RE: [QUAD-L] quadriciser
Wow cool! :D I've never seen or used one but I've used other stuff at the Craig gym. nothing like this though. Danny From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Wednesday, August 08, 2012 11:13 AM To: Quad-list post Subject: [QUAD-L] quadriciser I saw this at the abilities expo in houstoni really want one anyone else have one or used one? http://www.quadriciser.com/ ~LittleQuad~
[QUAD-L] New Dragon out for preorder!
http://www.nuance.com/dragon/whats-new-version-12/index.htm WEWT! Looks like some good upgrades for those with newer PC's I'm curious how droid microphones will compare to my blutooth earpiece..
RE: [QUAD-L] sore
Additionally you should keep your heels and ankles elevated with either heel lifts or pillows under your ankles... I'm surprised it's on your ankle and not your heel. While its healing try to either keep all pressure off it or rotate pressure elsewhere by turning. It's easier to prevent skin breakdown than it is for it to heal, you should try to make it a routine to check for early signs of pressure sores or if you're like me a c2 quad have a caregiver or family member check daily. My cargivers do it while I do my range of motion exercises. Danny From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Sunday, July 29, 2012 8:26 AM To: Quad-list post Subject: Re: [QUAD-L] sore Keep all pressure off of it at night. Put little pads where it won't be on bed. LQ ~LittleQuad~ Sent from my BlackBerry _ From: Eric W Rudd c5sc...@gmail.com Date: Sat, 28 Jul 2012 23:39:19 -0500 To: quad-list@eskimo.com Subject: Re: [QUAD-L] sore find the source relieve it Eric W Rudd c5sc...@gmail.com From: Patrick Kenneally mailto:ber...@sbcglobal.net Sent: Saturday, July 28, 2012 6:24 PM To: quad-list@eskimo.com ; ppac...@comcast.net Subject: Re: [QUAD-L] sore Hi Paul, I had one last year and kept it elevated during sleep. Irrigated it with saline between showers. I used Bacitracin one day and Dermawound the next. I also keep it elevated since at night as a precaution. Patrick C6-7 22yrs --- On Sat, 7/28/12, ppac...@comcast.net ppac...@comcast.net wrote: From: ppac...@comcast.net ppac...@comcast.net Subject: [QUAD-L] sore To: quad-list@eskimo.com Date: Saturday, July 28, 2012, 2:25 PM Hi Everyone, I just had a small pressure sore open up on my right ankle.I would like to ask you all which is your first line of defense when this happens? Thank you! Paul
RE: [QUAD-L] suprapubic
I've had mostly good experiences I rarely get UTI's now. I switch from my night bag to leg bag when I get in my char and just monitor my leg bag as my bladder is about the size of a walnut now... I use silver impregnated catheters to help prevent uti's, catheter gets changed every two weeks. Maintenance is as follows: Leg bag: rinse with diluted bleach after every time you use the leg bag. Night bag: rinse with diluted bleach after you drain it and your changed to the leg bag I've had mine for about 6.5 years now.. Danny From: Quadius [mailto:quad...@gmail.com] Sent: Saturday, July 28, 2012 2:30 PM To: Ben Mattlin Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] suprapubic I had my supra-pubic for a little under 17 years. I just had mine removed in May to be replaced with a urostomy. For the first 15 years, I had great results. Much like many of the other guys and ladies. It's pretty easy to take care of the SP and I would have to say it's one of the better ways to manage the bladder if you are a quadriplegic incapable of catching yourself. Over the years I was told to change the catheter every two weeks, every three weeks, and ultimately every four weeks. I did have a doctor who did a pretty extensive experiment over a couple of years and determined that it was best to change the catheter every two weeks. They have empirical data which indicated there was much less incidence of UTIs, but for most of the time I liked changing my catheter every three weeks. I had to have my SP removed because my bladder atrophied to the point where it would not drain properly and I was in constant pain. As I said before, that is not the norm. Many guys are able to go for 30+ years without any significant difficulties. Cleaning the bags is important and I really wouldn't advise plugging the SP unless you're trying to use an external catheter and intermittently draining the excessive urine out of your bladder. Hopefully I didn't confuse you, but I tend to think it's a good procedure if you have a decent urologist who is familiar with quadriplegic. Quadius On Thu, Jul 26, 2012 at 3:36 PM, Ben Mattlin bmatt...@earthlink.net wrote: Anybody had good or bad experiences with a suprapubic? I'm wondering about the initial installation operation as well as daily and monthly maintenance. Do you use a leg bag or just plug it and empty it every 4 to 6 hours? What are the side effects the doctors don't tell you about? Brutal honesty appreciated. Best, Ben __ Ben Mattlin www.BenMattlin.com www.MiracleBoyGrowsUp.com
RE: [QUAD-L] suprapubic
I've had mostly good experiences I rarely get UTI's now. I switch from my night bag to leg bag when I get in my char and just monitor my leg bag as my bladder is about the size of a walnut now... I use silver impregnated catheters to help prevent uti's, catheter gets changed every two weeks. Maintenance is as follows: Leg bag: rinse with diluted bleach after every time you use the leg bag. Night bag: rinse with diluted bleach after you drain it and your changed to the leg bag -Original Message- From: Ben Mattlin [mailto:bmatt...@earthlink.net] Sent: Thursday, July 26, 2012 12:37 PM To: quad-list@eskimo.com Subject: [QUAD-L] suprapubic Anybody had good or bad experiences with a suprapubic? I'm wondering about the initial installation operation as well as daily and monthly maintenance. Do you use a leg bag or just plug it and empty it every 4 to 6 hours? What are the side effects the doctors don't tell you about? Brutal honesty appreciated. Best, Ben __ Ben Mattlin www.BenMattlin.com www.MiracleBoyGrowsUp.com
RE: [QUAD-L] suprapubic
If I get AD symptoms when the catheter after the catheter change it usually goes away fairly quick How much do you fill the balloon? I use 4ml, it sounds like it may be getting overfilled or some sort of lasting pain is going on. Danny _ From: Mandy T moo_on_whe...@yahoo.com To: Don Price donpric...@yahoo.com; Ben Mattlin bmatt...@earthlink.net Cc: quadlist quad-list@eskimo.com Sent: Thu, July 26, 2012 6:28:28 PM Subject: Re: [QUAD-L] suprapubic I've only had mine for 5 1/2 months (I was injured last Oct) so I don't have a long-term look at the suprapub. My instructions for maintenance were to clean the stoma morning and night with Dial soap, clean the bags (I use a leg bag during the day) with a bleach solution, and change the catheter once a month. The stoma has not yet healed, leading me to wonder if it ever does? I like your comment about trading between vinegar and bleach, Don. The main problem for me started when a CNA disconnected my leg bag in the shower, allowing bacteria in. I had a series of infections after that and I'm still not quite recovered. Beware of idiocy. :/ Now for the brutally honest part...during the procedure my BP went up to 210/110, so make sure your urologist understands AD and has ways to lower your BP immediately available (nitro paste, pain meds, etc). It may have just been the way they performed the procedure or the fact that I'm so susceptible to AD. Has anyone else had this experience? I have another question- does anyone here have bad AD symptoms when the catheter is being changed and up to a day after it was changed? If so, how do you prepare for/treat the problem? Mandy, C5-C7 quad _ From: Don Price donpric...@yahoo.com To: Ben Mattlin bmatt...@earthlink.net Cc: quadlist quad-list@eskimo.com Sent: Thursday, July 26, 2012 4:24 PM Subject: Re: [QUAD-L] suprapubic To clarify--he was talking about rinsing the legbag out with a bleach solution, NOT your suprapubic. Btw, if you're able to you should rinse legbags or nightbags out by alternating between a bleach solution one night and a vinegar solution the next night. Kills different bacteria and keeps them almost odor-free. From: Ben Mattlin bmatt...@earthlink.net To: quad-list@eskimo.com Sent: Thursday, July 26, 2012 3:04 PM Subject: RE: [QUAD-L] suprapubic Thanks, Daniel - but I'm a little confused. My urologist said I could just keep it capped and empty it into a bottle or urinal every 4-6 hours. He said a leg bag was optional for longer durations. Also said it would have to be changed monthly, either at his office or by a home nurse. He didn't say anything about rinsing with diluted bleach or anything. I thought he was making it sound too simple! __ Ben Mattlin http://www.benmattlin.com/ http://www.miracleboygrowsup.com/ -Original Message- From: Daniel Espinoza [mailto:da...@immortaldesigns.co] Sent: Thursday, July 26, 2012 1:26 PM To: 'Ben Mattlin'; quad-list@eskimo.com Subject: RE: [QUAD-L] suprapubic I've had mostly good experiences I rarely get UTI's now. I switch from my night bag to leg bag when I get in my char and just monitor my leg bag as my bladder is about the size of a walnut now... I use silver impregnated catheters to help prevent uti's, catheter gets changed every two weeks. Maintenance is as follows: Leg bag: rinse with diluted bleach after every time you use the leg bag. Night bag: rinse with diluted bleach after you drain it and your changed to the leg bag -Original Message- From: Ben Mattlin [mailto:bmatt...@earthlink.net] Sent: Thursday, July 26, 2012 12:37 PM To: quad-list@eskimo.com Subject: [QUAD-L] suprapubic Anybody had good or bad experiences with a suprapubic? I'm wondering about the initial installation operation as well as daily and monthly maintenance. Do you use a leg bag or just plug it and empty it every 4 to 6 hours? What are the side effects the doctors don't tell you about? Brutal honesty appreciated. Best, Ben __ Ben Mattlin www.BenMattlin.com http://www.benmattlin.com/ www.MiracleBoyGrowsUp.com http://www.miracleboygrowsup.com/
RE: [QUAD-L] suprapubic
Same lol Danny From: Don Price [mailto:donpric...@yahoo.com] Sent: Thursday, July 26, 2012 6:05 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] suprapubic I hear a lot of people mispronounce it as SUPERpubic. I envision a tiny little superhero with curly hair.
RE: [QUAD-L] Coumadin - Purple Toe Syndrome
What's it caused by? Coumadin? I take Coumadin but haven't noticed and discoloration What does it mean? Ptinr to low maybe? -Danny -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Wednesday, July 25, 2012 7:24 AM To: nichole rohling; Quad-list post Subject: Re: [QUAD-L] Coumadin - Purple Toe Syndrome Yes ma'am. Very dangerous and serious. I'm talking to my docs on Thurs and Fri. Plus I'm having some discoloration on left hand. I'm not real happy. Amye. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: nichole rohling zoocr...@windstream.net Date: Tue, 24 Jul 2012 19:45:35 To: littleq...@yahoo.com; Quad-List@Eskimo. Comquad-list@eskimo.com Subject: RE: [QUAD-L] Coumadin - Purple Toe Syndrome my feet have turned purple on occasion but had no idea it could be related!! -Original Message- From: Daniel Espinoza [mailto:da...@immortaldesigns.co] Sent: Tuesday, July 24, 2012 3:33 PM To: littleq...@yahoo.com; 'Quad-list post' Subject: RE: [QUAD-L] Coumadin - Purple Toe Syndrome Sorry I haven't -Danny -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Tuesday, July 24, 2012 8:29 AM To: Quad-list post Subject: [QUAD-L] Coumadin - Purple Toe Syndrome Have any of you that take Coumadin ever had the symptoms of Purple Toe syndrome?? I'm experiencing it badly. Have Dr. appointment Thursday and going to discuss it with her. I'm getting concerned... Amye ~ LQ ~LittleQuad~ Sent from my BlackBerry
RE: [QUAD-L] Coumadin - Purple Toe Syndrome
Sorry I haven't -Danny -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Tuesday, July 24, 2012 8:29 AM To: Quad-list post Subject: [QUAD-L] Coumadin - Purple Toe Syndrome Have any of you that take Coumadin ever had the symptoms of Purple Toe syndrome?? I'm experiencing it badly. Have Dr. appointment Thursday and going to discuss it with her. I'm getting concerned... Amye ~ LQ ~LittleQuad~ Sent from my BlackBerry
RE: [QUAD-L] Cell phones
Right now I've got a Droid-x but I plan on getting an iphone 5 with Siri -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Monday, July 23, 2012 10:46 AM To: Quad-list post Subject: [QUAD-L] Cell phones What kind do ya'll use? Issues/dislikes with them? I use a Blackberry and LOVE it but seems company may end up belly up :( So I may have to find new kind in September when my contract runs out, sigh. Thanks, LQ ~LittleQuad~ Sent from my BlackBerry
RE: [QUAD-L] Push Girls
Interesting and no…. Real para/quads or actors? From: Bobbie Humphreys [mailto:bobbie...@aol.com] Sent: Tuesday, June 05, 2012 8:40 PM To: Quad-list@eskimo.com Subject: [QUAD-L] Push Girls Hi Everybody, Monday night was the first reality show called Push Girls on the Sundance channel. Did anybody see it? There are 3 para's and 1 quad. They discuss relationship's, sex, having children, dating and compete in a dance competition. It's on every Monday night at 10:00pm Eastern time on the Sundance channel. It's done VERY well. Bobbie
RE: [QUAD-L] The main causes of liver damage
Very true From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] Sent: Monday, May 07, 2012 11:05 PM To: quad-list@eskimo.com Subject: RE: [QUAD-L] The main causes of liver damage i dont believe this ad...anyway, as a quad what you think will bring you down probally wont be the case, we have a 1000 ways to kill us and give extra trouble.all you can do is the best you can and take one day at a time. ron c7 --- On Mon, 5/7/12, Daniel Espinoza da...@immortaldesigns.co wrote: From: Daniel Espinoza da...@immortaldesigns.co Subject: RE: [QUAD-L] The main causes of liver damage To: 'HOSNI AL-KHATIB' hosnialkha...@hotmail.com, quad-list@eskimo.com Date: Monday, May 7, 2012, 6:51 PM 1. Sleeping too late and waking up too late are main cause. Like oversleeping? I have an uncommon sleep schedule, im up late “3am’is” and up between 5 and 9……. From: HOSNI AL-KHATIB [mailto:hosnialkha...@hotmail.com] Sent: Monday, May 07, 2012 9:17 AM To: quad-list@eskimo.com Subject: [QUAD-L] The main causes of liver damage BRAVEHEART has sent you a link to a blog: The main causes of liver damage Blog: BRAVEHEART Post: The main causes of liver damage Link:http://hkbraveheart.blogspot.com/2012/05/main-causes-of-liver-damage.html -- Powered by Blogger http://www.blogger.com/
RE: [QUAD-L] The main causes of liver damage
1. Sleeping too late and waking up too late are main cause. Like oversleeping? I have an uncommon sleep schedule, im up late 3am'is and up between 5 and 9... From: HOSNI AL-KHATIB [mailto:hosnialkha...@hotmail.com] Sent: Monday, May 07, 2012 9:17 AM To: quad-list@eskimo.com Subject: [QUAD-L] The main causes of liver damage BRAVEHEART has sent you a link to a blog: The main causes of liver damage Blog: BRAVEHEART Post: The main causes of liver damage Link:http://hkbraveheart.blogspot.com/2012/05/main-causes-of-liver-damage.ht ml -- Powered by Blogger http://www.blogger.com/
RE: [QUAD-L] Computer Access
I use speech recognition software and a quad joy which is a joystick to control with your mouth. The speech recognition software I use is made by Nuance called Dragon NaturallySpeaking. The mouse I use can be bought at www.quadjoy.com I hope this helps... From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Friday, February 10, 2012 8:06 AM To: Jim Lubin; quad-list@eskimo.com Subject: Re: [QUAD-L] Computer Access Wow- quite a long time ! you and all the high level quads are and inspiration, you are so computer saavy compaired to me ! lolWhen I was 1st injured I was vent dependent for about 3 weeks, then oxygen dependent for a while---Eventially I was weaned off and my condition improved. thanks for your reply and for the list !Dan H ** C-6 August 1997 at age 40--now 55. _ From: Jim Lubin jlu...@eskimo.com To: Danny Hearn ddh...@sbcglobal.net; quad-list@eskimo.com Sent: Thu, February 9, 2012 9:27:05 PM Subject: Re: [QUAD-L] Computer Access I have been a c2 vent dependent quad since 1989 when I was 21. I started out using a morse code memory resident software in DOS. My current adaptive keyboard/mouse I have been using since 1994. At 07:06 PM 2/9/2012, Danny Hearn wrote: Jim, have you been c2 vent dependent since 1994 or was it before that? thanks, Dan H.* From: Jim Lubin jlu...@eskimo.com To: quad-list@eskimo.com Sent: Thu, February 9, 2012 8:09:30 PM Subject: [QUAD-L] Computer Access I am a C2 vent dependent quad. No arm movement and barely any head movement. I have been using my current adaptive keyboard/mouse interface since 1994 and it works great for me, sip and puff morse code. I'm looking for an alternative as a backup to use for mouse input and keyboard input. I tried Jouse2 and a headmouse and neither worked for me. What does everyone else use? Jim Lubin http://makoa.org/jim disAbility Resources: http://www.makoa.org http://www.makoa.org/ Jim Lubin http://makoa.org/jim disAbility Resources: http://www.makoa.org http://www.makoa.org/
RE: [QUAD-L] normal
Sometimes I feel hot or cold when I am actually not after I have checked my temperature and see that it's actually normal that is due to our spinal cord injury, also our bodies cannot regulate temperature like they used to so it's quite possible you are actually hot or cold. When you set up it hurts, hmm.. I'm not a doctor but I would suggest checking your blood pressure to see if it is normal if it is what kind of pain is it? Does it feel like the stinging or tangling like from neuropathic pain? Or is in a constant pain? I'm not really sure what would because the pain but my guess is it has to do with either blood pressure or neuropathic pain. Hopefully this helps somehow and good luck! Danny Espinoza 28/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX = I have a question for you guys is it normal for a quadriplegic. Sometimes, I am cold other times of very hot. My other question to you guys is when I sit up on the chair from the waist down. It hurts specially my legs is that normal for a quadriplegic
RE: [QUAD-L] computer question
I use a Quadjoy for my mouse and Microsoft's on-screen keyboard and Dragon naturally speaking to type Danny Espinoza 28/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: Joan Anglin [mailto:poaj...@sbcglobal.net] Sent: Thursday, June 02, 2011 5:51 PM To: gah17...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] computer question I use a mouthstick so I cannot use the mouse at all so as Eric said I can control the mouse with a keypad. But it has its limitations, so I suggest you look at Autohotkey or Zenkey. My desktop keyboard uses XP and I find Zenkey makes it easier for me when I do use that computer. I normally use the laptop with windows seven speech recognition. Hope that helps. Joan From: gah17...@aol.com [mailto:gah17...@aol.com] Sent: Thursday, June 02, 2011 3:35 PM To: quad-list@eskimo.com Subject: [QUAD-L] computer question I type with a pencil in my right hand, need to remove pencil to click the mouse. Any computer keys combination take the place of right / left mouse click? Glenn Henry
RE: [QUAD-L] Dragon IPad PC MIC
I am using a Plantronics M1100 without any problems at all connected to my PC with a USB Bluetooth adapter. I also have a Plantronics USB microphone that works okay but not as good as the heM1100 That's really weird that you have static... I wonder if it's not your microphone one and something else causing it. Have you tried contacting Plantronics support? Danny Espinoza 28/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX -Original Message- From: Bill Lang [mailto:blan...@verizon.net] Sent: Friday, June 03, 2011 2:42 PM To: quad-list Subject: [QUAD-L] Dragon IPad PC MIC I am trying to find a good headset that is Bluetooth enabled. I have a Plantronics but there is so much static on it when I use it on the PC that I cannot use it at all. Works fine on the IPAD. Does anyone have a good recommendation? Sent from Billy's IPAD2
RE: [QUAD-L] Hi Hitler
Sounds likeAdware:Win32/Hithopper update your antivirus/anti-malware/anti-spyware software I found this site that may be of use to you http://www.repairwindowserrors.com/virusdoshitler-b check it out and let me know if you're still having problems From: e m treston [mailto:missl...@optonline.net] Sent: Friday, May 27, 2011 11:56 AM To: wheelch...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] Hi Hitler ditto... _ From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Friday, May 27, 2011 2:32 PM To: quad-list@eskimo.com Subject: [QUAD-L] Hi Hitler Well now. When I receive email with that kind of subject matter, I have to presume its spam or a virus. Anyone else? Best Wishes
RE: [QUAD-L] Bluetooth headsets
Just a little update to fix some of the confusion. I can take calls with only voice commands I don't need to push a button all I do is say answer call, the only thing I need to push a button for is to make a call out, you push the rear button on the headpiece and say call and then the name or the number and it calls. I have gotten many e-mails about this and decided to reply on the quad list instead of each one. The headpiece does come with an optional ear loop to hold it in place even better and it came with three different earpieces to fit different sizes of your ear. Since this post I have also bought a USB Bluetooth adapter for my computer so my Bluetooth headset can sync up to my computer and I set up another Dragon profile to use the Bluetooth headset as a microphone and it works extremely well. The Bluetooth adapter was $29.99 while I am using it as a microphone for my computer I can still accept calls and make them. From: Daniel Espinoza [mailto:static...@roadrunner.com] Sent: Saturday, February 19, 2011 11:02 PM To: 'greg' Cc: 'quad-list' Subject: RE: [QUAD-L] Bluetooth headsets I got the Plantronics savor m 1100 headset and I must say I like it, the only thing I have a hard time with is the fact that I have to push a button to say a command like call and then either a name or the number. I'm getting better at hitting the button but the fact that I can't use my fingers makes it really hard. The audio quality is extremely good and it has three microphones on it with excellent noise cancellation so people are able to hear me talk even when say I'm out with my friends and it's kind of noisy using the audio IQ 3 noise canceling technology. The other thing comes with is a year subscription to Plantronics vocalist which is really neat and all I have to say call vocalist and use you directly connect to the service and use simple voice commands to listen to your email, send text messages and more http://vocalyst.dial2do.com/home/learn_more and here is the link to my Bluetooth headset http://www.plantronics.com/us/product/savor-m1100 Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: greg [mailto:g...@eskimo.com] Sent: Monday, January 03, 2011 3:17 PM To: Daniel Espinoza Cc: quad-list Subject: Re: [QUAD-L] Bluetooth headsets I love the Droid phone (my Motorola Droid), but the one thing that really disappointed me about it was the bluetooth abilities. At first it could not even call out via bluetooth. You had to call, then activate the bluetooth. After the OS update it could call out, but there is no confirmation, it just calls the first name it thinks you said. It still has few options, like auto-answer, confirmation, etc. I think most bluetooth ear pieces work as well as any, if it's good one one phone it's good on the Droid. Just few options. But I love the Apps, Google Sky (point camera up it shows what constellations are there), TV.Com, Google Navigation (Free GPS voice/map navigation), ESPN Scores, Google Voice (converts voice mail to text), Slacker Radio, Locate (track other phones on a map), Scanner Frequencies (listen to fire/police scanners around world), I haven't paid for any Apps yet, but there are some I'm thinking about. It's not a quad friendly phone, must use skin or specific pointer to move screen or hit icons. I try to use my knuckle with degrees of success. And it's slippery. Greg For Christmas I got a droid cell phone and I'm looking for a good Bluetooth headset to pair it with. Right now I am looking at the Plantronics M1100 and the jawbone icon, and I'm wondering if anyone has any feedback on them or another headset I could look into.
RE: [QUAD-L] Bluetooth headsets
I got the Plantronics savor m 1100 headset and I must say I like it, the only thing I have a hard time with is the fact that I have to push a button to say a command like call and then either a name or the number. I'm getting better at hitting the button but the fact that I can't use my fingers makes it really hard. The audio quality is extremely good and it has three microphones on it with excellent noise cancellation so people are able to hear me talk even when say I'm out with my friends and it's kind of noisy using the audio IQ 3 noise canceling technology. The other thing comes with is a year subscription to Plantronics vocalist which is really neat and all I have to say call vocalist and use you directly connect to the service and use simple voice commands to listen to your email, send text messages and more http://vocalyst.dial2do.com/home/learn_more and here is the link to my Bluetooth headset http://www.plantronics.com/us/product/savor-m1100 Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: greg [mailto:g...@eskimo.com] Sent: Monday, January 03, 2011 3:17 PM To: Daniel Espinoza Cc: quad-list Subject: Re: [QUAD-L] Bluetooth headsets I love the Droid phone (my Motorola Droid), but the one thing that really disappointed me about it was the bluetooth abilities. At first it could not even call out via bluetooth. You had to call, then activate the bluetooth. After the OS update it could call out, but there is no confirmation, it just calls the first name it thinks you said. It still has few options, like auto-answer, confirmation, etc. I think most bluetooth ear pieces work as well as any, if it's good one one phone it's good on the Droid. Just few options. But I love the Apps, Google Sky (point camera up it shows what constellations are there), TV.Com, Google Navigation (Free GPS voice/map navigation), ESPN Scores, Google Voice (converts voice mail to text), Slacker Radio, Locate (track other phones on a map), Scanner Frequencies (listen to fire/police scanners around world), I haven't paid for any Apps yet, but there are some I'm thinking about. It's not a quad friendly phone, must use skin or specific pointer to move screen or hit icons. I try to use my knuckle with degrees of success. And it's slippery. Greg For Christmas I got a droid cell phone and I'm looking for a good Bluetooth headset to pair it with. Right now I am looking at the Plantronics M1100 and the jawbone icon, and I'm wondering if anyone has any feedback on them or another headset I could look into.
[QUAD-L] Bluetooth headsets
For Christmas I got a droid cell phone and I'm looking for a good Bluetooth headset to pair it with. Right now I am looking at the Plantronics M1100 and the jawbone icon, and I'm wondering if anyone has any feedback on them or another headset I could look into. Thanks in advance! Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX
RE: [QUAD-L] music 4 son
Chimaira, Trivium, Fear Factory, Lamb of god, Machine head are some good ones... Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: Eric W Rudd [mailto:c5sc...@gmail.com] Sent: Friday, October 29, 2010 8:14 PM To: Q-List Subject: [QUAD-L] music 4 son he's a 13yo that loves 'metal'...suggestions? my list is lacking Staind Avenged Sevenfold Slip-knot System of a down Korn Killswitch engage Atreyu Eric W Rudd c5sc...@gmail.com
RE: [QUAD-L] pain
Yes however the injury was asymmetrical so half of my diaphragm is paralyzed. I was on a ventilator when I went for my rehabilitation at Craig hospital and was slowly taken off of it. I do have a quiet voice and cannot really yell either.. What's your fathers functional injury level? Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net http://www.thespinalcordinjured.net/ My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: Dr. Bo Machado [mailto:d...@hf-rc.com] Sent: Sunday, September 26, 2010 9:10 PM To: 'Daniel Espinoza'; 'Fragile'; 'quad-list' Subject: RE: [QUAD-L] pain My dad has a recent c5 Fx and is not vent dependant, but has too little breath to have voice. It that typical of C5 level quadriplegia? Many of you have higher injuries. Do you have enough expiratory force to create voice? In Him, Bo _ From: Daniel Espinoza [mailto:static...@roadrunner.com] Sent: Sunday, September 26, 2010 11:56 PM To: 'Fragile'; 'quad-list' Subject: RE: [QUAD-L] pain I take 200mg per day Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net http://www.thespinalcordinjured.net/ My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: Fragile [mailto:swl...@gmail.com] Sent: Saturday, September 25, 2010 5:06 PM To: quad-list Subject: Re: [QUAD-L] pain Lyrica 800 mg twice a day? I take 300 mg twice a day and I can't think straight. Was told 900 mg per day was the max. On Sat, Sep 25, 2010 at 4:59 PM, ladyno...@aol.com wrote: Dana, I take Vicodin four times a day, Lyrica 800 mg twice a day, Cymbalta 60 mg once a day, and 150 mcg of Duragesic pain patch. What is causing the pain in his shoulder? I ask because I have a two finger subluxation in my right shoulder, and it's very painful. All the arm braces I have tried, cause pain somewhere else. In a message dated 9/24/2010 12:55:45 P.M. Eastern Daylight Time, daa...@aol.com writes: What do any of you take for pain and the inability to sleep? Is there any kind of shot for shoulder pain? Thank you, Dana C-4-5, 36 years post, Prairie Village, Kansas
[QUAD-L] to those of you who insist on smoking cigarettes
While I do not like the idea of a quadriplegic smoking cigarettes I do understand that it is a choice that only they can make. With that being said I would recommend these cigarettes instead of regular ones where you have the possibility of burning yourselves, or destroying your chair making a lighter. The company is called Blu and they make electronic cigarettes also known as smokeless cigarettes. Here is the link http://www.blucigs.com/ Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://www.thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX
RE: [QUAD-L] Hyper-Bariatric Wound Therapy
I haven't but my Grandma had it done to help her with her wounds. The way it works from what I saw was that you lay down on an enclosed bed and they fill the chamber up with mostly oxygen as it gains pressure it pushes extra oxygen into your wounds and that stimulates it for healing. Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://www.thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Tuesday, July 27, 2010 12:03 PM To: QUAD-LIST@eskimo.com Subject: [QUAD-L] Hyper-Bariatric Wound Therapy Has anyone been approved to use Hyper-Bariatric Therapy, for open wounds and pressure sores? If so, how did it work for you. Was electric stim as used to promote tissue growth and circulation? Who didn't know about this therapy? Best Wishes
RE: [QUAD-L] Puff and Sip Mouse problems
Is it when you first boot up your computer? You can fix it by unplugging it and waiting 10 seconds and then plugging it back in. When the mouse is being detected and starting up a calibrates its center point where the mouse is. But now I haven't had any problems other than that. Danny Espinoza 27/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net http://www.thespinalcordinjured.net/ My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: Ismael [mailto:ismael.cava...@att.net] Sent: Monday, June 14, 2010 5:32 PM To: quad-list@eskimo.com Subject: [QUAD-L] Puff and Sip Mouse problems Does anyone have problems with their Puff N Sip mouse where the mouse cursor moves around on its own? If so, how can I fix this? Thank you.
[QUAD-L] air-conditioner
I was wondering if anyone knew of a way to control a Window style air-conditioner? I would prefer if I could control it from my computer but I'm really not too sure what my options are. It gets really hot in my room and then I start to hurt... The air-conditioner I have turns itself off after a period of use I'm assuming so it doesn't freeze over, however it does not turn back on a my room gets really hot LOL any suggestions would be great, I lightly looked into computer-controlled air conditioners on Google but they aren't really what I need or am looking for. Thanks in advance! Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://wwwthespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX
RE: [QUAD-L] Supra Pubic Flush
I flush with a combination of saline and Acetic acid whenever I start seeing floaters in my tube and/or bag. I don't use that much acetic acid may be one sixth to one eight acetic acid and the rest saline (I use saline instead of tap water because it is a lot safer than tap water). Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net http://www.thespinalcordinjured.net/ My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: Merrill [mailto:merril...@cox.net] Sent: Wednesday, May 19, 2010 2:38 PM To: quad-list@eskimo.com Subject: [QUAD-L] Supra Pubic Flush Has anyone tried any type of bladder flush via a Supra Pubic to prevent or to clear a UTI? I have been considering a vinegar water flush. What do you think? Merrill p.s. Recantly I have begun violant reactions to anti-biotics to where I can no longer take them. How do you knock out UTI infections?
RE: [QUAD-L] sci nurse
Any Craig Hospital X -- patients and call their nurse hotline and get information sent to your house From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Tuesday, April 27, 2010 4:52 AM To: gah17...@aol.com; quad-list@eskimo.com Subject: Re: [QUAD-L] sci nurse That might be. that could be.. our resident member LindaF. She's an RN too. Best Wishes In a message dated 4/27/2010 6:48:32 A.M. Central Daylight Time, gah17...@aol.com writes: I remember posts on the quad list concerning an sci nurse that would answer questions from quads. Any contact information? GA
RE: [QUAD-L] new to group with lots of questions
That sounds like a great idea for a book, I would definitely buy it and read it. Unfortunately I have no children yet, but I do plan to one day. -Original Message- From: Aaron Mann [mailto:aman...@gmail.com] Sent: Tuesday, April 27, 2010 10:23 AM To: 'karan alexander'; quad-list@eskimo.com Subject: RE: [QUAD-L] new to group with lots of questions Welcome, Karan! While each of our disabilities affect each of us differently, none of us are alone in this new adventure. My Uncle is a Dr. who studied the effects of indwelling medicinal pumps. His advice: Only as a very last resort. I took 20mg Baclofen 4x a day for 20 years, then switched to 600mg Neurotin 3x a day. If you talk with a Dr. who really understands muscle spasms as the neurological level AND understands what each of the receptor inhibitor drugs do, then you will find the right option for your specific needs. I, too, have a son. He is a great motivator for me. I've been considering writing a book on my experiences being a Dad in a chair. There are many tricks I had to learn on my own in raising him. God bless and welcome. Aaron Mann C4-5, 9/8/88 -Original Message- From: karan alexander [mailto:kabea...@optonline.net] Sent: Monday, April 26, 2010 6:59 PM To: quad-list@eskimo.com Subject: [QUAD-L] new to group with lots of questions Hi, I was walking with my children 2 yrs ago was struck by a teen who went off the road struck me as I was bent over. I am c4, 5 6 incomplete with feeling to the toes, just very altered sensation. I was in the hospital for almost 1 yr. I use a manual chair to amazement, I have bladder sensation bowels. Although I have my share of spasms (I take 10mg ditropn b.i.d), leakages at night and my bowels respond every 2-3 days with no added help. Pre-accident was normally every day. I have lots of tone/spasticity in L. leg am considering baclofen pump. I only take 20mg now of baclofen which does nothing. Any higher dose tires me liver function tests go abnormal. I am hooked on 25mcg fentanyl patches q48 hrs and still have pain. I refuse to add more meds. I do not ever sleep for more than an hr. every night. Waking in the a.m. is horrible - never used to be. I want to wean off fentanyl. Since I transfer to toilet with the transfer board (lots of work), I would love to find pants that help b/c I can't pull them up under me. This injury has caused our world to turn upside down some days it is so overwhelming. My kids keep me going God's healing. I feel like I'm the only mom in the world going thru this. At the time of the accident, I was 5wks from grad. college (RN). Since then, I graduated passed boards. Now what I LOVE nursing it's not easy to find it from a w/c. If I am assisted to stand, I can hold a walker for 5-10 mins a few steps - left leg hinders advancing it so dr. wants me to consider pump. I have great use of my dominant hand arm, left fingers are closed. Anyway, I could go on forever, so thanks for listening.
RE: [QUAD-L] How about the 10 most wonderful things people do to or for people using wheel chairs?
People open doors and move things for me sometimes without me asking, it's actually really nice I always thank them. It beats either me having to ask, or me having to turn my wheelchair around and back into things trying to move them which could be dangerous... For whatever I'm trying to live LOL From: Nancy Pritchard [mailto:ntpgrn...@aol.com] Sent: Tuesday, April 27, 2010 2:00 PM To: quad-list@eskimo.com Subject: [QUAD-L] How about the 10 most wonderful things people do to or for people using wheel chairs? How about the 10 most wonderful things people do to or for people using wheel chairs? Peace be with you Nancy Pritchard ntpgrn...@aol.com 802-888-2056 h 802-355-3449 c
RE: [QUAD-L] Obama's New Health Care Plan
Here is a video that you might enjoy watching or not LOL http://www.youtube.com/watch?v=sFGRavwTdUc Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net http://www.thespinalcordinjured.net/ My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: Paul Jacobson [mailto:pjacob...@san.rr.com] Sent: Monday, March 22, 2010 8:09 AM To: g...@eskimo.com; quad-list@eskimo.com Subject: [QUAD-L] Obama's New Health Care Plan Does anyone know how it affects Medicare? SCI population? Paul c5/6
RE: [QUAD-L] Dizzy?
Is it possible you were having an autonomic dysreflexia situation? Sometimes my blood pressure drops really badly and it's usually caused by something wrong with somewhere I can't feel. Most of the time when I have autonomic dysreflexia my blood pressure rises, but every once in a while it drops... If your blood pressure is low that could be the cause, my doctor had put me on something for low blood pressure a long time ago I wish I remembered what it was, now I am off it and my blood pressure is 130/70 normally unless I'm in pain or something. I would try talking to your doctor. I hope this helps! Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://www.thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: Greg [mailto:g...@eskimo.com] Sent: Tuesday, March 02, 2010 4:55 PM To: quad-list@eskimo.com Subject: [QUAD-L] Dizzy? I had a real bad dizzy attack today. I was out front reading on my entrance way on my house. It's not big, just a nice cubby hole to block the wind and reflect the sun/heat. It was about 75 out today, but I don't think I was overheating. At first I was just light headed so I reclined a bit. A neighbor stopped by and I tried to sit up. Everything stated going black. My hearing started fading out. I never went out, but it was close. It was bad for about 30 minutes, but was still not back to normal for hours. Once I was OK, I was just tired for awhile. I keep thinking of getting a prescription for low blood pressure medication to use on days like these. I often get slight cases like this after my b-program I know this topic was going awhile back. Anyone suggest a medication to use on bad days, not an every day med? Though my BP is always low, Maybe I should try a daily medication? Thanks, Greg
RE: [QUAD-L]
Honestly I would try and find a different home health agency, I have had problems with my current home health agency. What you can do is read the list of allowable items that your insurance provides to better help your future conversations with them. Pretty much once you show that you know what you are entitled to them they will do one of two things they will either suck it up and give you what you need or drop you which I don't think they can do based on not providing you with stuff that is covered by your insurance. Luckily where I live there are multiple home health agencies. The first one I had ended up dropping me because they said they couldn't provide the right help for my level of injury. The one I have now the only reason why I'm still with them is because of the nurses, the nurse that comes out to see me is also one of my nurses I have had often at one of the hospitals I go to when I get pneumonia or another type of bad infection. Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://www.thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: Ismael [mailto:ismael.cava...@att.net] Sent: Thursday, February 25, 2010 5:49 PM To: quad-list@eskimo.com Subject: [QUAD-L] High my friend. I got a question for you, I hope you can help me. I have a home help agency I been with them. Three years today they told me. I have only two weeks left with them I asked them why they told me they could not provide my beads. Anymore, because I am connected to a respirator. I couldn't believe what I was hearing. They told me to find another agency. I caught advocacy. They told me they cannot help me. I told my caseworker about it. She agrees with me that it is not right. What they're doing to me. So I was wondering if you have an idea that you could share with me
RE: [QUAD-L]
I'm sorry I forgot to add this. Also my caseworker has been a great help in getting me what I need, have you talked to your caseworker yet about it? Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://www.thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: Ismael [mailto:ismael.cava...@att.net] Sent: Thursday, February 25, 2010 5:49 PM To: quad-list@eskimo.com Subject: [QUAD-L] High my friend. I got a question for you, I hope you can help me. I have a home help agency I been with them. Three years today they told me. I have only two weeks left with them I asked them why they told me they could not provide my beads. Anymore, because I am connected to a respirator. I couldn't believe what I was hearing. They told me to find another agency. I caught advocacy. They told me they cannot help me. I told my caseworker about it. She agrees with me that it is not right. What they're doing to me. So I was wondering if you have an idea that you could share with me
RE: [QUAD-L] Mitrafanoff neourethra procedure or Bladder augmentation ?
I changed from the regular supera-pubic catheters to the silver impregnated ones, along with making many changes such as changing catheters every 2 to 3 weeks and always using a new nightly bag with a neat catheter. I also stopped drinking as much soda as I once was and I've been drinking juices mostly, ever since I've done this it's very rare for me to get a bladder infection. Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://wwwthespinalcordinjured.net http://www.thespinalcordinjured.net/ My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: Yannik Anglehart [mailto:yanni...@hotmail.com] Sent: Wednesday, December 30, 2009 6:48 PM To: Quad List Subject: [QUAD-L] Mitrafanoff neourethra procedure or Bladder augmentation ? Importance: High Hi everybody, I would like to know if there's a person on this list that know or had a Mitrafanoff neourethra procedure or Bladder augmentation ? I don't know too much about this procedure but I've heard that people who had it done, there multiple bladder infections stopped. I'm really interested to know more about it because I have way too much infections, 2-3 per month. I would appreciate to have some informations on this procedure or just hear people who had it done and how it went after? Thanks in advance for your support, Yan
RE: [QUAD-L] Asking Help : Very bad case of UTI and Autonomic dysreflexia
1) Does someone on the quad list have or had the same experience for years and if so, did you find an answer ? yes and yes 2) Is there something different I can do to prevent these nasty Bladder infections ? yes, there is a couple of things that I had to start doing to get rid of my bladder infections, talk to your doctor about using silver coated catheters, the dressing around your catheter make sure it is cleaned and he put on a new dressing at least every couple days. Also I would like to add, after using antibiotics you might want to think about taking probiotics. We have organisms in our bodies that helps pretty much everything and when you take antibiotics it kills them. The one that I have had an issue in the past with is Clostridium difficile often called C. difficile or C. diff, which I got after taking antibiotics which is when most people get it because the natural bacteria in your body can't fight it off. 3) Does somebody ever had a severe episode of Autonomic dysreflexia and is it normal that during these episodes, you truly feel that you are going to die or have a stroke ? If so, did you had the worst, I mean the worst headache you can imagine and did you had chest pain because of the heart rate to high ? I wouldn't say I was worried about living or dying, but it really scared me. The headache that comes with the blood pressure rising I really, really, really dislike. Besides the obvious trying to figure out what's causing you to have an episode the best thing for you to do is try to stay calm and take long breaths to try to get your heart rate and blood pressure down. 4) Does anyone in the United-states or Canada know a really good Urologist that deal mostly with paralyzed bladder ? I am sorry I do not, besides the ones at Craig Hospital in Colorado a couple hours outside of Denver. Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net http://www.thespinalcordinjured.net/ My social networking sites: http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX From: Yannik Anglehart [mailto:yanni...@hotmail.com] Sent: Monday, December 07, 2009 1:49 PM To: quad-list@eskimo.com Subject: [QUAD-L] Asking Help : Very bad case of UTI and Autonomic dysreflexia Importance: High Hello everyone, I am trying to find some answers to two problems I've been battling since my accident 6 years ago that left me Quadriplegic C5/6. These 2 problems are: Bladder infections (uti) and Autonomic dysreflexia. I know that most Quads have experience these two problems but for some reason, I'm different, I'll explain. Just as an example, in the last two months, it is my fourth bladder infections. The most frustrating thing is that I'm doing everything a person can do to prevent these repeatedly infections. I drink water like crazy, I take Mandalamine pills, I've tried cranberry pills, vitamine C and cranberry juice, I tried some irrigation with syringe. I also have a suprapubic catheter which I change every month and I try to be as sterile as possible but for some reason, my body is very vulnerable to infections. I've been trying to find some answers to these multiple infections that put me in hospital most of the time with uncontrollable autonomic dysreflexia. Six months ago, I went into an episode so bad that I felt into a semi-coma, my blood pressure was 250/190 for a long period and the nitroglycerine wasn't working at all so they had to gave me a beta-blocker to bring all my vital sign down but there was a risk to go in hypotension because it drops the blood pressure to fast and that is what happen and it was lights out for me for 72 hours. Also, last year, I've had a bad bladder infections, nothing new, but this time it was different because the infection when upstairs, it started as a normal bladder infections then it when in the kidneys and the infection when into my blood. This is call a septic shock, so what happen is, my blood went down really bad and fast, so I lost consciousness and if you don't act fast enough, your organs start shutting down. In my situation, they had to put a catheter in my neck and gave me very powerful antibiotics to be able to recover and they have to bring your head down and the feet up in the air. Finally, I just showed you a little bit what I've been through and still struggle with it. The problem is the catheter because it is an open door for bacteria but it is frustrating because it is the only explanation the doctors are giving me, so I started searching outside my area in Canada but it is on my own expense. Presently, I am really desperate to find some answers and help from you guys and girlz on this site because I truly believed that if the infections
RE: [QUAD-L] Asking Help : Very bad case of UTI and Autonomic dysreflexia
Quadius I change my catheter every two weeks and I have had good luck with it, I also use a silver impregnated catheter it has helped me stay infection free very well. Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://www.thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: Quadius [mailto:quad...@gmail.com] Sent: Monday, December 07, 2009 3:35 PM To: Yannik Anglehart Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Asking Help : Very bad case of UTI and Autonomic dysreflexia The first thing that came to my mind was my experiences when I was a new injury. I had problems keeping my blood pressure up and therefore I would tilt backward a lot while I was in my wheelchair. The problem was that I was wearing a leg bag and the urine would flow back into my bladder thereby causing an infection. To remedy this problem I ended up using a bad bag and cutting it down so that it would fit on the side of chair so that the urine would drain into the bag constantly as opposed to back into my bladder. John has often written about the perils of urine backflow and I am one to tell you it is dangerous. I have also found that irrigation with a vinegar/saline or sterile water can be an effective tool in fighting off infections. I have received so many different answers on how often I'm supposed to change my SP. My urologist wants me to change it every four weeks; my spinal cord doctor says every two weeks; and then there are some spinal cord doctors who want me to change it every week. Lately I'm inclined to do it every two weeks because I have had some problems when I leave the That are in for four weeks. This may help, but I can't guarantee it. I know there are some really great people on here who know where you can contact a urologist. Hopefully that will help you out. Quadius PS welcome to the group. On Mon, Dec 7, 2009 at 4:48 PM, Yannik Anglehart yanni...@hotmail.com wrote: Hello everyone, I am trying to find some answers to two problems I've been battling since my accident 6 years ago that left me Quadriplegic C5/6. These 2 problems are: Bladder infections (uti) and Autonomic dysreflexia. I know that most Quads have experience these two problems but for some reason, I'm different, I'll explain. Just as an example, in the last two months, it is my fourth bladder infections. The most frustrating thing is that I'm doing everything a person can do to prevent these repeatedly infections. I drink water like crazy, I take Mandalamine pills, I've tried cranberry pills, vitamine C and cranberry juice, I tried some irrigation with syringe. I also have a suprapubic catheter which I change every month and I try to be as sterile as possible but for some reason, my body is very vulnerable to infections. I've been trying to find some answers to these multiple infections that put me in hospital most of the time with uncontrollable autonomic dysreflexia. Six months ago, I went into an episode so bad that I felt into a semi-coma, my blood pressure was 250/190 for a long period and the nitroglycerine wasn't working at all so they had to gave me a beta-blocker to bring all my vital sign down but there was a risk to go in hypotension because it drops the blood pressure to fast and that is what happen and it was lights out for me for 72 hours. Also, last year, I've had a bad bladder infections, nothing new, but this time it was different because the infection when upstairs, it started as a normal bladder infections then it when in the kidneys and the infection when into my blood. This is call a septic shock, so what happen is, my blood went down really bad and fast, so I lost consciousness and if you don't act fast enough, your organs start shutting down. In my situation, they had to put a catheter in my neck and gave me very powerful antibiotics to be able to recover and they have to bring your head down and the feet up in the air. Finally, I just showed you a little bit what I've been through and still struggle with it. The problem is the catheter because it is an open door for bacteria but it is frustrating because it is the only explanation the doctors are giving me, so I started searching outside my area in Canada but it is on my own expense. Presently, I am really desperate to find some answers and help from you guys and girlz on this site because I truly believed that if the infections continues like this, I am going to die, seriously. A bladder infection itself isn't that dangerous but the complications for a Quad can be really bad. Now, I have a few questions for you
RE: [QUAD-L] multivitamins
That's why I'm always scared to go to hospitals, but when I have to I guess I have to. Luckily and unlikely I have had MRSA in my bladder so when I go into the hospital I am put on precaution and anyone that comes in has to wear one of those paper gowns and wash their hands before and after they come in. So I feel somewhat safe going to hospitals now. When I was at Craig rehab hospital they taught us to try to stay out of hospitals and other places where people can pass bugs around and gave us some tips. MRSA is one but do you really don't want if you can avoid it! The bladder it's not so bad, at least not as bad as I heard about how people get it on their wounds, I have heard horror stories about how their wounds don't heal and the possibility of it going to some other place in the body through the bloodstream. Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://www.thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: John S. [mailto:alcibiat...@yahoo.com] Sent: Friday, November 20, 2009 12:19 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] multivitamins Back in the real world, I've always taken vitamins because they help your immune system to function at it's best. I don't know a Doctor that doesn't take them, or a pharmacist. It woud be nice if we could eat such healthy food that we didn't need supplements, but I can't be certain of my meal composition. Superbugs are a result of over use of anti-biotics and people taking the anti-biotic only untill they feel better and not completing the full regiment. Many anti-biotics are present in the foods we eat. Normal bugs get a chance to mutate untill they are immune to the medicine we depend on to keep them in check. The stupid part is sending these people to a hospital were they infect others with comprimized immune systems because even the best hand washing will not stop the transmision of superbugs. There is a bug specific to overuse of hand sanitizers but it isn't a superbug. It can be a problem in nursing homes and hospitals. Multivitamins and probiotics will help you survive a superbug outbreak. Best to all, john _ From: Lissette Whitehead lissw...@hotmail.com To: alcibiat...@yahoo.com Sent: Wed, November 18, 2009 10:12:03 PM Subject: RE: [QUAD-L] multivitamins I agree with Dan, the more careful you are by using anti-bacterial the weeker your immune sistem gets and germs become more resistant. I've heard of those super bugs, that's scary, bugs mutating due to antibacterials. Lissette Whitehead 1177 Broadway Suite #4 Chula Vista, CA 91911 www.lissettesgoaltowalk.synthasite.com http://www.lissettesgoaltowalk.synthasite.com/ _ Date: Wed, 18 Nov 2009 16:01:47 -0800 From: alcibiat...@yahoo.com Subject: Re: [QUAD-L] multivitamins To: c5sc...@gmail.com; quad-list@eskimo.com I don't shake hands. It is a filthy tradition that probably kills more people than most plagues. I've seen what I get on my hands. If my aids didn't clean really well they'd be sick constantly. john _ From: Eric W Rudd c5sc...@gmail.com To: quad-list@eskimo.com Sent: Wed, November 18, 2009 6:43:36 PM Subject: Re: [QUAD-L] multivitamins lol the only time i wash my hands is by holding them under running water during my shower Eric W Rudd c5sc...@gmail.com - Original Message - From: Dan To: quad-list@eskimo.com Sent: Wednesday, November 18, 2009 5:38 PM Subject: Re: [QUAD-L] multivitamins I used to be a big fan of antiseptic products until I learned, as Don suggested, that by doing so we are creating super bugs. If we do this long enough, we will become like the boy in the bubble. In effect, instead of becoming healthier we will become sicker -- more fragile. Our immune systems will weaken from disuse and any minute exposure to a pathogen will make us gravely ill. It makes sense as we have been living with these germs since the beginning of time and they rarely made us sick. Unfortunately, the commercial industry is trying to convince us to buy all these expensive and unnecessary products. So, I've gone back to doing things the way I was raised. No more antibacterial this and antibacterial that. Instead I stick to plain old soap and water. I've also gone green with all of my household products. All you need to keep your house clean are simple and cheap products such as ammonia, white vinegar, washing soda, etc. Go ahead, ask your grandma. The new green Dan At 05:52 PM 11/18/2009, Don Price said something that elicited my response: I'm not a medical expert
RE: [QUAD-L] Utensil Holder
Damn my tenodesis splint only moves my pointer finger and thumb, I wish it would move my middle finger LOL I would want it to extend my middle finger however LOL Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://www.thespinalcordinjured.net/ http://www.thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: John S. [mailto:alcibiat...@yahoo.com] Sent: Friday, November 20, 2009 1:10 PM To: Greg; quad-list@eskimo.com Subject: Re: [QUAD-L] Utensil Holder I use a Dynamic Tenodesys (sp) brace. It straps to my forearm and hand with velcro straps. When I lift my left wrist it transfers the movement to my index and middle finger so I have a pinch capability. This is only practical if you have some arm movement. If you can't raise your wrist there are static designs that use a small electric motor and batteries. Another uses a CO2 cartridge. I had a hard time using makeshift straps and splints that only did one job. This is like a hand. Best wishes, john PS. Teen O dee sis _ From: Greg g...@eskimo.com To: quad-list@eskimo.com Sent: Fri, November 20, 2009 2:36:17 PM Subject: [QUAD-L] Utensil Holder An OT lady told me about a utensil holder a quad makes and sells. She said it looked like 2 rings going around 2 fingers and holding a fork, etc. Not the single blue 1 finger ring I’ve seen. Anyone seen something like this? Right now I use the Wanchik Writer. I tape a fork / spoon where the pen is supposed to go. Thanks, Greg
RE: [QUAD-L] browser war
Personally I use Firefox, but it's my understanding that Google's browser chrome is based off of the open source browser Mozilla which Firefox is based off of. I would imagine you could just install the Firefox add-ons and plug-ins but I'm not 100% certain. Maybe give this a try https://addons.mozilla.org/en-US/firefox/ install the plug-ins from the links on Firefox's add-on list maybe that will work for you. Is there any reason you don't like Firefox? Firefox works great for me, I gave chrome a try for a little while and was unhappy with it because it was like a stripped down Firefox that didn't have a lot of the features I use. I would definitely suggest Firefox over chrome and Internet Explorer but that is just a personal preference. Good luck I hope this helps you in some way! Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 in a horrible car accident Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My website: http://thespinalcordinjured.net/ http://thespinalcordinjured.net My social networking sites: http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX http://www.facebook.com/DannyLNX http://www.facebook.com/DannyLNX From: Eric W Rudd [mailto:c5sc...@gmail.com] Sent: Wednesday, November 11, 2009 6:38 PM To: quadlist Subject: [QUAD-L] browser war thought i liked google's browser, both chrome chromium but neither supports adobe more...guess 'if it's not broke, don't fix it' other's thoughts? Eric W Rudd c5sc...@gmail.com
RE: [QUAD-L] Living Arrangements
I live with my family for now, I want to move out eventually and get my own place but it's so expensive here I don't see how I can. From: ladyno...@aol.com [mailto:ladyno...@aol.com] Sent: Tuesday, October 13, 2009 4:00 PM To: quad-list@eskimo.com Subject: [QUAD-L] Living Arrangements I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
RE: [QUAD-L] Living Arrangements
How do you afford it? Daniel I prefer Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 with donor bone at c2, I have a traumatic brain injury from blood going to my brain from my spinal cord. I am not vent dependendent anymore! :] My myspace address - http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ http://spinalcordinjured.net My spinal cord injury support website is still a work in progress... I am looking for help with it, send me an e-mail if you're interested in helping! From: linda...@comcast.net [mailto:linda...@comcast.net] Sent: Wednesday, October 14, 2009 12:02 PM To: Quad-list@eskimo.com Subject: Re: [QUAD-L] Living Arrangements Hey guys, I live in an apt. alone. I have a Home health service that comes in for 4hrs every morning and evening,which works out just fine. I'm on my own during the day. Lindaf
RE: [QUAD-L] Follow Up
I wonder if a tens unit or something like that would help us with our stomachs? LOL From: Merrill [mailto:merril...@cox.net] Sent: Sunday, October 11, 2009 12:58 PM To: quad-list@eskimo.com Subject: FW: [QUAD-L] Follow Up Since my C5 injury 20 years ago the big fear has been to avoid the infamous Quad Belly. For caregivers well being and our safety I do everything possibly to keep my weight down. A qualified caregiver knows how to safely transfer. Part of this knowledge is how much weight is too much for a standing pivot. One must know when is the time to use equipment weather a hearing aid, crutch or Hoyer lift is required. After some surgery a Hoyer lift was required for me to safely transfer. Once healed I could again return to the standing npivot. Merrill _ From: Cullen [mailto:cullenc...@yahoo.com] Sent: Saturday, October 10, 2009 10:10 AM To: Thomas NoelCusack Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Follow Up Tom only you can come up with the course of action that is best for you. Since I am a c2 c3 quad I don't nave the choice of how to transfer, but I do know that some times we want to do more than we should. If by doing your transfers without a lift you put your self at risk for more skin problems maybe you should rethink your transfer options. Your skin can only take so much abuse and then you have continuing chronic skin problems and you don't want that. Cullen C2/3 --- On Fri, 10/9/09, Thomas NoelCusack tecn...@sbcglobal.net wrote: From: Thomas NoelCusack tecn...@sbcglobal.net Subject: [QUAD-L] Follow Up To: quad-list@eskimo.com Date: Friday, October 9, 2009, 11:18 PM Thanks for your input. I'm trying to avoid lifts, hoyers aides, etc.Before the surgery, I had no problems in transferring and being independent. I really want to avoid buying more equipment and being so dependent on them. I wantto transfer from the 'chair on to an activaid shower seat. Am I crazy? am I pushing my recovery too much? Thanks, Tom
Re: [QUAD-L] vinegar and saline solution
Quadius wrote: I have been having some difficulties with UTIs lately and my urine has began stinking once again, so I was thinking about using the mixture of vinegar and saline solution to see if I could help this thing out a little. Right now I have increased my intake of cranberry supplements and vitamin C. Does anyone know the correct mixture of vinegar to saline solution? It's been several years since I've used it. Quadius thanks in advance I switched to a silver coated catheter and I barely get urinary tract infections now
Re: [QUAD-L] drugs
you could always be a doctor, look at house! Tod E. Santee wrote: Hi Dianna, Others... There was a time when I almost always tooks my meds *with* alcohol in the morning and/or afternoon. Usually just before classes and once I got home in the afternoon. Over time I reduced the drinks just because I'd run out of time in preparing in the morning and trying to get work done later. I didn't notice much difference at the time. Being that busy took my mind off the pain (usually). I did find that any time I wasn't busy my pain would increase. Have a few drinks with meds didn't help. So eventually I ended up on stronger pain meds. Even now with stronger meds I notice very little difference when I add alcohol into the mix... unless it's a significant amount, and I just can't do that if I plan to have a job. (How about a Drunk Teacher hooked on Pain Meds teaching your kids and grading their homework!?? Ya know?) I still have significant pain but a drink here and there has absolutely no effect on it. As far as withdrawal, I never had problems suddenly stopping long-term Oxycontin/Oxycodone or with Hydrocodone(Vicodin). I know I can reduce my current meds or skip doses without problems. There are times when I can tell taking a particular dose won't help so I just skip it. But there are also other times I double-up a dose or two and wash them down with a beer or something stronger and it just takes the edge off. I haven't tried quitting my current hydromorphone entirely. My doc says it would be about a 1-year process. Based on my record of quitting others entirely, I'm thinking less ... but I won't know until I actually do it. Best wishes to All, --Tod diannal...@aol.com wrote: I forgot to add that I always run out of meds before I can get them refilled. Taking a few more than I should. Anyone else? It's tough to go those 2,3 maybe 4 days without any! It was so much easier when I numbed (barely) with alcohol :-) Dianna
Re: [QUAD-L] Withdrawal / Drugs
Lyrica works fine for me without anything else. Tod E. Santee wrote: Hi Mr_Pockets... You take Lyrica with the 2700mg Neurontin? I was told they couldn't give my Lyrica because of the Neurontin I take. I ended up using Cymbalta instead. It worked but after a couple days it started putting me to sleep at about 7:00pm everyday no matter where I was or who I was with. (Not Good!!) I tried changing the time I took it but the effect was the same... 7:00pm, I'm dosing off and nothing would stop it. It only lasted 2 hours but still... it sure put a damper on me visiting people after work or going out for dinner! Maybe Lyrica would do better if I can take it with Neurontin. Did your docs have any hesitation about using them together? Best! --Tod mrpockets_2...@yahoo.com wrote: I can feel your pain as I'm in the same situation. I am currently taking morphine,50 mg's lyrcia twice a day,4 darvacet and neurontin 2700 mgs through out the day and I also take meds for blood pressure, bowel and bladder. Some days I feel like a pharmacy. I recently had a over night test of a morphine shot directly into my spine. The test was a huge success and I'm going to get a pump installed so no more pills.
RE: [QUAD-L] Pain meds and Lyrica
I take Percocet as needed, which is really about twice a week. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Friday, September 04, 2009 6:10 PM To: quad-list@eskimo.com Subject: [QUAD-L] Pain meds and Lyrica John- and any others on Lyrica,,, do you guys still take pain meds besides the Lyrica? or did it help any of you cut back or stop other pain meds? My pain and spasms have got pretty bad this year but I don't go see a neuro surgeon until mid or late November. I am considering trying Lyrica -- I may ask my family doctor about it. Thanks, Dan H.
RE: [QUAD-L] Sources of Inspiration
I agree music has helped many through the entire thing a lot. I just put some good music on, close my eyes and listen to the words. Of course it's more uplifting music, I would think listening to depressing music would not help LOL Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Eric W Rudd [mailto:c5sc...@gmail.com] Sent: Thursday, September 03, 2009 9:52 PM To: Steve Crowder; quad-list@eskimo.com Subject: Re: [QUAD-L] Sources of Inspiration wwhat gets me thru? lol listening to music the dialog of conversin w/ the list... Eric W Rudd c5sc...@gmail.com - Original Message - From: Steve Crowder mailto:dangerwo...@san.rr.com To: quad-list@eskimo.com Sent: Thursday, September 03, 2009 9:43 PM Subject: [QUAD-L] Sources of Inspiration Hello everybody. I am currently working on a new story for the upcoming fall edition of Dangerwood... the Magazine. Certainly, dealing with a disability -- particularly a new disability, such as a spinal injury -- can be overwhelming at times. What gets YOU through? Please tell me... where do you draw your inspiration from? All input would most certainly be welcome.. There are people out there searching the web everyday in an effort to sort things out following life-threatening catastrophes. Thanks, Nick Dangerwood... The Magazine Www.SurvivingParalysis.com
RE: [QUAD-L] Bluetooth cell phone
This looks cool, how do you like it? Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Mike Murach [mailto:m...@charter.net] Sent: Thursday, September 03, 2009 8:56 AM To: 'Daniel Espinoza'; 'John S.'; quad-list@eskimo.com Subject: RE: [QUAD-L] Bluetooth cell phone This is the Bluetooth that I use ( http://www.nobuttonsheadset.com ) in conjunction with the Samsung Trance. Mike~ Please check out my paintings at: www.MurGallery.com -Original Message- From: Daniel Espinoza [mailto:da...@thespinalcordinjured.net] Sent: Wednesday, September 02, 2009 7:25 PM To: 'John S.'; quad-list@eskimo.com Subject: RE: [QUAD-L] Bluetooth cell phone Bluetooth is a technology not a company. My favorite headsets and microphones are made by Plantronics. Check them out at http://www.plantronics.com/ Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Wednesday, September 02, 2009 11:07 AM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Bluetooth cell phone Yes, Bluetooth makes headsets and they can connect to your phone thru your cell or your computer. They require some dexterity to hit the little button. Definiutely, do not buy one unless you can use it. You may want a usb headset to your cell or computer. It is one of the things you need to try out your self before you buy. BW, john _ From: KK kkba...@yahoo.com To: quad-list@eskimo.com Sent: Wednesday, September 2, 2009 10:24:14 AM Subject: [QUAD-L] Bluetooth cell phone I am getting a new cell phone. My son uses the ear speaker mic. My hearing is roaring all the time I have lost upper hearing in one ear lower hearing in the other. So I currently use a headset. It covers only one ear but it is totally covered so I can hear without moving the phone around on my ear. Is there a headset for a Bluetooth phone? I'm sure the headset I have now will fit but now is the time to ask for all the goodies that go with the new phone. KK
RE: [QUAD-L] Hands Free Computer Booting
Why not just keep the computer on all the time? I have mine on all the time and then when it is not used or 30 minutes it goes into sleep mode. All it takes for me to wake it is one puff on my Quad joy. When it's in sleep it doesn't use much energy at all. Especially if your motherboard supports green power, must of been a computers support it. Not only does it help your computer but it doesn't use as much power and it also monitors your power usage. Microstar international has an application to monitor your power usage and if you want to lower it if you're worried about your electric bill. Most modern computers support sleep, although how they wake up this different depending on your motherboard. Mine gives me the option to choose if I want mouse movement Quad joy, keyboard, USB devices, or network types to wake up the computer. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://wwwthespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Quadius [mailto:quad...@gmail.com] Sent: Monday, August 31, 2009 5:03 PM To: Steve Oldaker Cc: birdsne...@charter.net; quad-list@eskimo.com Subject: Re: [QUAD-L] Hands Free Computer Booting What Steve has written here is 100% on target. That's what I did and I also purchased a Palm pad and an X-10 transmitter module from X-10.com. This way I can roll up to my desk and turn on my computer with a mouse stick and the Palm pad. There is a rollover mat, but I would only use this approach if your client doesn't have the ability to use a mouse stick. Additionally, it would be very beneficial for your client to have the ability to use a mouse stick in order to avoid hard booting the computer every time DNS ends up getting locked up with a program. Awfully this helps. Quadius On Sun, Aug 16, 2009 at 8:16 PM, Steve Oldaker steve.olda...@comcast.net wrote: Hi Kevin, Try this if you have not done so yet: 1. Start her computer and press F2 or whatever it is on her machine to enter Setup. 2. Look for and select Power Management. 3. Look for and select Auto Power On. 4. Go from there. Steve - C4, 21 years -Original Message- From: Kevin Bird [mailto:birdsne...@charter.net] Sent: Sunday, August 16, 2009 2:01 PM To: quad-list@eskimo.com Subject: [QUAD-L] Hands Free Computer Booting Hello Everyone - My name is Kevin, I am an Assistive Technology Trainer and am currently working with a client who has extremely limited mobility. I am training her in the use of Dragon Naturally Speaking (which is going very well) however as Dragon is only useful when the computer is on, I am left with the problem of how to initially boot the computer. I have been doing research but have been unable to resolve this issue any suggestions would be greatly appreciated. Thank you in advance for your assistance. Kevin L. Bird Braille Technology Training birdbraillent...@yahoo.com (541) 441-3888
RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
I'm down to 19 pills a day, a lot of them are vitamins, some are antidepressants/anti-anxiety, and then I have muscle relaxants and Lyrica Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://wwwthespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Eric W Rudd [mailto:c5sc...@gmail.com] Sent: Tuesday, September 01, 2009 5:07 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR WOW! i came home from rehab on 32 different drugs. i have got down to 2 (spasm)...do u not have spasms? IF i 4get my pills, my legs remind me. Eric W Rudd c5sc...@gmail.com - Original Message - From: hellodav...@aol.com To: quad-list@eskimo.com Sent: Tuesday, September 01, 2009 5:58 PM Subject: Re: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Both my mom and dad died from medical over-treatment. Mom took so many arthritis meds, they weakened her stomach so when they 'scoped' her they poked a hole. At 83 she never recovered heart failed. Dad went nuts after taking a anti-depressant at 10 times the 'normal' dose. He died of heart failure. Cudos John for knowing better than the ER folks. A very BOLD call.!!! AZDAVE (p.s. I'm off all Rx drugs.)
RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR
I used to have a major problem with urinary tract infections, I have a supra-pubic catheter. My infectious disease doctor and I decided to take another course of action instead of taking antibiotics daily. Now I use a silver impregnated supra-pubic catheter and my infections happen less often. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Merrill [mailto:merril...@cox.net] Sent: Tuesday, September 01, 2009 2:33 PM To: quad-list@eskimo.com Subject: FW: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR Greg, What is the antibiotic? Merrill _ From: Greg [mailto:g...@eskimo.com] Sent: Monday, August 31, 2009 12:20 PM To: 'donald scott'; quad-list@eskimo.com Subject: RE: [QUAD-L] SWEATING ONLY OR MAINLY IN CHAIR I too take a daily antibiotic. I know most people say not to do it, but I was getting UTI's every other week. Plus the symptoms really were hard on me. I would sweat and get fevers before the UTI was bas enough to show up on tests. The Uro wanted to do a bladder augmentation, but thought we should try this first as a last resort. Since starting the daily half dose, I have had 2 UTI's in 4 years. Greg _ Hi group, I read some of the posts regarding the sweating problem. I too have had this problem and ran a bunch of test. The doctors where pretty stumped. I think that I have finally figured out that it's a UTI problem. When we sit up it puts more pressure on the bladder which irritates the bladder when it's already upset from the UTI. It causes pain and then we sweat. I take a daily antibiotic for urine and have no more sweating. I may be wrong but it has helped me. Good luck and great health, Donald C5
RE: [QUAD-L] Bluetooth cell phone
Bluetooth is a technology not a company. My favorite headsets and microphones are made by Plantronics. Check them out at http://www.plantronics.com/ Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Wednesday, September 02, 2009 11:07 AM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Bluetooth cell phone Yes, Bluetooth makes headsets and they can connect to your phone thru your cell or your computer. They require some dexterity to hit the little button. Definiutely, do not buy one unless you can use it. You may want a usb headset to your cell or computer. It is one of the things you need to try out your self before you buy. BW, john _ From: KK kkba...@yahoo.com To: quad-list@eskimo.com Sent: Wednesday, September 2, 2009 10:24:14 AM Subject: [QUAD-L] Bluetooth cell phone I am getting a new cell phone. My son uses the ear speaker mic. My hearing is roaring all the time I have lost upper hearing in one ear lower hearing in the other. So I currently use a headset. It covers only one ear but it is totally covered so I can hear without moving the phone around on my ear. Is there a headset for a Bluetooth phone? I'm sure the headset I have now will fit but now is the time to ask for all the goodies that go with the new phone. KK
RE: [QUAD-L] Sweating in the chair
That's the medication I'm using it now and it works great, before I was on Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't have to deal with all of the side effects and it works great for me. I first started taking it at Craig Hospital and haven't thought about switching it since. I take it twice a day once at 9 AM and once at 8 PM. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Saturday, August 29, 2009 1:38 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating in the chair I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
[QUAD-L] frustrations with Medi-Cal and Medicare
I seriously don't understand how you guys live off this, I get 1400 a month and then I have to pay about 1100 for my share of cost. Luckily I'm not going to get kicked out for not paying rent but I am supposed to and that's beside the point. It gives me $300 for rent, food, utilities, and any medical supplies not covered. I think it's really screwed up, I'm going to call them on Monday and try to figure this stuff out but before I do that I would really like to know what you guys think? It's almost like I have no choice but to live in a nursing home, which I would imagine would cost more than what they give me a month. I live in Southern California so maybe that has something to do with my frustrations because everything seems to be a lot more expensive here than elsewhere. I really don't want to move because all of my family lives here, and they take care of me when my caregivers don't. Thanks in advance for any advice you guys have for me. I've been a quad for a little over three years now so I really don't understand the ins and outs of all of this just quite yet.. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx
RE: [QUAD-L] Sweating in the chair
I take 50 mg in the morning at 9 AM, 50 mg at 4 PM and 100 mg at 10 PM Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://wwwthespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Sunday, August 30, 2009 3:30 PM To: Fragile; quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating in the chair 150 mg each morning john _ From: Fragile swl...@gmail.com To: quad-list@eskimo.com Sent: Sunday, August 30, 2009 1:58:30 PM Subject: Re: [QUAD-L] Sweating in the chair Danny and John, What dosage of Lyrica do you take? On Sun, Aug 30, 2009 at 3:34 AM, Daniel Espinoza static...@roadrunner.com wrote: That's the medication I'm using it now and it works great, before I was on Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't have to deal with all of the side effects and it works great for me. I first started taking it at Craig Hospital and haven't thought about switching it since. I take it twice a day once at 9 AM and once at 8 PM. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal http://en.wikipedia.org/wiki/Spinal_cord_injury cord injury. http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: John S. [mailto:alcibiat...@yahoo.com] Sent: Saturday, August 29, 2009 1:38 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Sweating in the chair I have heard several people including myself talk about profuse sweating and shaking when getting in the chair. I have taken so many pain meds to control it but never resulting in more than a few hours of relief. I just began taking a strong dose of Lyrica and it seems to be the key for me. I'm backing down the narcotics and it has only been a week but DAMN. I take 1 in the morning and I don't sweat or feel the presure that starts AD. I have not had a day without sweating and shaking for over nine years. I feel like I might have a life again. (knock on wood) We are all different and I know many of us have problems that it won't help. I will let y'all know if it stops working. It has been so long since I have felt this good. I want to goto the park and watch lovers and throw stale bread at the birds again. (I feel like I could really nail one, maybe even a lover.) I really wish you all the very best, john
RE: [QUAD-L] syrinx
Yeah they are great, he did all of my neck surgeries and his nurse is definitely one of the best. I didn't have him do a surgery like the ones you guys are describing, but he did remove some of the fusing in my neck to give me left to right and up and down movement. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic. I had a Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator woohoo however only half of my diaphragm works right now due to an asymmetric spinal cord injury. http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx -Original Message- From: Tod E. Santee [mailto:sant...@cox.net] Sent: Wednesday, August 12, 2009 9:37 AM To: Danny Hearn; quad-list@eskimo.com; RONALD L PRACHT Subject: Re: [QUAD-L] syrinx Quick Note / Option: Check into Dr. Scott Falci (Fal' chee) at Craig Rehab in Denver. His nurse, Charlotte, is a great help. I had a syrinx caused by tethering -- the cord was tethered --attached-- to the surrounding dura mater, the covering that surrounds the cord and brain and holds cerebrospinal fluid. This tethering is a common cause of quad-related syrinxes and often goes missed or misdiagnosed. In 1996, when I was diagnosed, Dr. Falci and Dr. Barth Green (at the Miami Project) were the only ones experienced in this UN-tethering of cervical syrinxes in quads with the purpose of (A) Relieving pain -AND- (B) Restoring some function! At the time, Falci had already done the procedure over 100 times with an excellent (and immediate!) success rate. Best of luck. I empathise and sympathise with your problems! Best wishes, --Tod Danny Hearn ddh...@sbcglobal.net wrote: I'll let you know Ron, We are trying to decide if I should see Picker at St.Johns or Wright, who you told us about. I saw picker after first being diagnossed with a syrinx in about 1999 or 2000. But my daughter works for Washington University as a medical Assistant and seems to think I should see Wright, thinking he may have more experience. I think both may be pretty good. Dr. Wice said it seems there may be 2 things going on and that the Sirinx is definitly growing also, and said go see a neuro to see what they think. It will be about a month to get in to see them. All the serious back pain and problems have started getting real bad this year--- It is real scary , I feel pain in area's of my back that used to have no feeling.I hope I don't loose function or ability to be transfered or load myself in our van. For years my thinking was---being paralyzed sucks, it can't get much worse than this ! ( But believe me I wish I could go back to prior this year--those were the good ole days, lol ) I take pain meds every day now and even driving around my neighborhood in my wheelchair I need to go slow over bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know when I see the neuro surgeon. Dan H. --- On Wed, 8/12/09, RONALD L PRACHT r.pra...@sbcglobal.net wrote: From: RONALD L PRACHT r.pra...@sbcglobal.net Subject: [QUAD-L] syrinx To: quad-list@eskimo.com Date: Wednesday, August 12, 2009, 1:22 AM Hey Dan H, please let me know what you find out concerning your syrinx. Im going down the same road as you...will be going to wice to find out if mine has grown. Im interested in what the surgeons tell you in regards to what to do at this point. I truely wish the best results for you. ron c7
RE: [QUAD-L] 35 year anniversary
Wow I really should read what dragon puts out sometimes before I send it lol Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Daniel Espinoza [mailto:da...@thespinalcordinjured.net] Sent: Monday, July 27, 2009 7:41 AM To: daa...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] 35 year anniversary I gone to the hospital with them on your kind of often. Don't need help breathing but I really don't want a whole in my neck again... only been a quad for 3 1/2 years, so I guess I'm kind of a newbie. I fight UTIs and pneumonia, the UTIs I usually don't need to be hospitalized unless my doctors worried however the pneumonia is something I go and visit the hospital for. I really don't like being in the hospital or being suctioned through the nose, or getting a trumpet in my nose because it's so raw and bleeding in there. Right now I have tried using a therapeutic vest and the jury is still out on how well it works. Thanks a lot for this information may be one day I'll end up giving in and getting one also. Right now we were turned down for a home suctioning kit, I think with the trach they wouldn't have a problem with me getting one. I've got some thinking to do I still really don't want to have the trach but maybe someday. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: daa...@aol.com [mailto:daa...@aol.com] Sent: Monday, July 27, 2009 7:27 AM To: quad-list@eskimo.com Subject: [QUAD-L] 35 year anniversary I can't believe I made it to my 35 th year anniversary. My parents were told after each hospitalization I might not make. It seems I was strong enough to defeat their predictions even though I appeared to be weak at the time. I was given a tracheostomy after each of my surgeries, but it was removed before I came home. I had so many long hospitalizations trying to get off the ventilator and over pneumonia. I was given another tracheostomy during a pneumonia in 88, which they changed to a trach button before I left the hospital. It has kept me out of the hospital except for a UTI that got into my bloodstream causing a coma for 13 days. I had a pneumonia last year. The trach buttonallows me to get over the bronchitis at home. I didn't want it, but it turned out to be a good thing for me and not very noticeable. It is mostly capped, unless I have a lot allergies or congestion and might need suctioned as needed. It is easy for anyone to learn how to do. I am quite healthy almost all of the time. I love to enjoy life going to concerts, which is one of my favorite things to do. Sorry this has been such a lengthy post. I have forgotten, who has the longest survivor that we know of. They had saved that information, but have lost when this computer was reformatted and my brother thought he had saved. I haven't got a lot of posts this summer, and I'm sure everybody is busy. Just wanted to say I miss those that I have not heard from. What does everybody think about the new health-care bill as nobody has mentioned. I know that is a political issue, but very important for our ability to survive and get what we need. There has been talk about taking away from Medicare. Medicaid is also having problems with reduced state revenue for problems. Kansas has mentioned there will be some reductions with populations such as ours, but I don't know where it will be targeted. PCA hourly pay is very low and hard to find people that want to work
RE: [QUAD-L] poem redone last one got cutoff
Nice Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] Sent: Friday, July 17, 2009 12:36 PM To: quad-list@eskimo.com Subject: [QUAD-L] poem redone last one got cutoff Here is a poem i wrote 5 years ago concerning how i feelabout pain and injury... Pain is something held inside Hurts with time and works on pride As it gets worse its hard to change the tide Becomes clear that it cant be described Try as you may, try as you might Its just you alone in this futal fight As they dope you and drug youfor a suppossed help All they want to do is maintain your squelch The more you talk the less they listen Making is all more clear foolishness of your position Wont i get one more chance?They quickly say no Its not their fault , its just for show How much longer canI go on Is it all for real or is it just a fateful song Yes son this is real for you it is Hold tight though and you will get through this There are no true winners in this life Just some that are lucky and avoid the strife They find a place to call their own Where noone can hurt them and convey thoughts of their own ron c7
[QUAD-L] Test
RE: [QUAD-L] Test
Thanks, I changed Email addresses Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Thursday, July 16, 2009 10:50 AM To: da...@thespinalcordinjured.net Subject: Re: [QUAD-L] Test Test Good In a message dated 7/16/2009 12:49:23 P.M. Central Daylight Time, da...@thespinalcordinjured.net writes: _ S http://pr.atwola.com/promoclk/100126575x1223081712x1201714210/aol?redir=htt p:%2F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D81939%2D1629%2D5 T R E T C H your technology dollars with great laptop deals from Dell!
[QUAD-L] unsubscribe
Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia . I had a Traumatic_brain_injury http://en.wikipedia.org/wiki/Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragm http://en.wikipedia.org/wiki/Thoracic_diaphragm works right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury . http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx
RE: [QUAD-L] Goose Bumps Sweats is this AD?
It could be many reasons, AD affects all of us in many different ways Check this website out for some good information on Autonomic dysreflexia http://www.fiu.edu/~otweb/autonomic.html Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://www.thespinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: Veranda Escobar [mailto:vaescob...@yahoo.com] Sent: Thursday, July 09, 2009 8:50 AM To: Wendy Sell; Kandy Vogelpohl; quad-list; Dr. Yurko Subject: Re: [QUAD-L] Goose Bumps Sweats is this AD? I don't know about anyone else. But that does happen to me too. I am a c6-c7 incomplete. My AD sometimes will make my blood pressure elevate but sometimes I get only the sweats w/goose bumps. If someone knows why this happens let me know too. _ From: Wendy Sell w...@ptd.net To: Kandy Vogelpohl kvogelp...@embarqmail.com; quad-list quad-list@eskimo.com; Dr. Yurko gyu...@ptd.net Sent: Monday, July 6, 2009 6:34:18 PM Subject: RE: [QUAD-L] Goose Bumps Sweats is this AD? Yup just a mild version…but still uncompfylll From: Kandy Vogelpohl [mailto:kvogelp...@embarqmail.com] Sent: Monday, July 06, 2009 10:47 AM To: quad-list@eskimo.com Subject: [QUAD-L] Goose Bumps Sweats is this AD? Good Morning, I am trying to figure out if my husband is having AD episodes I know for sure he had one when he was in the hospital because his blood pressure spiked, and I know it was from a kinked hose into his cathetor. So I am always checking that What I am wondering is that my husband breaks out in sweats around his shoulders and head, but then will have goose bumps going down his forearms. But his blood pressure is never elevated. Can he have AD without the blood pressure elevation? He gets so many of the symptons except that. Thanks for your help. Kandy (Wife of husband - C-4 Complete Car accident 2008. (My husband was hospitalized for a year. I just got him home a month ago.) I could use any pointers anyone has to offer.
RE: [QUAD-L] Is obesity a disability?
I think it is more of an addiction in most cases. I think it's more mental than physical.. It's not like they get that way because they don't exercise. Look at us for example, most of us are not even capable yet we aren't obese because we choose to eat healthy. Just my 2 cents.. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://spinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: bobbie...@aol.com [mailto:bobbie...@aol.com] Sent: Wednesday, June 17, 2009 9:37 AM To: quad-list@eskimo.com Subject: [QUAD-L] Is obesity a disability? Hi All, The America Medical Association (AMA) is gathering this week to discuss many things. One subject they voted on was that obesity is NOT a disability, which I concur. What do all of you think about this subject? ~ Bobbie _ Download the AOL http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown00 04 Classifieds Toolbar for local deals at your fingertips.
RE: [QUAD-L] Is obesity a disability?
No its not but they have the ability to change unlike most that are disabled. In my opinion it should be treated as an addiction was what I was getting at. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://spinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] Sent: Thursday, June 18, 2009 1:21 PM To: quad-list@eskimo.com Subject: RE: [QUAD-L] Is obesity a disability? The question is not how a person gets disabled..just simply if they are disabled or not. Sad as it is a 350 pound person is disabled, they cant walk far and need some sort of mobility device in most cases. ron c7 --- On Thu, 6/18/09, Daniel Espinoza static...@roadrunner.com wrote: From: Daniel Espinoza static...@roadrunner.com Subject: RE: [QUAD-L] Is obesity a disability? To: bobbie...@aol.com, quad-list@eskimo.com Date: Thursday, June 18, 2009, 2:47 PM I think it is more of an addiction in most cases. I think it’s more mental than physical…. It’s not like they get that way because they don’t exercise. Look at us for example, most of us are not even capable yet we aren’t obese because we choose to eat healthy. Just my 2 cents…… Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic. I had a http://en.wikipedia.org/wiki/Traumatic_brain_injury Traumatic_brain_injury from blood going to my brain from my spinal cord, but its getting better with time. I am off a http://en.wikipedia.org/wiki/Ventilator ventilator woohoo however only half of my http://en.wikipedia.org/wiki/Thoracic_diaphragm diaphragm works right now due to an asymmetric http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury. http://spinalcordinjured.net/ http://spinalcordinjured.net http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx From: bobbie...@aol.com [mailto:bobbie...@aol.com] Sent: Wednesday, June 17, 2009 9:37 AM To: quad-list@eskimo.com Subject: [QUAD-L] Is obesity a disability? Hi All, The America Medical Association (AMA) is gathering this week to discuss many things. One subject they voted on was that obesity is NOT a disability, which I concur. What do all of you think about this subject? ~ Bobbie _ Download the http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004 AOL Classifieds Toolbar for local deals at your fingertips.
RE: [QUAD-L] New powerchair!
Thanks! Danny Espinoza 26/m/California Occupation before accident Network engineer / SR. Network security engineer What happened: Broke c2,c6,c7 with donor bone at c2 Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My myspace address - http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ http://spinalcordinjured.net/ From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Sunday, June 07, 2009 7:28 AM To: static...@roadrunner.com; quad-list@eskimo.com Subject: Re: [QUAD-L] New powerchair! If you have any questions or problems, email Mark Smith at Pride: msm...@pridemobility.com He is both an engineer behind the chair and a user. Best Wishes In a message dated 6/1/2009 7:33:27 P.M. Central Daylight Time, static...@roadrunner.com writes: I just felt like sharing that I finally received my new Quantum 6000z power chair and started getting adjusted for it today! Does anyone have any opinions about it? Danny Espinoza 26/m/California Occupation before accident Network engineer / SR. Network security engineer What happened: Broke c2,c6,c7 with donor bone at c2 Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My myspace address - http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ _ We found the real 'Hotel http://www.whereitsat.com/#/music/lyrical-landmarks/258/41.19651/-110.832818/2/The-Eagles-Hotel-California?ncid=emlcntnew0006 California' and the 'Seinfeld http://www.whereitsat.com/#/television/totally-tv/165/47.871213/-66.348481/2/Seinfeld-Diner?ncid=emlcntnew0005 ' diner. What will you find? Explore http://www.whereitsat.com/#/music/all-spots/355/47.796964/-66.374711/2/Youve-Found-Where-Its-At?ncid=emlcntnew0007 WhereItsAt.com.
[QUAD-L] New powerchair!
I just felt like sharing that I finally received my new Quantum 6000z power chair and started getting adjusted for it today! Does anyone have any opinions about it? Danny Espinoza 26/m/California Occupation before accident Network engineer / SR. Network security engineer What happened: Broke c2,c6,c7 with donor bone at c2 Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My myspace address - http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/
[QUAD-L] New Diet !!!!!!!!!!!!!!!!!!!!!!
Q: Doctor, I've heard that cardiovascular exercise can prolong life. Is this true? A: Your heart is only good for so many beats, and that's it... don't waste them on exercise. Everything wears out eventually. Speeding up your heart will not make you live longer; that's like saying you can extend the life of your car by driving it faster. Want to live longer? Take a nap. Q: Should I cut down on meat and eat more fruits and vegetables? A: You must grasp logistical efficiencies. What does a cow eat? Hay and corn. And what are these? Vegetables. So a steak is nothing more than an efficient mechanism of delivering vegetables to your system. Need grain? Eat chicken. Beef is also a good source of field grass (green leafy vegetable). And a pork chop can give you 100% of your recommended daily allowance of vegetable products. Q: Should I reduce my alcohol intake? A: No, not at all. Wine is made from fruit. Brandy is distilled wine, that means they take the water out of the fruity bit so you get even more of the goodness that way. Beer is also made out of grain. Bottoms up! Q: How can I calculate my body/fat ratio? A: Well, if you have a body and you have fat, your ratio is one to one. If you have two bodies, your ratio is two to one, etc. Q: What are some of the advantages of participating in a regular exercise program? A: Can't think of a single one, sorry. My philosophy is: No Pain...Good! Q: Aren't fried foods bad for you? A: YOU'RE NOT LISTENING!!! . Foods are fried these days in vegetable oil. In fact, they're permeated in it. How could getting more vegetables be bad for you? Q: Will sit-ups help prevent me from getting a little soft around the middle? A: Definitely not! When you exercise a muscle, it gets bigger. You should only be doing sit-ups if you want a bigger stomach. Q: Is chocolate bad for me? A: Are you crazy? HELLO Cocoa beans ! Another vegetable!!! It's the best feel-good food around! Q: Is swimming good for your figure? A: If swimming is good for your figure, explain whales to me. Q: Is getting in-shape important for my lifestyle? A: Hey! 'Round' is a shape! Well, I hope this has cleared up any misconceptions you may have had about food and diets. And remember: 'Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways - Chardonnay in one hand - chocolate in the other - body thoroughly used up, totally worn out and screaming 'WOO HOO, What a Ride' AND. For those of you who watch what you eat, here's the final word on nutrition and health. It's a relief to know the truth after all those conflicting nutritional studies. 1. The Japanese eat very little fat and suffer fewer heart attacks than Americans. 2. The Mexicans eat a lot of fat and suffer fewer heart attacks than Americans. 3. The Chinese drink very little red wine and suffer fewer heart attacks than Americans. 4. The Italians drink a lot of red wine and suffer fewer heart attacks than Americans. 5. The Germans drink a lot of beers and eat lots of sausages and fats and suffer fewer heart attacks than Americans. CONCLUSION Eat and drink what you like. Speaking English is apparently what kills you. -- Julio A. Leal jlea...@gmail.com http://us.mc01g.mail.yahoo.com/mc/compose?to=jlea...@gmail.com 805-523-7735 -- Home 805-551-1844 -- Cell image001.jpg
RE: [QUAD-L] Bone Scans ?? DEXA Scores
Wow I'm very sorry to hear that. :[ Thanks for the advice! At Craig they said I wasn't ready, I had just gotten off a Vent They recommended it if I got more return which I have... I'm c4-5ish functional asymmetrically now, although I'm not sure if that's enough... From: daa...@aol.com [mailto:daa...@aol.com] Sent: Sunday, May 03, 2009 10:38 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Bone Scans ?? DEXA Scores I found out I had osteoporosis and then one of my aides broke my femur while doing leg exercises, If you have never had a standing frame, you should be tested to make sure you don't have osteoporosis. I know you are a newer injury than myself. I found out I could not get a standing frame, I was disappointed as I finally had insurance that would buy one.. If I had had one this might not have happened. When I went to Craig, they recommended one, but the state of Kansas would not buy. I guess they don't believe in prevention. Dana _ 2009 3 Free CREDIT SCORES: See http://pr.atwola.com/promoclk/100126575x1221797372x1201397989/aol?redir=htt ps:%2F%2Fwww.freescore.com%2FOffers%2FStart%2FFreeCreditReportAndScore.aspx% 3FID%3D91831F371F138345B53A153F49D4D872%26siteid%3De927580bf7 Your 3 Credit Scores from All 3 Bureaus FREE!
RE: [QUAD-L] Bone Scans ?? DEXA Scores
That scares me as I am still waiting on my chair and am mostly bed bound Wouldn't a standing machine help? Danny Espinoza 26/m/California Occupation before accident Network engineer / SR. Network security engineer What happened: Broke c2,c6,c7 with donor bone at c2 Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My myspace address - http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ -Original Message- From: Tod E. Santee [mailto:sant...@cox.net] Sent: Saturday, May 02, 2009 1:07 PM To: quad-list@eskimo.com Subject: [QUAD-L] Bone Scans ?? DEXA Scores i haven't *quite* had the same issues with bone the Billy and Merril are mentioning ... BUT... I'm wondering if anybody here has had a DEXA Scan recently (or ever) to test bone density. I had it done 3 years ago and had pretty bad bone loss -- as expected. I started Fosamax thinking it would help but couldn't take it for 9-10 months while I was on bedrest after my surgeries last year. Since then I took it for another year and had another scan just a week or two ago. My scores were the same or worse in most cases! I don't know if it's the Fosamax not working -OR- if the time on bed rest un-did any benefits I might have had from the Fosamax in the first place. I'm just curious how anybody here scored. I had areas ranging from -1.7 to -3.5 (none in the + side!). Best wishes! --Tod
