Re: [CMLHope] Platelets
Yes Marty so is mine. Each day if life is a blessing but Heaven is just a breath away. ❤️❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 6, 2015, at 6:27 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Jeanie, My life is in my prayers, and so is every thing else. We are all part of a family that is devoted to helping each other. Happy Belated fourth of July !8's Marty On Mon, Jul 6, 2015 at 2:58 PM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Happy Monday everyone. Healing energy to all. ❤️❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 6, 2015, at 1:50 PM, bkbarney via CMLHope cmlhope@googlegroups.com wrote: Marty, I just read this..oh my goodness.sending you and your wife... I am sure she is worried about you..lots of love, and healing energy...I know your spirit, and your resiliency, and I trust you will get through this and heal with time...just so not what you needed post your kidney transplant... we love you. keep the faith, and the good fight going.. 18's Beth. -Original Message- From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Jul 4, 2015 10:27 am Subject: Re: [CMLHope] Platelets Kk happy 4th get better My Motto: Faith and Pills Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 8:45 PM, Marty Gartenberg wa2...@gmail.com wrote: i am at home getting rehabilitation. 18's Marty On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi Marty. Are you in the hospital? My Motto: Faith and Pills Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 3:19 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through it. 18's Marty On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004
Re: [CMLHope] Platelets
Marty, I just read this..oh my goodness.sending you and your wife... I am sure she is worried about you..lots of love, and healing energy...I know your spirit, and your resiliency, and I trust you will get through this and heal with time...just so not what you needed post your kidney transplant... we love you. keep the faith, and the good fight going.. 18's Beth. -Original Message- From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Jul 4, 2015 10:27 am Subject: Re: [CMLHope] Platelets Kk happy 4th get better My Motto: Faith and Pills Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 8:45 PM, Marty Gartenberg wa2...@gmail.com wrote: i am at home getting rehabilitation. 18's Marty On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi Marty. Are you in the hospital? My Motto: Faith and Pills Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 3:19 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through it. 18's Marty On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabonnyc...@hotmail.com To: cmlhopecmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am
Re: [CMLHope] Platelets
Happy Monday everyone. Healing energy to all. ❤️❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 6, 2015, at 1:50 PM, bkbarney via CMLHope cmlhope@googlegroups.com wrote: Marty, I just read this..oh my goodness.sending you and your wife... I am sure she is worried about you..lots of love, and healing energy...I know your spirit, and your resiliency, and I trust you will get through this and heal with time...just so not what you needed post your kidney transplant... we love you. keep the faith, and the good fight going.. 18's Beth. -Original Message- From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Jul 4, 2015 10:27 am Subject: Re: [CMLHope] Platelets Kk happy 4th get better My Motto: Faith and Pills Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 8:45 PM, Marty Gartenberg wa2...@gmail.com wrote: i am at home getting rehabilitation. 18's Marty On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi Marty. Are you in the hospital? My Motto: Faith and Pills Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 3:19 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through it. 18's Marty On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level
Re: [CMLHope] Platelets
Kk happy 4th get better My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 8:45 PM, Marty Gartenberg wa2...@gmail.com wrote: i am at home getting rehabilitation. 18's Marty On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi Marty. Are you in the hospital? My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 3:19 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through it. 18's Marty On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope
Re: [CMLHope] Platelets
i am at home getting rehabilitation. 18's Marty On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi Marty. Are you in the hospital? My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 3:19 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through it. 18's Marty On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets *Jeanie,who do you see at Moffitt?* -- Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android https://overview.mail.yahoo.com/mobile/?.src=Android -- *From*:'Icandoallttc' via CMLHope cml...@googlegroups.com *Date*:Tue, May 19, 2015 at 9:01 AM *Subject*:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie [image: Fish] [image: Fish]18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from
Re: [CMLHope] Platelets
Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through it. 18's Marty On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets *Jeanie,who do you see at Moffitt?* -- Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android https://overview.mail.yahoo.com/mobile/?.src=Android -- *From*:'Icandoallttc' via CMLHope cml...@googlegroups.com *Date*:Tue, May 19, 2015 at 9:01 AM *Subject*:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie [image: Fish] [image: Fish]18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr
Re: [CMLHope] Platelets
Hi Marty. Are you in the hospital? My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 3, 2015, at 3:19 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi, everyone, I did have a stroke on Friday the 26 i am slowly getting better. just affected my speech but still working through it. 18's Marty On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope cmlhope@googlegroups.com wrote: Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com
Re: [CMLHope] Platelets
Hi Marty, I just saw your reply to Susan about having a stroke. When did this happen? I've been sick and did not have access to PLM so I didn't know you were ill. I'll say an extra prayer for you. I hope your feeling better. L'chaim, Sherri On Thu, Jul 2, 2015 at 8:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets *Jeanie,who do you see at Moffitt?* -- Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android https://overview.mail.yahoo.com/mobile/?.src=Android -- *From*:'Icandoallttc' via CMLHope cml...@googlegroups.com *Date*:Tue, May 19, 2015 at 9:01 AM *Subject*:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie [image: Fish] [image: Fish]18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups
Re: [CMLHope] Platelets
Hi Marty. Hang in there. Both my grandmother and mother had strokes in their 70s. They both lived to almost 90. This new chemo I take has a side effect of blood clots and strokes. Pill and faith. Praying for you daily. When the group reads this message let us bow our heads in prayer for Marty and everyone.❤️❤️ Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope
Re: [CMLHope] Platelets
Hi Marty, just saw the post that you had a stroke I know you will get a full recovery. greenie In a message dated 7/3/2015 7:00:34 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Marty. Hang in there. Both my grandmother and mother had strokes in their 70s. They both lived to almost 90. This new chemo I take has a side effect of blood clots and strokes. Pill and faith. Praying for you daily. When the group reads this message let us bow our heads in prayer for Marty and everyone.❤️❤️ Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 2, 2015, at 9:47 PM, Marty Gartenberg _wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon _nycotb@hotmail.com_ (mailto:nyc...@hotmail.com) To: cmlhope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 _Sent from Yahoo Mail on Android_ (https://overview.mail.yahoo.com/mobile/?.src=Android) From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC.They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you
Re: [CMLHope] Platelets
Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you. 18s Marcie Sent from my iPad On Jul 2, 2015, at 9:47 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more
Re: [CMLHope] Platelets
Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets *Jeanie,who do you see at Moffitt?* -- Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android https://overview.mail.yahoo.com/mobile/?.src=Android -- *From*:'Icandoallttc' via CMLHope cml...@googlegroups.com *Date*:Tue, May 19, 2015 at 9:01 AM *Subject*:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie [image: Fish] [image: Fish]18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received
Re: [CMLHope] Platelets
Hi Susan. I tried to see him but had trouble with the appointment. My first onc recommended dr balducci. I have been seeing him since 2009. He is the head of the senior oncology at Moffitt. Great doctor!! He specializes in breast cancer. I have a great team at Moffitt. God bless them every one. Thanks. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jun 29, 2015, at 2:18 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com -- --- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed
Re: [CMLHope] Platelets
Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com ----- You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe
Re: [CMLHope] Platelets
Thanks Skip. My problem has always been high platelets and WBC. Go figure hehe. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On Jun 14, 2015, at 9:05 AM, 'Skip Duffie' via CMLHope cmlhope@googlegroups.com wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cmlhope@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google
Re: [CMLHope] Platelets
Hi Skip, With all that you have been through and still going through you are the longest surviving CML patient that I know of. 37 years and counting, but who is counting, you just keep on going on. This is for you to continue on 18's dear Skip. Marty On Sun, Jun 14, 2015 at 9:05 AM, 'Skip Duffie' via CMLHope cmlhope@googlegroups.com wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android https://overview.mail.yahoo.com/mobile/?.src=Android -- *From*:'Icandoallttc' via CMLHope cmlhope@googlegroups.com *Date*:Tue, May 19, 2015 at 9:01 AM *Subject*:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie [image: ][image: ]18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com
RE: [CMLHope] Platelets
Jeanie,who do you see at Moffitt? Date: Sun, 14 Jun 2015 20:23:18 -0700 From: rbhuffm...@gmail.com To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20hooe this helpsSkip Dx 1977 Sent from Yahoo Mail on Android From:'Icandoallttc' via CMLHope cml...@googlegroups.com Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,sDx 1/2004Started Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level?Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week.My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment.Can anyone share info on this?Angie in CanadaGleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http
Re: [CMLHope] Platelets
I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9.Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 Sent from Yahoo Mail on Android https://overview.mail.yahoo.com/mobile/?.src=Android -- *From*:'Icandoallttc' via CMLHope cml...@googlegroups.com javascript: *Date*:Tue, May 19, 2015 at 9:01 AM *Subject*:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Platelets
Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion. I immediately ordered some organic papaya leaf tea and I am awaiting its arrival. I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched. I have traveled in India 3 times. In which part of India do you live? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Tuesday, May 19, 2015 8:15 AM *Subject:* Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply. I will try to find papaya leaf tea. I am in Canada...where are you? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Sunday, May 17, 2015 7:08 AM *Subject:* Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http
Re: [CMLHope] Platelets
Dear ZavieI really don't remember my number on his list...maybe about #68. It was in July 2001. We met him in Ottawa and he guided us through the National Art Galler, and we had lunch together. .Thanks for all the information.Angie From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 8:58 AM Subject: Re: [CMLHope] Platelets Hi Again Angie, Now it makes sense, so you are also blessed (yea right) with Lupus. Yes that makes things more interesting. However you are also fighting your way through it and I take my Zavies zero number one hat off to you. I hope that you know what I'm talking about. Anyway I don't necessarily recommend papaya tea extract but you already ordered it so you can start off with that, but I just sent you a site from Puritans Pride with a lot of information. Please read it. 18's, Marty Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a silent heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobinhad dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time.Wishing all the best to you! 18's~ Angie On Sun, May 24, 2015 at 8:43 AM, ANGELYN ESDERS esd...@rogers.com wrote: Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a silent heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobinhad dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time.Wishing all the best to you! 18's~ Angie From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 8:24 AM Subject: Re: [CMLHope] Platelets Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched.I have traveled in India 3 times. In which part of India do you live?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed
Re: [CMLHope] Platelets
Please take care. Because low platelet counts need more self care. My counts also went low. But my oncologist stops the medicine once it reaches low and then allows to recover to restart the medicine. I didnt know organic papaya leaf tea is available readily made. I collect Papaya leaves from friends and make the powder at home. I live in Chennai, which is a metro city in south of India. Hope your platelet counts improve soon. regards, Ragavan On Sun, May 24, 2015 at 7:37 AM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion. I immediately ordered some organic papaya leaf tea and I am awaiting its arrival. I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched. I have traveled in India 3 times. In which part of India do you live? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Tuesday, May 19, 2015 8:15 AM *Subject:* Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply. I will try to find papaya leaf tea. I am in Canada...where are you? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Sunday, May 17, 2015 7:08 AM *Subject:* Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed
Re: [CMLHope] Platelets
Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a silent heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobinhad dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time.Wishing all the best to you! 18's~ Angie From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 8:24 AM Subject: Re: [CMLHope] Platelets Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched.I have traveled in India 3 times. In which part of India do you live?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level?Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week.My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment.Can anyone share info on this?Angie in CanadaGleevec pioneer since 2001-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com
Re: [CMLHope] Platelets
Hi Angie, I am back with some important information for you There is a company called Puritans Pride that sells exactly what I am talking about. But one and get a total of three for only $13.95. They also sell six bottles buy just buy the three for now and give it some time and see how it works on you. http://www.puritan.com/papaya-enzymes-129/chewable-super-papaya-enzyme-plus-000982 Also I think that you might want to find out the root cause of your low platelet count. I am betting on the TKI your on now. Depending on what your PCR shows your doctor may think about lowering your dose, or in the future think about switching you to another TKI. I would also get in contact with Dr. Brian Druker and or Dr. Moshie Talpaz for their advice. I hope that I was able to help you out. I believe that if you help someone then it will come back to you when you really need it. Maybe my kidney transplant? Maybe my bone marrow transplant? Who knows but no matter what I will still dedicate my life to try and help people if I possibly can. Now you know why I always end with 18's (life) Marty On Sun, May 24, 2015 at 8:24 AM, Marty Gartenberg wa2...@gmail.com wrote: Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion. I immediately ordered some organic papaya leaf tea and I am awaiting its arrival. I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched. I have traveled in India 3 times. In which part of India do you live? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Tuesday, May 19, 2015 8:15 AM *Subject:* Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply. I will try to find papaya leaf tea. I am in Canada...where are you? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Sunday, May 17, 2015 7:08 AM *Subject:* Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com
Re: [CMLHope] Platelets
Hi Again Angie, Now it makes sense, so you are also blessed (yea right) with Lupus. Yes that makes things more interesting. However you are also fighting your way through it and I take my Zavies zero number one hat off to you. I hope that you know what I'm talking about. Anyway I don't necessarily recommend papaya tea extract but you already ordered it so you can start off with that, but I just sent you a site from Puritans Pride with a lot of information. Please read it. 18's, Marty Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a silent heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobin had dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time. Wishing all the best to you! 18's~ Angie On Sun, May 24, 2015 at 8:43 AM, ANGELYN ESDERS esd...@rogers.com wrote: Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a silent heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobin had dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time. Wishing all the best to you! 18's~ Angie -- *From:* Marty Gartenberg wa2...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Sunday, May 24, 2015 8:24 AM *Subject:* Re: [CMLHope] Platelets Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion. I immediately ordered some organic papaya leaf tea and I am awaiting its arrival. I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched. I have traveled in India 3 times. In which part of India do you live? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Tuesday, May 19, 2015 8:15 AM *Subject:* Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply. I will try to find papaya leaf tea. I am in Canada...where are you? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Sunday, May 17, 2015 7:08 AM *Subject:* Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication
Re: [CMLHope] Platelets
Yes my onc stopped my meds which were Tasigna at the time and also insisted on blood transfusion. Good luck. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 24, 2015, at 9:24 AM, Gopalsamy Ragavan graga...@gmail.com wrote: Please take care. Because low platelet counts need more self care. My counts also went low. But my oncologist stops the medicine once it reaches low and then allows to recover to restart the medicine. I didnt know organic papaya leaf tea is available readily made. I collect Papaya leaves from friends and make the powder at home. I live in Chennai, which is a metro city in south of India. Hope your platelet counts improve soon. regards, Ragavan On Sun, May 24, 2015 at 7:37 AM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion. I immediately ordered some organic papaya leaf tea and I am awaiting its arrival. I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched. I have traveled in India 3 times. In which part of India do you live? Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply. I will try to find papaya leaf tea. I am in Canada...where are you? Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed
Re: [CMLHope] Platelets
Hi Angie I don't remember my number either. It took so long for me to teach pcr. I finally reached it on Sprycel. If anybody has the list please let us know. Hang in there!! Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 24, 2015, at 9:31 AM, ANGELYN ESDERS esd...@rogers.com wrote: Dear ZavieI really don't remember my number on his list...maybe about #68. It was in July 2001. We met him in Ottawa and he guided us through the National Art Galler, and we had lunch together. . Thanks for all the information. Angie From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 8:58 AM Subject: Re: [CMLHope] Platelets Hi Again Angie, Now it makes sense, so you are also blessed (yea right) with Lupus. Yes that makes things more interesting. However you are also fighting your way through it and I take my Zavies zero number one hat off to you. I hope that you know what I'm talking about. Anyway I don't necessarily recommend papaya tea extract but you already ordered it so you can start off with that, but I just sent you a site from Puritans Pride with a lot of information. Please read it. 18's, Marty Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a silent heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobin had dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time. Wishing all the best to you! 18's~ Angie On Sun, May 24, 2015 at 8:43 AM, ANGELYN ESDERS esd...@rogers.com wrote: Thanks, Marty. I have ordered organic papaya leaf tea and will mix it as Ragavan suggests. My excitement for this week was a silent heart attack. I missed it. Felt nothing at all. Felt great all week. A blood test revealed a high level of Troponins in my blood and they got all excited and kept me in hospital for 3 days doing various tests. I will learn the results this week. I see a platelet specialist tomorrow. Maybe he will have more words of wisdom. I am really happy to hear that you recommend papaya tea also and that it works. I had 9 platelets on Friday (normal level 150-450) and my hemoglobin had dropped into the low 80's. This seems to be an ongoing battle as my lupus tries to kill my body one cell at a time. Wishing all the best to you! 18's~ Angie From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 8:24 AM Subject: Re: [CMLHope] Platelets Hi Angie, Please read this about the effects to not only your platelet counts but also your red cell count. Ragavan gave you some valuable advice but you need to find the best supplement that contains the best form of Papya leaf extract. By the way when I had my bone marrow transplant one of my friends got me some of it and it did work. Let me do some research and get back to you. In the meantime you must be extremely careful not to injure your self. don't walk around barefoot or even use slippers. It will not offer any protection if you should stub one of your toes. I know all about that because it happened to me. OK on to some research. By the way I am slowly starting to recover from the Staff infection in my lungs. I have a picc line and wear an infusion pump 24/7 for the next few weeks. I will get back to you 18's, Marty http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757281/ On Sat, May 23, 2015 at 10:07 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion. I immediately ordered some organic papaya leaf tea and I am awaiting its arrival. I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched. I have traveled in India 3 times. In which part of India do you live? Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe
Re: [CMLHope] Platelets
I have stayed in Chennaiwith its beautiful long beach. The water of the Indian Ocean was as warm as bath water! Wonderful memories~~Here in Canada, of course, we have no papaya trees, so I must order the purest product I can find from elsewhere.Angie From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com To: cmlhope@googlegroups.com cmlhope@googlegroups.com Sent: Sunday, May 24, 2015 12:29 PM Subject: Re: [CMLHope] Platelets Yes my onc stopped my meds which were Tasigna at the time and also insisted on blood transfusion. Good luck. Prayers Blessings Jeanie 18,sDx 1/2004Started Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib January 2015 On May 24, 2015, at 9:24 AM, Gopalsamy Ragavan graga...@gmail.com wrote: Please take care. Because low platelet counts need more self care. My counts also went low. But my oncologist stops the medicine once it reaches low and then allows to recover to restart the medicine. I didnt know organic papaya leaf tea is available readily made. I collect Papaya leaves from friends and make the powder at home. I live in Chennai, which is a metro city in south of India. Hope your platelet counts improve soon. regards, Ragavan On Sun, May 24, 2015 at 7:37 AM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched.I have traveled in India 3 times. In which part of India do you live?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level?Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week.My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment.Can anyone share info on this?Angie in CanadaGleevec pioneer since 2001-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe
Re: [CMLHope] Platelets
Thank you very much, Ragavan, for your suggestion.I immediately ordered some organic papaya leaf tea and I am awaiting its arrival.I can't wait to try it as my platelets are still so very low in number. Minimum level is 150-450.I have 9. I have red spots all over me and big, purple bruises from anywhere I am touched.I have traveled in India 3 times. In which part of India do you live?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Tuesday, May 19, 2015 8:15 AM Subject: Re: [CMLHope] Platelets I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level?Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week.My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment.Can anyone share info on this?Angie in CanadaGleevec pioneer since 2001-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received
Re: [CMLHope] Platelets
I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan graga...@gmail.com wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Platelets
I am in India. I have given the method below. You can prepare it very easily. Or you can drink two spoons of papaya leaf extract in the morning. Procedure: Dry papaya leaves completely. Add cumin seeds and little black pepper and powder the dried papaya leaves. Keep it safe in a container. Add water to spoon full of papaya leaf powder and boil it. Filter it and drink warm. regards, Ragavan On Sun, May 17, 2015 at 6:33 PM, ANGELYN ESDERS esd...@rogers.com wrote: Thank you very much for your reply. I will try to find papaya leaf tea. I am in Canada...where are you? Angie -- *From:* Gopalsamy Ragavan graga...@gmail.com *To:* cmlhope@googlegroups.com *Sent:* Sunday, May 17, 2015 7:08 AM *Subject:* Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Platelets
I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada Gleevec pioneer since 2001 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Platelets
Thank you very much for your reply.I will try to find papaya leaf tea.I am in Canada...where are you?Angie From: Gopalsamy Ragavan graga...@gmail.com To: cmlhope@googlegroups.com Sent: Sunday, May 17, 2015 7:08 AM Subject: Re: [CMLHope] Platelets I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS esd...@rogers.com wrote: Does anyone have problems maintaining their platelet level?Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week.My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment.Can anyone share info on this?Angie in CanadaGleevec pioneer since 2001-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
