Re: [CMLHope] Not getting any mail
Susan, Hello, we all LOVE you. greenie -Original Message- From: 'educatorsusan' via CMLHope To: cmlhope Sent: Fri, Sep 20, 2019 8:50 am Subject: Re: [CMLHope] Not getting any mail I guess I’m a ghost because no one said “hello” to me. Susan Rosenthal On Sep 20, 2019, at 7:30 AM, myvety2k via CMLHope wrote: Hi Susan, it's always glad to hear from friends we know with CML and real glad your doing so well. Keep it going. greene -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Fri, Sep 20, 2019 2:58 am Subject: Re: [CMLHope] Not getting any mail ThAnks for answering everyone. I am still in remission and doing good. Did anyone else get a letter from Acadia health. I didn’t think anyone could mess with your meds unless you okayed it. Good health to all. Thanks again and bless you. Jeanie On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope wrote: I am here! Not been on as much lately.Last test I was in MMR, so elated about that. Great to see you on here, Greenie. And of course Jeanie, thank you for posting! Hope you and all are doing well as we all get a wee bit older. Stay strong, blood buddies!!! Hugs,Susan Zimmerman On Sep 16, 2019 6:27 PM, Joyce Mesnarich wrote: Good to hear from you, Greenie. Joyce in Southern Illinois On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope wrote: That's funny that you put out a post, I was going send one also like (hello, is anyone out there). I don't have to now. Thanks for posting. greenie -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Mon, Sep 16, 2019 3:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie.I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from a place I didn’t know anything about. My husband was previously seeing Dr Talpaz in Michigan. We live in Southern Illinois. So it was an expensive trip and as we have gotten older we found it is just too much for us. We found a doctor at Siteman Cancer Center in St Louis (50 miles from us) and started going to him. He is elderly himself. The last 2 times we went we saw his PA. She seems good but certainly is not up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients. My husband is doing well as far as CML goes. But time is taking its toll. He has very low energy. Don’t know if that is the CML or the medication. I hope you are feeling well. I know you have had some problems in the past. I have been in this group since 2008. Seems most everybody is gone. Sad. Joyce in Southern Illinois On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to
Re: [CMLHope] Not getting any mail
Hi Susan, it's always glad to hear from friends we know with CML and real glad your doing so well. Keep it going. greene -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Fri, Sep 20, 2019 2:58 am Subject: Re: [CMLHope] Not getting any mail ThAnks for answering everyone. I am still in remission and doing good. Did anyone else get a letter from Acadia health. I didn’t think anyone could mess with your meds unless you okayed it. Good health to all. Thanks again and bless you. Jeanie On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope wrote: I am here! Not been on as much lately.Last test I was in MMR, so elated about that. Great to see you on here, Greenie. And of course Jeanie, thank you for posting! Hope you and all are doing well as we all get a wee bit older. Stay strong, blood buddies!!! Hugs,Susan Zimmerman On Sep 16, 2019 6:27 PM, Joyce Mesnarich wrote: Good to hear from you, Greenie. Joyce in Southern Illinois On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope wrote: That's funny that you put out a post, I was going send one also like (hello, is anyone out there). I don't have to now. Thanks for posting. greenie -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Mon, Sep 16, 2019 3:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie.I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from a place I didn’t know anything about. My husband was previously seeing Dr Talpaz in Michigan. We live in Southern Illinois. So it was an expensive trip and as we have gotten older we found it is just too much for us. We found a doctor at Siteman Cancer Center in St Louis (50 miles from us) and started going to him. He is elderly himself. The last 2 times we went we saw his PA. She seems good but certainly is not up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients. My husband is doing well as far as CML goes. But time is taking its toll. He has very low energy. Don’t know if that is the CML or the medication. I hope you are feeling well. I know you have had some problems in the past. I have been in this group since 2008. Seems most everybody is gone. Sad. Joyce in Southern Illinois On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/B1E43834-6B94-4F1D-BE03-DDDA23F4E805%40htc.net. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed
Re: [CMLHope] Not getting any mail
I'm happy to hear from you Sherri, glad that your doing so good with your CML. The only problem with staying here year round is that it does get hot during the summer but then it's better then snow and cold in Northwest Indiana 40 min from Chicago. I will be flying in on the 6th of Nov to see my cancer Doctor get blood work and my meds. Derek's widow will pick me up at Midway and take me there and I get a chance to see his boys. I still can't believe that he's gone, I'll never get over that. Now at 80 as my Aunt used to say now it's one day at a time. I don't like getting old can't do the things that I used to do. Please take care of yourself and keep in touch. greenie -Original Message- From: sherri swanson To: cmlhope Sent: Thu, Sep 19, 2019 9:19 pm Subject: Re: [CMLHope] Not getting any mail Hi Greenie, I am so glad to hear from you. I know what you mean about the snow birds. I had family that lived in Florida and I would go and see them from time to time and if we wanted to go somewhere or do something it always had to be early so we didn't have to wait and we were able to get a parking space. I finally said I would only come in the summer so we could go and do things without the wait. I can hardly believe I have had CML for 17 years. It has been a shock to the system but I never let it get me down. I fight right back and that and Gleevec have worked for me. It's funny, I still get side effects from the Gleevec after all this time. I guess it wants me to know that it is doing its job. I'm glad that you are watching the grass grow and enjoying your days. I too am watching things grow. Hope you enjoy the photo. Sherri On Thu, Sep 19, 2019 at 4:24 PM 'icandoallttc' via CMLHope wrote: Good to hear from you Greenie. Wonderful summer. Stay safe. Jeanie My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal On Sep 16, 2019, at 4:51 PM, myvety2k via CMLHope wrote: That's funny that you put out a post, I was going send one also like (hello, is anyone out there). I don't have to now. Thanks for posting. greenie -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Mon, Sep 16, 2019 3:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie.I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from a place I didn’t know anything about. My husband was previously seeing Dr Talpaz in Michigan. We live in Southern Illinois. So it was an expensive trip and as we have gotten older we found it is just too much for us. We found a doctor at Siteman Cancer Center in St Louis (50 miles from us) and started going to him. He is elderly himself. The last 2 times we went we saw his PA. She seems good but certainly is not up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients. My husband is doing well as far as CML goes. But time is taking its toll. He has very low energy. Don’t know if that is the CML or the medication. I hope you are feeling well. I know you have had some problems in the past. I have been in this group since 2008. Seems most everybody is gone. Sad. Joyce in Southern Illinois On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Grou
Re: [CMLHope] Re: Not getting any mail
Just another note, Grace and I moved from Northwest Indiana 10 years ago to live in South Fort Myers but moved to Sebring a year ago. There were just to many people living there and the snow birds made it to hard to move around. Nothing again snow birds also, they have there right also. With you wanted to go out for dinner you would have to be there by 4 p.m. or wait for and hour or two. Way to many cars, a 5 min. drive to Lowe's would take me 5 min but in the winter it would take 15 to 20 min. We lived about 10 min from the beach so you would have to leave by 7 a.m. if you wanted to find a parking place. So now, we get to watch the grass grow now. greenie -Original Message- From: myvety2k via CMLHope To: cmlhope Sent: Wed, Sep 18, 2019 1:31 pm Subject: Re: [CMLHope] Re: Not getting any mail Sherri I'm so glad that you have CML in check after 17 years. I started STI571 (Gleevec) the first week in Jan. 2000 and still going strong. I was in a study with 200 other people in the United States before it was approved by the FDA. I was the only one from Indiana and the rest were from the Chicago land area. Hope to keep it that way. -Original Message- From: sherri swanson To: cmlhope Sent: Tue, Sep 17, 2019 3:35 pm Subject: Re: [CMLHope] Re: Not getting any mail Hi Jeanie, I'm still here too. Just been doing things and we, my husband and the dog moved this year. I'm getting to old for that moving stuff. My Gleevec is keeping my CML in check and has been for about 17 years. WOW, that's a long time. Hope everyone is doing well and has enjoyed the summer. Sherri Northern Illinois On Tue, Sep 17, 2019 at 8:49 AM kevin.l.willi...@gmail.com wrote: Hi Jeanie, I received my CML medicine from Acaria in the past with no issues. I think many insurance providers are requiring that patients go through mail order pharmacies like Acaria to save money. On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/88b537e0-676d-483d-a048-ac4d299bde43%40googlegroups.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/CAFyQvgJ1r-SCETVvH08h%3Dt%2BvW-rDmV53MVTPKS1eQmKeskpRtQ%40mail.gmail.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/c
Re: [CMLHope] Re: Not getting any mail
Sherri I'm so glad that you have CML in check after 17 years. I started STI571 (Gleevec) the first week in Jan. 2000 and still going strong. I was in a study with 200 other people in the United States before it was approved by the FDA. I was the only one from Indiana and the rest were from the Chicago land area. Hope to keep it that way. -Original Message- From: sherri swanson To: cmlhope Sent: Tue, Sep 17, 2019 3:35 pm Subject: Re: [CMLHope] Re: Not getting any mail Hi Jeanie, I'm still here too. Just been doing things and we, my husband and the dog moved this year. I'm getting to old for that moving stuff. My Gleevec is keeping my CML in check and has been for about 17 years. WOW, that's a long time. Hope everyone is doing well and has enjoyed the summer. Sherri Northern Illinois On Tue, Sep 17, 2019 at 8:49 AM kevin.l.willi...@gmail.com wrote: Hi Jeanie, I received my CML medicine from Acaria in the past with no issues. I think many insurance providers are requiring that patients go through mail order pharmacies like Acaria to save money. On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/88b537e0-676d-483d-a048-ac4d299bde43%40googlegroups.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/CAFyQvgJ1r-SCETVvH08h%3Dt%2BvW-rDmV53MVTPKS1eQmKeskpRtQ%40mail.gmail.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/168236363.3259899.1568827900935%40mail.yahoo.com.
Re: [CMLHope] Not getting any mail
That's funny that you put out a post, I was going send one also like (hello, is anyone out there). I don't have to now. Thanks for posting. greenie -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Mon, Sep 16, 2019 3:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie.I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from a place I didn’t know anything about. My husband was previously seeing Dr Talpaz in Michigan. We live in Southern Illinois. So it was an expensive trip and as we have gotten older we found it is just too much for us. We found a doctor at Siteman Cancer Center in St Louis (50 miles from us) and started going to him. He is elderly himself. The last 2 times we went we saw his PA. She seems good but certainly is not up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients. My husband is doing well as far as CML goes. But time is taking its toll. He has very low energy. Don’t know if that is the CML or the medication. I hope you are feeling well. I know you have had some problems in the past. I have been in this group since 2008. Seems most everybody is gone. Sad. Joyce in Southern Illinois On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/B1E43834-6B94-4F1D-BE03-DDDA23F4E805%40htc.net. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/850801927.2162194.1568667119858%40mail.yahoo.com.
Re: [CMLHope] Merry Christmas and happy Holidays to all
Hi Beth, It's nice to get away from cold weather that's why we moved 9 years ago from Northwest Indiana. I'll take the heat but can't stand the cold. You only have about 4 to 5 months of good weather up North but only 4 to 5 months of real hot weather in Florida. Moved to Sebring to get away from to many people in South Fort Myers. To much crime, cars, people, have to go out to eat early so you don't have to wait 1 to 2 hours to get in. And the biggest reason was the house we were in had 12.9 Radon in it and that was not good for Grace with her COPD. They are building so many apartments and home there so it will be worse. Much slower living here, and Grace purchased me a Tracker bass boat so I can get back to fishing, and there are so many lake to fish in. Anyway take care. Dave Greenberg -Original Message- From: bkbarney via CMLHope To: cmlhope Sent: Wed, Dec 26, 2018 2:09 pm Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart and my usual thyroid issues, but I stay positive and carry on. On vacation, made it this year, so enjoying shelling and the beach...windy but great shelling!! Love to all, and please, lets all stay together here this coming year. Zavie and Marty taught us well, along with Millie and many otherscommunity and shared experiences mean so much Love, and 18's to all Beth -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Wed, Dec 26, 2018 2:02 pm Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all Thank you so much how are you? My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope wrote: hi Jeanie and Susan Z, Wishing you both a happy and peaceful New Year filled with moments of joy and sweetness amidst all the healthy struggles. You are both such strong woman and I admire the courage you both show in navigating multiple health issues at once. I feel for both you.. Stay positive and now that lots of us out here are thinking of you. Happy holidays!! 18's Beth -Original Message- From: rszim0702 via CMLHope To: cmlhope Sent: Sat, Dec 15, 2018 10:00 am Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia myself. Along with IBS, I have to make myself go out of the house. All of you keep warm and have a wonderful Merry Christmas!!! It is what you make it. 18's and hugs,Susan Z On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote: Wishing the best to you in the New Year. Sent from my LG Mobile -- Original message--From: 'Icandoallttc' via CMLHope Date: Sat, Dec 15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry Christmas and happy Holidays to all Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting another disease: thyroid. At least that’s what they think it is. Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t take the meds as they make it worse. No matter what-fight on. -- -- [CMLHope]A support group of http://cmlhope.com-You received this message because you are subscribed to the Google Groups "CMLHope" group.To post to this group, send email to CMLHope@googlegroups.comTo unsubscribe from this group, send email to CMLHope-unsubscribe@googlegroups.comFor more options, visit this group at http://groups.google.com/group/CMLHope--- You received this message because you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com.for more options, visit https://groups.google.com/d/optout.-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com
Re: [CMLHope] Hi Shaun question
And the same to you also Beth and my other CML friends. greenie -Original Message- From: bkbarney via CMLHope To: cmlhope Sent: Wed, Nov 21, 2018 10:22 pm Subject: Re: [CMLHope] Hi Shaun question Hi Shaun and all my CML buddies here... Just wanted to wish everyone a peaceful and Joyful Thanksgiving. I know the holidays can be very grief inspiring when we have lost those we love both recently and in the past.. As I reflect upon the things I am most thankful for this holiday season, Marty is one of them. So are each of you who read what I right and even if you do not respond, say prayers for me and the rest of us. Wishing you all a happy holiday. !8's and love, Beth -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Wed, Nov 21, 2018 11:59 am Subject: [CMLHope] Hi Shaun question Hi ShaunI know you are in a lot of grief and if you don’t feel like talking about I will understand. I have never feared death but always feared that I would be in a lot of pain while dying. My question is did they give your dad pain meds before he went into hospice? I miss him so much as he was my advisor as well as my friend. Prayers to you and yours Jeanie My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal On Nov 19, 2018, at 9:52 PM, Marty Gartenberg wrote: Hi Sherri, This is Shaun. My family and I greatly appreciate your heartwarming gift. Thank you so very much for that. My Mom (his wife, Rachelle) sends her thanks, as well. Regards,Shaun On Wed, Nov 14, 2018 at 8:27 PM sherri swanson wrote: Hello Shaun, I am so very sorry to hear about your dad. He was such a kind and gentile man and he will be missed by many. I wanted to let you know that I have planted a tree in his name in Israel. May this serve as a living tribute to his memory. You and your family are in my thoughts and prayers. Marty will always be in my heart and on my mind. My heart is broken knowing I will not receive another message from Marty and we will no longer share share photos. As long as we live, they too will live; for they are now are a part of us; as we remember them. Regards, Sherri Swanson On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg wrote: Hi everyone - This is Marty's son, Shaun, again. Thank-you all so much for all the stories, kind thoughts, wishes, and prayers for my Dad and our family. We are all so grateful to know how loved he was and how he was able to touch so many lives in a profound way. Hi Wayne - please do not cancel this thread. I am still checking in on it and relaying to rest of my family. Just as he helped others, you all are helping us, and we appreciate that, so much. Regards,Shaun On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken wrote: Please cancel. Subscriber is deceased. From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] Sent: November-14-18 5:14 AM To: Digest recipients Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic | cmlhope@googlegroups.com | Google Groups | | Topic digest View all topics · Update on Marty G - 1 Update Update on Marty G | Tracie Camlin : Nov 13 06:50AM -0600 Dear Shaun and Family, I am so sorry for your loss. He was truly an amazing person who inspired and supported so many of us. His strength and courage held me up at times he didn't even know about. He will be missed. Blessings and much love to you and your family. Best Regards Tracie Mulvaney On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope < | Back to top | You received this digest because you're subscribed to updates for this group. You can change your settings on the group membership page. To unsubscribe from this group and stop receiving emails from it send an email to cmlhope+unsubscr...@googlegroups.com. | -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" grou
Re: [CMLHope] Update on Marty G
Shaun, My name is David Greenberg and am so sorry to hear the news of your Father passing. He meant so much to our group and was ALWAY'S there when we ALL needed him. He WILL be MISSED. David (greenie) Greenberg -Original Message- From: Marty Gartenberg To: CMLHope Sent: Sun, Nov 11, 2018 1:54 am Subject: [CMLHope] Update on Marty G Hello everyone - This is Marty Gartenberg's son, Shaun. It is with great sadness for me to say that my father passed away this past week, on Wednesday, November 7th, after having entered hospice care the previous Friday, November 2nd. I know many of you were good friends with him and that he helped a lot of people through this support group. This all started with a bad fall over 7 weeks ago on September 15 in his garage where he fractured his left femur. He subsequently underwent surgery to get a rod implanted in the bone to help it heal. After a few weeks of physical therapy, a checkup showed that one of the screws needed to be adjusted, so he had a second surgery for that to adjust the rod, and add a plate. After having more therapy, a MRSA infection was discovered in the incision wound. He also contracted pneumonia. In order to combat the infection, he had a third surgery on the incision to perform a debridement of the wound and was put on course of several antibiotics. He was admitted to the ICU to be treated for the complications of the infection. Unfortunately, all of this became just too much for him to take. While he did show improvement medically, and eventually went from the ICU into a regular hospital room, he was in a lot of pain, which got progressively worse each day all over his body, and discomfort from the effects of the antibiotics. Eventually, he began denying his food and medication and reached a point where he did not want to continue to fight. Moving to hospice was a painful decision to make, especially knowing how much of a fighter my Dad was through all of the struggles he's been through in his life. But, those were his wishes and we didn't want him to continue to suffer. The hospice care did make him comfortable and he finally passed Wednesday afternoon. After not having had his heart medicines (and others) for so many days, his heart rate was in the 160's, and I guess it finally gave out, but we don't know the exact cause. I believe he passed peacefully, though. He was 74 years old. I am so grateful and blessed to have had my Dad in my life, and I know he touched countless others lives all over the world. His altruism inspired me throughout my life. Please keep him in your prayers and thoughts. His funeral will be this Monday, November 12th at 11:00 AM, at the Beth Israel Memorial Chapel in Boynton Beach, Florida, followed by burial at the Eternal Light Memorial Gardens cemetery at 12:15 PM, also in Boynton Beach. My family and I will be sitting Shiva (a Jewish mourning ritual at home) Monday evening and Tuesday and Wednesday afternoon and evening. Regards, Shaun -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Please answer to see if I’m getting my mail
Hi Susan, so sorry to hear that you have had so many problems, it's not a fun thing. My appointment I think is at 10:00 a.m. and will be with Derek's widow and his two sons. I don't know what she has planned for me because I only get to see them twice a year when I fly in to see Dr. Altman. I will see what I can do. Will let you know, would like to meet up with you again as Grace is staying in Sebring. My flight leaves at 4:30 p.m. and I have to be back to Midway and hour and a haft before take off. I used to fly into Midway when I was flying back in my single days many years ago. greenie -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Thu, Nov 8, 2018 9:11 am Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Hey Greenie! I come also on Dec. 5th to see Dr. Altman in Chicago. Let's meet up again! I am also scheduled to see Dr. Kumthekar, a neurologist right around the same time that day. Mine is around 1:00 Chicago time, so let's discuss privately. Right now I am going out of town for two weeksbe back after Thanksgiving. I have seen so many docs lately with severe pain in lower back and this essential tremor. Also just got put on insulin for diabetes. Very small dosage. None are really related to cml, but they keep me hopping. I fell off the chiropractor's table on Monday and really bruised and scraped myself up good on my left side. Keeps life interesting! Sorry I am in a hurry this morningwill catch up with you all very soon! Thinking about you all 18's and love, Susan Z -Original Message- From: myvety2k via CMLHope To: cmlhope Sent: Thu, Nov 8, 2018 7:46 am Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Jeanie, That's a yes on Sebring. Slower way of life, to much crime, to many hit and runs, to many people, can't drive anywhere without someone trying to run you off the road, cutting in front of you, etc. The list is long. I have nothing against snow birds but when they come down to Fort Myers and the beach is near they just take over everything. A ride to Lowes in the summer time takes 5 min. winter its takes 15 to 20 min. because of so many cars. It was time to move and NOW I can go Bass Fishing. greenie -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Wed, Nov 7, 2018 1:18 pm Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Hi all Good to hear from you. Has anyone heard from Marty? Do you like Sebring Greenie? This thyroid disease is getting me down. I want to sleep all day and wake up around midnight. It’s awful!!! Pray that I will get it straightened out soon Have a safe trip Greenie and I hope you can get together with Beth. Love you so very much. Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope wrote: i Hi Greenie, Congrats on your new home! And the bass boat So good to hear from you. Are you flying in on Tuesday the 4th for your Wednesday the 5th appointment? Would you like to have dinner together Tuesday evening? I could meet you near Northwestern? I would love to meet you and Grace if she is coming. Let me know...you can email at my email. bkbar...@aol.com Thanks! 18's Beth -Original Message- From: myvety2k via CMLHope To: cmlhope Sent: Tue, Nov 6, 2018 6:07 am Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, FL. Purchased a home there, Grace purchased me a Tracker bass boat so that I can go fishing, of course I'm making the payments.(smile). Will be flying into Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most loving thing (Blood Work). another smile. Will let you all know how things turn out. Stay warm if you live North and Cool if you live South. Take care everyone. Greenie -Original Message- From: bkbarney via CMLHope To: cmlhope Sent: Mon, Nov 5, 2018 12:06 pm Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Dear Jeanie, Just wanted to say I am here, thinking of you and everyone else... The year is slipping by...and next week snow flurries in Chicago. Soon it will be Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid troubles.. Hopefully they can help you get with the right meds...Ggod endocrinologist will guide you!!! You have had more than your share of health problems.. You are a real trouper!! Love your positive attitude. R
Re: [CMLHope] Please answer to see if I’m getting my mail
Jeanie, That's a yes on Sebring. Slower way of life, to much crime, to many hit and runs, to many people, can't drive anywhere without someone trying to run you off the road, cutting in front of you, etc. The list is long. I have nothing against snow birds but when they come down to Fort Myers and the beach is near they just take over everything. A ride to Lowes in the summer time takes 5 min. winter its takes 15 to 20 min. because of so many cars. It was time to move and NOW I can go Bass Fishing. greenie -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Wed, Nov 7, 2018 1:18 pm Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Hi all Good to hear from you. Has anyone heard from Marty? Do you like Sebring Greenie? This thyroid disease is getting me down. I want to sleep all day and wake up around midnight. It’s awful!!! Pray that I will get it straightened out soon Have a safe trip Greenie and I hope you can get together with Beth. Love you so very much. Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope wrote: i Hi Greenie, Congrats on your new home! And the bass boat So good to hear from you. Are you flying in on Tuesday the 4th for your Wednesday the 5th appointment? Would you like to have dinner together Tuesday evening? I could meet you near Northwestern? I would love to meet you and Grace if she is coming. Let me know...you can email at my email. bkbar...@aol.com Thanks! 18's Beth -Original Message- From: myvety2k via CMLHope To: cmlhope Sent: Tue, Nov 6, 2018 6:07 am Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, FL. Purchased a home there, Grace purchased me a Tracker bass boat so that I can go fishing, of course I'm making the payments.(smile). Will be flying into Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most loving thing (Blood Work). another smile. Will let you all know how things turn out. Stay warm if you live North and Cool if you live South. Take care everyone. Greenie -Original Message- From: bkbarney via CMLHope To: cmlhope Sent: Mon, Nov 5, 2018 12:06 pm Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Dear Jeanie, Just wanted to say I am here, thinking of you and everyone else... The year is slipping by...and next week snow flurries in Chicago. Soon it will be Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid troubles.. Hopefully they can help you get with the right meds...Ggod endocrinologist will guide you!!! You have had more than your share of health problems.. You are a real trouper!! Love your positive attitude. Remember to advocate for yourself. If you are not satisfied...or feel worse...keep asking for help! Each of us needs to do this... I am doing O.K. Blood work for CML showing, but stable working on decreasing the inflammation in my body in the hopes that it might help my side effects and symptoms...still plugging along the stay positive attitude...is still finding meeven in the dark sometimes :), seeing the shadows so know the light is somewhere near by. Love to all.. and Marty, hope you are healing welland Richard, and Susan and Suzie Q and Greenie and everyone reading.. Hope each of you has a lovely and healthier holiday season!! 18's Beth -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Sun, Nov 4, 2018 11:14 am Subject: [CMLHope] Please answer to see if I’m getting my mail My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal On Nov 3, 2018, at 11:09 AM, 'Jeanie' via CMLHope wrote: Hi Marty my friend What do you mean? Thanks 🌺🌺🌺 My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal On Oct 1, 2018, at 6:20 AM, Ma
Re: [CMLHope] Please answer to see if I’m getting my mail
Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, FL. Purchased a home there, Grace purchased me a Tracker bass boat so that I can go fishing, of course I'm making the payments.(smile). Will be flying into Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most loving thing (Blood Work). another smile. Will let you all know how things turn out. Stay warm if you live North and Cool if you live South. Take care everyone. Greenie -Original Message- From: bkbarney via CMLHope To: cmlhope Sent: Mon, Nov 5, 2018 12:06 pm Subject: Re: [CMLHope] Please answer to see if I’m getting my mail Dear Jeanie, Just wanted to say I am here, thinking of you and everyone else... The year is slipping by...and next week snow flurries in Chicago. Soon it will be Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid troubles.. Hopefully they can help you get with the right meds...Ggod endocrinologist will guide you!!! You have had more than your share of health problems.. You are a real trouper!! Love your positive attitude. Remember to advocate for yourself. If you are not satisfied...or feel worse...keep asking for help! Each of us needs to do this... I am doing O.K. Blood work for CML showing, but stable working on decreasing the inflammation in my body in the hopes that it might help my side effects and symptoms...still plugging along the stay positive attitude...is still finding meeven in the dark sometimes :), seeing the shadows so know the light is somewhere near by. Love to all.. and Marty, hope you are healing welland Richard, and Susan and Suzie Q and Greenie and everyone reading.. Hope each of you has a lovely and healthier holiday season!! 18's Beth -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Sun, Nov 4, 2018 11:14 am Subject: [CMLHope] Please answer to see if I’m getting my mail My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal On Nov 3, 2018, at 11:09 AM, 'Jeanie' via CMLHope wrote: Hi Marty my friend What do you mean? Thanks 🌺🌺🌺 My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal On Oct 1, 2018, at 6:20 AM, Marty Gartenberg wrote: Jeanie iam in rehab right now and need to have talk with you about YOU why in haven don't you where a led lined neck brace the next time you get in touch with me i will tell you. 18s Marty On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope wrote: Hi all I got my thyroid test back. The counts err very high so went back to taking meds. Check it again in 6 weeks. I am sure it’s all these meds. Did you know even the X-rays from dentist can hurt thyroid. They say to asked for a protection mask. I have never heard about this in all my years at the dentist. You? They order mri like it’s a trip to the candy store I had 3 last year with no answers. If those tests are killing our thyroids then we need to be told. Right? Have s wonderful day. Love you so very much My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" g
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
Well my CML friends, I'm on my 18 1/2 year on Gleevec and still pumping blood. greenie -Original Message- From: bkbarney via CMLHope To: cmlhope ; wa2yyx Sent: Sat, Mar 10, 2018 8:41 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone else who am forgetting because of my chemo brain. I am here, think about everyone often...had a bad flu season...really starting to feel better only nowWow17 years for both Kristen and Jeanie!! Congrats...I just hit 8 years on February 12thTime marches on..so glad to be here with all of you... My latest blood work came back undetectable...so I was very happy to see thatstill navigating the severe muscle fatigue, deterioration issues, and some heart sprycel related stuff..but I am truly blessed to be here...and to still be able to work love to all of you out there.the glass is half full in Chicago! 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: wa2yyx ; cmlhope Sent: Sat, Mar 10, 2018 4:18 pm Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic For me it's been 13 years. 18's, Susan F. Zimmerman On Saturday, March 10, 2018 Marty Gartenberg wrote: Hi Jeanie, Wow 17 years! Good for you as well. My congratulates to you. Hey are you catching up with me? 30 years for me. Time fly's by when your riding on the Marquis Express. Okay now lets all sing along all of you people out there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A 18's, Marty On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope wrote: I am celebrating 17 years also. I'm on my 4 tki: Ponatinib. Been a rough ride. How bout you! My Motto: Faith and Pills With Love \uD83D\uDC2018's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL On Mar 10, 2018, at 2:10 PM, Kristin Lieberman wrote: I’m here. Celebrating my 17th year as a CML survivor! Kristin Sent from my iPhone On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics Hello - 1 Update Hello Marty Gartenberg : Mar 09 04:12PM -0500 Hello, hello... Is anyone out there? 18's, Marty Back to top You received this digest because you're subscribed to updates for this group. You can change your settings on the group membership page. To unsubscribe from this group and stop receiving emails from it send an email to cmlhope+unsubscr...@googlegroups.com. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options,
Re: [CMLHope] CML and Gleevec-Thankful for another year
Happy New Years to all of my CML and care takers friends. greenie In a message dated 12/31/2017 3:14:57 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Happy New Year to all. Let's pray the new year brings in much less pain and a more enjoyable life. Thanks Marty for the advice about pain. I'm gonna talk it over with my new doctor. Fireworks gonna keep me awake I'm sure. Love you so very much. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Dec 29, 2017, at 12:25 PM, Marty Gartenberg wrote: On Fri, Dec 29, 2017 at 12:21 PM, Marty Gartenberg wrote: Hi Jeanie, To answer your question about what i do for pain. It depends on what kinds of pain that i am having and it's intensity and how long it lasts. If it's light to moderate then i just try to relax my mind and try to deal with but severe pain must be dealt with but i try not to use any opiates but try anything else that may help me but some times i have to use some opiates but not for a long time. Here is a joke for better words to use. I went to the doctor because i hurt my leg every time my fingers touch my leg. No problem says the doctor and he takes out a hammer and hits my hand. I yell out why did you do that, now my hand hurt so badly, my leg doesn't hurt as bad as my hand... Exactly says the doctor. 18's Marty PS Yes I do remember Millie On Fri, Dec 29, 2017 at 9:33 AM, 'Jeanie' via CMLHope wrote: Hi Elizabeth and thanks for the uplift. My dryer just decided to hit the dust probably just old age like me. Hehe. Wonderful day with beautiful weather. When I would tell my doctor I was old he would say he didn't want to hear about age. He is in his 70s and still going strong. Well he is retiring and I wish him all the best. He is Dr Balducci head of the senior department of Moffitt Cancer center. What is neat is that his wife is head of senior department of the veterans department of the veterans hospital that is located right up the street from Moffitt. My right hand is still hurting and always wonder what is next. How many here have the tradition of black eyed peas and ham hock? Don't know why. My sister had 4 wheelers and I got talked into taking a ride. I was scared to death. They had 5 acres of woods and away we went. Fun ride but scary none the less. Marty, what do you do for pain? Remember Milly? She used a lot of heat and cold with opiates. I think that was before they cracked down on opiates. Happy New Year everyone! My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Dec 26, 2017, at 9:46 PM, Marty Gartenberg wrote: Hi Elizabeth W, Ever think that Nick is here for a reason? Well he is for sure. A very blessed healthy and happy New Year to him, and you as well... I would like to teach you a word: Bashert meaning: It's meant to be. 18's, it's meaning is LIFE. Marty On Tue, Dec 26, 2017 at 9:36 PM, Nick wrote: Hi, Nick's been on Gleevec since 2003. He's on 400 of Gleevec, too. Yes, he's noticed he's dropping things from his fingers. We're not sure just why, but try to not hold anything which might break or spill. We hope everyone had many blessings from your Christmas or Holiday Season. We have been counting the biggest blessings of being together another year, having good contact with our families, having a faith community, having food, ability to see, hear, think, and thank God for another day. We try to be good listeners and encouragers to others. Pray for each of you as we read your name on the sites. Having had a wonderful Oncologist and Staff who are so supportive of every patient who is in their care. t This site has been a huge encouragement as Nick goes through stages of CML and Gleevec.. As ever, Elizabeth W. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- --
Re: [CMLHope] Questions,
Sorry Marty, I guess my fingers are just to fast for my keyboard. I can't see what I'm saying cuss my eye's are in the way. greenie In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time, wa2...@gmail.com writes: Mary, you got that right. greenie Oh Greenie, Now look at what a day difference makes? All of a sudden you changed my "orientation" from Marty which i always thought that i had and now to Mary? I am kind of confused because I still pee the same. Did you leave out the T on purpose or are you trying to tell me something? Now a lesson for everyone to learn... Did you know that the woman is the stronger of our spices? For one, and I know this for a fact because their Bone Marrow is usually stronger then the male's is? Take for example a Cord Blood Transplant is taken from the woman's umbilical cord right after the fetus is born then cryogenic-ally frozen for future use, and can last up to 40 years while it is frozen. I happen to know Stephan Sprauge who had one and wrote a book on it including the benefits. _https://www.youtubehttps://www.youtube_ (https://www.youtube.com/watch?v=TEPzUdeS7gM) This is a changing world and it will be changing even more when people become aware of the different things that will come up in the near future. I happen to know Steve and he has done something extraordinary... 18's, Marty Attachments area _Preview YouTube video Stephen Sprague Stephen Sprague _ (https://www.youtube.com/watch?v=TEPzUdeS7gM&authuser=0) On Sat, Dec 23, 2017 at 10:25 AM, Marty Gartenberg wrote: Mary, you got that right. greenie Oh Greenie, Now look at what a day difference makes? All of a sudden you changed my "orientation" from Marty which i always thought that i had and now to Mary? I am kind of confused because I still pee the same. Did you leave out the T on purpose or are you trying to tell me something? Now a lesson for everyone to learn... Did you know that the woman is the stronger of our spices? For one, and I know this for a fact because their Bone Marrow is usually stronger then the male's is? Take for example a Cord Blood Transplant is taken from the woman's umbilical cord right after the fetus is born then cryogenic-ally frozen for future use, and can last up to 40 years while it is frozen. I happen to know Stephan Sprauge who had one and wrote a book on it including the benefits. _https://www.youtubehttps://www.youtube_ (https://www.youtube.com/watch?v=TEPzUdeS7gM) This is a changing world and it will be changing even more when people become aware of the different things that will come up in the near future. I happen to know Steve and he has done something extraordinary... 18's, Marty On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope wrote: Mary, you got that right. greenie In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. So Jeanie, you have this pain in you right little finger (we used to call it our (pinkey) Hum right little finger? Well so do i. But not my legs, hands and most of my bones BUT my left elbow and my neck really hurt but especially my left elbow but they have a right to. All of them except my left little finger. Do you know why? Well the little finger has my friend living inside of it. His name is Author Right-es But the rest were severely broken when i broke my neck in three places along with my left elbow and had these metal plates, screws, nuts and matching bolt put inside of me. Can you imagine that nuts and bolts? Oh at times i have a pain in my butt but that doesn't really count. So maybe we should consider that we are getting older or you on TKI's or both of us having Arthritis? Who knows, but the fact that we are still alive are all migrating circumstances, don't you think...👋 We can see we can pee we can hear, well for the most part for me anyway. We can walk we can talk can do most everything that we can do. Oh yea I almost forgot we can eat and drink. So let this be a lesson for us, right... 18's, Marty 9 On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope wrote: Hi all, Have you considered Moffitt cancer center. I go there and like it. You go to the blood center and get your blood checked and then in about an hour they are faxed over to doctor and you see him. I go every three months. I was wonder if any of you have your bones aching? My right little finger and hand ache and legs hurt sometimes at night. I've been fighting cml for almost 14 years and never had this. Blood counts are all good. Thanks all. My M
Re: [CMLHope] Questions,
Sorry, Marty. My fingers are just to fast for my keyboard. greenie In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time, wa2...@gmail.com writes: Mary, you got that right. greenie Oh Greenie, Now look at what a day difference makes? All of a sudden you changed my "orientation" from Marty which i always thought that i had and now to Mary? I am kind of confused because I still pee the same. Did you leave out the T on purpose or are you trying to tell me something? Now a lesson for everyone to learn... Did you know that the woman is the stronger of our spices? For one, and I know this for a fact because their Bone Marrow is usually stronger then the male's is? Take for example a Cord Blood Transplant is taken from the woman's umbilical cord right after the fetus is born then cryogenic-ally frozen for future use, and can last up to 40 years while it is frozen. I happen to know Stephan Sprauge who had one and wrote a book on it including the benefits. _https://www.youtubehttps://www.youtube_ (https://www.youtube.com/watch?v=TEPzUdeS7gM) This is a changing world and it will be changing even more when people become aware of the different things that will come up in the near future. I happen to know Steve and he has done something extraordinary... 18's, Marty Attachments area _Preview YouTube video Stephen Sprague Stephen Sprague _ (https://www.youtube.com/watch?v=TEPzUdeS7gM&authuser=0) On Sat, Dec 23, 2017 at 10:25 AM, Marty Gartenberg wrote: Mary, you got that right. greenie Oh Greenie, Now look at what a day difference makes? All of a sudden you changed my "orientation" from Marty which i always thought that i had and now to Mary? I am kind of confused because I still pee the same. Did you leave out the T on purpose or are you trying to tell me something? Now a lesson for everyone to learn... Did you know that the woman is the stronger of our spices? For one, and I know this for a fact because their Bone Marrow is usually stronger then the male's is? Take for example a Cord Blood Transplant is taken from the woman's umbilical cord right after the fetus is born then cryogenic-ally frozen for future use, and can last up to 40 years while it is frozen. I happen to know Stephan Sprauge who had one and wrote a book on it including the benefits. _https://www.youtubehttps://www.youtube_ (https://www.youtube.com/watch?v=TEPzUdeS7gM) This is a changing world and it will be changing even more when people become aware of the different things that will come up in the near future. I happen to know Steve and he has done something extraordinary... 18's, Marty On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope wrote: Mary, you got that right. greenie In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. So Jeanie, you have this pain in you right little finger (we used to call it our (pinkey) Hum right little finger? Well so do i. But not my legs, hands and most of my bones BUT my left elbow and my neck really hurt but especially my left elbow but they have a right to. All of them except my left little finger. Do you know why? Well the little finger has my friend living inside of it. His name is Author Right-es But the rest were severely broken when i broke my neck in three places along with my left elbow and had these metal plates, screws, nuts and matching bolt put inside of me. Can you imagine that nuts and bolts? Oh at times i have a pain in my butt but that doesn't really count. So maybe we should consider that we are getting older or you on TKI's or both of us having Arthritis? Who knows, but the fact that we are still alive are all migrating circumstances, don't you think...👋 We can see we can pee we can hear, well for the most part for me anyway. We can walk we can talk can do most everything that we can do. Oh yea I almost forgot we can eat and drink. So let this be a lesson for us, right... 18's, Marty 9 On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope wrote: Hi all, Have you considered Moffitt cancer center. I go there and like it. You go to the blood center and get your blood checked and then in about an hour they are faxed over to doctor and you see him. I go every three months. I was wonder if any of you have your bones aching? My right little finger and hand ache and legs hurt sometimes at night. I've been fighting cml for almost 14 years and never had this. Blood counts are all good. Thanks all. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gle
Re: [CMLHope] Questions,
Mary, you got that right. greenie In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. So Jeanie, you have this pain in you right little finger (we used to call it our (pinkey) Hum right little finger? Well so do i. But not my legs, hands and most of my bones BUT my left elbow and my neck really hurt but especially my left elbow but they have a right to. All of them except my left little finger. Do you know why? Well the little finger has my friend living inside of it. His name is Author Right-es But the rest were severely broken when i broke my neck in three places along with my left elbow and had these metal plates, screws, nuts and matching bolt put inside of me. Can you imagine that nuts and bolts? Oh at times i have a pain in my butt but that doesn't really count. So maybe we should consider that we are getting older or you on TKI's or both of us having Arthritis? Who knows, but the fact that we are still alive are all migrating circumstances, don't you think...👋 We can see we can pee we can hear, well for the most part for me anyway. We can walk we can talk can do most everything that we can do. Oh yea I almost forgot we can eat and drink. So let this be a lesson for us, right... 18's, Marty 9 On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope wrote: Hi all, Have you considered Moffitt cancer center. I go there and like it. You go to the blood center and get your blood checked and then in about an hour they are faxed over to doctor and you see him. I go every three months. I was wonder if any of you have your bones aching? My right little finger and hand ache and legs hurt sometimes at night. I've been fighting cml for almost 14 years and never had this. Blood counts are all good. Thanks all. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Dec 21, 2017, at 6:56 PM, Marty Gartenberg wrote: Listen Greenie, This is what i do because of a promise that i once made to GOD. Let me tell you about this. When i was about to receive my total body radiation almost 30 years ago, just before they were about to close and lock that radiation chamber door i got down on my knees clasped my hands in front of me and prayed to GOD asking HIM if he would spare me i would help people that were in my situation that i would try to help them. So far i have helped 1,286 people in the past 30 years, and wrote my journal about each and every one of them. This will never be published because of confidentiality reasons, but on occasion i will send some of them parts of my book in order to try and help them. Listen i am no saint just a plain human being but someone that once made a promise to GOD and i am still here after many many death defying things that i have gone trough. And that is why i do what i promised to do. I hope that you understand why i do what i do... There is also why i write 18's when ever i end any posts that i make, because that is what i believe. 18's to me represents LIFE. If you care to send me your personal email address i would like to send you something. Mine is wa2yyx@gmail,com 18's, Marty On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope wrote: Marty, I want to thank you for your fast reply, I hear you. I do have a Nephrologist and he had me get some blood work last month and he seems to be O.K. with the results. I do have the paper work and will scan it and send it out so you can check it out. I want to thank you so much, you have made me feel so much better and I will listen to what you wrote me. Again I want to thank you. Greenie In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, First of all, you mention that you are worried. Why may i ask are you so worried? When people worry about things that they have little or no control over then it not only effects your mind but also your body. I know all about this because that is exactly what i used to do and i learned to direct my mind in more productive ways. Now just try to relax and get yourself going in the right direction. Now you mention about CRI so read this.. CRI (color rendering index) is a measure of how accurately a light source illuminates objects' true colors. Our LED lights have CRI values of up to 98, indicating that our LED lights are able to produce white light that approximates halogen or incandescent lighting and natural daylight. It however has some effect on your kidneys because if they are having problems than it is a
Re: [CMLHope] anemia
I would rather go back to Chicago for my test but the cost to fly at this time of the year is very costly. I was just their on Dec 6 and it was close to $600. I checked the fly's for month of Jan and I can fly their for $40 going but at $445 back.Have to see and Oncologist on Jan 2nd and see if I can get it done at Lee Health Center a few miles from my home. greenie In a message dated 12/22/2017 4:38:43 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Pcr Hi Greenie Doctors at Moffitt don't do BMA. They do PCR blood test. My doctor Dr Baldicci, Is my doctor and head of the senior oncology center of Moffitt and they are't doing BMA So instead of drawing 2 vials blood they draw three. Dr Balducci is retiring the first of the year but there are many specialist there. Good luck My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Dec 22, 2017, at 3:47 PM, Marty Gartenberg wrote: Hi Ana, It's not so much the question of changing one of her TKI's, from Bosutinib to Bosutinib after being on Gleevec for fourteen years. Since there a lot of things that you and your mother need to consider like her age, her general health like the low Hemoglobin and Red Cell Blood counts which you didn't include in your email, and one important thing how are her kidneys? What her Creatinine level are right now? And has she had a CBC (Complete Blood Count lately? Also if she did what were the results? You already know but what were they actually? Can you specify what these counts were or are?? One other thing, is his or her doctor, i assume that he or she is a qualified Oncologist? And are any of their specialties for-instance is CML? Also how many mg of Gleevec is she taking and for how long? I know that you mentioned that it was for the past 14 years, but has she ever taken a "vacation" from it, and if so did she have any effects of it reappearing ? Has she been tested for ABL/PCR lately and what were her results? Finally, has your mother seen a Nephroloigst lately? All of these questions are very important and before any doctor/s makes any decisions about changing any of her TKI's you have to know exactly what these answers are before anyone can give you any advise. I will leave you with this advice: Please don't let any of this intimidate you or your mother because you have the right to ask questions and those that you have requested them from have the oblation to answer them. If you get the chance would you kindly let me know about my answers from me to you. I don't recall if i ever have spoken to you before. So just so you know i always end any of my posts with 18's which means LIFE. 18's, Marty On Fri, Dec 22, 2017 at 3:34 PM, Marty Gartenberg wrote: Hi Ana, It's not so much the question of changing one of her TKI's, from Bosutinib to Bosutinib after being on Gleevec for fourteen years. Since there a lot of things that you and your mother need to consider like her age, her general health like the low Hemoglobin and Red Cell Blood counts which you didn't include in your email, and one important thing how are her kidneys? What her Creatinine level are right now? And has she had a CBC (Complete Blood Count lately? Also if she did what were the results? You already know but what were they actually? Can you specify what these counts were or are?? One other thing, is his or her doctor, i assume that he or she is a qualified Oncologist? And are any of their specialties for-instance is CML? Also how many mg of Gleevec is she taking and for how long? Has she been tested you for ABL/PCR lately and what were her results were her results? Finally, has your mother seen a Nephroloigst lately? All of these questions are very important and before any doctor/s makes any decisions about changing any of her TKI's you have to know exactly what these answers are before anyone can give you any advise. I will leave you with this advice: Please don't let any of this intimidate you or your mother because you have the right to ask questions and those that you have requested them from have the oblation to answer them. If you get the chance would you kindly let me know about my answers from me to you. I don't recall if i ever have spoken to you before. So just so you know i always end any of my posts with 18's which means LIFE. 18's, Marty On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos wrote: Hello, my mum is suffering from very low hemoglobine and very low iron. any of you happen the same? another question is what do you think about bosutinib, after 14 years in gleevec the doc. is thinking of changing to bosutinib what about side effects comparing it to gleevec? thanks in advance _
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 updates in 1 topic
only one kidney while most other people have two kidneys so i know that having only one kidney is doing very well for me, and no more dialysis for me anymore. What you did mention is that your counts are now at "My white count is find at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 - 450)". Which are quite acceptable and very good for you. And speaking about your kidneys let me give you some information. When my kidneys started to fail i noticed that my Hemoglobin also was dropping especially after i began to receive dialysis. They were at 14 then would gradually drop to being 9.9 and that was the magic bullet that triggered that i would be able to start receiving Procrit or Epogin injections which brought my Hemoglobin to usually 11 and it would take about a week. Then a few weeks later another shot and so on. The reason why is that your kidneys produce a *hormone that is sent to your bone marrow that stimulates Red Blood cells into your bone marrow. **Erythropoietin* (*EPO*) is a hormone produced by the kidney that promotes the formation of red blood cells by the bone marrow. The kidney cells that make *erythropoietin* are sensitive to low oxygen levels in the blood that travels through the kidney. This is what happened to me so i know what i am talking about. Ever since i received my kidney transplant about two and a half years ago my Hemoglobin has gotten to be around 14 Now i am not saying that you have any problems with your kidneys but i am puzzled why did your doctor mention about CRI? As I mentioned why not go to see a Nephrologist . Couldn't hurt. Another suggestion that you have already mentioned, and because you have a smart doctor looking after you why spend over $600 to fly to Chicago when you have loads of very fine doctors in Florida especially in your area? Now I have given you a lot of useful information and hopefully it will help you and do you know why? It's because i was there and had to go through all of this and i learned what i had to do, and besides your worth it! Yes you are. Just as was my friend Lottie. She did a lot of research as well in her time which i never forgot... In fact so did Zavie, Now finally, since AOL is going out then you already did the right thing by switching over to another (FREE, I love that four letter F letter word) internet provider. You also may want to get another F word like gmail just in case as a backup. Please, please Greenie try to stop worrying, just take it one day at a time. You know it will all work out. 18's, Marty On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope < myvet...@aol.com: Dec 21 04:28PM -0500 Marty, I want to thank you for your fast reply, I hear you. I do have a Nephrologist and he had me get some blood work last month and he seems to be O.K. with the results. I do have the paper work and will scan it and send it out so you can check it out. I want to thank you so much, you have made me feel so much better and I will listen to what you wrote me. Again I want to thank you. Greenie In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, First of all, you mention that you are worried. Why may i ask are you so worried? When people worry about things that they have little or no control over then it not only effects your mind but also your body. I know all about this because that is exactly what i used to do and i learned to direct my mind in more productive ways. Now just try to relax and get yourself going in the right direction. Now you mention about CRI so read this.. CRI (color rendering index) is a measure of how accurately a light source illuminates objects' true colors. Our LED lights have CRI values of up to 98, indicating that our LED lights are able to produce white light that approximates halogen or incandescent lighting and natural daylight. It however has some effect on your kidneys because if they are having problems than it is a very simple thing to just go to a Nephrologist and see what is happening and why. As you mentioned the normal Hemoglobin count for women should be from around 13 to 17 however not necessarily for men because men don't have their time of the month as woman do, so men require a bit less of Hemoglobin. Now a count of 10.7 shows that you are enemic and that can from a verity of different things. One being the effects from your TKI being Gleevic which i think may be the cause, now mind you I am not a doctor but someone that does a lot of research into things that i have already been through. Another thing would be kidney problems which i kind of doubt because your doctors haven't mentioned it. Do you know what your Levels of creatinine in the blood reflect both the amount of muscle a person has and their amount of kidney function. Most men w
[CMLHope] CCI12222017.pdf
-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. CCI1017.pdf Description: Adobe PDF document
Re: [CMLHope] Questions,
myvet...@comcast.net Cell phone 219-973-8717 greenie In a message dated 12/21/2017 6:56:37 P.M. Eastern Standard Time, wa2...@gmail.com writes: Listen Greenie, This is what i do because of a promise that i once made to GOD. Let me tell you about this. When i was about to receive my total body radiation almost 30 years ago, just before they were about to close and lock that radiation chamber door i got down on my knees clasped my hands in front of me and prayed to GOD asking HIM if he would spare me i would help people that were in my situation that i would try to help them. So far i have helped 1,286 people in the past 30 years, and wrote my journal about each and every one of them. This will never be published because of confidentiality reasons, but on occasion i will send some of them parts of my book in order to try and help them. Listen i am no saint just a plain human being but someone that once made a promise to GOD and i am still here after many many death defying things that i have gone trough. And that is why i do what i promised to do. I hope that you understand why i do what i do... There is also why i write 18's when ever i end any posts that i make, because that is what i believe. 18's to me represents LIFE. If you care to send me your personal email address i would like to send you something. Mine is wa2yyx@gmail,com 18's, Marty On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope wrote: Marty, I want to thank you for your fast reply, I hear you. I do have a Nephrologist and he had me get some blood work last month and he seems to be O.K. with the results. I do have the paper work and will scan it and send it out so you can check it out. I want to thank you so much, you have made me feel so much better and I will listen to what you wrote me. Again I want to thank you. Greenie In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, First of all, you mention that you are worried. Why may i ask are you so worried? When people worry about things that they have little or no control over then it not only effects your mind but also your body. I know all about this because that is exactly what i used to do and i learned to direct my mind in more productive ways. Now just try to relax and get yourself going in the right direction. Now you mention about CRI so read this.. CRI (color rendering index) is a measure of how accurately a light source illuminates objects' true colors. Our LED lights have CRI values of up to 98, indicating that our LED lights are able to produce white light that approximates halogen or incandescent lighting and natural daylight. It however has some effect on your kidneys because if they are having problems than it is a very simple thing to just go to a Nephrologist and see what is happening and why. As you mentioned the normal Hemoglobin count for women should be from around 13 to 17 however not necessarily for men because men don't have their time of the month as woman do, so men require a bit less of Hemoglobin. Now a count of 10.7 shows that you are enemic and that can from a verity of different things. One being the effects from your TKI being Gleevic which i think may be the cause, now mind you I am not a doctor but someone that does a lot of research into things that i have already been through. Another thing would be kidney problems which i kind of doubt because your doctors haven't mentioned it. Do you know what your Levels of creatinine in the blood reflect both the amount of muscle a person has and their amount of kidney function. Most men with normal kidney function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of creatinine. Most women with normal kidney function have between 0.5 to 1.1 mg/dL of creatinine.. My Creatinine level was 8.2 before i started on my dialysis and i had to go onto dialysis which lasted for four years. Then i was able to get a kidney transplant from a 20 year old deceased man who was anonymous, and about two weeks later it dropped down to 4.1 and kept dropping to where it is now at .8 and it now stays there. Remember, i have only one kidney while most other people have two kidneys so i know that having only one kidney is doing very well for me, and no more dialysis for me anymore. What you did mention is that your counts are now at "My white count is find at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 - 450)". Which are quite acceptable and very good for you. And speaking about your kidneys let me give you some information. When my kidneys started to fail i noticed that my Hemoglobin also was dropping especially after i began to receive dialysis. They were at 14 then would gradually drop to being 9.9 and that was the magic
Re: [CMLHope] Questions,
ottie. She did a lot of research as well in her time which i never forgot... In fact so did Zavie, Now finally, since AOL is going out then you already did the right thing by switching over to another (FREE, I love that four letter F letter word) internet provider. You also may want to get another F word like gmail just in case as a backup. Please, please Greenie try to stop worrying, just take it one day at a time. You know it will all work out. 18's, Marty On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope wrote: To all of my CML friends and care givers. I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood work. A week later she called me to tell me that my Hemoglobin was down to 10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is 38.0 - 50 %. She wants me to get a Bone Marrow test here in Florida because the airfare to Chicago would be $601.00. That's not going to happen. I'm also taking Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9. She sent my other cancer Doctor down here a fax as to what she wants. I have and appointment set for Jan. 2 and talk to him about what to do. (I'm worried). She made a note to him that I also have CRI which may be Contributory. So back in 2010 my counts on these two item were Hemoglobin 13.3 and Hematocrit was 39.0. So back in 2015 my counts on these two items were Hemoglobin 12.0 and Hematocrit was 36.1. So the counts are coming down and I think it's from the Gleevec. My white count is find at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 - 450). So anyone that may have some answers that may make me feel better just hop right it and I will very happy to hear from you. ALSO, I don't know now to do it but AOL is no longer going to be as of Jan 15. My new email address is (myvet...@comcast.net) and it's free for me and much better. Any feedback would be deeply appreciated. Thank you all and have a Very Happy and Safe Holiday. Greenie for South Fort Myers, FL. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Questions,
To all of my CML friends and care givers. I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood work. A week later she called me to tell me that my Hemoglobin was down to 10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is 38.0 - 50 %. She wants me to get a Bone Marrow test here in Florida because the airfare to Chicago would be $601.00. That's not going to happen. I'm also taking Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9. She sent my other cancer Doctor down here a fax as to what she wants. I have and appointment set for Jan. 2 and talk to him about what to do. (I'm worried). She made a note to him that I also have CRI which may be Contributory. So back in 2010 my counts on these two item were Hemoglobin 13.3 and Hematocrit was 39.0. So back in 2015 my counts on these two items were Hemoglobin 12.0 and Hematocrit was 36.1. So the counts are coming down and I think it's from the Gleevec. My white count is find at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 - 450). So anyone that may have some answers that may make me feel better just hop right it and I will very happy to hear from you. ALSO, I don't know now to do it but AOL is no longer going to be as of Jan 15. My new email address is (myvet...@comcast.net) and it's free for me and much better. Any feedback would be deeply appreciated. Thank you all and have a Very Happy and Safe Holiday. Greenie for South Fort Myers, FL. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Email change
That's O. K. Richard, if you have no humor in your life you have nothing. greenie In a message dated 11/28/2017 11:22:59 P.M. Eastern Standard Time, rbhuffm...@gmail.com writes: WHERE I hope he doesn't get wet. Sorry Greenie, I couldn't resist... Richard H On Tuesday, November 28, 2017 at 11:29:28 AM UTC-6, greenie wrote: Marty, you are outstanding. greenie In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, wa2...@gmail.com writes: Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope wrote: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/
Re: [CMLHope] Email change
In a message dated 11/28/2017 11:22:59 P.M. Eastern Standard Time, rbhuffm...@gmail.com writes: WHERE I hope he doesn't get wet. Sorry Greenie, I couldn't resist... Richard H On Tuesday, November 28, 2017 at 11:29:28 AM UTC-6, greenie wrote: Marty, you are outstanding. greenie In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, wa2...@gmail.com writes: Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope wrote: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google G
Re: [CMLHope] Hospital for Thanksgiving.
Thank you so much Beth. The kidney problem I'll just haft to live with but the lost of Derek I'm having a tuff time dealing with it but I will get through it. Greenie In a message dated 11/28/2017 7:29:08 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, I am thinking about you too and hoping and praying that your kidneys will hold. It is a scary thing to have to live with fear and uncertainty. We are all with you.. I cannot imagine what it is like to lose a son, but I think you have a great deal of soul and resiliency to survive such a lose...and I imagine that you will navigate the kidney issues with the same grace you and your sweetie have navigated this past year. Grief can be so isolating and lonely..especially during the holidays.and so can living with a life threatening illness...as long as you are here, we are never alone.I am holding you both and Richard..and Marty, and Susan and Jeanie and and everyone else reading this stay positive...soak in the genuine love of this grouplike the suns rays... love, and 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 3:58 pm Subject: Re: [CMLHope] Hospital for Thanksgiving. Dear Richard and Greenie, You two are fighters. I know you can beat this attack on your kidneys by being patient and eating and drinking what they tell you to. So sorry, I will be praying for you both. 18's and hugs, Susan Z -Original Message----- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 8:33 am Subject: Re: [CMLHope] Hospital for Thanksgiving. Richard, I hope everything works out for you I am having the same problem because I have stage 3 kidney disease and it's scary. greenie In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more opti
Re: [CMLHope] Hospital for Thanksgiving.
Thank you Susan.. greenie In a message dated 11/28/2017 5:11:34 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Dear Richard and Greenie, You two are fighters. I know you can beat this attack on your kidneys by being patient and eating and drinking what they tell you to. So sorry, I will be praying for you both. 18's and hugs, Susan Z -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 8:33 am Subject: Re: [CMLHope] Hospital for Thanksgiving. Richard, I hope everything works out for you I am having the same problem because I have stage 3 kidney disease and it's scary. greenie In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Email change
As my X wife would always tell me (I don't have any problems you have them all). She ends up an alcoholic, divorced and lost custody of there son which her lawyer husband has. As they say what goes around come's around. greenie In a message dated 11/28/2017 2:29:49 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, We are all outstanding, we just have to open up our eyes to see it. Remember we all have our different problems but it is the ways that we must deal with them. Life is a learning process. 18's Marty On Tue, Nov 28, 2017 at 12:29 PM, Myvety2k via CMLHope wrote: Marty, you are outstanding. greenie In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, wa2...@gmail.com writes: Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope wrote: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Gro
Re: [CMLHope] Email change
Very True... greenie In a message dated 11/28/2017 2:29:49 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, We are all outstanding, we just have to open up our eyes to see it. Remember we all have our different problems but it is the ways that we must deal with them. Life is a learning process. 18's Marty On Tue, Nov 28, 2017 at 12:29 PM, Myvety2k via CMLHope wrote: Marty, you are outstanding. greenie In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, wa2...@gmail.com writes: Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope wrote: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://gr
Re: [CMLHope] Email change
Marty, you are outstanding. greenie In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, wa2...@gmail.com writes: Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope wrote: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A suppo
Re: [CMLHope] Email change
Susan, I think you should have gotten one by now. greenie In a message dated 11/28/2017 10:01:30 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are
Re: [CMLHope] Hospital for Thanksgiving.
Richard, I hope everything works out for you I am having the same problem because I have stage 3 kidney disease and it's scary. greenie In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Fwd: Check out AIM will be discontinued on December 15, 2017 - AOL Help
This is the message that I received AOL. greenie From: myve...@aol.com To: myvet...@aol.com Sent: 11/27/2017 7:43:31 A.M. Eastern Standard Time Subj: Check out AIM will be discontinued on December 15, 2017 - AOL Help _AIM will be discontinued on December 15, 2017 - AOL Help_ (https://help.aol.com/articles/aim-discontinued) -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Email change
Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http:
Re: [CMLHope] Email change
It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Email change
I received and notice that as of Dec 15th no more emails. I have been with them from the start going way, way back. I know I'm going to loose a lot of information. Where I live they give me free Comcast T.V. but I have to pay for extra's. Every time you turn around something goes up, water, electric, car insurance, etc. it's a pain when your on a fixed income. Not much you can do about it. Now Chicago want's me to fly into Chicago every 3 months for meds, blood work and see the Doctor and she give's me about 2 min. of her time and then moves on out the door. It cost between $400 to $500 to fly out of Fort Myers. Have to rent a car, gas, eat, parking, etc. A bottle of water at the airport is $4.00. I have to see her the first of December I'm going to sit her down and have a nice talk with her. I moved down here because they changed my getting blood work every 3 months that's why I moved down here. They called me July 25th and told it's changed to every 3 months again. Will thanks a lot for the good news, I AM NOT HAPPY. greenie In a message dated 11/25/2017 2:31:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Email change
As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Well wishes
Marty, sorry to here about you back in the hospital. Recover quickly so you can get home where you belong. Please take care. greenie In a message dated 11/23/2017 6:31:55 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi everyone Unfortunately I am back in the hospital again I have a server infection in my left leg and I am on some Antibiotics now. I wish I could be home for the thanksgiving holiday but I just do whatever I have to do. Anyway I wish all of you a happy thanksgiving 18's Marty On November 23, 2017, at 2:49 PM, bkbarney via CMLHope wrote: Warmest regards to you Susan and have a lovely Thanksgiving holiday with your family..Laying low and cozy by the fire is lovely...I wish you better health and lots of joyful moments in the New Year ahead... Thanks for being here. Love to all on this Thankful holiday 18s Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Wed, Nov 22, 2017 4:43 pm Subject: RE: [CMLHope] Well wishes Happy Thanksgiving to all! I pray you all are well enough to enjoy the holidays. Ours will be quiet and cozy by the fire. Turkey on the menu. So glad I am part of this awesome and loving group. Just got my numbers back from bcr/abl. It showed .45. Last time was .26. Not doing badly but was shocked when doc asked me if I wanted to go off med. (History of strokes caused by med.) First time she's asked me that! She does not recommend it, so I'll stay on awhile longer and then let my body rest. Toxins build up and cause stress on my blood spots in brain. 18's and Happy Thanksgiving Much love, Susan Z. On Wednesday, November 22, 2017 Myvety2k via CMLHope wrote: CML group, As of Dec 5th I will no longer be using AOL. My new email will be changed to myvet...@comcast.net. greenie -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@ googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of h
[CMLHope] Email Change
CML group, As of Dec 5th I will no longer be using AOL. My new email will be changed to myvet...@comcast.net. greenie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Life
Very well said, Thanks Marty, Dave (greenie) Greenberg In a message dated 10/10/2017 10:16:29 A.M. Eastern Daylight Time, wa2...@gmail.com writes: I was thinking about most of us that have been through a mirage of illnesses, myself included, and in thinking about it I have come to the conclusion "why me" syndrome. However rather saying this, even though we may be suffering in our own ways why not say "why not me"?. In effect anyone that has had any health disturbance/s in their lives are in fact a wounded solider, however, it has also become that wounds heal and this makes us go on. I remember two movies that put an impression on me. One was the Shawshank Redemption. One of the characters, Morgan Freeman told an inmate that "you either get to living or get to dying. The other was Forrest Gump, played by Tom Hanks. He was sitting on a bench at a bus stop and was talking to a woman who was a total stranger to him. One of the remarks he made, and this was after his mother had passed away. He said she once taught him a lesson about life, "life is like a box of chocolates you never know what you will get" When we think about it the one thing that we still have is life. We also know that every person in this world will have already been borne and eventually will have to die, it is just how we live our lives in between those times that really matters, and makes us what we are. Try to be kind to most people, be compassionate, say hello every one once in a while. Remember, that life is what you put in to it, and get out of it. 18's Marty Gartenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Words OF WISDOM.
Hi Beth, sorry it's taking me so long to reply. We received a call that we lost power for about 24 hours and were up in Northwest Indiana so then we came back home to only find a very small leak in the bathroom ceiling. Not everyone else was so lucky. Lot's of roof damage and fallen trees. greenie In a message dated 9/10/2017 9:29:11 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Greenie, I am behind in emails so I just read this. I am very relieved to hear that you and Grace are in Indiana. I am thinking of youhope your home and car will be in good shape when you return. Fingers crossed. Sending love and prayers to you and to everyone else out there who is being or might be directly affected by Irma... Warmest regards, and 18's. Beth -Original Message- From: Marty Gartenberg To: cmlhope Sent: Fri, Sep 8, 2017 10:35 pm Subject: Re: Re: [CMLHope] Words OF WISDOM. Richard, Yes your son only lives less then an hour away from me, and i know the area very well because that is where i got my kidney transplant in The Cleveland Clinic. Praying for him and everyone else. 18's, Marty On Fri, Sep 8, 2017 at 11:28 PM, Richard Hwrote: Marti, my son lives in Weston, FL and is hunkerd down also.. I was surprised you are so close to him. He works for the Boy Scouts so he "is prepared". On Friday, September 8, 2017 at 1:50:41 PM UTC-5, wa2yyx wrote: Hi Greenie, Go West young man, go West... May i ask you what is a pure Corvette? And can you still get into it comfortably? Last time i tried to get into a vet I had a lot of difficulty. I am 6' + I guess that you must be some ware in Florida as i am also in Boynton Beach all hunkered down. 18's, Marty On Fri, Sep 8, 2017 at 9:39 AM, myvety2k via CMLHope wrote: Hi all, Grace and I are getting out of dodge. We are heading for Indiana to stay with family. After this is over I hope we have a home in Fort Myers to live in. And my pure Corvette I hope it's still their. Stay safe. greenie In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, wa2...@gmail..com writes: Hi Marcie, Glad that you found my story interesting. I live in Boynton Beach about 90 miles north of Miami. 18's, Marty On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman' via CMLHope wrote: Marty, Such a beautiful story which brought me to tears. Thanks, as always, for sharing. By the way, you aren't in Miami now are you? Marcie Sent from my iPad On Sep 7, 2017, at 9:11 PM, Marty Gartenberg wrote: Joyce, Jeanie and everyone here, I learned something a very long time ago. If you or someone else looks out of a window then it is what they see that can make a big difference in their lives. I wrote this story a very long time ago and i always remembered it. It wasn't necessarily what this person would see but it was something that was explained to make "someone" happy for what they were able to "see" Now over the years that followed i have seen this plagiarized and it really hurt me, but i assure you that i am it's original author. There are many details in it that i personally went through. The Window There were two men in the cancer ward of Mount Sinai Hospital in New York City. They were in Ward KCC-6 North, which was at that time the cancer ward at that hospital. Both of these men were suffering from the end stages of Leukemia. They were there basically to die. One of these men had his bed right next to the only window in the room. The other one was across the room and had no access to the window. The man by the window would always tell the other man how beautiful it was looking out of that window, and let him know what was happening outside. He would talk about the beautiful skies, and how all of the little children were playing in Central Park. He would tell about the green grass and the people who were having a picnic, and the dogs that were running around, as well as the ice cream truck with the man selling ice cream pops to the little children, and the hot dog vendor also selling hot dogs with mustard and sour kraut. He would tell the other man that he would be able to see all of this for himself once he was healed. This went on for about two weeks, and one morning the nurse came into the room as she usually did, and presented these two men with their sponge baths. She first went over to the man who was by the window to find that he had passed away in his sleep. She then covered him up and left the room for a couple of minutes. When she returned, there was a doctor with her. This was a fairly new young doctor who would pronounce the man dead, and at that particular time, 8:40 a.m. even though he had obviously passed away some time during the night. The othe
Re: [CMLHope] Words OF WISDOM.
Thanks Beth for thinking of us. greenie In a message dated 9/16/2017 5:16:36 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Greenie, So glad you had no damage. My friend in Fort Myers, her home is uninhabitable.It's terrible! So relieved for both of you! Take care, 18's Beth -Original Message----- From: Myvety2k via CMLHope To: cmlhope Sent: Sat, Sep 16, 2017 2:23 pm Subject: Re: [CMLHope] Words OF WISDOM. Sounds like a plan. greenie In a message dated 9/16/2017 11:00:36 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Greenie, so glad all is ok regarding your house. Maybe next time you are up you will come for dinner. Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Saturday, September 16, 2017 Myvety2k via CMLHope wrote: Hi Susan, We only stayed 2 days because be found out that our electric was out less then 24 hours so we handed home to see if we had a house and it was in One Piece. No damage, very Lucky not so for many people. greenie In a message dated 9/8/2017 4:04:11 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hey Greenie, So glad you are coming to visit! If you want to come over and visit our underground earth home, let us know!!! Would love to see you and Grace. We are in Granger. Susan and Roy Zimmerman On Friday, September 8, 2017 myvety2k via CMLHope wrote: Hi all, Grace and I are getting out of dodge. We are heading for Indiana to stay with family. After this is over I hope we have a home in Fort Myers to live in. And my pure Corvette I hope it's still their. Stay safe. greenie In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, wa2...@gmail..com writes: Hi Marcie, Glad that you found my story interesting. I live in Boynton Beach about 90 miles north of Miami. 18's, Marty On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman' via CMLHope wrote: Marty, Such a beautiful story which brought me to tears. Thanks, as always, for sharing. By the way, you aren't in Miami now are you? Marcie Sent from my iPad On Sep 7, 2017, at 9:11 PM, Marty Gartenberg wrote: Joyce, Jeanie and everyone here, I learned something a very long time ago. If you or someone else looks out of a window then it is what they see that can make a big difference in their lives. I wrote this story a very long time ago and i always remembered it. It wasn't necessarily what this person would see but it was something that was explained to make "someone" happy for what they were able to "see" Now over the years that followed i have seen this plagiarized and it really hurt me, but i assure you that i am it's original author. There are many details in it that i personally went through. The Window There were two men in the cancer ward of Mount Sinai Hospital in New York City. They were in Ward KCC-6 North, which was at that time the cancer ward at that hospital. Both of these men were suffering from the end stages of Leukemia. They were there basically to die. One of these men had his bed right next to the only window in the room. The other one was across the room and had no access to the window. The man by the window would always tell the other man how beautiful it was looking out of that window, and let him know what was happening outside. He would talk about the beautiful skies, and how all of the little children were playing in Central Park. He would tell about the green grass and the people who were having a picnic, and the dogs that were running around, as well as the ice cream truck with the man selling ice cream pops to the little children, and the hot dog vendor also selling hot dogs with mustard and sour kraut. He would tell the other man that he would be able to see all of this for himself once he was healed. This went on for about two weeks, and one morning the nurse came into the room as she usually did, and presented these two men with their sponge baths. She first went over to the man who was by the window to find that he had passed away in his sleep. She then covered him up and left the room for a couple of minutes. When she returned, there was a doctor with her. This was a fairly new young doctor who would pronounce the man dead, and at that particular time, 8:40 a.m. even though he had obviously passed away some time during the night. The other man across the room with tears running down his cheeks became quite depressed at seeing his roommate wheeled out of the room, declared dead. He thought about how this man would always try to make him happy with him describing all of the nice things he was able
Re: [CMLHope] Words OF WISDOM.
Sounds like a plan. greenie In a message dated 9/16/2017 11:00:36 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Greenie, so glad all is ok regarding your house. Maybe next time you are up you will come for dinner. Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Saturday, September 16, 2017 Myvety2k via CMLHope wrote: Hi Susan, We only stayed 2 days because be found out that our electric was out less then 24 hours so we handed home to see if we had a house and it was in One Piece. No damage, very Lucky not so for many people. greenie In a message dated 9/8/2017 4:04:11 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hey Greenie, So glad you are coming to visit! If you want to come over and visit our underground earth home, let us know!!! Would love to see you and Grace. We are in Granger. Susan and Roy Zimmerman On Friday, September 8, 2017 myvety2k via CMLHope wrote: Hi all, Grace and I are getting out of dodge. We are heading for Indiana to stay with family. After this is over I hope we have a home in Fort Myers to live in. And my pure Corvette I hope it's still their. Stay safe. greenie In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, wa2...@gmail..com writes: Hi Marcie, Glad that you found my story interesting. I live in Boynton Beach about 90 miles north of Miami. 18's, Marty On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman' via CMLHope wrote: Marty, Such a beautiful story which brought me to tears. Thanks, as always, for sharing. By the way, you aren't in Miami now are you? Marcie Sent from my iPad On Sep 7, 2017, at 9:11 PM, Marty Gartenberg wrote: Joyce, Jeanie and everyone here, I learned something a very long time ago. If you or someone else looks out of a window then it is what they see that can make a big difference in their lives. I wrote this story a very long time ago and i always remembered it. It wasn't necessarily what this person would see but it was something that was explained to make "someone" happy for what they were able to "see" Now over the years that followed i have seen this plagiarized and it really hurt me, but i assure you that i am it's original author. There are many details in it that i personally went through. The Window There were two men in the cancer ward of Mount Sinai Hospital in New York City. They were in Ward KCC-6 North, which was at that time the cancer ward at that hospital. Both of these men were suffering from the end stages of Leukemia. They were there basically to die. One of these men had his bed right next to the only window in the room. The other one was across the room and had no access to the window. The man by the window would always tell the other man how beautiful it was looking out of that window, and let him know what was happening outside. He would talk about the beautiful skies, and how all of the little children were playing in Central Park. He would tell about the green grass and the people who were having a picnic, and the dogs that were running around, as well as the ice cream truck with the man selling ice cream pops to the little children, and the hot dog vendor also selling hot dogs with mustard and sour kraut. He would tell the other man that he would be able to see all of this for himself once he was healed. This went on for about two weeks, and one morning the nurse came into the room as she usually did, and presented these two men with their sponge baths. She first went over to the man who was by the window to find that he had passed away in his sleep. She then covered him up and left the room for a couple of minutes. When she returned, there was a doctor with her. This was a fairly new young doctor who would pronounce the man dead, and at that particular time, 8:40 a.m. even though he had obviously passed away some time during the night. The other man across the room with tears running down his cheeks became quite depressed at seeing his roommate wheeled out of the room, declared dead. He thought about how this man would always try to make him happy with him describing all of the nice things he was able to see outside. Later on that day the nurse returned and made up the bed in the room that was now unoccupied. The man in the other bed asked if by any chance he would be able to be put by the window. The nurse was a very kind and compassionate woman besides being a very competent nurse, and she wheeled him over. Although this man was unable to prop himself up to see the outside because he had recently had his Spleen surgically removed, he tried but
Re: [CMLHope] Words OF WISDOM.
Hi Susan, We only stayed 2 days because be found out that our electric was out less then 24 hours so we handed home to see if we had a house and it was in One Piece. No damage, very Lucky not so for many people. greenie In a message dated 9/8/2017 4:04:11 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hey Greenie, So glad you are coming to visit! If you want to come over and visit our underground earth home, let us know!!! Would love to see you and Grace. We are in Granger. Susan and Roy Zimmerman On Friday, September 8, 2017 myvety2k via CMLHope wrote: Hi all, Grace and I are getting out of dodge. We are heading for Indiana to stay with family. After this is over I hope we have a home in Fort Myers to live in. And my pure Corvette I hope it's still their. Stay safe. greenie In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, wa2...@gmail..com writes: Hi Marcie, Glad that you found my story interesting. I live in Boynton Beach about 90 miles north of Miami. 18's, Marty On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman' via CMLHope wrote: Marty, Such a beautiful story which brought me to tears. Thanks, as always, for sharing. By the way, you aren't in Miami now are you? Marcie Sent from my iPad On Sep 7, 2017, at 9:11 PM, Marty Gartenberg wrote: Joyce, Jeanie and everyone here, I learned something a very long time ago. If you or someone else looks out of a window then it is what they see that can make a big difference in their lives. I wrote this story a very long time ago and i always remembered it. It wasn't necessarily what this person would see but it was something that was explained to make "someone" happy for what they were able to "see" Now over the years that followed i have seen this plagiarized and it really hurt me, but i assure you that i am it's original author. There are many details in it that i personally went through. The Window There were two men in the cancer ward of Mount Sinai Hospital in New York City. They were in Ward KCC-6 North, which was at that time the cancer ward at that hospital. Both of these men were suffering from the end stages of Leukemia. They were there basically to die. One of these men had his bed right next to the only window in the room. The other one was across the room and had no access to the window. The man by the window would always tell the other man how beautiful it was looking out of that window, and let him know what was happening outside. He would talk about the beautiful skies, and how all of the little children were playing in Central Park. He would tell about the green grass and the people who were having a picnic, and the dogs that were running around, as well as the ice cream truck with the man selling ice cream pops to the little children, and the hot dog vendor also selling hot dogs with mustard and sour kraut. He would tell the other man that he would be able to see all of this for himself once he was healed. This went on for about two weeks, and one morning the nurse came into the room as she usually did, and presented these two men with their sponge baths. She first went over to the man who was by the window to find that he had passed away in his sleep. She then covered him up and left the room for a couple of minutes. When she returned, there was a doctor with her. This was a fairly new young doctor who would pronounce the man dead, and at that particular time, 8:40 a.m. even though he had obviously passed away some time during the night. The other man across the room with tears running down his cheeks became quite depressed at seeing his roommate wheeled out of the room, declared dead. He thought about how this man would always try to make him happy with him describing all of the nice things he was able to see outside. Later on that day the nurse returned and made up the bed in the room that was now unoccupied. The man in the other bed asked if by any chance he would be able to be put by the window. The nurse was a very kind and compassionate woman besides being a very competent nurse, and she wheeled him over. Although this man was unable to prop himself up to see the outside because he had recently had his Spleen surgically removed, he tried but finding it was just impossible. The next day came, and he again tried and although he was in a great deal of pain he managed to very slowly prop himself up and peer out of that most appealing window. He was absolutely shocked at what he was able to see, or to put it another way, what he was unable to see. There was nothing there but a brick wall! He wondered why that man would always tell him about what a beautiful world it was out there when in fact there was nothing but that bric
Re: [CMLHope] Words OF WISDOM.
Hi Marty, We got home a few days ago and no damage, we were lucky. As for Corvette's they are in my blood plus CML. I purchased my first one when I was 23 and it was a 1961, then a 1962, then 2 1963 within 2 weeks, then a big block 1966 one of 681 made, then a 1969 all convertibles, all 4 speeds.Then a 1973 T-top then a 1975 T-top and my last one a 2000 Pewter with a black top and black and gray interior. Six speed magnesium wheels, etc. It's got 117 thousand plus miles on it and it's in perfect shape. Of course it's been hopped up with load exhaust. It will keep up with the big boys. Of course their have been other classic cars. Keep safe. greenie In a message dated 9/8/2017 2:50:41 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Greenie, Go West young man, go West... May i ask you what is a pure Corvette? And can you still get into it comfortably? Last time i tried to get into a vet I had a lot of difficulty. I am 6' + I guess that you must be some ware in Florida as i am also in Boynton Beach all hunkered down. 18's, Marty On Fri, Sep 8, 2017 at 9:39 AM, myvety2k via CMLHope wrote: Hi all, Grace and I are getting out of dodge. We are heading for Indiana to stay with family. After this is over I hope we have a home in Fort Myers to live in. And my pure Corvette I hope it's still their. Stay safe. greenie In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, wa2...@gmail..com writes: Hi Marcie, Glad that you found my story interesting. I live in Boynton Beach about 90 miles north of Miami. 18's, Marty On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman' via CMLHope wrote: Marty, Such a beautiful story which brought me to tears. Thanks, as always, for sharing. By the way, you aren't in Miami now are you? Marcie Sent from my iPad On Sep 7, 2017, at 9:11 PM, Marty Gartenberg wrote: Joyce, Jeanie and everyone here, I learned something a very long time ago. If you or someone else looks out of a window then it is what they see that can make a big difference in their lives. I wrote this story a very long time ago and i always remembered it. It wasn't necessarily what this person would see but it was something that was explained to make "someone" happy for what they were able to "see" Now over the years that followed i have seen this plagiarized and it really hurt me, but i assure you that i am it's original author. There are many details in it that i personally went through. The Window There were two men in the cancer ward of Mount Sinai Hospital in New York City. They were in Ward KCC-6 North, which was at that time the cancer ward at that hospital. Both of these men were suffering from the end stages of Leukemia. They were there basically to die. One of these men had his bed right next to the only window in the room. The other one was across the room and had no access to the window. The man by the window would always tell the other man how beautiful it was looking out of that window, and let him know what was happening outside. He would talk about the beautiful skies, and how all of the little children were playing in Central Park. He would tell about the green grass and the people who were having a picnic, and the dogs that were running around, as well as the ice cream truck with the man selling ice cream pops to the little children, and the hot dog vendor also selling hot dogs with mustard and sour kraut. He would tell the other man that he would be able to see all of this for himself once he was healed. This went on for about two weeks, and one morning the nurse came into the room as she usually did, and presented these two men with their sponge baths. She first went over to the man who was by the window to find that he had passed away in his sleep. She then covered him up and left the room for a couple of minutes. When she returned, there was a doctor with her. This was a fairly new young doctor who would pronounce the man dead, and at that particular time, 8:40 a.m. even though he had obviously passed away some time during the night. The other man across the room with tears running down his cheeks became quite depressed at seeing his roommate wheeled out of the room, declared dead. He thought about how this man would always try to make him happy with him describing all of the nice things he was able to see outside. Later on that day the nurse returned and made up the bed in the room that was now unoccupied. The man in the other bed asked if by any chance he would be able to be put by the window. The nurse was a very kind and compassionate woman besides being a very competent nurse, and she wheeled him over. Although this man was unable to prop himself up to see the outside because he had rece
Re: Re: [CMLHope] Words OF WISDOM.
Hi all, Grace and I are getting out of dodge. We are heading for Indiana to stay with family. After this is over I hope we have a home in Fort Myers to live in. And my pure Corvette I hope it's still their. Stay safe. greenie In a message dated 9/7/2017 9:28:12 PM Eastern Standard Time, wa2...@gmail..com writes: Hi Marcie, Glad that you found my story interesting. I live in Boynton Beach about 90 miles north of Miami. 18's, Marty On Thu, Sep 7, 2017 at 9:21 PM, 'Marcie Goodman' via CMLHope wrote: Marty, Such a beautiful story which brought me to tears. Thanks, as always, for sharing. By the way, you aren't in Miami now are you? Marcie Sent from my iPad On Sep 7, 2017, at 9:11 PM, Marty Gartenberg wrote: Joyce, Jeanie and everyone here, I learned something a very long time ago. If you or someone else looks out of a window then it is what they see that can make a big difference in their lives. I wrote this story a very long time ago and i always remembered it. It wasn't necessarily what this person would see but it was something that was explained to make "someone" happy for what they were able to "see" Now over the years that followed i have seen this plagiarized and it really hurt me, but i assure you that i am it's original author. There are many details in it that i personally went through. The Window There were two men in the cancer ward of Mount Sinai Hospital in New York City. They were in Ward KCC-6 North, which was at that time the cancer ward at that hospital. Both of these men were suffering from the end stages of Leukemia. They were there basically to die. One of these men had his bed right next to the only window in the room. The other one was across the room and had no access to the window. The man by the window would always tell the other man how beautiful it was looking out of that window, and let him know what was happening outside. He would talk about the beautiful skies, and how all of the little children were playing in Central Park. He would tell about the green grass and the people who were having a picnic, and the dogs that were running around, as well as the ice cream truck with the man selling ice cream pops to the little children, and the hot dog vendor also selling hot dogs with mustard and sour kraut. He would tell the other man that he would be able to see all of this for himself once he was healed. This went on for about two weeks, and one morning the nurse came into the room as she usually did, and presented these two men with their sponge baths. She first went over to the man who was by the window to find that he had passed away in his sleep. She then covered him up and left the room for a couple of minutes. When she returned, there was a doctor with her. This was a fairly new young doctor who would pronounce the man dead, and at that particular time, 8:40 a.m. even though he had obviously passed away some time during the night. The other man across the room with tears running down his cheeks became quite depressed at seeing his roommate wheeled out of the room, declared dead. He thought about how this man would always try to make him happy with him describing all of the nice things he was able to see outside. Later on that day the nurse returned and made up the bed in the room that was now unoccupied. The man in the other bed asked if by any chance he would be able to be put by the window. The nurse was a very kind and compassionate woman besides being a very competent nurse, and she wheeled him over. Although this man was unable to prop himself up to see the outside because he had recently had his Spleen surgically removed, he tried but finding it was just impossible. The next day came, and he again tried and although he was in a great deal of pain he managed to very slowly prop himself up and peer out of that most appealing window. He was absolutely shocked at what he was able to see, or to put it another way, what he was unable to see. There was nothing there but a brick wall! He wondered why that man would always tell him about what a beautiful world it was out there when in fact there was nothing but that brick wall. At about that time the nurse came in with his sponge bath. He immediately without any reservation asked her why the man would always tell him about what was happening outside when in fact he wasn't able to see anything. The nurse then told him that he was correct. The man who had been by that window was in fact not able to see anything because he was blind. The man then realized that the other man was trying to make him feel good, and try to become well once again. And, as it turned out that other man did in fact return to health but not until he was able to receive a Bone Marrow Transplant. There was a donor found, his sister, and although he had to live in a plastic bubble for many months without having a window
Re: [CMLHope] Gleevec
Marty, glad to here your doing O. K. greenie In a message dated 8/10/2017 11:36:53 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Beth and everyone First glad no dialysis. Been there and done all of that. I have been in the hospital for two weeks due to a broken knee and a tibia finally in rehab now for the past three weeks with two weeks left. I am now in PA because we are trying to sell our house up here. I feel sorry for my wife Shelly because all of this in on her now. but she is a very strong woman. On Oct 21 we will be leaving the rehab felicity go back to our house and stay there for about a week and drive back to Florida with my wife and son who will share the driving. Our daughter Meredith will be flying back to Florida.just before we leave PA. Anyway i have been reading all of your posts so i basically know what is going on. Please say hello to everyone for me. 18's, Marty On Wed, Aug 9, 2017 at 11:48 PM, bkbarney via CMLHope wrote: Thanks Susan, No dialysis. Just navigating muscle deterioration at an accelerated rate which makes it hard to move, let alone exercise...just a significant rough patch, but trying to navigate it the best I can. I had little to give anyone for a while, but feel better able to be a contributing part of our community again. I know many do not write, but feel less alone just reading..I just became one of those people for a time.. I will try to be better about speaking up when I am struggling. Love to all, 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: rbhuffman1 ; cmlhope Sent: Wed, Aug 9, 2017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encourager to all of us. I am sure I speak for all in saying we missed you tremendously and hope you will have no more setbacks. Obviously those kidneys are so important to function properly. I hope you've not had to go on dialysis? Hoping and believing you continue to get better. You are so right about Dr. Druker and glad you are going to see him. Hang in there, we really really love you! Richard, trying hard not to preach! Prayers, though! 18's, xoxo Susan Z. On Tuesday, August 8, 2017 Richard H wrote: Thanks for the update. I hope all keeps going well. No preaching today, you are under control and I hope you continue to get better. Richard H. On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth wrote: Dear Susan, Jeanie, Marty, Richard, Greenie et all, So sorry I have not been communicative for a long while. I am coming up after a really hard year physically and with many losses...sifting through 6000 emails...I realize how much I have missed just our groups banter, and love Hope each one of you is enjoying moments of sunshine...and holding on to the love that is in our group. I rely so often on the stories of others to inspire me, give me perspective...to hold hope for a better tomorrow and to stand tall in the belief that "This too shall pass" as my dad used to say...when things were really bad.. I had a rough year starting last September with heart issues, then got worse in December...and stayed struggling through the spring...starting to feel a bit strongerstill vulnerable, but fighting spirit is back...and I am here...to see the hummingbirds out my window...flox is in full bloom75 degrees and sunny today.so life is good for now...later today seeing the cardiologist to swap medicines...then oncologist Friday. CPK stil supper high so muscle continues to waste..I hardly recognize myself and its affected my kidneys..all the protein going through them...Will get blood work done in a couple of weeks at U of C...last test in June had cancer showing...at low levels...had to go off for a drug holiday because of toxicity...so only back on for three weeks. We shall see how I am doingI am seeing Dr. Druker in October...he always makes me feel hopeful and calmhe has a way about him that invites this...and for which I am always so grateful.. I know each of you has had your strugglesphysically and emotionally...I think of you often and pray for each of you every nightGreenie, especially you and your wife,this first year of grieving Derek...your anniversary.so hard to bare...I m holding 7 clients who have lost adult children in my practice. I brought them together in a group to so they could meet one another and share their stories, introduce their children and share their grief. I thought of you and wondered if something like that might be helpful to you..I know there are many supports in your area through local hospices and I think Health Park...God willing I will be down by you in December as I was supposed to be last year before eve
Re: [CMLHope] Gleevec
Welcome Ken back to the club that no one wants to be in but glad that we have it so that we can all help each other out. greenie In a message dated 8/8/2017 6:57:28 A.M. Eastern Daylight Time, krobers...@mindspring.com writes: Good morning everyone, I just discovered that this site is still active. I have been on Gleevec for 17 years with good results, but have had additional medical challenges. I was a member of the original participants for the STI571(Gleevec) at Johns Hopkins Hospitals in Baltimore after trying everything else on the market for CML with no success. I am now 75 and thanks to God, family, and numerous medical staff I have been around long enough to have become a grandfather. Very best wishes to everyone in their battle with cancer. Ken Roberson Sent from my iPad -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Stopping Gleevec
Susan, your a sweetheart. greenie In a message dated 8/7/2017 10:48:32 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Dear Greenie, I do sympathize with you so much about losing your son. I remember when you had to go to the funeral without your lovely wife. It must have been very hard on her, too. They say grief has no definite time frame. Praying for you. So glad we were able to meet in New Carlisle that time. You helped Roy and I with the shortcut through chicago. Love ya more later Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Monday, August 7, 2017 Myvety2k via CMLHope wrote: Thank you for the info Susan, hope all is well with you. I'm still waiting for a call from them to let me know what they plan to do for me. I'm sure I will here from them within a week or so. I'm hoping for the best after over 17 years in their study. For all you know I may be the last of the 8 that started in the study, I asked one time but they won't tell me. I can make it their ever 6 months but it would be hard for me every 3 months as my blood work here at Quest is free with Humana. The only reason I moved to Florida because they made the change to once a year, Grace and I just could not take the cold weather any more it was very hard on both of us. She had a stroke in Sept. of 2015 and then when Derek passed away June 13 of last year within 10 min. she had a heart attack after we found out. So I went to the funnel by myself. I'm still having a very hard time dealing with him gone their's not a day that goes by that I think about him. Very sad. I still can't look at a picture of him without breaking down as they say time heals all wounds I'll just have to wait. Thanks for the info. greenie In a message dated 8/6/2017 9:15:20 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Greenie, I recommend Moffitt also. You know I go to Dr. Altman becuz I'm up here in Indiana. But my old doc was Pinilla that Jeanie recommended. They will help u get your medicine. A lot less expensive to go there!!! Blessings, Susan F. Zimmerman ____________ On Sunday, August 6, 2017 Myvety2k via CMLHope wrote: Jeanie thank you I wait and see what happens if things don't work out for me I will go their. greenie In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hey Greenie, I would like to suggest Moffitt cancer center here in Tampa. They will do everything to help you to get your meds. It's where I go and they have saved my life twice. They accept Medicare and medicate assignment. If you need help with copayment a there is a cancer copayment company called PSI. They paid my copayment for several years. You just need to start making calls and get the ball rolling. However I pray they keep sending the meds. You and I have been fighting this for years. I go to dr Balducci head of senior oncology center in Moffitt but the head of leukemia is dr Pinnalla. Check spelling. It's great/ you go in an hour ahead of Drs meeting for bloodwork right at hospital and by the time you meet your dr your blood work is done for him. Every three months they do a PCR. They have vallet parking. Praying for you. Jeanie❤️❤️❤️❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope wrote: Hi Rien, I started a study the first week in Jan. 2000 at Northwestern Hosp. in Chicago at 400 mg each day before it was approve my the FDA. They changed it later to 300 mg because of the Gleevec rash. I got sick in 2009 and stopped Gleevec for 26 days because of sinus infection and the Doctor at home put me on an antibiotic which made me sick so I stopped for those 26 days. Then I started up again and had my blood work done at Northwestern and started on a trip out west. My Cancer Doctor called me while driving and said," David your blood work showed that their are cancer cells back in your blood". I told him remember I quit for 26 days and he replied that's right I forgot, did you start Gleevec again I told him yes and he said " well if it worked before it will work again and hung up and I never heard from again. I later received a letter from him that he moved on to a different Hosp. in New York, NY. and that was the end of that. So, June 7th of this year I flew in from South Fort Myers. FL. to Chicago to get my blood work see my new Doctor pick up my drugs and be on my way home. But instead
Re: [CMLHope] Stopping Gleevec
Thank you for the info Susan, hope all is well with you. I'm still waiting for a call from them to let me know what they plan to do for me. I'm sure I will here from them within a week or so. I'm hoping for the best after over 17 years in their study. For all you know I may be the last of the 8 that started in the study, I asked one time but they won't tell me. I can make it their ever 6 months but it would be hard for me every 3 months as my blood work here at Quest is free with Humana. The only reason I moved to Florida because they made the change to once a year, Grace and I just could not take the cold weather any more it was very hard on both of us. She had a stroke in Sept. of 2015 and then when Derek passed away June 13 of last year within 10 min. she had a heart attack after we found out. So I went to the funnel by myself. I'm still having a very hard time dealing with him gone their's not a day that goes by that I think about him. Very sad. I still can't look at a picture of him without breaking down as they say time heals all wounds I'll just have to wait. Thanks for the info. greenie In a message dated 8/6/2017 9:15:20 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Greenie, I recommend Moffitt also. You know I go to Dr. Altman becuz I'm up here in Indiana. But my old doc was Pinilla that Jeanie recommended. They will help u get your medicine. A lot less expensive to go there!!! Blessings, Susan F. Zimmerman ________ On Sunday, August 6, 2017 Myvety2k via CMLHope wrote: Jeanie thank you I wait and see what happens if things don't work out for me I will go their. greenie In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hey Greenie, I would like to suggest Moffitt cancer center here in Tampa. They will do everything to help you to get your meds. It's where I go and they have saved my life twice. They accept Medicare and medicate assignment. If you need help with copayment a there is a cancer copayment company called PSI. They paid my copayment for several years. You just need to start making calls and get the ball rolling. However I pray they keep sending the meds. You and I have been fighting this for years. I go to dr Balducci head of senior oncology center in Moffitt but the head of leukemia is dr Pinnalla. Check spelling. It's great/ you go in an hour ahead of Drs meeting for bloodwork right at hospital and by the time you meet your dr your blood work is done for him. Every three months they do a PCR. They have vallet parking. Praying for you. Jeanie❤️❤️❤️❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope wrote: Hi Rien, I started a study the first week in Jan. 2000 at Northwestern Hosp. in Chicago at 400 mg each day before it was approve my the FDA. They changed it later to 300 mg because of the Gleevec rash. I got sick in 2009 and stopped Gleevec for 26 days because of sinus infection and the Doctor at home put me on an antibiotic which made me sick so I stopped for those 26 days. Then I started up again and had my blood work done at Northwestern and started on a trip out west. My Cancer Doctor called me while driving and said," David your blood work showed that their are cancer cells back in your blood". I told him remember I quit for 26 days and he replied that's right I forgot, did you start Gleevec again I told him yes and he said " well if it worked before it will work again and hung up and I never heard from again. I later received a letter from him that he moved on to a different Hosp. in New York, NY. and that was the end of that. So, June 7th of this year I flew in from South Fort Myers. FL. to Chicago to get my blood work see my new Doctor pick up my drugs and be on my way home. But instead I was told their no longer a study and you won't be getting the drug any longer. That took my breath away. Before I left they then told me that they changed their mind and would give me the drug and 7 month supply and would sent the rest later because they were short on Gleevec.. Last week I received a call telling me that for me to receive the drug that I would have to fly in every 3 months, that's not going to happen with the cost of flights, car rental, etc., not with my income at 78 years old. They called me last week and they are suppose to have a meeting and let me know. When I started this study their were 8 of us out of 200 people nation way and that I would receive the drug STI571 for as long and I could tolerated it or st
Re: [CMLHope] Stopping Gleevec
Jeanie thank you I wait and see what happens if things don't work out for me I will go their. greenie In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hey Greenie, I would like to suggest Moffitt cancer center here in Tampa. They will do everything to help you to get your meds. It's where I go and they have saved my life twice. They accept Medicare and medicate assignment. If you need help with copayment a there is a cancer copayment company called PSI. They paid my copayment for several years. You just need to start making calls and get the ball rolling. However I pray they keep sending the meds. You and I have been fighting this for years. I go to dr Balducci head of senior oncology center in Moffitt but the head of leukemia is dr Pinnalla. Check spelling. It's great/ you go in an hour ahead of Drs meeting for bloodwork right at hospital and by the time you meet your dr your blood work is done for him. Every three months they do a PCR. They have vallet parking. Praying for you. Jeanie❤️❤️❤️❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope wrote: Hi Rien, I started a study the first week in Jan. 2000 at Northwestern Hosp. in Chicago at 400 mg each day before it was approve my the FDA. They changed it later to 300 mg because of the Gleevec rash. I got sick in 2009 and stopped Gleevec for 26 days because of sinus infection and the Doctor at home put me on an antibiotic which made me sick so I stopped for those 26 days. Then I started up again and had my blood work done at Northwestern and started on a trip out west. My Cancer Doctor called me while driving and said," David your blood work showed that their are cancer cells back in your blood". I told him remember I quit for 26 days and he replied that's right I forgot, did you start Gleevec again I told him yes and he said " well if it worked before it will work again and hung up and I never heard from again. I later received a letter from him that he moved on to a different Hosp. in New York, NY. and that was the end of that. So, June 7th of this year I flew in from South Fort Myers. FL. to Chicago to get my blood work see my new Doctor pick up my drugs and be on my way home. But instead I was told their no longer a study and you won't be getting the drug any longer. That took my breath away. Before I left they then told me that they changed their mind and would give me the drug and 7 month supply and would sent the rest later because they were short on Gleevec.. Last week I received a call telling me that for me to receive the drug that I would have to fly in every 3 months, that's not going to happen with the cost of flights, car rental, etc., not with my income at 78 years old. They called me last week and they are suppose to have a meeting and let me know. When I started this study their were 8 of us out of 200 people nation way and that I would receive the drug STI571 for as long and I could tolerated it or stay alive. Well that changed. I am waiting for a phone call and I'm afraid it's not going to be good news, So, my question is should I take a chance and stop the drug and get blood work in 3 months and see was happens with my blood count? I am a basket case waiting to see what happens. If you have some answers please let met know. Thank you, David (greenie) Greenberg South Fort Myers, Florida In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time, rien16...@gmail.com writes: Hello! I stopped taking Gleevec after 13 years. I had my checkups every month, but only in the first year. In the second year every two months and from now on every three months for the rest of my life. It seems that everybody reacts in a different way. I myself had more bonecramps after having stopped than while taking Gleevec; but after the first year it gradually went better and now I have these cramps only a few times per year during the night. The swallen eyelids completely disappeared and unfortunately, my face became a lot thinner. Another side-effect: my hair was not grey anymore after havinig stopped, it is still dark, which was not the case before. After all I am glad that I took the decision, the problems of the first year will disappear, so I strongly advise you to do like I did. Feel free to contact me for further information. Greetings from the Netherlands - and let's be grateful that Gleevec exisits!! Rien 2017-08-05 19:18 GMT+02:00 Vivi : After seventeen years on Gleevec, and considered "in remission," my oncologist asked me if I would like to sto
Re: [CMLHope] Re: Stopping Gleevec
Thank you so much on your for your in put. greenie In a message dated 8/6/2017 12:01:55 A.M. Eastern Daylight Time, rbhuffm...@gmail.com writes: As you can see everyone has a different result. I have taken breaks from Gleevec several times for three months to 5 1/2 years. I am now on 200mg Gleevec and still detectable. So it is your decision and your ONC is sitting in your corner, be brave and see how long you can go without treatment. Worst case is you will have to start your medicine. Many advances have been made since we were scared almost to death because we have cancer... On Saturday, August 5, 2017 at 12:18:05 PM UTC-5, Vivi wrote: After seventeen years on Gleevec, and considered "in remission," my oncologist asked me if I would like to stop taking Gleevec. At first glance, this sounded spectacular but then she said: "you'll have to come in once a month to be tested." After deep thought (about twenty seconds), I said, "Talk to me about this again in ten years." Has anyone else stopped taking Gleevec after years of being "in remission?" If so, how's it going? What has changed in your life? Have any of the obvious physical side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids, abdominal fat) retreated or been reversed? I'd appreciate any information other CMLers might have. Best to all. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Stopping Gleevec
Rien, I forget to mention that I get my blood here in Florida every 3 months and everything looks good. I have got to Chicago only the first week in June each year.. Thanks, greenie In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time, rien16...@gmail.com writes: Hello! I stopped taking Gleevec after 13 years. I had my checkups every month, but only in the first year. In the second year every two months and from now on every three months for the rest of my life. It seems that everybody reacts in a different way. I myself had more bonecramps after having stopped than while taking Gleevec; but after the first year it gradually went better and now I have these cramps only a few times per year during the night. The swallen eyelids completely disappeared and unfortunately, my face became a lot thinner. Another side-effect: my hair was not grey anymore after havinig stopped, it is still dark, which was not the case before. After all I am glad that I took the decision, the problems of the first year will disappear, so I strongly advise you to do like I did. Feel free to contact me for further information. Greetings from the Netherlands - and let's be grateful that Gleevec exisits!! Rien 2017-08-05 19:18 GMT+02:00 Vivi : After seventeen years on Gleevec, and considered "in remission," my oncologist asked me if I would like to stop taking Gleevec. At first glance, this sounded spectacular but then she said: "you'll have to come in once a month to be tested." After deep thought (about twenty seconds), I said, "Talk to me about this again in ten years." Has anyone else stopped taking Gleevec after years of being "in remission?" If so, how's it going? What has changed in your life? Have any of the obvious physical side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids, abdominal fat) retreated or been reversed? I'd appreciate any information other CMLers might have. Best to all. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- Dr. Marinus Jonkers Ravenhoflaan 5 NL- 4706 WD Roosendaal Tel. +31 165 8 22128 117 Bd de la 1ère Armée, no. 21 F – 83330 Le Beausset Tél. +33 494 06 01 87 email: rien16...@gmail.com -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Stopping Gleevec
Hi Rien, I started a study the first week in Jan. 2000 at Northwestern Hosp. in Chicago at 400 mg each day before it was approve my the FDA. They changed it later to 300 mg because of the Gleevec rash. I got sick in 2009 and stopped Gleevec for 26 days because of sinus infection and the Doctor at home put me on an antibiotic which made me sick so I stopped for those 26 days. Then I started up again and had my blood work done at Northwestern and started on a trip out west. My Cancer Doctor called me while driving and said," David your blood work showed that their are cancer cells back in your blood". I told him remember I quit for 26 days and he replied that's right I forgot, did you start Gleevec again I told him yes and he said " well if it worked before it will work again and hung up and I never heard from again. I later received a letter from him that he moved on to a different Hosp. in New York, NY. and that was the end of that. So, June 7th of this year I flew in from South Fort Myers. FL. to Chicago to get my blood work see my new Doctor pick up my drugs and be on my way home. But instead I was told their no longer a study and you won't be getting the drug any longer. That took my breath away. Before I left they then told me that they changed their mind and would give me the drug and 7 month supply and would sent the rest later because they were short on Gleevec.. Last week I received a call telling me that for me to receive the drug that I would have to fly in every 3 months, that's not going to happen with the cost of flights, car rental, etc., not with my income at 78 years old. They called me last week and they are suppose to have a meeting and let me know. When I started this study their were 8 of us out of 200 people nation way and that I would receive the drug STI571 for as long and I could tolerated it or stay alive. Well that changed. I am waiting for a phone call and I'm afraid it's not going to be good news, So, my question is should I take a chance and stop the drug and get blood work in 3 months and see was happens with my blood count? I am a basket case waiting to see what happens. If you have some answers please let met know. Thank you, David (greenie) Greenberg South Fort Myers, Florida In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time, rien16...@gmail.com writes: Hello! I stopped taking Gleevec after 13 years. I had my checkups every month, but only in the first year. In the second year every two months and from now on every three months for the rest of my life. It seems that everybody reacts in a different way. I myself had more bonecramps after having stopped than while taking Gleevec; but after the first year it gradually went better and now I have these cramps only a few times per year during the night. The swallen eyelids completely disappeared and unfortunately, my face became a lot thinner. Another side-effect: my hair was not grey anymore after havinig stopped, it is still dark, which was not the case before. After all I am glad that I took the decision, the problems of the first year will disappear, so I strongly advise you to do like I did. Feel free to contact me for further information. Greetings from the Netherlands - and let's be grateful that Gleevec exisits!! Rien 2017-08-05 19:18 GMT+02:00 Vivi : After seventeen years on Gleevec, and considered "in remission," my oncologist asked me if I would like to stop taking Gleevec. At first glance, this sounded spectacular but then she said: "you'll have to come in once a month to be tested." After deep thought (about twenty seconds), I said, "Talk to me about this again in ten years." Has anyone else stopped taking Gleevec after years of being "in remission?" If so, how's it going? What has changed in your life? Have any of the obvious physical side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids, abdominal fat) retreated or been reversed? I'd appreciate any information other CMLers might have. Best to all. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- Dr. Marinus Jonkers
Re: [CMLHope] ZAVIE MILLERS ZERO LIST
Thank you so much for your reply. greenie In a message dated 7/21/2017 8:15:52 A.M. Eastern Daylight Time, s...@iinet.net.au writes: CML HOPE Hi All FACEBOOK has a FORUM A Facebook reunion group has been started for Zavie's Zero Club members which has been going since 2016 https://www.facebook.com/groups/1673390782910601/ ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU There are 161 current members who were all members of the ZAVIE ZERO’s We have been updating the Register that Zavie Miller has – Found hundreds of names >From Number 1 to Number 1381 NOTE: Ms Fran Mauri Comment in 2010 1366 Entries (zero number presentations) 947 valid Email Addresses 260 Invalid Email Addresses [European Addresses?] 149 No email Addresses >From 2010 to 2011 there were 9 Zero numbers presented to # 1375 >From 2011 to 2012 there were 6 Zero number presented to # 1381 # 1381 is the last Number of the Zavie Zero Club Member List Your Comments DAVID Hi everyone, I have this copy of Zavie's list if you notice their is a number 47 and 49 but no 48. Years back Zavie sent me the list and he gave mi number 48 which is missing. I even put in on the side of my Glenview Naval Air Station hat. So I don't know why it's missing on this list. So enjoy the list.\ Your name is not missing from the Zavie Zero List (Register) - Latest updated was June 2017 47 Joyce Ward Pickerington OH Early chronic, 0 at 3 mos. Heart attack, 1/20 in jun03 48 David Greenberg (Greenie) South Fort Myers FL 49 Dave Schulz Detroit MI Had an auto. transplant. Cheers Sue Hurt -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Fwd: [CMLHope] Zavie's List
Hi everyone, I have this copy of Zavie's list if you notice their is a number 47 and 49 but no 48. Years back Zavie sent me the list and he gave mi number 48 which is missing. I even put in on the side of my Glenview Naval Air Station hat. So I don't know why it's missing on this list. So enjoy the list. David (greenie) Greenberg Fort Myers, FL. From: myvet...@aol.com To: myve...@aol.com Sent: 7/19/2017 3:27:09 P.M. Eastern Daylight Time Subj: Fwd: [CMLHope] Zavie's List From: esd...@rogers.com Reply-to: cmlhope@googlegroups.com To: cmlhope@googlegroups.com Sent: 9/30/2016 11:07:31 P.M. Eastern Daylight Time Subj: [CMLHope] Zavie's List This is all I have... ZERO CLUB MEMBERS No. Name Surname City St Comment 1 Marty Gartenberg Staten Island NY BMT from sister. I now live in Florida 2 Linda Bartlett Cody WY Gleevec 3 Jeanelle Street Nederland TX 4 Vinny Carrasco 5 Rob Gebauer Roseville CA 6 Suzan McNamara Montreal QU Petition originator. 7 Cynthia Duty Arlington VA Mother is Kim 8 Dorothy Emery Denver NC Helped with album 9 Jill Jones Husband is Richard 10 Ellen Rubino New York NY Mother has CML Email doesn't work anymore 11 Bob Andrews Relapsed. Was in accellerated. 12 Margie Bovee Saline MI Sees Dr. Schiffer @ Karmanis in Detroit 13 Jane Graham Seattle WA 14 Marilyn Phillips Buckhannon WV Son Tim writes. 15 Chris Posadas Laurie? 16 Wayne Becken Niagra Falls ON Trial in Detroit. Diag. Mar 1989 23 Fran Evertsbusch Anchorage Alaska INF, now on Gleevec, name is Maiuri 33 Angelo Arizzo Goes to MD Anderson 34 Scott Read Kaysville UT 44 Cliff Layman Raleigh (from Schenectady NY) NC see Dr. Shea and Dr.Powderly in Chapel Hill. 45 Alayna Leppke OK 47 Joyce Ward Pickerington OH Early chronic, 0 at 3 mos. Heart attach, 1/20 in jun03 49 Dave Schulz Detroit MI Had a self transplant. 50 Giora Scharf Natanya ISR 0 by Dr. Hochhaus 52 Bob Aylesworth St. Petersberg FL Wife Dawn 54 Bob Stewart Granger IN Wife Pat 58 Judy Orem Portland OR 59 Pete Pabon Palm Harbour FL Moved from Bayside NY 60 Ken Allen 61 Riza Yilmabasar 62 Lorraine Rollo 64 Dave B. INF only 65 Jennifer Gangloff 66 Nancy Belcher Alameda CA Liver toxicity 67 Thea Rosen Dr. M. Shurafa, Henry Ford 69 Kristin Olson Lieberman San Marino CA 70 Diane Wiley Coronado CA mom hDaughter is Laura Civilikasas cml 71 David Cranmer Shelburne VT BMT relapse, wife is Allison 72 Abe Weintraub father in law Barry 73 Fposades Fish BMT 74 Dianne Ness Mpls MN Husband Paul, INF 75 Richard Rockefeller Falmouth ME Dr., was on peg inf, MSKCC 76 Angely Esders Brantford ON Canada...Gleevec 77 Dana Huddleston 78 Richard Schenk Harpers Ferry WV 79 David Greenberg Hobart IN 80 Sylvia Guenther Toronto ON 81 Harmony Jaursch 82 Susan Geller Chicago IL INF, daughter Jodi has CML 83 Sandra Craine London UK lives in UK 84 Victoria Bartling 85 Marajou Janse The Hague Netherlands 86 Steven Flack San Diego CA 87 Mithun Kamath New Orleans LA 15yr, dad is Burde 88 Linda Ginn age 44 89 Phylecia Wilson 90 Peter Capel Walton on Themes Surry From Elizabeth Rees - Hammersmith 91 Steve Harvey 92 Georgia Coats Dearborn MI age 28 93 Ruth Marcon Allentown PA Dr. Shuster, NY Presbyterian 94 Tracy van Houwling Leiden NL 95 Jack Plummer Aventura FL From ACOR, Dr. Talpaz 96 Bruce Weinstock Richfield MN Had a BMT. Relapsed. Gleevec 97 Terry Lowell Littleton CO 98 Doug Tan Kuala Lumpur Malaysia 99 John Rowe Oxon Hill MD Wife Marguaritte, after 12 mos on Gleevec 100 John Calderwood Vancouver BC Still waiting. 1% left. 101 Susan Carrow Buffalo NY 102 Zavie Miller Ottawa ON 103 Amy Fischer Boca Raton FL 104 Unlucky for Japanese 105 Ken Ito Japan 106 Darlene Shepherdsville KY 107 Charlie Jensen Fort Colins CO Wife is Vicky. Relapsed Mar02 108 Ladonna Lopossa Winlock WA 207 E Walnut #22 Winlock WA 98596 FISH 0 360-785-0907 109 Steve Robinson Longview WA Wife Jenifer, met at LTN 110 Syad Ansari 111 Lisa Martinez Tampa FL 112 Gale Woliver (Bacon) Dallas TX 113 Genie Boutchia Plymouth MA Dana Farber, Dr. De'Angelo 114 Chris Duce San Diego CA His mom is Paty 115 Bonnie Liebergot Chevy Chase MD _harris.liebergot.nist.gov_ (http://harris.liebergot.nist.gov/) 116 Sal 117 Anna Powers 118 Doris Kentucky KY 119 Paula Sapinski dxd 5/4/2001 120 Joe Stark Grove OK Wife Mary, going off G May 2004 121 = Mulone Astoria NY Frances dx 5/22/2, Gleevec 5/25/01-10/2/01 bma-cyto 0% in 3 mos. 122 Beth Petrich From European Site 123 Shelley Orenstein Boca Raton FL 124 Max Hoefler Germany 125 Keith Sharrock 126 Sydna&Bob 127 Richard Wilday 128 Caroline MacDonald Husband, Steve 129 Keith Danby 130 Ruth Waldhauer La Honda CA 131 Eugene Leyvi Gene int then gleevec 132 Mark Frazer Australia see website 133 RoxianneBMT 134 Roberta Troyer Fallston M
Re: [CMLHope] Digest for cml...@googlegroups.com - 8 updates in 1 topic
Thank you, greenie In a message dated 6/1/2017 11:12:58 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Greenie I will be praying for your trip. Life is hard when we have to face the death of our loved ones. I got married young and never in a million years Thought I would have to live my older years With a terminal disease and a widow. My hubby Went to Heaven in 1998. He had diabetes and heart disease. He just went to sleep one night And never woke up. But we have to live on the best we can. Other people need us so hang in their and enjoy your Family. Love you so very much My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Jun 1, 2017, at 8:25 AM, Myvety2k via CMLHope wrote: Lee, I don't take any kind of pain medication. Yesterday I moved a flower pot for my wife and pulled a muscle in my lower side of my back and you know how painful that can be but it will go away in a few days. We put some ben-gay on it and that helped somewhat. The things that we can't due when we get old. Need to think first, then act before we do things. I'm flying into Chicago June 7th to see my Cancer Doctor, get my blood work see my son's wife and grand kids, one of my friends that I used to work with at Inland Steel is going to pick me up and drive me around. Have lunch with them all and then he will drop me off at the airport to fly back that night. Flying out of RSW the first flight and flying out of Chicago on the last flight. It's going to be a long day. As the say, you got to do as you got to do. Derek's turned 31 on May 28th last year and passed away on the13th. Not looked forward to that date. greenie In a message dated 5/31/2017 11:21:31 P.M. Eastern Daylight Time, rbhuffm...@gmail.com writes: On Friday, April 21, 2017 at 6:34:40 AM UTC-5, Lee wrote: I'm still here, too! I was wondering where everyone went! Hopefully, everyone is healthy and just taking a break! Greenie, in case you are taking Ibuprofen (for arthritis and pain) you should let your doctor know. He or she might want you to discontinue it. It drastically lowers kidney function. Have a nice weekend, all! 18's Lee On Apr 21, 2017, at 6:13 AM, cml...@googlegroups.com wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overvie w) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics) * _Fun thing to do_ (mip://1a5f5ca8/default.html#EB130C85-430C-4B64-B867-D7F620A83AC0@aol.com_group_thread_0) - 8 Updates _Fun thing to do _ (http://groups.google.com/group/cmlhope/t/277496fc63bbdb52?utm_source=digest&utm_medium=email) myve...@aol.com: Apr 20 08:14AM -0400 Hi Group, is anyone home. Their seems to no posts anymore? I noticed that my name is off Zavie's list and he gave me number 48 and it's gone. Hope all is well with everyone. greenie In a message dated 2/7/2017 6:31:21 P.M. Eastern Standard Time, pksc...@gmail.com writes: For 32 years. I commuted two hours each day in the Toronto traffic (exposure to benzine) and then sat in front of a computer terminal all day long (prolonged exposure to electromagnetic radiation). Had I known then, what I know now, I would have chosen a healthier occupation. Also, in my younger years, I used leaded gasoline to wash the grease off my hands after working on my beat up cars. -- -- [CMLHope] A support group of __http://cmlhope.com__ (http://cmlhope.com_/) (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to CMLHope-u...@CMLHope-u...@http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@cmlhope+u...@https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . Marty Gartenberg : Apr 20 09:02AM -0400 Hi Greenie, I'm still here, in fact i am always here. I think that everyone is not posting because of the holidays and are busy at this time of the year. So, how are you doing? I hope that you are doing well. Eve
Re: [CMLHope] Digest for cml...@googlegroups.com - 8 updates in 1 topic
nniversary was on March 28th while we were on the cruise. The way I look at things no matter what you go through, ain't life great! You bet it is! Remember I'm still pushing those 18's. 18's, Marty myve...@aol.com: Apr 20 11:42AM -0400 Wow, I didn't know about the accident. Well, I'm glad things are going better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but the Doctor told me to keep drinking a lot of water and I've increased that also. I have blood work in Chicago on the first of June, see the Doctor, etc. Check in with my late son's wife and kids and then catch the last plane out of Chicago to Fort Myers. It will be a long day but I'll be doing just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. PLEASE be careful and take care of yourself. We all need you to solve all of our problems. Cheers, greenie In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Greenie, I'm still here, in fact i am always here. I think that everyone is not posting because of the holidays and are busy at this time of the year. So, how are you doing? I hope that you are doing well. Ever since my accident i have been trying to recover but it is a very slow process. I broke my neck in three places as well as my arm and shattered my elbow. I was in a coma for many weeks and when I finally got up to find i had hole in my neck connected to a respirator with my head in a sort of globe I didn't know what happened to me. They told me that i had plates, screws, nuts and bolts in both my neck and arm. Had to go to a nursing home and had months of therapy. But i am still still recovering. I gained a lot of being myself in these past nine months. I'm walking I'm talking I'm eating again and I am off of Dialysis and got a kidney transplant and a prostate operation almost two and a half years ago and being able to pee is very good. And the best part is that I can still drive my wife at night.😂 Even went on a cruise on March 26th, and our 41st anniversary was on March 28th while we were on the cruise. The way I look at things no matter what you go through, ain't life great! You bet it is! Remember I'm still pushing those 18's. 18's, Marty -- -- [CMLHope] A support group of __http://cmlhope.com__ (http://cmlhope.com_/) (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to CMLHope-u...@CMLHope-u...@http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@cmlhope+u...@https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . Marty Gartenberg : Apr 20 02:30PM -0400 Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope < myve...@aol.com: Apr 20 03:23PM -0400 Yes, Marty I am doing the cranberry juice. Thanks, greenie In a message dated 4/20/2017 2:30:38 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope wrote: Wow, I didn't know about the accident. Well, I'm glad things are going better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but the Doctor told me to keep drinking a lot of water and I've increased that also. I have blood work in Chicago on the first of June, see the Doctor, etc. Check in with my late son's wife and kids and then catch the last plane out of Chicago to Fort Myers. It will be a long day but I'll be doing just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. PLEASE be careful and take care of yourself. We a
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 8 updates in 1 topic
e in my neck connected to a respirator with my head in a sort of globe I didn't know what happened to me. They told me that i had plates, screws, nuts and bolts in both my neck and arm. Had to go to a nursing home and had months of therapy. But i am still still recovering. I gained a lot of being myself in these past nine months. I'm walking I'm talking I'm eating again and I am off of Dialysis and got a kidney transplant and a prostate operation almost two and a half years ago and being able to pee is very good. And the best part is that I can still drive my wife at night.😂 Even went on a cruise on March 26th, and our 41st anniversary was on March 28th while we were on the cruise. The way I look at things no matter what you go through, ain't life great! You bet it is! Remember I'm still pushing those 18's. 18's, Marty -- -- [CMLHope] A support group of __http://cmlhope.com__ (http://cmlhope.com_/) (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . Marty Gartenberg : Apr 20 02:30PM -0400 Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope < myvet...@aol.com: Apr 20 03:23PM -0400 Yes, Marty I am doing the cranberry juice. Thanks, greenie In a message dated 4/20/2017 2:30:38 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope wrote: Wow, I didn't know about the accident. Well, I'm glad things are going better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but the Doctor told me to keep drinking a lot of water and I've increased that also. I have blood work in Chicago on the first of June, see the Doctor, etc. Check in with my late son's wife and kids and then catch the last plane out of Chicago to Fort Myers. It will be a long day but I'll be doing just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. PLEASE be careful and take care of yourself. We all need you to solve all of our problems. Cheers, greenie In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Greenie, I'm still here, in fact i am always here. I think that everyone is not posting because of the holidays and are busy at this time of the year. So, how are you doing? I hope that you are doing well. Ever since my accident i have been trying to recover but it is a very slow process. I broke my neck in three places as well as my arm and shattered my elbow. I was in a coma for many weeks and when I finally got up to find i had hole in my neck connected to a respirator with my head in a sort of globe I didn't know what happened to me. They told me that i had plates, screws, nuts and bolts in both my neck and arm. Had to go to a nursing home and had months of therapy. But i am still still recovering. I gained a lot of being myself in these past nine months. I'm walking I'm talking I'm eating again and I am off of Dialysis and got a kidney transplant and a prostate operation almost two and a half years ago and being able to pee is very good. And the best part is that I can still drive my wife at night.😂 Even went on a cruise on March 26th, and our 41st anniversary was on March 28th while we were on the cruise. The way I look at things no matter what you go
Re: [CMLHope] Digest for cml...@googlegroups.com - 8 updates in 1 topic
27;m still pushing those 18's. 18's, Marty myve...@aol.com: Apr 20 11:42AM -0400 Wow, I didn't know about the accident. Well, I'm glad things are going better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but the Doctor told me to keep drinking a lot of water and I've increased that also. I have blood work in Chicago on the first of June, see the Doctor, etc. Check in with my late son's wife and kids and then catch the last plane out of Chicago to Fort Myers. It will be a long day but I'll be doing just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. PLEASE be careful and take care of yourself. We all need you to solve all of our problems. Cheers, greenie In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Greenie, I'm still here, in fact i am always here. I think that everyone is not posting because of the holidays and are busy at this time of the year. So, how are you doing? I hope that you are doing well. Ever since my accident i have been trying to recover but it is a very slow process. I broke my neck in three places as well as my arm and shattered my elbow. I was in a coma for many weeks and when I finally got up to find i had hole in my neck connected to a respirator with my head in a sort of globe I didn't know what happened to me. They told me that i had plates, screws, nuts and bolts in both my neck and arm. Had to go to a nursing home and had months of therapy. But i am still still recovering. I gained a lot of being myself in these past nine months. I'm walking I'm talking I'm eating again and I am off of Dialysis and got a kidney transplant and a prostate operation almost two and a half years ago and being able to pee is very good. And the best part is that I can still drive my wife at night.😂 Even went on a cruise on March 26th, and our 41st anniversary was on March 28th while we were on the cruise. The way I look at things no matter what you go through, ain't life great! You bet it is! Remember I'm still pushing those 18's. 18's, Marty -- -- [CMLHope] A support group of __http://cmlhope.com__ (http://cmlhope.com_/) (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to CMLHope-u...@CMLHope-u...@http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@cmlhope+u...@https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . Marty Gartenberg : Apr 20 02:30PM -0400 Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope < myve...@aol.com: Apr 20 03:23PM -0400 Yes, Marty I am doing the cranberry juice. Thanks, greenie In a message dated 4/20/2017 2:30:38 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope wrote: Wow, I didn't know about the accident. Well, I'm glad things are going better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but the Doctor told me to keep drinking a lot of water and I've increased that also. I have blood work in Chicago on the first of June, see the Doctor, etc. Check in with my late son's wife and kids and then catch the last plane out of Chicago to Fort Myers. It will be a long day but I'll be doing just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. PLEASE be careful and take care of yourself. We all need you to solve all of our problems. Cheers, greenie In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Gree
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 8 updates in 1 topic
ight Time, wa2...@gmail.com writes: Hi Greenie, I'm still here, in fact i am always here. I think that everyone is not posting because of the holidays and are busy at this time of the year. So, how are you doing? I hope that you are doing well. Ever since my accident i have been trying to recover but it is a very slow process. I broke my neck in three places as well as my arm and shattered my elbow. I was in a coma for many weeks and when I finally got up to find i had hole in my neck connected to a respirator with my head in a sort of globe I didn't know what happened to me. They told me that i had plates, screws, nuts and bolts in both my neck and arm. Had to go to a nursing home and had months of therapy. But i am still still recovering. I gained a lot of being myself in these past nine months. I'm walking I'm talking I'm eating again and I am off of Dialysis and got a kidney transplant and a prostate operation almost two and a half years ago and being able to pee is very good. And the best part is that I can still drive my wife at night.😂 Even went on a cruise on March 26th, and our 41st anniversary was on March 28th while we were on the cruise. The way I look at things no matter what you go through, ain't life great! You bet it is! Remember I'm still pushing those 18's. 18's, Marty -- -- [CMLHope] A support group of __http://cmlhope.com__ (http://cmlhope.com_/) (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. Marty Gartenberg : Apr 20 02:30PM -0400 Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope < myvet...@aol.com: Apr 20 03:23PM -0400 Yes, Marty I am doing the cranberry juice. Thanks, greenie In a message dated 4/20/2017 2:30:38 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope wrote: Wow, I didn't know about the accident. Well, I'm glad things are going better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but the Doctor told me to keep drinking a lot of water and I've increased that also. I have blood work in Chicago on the first of June, see the Doctor, etc. Check in with my late son's wife and kids and then catch the last plane out of Chicago to Fort Myers. It will be a long day but I'll be doing just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. PLEASE be careful and take care of yourself. We all need you to solve all of our problems. Cheers, greenie In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Greenie, I'm still here, in fact i am always here. I think that everyone is not posting because of the holidays and are busy at this time of the year. So, how are you doing? I hope that you are doing well. Ever since my accident i have been trying to recover but it is a very slow process. I broke my neck in three places as well as my arm and shattered my elbow. I was in a coma for many weeks and when I finally got up to find i had hole in my neck connected to a respirator with my head in a sort of globe I didn't know what happened to me. They told me that i had plates, screws, nuts and bolts in both my neck and arm. Had to go to a nursing home and had months of therapy. But i am still still recovering. I gained a lot of being myself in these past nine months. I'm walking I
Re: [CMLHope] Re: Fun thing to do
Yes, Marty I am doing the cranberry juice. Thanks, greenie In a message dated 4/20/2017 2:30:38 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Greenie, The one thing that you did mention was the fact that your kidney function dropped. Hey I have a suggestion for you. If your not diabetic then start drinking cranberry juice. It washes your kidneys out and it wouldn't surprise me if your kidney function dropped even lower. But either way you should still drink more water which you already know about. 18's, Marty On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope wrote: Wow, I didn't know about the accident. Well, I'm glad things are going better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but the Doctor told me to keep drinking a lot of water and I've increased that also. I have blood work in Chicago on the first of June, see the Doctor, etc. Check in with my late son's wife and kids and then catch the last plane out of Chicago to Fort Myers. It will be a long day but I'll be doing just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. PLEASE be careful and take care of yourself. We all need you to solve all of our problems. Cheers, greenie In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Greenie, I'm still here, in fact i am always here. I think that everyone is not posting because of the holidays and are busy at this time of the year. So, how are you doing? I hope that you are doing well. Ever since my accident i have been trying to recover but it is a very slow process. I broke my neck in three places as well as my arm and shattered my elbow. I was in a coma for many weeks and when I finally got up to find i had hole in my neck connected to a respirator with my head in a sort of globe I didn't know what happened to me. They told me that i had plates, screws, nuts and bolts in both my neck and arm. Had to go to a nursing home and had months of therapy. But i am still still recovering. I gained a lot of being myself in these past nine months. I'm walking I'm talking I'm eating again and I am off of Dialysis and got a kidney transplant and a prostate operation almost two and a half years ago and being able to pee is very good. And the best part is that I can still drive my wife at night.😂 Even went on a cruise on March 26th, and our 41st anniversary was on March 28th while we were on the cruise. The way I look at things no matter what you go through, ain't life great! You bet it is! Remember I'm still pushing those 18's. 18's, Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message becaus
Re: [CMLHope] Re: Fun thing to do
Wow, I didn't know about the accident. Well, I'm glad things are going better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but the Doctor told me to keep drinking a lot of water and I've increased that also. I have blood work in Chicago on the first of June, see the Doctor, etc. Check in with my late son's wife and kids and then catch the last plane out of Chicago to Fort Myers. It will be a long day but I'll be doing just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. PLEASE be careful and take care of yourself. We all need you to solve all of our problems. Cheers, greenie In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Greenie, I'm still here, in fact i am always here. I think that everyone is not posting because of the holidays and are busy at this time of the year. So, how are you doing? I hope that you are doing well. Ever since my accident i have been trying to recover but it is a very slow process. I broke my neck in three places as well as my arm and shattered my elbow. I was in a coma for many weeks and when I finally got up to find i had hole in my neck connected to a respirator with my head in a sort of globe I didn't know what happened to me. They told me that i had plates, screws, nuts and bolts in both my neck and arm. Had to go to a nursing home and had months of therapy. But i am still still recovering. I gained a lot of being myself in these past nine months. I'm walking I'm talking I'm eating again and I am off of Dialysis and got a kidney transplant and a prostate operation almost two and a half years ago and being able to pee is very good. And the best part is that I can still drive my wife at night.😂 Even went on a cruise on March 26th, and our 41st anniversary was on March 28th while we were on the cruise. The way I look at things no matter what you go through, ain't life great! You bet it is! Remember I'm still pushing those 18's. 18's, Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: Fun thing to do
Hi Group, is anyone home. Their seems to no posts anymore? I noticed that my name is off Zavie's list and he gave me number 48 and it's gone. Hope all is well with everyone. greenie In a message dated 2/7/2017 6:31:21 P.M. Eastern Standard Time, pksch...@gmail.com writes: For 32 years. I commuted two hours each day in the Toronto traffic (exposure to benzine) and then sat in front of a computer terminal all day long (prolonged exposure to electromagnetic radiation). Had I known then, what I know now, I would have chosen a healthier occupation. Also, in my younger years, I used leaded gasoline to wash the grease off my hands after working on my beat up cars. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Fun thing to do
Benzine, That's the one. I had a side business painting Corvette's and body work for over 30 years. Paints, thinners, etc. will do it every time. No Cancer anywhere in my family but me. Should have had a different side line then painting cars. greenie In a message dated 2/7/2017 3:10:31 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Joyce, Just that you know benzine is listed of possible cause of cancer. Him being a former smoker, that was the best idea he could have had. 18's, Marty On Tue, Feb 7, 2017 at 2:24 PM, Joyce Mesnarich wrote: Good idea Jeannie. My husband is the CML patient. He also was a smoker for many years but had quit about 20 years before diagnosis. We owned a petroleum delivery company. And in that capacity he would ingest the benzene fumes all day…..for 33 years. This is what we think caused his CML. Very interesting reading these emails. Joyce in So Illinois (Not Chicago) On Feb 6, 2017, at 10:09 PM, 'Susan Zimmerman' via CMLHope wrote: I walked between 5 diesel buses for half an hour on a trip once, deciding which bus I should get on. Have always wondered about the benzene in the diesel fuel.not good. This was about a year before detection. 18's, Susan F. Zimmerman -Original Message- From: ANGELYN ESDERS To: cmlhope Sent: Mon, Feb 6, 2017 8:08 pm Subject: Re: [CMLHope] Fun thing to do I was a smoker. How many of us were smokers? One day at a supermarket I was in the direct line of fire when an old lady on a scooter hit a display of Javex. It splashed all over me.completely ruined my clothes...and I had to drive home on that VERY HOT summer day(two hr drive) in clothing soaked with Javex. Apparently it absorbs through the skin. I felt very ill the next day. I have always wondered.. I was cleaning calcium deposits off of seashells using CLR. It worked very well. I did not wear gloves. I have always wondered. Angie From: 'Jeanie' via CMLHope To: cmlhope@googlegroups.com Sent: Monday, February 6, 2017 6:08 PM Subject: [CMLHope] Fun thing to do Let's all make s list of all the things we were doing when we got CML. Things that we didn't normally do or that were done every day. Mine were: Exposure to pesticides Dental X-rays more than normal Donating blood Deep grief over loss of hubby Thanks group. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@unsubscribe@ For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@unsubscribe@http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For m
Re: [CMLHope] Disability and retirement
Yes, and I'm still getting to this day. greenie In a message dated 2/2/2017 3:52:34 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Hi Greenie Did you still get your pension check? My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Feb 2, 2017, at 11:35 AM, Myvety2k via CMLHope wrote: Hi Lee, I retired in 1995 at the age of 55. I worked for a close friend of mine at his Ford Dealership until I found out the I had CML two weeks before Xmas, that was 1999. My Cancer Doctor told my wife at that time to apply for SS and was approved within two weeks. At that time I was getting a pension check from the company that I retired from. By the way my Cancer Doctor wrote a letter to go along with my letter to SS. Of course things may have changed by now I'm not sure but give it a try. greenie In a message dated 2/2/2017 8:09:15 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Good morning to all. My husband, who was diagnosed with CML eight years ago, is newly retired. He won't be eligible for social security for another 3 years. Does anyone know if it is possible to collect disability during retirement? Also, when he is able to collect social security, will he be able to collect both? I would love your feedback and advice. Blessings and 18's to you all! Lee Erstein -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Disability and retirement
Hi Lee, I retired in 1995 at the age of 55. I worked for a close friend of mine at his Ford Dealership until I found out the I had CML two weeks before Xmas, that was 1999. My Cancer Doctor told my wife at that time to apply for SS and was approved within two weeks. At that time I was getting a pension check from the company that I retired from. By the way my Cancer Doctor wrote a letter to go along with my letter to SS. Of course things may have changed by now I'm not sure but give it a try. greenie In a message dated 2/2/2017 8:09:15 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Good morning to all. My husband, who was diagnosed with CML eight years ago, is newly retired. He won't be eligible for social security for another 3 years. Does anyone know if it is possible to collect disability during retirement? Also, when he is able to collect social security, will he be able to collect both? I would love your feedback and advice. Blessings and 18's to you all! Lee Erstein -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Change on date
Thank you Marty. I saving this post. greenie In a message dated 1/26/2017 3:30:16 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, I wrote something a very long time ago, and I have passed it along many times. I'm not quite sure if you ever got it. So I will now pass it along once again. Pay attention the the very last word... EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME... FOCUS... 18's, Marty On Thu, Jan 26, 2017 at 1:26 PM, Myvety2k via CMLHope wrote: Marty, all of us as a group always help each other out, it's been that way from day one. You going back 27 years, me 18 years. Being able to talk to someone that's been through it for the new be's helps them also. Just reading your reply has made my day and I feel so much better. My out look has changed also about this problem that I'm having. All of us have voiced at one time or another so were all in the same boat. Thanks again, and have a nice day. greenie In a message dated 1/26/2017 12:58:49 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Greenie, I am no saint just someone that likes to pay it forward, as I once made a promise to GOD. Like i said, don't get all bent out of shape about this, and by the way everything else in your life as. Do you want to know why? It only hurts you... I remember when i first got diagnosed and had a blood test i would wait in the waiting room and i would severely sweat and sometimes start to shake my whole body until i got the results back. Now that i think back to "yesteryear" being 27 years ago why did i ever do that? When someone worries then so does their minds. I once mentioned that to myself and others as well. Your mind is a very powerful tool because your mind also controls your body... Try not to anticipate things... Just go get your kidneys checked out. Why do you think that i always end any of my posts with 18's? It's for life Greenie, and others as well! Marty On Thu, Jan 26, 2017 at 12:21 PM, Myvety2k via CMLHope wrote: Marty, You are are a Saint. Thank you, I have been so worried about all of this. Your post has made me feel so much better. Thank you again, Greenie In a message dated 1/26/2017 10:08:24 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, I see that you Creatinine level went from 1.82 to 2.02. If my math serves me correct then we are looking at a 0.2 raise. this is not earth shaking however you should keep an eye on it. I think that you making an appointment with a Nephrologist is the right thing to do. It could be a lot of things causing this including some of your medications Don't get to bent out of shape over this you just listen to your new new Nephrologistphroligist 18's, Marty On Thu, Jan 26, 2017 at 7:52 AM, Myvety2k via CMLHope wrote: Hi Marty, I had some blood work done last week and it's not the best. In one month my creatinine level went from 1.82 to 2.02. My interest is sending me to a Nephrology next week. Had a Ultrasound also it showed no stones but it showed that I had bilateral renal cortical thinning. The report showed that my folate was 8.7 and normal is 5.4. I've been drinking water and cranberry juice also. I have seeing my interest tomorrow. Will keep in touch. Greenie In a message dated 12/27/2016 7:28:04 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, I think that I have already given you information about what may help your kidneys. However if I didn't then let me repeat myself. One cup of caffeinated coffee and one coke caffeinated is now two caffeinated drinks that you drink most every day and you don't unnecessary need any caffeine in your life, or as little as possible, and on top of that you aren't crazy about drinking water. If you must drink caffeinated coffee and coke then it is a very simple thing to change. Just starting drinking caffeine free. And while your at it something that will help your kidneys is cranberry juice. I am taking to you becau
Re: [CMLHope] Oh Yea, Greenie I have one more thing to say...
Marty, this post is up lifting. Your right think positive. greenie In a message dated 1/26/2017 4:12:52 P.M. Eastern Standard Time, wa2...@gmail.com writes: 18's, Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Change on date
Marty, all of us as a group always help each other out, it's been that way from day one. You going back 27 years, me 18 years. Being able to talk to someone that's been through it for the new be's helps them also. Just reading your reply has made my day and I feel so much better. My out look has changed also about this problem that I'm having. All of us have voiced at one time or another so were all in the same boat. Thanks again, and have a nice day. greenie In a message dated 1/26/2017 12:58:49 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, Greenie, I am no saint just someone that likes to pay it forward, as I once made a promise to GOD. Like i said, don't get all bent out of shape about this, and by the way everything else in your life as. Do you want to know why? It only hurts you... I remember when i first got diagnosed and had a blood test i would wait in the waiting room and i would severely sweat and sometimes start to shake my whole body until i got the results back. Now that i think back to "yesteryear" being 27 years ago why did i ever do that? When someone worries then so does their minds. I once mentioned that to myself and others as well. Your mind is a very powerful tool because your mind also controls your body... Try not to anticipate things... Just go get your kidneys checked out. Why do you think that i always end any of my posts with 18's? It's for life Greenie, and others as well! Marty On Thu, Jan 26, 2017 at 12:21 PM, Myvety2k via CMLHope wrote: Marty, You are are a Saint. Thank you, I have been so worried about all of this. Your post has made me feel so much better. Thank you again, Greenie In a message dated 1/26/2017 10:08:24 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, I see that you Creatinine level went from 1.82 to 2.02. If my math serves me correct then we are looking at a 0.2 raise. this is not earth shaking however you should keep an eye on it. I think that you making an appointment with a Nephrologist is the right thing to do. It could be a lot of things causing this including some of your medications Don't get to bent out of shape over this you just listen to your new new Nephrologistphroligist 18's, Marty On Thu, Jan 26, 2017 at 7:52 AM, Myvety2k via CMLHope wrote: Hi Marty, I had some blood work done last week and it's not the best. In one month my creatinine level went from 1.82 to 2.02. My interest is sending me to a Nephrology next week. Had a Ultrasound also it showed no stones but it showed that I had bilateral renal cortical thinning. The report showed that my folate was 8.7 and normal is 5.4. I've been drinking water and cranberry juice also. I have seeing my interest tomorrow. Will keep in touch. Greenie In a message dated 12/27/2016 7:28:04 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, I think that I have already given you information about what may help your kidneys. However if I didn't then let me repeat myself. One cup of caffeinated coffee and one coke caffeinated is now two caffeinated drinks that you drink most every day and you don't unnecessary need any caffeine in your life, or as little as possible, and on top of that you aren't crazy about drinking water. If you must drink caffeinated coffee and coke then it is a very simple thing to change. Just starting drinking caffeine free. And while your at it something that will help your kidneys is cranberry juice. I am taking to you because you have to remember that my kidneys failed and I was on dialysis for four years then finally I had a kidney transplant. And Jeanie I know what happened to me, let's not make it a repeat performance for you. I love everyone on this site and I know that everyone on this site also loves me so do whatever you need to try and stay healthy including no caffeine, drink water with non caffeinated iced tea mix, just keep a pitcher with lemon slices in it and keep in the fridge. You can even add a very small amount of some vanilla extract in it. Finally let me tell you something having dialysis was like a torture to me, I am talking to you and everyone from my heart. So just try and make some life changing things in this New Year, you will be happy that you did. Remember... 18's, Marty On Tue, Dec 27, 2016 at 10:18 AM, 'Jeanie' via CMLHope wrote: Lots of water. I drink 1 cup caffeine coffee daily. Fill up a large pitcher and drink it through the day. Add juice favor if that helps. Good luck. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1
Re: [CMLHope] Change on date
Marty, You are are a Saint. Thank you, I have been so worried about all of this. Your post has made me feel so much better. Thank you again, Greenie In a message dated 1/26/2017 10:08:24 A.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, I see that you Creatinine level went from1.82 to 2.02. If my math serves me correct then we are looking at a 0.2 raise. this is not earth shaking however you should keep an eye on it. I think that you making an appointment with a Nephrologist is the right thing to do. It could be a lot of things causing this including some of your medications Don't get to bent out of shape over this you just listen to your new new Nephrologistphroligist 18's, Marty On Thu, Jan 26, 2017 at 7:52 AM, Myvety2k via CMLHope wrote: Hi Marty, I had some blood work done last week and it's not the best. In one month my creatinine level went from 1.82 to 2.02. My interest is sending me to a Nephrology next week. Had a Ultrasound also it showed no stones but it showed that I had bilateral renal cortical thinning. The report showed that my folate was 8.7 and normal is 5.4. I've been drinking water and cranberry juice also. I have seeing my interest tomorrow. Will keep in touch. Greenie In a message dated 12/27/2016 7:28:04 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, I think that I have already given you information about what may help your kidneys. However if I didn't then let me repeat myself. One cup of caffeinated coffee and one coke caffeinated is now two caffeinated drinks that you drink most every day and you don't unnecessary need any caffeine in your life, or as little as possible, and on top of that you aren't crazy about drinking water. If you must drink caffeinated coffee and coke then it is a very simple thing to change. Just starting drinking caffeine free. And while your at it something that will help your kidneys is cranberry juice. I am taking to you because you have to remember that my kidneys failed and I was on dialysis for four years then finally I had a kidney transplant. And Jeanie I know what happened to me, let's not make it a repeat performance for you. I love everyone on this site and I know that everyone on this site also loves me so do whatever you need to try and stay healthy including no caffeine, drink water with non caffeinated iced tea mix, just keep a pitcher with lemon slices in it and keep in the fridge. You can even add a very small amount of some vanilla extract in it. Finally let me tell you something having dialysis was like a torture to me, I am talking to you and everyone from my heart. So just try and make some life changing things in this New Year, you will be happy that you did. Remember... 18's, Marty On Tue, Dec 27, 2016 at 10:18 AM, 'Jeanie' via CMLHope wrote: Lots of water. I drink 1 cup caffeine coffee daily. Fill up a large pitcher and drink it through the day. Add juice favor if that helps. Good luck. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Dec 14, 2016, at 8:39 AM, myvety2k via CMLHope wrote: Marty, Do you have any suggestions that could help me lower my creatinine level. When we receive the message from Derek's wife that he had a heart attack and passed away 5 min. later Grace had a heart attack and had to rush her to the hospital. After Grace had her attack I started getting my regular heartbeat back that started back in my mid-forties so I made an appointment with my cardiologists he did the 21 day monitor, stress test and EKG and everything came back O.K. He told my no more caffeine, no coffee. I do drink one small cup in the morning and one Coca-cola non-caffeine free each day. I'm not big on drinking water which I know I should be or maybe I need to change my diet, etc. Hopefully you can give me some answers. If anyone wants to hope in on this email be my guess. Thanks Marty, greenie In a message dated 12/14/2016 8:19:53 AM Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, You don't ever have to apologize to me or anyone else for that matter. Sometimes I realize that I made a mistake and I guess that I would have to apologize at least twice a week maybe more, so I would be writing apologies at least twice a week and maybe more. You always take care of yourself. 18's, Marty On Wed, Dec 14, 2016 at 7:26 AM, myvety2k via CMLHope wrote: I made and error on the date that I had my blood work, It was on 12-07-2016. Sorry about that. greenie -- -- [CMLHope] A support group of _http://cmlhope.com_ (http:/
Re: [CMLHope] Change on date
Hi Marty, I had some blood work done last week and it's not the best. In one month my creatinine level went from 1.82 to 2.02. My interest is sending me to a Nephrology next week. Had a Ultrasound also it showed no stones but it showed that I had bilateral renal cortical thinning. The report showed that my folate was 8.7 and normal is 5.4. I've been drinking water and cranberry juice also. I have seeing my interest tomorrow. Will keep in touch. Greenie In a message dated 12/27/2016 7:28:04 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, I think that I have already given you information about what may help your kidneys. However if I didn't then let me repeat myself. One cup of caffeinated coffee and one coke caffeinated is now two caffeinated drinks that you drink most every day and you don't unnecessary need any caffeine in your life, or as little as possible, and on top of that you aren't crazy about drinking water. If you must drink caffeinated coffee and coke then it is a very simple thing to change. Just starting drinking caffeine free. And while your at it something that will help your kidneys is cranberry juice. I am taking to you because you have to remember that my kidneys failed and I was on dialysis for four years then finally I had a kidney transplant. And Jeanie I know what happened to me, let's not make it a repeat performance for you. I love everyone on this site and I know that everyone on this site also loves me so do whatever you need to try and stay healthy including no caffeine, drink water with non caffeinated iced tea mix, just keep a pitcher with lemon slices in it and keep in the fridge. You can even add a very small amount of some vanilla extract in it. Finally let me tell you something having dialysis was like a torture to me, I am talking to you and everyone from my heart. So just try and make some life changing things in this New Year, you will be happy that you did. Remember... 18's, Marty On Tue, Dec 27, 2016 at 10:18 AM, 'Jeanie' via CMLHope wrote: Lots of water. I drink 1 cup caffeine coffee daily. Fill up a large pitcher and drink it through the day. Add juice favor if that helps. Good luck. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Dec 14, 2016, at 8:39 AM, myvety2k via CMLHope wrote: Marty, Do you have any suggestions that could help me lower my creatinine level. When we receive the message from Derek's wife that he had a heart attack and passed away 5 min. later Grace had a heart attack and had to rush her to the hospital. After Grace had her attack I started getting my regular heartbeat back that started back in my mid-forties so I made an appointment with my cardiologists he did the 21 day monitor, stress test and EKG and everything came back O.K. He told my no more caffeine, no coffee. I do drink one small cup in the morning and one Coca-cola non-caffeine free each day. I'm not big on drinking water which I know I should be or maybe I need to change my diet, etc. Hopefully you can give me some answers. If anyone wants to hope in on this email be my guess. Thanks Marty, greenie In a message dated 12/14/2016 8:19:53 AM Eastern Standard Time, wa2...@gmail.com writes: Hi Greenie, You don't ever have to apologize to me or anyone else for that matter. Sometimes I realize that I made a mistake and I guess that I would have to apologize at least twice a week maybe more, so I would be writing apologies at least twice a week and maybe more. You always take care of yourself. 18's, Marty On Wed, Dec 14, 2016 at 7:26 AM, myvety2k via CMLHope wrote: I made and error on the date that I had my blood work, It was on 12-07-2016. Sorry about that. greenie -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/)
Re: Re: [CMLHope] Re: Fw: Jingle Bells (1940s style)
Your welcome. In a message dated 12/28/2016 7:10:00 PM Eastern Standard Time, joy...@htc.net writes:  Thanks so much Greenie.  It was exciting and beautiful.  So much better than seeing fights and shootouts at the mall.        Joyce in Southern IL On Dec 26, 2016, at 10:55 PM, Richard H wrote:Thanks Greenie!! I Enjoyed the gift. On Monday, December 26, 2016 at 6:32:40 AM UTC-6, greenie wrote:  Hi my CML friends, I'm passing this along a day late.  Sorry about that but you need to check this this out. greenie       Jingle Bells like you have never heard it before! FANTASTIC!!     https://www.youtube.com/embed/ khQN5ylb3H0?rel=0 USAF Band WWII Holiday Flashback - YouTubewww.youtube.comTry watching this video on www.youtube.com, or enable JavaScript if it is disabled in your browser.     -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Fwd: Fw: Jingle Bells (1940s style)
 Hi my CML friends, I'm passing this along a day late.  Sorry about that but you need to check this this out. greenie       Jingle Bells like you have never heard it before! FANTASTIC!!     https://www.youtube.com/embed/ khQN5ylb3H0?rel=0 USAF Band WWII Holiday Flashback - YouTubewww.youtube.comTry watching this video on www.youtube.com, or enable JavaScript if it is disabled in your browser.    -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Happy Holidays!!!!!!!
Thank you Richard, and a thank you and to everyone else. And a Big Yes on that cure of CML.  Be safe driving as well. greenie In a message dated 12/18/2016 11:56:13 PM Eastern Standard Time, rbhuffm...@gmail.com writes:  I wish all members a happy Holiday season to end this year of 2016. While we have our holiday names different, may they be meaningful to each of us. May the Joys of this year be celebrated, and the unpleasant parts be put to rest as we face the future of a New Year 2017. My Glass is held high in tribute celebrating our future and hopes for the cure to be found for CML. 18's as always for life. Richard H.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: Re: [CMLHope] Blood work results
Hi Beth, I like going on cruising, Grace and I over the last 16 years have on on 9.  We were going to go this Dec 5th but had to cancel because Grace has had a few health problems so next year. greenie In a message dated 12/16/2016 8:52:20 AM Eastern Standard Time, cmlhope@googlegroups.com writes:  Hi GreenieI'm 78 so we grew up in in same era. What a fun time.  So sorry about your son The pain never goes away. I'm headed out on a Christmas cruise.  If you are there Norm I'm thinking of you.  We are going all over starting with Key West and over to Mexico. I'm going with my daughter and granddaughter. Fun in the sun. We are taking a wheel chair to make the tours easier for me.  Be good all. 🎄🎄 My Motto: Faith and PillsWith Love🐠18'sDx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/2015Doctor Balducci Moffitt Cancer Center On Dec 14, 2016, at 12:12 PM, myvety2k via CMLHope wrote: Hi Beth, I will say that for being 77 1/2 years old my heart is in good shape.  Had all of the tests 6 months ago and doing find.  And being on Gleevec for almost 17 years I'm find. Thank you, greenie In a message dated 12/14/2016 11:20:41 AM Eastern Standard Time, cmlhope@googlegroups.com writes:  Dear Greenie, Another thought...please make sure, this is the Jewish mom in me to be sure.that your heart is working well...sometimes we blame everything on our chemo's...if it's a new symptom, and you have been on a med for a long time, it could be something else that is causing  symptoms...are you short of breath when you walk up stairs, tire more easily when you take a long walk? Have you had a stress test anytime??? or recently???  Remember, the blow to you when you have the kind of loss you have sustained is felt not just emotionally, but in the body as well..it is not uncommon to have health issues post such a trauma I know you have an amazing spirit just worried about you.. Take good care! Beth -----Original Message- From: myvety2k via CMLHope To: cmlhope Sent: Wed, Dec 14, 2016 6:23 am Subject: [CMLHope] Blood work results Hi Group,  I have some good news and then some not so good news.  I received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts are NOT detected.  The bad news is that my creatinine level and gone up from 1.56 to 1.82.  I have always been on the high side going back to 1998.  It was 1.3 back then.  It was 1.58 in 6/01/2016. The other item is I'm retaining water in my feet and lower legs.  Had some Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose not use saw and when we go out for dinner I tell them NO SALT on anything but the sausage caught me by surprise. So Marty if you read this email me back or anyone and tell me what my options are because I am lost on what to do..  Have not heard from Doctor yet because she probably hasn't received a fax yet from Quest.  Otherwise I doing find.  Always get cramps that's been from day one when I started Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 and RBC is 3.61 and it's been low ever since i started Gleevec.  So other then that I want everyone to drive safe and have a Happy Holiday and a Happy New Year. David (greenie) Greenberg Sunny  Fort Myers, Florida  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@go
Re: Re: [CMLHope] Blood work results
Hi Beth,  Not a problem would be happy to get together.  Cell phone number 219-973-8717  Land line  239-561-0098. greenie In a message dated 12/14/2016 12:33:21 PM Eastern Standard Time, cmlhope@googlegroups.com writes:  What great memories Marty And thanks Greenie for letting me know you are O.K.,   I will be down by you Greenie next week...leaving this Saturday for the week. So, if you would like to get together..would love to meet you!email.bkbar...@aol.com. Take care, Beth -Original Message- From: Marty Gartenberg To: cmlhope Sent: Wed, Dec 14, 2016 10:46 am Subject: Re: [CMLHope] Blood work results Hi Beth, You being a Jewish mother I'll bet you were brought up by a Jewish mother who always used at least two Jewish staples. One being Schmaltz and the other graveness. In those times we used to live into our 40s or 50s then plots...   Although my father lived until 88 and enjoyed both of these Jewish staples. Oy Vei... When I was a kid it was Schmaltz on fresh hot rye bread with Caraway seeds imbedded in it. My father was a baker for more then fifty years. Brings back those taste buds, doesn't it... Not to mention those crispy critters, graveness 18's, Marty On Wed, Dec 14, 2016 at 11:20 AM, bkbarney via CMLHope wrote: Dear Greenie, Another thought...please make sure, this is the Jewish mom in me to be sure.that your heart is working well...sometimes we blame everything on our chemo's...if it's a new symptom, and you have been on a med for a long time, it could be something else that is causing  symptoms...are you short of breath when you walk up stairs, tire more easily when you take a long walk? Have you had a stress test anytime??? or recently??? Remember, the blow to you when you have the kind of loss you have sustained is felt not just emotionally, but in the body as well..it is not uncommon to have health issues post such a trauma I know you have an amazing spirit just worried about you.. Take good care! Beth -Original Message- From: myvety2k via CMLHope To: cmlhope Sent: Wed, Dec 14, 2016 6:23 am Subject: [CMLHope] Blood work results Hi Group,  I have some good news and then some not so good news. I received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts are NOT detected. The bad news is that my creatinine level and gone up from 1.56 to 1.82. I have always been on the high side going back to 1998. It was 1.3 back then. It was 1.58 in 6/01/2016. The other item is I'm retaining water in my feet and lower legs. Had some Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and calves blew up like the Pillsbury Doughboy so no salt for me. Grace dose not use saw and when we go out for dinner I tell them NO SALT on anything but the sausage caught me by surprise. So Marty if you read this email me back or anyone and tell me what my options are because I am lost on what to do..  Have not heard from Doctor yet because she probably hasn't received a fax yet from Quest. Otherwise I doing find. Always get cramps that's been from day one when I started Gleevec the first week in Jan 2000. WBC is 4.7 and platelet court is 202 and RBC is 3.61 and it's been low ever since i started Gleevec.  So other then that I want everyone to drive safe and have a Happy Holiday and a Happy New Year. David (greenie) Greenberg Sunny  Fort Myers, Florida  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com
Re: Re: [CMLHope] Blood work results
Marty,  My father's sister had a deli in Gary, IN. and we would go their for a real corned beef sandwich with real dill pickles, those were the days.  I haven't found a good deli yet down here in South Fort Myers. greenie In a message dated 12/14/2016 11:46:42 AM Eastern Standard Time, wa2...@gmail.com writes:  Hi Beth, You being a Jewish mother I'll bet you were brought up by a Jewish mother who always used at least two Jewish staples. One being Schmaltz and the other graveness. In those times we used to live into our 40s or 50s then plots...   Although my father lived until 88 and enjoyed both of these Jewish staples. Oy Vei... When I was a kid it was Schmaltz on fresh hot rye bread with Caraway seeds imbedded in it. My father was a baker for more then fifty years. Brings back those taste buds, doesn't it... Not to mention those crispy critters, graveness 18's, Marty On Wed, Dec 14, 2016 at 11:20 AM, bkbarney via CMLHope wrote: Dear Greenie, Another thought...please make sure, this is the Jewish mom in me to be sure.that your heart is working well...sometimes we blame everything on our chemo's...if it's a new symptom, and you have been on a med for a long time, it could be something else that is causing  symptoms...are you short of breath when you walk up stairs, tire more easily when you take a long walk? Have you had a stress test anytime??? or recently??? Remember, the blow to you when you have the kind of loss you have sustained is felt not just emotionally, but in the body as well..it is not uncommon to have health issues post such a trauma I know you have an amazing spirit just worried about you.. Take good care! Beth -Original Message- From: myvety2k via CMLHope To: cmlhope Sent: Wed, Dec 14, 2016 6:23 am Subject: [CMLHope] Blood work results Hi Group,  I have some good news and then some not so good news. I received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts are NOT detected. The bad news is that my creatinine level and gone up from 1.56 to 1.82. I have always been on the high side going back to 1998. It was 1.3 back then. It was 1.58 in 6/01/2016. The other item is I'm retaining water in my feet and lower legs. Had some Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and calves blew up like the Pillsbury Doughboy so no salt for me. Grace dose not use saw and when we go out for dinner I tell them NO SALT on anything but the sausage caught me by surprise. So Marty if you read this email me back or anyone and tell me what my options are because I am lost on what to do..  Have not heard from Doctor yet because she probably hasn't received a fax yet from Quest. Otherwise I doing find. Always get cramps that's been from day one when I started Gleevec the first week in Jan 2000. WBC is 4.7 and platelet court is 202 and RBC is 3.61 and it's been low ever since i started Gleevec.  So other then that I want everyone to drive safe and have a Happy Holiday and a Happy New Year. David (greenie) Greenberg Sunny  Fort Myers, Florida  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope
Re: Re: [CMLHope] Blood work results
Hi Beth, I will say that for being 77 1/2 years old my heart is in good shape.  Had all of the tests 6 months ago and doing find.  And being on Gleevec for almost 17 years I'm find. Thank you, greenie In a message dated 12/14/2016 11:20:41 AM Eastern Standard Time, cmlhope@googlegroups.com writes:  Dear Greenie, Another thought...please make sure, this is the Jewish mom in me to be sure.that your heart is working well...sometimes we blame everything on our chemo's...if it's a new symptom, and you have been on a med for a long time, it could be something else that is causing  symptoms...are you short of breath when you walk up stairs, tire more easily when you take a long walk? Have you had a stress test anytime??? or recently???  Remember, the blow to you when you have the kind of loss you have sustained is felt not just emotionally, but in the body as well..it is not uncommon to have health issues post such a trauma I know you have an amazing spirit just worried about you.. Take good care! Beth -Original Message- From: myvety2k via CMLHope To: cmlhope Sent: Wed, Dec 14, 2016 6:23 am Subject: [CMLHope] Blood work results Hi Group,  I have some good news and then some not so good news.  I received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts are NOT detected.  The bad news is that my creatinine level and gone up from 1.56 to 1.82.  I have always been on the high side going back to 1998.  It was 1.3 back then.  It was 1.58 in 6/01/2016. The other item is I'm retaining water in my feet and lower legs.  Had some Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose not use saw and when we go out for dinner I tell them NO SALT on anything but the sausage caught me by surprise. So Marty if you read this email me back or anyone and tell me what my options are because I am lost on what to do..  Have not heard from Doctor yet because she probably hasn't received a fax yet from Quest.  Otherwise I doing find.  Always get cramps that's been from day one when I started Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 and RBC is 3.61 and it's been low ever since i started Gleevec.  So other then that I want everyone to drive safe and have a Happy Holiday and a Happy New Year. David (greenie) Greenberg Sunny  Fort Myers, Florida  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: Re: Re: [CMLHope] Change on date
Hi Marty,  Sorry about the answer, no I am not a diabetic and I do drink decaffeinated coke.  But I will start drinking much more water.  Grace does give me cranberry juice Thank you, greenie In a message dated 12/14/2016 9:33:02 AM Eastern Standard Time, wa2...@gmail.com writes:  I already told you eat and drink well. A small cup of coffee or more, as long as it's decaffeinated will be fine. Coke should also be decaffeinated. You also didn't answer my question about if you are diabetic? If you are then try drinking Cranberry juice light. And you must finally decide that drinking water should be your routine from now on. If need be try Lasix every once in a while but you must ask your doctors about that first.  18's, Marty On Wed, Dec 14, 2016 at 8:39 AM, myvety2k via CMLHope wrote: Marty,  Do you have any suggestions that could help me lower my creatinine level. When we receive the message from Derek's wife that he had a heart attack and passed away 5 min. later Grace had a heart attack and had to rush her to the hospital. After Grace had her attack I started getting my regular heartbeat back that started back in my mid-forties so I made an appointment with my cardiologists he did the 21 day monitor, stress test and EKG and everything came back O.K. He told my no more caffeine, no coffee. I do drink one small cup in the morning and one Coca-cola non-caffeine free each day. I'm not big on drinking water which I know I should be or maybe I need to change my diet, etc. Hopefully you can give me some answers.  If anyone wants to hope in on this email be my guess. Thanks Marty, greenie In a message dated 12/14/2016 8:19:53 AM Eastern Standard Time, wa2...@gmail.com writes:  Hi Greenie, You don't ever have to apologize to me or anyone else for that matter. Sometimes I realize that I made a mistake and I guess that I would have to apologize at least twice a week maybe more, so I would be writing apologies at least twice a week and maybe more. You always take care of yourself. 18's, Marty  On Wed, Dec 14, 2016 at 7:26 AM, myvety2k via CMLHope wrote: I made and error on the date that I had my blood work, It was on 12-07-2016. Sorry about that. greenie  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because yo
Re: Re: [CMLHope] Blood work results
Marty you are a prince, thank you for your email I had eight or nine olives a few weeks ago and they must have had a ton of sodium in them and I paided the price so that's a no, no. Thanks for your fast reply, greenie In a message dated 12/14/2016 8:57:48 AM Eastern Standard Time, wa2...@gmail.com writes:   So, David (greenie) Greenberg, hey now that's what I call a catchy name... You say that your Creatnine has slightly gone up, well I think it has a lot to do with Gleevec and I think that you had better stop eating those Polish Sausages. Salt is a big part of retaining water, and as we get older so does our kidney function.  Believe me I know. When I was much younger I would think that I was invincible and twenty some odd years later Mother nature slapped me in my face and told me not to eat that crap that I was putting down my throat. But of course I didn't listen and ended up on dialysis and four years later with a kidney transplant.   But I notice that you have become accustomed to trying to stop salt in your diet, and that is a very big plus for yourself. Also if your not diabetic try drinking Cranberry juice, it really cleans your kidneys out. Now just to be honest with you, every once in a while I like to eat Polish Sausages, and I pay dearly the next day. When I was on a cruise about twenty years ago I would like to eat Creaser salad, only this time the waiter brought over a bowl of anchovies and I put them on that salad. The next day I suffered with my legs stuffed with water, and the very worst part of it was the gout attack. I had to do to the ships doctor and get a shot of Prednisone. NEVER AGAIN!!! So my dear friend stop harassing your kidneys, you will feel much better for it...  18's Marty     On Wed, Dec 14, 2016 at 7:23 AM, myvety2k via CMLHope wrote: Hi Group,  I have some good news and then some not so good news. I received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts are NOT detected. The bad news is that my creatinine level and gone up from 1.56 to 1.82. I have always been on the high side going back to 1998. It was 1.3 back then. It was 1.58 in 6/01/2016. The other item is I'm retaining water in my feet and lower legs. Had some Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and calves blew up like the Pillsbury Doughboy so no salt for me. Grace dose not use saw and when we go out for dinner I tell them NO SALT on anything but the sausage caught me by surprise. So Marty if you read this email me back or anyone and tell me what my options are because I am lost on what to do..  Have not heard from Doctor yet because she probably hasn't received a fax yet from Quest. Otherwise I doing find. Always get cramps that's been from day one when I started Gleevec the first week in Jan 2000. WBC is 4.7 and platelet court is 202 and RBC is 3.61 and it's been low ever since i started Gleevec.  So other then that I want everyone to drive safe and have a Happy Holiday and a Happy New Year. David (greenie) Greenberg Sunny  Fort Myers, Florida  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To
Re: Re: [CMLHope] Change on date
Marty,  Do you have any suggestions that could help me lower my creatinine level.  When we receive the message from Derek's wife that he had a heart attack and passed away 5 min. later Grace had a heart attack and had to rush her to the hospital.  After Grace had her attack I started getting my regular heartbeat back that started back in my mid-forties so I made an appointment with my cardiologists he did the 21 day monitor, stress test and EKG and everything came back O.K. He told my no more caffeine, no coffee. I do drink one small cup in the morning and one Coca-cola non-caffeine free each day.  I'm not big on drinking water which I know I should be or maybe I need to change my diet, etc.  Hopefully you can give me some answers.  If anyone wants to hope in on this email be my guess. Thanks Marty, greenie In a message dated 12/14/2016 8:19:53 AM Eastern Standard Time, wa2...@gmail.com writes:  Hi Greenie, You don't ever have to apologize to me or anyone else for that matter. Sometimes I realize that I made a mistake and I guess that I would have to apologize at least twice a week maybe more, so I would be writing apologies at least twice a week and maybe more. You always take care of yourself. 18's, Marty  On Wed, Dec 14, 2016 at 7:26 AM, myvety2k via CMLHope wrote: I made and error on the date that I had my blood work, It was on 12-07-2016. Sorry about that. greenie  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.  -- -- [CMLHope] A support group of http://cmlhope.com -  You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Change on date
I made and error on the date that I had my blood work, It was on 12-07-2016.  Sorry about that. greenie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Blood work results
Hi Group,  I have some good news and then some not so good news.  I received my blood work back from 10-07-2016 and my BCR-ABL1 fusion transcripts are NOT detected.  The bad news is that my creatinine level and gone up from 1.56 to 1.82.  I have always been on the high side going back to 1998.  It was 1.3 back then.  It was 1.58 in 6/01/2016. The other item is I'm retaining water in my feet and lower legs.  Had some Polish sausage on Friday night and within 2 to 3 hours my feet, ankles and calves blew up like the Pillsbury Doughboy so no salt for me.  Grace dose not use saw and when we go out for dinner I tell them NO SALT on anything but the sausage caught me by surprise. So Marty if you read this email me back or anyone and tell me what my options are because I am lost on what to do..  Have not heard from Doctor yet because she probably hasn't received a fax yet from Quest.  Otherwise I doing find.  Always get cramps that's been from day one when I started Gleevec the first week in Jan 2000.  WBC is 4.7 and platelet court is 202 and RBC is 3.61 and it's been low ever since i started Gleevec.  So other then that I want everyone to drive safe and have a Happy Holiday and a Happy New Year. David (greenie) Greenberg Sunny  Fort Myers, Florida -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Got a brand new Hip!
Thank you Marty In a message dated 12/5/2016 3:54:17 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi David (greenie), I am so sorry to hear about your son passing. My condolences to you and your family 18's Marty On Mon, Dec 5, 2016 at 7:27 AM, Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Dear Susie, I just found out about your Mom and I so sorry here have to read about her passing.. I know I lost my son Derek this June 13th from a heart attack and only 31 years old. Their's not a day that goes by that I don't think of him.. I know I will never get over it, so you have my blessing. David (greenie) Greenberg In a message dated 12/4/2016 9:52:18 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Dear Susie-Q, So much has gone on with you! Nothing can replace your mom, and I'm so sorry for your loss. I am just reading this even though you posted a week ago. I get at least 200 emails a day so sometimes they don't get read quickly. But I always keep my cml group's emails for later. As you know I believe in the power of prayer, so will lift you up to the Father for complete healing in both hips. My husband has the same thing but he is using a natural product from Youngevity to rebuild his cartilage and it seems to be working. He has bad days, but is avoiding surgery with it. I hope your other hip doesn't give you any trouble - EVER 18's and hugs,. Susan Z -Original Message- From: 'Marcie Goodman' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Sun, Nov 27, 2016 9:30 pm Subject: Re: [CMLHope] Got a brand new Hip! Suzie, please accept my condolences on the loss of your beloved mother. I'm so sorry but I'm sure that your wonderful memories will be a comfort and blessing to you always. Marcie Sent from my iPhone On Nov 27, 2016, at 8:17 PM, Suzieq <_sheila.a.watson@gmail.com_ (mailto:sheila.a.wat...@gmail.com) > wrote: Hello to my CML Survivors! Hope everyone had a very nice Thanksgiving. I know it's been a while since I posted anything, but I haven't been on line very much for a few weeks. I come today to let y'all know that I had to have a total hip replacement of my left hip which was done on October 20th and was in the hospital (St.Louis) for 5 days till they moved me to a hospital closer to our home for almost 2 weeks of Rehab. I have one more week of restrictions left and then I'm home-free! Yea!!! This has been about the worst (I should say the longest) recovery from surgery that I have ever faced. I am not a patient person, but I have obeyed & not being doing the things I was told not to do. The reason for the replacement, it was bone on bone (the two weeks leading up to surgery were the most painful I have ever experienced). I had a major case of Arthritis according to the Orth. Surgeon of which he cleaned out as best he could while in there. He did say that I would probably have to have the other one replaced later on down the road (of which I thought to myself, it will have to be a long time down the road as far as I am concerned, lol), but it's not bothering me for now so we will leave it alone. He was very surprised that I have such a case of Osteo Arthritis as my age (63). Seems the left side has been the worse. Not only was it in the hip, but it's in the left Sacroiliac Joint just as bad. The right side has a bit, just not as bad. He made me go off the Gleevec for 30 days starting 7 days prior to the operation. That long wasn't mentioned in the beginning, I thought it was going to only be 15 days, but he said to stay off of it for the full 30 days. I am hoping all will be well when I see my Hem/Onc on the 19th.sure hate to lose my "non-detected", but even so, shouldn't take too long before it's back to 0. Oh, and one more thing..I had my surgery on Thursday and my Mom passed away Saturday night at 11:15 (Florida time). Needless to say, no way was I able to travel the 1025 miles (one way) to be with my oldest brother and for the funeral. I still grieve for her. I am now very thankful that I had last spring with her when I went down to care for her once she came out of the hospital. Got to spend 2 & 1/2 months as her total caregiver until we placed her back in the rehab/residential home where she wanted to go. She knew I was going in for surgery and she knew it went well. I told my husband I feel she planned her death perfectly cause she knew I would put off the surgery no matter how bad my pain was and come down th
Re: [CMLHope] Got a brand new Hip!
Dear Susie, I just found out about your Mom and I so sorry here have to read about her passing.. I know I lost my son Derek this June 13th from a heart attack and only 31 years old. Their's not a day that goes by that I don't think of him.. I know I will never get over it, so you have my blessing. David (greenie) Greenberg In a message dated 12/4/2016 9:52:18 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Dear Susie-Q, So much has gone on with you! Nothing can replace your mom, and I'm so sorry for your loss. I am just reading this even though you posted a week ago. I get at least 200 emails a day so sometimes they don't get read quickly. But I always keep my cml group's emails for later. As you know I believe in the power of prayer, so will lift you up to the Father for complete healing in both hips. My husband has the same thing but he is using a natural product from Youngevity to rebuild his cartilage and it seems to be working. He has bad days, but is avoiding surgery with it. I hope your other hip doesn't give you any trouble - EVER 18's and hugs,. Susan Z -Original Message- From: 'Marcie Goodman' via CMLHope To: cmlhope Sent: Sun, Nov 27, 2016 9:30 pm Subject: Re: [CMLHope] Got a brand new Hip! Suzie, please accept my condolences on the loss of your beloved mother. I'm so sorry but I'm sure that your wonderful memories will be a comfort and blessing to you always. Marcie Sent from my iPhone On Nov 27, 2016, at 8:17 PM, Suzieq <_sheila.a.watson@gmail.com_ (mailto:sheila.a.wat...@gmail.com) > wrote: Hello to my CML Survivors! Hope everyone had a very nice Thanksgiving. I know it's been a while since I posted anything, but I haven't been on line very much for a few weeks. I come today to let y'all know that I had to have a total hip replacement of my left hip which was done on October 20th and was in the hospital (St.Louis) for 5 days till they moved me to a hospital closer to our home for almost 2 weeks of Rehab. I have one more week of restrictions left and then I'm home-free! Yea!!! This has been about the worst (I should say the longest) recovery from surgery that I have ever faced. I am not a patient person, but I have obeyed & not being doing the things I was told not to do. The reason for the replacement, it was bone on bone (the two weeks leading up to surgery were the most painful I have ever experienced). I had a major case of Arthritis according to the Orth. Surgeon of which he cleaned out as best he could while in there. He did say that I would probably have to have the other one replaced later on down the road (of which I thought to myself, it will have to be a long time down the road as far as I am concerned, lol), but it's not bothering me for now so we will leave it alone. He was very surprised that I have such a case of Osteo Arthritis as my age (63). Seems the left side has been the worse. Not only was it in the hip, but it's in the left Sacroiliac Joint just as bad. The right side has a bit, just not as bad. He made me go off the Gleevec for 30 days starting 7 days prior to the operation. That long wasn't mentioned in the beginning, I thought it was going to only be 15 days, but he said to stay off of it for the full 30 days. I am hoping all will be well when I see my Hem/Onc on the 19th.sure hate to lose my "non-detected", but even so, shouldn't take too long before it's back to 0. Oh, and one more thing..I had my surgery on Thursday and my Mom passed away Saturday night at 11:15 (Florida time). Needless to say, no way was I able to travel the 1025 miles (one way) to be with my oldest brother and for the funeral. I still grieve for her. I am now very thankful that I had last spring with her when I went down to care for her once she came out of the hospital. Got to spend 2 & 1/2 months as her total caregiver until we placed her back in the rehab/residential home where she wanted to go. She knew I was going in for surgery and she knew it went well. I told my husband I feel she planned her death perfectly cause she knew I would put off the surgery no matter how bad my pain was and come down there to be with her. She never wanted to be a "burden" to us and she always was worrying about me with the CML even though I told her that I was just fine, that it was not a problem, that the Gleevec was doing it's job and all was well. Since I wasn't able to be there, I told my brother that maybe we could maybe have a special Memorial Service for her back in the hometown in Kentucky where most of the family still lives later sometime after the 1st of the year. Everyone seemed to be okay with that. Okay, I hope you all have a very Merry Christmas & the Happiest New Year! Suzieq -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic
Wish I could say the same but, the throat that's a bummer. I know the feeling. greenie In a message dated 10/20/2016 10:40:26 A.M. Eastern Daylight Time, esd...@rogers.com writes: I had wicked cramps from Gleevec.15 years ago. A heavy yawn once got me cramps in my throata very unpleasant feeling! Over the years the cramps all over my body diminished and disappeared. HURRAY! From: Myvety2k via CMLHope To: cmlhope@googlegroups.com Sent: Thursday, October 20, 2016 8:38 AM Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic Gleevec gave me and still dose give me cramps, I use a bar of Dial Gold soap and put it down along my legs. It dose help. greenie In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get up in the middle if night to walk out leg cramps. I too was put on Sprycel. And yes I would look in mirror and not recognize myself. Just keep on fighting warriors. Blessings My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 30, 2016, at 4:58 PM, lrc lrc <_kneesrbad2@gmail.com_ (mailto:kneesrb...@gmail.com) > wrote: Gleevec has a big history of muscle cramps, especially in the hands and the legs. Gleevec also has side affects that include skin that is thin, white rings around the eyes, water retention around the eyes to name just a few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues disappeared. It was a wonderful change. I suggest you review it with your oncologist. I am under care of the University of Michigan Cancer Center, Dr. Talpaz. On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <_ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) > wrote: We're happy to hear you're on the mend, Marty. It's been good to read other persons updates in their lives of CML and family changes, etc. Sending sympathy to those whose family members have died within the past few months. It's been so tough on each CMLer as we age or our family members are diagnosed with other types of cancers. Nick's got a Zauve's O Club number, but it's been a while since we've posted it. Does anyone have a list? Wondered if any other persons with CML on Gleevec are experiencing multiple muscle cramps? Or have large muscle wasting? Thanks, Elizabeth Woods Nick's wife On Friday, September 30, 2016 5:18 AM, "_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) " <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview ) _Topic digest _ () _View all topics_ (https://groups.google.com/forum/?utm_so urce=digest&utm_medium=email#!forum/cmlhope/topics) * _Angie, your card_ (https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0) - 2 Updates () _Angie, your card _ (http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest&utm_medium=email) ANGELYN ESDERS <_esders@rogers.com_ (mailto:esd...@rogers.com) >: Sep 30 12:20AM You are most welcome.I fractured my 9th vertebra a month ago. I have had to give up almost everything I do. I understand pain.May we BOTH be dancing on tabletops by this time next year!Angie From: Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) > To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Thursday, September 29, 2016 12:05 AM Subject: [CMLHope] Angie, your card Hi Angie, you were so thoughtful to send me a get well card, and I wanted to thank you for your kindness. 18's, Marty-- -- [CMLHope] A support group of http://cmlhope.com/ -- --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@ googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/ group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CM
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic
Gleevec gave me and still dose give me cramps, I use a bar of Dial Gold soap and put it down along my legs. It dose help. greenie In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get up in the middle if night to walk out leg cramps. I too was put on Sprycel. And yes I would look in mirror and not recognize myself. Just keep on fighting warriors. Blessings My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 30, 2016, at 4:58 PM, lrc lrc <_kneesrbad2@gmail.com_ (mailto:kneesrb...@gmail.com) > wrote: Gleevec has a big history of muscle cramps, especially in the hands and the legs. Gleevec also has side affects that include skin that is thin, white rings around the eyes, water retention around the eyes to name just a few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues disappeared. It was a wonderful change. I suggest you review it with your oncologist. I am under care of the University of Michigan Cancer Center, Dr. Talpaz. On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <_ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) > wrote: We're happy to hear you're on the mend, Marty. It's been good to read other persons updates in their lives of CML and family changes, etc. Sending sympathy to those whose family members have died within the past few months. It's been so tough on each CMLer as we age or our family members are diagnosed with other types of cancers. Nick's got a Zauve's O Club number, but it's been a while since we've posted it. Does anyone have a list? Wondered if any other persons with CML on Gleevec are experiencing multiple muscle cramps? Or have large muscle wasting? Thanks, Elizabeth Woods Nick's wife On Friday, September 30, 2016 5:18 AM, "_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) " <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: _cmlhope@googlegroups.com_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview ) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics) * _Angie, your card_ (https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0) - 2 Updates _Angie, your card _ (http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest&utm_medium=email) ANGELYN ESDERS <_esders@rogers.com_ (mailto:esd...@rogers.com) >: Sep 30 12:20AM You are most welcome.I fractured my 9th vertebra a month ago. I have had to give up almost everything I do. I understand pain.May we BOTH be dancing on tabletops by this time next year!Angie From: Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) > To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Thursday, September 29, 2016 12:05 AM Subject: [CMLHope] Angie, your card Hi Angie, you were so thoughtful to send me a get well card, and I wanted to thank you for your kindness. 18's, Marty-- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@CMLHope-unsubscr_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@cmlhope+unsubscr_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >: Sep 29 08:45PM -0400 Angie, There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you GOD for what you have done for me. Also I am not looking to dance on any tabletops because both of us would probably fall off and break something. Lets just both of us dance on the floor together. Oh Angie don't worry we will get there. 18's Marty _Back to top_ (https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#diges
Re: [CMLHope] All zero club members
I think my number is #48 I could be wrong. Dave (Greenie) Greenberg In a message dated 9/30/2016 8:05:06 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: The girls on Facebook are trying to fill in each zero club number. Thanks for all who send theirs in. If you are not on Facebook list it here and I will give it to Barbara. Thanks everyone. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 28, 2016, at 9:11 PM, sherri swanson <_swanson.sherri460@gmail.com_ (mailto:swanson.sherri...@gmail.com) > wrote: Hi Jeanie, My number is 1023 and I got it on 12/07/2006. Thanks On Wed, Sep 28, 2016 at 6:06 PM, Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) > wrote: Hi Sherri, Just to let you know my Zavies zero club number is #1 and face book wasn't even around then, so I also never got on face book. Join our club🌷 On Wed, Sep 28, 2016 at 1:44 PM, sherri swanson <_swanson.sherri460@gmail.com_ (mailto:swanson.sherri...@gmail.com) > wrote: To bad I'm not on facebook. I have a Zavie number. On Wed, Sep 28, 2016 at 8:19 AM, 'Jeanie' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Thanks. I'll let her know. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Sep 28, 2016, at 8:41 AM, ANGELYN ESDERS <_esders@rogers.com_ (mailto:esd...@rogers.com) > wrote: I am # 76 From: 'Jeanie' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: 'Jeanie' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Wednesday, September 28, 2016 7:30 AM Subject: [CMLHope] All zero club members Hi Florida - Sue Hurt If you haven't signed in yet and have your zero zavie club number do so as soon as possible. facebook page to reconnect to those who were Zavie Millers Zero Club Members •Zavie - CML Zero Club Members - Where are You ? Facebook Forum. I require a little about yourself with CML, I also require your Zavie Zero Club number. The Forum is vetting expressions of interest of security so that conversations can remain private This Facebook Forum is a closed site for that reason The Forum is only for those who have received a Zero Club Number _https://www.facebook.com/grouphttps://www.faceboo_ (https://www.facebook.com/groups/1673390782910601/) Looking forward to hearing from you - Administrator [Sue Hurt] My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegrouCMLHop_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+_unsubscribe@googlegrouunsubsc_ (mailto:unsubscr...@googlegroups.com.) For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegrouCMLHop_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroucmlhop_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/)
Re: [CMLHope] My sister, me and my older brother
Marty, glad you back, I think you play the lottery. greenie In a message dated 9/25/2016 10:17:59 A.M. Eastern Daylight Time, wa2...@gmail.com writes: I was buying a new car and signed all of the paperwork, went outside to check everything and didn't see the cement stations in front of the car, tripped on it. Knocked my out but I felt the terrible pain. EMS came and put me in a neck collar got me to the hospital and I was in a coma for a long time. Finally woke up and the operation was finished. Two large bolts two inches long were placed near my spinal column where the vertebra were completely cracked in half to try to mend them together. In spite of what happened to me the surgeon told me when I got up I almost died but for less then a millimeter my spinal would have been severed leaving me paralyzed from the head down. I was on the operating table and he didn't at first know what would happen to me. He had to send someone out looking for those special bolts and was able to get them from a special surgical supply. Very lucky there were only two of them left and would take a few days to get more . After he showed me CT scans of them drilled into the bones in my neck, and he had called on some of his associates because he was very proud of his work. The next time I visit him a said that he would try to get me copies. When and if I do get them I will copy and paste them to this site. Oh by the way I never bought the new car, at least not yet. GOD was guiding his hands, how lucky am I? 18's Marty On Sun, Sep 25, 2016 at 9:17 AM, 'Icandoallttc' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Did you fall Marty? On Sep 24, 2016, at 12:30 PM, ANGELYN ESDERS <_esders@rogers.com_ (mailto:esd...@rogers.com) > wrote: LOVE the picture, and many thanks for sharing. You look like a beautiful, joyful group. Angie From: Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) > To: Sent: Saturday, September 24, 2016 11:06 AM Subject: [CMLHope] My sister, me and my older brother I am starting to get back to my self after breaking my neck and arm and elbow. Somehow all of you seem to be always there to be helping throughout my life, and I will not ever forget every single one of you precious people. I hope that this picture comes through. It is more then 66 years old. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@CMLHope-unsubscr_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@cmlhope+unsubscr_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@CMLHope-unsubscr_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@cmlhope+unsubscr_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@CMLHope-unsubscr_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You re
Re: [CMLHope] Just checking in
Marty, Marty, Marty, I'm so happy your back. I sure am thinking all good thoughts for you. greenie In a message dated 9/10/2016 2:47:40 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Beth, sorry to hear about Mr.Hands. They are so precious and when pass on it feels like a knife cut your heart open. This took me almost one hour to write because as you probably know I fell and broke my neck and trying to get back to myself. 1'8s Marty On Sat, Sep 10, 2016 at 12:37 PM, bkbarney via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Dear Norm, \Long time know hear from you!!! It was wonderful to catch up and be reminded of your history...I hope that you can retire well when the time comes. Good news about your son...I remember you sharing about Mr. Hansso sadMr Buster sounds like a stitch..hopefully he both trainable and lovable. What an amazing thing that you have been on Tasigna for 12 years...I know you have had your ups and downs...but it is still inspiring to hearso thanks... I needed the inspiration today..and Marty...we are all here..cheering you on! for everyone out there today who might read this...all the usual suspects, as well as those who read but don't post...thanks for being here... my news is that I got bitten by a poisonous spider in the leg... blew up...huge red swollen..then antibiotics for the infection which I had a bad arthritic reaction to..I think personally it was an interaction with sprycel...but anyway, I have so much pain the last three days in my knees and legs.. I can hardly walk...so, off the antibiotic today..and hopefully the infection will get better with time...or they will put me on a new one to try...always something...but I still am blessed..and happy for my sprycel..keeps me here...enjoying the sunsets..and the coming fall...and my 17 year old pouch.. Graciejust adore here to pieces... so understand Norm, your comments about Hans. Love to all, 18's Beth -Original Message- From: Norm <_norm5674@hotmail.com_ (mailto:norm5...@hotmail.com) > To: CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Sat, Sep 10, 2016 9:14 am Subject: [CMLHope] Just checking in Just wanted to check in with the group. I miss Millie too. We both owned dachshunds. We lost Mr. Hans to lymphoma earlier this year which was one of the hardest things I have ever had to do. It was the first time in my life that I had the responsibility for ending his suffering. The vet was just awesome with his gentleness, understanding and care. Mr. Hans was 12. It was harder than making funeral arrangements for my mother, she was still living at the time which makes it easier I suppose. My mother had a great sense of humor. When we returned to her hospice care room she woke up and remarked that we were not gone long. She had a great laugh when I told her that all they wanted to know was paper or plastic. We got a new dachshund from a rescue organization. His name is Buster and he seems to like reading. He has devoured about 5 books from our coffee table and tears through the pages. I really liked some of those books and he thought they were quite tasty. Bad Buster. For those that are new or do not know my history: I was dropped on my head when I was a baby and cracked my skull. When I was in the fourth grade, I rode my bicycle into an intersection and was hit by a speeding car driven by a 14 year old girl that was being chased by her brother. She hit me then a tree. The tree died. I t was a teenager during the late 60s and early 70s. I lost a kidney to cancer in 99. Diagnosed with CML on April fools day 2003 with a WBC of 250,000. Started Gleevec and chemo with apherisis. Remission until the fall of 2004. Entered a phase 1 clinical trial for AMN107 which became Tasigna in early December. My blood counts bottomed out and the drug was withheld for about a month. January of 2005 I entered the blast phase and the drug company allowed the doctors at MDACC to restart the drug. Had to have blood and platelets infused a number of times before my counts started coming back up. While in the hospital I determined that one eye was not as bright as the other and found out I had cataracts which turned out to not be the cause but it was an issue with my retinas. I saw 5 different eye specialist and the best they could come up with was a leukemic cell intrusion into my eyes. I had radiation treatment on my eyes. It turned out it was not a leukemic cells issue but wet macular degeneration. Started Avastin shots in my right eye and by that time had lost my central vision in my left eye due to the scarring from the leakage. Vision is now fixed with contact lens correction of 20/400 left and 20/200 right. I still work, but do not tell anyone I am still driving (much better than those idiots on t
Re: [CMLHope] Re: About Marty
Thank you so much for your comment on Derek, and to the rest of the group. Still hard to believe he's gone. greenie In a message dated 9/8/2016 12:11:21 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Ditto from me. Thank you so much for checking on Marty. Glad to know his story..and that his amazing spirit is still intact to inspire all of us. HOPe everyoneis doing OK. Greenie , thinking of you and your wife as you live through the loss of your son. While there are no words adequate to express my sadness for you, I want you to know I and all of us here, continue to think of you each day. Take good care. Love, Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Thu, Sep 8, 2016 9:38 am Subject: Re: [CMLHope] Re: About Marty Thank you so much for checking out how Marty is doing for all of us. greenie In a message dated 9/8/2016 6:35:42 A.M. Eastern Daylight Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: > On Sep 7, 2016, at 6:04 PM, LadyRx <_LadyRx@aol.com_ (mailto:lad...@aol.com) > wrote: > > Because everyone has been worried about our suddenly absent friend, Marty, I decided to look him up and call. Our dear friend is recovering from a fall in which he broke his neck in three places and broke some bones in his shoulder. Due to complications from surgery, he developed pneumonia and was in the hospital. After recuperating from that and being in a rehab facility, he is at home now. He seems to have a very positive attitude. What an amazingly kind, warm, intelligent man he is! He sends warmest regards to all and looks forward to reconnecting with everyone when he's able to do so. > 18's for our friend, Marty! -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to CMLHope-_unsubscribe@googlegroups.com_ (mailto:unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to CMLHope-_unsubscribe@googlegroups.com_ (mailto:unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: About Marty
Thank you so much for checking out how Marty is doing for all of us. greenie In a message dated 9/8/2016 6:35:42 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: > On Sep 7, 2016, at 6:04 PM, LadyRx wrote: > > Because everyone has been worried about our suddenly absent friend, Marty, I decided to look him up and call. Our dear friend is recovering from a fall in which he broke his neck in three places and broke some bones in his shoulder. Due to complications from surgery, he developed pneumonia and was in the hospital. After recuperating from that and being in a rehab facility, he is at home now. He seems to have a very positive attitude. What an amazingly kind, warm, intelligent man he is! He sends warmest regards to all and looks forward to reconnecting with everyone when he's able to do so. > 18's for our friend, Marty! -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Haven't gotten any e-mail notifications
I'm doing find thanks for checking. greenie In a message dated 9/5/2016 7:06:24 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: I haven't received any notifications in my e-mail for the past 3 weeks or so. Just checking to see if the group is still active. If so, please leave a comment. Thank you! -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: Ferone treatment
Hi group, I was on Interferon for 3 months and by the end of that time I was ready to jump out of and airplane without a parachute that's how bad it was. In stand of water boarding give them a few weeks of interferon they will be glad to them anyone anything anyone want's to know. greenie In a message dated 8/12/2016 3:58:38 P.M. Eastern Daylight Time, perkuss...@msn.com writes: Sorry, It is interferone treatments. My onc is concerned the other treatments will also cause fluid retention. He said the interferone treatment has caused CML to go into remission in some cases. I would rather try something with less side effects. I did not get along well with Gleevec and was on dasatinib (Sprycel) for 8 years until I had the heart and lung problem. It had very little side effects until recently. On Thursday, August 11, 2016 at 11:49:42 AM UTC-5, perk wrote: I was placed on Sprycel in 2008. While this treatment contained my WBC, it caused fluid retention around my heart and lungs. My onc was to try a ferone treatment. Has anyone had any experience with this form of treatment. It is an injection and he said common side effects were flu-like symptoms. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Haven't heard from John either.
Thank you Susan for your post I will let Grace know and will keep in touch with you. greenie In a message dated 8/6/2016 9:03:18 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Greenie, So good to hear from you. You've been a busy man!!! I sure would have liked to see you when you came up to nwest indiana. Tell Grace hello. Next time dont forget to let me know. Again, so very sorry for the loss of your son. I pray you are having more good days than bad after this terrible loss. God bless. Hugs and 18's, Susan Z Sent from my Sprint phone -- Original message-- From: Myvety2k via CMLHope Date: Sat, Aug 6, 2016 8:30 AM To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) ; Subject:Re: [CMLHope] Haven't heard from John either. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Haven't heard from John either.
Thanks Jeanie. greenie In a message dated 8/7/2016 7:12:40 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Greenie I lost my young grandson,19, in a gun shot accident a couple years ago so I feel your loss. He was my baby and we were so close. But as you say life goes on and live on the good memories. He was a chef and would cook me meals so delicious. You will never forget the day you got that phone call. It devastated my daughter and to this day she can't talk about it. Take care of yourself and Grace. Life hands us both good and bad. I like to read the book, Job in the Old Testament when I get down. See if it will help you. Blessings Jeanie 💋♥️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 6, 2016, at 6:54 PM, Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Yes, your right about Marty, I'm hoping all is well with him it's not like him to not reply to all of us. I'll keep thinking about him and he will be O. K... greenie In a message dated 8/6/2016 6:52:31 P.M. Eastern Daylight Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Hi Jeanie, nice to hear from you. Yes, it's hard thinking about Derek, still can't believe he's gone. But, life goes on. You and all of my CML friends take care. greenie In a message dated 8/6/2016 6:15:28 P.M. Eastern Daylight Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: So sorry for your loss. I have 2 sons and know the pain you both are having. So glad to hear from you. Something's wrong with Marty but don't know what. And John hasn't checked in for a long time. Just keep living each day and enjoy each other. My hubby passed 18 years ago. I always thought we would spend our old age together. So love each other and show it daily. Love Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 6, 2016, at 8:30 AM, Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Hi Group, After my son Derek passed away on June 13th and when we found out Grace had a heart attack within 5 min and had to get her over to the Hosp. and was their for 4 days she is doing O. K. But I had to fly up to Chicago by myself to go to the Funeral. Then two weeks later when Grace could travel we flew up to Chicago again for 4 days. Two weeks later we had to go back for a week and on the return flight we had to sit at the airport for 5 hours and the trip was 2 1/2 hours. The next day I had to see my Urologist for my 6 month visit and found out a few days later that my PSA was way over the 4.4 which is high. So I waited for a week and when back for some blood work and the results came back 2.9, that's good. Found out that sitting on your rear end for that long a time can cause the counts to go up so the bottom line is Men don't sit on your rear in before going in to have your PSA checked. On wise everything else is O. K. So now Grace and I drove up to Northwest Indiana to help her son move into a new house that needs some work and the was a 2 day drive. Won't do that again. To much travel, every city had road work better to fly and rent a car. So everyone take care. greenie In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Hi all Not well at all today. Just hanging in there. Does anyone know John who was on Ponatinib like me?? Haven't heard from him. Pain in side much worse. I was on oxycodone but took myself off due to terrible side effect. However it did help the pain. Taking my morning walk. Making it from chair to chair hehe. Let's hear from everyone today My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Beth, Susan Z. and Jeanie: Thank you for your good wishes. I do follow you all but I have just not posted. Hugs, Susan On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth wrote: Susan, I am so deeply happy for you! thanks for sharing such good news. Love, Beth -Original Message- From: 'Susan Rosenthal' via CMLHope <_cml...@googlegroups.com_
Re: [CMLHope] Haven't heard from John either.
Yes, your right about Marty, I'm hoping all is well with him it's not like him to not reply to all of us. I'll keep thinking about him and he will be O. K... greenie In a message dated 8/6/2016 6:52:31 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Jeanie, nice to hear from you. Yes, it's hard thinking about Derek, still can't believe he's gone. But, life goes on. You and all of my CML friends take care. greenie In a message dated 8/6/2016 6:15:28 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: So sorry for your loss. I have 2 sons and know the pain you both are having. So glad to hear from you. Something's wrong with Marty but don't know what. And John hasn't checked in for a long time. Just keep living each day and enjoy each other. My hubby passed 18 years ago. I always thought we would spend our old age together. So love each other and show it daily. Love Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 6, 2016, at 8:30 AM, Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Hi Group, After my son Derek passed away on June 13th and when we found out Grace had a heart attack within 5 min and had to get her over to the Hosp. and was their for 4 days she is doing O. K. But I had to fly up to Chicago by myself to go to the Funeral. Then two weeks later when Grace could travel we flew up to Chicago again for 4 days. Two weeks later we had to go back for a week and on the return flight we had to sit at the airport for 5 hours and the trip was 2 1/2 hours. The next day I had to see my Urologist for my 6 month visit and found out a few days later that my PSA was way over the 4.4 which is high. So I waited for a week and when back for some blood work and the results came back 2.9, that's good. Found out that sitting on your rear end for that long a time can cause the counts to go up so the bottom line is Men don't sit on your rear in before going in to have your PSA checked. On wise everything else is O. K. So now Grace and I drove up to Northwest Indiana to help her son move into a new house that needs some work and the was a 2 day drive. Won't do that again. To much travel, every city had road work better to fly and rent a car. So everyone take care. greenie In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Hi all Not well at all today. Just hanging in there. Does anyone know John who was on Ponatinib like me??Haven't heard from him. Pain in side much worse. I was on oxycodone but took myself off due to terrible side effect. However it did help the pain. Taking my morning walk. Making it from chair to chair hehe. Let's hear from everyone today My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Beth, Susan Z. and Jeanie: Thank you for your good wishes. I do follow you all but I have just not posted. Hugs, Susan On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth wrote: Susan, I am so deeply happy for you! thanks for sharing such good news. Love, Beth -Original Message- From: 'Susan Rosenthal' via CMLHope <_cml...@googlegroups.com_ (javascript:) > To: cmlhope <_cml...@googlegroups.com_ (javascript:) > Sent: Wed, Aug 3, 2016 7:54 pm Subject: [CMLHope] How Am I Doing? Jeanie and others: I am doing great...I hope I just sent in my 10 month (since October 2, 2015) TKI-free 6 week PCR test. My fingers are crossed. When we don’t hear from Marty, we know that something is going on. Hugs, Susan Rosenthal -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CML...@googlegroups.com_ (javascript:) To unsubscribe from this group, send email to CMLHope-_unsub...@unsub...@go_ (javascript:) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email t
Re: [CMLHope] Haven't heard from John either.
Hi Jeanie, nice to hear from you. Yes, it's hard thinking about Derek, still can't believe he's gone. But, life goes on. You and all of my CML friends take care. greenie In a message dated 8/6/2016 6:15:28 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: So sorry for your loss. I have 2 sons and know the pain you both are having. So glad to hear from you. Something's wrong with Marty but don't know what. And John hasn't checked in for a long time. Just keep living each day and enjoy each other. My hubby passed 18 years ago. I always thought we would spend our old age together. So love each other and show it daily. Love Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 6, 2016, at 8:30 AM, Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Hi Group, After my son Derek passed away on June 13th and when we found out Grace had a heart attack within 5 min and had to get her over to the Hosp. and was their for 4 days she is doing O. K. But I had to fly up to Chicago by myself to go to the Funeral. Then two weeks later when Grace could travel we flew up to Chicago again for 4 days. Two weeks later we had to go back for a week and on the return flight we had to sit at the airport for 5 hours and the trip was 2 1/2 hours. The next day I had to see my Urologist for my 6 month visit and found out a few days later that my PSA was way over the 4.4 which is high. So I waited for a week and when back for some blood work and the results came back 2.9, that's good. Found out that sitting on your rear end for that long a time can cause the counts to go up so the bottom line is Men don't sit on your rear in before going in to have your PSA checked. On wise everything else is O. K. So now Grace and I drove up to Northwest Indiana to help her son move into a new house that needs some work and the was a 2 day drive. Won't do that again. To much travel, every city had road work better to fly and rent a car. So everyone take care. greenie In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Hi all Not well at all today. Just hanging in there. Does anyone know John who was on Ponatinib like me??Haven't heard from him. Pain in side much worse. I was on oxycodone but took myself off due to terrible side effect. However it did help the pain. Taking my morning walk. Making it from chair to chair hehe. Let's hear from everyone today My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Beth, Susan Z. and Jeanie: Thank you for your good wishes. I do follow you all but I have just not posted. Hugs, Susan On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth wrote: Susan, I am so deeply happy for you! thanks for sharing such good news. Love, Beth -Original Message- From: 'Susan Rosenthal' via CMLHope <_cml...@googlegroups.com_ (javascript:) > To: cmlhope <_cml...@googlegroups.com_ (javascript:) > Sent: Wed, Aug 3, 2016 7:54 pm Subject: [CMLHope] How Am I Doing? Jeanie and others: I am doing great...I hope I just sent in my 10 month (since October 2, 2015) TKI-free 6 week PCR test. My fingers are crossed. When we don’t hear from Marty, we know that something is going on. Hugs, Susan Rosenthal -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CML...@googlegroups.com_ (javascript:) To unsubscribe from this group, send email to CMLHope-_unsub...@unsub...@go_ (javascript:) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+u...@cmlhope+u...@https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are su
Re: [CMLHope] Haven't heard from John either.
Hi Group, After my son Derek passed away on June 13th and when we found out Grace had a heart attack within 5 min and had to get her over to the Hosp. and was their for 4 days she is doing O. K. But I had to fly up to Chicago by myself to go to the Funeral. Then two weeks later when Grace could travel we flew up to Chicago again for 4 days. Two weeks later we had to go back for a week and on the return flight we had to sit at the airport for 5 hours and the trip was 2 1/2 hours. The next day I had to see my Urologist for my 6 month visit and found out a few days later that my PSA was way over the 4.4 which is high. So I waited for a week and when back for some blood work and the results came back 2.9, that's good. Found out that sitting on your rear end for that long a time can cause the counts to go up so the bottom line is Men don't sit on your rear in before going in to have your PSA checked. On wise everything else is O. K. So now Grace and I drove up to Northwest Indiana to help her son move into a new house that needs some work and the was a 2 day drive. Won't do that again. To much travel, every city had road work better to fly and rent a car. So everyone take care. greenie In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi all Not well at all today. Just hanging in there. Does anyone know John who was on Ponatinib like me?? Haven't heard from him. Pain in side much worse. I was on oxycodone but took myself off due to terrible side effect. However it did help the pain. Taking my morning walk. Making it from chair to chair hehe. Let's hear from everyone today My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Beth, Susan Z. and Jeanie: Thank you for your good wishes. I do follow you all but I have just not posted. Hugs, Susan On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth wrote: Susan, I am so deeply happy for you! thanks for sharing such good news. Love, Beth -Original Message- From: 'Susan Rosenthal' via CMLHope <_cml...@googlegroups.com_ (javascript:) > To: cmlhope <_cml...@googlegroups.com_ (javascript:) > Sent: Wed, Aug 3, 2016 7:54 pm Subject: [CMLHope] How Am I Doing? Jeanie and others: I am doing great...I hope I just sent in my 10 month (since October 2, 2015) TKI-free 6 week PCR test. My fingers are crossed. When we don’t hear from Marty, we know that something is going on. Hugs, Susan Rosenthal -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CML...@googlegroups.com_ (javascript:) To unsubscribe from this group, send email to CMLHope-_unsub...@unsub...@go_ (javascript:) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+u...@cmlhope+u...@https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message becaus