Re: [CMLHope] Little issue

['myvet...@aol.com' via CMLHope]

Yes, I did. Just got home from Walgreens.


-Original Message-
From: 'Holly Baker' via CMLHope 
Sent: Wed, Oct 26, 2022 10:13 am
Subject: [CMLHope] Little issue

I sent you an email about an hour ago. Did you receive it?Holly
Sent from my iPhone
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

['AOL @@@' via CMLHope]

Hacked. Sorry'


Sent from the all new AOL app for iOS


On Saturday, September 10, 2022, 11:28 PM, Sue  wrote:


Received your email Susan Zimmerman

  

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
Sent: Saturday, 10 September 2022 6:10 PM
To: Digest recipients 
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

  

| 
cmlhope@googlegroups.com 
 | 
Google Groups 
 | 

 |


Topic digest 
View all topics 

· Catch Up - 13 Updates 

· Susan's e-mail - 1 Update 

Catch Up 

| 
SUSAN ZIMMERMAN : Sep 09 03:18PM 

Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
 |
| 
Len Clapp : Sep 09 11:25AM -0400 

Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
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 |
| 
"‪ΧΡΙΣΤΙΝΑ Κ" : Sep 09 06:35PM +0300 

Hi everybody! I wish great health to all of you! Good evening from Athens 
(Greece)... 
 
Στάλθηκε από το τηλέφωνό μου
 
 Αρχικό μήνυμα 
 
Από: Len Clapp 
 
Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.
 
Προς: cmlhope@googlegroups.com
 
Θέμα: RE: [CMLHope] Catch Up
 
Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
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 |
| 
bkbar...@aol.com: Sep 09 06:26PM 

Yes!! 
How are you Susan???
 
 
-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
 
 
 
 
 
 
-- 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

[Kristin Lieberman]

Received!

Sent from my iPhone

> On Sep 10, 2022, at 3:10 AM, cmlhope@googlegroups.com wrote:
> 
> 
> cmlhope@googlegroups.com  Google Groups   
> Topic digest 
> View all topics
> Catch Up - 13 Updates
> Susan's e-mail - 1 Update
> Catch Up
> SUSAN ZIMMERMAN : Sep 09 03:18PM 
> 
> Good day.
>  
> I'd like to ask you for a favor. Kindly let me know if you get my email?
>  
> Thanks. 
>  
> SUSAN ZIMMERMAN
> Len Clapp : Sep 09 11:25AM -0400 
> 
> Got it!
>  
> Sent from Mail for Windows
>  
> From: 'SUSAN ZIMMERMAN' via CMLHope
>  
> Sent: Friday, September 9, 2022 11:18 AM
>  
> Subject: [CMLHope] Catch Up
>  
> Good day.
>  
> I'd like to ask you for a favor. Kindly let me know if you get my email?
>  
> Thanks.
>  
> SUSAN ZIMMERMAN
>  
> --
>  
> --
>  
> [CMLHope]
>  
> A support group of http://cmlhope.com
>  
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
>  
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>  
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>  
> For more options, visit this group at http://groups.google.com/group/CMLHope
>  
> ---
>  
> You received this message because you are subscribed to the Google Groups 
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>  
> To view this discussion on the web visit 
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> "‪ΧΡΙΣΤΙΝΑ Κ‬" : Sep 09 06:35PM +0300 
> 
> Hi everybody! I wish great health to all of you! Good evening from Athens 
> (Greece)... 
>  
> Στάλθηκε από το τηλέφωνό μου
>  
>  Αρχικό μήνυμα 
>  
> Από: Len Clapp 
>  
> Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.
>  
> Προς: cmlhope@googlegroups.com
>  
> Θέμα: RE: [CMLHope] Catch Up
>  
> Got it!
>  
> Sent from Mail for Windows
>  
> From: 'SUSAN ZIMMERMAN' via CMLHope
>  
> Sent: Friday, September 9, 2022 11:18 AM
>  
> Subject: [CMLHope] Catch Up
>  
> Good day.
>  
> I'd like to ask you for a favor. Kindly let me know if you get my email?
>  
> Thanks.
>  
> SUSAN ZIMMERMAN
>  
> --
>  
> --
>  
> [CMLHope]
>  
> A support group of http://cmlhope.com
>  
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
>  
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>  
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> cmlhope-unsubscr...@googlegroups.com
>  
> For more options, visit this group at http://groups.google.com/group/CMLHope
>  
> ---
>  
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>  
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>  
> --
>  
> --
>  
> [CMLHope]
>  
> A support group of http://cmlhope.com
>  
> -
>  
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>  
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>  
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>  
> For more options, visit this group at http://groups.google.com/group/CMLHope
>  
> ---
>  
> You received this message because you are subscribed to the Google Groups 
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>  
> To view this discussion on the web visit 
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> bkbar...@aol.com: Sep 09 06:26PM 
> 
> Yes!! 
> How are you Susan???
>  
>  
> -Original Message-
> From: 'SUSAN ZIMMERMAN' via CMLHope 
> Sent: Fri, Sep 9, 2022 10:18 am
> Subject: [CMLHope] Catch Up
>  
> Good day.
>  
> I'd like to ask you for a favor. Kindly let me know if you get my email?
>  
> Thanks. 
>  
> SUSAN ZIMMERMAN
>  
>  
>  
>  
>  
>  

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

['AOL @@@' via CMLHope]

I am so sorry I'be been hacked. Susan Zimmerman 


Sent from the all new AOL app for iOS


On Saturday, September 10, 2022, 11:38 AM, Alan Constantian 
 wrote:

Yes, received Susan's email
On Sat, Sep 10, 2022 at 6:10 AM  wrote:

  
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Catch Up - 13 Updates 
   -   Susan's e-mail - 1 Update 
Catch Up   
|   SUSAN ZIMMERMAN : Sep 09 03:18PM  

 Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
  |
|   Len Clapp : Sep 09 11:25AM -0400  

 Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
 
To post to this group, send email to CMLHope@googlegroups.com
 
To unsubscribe from this group, send email to 
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For more options, visit this group at http://groups.google.com/group/CMLHope
 
---
 
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  |
|   "‪ΧΡΙΣΤΙΝΑ Κ‬" : Sep 09 06:35PM +0300  

 Hi everybody! I wish great health to all of you! Good evening from Athens 
(Greece)... 
 
Στάλθηκε από το τηλέφωνό μου
 
 Αρχικό μήνυμα 
 
Από: Len Clapp 
 
Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.
 
Προς: cmlhope@googlegroups.com
 
Θέμα: RE: [CMLHope] Catch Up
 
Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
 
To post to this group, send email to CMLHope@googlegroups.com
 
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
 
For more options, visit this group at http://groups.google.com/group/CMLHope
 
---
 
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To view this discussion on the web visit 
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--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
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  |
|   bkbar...@aol.com: Sep 09 06:26PM  

 Yes!! 
How are you Susan???
 
 
-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up
 
 Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
 
 
 
 
 
 
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

['AOL @@@' via CMLHope]

I am sorry this was a hacker. Should probably change your password s. Susan 
Zimmerman 


Sent from the all new AOL app for iOS


On Saturday, September 10, 2022, 11:58 AM, 'myvet...@aol.com' via CMLHope 
 wrote:

Greetings, I still here in sunny Hot Florida. Been on Gleevec for 22 years 9 
months. AT 83 their are  these that break at 83 and you have to get them fixed. 
So, everyone take care and keep in touch. 
David L. Greenberg


-Original Message-
From: Alan Constantian 
To: cmlhope@googlegroups.com
Sent: Sat, Sep 10, 2022 11:38 am
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 
topics

Yes, received Susan's email
On Sat, Sep 10, 2022 at 6:10 AM  wrote:

  
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Catch Up - 13 Updates 
   -   Susan's e-mail - 1 Update 
Catch Up   
|   SUSAN ZIMMERMAN : Sep 09 03:18PM  

 Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
  |
|   Len Clapp : Sep 09 11:25AM -0400  

 Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
 
To post to this group, send email to CMLHope@googlegroups.com
 
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
 
For more options, visit this group at http://groups.google.com/group/CMLHope
 
---
 
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To view this discussion on the web visit 
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  |
|   "‪ΧΡΙΣΤΙΝΑ Κ‬" : Sep 09 06:35PM +0300  

 Hi everybody! I wish great health to all of you! Good evening from Athens 
(Greece)... 
 
Στάλθηκε από το τηλέφωνό μου
 
 Αρχικό μήνυμα 
 
Από: Len Clapp 
 
Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.
 
Προς: cmlhope@googlegroups.com
 
Θέμα: RE: [CMLHope] Catch Up
 
Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
 
To post to this group, send email to CMLHope@googlegroups.com
 
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
 
For more options, visit this group at http://groups.google.com/group/CMLHope
 
---
 
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To view this discussion on the web visit 
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--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
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To post to this group, send email to CMLHope@googlegroups.com
 
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For more options, visit this group at http://groups.google.com/group/CMLHope
 
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  |
|   bkbar...@aol.com: Sep 09 06:26PM  

 Yes!! 
How are you Susan???
 
 
-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up
 
 Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
 
 
 
 
 
 
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

['myvet...@aol.com' via CMLHope]

Greetings, I still here in sunny Hot Florida. Been on Gleevec for 22 years 9 
months. AT 83 their are  these that break at 83 and you have to get them fixed. 
So, everyone take care and keep in touch. 
David L. Greenberg


-Original Message-
From: Alan Constantian 
To: cmlhope@googlegroups.com
Sent: Sat, Sep 10, 2022 11:38 am
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 
topics

Yes, received Susan's email
On Sat, Sep 10, 2022 at 6:10 AM  wrote:

  
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Catch Up - 13 Updates 
   -   Susan's e-mail - 1 Update 
Catch Up   
|   SUSAN ZIMMERMAN : Sep 09 03:18PM  

 Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
  |
|   Len Clapp : Sep 09 11:25AM -0400  

 Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
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  |
|   "‪ΧΡΙΣΤΙΝΑ Κ‬" : Sep 09 06:35PM +0300  

 Hi everybody! I wish great health to all of you! Good evening from Athens 
(Greece)... 
 
Στάλθηκε από το τηλέφωνό μου
 
 Αρχικό μήνυμα 
 
Από: Len Clapp 
 
Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.
 
Προς: cmlhope@googlegroups.com
 
Θέμα: RE: [CMLHope] Catch Up
 
Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
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--
 
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  |
|   bkbar...@aol.com: Sep 09 06:26PM  

 Yes!! 
How are you Susan???
 
 
-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up
 
 Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
 
 
 
 
 
 
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
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--- 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

[Alan Constantian]

Yes, received Susan's email

On Sat, Sep 10, 2022 at 6:10 AM  wrote:

> cmlhope@googlegroups.com
> <https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics>
>  Google
> Groups
> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
> Topic digest
> View all topics
> <https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics>
>
>- Catch Up <#m_8939022568463424351_group_thread_0> - 13 Updates
>- Susan's e-mail <#m_8939022568463424351_group_thread_1> - 1 Update
>
> Catch Up
> <http://groups.google.com/group/cmlhope/t/6e471446bdf3e0f3?utm_source=digest_medium=email>
> SUSAN ZIMMERMAN : Sep 09 03:18PM
>
> Good day.
>
> I'd like to ask you for a favor. Kindly let me know if you get my email?
>
> Thanks.
>
> SUSAN ZIMMERMAN
> Len Clapp : Sep 09 11:25AM -0400
>
> Got it!
>
> Sent from Mail for Windows
>
> From: 'SUSAN ZIMMERMAN' via CMLHope
>
> Sent: Friday, September 9, 2022 11:18 AM
>
> Subject: [CMLHope] Catch Up
>
> Good day.
>
> I'd like to ask you for a favor. Kindly let me know if you get my email?
>
> Thanks.
>
> SUSAN ZIMMERMAN
>
> --
>
> --
>
> [CMLHope]
>
> A support group of http://cmlhope.com
>
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
>
> To post to this group, send email to CMLHope@googlegroups.com
>
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
>
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
>
> ---
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
>
> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
>
> To view this discussion on the web visit
> https://groups.google.com/d/msgid/cmlhope/1701790455.1508744.1662736681600%40mail.yahoo.com
> .
> "‪ΧΡΙΣΤΙΝΑ Κ‬" : Sep 09 06:35PM +0300
>
> Hi everybody! I wish great health to all of you! Good evening from Athens
> (Greece)... 
>
> Στάλθηκε από το τηλέφωνό μου
>
>  Αρχικό μήνυμα 
>
> Από: Len Clapp 
>
> Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.
>
> Προς: cmlhope@googlegroups.com
>
> Θέμα: RE: [CMLHope] Catch Up
>
> Got it!
>
> Sent from Mail for Windows
>
> From: 'SUSAN ZIMMERMAN' via CMLHope
>
> Sent: Friday, September 9, 2022 11:18 AM
>
> Subject: [CMLHope] Catch Up
>
> Good day.
>
> I'd like to ask you for a favor. Kindly let me know if you get my email?
>
> Thanks.
>
> SUSAN ZIMMERMAN
>
> --
>
> --
>
> [CMLHope]
>
> A support group of http://cmlhope.com
>
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
>
> To post to this group, send email to CMLHope@googlegroups.com
>
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
>
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
>
> ---
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
>
> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
>
> To view this discussion on the web visit
> https://groups.google.com/d/msgid/cmlhope/1701790455.1508744.1662736681600%40mail.yahoo.com
> .
>
> --
>
> --
>
> [CMLHope]
>
> A support group of http://cmlhope.com
>
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
>
> To post to this group, send email to CMLHope@googlegroups.com
>
> To unsubscribe from this group, send email to
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>
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
>
> ---
>
> You received this message because you are subscribed to the Google Groups
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>
> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
>
> To view this discussion on the web visit
> https://groups.google.com/d/msgid/cmlhope/0CE1FDB3-A116-4D1A-AA93-68E62AAA7501%40hxcore.ol
> .
> bkbar...@aol.

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

['AOL @@@' via CMLHope]

This was a hack. So sorry


Sent from the all new AOL app for iOS


On Saturday, September 10, 2022, 8:22 AM, N Quade  wrote:

 
Norm here. I got it. Still fighting the daily battle. Now on Spycel after about 
17 years on Tasigna due to quadruple bypass.

  
 
Sent from Mail for Windows

  
 
From: cmlhope@googlegroups.com
Sent: Saturday, September 10, 2022 5:10 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

  
 
| 
cmlhope@googlegroups.com
  | 
Google Groups 
  | 

  |


Topic digest
View all topics
 
· Catch Up -13 Updates
 
· Susan's e-mail -1 Update
 
Catch Up 
 
| 
SUSAN ZIMMERMAN : Sep 09 03:18PM

Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
  |
| 
Len Clapp : Sep 09 11:25AM -0400

Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
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To post to this group, send email to CMLHope@googlegroups.com
 
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---
 
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  |
| 
"‪ΧΡΙΣΤΙΝΑ Κ" : Sep 09 06:35PM +0300

Hi everybody! I wish great health to all of you! Good evening from Athens 
(Greece)...
 
Στάλθηκε από το τηλέφωνό μου
 
 Αρχικό μήνυμα 
 
Από: Len Clapp 
 
Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.
 
Προς: cmlhope@googlegroups.com
 
Θέμα: RE: [CMLHope] Catch Up
 
Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
 
To post to this group, send email to CMLHope@googlegroups.com
 
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---
 
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To view this discussion on the web visit 
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--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
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  |
| 
bkbar...@aol.com: Sep 09 06:26PM

Yes!! 
How are you Susan???
 
 
-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
 
 
 
 
 
 
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
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To post to this group, send email to CMLHope@googlegroups.com
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--- 
You received this message because you are subscribed to the Google Groups 
"C

Re: [CMLHope] SUSAN ZIMMERMAN

['AOL @@@' via CMLHope]

I was hacked. Sorry!


Sent from the all new AOL app for iOS


On Saturday, September 10, 2022, 6:27 AM, peter geary  
wrote:


What's the question Susan I see your query in clmhop2 Sept 11th 

-- 
-- 
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-- 
-- 
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RE: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

[N Quade]

Norm here. I got it. Still fighting the daily battle. Now on Spycel after about 
17 years on Tasigna due to quadruple bypass.

Sent from Mail<https://go.microsoft.com/fwlink/?LinkId=550986> for Windows

From: cmlhope@googlegroups.com<mailto:cmlhope@googlegroups.com>
Sent: Saturday, September 10, 2022 5:10 AM
To: Digest recipients<mailto:cmlhope@googlegroups.com>
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

cmlhope@googlegroups.com<%20%20https:/groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics>
Google 
Groups<https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
[http://www.google.com/images/icons/product/groups-32.png]<https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
Topic digest
View all 
topics<%20%20https:/groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics>
·  Catch Up - 13 Updates
·  Susan's e-mail - 1 Update
Catch Up 
<http://groups.google.com/group/cmlhope/t/6e471446bdf3e0f3?utm_source=digest_medium=email>
SUSAN ZIMMERMAN : Sep 09 03:18PM

Good day.

I'd like to ask you for a favor. Kindly let me know if you get my email?

Thanks.

SUSAN ZIMMERMAN
Len Clapp : Sep 09 11:25AM -0400

Got it!

Sent from Mail for Windows

From: 'SUSAN ZIMMERMAN' via CMLHope

Sent: Friday, September 9, 2022 11:18 AM

Subject: [CMLHope] Catch Up

Good day.

I'd like to ask you for a favor. Kindly let me know if you get my email?

Thanks.

SUSAN ZIMMERMAN

--

--

[CMLHope]

A support group of http://cmlhope.com

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"‪ΧΡΙΣΤΙΝΑ Κ" : Sep 09 06:35PM +0300

Hi everybody! I wish great health to all of you! Good evening from Athens 
(Greece)... 

Στάλθηκε από το τηλέφωνό μου

 Αρχικό μήνυμα 

Από: Len Clapp 

Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.

Προς: cmlhope@googlegroups.com

Θέμα: RE: [CMLHope] Catch Up

Got it!

Sent from Mail for Windows

From: 'SUSAN ZIMMERMAN' via CMLHope

Sent: Friday, September 9, 2022 11:18 AM

Subject: [CMLHope] Catch Up

Good day.

I'd like to ask you for a favor. Kindly let me know if you get my email?

Thanks.

SUSAN ZIMMERMAN

--

--

[CMLHope]

A support group of http://cmlhope.com

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--

--

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A support group of http://cmlhope.com

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bkbar...@aol.com: Sep 09 06:26PM

Yes!!
How are you Susan???


-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up

Good day.

I'd like to ask you for a favor. Kindly let me know if you get my email?

Thanks.

SUSAN ZIMMERMAN






--
--
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because y

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 14 updates in 2 topics

['bee donegan' via CMLHope]

Yes - got it here in UK...
21+ years of CML and still rocking!
Ted and Bina Donegan


Sent from Yahoo Mail for iPad


On Saturday, September 10, 2022, 11:10 am, cmlhope@googlegroups.com wrote:

  
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Catch Up - 13 Updates 
   -   Susan's e-mail - 1 Update 
Catch Up   
|   SUSAN ZIMMERMAN : Sep 09 03:18PM  

 Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
  |
|   Len Clapp : Sep 09 11:25AM -0400  

 Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
 
To post to this group, send email to CMLHope@googlegroups.com
 
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---
 
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  |
|   "‪ΧΡΙΣΤΙΝΑ Κ‬" : Sep 09 06:35PM +0300  

 Hi everybody! I wish great health to all of you! Good evening from Athens 
(Greece)... 
 
Στάλθηκε από το τηλέφωνό μου
 
 Αρχικό μήνυμα 
 
Από: Len Clapp 
 
Ημερομηνία: Παρ, 9 Σεπ 2022, 6:25 μ.μ.
 
Προς: cmlhope@googlegroups.com
 
Θέμα: RE: [CMLHope] Catch Up
 
Got it!
 
Sent from Mail for Windows
 
From: 'SUSAN ZIMMERMAN' via CMLHope
 
Sent: Friday, September 9, 2022 11:18 AM
 
Subject: [CMLHope] Catch Up
 
Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks.
 
SUSAN ZIMMERMAN
 
--
 
--
 
[CMLHope]
 
A support group of http://cmlhope.com
 
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  |
|   bkbar...@aol.com: Sep 09 06:26PM  

 Yes!! 
How are you Susan???
 
 
-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up
 
 Good day.
 
I'd like to ask you for a favor. Kindly let me know if you get my email?
 
Thanks. 
 
SUSAN ZIMMERMAN
 
 
 
 
 
 
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Re: [CMLHope] Catch Up

['AOL @@@' via CMLHope]

This was a hack of my account. Please disregard and sorry. Susan Zimmerman 


Sent from the all new AOL app for iOS


On Friday, September 9, 2022, 2:26 PM, bkbarney via CMLHope 
 wrote:

Yes!! 
How are you Susan???


-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up

 Good day.

I'd like to ask you for a favor. Kindly let me know if you get my email?

Thanks. 

SUSAN ZIMMERMAN






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Re: [CMLHope] Catch Up

['AOL @@@' via CMLHope]

This was a hack. Please disregard. So sorry.Susan Zimmerman 


Sent from the all new AOL app for iOS


On Friday, September 9, 2022, 2:51 PM, Lenda Coleman  
wrote:

  Yes I got it!   Lenda  
  On 09/09/2022 1:26 PM bkbarney via CMLHope  wrote:  
 
   
   Yes!!   
   How are you Susan??? 
 
 
  -Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up

   Good day. 
 
I'd like to ask you for a favor. Kindly let me know if you get my email? 
 
Thanks. 
 
SUSAN ZIMMERMAN   
 

 
 
 
 
  
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Re: [CMLHope] Catch Up

['AOL @@@' via CMLHope]

This was a hack. Please disregard. Sue Zimmerman 


Sent from the all new AOL app for iOS


On Friday, September 9, 2022, 4:51 PM, Larry Hicks  wrote:


Yes, hope you are well . 
 
  
 
From: 'SUSAN ZIMMERMAN' via CMLHope [mailto:cmlhope@googlegroups.com]
Sent: Friday, September 09, 2022 11:18 AM
Subject: [CMLHope] Catch Up
 
  
 
Good day.

I'd like to ask you for a favor. Kindly let me know if you get my email?

Thanks. 

SUSAN ZIMMERMAN
 
  
 
  
 
  
 
  
 
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Re: [CMLHope] Catch Up

['AOL @@@' via CMLHope]

This was a hack, sorry! No need to reply.


Sent from the all new AOL app for iOS


On Friday, September 9, 2022, 4:50 PM, 'o' via CMLHope 
 wrote:

Me, too.  It's been a very long time!
Janet Hansen


-Original Message-
From: Lenda Coleman 
To: cmlhope@googlegroups.com
Sent: Fri, Sep 9, 2022 2:50 pm
Subject: Re: [CMLHope] Catch Up

  Yes I got it!   Lenda  
  On 09/09/2022 1:26 PM bkbarney via CMLHope  wrote:  
 
   
   Yes!!   
   How are you Susan??? 
 
 
  -Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up

   Good day. 
 
I'd like to ask you for a favor. Kindly let me know if you get my email? 
 
Thanks. 
 
SUSAN ZIMMERMAN   
 

 
 
 
 
  
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RE: [CMLHope] Catch Up

[Larry Hicks]

Yes, hope you are well .

From: 'SUSAN ZIMMERMAN' via CMLHope [mailto:cmlhope@googlegroups.com]
Sent: Friday, September 09, 2022 11:18 AM
Subject: [CMLHope] Catch Up

Good day.

I'd like to ask you for a favor. Kindly let me know if you get my email?

Thanks.

SUSAN ZIMMERMAN




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Re: [CMLHope] Catch Up

['o' via CMLHope]

Me, too.  It's been a very long time!
Janet Hansen


-Original Message-
From: Lenda Coleman 
To: cmlhope@googlegroups.com
Sent: Fri, Sep 9, 2022 2:50 pm
Subject: Re: [CMLHope] Catch Up

  Yes I got it!   Lenda  
  On 09/09/2022 1:26 PM bkbarney via CMLHope  wrote:  
 
   
   Yes!!   
   How are you Susan??? 
 
 
  -Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up

   Good day. 
 
I'd like to ask you for a favor. Kindly let me know if you get my email? 
 
Thanks. 
 
SUSAN ZIMMERMAN   
 

 
 
 
 
  
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Re: [CMLHope] Catch Up

[Lenda Coleman]

Yes I got it!

Lenda

> On 09/09/2022 1:26 PM bkbarney via CMLHope  
> wrote:
> 
> 
> Yes!! 
> 
> How are you Susan???
> 
> 
> -Original Message-
> From: 'SUSAN ZIMMERMAN' via CMLHope 
> Sent: Fri, Sep 9, 2022 10:18 am
> Subject: [CMLHope] Catch Up
> 
> Good day.
> 
> I'd like to ask you for a favor. Kindly let me know if you get my email?
> 
> Thanks.
> 
> SUSAN ZIMMERMAN
> 
> 
> 
> 
> 
> 
> 
> 
> --
> --
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>  .
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>  .
> 

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Re: [CMLHope] Catch Up

[bkbarney via CMLHope]

Yes!! 
How are you Susan???


-Original Message-
From: 'SUSAN ZIMMERMAN' via CMLHope 
Sent: Fri, Sep 9, 2022 10:18 am
Subject: [CMLHope] Catch Up

 Good day.

I'd like to ask you for a favor. Kindly let me know if you get my email?

Thanks. 

SUSAN ZIMMERMAN






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RE: [CMLHope] Catch Up

[Len Clapp]

Got it! Sent from Mail for Windows From: 'SUSAN ZIMMERMAN' via CMLHopeSent: Friday, September 9, 2022 11:18 AMSubject: [CMLHope] Catch Up Good day.I'd like to ask you for a favor. Kindly let me know if you get my email?Thanks. SUSAN ZIMMERMAN-- -- [CMLHope]A support group of http://cmlhope.com- You received this message because you are subscribed to the Google Groups "CMLHope" group.To post to this group, send email to CMLHope@googlegroups.comTo unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.comFor more options, visit this group at http://groups.google.com/group/CMLHope--- You received this message because you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com.To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/1701790455.1508744.1662736681600%40mail.yahoo.com. 



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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

['ladyrx' via CMLHope]

Thank you, Amy, for the heads up. 

> On Jul 19, 2020, at 6:10 AM, cmlhope@googlegroups.com wrote:
> 
> 
> cmlhope@googlegroups.com  Google Groups   
> Topic digest 
> View all topics
> Digest for cmlhope@googlegroups.com - 1 update in 1 topic - 2 Updates
> Digest for cmlhope@googlegroups.com - 1 update in 1 topic
> N Quade : Jul 18 12:33PM 
> 
> My financial advisor from Nigeria, he is a Prince, has warned me about these 
> things.
>  
> Thanks,
> Norm
>  
> Sent from Mail for Windows 10
>  
> From: cmlhope@googlegroups.com
> Sent: Saturday, July 18, 2020 5:10 AM
> To: Digest recipients
> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
>  
> cmlhope@googlegroups.com<%20%20https:/groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics>
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> · Hello - NICK WOODS - 1 Update
> Hello - NICK WOODS 
> 
> AAFAAmy : Jul 17 03:43AM -0700
>  
> Folks, this a scam, and one that’s been around for a while. Please don’t ever 
> respond to messages like these.
>  
> Stay safe!
>  
> Amy O’Keefe
> DX with CML 4/2001
> Back to top
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> cmlhope+unsubscr...@googlegroups.com.
> Sheila Watson : Jul 18 09:43AM -0500 
> 
> Thanks Amy:
>  
> It caught me off guard for a minute when I first saw it. But I realized it
> was a scam.
>  
> Sheila
>  
>  
> --
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Re: [CMLHope] Digest for cml...@googlegroups.com - 1 update in 1 topic

[AAFAAmy]

Good one, Norm!  

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Sheila Watson]

Thanks Amy:

It caught me off guard for a minute when I first saw it.  But I realized it
was a scam.

Sheila

On Sat, Jul 18, 2020 at 5:10 AM  wrote:

> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
> View all topics
> 
>
>- Hello - NICK WOODS <#m_7486913211620045013_group_thread_0> - 1 Update
>
> Hello - NICK WOODS
> 
> AAFAAmy : Jul 17 03:43AM -0700
>
> Folks, this a scam, and one that’s been around for a while. Please don’t
> ever respond to messages like these.
>
> Stay safe!
>
> Amy O’Keefe
> DX with CML 4/2001
> Back to top <#m_7486913211620045013_digest_top>
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RE: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[N Quade]

My financial advisor from Nigeria, he is a Prince, has warned me about these 
things.

Thanks,
Norm

Sent from Mail for Windows 10

From: cmlhope@googlegroups.com
Sent: Saturday, July 18, 2020 5:10 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

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·Hello - NICK WOODS - 1 Update
Hello - NICK WOODS 

AAFAAmy : Jul 17 03:43AM -0700

Folks, this a scam, and one that’s been around for a while. Please don’t ever 
respond to messages like these.

Stay safe!

Amy O’Keefe
DX with CML 4/2001
Back to top
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics Joyce

['Icandoallttc' via CMLHope]

6PM 
>> 
>> HI Jeannie. I have not heard from anyone in a long while. This is Beth. Hope 
>> everyone out there is hanging in there.. My best to all of you..
>>  
>> KIndest regards, 18's for Marty and hugs to all..
>> Beth
>>  
>>  
>> -Original Message-
>> From: 'icandoallttc' via CMLHope 
>> To: cmlhope 
>> Sent: Mon, Sep 16, 2019 10:52 am
>> Subject: [CMLHope] Not getting any mail
>>  
>> HelloI am not receiving any mail from group. Has this group shut down.  
>> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
>> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
>> else heard this. Hope everyone is great.  
>> My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
>> LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
>> 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine 
>> ExtermannMoffitt Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 
>> CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal-- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
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>> --- 
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>> https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com.
>> Joyce Mesnarich : Sep 16 02:08PM -0500 
>> 
>> Hi Jeanie.
>> I think we all have just become quiet on this site. I have received no mail 
>> either. My husband is the CML patient. I am his caregiver. He is presently 
>> taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. 
>> But I, too, would be skeptical of getting meds from a place I didn’t know 
>> anything about. 
>> My husband was previously seeing Dr Talpaz in Michigan. We live in Southern 
>> Illinois. So it was an expensive trip and as we have gotten older we found 
>> it is just too much for us. We found a doctor at Siteman Cancer Center in St 
>> Louis (50 miles from us) and started going to him. He is elderly himself. 
>> The last 2 times we went we saw his PA. She seems good but certainly is not 
>> up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit 
>> and they are keeping him from seeing patients. My husband is doing well as 
>> far as CML goes. But time is taking its toll. He has very low energy. Don’t 
>> know if that is the CML or the medication. 
>> I hope you are feeling well. I know you have had some problems in the past. 
>> I have been in this group since 2008. Seems most everybody is gone. Sad.
>> Joyce in Southern Illinois
>>  
>>  
>> myvet...@aol.com: Sep 16 08:51PM 
>> 
>> That's funny that you put out a post, I was going send one also like (hello, 
>> is anyone out there).  I don't have to now. Thanks for posting.
>> greenie
>>  
>> -Original Message-
>> From: Joyce Mesnarich 
>> To: cmlhope 
>> Sent: Mon, Sep 16, 2019 3:08 pm
>> Subject: Re: [CMLHope] Not getting any mail
>>  
>> Hi Jeanie.I think we all have just become quiet on this site.  I have 
>> received no mail either.  My husband is the CML patient.  I am his 
>> caregiver.  He is presently taking Bosulif.  I don’t know anything about 
>> Ponatinib, so I can’t help you.  But I, too, would be skeptical of getting 
>> meds from a place I didn’t know anything about.  My husband was previously 
>> seeing Dr Talpaz in Michigan.  We live in Southern Illinois.  So it was an 
>> expensive trip and as we have gotten older we found it is just too much for 
>> us.  We found a doctor at Siteman Cancer Center in St Louis  (50 miles from 
>> us) and started going to him.  He is elderly himself.  The last 2 times we 
>> went we saw his PA.  She seems good but certainly is not up to Dr Talpaz 
>> standards.  We fear that his new doctor may be slipping a bit and they are 
>> keeping him from seeing patients.  My husband is doing well as far a

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics hi all

['Icandoallttc' via CMLHope]

em and think it’s fraud. Anyone 
>> else heard this. Hope everyone is great. 
>>  
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian 
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> bkbar...@aol.com: Sep 16 04:06PM 
>> 
>> HI Jeannie. I have not heard from anyone in a long while. This is Beth. Hope 
>> everyone out there is hanging in there.. My best to all of you..
>>  
>> KIndest regards, 18's for Marty and hugs to all..
>> Beth
>>  
>>  
>> -Original Message-
>> From: 'icandoallttc' via CMLHope 
>> To: cmlhope 
>> Sent: Mon, Sep 16, 2019 10:52 am
>> Subject: [CMLHope] Not getting any mail
>>  
>> HelloI am not receiving any mail from group. Has this group shut down.  
>> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
>> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
>> else heard this. Hope everyone is great.  
>> My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
>> LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
>> 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine 
>> ExtermannMoffitt Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 
>> CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal-- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> To view this discussion on the web visit 
>> https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com.
>> Joyce Mesnarich : Sep 16 02:08PM -0500 
>> 
>> Hi Jeanie.
>> I think we all have just become quiet on this site. I have received no mail 
>> either. My husband is the CML patient. I am his caregiver. He is presently 
>> taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. 
>> But I, too, would be skeptical of getting meds from a place I didn’t know 
>> anything about. 
>> My husband was previously seeing Dr Talpaz in Michigan. We live in Southern 
>> Illinois. So it was an expensive trip and as we have gotten older we found 
>> it is just too much for us. We found a doctor at Siteman Cancer Center in St 
>> Louis (50 miles from us) and started going to him. He is elderly himself. 
>> The last 2 times we went we saw his PA. She seems good but certainly is not 
>> up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit 
>> and they are keeping him from seeing patients. My husband is doing well as 
>> far as CML goes. But time is taking its toll. He has very low energy. Don’t 
>> know if that is the CML or the medication. 
>> I hope you are feeling well. I know you have had some problems in the past. 
>> I have been in this group since 2008. Seems most everybody is gone. Sad.
>> Joyce in Southern Illinois
>>  
>>  
>> myvet...@aol.com: Sep 16 08:51PM 
>> 
>> That's funny that you put out a post, I was going send one also like (hello, 
>> is anyone out there).  I don't have to now. Thanks for posting.
>> greenie
>>  
>> -Original Message-
>> From: Joyce Mesnarich 
>> To: cmlhope 
>> Sent: Mon, Sep 16, 2019 3:08 pm
>> Subject: Re: [CMLHope] Not getting any mail
>>  
>> Hi Jeanie.I think we all have just become quiet on this site.  I have 
>> received no mail either.  My husband is the CML patient.  I am his 
>> caregiver.  He is presently taking Bosulif.  I don’t know anything about 
>> Ponatinib, so I can’t help you.  But I, too, would be skeptical of getting 
>> meds from a place I didn’t know anything about.  My 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[sherri swanson]

Hi Susan,

Looks like 2003 was popular year. Too bad it was for CML.  The good news,
we keep fighting it everyday.

Sherri, Northern Illinois

On Thu, Sep 26, 2019 at 7:45 PM 'educatorsusan' via CMLHope <
cmlhope@googlegroups.com> wrote:

> I was diagnosed in 2003, too!
>
> Susan Rosenthal
> Miami, Florida
>
> On Sep 26, 2019, at 7:43 PM, sherri swanson 
> wrote:
>
> Hi Ken,
>
> Glad to hear your doing well. I too take Gleevec but take 600mg. Like you
> I was DX in 2003 and have been on 600mg since then. My blood is almost
> undetectable as well. I guess the CML just wants to let me know it's there.
> I just let it know I'm still here too.
>
> Have a great weekend,
>
> Sherri
>
> On Thu, Sep 26, 2019 at 10:44 AM ksnwo...@prodigy.net <
> ksnwo...@prodigy.net> wrote:
>
>> I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating
>> it well. My semi- annual blood test remains almost untraceable, but still
>> there. Greetings to all cml'ers. Keep the faith. Nick
>>
>>
>>
>> *Sent from my LG V40 ThinQ, an AT 5G Evolution capable smartphone*
>>
>> -- Original message--
>> *From: *cmlhope@googlegroups.com
>> *Date: *Thu, Sep 26, 2019 5:10 AM
>> *To: *Digest recipients;
>> *Cc: *
>> *Subject:*[CMLHope] Digest for cmlhope@googlegroups.com
>> <+cmlhope@googlegroups.com> - 1 update in 1 topic
>>
>> cmlhope@googlegroups.com
>> 
>>  Google
>> Groups
>> 
>> 
>> Topic digest
>> View all topics
>> 
>>
>>- Acaria health
>><#m_-8593631717912210402_m_590827347862330147_group_thread_0> - 1
>>Update
>>
>> Acaria health
>> 
>> icandoallttc >: Sep 25 12:22PM -0400 <%3cicandoall...@aol.com>
>>
>> Hello everyone
>> I had the strangest thing happen to me in reference to my Ponatinib. Is
>> anyone on Ponatinib ?
>> I got a letter telling me ascaria health would be handling my drug from
>> now on. I did t ask for this so decided to wait until biologics called to
>> refill my prescription. Well they called and asked me if I was ready for
>> refill. Never mentioned as aria and my medicine came As usual. I was so
>> happy. So my question is should I notify someone of this as it seems like a
>> fraud to me. This medicine is very expenvive. It is 17,000 $ a month. Has
>> anyone ever have this happened? I???ve researched google with no answers.
>> Norm I remember when you helped me run the tasigna group. I couldn???t
>> take it. Talk later all the news. You and your wife love are so up lifting.
>> Yes love you so very much.
>> 
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian
>> Dx 1/2004 CML Leukemia
>> Back to top <#m_-8593631717912210402_m_590827347862330147_digest_top>
>> You received this digest because you're subscribed to updates for this
>> group. You can change your settings on the group membership page
>> 
>> .
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>> email to cmlhope+unsubscr...@googlegroups.com.
>>
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>> --
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>> -
>>
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>> 
>> .
>>
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['educatorsusan' via CMLHope]

I was diagnosed in 2003, too!

Susan Rosenthal
Miami, Florida

> On Sep 26, 2019, at 7:43 PM, sherri swanson  
> wrote:
> 
> Hi Ken, 
> 
> Glad to hear your doing well. I too take Gleevec but take 600mg. Like you I 
> was DX in 2003 and have been on 600mg since then. My blood is almost 
> undetectable as well. I guess the CML just wants to let me know it's there. I 
> just let it know I'm still here too. 
> 
> Have a great weekend, 
> 
> Sherri
> 
>> On Thu, Sep 26, 2019 at 10:44 AM ksnwo...@prodigy.net  
>> wrote:
>> I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it 
>> well. My semi- annual blood test remains almost untraceable, but still 
>> there. Greetings to all cml'ers. Keep the faith. Nick
>> 
>> 
>> 
>> Sent from my LG V40 ThinQ, an AT 5G Evolution capable smartphone
>> 
>> -- Original message--
>> From: cmlhope@googlegroups.com
>> Date: Thu, Sep 26, 2019 5:10 AM
>> To: Digest recipients;
>> Cc:
>> Subject:[CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
>> 
>> cmlhope@googlegroups.com Google Groups  
>> Topic digest 
>> View all topics
>> Acaria health - 1 Update
>> Acaria health   
>> icandoallttc >: Sep 25 12:22PM -0400 
>> 
>> Hello everyone
>> I had the strangest thing happen to me in reference to my Ponatinib. Is 
>> anyone on Ponatinib ?
>> I got a letter telling me ascaria health would be handling my drug from now 
>> on. I did t ask for this so decided to wait until biologics called to refill 
>> my prescription. Well they called and asked me if I was ready for refill. 
>> Never mentioned as aria and my medicine came As usual. I was so happy. So my 
>> question is should I notify someone of this as it seems like a fraud to me. 
>> This medicine is very expenvive. It is 17,000 $ a month. Has anyone ever 
>> have this happened? I???ve researched google with no answers. 
>> Norm I remember when you helped me run the tasigna group. I couldn???t take 
>> it. Talk later all the news. You and your wife love are so up lifting. Yes 
>> love you so very much. 
>> 
>>  
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian 
>> Dx 1/2004 CML Leukemia
>> Back to top
>> You received this digest because you're subscribed to updates for this 
>> group. You can change your settings on the group membership page.
>> To unsubscribe from this group and stop receiving emails from it send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
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>> You received this message because you are subscribed to the Google Groups 
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> 
> -- 
> -- 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[sherri swanson]

Hi Ken,

Glad to hear your doing well. I too take Gleevec but take 600mg. Like you I
was DX in 2003 and have been on 600mg since then. My blood is almost
undetectable as well. I guess the CML just wants to let me know it's there.
I just let it know I'm still here too.

Have a great weekend,

Sherri

On Thu, Sep 26, 2019 at 10:44 AM ksnwo...@prodigy.net 
wrote:

> I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it
> well. My semi- annual blood test remains almost untraceable, but still
> there. Greetings to all cml'ers. Keep the faith. Nick
>
>
>
> *Sent from my LG V40 ThinQ, an AT 5G Evolution capable smartphone*
>
> -- Original message--
> *From: *cmlhope@googlegroups.com
> *Date: *Thu, Sep 26, 2019 5:10 AM
> *To: *Digest recipients;
> *Cc: *
> *Subject:*[CMLHope] Digest for cmlhope@googlegroups.com
> <+cmlhope@googlegroups.com> - 1 update in 1 topic
>
> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
> View all topics
> 
>
>- Acaria health <#m_590827347862330147_group_thread_0> - 1 Update
>
> Acaria health
> 
> icandoallttc >: Sep 25 12:22PM -0400 <%3cicandoall...@aol.com>
>
> Hello everyone
> I had the strangest thing happen to me in reference to my Ponatinib. Is
> anyone on Ponatinib ?
> I got a letter telling me ascaria health would be handling my drug from
> now on. I did t ask for this so decided to wait until biologics called to
> refill my prescription. Well they called and asked me if I was ready for
> refill. Never mentioned as aria and my medicine came As usual. I was so
> happy. So my question is should I notify someone of this as it seems like a
> fraud to me. This medicine is very expenvive. It is 17,000 $ a month. Has
> anyone ever have this happened? I???ve researched google with no answers.
> Norm I remember when you helped me run the tasigna group. I couldn???t
> take it. Talk later all the news. You and your wife love are so up lifting.
> Yes love you so very much.
> 
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Back to top <#m_590827347862330147_digest_top>
> You received this digest because you're subscribed to updates for this
> group. You can change your settings on the group membership page
> 
> .
> To unsubscribe from this group and stop receiving emails from it send an
> email to cmlhope+unsubscr...@googlegroups.com.
>
> --
> --
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> -
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> You received this message because you are subscribed to the Google Groups
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> 
> .
>

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[NICK WOODS]

 I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it 
well. My. 

Sent from my LG V40 ThinQ, an AT 5G Evolution capable smartphone 
-- Original message--From: cmlhope@googlegroups.comDate: Thu, Sep 26, 
2019 5:10 AMTo: Digest recipients;Cc: Subject:[CMLHope] Digest for 
cmlhope@googlegroups.com - 1 update in 1 topic
  
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Acaria health - 1 Update 
Acaria health   
|   icandoallttc : Sep 25 12:22PM -0400  

 Hello everyone
I had the strangest thing happen to me in reference to my Ponatinib. Is anyone 
on Ponatinib ?
I got a letter telling me ascaria health would be handling my drug from now on. 
I did t ask for this so decided to wait until biologics called to refill my 
prescription. Well they called and asked me if I was ready for refill. Never 
mentioned as aria and my medicine came As usual. I was so happy. So my question 
is should I notify someone of this as it seems like a fraud to me. This 
medicine is very expenvive. It is 17,000 $ a month. Has anyone ever have this 
happened? I’ve researched google with no answers. 
 Norm I remember when you helped me run the tasigna group. I couldn’t take it. 
Talk later all the news. You and your wife love are so up lifting. Yes love you 
so very much. 

 
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
  |

  Back to top
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group. You can change your settings on the group membership page.
 To unsubscribe from this group and stop receiving emails from it send an email 
to cmlhope+unsubscr...@googlegroups.com.  |

 

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[ksnwo...@prodigy.net]

I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it 
well. My semi- annual blood test remains almost untraceable, but still there. 
Greetings to all cml'ers. Keep the faith. NickSent from my LG V40 ThinQ, an 
AT 5G Evolution capable smartphone-- Original message--From: 
cmlhope@googlegroups.comDate: Thu, Sep 26, 2019 5:10 AMTo: Digest 
recipients;Cc: Subject:[CMLHope] Digest for cmlhope@googlegroups.com - 1 update 
in 1 topic

  

  

  

  
  cmlhope@googlegroups.com

  
  
Google Groups
  
  

  

  

  
  



  
  
  
Topic digest
  
  
  
View all topics
  


  
  

  
  Acaria health -
  1 Update

  
  




  
  
  
  

  Acaria health

  
  

  

  

  icandoallttc >: Sep 25 12:22PM -0400


Hello everyone
I had the strangest thing happen to me in reference to my Ponatinib. Is anyone 
on Ponatinib ?
I got a letter telling me ascaria health would be handling my drug from now on. 
I did t ask for this so decided to wait until biologics called to refill my 
prescription. Well they called and asked me if I was ready for refill. Never 
mentioned as aria and my medicine came As usual. I was so happy. So my question 
is should I notify someone of this as it seems like a fraud to me. This 
medicine is very expenvive. It is 17,000 $ a month.  Has anyone ever have this 
happened?  I???ve researched google with no answers. 
 Norm I remember when you helped me run the tasigna group.   I couldn???t take 
it. Talk later all the news. You and your wife love are so up lifting. Yes love 
you so very much. 

??
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia

  

  
  
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

[sherri swanson]

ps.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics>
>
>- Not getting any mail <#m_6623427294975379539_group_thread_0> - 6
>Updates
>- Is this correct <#m_6623427294975379539_group_thread_1> - 1 Update
>
> Not getting any mail
> <http://groups.google.com/group/cmlhope/t/1cabbe0269ae2e77?utm_source=digest_medium=email>
> icandoallttc : Sep 16 11:52AM -0400
>
> Hello
> I am not receiving any mail from group. Has this group shut down.
> Anyway Igor a letter in the mail saying AcariaHealth would handle my
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone
> else heard this. Hope everyone is great.
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> bkbar...@aol.com: Sep 16 04:06PM
>
> HI Jeannie. I have not heard from anyone in a long while. This is Beth.
> Hope everyone out there is hanging in there.. My best to all of you..
>
> KIndest regards, 18's for Marty and hugs to all..
> Beth
>
>
> -Original Message-
> From: 'icandoallttc' via CMLHope 
> To: cmlhope 
> Sent: Mon, Sep 16, 2019 10:52 am
> Subject: [CMLHope] Not getting any mail
>
> HelloI am not receiving any mail from group. Has this group shut down.
> Anyway Igor a letter in the mail saying AcariaHealth would handle my
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone
> else heard this. Hope everyone is great.
> My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML
> LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel
> 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine
> ExtermannMoffitt Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0
> CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal--
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
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> .
> Joyce Mesnarich : Sep 16 02:08PM -0500
>
> Hi Jeanie.
> I think we all have just become quiet on this site. I have received no
> mail either. My husband is the CML patient. I am his caregiver. He is
> presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t
> help you. But I, too, would be skeptical of getting meds from a place I
> didn’t know anything about.
> My husband was previously seeing Dr Talpaz in Michigan. We live in
> Southern Illinois. So it was an expensive trip and as we have gotten older
> we found it is just too much for us. We found a doctor at Siteman Cancer
> Center in St Louis (50 miles from us) and started going to him. He is
> elderly himself. The last 2 times we went we saw his PA. She seems good but
> certainly is not up to Dr Talpaz standards. We fear that his new doctor may
> be slipping a bit and they are keeping him from seeing patients. My husband
> is doing well as far as CML goes. But time is taking its toll. He has very
> low energy. Don’t know if that is the CML or the medication.
> I hope you are feeling well. I know you have had some problems in the
> past. I have been in this group since 2008. Seems most everybody is gone.
> Sad.
> Joyce in Southern Illinois
>
>
> myvet...@aol.com: Sep 16 08:51PM
>
> That's funny that you put out a post, I was going send one also like
> (hello, is anyone out there).  I don't have to now. Thanks for posting.
> greenie
>
> -Original Message-
> From: Joyce Mesnarich 
> To: cmlhope 
> Sent: Mon, Sep 16, 2019 3:08 pm
> Subject: Re: [CMLHope] Not getting any mail
>
> Hi Jeanie.I think we all have just become quiet on this site.  I have
> received no mail either.  My husband is the CML patient.  I am his
> c

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

['icandoallttc' via CMLHope]

 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> bkbar...@aol.com: Sep 16 04:06PM 
>> 
>> HI Jeannie. I have not heard from anyone in a long while. This is Beth. Hope 
>> everyone out there is hanging in there.. My best to all of you..
>>  
>> KIndest regards, 18's for Marty and hugs to all..
>> Beth
>>  
>>  
>> -Original Message-
>> From: 'icandoallttc' via CMLHope 
>> To: cmlhope 
>> Sent: Mon, Sep 16, 2019 10:52 am
>> Subject: [CMLHope] Not getting any mail
>>  
>> HelloI am not receiving any mail from group. Has this group shut down.  
>> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
>> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
>> else heard this. Hope everyone is great.  
>> My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
>> LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
>> 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine 
>> ExtermannMoffitt Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 
>> CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal-- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> To view this discussion on the web visit 
>> https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com.
>> Joyce Mesnarich : Sep 16 02:08PM -0500 
>> 
>> Hi Jeanie.
>> I think we all have just become quiet on this site. I have received no mail 
>> either. My husband is the CML patient. I am his caregiver. He is presently 
>> taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. 
>> But I, too, would be skeptical of getting meds from a place I didn’t know 
>> anything about. 
>> My husband was previously seeing Dr Talpaz in Michigan. We live in Southern 
>> Illinois. So it was an expensive trip and as we have gotten older we found 
>> it is just too much for us. We found a doctor at Siteman Cancer Center in St 
>> Louis (50 miles from us) and started going to him. He is elderly himself. 
>> The last 2 times we went we saw his PA. She seems good but certainly is not 
>> up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit 
>> and they are keeping him from seeing patients. My husband is doing well as 
>> far as CML goes. But time is taking its toll. He has very low energy. Don’t 
>> know if that is the CML or the medication. 
>> I hope you are feeling well. I know you have had some problems in the past. 
>> I have been in this group since 2008. Seems most everybody is gone. Sad.
>> Joyce in Southern Illinois
>>  
>>  
>> myvet...@aol.com: Sep 16 08:51PM 
>> 
>> That's funny that you put out a post, I was going send one also like (hello, 
>> is anyone out there).  I don't have to now. Thanks for posting.
>> greenie
>>  
>> -Original Message-
>> From: Joyce Mesnarich 
>> To: cmlhope 
>> Sent: Mon, Sep 16, 2019 3:08 pm
>> Subject: Re: [CMLHope] Not getting any mail
>>  
>> Hi Jeanie.I think we all have just become quiet on this site.  I have 
>> received no mail either.  My husband is the CML patient.  I am his 
>> caregiver.  He is presently taking Bosulif.  I don’t know anything about 
>> Ponatinib, so I can’t help you.  But I, too, would be skeptical of getting 
>> meds from a place I didn’t know anything about.  My husband was previously 
>> seeing Dr Talpaz in Michigan.  We live in Southern Illinois.  So it was an 
>> expensive trip and as we have gotten older we found it is just too much for 
>> us.  We found a doctor at Siteman Cancer Center in St Louis  (50 miles from 
>

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

['icandoallttc' via CMLHope]

009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> bkbar...@aol.com: Sep 16 04:06PM 
>> 
>> HI Jeannie. I have not heard from anyone in a long while. This is Beth. Hope 
>> everyone out there is hanging in there.. My best to all of you..
>>  
>> KIndest regards, 18's for Marty and hugs to all..
>> Beth
>>  
>>  
>> -Original Message-
>> From: 'icandoallttc' via CMLHope 
>> To: cmlhope 
>> Sent: Mon, Sep 16, 2019 10:52 am
>> Subject: [CMLHope] Not getting any mail
>>  
>> HelloI am not receiving any mail from group. Has this group shut down.  
>> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
>> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
>> else heard this. Hope everyone is great.  
>> My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
>> LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
>> 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine 
>> ExtermannMoffitt Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 
>> CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal-- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> To view this discussion on the web visit 
>> https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com.
>> Joyce Mesnarich : Sep 16 02:08PM -0500 
>> 
>> Hi Jeanie.
>> I think we all have just become quiet on this site. I have received no mail 
>> either. My husband is the CML patient. I am his caregiver. He is presently 
>> taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. 
>> But I, too, would be skeptical of getting meds from a place I didn’t know 
>> anything about. 
>> My husband was previously seeing Dr Talpaz in Michigan. We live in Southern 
>> Illinois. So it was an expensive trip and as we have gotten older we found 
>> it is just too much for us. We found a doctor at Siteman Cancer Center in St 
>> Louis (50 miles from us) and started going to him. He is elderly himself. 
>> The last 2 times we went we saw his PA. She seems good but certainly is not 
>> up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit 
>> and they are keeping him from seeing patients. My husband is doing well as 
>> far as CML goes. But time is taking its toll. He has very low energy. Don’t 
>> know if that is the CML or the medication. 
>> I hope you are feeling well. I know you have had some problems in the past. 
>> I have been in this group since 2008. Seems most everybody is gone. Sad.
>> Joyce in Southern Illinois
>>  
>>  
>> myvet...@aol.com: Sep 16 08:51PM 
>> 
>> That's funny that you put out a post, I was going send one also like (hello, 
>> is anyone out there).  I don't have to now. Thanks for posting.
>> greenie
>>  
>> -Original Message-
>> From: Joyce Mesnarich 
>> To: cmlhope 
>> Sent: Mon, Sep 16, 2019 3:08 pm
>> Subject: Re: [CMLHope] Not getting any mail
>>  
>> Hi Jeanie.I think we all have just become quiet on this site.  I have 
>> received no mail either.  My husband is the CML patient.  I am his 
>> caregiver.  He is presently taking Bosulif.  I don’t know anything about 
>> Ponatinib, so I can’t help you.  But I, too, would be skeptical of getting 
>> meds from a place I didn’t know anything about.  My husband was previously 
>> seeing Dr Talpaz in Michigan.  We live in Southern Illinois.  So it was an 
>> expensive trip and as we have gotten older we found it is just too much for 
>> us.  We found a doctor at Siteman Cancer Center in St Louis  (50 miles from 
>> us) and started going to him.

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

[Joyce Mesnarich]

> New Doctor--Dr Martine Extermann
> Moffitt Cancer center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> bkbar...@aol.com <mailto:bkbar...@aol.com>: Sep 16 04:06PM 
> 
> HI Jeannie. I have not heard from anyone in a long while. This is Beth. Hope 
> everyone out there is hanging in there.. My best to all of you..
>  
> KIndest regards, 18's for Marty and hugs to all..
> Beth
>  
>  
> -Original Message-
> From: 'icandoallttc' via CMLHope  <mailto:cmlhope@googlegroups.com>>
> To: cmlhope mailto:cmlhope@googlegroups.com>>
> Sent: Mon, Sep 16, 2019 10:52 am
> Subject: [CMLHope] Not getting any mail
>  
> HelloI am not receiving any mail from group. Has this group shut down.  
> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
> else heard this. Hope everyone is great.  
> My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
> LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
> 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
> Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 
> dx with thyroid disease tsh 13T4-normal t3-normal-- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com <http://cmlhope.com/>
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com 
> <mailto:CMLHope@googlegroups.com>
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com 
> <mailto:cmlhope-unsubscr...@googlegroups.com>
> For more options, visit this group at http://groups.google.com/group/CMLHope 
> <http://groups.google.com/group/CMLHope>
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com 
> <mailto:cmlhope+unsubscr...@googlegroups.com>.
> To view this discussion on the web visit 
> https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com
>  
> <https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com>.
> Joyce Mesnarich mailto:joy...@htc.net>>: Sep 16 02:08PM 
> -0500 
> 
> Hi Jeanie.
> I think we all have just become quiet on this site. I have received no mail 
> either. My husband is the CML patient. I am his caregiver. He is presently 
> taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. 
> But I, too, would be skeptical of getting meds from a place I didn’t know 
> anything about. 
> My husband was previously seeing Dr Talpaz in Michigan. We live in Southern 
> Illinois. So it was an expensive trip and as we have gotten older we found it 
> is just too much for us. We found a doctor at Siteman Cancer Center in St 
> Louis (50 miles from us) and started going to him. He is elderly himself. The 
> last 2 times we went we saw his PA. She seems good but certainly is not up to 
> Dr Talpaz standards. We fear that his new doctor may be slipping a bit and 
> they are keeping him from seeing patients. My husband is doing well as far as 
> CML goes. But time is taking its toll. He has very low energy. Don’t know if 
> that is the CML or the medication. 
> I hope you are feeling well. I know you have had some problems in the past. I 
> have been in this group since 2008. Seems most everybody is gone. Sad.
> Joyce in Southern Illinois
>  
>  
> myvet...@aol.com <mailto:myvet...@aol.com>: Sep 16 08:51PM 
> 
> That's funny that you put out a post, I was going send one also like (hello, 
> is anyone out there).  I don't have to now. Thanks for posting.
> greenie
>  
> -Original Message-
> From: Joyce Mesnarich mailto:joy...@htc.net>>
> To: cmlhope mailto:cmlhope@googlegroups.com>>
> Sent: Mon, Sep 16, 2019 3:08 pm
> Subject: Re: [CMLHope] Not getting any mail
>  
> Hi Jeanie.I think we all have just become quiet on this site.  I have 
> received no mail either.  My husband is the CML patient.  I am his caregiver. 
>  He is presently taking Bosulif.  I don’t know anything about Ponatinib, so I 
> can’t help you.  But I, too, would be skeptical of getting meds from a place 
> I didn’t know anything about.  My husband was previously seeing Dr Talpaz in 
> Michigan.  We live in Southern Illinois.  So it was an expensi

Re: [CMLHope] Not getting any mail

['icandoallttc' via CMLHope]

Hi Susan. 
So sorry I sometimes just say hello to all. 
How are you and how are your counts. 
So good to hear from our special group. 
Love ya

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia

> On Sep 20, 2019, at 8:50 AM, 'educatorsusan' via CMLHope 
>  wrote:
> 
> I guess I’m a ghost because no one said “hello” to me.
> 
> Susan Rosenthal
> 
>> On Sep 20, 2019, at 7:30 AM, myvety2k via CMLHope  
>> wrote:
>> 
>> Hi Susan, it's always glad to hear from friends we know with CML and real 
>> glad your doing so well.  Keep it going.
>> 
>> greene
>> 
>> 
>> -Original Message-
>> From: 'Icandoallttc' via CMLHope 
>> To: cmlhope 
>> Sent: Fri, Sep 20, 2019 2:58 am
>> Subject: Re: [CMLHope] Not getting any mail
>> 
>> ThAnks for answering everyone. I am still in remission and doing good.  Did 
>> anyone else get a letter from Acadia health. I didn’t think anyone could 
>> mess with your meds unless you okayed it. 
>> Good health to all. 
>> Thanks again and bless you. 
>> Jeanie
>> 
>>> On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope 
>>>  wrote:
>>> 
>>> I am here! Not been on as much lately.
>>> Last test I was in MMR, so elated about that. 
>>> 
>>> Great to see you on here, Greenie. And of course Jeanie, thank you for 
>>> posting!
>>> 
>>> Hope you and all are doing well as we all get a wee bit older. Stay strong, 
>>> blood buddies!!!
>>> 
>>> Hugs,
>>> Susan Zimmerman
>>> 
>>> On Sep 16, 2019 6:27 PM, Joyce Mesnarich  wrote:
>>> Good to hear from you, Greenie.
>>> Joyce in Southern Illinois
>>> 
>>> 
>>> On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope 
>>>  wrote:
>>> 
>>> That's funny that you put out a post, I was going send one also like 
>>> (hello, is anyone out there).  I don't have to now. Thanks for posting.
>>> 
>>> greenie
>>> 
>>> 
>>> -Original Message-
>>> From: Joyce Mesnarich 
>>> To: cmlhope 
>>> Sent: Mon, Sep 16, 2019 3:08 pm
>>> Subject: Re: [CMLHope] Not getting any mail
>>> 
>>> Hi Jeanie.
>>> I think we all have just become quiet on this site.  I have received no 
>>> mail either.  My husband is the CML patient.  I am his caregiver.  He is 
>>> presently taking Bosulif.  I don’t know anything about Ponatinib, so I 
>>> can’t help you.  But I, too, would be skeptical of getting meds from a 
>>> place I didn’t know anything about.  
>>> My husband was previously seeing Dr Talpaz in Michigan.  We live in 
>>> Southern Illinois.  So it was an expensive trip and as we have gotten older 
>>> we found it is just too much for us.  We found a doctor at Siteman Cancer 
>>> Center in St Louis  (50 miles from us) and started going to him.  He is 
>>> elderly himself.  The last 2 times we went we saw his PA.  She seems good 
>>> but certainly is not up to Dr Talpaz standards.  We fear that his new 
>>> doctor may be slipping a bit and they are keeping him from seeing patients. 
>>>  My husband is doing well as far as CML goes.  But time is taking its toll. 
>>>  He has very low energy.  Don’t know if that is the CML or the medication.  
>>> I hope you are feeling well. I know you have had some problems in the past. 
>>>  I have been in this group since 2008.  Seems most everybody is gone.  Sad.
>>>  Joyce in Southern Illinois
>>> 
>>> 
>>> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
>>>  wrote:
>>> 
>>> Hello
>>> I am not receiving any mail from group. Has this group shut down.  
>>> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
>>> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
>>> else heard this. Hope everyone is great.  
>>> 
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> Jeanie
>>> free
>>> Christian 
>>> Dx 1/2004 CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna 9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib 1/ 2015 15 mg
>>> New Doctor--Dr Martine Extermann
>>> Moffitt Cancer  center sept 2017
>>> Dr Balducci retired 
>>> Dr Gedia PCD
>>> 0 CBL. ABL
>>> July 2018 dx with thyroid disease tsh 13
>>> T4-normal t3-normal
>>> 
>>>

Re: [CMLHope] Not getting any mail

[myvety2k via CMLHope]

Susan, Hello, we all LOVE you.
greenie

-Original Message-
From: 'educatorsusan' via CMLHope 
To: cmlhope 
Sent: Fri, Sep 20, 2019 8:50 am
Subject: Re: [CMLHope] Not getting any mail

I guess I’m a ghost because no one said “hello” to me.
Susan Rosenthal
On Sep 20, 2019, at 7:30 AM, myvety2k via CMLHope  
wrote:


Hi Susan, it's always glad to hear from friends we know with CML and real glad 
your doing so well.  Keep it going.
greene

-Original Message-
From: 'Icandoallttc' via CMLHope 
To: cmlhope 
Sent: Fri, Sep 20, 2019 2:58 am
Subject: Re: [CMLHope] Not getting any mail

ThAnks for answering everyone. I am still in remission and doing good.  Did 
anyone else get a letter from Acadia health. I didn’t think anyone could mess 
with your meds unless you okayed it. Good health to all. Thanks again and bless 
you. Jeanie
On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope  
wrote:


I am here! Not been on as much lately.Last test I was in MMR, so elated about 
that. 
Great to see you on here, Greenie. And of course Jeanie, thank you for posting!
Hope you and all are doing well as we all get a wee bit older. Stay strong, 
blood buddies!!!
Hugs,Susan Zimmerman
On Sep 16, 2019 6:27 PM, Joyce Mesnarich  wrote:

Good to hear from you, Greenie.        Joyce in Southern Illinois


On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope  
wrote:
That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
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-- 
-- 
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A support group of http://cmlhope.com
-
 
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To view

Re: [CMLHope] Not getting any mail

[rszim0702 via CMLHope]

Hi Susan R!!! Good to know you are still around and fighting. My grandson has moved to Miami to begin his married life. Thinking he's closer to you now than me!Love, Susan Z.On Sep 20, 2019 8:50 AM, 'educatorsusan' via CMLHope  wrote:I guess I’m a ghost because no one said “hello” to me.Susan RosenthalOn Sep 20, 2019, at 7:30 AM, myvety2k via CMLHope <cmlhope@googlegroups.com> wrote:

Hi Susan, it's always glad to hear from friends we know with CML and real glad your doing so well.  Keep it going.




greene



-Original Message-
From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Fri, Sep 20, 2019 2:58 am
Subject: Re: [CMLHope] Not getting any mail






ThAnks for answering everyone. I am still in remission and doing good.  Did anyone else get a letter from Acadia health. I didn’t think anyone could mess with your meds unless you okayed it. 

Good health to all. 

Thanks again and bless you. 

Jeanie


On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope <cmlhope@googlegroups.com> wrote:


I am here! Not been on as much lately.
Last test I was in MMR, so elated about that. 



Great to see you on here, Greenie. And of course Jeanie, thank you for posting!



Hope you and all are doing well as we all get a wee bit older. Stay strong, blood buddies!!!



Hugs,

Susan Zimmerman



On Sep 16, 2019 6:27 PM, Joyce Mesnarich <joyway@htc.net> wrote:
Good to hear from you, Greenie.
        Joyce in Southern Illinois





On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope <cmlhope@googlegroups.com> wrote:





That's funny that you put out a post, I was going send one also like (hello, is anyone out there).  I don't have to now. Thanks for posting.








greenie





-Original Message-
From: Joyce Mesnarich <joyway@htc.net>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail





Hi Jeanie.

I think we all have just become quiet on this site.  I have received no mail either.  My husband is the CML patient.  I am his caregiver.  He is presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t help you.  But I, too, would be skeptical of getting meds from a place I didn’t know anything about.  



My husband was previously seeing Dr Talpaz in Michigan.  We live in Southern Illinois.  So it was an expensive trip and as we have gotten older we found it is just too much for us.  We found a doctor at Siteman Cancer Center in St Louis  (50 miles from us) and started going to him.  He is elderly himself.  The last 2 times we went we saw his PA.  She seems good but certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients.  My husband is doing well as far as CML goes.  But time is taking its toll.  He has very low energy.  Don’t know if that is the CML or the medication.  



I hope you are feeling well. I know you have had some problems in the past.  I have been in this group since 2008.  Seems most everybody is gone.  Sad.



         Joyce in Southern Illinois













On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope <cmlhope@googlegroups.com> wrote:



















Hello

I am not receiving any mail from group. Has this group shut down.  



Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great.  





My Motto:

Faith and Pills



With Love



Jeanie



free



Christian 



Dx 1/2004 CML Leukemia



Started Gleevec 2/2004



Started Tasigna 9/2009



Started Sprycel 11/2009



Started Ponatinib 1/ 2015 15 mg



New Doctor--Dr Martine Extermann



Moffitt Cancer  center sept 2017



Dr Balducci retired 



Dr Gedia PCD



0 CBL. ABL



July 2018 dx with thyroid disease tsh 13



T4-normal t3-normal













-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups "CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegroups.com
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A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups &quo

Re: [CMLHope] Not getting any mail

[myvety2k via CMLHope]

Hi Susan, it's always glad to hear from friends we know with CML and real glad 
your doing so well.  Keep it going.
greene

-Original Message-
From: 'Icandoallttc' via CMLHope 
To: cmlhope 
Sent: Fri, Sep 20, 2019 2:58 am
Subject: Re: [CMLHope] Not getting any mail

ThAnks for answering everyone. I am still in remission and doing good.  Did 
anyone else get a letter from Acadia health. I didn’t think anyone could mess 
with your meds unless you okayed it. Good health to all. Thanks again and bless 
you. Jeanie
On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope  
wrote:


I am here! Not been on as much lately.Last test I was in MMR, so elated about 
that. 
Great to see you on here, Greenie. And of course Jeanie, thank you for posting!
Hope you and all are doing well as we all get a wee bit older. Stay strong, 
blood buddies!!!
Hugs,Susan Zimmerman
On Sep 16, 2019 6:27 PM, Joyce Mesnarich  wrote:

Good to hear from you, Greenie.        Joyce in Southern Illinois


On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope  
wrote:
That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
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Re: [CMLHope] Not getting any mail

[myvety2k via CMLHope]

I'm happy to hear from you Sherri, glad that your doing so good with your CML. 
The only problem with staying here year round is that it does get hot during 
the summer but then it's better then snow and cold in Northwest Indiana 40 min 
from Chicago.  I will be flying in on the 6th of Nov to see my cancer Doctor 
get blood work and my meds. Derek's widow will pick me up at Midway and take me 
there and I get a chance to see his boys. I still can't believe that he's gone, 
I'll never get over that. Now at 80 as my Aunt used to say now it's one day at 
a time. I don't like getting old can't do the things that I used to do. Please 
take care of  yourself and keep in touch.
greenie

-Original Message-
From: sherri swanson 
To: cmlhope 
Sent: Thu, Sep 19, 2019 9:19 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Greenie, 

I am so glad to hear from you. I know what you mean about the snow birds. I had 
family that lived in Florida and I would go and see them from time to time and 
if we wanted to go somewhere or do something it always had to be early so we 
didn't have to wait and we were able to get a parking space. I finally said I 
would only come in the summer so we could go and do things without the wait.  

I can hardly believe I have had CML for 17 years. It has been a shock to the 
system but I never let it get me down. I fight right back and that and Gleevec 
have worked for me. It's funny, I still get side effects from the Gleevec after 
all this time. I guess it wants me to know that it is doing its job. 

I'm glad that you are watching the grass grow and enjoying your days. I too am 
watching things grow. Hope you enjoy the photo. 

Sherri


On Thu, Sep 19, 2019 at 4:24 PM 'icandoallttc' via CMLHope 
 wrote:

Good to hear from you Greenie. Wonderful summer.  Stay safe. Jeanie

My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Sep 16, 2019, at 4:51 PM, myvety2k via CMLHope  
wrote:


That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Not getting any mail

['icandoallttc' via CMLHope]

Good to hear from you Greenie. Wonderful summer.  Stay safe. 
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Sep 16, 2019, at 4:51 PM, myvety2k via CMLHope  
> wrote:
> 
> That's funny that you put out a post, I was going send one also like (hello, 
> is anyone out there).  I don't have to now. Thanks for posting.
> 
> greenie
> 
> 
> -Original Message-
> From: Joyce Mesnarich 
> To: cmlhope 
> Sent: Mon, Sep 16, 2019 3:08 pm
> Subject: Re: [CMLHope] Not getting any mail
> 
> Hi Jeanie.
> I think we all have just become quiet on this site.  I have received no mail 
> either.  My husband is the CML patient.  I am his caregiver.  He is presently 
> taking Bosulif.  I don’t know anything about Ponatinib, so I can’t help you.  
> But I, too, would be skeptical of getting meds from a place I didn’t know 
> anything about.  
> My husband was previously seeing Dr Talpaz in Michigan.  We live in Southern 
> Illinois.  So it was an expensive trip and as we have gotten older we found 
> it is just too much for us.  We found a doctor at Siteman Cancer Center in St 
> Louis  (50 miles from us) and started going to him.  He is elderly himself.  
> The last 2 times we went we saw his PA.  She seems good but certainly is not 
> up to Dr Talpaz standards.  We fear that his new doctor may be slipping a bit 
> and they are keeping him from seeing patients.  My husband is doing well as 
> far as CML goes.  But time is taking its toll.  He has very low energy.  
> Don’t know if that is the CML or the medication.  
> I hope you are feeling well. I know you have had some problems in the past.  
> I have been in this group since 2008.  Seems most everybody is gone.  Sad.
>  Joyce in Southern Illinois
> 
> 
>> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
>>  wrote:
>> 
> 
> Hello
> I am not receiving any mail from group. Has this group shut down.  
> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
> else heard this. Hope everyone is great.  
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
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> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
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> 
> -- 
> -- 
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Re: [CMLHope] Not getting any mail

[rszim0702 via CMLHope]

I am here! Not been on as much lately.Last test I was in MMR, so elated about that. Great to see you on here, Greenie. And of course Jeanie, thank you for posting!Hope you and all are doing well as we all get a wee bit older. Stay strong, blood buddies!!!Hugs,Susan ZimmermanOn Sep 16, 2019 6:27 PM, Joyce Mesnarich  wrote:Good to hear from you, Greenie.        Joyce in Southern IllinoisOn Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope <cmlhope@googlegroups.com> wrote:

That's funny that you put out a post, I was going send one also like (hello, is anyone out there).  I don't have to now. Thanks for posting.




greenie



-Original Message-
From: Joyce Mesnarich <joyway@htc.net>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail



Hi Jeanie.
I think we all have just become quiet on this site.  I have received no mail either.  My husband is the CML patient.  I am his caregiver.  He is presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t help you.  But I, too, would be skeptical of getting meds from a place I didn’t know anything about.  

My husband was previously seeing Dr Talpaz in Michigan.  We live in Southern Illinois.  So it was an expensive trip and as we have gotten older we found it is just too much for us.  We found a doctor at Siteman Cancer Center in St Louis  (50 miles from us) and started going to him.  He is elderly himself.  The last 2 times we went we saw his PA.  She seems good but certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients.  My husband is doing well as far as CML goes.  But time is taking its toll.  He has very low energy.  Don’t know if that is the CML or the medication.  

I hope you are feeling well. I know you have had some problems in the past.  I have been in this group since 2008.  Seems most everybody is gone.  Sad.

         Joyce in Southern Illinois






On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope <cmlhope@googlegroups.com> wrote:









Hello
I am not receiving any mail from group. Has this group shut down.  

Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great.  


My Motto:
Faith and Pills

With Love

Jeanie

free

Christian 

Dx 1/2004 CML Leukemia

Started Gleevec 2/2004

Started Tasigna 9/2009

Started Sprycel 11/2009

Started Ponatinib 1/ 2015 15 mg

New Doctor--Dr Martine Extermann

Moffitt Cancer  center sept 2017

Dr Balducci retired 

Dr Gedia PCD

0 CBL. ABL

July 2018 dx with thyroid disease tsh 13

T4-normal t3-normal







-- 
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Re: [CMLHope] Not getting any mail

[Tony Lanoue]

Hi, I’m not seeing too many emails lately either. I think a lot of us have 
migrated to the Facebook groups!
Tony

Sent from my iPhone

On Sep 16, 2019, at 11:10 PM, bkbarney via CMLHope 
mailto:cmlhope@googlegroups.com>> wrote:



-Original Message-
From: Joyce Mesnarich mailto:joy...@htc.net>>
To: cmlhope mailto:cmlhope@googlegroups.com>>
Sent: Mon, Sep 16, 2019 2:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.
I think we all have just become quiet on this site.  I have received no mail 
either.  My husband is the CML patient.  I am his caregiver.  He is presently 
taking Bosulif.  I don’t know anything about Ponatinib, so I can’t help you.  
But I, too, would be skeptical of getting meds from a place I didn’t know 
anything about.
My husband was previously seeing Dr Talpaz in Michigan.  We live in Southern 
Illinois.  So it was an expensive trip and as we have gotten older we found it 
is just too much for us.  We found a doctor at Siteman Cancer Center in St 
Louis  (50 miles from us) and started going to him.  He is elderly himself.  
The last 2 times we went we saw his PA.  She seems good but certainly is not up 
to Dr Talpaz standards.  We fear that his new doctor may be slipping a bit and 
they are keeping him from seeing patients.  My husband is doing well as far as 
CML goes.  But time is taking its toll.  He has very low energy.  Don’t know if 
that is the CML or the medication.
I hope you are feeling well. I know you have had some problems in the past.  I 
have been in this group since 2008.  Seems most everybody is gone.  Sad.
 Joyce in Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
mailto:cmlhope@googlegroups.com>> wrote:

Hello
I am not receiving any mail from group. Has this group shut down.
Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib 
from now on. I never heard from them and think it’s fraud. Anyone else heard 
this. Hope everyone is great.

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

--
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A support group of http://cmlhope.com<http://cmlhope.com/>
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Re: [CMLHope] Re: Not getting any mail

[myvety2k via CMLHope]

Sherri I'm so glad that you have CML in check after 17 years.  I started STI571 
(Gleevec) the first week in Jan. 2000 and still going strong.  I was in a study 
with 200 other people in the United States before it was approved by the FDA. I 
was the only one from Indiana and the rest were from the Chicago land area.   
Hope to keep it that way.


-Original Message-
From: sherri swanson 
To: cmlhope 
Sent: Tue, Sep 17, 2019 3:35 pm
Subject: Re: [CMLHope] Re: Not getting any mail

Hi Jeanie, 

I'm still here too. Just been doing things and we, my husband and the dog moved 
this year. I'm getting to old for that moving stuff.  

My Gleevec is keeping my CML in check and has been for about 17 years. WOW, 
that's a long time. 

Hope everyone is doing well and has enjoyed the summer. 

Sherri 
Northern  Illinois

On Tue, Sep 17, 2019 at 8:49 AM kevin.l.willi...@gmail.com 
 wrote:

Hi Jeanie,
I received my CML medicine from Acaria in the past with no issues. I think many 
insurance providers are requiring that patients go through mail order 
pharmacies like Acaria to save money. 

On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote:
HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
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Re: [CMLHope] The Group Also Has A Facebook Page

['educatorsusan' via CMLHope]

CML HOPE group:

I was just thinkingthat’s dangerous.

I think that those that posted the most kept this group going by posting.  So, 
I believe that if we all still wrote, others would respond.

It’s the silence of non-posting that makes people think we’re inactive.

But most of us are still here!

Hugs,
Susan Rosenthal
Miami, Florida

> On Sep 17, 2019, at 10:09 PM, Robert W Neill Jr  wrote:
> 
> This email group has not been very active for months after some of the most 
> frequent people who posted passed on. There is also a Facebook page if any of 
> you want to try that out and post there.
> 
> https://www.facebook.com/CMLHopeCom-294037421385/
> 
> Rob
> -- 
> -- 
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> A support group of http://cmlhope.com
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Re: [CMLHope] The Group Also Has A Facebook Page

['educatorsusan' via CMLHope]

https://m.facebook.com/groups/1773182359626063/?ref=group_browse

This is another really good CML group on Facebook where Anjana is!  She’s 
awesome!

Hugs,
Susan Rosenthal

> On Sep 17, 2019, at 10:09 PM, Robert W Neill Jr  wrote:
> 
> This email group has not been very active for months after some of the most 
> frequent people who posted passed on. There is also a Facebook page if any of 
> you want to try that out and post there.
> 
> https://www.facebook.com/CMLHopeCom-294037421385/
> 
> Rob
> -- 
> -- 
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> A support group of http://cmlhope.com
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Re: [CMLHope] Not getting any mail

[Joyce Mesnarich]

Good to hear from you, Greenie.
Joyce in Southern Illinois


> On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope  
> wrote:
> 
> That's funny that you put out a post, I was going send one also like (hello, 
> is anyone out there).  I don't have to now. Thanks for posting.
> 
> greenie
> 
> 
> -Original Message-
> From: Joyce Mesnarich 
> To: cmlhope 
> Sent: Mon, Sep 16, 2019 3:08 pm
> Subject: Re: [CMLHope] Not getting any mail
> 
> Hi Jeanie.
> I think we all have just become quiet on this site.  I have received no mail 
> either.  My husband is the CML patient.  I am his caregiver.  He is presently 
> taking Bosulif.  I don’t know anything about Ponatinib, so I can’t help you.  
> But I, too, would be skeptical of getting meds from a place I didn’t know 
> anything about.  
> My husband was previously seeing Dr Talpaz in Michigan.  We live in Southern 
> Illinois.  So it was an expensive trip and as we have gotten older we found 
> it is just too much for us.  We found a doctor at Siteman Cancer Center in St 
> Louis  (50 miles from us) and started going to him.  He is elderly himself.  
> The last 2 times we went we saw his PA.  She seems good but certainly is not 
> up to Dr Talpaz standards.  We fear that his new doctor may be slipping a bit 
> and they are keeping him from seeing patients.  My husband is doing well as 
> far as CML goes.  But time is taking its toll.  He has very low energy.  
> Don’t know if that is the CML or the medication.  
> I hope you are feeling well. I know you have had some problems in the past.  
> I have been in this group since 2008.  Seems most everybody is gone.  Sad.
>  Joyce in Southern Illinois
> 
> 
>> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
>> mailto:cmlhope@googlegroups.com>> wrote:
>> 
> 
> Hello
> I am not receiving any mail from group. Has this group shut down.  
> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
> else heard this. Hope everyone is great.  
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com <http://cmlhope.com/>
> -
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> You received this message because you are subscribed to the Google Groups 
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> 
> -- 
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Re: [CMLHope] Re: Not getting any mail

[sherri swanson]

Hi Jeanie,

I'm still here too. Just been doing things and we, my husband and the dog
moved this year. I'm getting to old for that moving stuff.

My Gleevec is keeping my CML in check and has been for about 17 years. WOW,
that's a long time.

Hope everyone is doing well and has enjoyed the summer.

Sherri
Northern  Illinois

On Tue, Sep 17, 2019 at 8:49 AM kevin.l.willi...@gmail.com <
kevin.l.willi...@gmail.com> wrote:

> Hi Jeanie,
>
> I received my CML medicine from Acaria in the past with no issues. I think
> many insurance providers are requiring that patients go through mail order
> pharmacies like Acaria to save money.
>
> On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote:
>>
>> Hello
>> I am not receiving any mail from group. Has this group shut down.
>> Anyway Igor a letter in the mail saying AcariaHealth would handle my
>> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone
>> else heard this. Hope everyone is great.
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
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> 
> .
>

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RE: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

[N Quade]

o the Google Groups 
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Joyce Mesnarich : Sep 16 02:08PM -0500

Hi Jeanie.
I think we all have just become quiet on this site. I have received no mail 
either. My husband is the CML patient. I am his caregiver. He is presently 
taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But 
I, too, would be skeptical of getting meds from a place I didn’t know anything 
about.
My husband was previously seeing Dr Talpaz in Michigan. We live in Southern 
Illinois. So it was an expensive trip and as we have gotten older we found it 
is just too much for us. We found a doctor at Siteman Cancer Center in St Louis 
(50 miles from us) and started going to him. He is elderly himself. The last 2 
times we went we saw his PA. She seems good but certainly is not up to Dr 
Talpaz standards. We fear that his new doctor may be slipping a bit and they 
are keeping him from seeing patients. My husband is doing well as far as CML 
goes. But time is taking its toll. He has very low energy. Don’t know if that 
is the CML or the medication.
I hope you are feeling well. I know you have had some problems in the past. I 
have been in this group since 2008. Seems most everybody is gone. Sad.
Joyce in Southern Illinois


myvet...@aol.com: Sep 16 08:51PM

That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad. Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
--
--
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Not getting any mail

['educatorsusan' via CMLHope]

I’m still here!

Hugs,
Susan Rosenthal

> On Sep 16, 2019, at 11:10 PM, bkbarney via CMLHope  
> wrote:
> 
> 
> 
> -Original Message-
> From: Joyce Mesnarich 
> To: cmlhope 
> Sent: Mon, Sep 16, 2019 2:08 pm
> Subject: Re: [CMLHope] Not getting any mail
> 
> Hi Jeanie.
> I think we all have just become quiet on this site.  I have received no mail 
> either.  My husband is the CML patient.  I am his caregiver.  He is presently 
> taking Bosulif.  I don’t know anything about Ponatinib, so I can’t help you.  
> But I, too, would be skeptical of getting meds from a place I didn’t know 
> anything about.  
> My husband was previously seeing Dr Talpaz in Michigan.  We live in Southern 
> Illinois.  So it was an expensive trip and as we have gotten older we found 
> it is just too much for us.  We found a doctor at Siteman Cancer Center in St 
> Louis  (50 miles from us) and started going to him.  He is elderly himself.  
> The last 2 times we went we saw his PA.  She seems good but certainly is not 
> up to Dr Talpaz standards.  We fear that his new doctor may be slipping a bit 
> and they are keeping him from seeing patients.  My husband is doing well as 
> far as CML goes.  But time is taking its toll.  He has very low energy.  
> Don’t know if that is the CML or the medication.  
> I hope you are feeling well. I know you have had some problems in the past.  
> I have been in this group since 2008.  Seems most everybody is gone.  Sad.
>  Joyce in Southern Illinois
> 
> 
>> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
>>  wrote:
>> 
> 
> Hello
> I am not receiving any mail from group. Has this group shut down.  
> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
> else heard this. Hope everyone is great.  
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
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> 
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Re: [CMLHope] Not getting any mail

[bkbarney via CMLHope]

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 2:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Not getting any mail

[myvety2k via CMLHope]

That's funny that you put out a post, I was going send one also like (hello, is 
anyone out there).  I don't have to now. Thanks for posting.
greenie

-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Mon, Sep 16, 2019 3:08 pm
Subject: Re: [CMLHope] Not getting any mail

Hi Jeanie.I think we all have just become quiet on this site.  I have received 
no mail either.  My husband is the CML patient.  I am his caregiver.  He is 
presently taking Bosulif.  I don’t know anything about Ponatinib, so I can’t 
help you.  But I, too, would be skeptical of getting meds from a place I didn’t 
know anything about.  My husband was previously seeing Dr Talpaz in Michigan.  
We live in Southern Illinois.  So it was an expensive trip and as we have 
gotten older we found it is just too much for us.  We found a doctor at Siteman 
Cancer Center in St Louis  (50 miles from us) and started going to him.  He is 
elderly himself.  The last 2 times we went we saw his PA.  She seems good but 
certainly is not up to Dr Talpaz standards.  We fear that his new doctor may be 
slipping a bit and they are keeping him from seeing patients.  My husband is 
doing well as far as CML goes.  But time is taking its toll.  He has very low 
energy.  Don’t know if that is the CML or the medication.  I hope you are 
feeling well. I know you have had some problems in the past.  I have been in 
this group since 2008.  Seems most everybody is gone.  Sad.         Joyce in 
Southern Illinois


On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
 wrote:

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
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Re: [CMLHope] Not getting any mail

[Joyce Mesnarich]

Hi Jeanie.
I think we all have just become quiet on this site.  I have received no mail 
either.  My husband is the CML patient.  I am his caregiver.  He is presently 
taking Bosulif.  I don’t know anything about Ponatinib, so I can’t help you.  
But I, too, would be skeptical of getting meds from a place I didn’t know 
anything about.  
My husband was previously seeing Dr Talpaz in Michigan.  We live in Southern 
Illinois.  So it was an expensive trip and as we have gotten older we found it 
is just too much for us.  We found a doctor at Siteman Cancer Center in St 
Louis  (50 miles from us) and started going to him.  He is elderly himself.  
The last 2 times we went we saw his PA.  She seems good but certainly is not up 
to Dr Talpaz standards.  We fear that his new doctor may be slipping a bit and 
they are keeping him from seeing patients.  My husband is doing well as far as 
CML goes.  But time is taking its toll.  He has very low energy.  Don’t know if 
that is the CML or the medication.  
I hope you are feeling well. I know you have had some problems in the past.  I 
have been in this group since 2008.  Seems most everybody is gone.  Sad.
 Joyce in Southern Illinois


> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope 
>  wrote:
> 
> Hello
> I am not receiving any mail from group. Has this group shut down.  
> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
> else heard this. Hope everyone is great.  
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
> -- 
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Re: [CMLHope] Not getting any mail

[bkbarney via CMLHope]

HI Jeannie. I have not heard from anyone in a long while. This is Beth. Hope 
everyone out there is hanging in there.. My best to all of you..

KIndest regards, 18's for Marty and hugs to all..
Beth


-Original Message-
From: 'icandoallttc' via CMLHope 
To: cmlhope 
Sent: Mon, Sep 16, 2019 10:52 am
Subject: [CMLHope] Not getting any mail

HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Got a sore won’t heal ?

[sherri swanson]

Hi Jeanie,

You should see the doctor. It sounds like something you should not fool
around with. A year ago I got bit by a mosquito while walking the dog, and
that bite made me so sick that I still have not fully recovered from it.
This year I have been dealing with pneumonia and colds that won't go away,
and not to mention infections. I've been able to stay positive, but it's
been a long winter and I am very happy that spring is here if only on the
calendar in my area right now.
I hope everyone is doing well and looking forward to spring. Jeanie, keep
us posted on your sore and your lilly's.

Sherri


On Sat, Mar 30, 2019 at 11:44 PM 'educatorsusan' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Jeanie:
>
> Could it be a tic bite?
>
> Please see a doctor, though!
>
> Hugs,
> Susan Rosenthal
>
> On Mar 31, 2019, at 12:30 AM, bkbarney via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
> Jeannie,please go to a doctor and have it looked at. Whatever it is, bug
> bite, spider bite, or whatever..it does not sound good. could be infected
> with the rash?? Anyway...I am worried about you. you take good care. I know
> it is hard to gather the energy to go to the doctor..but it sounds like you
> need to have it looked at!!  Love to you and to all. I have had a rough go
> of it mysel for the last three months..influenza, complications etc...still
> staying positive...but it's been a long winter.. grateful for Spring to
> arrive.!
>
>
> 18's and hugs,
>
> Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Sat, Mar 30, 2019 12:46 pm
> Subject: [CMLHope] Got a sore won’t heal ?
>
>
> Hi all
> I pray everyone is good and having s wonderful spring. When my lilies
> start blooming I know we ate in for a great spring
> I have developed a sore on my tummy and I thought it must have been a big
> bite. It is very painful and developed a black scab and red rash. I never
> had anything like this before so was wondering if any sn this list had had
> this experience.
> Millie told me not to long before she died she developed a sore on the
> bottom of her foot that wouldn’t heal.
> I don’t have diabetes so if anyone has had this how did you treat it and
> etc.
> haven’t brought myself up to going to Dr.
> I still miss my dr from Moffitt who was Dr Balducci.  They have turned my
> case over to a nurse.
> Let us hear from everyone. Love you so very much
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
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> You received this message because you are subscribed to the Google Groups
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Re: [CMLHope] Got a sore won’t heal ?

['educatorsusan' via CMLHope]

Jeanie:

Could it be a tic bite?

Please see a doctor, though!

Hugs,
Susan Rosenthal

> On Mar 31, 2019, at 12:30 AM, bkbarney via CMLHope  
> wrote:
> 
> Jeannie,please go to a doctor and have it looked at. Whatever it is, bug 
> bite, spider bite, or whatever..it does not sound good. could be infected 
> with the rash?? Anyway...I am worried about you. you take good care. I know 
> it is hard to gather the energy to go to the doctor..but it sounds like you 
> need to have it looked at!!  Love to you and to all. I have had a rough go of 
> it mysel for the last three months..influenza, complications etc...still 
> staying positive...but it's been a long winter.. grateful for Spring to 
> arrive.!
> 
> 
> 18's and hugs,
> 
> Beth
> 
> 
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Sat, Mar 30, 2019 12:46 pm
> Subject: [CMLHope] Got a sore won’t heal ?
> 
> 
> Hi all 
> I pray everyone is good and having s wonderful spring. When my lilies start 
> blooming I know we ate in for a great spring 
> I have developed a sore on my tummy and I thought it must have been a big 
> bite. It is very painful and developed a black scab and red rash. I never had 
> anything like this before so was wondering if any sn this list had had this 
> experience.  
> Millie told me not to long before she died she developed a sore on the bottom 
> of her foot that wouldn’t heal. 
> I don’t have diabetes so if anyone has had this how did you treat it and etc. 
> haven’t brought myself up to going to Dr.  
> I still miss my dr from Moffitt who was Dr Balducci.  They have turned my 
> case over to a nurse.  
> Let us hear from everyone. Love you so very much 
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
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Re: [CMLHope] Got a sore won’t heal ?

[bkbarney via CMLHope]

Jeannie,please go to a doctor and have it looked at. Whatever it is, bug bite, 
spider bite, or whatever..it does not sound good. could be infected with the 
rash?? Anyway...I am worried about you. you take good care. I know it is hard 
to gather the energy to go to the doctor..but it sounds like you need to have 
it looked at!!  Love to you and to all. I have had a rough go of it mysel for 
the last three months..influenza, complications etc...still staying 
positive...but it's been a long winter.. grateful for Spring to arrive.!


18's and hugs,
Beth


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Sat, Mar 30, 2019 12:46 pm
Subject: [CMLHope] Got a sore won’t heal ?


Hi all I pray everyone is good and having s wonderful spring. When my lilies 
start blooming I know we ate in for a great spring I have developed a sore on 
my tummy and I thought it must have been a big bite. It is very painful and 
developed a black scab and red rash. I never had anything like this before so 
was wondering if any sn this list had had this experience.  Millie told me not 
to long before she died she developed a sore on the bottom of her foot that 
wouldn’t heal. I don’t have diabetes so if anyone has had this how did you 
treat it and etc. haven’t brought myself up to going to Dr.  I still miss my dr 
from Moffitt who was Dr Balducci.  They have turned my case over to a nurse.  
Let us hear from everyone. Love you so very much Jeanie
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Hi Shaun question

['Jeanie' via CMLHope]

Thank you Shaun
I’ve been fighting leukemia for 15 years this month. My hubby passed away and I 
grieved hard for him as we were married 43 years before. I’ve always wondered 
if the grief damaged my immune system. 

When your dad told what he went through having his transplant I sure was happy 
we had the chemo tki’s to help us. 

I’m on my 4th tki having relapsed on the others. It’s called Ponatinib.  It put 
me in remission in 3 months but it is a very dangerous drug. So far it’s been 
good to me. 

Thanks for thinking of me and all our group. 
❤️❤️18s
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Jan 6, 2019, at 11:06 PM, Marty Gartenberg  wrote:
> 
> Hi Jeanie - 
> 
> My heart goes out to you.  I know my Dad would want you to keep fighting and 
> going on.  I can tell from your posts that you have a wonderful positive 
> energy that keeps you going.  Please hang there.  
> 
> Regards and 18s,
> Shaun
> 
>   Virus-free. www.avast.com
> 
>> On Mon, Dec 31, 2018 at 11:03 AM 'Jeanie' via CMLHope 
>>  wrote:
>> Thank you Shaun
>> I miss him too so much. Sometimes I feel like giving up and going into 
>> hospice but his words keep whispering in my ear: fight on.  
>> I love the story about the shoes. No he told me he didn’t want the book 
>> published but I know it would help a lot of people. 
>> If you change your mind let me know. 
>> What a great family he had 
>> Keep in touch 
>> Happy New Year
>> Love you so very much 
>> Jeanie 18
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian 
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> 
>>> On Dec 31, 2018, at 2:21 AM, Kathy Walls  
>>> wrote:
>>> 
>>> Please remove my wife from your group Please, she too is gone. Our 
>>> daughter plays with her phone  she does not to see these posts!  I beg you 
>>> please remove her
>>> 
>>> Sent from my iPhone
>>> 
 On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
 
 Hi Jeanie - 
 
 I miss him every day.  I'm glad he was able to still help you while he was 
 in rehab.  He was going through a lot even then, and it just goes to show 
 that he was a fighter even to the end.  My thoughts and prayers are with 
 you in beating your disease.
 
 I appreciate your feedback about his book and I agree with you.  I know 
 those stories well and I'm grateful to have his words and thoughts to hold 
 on to.  I'm not sure that he actually wanted the book published, though.  
 I think it was something more personal that he just wanted to share with 
 family and friends.  I appreciate your offer.  
 
 I wish everyone here a very healthy and happy holiday and New Year.   Take 
 care and be well!
 
 Regards and 18's
 Shaun
 
Virus-free. www.avast.com
 
> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope 
>  wrote:
> Thanks so much Shaun.  I always knew he was suffering and he tick on our 
> sufferings too. I miss him so much.  He was helping me with my new 
> thyroid disease while he was in rehab. 
> Have you given some thought to having his book published?  If you decide 
> to have it published I could get my daughter to help you through amazon 
> kindle. He gave me parts of the book and it was so uplifting.  You can 
> feel his love and care come through his pages 
> I especially loved the part about the pair of walking shoes. He left his 
> love on earth and I can still feel his spirit in my daily battle against 
> leukemia and other old age problems he was helping us with. 
> Good luck and keep in touch. 
> Love ya!
> Jeanie 
> 
>> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>> 
>> Hi Jeanie - 
>> 
>> That's OK.  My father was getting Tylenol for his pain and Ativan for 
>> his anxiety.  He wasn't getting stronger pain medicines because it would 
>> give him hallucinations and confusion.  I read to him several times the 
>> patient's prayer and the mind of matter mantra to try to help him focus 
>> on feeling better.   I hope that brought him some comfort.
>> 
>> To everyone in this group I wish a very happy and healthy (belated) 
>> Thanksgiving. I am so grateful to see what strong support group you all 
>> have with each other and glad that my Dad was able to 

Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

My heart goes out to you.  I know my Dad would want you to keep fighting
and going on.  I can tell from your posts that you have a wonderful
positive energy that keeps you going.  Please hang there.

Regards and 18s,
Shaun


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Mon, Dec 31, 2018 at 11:03 AM 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thank you Shaun
> I miss him too so much. Sometimes I feel like giving up and going into
> hospice but his words keep whispering in my ear: fight on.
> I love the story about the shoes. No he told me he didn’t want the book
> published but I know it would help a lot of people.
> If you change your mind let me know.
> What a great family he had
> Keep in touch
> Happy New Year
> Love you so very much
> Jeanie 18
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Dec 31, 2018, at 2:21 AM, Kathy Walls 
> wrote:
>
> Please remove my wife from your group Please, she too is gone. Our
> daughter plays with her phone  she does not to see these posts!  I beg you
> please remove her
>
> Sent from my iPhone
>
> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
>
> Hi Jeanie -
>
> I miss him every day.  I'm glad he was able to still help you while he was
> in rehab.  He was going through a lot even then, and it just goes to show
> that he was a fighter even to the end.  My thoughts and prayers are with
> you in beating your disease.
>
> I appreciate your feedback about his book and I agree with you.  I know
> those stories well and I'm grateful to have his words and thoughts to hold
> on to.  I'm not sure that he actually wanted the book published, though.  I
> think it was something more personal that he just wanted to share with
> family and friends.  I appreciate your offer.
>
> I wish everyone here a very healthy and happy holiday and New Year.   Take
> care and be well!
>
> Regards and 18's
> Shaun
>
>
> 
>  Virus-free.
> www.avast.com
> 
> <#m_3334799117472742339_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>
> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Thanks so much Shaun.  I always knew he was suffering and he tick on our
>> sufferings too. I miss him so much.  He was helping me with my new thyroid
>> disease while he was in rehab.
>> Have you given some thought to having his book published?  If you decide
>> to have it published I could get my daughter to help you through amazon
>> kindle. He gave me parts of the book and it was so uplifting.  You can feel
>> his love and care come through his pages
>> I especially loved the part about the pair of walking shoes. He left his
>> love on earth and I can still feel his spirit in my daily battle against
>> leukemia and other old age problems he was helping us with.
>> Good luck and keep in touch.
>> Love ya!
>> Jeanie
>>
>> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>>
>> Hi Jeanie -
>>
>> That's OK.  My father was getting Tylenol for his pain and Ativan for his
>> anxiety.  He wasn't getting stronger pain medicines because it would give
>> him hallucinations and confusion.  I read to him several times the
>> patient's prayer and the mind of matter mantra to try to help him focus on
>> feeling better.   I hope that brought him some comfort.
>>
>> To everyone in this group I wish a very happy and healthy (belated)
>> Thanksgiving. I am so grateful to see what strong support group you all
>> have with each other and glad that my Dad was able to be a part of it.  I
>> am so thankful and blessed to have had him as my father.
>>
>> Regards and 18's
>> Shaun
>>
>>
>>
>> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>>
>>> Hi Shaun
>>> I know you are in a lot of grief and if you don’t feel like talking
>>> about I will understand.
>>> I have never feared death but always feared that I would be in a lot of
>>> pain while dying. My question is did they give your dad pain meds before he
>>> went into hospice?
>>> I miss him so much as he was my advisor as well as my friend.
>>> Prayers to you and yours
>>> Jeanie
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> Jeanie
>>> free
>>> Christian
>>> 

Re: [CMLHope] Hi Shaun question

['Jeanie' via CMLHope]

Thank you Shaun
I miss him too so much. Sometimes I feel like giving up and going into hospice 
but his words keep whispering in my ear: fight on.  
I love the story about the shoes. No he told me he didn’t want the book 
published but I know it would help a lot of people. 
If you change your mind let me know. 
What a great family he had 
Keep in touch 
Happy New Year
Love you so very much 
Jeanie 18

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Dec 31, 2018, at 2:21 AM, Kathy Walls  wrote:
> 
> Please remove my wife from your group Please, she too is gone. Our 
> daughter plays with her phone  she does not to see these posts!  I beg you 
> please remove her
> 
> Sent from my iPhone
> 
>> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
>> 
>> Hi Jeanie - 
>> 
>> I miss him every day.  I'm glad he was able to still help you while he was 
>> in rehab.  He was going through a lot even then, and it just goes to show 
>> that he was a fighter even to the end.  My thoughts and prayers are with you 
>> in beating your disease.
>> 
>> I appreciate your feedback about his book and I agree with you.  I know 
>> those stories well and I'm grateful to have his words and thoughts to hold 
>> on to.  I'm not sure that he actually wanted the book published, though.  I 
>> think it was something more personal that he just wanted to share with 
>> family and friends.  I appreciate your offer.  
>> 
>> I wish everyone here a very healthy and happy holiday and New Year.   Take 
>> care and be well!
>> 
>> Regards and 18's
>> Shaun
>> 
>>  Virus-free. www.avast.com
>> 
>>> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope 
>>>  wrote:
>>> Thanks so much Shaun.  I always knew he was suffering and he tick on our 
>>> sufferings too. I miss him so much.  He was helping me with my new thyroid 
>>> disease while he was in rehab. 
>>> Have you given some thought to having his book published?  If you decide to 
>>> have it published I could get my daughter to help you through amazon 
>>> kindle. He gave me parts of the book and it was so uplifting.  You can feel 
>>> his love and care come through his pages 
>>> I especially loved the part about the pair of walking shoes. He left his 
>>> love on earth and I can still feel his spirit in my daily battle against 
>>> leukemia and other old age problems he was helping us with. 
>>> Good luck and keep in touch. 
>>> Love ya!
>>> Jeanie 
>>> 
 On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
 
 Hi Jeanie - 
 
 That's OK.  My father was getting Tylenol for his pain and Ativan for his 
 anxiety.  He wasn't getting stronger pain medicines because it would give 
 him hallucinations and confusion.  I read to him several times the 
 patient's prayer and the mind of matter mantra to try to help him focus on 
 feeling better.   I hope that brought him some comfort.
 
 To everyone in this group I wish a very happy and healthy (belated) 
 Thanksgiving. I am so grateful to see what strong support group you all 
 have with each other and glad that my Dad was able to be a part of it.  I 
 am so thankful and blessed to have had him as my father.
 
 Regards and 18's
 Shaun
 
 
 
> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope 
>  wrote:
> 
> Hi Shaun
> I know you are in a lot of grief and if you don’t feel like talking about 
> I will understand. 
> I have never feared death but always feared that I would be in a lot of 
> pain while dying. My question is did they give your dad pain meds before 
> he went into hospice?   
> I miss him so much as he was my advisor as well as my friend. 
> Prayers to you and yours 
> Jeanie 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
>> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>> 
>> Hi Sherri,
>> 
>> This is Shaun.  My family and I greatly appreciate your heartwarming 
>> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) 
>> sends her thanks, as well.
>> 
>> Regards,
>> Shaun
>> 
>>> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
>>>  wrote:
>>> Hello Shaun, 
>>> 
>>> I am so 

Re: [CMLHope] Hi Shaun question

[Kathy Walls]

Please remove my wife from your group Please, she too is gone. Our daughter 
plays with her phone  she does not to see these posts!  I beg you please remove 
her

Sent from my iPhone

> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
> 
> Hi Jeanie - 
> 
> I miss him every day.  I'm glad he was able to still help you while he was in 
> rehab.  He was going through a lot even then, and it just goes to show that 
> he was a fighter even to the end.  My thoughts and prayers are with you in 
> beating your disease.
> 
> I appreciate your feedback about his book and I agree with you.  I know those 
> stories well and I'm grateful to have his words and thoughts to hold on to.  
> I'm not sure that he actually wanted the book published, though.  I think it 
> was something more personal that he just wanted to share with family and 
> friends.  I appreciate your offer.  
> 
> I wish everyone here a very healthy and happy holiday and New Year.   Take 
> care and be well!
> 
> Regards and 18's
> Shaun
> 
>   Virus-free. www.avast.com
> 
>> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope 
>>  wrote:
>> Thanks so much Shaun.  I always knew he was suffering and he tick on our 
>> sufferings too. I miss him so much.  He was helping me with my new thyroid 
>> disease while he was in rehab. 
>> Have you given some thought to having his book published?  If you decide to 
>> have it published I could get my daughter to help you through amazon kindle. 
>> He gave me parts of the book and it was so uplifting.  You can feel his love 
>> and care come through his pages 
>> I especially loved the part about the pair of walking shoes. He left his 
>> love on earth and I can still feel his spirit in my daily battle against 
>> leukemia and other old age problems he was helping us with. 
>> Good luck and keep in touch. 
>> Love ya!
>> Jeanie 
>> 
>>> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>>> 
>>> Hi Jeanie - 
>>> 
>>> That's OK.  My father was getting Tylenol for his pain and Ativan for his 
>>> anxiety.  He wasn't getting stronger pain medicines because it would give 
>>> him hallucinations and confusion.  I read to him several times the 
>>> patient's prayer and the mind of matter mantra to try to help him focus on 
>>> feeling better.   I hope that brought him some comfort.
>>> 
>>> To everyone in this group I wish a very happy and healthy (belated) 
>>> Thanksgiving. I am so grateful to see what strong support group you all 
>>> have with each other and glad that my Dad was able to be a part of it.  I 
>>> am so thankful and blessed to have had him as my father.
>>> 
>>> Regards and 18's
>>> Shaun
>>> 
>>> 
>>> 
 On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope 
  wrote:
 
 Hi Shaun
 I know you are in a lot of grief and if you don’t feel like talking about 
 I will understand. 
 I have never feared death but always feared that I would be in a lot of 
 pain while dying. My question is did they give your dad pain meds before 
 he went into hospice?   
 I miss him so much as he was my advisor as well as my friend. 
 Prayers to you and yours 
 Jeanie 
 My Motto:
 Faith and Pills
 With Love
 Jeanie
 free
 Christian 
 Dx 1/2004 CML Leukemia
 Started Gleevec 2/2004
 Started Tasigna 9/2009
 Started Sprycel 11/2009
 Started Ponatinib 1/ 2015 15 mg
 New Doctor--Dr Martine Extermann
 Moffitt Cancer  center sept 2017
 Dr Balducci retired 
 Dr Gedia PCD
 0 CBL. ABL
 July 2018 dx with thyroid disease tsh 13
 T4-normal t3-normal
 
> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
> 
> Hi Sherri,
> 
> This is Shaun.  My family and I greatly appreciate your heartwarming 
> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) 
> sends her thanks, as well.
> 
> Regards,
> Shaun
> 
>> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
>>  wrote:
>> Hello Shaun, 
>> 
>> I am so very sorry to hear about your dad. He was such a kind and 
>> gentile man and he will be missed by many.  I wanted to let you know 
>> that I have planted a tree in his name in Israel. May this serve as a 
>> living tribute to his memory. You and your family are in my thoughts and 
>> prayers. Marty will always be in my heart and on my mind.  My heart is 
>> broken knowing I will not receive another message from Marty and we will 
>> no longer share share photos. 
>> 
>> 
>> As long as we live, they too will live; for they are now are a part of 
>> us; as we remember them. 
>> 
>> Regards, 
>> 
>> Sherri Swanson
>> 
>> 
>> 
>> 
>> 
>>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  
>>> wrote:
>>> Hi everyone -
>>> 
>>> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
>>> stories, kind thoughts, 

Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

I miss him every day.  I'm glad he was able to still help you while he was
in rehab.  He was going through a lot even then, and it just goes to show
that he was a fighter even to the end.  My thoughts and prayers are with
you in beating your disease.

I appreciate your feedback about his book and I agree with you.  I know
those stories well and I'm grateful to have his words and thoughts to hold
on to.  I'm not sure that he actually wanted the book published, though.  I
think it was something more personal that he just wanted to share with
family and friends.  I appreciate your offer.

I wish everyone here a very healthy and happy holiday and New Year.   Take
care and be well!

Regards and 18's
Shaun


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thanks so much Shaun.  I always knew he was suffering and he tick on our
> sufferings too. I miss him so much.  He was helping me with my new thyroid
> disease while he was in rehab.
> Have you given some thought to having his book published?  If you decide
> to have it published I could get my daughter to help you through amazon
> kindle. He gave me parts of the book and it was so uplifting.  You can feel
> his love and care come through his pages
> I especially loved the part about the pair of walking shoes. He left his
> love on earth and I can still feel his spirit in my daily battle against
> leukemia and other old age problems he was helping us with.
> Good luck and keep in touch.
> Love ya!
> Jeanie
>
> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>
> Hi Jeanie -
>
> That's OK.  My father was getting Tylenol for his pain and Ativan for his
> anxiety.  He wasn't getting stronger pain medicines because it would give
> him hallucinations and confusion.  I read to him several times the
> patient's prayer and the mind of matter mantra to try to help him focus on
> feeling better.   I hope that brought him some comfort.
>
> To everyone in this group I wish a very happy and healthy (belated)
> Thanksgiving. I am so grateful to see what strong support group you all
> have with each other and glad that my Dad was able to be a part of it.  I
> am so thankful and blessed to have had him as my father.
>
> Regards and 18's
> Shaun
>
>
>
> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>>
>> Hi Shaun
>> I know you are in a lot of grief and if you don’t feel like talking about
>> I will understand.
>> I have never feared death but always feared that I would be in a lot of
>> pain while dying. My question is did they give your dad pain meds before he
>> went into hospice?
>> I miss him so much as he was my advisor as well as my friend.
>> Prayers to you and yours
>> Jeanie
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>>
>> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>>
>> Hi Sherri,
>>
>> This is Shaun.  My family and I greatly appreciate your heartwarming
>> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) sends
>> her thanks, as well.
>>
>> Regards,
>> Shaun
>>
>> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson <
>> swanson.sherri...@gmail.com> wrote:
>>
>>> Hello Shaun,
>>>
>>> I am so very sorry to hear about your dad. He was such a kind and
>>> gentile man and he will be missed by many.  I wanted to let you know that I
>>> have planted a tree in his name in Israel. May this serve as a living
>>> tribute to his memory. You and your family are in my thoughts and prayers.
>>> Marty will always be in my heart and on my mind.  My heart is broken
>>> knowing I will not receive another message from Marty and we will no longer
>>> share share photos.
>>>
>>>
>>>
>>> *As long as we live, they too will live; for they are now are a part of
>>> us; as we remember them. *
>>>
>>> Regards,
>>>
>>> Sherri Swanson
>>>
>>>
>>>
>>>
>>>
>>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg 
>>> wrote:
>>>
 Hi everyone -

 This is Marty's son, Shaun, again.  Thank-you all so much for all the
 stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
 are all so grateful to know how loved he was and how he was able to touch
 so many lives in a profound way.

 Hi Wayne - please do not cancel this thread.  I am still checking in on
 it and relaying to rest 

Re: [CMLHope] Thyroid issues

['Jeanie' via CMLHope]

Hi Beth and thanks
Yes I started losing hair and weight.  Felt tired and sleepy. Dr said tsh was 
high. But the Levo he gave me made me so nervous I thought I was having a panic 
attack. Also gave me chest pains. I think I have hyper not hypo.  So wrong 
meds. 
Going soon to have it rechecked. 
Thanks again.  
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Dec 28, 2018, at 7:18 PM, bkbarney via CMLHope  
> wrote:
> 
> I do take the levothyroxine. It puts my numbers in order, at least on paper. 
> I hope you are seeing an endocrinologist. Yes? A thyroid specialist? I do not 
> know why it would make your numbers worse? it should not make it worse. It 
> might not work well...at first, until meds are adjusted if it's the right 
> medication at the right dose for  you. If your numbers are worse and you are 
> not feeling well...definitely get to a specialist. They can physically check 
> your neck, perhaps do an ultrasound..other more advanced diagnostic thyroid 
> blood tests etc...maybe they need to rule out other issues..
> 
> Hope this is the year that you find some more answers and feel better!!! 
> Thinking of you...
> 
> 18/s Beth
> 
> 
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Fri, Dec 28, 2018 9:45 am
> Subject: [CMLHope] Thyroid issues
> 
> Hi Beth
> I didn’t know you had thyroid issues. 
> Maybe you can help me. My tsh was high and the dr gave me Levo meds but they 
> made it worse. How is yours being treated?  Thanks Jeanie 
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
> On Dec 27, 2018, at 1:06 PM, rszim0702 via CMLHope  
> wrote:
> 
>> Thanks Beth for your note to us. As we all are above ground today, it's a 
>> great day as Marty used to say. I hope everyone's holiday time was precious 
>> with family. The noise at our get-together was deafening! With 33 in 
>> attendance it was lots of fun. Our Secret Santa time was fantastic, too. I 
>> got an ab-worker which could help me exercise...if I pick it up.
>> 
>> All is well if we don't talk about our ills! Be blessed and enjoy the New 
>> Year coming in...with new futures, new prosperity, and new fulfillment 
>> because we are looking to be kind instead of right, and joyous and 
>> light-hearted as we give of ourselves to others.
>> 
>> And when we need to share about our recent physical problems, that's what we 
>> are here for, too!  Beth, hang in there and Jeannie, and Greenie, too. Gotta 
>> go!
>> 
>> 18's and love and hugs,
>> Susan Z.
>> 
>> 
>> On Dec 26, 2018 2:09 PM, bkbarney via CMLHope  
>> wrote:
>> Hanging in there. Cancer showing ongoing but at low rates. Cannot take 
>> enough meds to get to PCRU but that's O.K.,Side effects still here, muscle 
>> and heart and my usual thyroid issues, but I stay positive and carry on. On 
>> vacation, made it this year, so enjoying shelling and the beach...windy but 
>> great shelling!!
>> 
>> Love to all, and please, lets all stay together here this coming year. Zavie 
>> and Marty taught us well,  along with Millie and many otherscommunity 
>> and shared experiences mean so much
>> 
>> Love, and 18's to all
>> 
>> Beth
>> 
>> 
>> -Original Message-
>> From: 'Jeanie' via CMLHope 
>> To: cmlhope 
>> Sent: Wed, Dec 26, 2018 2:02 pm
>> Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all
>> 
>> Thank you so much how are you?
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian 
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> 
>&

Re: [CMLHope] Thyroid issues

[bkbarney via CMLHope]

I do take the levothyroxine. It puts my numbers in order, at least on paper. I 
hope you are seeing an endocrinologist. Yes? A thyroid specialist? I do not 
know why it would make your numbers worse? it should not make it worse. It 
might not work well...at first, until meds are adjusted if it's the right 
medication at the right dose for  you. If your numbers are worse and you are 
not feeling well...definitely get to a specialist. They can physically check 
your neck, perhaps do an ultrasound..other more advanced diagnostic thyroid 
blood tests etc...maybe they need to rule out other issues..
Hope this is the year that you find some more answers and feel better!!! 
Thinking of you...
18/s Beth    


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Fri, Dec 28, 2018 9:45 am
Subject: [CMLHope] Thyroid issues

Hi BethI didn’t know you had thyroid issues. Maybe you can help me. My tsh was 
high and the dr gave me Levo meds but they made it worse. How is yours being 
treated?  Thanks Jeanie 

My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Dec 27, 2018, at 1:06 PM, rszim0702 via CMLHope  
wrote:


Thanks Beth for your note to us. As we all are above ground today, it's a great 
day as Marty used to say. I hope everyone's holiday time was precious with 
family. The noise at our get-together was deafening! With 33 in attendance it 
was lots of fun. Our Secret Santa time was fantastic, too. I got an ab-worker 
which could help me exercise...if I pick it up.
All is well if we don't talk about our ills! Be blessed and enjoy the New Year 
coming in...with new futures, new prosperity, and new fulfillment because we 
are looking to be kind instead of right, and joyous and light-hearted as we 
give of ourselves to others.

And when we need to share about our recent physical problems, that's what we 
are here for, too!  Beth, hang in there and Jeannie, and Greenie, too. Gotta go!
18's and love and hugs,Susan Z.

On Dec 26, 2018 2:09 PM, bkbarney via CMLHope  wrote:

Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough 
meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart 
and my usual thyroid issues, but I stay positive and carry on. On vacation, 
made it this year, so enjoying shelling and the beach...windy but great 
shelling!!
Love to all, and please, lets all stay together here this coming year. Zavie 
and Marty taught us well,  along with Millie and many otherscommunity and 
shared experiences mean so much
Love, and 18's to all
Beth


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Dec 26, 2018 2:02 pm
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Thank you so much how are you?

My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope  
wrote:


hi Jeanie and Susan Z,
Wishing you both a happy and peaceful New Year filled with moments of joy and 
sweetness amidst all the healthy struggles. You are both such strong woman and 
I admire the courage you both show in navigating multiple health issues at 
once. I feel for both you..
Stay positive and now that lots of us out here are thinking of you.
Happy holidays!!
18's Beth


-Original Message-
From: rszim0702 via CMLHope 
To: cmlhope 
Sent: Sat, Dec 15, 2018 10:00 am
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia 
myself. Along with IBS, I have to make myself go out of the house. All of you 
keep warm and have a wonderful Merry Christmas!!! It is what you make it. 18's 
and hugs,Susan Z

On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote:

 Wishing the best to you in the New Year.
Sent from my LG Mobile
-- Original message--From: 'Icandoallttc' via CMLHope Date: Sat, Dec 
15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry 
Christmas and happy Holidays to all
Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting 
another disease: thyroid. At least that’s what they think it is.  Lost about 30 
pounds: losing hair-sweating for no reason and more. I can’t take the meds as 
they make it worse. No matter what-fight on. -- -- [CMLHope]A support 
group of http://cmlhope.com-You 
received this message because you

Re: [CMLHope] Merry Christmas and happy Holidays to all

[rszim0702 via CMLHope]

Thanks Beth for your note to us. As we all are above ground today, it's a great day as Marty used to say. I hope everyone's holiday time was precious with family. The noise at our get-together was deafening! With 33 in attendance it was lots of fun. Our Secret Santa time was fantastic, too. I got an ab-worker which could help me exercise...if I pick it up.All is well if we don't talk about our ills! Be blessed and enjoy the New Year coming in...with new futures, new prosperity, and new fulfillment because we are looking to be kind instead of right, and joyous and light-hearted as we give of ourselves to others.And when we need to share about our recent physical problems, that's what we are here for, too!  Beth, hang in there and Jeannie, and Greenie, too. Gotta go!18's and love and hugs,Susan Z.On Dec 26, 2018 2:09 PM, bkbarney via CMLHope  wrote:Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart and my usual thyroid issues, but I stay positive and carry on. On vacation, made it this year, so enjoying shelling and the beach...windy but great shelling!!



Love to all, and please, lets all stay together here this coming year. Zavie and Marty taught us well,  along with Millie and many otherscommunity and shared experiences mean so much




Love, and 18's to all




Beth



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Dec 26, 2018 2:02 pm
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all



Thank you so much how are you?
My Motto:
Faith and Pills

With Love

Jeanie

free

Christian 

Dx 1/2004 CML Leukemia

Started Gleevec 2/2004

Started Tasigna 9/2009

Started Sprycel 11/2009

Started Ponatinib 1/ 2015 15 mg

New Doctor--Dr Martine Extermann

Moffitt Cancer  center sept 2017

Dr Balducci retired 

Dr Gedia PCD

0 CBL. ABL

July 2018 dx with thyroid disease tsh 13

T4-normal t3-normal



On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote:

hi Jeanie and Susan Z,






Wishing you both a happy and peaceful New Year filled with moments of joy and sweetness amidst all the healthy struggles. You are both such strong woman and I admire the courage you both show in navigating multiple health issues at once. I feel for both you..








Stay positive and now that lots of us out here are thinking of you.








Happy holidays!!








18's Beth




-Original Message-
From: rszim0702 via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Sat, Dec 15, 2018 10:00 am
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all







Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia myself. Along with IBS, I have to make myself go out of the house. All of you keep warm and have a wonderful Merry Christmas!!! It is what you make it. 

18's and hugs,Susan Z















On Dec 15, 2018 9:10 AM, esders@rogers.com wrote:






Wishing the best to you in the New Year.









Sent from my LG Mobile















-- Original message--



From: 'Icandoallttc' via CMLHope 



Date: Sat, Dec 15, 2018 3:15 AM



To: cmlhope@googlegroups.com;



Cc: 



Subject:[CMLHope] Merry Christmas and happy Holidays to all







Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting another disease: thyroid. At least that’s what they think it is.  Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t take the meds as they make it worse. No matter what-fight on. -- -- [CMLHope]A support group of http://cmlhope.com-You received this message because you are subscribed to the Google Groups "CMLHope" group.To post to this group, send email to CMLHope@googlegroups.comTo unsubscribe from this group, send email to CMLHope-unsubscribe@googlegroups.comFor more options, visit this group at http://groups.google.com/group/CMLHope--- You received this message because you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroups.com.For more options, visit https://groups.google.com/d/optout.
















-- 
-- 
[CMLHope]
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Re: [CMLHope] Merry Christmas and happy Holidays to all

[myvety2k via CMLHope]

Hi Beth, It's nice to get away from cold weather that's why we moved 9 years 
ago from Northwest Indiana.  I'll take the heat but can't stand the cold. You 
only have about 4 to 5 months of good weather up North but only 4 to 5 months 
of real hot weather in Florida.  Moved to Sebring to get away from to many 
people in South Fort Myers. To much crime, cars, people, have to go out to eat 
early so you don't have to wait 1 to 2 hours to get in. And the biggest reason 
was the house we were in had 12.9 Radon in it and that was not good for Grace 
with her COPD.  They are building so many apartments and home there so it will 
be worse.  Much slower living here, and Grace purchased me a Tracker bass boat 
so I can get back to fishing, and there are so many lake to fish in.  Anyway 
take care.
Dave Greenberg

-Original Message-
From: bkbarney via CMLHope 
To: cmlhope 
Sent: Wed, Dec 26, 2018 2:09 pm
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough 
meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart 
and my usual thyroid issues, but I stay positive and carry on. On vacation, 
made it this year, so enjoying shelling and the beach...windy but great 
shelling!!
Love to all, and please, lets all stay together here this coming year. Zavie 
and Marty taught us well,  along with Millie and many otherscommunity and 
shared experiences mean so much
Love, and 18's to all
Beth


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Dec 26, 2018 2:02 pm
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Thank you so much how are you?

My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope  
wrote:


hi Jeanie and Susan Z,
Wishing you both a happy and peaceful New Year filled with moments of joy and 
sweetness amidst all the healthy struggles. You are both such strong woman and 
I admire the courage you both show in navigating multiple health issues at 
once. I feel for both you..
Stay positive and now that lots of us out here are thinking of you.
Happy holidays!!
18's Beth


-Original Message-
From: rszim0702 via CMLHope 
To: cmlhope 
Sent: Sat, Dec 15, 2018 10:00 am
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia 
myself. Along with IBS, I have to make myself go out of the house. All of you 
keep warm and have a wonderful Merry Christmas!!! It is what you make it. 18's 
and hugs,Susan Z

On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote:

 Wishing the best to you in the New Year.
Sent from my LG Mobile
-- Original message--From: 'Icandoallttc' via CMLHope Date: Sat, Dec 
15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry 
Christmas and happy Holidays to all
Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting 
another disease: thyroid. At least that’s what they think it is.  Lost about 30 
pounds: losing hair-sweating for no reason and more. I can’t take the meds as 
they make it worse. No matter what-fight on. -- -- [CMLHope]A support 
group of http://cmlhope.com-You 
received this message because you are subscribed to the Google Groups "CMLHope" 
group.To post to this group, send email to CMLHope@googlegroups.comTo 
unsubscribe from this group, send email to 
CMLHope-unsubscribe@googlegroups.comFor more options, visit this group at 
http://groups.google.com/group/CMLHope--- You received this message because you 
are subscribed to the Google Groups "CMLHope" group.To unsubscribe from this 
group and stop receiving emails from it, send an email to 
cmlhope+unsubscr...@googlegroups.com.for more options, visit 
https://groups.google.com/d/optout.-- 
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-- 
-- 
[CMLHop

Re: [CMLHope] Merry Christmas and happy Holidays to all

[bkbarney via CMLHope]

Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough 
meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart 
and my usual thyroid issues, but I stay positive and carry on. On vacation, 
made it this year, so enjoying shelling and the beach...windy but great 
shelling!!
Love to all, and please, lets all stay together here this coming year. Zavie 
and Marty taught us well,  along with Millie and many otherscommunity and 
shared experiences mean so much
Love, and 18's to all
Beth


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Dec 26, 2018 2:02 pm
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Thank you so much how are you?

My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope  
wrote:


hi Jeanie and Susan Z,
Wishing you both a happy and peaceful New Year filled with moments of joy and 
sweetness amidst all the healthy struggles. You are both such strong woman and 
I admire the courage you both show in navigating multiple health issues at 
once. I feel for both you..
Stay positive and now that lots of us out here are thinking of you.
Happy holidays!!
18's Beth


-Original Message-
From: rszim0702 via CMLHope 
To: cmlhope 
Sent: Sat, Dec 15, 2018 10:00 am
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia 
myself. Along with IBS, I have to make myself go out of the house. All of you 
keep warm and have a wonderful Merry Christmas!!! It is what you make it. 18's 
and hugs,Susan Z

On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote:

 Wishing the best to you in the New Year.
Sent from my LG Mobile
-- Original message--From: 'Icandoallttc' via CMLHope Date: Sat, Dec 
15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry 
Christmas and happy Holidays to all
Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting 
another disease: thyroid. At least that’s what they think it is.  Lost about 30 
pounds: losing hair-sweating for no reason and more. I can’t take the meds as 
they make it worse. No matter what-fight on. -- -- [CMLHope]A support 
group of http://cmlhope.com-You 
received this message because you are subscribed to the Google Groups "CMLHope" 
group.To post to this group, send email to CMLHope@googlegroups.comTo 
unsubscribe from this group, send email to 
CMLHope-unsubscribe@googlegroups.comFor more options, visit this group at 
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Re: [CMLHope] Merry Christmas and happy Holidays to all

['Jeanie' via CMLHope]

Thank you so much how are you?

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope  
> wrote:
> 
> hi Jeanie and Susan Z,
> 
> Wishing you both a happy and peaceful New Year filled with moments of joy and 
> sweetness amidst all the healthy struggles. You are both such strong woman 
> and I admire the courage you both show in navigating multiple health issues 
> at once. I feel for both you..
> 
> Stay positive and now that lots of us out here are thinking of you.
> 
> Happy holidays!!
> 
> 18's Beth
> 
> 
> -Original Message-
> From: rszim0702 via CMLHope 
> To: cmlhope 
> Sent: Sat, Dec 15, 2018 10:00 am
> Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all
> 
> Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia 
> myself. Along with IBS, I have to make myself go out of the house. All of you 
> keep warm and have a wonderful Merry Christmas!!! It is what you make it. 
> 18's and hugs,Susan Z
> 
> 
> On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote:
> Wishing the best to you in the New Year.
> 
> Sent from my LG Mobile
> 
> -- Original message--
> From: 'Icandoallttc' via CMLHope
> Date: Sat, Dec 15, 2018 3:15 AM
> To: cmlhope@googlegroups.com;
> Cc:
> Subject:[CMLHope] Merry Christmas and happy Holidays to all
> 
> Hi allMerry Christmas and Happy Holidays to all. I am ending the year 
> fighting another disease: thyroid. At least that’s what they think it is.  
> Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t 
> take the meds as they make it worse. No matter what-fight on. -- -- 
> [CMLHope]A support group of 
> http://cmlhope.com-You 
> received this message because you are subscribed to the Google Groups 
> "CMLHope" group.To post to this group, send email to 
> CMLHope@googlegroups.comTo unsubscribe from this group, send email to 
> CMLHope-unsubscribe@googlegroups.comFor more options, visit this group at 
> http://groups.google.com/group/CMLHope--- You received this message because 
> you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from 
> this group and stop receiving emails from it, send an email to 
> cmlhope+unsubscr...@googlegroups.com.for more options, visit 
> https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
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>  
> You received this message because you are subscribed to the Google Groups 
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> -- 
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> You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Merry Christmas and happy Holidays to all

[bkbarney via CMLHope]

hi Jeanie and Susan Z,
Wishing you both a happy and peaceful New Year filled with moments of joy and 
sweetness amidst all the healthy struggles. You are both such strong woman and 
I admire the courage you both show in navigating multiple health issues at 
once. I feel for both you..
Stay positive and now that lots of us out here are thinking of you.
Happy holidays!!
18's Beth


-Original Message-
From: rszim0702 via CMLHope 
To: cmlhope 
Sent: Sat, Dec 15, 2018 10:00 am
Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all

Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia 
myself. Along with IBS, I have to make myself go out of the house. All of you 
keep warm and have a wonderful Merry Christmas!!! It is what you make it. 18's 
and hugs,Susan Z

On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote:

 Wishing the best to you in the New Year.
Sent from my LG Mobile
-- Original message--From: 'Icandoallttc' via CMLHope Date: Sat, Dec 
15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry 
Christmas and happy Holidays to all
Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting 
another disease: thyroid. At least that’s what they think it is.  Lost about 30 
pounds: losing hair-sweating for no reason and more. I can’t take the meds as 
they make it worse. No matter what-fight on. -- -- [CMLHope]A support 
group of http://cmlhope.com-You 
received this message because you are subscribed to the Google Groups "CMLHope" 
group.To post to this group, send email to CMLHope@googlegroups.comTo 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[bkbarney via CMLHope]

Dear Nick and Elizabeth,
Thank you for your lovely Christmas blessings email. I hope that you both have 
a year ahead filled with good health, moments of joy and wonder and lots of 
love. 
Warmest regards and 18's
Beth


-Original Message-
From: NICK WOODS 
To: cmlhope 
Sent: Tue, Dec 18, 2018 9:45 am
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

 Sending Merry Christmas and Happy Holidays to each of you.  Nick's at year 15 
with CML. For each day together we thank God and appreciate this time, this 
day.He's had muscle shrinkage, and the pains which we guess go with CML in 
muscle, joint, the spine.   The hair loss. The sweating to the point of soaking 
parts of T-shirt and flannel when he's working on tractor or moving lumber and 
equipment.  Sometimes being really chilly and layering clothes to keep warm or 
wrapping up in a blanket as well.  AH! The Gleevec "wonders" years. Every day 
someone does or says something kind or is there when we need help even before 
we know we would need help, and we thank God for that person-for that moment in 
time.  We decided we must pass these moments of goodness on in our way to 
othersnote, e-mail, phone call, smile, listening ear, praying for others, 
opening a door, a nice comment to a stranger.you all do these, 
too.Blessings upon Blessings and Blessed to be a Blessing to others,Elizabeth 
and Nick WoodsOn ‎Tuesday‎, ‎December‎ ‎18‎, ‎2018‎ ‎04‎:‎17‎:‎18‎ ‎AM‎ 
‎CST,  wrote:  
 
   
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Merry Christmas and happy Holidays to all - 1 Update 
Merry Christmas and happy Holidays to all   
|   Jeanie : Dec 17 01:29PM -0500  

 Hi Susan
Thanks for the uplift and sorry for your problems. 
Did you have your thyroid checked. 
I first noticed my right pinkie was numb and then it went all the way to my 
elbow. 
Yes I too don’t want to leave the house. My daughters insist I do. 
Have a wonderful holiday and keep warm. It’s even cold in fl 
Love
 
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal
 
  |

  Back to top
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group. You can change your settings on the group membership page.
 To unsubscribe from this group and stop receiving emails from it send an email 
to cmlhope+unsubscr...@googlegroups.com.  |

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

So glad Nick is doing good and fighting on. I have been fighting for 14 years 
and Gleevec was a real battle. After mutants for other tki I am now on 
Ponatinib. 
Those sweats are the worse. I guess we should just think of them as cleaning 
out those cancer cells. 
I had a wonderful Thanksgiving as my son cooked and cleaned for me. I live 
alone but he is right next door and I stay with him a lot. 
Christmas is my favorite time of the year and we filled 12 bags of gifts for 
family.  Tree is glowing and I’m just happy to be here to enjoy it. I sure miss 
the ones we have lost. 
Thank you so much for your blessings and you guys sure are a blessing to this 
group. 
Have a beautiful time with the season ahead. 
Love you so very much 
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Dec 18, 2018, at 9:45 AM, NICK WOODS  wrote:
> 
> Sending Merry Christmas and Happy Holidays to each of you. 
>  Nick's at year 15 with CML. For each day together we thank God and 
> appreciate this time, this day.
> He's had muscle shrinkage, and the pains which we guess go with CML in 
> muscle, joint, the spine.   The hair loss. The sweating to the point of 
> soaking parts of T-shirt and flannel when he's working on tractor or moving 
> lumber and equipment.  Sometimes being really chilly and layering clothes to 
> keep warm or wrapping up in a blanket as well.  AH! The Gleevec "wonders" 
> years. 
> Every day someone does or says something kind or is there when we need help 
> even before we know we would need help, and we thank God for that person-for 
> that moment in time.  We decided we must pass these moments of goodness on in 
> our way to othersnote, e-mail, phone call, smile, listening ear, praying 
> for others, opening a door, a nice comment to a stranger.you all do 
> these, too.
> Blessings upon Blessings and Blessed to be a Blessing to others,
> Elizabeth and Nick Woods
> On ‎Tuesday‎, ‎December‎ ‎18‎, ‎2018‎ ‎04‎:‎17‎:‎18‎ ‎AM‎ ‎CST, 
>  wrote:
> 
> 
> cmlhope@googlegroups.com  Google Groups  
> Topic digest 
> View all topics
> Merry Christmas and happy Holidays to all - 1 Update
> Merry Christmas and happy Holidays to all 
> Jeanie : Dec 17 01:29PM -0500 
> 
> Hi Susan
> Thanks for the uplift and sorry for your problems. 
> Did you have your thyroid checked. 
> I first noticed my right pinkie was numb and then it went all the way to my 
> elbow. 
> Yes I too don’t want to leave the house. My daughters insist I do. 
> Have a wonderful holiday and keep warm. It’s even cold in fl 
> Love
>  
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>  
> Back to top
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> You can change your settings on the group membership page.
> To unsubscribe from this group and stop receiving emails from it send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[NICK WOODS]

 Sending Merry Christmas and Happy Holidays to each of you.  Nick's at year 15 
with CML. For each day together we thank God and appreciate this time, this 
day.He's had muscle shrinkage, and the pains which we guess go with CML in 
muscle, joint, the spine.   The hair loss. The sweating to the point of soaking 
parts of T-shirt and flannel when he's working on tractor or moving lumber and 
equipment.  Sometimes being really chilly and layering clothes to keep warm or 
wrapping up in a blanket as well.  AH! The Gleevec "wonders" years. Every day 
someone does or says something kind or is there when we need help even before 
we know we would need help, and we thank God for that person-for that moment in 
time.  We decided we must pass these moments of goodness on in our way to 
othersnote, e-mail, phone call, smile, listening ear, praying for others, 
opening a door, a nice comment to a stranger.you all do these, 
too.Blessings upon Blessings and Blessed to be a Blessing to others,Elizabeth 
and Nick WoodsOn ‎Tuesday‎, ‎December‎ ‎18‎, ‎2018‎ ‎04‎:‎17‎:‎18‎ ‎AM‎ 
‎CST,  wrote:  
 
   
|cmlhope@googlegroups.com   |  Google Groups  ||

Topic digest 
  View all topics 
   -   Merry Christmas and happy Holidays to all - 1 Update 
Merry Christmas and happy Holidays to all   
|   Jeanie : Dec 17 01:29PM -0500  

 Hi Susan
Thanks for the uplift and sorry for your problems. 
Did you have your thyroid checked. 
I first noticed my right pinkie was numb and then it went all the way to my 
elbow. 
Yes I too don’t want to leave the house. My daughters insist I do. 
Have a wonderful holiday and keep warm. It’s even cold in fl 
Love
 
My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal
 
  |

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to cmlhope+unsubscr...@googlegroups.com.  |

   

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Re: [CMLHope] Merry Christmas and happy Holidays to all

['Jeanie' via CMLHope]

Hi Susan
Thanks for the uplift and sorry for your problems. 
Did you have your thyroid checked. 
I first noticed my right pinkie was numb and then it went all the way to my 
elbow. 
Yes I too don’t want to leave the house. My daughters insist I do. 
Have a wonderful holiday and keep warm. It’s even cold in fl 
Love

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Dec 15, 2018, at 10:00 AM, rszim0702 via CMLHope 
>  wrote:
> 
> Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia 
> myself. Along with IBS, I have to make myself go out of the house. All of you 
> keep warm and have a wonderful Merry Christmas!!! It is what you make it. 
> 18's and hugs,Susan Z
> 
> 
> On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote:
> Wishing the best to you in the New Year.
> 
> Sent from my LG Mobile
> 
> -- Original message--
> From: 'Icandoallttc' via CMLHope
> Date: Sat, Dec 15, 2018 3:15 AM
> To: cmlhope@googlegroups.com;
> Cc:
> Subject:[CMLHope] Merry Christmas and happy Holidays to all
> 
> Hi allMerry Christmas and Happy Holidays to all. I am ending the year 
> fighting another disease: thyroid. At least that’s what they think it is.  
> Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t 
> take the meds as they make it worse. No matter what-fight on. -- -- 
> [CMLHope]A support group of 
> http://cmlhope.com-You 
> received this message because you are subscribed to the Google Groups 
> "CMLHope" group.To post to this group, send email to 
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> -- 
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Re: [CMLHope] Merry Christmas and happy Holidays to all

[rszim0702 via CMLHope]

Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia myself. Along with IBS, I have to make myself go out of the house. All of you keep warm and have a wonderful Merry Christmas!!! It is what you make it. 18's and hugs,Susan ZOn Dec 15, 2018 9:10 AM, esd...@rogers.com wrote:
Wishing the best to you in the New Year.Sent from my LG Mobile-- Original message--From: 'Icandoallttc' via CMLHope Date: Sat, Dec 15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry Christmas and happy Holidays to allHi allMerry Christmas and Happy Holidays to all. I am ending the year fighting another disease: thyroid. At least that’s what they think it is.  Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t take the meds as they make it worse. No matter what-fight on. -- -- [CMLHope]A support group of http://cmlhope.com-You received this message because you are subscribed to the Google Groups "CMLHope" group.To post to this group, send email to CMLHope@googlegroups.comTo unsubscribe from this group, send email to CMLHope-unsubscribe@googlegroups.comFor more options, visit this group at http://groups.google.com/group/CMLHope--- You received this message because you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroups.com.For more options, visit https://groups.google.com/d/optout.






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Re: [CMLHope] Merry Christmas and happy Holidays to all

[esd...@rogers.com]

Wishing the best to you in the New Year.
Sent from my LG Mobile
-- Original message--From: 'Icandoallttc' via CMLHope Date: Sat, Dec 
15, 2018 3:15 AMTo: cmlhope@googlegroups.com;Cc: Subject:[CMLHope] Merry 
Christmas and happy Holidays to all
Hi allMerry Christmas and Happy Holidays to all. I am ending the year fighting 
another disease: thyroid. At least that’s what they think it is.  Lost about 30 
pounds: losing hair-sweating for no reason and more. I can’t take the meds as 
they make it worse. No matter what-fight on. -- -- [CMLHope]A support 
group of http://cmlhope.com-You 
received this message because you are subscribed to the Google Groups "CMLHope" 
group.To post to this group, send email to CMLHope@googlegroups.comTo 
unsubscribe from this group, send email to 
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Re: [CMLHope] Hi Shaun question

['Icandoallttc' via CMLHope]

Thanks so much Shaun.  I always knew he was suffering and he tick on our 
sufferings too. I miss him so much.  He was helping me with my new thyroid 
disease while he was in rehab. 
Have you given some thought to having his book published?  If you decide to 
have it published I could get my daughter to help you through amazon kindle. He 
gave me parts of the book and it was so uplifting.  You can feel his love and 
care come through his pages 
I especially loved the part about the pair of walking shoes. He left his love 
on earth and I can still feel his spirit in my daily battle against leukemia 
and other old age problems he was helping us with. 
Good luck and keep in touch. 
Love ya!
Jeanie 

> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
> 
> Hi Jeanie - 
> 
> That's OK.  My father was getting Tylenol for his pain and Ativan for his 
> anxiety.  He wasn't getting stronger pain medicines because it would give him 
> hallucinations and confusion.  I read to him several times the patient's 
> prayer and the mind of matter mantra to try to help him focus on feeling 
> better.   I hope that brought him some comfort.
> 
> To everyone in this group I wish a very happy and healthy (belated) 
> Thanksgiving. I am so grateful to see what strong support group you all have 
> with each other and glad that my Dad was able to be a part of it.  I am so 
> thankful and blessed to have had him as my father.
> 
> Regards and 18's
> Shaun
> 
> 
> 
>> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope 
>>  wrote:
>> 
>> Hi Shaun
>> I know you are in a lot of grief and if you don’t feel like talking about I 
>> will understand. 
>> I have never feared death but always feared that I would be in a lot of pain 
>> while dying. My question is did they give your dad pain meds before he went 
>> into hospice?  
>> I miss him so much as he was my advisor as well as my friend. 
>> Prayers to you and yours 
>> Jeanie 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian 
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> 
>>> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>>> 
>>> Hi Sherri,
>>> 
>>> This is Shaun.  My family and I greatly appreciate your heartwarming gift.  
>>> Thank you so very much for that.  My Mom (his wife, Rachelle) sends her 
>>> thanks, as well.
>>> 
>>> Regards,
>>> Shaun
>>> 
 On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
  wrote:
 Hello Shaun, 
 
 I am so very sorry to hear about your dad. He was such a kind and gentile 
 man and he will be missed by many.  I wanted to let you know that I have 
 planted a tree in his name in Israel. May this serve as a living tribute 
 to his memory. You and your family are in my thoughts and prayers. Marty 
 will always be in my heart and on my mind.  My heart is broken knowing I 
 will not receive another message from Marty and we will no longer share 
 share photos. 
 
 
 As long as we live, they too will live; for they are now are a part of us; 
 as we remember them. 
 
 Regards, 
 
 Sherri Swanson
 
 
 
 
 
> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
> Hi everyone -
> 
> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
> stories, kind thoughts, wishes, and prayers for my Dad and our family.  
> We are all so grateful to know how loved he was and how he was able to 
> touch so many lives in a profound way.  
> 
> Hi Wayne - please do not cancel this thread.  I am still checking in on 
> it and relaying to rest of my family.  Just as he helped others, you all 
> are helping us, and we appreciate that, so much.
> 
> Regards,
> Shaun
> 
>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>> Please cancel.  Subscriber is deceased.
>> 
>>  
>> 
>>  
>> 
>> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
>> Sent: November-14-18 5:14 AM
>> To: Digest recipients
>> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 
>> topic
>> 
>>  
>> 
>> cmlhope@googlegroups.com
>> 
>> Google Groups
>> 
>> 
>> 
>> Topic digest 
>> View all topics
>> 
>> ·   Update on Marty G - 1 Update
>> 
>> Update on Marty G
>> 
>> Tracie Camlin : Nov 13 06:50AM -0600 
>> 
>> Dear Shaun and Family,
>>  
>> I am so sorry for your loss. He was truly an amazing person who inspired
>> and supported so many of us. His strength and courage held me up at times
>> he didn't even know about. He will be missed. 

Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

That's OK.  My father was getting Tylenol for his pain and Ativan for his
anxiety.  He wasn't getting stronger pain medicines because it would give
him hallucinations and confusion.  I read to him several times the
patient's prayer and the mind of matter mantra to try to help him focus on
feeling better.   I hope that brought him some comfort.

To everyone in this group I wish a very happy and healthy (belated)
Thanksgiving. I am so grateful to see what strong support group you all
have with each other and glad that my Dad was able to be a part of it.  I
am so thankful and blessed to have had him as my father.

Regards and 18's
Shaun



On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

>
> Hi Shaun
> I know you are in a lot of grief and if you don’t feel like talking about
> I will understand.
> I have never feared death but always feared that I would be in a lot of
> pain while dying. My question is did they give your dad pain meds before he
> went into hospice?
> I miss him so much as he was my advisor as well as my friend.
> Prayers to you and yours
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>
> Hi Sherri,
>
> This is Shaun.  My family and I greatly appreciate your heartwarming
> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) sends
> her thanks, as well.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson <
> swanson.sherri...@gmail.com> wrote:
>
>> Hello Shaun,
>>
>> I am so very sorry to hear about your dad. He was such a kind and gentile
>> man and he will be missed by many.  I wanted to let you know that I have
>> planted a tree in his name in Israel. May this serve as a living tribute to
>> his memory. You and your family are in my thoughts and prayers. Marty will
>> always be in my heart and on my mind.  My heart is broken knowing I will
>> not receive another message from Marty and we will no longer share share
>> photos.
>>
>>
>>
>> *As long as we live, they too will live; for they are now are a part of
>> us; as we remember them. *
>>
>> Regards,
>>
>> Sherri Swanson
>>
>>
>>
>>
>>
>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg 
>> wrote:
>>
>>> Hi everyone -
>>>
>>> This is Marty's son, Shaun, again.  Thank-you all so much for all the
>>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
>>> are all so grateful to know how loved he was and how he was able to touch
>>> so many lives in a profound way.
>>>
>>> Hi Wayne - please do not cancel this thread.  I am still checking in on
>>> it and relaying to rest of my family.  Just as he helped others, you all
>>> are helping us, and we appreciate that, so much.
>>>
>>> Regards,
>>> Shaun
>>>
>>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>>>
 Please cancel.  Subscriber is deceased.





 *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
 *Sent:* November-14-18 5:14 AM
 *To:* Digest recipients
 *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in
 1 topic



 cmlhope@googlegroups.com

 Google Groups
 

 [image: Image removed by sender.]
 

 Topic digest
 View all topics

 ·   Update on Marty G
 <#m_-5400076634479963663_m_-6603616516388195345_m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
 - 1 Update

 Update on Marty G
 

 Tracie Camlin : Nov 13 06:50AM -0600

 Dear Shaun and Family,

 I am so sorry for your loss. He was truly an amazing person who inspired
 and supported so many of us. His strength and courage held me up at
 times
 he didn't even know about. He will be missed. Blessings and much love to
 you and your family.

 Best Regards
 Tracie Mulvaney

 On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <

 Back to top
 <#m_-5400076634479963663_m_-6603616516388195345_m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>

 You received this digest because you're subscribed to updates for 

Re: [CMLHope] Hi Shaun question

[sherri swanson]

Happy Thanksgiving to all my CML friends. May you have a blessed day with
family and friends today. And remember those we have lost.

Sherri

On Thu, Nov 22, 2018 at 6:03 AM myvety2k via CMLHope <
cmlhope@googlegroups.com> wrote:

> And the same to you also Beth and my other CML friends.
>
> greenie
>
>
> -Original Message-
> From: bkbarney via CMLHope 
> To: cmlhope 
> Sent: Wed, Nov 21, 2018 10:22 pm
> Subject: Re: [CMLHope] Hi Shaun question
>
> Hi Shaun and all my  CML buddies here... Just wanted to wish everyone a
> peaceful and Joyful Thanksgiving. I know the holidays can be very grief
> inspiring when we have lost those we love both recently and in the past..
> As I reflect upon the things I am most thankful for this holiday season,
> Marty is one of them. So are each of you who read what I right and even if
> you do not respond, say prayers for me and the rest of us.
>
> Wishing you all a happy holiday.
>
> !8's and love,
>
> Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Wed, Nov 21, 2018 11:59 am
> Subject: [CMLHope] Hi Shaun question
>
>
> Hi Shaun
> I know you are in a lot of grief and if you don’t feel like talking about
> I will understand.
> I have never feared death but always feared that I would be in a lot of
> pain while dying. My question is did they give your dad pain meds before he
> went into hospice?
> I miss him so much as he was my advisor as well as my friend.
> Prayers to you and yours
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>
> Hi Sherri,
>
> This is Shaun.  My family and I greatly appreciate your heartwarming
> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) sends
> her thanks, as well.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson <
> swanson.sherri...@gmail.com> wrote:
>
> Hello Shaun,
>
> I am so very sorry to hear about your dad. He was such a kind and gentile
> man and he will be missed by many.  I wanted to let you know that I have
> planted a tree in his name in Israel. May this serve as a living tribute to
> his memory. You and your family are in my thoughts and prayers. Marty will
> always be in my heart and on my mind.  My heart is broken knowing I will
> not receive another message from Marty and we will no longer share share
> photos.
>
>
>
> *As long as we live, they too will live; for they are now are a part of
> us; as we remember them. *
>
> Regards,
>
> Sherri Swanson
>
>
>
>
>
> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
>
> Hi everyone -
>
> This is Marty's son, Shaun, again.  Thank-you all so much for all the
> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
> are all so grateful to know how loved he was and how he was able to touch
> so many lives in a profound way.
>
> Hi Wayne - please do not cancel this thread.  I am still checking in on it
> and relaying to rest of my family.  Just as he helped others, you all are
> helping us, and we appreciate that, so much.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>
> Please cancel.  Subscriber is deceased.
>
>
> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
> *Sent:* November-14-18 5:14 AM
> *To:* Digest recipients
> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1
> topic
>
> cmlhope@googlegroups.com
> Google Groups
> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
> [image: Image removed by sender.]
> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
> Topic digest
> View all topics
> ·   Update on Marty G
> <#m_1282255373636162916_aolmail_m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
> - 1 Update
> Update on Marty G
> <http://groups.google.com/group/cmlhope/t/6cc017786923e7b6?utm_source=digest_medium=email>
> Tracie Camlin : Nov 13 06:50AM -0600
>
> Dear Shaun and Family,
>
> I am so sorry for your loss. He was truly an amazing person who ins

Re: [CMLHope] Hi Shaun question

[myvety2k via CMLHope]

And the same to you also Beth and my other CML friends.
greenie

-Original Message-
From: bkbarney via CMLHope 
To: cmlhope 
Sent: Wed, Nov 21, 2018 10:22 pm
Subject: Re: [CMLHope] Hi Shaun question

Hi Shaun and all my  CML buddies here... Just wanted to wish everyone a 
peaceful and Joyful Thanksgiving. I know the holidays can be very grief 
inspiring when we have lost those we love both recently and in the past.. As I 
reflect upon the things I am most thankful for this holiday season, Marty is 
one of them. So are each of you who read what I right and even if you do not 
respond, say prayers for me and the rest of us.
Wishing you all a happy holiday.
!8's and love, 
Beth


-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Nov 21, 2018 11:59 am
Subject: [CMLHope] Hi Shaun question


Hi ShaunI know you are in a lot of grief and if you don’t feel like talking 
about I will understand. I have never feared death but always feared that I 
would be in a lot of pain while dying. My question is did they give your dad 
pain meds before he went into hospice?   I miss him so much as he was my 
advisor as well as my friend. Prayers to you and yours Jeanie 
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:


Hi Sherri,
This is Shaun.  My family and I greatly appreciate your heartwarming gift.  
Thank you so very much for that.  My Mom (his wife, Rachelle) sends her thanks, 
as well.
Regards,Shaun
On Wed, Nov 14, 2018 at 8:27 PM sherri swanson  
wrote:

Hello Shaun, 

I am so very sorry to hear about your dad. He was such a kind and gentile man 
and he will be missed by many.  I wanted to let you know that I have planted a 
tree in his name in Israel. May this serve as a living tribute to his memory. 
You and your family are in my thoughts and prayers. Marty will always be in my 
heart and on my mind.  My heart is broken knowing I will not receive another 
message from Marty and we will no longer share share photos. 


As long as we live, they too will live; for they are now are a part of us; as 
we remember them. 

Regards, 

Sherri Swanson




On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:

Hi everyone -
This is Marty's son, Shaun, again.  Thank-you all so much for all the stories, 
kind thoughts, wishes, and prayers for my Dad and our family.  We are all so 
grateful to know how loved he was and how he was able to touch so many lives in 
a profound way.  
Hi Wayne - please do not cancel this thread.  I am still checking in on it and 
relaying to rest of my family.  Just as he helped others, you all are helping 
us, and we appreciate that, so much.
Regards,Shaun
On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:

Please cancel.  Subscriber is deceased.  From: cmlhope@googlegroups.com 
[mailto:cmlhope@googlegroups.com] 
Sent: November-14-18 5:14 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic 
| cmlhope@googlegroups.com  | Google Groups  |  |

Topic digest 
View all topics ·   Update on Marty G - 1 Update Update on Marty G 
| Tracie Camlin : Nov 13 06:50AM -0600 

Dear Shaun and Family,
 
I am so sorry for your loss. He was truly an amazing person who inspired
and supported so many of us. His strength and courage held me up at times
he didn't even know about. He will be missed. Blessings and much love to
you and your family.
 
Best Regards
Tracie Mulvaney
 
On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope < |

Back to top 
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You can change your settings on the group membership page.
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Re: [CMLHope] Hi Shaun question

[bkbarney via CMLHope]

Hi Shaun and all my  CML buddies here... Just wanted to wish everyone a 
peaceful and Joyful Thanksgiving. I know the holidays can be very grief 
inspiring when we have lost those we love both recently and in the past.. As I 
reflect upon the things I am most thankful for this holiday season, Marty is 
one of them. So are each of you who read what I right and even if you do not 
respond, say prayers for me and the rest of us.


Wishing you all a happy holiday.


!8's and love, 


Beth



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Nov 21, 2018 11:59 am
Subject: [CMLHope] Hi Shaun question



Hi Shaun
I know you are in a lot of grief and if you don’t feel like talking about I 
will understand. 
I have never feared death but always feared that I would be in a lot of pain 
while dying. My question is did they give your dad pain meds before he went 
into hospice?   
I miss him so much as he was my advisor as well as my friend. 
Prayers to you and yours 
Jeanie 

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:



Hi Sherri,


This is Shaun.  My family and I greatly appreciate your heartwarming gift.  
Thank you so very much for that.  My Mom (his wife, Rachelle) sends her thanks, 
as well.


Regards,
Shaun


On Wed, Nov 14, 2018 at 8:27 PM sherri swanson  
wrote:


Hello Shaun, 



I am so very sorry to hear about your dad. He was such a kind and gentile man 
and he will be missed by many.  I wanted to let you know that I have planted a 
tree in his name in Israel. May this serve as a living tribute to his memory. 
You and your family are in my thoughts and prayers. Marty will always be in my 
heart and on my mind.  My heart is broken knowing I will not receive another 
message from Marty and we will no longer share share photos. 





As long as we live, they too will live; for they are now are a part of us; as 
we remember them. 



Regards, 



Sherri Swanson











On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:


Hi everyone -


This is Marty's son, Shaun, again.  Thank-you all so much for all the stories, 
kind thoughts, wishes, and prayers for my Dad and our family.  We are all so 
grateful to know how loved he was and how he was able to touch so many lives in 
a profound way.  


Hi Wayne - please do not cancel this thread.  I am still checking in on it and 
relaying to rest of my family.  Just as he helped others, you all are helping 
us, and we appreciate that, so much.


Regards,
Shaun


On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:



Please cancel.  Subscriber is deceased.
 
 
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
Sent: November-14-18 5:14 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
 



cmlhope@googlegroups.com 

Google Groups 






Topic digest 
View all topics 

·   Update on Marty G - 1 Update 

Update on Marty G 



Tracie Camlin : Nov 13 06:50AM -0600 

Dear Shaun and Family,
 
I am so sorry for your loss. He was truly an amazing person who inspired
and supported so many of us. His strength and courage held me up at times
he didn't even know about. He will be missed. Blessings and much love to
you and your family.
 
Best Regards
Tracie Mulvaney
 
On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <



Back to top 




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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Sherri,

This is Shaun.  My family and I greatly appreciate your heartwarming gift.
Thank you so very much for that.  My Mom (his wife, Rachelle) sends her
thanks, as well.

Regards,
Shaun

On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
wrote:

> Hello Shaun,
>
> I am so very sorry to hear about your dad. He was such a kind and gentile
> man and he will be missed by many.  I wanted to let you know that I have
> planted a tree in his name in Israel. May this serve as a living tribute to
> his memory. You and your family are in my thoughts and prayers. Marty will
> always be in my heart and on my mind.  My heart is broken knowing I will
> not receive another message from Marty and we will no longer share share
> photos.
>
>
>
> *As long as we live, they too will live; for they are now are a part of
> us; as we remember them. *
>
> Regards,
>
> Sherri Swanson
>
>
>
>
>
> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
>
>> Hi everyone -
>>
>> This is Marty's son, Shaun, again.  Thank-you all so much for all the
>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
>> are all so grateful to know how loved he was and how he was able to touch
>> so many lives in a profound way.
>>
>> Hi Wayne - please do not cancel this thread.  I am still checking in on
>> it and relaying to rest of my family.  Just as he helped others, you all
>> are helping us, and we appreciate that, so much.
>>
>> Regards,
>> Shaun
>>
>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>>
>>> Please cancel.  Subscriber is deceased.
>>>
>>>
>>>
>>>
>>>
>>> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
>>> *Sent:* November-14-18 5:14 AM
>>> *To:* Digest recipients
>>> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in
>>> 1 topic
>>>
>>>
>>>
>>> cmlhope@googlegroups.com
>>>
>>> Google Groups
>>> 
>>>
>>> [image: Image removed by sender.]
>>> 
>>>
>>> Topic digest
>>> View all topics
>>>
>>> ·   Update on Marty G
>>> <#m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
>>> - 1 Update
>>>
>>> Update on Marty G
>>> 
>>>
>>> Tracie Camlin : Nov 13 06:50AM -0600
>>>
>>> Dear Shaun and Family,
>>>
>>> I am so sorry for your loss. He was truly an amazing person who inspired
>>> and supported so many of us. His strength and courage held me up at times
>>> he didn't even know about. He will be missed. Blessings and much love to
>>> you and your family.
>>>
>>> Best Regards
>>> Tracie Mulvaney
>>>
>>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>>>
>>> Back to top
>>> <#m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>
>>>
>>> You received this digest because you're subscribed to updates for this
>>> group. You can change your settings on the group membership page.
>>> To unsubscribe from this group and stop receiving emails from it send an
>>> email to cmlhope+unsubscr...@googlegroups.com.
>>>
>>>
>>>
>>> --
>>> --
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>
>>> You received this message because you are subscribed to the Google
>>> Groups "CMLHope" group.
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>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
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> --
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> [CMLHope]
> A support group of http://cmlhope.com
> 

Re: [CMLHope] Update on Marty G

['Jeanie' via CMLHope]

You said it so well Beth. Thanks. 
Jeanie


My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 12, 2018, at 11:36 PM, bkbarney via CMLHope  
> wrote:
> 
> Dear Shelly and Shaun,
> 
> When I read your email to all of us my heart broke. I thought of you today at 
> the funeral and said prayers for each of you as well as all the members of 
> our group here. We are all in shock. I share the sentiments of everyone who 
> has already written to you expressing their deep sadness and grief. 
> 
> To love and be loved by Marty was a gift I shall cherish all the days of my 
> life. He was always a ray of sunshine, in a sometimes very scary and dark 
> world. He pushed each of us to be our best selves, to fight a good fight, to 
> live life to the fullest. The packed he made with his God when he came out of 
> " the bubble" post his bone marrow transplant so many years ago...he 
> fulfilled a thousand times over. He helped anyone and everyone wherever and 
> whenever he could. His generosity of spirit, joy of life, good humor, 
> compassion and humor will never be forgotten. He grounded us, inspired us, 
> even scolded us when needed, He was our chief, our friend, our cheerleader 
> and our faithful companion in navigating CML.  He was a lover and a fighter.  
> It is hard for me and others to comprehend what happened the last weeks of 
> his life. What made him surrender. I trust he knew when it was his time.
> 
> He always spoke of his love for his family. May each of you find comfort in 
> knowing how loved he was and what a difference he made in the world. The 
> light in his light house went out, but his spirit will continue to light our 
> paths 
> 
> Love and a big hug to all of you...
> 
> With tears and 18's,
> 
> Beth
> 
> 
> -----Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Mon, Nov 12, 2018 8:26 am
> Subject: Re: [CMLHope] Update on Marty G
> 
> I am so shocked and upset as I read this.  I have been waiting for an answer 
> to a question I had about my thyroid and since he didn’t answer I knew 
> something was wrong. 
> He was a true fighter and kept us going in our horrible journey with 
> leukemia.  He must have been in a lot of pain to give up. 
> I am in pain daily so I know what’s it like to just want it to be over. 
> He was the leader of our pack and I’m
> So sorry for your loss and ours. My prayers go out to you and family.  
> Our list will never be the same.  
> Love
> Jeanie
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
> On Nov 11, 2018, at 6:34 PM, 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Dear Shelly and Family,
> 
> My deepest condolences on Marty’s passing. As so many of us in the group have 
> expressed, Marty was our head cheerleader, a constant source of inspiration, 
> support and love. He gave us a roadmap to navigate not only our illness but, 
> more importantly, our lives. And he shared his challenges with honesty, 
> facing each one with a strength of spirit that was unique. Marty let us know 
> how much he loved you and your children and I know you feel a huge void now 
> that he is gone. 
> 
> Please know that your family is in my thoughts and prayers. May warm memories 
> of happier times comfort you in the days ahead. And may you all be comforted 
> among the mourners of Zion and Jerusalem. 
> 
> Marcie Goodman 
> 
> Sent from my iPad
> 
> On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope  
> wrote:
> 
> Dear Shaun and family,
> 
> Would like to comfort you as your dad so often comforted each one of us. No 
> words except what a marvelous, godly and extravagant legacy he left for you. 
> He left it for the cml group as well! The time spent with each of us was his 
> ministry of joy over us all. He will surely be enjoying many rewards in the 
> afterlife. May each of us in this group strive to leave even a portion of 
> such a legacy at our passing.
> 
> Our immediate reaction is to know what a huge hole will be left in the group 
> a

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

Thanks Shaun
It’s wonderful to know you will be checking on us. 
Marty was much more than a advisor. We all loved him so much. 
His last email to me was he was in rehab and he would get with me as soon as he 
could. 
I always feel God puts us where he wants us.  
Prayers always
Jeanie 

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 14, 2018, at 7:28 PM, Marty Gartenberg  wrote:
> 
> Hi everyone -
> 
> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We 
> are all so grateful to know how loved he was and how he was able to touch so 
> many lives in a profound way.  
> 
> Hi Wayne - please do not cancel this thread.  I am still checking in on it 
> and relaying to rest of my family.  Just as he helped others, you all are 
> helping us, and we appreciate that, so much.
> 
> Regards,
> Shaun
> 
>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>> Please cancel.  Subscriber is deceased.
>> 
>>  
>> 
>>  
>> 
>> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
>> Sent: November-14-18 5:14 AM
>> To: Digest recipients
>> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
>> 
>>  
>> 
>> cmlhope@googlegroups.com
>> 
>> Google Groups 
>> 
>> 
>> 
>> Topic digest 
>> View all topics
>> 
>> ·   Update on Marty G - 1 Update
>> 
>> Update on Marty G
>> 
>> Tracie Camlin : Nov 13 06:50AM -0600 
>> 
>> Dear Shaun and Family,
>>  
>> I am so sorry for your loss. He was truly an amazing person who inspired
>> and supported so many of us. His strength and courage held me up at times
>> he didn't even know about. He will be missed. Blessings and much love to
>> you and your family.
>>  
>> Best Regards
>> Tracie Mulvaney
>>  
>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>> 
>> Back to top
>> 
>> You received this digest because you're subscribed to updates for this 
>> group. You can change your settings on the group membership page.
>> To unsubscribe from this group and stop receiving emails from it send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> 
>>  
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
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>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
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> --- 
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> email to cmlhope+unsubscr...@googlegroups.com.
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-- 
-- 
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A support group of http://cmlhope.com
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You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

['Jeanie' via CMLHope]

So true Sherrie.  Thanks for the tribute. I was waiting on him to answer a 
question I had asked him. When he didn’t answer I had a feeling something was 
very wrong. 
He fought so hard and helped so many. 
I’ll be thinking of the tree as I say my prayers. 
Love you all so very much 
Jeanie 

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 14, 2018, at 8:27 PM, sherri swanson  
> wrote:
> 
> Hello Shaun, 
> 
> I am so very sorry to hear about your dad. He was such a kind and gentile man 
> and he will be missed by many.  I wanted to let you know that I have planted 
> a tree in his name in Israel. May this serve as a living tribute to his 
> memory. You and your family are in my thoughts and prayers. Marty will always 
> be in my heart and on my mind.  My heart is broken knowing I will not receive 
> another message from Marty and we will no longer share share photos. 
> 
> 
> As long as we live, they too will live; for they are now are a part of us; as 
> we remember them. 
> 
> Regards, 
> 
> Sherri Swanson
> 
> 
> 
> 
> 
>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
>> Hi everyone -
>> 
>> This is Marty's son, Shaun, again.  Thank-you all so much for all the 
>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We 
>> are all so grateful to know how loved he was and how he was able to touch so 
>> many lives in a profound way.  
>> 
>> Hi Wayne - please do not cancel this thread.  I am still checking in on it 
>> and relaying to rest of my family.  Just as he helped others, you all are 
>> helping us, and we appreciate that, so much.
>> 
>> Regards,
>> Shaun
>> 
>>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>>> Please cancel.  Subscriber is deceased.
>>> 
>>>  
>>> 
>>>  
>>> 
>>> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] 
>>> Sent: November-14-18 5:14 AM
>>> To: Digest recipients
>>> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
>>> 
>>>  
>>> 
>>> cmlhope@googlegroups.com
>>> 
>>> Google Groups 
>>> 
>>> 
>>> 
>>> Topic digest 
>>> View all topics
>>> 
>>> ·   Update on Marty G - 1 Update
>>> 
>>> Update on Marty G
>>> 
>>> Tracie Camlin : Nov 13 06:50AM -0600 
>>> 
>>> Dear Shaun and Family,
>>>  
>>> I am so sorry for your loss. He was truly an amazing person who inspired
>>> and supported so many of us. His strength and courage held me up at times
>>> he didn't even know about. He will be missed. Blessings and much love to
>>> you and your family.
>>>  
>>> Best Regards
>>> Tracie Mulvaney
>>>  
>>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>>> 
>>> Back to top
>>> 
>>> You received this digest because you're subscribed to updates for this 
>>> group. You can change your settings on the group membership page.
>>> To unsubscribe from this group and stop receiving emails from it send an 
>>> email to cmlhope+unsubscr...@googlegroups.com.
>>> 
>>>  
>>> 
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>  
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to CMLHope@googlegroups.com
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>>> For more options, visit https://groups.google.com/d/optout.
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
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> 
> -- 
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> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[sherri swanson]

Hello Shaun,

I am so very sorry to hear about your dad. He was such a kind and gentile
man and he will be missed by many.  I wanted to let you know that I have
planted a tree in his name in Israel. May this serve as a living tribute to
his memory. You and your family are in my thoughts and prayers. Marty will
always be in my heart and on my mind.  My heart is broken knowing I will
not receive another message from Marty and we will no longer share share
photos.



*As long as we live, they too will live; for they are now are a part of us;
as we remember them. *

Regards,

Sherri Swanson





On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:

> Hi everyone -
>
> This is Marty's son, Shaun, again.  Thank-you all so much for all the
> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
> are all so grateful to know how loved he was and how he was able to touch
> so many lives in a profound way.
>
> Hi Wayne - please do not cancel this thread.  I am still checking in on it
> and relaying to rest of my family.  Just as he helped others, you all are
> helping us, and we appreciate that, so much.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>
>> Please cancel.  Subscriber is deceased.
>>
>>
>>
>>
>>
>> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
>> *Sent:* November-14-18 5:14 AM
>> *To:* Digest recipients
>> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1
>> topic
>>
>>
>>
>> cmlhope@googlegroups.com
>>
>> Google Groups
>> 
>>
>> [image: Image removed by sender.]
>> 
>>
>> Topic digest
>> View all topics
>>
>> ·   Update on Marty G
>> <#m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
>> - 1 Update
>>
>> Update on Marty G
>> 
>>
>> Tracie Camlin : Nov 13 06:50AM -0600
>>
>> Dear Shaun and Family,
>>
>> I am so sorry for your loss. He was truly an amazing person who inspired
>> and supported so many of us. His strength and courage held me up at times
>> he didn't even know about. He will be missed. Blessings and much love to
>> you and your family.
>>
>> Best Regards
>> Tracie Mulvaney
>>
>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>>
>> Back to top
>> <#m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>
>>
>> You received this digest because you're subscribed to updates for this
>> group. You can change your settings on the group membership page.
>> To unsubscribe from this group and stop receiving emails from it send an
>> email to cmlhope+unsubscr...@googlegroups.com.
>>
>>
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at
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>> ---
>> You received this message because you are subscribed to the Google Groups
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> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
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-- 
-- 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi everyone -

This is Marty's son, Shaun, again.  Thank-you all so much for all the
stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
are all so grateful to know how loved he was and how he was able to touch
so many lives in a profound way.

Hi Wayne - please do not cancel this thread.  I am still checking in on it
and relaying to rest of my family.  Just as he helped others, you all are
helping us, and we appreciate that, so much.

Regards,
Shaun

On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:

> Please cancel.  Subscriber is deceased.
>
>
>
>
>
> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
> *Sent:* November-14-18 5:14 AM
> *To:* Digest recipients
> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1
> topic
>
>
>
> cmlhope@googlegroups.com
>
> Google Groups
> 
>
> [image: Image removed by sender.]
> 
>
> Topic digest
> View all topics
>
> ·   Update on Marty G
> <#m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
> - 1 Update
>
> Update on Marty G
> 
>
> Tracie Camlin : Nov 13 06:50AM -0600
>
> Dear Shaun and Family,
>
> I am so sorry for your loss. He was truly an amazing person who inspired
> and supported so many of us. His strength and courage held me up at times
> he didn't even know about. He will be missed. Blessings and much love to
> you and your family.
>
> Best Regards
> Tracie Mulvaney
>
> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>
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 Update on Marty G 


Tracie Camlin : Nov 13 06:50AM -0600 

Dear Shaun and Family,
 
I am so sorry for your loss. He was truly an amazing person who inspired
and supported so many of us. His strength and courage held me up at times
he didn't even know about. He will be missed. Blessings and much love to
you and your family.
 
Best Regards
Tracie Mulvaney
 
On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <

Back to top 


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Re: [CMLHope] Update on Marty G

[Tracie Camlin]

Dear Shaun and Family,

I am so sorry for your loss. He was truly an amazing person who inspired
and supported so many of us. His strength and courage held me up at times
he didn't even know about. He will be missed. Blessings and much love to
you and your family.

Best Regards
Tracie Mulvaney

On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
cmlhope@googlegroups.com wrote:

> Dear Shaun and family,
>
> Would like to comfort you as your dad so often comforted each one of us.
> No words except what a marvelous, godly and extravagant legacy he left for
> you. He left it for the cml group as well! The time spent with each of us
> was his ministry of joy over us all. He will surely be enjoying many
> rewards in the afterlife. May each of us in this group strive to leave even
> a portion of such a legacy at our passing.
>
> Our immediate reaction is to know what a huge hole will be left in the
> group and in our hearts. We called him our leader. Please know you are in
> my prayers. We will remember 18 stands for life and every day is a gift.
> Wish I could attend his services. I will be thinking of you all.
>
> 18's, hugs, bigger hugs,
> Susan Zimmerman
>
> On Nov 11, 2018 1:54 AM, Marty Gartenberg  wrote:
>
> Hello everyone -
>
> This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to
> say that my father passed away this past week, on Wednesday, November 7th,
> after having entered hospice care the previous Friday, November 2nd.  I
> know many of you were good friends with him and that he helped a lot of
> people through this support group.
>
> This all started with a bad fall over 7 weeks ago on September 15 in his
> garage where he fractured his left femur.  He subsequently underwent
> surgery to get a rod implanted in the bone to help it heal.  After a few
> weeks of physical therapy, a checkup showed that one of the screws needed
> to be adjusted, so he had a second surgery for that to adjust the rod, and
> add a plate.  After having more therapy, a MRSA infection was discovered in
> the incision wound.  He also contracted pneumonia.  In order to combat the
> infection, he had a third surgery on the incision to perform a debridement
> of the wound and was put on course of several antibiotics.  He was admitted
> to the ICU to be treated for the complications of the infection.
>
> Unfortunately, all of this became just too much for him to take.  While he
> did show improvement medically, and eventually went from the ICU into a
> regular hospital room, he was in a lot of pain, which got progressively
> worse each day all over his body, and discomfort from the effects of the
> antibiotics.   Eventually, he began denying his food and medication and
> reached a point where he did not want to continue to fight.
>
> Moving to hospice was a painful decision to make, especially knowing how
> much of a fighter my Dad was through all of the struggles he's been through
> in his life.  But, those were his wishes and we didn't want him to continue
> to suffer.  The hospice care did make him comfortable and he finally passed
> Wednesday afternoon.  After not having had his heart medicines (and others)
> for so many days, his heart rate was in the 160's, and I guess it finally
> gave out, but we don't know the exact cause.  I believe he passed
> peacefully, though.  He was 74 years old.
>
> I am so grateful and blessed to have had my Dad in my life, and I know he
> touched countless others lives all over the world.  His altruism inspired
> me throughout my life.  Please keep him in your prayers and thoughts.
>
> His funeral will be this Monday, November 12th at 11:00 AM, at the Beth
> Israel Memorial Chapel in Boynton Beach, Florida, followed by burial at the
> Eternal Light Memorial Gardens cemetery at 12:15 PM, also in Boynton
> Beach.  My family and I will be sitting Shiva (a Jewish mourning ritual at
> home) Monday evening and Tuesday and Wednesday afternoon and evening.
>
> Regards,
> Shaun
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
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>
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> To 

Re: [CMLHope] Update on Marty G

[bkbarney via CMLHope]

Dear Shelly and Shaun,


When I read your email to all of us my heart broke. I thought of you today at 
the funeral and said prayers for each of you as well as all the members of our 
group here. We are all in shock. I share the sentiments of everyone who has 
already written to you expressing their deep sadness and grief. 


To love and be loved by Marty was a gift I shall cherish all the days of my 
life. He was always a ray of sunshine, in a sometimes very scary and dark 
world. He pushed each of us to be our best selves, to fight a good fight, to 
live life to the fullest. The packed he made with his God when he came out of " 
the bubble" post his bone marrow transplant so many years ago...he fulfilled a 
thousand times over. He helped anyone and everyone wherever and whenever he 
could. His generosity of spirit, joy of life, good humor, compassion and humor 
will never be forgotten. He grounded us, inspired us, even scolded us when 
needed, He was our chief, our friend, our cheerleader and our faithful 
companion in navigating CML.  He was a lover and a fighter.  It is hard for me 
and others to comprehend what happened the last weeks of his life. What made 
him surrender. I trust he knew when it was his time.


He always spoke of his love for his family. May each of you find comfort in 
knowing how loved he was and what a difference he made in the world. The light 
in his light house went out, but his spirit will continue to light our paths 



Love and a big hug to all of you...


With tears and 18's,


Beth



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Mon, Nov 12, 2018 8:26 am
Subject: Re: [CMLHope] Update on Marty G


I am so shocked and upset as I read this.  I have been waiting for an answer to 
a question I had about my thyroid and since he didn’t answer I knew something 
was wrong. 
He was a true fighter and kept us going in our horrible journey with leukemia.  
He must have been in a lot of pain to give up. 
I am in pain daily so I know what’s it like to just want it to be over. 
He was the leader of our pack and I’m
So sorry for your loss and ours. My prayers go out to you and family.  
Our list will never be the same.  
Love
Jeanie



My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 11, 2018, at 6:34 PM, 'Marcie Goodman' via CMLHope 
 wrote:



Dear Shelly and Family,


My deepest condolences on Marty’s passing. As so many of us in the group have 
expressed, Marty was our head cheerleader, a constant source of inspiration, 
support and love. He gave us a roadmap to navigate not only our illness but, 
more importantly, our lives. And he shared his challenges with honesty, facing 
each one with a strength of spirit that was unique. Marty let us know how much 
he loved you and your children and I know you feel a huge void now that he is 
gone. 


Please know that your family is in my thoughts and prayers. May warm memories 
of happier times comfort you in the days ahead. And may you all be comforted 
among the mourners of Zion and Jerusalem. 


Marcie Goodman 


Sent from my iPad

On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope  
wrote:



Dear Shaun and family,


Would like to comfort you as your dad so often comforted each one of us. No 
words except what a marvelous, godly and extravagant legacy he left for you. He 
left it for the cml group as well! The time spent with each of us was his 
ministry of joy over us all. He will surely be enjoying many rewards in the 
afterlife. May each of us in this group strive to leave even a portion of such 
a legacy at our passing.


Our immediate reaction is to know what a huge hole will be left in the group 
and in our hearts. We called him our leader. Please know you are in my prayers. 
We will remember 18 stands for life and every day is a gift.  Wish I could 
attend his services. I will be thinking of you all.


18's, hugs, bigger hugs,
Susan Zimmerman



On Nov 11, 2018 1:54 AM, Marty Gartenberg  wrote:


Hello everyone - 


This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to say 
that my father passed away this past week, on Wednesday, November 7th, after 
having entered hospice care the previous Friday, November 2nd.  I know many of 
you were good friends with him and that he helped a lot of people through this 
support group.


This all started with a bad fall over 7 weeks ago on September 15 in his garage 
where he fractured his left femur.  He subsequently underwent surgery to get a 
rod implanted in the bone to help it heal.  After a few weeks of physical 
therapy, a checkup showed that one of the screws needed to be adjusted, so he 
had a seco

Re: [CMLHope] Update on Marty G

['Jeanie' via CMLHope]

Thanks Susan
Yes I am so sad.  I was waiting for him to text me about my problem.  He was so 
good to all. 
Love you so very much 
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 12, 2018, at 10:38 AM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Dear Jeanie,
> 
> I had the same reaction about Marty's passing and was imagining how many 
> others reacted or acted to the news.  My heart goes out
> to you as you struggle with this pain and thyroid problem.  You know Who is 
> in charge. Lean into Him and He will give you peace.
> 
> We are all in the same group here to lift each other up and keep on fighting, 
> as Marty showed us so many times.  Let's only get closer as those who feel a 
> nudge about sharing will give us an encouraging word.
> 
> Blessings and 18's,
> Susan Z
> 
> 
> 
> 
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Mon, Nov 12, 2018 9:26 am
> Subject: Re: [CMLHope] Update on Marty G
> 
> I am so shocked and upset as I read this.  I have been waiting for an answer 
> to a question I had about my thyroid and since he didn’t answer I knew 
> something was wrong. 
> He was a true fighter and kept us going in our horrible journey with 
> leukemia.  He must have been in a lot of pain to give up. 
> I am in pain daily so I know what’s it like to just want it to be over. 
> He was the leader of our pack and I’m
> So sorry for your loss and ours. My prayers go out to you and family.  
> Our list will never be the same.  
> Love
> Jeanie
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
> On Nov 11, 2018, at 6:34 PM, 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Dear Shelly and Family,
> 
> My deepest condolences on Marty’s passing. As so many of us in the group have 
> expressed, Marty was our head cheerleader, a constant source of inspiration, 
> support and love. He gave us a roadmap to navigate not only our illness but, 
> more importantly, our lives. And he shared his challenges with honesty, 
> facing each one with a strength of spirit that was unique. Marty let us know 
> how much he loved you and your children and I know you feel a huge void now 
> that he is gone. 
> 
> Please know that your family is in my thoughts and prayers. May warm memories 
> of happier times comfort you in the days ahead. And may you all be comforted 
> among the mourners of Zion and Jerusalem. 
> 
> Marcie Goodman 
> 
> Sent from my iPad
> 
> On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope  
> wrote:
> 
> Dear Shaun and family,
> 
> Would like to comfort you as your dad so often comforted each one of us. No 
> words except what a marvelous, godly and extravagant legacy he left for you. 
> He left it for the cml group as well! The time spent with each of us was his 
> ministry of joy over us all. He will surely be enjoying many rewards in the 
> afterlife. May each of us in this group strive to leave even a portion of 
> such a legacy at our passing.
> 
> Our immediate reaction is to know what a huge hole will be left in the group 
> and in our hearts. We called him our leader. Please know you are in my 
> prayers. We will remember 18 stands for life and every day is a gift.  Wish I 
> could attend his services. I will be thinking of you all.
> 
> 18's, hugs, bigger hugs,
> Susan Zimmerman
> 
> On Nov 11, 2018 1:54 AM, Marty Gartenberg  wrote:
> Hello everyone - 
> 
> This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to 
> say that my father passed away this past week, on Wednesday, November 7th, 
> after having entered hospice care the previous Friday, November 2nd.  I know 
> many of you were good friends with him and that he helped a lot of people 
> through this support group.
> 
> This all started with a bad fall over 7 weeks ago on September 15 in his 
> garage where he fractured his left femur.  He subsequently underwent surgery 
> to get a rod implanted in the bone to help it heal.  After a few weeks of 
> physical therapy, a checkup showed that one 

Re: [CMLHope] Update on Marty G

['Susan Zimmerman' via CMLHope]

Dear Jeanie,


I had the same reaction about Marty's passing and was imagining how many others 
reacted or acted to the news.  My heart goes out
to you as you struggle with this pain and thyroid problem.  You know Who is in 
charge. Lean into Him and He will give you peace.


We are all in the same group here to lift each other up and keep on fighting, 
as Marty showed us so many times.  Let's only get closer as those who feel a 
nudge about sharing will give us an encouraging word.


Blessings and 18's,
Susan Z







-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Mon, Nov 12, 2018 9:26 am
Subject: Re: [CMLHope] Update on Marty G


I am so shocked and upset as I read this.  I have been waiting for an answer to 
a question I had about my thyroid and since he didn’t answer I knew something 
was wrong. 
He was a true fighter and kept us going in our horrible journey with leukemia.  
He must have been in a lot of pain to give up. 
I am in pain daily so I know what’s it like to just want it to be over. 
He was the leader of our pack and I’m
So sorry for your loss and ours. My prayers go out to you and family.  
Our list will never be the same.  
Love
Jeanie



My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 11, 2018, at 6:34 PM, 'Marcie Goodman' via CMLHope 
 wrote:



Dear Shelly and Family,


My deepest condolences on Marty’s passing. As so many of us in the group have 
expressed, Marty was our head cheerleader, a constant source of inspiration, 
support and love. He gave us a roadmap to navigate not only our illness but, 
more importantly, our lives. And he shared his challenges with honesty, facing 
each one with a strength of spirit that was unique. Marty let us know how much 
he loved you and your children and I know you feel a huge void now that he is 
gone. 


Please know that your family is in my thoughts and prayers. May warm memories 
of happier times comfort you in the days ahead. And may you all be comforted 
among the mourners of Zion and Jerusalem. 


Marcie Goodman 


Sent from my iPad

On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope  
wrote:



Dear Shaun and family,


Would like to comfort you as your dad so often comforted each one of us. No 
words except what a marvelous, godly and extravagant legacy he left for you. He 
left it for the cml group as well! The time spent with each of us was his 
ministry of joy over us all. He will surely be enjoying many rewards in the 
afterlife. May each of us in this group strive to leave even a portion of such 
a legacy at our passing.


Our immediate reaction is to know what a huge hole will be left in the group 
and in our hearts. We called him our leader. Please know you are in my prayers. 
We will remember 18 stands for life and every day is a gift.  Wish I could 
attend his services. I will be thinking of you all.


18's, hugs, bigger hugs,
Susan Zimmerman



On Nov 11, 2018 1:54 AM, Marty Gartenberg  wrote:


Hello everyone - 


This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to say 
that my father passed away this past week, on Wednesday, November 7th, after 
having entered hospice care the previous Friday, November 2nd.  I know many of 
you were good friends with him and that he helped a lot of people through this 
support group.


This all started with a bad fall over 7 weeks ago on September 15 in his garage 
where he fractured his left femur.  He subsequently underwent surgery to get a 
rod implanted in the bone to help it heal.  After a few weeks of physical 
therapy, a checkup showed that one of the screws needed to be adjusted, so he 
had a second surgery for that to adjust the rod, and add a plate.  After having 
more therapy, a MRSA infection was discovered in the incision wound.  He also 
contracted pneumonia.  In order to combat the infection, he had a third surgery 
on the incision to perform a debridement of the wound and was put on course of 
several antibiotics.  He was admitted to the ICU to be treated for the 
complications of the infection.


Unfortunately, all of this became just too much for him to take.  While he did 
show improvement medically, and eventually went from the ICU into a regular 
hospital room, he was in a lot of pain, which got progressively worse each day 
all over his body, and discomfort from the effects of the antibiotics.   
Eventually, he began denying his food and medication and reached a point where 
he did not want to continue to fight.  


Moving to hospice was a painful decision to make, especially knowing how much 
of a fighter my Dad was through all of the struggles he's been through in his 
life.  But, those were his wishes

Re: [CMLHope] Please answer to see if I’m getting my mail

['Jeanie' via CMLHope]

Great Greenie
So happy for you but feel so sad over Marty’s passing. He was helping me with 
my thyroid problem and I thought so much of him.  
Good luck and happy fishing. 
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 8, 2018, at 7:46 AM, myvety2k via CMLHope  
> wrote:
> 
> Jeanie, That's a yes on Sebring. Slower way of life, to much crime, to many 
> hit and runs, to many people, can't drive anywhere without someone trying to 
> run you off the road, cutting in front of you, etc. The list is long. I have 
> nothing against snow birds but when they come down to Fort Myers and the 
> beach is near they just take over everything.  A ride to Lowes in the summer 
> time takes 5 min. winter its takes 15 to 20 min. because of so many cars.  It 
> was time to move and NOW I can go Bass Fishing.
> 
> greenie
> 
> 
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Wed, Nov 7, 2018 1:18 pm
> Subject: Re: [CMLHope] Please answer to see if I’m getting my mail
> 
> Hi all
> Good to hear from you. 
> Has anyone heard from Marty?
> Do you like Sebring Greenie?
> This thyroid disease is getting me down.  I want to sleep all day and wake up 
> around midnight.  It’s awful!!!
> Pray that I will get it straightened out soon 
> Have a safe trip Greenie and I hope you can get together with Beth. 
> Love you so very much.  
> Jeanie
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
> On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope  
> wrote:
> 
> i Hi Greenie, Congrats on your new home! And the bass boat So good to 
> hear from you. Are you flying in on 
> Tuesday the 4th for your Wednesday the 5th appointment? Would you like to 
> have dinner together Tuesday evening? I could meet you near Northwestern? I 
> would love  to meet you and Grace if she is coming. Let me know...you can 
> email at my email. bkbar...@aol.com
> 
> Thanks!  
> 
> 18's Beth
> 
> 
> -Original Message-
> From: myvety2k via CMLHope 
> To: cmlhope 
> Sent: Tue, Nov 6, 2018 6:07 am
> Subject: Re: [CMLHope] Please answer to see if I’m getting my mail
> 
> Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, 
> FL. Purchased a home there, Grace purchased me a Tracker bass boat so that I 
> can go fishing, of course I'm making the payments.(smile).  Will be flying 
> into Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most 
> loving thing (Blood Work). another smile.  Will let you all know how things 
> turn out. Stay warm if you live North and Cool if you live South. Take care 
> everyone.
> 
> Greenie
> 
> 
> -Original Message-
> From: bkbarney via CMLHope 
> To: cmlhope 
> Sent: Mon, Nov 5, 2018 12:06 pm
> Subject: Re: [CMLHope] Please answer to see if I’m getting my mail
> 
> Dear Jeanie,
> 
> Just wanted to say I am here, thinking of you and everyone else... The year 
> is slipping by...and next week snow flurries in Chicago. Soon it will be 
> Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid 
> troubles.. Hopefully they can help you get with the right meds...Ggod 
> endocrinologist will guide you!!! You have had more than your share of health 
> problems.. You are a real trouper!! Love your positive attitude. Remember to 
> advocate for yourself. If you are not satisfied...or feel worse...keep asking 
> for help! Each of us needs to do this...
> 
> I am doing O.K. Blood work for CML showing, but stable working on 
> decreasing the inflammation in my body in the hopes that it might help my 
> side effects and symptoms...still plugging along the stay positive 
> attitude...is still finding meeven in the dark sometimes :), seeing the 
> shadows so know the light is somewhere near by.
> 
> Love to all.. and Marty, hope you are healing welland Richard, and Susan 
> and Suzie Q and Greenie and everyone reading.. Hope each of you has a lovely 
> and healthier holiday season!!
> 
> 18's Beth
> 
> 
> -Original Message-

Re: [CMLHope] Update on Marty G

['Jeanie' via CMLHope]

I am so shocked and upset as I read this.  I have been waiting for an answer to 
a question I had about my thyroid and since he didn’t answer I knew something 
was wrong. 
He was a true fighter and kept us going in our horrible journey with leukemia.  
He must have been in a lot of pain to give up. 
I am in pain daily so I know what’s it like to just want it to be over. 
He was the leader of our pack and I’m
So sorry for your loss and ours. My prayers go out to you and family.  
Our list will never be the same.  
Love
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Nov 11, 2018, at 6:34 PM, 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Dear Shelly and Family,
> 
> My deepest condolences on Marty’s passing. As so many of us in the group have 
> expressed, Marty was our head cheerleader, a constant source of inspiration, 
> support and love. He gave us a roadmap to navigate not only our illness but, 
> more importantly, our lives. And he shared his challenges with honesty, 
> facing each one with a strength of spirit that was unique. Marty let us know 
> how much he loved you and your children and I know you feel a huge void now 
> that he is gone. 
> 
> Please know that your family is in my thoughts and prayers. May warm memories 
> of happier times comfort you in the days ahead. And may you all be comforted 
> among the mourners of Zion and Jerusalem. 
> 
> Marcie Goodman 
> 
> Sent from my iPad
> 
>> On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope 
>>  wrote:
>> 
>> Dear Shaun and family,
>> 
>> Would like to comfort you as your dad so often comforted each one of us. No 
>> words except what a marvelous, godly and extravagant legacy he left for you. 
>> He left it for the cml group as well! The time spent with each of us was his 
>> ministry of joy over us all. He will surely be enjoying many rewards in the 
>> afterlife. May each of us in this group strive to leave even a portion of 
>> such a legacy at our passing.
>> 
>> Our immediate reaction is to know what a huge hole will be left in the group 
>> and in our hearts. We called him our leader. Please know you are in my 
>> prayers. We will remember 18 stands for life and every day is a gift.  Wish 
>> I could attend his services. I will be thinking of you all.
>> 
>> 18's, hugs, bigger hugs,
>> Susan Zimmerman
>> 
>> On Nov 11, 2018 1:54 AM, Marty Gartenberg  wrote:
>> Hello everyone - 
>> 
>> This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to 
>> say that my father passed away this past week, on Wednesday, November 7th, 
>> after having entered hospice care the previous Friday, November 2nd.  I know 
>> many of you were good friends with him and that he helped a lot of people 
>> through this support group.
>> 
>> This all started with a bad fall over 7 weeks ago on September 15 in his 
>> garage where he fractured his left femur.  He subsequently underwent surgery 
>> to get a rod implanted in the bone to help it heal.  After a few weeks of 
>> physical therapy, a checkup showed that one of the screws needed to be 
>> adjusted, so he had a second surgery for that to adjust the rod, and add a 
>> plate.  After having more therapy, a MRSA infection was discovered in the 
>> incision wound.  He also contracted pneumonia.  In order to combat the 
>> infection, he had a third surgery on the incision to perform a debridement 
>> of the wound and was put on course of several antibiotics.  He was admitted 
>> to the ICU to be treated for the complications of the infection.
>> 
>> Unfortunately, all of this became just too much for him to take.  While he 
>> did show improvement medically, and eventually went from the ICU into a 
>> regular hospital room, he was in a lot of pain, which got progressively 
>> worse each day all over his body, and discomfort from the effects of the 
>> antibiotics.   Eventually, he began denying his food and medication and 
>> reached a point where he did not want to continue to fight.  
>> 
>> Moving to hospice was a painful decision to make, especially knowing how 
>> much of a fighter my Dad was through all of the struggles he's been through 
>> in his life.  But, those were his wishes and we didn't want him to continue 
>> to suffer.  The hospice care did make him comfortable and he finally passed 
>> Wednesday afternoon.  After not having had his heart medicines (and others) 
>> for so many days, his heart rate was in the 160's, and I guess it finally 
>> gave out, but we don't know the exact cause.  I believe he passed 
>> peacefully, though.  He was 74 years old.
>> 
>> I am so grateful and blessed to have had my Dad in my life, and I know he 
>> touched countless others 

Re: [CMLHope] Update on Marty G

['Marcie Goodman' via CMLHope]

Dear Shelly and Family,

My deepest condolences on Marty’s passing. As so many of us in the group have 
expressed, Marty was our head cheerleader, a constant source of inspiration, 
support and love. He gave us a roadmap to navigate not only our illness but, 
more importantly, our lives. And he shared his challenges with honesty, facing 
each one with a strength of spirit that was unique. Marty let us know how much 
he loved you and your children and I know you feel a huge void now that he is 
gone. 

Please know that your family is in my thoughts and prayers. May warm memories 
of happier times comfort you in the days ahead. And may you all be comforted 
among the mourners of Zion and Jerusalem. 

Marcie Goodman 

Sent from my iPad

> On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope  
> wrote:
> 
> Dear Shaun and family,
> 
> Would like to comfort you as your dad so often comforted each one of us. No 
> words except what a marvelous, godly and extravagant legacy he left for you. 
> He left it for the cml group as well! The time spent with each of us was his 
> ministry of joy over us all. He will surely be enjoying many rewards in the 
> afterlife. May each of us in this group strive to leave even a portion of 
> such a legacy at our passing.
> 
> Our immediate reaction is to know what a huge hole will be left in the group 
> and in our hearts. We called him our leader. Please know you are in my 
> prayers. We will remember 18 stands for life and every day is a gift.  Wish I 
> could attend his services. I will be thinking of you all.
> 
> 18's, hugs, bigger hugs,
> Susan Zimmerman
> 
> On Nov 11, 2018 1:54 AM, Marty Gartenberg  wrote:
> Hello everyone - 
> 
> This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to 
> say that my father passed away this past week, on Wednesday, November 7th, 
> after having entered hospice care the previous Friday, November 2nd.  I know 
> many of you were good friends with him and that he helped a lot of people 
> through this support group.
> 
> This all started with a bad fall over 7 weeks ago on September 15 in his 
> garage where he fractured his left femur.  He subsequently underwent surgery 
> to get a rod implanted in the bone to help it heal.  After a few weeks of 
> physical therapy, a checkup showed that one of the screws needed to be 
> adjusted, so he had a second surgery for that to adjust the rod, and add a 
> plate.  After having more therapy, a MRSA infection was discovered in the 
> incision wound.  He also contracted pneumonia.  In order to combat the 
> infection, he had a third surgery on the incision to perform a debridement of 
> the wound and was put on course of several antibiotics.  He was admitted to 
> the ICU to be treated for the complications of the infection.
> 
> Unfortunately, all of this became just too much for him to take.  While he 
> did show improvement medically, and eventually went from the ICU into a 
> regular hospital room, he was in a lot of pain, which got progressively worse 
> each day all over his body, and discomfort from the effects of the 
> antibiotics.   Eventually, he began denying his food and medication and 
> reached a point where he did not want to continue to fight.  
> 
> Moving to hospice was a painful decision to make, especially knowing how much 
> of a fighter my Dad was through all of the struggles he's been through in his 
> life.  But, those were his wishes and we didn't want him to continue to 
> suffer.  The hospice care did make him comfortable and he finally passed 
> Wednesday afternoon.  After not having had his heart medicines (and others) 
> for so many days, his heart rate was in the 160's, and I guess it finally 
> gave out, but we don't know the exact cause.  I believe he passed peacefully, 
> though.  He was 74 years old.
> 
> I am so grateful and blessed to have had my Dad in my life, and I know he 
> touched countless others lives all over the world.  His altruism inspired me 
> throughout my life.  Please keep him in your prayers and thoughts.  
> 
> His funeral will be this Monday, November 12th at 11:00 AM, at the Beth 
> Israel Memorial Chapel in Boynton Beach, Florida, followed by burial at the 
> Eternal Light Memorial Gardens cemetery at 12:15 PM, also in Boynton Beach.  
> My family and I will be sitting Shiva (a Jewish mourning ritual at home) 
> Monday evening and Tuesday and Wednesday afternoon and evening.
> 
> Regards,
> Shaun
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
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> 

Re: [CMLHope] Update on Marty G

[rszim0702 via CMLHope]

Dear Shaun and family,Would like to comfort you as your dad so often comforted each one of us. No words except what a marvelous, godly and extravagant legacy he left for you. He left it for the cml group as well! The time spent with each of us was his ministry of joy over us all. He will surely be enjoying many rewards in the afterlife. May each of us in this group strive to leave even a portion of such a legacy at our passing.Our immediate reaction is to know what a huge hole will be left in the group and in our hearts. We called him our leader. Please know you are in my prayers. We will remember 18 stands for life and every day is a gift.  Wish I could attend his services. I will be thinking of you all.18's, hugs, bigger hugs,Susan ZimmermanOn Nov 11, 2018 1:54 AM, Marty Gartenberg  wrote:Hello everyone - This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to say that my father passed away this past week, on Wednesday, November 7th, after having entered hospice care the previous Friday, November 2nd.  I know many of you were good friends with him and that he helped a lot of people through this support group.This all started with a bad fall over 7 weeks ago on September 15 in his garage where he fractured his left femur.  He subsequently underwent surgery to get a rod implanted in the bone to help it heal.  After a few weeks of physical therapy, a checkup showed that one of the screws needed to be adjusted, so he had a second surgery for that to adjust the rod, and add a plate.  After having more therapy, a MRSA infection was discovered in the incision wound.  He also contracted pneumonia.  In order to combat the infection, he had a third surgery on the incision to perform a debridement of the wound and was put on course of several antibiotics.  He was admitted to the ICU to be treated for the complications of the infection.Unfortunately, all of this became just too much for him to take.  While he did show improvement medically, and eventually went from the ICU into a regular hospital room, he was in a lot of pain, which got progressively worse each day all over his body, and discomfort from the effects of the antibiotics.   Eventually, he began denying his food and medication and reached a point where he did not want to continue to fight.  Moving to hospice was a painful decision to make, especially knowing how much of a fighter my Dad was through all of the struggles he's been through in his life.  But, those were his wishes and we didn't want him to continue to suffer.  The hospice care did make him comfortable and he finally passed Wednesday afternoon.  After not having had his heart medicines (and others) for so many days, his heart rate was in the 160's, and I guess it finally gave out, but we don't know the exact cause.  I believe he passed peacefully, though.  He was 74 years old.I am so grateful and blessed to have had my Dad in my life, and I know he touched countless others lives all over the world.  His altruism inspired me throughout my life.  Please keep him in your prayers and thoughts.  His funeral will be this Monday, November 12th at 11:00 AM, at the Beth Israel Memorial Chapel in Boynton Beach, Florida, followed by burial at the Eternal Light Memorial Gardens cemetery at 12:15 PM, also in Boynton Beach.  My family and I will be sitting Shiva (a Jewish mourning ritual at home) Monday evening and Tuesday and Wednesday afternoon and evening.Regards,Shaun



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Re: [CMLHope] Update on Marty G

[Tanya Metaksa]

Hi Shaun,
Although I knew your father through the CML Hope group only, let me express my 
sincere condolences on his passing. He was a very upbeat and kind person who 
had a good work and lots of encouragement to all that frequented this group. 
Thank you for letting us know.
Tanya Metaksa
> On Nov 11, 2018, at 6:45 AM, myvety2k via CMLHope  
> wrote:
> 
> Shaun, My name is David Greenberg and am so sorry to hear the news of your 
> Father passing.  He meant so much to our group and was ALWAY'S there when we 
> ALL needed him. He WILL be MISSED.
> 
> David (greenie) Greenberg
> 
> 
> -Original Message-
> From: Marty Gartenberg 
> To: CMLHope 
> Sent: Sun, Nov 11, 2018 1:54 am
> Subject: [CMLHope] Update on Marty G
> 
> Hello everyone - 
> 
> This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to 
> say that my father passed away this past week, on Wednesday, November 7th, 
> after having entered hospice care the previous Friday, November 2nd.  I know 
> many of you were good friends with him and that he helped a lot of people 
> through this support group.
> 
> This all started with a bad fall over 7 weeks ago on September 15 in his 
> garage where he fractured his left femur.  He subsequently underwent surgery 
> to get a rod implanted in the bone to help it heal.  After a few weeks of 
> physical therapy, a checkup showed that one of the screws needed to be 
> adjusted, so he had a second surgery for that to adjust the rod, and add a 
> plate.  After having more therapy, a MRSA infection was discovered in the 
> incision wound.  He also contracted pneumonia.  In order to combat the 
> infection, he had a third surgery on the incision to perform a debridement of 
> the wound and was put on course of several antibiotics.  He was admitted to 
> the ICU to be treated for the complications of the infection.
> 
> Unfortunately, all of this became just too much for him to take.  While he 
> did show improvement medically, and eventually went from the ICU into a 
> regular hospital room, he was in a lot of pain, which got progressively worse 
> each day all over his body, and discomfort from the effects of the 
> antibiotics.   Eventually, he began denying his food and medication and 
> reached a point where he did not want to continue to fight.  
> 
> Moving to hospice was a painful decision to make, especially knowing how much 
> of a fighter my Dad was through all of the struggles he's been through in his 
> life.  But, those were his wishes and we didn't want him to continue to 
> suffer.  The hospice care did make him comfortable and he finally passed 
> Wednesday afternoon.  After not having had his heart medicines (and others) 
> for so many days, his heart rate was in the 160's, and I guess it finally 
> gave out, but we don't know the exact cause.  I believe he passed peacefully, 
> though.  He was 74 years old.
> 
> I am so grateful and blessed to have had my Dad in my life, and I know he 
> touched countless others lives all over the world.  His altruism inspired me 
> throughout my life.  Please keep him in your prayers and thoughts.  
> 
> His funeral will be this Monday, November 12th at 11:00 AM, at the Beth 
> Israel Memorial Chapel in Boynton Beach, Florida, followed by burial at the 
> Eternal Light Memorial Gardens cemetery at 12:15 PM, also in Boynton Beach.  
> My family and I will be sitting Shiva (a Jewish mourning ritual at home) 
> Monday evening and Tuesday and Wednesday afternoon and evening.
> 
> Regards,
> Shaun
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com 
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
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> 
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> 

Re: [CMLHope] Update on Marty G

['educatorsusan' via CMLHope]

Shaun;

I am so very sorry to hear about your Dad.  Marty was an inspiration to 
everyone and a real fighter, not just for himself, but for everyone.

I wish you and Marty’s rest of the family, many 18’s, as Marty would wish that 
to everyone else.  Even though he has passed on, his help and love will remain 
in our hearts forever.  What a loss for this group and for the world.

May Marty Rest In Peace and enjoy his new life.  I’m only so sorry that he had 
such a bittersweet ending-at least his family was close.

May the memories he gave all of us help heal us through this monumental event 
in all of our individual lives.  We were so lucky to have Marty in our lives.

Hugs,
Susan Rosenthal

> On Nov 11, 2018, at 1:54 AM, Marty Gartenberg  wrote:
> 
> Hello everyone - 
> 
> This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to 
> say that my father passed away this past week, on Wednesday, November 7th, 
> after having entered hospice care the previous Friday, November 2nd.  I know 
> many of you were good friends with him and that he helped a lot of people 
> through this support group.
> 
> This all started with a bad fall over 7 weeks ago on September 15 in his 
> garage where he fractured his left femur.  He subsequently underwent surgery 
> to get a rod implanted in the bone to help it heal.  After a few weeks of 
> physical therapy, a checkup showed that one of the screws needed to be 
> adjusted, so he had a second surgery for that to adjust the rod, and add a 
> plate.  After having more therapy, a MRSA infection was discovered in the 
> incision wound.  He also contracted pneumonia.  In order to combat the 
> infection, he had a third surgery on the incision to perform a debridement of 
> the wound and was put on course of several antibiotics.  He was admitted to 
> the ICU to be treated for the complications of the infection.
> 
> Unfortunately, all of this became just too much for him to take.  While he 
> did show improvement medically, and eventually went from the ICU into a 
> regular hospital room, he was in a lot of pain, which got progressively worse 
> each day all over his body, and discomfort from the effects of the 
> antibiotics.   Eventually, he began denying his food and medication and 
> reached a point where he did not want to continue to fight.  
> 
> Moving to hospice was a painful decision to make, especially knowing how much 
> of a fighter my Dad was through all of the struggles he's been through in his 
> life.  But, those were his wishes and we didn't want him to continue to 
> suffer.  The hospice care did make him comfortable and he finally passed 
> Wednesday afternoon.  After not having had his heart medicines (and others) 
> for so many days, his heart rate was in the 160's, and I guess it finally 
> gave out, but we don't know the exact cause.  I believe he passed peacefully, 
> though.  He was 74 years old.
> 
> I am so grateful and blessed to have had my Dad in my life, and I know he 
> touched countless others lives all over the world.  His altruism inspired me 
> throughout my life.  Please keep him in your prayers and thoughts.  
> 
> His funeral will be this Monday, November 12th at 11:00 AM, at the Beth 
> Israel Memorial Chapel in Boynton Beach, Florida, followed by burial at the 
> Eternal Light Memorial Gardens cemetery at 12:15 PM, also in Boynton Beach.  
> My family and I will be sitting Shiva (a Jewish mourning ritual at home) 
> Monday evening and Tuesday and Wednesday afternoon and evening.
> 
> Regards,
> Shaun
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
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Re: [CMLHope] Update on Marty G

[myvety2k via CMLHope]

Shaun, My name is David Greenberg and am so sorry to hear the news of your 
Father passing.  He meant so much to our group and was ALWAY'S there when we 
ALL needed him. He WILL be MISSED.


David (greenie) Greenberg



-Original Message-
From: Marty Gartenberg 
To: CMLHope 
Sent: Sun, Nov 11, 2018 1:54 am
Subject: [CMLHope] Update on Marty G




Hello everyone - 


This is Marty Gartenberg's son, Shaun.  It is with great sadness for me to say 
that my father passed away this past week, on Wednesday, November 7th, after 
having entered hospice care the previous Friday, November 2nd.  I know many of 
you were good friends with him and that he helped a lot of people through this 
support group.


This all started with a bad fall over 7 weeks ago on September 15 in his garage 
where he fractured his left femur.  He subsequently underwent surgery to get a 
rod implanted in the bone to help it heal.  After a few weeks of physical 
therapy, a checkup showed that one of the screws needed to be adjusted, so he 
had a second surgery for that to adjust the rod, and add a plate.  After having 
more therapy, a MRSA infection was discovered in the incision wound.  He also 
contracted pneumonia.  In order to combat the infection, he had a third surgery 
on the incision to perform a debridement of the wound and was put on course of 
several antibiotics.  He was admitted to the ICU to be treated for the 
complications of the infection.


Unfortunately, all of this became just too much for him to take.  While he did 
show improvement medically, and eventually went from the ICU into a regular 
hospital room, he was in a lot of pain, which got progressively worse each day 
all over his body, and discomfort from the effects of the antibiotics.   
Eventually, he began denying his food and medication and reached a point where 
he did not want to continue to fight.  


Moving to hospice was a painful decision to make, especially knowing how much 
of a fighter my Dad was through all of the struggles he's been through in his 
life.  But, those were his wishes and we didn't want him to continue to suffer. 
 The hospice care did make him comfortable and he finally passed Wednesday 
afternoon.  After not having had his heart medicines (and others) for so many 
days, his heart rate was in the 160's, and I guess it finally gave out, but we 
don't know the exact cause.  I believe he passed peacefully, though.  He was 74 
years old.


I am so grateful and blessed to have had my Dad in my life, and I know he 
touched countless others lives all over the world.  His altruism inspired me 
throughout my life.  Please keep him in your prayers and thoughts.  


His funeral will be this Monday, November 12th at 11:00 AM, at the Beth Israel 
Memorial Chapel in Boynton Beach, Florida, followed by burial at the Eternal 
Light Memorial Gardens cemetery at 12:15 PM, also in Boynton Beach.  My family 
and I will be sitting Shiva (a Jewish mourning ritual at home) Monday evening 
and Tuesday and Wednesday afternoon and evening.


Regards,
Shaun




-- 
-- 
[CMLHope]
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[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Please answer to see if I’m getting my mail

[myvety2k via CMLHope]

Hi Susan, so sorry to hear that you have had so many problems, it's not a fun 
thing.  My appointment I think is at 10:00 a.m. and will be with Derek's widow 
and his two sons. I don't know what she has planned for me because I only get 
to see them twice a year when I fly in to see Dr. Altman.  I will see what I 
can do.  Will let you know, would like to meet up with you again as Grace is 
staying in Sebring.  My flight leaves at 4:30 p.m. and I have to be back to 
Midway and hour and a haft before take off.  I used to fly into Midway when I 
was flying back in my single days many years ago.


greenie



-Original Message-
From: 'Susan Zimmerman' via CMLHope 
To: cmlhope 
Sent: Thu, Nov 8, 2018 9:11 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Hey Greenie!


I come also on Dec. 5th to see Dr. Altman in Chicago.  Let's meet up again!  I 
am also scheduled to see Dr. Kumthekar, a
neurologist right around the same time that day.  Mine is around 1:00 Chicago 
time, so let's discuss privately.  Right now I am
going out of town for two weeksbe back after Thanksgiving.  I have seen so 
many docs lately with severe pain in lower back
and this essential tremor. Also just got put on insulin for diabetes. Very 
small dosage. None are really related to cml, but they keep me hopping.  I fell 
off the chiropractor's table on Monday and really bruised and scraped myself up 
good on my left side.  Keeps life interesting!


Sorry I am in a hurry this morningwill catch up with you all very soon!  
Thinking about you all


18's and love,
Susan Z
-Original Message-
From: myvety2k via CMLHope 
To: cmlhope 
Sent: Thu, Nov 8, 2018 7:46 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail



Jeanie, That's a yes on Sebring. Slower way of life, to much crime, to many hit 
and runs, to many people, can't drive anywhere without someone trying to run 
you off the road, cutting in front of you, etc. The list is long. I have 
nothing against snow birds but when they come down to Fort Myers and the beach 
is near they just take over everything.  A ride to Lowes in the summer time 
takes 5 min. winter its takes 15 to 20 min. because of so many cars.  It was 
time to move and NOW I can go Bass Fishing.


greenie



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Nov 7, 2018 1:18 pm
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Hi all
Good to hear from you. 
Has anyone heard from Marty?
Do you like Sebring Greenie?
This thyroid disease is getting me down.  I want to sleep all day and wake up 
around midnight.  It’s awful!!!
Pray that I will get it straightened out soon 
Have a safe trip Greenie and I hope you can get together with Beth. 
Love you so very much.  
Jeanie


My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope  
wrote:



i Hi Greenie, Congrats on your new home! And the bass boat So good to hear 
from you. Are you flying in on 
Tuesday the 4th for your Wednesday the 5th appointment? Would you like to have 
dinner together Tuesday evening? I could meet you near Northwestern? I would 
love  to meet you and Grace if she is coming. Let me know...you can email at my 
email. bkbar...@aol.com


Thanks!  


18's Beth



-Original Message-
From: myvety2k via CMLHope 
To: cmlhope 
Sent: Tue, Nov 6, 2018 6:07 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail



Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, FL. 
Purchased a home there, Grace purchased me a Tracker bass boat so that I can go 
fishing, of course I'm making the payments.(smile).  Will be flying into 
Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most loving 
thing (Blood Work). another smile.  Will let you all know how things turn out. 
Stay warm if you live North and Cool if you live South. Take care everyone.


Greenie



-Original Message-
From: bkbarney via CMLHope 
To: cmlhope 
Sent: Mon, Nov 5, 2018 12:06 pm
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Dear Jeanie,


Just wanted to say I am here, thinking of you and everyone else... The year is 
slipping by...and next week snow flurries in Chicago. Soon it will be 
Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid 
troubles.. Hopefully they can help you get with the right meds...Ggod 
endocrinologist will guide you!!! You have had more than your share of health 
problems.. You are a real trouper!! Love your positive attitude. Remember to 
advocate for yourself. If you are not satisfied...or feel worse...keep

Re: [CMLHope] Please answer to see if I’m getting my mail

['Susan Zimmerman' via CMLHope]

Hey Greenie!


I come also on Dec. 5th to see Dr. Altman in Chicago.  Let's meet up again!  I 
am also scheduled to see Dr. Kumthekar, a
neurologist right around the same time that day.  Mine is around 1:00 Chicago 
time, so let's discuss privately.  Right now I am
going out of town for two weeksbe back after Thanksgiving.  I have seen so 
many docs lately with severe pain in lower back
and this essential tremor. Also just got put on insulin for diabetes. Very 
small dosage. None are really related to cml, but they keep me hopping.  I fell 
off the chiropractor's table on Monday and really bruised and scraped myself up 
good on my left side.  Keeps life interesting!


Sorry I am in a hurry this morningwill catch up with you all very soon!  
Thinking about you all


18's and love,
Susan Z
-Original Message-
From: myvety2k via CMLHope 
To: cmlhope 
Sent: Thu, Nov 8, 2018 7:46 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail



Jeanie, That's a yes on Sebring. Slower way of life, to much crime, to many hit 
and runs, to many people, can't drive anywhere without someone trying to run 
you off the road, cutting in front of you, etc. The list is long. I have 
nothing against snow birds but when they come down to Fort Myers and the beach 
is near they just take over everything.  A ride to Lowes in the summer time 
takes 5 min. winter its takes 15 to 20 min. because of so many cars.  It was 
time to move and NOW I can go Bass Fishing.


greenie



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Wed, Nov 7, 2018 1:18 pm
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Hi all
Good to hear from you. 
Has anyone heard from Marty?
Do you like Sebring Greenie?
This thyroid disease is getting me down.  I want to sleep all day and wake up 
around midnight.  It’s awful!!!
Pray that I will get it straightened out soon 
Have a safe trip Greenie and I hope you can get together with Beth. 
Love you so very much.  
Jeanie


My Motto:
Faith and Pills
With Love
Jeanie
free
Christian 
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope  
wrote:



i Hi Greenie, Congrats on your new home! And the bass boat So good to hear 
from you. Are you flying in on 
Tuesday the 4th for your Wednesday the 5th appointment? Would you like to have 
dinner together Tuesday evening? I could meet you near Northwestern? I would 
love  to meet you and Grace if she is coming. Let me know...you can email at my 
email. bkbar...@aol.com


Thanks!  


18's Beth



-Original Message-
From: myvety2k via CMLHope 
To: cmlhope 
Sent: Tue, Nov 6, 2018 6:07 am
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail



Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, FL. 
Purchased a home there, Grace purchased me a Tracker bass boat so that I can go 
fishing, of course I'm making the payments.(smile).  Will be flying into 
Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most loving 
thing (Blood Work). another smile.  Will let you all know how things turn out. 
Stay warm if you live North and Cool if you live South. Take care everyone.


Greenie



-Original Message-
From: bkbarney via CMLHope 
To: cmlhope 
Sent: Mon, Nov 5, 2018 12:06 pm
Subject: Re: [CMLHope] Please answer to see if I’m getting my mail


Dear Jeanie,


Just wanted to say I am here, thinking of you and everyone else... The year is 
slipping by...and next week snow flurries in Chicago. Soon it will be 
Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid 
troubles.. Hopefully they can help you get with the right meds...Ggod 
endocrinologist will guide you!!! You have had more than your share of health 
problems.. You are a real trouper!! Love your positive attitude. Remember to 
advocate for yourself. If you are not satisfied...or feel worse...keep asking 
for help! Each of us needs to do this...

I am doing O.K. Blood work for CML showing, but stable working on 
decreasing the inflammation in my body in the hopes that it might help my side 
effects and symptoms...still plugging along the stay positive attitude...is 
still finding meeven in the dark sometimes :), seeing the shadows so know 
the light is somewhere near by.


Love to all.. and Marty, hope you are healing welland Richard, and Susan 
and Suzie Q and Greenie and everyone reading.. Hope each of you has a lovely 
and healthier holiday season!!

18's Beth



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Sun, Nov 4, 2018 11:14 am
Subject: [CMLHope] Please answer to see if I’m getting my mail





My Motto:
Faith and Pills