent from my iPad > On Oct

Re: [CMLHope] Three months

ERS <esd...@rogers.com> wrote: > > Thanks, Marcie! > Sorry to disappoint, but I have felt no changes at ALL! After the first few > months, Gleevec had no negative impact on me. I just feel fine, lots of > energy, no muscle cramping. > Long may this continue~~~~ > Æ &g

Re: [CMLHope] Three months

Angie, wow, this is great news! I imagine you feel very different. Can you share some of the changes being off Gleevec? Keep up the good work! Marcie Sent from my iPhone > On Sep 29, 2015, at 8:18 PM, ANGELYN ESDERS wrote: > > After 14+ years, I have been off Gleevec for

Re: [CMLHope] Test Results

Congratulations Suzieq! What a relief for you. Keep up the good work. Marcie Sent from my iPhone On Aug 14, 2015, at 8:27 PM, Suzieq sheila.a.wat...@gmail.com wrote: To my CML Survivors: Just wanted to let everyone know that my BCR-ABL results came back and I am once again none

Re: [CMLHope] CBC results 7/17

Richard, Thoughts and prayers coming your way for the RBC counts to rise quickly. Sometimes I feel like a yo-yo the way my counts rise and fall. Take good care. Marcie Sent from my iPad On Jul 18, 2015, at 12:26 AM, Richard H rbhuffm...@gmail.com wrote: After all the weeks working to get

Re: [CMLHope] Platelets

Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better.

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

Hi Susan, My favorite is Psalm 121 but I love all of them. There is a custom in Judaism that psalms be recited at the bedside, in the synagogue and home for one who is sick or in some other need. It is interesting how so many of us find comfort in these ancient words. My best to you and Roy.

Re: [CMLHope] Jeans Moffitt visit

Joyce, so sorry to hear about your new battle. You and your husband will be in my thoughts and prayers. Please let our group know how your husband's appointment goes and also how you are doing too. God Bless and stay strong. Marcie Sent from my iPad On Jun 19, 2015, at 11:54 PM, Joyce

Re: [CMLHope] Jeans Moffitt visit

Jeanie, I'm so happy for you! Stay well. Marcie Sent from my iPad On Jun 18, 2015, at 7:19 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Jeanie, That is some really great news. Keep up the effort. By the way are you PCRU? If so then for how long and is your doctor thinking about you

Re: [CMLHope] last Fridays test

Great news, Richard! Keep up the good work. Marcie Sent from my iPad On Jun 8, 2015, at 11:59 PM, Richard H rbhuffm...@gmail.com wrote: Hemoglobin is climbing without the shot now at 12.4. YEAH!!! The CML was just dropped to .03% as of last Tuesday. So all is well here. 18's

Re: [CMLHope]

Sorry for typos on 1st email. On Gleevec and 600 mg! Chemo Brain. Sent from my iPhone On Jun 6, 2015, at 11:14 AM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Thanks, Beth and Jeanie. After 6 years o Gleevec, I've gone out of PCRU and the numbers are slowly climbing

Re: [CMLHope]

/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On Jun 5, 2015, at 11:01 AM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: I'm waiting at the hospital for blood work for CBC and bone marrow work. Sent from

Re: [CMLHope] Where is everyone?

Beth, you are an angel. Marcie Sent from my iPhone On Jun 6, 2015, at 12:16 AM, bkbarney via CMLHope cmlhope@googlegroups.com wrote: Dear Angie, I am so sorry you are having such trouble with your counts...I feel for you and know the fear involved when people say to you I don't know

Re: [CMLHope]

. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On Jun 6, 2015, at 11:18 AM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Sorry for typos on 1st email. On Gleevec and 600 mg

[CMLHope]

I'm waiting at the hospital for blood work for CBC and bone marrow work. Sent from my iPhone -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To

Re: [CMLHope] Today's

Beth, hugs and prayers to you and your dog. Hope she's getting stronger every day. Much love, Marcie Sent from my iPad On May 24, 2015, at 11:01 PM, ANGELYN ESDERS esd...@rogers.com wrote: I am so sorry that your dog was attacked and brutalized! We love our dog like a 3rd child and

Re: [CMLHope] Today's report for Marty

Happy, happy birthday dear Marty and Shelly! Thanks for all of the encouragement you give to all of us. Jeanie, so glad you are doing well. Much love to everyone in our group. Marcie Sent from my iPhone On May 21, 2015, at 5:54 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Susan

Re: [CMLHope] Questions

Marty, sorry you've been through such a painful time but so glad you are doing better. Thoughts and prayers are with you. 18s Marcie Sent from my iPhone On May 5, 2015, at 2:51 PM, Marty Gartenberg wa2...@gmail.com wrote: HI Suzieq From my understanding The first patent for Gleevec

Re: [CMLHope] Having a positive attitude

Marty, I am so glad to read your upbeat email. You are a very special man and I am thankful that you received your kidney. May God continue to bless you and your family Marcie Sent from my iPad On Apr 24, 2015, at 7:54 AM, Marty Gartenberg wa2...@gmail.com wrote: I always try to keep a

Re: [CMLHope] CML visit

. I too am eager to hear about Marty and pray for him everyday. Sherri On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Richard, excellent news and I'm happy to hear that your hemoglobin has stabilized. Glad that your doctors are in sync

Re: [CMLHope] CML visit

went to my onc and he did the usual blood draw and my WBC was 2.4. That was enough to send me over to the hospital for type and cross match and a transfusion. I too am eager to hear about Marty and pray for him everyday. Sherri On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via

Re: [CMLHope] CML visit

Richard, excellent news and I'm happy to hear that your hemoglobin has stabilized. Glad that your doctors are in sync, too, because that will certainly make your life easier. Yay! Marcie Sent from my iPhone On Mar 10, 2015, at 12:15 AM, Richard H rbhuffm...@gmail.com wrote: I visited my

Re: [CMLHope] U[PDATE FOR MARTY

Marty, All of us are so thrilled and excited about your transplant. You are an inspirational, loving and giving man and I'm so happy to be part of your family. God Bless you and your family and your donor and donor's family as well. May your recovery be fast and strong. Thinking of you and

Re: [CMLHope] U[PDATE FOR MARTY

Richard, Thanks for sharing. Such very good news. I know all of us are so delighted that Marty has had the transplant. Hope all is well with you, too. Marcie Sent from my iPad On Feb 28, 2015, at 12:31 AM, Richard H rbhuffm...@gmail.com wrote: This was posted to CML2 on YAHOO. Hello

Re: [CMLHope] Doctor's Visit

Hi Beth, I think Marty had the transplant and I'm praying all is going well for him. How are you feeling? You are such a positive, joyful person and I always look forward to your posts. Best wishes, Marcie Sent from my iPad On Feb 26, 2015, at 5:01 AM, sherri swanson

Re: [CMLHope] Kidney transplant

Marty, What wonderful news and I'm so very happy for you, as I know everyone on this site will be when they hear. I'll be thinking of you and sending love and prayers your way Marcie Sent from my iPhone On Feb 23, 2015, at 7:10 PM, Marty Gartenberg wa2...@gmail.com wrote: I thought

Re: [CMLHope] Just checking in

Hi SusieQ, Good to catch up with you. I know that same worry when you go from undetected to a positive reading. And you are correct that we aren't cured even if undetected, just cells hiding due to our TKIs. Hang in there and please let us know the results in March Marcie Sent from my

Re: [CMLHope] Kidney Transplant

Dear Friends, I lost my email for a couple of weeks and just got it back. So I'm trying to catch up with everyone's news and was moved to tears by what I read. I don't want to leave anyone out so please forgive any omissions. Also, much of my aol was lost so I'm not up to date with everyone.

Re: [CMLHope] Greenie and all

Thanks to everyone for your kind words on the passing of my father I also just lost my aunt, like a second mother to me. I deeply appreciate your support and friendship. My thoughts and prayers are with each of you for good news as you keep battling on with CML. Sent from my iPhone On Jan

Re: [CMLHope] Jeanie's relapse

still like to be kept in the loop. L'chaim Sherri On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Hello, Susan. Gosh, we are just sweating through this it seems. I will see what may be available naturally, as I don't want hormones either

Re: [CMLHope] Night Sweats

night sweats. I guess we never associated it with the TKI's because they started for him before he was on them. Interested in anything anyone else has to say about hotness and sweating. All the best to you in this new year. Joyce in IL On Jan 5, 2015, at 7:36 AM, 'Marcie Goodman

Re: [CMLHope] Night Sweats

in anything anyone else has to say about hotness and sweating. All the best to you in this new year. Joyce in IL On Jan 5, 2015, at 7:36 AM, 'Marcie Goodman' via CMLHope wrote: Happy New Year, dear friends. I'm wondering if any of you suffer with night sweats as a side effect

Re: [CMLHope] Night Sweats

!!! Thanks for your always uplifting posts! Happy New Year to you, too! Susan F. Zimmerman -Original Message- From: 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jan 5, 2015 8:41 am Subject: [CMLHope] Night Sweats Happy New

[CMLHope] Happy New Year

To all of my dear friends in this group, I wish a happy, healthy New Year filled with many blessings. May this year bring Marty a kidney, Beth much needed relief, less swelling for Richard, and for all - Greenie, Susan, Ana, Jeannie, Pat, Giora, Maria, and others I'm sure I'm forgetting to

Re: [CMLHope] happy Holidays!!

From my family to you and yours, a very Merry Christmas and the happiest of New Years. Marcie Sent from my iPhone On Dec 24, 2014, at 11:12 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Merry Christmas and happy holidays to all. Blessings Jeanie  Sent from my

Re: [CMLHope] Just got my sprycel in the mail. Almost 11,000 $. Unbelievable!!

Happy Thanksgiving. I'm so thankful for each and every one of you! Marcie Sent from my iPad On Nov 27, 2014, at 10:57 AM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: IMG_6292.gif Sent from my iPhone On Nov 26, 2014, at 10:43 AM, icandoallttc via CMLHope

Re: [CMLHope] From Sprycel to Bosulif

Maria, hope you'll be feeling better very soon. I think Susan Zimmerman on this group takes bosulif and is doing well on it. Please let us know when you get your results. I'll be keeping you in my thoughts and prayers. Marcie Sent from my iPhone On Nov 20, 2014, at 6:34 PM,

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics

Love it, Captain Dave! Marcie Sent from my iPhone On Nov 15, 2014, at 7:20 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Well thank you Marcie, I have this idea, let's make Skip a Fleet Admiral, I'm not sure but I think he as had CML the longest. Will make Marty Admiral

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics

Congratulations, Greenie! Great news. Marcie Sent from my iPad On Nov 14, 2014, at 7:35 PM, Marty Gartenberg wa2...@gmail.com wrote: Greenie, Hey, what took you so long? I am thrilled to hear this wonderful news. You are blessed. 18's, Marty On Fri, Nov 14, 2014 at 2:29 PM,

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 2 topics

Greenie, we are all so thrilled you are doing well. If Marty is our captain, I think you must be his first officer! Marcie Sent from my iPad On Nov 14, 2014, at 9:38 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: I would like to thank each and everyone of you for your warm

Re: [CMLHope] newly diagnosed

Marty, What a lovely email to Sue. We are traveling together and I feel like you are the Captain of our ship! Thinking about you and keeping you in my prayers Love and 18s, Marcie Sent from my iPhone On Nov 12, 2014, at 8:34 PM, Marty Gartenberg wa2...@gmail.com wrote: Oh yes Sue,

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 8 updates in 2 topics

to all, 18's, Susan -Original Message- From: 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Oct 10, 2014 6:30 pm Subject: [CMLHope] New Results Hi Friends, De Just got my 3 month bcr-abl results. After 6

Re: [CMLHope] New Results

with very little problems with that. I know everyone is really different in reactions. This does not mean you won't continue to use gleevec, just a slight bump in the road. I hope your cramping has gone away? Prayers to all, 18's, Susan -Original Message- From: 'Marcie Goodman

Re: [CMLHope] Re: New Results

Hi Richard, and thanks very much. I think those 2 undetecteds got me thinking I'd stay that way for a long time. I know that the next test could be better and thankfully we have so many options today with CML. I hope your doctor's visit goes well and please let us know when you get the

Re: [CMLHope] New Results

marrow transplant. You do know the meaning of 18's well it means life, and that is exactly what you have. wishing you many 18's, Marty On Fri, Oct 10, 2014 at 6:25 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Hi Friends, Just got my 3 month bcr-abl results. After

Re: [CMLHope] New Results

Shalom and todah rabbah, dearest Giora. Yes, one test isn't a big deal. I haven't been feeling very well and have lost over 10 pounds in a short time. Nothing has turned up on any tests so could just be stress. I'm awaiting the General Election on November 4th because my current boss lost his

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

Hi Marty, How are you since your last surgery? Here's hoping that the New Year will bring abundant blessings to all, but especially to you, dear Marty, for a transplant to come your way very shortly. Marcie Sent from my iPad On Oct 4, 2014, at 8:10 PM, Marty Gartenberg wa2...@gmail.com

Re: [CMLHope] Fwd: proton pump inhibitors found this on Gleevec susan and all

Susan, that is really great news and I'm so happy for you. Enjoy the beautiful weather. Marcie Sent from my iPad On Sep 8, 2014, at 6:26 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Hi all, Just wanted to report the most beautiful summer/fall day ever today!

Re: [CMLHope] Digest for cml...@googlegroups.com - 4 updates in 1 topic

Hi Everyone, Glad we are all still here with our attitudes of gratitude. Susan, did you take pictures with Greenie? If so, would you post some? I'm recovering from my car accident slowly but it just is something that will take time. We listen to the world news and feel so sick about the state

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 updates in 1 topic

Hi Eluzabeth, Hopeful news is always good to hear. I have been in Gleevec since diagnosis 5 1/2 years ago and mostly have night sweats. I take Gleevec with dinner and that could be why the sweats occur throughout the night. I sleep with a fan next to me, even in winter. I wouldn't be concerned

Re: [CMLHope] I haven't seen any poste lately

Hi Marty, I had a bad car accident about 10 days ago. I've been out of work and in to physical therapy. Very thankful to be here, as I was broadsided and my car was pushed across 3 lanes of traffic, and came to rest across 2 lanes of oncoming traffic. Lots of pain but nothing broken except

Re: [CMLHope] Here's some posts!

Susan, wow, those are great results! I'm so happy for you. When you see Greenie, please take some photos to share with us. Much love, Marcie Sent from my iPad On Aug 7, 2014, at 10:01 AM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Hello Marty, Marcie and Skip, along

Re: [CMLHope] I haven't seen any poste lately

You are a true warrior! And I'll keep your advice tucked away. Stay strong. Marcie Sent from my iPad On Aug 7, 2014, at 10:01 AM, 'Skip Duffie' via CMLHope cmlhope@googlegroups.com wrote: Thank you Marcie, this was most likely the worse month I've had. On the other hand I got through

Re: [CMLHope] Just checking

Hi Richard, Like Susan, I've got out of town guests. Getting older sure isn't for sissies and add in CML and it is tougher. But I think everyone in our group really seems to live life to the fullest extent. My boss lost his re/election primary and my job and great health benefits are now in

Re: [CMLHope] Sprycel and bosulif

Hi Maria: Susan Zimmerman on this site is now on bosulif, I think. She is a sweetheart and I'm sure when she sees your post she will respond. Wish I could be of more help but I've only been on Gleevec. Hugs, Marcie Sent from my iPhone On Jul 20, 2014, at 3:25 AM, mariacash...@gmail.com

Re: [CMLHope] Bone Pain

really need to talk to these CML specialists. 18's, Marty On Wed, Jul 16, 2014 at 9:12 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Thanks, Jeanie. I'll try the castor oil and let you know. The baths help but I work full time and a lot of the pain is going

Re: [CMLHope] Sprycel and bosulif

, but we can't do both Great love to you all and 18's, Susan F. Zimmerman -Original Message- From: 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Sun, Jul 20, 2014 8:49 am Subject: Re: [CMLHope] Sprycel and bosulif Hi Maria

Re: [CMLHope] My story, Part I

Hi Maria: How have you progressed since diagnosis and what meds do you take. I don't believe I've met (since we all know each other through the internet) anyone dx'd in blast stage. What an awful fright that must be. I relate to pushing off the symptoms and assuming it's just tiredness because

Re: [CMLHope] My story, Part I

that if this didnt work, he would change me to Bosulif. I am really feeling better with Sprycel at 70 mg daily, but have concerns as to whether it is a good idea... Maria Cashion On Tue, Jul 15, 2014 at 9:37 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Hi Maria

Re: [CMLHope] My story, Part I

. I prayed and I was blessed On Wed, Jul 16, 2014 at 9:05 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Hi Maria, I'm on Gleevec since being dx'd 5 yrs and 4 months ago so I really don't know much about Sprycel or the other TKIs. But plenty of people

Re: [CMLHope] Bone Pain

Thanks, Jim. That is very encouraging news. I really have done well on Gleevec and the only bad side effects are fatigue and bone pain, mostly in the knees and below. I, too, feel extremely blessed to be alive, working with great health care benefits and a wonderful support system of family and

Re: [CMLHope] Bone Pain

Thanks, Susan. Do you still have pain? Glad to hear that you seem to be doing well on your new routine. Thank goodness for the accomplishments in treatment of CML. Marcie Sent from my iPhone On Jul 10, 2014, at 7:32 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote:

Re: [CMLHope] Re: Millie

Marty, Best wishes for a speedy recovery. You are an important part of our cml family and everyone will be praying for you. Marcie Sent from my iPhone On Jul 4, 2014, at 4:41 PM, Marty Gartenberg wa2...@gmail.com wrote: Dear Richard, Chris, and everyone else, I am so sorry to hear

[CMLHope]

Hi Friends, I'm so glad that Millie's son is keeping us informed. How difficult for them, and all of us, to lose such a dear, loving person. No doubt in my mind that Millie will be in God's arms. Beth, I hope you are quickly able to find an alternative treatment. You've been through so much

Re: [CMLHope] Millie

Greenie, thoughts and prayers for your wife to have a speedy and complete recovery. Isn't her name Grace? Hang in there. Everyone will be thinking of you. Sent from my iPad On Jun 26, 2014, at 8:50 PM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: WOW, did I mess up on that

Re: [CMLHope] Millie

Chris: Please know that your mom and all of the family will be in my thoughts and prayers. May God grant you, your beloved mom and family with strength and grace as you face this challenge. Marcie Sent from my iPhone On Jun 22, 2014, at 12:02 PM, C.M. Houtz ho...@ptd.net wrote: Good

Re: [CMLHope] Millie

Thanks, Chris. Everyone is thinking about her. Please tell her Marcie in Baltimore sends her love. Your mom is in all of our thoughts and prayers. Sent from my iPhone On Jun 13, 2014, at 9:47 PM, C.M. Houtz ho...@ptd.net wrote: Hello everyone,as I understand this will be read by many

Re: [CMLHope] Millie

Marty, Your letter to Millie is just like you, very kind and caring. I'm keeping my fingers crossed and hoping that Millie is OK. We really are like family and it is scary when someone drops off our grid. When you were in the hospital recently, everyone prayed that you would have a short stay

Re: [CMLHope] Millie

Marty, I haven't seen a post for weeks. I think I have her phone #. Hopefully, someone will post soon that they've talked to her. Marcie Sent from my iPad On Jun 8, 2014, at 7:46 PM, Marty Gartenberg wa2...@gmail.com wrote: Has anyone heard from Millie? I haven't seen any poste from her

Re: [CMLHope] May 21st

Happy Birthday to you and Shelly. May you have many blessings ahead! Marcie Sent from my iPad On May 21, 2014, at 10:01 PM, Marty Gartenberg wa2...@gmail.com wrote: Well, it's May 21st which is my first and second birthday. I was actually born on May 21st 1944 and had my bone marrow

Re: [CMLHope] how much sprycel susan

So glad to hear that Marty is out of the hospital, Millie is doing her knitting and cooking, Susan isn't experiencing side effects, Greenie's results are excellent, Pat Elliott is taking charge of so many issues and Richard and Jeanie seem to be upbeat. I remember that Beth was having a tough