[CMLHope] Fwd: I'm back

2014-05-07 Thread ICANDOALLTTC via CMLHope
From: icandoall...@aol.com To: cmlhope@googlegroups.com Sent: 4/28/2014 5:33:31 P.M. Eastern Daylight Time Subj: I'm back Hi all, I'm back. I was having trouble with google and think I have it's ok now. I hope everyone is good. Let's pray for

[CMLHope] testing

2014-05-07 Thread ICANDOALLTTC via CMLHope
In a message dated 5/7/2014 6:54:19 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: I do not know if my mother was part of this group, as I know she was part of another one. But she passed away on Sunday. Her name is Cecile Schwartz. -Original Message- From:

Re: [CMLHope] No Updates?

2014-05-08 Thread ICANDOALLTTC via CMLHope
Hi Susan, please let us know how you do on this new meds. I am on Sprycel and I remember when I started on it they put me on 3 50mgs pills. It wasn't long before they downed it to 2 pills daily. Do you have to take it with water or food? Sprycel put me in remission and was the first drug

Re: [CMLHope] Fwd: I'm back

2014-05-08 Thread ICANDOALLTTC via CMLHope
via CMLHope cmlhope@googlegroups.com wrote: From: icandoall...@aol.com To: cmlhope@googlegroups.com Sent: 4/28/2014 5:33:31 P.M. Eastern Daylight Time Subj: I'm back Hi all, I'm back. I was having trouble with google and think I have it's ok now

Re: [CMLHope] No Updates?

2014-05-08 Thread ICANDOALLTTC via CMLHope
Hi Greenie; sounds like you are a busy bee. My creatinine was high also; 1.10 but my bun was good. Good luck on your blood work and all. Blessings, Jeanie3 In a message dated 5/8/2014 7:56:47 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Susan, I flew into Chicago

[CMLHope] how much sprycel susan

2014-05-13 Thread ICANDOALLTTC via CMLHope
without increasing the dose. 18's, Susan F. Zimmerman -Original Message- From: ICANDOALLTTC via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Thu, May 8, 2014 6:19 pm Subject: Re: [CMLHope] No Updates? Hi Susan, please let us know how you do

Re: [CMLHope] Fwd: I'm back

2014-05-13 Thread ICANDOALLTTC via CMLHope
for your kind words. I still have a ways to go but each day brings new adventres, some good and some not so good but no matter what we still have to move forward. 18's, Marty On Thu, May 8, 2014 at 6:20 PM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi Marty, so glad to hear from

Re: [CMLHope] Fwd: Fwd: Fw: Love Story With a Dog

2014-05-13 Thread ICANDOALLTTC via CMLHope
That's a great story, Marty. I don't have dogs, but my daughter who lives alone with her children bought a German shepherd as a puppy. He is very protective, and I don't think anyone would want to mess with her family. When I was visiting her last year, I had a choking spell which I get

Re: [CMLHope] No Updates?

2014-05-13 Thread ICANDOALLTTC via CMLHope
Hi Richard and thanks so much for the update. My creatinine has increased also to 1.10. My sugar is also up to 111. I too think it is the drugs. Hang in there and blessings, Jeanie3 In a message dated 5/8/2014 11:45:46 P.M. Eastern Daylight Time, richard1huff...@comcast.net writes:

[CMLHope] let's all write about when we were first dx with leukemia

2014-05-14 Thread ICANDOALLTTC via CMLHope
Hi Millie, did the onc find it through a blood test and how did they treat it in the beginning? Did you have a BMA? Were your blood counts really high? Just wondering. Blessings Jeanie3 In a message dated 5/13/2014 8:08:45 P.M. Eastern Daylight Time, ho...@ptd.net writes: I was alone

[CMLHope] anyone put in the hospital and had blood cleansed when first dx?

2014-05-14 Thread ICANDOALLTTC via CMLHope
then us. 18's, Marty On Tue, May 13, 2014 at 6:56 PM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: That's a great story, Marty. I don't have dogs, but my daughter who lives alone with her children bought a German shepherd as a puppy. He is very protective, and I don't think

[CMLHope] To any that were on the Tasigna Google Groups

2014-05-14 Thread ICANDOALLTTC via CMLHope
would not believe, though it were told you. Hab. 1:5 -Original Message- From: ICANDOALLTTC via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, May 13, 2014 6:34 pm Subject: [CMLHope] how much sprycel susan Hi Susan and so good to hear from you. I

Re: [CMLHope] how much sprycel susan

2014-05-21 Thread ICANDOALLTTC via CMLHope
, Susan Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com

Re: [CMLHope] NY Times OHSU ad

2014-05-21 Thread ICANDOALLTTC via CMLHope
Thanks a lot Ruth. Good to know they are still out there for us. Blessings, Jeanie3 In a message dated 5/16/2014 1:43:56 A.M. Eastern Daylight Time, mar...@enter.net writes: See the NY Times Sunday edition for May 11, 2014, for a 2-page ad placed by OHSU (Oregon Health Science

Re: [CMLHope] how much sprycel susan

2014-05-21 Thread ICANDOALLTTC via CMLHope
would not believe, though it were told you. Hab. 1:5 -Original Message- From: ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) To: cmlhope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Tue, May 13, 2014 6:34 pm Subject

Re: [CMLHope] plural enfulsion

2014-05-21 Thread ICANDOALLTTC via CMLHope
Hi Carolyn, and good to hear from you but sorry you had to stay in the hospital. I know what you mean about green jello and broth; how about microwave tough chicken. I can't believe that what we know of nutrition these days they are still serving those awful dishes of food. They told me

Re: [CMLHope] Re: let's all write about when we were first dx with leukemia

2014-05-21 Thread ICANDOALLTTC via CMLHope
having someone with you. I will write again soon, Jeanie. I'm going to go sit in my recliner and stitch for a while. Lots of hugs and prayers, Millie - Original Message - From: ICANDOALLTTC via CMLHope To: cml...@googlegroups.com Sent: Tuesday, May 13, 2014 6:56 PM Subject

Re: [CMLHope] Re: let's all write about when we were first dx with leukemia

2014-05-21 Thread ICANDOALLTTC via CMLHope
Thanks for your story Angie, I find the differences here and how one was feeling when first dx very interesting. Some were sick, some tired, and some felt great! We are all so different even with the same disease. Yes, I had those chills and fever a lot and that is a sign of leukemia. I

[CMLHope] Happy Birthday Marty

2014-05-22 Thread ICANDOALLTTC via CMLHope
Hi Marty and Happy Birthday! I read your book last night, and I simple loved it! When you finish it, you should get it published so others can learn from what you went through. It's a great story and you tell it with such a passion. I feel what I went through with my CML journey doesn't compare

Re: [CMLHope] May 21st

2014-05-22 Thread ICANDOALLTTC via CMLHope
Hi Angie, so sorry to hear about your brother. I lost my brother, brother-in-law and sister-in-law last year. They were all in their 80s and had lived nice long lives. They still live on in their children and me. Blessings, Jeanie3 Got to get on with the business of living. In a

Re: [CMLHope] May 21st

2014-05-22 Thread ICANDOALLTTC via CMLHope
Hi Millie and so sorry you are in so much pain. I see you cooking and quilting as usual. I hope you can get some much needed relief soon. I am good; just dealing with my side pain on a daily basis. Blessings, Jeanie3 In a message dated 5/22/2014 2:36:56 A.M. Eastern Daylight Time,

[CMLHope] Happy Birthday Marty and Wife Blessings

2014-05-22 Thread ICANDOALLTTC via CMLHope
In a message dated 5/22/2014 6:35:33 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Millie and so sorry you are in so much pain. I see you cooking and quilting as usual. I hope you can get some much needed relief soon. I am good; just dealing with my side pain on a

Re: [CMLHope] Marty

2014-05-28 Thread ICANDOALLTTC via CMLHope
Hi Millie, and yes you do need to take care of that pain. My sister got a shot in her back and she did good for a while. It is starting to hurt her some now again, but even a little relief from pain is worth it. Cook me something good. Going to be gone soon for a wonderful 3 weeks with

Re: [CMLHope] pcr

2014-05-28 Thread ICANDOALLTTC via CMLHope
Susan that's great! Any side effects from bosutinib? Blessings Jeanie3 In a message dated 5/23/2014 8:04:14 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Here's one for the booksmy bcr/abl test was done in March 2014.number was 23.l4 End of April, 6 weeks

Re: [CMLHope] Happy Birthday Marty

2014-05-28 Thread ICANDOALLTTC via CMLHope
No Greenie, I did read that you should wear gloves to handle the meds. That was funny as our tummies don't have gloves hehe. Needs more investigation before worrying. Blessings, Jeanie3 In a message dated 5/26/2014 2:01:07 P.M. Eastern Daylight Time, pksch...@gmail.com writes: Hi

Re: [CMLHope] Happy Birthday Marty

2014-05-28 Thread ICANDOALLTTC via CMLHope
Cute Greenie, and I must say when my hubby was alive both the running and the chasing were fun. hehe We were married for 42 years. Blessings, Jeanie3 In a message dated 5/26/2014 2:27:54 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: I checked the Gleevec web site and

[CMLHope] Happy late Memorial Day

2014-05-28 Thread ICANDOALLTTC via CMLHope
Yes, I stayed home this memorial day but if you watched the daytona 500 they had a beautiful service for our armed forces, and the Star Spangled banner was sung beautifully. What a race! Jeanie3 In a message dated 5/26/2014 5:18:46 P.M. Eastern Daylight Time, cmlhope@googlegroups.com

[CMLHope] leaving today

2014-05-31 Thread ICANDOALLTTC via CMLHope
Hi to all my wonderful CML warriors, I am leaving today for a wonderful 3-week vacation with my family. 1 week in Orlando and 2 weeks in Key West. Pray for my trip as I pray for all of you daily. We might have some great people from my old Tasi list joining us here. I invited them to join

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

2014-06-09 Thread icandoallttc via CMLHope
Welcome to our group You will love it here I'm on vacation but will be checking in Hope everyone is well Jeanie Sent from my iPhone On Jun 7, 2014, at 10:28 AM, Maria Cashion mariacash...@gmail.com wrote: Hello to all of you!!! I am new to this, I have really never joined a group like

Re: [CMLHope] Millie

2014-06-10 Thread icandoallttc via CMLHope
Hi everyone I emailed Millie but no answer as of yet She is in really bad shape and was going for testing Let's all pray she is in good hands and getting better I am enjoying family in Key West. Really beautiful here. Clear blue green water. We went out on a snorkeling boat and my girls had

Re: [CMLHope] Millie

2014-06-10 Thread icandoallttc via CMLHope
If someone hears from her please let me know. Thanks Jeanie Sent from my iPhone On Jun 10, 2014, at 1:02 PM, margood18 via CMLHope cmlhope@googlegroups.com wrote: Marty: Is your e-mail address (I've got the first three parts) vvx or yyx at gmail.com? Marcie -Original

Re: [CMLHope] Millie

2014-06-10 Thread icandoallttc via CMLHope
continue to have a good time with family. Let us know if you hear from Millie. WE all miss her and are deeply worried about her lack of responses...Hopefully she is in good hands! Beth -Original Message- From: icandoallttc via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope

Re: [CMLHope] Millie

2014-06-11 Thread icandoallttc via CMLHope
Marty On Tue, Jun 10, 2014 at 4:40 PM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Hi Beth and thanks. Millie wrote me right before I left for vacation. She was going to get some tests. Haven't heard from her since them. Glad u are kk. Jeanie Sent from my iPhone On Jun 10

Re: [CMLHope] Millie

2014-06-13 Thread icandoallttc via CMLHope
Hi all No word from Millie yet. Great day in the Keys. Delicious seafood every where. Hope every one is good. Blessings Jeanie Sent from my iPhone On Jun 10, 2014, at 12:39 AM, bkbarney via CMLHope cmlhope@googlegroups.com wrote: Dear Marty, I am worried too. Haven't been on line

Re: [CMLHope] Millie

2014-06-14 Thread icandoallttc via CMLHope
Thank heavens we know know about Millie. I knew she was probably in the hospital As she was so sick. ThAnk you Chris for letting us know. I sure do miss her cooking and recipes and I know you do too. My prayers are with you daily. Tell her Jeanie is hungry. Write back if you can with her

Re: [CMLHope] Millie

2014-06-14 Thread icandoallttc via CMLHope
Could someone Millie's address. I want to send her a card. Thanks. Jeanie Sent from my iPhone On Jun 14, 2014, at 12:09 AM, Joyce Mesnarich joy...@htc.net wrote: So glad to know she is getting the care and compassion she deserves. We will keep her in our prayers. Thank you for letting

[CMLHope] Searching our archived messages

2014-06-14 Thread icandoallttc via CMLHope
If you are interested in searching our cmlhope archived messages go here http://www.mail-archive.com/find.php?q=cmlhope just type in a name and hit search Jeanie Sent from my iPhone On Jun 14, 2014, at 7:25 AM, icandoallttc via CMLHope cmlhope@googlegroups.com wrote: Could someone

Re: [CMLHope] leaving today

2014-06-18 Thread icandoallttc via CMLHope
:00 PM or any Tuesday or Thursday. 18's, Marty On Sat, May 31, 2014 at 7:28 AM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi to all my wonderful CML warriors, I am leaving today for a wonderful 3-week vacation with my family. 1 week in Orlando and 2 weeks in Key West

Re: [CMLHope] leaving today

2014-06-18 Thread icandoallttc via CMLHope
with us then please let us know. Remember that I am at dialysis every Monday, Wednesday and Friday from 9:00 AM and I'm usually home by 3:00 PM or any Tuesday or Thursday. 18's, Marty On Sat, May 31, 2014 at 7:28 AM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi to all my

Re: [CMLHope] Millie

2014-06-21 Thread icandoallttc via CMLHope
Hi Marty and no, not as word. I wish her son would keep us updated but he might not be able to. I pray she is getting better with help. I'm still on vacation. Good luck to all. Jeanie Sent from my iPhone On Jun 21, 2014, at 7:54 AM, Marty Gartenberg wa2...@gmail.com wrote: Has anyone

Re: [CMLHope] Millie

2014-06-23 Thread icandoallttc via CMLHope
Dear Chris and family She has told me all about you and family and I hope And pray she gets better. She has been a part of my online family for a long while now. Her stories on her cooking, family and quilting have thrilled me time and time again Give her my love and kisses. Tell her we

Re: [CMLHope] Millie

2014-06-28 Thread ICANDOALLTTC via CMLHope
Hi Chris and so glad to hear from you; my mom was in a coma for a few weeks before she passed away, and she would give me some response when I talked to her; they told me she didn't know anything but I know she did. One day I was visiting and talking to for a while. She wasn't responding

Re: [CMLHope]

2014-06-28 Thread ICANDOALLTTC via CMLHope
Hi Marcie So good to hear from you. I will get mine done in Aug; So far so good. I hope you are still in remission and doing good. Blessings, Jeanie3 In a message dated 6/28/2014 7:28:24 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: I'm awaiting results of my bcr abl tests

[CMLHope] to Norm

2014-07-03 Thread ICANDOALLTTC via CMLHope
Hi Norm and was just thinking about you and how you and Millie related to each other. She is a great CML Warrior and she is still fighting the battle. Please let other people that were on our Tasi list know about Millie if you can. Blessings, Jeanie3 In a message dated 7/2/2014 7:50:27

Re: [CMLHope] Re: Millie

2014-07-04 Thread ICANDOALLTTC via CMLHope
Hi Chris, My prayers go with you at this time of grief. Your mom will forever live in my heart. She was loved by so many and she helped so many during her time here on earth. I am sure she is flying with the angels and cooking up something good right now. Love to you and to all your family,

[CMLHope] Millie passed away

2014-07-04 Thread ICANDOALLTTC via CMLHope
Yes Chris; keep in touch when you feel like it. We are all on our way to Heaven; it is just a breath away. Blessings and love, Jeanie3 In a message dated 7/3/2014 10:29:36 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Dear Chris, Most sincere condolences from our family

Re: [CMLHope] My Update

2014-07-04 Thread ICANDOALLTTC via CMLHope
Hi Richard and thanks for the update. Good luck on your new move and blessing to you and yours. Jeanie3 In a message dated 7/4/2014 12:10:52 A.M. Eastern Daylight Time, richard1huff...@comcast.net writes: Hi All. Just want to let yo know what is happening in my little world . First, I

[CMLHope] charities for Chris

2014-07-08 Thread ICANDOALLTTC via CMLHope
Hi Chris and so good of you to think of a charity. The Leukemia Society is always needing donations. Just look them up on Google. They do help people that need financial help and are a great charity. Love Ya Jeanie3 In a message dated 7/4/2014 1:22:18 P.M. Eastern Daylight Time,

Re: [CMLHope] Re: Millie

2014-07-08 Thread ICANDOALLTTC via CMLHope
Hi Marty, Sorry to hear about your illness; hang in there and get better. You need to drive the bus for us and we will miss your uplift. Just write when you can. Love ya Jeanie3 In a message dated 7/4/2014 11:17:38 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Dear dear

[CMLHope] marty

2014-07-13 Thread ICANDOALLTTC via CMLHope
Hi Marty and God Bless you for your brave fight. I pray for you to get your strength back. I know when I got home from the hospital the last time, I thought I would never get back to what I was before I went in. I just wanted to stay in bed because I was so weak. One day I told myself to

[CMLHope] greenie

2014-07-13 Thread ICANDOALLTTC via CMLHope
Hi Greenie, I hope you get everything taken care of. It seems something is always going on in health these days. My gums started to bleed a little, and they have always been so healthy; been missing my fruit as we didn't get a good crop last year. Need some Vit C Hang in there and fight

Re: [CMLHope] Bone Pain

2014-07-13 Thread ICANDOALLTTC via CMLHope
Hi Marcie, My dau did acupuncture for migraines with no relief whatever. Have to tried hot epsom salt soaks? Try massaging with castor oil; I massage every night; get the organic kind at your health store or order it online. I remember my first onc telling me he had a patient on Gleevec

[CMLHope] yogurt when on antibiotics

2014-07-13 Thread ICANDOALLTTC via CMLHope
Hi all, I always eat yogurt daily and eat more if I go on antibiotics. Just a thought. Blessings and prayers, Jeanie3 In a message dated 7/10/2014 11:59:48 P.M. Eastern Daylight Time, richard1huff...@comcast.net writes: I am so glad to hear that youwere released from the hospital to home

[CMLHope] susieq pain pancreas

2014-07-13 Thread ICANDOALLTTC via CMLHope
Hi SusieQ, So Good To Hear From You Sorry you are in so much pain, and you are right; a lot of it comes with age, but then we are also fighting a battle everyday for our lives. My sister had the nerve in the lower back burned, and she has been pain free for a while; however some of the pain is

Re: [CMLHope] Re: Millie Chris

2014-07-13 Thread ICANDOALLTTC via CMLHope
Hi Chris and I am grieving with you. I just keep hearing your mom as she gave us encouragement and love each day and missing her so much. I think of her every night before I go to sleep, and I used to tell her we could think of each other in the morning as we both had pain get us out of

[CMLHope] welcome to Maria

2014-07-13 Thread ICANDOALLTTC via CMLHope
Just posting our welcome to Maria; Blessings, Jeanie3 In a message dated 6/9/2014 4:34:27 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Welcome to our group You will love it here I'm on vacation but will be checking in Hope everyone is well Jeanie Sent from my iPhone On

Re: [CMLHope] Digest for cml...@googlegroups.com - 11 updates in 2 topics

2014-07-14 Thread ICANDOALLTTC via CMLHope
So truly spoken Marty; when we share our loads the weight gets lighter each time we share. This group and other similar groups have helped me to share the load and lighten my burdens. So let us all share our grief at this time over Millie, and know that she is very much missed. Jeanie3

Re: [CMLHope] Marty and all

2014-07-20 Thread ICANDOALLTTC via CMLHope
Hi Marty and all, My internet has been down and I missed you all. Marty, that is a beautiful story and I love you too. How wonderful to be uplifted by someone in your darkest hour. I am good and hope everyone is doing good also. I remember when I was in the hospital in 2009 a nurse came in and

[CMLHope] susieq dx the same month and year

2014-07-20 Thread ICANDOALLTTC via CMLHope
Hi SusieQ, I didn't realize that you and I were dx the some month and year and started Gleevec the same month and year. Are you still on Gleevec? It quit working for me in 2009. Blessing, Jeanie3 In a message dated 7/15/2014 5:15:39 P.M. Eastern Daylight Time, sheila.a.wat...@gmail.com

Re: [CMLHope] Bone Pain

2014-07-20 Thread ICANDOALLTTC via CMLHope
and take it! Hope all is well with you. I remember that you had a nice, long vacation. Please let us know how you are doing. Hugs, Marcie Sent from my iPhone On Jul 13, 2014, at 8:22 AM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi Marcie, My dau did acupuncture

Re: [CMLHope] Sprycel and bosulif

2014-07-20 Thread ICANDOALLTTC via CMLHope
Hi Maria, I have been on Gleevec, Tasigna and now Sprycel. The Sprycel has been the best for me with little side effects and in remission. Someone here is on Bosulif I believe. Blessings, Jeanie3 In a message dated 7/20/2014 3:25:57 A.M. Eastern Daylight Time, mariacash...@gmail.com

Re: [CMLHope] My story, Part I

2014-07-20 Thread ICANDOALLTTC via CMLHope
Hi Maria, I take my dose once daily in the morning with breakfast. I am considering asking my onc if I can go off of it soon to see how my body will react. My platelets and wbc go up when I try to reduce it, but I am going to try once more. I had the same symptoms as you when I was first dx

[CMLHope] Joyce and all

2014-07-20 Thread ICANDOALLTTC via CMLHope
I had my first BMA in my oncs office without any meds; just the nurse holding my hand. It was awful to say the least. I had just met this onc and I think he jumped the gun a little but he seemed to think right away that I had leukemia, even before any test were done, except the cbc. I had

Re: [CMLHope] greenie

2014-07-20 Thread ICANDOALLTTC via CMLHope
Hi Greenie, internet has been down for a few days; just got it back up. I hope you are better now. I am good; 76 this year and still up and running daily hehe. Not running just walking. I like to walk early in the morning while it's cool. I have white coat blood pressure and always have.

[CMLHope] grief over Millie

2014-07-20 Thread ICANDOALLTTC via CMLHope
On Monday, July 14, 2014 7:03 AM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: So truly spoken Marty; when we share our loads the weight gets lighter each time we share. This group and other similar groups have helped me to share the load and lighten my burdens. So let us all

Re: [CMLHope] Just checking

2014-07-28 Thread ICANDOALLTTC via CMLHope
Hi Richard and all, I know you are on pins and needles waiting for your blood report; I always am and then so relieved when it comes back good. I pray you have good results. Glad you are settled in your new place and hope you enjoy it. I am still alive and kicking hehe. I have some side

Re: [CMLHope] I haven't seen any poste lately

2014-08-07 Thread ICANDOALLTTC via CMLHope
Hi Marty and all, I'm so sorry about your accident; seems the roads are really crowded out there. My internet has been down; so just no able to get on. It seems lightening hit my phone pole. We have been having a lot of thunder storms but I love them; my mom always cautioned us about

Re: [CMLHope] I haven't seen any poste lately

2014-08-07 Thread ICANDOALLTTC via CMLHope
Hi Skip and thanks for the update; I know how that platelet count can get messed up and out of hand. I had my platelets go up three times and had to have blood cleansing. It is similar to getting platelets but they are taking them out instead. I hope everything will be ok. Blessings, Jeanie3

Re: [CMLHope] Here's some posts!

2014-08-07 Thread ICANDOALLTTC via CMLHope
Hi Susan and so glad you are doing so well on the new med. I got my remission after only a few months on Sprycel. I am so happy that these new meds were developed as they have saved my life three time as of this date. Good luck, Jeanie3 In a message dated 8/7/2014 10:01:30 A.M. Eastern

Re: [CMLHope] I haven't seen any poste lately

2014-08-07 Thread ICANDOALLTTC via CMLHope
Sorry meant Marci hehe senior moments. In a message dated 8/7/2014 11:36:23 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi Marty and all, I'm so sorry about your accident; seems the roads are really crowded out there. My internet has been down; so just no able to get on.

Re: [CMLHope] Dr. Shah at UCSF is enrolling patients for a stop dasatinib stu...

2014-08-07 Thread ICANDOALLTTC via CMLHope
Hi Marty, Thanks for that info; that lets me out; I have been on Gleevec, Tasigna and now am on Sprycel. I have also had blast. I have tried on my own to lower the dose but my counts always start rising. I am going to talk to my onc on my next visit. Thanks again and hope you are great!

[CMLHope] jeanie blood draw tomorrow

2014-08-10 Thread ICANDOALLTTC via CMLHope
A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Jeanie, It is so good to know you also got fast results!!! We have so much to be thankful for. Have a great day! Susan F. Zimmerman -Original Message- From: ICANDOALLTTC via CMLHope cmlhope@googlegroups.com

Re: [CMLHope] Tasinga

2014-08-10 Thread ICANDOALLTTC via CMLHope
Yes I was on it for a few months of agony. Some people are doing great on it though. Good luck, Jeanie3 In a message dated 8/7/2014 12:35:22 P.M. Eastern Daylight Time, lilak...@gmail.com writes: I was switched to Tasinga after Gleevec messed with my kidneys. Has anyone had experience

[CMLHope] richard dog days?

2014-08-10 Thread ICANDOALLTTC via CMLHope
Hi Richard, it's funny that you say that. My mom use to say dog days are here. She would blame sores and etc on it. Is Missouri as beautiful as I think it is? That is one start I haven't visited yet. Blessings, Jeanie3 In a message dated 8/7/2014 11:32:46 P.M. Eastern Daylight Time,

Re: [CMLHope] Trouble Getting Gleevec--Again

2014-08-10 Thread ICANDOALLTTC via CMLHope
So Sorry you are going through this, but check and see if you can get it free. If your insurance won't pay I think there is a free program. I don't have any gleevec, been off it for years now. Good luck, Jeanie3 In a message dated 8/8/2014 5:27:44 P.M. Eastern Daylight Time,

Re: [CMLHope] jeanie blood draw tomorrow

2014-08-12 Thread ICANDOALLTTC via CMLHope
, 2014 at 6:13 PM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi Susan and all my CML warriors, I am excited about going to get my blood test tomorrow! I haven't been for 6 months and that is the longest I have ever been going to see my onc. My PCD did do a blood test and all

Re: [CMLHope] tomorrow

2014-08-12 Thread ICANDOALLTTC via CMLHope
Message- From: ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) To: cmlhope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Sun, Aug 10, 2014 6:13 pm Subject: [CMLHope] jeanie blood draw tomorrow Hi Susan and all my CML warriors, I

Re: [CMLHope] jeanie blood draw tomorrow

2014-08-13 Thread ICANDOALLTTC via CMLHope
. Hemoblobin is what brings oxygen to all of the body and when it is low like mine is you jusy don't have any energy. Al and all things considered I think that your doing fine. 18's, Marty On Tue, Aug 12, 2014 at 7:44 AM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi Marty and all

Re: [CMLHope] jeanie blood draw tomorrow

2014-08-18 Thread ICANDOALLTTC via CMLHope
dangerous. Since I had total body radiation I must be very careful of the sun, so I just try to avoid it as much as I can. I just wanted to stop by and say hello to you. 18's, Marty On Thu, Aug 14, 2014 at 5:40 PM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi Marty and yes I'm

[CMLHope] painful jaw?

2014-08-31 Thread ICANDOALLTTC via CMLHope
Hello to all my cml warriors, I have been sick; my jaw is sore and it feels like my ear is infected. I have been home treating it with hot compresses and etc. Has anyone else had this happen? It is very painful. Yes, I always get really hot if I don't keep my air going. I always spent

Re: [CMLHope] painful jaw?

2014-08-31 Thread ICANDOALLTTC via CMLHope
Forgot, my son caught a big red fish and he is cooking it for my lunch today! Can't wait. He makes grits and tomato gravy with a delicious tartar sauce. He is also making hush puppies, so it will be a feast. Blessings, Jeanie3 In a message dated 8/31/2014 11:06:11 A.M. Eastern Daylight

Re: [CMLHope] painful jaw?

2014-09-01 Thread ICANDOALLTTC via CMLHope
the sun. I hope that you will feel better real soon. 18's, Marty On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Hello to all my cml warriors, I have been sick; my jaw is sore and it feels like my ear

[CMLHope] Maria

2014-09-04 Thread ICANDOALLTTC via CMLHope
On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) ) wrote: Hello to all my cml warriors, I have been sick; my jaw is sore and it feels like my ear is infected. I have been home treating

[CMLHope] Marty

2014-09-04 Thread ICANDOALLTTC via CMLHope
Thanks Marty, being positive is one of our healing factors, but sometimes when we feel so bad and know we have to take our chemo every day, our mind gets bogged down with our illness. Our ability to focus sometimes gets a little blurry when we are in pain, but somehow we will get lifted up

Re: [CMLHope] painful jaw?

2014-09-05 Thread ICANDOALLTTC via CMLHope
are very common and easily treated with an antibiotic, usually Amoxacyln which I'm sure you already know about because of your bouts with strep throat. 18's, Marty On Mon, Sep 1, 2014 at 10:38 AM, ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com

Re: [CMLHope] painful jaw?

2014-09-07 Thread ICANDOALLTTC via CMLHope
. Thanks a lot. Blessings, Jeanie3 On Fri, Sep 5, 2014 at 8:49 AM, ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Hi Marty and Good Morning, Yes I am on 500 msg of amoxacylin for 7 days; still in a lot of pain and painful to chew. Thanks a lot

[CMLHope] Re: proton pump inhibitors found this on Gleevec

2014-09-07 Thread ICANDOALLTTC via CMLHope
In a message dated 9/7/2014 8:35:11 A.M. Eastern Daylight Time, icandoall...@aol.com writes: Effect of a proton pump inhibitor on the pharmacokinetics of imatinib. _Egorin MJ_ (http://www.ncbi.nlm.nih.gov/pubmed?term=Egorin%20MJ[Author]cauthor=truecauthor_uid=19740393) 1, _Shah DD_

[CMLHope] sprycel and proton pump inhibitors

2014-09-07 Thread ICANDOALLTTC via CMLHope
4, 2014 9:31:55 AM, ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Thanks Marty, being positive is one of our healing factors, but sometimes when we feel so bad and know we have to take our chemo every day, our mind gets bogged

Re: [CMLHope] painful jaw?

2014-09-08 Thread ICANDOALLTTC via CMLHope
the French I hope that you and your son enjoy that fish you will be having for lunch. With all of those trimmings it does sound like a feast. 18's, Marty On Sun, Aug 31, 2014 at 11:08 AM, ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote

[CMLHope] Fwd: proton pump inhibitors found this on Gleevec susan and all

2014-09-08 Thread ICANDOALLTTC via CMLHope
From: icandoall...@aol.com To: educatorsu...@aol.com Sent: 9/8/2014 11:25:12 A.M. Eastern Daylight Time Subj: Re: proton pump inhibitors found this on Gleevec Hi Susan and you are so welcome. That Gleevec for my five years was a trip no one want

Re: [CMLHope] Sprycel side effects

2014-09-12 Thread ICANDOALLTTC via CMLHope
Hi all and glad to have everyone's input on this PE. I told my onc a few months back that I was afraid of PE but he said that was the last thing I needed to worry about. Can't figure him out. I am on 100 mgs daily Sprycel. Seem to be doing good except I have developed painful jaw and

Re: [CMLHope] Sprycel side effects carolynk

2014-09-15 Thread ICANDOALLTTC via CMLHope
for everyday and I guess it is what it is. Carolyn K ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi all and glad to have everyone's input on this PE. I told my onc a few months back that I was afraid of PE but he said that was the last thing I needed to worry about

Re: [CMLHope] Yes Skip send me your blood report thanks

2014-09-17 Thread ICANDOALLTTC via CMLHope
tire when blood is down below 100. PlATELETS do not seem to bother me.. On Monday, September 15, 2014 11:42 AM, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi Skip, Yes I am interested in one of your lab reports. Just to compare with mine. Thanks a lot

Re: [CMLHope] Yes Skip send me your blood report thanks

2014-09-17 Thread ICANDOALLTTC via CMLHope
, ICANDOALLTTC via CMLHope cmlhope@googlegroups.com wrote: Hi Skip, Yes I am interested in one of your lab reports. Just to compare with mine. Thanks a lot and keep fighting. I find myself worrying too much about my platelets! Millie always told me to quit worrying so much. She

Re: [CMLHope] bosulif jeff

2014-09-19 Thread ICANDOALLTTC via CMLHope
Hi Jeff, do you eat with the boslif? I always had to eat a lot with Gleevec. You don't have eat with Sprycel but I do anyway. Take it with my breakfast. Good luck. Blessings, Jeanie In a message dated 9/17/2014 7:44:20 A.M. Eastern Daylight Time, jj.john...@sympatico.ca writes: Hi

Re: [CMLHope] Sprycel side effects

2014-09-19 Thread ICANDOALLTTC via CMLHope
Thanks for that article; we all need to know what we are facing with Sprycel. Blessings, Jeanie3 In a message dated 9/18/2014 7:19:13 P.M. Eastern Daylight Time, ballroom...@gmail.com writes: Joyce, I have had to go off of Sprycel several times due to pleural effusion, which

Re: [CMLHope] Sprycel side effects

2014-09-19 Thread ICANDOALLTTC via CMLHope
Good luck Joyce; hope he gets well soon. Blessings, Jeanie3 In a message dated 9/19/2014 2:54:51 A.M. Eastern Daylight Time, joy...@htc.net writes: Thanks, Michelle, for your post and the link to your site. The effusion seems to be around his heart but is not causing a lot of

Re: [CMLHope] Re: Sprycel side effects diuretics ?

2014-09-19 Thread ICANDOALLTTC via CMLHope
Yes they do treat it with diuretics. Here is an article on it. Depends on your health. http://emedicine.medscape.com/article/299959-medication Jeanie3 In a message dated 9/19/2014 6:54:43 A.M. Eastern Daylight Time, pksch...@gmail.com writes: From what I have read here and elsewhere, it

Re: [CMLHope] Re: Sprycel side effects

2014-09-20 Thread ICANDOALLTTC via CMLHope
Hi all, I have been on Sprycel for 5 years this month. I have never had PE and it was the only drug that put me in remission. I went through Gleevec and Tasigna for about 5 years. I have had other issues though and sinus headaches with migraines is one of the main ones. The jaw problem

Re: [CMLHope] Re: Sprycel side effects diuretics ?

2014-09-20 Thread ICANDOALLTTC via CMLHope
...? On Fri, Sep 19, 2014 at 9:06 AM, ICANDOALLTTC via CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) wrote: Yes they do treat it with diuretics. Here is an article on it. Depends on your health. http://emedicine.medscape.com/article/299959-medication Jeanie3 In a message

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