Re: [QUAD-L] BP
My BP has been a steady 90/60 for years. Sorry to break up all this talk about pills and blood pressure but what do you guys do for fun? What do you do to feel a part of the world that certainly wasn't made for the disabled? What do you do to get by and not feel like that's all you're doing – getting b From: Danny Espinoza To: Bobbie Humphreys ; quad-list@eskimo.com Sent: Wednesday, October 12, 2016 8:51 PM Subject: RE: [QUAD-L] BP Not that low but mine is 90's over 60/70's sometimes -Danny Original Message Subject: [QUAD-L] BP From: "Bobbie Humphreys" Date: Wed, October 12, 2016 7:40 pm To: I went to the Doctors today and my BP was 54 over 48 Anybody else have low BP? Bobbie "You must fail in order to succeed"
Re: [QUAD-L] hi
Welcome, Annette. Look, no hand-use, Ma, 35 years post, two months before graduating high school; now MBA, married, divorced, full-time job with Feds, my own house, just wish I would have made it accessible so I could go inside :-) Jeff From: "wheelch...@aol.com" To: atsxn...@mchsi.com; quad-list@eskimo.com Sent: Friday, December 16, 2016 5:38 AM Subject: Re: [QUAD-L] hi Welcome Annette! What have you done since? There are so many here willing to share their stories and experiences. Again, Welcome. Best Wishes In a message dated 12/16/2016 5:58:54 A.M. Central Standard Time, atsxn...@mchsi.com writes: I heard about this group from a friend and she thought I would benefit from like she does. My name is Annette. I am a level C 5/6/7 break. My spinal cord has only a few strains still connected. I had my accident May 30th 1981 just after my Junior year of high school. I am a 35 plus year survivor. I don’t mind being asked questions about my accident and life since so if someone is interested just ask. I look forward to being part of this group. Annette
Re: [QUAD-L] pain pills causind A.D.
Good idea, Bill. In the past there were times where I just simply had to start eliminating things rather than having any clue exactly what's going on. From: William Lang To: RONALD L PRACHT Cc: quad-list Sent: Friday, December 23, 2016 11:15 AM Subject: Re: [QUAD-L] pain pills causind A.D. Ron, You may be taking the wrong medication. It’s possible that someone switched meds to acquire the oxycodone. Check out the pill ID you have here: http://www.webmd.com/pill-identification/ On Dec 23, 2016, at 1:57 PM, RONALD L PRACHT wrote: It is a different shaped pill, usually I get round ones but this time they are elongated oval shape. Could be a little different causing the issue. I was concerned of my stomach lining maybe getting screwed up. Ron On Friday, December 23, 2016 12:52 PM, Larry Willis wrote: Ron, have you had a new prescription filled lately? Sometimes I'll get a batch that cause me to itch terribly. With the next bottle the itching goes away. Bad batch, I assume. Are you taking it in combo with anything else? Larry WillisRetired and proud of it On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT wrote: Why would taking oxycodone cause my head to sweat and go into mild dysreflexia? Ive been on it for 4 years and it never did this to me. I hope its not stomach lining damage or something?? Ron Don’t let what you cannot do interfere with what you can do! -John Wooden Billy Lang blan...@icloud.com
Re: [QUAD-L] Unidentified subject!
I'm sorry to hear about the loss, Wheelchair. From: Gail Holmes To: wheelch...@aol.com Cc: quad-list@eskimo.com Sent: Friday, December 23, 2016 2:38 PM Subject: [QUAD-L] Unidentified subject! Im thinking of this time of year how with the joy and hope we there is often increased sadness for those who have family and friends who have passed on to the other side. There are probably others on this list who are mourning but I'm particularly thinking of "Wheelchair" who had a recent and sudden loss of his son. Thank you Wheelchair for continuing to contribute to this list even as no doubt the pain is still so fresh and raw. May God comfort you and bring you peace. Sent from my iPhone On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com wrote: Oxy, is a very potent and dangerous drug. Users, should not advertise its use. It can become habit forming is less than 90 days of use. The FDA, is cracking down on pain doctors, on its use for pain meds. Those seniors with shoulder, hips and knee replacements are becoming addicted to the drug, without knowing it, which only adds to the health care cost as they go into recovery clinic to kick the drug. The symptoms should be reported to the doctor that issued the RX. Best Wishes In a message dated 12/23/2016 12:57:34 P.M. Central Standard Time, r.pra...@sbcglobal.net writes: It is a different shaped pill, usually I get round ones but this time they are elongated oval shape. Could be a little different causing the issue. I was concerned of my stomach lining maybe getting screwed up. Ron On Friday, December 23, 2016 12:52 PM, Larry Willis wrote: Ron, have you had a new prescription filled lately? Sometimes I'll get a batch that cause me to itch terribly. With the next bottle the itching goes away. Bad batch, I assume. Are you taking it in combo with anything else? Larry Willis Retired and proud of it On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT wrote: Why would taking oxycodone cause my head to sweat and go into mild dysreflexia? Ive been on it for 4 years and it never did this to me. I hope its not stomach lining damage or something?? Ron
Re: [QUAD-L] Unidentified subject!
Hello, Everyone. Anyone have any special ideas about finding something that would hold an electric toothbrush for someone without the use of their hands, but who could maneuver around where they can brush their own teeth? I have a microphone stand with a microphone holder that I'm going to try but I was curious if anyone had more ideas? From: Jeffrey Gaede To: Gail Holmes ; "wheelch...@aol.com" Cc: "quad-list@eskimo.com" Sent: Friday, December 23, 2016 2:44 PM Subject: Re: [QUAD-L] Unidentified subject! I'm sorry to hear about the loss, Wheelchair. From: Gail Holmes To: wheelch...@aol.com Cc: quad-list@eskimo.com Sent: Friday, December 23, 2016 2:38 PM Subject: [QUAD-L] Unidentified subject! Im thinking of this time of year how with the joy and hope we there is often increased sadness for those who have family and friends who have passed on to the other side. There are probably others on this list who are mourning but I'm particularly thinking of "Wheelchair" who had a recent and sudden loss of his son. Thank you Wheelchair for continuing to contribute to this list even as no doubt the pain is still so fresh and raw. May God comfort you and bring you peace. Sent from my iPhone On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com wrote: Oxy, is a very potent and dangerous drug. Users, should not advertise its use. It can become habit forming is less than 90 days of use. The FDA, is cracking down on pain doctors, on its use for pain meds. Those seniors with shoulder, hips and knee replacements are becoming addicted to the drug, without knowing it, which only adds to the health care cost as they go into recovery clinic to kick the drug. The symptoms should be reported to the doctor that issued the RX. Best Wishes In a message dated 12/23/2016 12:57:34 P.M. Central Standard Time, r.pra...@sbcglobal.net writes: It is a different shaped pill, usually I get round ones but this time they are elongated oval shape. Could be a little different causing the issue. I was concerned of my stomach lining maybe getting screwed up. Ron On Friday, December 23, 2016 12:52 PM, Larry Willis wrote: Ron, have you had a new prescription filled lately? Sometimes I'll get a batch that cause me to itch terribly. With the next bottle the itching goes away. Bad batch, I assume. Are you taking it in combo with anything else? Larry Willis Retired and proud of it On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT wrote: Why would taking oxycodone cause my head to sweat and go into mild dysreflexia? Ive been on it for 4 years and it never did this to me. I hope its not stomach lining damage or something?? Ron
[QUAD-L] Why keep pushing on
Why do people keep pushing on? I mean it's bad enough to be substantially disabled, but it doesn't stop there. People, in general, don't want to be around you. It's difficult to go places and do things; average things that most people do all the time. And you know from experience that illnesses and such can pop up at any moment, much more easily than the average person. You try like hell to avoid being dependent on the government but it's nearly impossible, even if you work full-time. That means you constantly have someone with which to answer. Someone with their own rules, who can't begin to understand you and what you go through on a daily basis. I could see where if you were recently disabled then maybe you haven't been through enough to realize what life is going to throw your way, but what about those of us that have been around a while? What keeps you pushing on… Jeff From: greg To: quad-list@eskimo.com Sent: Thursday, January 26, 2017 6:30 PM Subject: [QUAD-L] Bd I hate going to bed. I freeze the first half hour no matter how warm I get my room.Shake like I'm convulsing.I'd stay in my chair 24/7 if I could.Plus I just hate not being able to move around.Greg
Re: [QUAD-L] photography
Congratulations From: greg To: quad-list@eskimo.com Sent: Sunday, February 26, 2017 6:23 PM Subject: [QUAD-L] photography I've been doing photography, a lot of double exposures. I sold my first one this weekend from an Art Gallery. So cool. It was a big 28x40Greg
Re: [QUAD-L] Slot Nuts
If you don't have a regular wheelchair place you deal with, then probably a hardware store. That's where I would look.Jeff From: greg To: quad-list@eskimo.com Sent: Thursday, March 2, 2017 5:01 PM Subject: [QUAD-L] Slot Nuts You know the little slots on the side on the chairs back, or seat pan. So you can slide brackets on and screw things to it.I think they are called Slot Nuts. I can find T shaped ones, but I need square or rectangled ones.Anyone know where to buy these? I need like a 1/4 inch thread, about 3/4 wide.Thanks much,Greg
Re: [QUAD-L] My package was stolen!
Well that kind of sucks. You know you can appeal their decision.Jeff From: Johnny Cammon To: DAVID LEWIS ; quad-list Sent: Sunday, March 5, 2017 12:03 PM Subject: Re: [QUAD-L] My package was stolen! No medicaid only approved the bed frame ...that"s all ,they told me since my bed sores are healed scars.i don't need it is what they told my mom i never had this problem...i'm happy they repaced my stuff though. On Wed, Nov 30, 2016 at 4:14 PM, DAVID LEWIS wrote: will medicare pay for an air mattress if u have a pressure sore like i do On Wednesday, November 30, 2016 8:17 AM, Johnny Cammon wrote: Hello quadriplegics? Do I have some news for you guys, okay I ordered the echo.and a Air mattress. They knocked but no one was able to get to the door in time so tell me why Whoever left it on the porch. I had Ms. the first time they delivered. And email was sent to me and I follow the email to reschedule the delivery they would not let me pick the next day so I peaked November 30 to be delivered. So I wasn't expecting it to come anyway. Someone came on the porch took the stuff out of the box and left the box on the porch. So now I am contacting Amazon and see if I can get some help.. Hopefully I heard they will replace it. -- Life not hard!!!
Re: [QUAD-L] Wall Damage From Chair
Let's put it this way, serious construction work has and will take place in my room, doorway and nearby hallway before selling my home :-) Jeff From: greg To: quad-list@eskimo.com Sent: Tuesday, March 7, 2017 7:38 AM Subject: [QUAD-L] Wall Damage From Chair After a few years in your house, how do you walls, doors, look from chair damage? I've been so careful not to crash, scrape, bang, into things. After 12 years here, things still look pretty good. I have a tight 2 turns to get into my room, No issues there. Coming out of my room I have 1 big ding on a counter corner, and1 big ding on corner of the frig. Both from backing up. My living room has a step down, a friend built an oak ramp. I have some scrapes on the ramp from when my footrest is down to low. That's it inside, but my front door is trashed. I push it open with my footrest, often my joystick box scrapes it as it closes. I put a brass plate on the bottom, but my footrest often misses it. Oh, the biggest damage inside is the wall by my bed. I back in and ding the wall a lot, plus when I to transfer they lift my armrest back and it hits the wall. A few holes there now. I now have a piece of plywood there.Greg
Re: [QUAD-L] Power wheelchair getting stuck on oriental rug.
I have a large area rug in my living room. It seems like the larger the rug,
the harder it is to move it around with your chair. Plus there's a sizable
coffee table on one portion. Doesn't exactly leave as much room as I'd like but
I don't tear up or get caught up in the rugs.
From: RONALD L PRACHT
To: Quad-list Post
Sent: Thursday, March 9, 2017 5:15 PM
Subject: Re: [QUAD-L] Power wheelchair getting stuck on oriental rug.
One possible answer would be buy some duralock plastic Velcro and stick the
edges down. Im sure this wont be popular with the housekeeper. Or like you say
find some plastic edging to lay on the start of the rug, might still need the
plastic Velcro though called duralock.
ron
On Thursday, March 9, 2017 6:22 PM, Dave Krehbiel
wrote:
#yiv1729286116 #yiv1729286116 -- filtered {panose-1:2 4 5 3 5 4 6 3 2
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1.0in;}#yiv1729286116 div.yiv1729286116WordSection1 {}#yiv1729286116 We have
hardwood floors, and in one room we have an oriental rug. At first I was able
to drive my chair into the room without any problems. But lately, my wheelchair
seems to be grabbing the Oriental rug, and the rug and up wrapped around my
drive wheels. Maybe it is because the rug is getting older. Maybe it is
because I'm driving a different wheelchair. But I'm wondering, has anyone else
had this problem? I'm considering buying one of those clear plastic mats people
buy to put under their desks in office spaces, and to use that as a sort of a
pathway for bridge onto the rug. Does anyone have any experience or
suggestions or ideas? Thanks so much, and take care, Dave Krehbiel
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Re: [QUAD-L] Great Quad movie "Waterdance"
How about "Me before You" with Emily Clarke of Game of Thrones fame. I know this was discussed before but I think the ending was unrealistic. I mean the guy has money and a hot, young lady willing to accept him, love him, show him what the world is about. Unlikely to last but I would take the 5-10 years of that situation/scenario. Another good one is "Rory O'Shea Was Here." It's a real good one. From: RONALD L PRACHT To: Quad-list Post Sent: Sunday, March 12, 2017 6:36 AM Subject: [QUAD-L] Great Quad movie "Waterdance" I watch a lot of tv but never came across this movie until I was on youtube last night. Its about three guys that get paralyzed and their stuggles to deal with it. Has Helen Hunt, Wesley snipes and others in the 1992 flick Waterdance. Pretty realistic for a movie. 1992 The Waterdance Ron | | | | || | | | || 1992 The Waterdance The Waterdance 1992 Movie | | | |
Re: [QUAD-L] Great Quad movie "Waterdance"
Dude, you always get the guy's business card or phone number and try the lady… From: Robert Vogel To: Jim Lubin Cc: RONALD L PRACHT ; Quad-list Post Sent: Monday, March 13, 2017 1:19 PM Subject: Re: [QUAD-L] Great Quad movie "Waterdance" Jim and Jeffery, well said! I also agree. Ironically the tagline for the movie was “Live Boldly”—are you kidding me? Speaking of great Quad Movies, there is an amazing Must Read quad book that is a true story called: "Lucky Break: A Love Story” The true story of Kirk Kilgour, an Olympic Level Volleyball player, who became a C4 complete quad, no movement below his shoulder in his mid-20’s he was hired to coach the Italian Volleyball team—a huge sport in Italy—and played professionally. He was such an amazing person that—true story—after I finished a speech for the National Spinal Cord Injury Association he came up to me to chat, and at the same time a very attractive woman came up to talk with me as well. She offered to get us drinks and intypical male fashion I thought “man if I can ditch the quad I might have a chance with this woman”. As we got to talking I found his stories so amazing that by the time she got back with our drinks my thought had changed to, “ditch the woman, I want to hear more about this guy’s life” we became close friends. The book is about his life and is written by a woman that fell in love with him when he was in his early 40’s. She was beautiful, athletic, lived in Aspen and spent her days skiing, hiking, biking and met him by chance—she wanted to get good seats to watchevents at the 1996 Olympics in Atlanta and he needed an attendant—it turns out a friend of a friend introduced them via phone, sheflew out to LA to do a week-long-trial run to see if it would work. It didn’t, she said she couldn’t be his attendant because she had fallen in love with him—the feeling was mutual. The book describes their life, the highs and lows, world wide travel, Kirk meeting thePope and the Pope asking Kirk for his autograph—true story. I’m hoping somebody grabs hold of the book and turns it into a move, it would be fantastic! The book is available at Amazon. Here is a review I wrote about it: https://permobilus.com/lucky-break-a-love-story/ Bob Vogel On Mar 13, 2017, at 12:37 PM, Jim Lubin wrote: I made a list on IMDB Movie's featuring Quadriplegicshttp://www.imdb.com/list/ls051082586/ On Sat, Mar 11, 2017 at 10:32 AM, RONALD L PRACHT wrote: I watch a lot of tv but never came across this movie until I was on youtube last night. Its about three guys that get paralyzed and their stuggles to deal with it. Has Helen Hunt, Wesley snipes and others in the 1992 flick Waterdance. Pretty realistic for a movie. 1992 The Waterdance Ron | | | | || | | | || 1992 The Waterdance The Waterdance 1992 Movie | | | |
Re: [QUAD-L] Check out this article
I didn't need to read this to know I'll never be going into a nursing home… From: Lori Michaelson To: da...@immortaldesigns.co; quad-list Sent: Wednesday, March 22, 2017 2:28 PM Subject: Re: [QUAD-L] Check out this article Nursing homes are another death sentence for high level quads. They have no idea what our care requires let alone wound care, power chair care, lift care, & with ONE aide assigned to 25-27 patients & only 10 minutes of care to each. Worldwide. On Wed, Mar 22, 2017 at 2:37 PM, Danny Espinoza wrote: There was just a paralyzed person that was in the news for dying in prison https://www.youtube.com/watch? v=LAKUMYuLz-g&feature=share Our prison system in a lot of cases is a death sentence for us no matter how bad the crime and there are many cases like this. The cost is another concern he should be forced to wear a monitor/be on house arrest for the remaining time+probation IMHO but that’s just my 2 cents right or wrong. -Danny From: Lori Michaelson [mailto:lorilivin...@gmail.com ] Sent: Tuesday, March 21, 2017 9:12 PM To: greg ; quad-list Subject: Re: [QUAD-L] Check out this article I also factor in that the liberal media loves to word things that can make part of any story untrue and, with this article, something just doesn't jive. On Tue, Mar 21, 2017 at 7:45 PM, greg wrote: I understad both sides, but they should keep him locked up.Not a good guy. He might not rape again, but can still do harm.Otherwise it gives us quads no reason to not go do crime. I could tape a gun to my hand. Might not be able to pull the trigger, but they wont know that.Lets start a Quad-Squaud Gang. Bank Robers on wheels. Greg> http://www.dailymail.co.uk/ news/article-2234046/Court- orders-> release-repulsive- quadriplegic-rapist-prison- costs-care-him.html -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
Re: [QUAD-L] Check out this article
I don't think you understood my statement. From: RONALD L PRACHT To: Quad-list Post Sent: Wednesday, March 22, 2017 5:16 PM Subject: Re: [QUAD-L] Check out this article Never say never about a nursing home. All is takes is your family to die off. Money cant save you in most cases. The key is enjoy today. Ron On Wednesday, March 22, 2017 4:41 PM, Jeffrey Gaede wrote: I didn't need to read this to know I'll never be going into a nursing home… From: Lori Michaelson To: da...@immortaldesigns.co; quad-list Sent: Wednesday, March 22, 2017 2:28 PM Subject: Re: [QUAD-L] Check out this article Nursing homes are another death sentence for high level quads. They have no idea what our care requires let alone wound care, power chair care, lift care, & with ONE aide assigned to 25-27 patients & only 10 minutes of care to each. Worldwide. On Wed, Mar 22, 2017 at 2:37 PM, Danny Espinoza wrote: There was just a paralyzed person that was in the news for dying in prison https://www.youtube.com/watch? v=LAKUMYuLz-g&feature=share Our prison system in a lot of cases is a death sentence for us no matter how bad the crime and there are many cases like this. The cost is another concern he should be forced to wear a monitor/be on house arrest for the remaining time+probation IMHO but that’s just my 2 cents right or wrong. -Danny From: Lori Michaelson [mailto:lorilivin...@gmail.com ] Sent: Tuesday, March 21, 2017 9:12 PM To: greg ; quad-list Subject: Re: [QUAD-L] Check out this article I also factor in that the liberal media loves to word things that can make part of any story untrue and, with this article, something just doesn't jive. On Tue, Mar 21, 2017 at 7:45 PM, greg wrote: I understad both sides, but they should keep him locked up.Not a good guy. He might not rape again, but can still do harm.Otherwise it gives us quads no reason to not go do crime. I could tape a gun to my hand. Might not be able to pull the trigger, but they wont know that.Lets start a Quad-Squaud Gang. Bank Robers on wheels. Greg> http://www.dailymail.co.uk/ news/article-2234046/Court- orders-> release-repulsive- quadriplegic-rapist-prison- costs-care-him.html -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
Re: [QUAD-L] Check out this article
I still think you're misinterpreting my statement.
From: greg
To: quad-list@eskimo.com
Sent: Wednesday, March 22, 2017 7:57 PM
Subject: Re: [QUAD-L] Check out this article
#yiv7108898413 #yiv7108898413 --body{font-size:14pt;}#yiv7108898413
LI{display:list-item;margin:0.00in;}#yiv7108898413
p{display:block;margin:0.00in;}#yiv7108898413 body{}#yiv7108898413 Money might
e the only thing that can save you, family or not.As long as you can comunicate
and have money for around the clock help, you can hire help yourself.Family is
a huge safty net and comfort, but money gets help.Greg
> Never say never about a nursing home. All is takes is your family> to die
> off. Money cant save you in most cases. The key is enjoy> today.
Re: [QUAD-L] Night time drinking "water or juice" with a sp cath on a c2 quad.
I suggest a really hot woman who will do anything you ask.. If that can't be managed… I've heard on here that Amazon Echo can run Insteon products which can help you with turning on/off by voice. Voice-activated software,, like Dragon NaturallySpeaking – it's gone to some other name again – can help you actually operate the computer by voice. The window and blinds might have to be made electronic,, so I'm not sure the technical side of that part,, but if they were and it simply took an infrared or radio signal, whichever it is that Amazon uses, it would help.. I have a service dog. He can be trained to open Blinds, an windows if it was all setup right. If by "in upright position"you mean your wheelchair, I purchased a kitchen table – there's only two of us – from a store that provides furniture/equipment to restaurants,, and found a table at the right height for sitting a large cup with a long straw (easily found online) aand driving under part of the table until I could reach the straw. From: Danny Espinoza To: quad-list@eskimo.com Sent: Thursday, March 23, 2017 12:14 AM Subject: [QUAD-L] Night time drinking "water or juice" with a sp cath on a c2 quad. I get really thirsty sometimes at night and thus far have been struggling between calling my family for a drink or my window open/fan up. I’ve found a few home automation projects in the past buf I figure my quad list buddies/family would know best. So ir was 1> Able to drink something cold on my own while in upright position. 2> Ability to control my bed/window/blinds with sip’n’puff, my PC or my right arm to the wrist. -Danny ex network/security engineer
Re: [QUAD-L] Night time drinking "water or juice" with a sp cath on a c2 quad.
You can ask for anything you want…
From: Joan Anglin
To: 'Jeffrey Gaede' ; da...@immortaldesigns.co;
quad-list@eskimo.com
Sent: Thursday, March 23, 2017 10:20 AM
Subject: RE: [QUAD-L] Night time drinking "water or juice" with a sp cath on a
c2 quad.
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{}#yiv2344796429 Can I ask for a Thunder from Down Under then? I have an Echo
and yes it can do blinds if you have electric blind opener, and all sorts of
things with Insteon, TP-link and other things, some of them just plain fun.Here
are a couple of ideas for a drinking tube and other accessibility ideas.
https://www.instructables.com/howto/drink+tube+for+wheelchair/I have this,
bought it several years ago when it didn’t cost so much.
https://www.drink-aide.com/Or you could make it yourself for half the price.
https://www.grainger.com/category/ecatalog/N-1z0dtrh?analytics=altTermsI have a
hospital table with a hole drilled the size of my drink cup and place it by the
side of my bed and place the tube over my bed so that I can drink whenever I
want. We’ve replaced the cup a couple of times. I also have this out during
the day so that I can drive up and get a drink whenever. Have a great day
every one, Joan From: Jeffrey Gaede [mailto:jsga...@yahoo.com]
Sent: 23 March, 2017 3:57 AM
To: da...@immortaldesigns.co; quad-list@eskimo.com
Subject: Re: [QUAD-L] Night time drinking "water or juice" with a sp cath on a
c2 quad. I suggest a really hot woman who will do anything you ask.. If
that can't be managed… I've heard on here that Amazon Echo can run Insteon
products which can help you with turning on/off by voice. Voice-activated
software,, like Dragon NaturallySpeaking – it's gone to some other name again
– can help you actually operate the computer by voice. The window and blinds
might have to be made electronic,, so I'm not sure the technical side of that
part,, but if they were and it simply took an infrared or radio signal,
whichever it is that Amazon uses, it would help.. I have a service dog. He can
be trained to open Blinds, an windows if it was all setup right. If by "in
upright position"you mean your wheelchair, I purchased a kitchen table –
there's only two of us – from a store that provides furniture/equipment to
restaurants,, and found a table at the right height for sitting a large cup
with a long straw (easily found online) aand driving under part of the table
until I could reach the straw.From: Danny Espinoza
To: quad-list@eskimo.com
Sent: Thursday, March 23, 2017 12:14 AM
Subject: [QUAD-L] Night time drinking "water or juice" with a sp cath on a c2
quad. I get really thirsty sometimes at nig
Re: [QUAD-L] Night time drinking "water or juice" with a sp cath on a c2 quad.
what about getting air in your stomach
From: greg
To: quad-list@eskimo.com
Sent: Thursday, March 23, 2017 6:42 PM
Subject: Re: [QUAD-L] Night time drinking "water or juice" with a sp cath on a
c2 quad.
#yiv0631939180 #yiv0631939180 --body{font-size:14pt;}#yiv0631939180
LI{display:list-item;margin:0.00in;}#yiv0631939180
p{display:block;margin:0.00in;}#yiv0631939180 body{}#yiv0631939180 I use to do
2 things.Camelbac, a water backpack with drinking tube. Helps if you can turn
your head. But don't need to. Whats nice is you bite to drink, so no dripping.
And if you just lay it on bed, you only need the insert bladder. Many sizes.
I'm sure you can find
cheaperhttps://www.amazon.com/Camelbak-70-Antidote-Replacement-Reservoir/dp/B00437WWMA/ref=sr_1_1?ie=UTF8&qid=1490319530&sr=8-1&keywords=camelbak+insert
Also used IV tube as a straw. Tip, if drink is higher than you, blow water
back after drinking. Otherwise at best it drips, at worst it starts a siphon
and drains on you.Greg
> What level are you?>>> I get really thirsty sometimes at night and thus far
> have been>> struggling between calling my family for a drink or my window>>
> open/fan up. I’ve found a few home automation projects in the>> past buf I
> figure my quad list buddies/family would know best. So>> ir was 1> Able to
> drink something cold on my own while in upright>> position. 2> Ability to
> control my bed/window/blinds with>> sip’n’puff, my PC or my right arm to the
> wrist. -Danny>> ex network/security engineer
Re: [QUAD-L] Sleepy
I rarely feel rested for any decent length of time. I think it' a quad thing From: greg To: quad-list@eskimo.com Sent: Tuesday, March 28, 2017 7:30 PM Subject: [QUAD-L] Sleepy Ever have those days were no matter what you do you can not stay awake. It's like I took a box of sleeping pills. Fall asleep drinking coffee. Some days its so bad, I wonder if my time-release pain meds were cracked and it all came out at once. Greg
Re: [QUAD-L] employment a quadriplegic could do from the power chair
Oregon has a similar program.. I think Colorado has one, too. From: Robert Vogel To: Jim Lubin Cc: DEBRA DEW ; quad-list@eskimo.com Sent: Wednesday, March 29, 2017 12:53 PM Subject: Re: [QUAD-L] employment a quadriplegic could do from the power chair Hi Debra and all, Per Medicaid—if you manage to find work that pays you more than a couple hundred dollars a month,check to see if your state has a “Working While On Medicaid” program. I *think* most states have someform of “Buy-in” program. For instance in California, Medicaid is called Medi-Cal, and the program is calledthe Medi-Cal 250% Working Disabled Program. You must be disabled, not exceed the cash and property limits,however you can make up to $56K a year and still keep Medi-Cal if you work. There is a monthly payment scaleyou buy the Medicaid, it starts at $20.00 a month if you are making *around* $1600 or less, and the more you makethe more your monthly payment is. Best of luck on finding income. I do know that blogging has become popular, and if you find your voice—one that others are interested in—you may beable to earn some money blogging for a company’s website. If you look up various companies in the SCI world you willsee they have a blog—for instance Easy Stand has a blog, and if you look the other companies, quite a few have blogsto inform and attract potential clients. Bob V On Mar 29, 2017, at 10:19 AM, Jim Lubin wrote: This is something that might work for you https://www.upwork.com/ On Tue, Mar 28, 2017 at 6:17 PM, DEBRA DEW wrote: I'm trying to think of ways I could earn a small amount of income. I'm hoping you might be able to make suggestions. I have a journalism background in college and edited our college newspaper. I do enjoy writing.I can only earn a couple hundred dollars a month and still keep my Medicaid insurancei but even that was better than nothing. Any ideas you could throw at me I would appreciate. I don't seem to be very creative in this department.Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9 Formerly: Homeschooling mom of 9 and pvt. pilot Currently: Quadrapeligic due to advanced MS and living in a nursing home Phone: 561-588-4333 SC student 20yrs ROMANS 8:28B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
Re: Fwd: [QUAD-L] Sleepy
I take generic Valium for muscle spasms and was told years ago that it messes
with REM sleep. Anyone else know about that?
From: Bryce Willis
To: "quad-list@eskimo.com"
Sent: Wednesday, March 29, 2017 6:09 PM
Subject: Fwd: [QUAD-L] Sleepy
Do drinks like Ensure help? What about Vitamins? I know I have a lousy diet,
but if I eat very much my stomach hurts. I can eat a big hamburger and suffer
for days.
Sent from my iPad
Begin forwarded message:
Resent-From:
From: "Carrie Pinter"
Date: March 29, 2017 at 8:21:04 PM EDT
To: "'Larry Willis'" ,
Subject: RE: [QUAD-L] Sleepy
#yiv1432934735 #yiv1432934735 -- _filtered #yiv1432934735
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{}#yiv1432934735 Yeah, it’s probably safe to say that generally, quads do not
get restful sleep at night, which affects everything else, physically,
mentally, and ultimately, emotionally. From: Larry Willis
[mailto:lwillis82...@gmail.com]
Sent: Wednesday, March 29, 2017 12:43 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Sleepy Same here. I stay tired. Some days worse than
others.
Sent from my iPad
Begin forwarded message:
Resent-From: quad-list@eskimo.com
From: Jeffrey Gaede
Date: March 28, 2017 at 10:34:50 PM EDT
To: greg , "quad-list@eskimo.com"
Subject: Re: [QUAD-L] Sleepy
Reply-To: Jeffrey Gaede
I rarely feel rested for any decent length of time. I think it' a quad thing
From: greg
To: quad-list@eskimo.com
Sent: Tuesday, March 28, 2017 7:30 PM
Subject: [QUAD-L] Sleepy Ever have those days were no matter what you do you
can not stay awake. It's like I took a box of sleeping pills. Fall asleep
drinking coffee. Some days its so bad, I wonder if my time-release pain meds
were cracked and it all came out at once. Greg
Re: [QUAD-L] employment a quadriplegic could do from the power chair
Thank you, Lisette.
From: Lissette Whitehead
To: Robert Vogel ; Jim Lubin ; Jeffrey
Gaede
Cc: DEBRA DEW ; "quad-list@eskimo.com"
Sent: Wednesday, March 29, 2017 7:52 PM
Subject: Re: [QUAD-L] employment a quadriplegic could do from the power chair
#yiv5982875325 #yiv5982875325 -- P
{margin-top:0;margin-bottom:0;}#yiv5982875325 There is a website called
Freelancer.com, you create your profile with your experience and skills then
you apply for jobs. There are many writing jobs and many other options. Some
jobs pay pretty good. Check it out. Online surveys are another option but don't
pay that good.
Good luck!
Lissette Whitehead
416 W. San Ysidro Blvd.San Ysidro, CA 92173www.lwgripgloves.com
From: Jeffrey Gaede
Sent: Wednesday, March 29, 2017 3:52 PM
To: Robert Vogel; Jim Lubin
Cc: DEBRA DEW; quad-list@eskimo.com
Subject: Re: [QUAD-L] employment a quadriplegic could do from the power chair
Oregon has a similar program.. I think Colorado has one, too.
From: Robert Vogel
To: Jim Lubin
Cc: DEBRA DEW ; quad-list@eskimo.com
Sent: Wednesday, March 29, 2017 12:53 PM
Subject: Re: [QUAD-L] employment a quadriplegic could do from the power chair
Hi Debra and all,
Per Medicaid—if you manage to find work that pays you more than a couple
hundred dollars a month,check to see if your state has a “Working While On
Medicaid” program. I *think* most states have someform of “Buy-in” program.
For instance in California, Medicaid is called Medi-Cal, and the program is
calledthe Medi-Cal 250% Working Disabled Program. You must be disabled, not
exceed the cash and property limits,however you can make up to $56K a year and
still keep Medi-Cal if you work. There is a monthly payment scaleyou buy the
Medicaid, it starts at $20.00 a month if you are making *around* $1600 or less,
and the more you makethe more your monthly payment is. Best of luck on finding
income.
I do know that blogging has become popular, and if you find your voice—one that
others are interested in—you may beable to earn some money blogging for a
company’s website. If you look up various companies in the SCI world you
willsee they have a blog—for instance Easy Stand has a blog, and if you look
the other companies, quite a few have blogsto inform and attract potential
clients.
Bob V
On Mar 29, 2017, at 10:19 AM, Jim Lubin wrote:
This is something that might work for you https://www.upwork.com/
On Tue, Mar 28, 2017 at 6:17 PM, DEBRA DEW wrote:
I'm trying to think of ways I could earn a small amount of income. I'm hoping
you might be able to make suggestions. I have a journalism background in
college and edited our college newspaper. I do enjoy writing.I can only earn a
couple hundred dollars a month and still keep my Medicaid insurancei but even
that was better than nothing.
Any ideas you could throw at me I would appreciate. I don't seem to be very
creative in this department.Debra Scruggs-Scruggs phalanx-dragon slayers
-PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs
ROMANS 8:28B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
Re: Fwd: [QUAD-L] Getting Old
I feel like I've been pretty blessed when I hear what you guys have been through; what you are currently going through. I used to wonder a lot about phantom pain. I didn't know if I was actually feeling what you're feeling and I have learned long ago to somehow just ignore what was taking place or that maybe I'm just not feeling what you are feeling. I am 38 years post injury and I can stop at any moment in the day and think about what I'm feeling throughout the paralyzed portion of my body. I can feel, at this moment, an intense tingling in my left calf, it feels like bumblebees living throughout my left leg, I've got this weird numb kind of hurt in my right leg, my gut and/or abdomen is just uncomfortable, both my feet and toes feel weird at the moment, with a somewhat intense tingling feeling. I could go on and on but I have no idea if I learned long ago to just ignore this for the most part and deal with life or if you guys are feeling something completely different. I've started having this "restless legs" situation just over the past couple months. I think it's actually been going on longer but it's gotten to the point where it causes dysreflexia, so that's not good. But I've been having one of my attendants exercise them some before she leaves and it helps. It didn't help much last night but it's been helping. I've got the same itchy scalp problem. In fact I've even got a couple small scabs on the back of my head where I rubbed it raw at times. I really try to resist but obviously I haven't tried hard enough. I don't know, Dudes. Obviously, getting older affects everyone, paralyzed or not. And I agree that those first number of years were much easier in some ways and yet I went through a whole lot of learning the hard way about some things that I know to avoid now. No one said it was going to be easy, but you would think being paralyzed was enough and from there you could at least not be in pain, deal with sores, just be relaxed instead of stressed and not knowing which way to turn with what's going on with your body. Nope. Just doesn't work that way. For those of us who choose to live after becoming paralyzed, it's a hard road. But we must be getting something out of it to put up with all this crap! Jeff From: Bryce Willis To: "quad-list@eskimo.com" Sent: Thursday, April 6, 2017 6:42 AM Subject: Fwd: [QUAD-L] Getting Old Yep,I can identify with you guys. I have that same knife in my shoulder. My legs are so stiff and spastic I feel like I am planted in concrete. My stomach hurts like the devil every time I eat. And finally, burning mouth syndrome makes simple eating an ordeal. Oh, let's not forget the pressure sores on my hip and butt. I am just tired and wore out. L.Willis, age65, 46 years post. Sent from my iPad Begin forwarded message: Resent-From: From: greg Date: April 5, 2017 at 11:50:58 PM EDT To: Subject: [QUAD-L] Getting Old Yeah, I'm going on 35 years as a quad. The last 10 have gotten worse with pain, tightness, etc. And sometimes it's the stupid little things that make life harder. My head itching for one. I just got a pet glove brush, I'm cutting it out and Velcro on my headrest. Can't get the top of my head which is the worst, but the sides itch too. My “Phantom” pains on my butt are driving me nutz. My shoulder is my #1 pain now. After every test possible, still can't find the knife I know is stuck in there somewhere. I think I have a Gremlin playing games with a knife. He comes and goes, leaving no evidence. Xray, MRI, CAT-Scan, Nerve Test, Gallstones, Thyroid. Some days I just hold my arm and rock. Other days you can poke and prod and its perfect. Moving to AZ and “Bagging” my bowel routine are the 2 best things I ever did to help issues. Greg ---Yep, Greg all this weird stuff is part of a quads life I thinkI'm going on twenty years as a quad, the 1st 10 years were much better for me, as I age-i'm now 60 things have slowly seemed to get worse and this rainy up and down temperatures here in Missouri cause me even more pains. I have a Syrinx and diabetes also that only makes matters worseI usually do much better in Spring and Summer as long as i don't get too over-heated then. Dan H***
Re: [QUAD-L] Things got interesting today
Hell, Ron. You just need to start doing what you need to do to stay healthy. Easy to blame "people" when you aren't willing to do what's necessary. I only know I can say this kind of stuff because I've done the same things many times and blamed many others when I know it starts with me. It's tough. I know. But it starts with you. If only talking with someone in the know: a caseworker, your doctor, anyone, you never know what's out there until you look. I care, Jeff From: RONALD L PRACHT To: Quad-list Post Sent: Sunday, April 9, 2017 12:16 AM Subject: [QUAD-L] Things got interesting today I was almost in trouble today people. I got ready to attach my handcycle and headed out as normal. Made it just over a mile and dysreflexia started in with a combination of the sun and my blood pressure started creeping up like a monster. For some reason since I take pain pills a small amount of urine 300cc turns my body dysreflexic and needs to catherize immediately. I turned around and started home but as soon as I peddled up the hill my vision was going a bit. Luckily I finally made it to my moms garage and took the handcycle off and tried to catherize in a urine bottle right then and there. As soon as the urine started coming out it got better, then I splashed some water all over my head. It reminded me of that story of the quad in the power chair that went to the park on a 95 plus day and got stuck I the sand. The guy was found dead face down in the sand a few hours later. What makes these challenges as a quad even tougher is people...even family don't get it at all. They think you are making it up for fun or something. Its starting to suck with standard catherizations, especially getting out of bed every few hours during the night to cath. I wish I had a nurse in the family or something so I could attach a bag during the night at least but I guess Im not tough enough and need to stop whining. Ron
Re: [QUAD-L] 44th Anniversary
It'll be 38 post for me on April 21. Congrats, Bobbie. It's most definitely an accomplishment… Jeff From: RONALD L PRACHT To: Quad-list Post Sent: Saturday, April 15, 2017 6:57 PM Subject: Re: [QUAD-L] 44th Anniversary Your a tough woman bobbie. You could write several books on your adventures and life experiences. I have always enjoyed your posts on the list. I don't care for holidays much since quadom, but we do what we can. Keep on rolling for your 50th. Be sure to give Pete a big hug for him being a part of your big story. Ron On Saturday, April 15, 2017 8:39 PM, Bobbie Humphreys wrote: April 17th will be 44 years since I flew over the handle bars of a 250 Kawalski motorcycle 🏍 I just now tried to call 3 friends, just to talk, but no one answered. So I decide to contact my peps. I'm feeling blue this year for some reason, most likely because I've been stuck in bed with a minor wound. I'll be getting up Easter Day at least. Pete's brother, Jim, is coming over ... we're the same age and always have a blast. Have a great day everyone! Bobbie "Be the change you want to see in the world". Gandhi
Re: [QUAD-L] Would this enable a person to use a cell phone completely hands-...
Here's what really sucks for me. I look at the nobuttonsheadset and I don't like having something stuck on my ear until someone removes it. Plus, if you activate the phone by running it past a magnet that's about one inch away, then how do you avoid having it pass across that same magnet from time to time, and what happens when it does? And a lot of these phones are set up to run by voice anyway, so is this headset a glorified Bluetooth simply because it can turn the phone on? Then I have some similar issues with the Sesame Phone. I was able to try one out. Seemed to work okay but I'm not sure how well it would work over the long run. I have concerns about it getting wet because it does rain from time to time. And if you cover it with something will that affect your head movement and operation of the phone? If you're moving it from wheelchair to use in bed, but have it covered in case of rain, how easily do you cover, uncover and change where it's positioned? All reasons that make me hesitate on either of these, but I'm paying for one voice over Internet phone and a second lan line. I may order the sesame phone because there is a 30 day trial period. At least I can find out if it's an option for getting rid of the other two phones. I wait much longer and the cost of the lan line doubles. I swear everything just goes up and up and up… Jeff From: "wheelch...@aol.com" To: poaj...@sbcglobal.net; n14...@hotmail.com; quad-list@eskimo.com Sent: Thursday, May 4, 2017 5:09 PM Subject: Re: [QUAD-L] Would this enable a person to use a cell phone completely hands-... One can also check with their respective State's Adaptive Equipment Agency-(sponsored by the March of Dimes) to try out devices, before you buy them. Best Wishes In a message dated 5/4/2017 12:58:08 P.M. Central Daylight Time, poaj...@sbcglobal.net writes: It certainly will not. It says right on the information you need to click. I think you have had several ideas sent your way in the past that would work for you. Here are two: http://nobuttonsheadset.com/ , https://www.cnet.com/news/touch-free-phone-disabled-app-quadriplegic-sesame-app-tech-enabled/, also you obviously use a computer, and you can put an app on it called Txtdrop http://download.cnet.com/webware/txtdrop/3260-20_4-6301392-1.html, to send text messages and it will reply on your computer. I hope this helps. From: DEBRA DEW [mailto:n14...@hotmail.com] Sent: 01 May, 2017 9:41 PM To: DEBRA DEW ; quad-list@eskimo.com Subject: [QUAD-L] Would this enable a person to use a cell phone completely hands-free by voice only? Please help me to ascertain if this would enable me to use a cell phone completely hands-free by voice only. Having a phone would give me a great deal of security, which I am currently in lack of, if I could have a cell phone to call for assistance with when I am in a bad situation.http://www.pcbyvoice.com/shop/clicktophone-disability-mobile/ Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9 Formerly: Homeschooling mom of 9 and pvt. pilot Currently: Quadrapeligic due to advanced MS and living in a nursing home Phone: 561-588-4333 SC student 20yrs ROMANS 8:28 B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
Re: [QUAD-L] Battery Drain?
Did you check the henway?
From: Nichole Rohling
To: 'greg' ; quad-list@eskimo.com
Sent: Thursday, May 11, 2017 12:58 PM
Subject: RE: [QUAD-L] Battery Drain?
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{}#yiv2119527924 I had the same problem last year beginning in March. The
batteries were replaced 4 times. After asking in May to replace anything
relating to charging the batteries the company finally replaced the charger (in
October, didn’t fix it) then battery boxes, the joystick and the 2-prong thing
that the battery box slides into on the chair in December. Haven’t had a
problem since (knock on wood). Best of luck, it is so dang frustrating Nicki
From: greg [mailto:g...@eskimo.com]
Sent: Wednesday, May 10, 2017 9:10 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Battery Drain? My batteries wont hold a charge. I can't go
more than a few streets now. Changed batteries, twice. Now waiting for a new
joystick. I'm hoping it's causing a power drain. Trying to fix it before I get
a new chair. Any ideas to have them look at or check?What can drain power so
fast? It says it's fully charged. Greg
Re: [QUAD-L] Who cares for the family caregivers?
If you have any, try nearby colleges, universities, training institutes From: Lori Michaelson To: Dave Krehbiel ; quad-list Sent: Friday, May 19, 2017 12:45 PM Subject: Re: [QUAD-L] Who cares for the family caregivers? If you don't qualify for extra help (a.k.a. Medicaid)... you're going to end up paying out of pocket. I had the best luck when I was living with my sister and brother-in-law by word-of-mouth but now, out here, I have a live-in caregiver (no one else) so she needs help but before my husband passed away we were able to find girls at a local church and they were less expensive than home health aides that want to be paid $26/hour to be a glorified babysitter let alone do anything. I am on the SCIC caregiver listserv (and have been for many many many years) and the owner of the list is the mother of a Quad but I believe that she died and her son (the quad) died before her but I could be wrong. I still get their monthly list of what to do about this, that and the other thing so you could always subscribe to that.s...@yahoogroups.com Right now I am trying to find help for a few hours a week and I can't even find that anymore. People want jobs... so where are they? I have been trying for a long time. My husband and I were so happy that we could find those girls and we had caregivers every morning (4 visits from a home health agency aide was great) and we hired the other woman for the other three days. They would screw up with a lot of things and my husband had to step in to help with a transfer or whatever but it was better than nothing. We then hired those girls we found from the church. I am still trying to work through that again but I've been trying for months. Now it is hard as hell to find a home health agency since my only insurance is Medicare. Things were better five years ago but now it seems like you have to have Medicaid (in whatever state you are in) to qualify for the free help. Good luck! On Fri, May 19, 2017 at 5:51 AM, Dave Krehbiel wrote: I have been a quadriplegic for nearly 10 years now, and as a consequence, my wife has taken on the role of being a family caregiver for almost 10 years. She needs help. I have some ideas about setting up an organization to help support family caregivers, and right now I am doing some research. Are you aware of any helpful programs or resources or information or organization supporting family caregivers? Thanks so much, and take care, Dave KrehbielOlney, MD | | Virus-free. www.avast.com | -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
Re: [QUAD-L] Who cares for the family caregivers?
Seems like most universities/colleges have a employment program you might look
into
From: Gail Overton
To: Jeffrey Gaede ; Lori Michaelson
; Dave Krehbiel ; quad-list
Sent: Friday, May 19, 2017 1:05 PM
Subject: RE: [QUAD-L] Who cares for the family caregivers?
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{}#yiv8715922735 Yeah just had professors send an email to their PT/OT students
at a local college in Phoenix; no response From: Jeffrey Gaede
[mailto:jsga...@yahoo.com]
Sent: Friday, May 19, 2017 12:50 PM
To: Lori Michaelson; Dave Krehbiel; quad-list
Subject: Re: [QUAD-L] Who cares for the family caregivers? If you have any,
try nearby colleges, universities, training institutes From: Lori Michaelson
To: Dave Krehbiel ; quad-list
Sent: Friday, May 19, 2017 12:45 PM
Subject: Re: [QUAD-L] Who cares for the family caregivers? If you don't
qualify for extra help (a.k.a. Medicaid)... you're going to end up paying out
of pocket. I had the best luck when I was living with my sister and
brother-in-law by word-of-mouth but now, out here, I have a live-in caregiver
(no one else) so she needs help but before my husband passed away we were able
to find girls at a local church and they were less expensive than home health
aides that want to be paid $26/hour to be a glorified babysitter let alone do
anything. I am on the SCIC caregiver listserv (and have been for many many
many years) and the owner of the list is the mother of a Quad but I believe
that she died and her son (the quad) died before her but I could be wrong. I
still get their monthly list of what to do about this, that and the other thing
so you could always subscribe to that. s...@yahoogroups.com Right now I am
trying to find help for a few hours a week and I can't even find that anymore.
People want jobs... so where are they? I have been trying for a long time. My
husband and I were so happy that we could find those girls and we had
caregivers every morning (4 visits from a home health agency aide was great)
and we hired the other woman for the other three days. They would screw up with
a lot of things and my husband had to step in to help with a transfer or
whatever but it was better than nothing. We then hired those girls we found
from the church. I am still trying to work through that again but I've been
trying for months. Now it is hard as hell to find a home health agency since
my only insurance is Medicare. Things were better five years ago but now it
seems like you have to have Medicaid (in whatever state you are in) to qualify
for the free help. Good luck! On Fri, May 19, 2017 at 5:51 AM, Dave
Krehbiel wrote: I have been a quadriplegic for
nearly 10 years now, and as a consequence, my wife has taken on the role of
being a family caregiver for almost 10 years. She needs help. I have some
ideas about setting up an organization to help support family caregivers, and
right now I am doing some research. Are you aware of any helpful programs or
resources or information or organization supporting family caregivers? Thanks
so much, and take care, Dave Krehbiel Olney, MD
| | Virus-free.www.avast.com |
-- "Petting, scratching and cuddling a dog could be soothing to the mind
and heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz
Re: [QUAD-L] Help for caregivers and outside just the golden rule...
Have you ever tried advertising in the newspaper, Lori. Seems like I tried that once and it worked. I mean there are people out there but it's just a matter of finding them. Keep pushing on… From: Lori Michaelson To: quad-list Sent: Monday, May 22, 2017 7:42 PM Subject: [QUAD-L] Help for caregivers and outside just the golden rule... http://health.usnews.com/health-care/for-better/articles/2017-05-19/how-caregivers-can-find-relief-beyond-the-golden-rule?int=health-care-rec While I can empathize with all the caregivers out there... I have never seen one article on help for those who need the help and are in constant pain and need help around the clock and often times having their life stolen from them like I have over the last year and a half. Not one single article. I have been having the worst of time and hurt the most by medical caregivers over the years but I have not been in a position like I am now since my injury over 37 years ago. Back then at least I had my mother and my grandparents and they were the ones who had a shrewd best interest in my well-being. Actions will always speak louder than words and know that they are gone I have had to fend for myself. Unfortunately, I am not wealthy enough to pay for what caregivers now want just to become a glorified babysitter ($26/hour) but not poor enough to be eligible for any type of Medicaid. I have tried colleges, training programs, Independent Living Centers (I used to work for one), churches and so much more only to come up empty. This is the first time in my life I have not been able to find anyone. Hope and prayer is the only thing I can do. -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
Re: [QUAD-L] TDX5 Joystick?
I've only used rear wheel drive chairs. I like them, but I've never tried any other type so I'm not sure what opinion to give you. Jeff From: Randy Anderson To: Rose Chase Cc: greg ; wheelch...@aol.com; quad-list Sent: Friday, May 26, 2017 3:18 PM Subject: Re: [QUAD-L] TDX5 Joystick? 8:27 AM (7 hours ago) to greg, wheelchair, quad-list I am thinking of getting a new power chair. I like the mid-wheel Permobil. Have any tried a rear wheel drive or front wheel drive? I live in a small house so do not have a lot of room to turn etc. What is the better chair for a small area? Thanks for any help. Rose Hello Rose About a year and a half ago I got a Permobile F5 VS (vertical standing) front-wheel-drive power chair with sip and puff controls (because it is a standing chair there is no other option). Personally, I've had a fair amount of mechanical issues with it, but that's another story. As I understand it is a new model for them, and they're working out the kinks. Well it's been slow my wheelchair provider and Permobile have been and are still working on it. With no additional charges from either company. In the past I've had Invacare's, first one was real wheel second one was mid-wheel. I much preferred the mid-wheel in every way, handling, traction/going over stuff, tight spots/areas etc. The front-wheel-drive that I presently have now goes over stuff better than anything I've had. I think probably because there is no front wheels except the drive wheels, so the drive wheels don't have push the smaller wheels over first in the drive wheels being bigger tend to climb over things better. If you happen to look at a VS on their website there are wheels in front but they do not go down to floor level until you go into the standing option, for stability. On my VS I believe the backend may stick out further than a regular front-wheel-drive (you could check their website). Because the backend is out so far you really have to watch the cornering because it likes to run into everything, corners, chairs, cars, you name it. However and take corners of front-wheel-drive works differently than the mid-wheel. It turns sharp enough but instead of swinging wide to take the turn you come in close and take a sharp turn. Say, you are going down the hall of the house and the bathroom door was on the left, you would stay close to the left wall and then take pretty much of 90° turn. But if you don't get close enough to the left wall your backend hits into the right wall ( think of a woman with a BIG bustle on her dress). With that in mind, say you drive up along the kitchen counter on your right side close enough to reach or see something. When you go to leave the counter and try to go to the left, your backend likes to run into the kitchen counter that you're trying to get away from. With my front-wheel-drive I had to get used to the backend feeling kind of squirrely/snaky at higher speeds. My Permobile and I've heard of others has a nice backrest with nice support of back and sides, but as with most chairs you have to get all the way back in the seat. I would suggest that if you like the mid-wheel or believe you would like it, I would go with that. But that's just one guys opinion. Good luck, Randy
Re: [QUAD-L] controlling the YouTube volume by voice question
knowbrainer From: DEBRA DEW To: "quad-list@eskimo.com" Sent: Friday, June 2, 2017 9:07 AM Subject: [QUAD-L] controlling the YouTube volume by voice question how to move the slider to control the volume on YouTube by voice to turn it up so I can hear the videos? Please tell me if you know of any places on the Internett where I could ask questions about Dragon NaturallySpeaking. The nuance website is horrible for troubleshooting and asking questions. I never got a proper answer out oof their technical support yet..
Re: [QUAD-L] Abdomen Pain
Anyone considering ulcer? From: greg To: quad-list@eskimo.com Sent: Saturday, June 3, 2017 7:41 PM Subject: [QUAD-L] Abdomen Pain I've been miserable for a few weeks now. First thought UTI, made a mistake and started my standby antibiotic before testing, but it kept getting worse. Went to Doc. Test was goofy because I started Cipro. Showed signs of UTI, but grew no cultures. Had abdomen xray to see if there was blockage, etc. Looked fine. Stayed on Cipro, but still bad after doses gone. Abdomen feels like its got a knife in there twisting. So off to the ER this morning. Full Cat-Scan with contrast. Everything fine. Changed cath 3 times in 2 weeks. Only thing thats ever caused this feeling has been… Cath not go in right… UTI, or taking some antibiotics. But this started before the meds. ER did another UTI test, tiny bit of germs, but normal for a cath. But trying a new antibiotic while doing a culture again. When it felt this bad before, my abdomen would cramp causing terrible headaches and AD, but at least I don't have that. Tried different pain meds and didn't dent it. Gad meds either. Any ideas? I guess off o Urologist this week for a scope. Greg
Re: [QUAD-L] Why do Quads get light headed after eating? Do you?
If your breathing and/or cardiovascular system has been affected, diminished
due to your disability, then it happened because you aren't breathing while
eating. Try eating more slowly or take a couple bites and then take a break or
eat while you are tipped back.
From: Raymond Kelly
To: x quad-list
Sent: Wednesday, June 14, 2017 2:07 PM
Subject: FW: [QUAD-L] Why do Quads get light headed after eating? Do you?
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{}#yiv3161682657 I don't know how common it is for quads to get lightheaded
while eating, but I do have the problem occasionally. Usually when I'm eating
something that is really chewy. I find if I recline in the wheelchair for a
couple minutes my blood pressure goes back up and I can resume eating. That
probably isn't of any help to you but that is the only thing I have found
helps. RaymondC3/4 complete From: DAVID LEWIS [mailto:curlyle...@verizon.net]
Sent: Wednesday, June 14, 2017 4:20 PM
To: Quad-list Post
Subject: [QUAD-L] Why do Quads get light headed after eating? Do you? I have
been getting real light headed after eating . I mean after a few bites.It goes
away after i digest a little but its darn bothersome.Do you guys have have any
stories or remedies?
Thanks
Re: [QUAD-L] Why do Quads get light headed after eating? Do you?
But then I think, when you're in the situation and have to deal with this stuff your level of being able to tolerate such things becomes, well, your level of tolerance of life. No, the average AB hasn't dealt with this level and therefore their tolerance of such things isn't as high, but it's at the level of what they deal with in life. Adding just one more thing difficult of their life can really stress them out, even though it may not "compare" to what we deal with, just like adding something extra to what we deal with can then make life pretty stressful when beforehand it was tolerable. Viewing it this way helps me realize we're all in the same boat in a certain sense, if that makes any sense… Jeff From: Bobbie Humphreys To: DAVID LEWIS Cc: Quad-list Post Sent: Wednesday, June 14, 2017 6:41 PM Subject: Re: [QUAD-L] Why do Quads get light headed after eating? Do you? I can't believe all the different "things" we all go through. AB's could never comprehend all the crap we endure.Bobbie "Be the change you want to see in the world". Gandhi On Jun 14, 2017, at 4:19 PM, DAVID LEWIS wrote: I have been getting real light headed after eating . I mean after a few bites.It goes away after i digest a little but its darn bothersome.Do you guys have have any stories or remedies? Thanks
Re: [QUAD-L] I've Learned A Difficult Health Lesson These Past Few Days
I don't necessarily remember to drink as much water as I should, either. I tell my personal attendants to offer it to me often and I'll drink just because. Works for me. Jeff From: Carolyn Boyles To: quad-list@eskimo.com Sent: Saturday, June 17, 2017 5:22 PM Subject: [QUAD-L] I've Learned A Difficult Health Lesson These Past Few Days Hi All, I have the problem I don't get thirsty, and with the brain injury, I'm not always good about remembering to drink water. I knew dehydration could cause low blood pressure, but never knew it could cause high blood pressure. So now I know why my blood pressure has been so high (not AD high), but much higher than it has ever been before. With the heat and humidity where I live, it's very easy to get dehydrated, even in an air-conditioned house. Hope all of you are doing well. Carolyn
Re: Fwd: [QUAD-L] Scoliosis
I'm kinda with Larry: deny it's happening, just like so many other things in my life. At least don't dwell on the issues… Jeff From: Larry Willis To: quad-list@eskimo.com Sent: Sunday, June 18, 2017 1:22 PM Subject: Fwd: [QUAD-L] Scoliosis Avoid mirrors and curse my fate. Larry WillisRetired and proud of it Begin forwarded message: Resent-From: quad-list@eskimo.com From: Bobbie Humphreys Date: June 17, 2017 at 3:12:48 PM EDT To: quad-list@eskimo.com Subject: [QUAD-L] Scoliosis When I'm sitting in my chair, I can fit a baseball ⚾️ between my body and the armrest, on my left side. On my right side I couldn't even fit a piece of paper 📝. Of course, as the day progresses, so dose the pain in my back ... after only 5-7 hours. I went to brace clinic about 8 years ago, at Kessler, and the Doctor 👨⚕️ just took one ☝️ look 👀 at me and said "What are you doing here"? I told her about my my scoliosis. "I can see that, I'm not blind." She says I told her that my goal was to try to prevent the scoliosis from getting worse. "It's not that bad." And that was it What do you guys do about your scoliosis besides braces on your body or chair? Bobbie "Be the change you want to see in the world". Gandhi
Re: [QUAD-L] New Chair
I think that's BS. Go to the Invacare site. Last time I went there they were fine. It may take more to get what you want but get what you want. I didn't. I listened to a specific individual who steered me away from Invacare, even though my last two chairs were Invacare and I loved them. Don't settle. Do research. From: Nichole Rohling To: quad-list@eskimo.com Sent: Monday, June 19, 2017 9:50 AM Subject: [QUAD-L] New Chair Need your opinions and input please I have been injured almost 19 years (Thought it was 20 but I was wrong) and I am getting ready to get a new chair.This will be my 3rd chair and and my 1st two were Invacare Action Arrow Storms. They are no longer making this chair LI hate change! I went to an evaluation appointment and was told the chair I want (Invacare Torque 3) is considered a Group 4 chairAnd it would be difficult to get. They recommended a Permobil C350 or Quantum Rival. They told me that an Invacare plant had been shut down by the FDA ( I think that’s right) and their concern is if I got theInvacare they might quit making parts for it. I feel they probably make more $$ off the other two chairs (I just really have trust issues with them) . I have had incredible luck with my Invacare chairs, obviously since 2 have lasted 19 years. What would you recommend? Nicki
Re: [QUAD-L] New Chair
Someone is telling you that you have to prove that no other chair would work? I would want to see that in writing. From: Nichole Rohling To: 'Julie' ; quad-list@eskimo.com Sent: Monday, June 19, 2017 10:42 AM Subject: RE: [QUAD-L] New Chair They told me we would have to prove that no other chair would work for me? Did you have this same experience? Nicki From: Julie [mailto:ju...@jlar.org] Sent: Monday, June 19, 2017 12:03 PM To: 'Nichole Rohling' Subject: RE: [QUAD-L] New Chair Hi,I am getting a new Invacare Torque 3 Wednesday. They were halted for a couple years, so I waited but they are at least in operation now.JulieFrom: Nichole Rohling [mailto:zoocr...@windstream.net] Sent: Monday, June 19, 2017 12:40 PM To: quad-list@eskimo.com Subject: [QUAD-L] New Chair Need your opinions and input please I have been injured almost 19 years (Thought it was 20 but I was wrong) and I am getting ready to get a new chair.This will be my 3rd chair and and my 1st two were Invacare Action Arrow Storms. They are no longer making this chair LI hate change! I went to an evaluation appointment and was told the chair I want (Invacare Torque 3) is considered a Group 4 chairAnd it would be difficult to get. They recommended a Permobil C350 or Quantum Rival. They told me that an Invacare plant had been shut down by the FDA ( I think that’s right) and their concern is if I got theInvacare they might quit making parts for it. I feel they probably make more $$ off the other two chairs (I just really have trust issues with them) . I have had incredible luck with my Invacare chairs, obviously since 2 have lasted 19 years. What would you recommend? Nicki
Re: [QUAD-L] New Chair
If you get frustrated with everything, just keep telling yourself that you will
be sitting in whatever chair you choose for the next who knows how many years…
And it will essentially have been your choice.
From: Nichole Rohling
To: 'Jeffrey Gaede' ; quad-list@eskimo.com
Sent: Monday, June 19, 2017 11:11 AM
Subject: RE: [QUAD-L] New Chair
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1.0in;}#yiv0252274589 div.yiv0252274589WordSection1 {}#yiv0252274589 Thank you
for your input!! I called Invacare last fall so looks like I’ll be calling
again. I know my vendor hasAn issue w/ Invacare because they started shipping
parts orders together instead of separated. Nicki From: Jeffrey Gaede
[mailto:jsga...@yahoo.com]
Sent: Monday, June 19, 2017 12:13 PM
To: Nichole Rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair I think that's BS. Go to the Invacare site.
Last time I went there they were fine. It may take more to get what you want
but get what you want. I didn't. I listened to a specific individual who
steered me away from Invacare, even though my last two chairs were Invacare and
I loved them. Don't settle. Do research. From: Nichole Rohling
To: quad-list@eskimo.com
Sent: Monday, June 19, 2017 9:50 AM
Subject: [QUAD-L] New Chair Need your opinions and input please I have been
injured almost 19 years (Thought it was 20 but I was wrong) and I am getting
ready to get a new chair.This will be my 3rd chair and and my 1st two were
Invacare Action Arrow Storms. They are no longer making this chair LI hate
change! I went to an evaluation appointment and was told the chair I want
(Invacare Torque 3) is considered a Group 4 chairAnd it would be difficult to
get. They recommended a Permobil C350 or Quantum Rival. They told me that an
Invacare plant had been shut down by the FDA ( I think that’s right) and their
concern is if I got theInvacare they might quit making parts for it. I feel
they probably make more $$ off the other two chairs (I just really have trust
issues with them) . I have had incredible luck with my Invacare chairs,
obviously since 2 have lasted 19 years. What would you recommend? Nicki
Re: [QUAD-L] New Chair
Like I was saying earlier, you have to basically live in the chair for who
knows how many years. You should be making that choice. I'm in a Pride chair
now, after two Invacares. If I hadn't been steered away from Invacare, that's
what I would have. I don't like this Pride chair. Would I be happier in an
Invacare? I don't know but it would've been completely my decision without any
steering by others.
From: Nichole Rohling
To: 'Jeffrey Gaede' ; quad-list@eskimo.com
Sent: Monday, June 19, 2017 1:47 PM
Subject: RE: [QUAD-L] New Chair
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they said it would take longer to get the chair.Nicki From: Jeffrey Gaede
[mailto:jsga...@yahoo.com]
Sent: Monday, June 19, 2017 12:57 PM
To: Nichole Rohling; 'Julie'; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Chair Someone is telling you that you have to prove
that no other chair would work? I would want to see that in writing. From:
Nichole Rohling
To: 'Julie' ; quad-list@eskimo.com
Sent: Monday, June 19, 2017 10:42 AM
Subject: RE: [QUAD-L] New Chair They told me we would have to prove that no
other chair would work for me? Did you have this same experience? Nicki From:
Julie [mailto:ju...@jlar.org]
Sent: Monday, June 19, 2017 12:03 PM
To: 'Nichole Rohling'
Subject: RE: [QUAD-L] New Chair Hi,I am getting a new Invacare Torque 3
Wednesday. They were halted for a couple years, so I waited but they are at
least in operation now.JulieFrom: Nichole Rohling
[mailto:zoocr...@windstream.net]
Sent: Monday, June 19, 2017 12:40 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] New Chair Need your opinions and input please I have been
Re: [QUAD-L] Pressure sore on foot, suggestions?
As much air as possible and zero pressure.
From: Ron M Pracht
To: Quad-list Post
Sent: Tuesday, June 20, 2017 8:05 PM
Subject: Re: [QUAD-L] Pressure sore on foot, suggestions?
Its gone from a silver dollar size to a dime. My mom says putting sugar on it
will work, but im not certain. I never really get air to it in fear of scraping
it on my footrest. The old skin is cut out as best we can. I know most normal
cuts like air now and then. Its a shame I don't really know how to improve my
circulation anymore since I had to quit swimming. I think better circulation
would have avoided it altogether. I took some old antibiotics I had left over
and had the biggest bowell accident known to man since the moon landing, lol.
quad 98
On Tuesday, June 20, 2017 5:55 PM, greg wrote:
#yiv8470615189 --body{font-size:14pt;}#yiv8470615189
LI{display:list-item;margin:0.00in;}#yiv8470615189
p{display:block;margin:0.00in;}#yiv8470615189 body{}#yiv8470615189 A lot
depends on how deep it is.Must be debrided now and then, cutting dead stuff
out.I'd wear a eggcrate boot and let it dry dry out
> I have a pressure sore on my left foot on the heel. Any tricks to> get it to
> heal faster? Would taking antibiotics by mouth help? Do> you need to air out
> at night or keep covered at all times?>>> Quad 98, Ron
Re: Fwd: [QUAD-L] Molded backs
I have a molded back seating system. I'm paralyzed from the shoulders down so it doesn't affect any intended movement and it's nice to not have separate lateral supports that you have to swing in and out. From: Bryce Willis To: "quad-list@eskimo.com" Sent: Saturday, July 8, 2017 6:04 PM Subject: Fwd: [QUAD-L] Molded backs The invacare chair I got last year has molded sides. These are lateral supports that keep me from falling sideways. They have made driving my van much easier. However, they are in the way for other things such as transferring, leaning over to pick something up, etc. Sent from my iPad Begin forwarded message: Resent-From: From: Bobbie Humphreys Date: July 8, 2017 at 4:16:49 PM EDT To: quad-list@eskimo.com Subject: [QUAD-L] Molded backs Has anybody ever gotten a molded back on their chair? Did it help you? I have an appointment to get one August 23rd because of my scoliosis. Bobbie "Be the change you want to see in the world". Gandhi
Re: [QUAD-L] New Chair ?
You know how when someone is in a car accident they often claim a neck injury, which is nondescript and difficult to pinpoint. You just have trouble sitting up all day in those chairs. You don't understand why, but it hurts and you have to go back to bed. Only the Invacare seems to allow for your sitting up all day. From: Nichole Rohling To: quad-list@eskimo.com Sent: Wednesday, July 19, 2017 11:58 AM Subject: [QUAD-L] New Chair ? Below is a previous message I sent the quadlist. I decided this morning I don’t even want to demo any chairs. The DME vendor is having problem getting two footrests instead of the platform plate for all 3 chairs. I’ve been in an Invacare Action Arrow Storm for 19 years. They no longer make this chair but the Torque 3 is the same chair, different motor. I called vendor to tell them to order the Invacare but they told me we have to provide reasons why the other chairs won’t work before the FDA will sign off on it (since Invacare is currently under Consent Decree with FDA). So they still want me to demo chairs and come up with reasons they won’t work. I am so frustrated. I know one deal breaker is the armrests because I have a bag that we attach to a particular spot on my armrest and I put my leg bag in it so it is hidden. Their suggestion is to put in on front of seat pan. That won’t work, not even gonna try it, what’s not broke doesn’t need fixed. Also, I believe by having the same base I won’t have to move e-z locks in the floor of my van where as if the other bases are different not only will I have to pay to have bolt added to chair but the expense of moving the bases. Anyone else want to help me come up with reasons why other chairs won’t work? My rear is the one that sits in it so why can’t I just pick what I freaking want? Nicki I’m getting my 3rd chair in 19 years. I have had the Invacare Action Arrow Storm for all 19 years. Invacare got in trouble with the FDA and are under a consent decree with them. My DME is really trying to steer me away from getting an Invacare chair. It would be a Torque 3. I am suppose to be testing it as well as a Permobil C350 and a Quantum Rival. The provider brought out the Quantum on Friday and it has a plate footrest (I have always had 2 footrest which allows me to straddle table posts at restaurants) I don’t even think my feet would stay on a center mounted foot plate. They were suppose to bring the Invacare first and the employee agreed he didn’t think my feet would stay on the plate. He even told me that the motors in the Rival go out but I didn’t hear that from him. The DME supplier is trying to get footrests for the demo chairs but said they can only get 1 side for the Invacare. Would love input on any of these chairs.
Re: Fwd: [QUAD-L] Fell Forward, bad time
I'm guessing we all have similar, multiple stories. I keep telling myself that this time will be the last time, whether because I'll be more careful or the results won't be positive, but, like you said, it's part of quadlife… From: Bryce Willis To: "quad-list@eskimo.com" Sent: Friday, July 21, 2017 1:36 PM Subject: Fwd: [QUAD-L] Fell Forward, bad time When my son was two, he and I were out tooling around in the neighbors backyard. It was about 90°. We were going at a pretty good clip when all of a sudden my front wheel found a pothole hiding beneath the grass. Like you my head was thrown between my knees. I could not get up nor yell. It scared my little son to death. It was a heck of a situation. Finally, he ran to the back door crying. My wife finally heard him and came looking for me. I was rescued at the last second. To be that hot, breathless, and helpless is something I never want to repeat again. Just another one of the hellish attributes of quadom. Thank God for my young son. Sent from my iPad Begin forwarded message: Resent-From: From: Larry Willis Date: July 21, 2017 at 09:27:25 EDT To: quad-list@eskimo.com Subject: Fwd: [QUAD-L] Fell Forward, bad time Whew, that was a close one, Greg! Let's not do that again, ok? The heat and AD together could have made for a very bad outcome. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: greg Date: July 20, 2017 at 21:55:19 EDT To: Subject: [QUAD-L] Fell Forward, bad time I was going out the back door and fell forward. Into my lap. Joystick jammed my shoulder, but kept me from going further forward. Outside, 100 degrees, record humidity. Hard to breath, overheated, etc. Pouring sweat from A.D. It was bad. I thought it was hours, but it was just over 1 hour. I had to dump cold water on my head, put ice packs on. No one could hear me. It was no fun. The thoughts that go though your head. Between the pain, overheating, breathing, etc. No more going without chest strap. Greg
Re: Fwd: [QUAD-L] Fell Forward, bad time
Gravity is our friend, concrete sucks… From: Carolyn Boyles To: quad-list@eskimo.com Sent: Friday, July 21, 2017 2:59 PM Subject: Re: Fwd: [QUAD-L] Fell Forward, bad time Gravity hates me. Carolyn
Re: [QUAD-L] Echo
Greg, why was the Harmony booster necessary? From: greg To: quad-list@eskimo.com Sent: Saturday, July 29, 2017 9:59 AM Subject: [QUAD-L] Echo The Echo is pretty cool. understands me better than my old SiCare and that's my recorded voice commands. My only issue is it seems you have to buy a new add-on piece every time you want it to do something new. The EchoHarmony HubHarmony Booster I understand having to buy the plug sockets or light switches, but the Echo should have that other stuff built in. And should be more specific in the description. I bought a switch for the ceiling fan. Said it works with the Harmony Hub. After installation, trying to go though set up, it says you need to order the Harmony Booster for it to work. Frustrating. Should say all this on the package. So you can order it and not have to wait. Greg
[QUAD-L] Wheelchair Draining Battery
Would anyone still have that post regarding all the alternate causes why a wheelchair battery gets drained, yet these issues aren't typically looked at by wheelchair companies? Jeff
Re: [QUAD-L] Echo
I keep hearing about Harmony Hub for TV, so now I'm wondering about this
Anymote. I'm starting out with an Insteon Hub, so I can operate some things in
my room but then I'll be moving to some kind of TV control, all through Amazon
Echo.
From: Joan Anglin
To: 'Jeffrey Gaede' ; 'greg' ;
quad-list@eskimo.com
Sent: Wednesday, August 2, 2017 8:26 AM
Subject: RE: [QUAD-L] Echo
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{}#yiv8496180219 I decided to go with Anymote for my TV and I am glad that I
did. I looked at Harmony, but because I do not have an elaborate sound system
it didn’t seem worth the money. Now I see that Dish works with Echo so imagine
that Direct TV will follow shortly. Love my Echo. From: Jeffrey Gaede
[mailto:jsga...@yahoo.com]
Sent: Tuesday, August 01, 2017 3:33 PM
To: greg ; quad-list@eskimo.com
Subject: Re: [QUAD-L] Echo Greg, why was the Harmony booster necessary? From:
greg
To: quad-list@eskimo.com
Sent: Saturday, July 29, 2017 9:59 AM
Subject: [QUAD-L] Echo The Echo is pretty cool. understands me better than my
old SiCare and that's my recorded voice commands. My only issue is it seems you
have to buy a new add-on piece every time you want it to do something new. The
EchoHarmony HubHarmony Booster I understand having to buy the plug sockets or
light switches, but the Echo should have that other stuff built in. And should
be more specific in the description. I bought a switch for the ceiling fan.
Said it works with the Harmony Hub. After installation, trying to go though set
up, it says you need to order the Harmony Booster for it to work. Frustrating.
Should say all this on the package. So you can order it and not have to wait.
Greg
Re: [QUAD-L] Wheelchair Draining Battery
Thanks, Greg. I was looking more for the post where someone provided possible
reasons, other than the obvious, for why a chair isn't getting the mileage it
should. The post contained other areas of a chair that could be drawing charge
from the battery, rather than normal, expected use.
From: greg
To: quad-list@eskimo.com
Sent: Wednesday, August 2, 2017 9:06 AM
Subject: Re: [QUAD-L] Wheelchair Draining Battery
#yiv9476831515 #yiv9476831515 --body{font-size:14pt;}#yiv9476831515
LI{display:list-item;margin:0.00in;}#yiv9476831515
p{display:block;margin:0.00in;}#yiv9476831515 body{}#yiv9476831515 I'd like it
too.My chair often feels like the auto breaks are on, or grabbing.Fully
charged, I'll be driving and the chair stops dead, I jurk forward.The joystick
flashes Recharge Battaries. No idea whats going on.Greg
> Would anyone still have that post regarding all the alternate> causes why a
> wheelchair battery gets drained, yet these issues> aren't typically looked at
> by wheelchair companies?>>> Jeff
Re: [QUAD-L] Wheelchair Draining Battery
I won't call these companies the names I would like to call these companies.
That's why I was looking for that paragraph describing other issues that can
drain batteries outside of what you'd normally expect. I wrote the Pride
Corporation – maker of my chair – and was going to ask them about these other
issues. Their response, without asking me anything, was that I needed to speak
with the company that works on my chair…Jeff
From: Nichole Rohling
To: 'greg' ; 'Jeffrey Gaede' ;
quad-list@eskimo.com
Sent: Wednesday, August 2, 2017 2:24 PM
Subject: RE: [QUAD-L] Wheelchair Draining Battery
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{}#yiv4158219559 Found two posts I made regarding batteries showing full but
couldn’t hardly go out of my house…….would say charge batteries when going over
a threshold or incline I had the same problem last year beginning in March.
The batteries were replaced 4 times. After asking in May to replace anything
relating to charging the batteries the company finally replaced the charger (in
October, didn’t fix it) then battery boxes, the joystick and the 2-prong thing
that the battery box slides into on the chair in December. Haven’t had a
problem since (knock on wood). Best of luck, it is so dang frustrating Nicki
Greg,I think we are in the same boat! I just had my 4th set of batteries put
in Monday since March. All of a sudden my chair was stopping saying “low
battery”. I would turn it off then on and go a few feet and repeat. Joystick
shows full battery charge. Woke up in March and my house smelled like rotten
eggs. I paid out of pocket for what they said were gel batteries from a battery
supplier because I had to have them that day. $352 worth. In June, same thing
with my chair stopping saying low battery but joystick shows full charge (I use
my chair very little). They swapped out batteries at no charge but said it had
to be my chair. DME company came out right after 4th of July and ordered new
batteries and new charger. Got them Sept 9, they said what I had was not true
gel cell . Last week, same thing, low battery and chair stopping even though
joystick shows full charge. We ordered new battery boxes, receptacles, joystick
and they warrantied my batteries but by the time parts get here these batteries
will be shot and I’ll have to pay out of pocket again. My chair is 8 yrs old
and new chair process is on hold until medicare covers parts. Soo
frustrated the DME company drug their feet on parts and really trying to
troubleshoot the problem. I asked in July to order anything it could possibly
be. I did call Invacare and they said DME company should have brought
programmer to see fault codes so I called them and asked that he please bring
it. Really didn’t tell much other than I’m having low batteries. I feel your
pain and good luck! Nicki From: greg [mailto:g...@eskimo.com]
Sent: Wednesday, August 2, 2017 11:06 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Wheelchair Draining Battery I'd like it too.My chair
often feels like the auto breaks are on, or grabbing.Fully charged, I'll be
driving and the chair stops dead, I jurk forward.The joystick flashes Recharge
Battaries. No idea whats going on.Greg> Would anyone still have that post
regarding all the alternate> causes why a wheelchair battery gets drained, yet
these issues> aren't typically looked at by wheelchair companies?> > > Jeff
Re: [QUAD-L] Wheelchair Draining Battery
Thanks, Wheel.
From: "wheelch...@aol.com"
To: jsga...@yahoo.com; zoocr...@windstream.net; g...@eskimo.com;
quad-list@eskimo.com
Sent: Wednesday, August 2, 2017 3:43 PM
Subject: Re: [QUAD-L] Wheelchair Draining Battery
Consider, you medical mobility electric chair, a very high liability item. For
that reason Pride Suggested that you return to the medical provider and have
them call Pride or Quantum Tech Service. Yes, I know its frustrating.
or you can email msm...@pridemobility.com with the serial number and
your provider and advise him of your issues and what you think could/might be
wrong. A dealer programmer can verify your theories. Mark, is a Manager in the
Quantum Div of Pride.Best Wishes In a message dated 8/2/2017 5:34:46 P.M.
Central Daylight Time, jsga...@yahoo.com writes:
I won't call these companies the names I would like to call these companies.
That's why I was looking for that paragraph describing other issues that can
drain batteries outside of what you'd normally expect. I wrote the Pride
Corporation – maker of my chair – and was going to ask them about these other
issues. Their response, without asking me anything, was that I needed to speak
with the company that works on my chair… Jeff
From: Nichole Rohling
To: 'greg' ; 'Jeffrey Gaede' ;
quad-list@eskimo.com
Sent: Wednesday, August 2, 2017 2:24 PM
Subject: RE: [QUAD-L] Wheelchair Draining Battery
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{}#yiv6740519273Found two posts I made regarding batteries showing full but
couldn’t hardly go out of my house…….would say charge batteries when going over
a threshold or incline I had the same problem last year beginning in March.
The batteries were replaced 4 times. After asking in May to replace anything
relating to charging the batteries the company finally replaced the charger (in
October, didn’t fix it) then battery boxes, the joystick and the 2-prong thing
that the battery box slides into on the chair in December. Haven’t had a
problem since (knock on wood). Best of luck, it is so dang frustrating
Nicki Greg, I think we are in the same boat! I just had my 4th set of
batteries put in Monday since March. All of a sudden my chair was stopping
saying “low battery”. I would turn it off then on and go a few feet and repeat.
Joystick shows full battery charge. Woke up in March and my house smelled like
rotten eggs. I paid out of pocket for what they said were gel batteries from a
battery supplier because I had to have them that day. $352 worth. In June, same
thing with my chair stopping saying low battery but joystick shows full charge
(I use my chair very little). They swapped out batteries at no charge but said
it had to be my chair. DME company came out right after 4th of July and ordered
new batteries and new charger. Got them Sept 9, they said what I had was not
true gel cell . Last week, same thing, low battery and chair stopping even
though joystick shows full charge. We ordered new battery boxes, receptacles,
joystick and they warrantied my batteries but by the time parts get here these
batteries will be shot and I’ll have to pay out of pocket again. My chair is 8
yrs old and new chair process is on hold until medicare covers parts.
Soo frustrated the DME company drug their feet on parts and really
trying to troubleshoot the problem. I asked in July to order anything it could
possibly be. I did call Invacare and they said DME company should have brought
programmer to see fault codes so I called them and asked that he please bring
it. Really didn’t tell much other than I’m having low batteries. I feel your
pain and good luck! Nicki From: greg [mailto:g...@eskimo.com]
Sent: Wednesday, August 2, 2017 11:06 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Wheelchair Draining Battery I'd like it too. My chair
often feels like the auto breaks are on, or grabbing. Fully charged, I'll be
driving and the chair stops dead, I jurk forward. The joystick fla
Re: [QUAD-L] Wheelchair Draining Battery
It's just very frustrating because I mentioned while at a seating clinic a week ago that I needed my anti-tip bars raised and a new gooseneck for my sip and puff chair. The anti-tip bars were adjusted at the seating clinic. Without even making an appointment, someone from my chair tech company showed up yesterday and, while telling me he had the gooseneck listed on his paperwork to be ordered, he checked the date of the batteries, which seemed to be working fine, but they know my insurance will pay for new ones, checked my tires, which also seem fine, but they'll probably order new ones because my insurance will pay, and I don't know what else he did because I was taking a break from working just to deal with all this stuff. I made the ultimate decision, but I was steered away from purchasing my third Invacare chair in a row. The chair they steered me towards? It turned out to have a major flaw and, instead of replacing it, I told them I didn't want that brand. Again, I let them steer me away from Invacare, and now I have a chair that's had its share of issues, still does, doesn't go as far as it should on a full charge, which I complained about early on, but they don't look at the things you are mentioning, Wheelchair. Instead, it's replace batteries, try different batteries if the replacements don't make a difference, and do everything – it seems – but what it really takes to make it work properly. The biggest issue, in my opinion, is they don't "live" in a wheelchair. I realize they have to make money but this is just kind of messed up… Jeff From: "wheelch...@aol.com" To: g...@eskimo.com; quad-list@eskimo.com Sent: Wednesday, August 2, 2017 4:01 PM Subject: Re: [QUAD-L] Wheelchair Draining Battery Without a certified tech, your chair is just a fancy, expensive, flashlight. Does not sound like your batteries are the issue, but rather are suffering the effects of a component failure. For example if the magnetic brakes have internal issues, each manufacturer requires that the motor assembly, which includes the magnetic brakes, motor and gearbox be replaced. Also when replacing a motor assembly, both motors are replaced for even movement of the chair. There is a lot more to it and I hope you find a certified tech.Best Wishes In a message dated 8/2/2017 11:06:29 A.M. Central Daylight Time, g...@eskimo.com writes: I'd like it too. My chair often feels like the auto breaks are on, or grabbing. Fully charged, I'll be driving and the chair stops dead, I jurk forward. The joystick flashes Recharge Battaries. No idea whats going on. Greg > Would anyone still have that post regarding all the alternate > causes why a > wheelchair battery gets drained, yet these issues > aren't typically looked > at by wheelchair companies? > > > Jeff
Re: [QUAD-L] Invacare more stuff
Will do, Wheelchair. Thanks From: "wheelch...@aol.com" To: lwillis82...@msn.com; quad-list@eskimo.com Sent: Wednesday, August 2, 2017 6:24 PM Subject: Re: [QUAD-L] Invacare more stuff Your wheelchair is still under factory warranty. Please consider calling them with the serial number of your chair. Once the issue is documented any repairs will be covered after the warranty. Call Customer Care and be prepared to voice your issue and concerns. Ask them if it is safe to use your chair until its repaired or reprogrammed. Don't wait one minute, call them tomorrow. Be nice and wait for them to reply. This could be an easy fix or complicated, requiring a certified field tech, maybe your provider.Please let me know what happens.Best Wishes In a message dated 8/2/2017 5:38:38 P.M. Central Daylight Time, lwillis82...@msn.com writes: Ok, here is another quandary.i have an 8 month old invacare storm. WHen I turn it off the screen says goodbye and nothing works. I have to break power to get it to reset. If I am alone and accidentally hit the off button, I am screwed. Strangely enough, my previous chair, a storm, did the very same thing. Never did figure it out.Anyone else have this problem? Let me clarify a bit. When I hit the off button, the screen stays lit but says goodbye. I turn it back on but the chair still won't do anything until I disconnect and reconnect the batteries. The switch must be on when I plug it back in. Mucho frustrating. Sent from my iPad
Re: [QUAD-L] Wheelchair Draining Battery
Keep up the fight
From: Nichole Rohling
To: 'Jeffrey Gaede' ; quad-list@eskimo.com
Sent: Thursday, August 3, 2017 8:42 AM
Subject: RE: [QUAD-L] Wheelchair Draining Battery
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My DME is doing their best to steer me away from my 3rd Invacare. NOT GOING TO
HAPPEN J .They came and picked up demo chairs last Wednesday and I had to make
a list of why the other 2 chairs wouldn’t work. It was a page long………haven’t
heard a word from them.Nicki From: Jeffrey Gaede [mailto:jsga...@yahoo.com]
Sent: Wednesday, August 2, 2017 8:26 PM
To: wheelch...@aol.com; g...@eskimo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Wheelchair Draining Battery It's just very frustrating
because I mentioned while at a seating clinic a week ago that I needed my
anti-tip bars raised and a new gooseneck for my sip and puff chair. The
anti-tip bars were adjusted at the seating clinic. Without even making an
appointment, someone from my chair tech company showed up yesterday and, while
telling me he had the gooseneck listed on his paperwork to be ordered, he
checked the date of the batteries, which seemed to be working fine, but they
know my insurance will pay for new ones, checked my tires, which also seem
fine, but they'll probably order new ones because my insurance will pay, and I
don't know what else he did because I was taking a break from working just to
deal with all this stuff. I made the ultimate decision, but I was steered
away from purchasing my third Invacare chair in a row. The chair they steered
me towards? It turned out to have a major flaw and, instead of replacing it, I
told them I didn't want that brand. Again, I let them steer me away from
Invacare, and now I have a chair that's had its share of issues, still does,
doesn't go as far as it should on a full charge, which I complained about early
on, but they don't look at the things you are mentioning, Wheelchair. Instead,
it's replace batteries, try different batteries if the replacements don't make
a difference, and do everything – it seems – but what it really takes to make
it work properly. The biggest issue, in my opinion, is they don't "live" in a
wheelchair. I realize they have to make money but this is just kind of messed
up… Jeff From: "wheelch...@aol.com"
To: g...@eskimo.com; quad-list@eskimo.com
Sent: Wednesday, August 2, 2017 4:01 PM
Subject: Re: [QUAD-L] Wheelchair Draining Battery Without a certified tech,
your chair is just a fancy, expensive, flashlight. Does not sound like your
batteries are the issue, but rather are suffering the effects of a component
failure. For example if the magnetic brakes have internal issues, each
manufacturer requires that the motor assembly, which includes the magnetic
brakes, motor and gearbox be replaced. Also when replacing a motor assembly,
both motors are replaced for even movement of the chair. There is a lot more
to it and I hope you find a certified tech.Best Wishes In a message dated
8/2/2017 11:06:29 A.M. Central Daylight Time, g...@eskimo.com writes:
I'd like it too.My chair often feels like the auto breaks are on, or
grabbing.Fully charged, I'll be driving and the chair stops dead, I jurk
forward.The joystick flashes Recharge Battaries. No idea whats going on.Greg>
Would anyone still have that post regarding all the alternate> causes why a
wheelchair battery gets drained, yet these issues> aren't typically looked at
by wheelchair companies?> > > Jeff
Re: [QUAD-L] New Chair Prob
BOUNDER POWER SEATING SYSTEMS | | | BOUNDER POWER SEATING SYSTEMS | | | From: greg To: quad-list@eskimo.com Sent: Thursday, August 3, 2017 12:22 PM Subject: [QUAD-L] New Chair Prob Just heard from my chair rep.They said you can not get seat raiser, legrest raiser, tilt, recline, and speed package all together. They said speed package or seat raiser, not both.Quantum Edge Z Anyone know of a chair that goes 7.5+, and seat raiser? ThxGreg
Re: Fwd: [QUAD-L] Movie
Excellent movie! In my opinion From: Bryce Willis To: "quad-list@eskimo.com" Sent: Tuesday, August 8, 2017 6:54 PM Subject: Fwd: [QUAD-L] Movie Rory O'Shea Was Here! It's on Netflix! Sent from my iPad Begin forwarded message: Resent-From: From: Larry Willis Date: August 8, 2017 at 9:48:04 PM EDT To: quad-list@eskimo.com Subject: [QUAD-L] Movie What is the movie about the young Irish lad who can only move one finger? He lives with a roommate that only he can understand. They have all kinds of crazy adventures together. It's a good one. Sent from my iPad
Re: [QUAD-L] Movie
I think you'll like it. If not, I think someone else suggested it From: Ron M Pracht To: Quad-list Post Sent: Wednesday, August 9, 2017 7:50 PM Subject: Re: [QUAD-L] Movie Im trusting you guys. I bought it for 4.01 shipped from ebay. Thanks Ron c7 st louis On Wednesday, August 9, 2017 7:04 PM, Carolyn Boyles wrote: My husband and I like Netflix online. It's like nine bucks a month. It's preinstalled on our TV also. Carolyn
Re: [QUAD-L] Implications of the Cures Act for Special Needs Trusts
The big question for me is if I use part of my income for one of these special needs trusts, is my income reduced so that I can meet my Medicaid requirements for assistance? From: Jim Lubin To: Quad-list Sent: Thursday, August 10, 2017 9:39 AM Subject: [QUAD-L] Implications of the Cures Act for Special Needs Trusts Implications of the Cures Act for Special Needs TrustsLast week, the Centers for Medicare & Medicaid Services (CMS) issued a State Medicaid Director Letter (SMDL) # 17-001 on the 21st Century Cures Act: Special Needs Trust. Section 5007 of the 21st Century Cures Act (the “Cures Act”), Pub. L. No. 114-255, supports the independence of individuals with disabilities by permitting them to set up a special needs trust on their own behalf, rather than having to rely on a third party to do so. Special needs trusts generally permit individuals living with disabilities who are under age 65 to set aside assets to meet their needs without impacting their eligibility for Medicaid. This letter provides guidance to states on the implications of section 5007 of the Cures Act, entitled “Fairness in Medicaid Supplemental Needs Trusts,” for individuals who have disabilities. For more information on the letter issued today click here: https://www.medicaid.gov/ federal-policy-guidance/ downloads/smd17001.pdf
Re: [QUAD-L] Itchy Scalp
I don't know if you are dealing with what I've dealt with, but don't scratch the itch! Not only does it get worse, but I doubt it will ever heal up properly because of all the time we spend in bed without moving around. At least that's my issue. From: greg To: quad-list@eskimo.com Sent: Friday, August 25, 2017 6:02 AM Subject: [QUAD-L] Itchy Scalp I have had such an itchy head, been driving me Crazy. I tried so many things. Some helped a bit, but only short term. I even cut my hair supper short. I know its more than 1 cause. The way I sleep seems to put a lot of pressure on my head and when I move my head, it makes my hair bend backwards. I wake-up with “Hurt Hair”. I also have a stupid cowlick in my hair, right in the back. An area where the hair grows in a different direction. Cutting it helped. Then there is just the itchy, flaking. Went to a 2nd Dermatologist and he said my flaking was yeast. Dandruff has a few causes and on people that are not real mobile, yeast can be one of them. I'm trying a new shampoo Rx only. Ketoconazole Shampoo 2% I think its really helping. I just hope it lasts. Greg
Fw: [QUAD-L] Food
I take a digestive enzyme and probiotics. They were "prescribed" by a naturopathic doctor. Talk to your doctor, but don't give up… From: Danny Hearn To: Bryce Willis ; "quad-list@eskimo.com" Sent: Monday, August 28, 2017 6:23 PM Subject: Re: [QUAD-L] Food When I'm eating that seems to happen to me at times, then I take a few big gulps of water or something and it gets better. Same here with the quad problems , seems there is always problems, pain and issues...but I have family also and hope to hang around for a couple more years if possible. Dan H.** On Monday, August 28, 2017 7:38 PM, Bryce Willis wrote: You guys ever feel like your food just stops at the top of your stomach ? Then it hurts and wants to come backup. I know my quadgut is probably the problem. So tiring. If I could in good conscience end thisquad life I would do it in a heartbeat. But got family and kids to consider. Larry Willis Sent from my iPad
Re: [QUAD-L] Food
I don't have/live the family around where I live but my philosophy towards
life/death has been that I'm going to live and fight until I decide it's over,
then it's over. I'm still fighting… I don't know what comes after this and I'm
not really looking to find out :-) Jeff
From: Joan Anglin
To: 'Jeffrey Gaede' ; 'Quad-list Post'
Sent: Tuesday, August 29, 2017 10:47 AM
Subject: RE: [QUAD-L] Food
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{}#yiv5876892276 I also use probiotics and benefiber. What works for me when I
get that yucky feeling at dinner is to take a couple of Tums and it goes away
right away.I’m not ready to give up, too many grandchildren to watch grow up.
Luckily I am quite healthy overall, and at our recent Reno high school 60 year
reunion I had less to complain about than many of my former schoolmates. So I
will count my blessings. Hope everyone has a beautiful day, and prayers for
those in the Huston area. From: Jeffrey Gaede [mailto:jsga...@yahoo.com]
Sent: Monday, August 28, 2017 7:36 PM
To: Quad-list Post
Subject: Fw: [QUAD-L] Food I take a digestive enzyme and probiotics. They
were "prescribed" by a naturopathic doctor. Talk to your doctor, but don't give
up… From: Danny Hearn
To: Bryce Willis ; "quad-list@eskimo.com"
Sent: Monday, August 28, 2017 6:23 PM
Subject: Re: [QUAD-L] Food When I'm eating that seems to happen to me at
times, then I take a few big gulps of water or something and it gets better.
Same here with the quad problems , seems there is always problems, pain and
issues...but I have family also and hope to hang around for a couple more years
if possible. Dan H.** On Monday, August 28, 2017 7:38 PM, Bryce Willis
wrote: You guys ever feel like your food just stops at
the top of your stomach ? Then it hurts and wants to come backup. I know my
quadgut is probably the problem. So tiring. If I could in good conscience end
thisquad life I would do it in a heartbeat. But got family and kids to
consider. Larry Willis Sent from my iPad
Re: [QUAD-L] Food
>From a distance? From: Bobbie Humphreys To: Carolyn Boyles Cc: quad-list@eskimo.com Sent: Tuesday, August 29, 2017 6:46 PM Subject: Re: [QUAD-L] Food Meditation cures stress, it is proven. I'll teach anybody who wants to learn. Bobbie "Be the change you want to see in the world". Gandhi > On Aug 29, 2017, at 9:34 PM, Carolyn Boyles wrote: > > The curse of reflux. Our bodies are under such high stress and so are we > emotionally. > > Carolyn >
Re: Fwd: [QUAD-L] Hello my friends I have a question
I can understand being uncomfortable with the headphones on your head, but has
he tried laying the headphones beside him, beside his years, to see if that
works.
From: Larry Willis
To: quad-list@eskimo.com
Sent: Sunday, September 3, 2017 4:48 PM
Subject: Fwd: [QUAD-L] Hello my friends I have a question
Sounds like he just needs a remote speaker to put beside him. Anyone tech savvy
could do it, I think.
Sent from my iPad
Begin forwarded message:
Resent-From: quad-list@eskimo.com
From: "Ismael Cavazos"
Date: September 3, 2017 at 12:34:42 PM EDT
To: "Blue"
Subject: [QUAD-L] Hello my friends I have a question
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Hello guys I have a friend of my that he is a quadriplegic he doesn't have any
movement of his arms since he is accident happened is not able to hear Barry
well I am trying to help him not able to hear the television barrel well I know
they are special devices they put on their years but he doesn't like to wear
them when he is at home he have to put the television buried out so he could
hear it they were another idea I told him about headphones but he doesn't feel
comfortable with their on but when he is in the hospital I don't know what you
call that device but anyway he able to hear the television very well bed side
call light when they put it on his side of his bed he's able to hear the
television very well I ask different questions to a different hospital quarried
to them they told be that device comes with the hospital bed where you could
hear the television on the side of the band I went to Google to look for it I
was not successful any ideas will be appreciated thank you and God bless you
have a nice day
[QUAD-L] Echo Calling
Whatever cell phone contains the Alexa App that set up your Echo is where your contacts for calling will exist. I am pretty sure they get imported into the Alexa App automatically. Having someone else load the Alexa App on their cell phone, combined with their name/number being in the Alexa App contact list that set up your Echo, should allow you to call that person's cell phone. I was able to call my attendant, who does not have an Echo, but did download the Alexa App, and it rang through to her cell phone, but she received some kind of microphone setting error that may be specific to her phone. Alexa Calling & Messaging - Amazon Official Site | | | | || | | | || Alexa Calling & Messaging - Amazon Official Site With Alexa you can use your Echo device to call or message anyone with a supported Echo device or the Alexa App ... | | | |
Re: [QUAD-L] Taxicabs for wheelchair users??? With an attendant? Info needed please
If public transit, buses etc., arrive at or nearby your location then they have
to also provide a paratransit vehicle, which should have a lift or ramp and get
you where you need to go and return again. Call them and schedule appointments
for the trip to and from.
From: Dave Krehbiel
To: 'DEBRA DEW' ; quad-list@eskimo.com
Sent: Saturday, September 9, 2017 7:53 AM
Subject: RE: [QUAD-L] Taxicabs for wheelchair users??? With an attendant? Info
needed please
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{}#yiv1998389404 Debra, where do you live? What city and state are you trying
to arrange transportation to? From: DEBRA DEW [mailto:n14...@hotmail.com]
Sent: Saturday, September 9, 2017 10:25 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Taxicabs for wheelchair users??? With an attendant? Info
needed please I desperately need to get to one appointment with vocational
rehabilitation, because they will purchase the $40,000 Permobil power chair
with a Puff and sip navigation system so I would not have to be in the bed 24
seven as I currently have been for years. They have a rule that without any
exceptions, a potential client must show up at their office for one initial
appointment. I have begged for someone from my family to provide
transportation for me to one appointment for quite a while now, and it is
become painfully obvious no one is going to step up to the plate and assist me
in this endeavor, so I'm asking you guys what can I do to hire somebody like a
taxi for wheelchair people and an attendant, because I'm paralyzed from the
neck down so I cannot possibly use my arms to wheel myself around to even get
into the building. I don't even know what to search for to find out how to do
this so please explain it to me as if I knew nothing, because I truly don't
know anything about this. Since my arms became paralyzed, I've only been out of
my room at the nursing home on Thanksgiving and Christmas when one of my
children would come take me home each year. And to sit in the horrible
wheelchair they provide for me at the nursing home, is so uncomfortable I cry
even though they line it with bed pillows underneath my bottom and back and
feet. And when I had my power chair, the chair was fully articulating and was
much more comfortable than being in bed. Whenever I needed to I could
reposition myself in the chair without having to wait for somebody to come
assist me, which is a constant dilemma in an understaffed nursing home. As an
aside, I need someone to come stretch my legs and arms every day to move them
because I get unbearable cramps which I did not get when I had a volunteer
coming to stretch me every day, but she had to go back north. Please advise me
as to how I could hire someone to do this or get someone from Medicaid to
provide this service for me. Debra Scruggs-Scruggs phalanx-dragon slayers
-PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs
ROMANS 8:28 B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
| | Virus-free. www.avast.com |
Re: [QUAD-L] Despair
Sorry to hear, Larry. My thoughts are with you at this moment. Jeff From: Nichole Rohling To: 'Larry Willis' ; quad-list@eskimo.com Sent: Tuesday, September 12, 2017 9:05 AM Subject: RE: [QUAD-L] Despair Larry, Prayers for Melissa and you. Nicki -Original Message- From: Larry Willis [mailto:lwillis82...@gmail.com] Sent: Monday, September 11, 2017 7:53 PM To: quad-list@eskimo.com Subject: [QUAD-L] Despair Guys, I am dealing with something that makes me want to close my eyes and not wake up. My dear wife Melissa is in the throes of serious heart failure. She is retaining so much fluid she can't breathe. She is in constant pain and has had to quit her job. The medical bills are ungodly and have forced us to file bankruptcy. If you have any prayers to spare, throw them my way. Lori, I keep thinking of you. I am at a loss. Sent from my iPad
Re: [QUAD-L] Broken leg..
I've had a similar break and broke it in a similar way. They put me in a removable boot both because it was a spiral fracture and they were concerned about potential pressure sores. I would pay attention to any signs that something is not right and that something could be pressure from somewhere. I've also had a cast on a broken bone before and everything went perfectly fine. Jeff From: BeeJ To: quad-list@eskimo.com Sent: Thursday, September 21, 2017 5:04 PM Subject: [QUAD-L] Broken leg.. So I broke my leg Last Friday Night turning around in the dark with my power chair. The toe of my boot caught on my bed and I twisted it and heard a pop. So now I have a cast up to my knee that I can't feel. Anyone on here have any experience dealing with a broken bone below your level of injury? I'm a little worried about what's going on inside that cast. -Bj
Re: [QUAD-L] What do you wear in rainy weather?
I just get wet
From: Bobbie Humphreys
To: Dave Krehbiel
Cc: quad-list@eskimo.com
Sent: Monday, October 2, 2017 2:06 PM
Subject: Re: [QUAD-L] What do you wear in rainy weather?
I've always used a poncho with a hood and I also carry a small towel in my van
so if it's raining ☔️ hard, I'll just lay the towel on my feet.I find an
umbrella 🌂 to be difficult to open, hold and close.Stay dry, Bobbie
"Be the change you want to see in the world". Gandhi
On Oct 2, 2017, at 4:32 PM, Dave Krehbiel wrote:
#yiv2448790894 #yiv2448790894 -- _filtered #yiv2448790894 {panose-1:2 4 5 3 5 4
6 3 2 4;} _filtered #yiv2448790894 {font-family:Calibri;panose-1:2 15 5 2 2 2 4
3 2 4;}#yiv2448790894 #yiv2448790894 p.yiv2448790894MsoNormal, #yiv2448790894
li.yiv2448790894MsoNormal, #yiv2448790894 div.yiv2448790894MsoNormal
{margin:0in;margin-bottom:.0001pt;font-size:11.0pt;}#yiv2448790894 a:link,
#yiv2448790894 span.yiv2448790894MsoHyperlink
{color:blue;text-decoration:underline;}#yiv2448790894 a:visited, #yiv2448790894
span.yiv2448790894MsoHyperlinkFollowed
{color:purple;text-decoration:underline;}#yiv2448790894
span.yiv2448790894EmailStyle17 {color:windowtext;}#yiv2448790894
.yiv2448790894MsoChpDefault {} _filtered #yiv2448790894 {margin:1.0in 1.0in
1.0in 1.0in;}#yiv2448790894 div.yiv2448790894WordSection1 {}#yiv2448790894 On a
couple of occasions, I've needed to go out in a bit of rain or drizzle. I'm
thinking about buying some rubber boots, and maybe a poncho or a number of
disposable ponchos. Made in the lecture piece of plastic or something to cover
my legs and keep them dry. How do you guys stay warm and dry? Thanks, and
take care, Dave KrehbielOlney, MD
| | Virus-free. www.avast.com |
Re: [QUAD-L] I hate this most about being a quad
You are ALIVE! As it's been said, it's a luxury not afforded everyone…
From: Ron M Pracht
To: Quad-list Post
Sent: Sunday, October 22, 2017 11:49 AM
Subject: Re: [QUAD-L] I hate this most about being a quad
I hate..
1)Sitting on a bowell chair for 2 hours thirsty unable to get up.2)Peeing on
myself and trying to get a cathe tube in for 30 minutes. 3)Being on pain pills
and dealing with side affects while family says "just quit you can feel your
body anyway"4)Wearing clothes that just slip on instead of blue jeans or
boots.5)Tired of getting judged by people b4they know anything about
me.6)Afraid of the future and how Im going to survive.
Ron c7 Wheelchairs nemesis
On Sunday, October 22, 2017 10:22 AM, greg wrote:
#yiv3392756309 --body{font-size:14pt;}#yiv3392756309
LI{display:list-item;margin:0.00in;}#yiv3392756309
p{display:block;margin:0.00in;}#yiv3392756309 body{}#yiv3392756309 I have about
10 things in my Top 3 depending on the day. Pain, Cold, Dependent on others,
Cold, Pain, Knowing I could fix something but cant, Dependent on a chair, Pain,
Cold, etc. Greg
Re: [QUAD-L] Re: [QUAD-L] Problems with Dragon NaturallySpeaking 13… I just had to reinstall 12.5
I've been using some form of "Dragon" since I believe it was called ViaVoice by IBM. Somewhere along the line they became DragonDictate, which was extremely stable, easy to use, and worked really well. I don't know how many times the product has been sold but eventually it became Dragon NaturallySpeaking (differently named under v15) and was tailored more for commercial than private use. That was the "downfall." But I work 40 hours a week without the use of my hands and need the product. If I eventually have to go to something completely different, I will, but until then I'll take my chances with "Dragon." Seems to me that a lot of the problems it has has to do with continuously upgraded computer software. For example, "Dragon" seems to work best with Internet Explorer, browser-wise, but I've found out, if accurate, that without Adobe Acrobat, I've had issues. I moved to Firefox but simply ran into other problems. Lately I've been using Chrome and it's been tolerable. With regards to Nuance's customer support, I won't use the kind of language I should. They suck and have for as long as I can remember. My hope is that the product gets sold to some company that cares as much about the product being used by individuals with disabilities as it does the commercial use of its product. Jeff From: Billy Lang To: DEBRA DEW Cc: quad-list Sent: Saturday, November 4, 2017 10:45 AM Subject: [QUAD-L] Re: [QUAD-L] Problems with Dragon NaturallySpeaking 13… I just had to reinstall 12.5 Guys, I’m a little late answering this post because I was hospitalized for a while. I’m better now so here goes:Nuance as the company has turned the corner from being the premier voice software to becoming a mega marketing platform. None of the speech products are up to production code. Personally I am using voice for Mac professional and over the last 6 months I’ve had at least 700 crashes. He version 5 of the program was so bad • that they had pull it back from production. That did not mean giving everyone their money back and just put out a version 6 and charge everyone $249 for an upgrade. That upgrade was unintelligible until version 6.02, which only crashed every 30 minutes. It wasn’t merely time-consuming going from release to release but it meant training and retraining every version that came out. I am currently running 6.07 and it does not crash as much as long as I do not have too many things on the screen at the same time. It seems that Dragon must keep its eye on every button, link or words in its memory in order to navigate properly. You are not the only one who has mistakingly upgraded their equipment due to Nuance malfeasance. Their user forum, once a place to solve problems or share experiences just mysteriously closed down when user population use the forum for nothing but suing Nuance for false advertising and loss hours of production. This was not the only people who are buying $300-$400 one time boxes. The lawyers and doctors who pay thousands of dollars to build the practices upon which recognition of also lost out. The competition is starting to squeeze Nuance out on the voice recognition arena. Programs like Siri and Alexa are already composing messages small emails. Ready for prime time voice recognition for the desktop is almost here. Patients and don’t buy any more hardware if you suspect it will make Nuance any better. Billy On Nov 2, 2017, at 11:42 AM, DEBRA DEW wrote: I bought the fastest Dell computer I could about six months ago to be able to run Dragon naturally speaking 13 optimally, and at least once a month it was crashing so badly I had to have a computer guy come fix it will. Aside from the fact that I could've bought another computer for the money I spent on repairs, I finally got the brilliant idea after reinstalling Windows and everything else repeatedly that that was not the problem and I suspected something was wrong with the Dragon 13 program. So although they had my computer for over a week, I finally got it back last week with 12.5 reinstalled and so far no crashes. The only difference I can tell in the two programs is that with Dragon 13 trading the profile was not required, but that only took me a few minutes anyway so that's really not an issue to me. I never had recognition issues with either program unless the profile was becoming corrupted and then all I did was make a new profile. Not a big deal. I just wanted to share this with you guys in case you were not aware of it. Obviously Dragon has a monopoly and they do not care about their customers satisfaction any longer. It would've been very graciously polite they would share the news about their newest release not being so hot, and saved us a lot of difficulties figuring out what was going on. http://www.knowbrainer.com/forums/forum/messageview.cfm?FTVAR_FORUMVIEWTMP=Linear&catid=4&threadid=23784&discTab=true Debra Scruggs-Scruggs phalanx-dragon slayers
Re: [QUAD-L] Book 📚 sets
Oh gosh, oh gosh, can't stop laughing, just long enough to type… From: Danny Hearn To: Bobbie Humphreys ; "quad-list@eskimo.com" Sent: Friday, November 24, 2017 1:57 PM Subject: Re: [QUAD-L] Book 📚 sets Well BobbieIf she Eats them, I'd suggest a Steak and Potato flavored one. ;-) On Friday, November 24, 2017 3:49 PM, Bobbie Humphreys wrote: Dose anybody know of a good author that has a book 📚 set or series I can get for my 30 year old niece who is a nurse that eats books Bobbie "Be the change you want to see in the world". Gandhi
Re: [QUAD-L] Book 📚 sets
My roommate says to try the book series Outlander, by Diane Gabaldon. You can also find the TV series on Stars… From: Jeffrey Gaede To: Danny Hearn ; Bobbie Humphreys ; "quad-list@eskimo.com" Sent: Friday, November 24, 2017 1:59 PM Subject: Re: [QUAD-L] Book 📚 sets Oh gosh, oh gosh, can't stop laughing, just long enough to type… From: Danny Hearn To: Bobbie Humphreys ; "quad-list@eskimo.com" Sent: Friday, November 24, 2017 1:57 PM Subject: Re: [QUAD-L] Book 📚 sets Well BobbieIf she Eats them, I'd suggest a Steak and Potato flavored one. ;-) On Friday, November 24, 2017 3:49 PM, Bobbie Humphreys wrote: Dose anybody know of a good author that has a book 📚 set or series I can get for my 30 year old niece who is a nurse that eats books Bobbie "Be the change you want to see in the world". Gandhi
Re: [QUAD-L] QUAD Inc. | Affordable wheelchair accessible housing and independent living | Portland Oregon
As someone who lives in the Portland Metro area, I've heard some good things and bad things about Quad Inc., but I don't think I've ever met anyone who has stayed there. I think what I've heard came from a PA years ago who worked there, so I really can't tell you one way or another about these places. Who knows, maybe I'll be able to provide first-hand knowledge someday :-) You know anymore about them than I, Jim? From: Jim Lubin To: Quad-list Sent: Monday, December 4, 2017 8:08 PM Subject: [QUAD-L] QUAD Inc. | Affordable wheelchair accessible housing and independent living | Portland Oregon http://www.quadinc.org/
Re: [QUAD-L] I wanted to share The Dance
Nicely put… From: Danny Espinoza To: Ron M Pracht ; Quad-list Post Sent: Wednesday, December 6, 2017 8:44 PM Subject: RE: [QUAD-L] I wanted to share The Dance Thank you Ron! :) -Danny Original Message Subject: [QUAD-L] I wanted to share The Dance From: Ron M Pracht Date: Wed, December 06, 2017 7:52 pm To: Quad-list Post I know that many on the list are struggling. In our quad life we face many experiences and give us a lot of pain and struggle. But look back from the start of your injury to this moment and put into your mind the good things that have came into your life. Life as a quad is a dance of pain and some good times, but if you didn't have the chance to survive all those good things would have never been. Our lives are different but just as important as anyone else. We appreciate the good more now more than ever. When you suffer remember the good times from the past and good times still to come. The people you met, things you accomplished, places you went, little victories, a good movie, a special friend, smelling the morning dew. People need to understand that life in any form is a gift and should be appreciated. So many regular healthy folks commit suicide every year(40,000)and it so sad. Christmas is a harder time for me and its almost my 20th anniversary as a quad jan 16, 98. Lets all try to enjoy the moment. Ron
Re: [QUAD-L] So Cold
I feel bad for you guys. I'm 38 years post and I do get cold because I don't have good circulation in my extremities, but I also don't feel those extremities getting cold. Not unless they get supercold or maybe later on after going to bed I'll get cold, but I warm up fairly well and do okay. But I can empathize… Jeff From: Amy Elizabeth Baldwin To: "g...@eskimo.com" ; "quad-list@eskimo.com" Sent: Thursday, December 7, 2017 1:15 PM Subject: Re: [QUAD-L] So Cold It's snowing in Tyler. I'm not too happy about it. Sent from Yahoo Mail on Android On Wed, Dec 6, 2017 at 7:38 PM, Greg wrote: We finely started getting some cooler weather. I’m miserable. Just shaking cold. Hats, hoodie, blanket, coffee, etc. I’m shaking so bad I can hardly type. I don’t know how you guys can take it in colder areas. Greg
[QUAD-L] Cell phones
What are the best cell phones and/or apps for complete hands-free use that you guys know of?
Re: [QUAD-L] Cell phones
I'm really resisting sesame because you have to be right in front of the phone in order for it to work. Have you tried it out? I'm thinking that my type of emergencies would likely call for me not being directly in front of the phone, which I know leaves me something like Google Assistant, but I was curious if there is something else From: Jim Lubin To: Jeffrey Gaede Cc: Quad-list Post Sent: Monday, December 11, 2017 4:46 PM Subject: Re: [QUAD-L] Cell phones I suggest an Android phone that works with Sesame Enable. Take a look at their website https://sesame-enable. com/ Even if you don't use Sesame Enable, Android has built-in voice accesshttps://support.google.com/accessibility/android/answer/6151848?hl=en&ref_topic=6151842 On Mon, Dec 11, 2017 at 3:41 PM, Jeffrey Gaede wrote: What are the best cell phones and/or apps for complete hands-free use that you guys know of?
Re: [QUAD-L] has anyone tried a pillow speaker?
Look up SpeechStart+. Greatest piece of software I've seen in a long time. Once it's set up, you can literally turn your microphone off and then turn it back on with this software, all by voice. Only like $37. Can't beat it if you are an avid DNS user. Heard about it on this site. Jeff From: Dave Krehbiel To: 'Quad-list Post' Sent: Tuesday, December 12, 2017 1:50 PM Subject: [QUAD-L] has anyone tried a pillow speaker? I am using Dragon NaturallySpeaking. But it is hard to watch YouTube videos, since Dragon hears the dialogue and gets confused. While I'm in bed, I spent most of my time on my side, and so headphones don't work so well. I'm thinking about getting a pillow speaker. Has anyone tried that? Or, have you found some other way to watch YouTube videos while using Dragon? Thanks, and take care, Dave KrehbielOlney, MD | | Virus-free. www.avast.com |
Re: [QUAD-L] Merry Christmas, I voted for Trump and I'm a christian
You are American. You have the right to vote for whomever you choose. You also own the responsibility for that vote… From: Nichole Rohling To: 'Glenn A Henry' ; quad-list@eskimo.com Sent: Sunday, December 24, 2017 12:06 PM Subject: RE: [QUAD-L] Merry Christmas, I voted for Trump and I'm a christian Merry Christmas to you and yours!! Nicki From: Glenn A Henry [mailto:gah17...@aol.com] Sent: Sunday, December 24, 2017 1:52 PM To: quad-list@eskimo.com Subject: [QUAD-L] Merry Christmas, I voted for Trump and I'm a christian MerryChristmas It is Christmas, well technically Christmas Eve, and if you are offended at what I say, perhaps you will read my whole post and know my story a little better. First, Merry Christmas, happy Hanukkah, happy Kwanzaa, happy happy happy.Okay, I’m one of those that believe that Donald Trump is doing a fantastic job even though the fake news media is doing their best to discredit everything that the majority of this country was built upon and believes in. For those that say the quad site is not for religion, politics or a Merry Christmas, go pound sand, better yet stick your head under it and come out in eight years. Now, I’m going to say what I intend. I'm free, live in the United States of America, the greatest nation on earth and at the moment have free speech. I have been on the quad site most of 12 to 14 years, if not more and enjoyed the posts that came across, found many helpful and I was able to help other people that posted. I’m proud of who I am, what I’ve accomplished in my life and scared of the road that I need to travel. I have this road close to my house that I call my Prayer Road. When I have an issue I will travel this road to think and pray. I was traveling that road in 1996 praying for an answer to prayer because of a decision I needed to make. My mother was put on a ventilator and a decision needed to be made to continue. Being the only surviving child the weight fell on my shoulders and that was the issue I was praying about. I know the spot that an audible voice told me “don’t worry she is already with me.” That is something I will never forget. I still travel that road when I have an issue to think or pray about, but I look at the road a little different. About two thirds of the way on this road, I look back. What I see is a stone road that I traveled many times. This road is now paved, but in my mind I can still see a stone road and small concrete bridge. This road I traveled hundreds of times on the way to “the old swimming hole”. Oh yes, the old swimming hole, many of us have areas like this, many of the kids that swam there also tried their first cigarette or other first. Mine was a small corncob pipe, tobacco was cherry blend half-and-half. As I look back the road I treasure the memories of the swimming hole and probably the best hunting for small game in the area. I took many a rabbit and squirrel from that road. Gone is the stone road, much of the trees and brush, remaining sweet memories. Today on that same road after I have looked back, I look forward. The road goes up a small hill and bears to the left. If you are new to that road wonder, what is ahead, what will I need to go through. I know what I find for I elected to follow that road many years ago. However, the thought of what is ahead and how will I handle it is the million-dollar question. A few months ago someone made the comment about ending their life, but stated that they probably would not have the strength to go through that. It is not srength to end your life, I know that all too well. Yes, it is going to end your suffering and Lord knows I’ve suffered too. I’ve also gone through pain when a brother committed suicide and I know firsthand what it does to those around you. My nephew to this day has to be on medication for depression. If he does not take his medicine they may find him laying on the floor rolled up in a ball. My brother was a police officer, was on solo patrol and watched helplessly as his best friends father, a damn drunk, stepped out from the backside of a telephone pole into the path of a car, to commit suicide. My brother tried to get him out and resuscitate him, but no go. The year was 1975 and thinking about actions like this were totally different. The police department gave a few counseling sessions, but basically told him not to think about it or talk about it and eventually it will go away. Well, just about a year later it went away and so does my brother. I am mad at the police department, or basically the people that were in charge of that time, but I met her at my brother. At my time of life I need someone that I can share with, and certain things cannot be shared and understood unless it is a sibling or very long-standing friend. My accident was 1966, so that makes me almost 52 years post SCI. In those 52 years I started out with two small businesses, the first making Christma
[QUAD-L] Rested
Anybody have answers to trouble sleeping or at least feeling rested when first awake, besides medication of any kind? Jeff
Re: Fwd: [QUAD-L] Rested
Autonomic-dysreflexia? Something else? From: Bryce Willis To: "quad-list@eskimo.com" Sent: Saturday, February 3, 2018 6:00 PM Subject: Fwd: [QUAD-L] Rested The very worst part of my day is waking up in the morning. I’m always soaked in cold sweat and hurt all over.I dread going to bed just thinking about waking up in the morning. Quad life is such a joy...not. Sent from my iPad Begin forwarded message: Resent-From: From: Jeffrey Gaede Date: February 3, 2018 at 8:15:50 PM EST To: Quad-list Post Subject: [QUAD-L] Rested Reply-To: Jeffrey Gaede Anybody have answers to trouble sleeping or at least feeling rested when first awake, besides medication of any kind? Jeff
Re: [QUAD-L] Rested
I'm sure my doctor would prescribe whatever but I'll probably do without. I did visit a sleep clinic last week and they are going to test my oxygen while sleeping. I don't think that's the problem but whatever… From: Eric Olson To: Jeffrey Gaede Cc: Quad-list Post Sent: Sunday, February 4, 2018 11:12 AM Subject: Re: [QUAD-L] Rested I finally gave up 2 years ago and started taking sleeping meds. At the time, I rarely slept more than 2 hours straight. I figured I was doing more damage to my brain by never getting any rest than taking something. I was an insomniac before my injury. Then add not being able to reposition at will. Now I pop an ambien every other night. | | Virus-free. www.avast.com | On Sat, Feb 3, 2018 at 7:15 PM, Jeffrey Gaede wrote: Anybody have answers to trouble sleeping or at least feeling rested when first awake, besides medication of any kind? Jeff
Re: [QUAD-L] Rested
I'm starting to think however much sleep I get is just the way it goes. Hey,
how are you changing the channel on your TV through your echo? I have no cable
whatsoever. Are you changing a cable box or the actual TV and how? Jeff
From: "poaj...@sbcglobal.net"
To: 'Jeffrey Gaede' ; 'Eric Olson'
Cc: 'Quad-list Post'
Sent: Sunday, February 4, 2018 3:05 PM
Subject: RE: [QUAD-L] Rested
#yiv0218264201 #yiv0218264201 -- _filtered #yiv0218264201
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{}#yiv0218264201 I have never been a good sleeper, and not being able to move
when I wake up is a pain in the neck-literally!! If I consistently get less
than 5 hours per night I will take an ambien, but I’d try to keep it to a
minimum and only use one 30 pill prescription per year. I usually just switch
channels on the TV (thank you Amazon Echo) and get what sleep I can. We have
had such a mild winter that I have been able to be outside a lot, and that
makes it easier for me to sleep. From: Jeffrey Gaede
[mailto:jsga...@yahoo.com]
Sent: Sunday, February 04, 2018 11:18 AM
To: Eric Olson
Cc: Quad-list Post
Subject: Re: [QUAD-L] Rested I'm sure my doctor would prescribe whatever but
I'll probably do without. I did visit a sleep clinic last week and they are
going to test my oxygen while sleeping. I don't think that's the problem but
whatever… From: Eric Olson
To: Jeffrey Gaede
Cc: Quad-list Post
Sent: Sunday, February 4, 2018 11:12 AM
Subject: Re: [QUAD-L] Rested I finally gave up 2 years ago and started taking
sleeping meds. At the time, I rarely slept more than 2 hours straight. I
figured I was doing more damage to my brain by never getting any rest than
taking something. I was an insomniac before my injury. Then add not being
able to reposition at will. Now I pop an ambien every other night.
| | Virus-free. www.avast.com |
On Sat, Feb 3, 2018 at 7:15 PM, Jeffrey Gaede wrote:
Anybody have answers to trouble sleeping or at least feeling rested when first
awake, besides medication of any kind? Jeff
Re: [QUAD-L] Re: Mouthpiece Search
Yeah, those don't work for me, Jim. Every time I've searched for sip and puff
mouthpieces, that's what I find and usually that's all I find. I'm sure they
are out there somewhere but who knows what they were originally used for.
From: Jim Lubin
To: Jeffrey Gaede
Cc: Quad-list Post
Sent: Thursday, February 22, 2018 7:03 PM
Subject: [QUAD-L] Re: Mouthpiece Search
I think it got rejected by the list with the photo attached.
I've been using these dental "saliva ejectors" with my sip and puff. They are a
flexible tube about 5" long with wire embedded so it keeps the shape when you
bend it.
http://www.idsdental.com/salivaejectors.html
On Thu, Feb 22, 2018 at 6:32 PM, Jeffrey Gaede wrote:
Hello, Folks. I was wondering if you might help searched for something. I have
a sip and puff controlled wheelchair and back around 2005 I had the perfect
mouthpieces for this chair. A few years ago I got down to the last mouthpiece
and went online to order more, only I couldn't find the same thing. I've
searched a number of times the past couple years and can't come up with
anything close. It's possible that these were never designed to be sip and puff
wheelchair mouthpieces, but I'd be more than grateful if someone could locate
them for me. They are "L-shaped", made of a very sturdy plastic composite,
giving them a little flex but you couldn't clamp it closed with the tightest
bite, and there is a "doughnut" molded into one end. The attached picture is of
the last one I had. It's a little warped because someone tried to wash it in a
dishwasher, but it would normally be about 5" long, again, L-shaped, and has a
doughnut molded onto one end. Thanks for any help… Jeff
Re: [QUAD-L] Re: Mouthpiece Search
I know, Jim. And I have put in so many hours searching! I've essentially given up looking for sip and puff parts and I'm looking at tubing from plumbing or wherever. I even called back to New Mexico at one point to try and find the company that may have provided the part but that got me nowhere. Not sure what to try next. From: Jim Lubin To: Jeffrey Gaede Cc: Quad-list Post Sent: Thursday, February 22, 2018 11:44 PM Subject: Re: [QUAD-L] Re: Mouthpiece Search Bummer. It sucks when something works and you can't find a replacement. I am having the same problem with some of my vent circuit parts. Some of the old parts work better for me but I can't find replacements. On Thu, Feb 22, 2018 at 7:15 PM, Jeffrey Gaede wrote: Yeah, those don't work for me, Jim. Every time I've searched for sip and puff mouthpieces, that's what I find and usually that's all I find. I'm sure they are out there somewhere but who knows what they were originally used for. From: Jim Lubin To: Jeffrey Gaede Cc: Quad-list Post Sent: Thursday, February 22, 2018 7:03 PM Subject: [QUAD-L] Re: Mouthpiece Search I think it got rejected by the list with the photo attached. I've been using these dental "saliva ejectors" with my sip and puff. They are a flexible tube about 5" long with wire embedded so it keeps the shape when you bend it. http://www.idsdental.com/ salivaejectors.html On Thu, Feb 22, 2018 at 6:32 PM, Jeffrey Gaede wrote: Hello, Folks. I was wondering if you might help searched for something. I have a sip and puff controlled wheelchair and back around 2005 I had the perfect mouthpieces for this chair. A few years ago I got down to the last mouthpiece and went online to order more, only I couldn't find the same thing. I've searched a number of times the past couple years and can't come up with anything close. It's possible that these were never designed to be sip and puff wheelchair mouthpieces, but I'd be more than grateful if someone could locate them for me. They are "L-shaped", made of a very sturdy plastic composite, giving them a little flex but you couldn't clamp it closed with the tightest bite, and there is a "doughnut" molded into one end. The attached picture is of the last one I had. It's a little warped because someone tried to wash it in a dishwasher, but it would normally be about 5" long, again, L-shaped, and has a doughnut molded onto one end. Thanks for any help… Jeff
Re: [QUAD-L] Re: Mouthpiece Search
Those are some interesting ideas. The mouthpiece isn't something specifically designed for an individual, but interesting ideas. I tried attaching a picture but it didn't allow me. Not sure how that works. Jim? Would I have to send it directly to individuals? From: Greg To: quad-list@eskimo.com Sent: Saturday, February 24, 2018 7:14 AM Subject: Re: [QUAD-L] Re: Mouthpiece Search I don't use sip-and-puff, but can the mouth piece be 3D printed? I don't know what its made out of, or if its like a straw or a mouth piece. Is there a photo to see what they look like? Could a dentist mold your mouth, etc. Greg On 2/23/2018 12:43 AM, Jim Lubin wrote: Bummer. It sucks when something works and you can't find a replacement. I am having the same problem with some of my vent circuit parts. Some of the old parts work better for me but I can't find replacements. On Thu, Feb 22, 2018 at 7:15 PM, Jeffrey Gaede wrote: Yeah, those don't work for me, Jim. Every time I've searched for sip and puff mouthpieces, that's what I find and usually that's all I find. I'm sure they are out there somewhere but who knows what they were originally used for. From: Jim Lubin To: Jeffrey Gaede Cc: Quad-list Post Sent: Thursday, February 22, 2018 7:03 PM Subject: [QUAD-L] Re: Mouthpiece Search I think it got rejected by the list with the photo attached. I've been using these dental "saliva ejectors" with my sip and puff. They are a flexible tube about 5" long with wire embedded so it keeps the shape when you bend it. http://www.idsdental.com/ salivaejectors.html On Thu, Feb 22, 2018 at 6:32 PM, Jeffrey Gaede wrote: Hello, Folks. I was wondering if you might help searched for something. I have a sip and puff controlled wheelchair and back around 2005 I had the perfect mouthpieces for this chair. A few years ago I got down to the last mouthpiece and went online to order more, only I couldn't find the same thing. I've searched a number of times the past couple years and can't come up with anything close. It's possible that these were never designed to be sip and puff wheelchair mouthpieces, but I'd be more than grateful if someone could locate them for me. They are "L-shaped", made of a very sturdy plastic composite, giving them a little flex but you couldn't clamp it closed with the tightest bite, and there is a "doughnut" molded into one end. The attached picture is of the last one I had. It's a little warped because someone tried to wash it in a dishwasher, but it would normally be about 5" long, again, L-shaped, and has a doughnut molded onto one end. Thanks for any help… Jeff
Re: [QUAD-L] Re: Mouthpiece Search
I'll have to try the dropbox thing when I'm not so tired. Thank you for the ideas, Everyone.Jeff From: Jim Lubin To: Jim Lubin Cc: Jeffrey Gaede ; Greg ; "quad-list@eskimo.com" Sent: Saturday, February 24, 2018 5:09 PM Subject: Re: [QUAD-L] Re: Mouthpiece Search How about this modable thermoplastic? http://www.instamorph.com/ you drop it in warm water, mold it to the shape then put it in cold water and it holds the shape. On Sat, Feb 24, 2018 at 11:23 AM, Jim Lubin wrote: You could put the picture in a cloud drive (dropbox, onedrive, google drive), copy the share link to your message. On Sat, Feb 24, 2018 at 9:36 AM, Jeffrey Gaede wrote: Those are some interesting ideas. The mouthpiece isn't something specifically designed for an individual, but interesting ideas. I tried attaching a picture but it didn't allow me. Not sure how that works. Jim? Would I have to send it directly to individuals? From: Greg To: quad-list@eskimo.com Sent: Saturday, February 24, 2018 7:14 AM Subject: Re: [QUAD-L] Re: Mouthpiece Search I don't use sip-and-puff, but can the mouth piece be 3D printed? I don't know what its made out of, or if its like a straw or a mouth piece. Is there a photo to see what they look like? Could a dentist mold your mouth, etc. Greg On 2/23/2018 12:43 AM, Jim Lubin wrote: Bummer. It sucks when something works and you can't find a replacement. I am having the same problem with some of my vent circuit parts. Some of the old parts work better for me but I can't find replacements. On Thu, Feb 22, 2018 at 7:15 PM, Jeffrey Gaede wrote: Yeah, those don't work for me, Jim. Every time I've searched for sip and puff mouthpieces, that's what I find and usually that's all I find. I'm sure they are out there somewhere but who knows what they were originally used for. From: Jim Lubin To: Jeffrey Gaede Cc: Quad-list Post Sent: Thursday, February 22, 2018 7:03 PM Subject: [QUAD-L] Re: Mouthpiece Search I think it got rejected by the list with the photo attached. I've been using these dental "saliva ejectors" with my sip and puff. They are a flexible tube about 5" long with wire embedded so it keeps the shape when you bend it. http://www.idsdental.com/ salivaejectors.html On Thu, Feb 22, 2018 at 6:32 PM, Jeffrey Gaede wrote: Hello, Folks. I was wondering if you might help searched for something. I have a sip and puff controlled wheelchair and back around 2005 I had the perfect mouthpieces for this chair. A few years ago I got down to the last mouthpiece and went online to order more, only I couldn't find the same thing. I've searched a number of times the past couple years and can't come up with anything close. It's possible that these were never designed to be sip and puff wheelchair mouthpieces, but I'd be more than grateful if someone could locate them for me. They are "L-shaped", made of a very sturdy plastic composite, giving them a little flex but you couldn't clamp it closed with the tightest bite, and there is a "doughnut" molded into one end. The attached picture is of the last one I had. It's a little warped because someone tried to wash it in a dishwasher, but it would normally be about 5" long, again, L-shaped, and has a doughnut molded onto one end. Thanks for any help… Jeff
[QUAD-L] Fw: Jeffrey Gaede shared "Mouthpiece.jpg" with you
Hello, Folks. I was wondering if you might help searched for something. I have a sip and puff controlled wheelchair and back around 2005 I had the perfect mouthpieces for this chair. A few years ago I got down to the last mouthpiece and went online to order more, only I couldn't find the same thing. I've searched a number of times the past couple years and can't come up with anything close. It's possible that these were never designed to be sip and puff wheelchair mouthpieces, but I'd be more than grateful if someone could locate them for me. They are "L-shaped", made of a very sturdy plastic composite, giving them a little flex but you couldn't clamp it closed with the tightest bite, and there is a "doughnut" molded into one end. The attached picture is of the last one I had. It's a little warped because someone tried to wash it in a dishwasher, but it would normally be about 5" long, again, L-shaped, and has a doughnut molded onto one end. Thanks for any help… Jeff On Sun, Feb 25, 2018 at 11:12 AM, Jeffrey Gaede wrote: Mouthpiece.jpgDoes this work? | | | | || | | | || Mouthpiece.jpg Shared with Dropbox | | | | From: Jim Lubin To: Jeffrey Gaede Sent: Sunday, February 25, 2018 11:07 AM Subject: Re: Jeffrey Gaede shared "Mouthpiece.jpg" with you the best way to do it is to: - select the file - click Share - click Create link - click Copy link it will then make a shorter url that you can paste in your message to share. On Sun, Feb 25, 2018 at 10:32 AM, Jeffrey Gaede (via Dropbox) wrote: | | | | | | | | | | Hi there, Jeffrey Gaede (jsga...@yahoo.com) invited you to view the file "Mouthpiece.jpg" on Dropbox. Jeffrey said: "Remember, this has a hole running through the middle, it's old because it was my last one, warped a bit, but it was L-shaped and what kind of looks like the flared end was originally a doughnut-shaped part of the plastic that was molded in place. This thing is about 5-6" long overall and about the diameter of one of those long, skinny plastic straws. I can get a link to those types of straws if that's confusing." View file Enjoy! The Dropbox team Jeffrey and others will be able to see when you view this file. Other files shared with you through Dropbox may also show this info. Learn more in our help center. | | | | | | | | | | © 2018 Dropbox | | |
Re: [QUAD-L] Fw: Jeffrey Gaede shared "Mouthpiece.jpg" with you
The plastic is way too hard for something like that. It has a little flexibility but it's pretty hard. From: Greg To: quad-list@eskimo.com Sent: Sunday, February 25, 2018 12:56 PM Subject: Re: [QUAD-L] Fw: Jeffrey Gaede shared "Mouthpiece.jpg" with you Can you use an IV tube? If you taped a pipe cleaner thing to it, or unbent paper-clip, covered in tape. You could bend it to any shape. Greg On 2/25/2018 12:25 PM, Jeffrey Gaede wrote: Hello, Folks. I was wondering if you might help searched for something. I have a sip and puff controlled wheelchair and back around 2005 I had the perfect mouthpieces for this chair. A few years ago I got down to the last mouthpiece and went online to order more, only I couldn't find the same thing. I've searched a number of times the past couple years and can't come up with anything close. It's possible that these were never designed to be sip and puff wheelchair mouthpieces, but I'd be more than grateful if someone could locate them for me. They are "L-shaped", made of a very sturdy plastic composite, giving them a little flex but you couldn't clamp it closed with the tightest bite, and there is a "doughnut" molded into one end. The attached picture is of the last one I had. It's a little warped because someone tried to wash it in a dishwasher, but it would normally be about 5" long, again, L-shaped, and has a doughnut molded onto one end. Thanks for any help… Jeff On Sun, Feb 25, 2018 at 11:12 AM, Jeffrey Gaede wrote: Mouthpiece.jpg Does this work? | | | | | | | | | || Mouthpiece.jpg Shared with Dropbox | | | | From: Jim Lubin To: Jeffrey Gaede Sent: Sunday, February 25, 2018 11:07 AM Subject: Re: Jeffrey Gaede shared "Mouthpiece.jpg" with you the best way to do it is to: - select the file - click Share - click Create link - click Copy link it will then make a shorter url that you can paste in your message to share. On Sun, Feb 25, 2018 at 10:32 AM, Jeffrey Gaede (via Dropbox) wrote: | | | | | | | | | | Hi there, Jeffrey Gaede (jsga...@yahoo.com) invited you to view the file "Mouthpiece.jpg" on Dropbox. Jeffrey said: "Remember, this has a hole running through the middle, it's old because it was my last one, warped a bit, but it was L-shaped and what kind of looks like the flared end was originally a doughnut-shaped part of the plastic that was molded in place. This thing is about 5-6" long overall and about the diameter of one of those long, skinny plastic straws. I can get a link to those types of straws if that's confusing." View file Enjoy! The Dropbox team Jeffrey and others will be able to see when you view this file. Other files shared with you through Dropbox may also show this info. Learn more in our help center.| | | | | | | | | | © 2018 Dropbox | | |
Re: [QUAD-L] Ramp/Door Problems
I have a 2002 Dodge Grand Caravan and have had the same issues. I took it out to Ability Center in Wilsonville, Oregon. They told me they've seen the same issues with this type of van when it gets that old. Unfortunately, we couldn't duplicate the problems I was having but they seemed to have a basic idea of what the problem would/could be. I don't recall exactly what they said but you might want to give them a try. From: "wheelch...@aol.com" To: zoocr...@windstream.net; quad-list@eskimo.com Sent: Friday, March 23, 2018 1:33 PM Subject: Re: [QUAD-L] Ramp/Door Problems Not sure how old your IMS Conversion is but I'm guessing the parts necessary are becoming obsolete as new technology takes over and old technology is passe. Have you considered contacting IMS directly for their Zone Manager or their tech service dept. This is the best I can offer you now..Best Wishes In a message dated 3/23/2018 3:25:58 PM Central Standard Time, zoocr...@windstream.net writes: I have a 2002 Dodge Grand Caravan with IMS Conversion. I took my van to United Access OKC (hate it) and waited 2.5 hours to be told what I told them was wrong with it. My ramp isn’t extending out to ground level and it doesn’t pull completely in which sometime prevents the door from closing all the way. Ramp also wouldn’t pull back in unless the flap at the top of ramp is lifted. My door also isn’t unlatching and someone has to pull the handle after I push the button to open it. They told me even if they could get parts it would be $10,000 to $15,000 and that would be a great down payment on a new van. They waived the diagnostic fee and gave me a card for their salesman. They didn’t even clean or service the ramp.Purchasing a new van is not an option. I took my van to a technology school and the kids there cleaned the components they could reach and eventually got the ramp to extend/retract like it should. The instructor couldn’t get the door latch figured out before he ran out of time. He fixed it before but we don’t remember exactly what he did to fix it. (He took the panel off the inside of the door and did something to the part that makes the latch unlatch. Is there an adjustment that can be made on that part?). The ramp pulls in very slow. I am open to any suggestions as to what could be wrong/how to fix it. ThanksNicki
Re: [QUAD-L] AD?
To me, A.D. involves increased blood pressure, thus the pounding in your head and perhaps the cramping in your chest. If it gets to that point I'd either have a drug on hand to lower blood pressure, call 911, or take your chances… And I have had it stay in my head for a while after the cause of it all has been eliminated. Could have been gas? From: Greg To: quad-list@eskimo.com Sent: Wednesday, March 28, 2018 12:46 PM Subject: [QUAD-L] AD? When you get an AD Headache, does the pain stay in your head, or does your chest cramp too? This morning, for no know reason, just getting dressed, I thought my head was going to explode out my left eye. But my chest cramped so hard it hurt too. Then my abdomen area starts to groan. As it groans, the pressure starts to release. Greg
Re: [QUAD-L] AD?
It's a temporary medicine. Not sure what it's called but I kept it around at one time. You might ask a doctor. It's only for "emergencies". From: Greg To: quad-list@eskimo.com Sent: Wednesday, March 28, 2018 5:28 PM Subject: Re: [QUAD-L] AD? It could be gas, has been before. but not much going on now. When I get AD I do spasm a lot. Most of the time on me, its bowel or bladder. Or touching my crotch area when I get a yeast infection. As long as I can sit up, it goes away quickly. I fear taking lower blood pressure meds to lower it, since most of the time I'm dealing with low blood pressure. Greg On 3/28/2018 2:33 PM, Jeffrey Gaede wrote: To me, A.D. involves increased blood pressure, thus the pounding in your head and perhaps the cramping in your chest. If it gets to that point I'd either have a drug on hand to lower blood pressure, call 911, or take your chances… And I have had it stay in my head for a while after the cause of it all has been eliminated. Could have been gas? From: Greg To: quad-list@eskimo.com Sent: Wednesday, March 28, 2018 12:46 PM Subject: [QUAD-L] AD? When you get an AD Headache, does the pain stay in your head, or does your chest cramp too? This morning, for no know reason, just getting dressed, I thought my head was going to explode out my left eye. But my chest cramped so hard it hurt too. Then my abdomen area starts to groan. As it groans, the pressure starts to release. Greg
Re: [QUAD-L] tongue control versus sip and puff?
Amazing technology. I wish the inventor and the one user would have just referred to it as an alternative. As a longtime sip and puff chair user, I can make my chair dance. To call sip and puff "very slow" and "like Morse code" is kind of ridiculous. I would challenge my ability of sip and puff against any other type of use for driving a wheelchair, which is what you do with a wheelchair. The fact that this technology allows for other uses, like computer, cell phone etc. is pretty amazing. But that can be used whether or not someone is using sip and puff with the wheelchair. It's great technology. I hope they keep finding different ways to make life better for us, but I don't see any reason to put down sip and puff technology in order to propagate this technology. Thanks for the article! Jeff From: Randy Anderson To: quad-list Sent: Sunday, April 15, 2018 2:26 PM Subject: [QUAD-L] tongue control versus sip and puff? I found this article kind of interesting, as a sip and puff user. http://www.foxnews.com/health/2013/11/27/tongue-controlled-wheelchairs-prove-effective-for-quadriplegic-patients.html
Re: [QUAD-L] 45th Anniversary
How different and similar lives can be. This Saturday will mark 39 years post injury, from the age of 17. I'm fortunate in that my body doesn't hurt but I have also recently discovered a serious pressure sore, despite having an expensive, unique seating system and having been pressure mapped in the system probably 4-5 times in the last year – with the mapping showing no pressure. And while I haven't had my current PAs with me for 9 years, they probably both have at least 5 years apiece. I went to college, haven't traveled much, certainly been bad, but like to think I'm good, and I don't know what the future holds. Except, I hope there are no "newbies." Jeff From: "wheelch...@aol.com" To: bobbiehumphre...@gmail.com; quad-list@eskimo.com Sent: Tuesday, April 17, 2018 9:55 AM Subject: Re: [QUAD-L] 45th Anniversary Congratulations ! Congrats, Best Wishes ! You did it and I know it wasn't pleasant or easy. May you continue to succeed and do well as you inspire others. Best Wishes In a message dated 4/17/2018 11:44:44 AM Central Standard Time, bobbiehumphre...@gmail.com writes: Today is 45 freaking YEARS since I fell off a 250 Kawalski and broke C 5,6 at 17 years old My body is truly falling apart and hurts like HELL! I met Pete 9 years later and he's STILL taking care of me 24/7/365. Bless his heart ❤️ I went to college, traveled, was bad, was good I don't know how much longer I can stand sitting. I just found out I have a stage 4 wound and I was only getting up every other day for 7-8 hours a day And that's with Pete checking my skin EVERY day ... it just "cropped up" I hope you newbie's have a better Road then us old timers Bobbie "Be the change you want to see in the world". Gandhi
Re: [QUAD-L] Using a GlassOuse Assistive device to control a smart phone - YouTube
Pretty handy but I've got this hangup about wearing things on my head:(Jeff From: Jim Lubin To: Quad-list Sent: Sunday, April 15, 2018 5:43 PM Subject: [QUAD-L] Using a GlassOuse Assistive device to control a smart phone - YouTube https://www.youtube.com/watch?v=zaq4N9FHK4w&feature=share Click on this link if you want to buy a GlassOuse: http://glassouse.com/ A GlassOuse is an assistive device which can be used to control a PC, smart phone or even a smart TV. In fact any device which uses Bluetooth can be controlled with it.
Re: [QUAD-L] 29th quad anniversary
I was 17, and my 39th "anniversary" was this past April 21, 2018. From: Jim Lubin To: Danny Hearn Cc: Jim Lubin ; Quad-list Sent: Thursday, May 17, 2018 6:44 PM Subject: Re: [QUAD-L] 29th quad anniversary I was 21 when it happened. On Thu, May 17, 2018 at 5:56 PM, Danny Hearn wrote: Awesome, Jim...You have accomplished quite a bit in your time here on Earth, How old where you when this 1st happened to you ? Dan H** On Thursday, May 17, 2018 6:47 PM, Jim Lubin wrote: Today marks the 29th year that I have survived the effects from Acute Idiopathic Transverse Myelitis! I woke up in the morning with a pain in my shoulder. About 2 hours later the pain intensified, I suddenly was unable to move and stopped breathing. It left me paralyzed from the neck down and dependent on a ventilator to breathe. Happy to be alive!
Re: [QUAD-L] 29th quad anniversary
Happy Birthday! From: Amy Elizabeth Baldwin To: Jeffrey Gaede ; Jim Lubin ; Danny Hearn Cc: Quad-list Sent: Saturday, May 19, 2018 11:14 AM Subject: Re: [QUAD-L] 29th quad anniversary That is my birthday!!LittleQuad Sent from Yahoo Mail on Android On Thu, May 17, 2018 at 8:52 PM, Jeffrey Gaede wrote: I was 17, and my 39th "anniversary" was this past April 21, 2018. From: Jim Lubin To: Danny Hearn Cc: Jim Lubin ; Quad-list Sent: Thursday, May 17, 2018 6:44 PM Subject: Re: [QUAD-L] 29th quad anniversary I was 21 when it happened. On Thu, May 17, 2018 at 5:56 PM, Danny Hearn wrote: Awesome, Jim...You have accomplished quite a bit in your time here on Earth, How old where you when this 1st happened to you ? Dan H** On Thursday, May 17, 2018 6:47 PM, Jim Lubin wrote: Today marks the 29th year that I have survived the effects from Acute Idiopathic Transverse Myelitis! I woke up in the morning with a pain in my shoulder. About 2 hours later the pain intensified, I suddenly was unable to move and stopped breathing. It left me paralyzed from the neck down and dependent on a ventilator to breathe. Happy to be alive!
[QUAD-L] Hello!
So who all is still here and what is everyone talking about?Jeff
