Re: [CMLHope] Catch Up

Yes!!  How are you Susan??? -Original Message- From: 'SUSAN ZIMMERMAN' via CMLHope Sent: Fri, Sep 9, 2022 10:18 am Subject: [CMLHope] Catch Up Good day. I'd like to ask you for a favor. Kindly let me know if you get my email? Thanks. SUSAN ZIMMERMAN -- -- [CMLHope] A

Re: [CMLHope] Not getting any mail

-Original Message- From: Joyce Mesnarich To: cmlhope Sent: Mon, Sep 16, 2019 2:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie.I think we all have just become quiet on this site.  I have received no mail either.  My husband is the CML patient.  I am his caregiver.  He is

Re: [CMLHope] Not getting any mail

HI Jeannie. I have not heard from anyone in a long while. This is Beth. Hope everyone out there is hanging in there.. My best to all of you.. KIndest regards, 18's for Marty and hugs to all.. Beth -Original Message- From: 'icandoallttc' via CMLHope To: cmlhope Sent: Mon, Sep 16, 2019

Re: [CMLHope] Got a sore won’t heal ?

Jeannie,please go to a doctor and have it looked at. Whatever it is, bug bite, spider bite, or whatever..it does not sound good. could be infected with the rash?? Anyway...I am worried about you. you take good care. I know it is hard to gather the energy to go to the doctor..but it sounds like

Re: [CMLHope] Thyroid issues

our recent physical problems, that's what we are here for, too!  Beth, hang in there and Jeannie, and Greenie, too. Gotta go! 18's and love and hugs,Susan Z. On Dec 26, 2018 2:09 PM, bkbarney via CMLHope wrote: Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough meds

Re: [CMLHope] Merry Christmas and happy Holidays to all

Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope wrote: hi Jeanie and Susan Z, Wishing you both a happy

Re: [CMLHope] Merry Christmas and happy Holidays to all

hi Jeanie and Susan Z, Wishing you both a happy and peaceful New Year filled with moments of joy and sweetness amidst all the healthy struggles. You are both such strong woman and I admire the courage you both show in navigating multiple health issues at once. I feel for both you.. Stay

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

Dear Nick and Elizabeth, Thank you for your lovely Christmas blessings email. I hope that you both have a year ahead filled with good health, moments of joy and wonder and lots of love.  Warmest regards and 18's Beth -Original Message- From: NICK WOODS To: cmlhope Sent: Tue, Dec 18,

Re: [CMLHope] Hi Shaun question

Hi Shaun and all my CML buddies here... Just wanted to wish everyone a peaceful and Joyful Thanksgiving. I know the holidays can be very grief inspiring when we have lost those we love both recently and in the past.. As I reflect upon the things I am most thankful for this holiday season,

Re: [CMLHope] Update on Marty G

Dear Shelly and Shaun, When I read your email to all of us my heart broke. I thought of you today at the funeral and said prayers for each of you as well as all the members of our group here. We are all in shock. I share the sentiments of everyone who has already written to you expressing

Re: [CMLHope] Please answer to see if I’m getting my mail

Dear Jeanie, Just wanted to say I am here, thinking of you and everyone else... The year is slipping by...and next week snow flurries in Chicago. Soon it will be Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid troubles.. Hopefully they can help you get with the right

Re: [CMLHope] Hello All!

Dear Richard, So sorry to hear about your struggles and hospitalizations. Sounds scary. So glad to hear that you are on the mend and starting to feel better...I shall keep you in my thoughts and prayers along will all of our community out therestruggling together and those who are feeling

Re: [CMLHope] Blood work Moffitt perfect

Marty,, so sorry to hear about your broken leg!! Oh my gosh! May you heal fast and well. Much love and 18's Beth And Jeannie- you have the right to see a doctor- just ask...sometimes we have to be very forth right about our needs. The system is very over crowded..those more acute often rise to

Re: [CMLHope] Blood work Moffitt perfect

So happy to hear this wonderful news. Thanks for sharing Jeanie. Happy and Healthy New Year to all who observe the Jewish Holidays. My update is that I continue to struggle, staying positive and trying to figure out what is going on with me. In the hospital for a few days a couple of weeks

Re: [CMLHope] Breathing Difficulties [Dasatinib]

Also, I agree with Jeanie, check out any supplements or other medications you are taking. Tumeric, is known to increase the effectiveness and also the side effects of the sprycel. I tried to take it with the sprycel and got horribly sick... so another thing to consider... !8 s Beth

Re: [CMLHope] Breathing Difficulties [Dasatinib]

Yes Ragavan, I too had the same problem. I can only take a small dose of Dasatanib because I get the plural effusions and swelling around the heart from the medication. It is a known side effect that can creep up any time. Many patients do just fine on a very specific dose, if they raise it,

Re: [CMLHope] Re: Sudden problem after twenty years.

Hi Jeanie, Yep, have taken levothroxine since I was 30. Still on it without incident. Much love to all and 18's Beth -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Tue, Jul 17, 2018 10:58 am Subject: Re: [CMLHope] Re: Sudden problem after twenty years. Anyone

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 3 topics

Thank you for sharing Elizabeth. It so inspires me, NIcks story, and despite the gleevec brain, ( sprycel etc..), hearing about long term survivorship is very hopeful to all of us. Much love to all. 18's Beth -Original Message- From: NICK WOODS To: cmlhope Sent: Sun, Jun 10, 2018

Re: [CMLHope] Great Smokie Mountains

So happy for you Jeanie that you are with family in such a beautiful place!!! Soak it inthanks for sharing. Thinking of everyone and sending love. I am on a drug holiday since May 25th. Will do blood work again in a week to make sure I am doing OK. Just not feeling well at

Re: [CMLHope] Beth

o are you. I have always told everyone that Leukemia is a powerful disease and so it is BUT so is your mind... Use it! 18's, Marty PS why do you think that all of my posts ends up with 18's? Because it means LIFE. On Tue, May 8, 2018 at 10:52 PM, bkbarney via CMLHope <cmlhope@googl

Re: [CMLHope] Beth

Dear Marty, I sing praises every dayfor my life and for sprycel. I even bless my medication in my hand before I take it each night.. my little ritual. the side effects of the medication coupled with the two botched surgeries have left me with a great deal to navigate daily. I know I am

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

Thanks for the beautiful pictures Marty... So uplifting I got my BCR back today, undetectable... yea! So that is my news for today.. Love to all.and happy Spring, Beth -Original Message- From: Marty Gartenberg To: cmlhope

Re: [CMLHope] Jeanie’s garden

So happy you and Shelly got to cruise the world Marty I am very happy to hear this.. Love and 18's Beth -Original Message- From: Richard H To: CMLHope Sent: Tue, May 1, 2018 10:49 pm Subject: Re: [CMLHope] Jeanie’s garden

Re: [CMLHope]

Dear Jeanie, Cannot wait for you to go to the Smoky Mountains with your family...something to look forward to and June is just around the corner!!! I hope and pray that you stay well enough to go and enjoy!!! Glad your blood is good but sorry your struggles continue.. you are such a trouper!

Re: [CMLHope] Beth muscle issues

ody to heal. Blessing My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL On Mar 23, 2018, at 12:45 AM, bkbarney via CMLHope <cmlhope@g

Re: [CMLHope] Beth muscle issues

ycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL On Mar 10, 2018, at 8:41 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone else who am forgetting because of my chemo brain

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone else who am forgetting because of my chemo brain. I am here, think about everyone often...had a bad flu season...really starting to feel better only nowWow17 years for both Kristen and Jeanie!! Congrats...I just hit 8

Re: [CMLHope] My annual appreciation day

Dear Joyce, Oh my gosh!!! You have been through so much!! You are amazing! . I am so glad you came through your surgery and complications and get to be back home with your hubbie...glad that your daughters were able to help out as well!! Glad you are back here...take good care and keep on

Re: [CMLHope] Yahoo!! Yippie!!! I'm 0

Happy happy happy Jeannie...I agree with Susanless meds = less side effects :) Love, Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Sun, Feb 4, 2018 9:16 pm Subject: RE: [CMLHope] Yahoo!!

Re: [CMLHope] off Sprycel

HI Choi, This sounds very difficult. While your friend is not in molecular remission his blood work is stable..it has not spiked while on less sprycel. Is it possible he could go on 40 mgs or 40 five days a week and 60 two days a week? Sometimes just enough medication will keep the plural

Re: [CMLHope] CML and Gleevec-Thankful for another year

Ditto...to all a very happy, healthier and peaceful New Year. Thanks to all for caring about me and each other...It makes this journey so much easier to walk.. My best to all of you.. I am still waiting on BCR blood work... will report when I know something Love and 18's Beth

Re: [CMLHope] Hospital for Thanksgiving.

Greenie, I am thinking about you too and hoping and praying that your kidneys will hold. It is a scary thing to have to live with fear and uncertainty. We are all with you.. I cannot imagine what it is like to lose a son, but I think you have a great deal of soul and resiliency to survive

Re: [CMLHope] Hospital for Thanksgiving.

Dear Richard, So sorry to hear about your troubles with your kidneys...These powerful drugs have affected many of us in many ways, including kidney function. I am hopeful that you will make a complete recovery and with proper and thoughtful care, you will be better very soon. You have been

Re: [CMLHope] Email change

I got information as well, but that AOL was not going to be a usable service as of December 15th, so I needed to change my email and am in the process of opening up a gmail account. When I do I will forward my new email address to everyone here. I also have had AOL for decades and while it

Re: [CMLHope] Well wishes

but I just do whatever I have to do. Anyway I wish all of you a happy thanksgiving 18's Marty On November 23, 2017, at 2:49 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Warmest regards to you Susan and have a lovely Thanksgiving holiday with your family..Laying low and c

Re: [CMLHope] Well wishes

Warmest regards to you Susan and have a lovely Thanksgiving holiday with your family..Laying low and cozy by the fire is lovely...I wish you better health and lots of joyful moments in the New Year ahead... Thanks for being here. Love to all on this Thankful holiday 18s Beth

Re: [CMLHope] Holiday Season!

Wonderful news Richard!!! I hope you and everyone here has a lovely Thanks giving and a very healthy and peaceful holiday season.. Love and 18's to all, Beth -Original Message- From: Richard H To: CMLHope Sent: Fri, Nov 17, 2017

Re: [CMLHope] Please I need your help

am, at least for the time being. 18's, Marty On Tue, Oct 31, 2017 at 11:19 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Marty, I am talking about straight cranberry juice, knudsons organic 100% cranberry. no sugars, nothing but cranberries not from concentrate.

Re: [CMLHope] Please I need your help

PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Dear Jeannie, I have had the contrast dye with an MRI on three occasions.I have had many MRI"s without contrast. The gadolinium dye is most commonly used. It is different than contrast dye used in CT scans. I had no ill sid

Re: [CMLHope] Please I need your help

Dear Jeannie, I have had the contrast dye with an MRI on three occasions.I have had many MRI"s without contrast. The gadolinium dye is most commonly used. It is different than contrast dye used in CT scans. I had no ill side effects from the dye personally. Just a taste of metallc when it was

Re: [CMLHope] Please I need your help

I don't remember Marty, but I will look back in our past group conversations. If it's anything saved, I will forward it to you. Hope all is well with everyone. My BCR results came back stable! A blessing!!! Dr. Druker is referring me to a colleague of his that specializes in some of my side

Re: [CMLHope] Right hand numb

he wanted to discuss my side pain. Just wondering. Thanks. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 27, 2017, at 11:18 PM,

Re: [CMLHope] Right hand numb

My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 27, 2017, at 11:18 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote:

Re: [CMLHope] Right hand numb

Jeannie, Do you wake up with this every day after sleeping? Does it lessen any time during the day, or get more intense? My first thought is that what other's have said, it could be a pinched nerve that when you lay a certain way, it impinges and causes pain. The nerve pain can move to

Re: [CMLHope] A picture of me, my sister and my brother

September 15, 2017 bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: What a sweet picture Marty. Yep, definitely a resemblance. But as adults. I showed a friend of mine your picture and asked him: "Who is this?" And without hesitation he said. "Ron silly" . Nice to

Re: [CMLHope] Words OF WISDOM.

Greenie, So glad you had no damage. My friend in Fort Myers, her home is uninhabitable.It's terrible! So relieved for both of you! Take care, 18's Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Sat, Sep

Re: [CMLHope] Me or the icon?

:) -Original Message- From: Marty Gartenberg To: CMLHope Sent: Thu, Sep 14, 2017 10:32 pm Subject: [CMLHope] Me or the icon? Love you BethBy the way Beth are you talking about me or the icon? 18's Sweetheart Marty -- --

Re: [CMLHope] A picture of me, my sister and my brother

What a sweet picture Marty. Yep, definitely a resemblance. But as adults. I showed a friend of mine your picture and asked him: "Who is this?" And without hesitation he said. "Ron silly" . Nice to banter about sweet things. I am doing my blood work on Monday finally. It got postponed twice,

Re: [CMLHope] A butterfly's lesson

Marty I could not open this. Could you put it in the body of an email? Thanks. 18's Beth -Original Message- From: Marty Gartenberg To: undisclosed-recipients:; Sent: Wed, Sep 13, 2017 8:45 pm Subject: [CMLHope] A butterfly's lesson Things happen for a reason,

Re: [CMLHope] Words OF WISDOM.

Greenie, I am behind in emails so I just read this. I am very relieved to hear that you and Grace are in Indiana. I am thinking of youhope your home and car will be in good shape when you return. Fingers crossed. Sending love and prayers to you and to everyone else out there who is

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 5 updates in 1 topic

Thinking about you Marty, and your sweet wife and everyone in Florida being hit right now. I assume you cannot see this because of power outages but I wanted you to know that all of us are with you...my heart goes out to you... 18''s Beth -Original Message- From: 'Jeanie' via

Re: [CMLHope] Greetings from the land of Harvey

Dear Norm, Thanks for your post. And to Greenie and your wife in Fort Myers. I hope you both are safe, and to everyone else who is in Houston, or Florida or wherever this storm passes through Just know that lots of people are thinking about you and praying for you. I know I am. These

Re: [CMLHope] 3 months off Gleevec

Great news Susan. I too have attempted going off several times, but numbers creep up...Will discuss the possibility of riding it out for a bit longer time off, the next time I go off for a holiday and see if this is an option for me. I know it does not work for everyone, but am very grateful it

Re: [CMLHope] Aug CML update.

Thanks for sharing such good news Richard. I am very very happy for you, No news here.. going next week for testing. will share results when I have them. Hope everyone is hanging in there and feeling good. Warm regards' 18's Beth -Original Message- From: Richard H

Re: [CMLHope] Gleevec

been reading all of your posts so i basically know what is going on. Please say hello to everyone for me. 18's, Marty On Wed, Aug 9, 2017 at 11:48 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Thanks Susan, No dialysis. Just n

Re: [CMLHope] Gleevec

Thanks Susan, No dialysis. Just navigating muscle deterioration at an accelerated rate which makes it hard to move, let alone exercise...just a significant rough patch, but trying to navigate it the best I can. I had little to give anyone for a while, but feel better able to be a contributing

Re: [CMLHope] Gleevec

Thanks Richard. You can preach whenever you want. :) Beth. -Original Message- From: Richard H To: CMLHope Sent: Tue, Aug 8, 2017 10:30 pm Subject: Re: [CMLHope] Gleevec Thanks for the update. I hope all keeps going well. No

Re: [CMLHope] Gleevec

Dear Jeanie, That pain in your side sure is miserable. ERCP to take a look might be helpful...I do understand the stress of ore tests...and that "what if they find something" that looms...but better to know what you are dealing with if possible..because at least you have some clarity and then

Re: [CMLHope] Gleevec

Dear Susan, Jeanie, Marty, Richard, Greenie et all, So sorry I have not been communicative for a long while. I am coming up after a really hard year physically and with many losses...sifting through 6000 emails...I realize how much I have missed just our groups banter, and love Hope

Re: [CMLHope] Gleevec

Dear Ken, Welcome back. 17 years and still going strong! Thank you for sharing your story...what a wonderful gift you shared with all of us here. People here are very kind and also, very resilient. Many of us have had additional medical challenges because of our treatments. We are simply

Re: [CMLHope] Blood work results

t. My father was a baker for more then fifty years. Brings back those taste buds, doesn't it... Not to mention those crispy critters, graveness 18's, Marty On Wed, Dec 14, 2016 at 11:20 AM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Dear Greenie, Another thought.

Re: [CMLHope] Blood work results

Dear Greenie, I had the same problem with creatine creeping up...but it was and continues to be helped by staying well hydrated, avoiding added salt and drinking 1` oz of pure unsweetened cranberry juice with 8 oz of water...throughout the day I have at least three glasses of this..and my

Re: [CMLHope] Got a brand new Hip!

Dear Suzieq, So very sorry to hear about your mother's death. My heart goes out to you. I am glad there will be a memorial next year in Kentucky that you can be a part of..sounds like the time you spent caring for here last spring will always be a precious memory for youand your hip

Re: [CMLHope] Happy Thanksgiving to all.

Ditto. Hope all my CML buddies have a peaceful and happy Thanksgiving. !8's,and love, Beth -Original Message- From: Richard H To: CMLHope Sent: Mon, Nov 21, 2016 10:54 pm Subject: [CMLHope] Happy Thanksgiving to all. I hope

Re: [CMLHope] Marty

Dear Marty, I am al;ways so glad to see your writing here. Like Richard, I am hoping always for the best for you... And you are right, while you have every right to complain considering all the pain and suffering you have endured, you instead lead us with your steadfast light, inspire us

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

HI Elizabeth, Just a note about muscle wasting and the TKI's. While they affect each of us differently, there is a clear connection between these meds and muscle wasting, cramping as well with Gleevec, sprycel and others. so, Nick is not alone...you might want to ask his doc to do a CPK blood

Re: [CMLHope] Just checking in

d your bite get better? Hope you are good. Blessings My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 12, 2016, at 7:00 PM, bkbarne

Re: [CMLHope] Just checking in

h Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 10, 2016, at 12:37 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Dear Norm, Long time

Re: [CMLHope] Just checking in

we love you Marty. So great to hear from you.. Rest up and keep healing.. WE miss you! Type when you can don't stresslots of prayers going out in your direction... Love and 18's Beth -Original Message- From: Marty Gartenberg To: cmlhope

Re: [CMLHope] Just checking in

Dear Norm, \Long time know hear from you!!! It was wonderful to catch up and be reminded of your history...I hope that you can retire well when the time comes. Good news about your son...I remember you sharing about Mr. Hansso sadMr Buster sounds like a stitch..hopefully he both

Re: [CMLHope] Haven't gotten any e-mail notifications

Dear Jeanie, I too was stunned that you have been in so much pain for so long and that the pancreatitis was not found sooner. Eating fats definitely triggers it and makes it worse. The good news is with proper meds, and a diet to calm it down, you very well may have that pain go away

Re: [CMLHope] Re: About Marty

Ditto from me. Thank you so much for checking on Marty. Glad to know his story..and that his amazing spirit is still intact to inspire all of us. HOPe everyoneis doing OK. Greenie , thinking of you and your wife as you live through the loss of your son. While there are no words adequate to

Re: [CMLHope] Haven't gotten any e-mail notifications

Dear Jeanie, I am still here. Sorry to hear about the pancreas issue. That would explain the pain in your side you have been dealing with for so long...let me know what happens. I am OKworried about Marty and others..had a rough summer health wise, but trying to stay positive, and figure

Re: [CMLHope] How Am I Doing?

Susan, I am so deeply happy for you! thanks for sharing such good news. Love, Beth -Original Message- From: 'Susan Rosenthal' via CMLHope To: cmlhope Sent: Wed, Aug 3, 2016 7:54 pm Subject: [CMLHope] How Am I Doing? Jeanie and

Re: [CMLHope] Fatigue side effect testing nilotinib

weet warrior. We are worried about Marty. Marty are you there??? My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Jul 13, 2016, at 1:36 PM,

Re: [CMLHope] Fatigue side effect testing nilotinib

Dear Jeanie, Hope you are feeling better...and staying positive! Sorry it took so long for me to write back to you and everyone. I got really sickvirus that morphed into a bacterial infection...it was scary...103 fever for close to a week. I am at week five, and finally feel about 80

Re: [CMLHope] About John Hopkins Cancer Update

Dear Greenie, So glad to hear that Joyce is home. Greenie, as I am in Chicago..if I can help you in any way..please let me know. Thinking of you and your family sending warmth and prayers to you. Beth -Original Message- From: 'Jeanie' via CMLHope To:

Re: [CMLHope] About John Hopkins Cancer Update

thinking about you Marty. Glad you are out. Sorry to hear about your "bump in the road.." We need smoother roads! Take good care and keep us updated.. 18's and love, Beth -Original Message- From: Richard H To: CMLHope Sent: Mon, Jun

Re: [CMLHope] About John Hopkins Cancer Update

Dearest Greenie, I am so deeply saddened to hear of your and Grace's news about your son Derek. My heart goes out to you and your family now and in the future. I do not believe there are words that can begin to express the devastation and loss you must feel. I hope you and Grace, your

Re: [CMLHope] Pictures

Dear Kathy, I just wanted to say hello and let you know that many of us are out here, following your posts and are cheering for you...The beginning years are often the hardest for many with CML as finding the right TKI for you at just the right dose which helps to keep the cancer under

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

ough. I am getting better. Each day I feel a little stronger. I think there is a virus going around that no one has identified yet. Anyway have a wonderful weekand thanks again. This group has really boosted my morale Greatly. Love you On May 11, 2016, at 5:26 PM, bkbarney via CMLHope <cml

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

Jeanie, thinking of you and hoping you feel better soon. I agree with others here, please act swiftly and see your doc. If you do need antibiotics you can get on them sooner verses later...it seems like once something gets through our immune systems, it's harder to recover because of the

Re: [CMLHope] Prayers are offered.

pe <cmlhope@googlegroups.com> wrote: Beth, yes, a long time since you've posted. Please let us know your results. Sending prayers and hugs. Marcie Sent from my iPhone On May 2, 2016, at 2:05 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Thank you Richard for you

Re: [CMLHope] Prayers are offered.

Thank you Richard for your kind words and prayers. They are always so appreciated. You are such a stable presence here. I so appreciate your thoughts and help. I hope everyone is navigating the best they can. Know that I think of all of you often...haven't written much because of my own

Re: [CMLHope] To Susan Zimmerman

Dear Kate, Sorry it has taken a a little while for me to write to you, but I want to welcome you to our groupalong with all the others here, it is a very special place to give and receive support...so do stay close, and hopefully, we can all continue to learn from one another...regarding

Re: [CMLHope] Re: An update

Dear Suzieq, Thinking of you with your momplease try to remember to take care of yourself while taking care of others...our hearts of with you...warmest regards, Beth. -Original Message- From: Shannon L To: CMLHope Sent:

Re: [CMLHope] My March UPdate

Great news Richard! I am so happy for your news! Beth -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Sun, Mar 27, 2016 9:08 am Subject: Re: [CMLHope] My March UPdate Yes and yahoo!!!'blessings My Motto:

Re: [CMLHope] Re: Dizzy all day

Dear Marty, So glad you are out of the hospital! And Peg, you are so right about what you said to Jeanie...Hope everyone is doing as well as possible. Thinking of all of you...love, and 18's Beth -Original Message- From: 'Icandoallttc' via CMLHope To: peg

Re: [CMLHope] Hey, what happened to everyone?

Hi Sherri! Glad to hear from you. I hope they get to the bottom of the swelling for you...Lymphedema clinic might be a good idea...they can even teach you some home massage things to do to try and reduce the swelling..but finding the source first seems like the best idea..hang in there...I

Re: [CMLHope] Re: Hey, what happened to everyone?

Norm, it is so nice to hear from you and get caught up! I am so glad to hear that you are still holding your own with ...Tasigna..that is great news Elevel years So sorry about the death of your cousin. sounds so hard and sad... and that your Hans is sick...that is a heart breaker as

Re: [CMLHope] Hey, what happened to everyone?

Sounds like overall pretty good news Jeanie. How is the side pain? 18's and hugs, Beth -Original Message- From: Marty Gartenberg To: cmlhope Sent: Mon, Feb 29, 2016 6:35 pm Subject: Re: [CMLHope] Hey, what happened to everyone? Hi

Re: [CMLHope] Info update

Dear Susan, Thank you for the kind words. As I just read Jeanie's post...and Marty's, and yours and Jon's, .etc...I feel blessed that we all have access to good docs, who seem to care a lot..even if they cannot always solve or figure out what the problems are..(Jeanie's pain).and that we

Re: [CMLHope] Info update

Dear Marty and Susan, Just a note to thank you for your posts, and for keeping us informed so we can stay connected, and keep you both in our hearts and prayers. You both have been through so muchyet your attitudes and spirits really are remarkableI think your faiths seem to play

Re: [CMLHope] Info update

So glad you are back home John! What an ordeal...I hope and pray that you get better and better and regain your strength and the weight you want to to feel healthy and strong. Glad the CML is under control...and still with one pill a week...wow! Take good care of yourself. I am, sure your sweet

Re: [CMLHope] Just wanted to check in with folks I remember

Thanks for the update Peg..I am glad that things sound a bit more stable for you...I do understand about not wanting to share with others if your road is hard so as to not scare us, ..but truly, each of us is unique, and our bodies respond very differently to treatments..so, please don't

Re: [CMLHope] rob's message long ago

Dear Rob, Deeply sorry to hear about your mom's death. thinking of you..and sending you healing peaceful thoughts as you move through the beginning of your grief...take good care...Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope

Re: [CMLHope] Re: Happy New Year to all

Dear Jeanie and everyone..., went back on my chemo on the first...cells showing again after 5 weeks offso uptaking now...doing o.k. except for the usual headaches which go away after a few weeks...also trying steroids to lower the cpk . Working on holistic ways to manage pain to have a

Re: [CMLHope] Re: stroke

Susan, you are a strong and amazingly positive woman...I am so sorry this happened..but trust you will heal.I think it's so hard to know what to do..regarding dosages and changing meds.trust your own knowing about your body and your own knowing about what may work best for you.. Much

Re: [CMLHope] Re: stroke

Susan, very happy you are out of the hospital...hope the new year ahead is full of joy, healing and renewed health for you...glad you are out of the hospital too. Please take good care...Love, and 18's Beth.. p.s. I was thinking the same thing about Marty..where are you Marty and how are

Re: [CMLHope] Re: Merry Christmas and happy Hilidays

Greenie, you did win the lottery and a whole lot more! 15 going on 16 years later..makes me cryand very hopeful...I was diagnosed in my 40's so want to be here for the next 50 years in good health.. !!! cheers to all of us warriors!! Beth -Original Message- From: Myvety2k

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