[QUAD-L] Caregivers

Hi everyone. Just wanted to say thank you so much for all the advice and support and phone calls. It helps just knowing you guy have been through the same thing. And you all gave me the same advice...must be something to say for experience! Thanks again. Amy

[QUAD-L] To caregivers.

Just need some support...ok a lot of support. I am an AB caregiver to my bf who is a quad. I am 42 and he is 48. Going thru some really rough times now...the both of us seperately and together. Just need to talk to someone who understands and can help me get thru this. Seems I am at the end of

Re: [QUAD-L] Fwd: Great message

Oh my! This guy is truly amazing. I had to show the videos to my sons who were also amazed at his independence. He is an example even for us AB's. To appreciate all the things we take for granted. I even forwarded it to my friends. This was good to see after feeling sorry for myself for a while

[QUAD-L] Re; Tv show

I wanted to let you guys know there is a show coming on tv that you might be interested in. It is called Mapping Stem Cell Research: Terra Incognita. It is on PBS on jan 15th. Not sure what time. It follows Dr. Jack Kessler's push to cure spinal cord injuries. Motivated by the plight of

Re: [QUAD-L] (no subject)

Good luck with that one! The list is endless. [EMAIL PROTECTED] wrote: Working with Shepherd folks to try to do something..for those that leave hospital after rehab..Concentrating on home environment needs..Myron - Start the year off right. Easy

RE: [QUAD-L] Neck! Syrinix question?

I know a lot of you have to Deal with a syrinix. My question is this. Is there any relief? Have any of you had sucess with draining it or with surgery? Does it always come back? There has to be something that can be done. Silas Shelburne [EMAIL PROTECTED] wrote:Lori, Reading

Re: [QUAD-L] Don't Park In The Handicap Spot

It is actually easier for me to park my boyfriends van at the lower end of the parking lot. he is on a vent and it gives us a little more privacy to suction or empty caths if needed. Plus I park sideways in 2 spots so that we are not blocked in. Looks like I cant drive but no one can get near

Re: [QUAD-L] Quadius_Beds and Our Bedrooms

I would love to have a bed next to my boysfriends bed. Side by side would be nice. But it would be nice if we had matching beds...even a second bed that could raise to the same level as his. I love to hear him breath and just to be able to touch him. Sleeping with him makes it hard for him. It

Re: [QUAD-L] Quadius_Beds and Our Bedrooms

I wonder if you can use an alternating mattess on one side of those. But it may make it hard to do his care too. If you had two beds side by side...then they can be seperated to do the necessary care. [EMAIL PROTECTED] wrote: Thanks for expressing the slippery slope of a normal

Re: [QUAD-L] Hello : - )

Hi..and welcome to the list. I am an AM with a boyfriend who happens to be a quad. I have learned so much from everyone on here. Hopefully you will too. As far as serious questionsSHOOT! Now you got me wondering Amy AmazingE-Books (mrtom) [EMAIL PROTECTED] wrote:

Re: [QUAD-L] Total humiliation

Miri, I am not sure what happened to you. But it will be better tomorrow. AB people are actually more accepting than you think. No matter what happened, it will be ok. Hang in there~!!! And please...You HAVE to go out ! It was a bad day but they will not always be like that...I promise. (((

Re: [QUAD-L] Trachs

THis is a very scary decision I am sure for you to have to make. But you gotta breathe! Trachs are very intimadating for caregives and patients. But once you get used to it...it is like everything else, just a part of your routine care. Passey Muir valves do work but it does take some

Re: [QUAD-L] advice on bowel program

It seems that everyone has a different bowel program. Guess different things work for different people. My boyfriend seems to have a very simple program. It is called DIL. (Digital internal...something something...not sure what that stands for exactally). Every morning we turn him

Re: [QUAD-L] My new van

Congradulation! A neat van sure means a lot more independance...ENJOY! Amy [EMAIL PROTECTED] wrote: Hello Everybody! I have some great news. I bought a new van this week. It's a 2007 Dodge Mini-van, Braun conversion. I bought it from a dealer on E-Bay. I need to take it to Mobility

Re: [QUAD-L] newly injured me.

Hi Danny. I am not a quad but my boyfriend is. I know he had a terrible time when he first got hurt. That was 5 years ago. Sometimes he still has periods that are hard. Just hang in there. You have a lot to look forward to! A lot to learn. Tell us a little about yourself..how did you get

Re: [QUAD-L] what causes a syrinx

What kind of test can they do to determine if you have a syrinx? My Boyfriend has been having severe pain with no apparent cause. I am wondering if this may be what is causing the problem. Pain is mostly in his legs but some in the arms. RONALD L PRACHT [EMAIL PROTECTED] wrote:well the

Re: [QUAD-L] warm or cold hershey ??

I like chocolate in any form or fashion...mush more fun to share it too...LOL Amy [EMAIL PROTECTED] wrote: so do you guys prefer cold Hershey bars that hold their shape and almost demand chewing OR warm Hershey bars than melt in your mouth in a mushy creamy mess and stick to your roof

Re: [QUAD-L] thanks

Hi Michael. What took you so long to find this list...just curious. Glad you found this site. It is very helpful wether you are a new quad or a older. I am not a quad but my boyfriend is. He is a member here. Fell off a trampoline. I have learned a lot on here. Welcome and please feel free

Re: [QUAD-L] After death

Everyone has their own opinion on this, I am sure. So here is mine. I have NO IDEA! I know there have been times in my life when it has been influenced by a guidiance or spirit or GOD. I think all religion have the same basic principle. Believe in a higher power. Be good to one another.

Re: [QUAD-L] sex

Ok...I always have to jump in on this subject. I am an Ab girlfriend of a quad...(Hi honey!). Sex is not an issues as far as I am concerned. I think he worries more about it than I do. First of all there is more than one way to please a woman. I very much enjoy the intimacy that we have. I have

Re: [QUAD-L] Hotels

My boyfriend and I have stayed at the holiday inn express a couple of times. You can get a handicapped room. It had a queen size bed and we were able to use a hoyer without any problems. I always go in before I get him out of the van and make sure the room is ok and that I can use a hoyer. Some

Re: [QUAD-L] Hotels

One more piece of advice. Once we stayed in a motel in adjoining rooms with some of his family. We locked the security lock on the inside of our room door. We accidently let the adjoining door close and Si was locked in! We went to get another card key from the desk. But we could not get into

[QUAD-L] Any tricks?

Hi guys. Just wondering if you guys have any special tips that you use. For instance...for my boyfriend..we use velcro strips for EVERYTHING. To hold vent tubes in place. As leg straps. And to hold his hands on the chair. We also use those plastic ties that slide thru..not sure what they are

Re: [QUAD-L] Aids stealing your meds

Hi Mark...I am a caregiver myself. If your aid is addicted to pain meds then you need to find someone else. Sounds like she is there to feed her habit. Your needs should come first. There is good help out there. Does she work though a company? If she does then you need to notify them. She should

Re: [QUAD-L] 8-2-06

JT that is the sweetest thing you could have done. She is a very lucky girl. I wish you years of happiness. So glad that you are enjoying life. That is all any of us can do...AB or quads...WAY TO GO! AmyJason Thurston [EMAIL PROTECTED] wrote:I have been waiting to send a message to the

Re: [QUAD-L] For all you animal lovers

I loved this one! i would have loved to see the look on her face! Thanks for making my day.River Wolfe [EMAIL PROTECTED] wrote: I hope you really said this, it made our day ROTFLMAO. People, in their desire to connect do ask the most obvious questions don't they? River On Aug 3, 2006, at

Re: [QUAD-L] July 10, 1966

Way to go Glen! I am sure your have been a blessing to those who care most about you. Amy[EMAIL PROTECTED] wrote: 40 years post SCIGlenn Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

Re: [QUAD-L] Who lives where?

Silas and I are on our way to see youLOL!!!. AmyRiver Wolfe [EMAIL PROTECTED] wrote: Columbus, OhI love knowing where everyone lives, you all live in some pretty exciting places! Las Vegas BABY !!!RiverOn Jun 26, 2006, at 10:45 PM, Paul Jacobson wrote:san

Re: [QUAD-L] I have another question

Hey eric..Now I have a questionhow do you take care of that one...?? amyBill_J [EMAIL PROTECTED] wrote: I would have put orgasm at the top of the list. LOLIn all honesty, I believe God is still with each of us. He just gives us each different challenges. It's up to us to

Re: [QUAD-L] quad anniversary.

, 26 years post Tucson, AZ AGE - 41 Amy Davis [EMAIL PROTECTED] wrote:June 3rd is the 4th aniversary of quad-dom for my friend Silas. I know this is always a hard time for him so help me make this a good day! I know a bunch of people who are thrilled for every day that they have had

Re: [QUAD-L] quad anniversary.

Thanks dave. I am truly the lucky lady! He makes my life better in ways that I never thought possible. Thanks for the support. Amy"David K. Kelmer" [EMAIL PROTECTED] wrote:Hi Amy,You both are lucky to have each other to help make each of you lives better. May you both continue to be a

[QUAD-L] vent users

Just curious as to who among you are vent dependant. How do you manage for full time care? Do you have nurses or family members that help you? How often do you go out to dinner or shopping or just for fun? Amy __Do You Yahoo!?Tired of spam? Yahoo!

Re: [QUAD-L] quad anniversary.

LOL..thanks..hope he would agree. AmyRollinOn [EMAIL PROTECTED] wrote: Silas you and Amy sound like a great pairMark---Original Message--- From: Amy Davis Date: 06/01/06 21:08:33 To: quad-list@eskimo.com Subject: [QUAD-L] quad anniversary.June 3rd

[QUAD-L] quad anniversary.

June 3rd is the 4th aniversary of quad-dom for my friend Silas. I know this is always a hard time for him so help me make this a good day! I know a bunch of people who are thrilled for every day that they have had with him since his injury. It has not been easy the whole way...but for me it has

[QUAD-L] New to this list.

Hello everyone. I was invited to join this list by a special guy in my life. I am not a quad but he is. He talks about this list all the time. How he has learned so much from you guys. The support you give each other and even the challenges and disagreements that you have. Hopefully I can look to